Schedule of papers 2014
Buildings: GF = George Fox CC = Charles Carter
Tuesday 9 th September
Paper Session A 13.30-15.00 (90 minutes)
A1
Chair: Anat Greenstein
Goodley Dan and
Katherine
Runswick-Cole
Donna Reeve
Susie Balderston
Becoming dis/human: Thinking about the human through disability in a time of austerity Venu Venue: GF1 of indistinction: An analysis of disabled GF1 people’s experience of welfare reform in the UK
Assisted Suicide, Prosecutions and
Advance Directives: A problem of policy, practice and PACE in Europe.
A2
Chair: John Bertelsen
Birgit
KirkebÆk, John
Bertelsen and Bente
Dunker Bertelsen
The concept of dignity in a new and historical context- or: the return of the rhetoric of morality
Emmeline Burdett
Nancy Hansen
The Nuremberg Medical Trial and Disability
Studies
Disabled Academics Reshaping the
Research Landscape
Venue:
GF2
Chair: Claudia Malacrida
A3
A4
Ikanshi Khanna
[via skype]
Anna Arstein-
Kerslake
Giulia Garofalo
Geymonat
In Search of Intimacy: Experiences of
Persons with Physical Disability
The Right to Sex: Legal Capacity Law and
Sexual Decision-Making
When Stigmas Meet. The Making of
Sexual Assistance in Europe
Venue:
GF3
Chair: Lindsay Coyle
Josephine Foubert,
Ronan Van Rossem and Katia Levecque
Same consequences for everyone? The socially and relationally structured influence of chronic illnesses on well-being
Venue:
GF4

A5
A6
A7
A8
Lindsay Coyle
Helene von Granitz
Exploring the diagnosis, treatment and care experiences of people living with multiple disabilities/ illnesses/ conditions
Core of Content - What constitutes perceived quality of personal assistance?
Chair: Alan Roulstone
Abigail Pearson
Ieva Eskyte
Frederike Scholz
Reasonable adjustment: The Golden
Goose or the Cuckoo in the Nest of
Equality?
Translating accessibility ‘needs’: perspectives of the private market and
Disabled People Organisations
Disability discrimination and the recruitment process: responding to legal and technological developments
Chair: Emma Palmer
Dawn Benson
Sandra
Dowling, Berni
Kelly and Karen
Winter
Chair: Sue Cranmer
Birth Injury, Disabling Families and
Enabling Human Factors
Abuse, risk, and safeguarding disabled looked after children.
Venue:
GF5
Venue:
CC A16
Patrick Kermit, Anne
Mali Tharaldsteen and Gry Mette D.
Haugen
Snæfrídur Thóra
Egilson
Ruchi Palan
Adolescents with sensory impairments in ordinary classrooms – different notions of
“participation” and “inclusion”
School experiences of pupils with physical impairments over time
“I seriously wanted to opt for Science but they said no”: ‘Access’ to Higher Education for Students with Visual Impairments in
India
Venue:
CC A15
Chair: Val Williams
Oliver Mutanga
Zoe Aitken, Anne
Kavanagh, Lauren
Krnjacki, Anthony
Lamontagne,
Andrew Beer,
Collision of identities: An analysis of race, class and gender among disabled students at two South African universities Venue:
CC A17
Mapping the intersections between disability, type of impairment, gender and socio-economic disadvantage

Emma Baker and
Rebecca Bentley
David Abbott and
Marcus Jepson
'It's not even gender neutral, gender's not even in there': Men with Duchenne muscular dystrophy and interactions with social care
Mad Studies Stream
Chair: Peter Beresford & Brigit McWade
Jijian Voronka,
Kathryn Church and
Lucy Costa
Symposium: Making Mad Studies in
Canada: process, practice, and contestations
A9
Paper Session B: 15.30-17.00
B1
B2
Venue:
CC A19
Chair: Xirong He
Åsa Alftberg
Amanda Taylor and
Gerasimos
Chatzidamianos
Xirong He
Experiences of soundscapes for individuals with cochlear implants
The silent corner of mental health and
Deafness: An interdisciplinary dialogue
Venue:
GF4
Hearing parents raising their deaf children on the journey to mainstream schools in
Beijing, China
Chair: Sue Cranmer
Delia Ferri and
Jenni Kline
Sue Cranmer
Peter Fuzesi
Fostering the Production of Assistive
Technologies in Europe: A Multidisciplinary
Analysis
What is an assistive technology?
Convergence across mainstream and
‘assistive’ technologies.
Designing dis/abilities
Venue:
GF5
B3
Chair: Katherine Runswick-Cole
Susan Eriksson
Marta Sałkowska
Deviance, normalcy and tales: performances of sexuality of disabled people in autobiographical data
"We had to make it normal that she was not normal". Subjective meanings of normalcy among mothers of persons with
Venue:
CC A15

B4
B5
B6
B7
B8
Down’s syndrome in Norway and in Poland
Amith Kumar P V
‘Crippling the crips’: Imposing ‘normalcy’ on the disabled in India
Chair: Zoe Lambert
Aine Sperrin
Rebecca Irvine
Zoe Lambert
Access to Independent Living for Persons with Intellectual Disabilities in post-conflict states
Challenging perceptions of disability in the post-conflict environment: who wins?
‘You and Me’: Carer/Caree Narratives in
Writing about Disability
Venue:
CC A16
Chair: Simo Vehmas
Colin Cameron
Allan Sutherland and Michael
Shamash
Mark Sherry
Chair: Nick Hodge
Disability, Normality and Absurdity
From catheters to cafetieres: Disabled
People and hospital food.
The Anti-Crip
Venue:
GF1
Berni Kelly and
Theresa McShane
Emma Louise
McKinney
Snæfrídur Thóra
Egilson and Linda
Björk Ólafsdóttir
Chair: Theresa Lorenzo
Exploring a social justice perspective for research with disabled care leavers
A Case-Study on Addressing the Disability
Poverty Gap amongst Youth with
Disabilities in South Africa.
Quality of life of children and youth with autism
Venue:
GF2
Bronagh Byrne
Theresa Lorenzo
Marie Sepulchre
Chair: Eva Eskyte
Minding the gap? Implementation of the
‘UN Convention on the Rights of Persons with Disabilities’ and disabled children and young people
Reciprocal capacity building for inclusive development of disabled youth: experiences from South Africa
Exploring the meaning of 'community' in relation to citizenship and experiences of disability
Venue:
GF3

B9
Tolga Duygun
Eiríkur Smith
Daniel Walsh,
Trisha Suresh and
Omar Waraich
Chair: Helen Davies
Promoting Universalist Disability Policy?
The Role of International Organisations and the Supranational Organisation in the
Direction of Disability Policy in Turkey
Adrift in the mainstream: What influences the currents of Icelandic disability policy and where is it directing?
Moving from the margins: Mainstreaming persons with disabilities in Pakistan
Alan Gregory
Helen Davies
Hanna Björg S igurjónsdóttir
Venue:
CC A17
"An Illustration from Nature's Book”:
Showcasing the Storyteller's Spectacular
Body in Hilary Mantel's The Giant, O'Brien
‘Nature cannot be surpassed by art’: The power of prosthetics in the body of the soldier
Mirror, mirror on the wall
Venue:
CC A18
Chair: Helen Spandler
Kate Mattheys Austerity, inequality and mental health
B10
Brigit McWade
Victoria Armstrong
Recovery-as-policy as a form of neoliberal state-making
Why Mad Studies can change what the
‘Time to Change’ campaign won’t challenge
Wednesday 10 th September
Paper Session C 11.00-12.30 (90 minutes)
Venue:
CC A19
C1
Chair: Sue Cranmer
Jon Warren and
Kayleigh Garthwaite
Alan Roulstone
Imogen Tyler
Biographies of Place: Challenging Official
Spatial Constructions of Sickness and
Disability
The End of Disability Voice: PiP and the
Dispossessed?
Disabling States: The Political Aesthetics of Disgust in Postwelfare Britain
Venue:
GF1

C2
C3
C4
C5
C6
Chair: Claudia Malacrida
Beth Lewis
Kirsty Liddiard
Dinara Zapparova
Helping clients rediscover sex; the role of the Occupation Therapist
“I never felt like she was just doing it for the money”: Disabled Men’s Intimate
(Gendered) Realities of Purchasing Sexual
Pleasure and Intimacy
Investigating gendered representations of women within the World Report on
Disability’s articulation of sexual agency.
Venue:
CC A15
Chair: Emma Palmer
Armineh Soorenian
Kristin Bjornsdottir
Fernando
Fontes and Ana
Cristina Santos
Austerity measures and disability hate crime in disabled women’s lives
Ableism, classism, and sexism in the
Intouchables: An intersectional approach
Disablist Hate Crime and violence against
Disabled women in Portugal
Venue:
CC A16
Chair: Chris Hatton
Sara Ryan
Andrew Power
Rebecca Fish
Chair: Liz Thackray
Continuing to get it wrong for learning disabled people and their families. Time to stop 'learning lessons'
‘Care in the Commons’: Adults with
Learning Disabilities building welcoming communities in a post-service landscape
Women with learning difficulties on the locked ward: At the intersection of disability, gender and deviance
Venue:
GF 5
Bahadir Celiktemur
Liz Thackray
Unruly Bodies: Agonising the Deliberative
Site
Personal troubles and public issues: the implications of public responses for the individual
Ann Fudge
Schormans, Esther
Ignagni, Tania Jivraj and Self-Advocate
Parenting Working
Group
Disability, parenthood and failing domesticity
Chair: Ema Loja
Venue:
GF 4

C7
C8
C9
C10
Ema Loja
Phillippa Wiseman
Naomi Lawson
Jacobs
Chair: Ursula Naue
Politics of normalcy and body pride
Negotiating an understanding of inclusive embodied citizenship through the lens of public and private toilets
Reinforcing Normalcy: Christian Churches and Faith Healing
Venue:
GF2
Ursula Naue
Teodor Mladenov
Jan Šiška and Julie
Beadle-Brown
Acquiring Austrian citizenship: Disability and the perversity of powerful norms
Disability and neoliberalism in the postsocialist region: a three-dimensional analysis
Towards Active Citizenship and
Community Living - Drivers and Strategies for Change
Chair: Rannveig Traustadóttir
Venue:
CC A17
Anna
Dunér and Elisabeth
Olin
Ieva Reine
Hybrids between traditional family care and modern welfare policies - a study of personal assistance provided by family members to persons with disabilities
Swedish survey of people entitled to assistance allowance.
Venue:
CC A18
Ciara Brennan and
Rannveig
Traustadóttir
Shifting spheres of influence: Governing personal assistance in Nordic countries
Chair: Sarah Woodin
Anne Kavanagh,
Allison Millner, Zoe
Aitken, Tony
Lamontagne and
Rebecca Bentley
Emma Louise
McKinney
Monika Struck-
Peregończyk
Does paid employment improve the mental health of people with disabilities?
Venue:
GF 3
The Challenge of Employment: the struggle of integrating people with disabilities into the open labour market in
South Africa
Employment trends and policies for disabled people in Poland
Mad Studies Stream. Chair: Kathryn Church
Venue:
CC A19

Frederic Fovet
Rosalee Dorfman
Mick McKeown
Access and Mental Health: navigating the conceptual dichotomy in higher education service provision
‘Who wants to hire a nutter?’ A Socio-Legal
Investigation into Restricting Pre-
Employment Health Checks on People with
Mental Health Conditions (Equality Act
2010, Section 60)
Alliances and activism: deliberative dialogue for framing a politics of mental health
Paper Session D: 14.45-15.45 (60 minutes)
D1
D2
D3
D4
Chair: Anne Kavanagh
Katherine
Runswick-Cole, Dan
Goodley, Val
Williams, Toby
Brandon, Annie
Ferguson, Keith
Bates, Pete Crane,
Wendy Crane,
Laurence Clark and
Jodie Bradley
Disability, theory and activism in a time of austerity
Venue:
GF1
Chair: Sue Cranmer
Rachel Purtell and
Allan Sutherland
Henia Schwartz
WHO HAS THE POWER IN YOUR CARE
SET-UP?
The Center for Independent Living
Jerusalem (CIL) - Assistive Technical
Devices Workshop
Venue:
GF2
Chair: Damian Milton
Damian Milton
Autistic expertise: a critical reflection on the production of knowledge in autism studies.
Venue:
GF3
Chair: Liz Tilly
Gertraud Kremsner
„The footballteam smells good“ – subalternity and the construction of disability in the biographies of people with learning difficulties who used to live in
Venue:
GF4

D5
D6
D7
D8
D9
(total) institutions
Liz Tilly
Chair: Beth Lewis
Living independently
– small things that make a big difference
Anne Abildgaard
Andy Hill
Chair: Martin Partridge
People with acquired brain injury as cocreators in product development
Policing Dyslexia: Voices from the Thin
Blue Line
Venue:
CC A15
Dr. Martin Partridge
Dianne Theakstone
Including people with learning difficulties from Chinese backgrounds: An ethnography of three services
Peer through the Keyhole: what is the role of peer support within disabled peoples’ housing options in Scotland and Norway?
Venue:
CC A16
Chair: Emma McKinney
Rosaleen
McDonagh
Marie Sepulchre
Disabled Traveller Identity: The Affirmation
Model
Experiences of citizenship and 'disability identity' in the Swedish context
Venue:
GF5
Chair: Marcus Redley
Carl Christian
Bachke
Britta Nørgaard
INTELLECTUAL DISABILITY AND
MENTAL DISORDERS: A STUDY OF
COLLABORATION BETWEEN SERVICE
PROVIDERS
What is it like to be an adult with intellectual disability? - lifeworld experiences meeting a professional world related to Axel Honneths concepts of recognition.
Mad Studies Stream. Chair: Jijian Voronka
Alison Wilde
Ella Houston
Masculinism, Neoliberalism and Mental
Distress: “Exhibit A”
Visual Dominance: A Feminist Disability
Studies Reading of the films “One Flew
Over a Cuckoo’s Nest” and “Girl,
Interrupted”
Venue:
CC A17
Venue:
CC A19

Paper Session E: 16.15-17.15 (60 minutes)
E1
Rachel Purtell,
Peter Beresford and
Alan Roulstone
Living and Dying in Disability Studies
E2
Chair: Rannveig Traustadottir
Disabled Women's Access to Violence
Support Services Sarah Woodin
Hrafnhildur
Snaefridar
Gunnarsdottir and
Rannveig
Traustadottir
Violence against disabled women and access to support and justice
E3
E4
Venue:
GF 1
Venue:
GF2
Chair: Liz Ellis
Caragh Hesse
Tyson
Liz Ellis
Moving into the community: the barriers and outcomes for adults with intellectual disabilities in Ireland.
Inclusion/exclusion of people with learning difficulties in a rural area
Chair: Monika StruckPeregończyk
Venue:
GF 3
Paula Pinto
Brian Watermeyer
Indicators for Monitoring Disability Rights:
Developing a Framework
Freedom to read: Personal reflections on the WIPO treaty
Venue:
GF4
E5
E6
Chair: Anne Kavanagh
Anne Kavanagh,
Johanna Mithen,
Zoe Aitken and
Anna Ziersch
Ermien van Pletzen
Inequalities in social capital between people with and without disabilities
Community-based disability workers, people with disabilities and their families in the knowledge translation project: opportunities and challenges in three
Southern African countries
Venue:
CC A15
Chair: Beth Lewis
Chalotte Glintborg
Larry Arnold
Having a Brain Injury=being mad? Identity
(re)construction of adults following an
Acquired Brain Injury
Doing Ethics” the University way. Is it enough?
Venue:
CC A16

Chair: Emma McKinney
E7
Allan Sutherland On being a Disabled Carer
Steve Graby
Personal Assistants: a profession allied to the community?
Additional Mad Studies Session 17.30-18.30
Charles Carter A19
Chair: Peter Beresford and Brigit McWade
Video Conference: Brenda Lefrancois Sanism and the Mad Studies Project
Venue:
GF 5
Thursday 11 th September 2014
Paper Session F: 9.30-11.00
F1
F2
F3
Chair: Liz Ellis
Melaneia Warwick
NHS ethical approval for research with people with profound and multiple learning disabilities: creative strategies from a participatory arts setting.
Mark Lindsey-Halls,
Natasha Smith,
Ralphson Stuart,
John Teague and
Liz Ellis
Isabel Bonello and
Anne-Marie Callus
Walking and talking together: Inclusive research about where we live
Inclusive Research
– a stepping stone on the road to empowerment
Venue:
GF3
Chair: Jane Williams
Paula Pietilä and
Matti Laitinen
Rannveig
Traustadottir
Jane Williams
The disabled writers challenging the rules of autobiography?
Images of Disability in Mary Ellen Mark's
Photographs of Extraordinary Children
Turning Tides
Chair: Nick Hodge
Venue:
GF2
Nick Hodge
Anat Greenstein
Schools without labels
Radical inclusive pedagogy: The disabled people’s movement in and out of the
Venue:
GF4

F4
F5
F6
F7
F8
David Brehme
Chair: Alison Sheldon school
Discourses of Normality in a German
Inclusive School: Children's perspectives
Val Williams
Tom Campbell and
Angharad Beckett
Simo Vehmas and
Nick Watson
Chair: Aless McCann
Change theories and disability studies
Disability, Biopower, Resistance: The
Social Model as Oppositional Device
Towards a normative sociology of impairment and disablement
Claudia Malacrida
Leslie Swartz
Susan Flynn
Sex, Lies and Intellectual Disability:
Knowledge and Newgenics
The return of the freak show: the Oscar
Pistorius trial and its implications for disability in South Africa
Promised Lands: Biotechnology and Cure in Contemporary Film
Venue:
GF1
Venue:
GF5
Chair: Berni Kelly
Berni Kelly and
Theresa McShane
Karen Fisher and
Xiaoyuan Shang
Lindey Cookson
Silent Voices: Examining the characteristics and experiences of disabled care leavers
Employment Pathways of Disabled Young
Adult Orphans leaving Institutions or Foster
Care in China
: ‘He only knew before the ceiling above him’: disabled children’s institutional care in
Bulgaria
Venue:
CC A16
Chair: Mark Priestley
Marcus Redley
Mark
Priestley and Ema
Loja
Terje
Olsen and Patrick
Stefan Kermit
Equal recognition before the Law: Article
12 of the Convention on the Rights of
Persons with Disabilities and its implications
The political participation of disabled people in Europe
UNCRPD and Rule of Law
Chair: Graeme Whitfield
Venue:
CC A17

F9
F10
Bahadir Celiktemur
Grahame Whitfield
Sarah Galvani, Wulf
Livingston &
Hannah Morgan
Learning Disability Partnership Boards:
The Unfulfilled Potential of a Deliberative
Forum
Power to the people? Will choice and control be a reality for older people with
Personal Health Budgets - and what are the implications for outcomes?
Cause or consequence: alcohol and substance use among people with sight loss
Chair: Kristen Bjornsdottir
Herminder Kaur
Kristin Bjornsdottir and Eiriksina
Asgrimsdottir
Joanne Hogan,
Maureen Horgan,
Sheila Glenn and
Kevin Southern
Disability and Physically dis-Abled
Teenagers
When disability becomes taboo
Using a Social Relational Approach to
Understand Young People's Experiences of Chronic Illness
Mad Stream Chair: Victoria Armstrong
Venue:
CC A15
Venue:
CC A16
Ann-Charlotte
Timander
Richard Brunner
Helen Spandler, Jill
Anderson and Bob
Sapey
The relevance of a theoretical framework of disability studies to the study of mental distress and recovery
Applying the Capabilities Approach to reconfigure social approaches to lived experience
The Elephant in the Room: Is being ‘mad positive’ enough?
Venue:
CC A19