NICCase Manager: DAO: Data Access Request Service (DARS) Application Local Authority HES extract 1. Applicant Details Request Title: Name of Applicant Organisation: Contact name and details: HSCIC Framework Contract reference: Name(s) of Data Controller(s) (if different from applicant): Name(s) of Data Processor(s) (if different from applicant): Information Asset Owner(s) (IAO): Local Authority Public Health Pseudonymised HES Extract Service Local Authority to insert Local Authority to insert Local Authority to insert Local Authority to insert (this would be the specific Local Authority, and should include the address – not an individual) Local Authority to insert (typically would be the Local Authority, and should include the address – not an individual) Garry Coleman Organisation Type CQC-Registered Health or/and Social Care Provider Local Authority Other Health and Social Care System Public Body Government Agency Outside of Health and Adult Social Care Academic Institution Independent Sector Organisation Individual Citizen(s) Commercial Other England / Wales Location of: UK EEA Other Processing Storage Territory of use Please specify: Address (including name of organisation) Local Authority to insert Local Authority to insert If “Other”, please specify: 2. Summary Reason for DAAG Referral Agreement Type New Extension Renewal Amendment Summary (this may be published within the DAAG minutes) Recommendation to Disseminate Data Recommendation to Extend or Amend Existing Agreement Advice Explanation Previous Agreement Ref: A new agreement The same data, for longer. Additional data of the same type, possibly for longer. A change to an existing agreement such as the addition of other datasets, a changed reuse purpose or change to the receiving organisation(s) or legal basis Not applicable The Hospital Episode Statistics Inpatients, Outpatients and A&E data sets contain a wealth of information on disease incidence, prevalence, treatment and outcomes that is of significant value to the Local Authority in supporting the effective and efficient discharge of their statutory duty and wider responsibilities to improve and protect the health and wellbeing of the populations it serves, and reduce health inequalities. PHE have confirmed that while the Director of Public Health (DPH) is the lead officer responsible for the DARS Application template v4.6 09/12/2014 Page 1 of 10 NICCase Manager: DAO: public health function and in most areas is directly supported by a team of public health specialists that comprise a clearly delineated “public health team”, in some Local Authorities elements of the public health function may be shared across other teams. For example, in some Local Authorities, the data and intelligence staff supporting the public health function may be embedded in a cross-Local Authority team of analysts ie: they provide an analytical service to the DPH but may not necessarily be managerial accountable to any member of the public health team. However, as with applications from other organisations in such circumstances, the Local Authority will have managerial and technical controls in place to ensure that access to the HES data will be restricted to legitimate public health purposes only as approved by the DPH and in line with this application. The Local Authority will use the data provided by the HSCIC under this application to support and improve: 1. the local responsiveness, effectiveness and value for money of commissioned public health services; 2. the statutory ‘core offer’ public health advice and support provided to local NHS commissioners; 3. the specificity and relevance of the Joint Strategic Needs Assessments and Health and Wellbeing Strategies produced in collaboration with NHS and voluntary sector partners on the Health and Wellbeing Board; 4. the local focus, responsiveness and timeliness of health impact assessments; and, among other benefits 5. the capability of the local public health intelligence service to undertake comparative longitudinal analyses of patterns of and variations in: a. the incidence and prevalence of disease and risks to public health; b. demand for and levels of access to treatment and preventative care services; c. variations in health outcomes between groups in the population; d. the level of integration between local health and care services; and e. the local associations between causal risk factors and health status and outcomes. This application is a request for the named Local Authority to access the standard set of pseudonymised HES data for all upper tier Local Authorities (with a Public Health function) in England, solely for the purposes outlined below in the purpose section, Level of data requested from HSCIC (check all that apply) Tabulations (obeying Small Number Policy, non-sensitive, anonymised) Tabulations (others) Aggregated (no small number suppression) Aggregated (with small number suppression) Pseudonymised, non-sensitive Pseudonymised, sensitive Identifiable, non-sensitive Identifiable, sensitive ONS data 3. Datasets Held/Requested Data requested Dataset(s) HES Inpatients “Level” of data Pseudonymised DARS Application template v4.6 09/12/2014 Legal Basis for Dissemination Section 2B of the NHS Act 2006 (as Dataset period 2004/05 to current monthly and Data minimisation efforts (cohort, geographical area, etc.) Demographic information will be replaced with derived fields eg. date of birth will be replaced with Page 2 of 10 NICCase Manager: DAO: HES Outpatients HES A&E Pseudonymised Pseudonymised inserted by Section 12 of the Health and Social Care Act 2012) Section 2B of the NHS Act 2006 (as inserted by Section 12 of the Health and Social Care Act 2012) Section 2B of the NHS Act 2006 (as inserted by Section 12 of the Health and Social Care Act 2012) ongoing age. Data requested is national coverage 2004/05 to current monthly and ongoing Demographic information will be replaced with derived fields eg. date of birth will be replaced with age. Data requested is national coverage 2007/08 to current monthly and ongoing Demographic information will be replaced with derived fields eg. date of birth will be replaced with age. Data requested is national coverage 4. Period and Funding Ongoing for the purposes outlined within the application. Planned Data Retention Period: (data to be deleted at this point) Reason for this period: Proposed Agreement end date: However, a maximum of ten years data will be retained at any point, such that as each new data year is received, the oldest year will be deleted eg. the 2004/05 data year will be deleted once the final complete 2014/15 data year has been received. For the purposes outlined within the application, in summary to support the discharge of their statutory duty and wider responsibilities to improve and protect public health, and reduce inequalities. 31st August 2016 EU/International funding Other projects or activities, directly related to this application, which have obtained EU/International financial support in the last five years: Details Evidence Awarding Institution Not applicable EU/International programme Reference and title of project/activity Year of submission/award Applicant or Partner Other relevant (public/private) funding Details Evidence As part of its national leadership role for the wider public health system, PHE has agreed to pay the HSCIC £70,651.80 to provide the Pseudonymised HES Extract Service free of charge to all 152 DARS Application template v4.6 09/12/2014 Page 3 of 10 NICCase Manager: DAO: Local Authorities for a period of one year in the first instance. Whether PHE continues to fund this service beyond the end of this first year will depend on the level of uptake by Local Authorities, and on discussions with the HSCIC on the cost recovery model. 5. Purpose/Methods/Outputs Purpose The Data Recipient agrees to process the Data only for the following purposes agreed with the HSCIC. Note: this information may be published by the HSCIC Objective for processing The data provided by the Pseudonymised HES Extract Service will be used by the Local Authorities in fulfillment of its public health function, specifically to support and improve: 1. the local responsiveness, targeting and value for money of commissioned public health services; 2. the statutory ‘core offer’ public health advice and support provided to local NHS commissioners; 3. the local specificity and relevance of the Joint Strategic Needs Assessments and Health and Wellbeing Strategies produced in collaboration with NHS and voluntary sector partners on the Health and Wellbeing Board; 4. the local focus, responsiveness and timeliness of health impact assessments; and, among other benefits 5. the capability of the local public health intelligence service to undertake comparative longitudinal analyses of patterns of and variations in: a. the incidence and prevalence of disease and risks to public health; b. demand for and access to treatment and preventative care services; c. variations in health outcomes between groups in the population; d. the level of integration between local health and care services; and e. the local associations between causal risk factors and health status and outcomes. The main statutory duties and wider public health responsibilities supporting these processing objectives are as follows: 1. Statutory public health duties that the data will be used to support a) Duty to improve public health: Analyses of the data will be used to support the duty of the Local Authority under Section 12 of the Health and Social Care Act 2012 to take appropriate steps to improve the health of the population, for example by providing information and advice, services and facilities, and incentives and assistance to encourage and enable people to lead healthier lives; b) Duty to support Health and Wellbeing Boards: Analyses of the data will be used to support the duty of the Local Authority and the Clinical Commissioning Group (CCG)-led Health and Wellbeing Board under Section 194 of the 2012 Act to improve health and wellbeing, reduce health inequalities, and promote the integration of health and care services; the data will also be used to support the statutory duty of Health and Wellbeing Boards under Section 206 of the 2012 Act to undertake Pharmaceutical Needs Assessments; c) Duty to produce Joint Strategic Needs Assessments (JSNAs) and Joint Health and Wellbeing Strategies (JHWBs): Analyses of the data will be used to support the duty of the Local Authority under Sections 192 and 193 of the 2012 Act to consult on and publish JSNAs and JHWSs that assess the current and future health and wellbeing needs of the local population; d) Duty to commission specific public health services: Analyses of the data will be used to support the Local Authority to discharge its duty under the Local Authorities Regulations 2013 to plan and provide NHS Health Check assessments, the National Child Measurement Programme, and open access sexual health services; DARS Application template v4.6 09/12/2014 Page 4 of 10 NICCase Manager: DAO: e) Duty to provide public health advice to NHS commissioners: Analyses of the data will be used by Local Authorities to discharge its duty under the 2013 Regulations to provide a public health advice service to NHS commissioners; f) Duty to publish an annual public health report: Analyses of the data will be used by Directors of Public Health to support their duty to prepare and publish an annual report on the health of the local population under Section 31 the 2012 Act; g) Duty to provide a public health response to licensing applications: Analyses of the data will be used by the Director of Public Health to support their duty under Section 30 of the 2012 Act to provide the Local Authority’s public health response (as the responsible authority under the Licensing Act 2003) to licensing applications. 2. Wider public health responsibilities supported by analysis of the data a) Health impact assessments and equity audits: Analyses of the data will be used to assess the potential impacts on health and the wider social economic and environmental determinants of health of Local Authority strategic plans, policies and services; b) Local health profiles: Analyses of the data will be used to support the production of locallycommissioned health profiles to improve understand of the health priorities of local areas and guide strategic commissioning plans by focusing, for example, on: i. bespoke local geographies (based on the non-standard aggregation of LSOAs); ii. specific demographic, geographic, ethnic and socio-economic groups in the population; iii. inequalities in health status, access to treatment and treatment outcomes; c) Surveillance of trends in health status and health outcomes: Analyses of the data will be used for the longitudinal monitoring of trends in the incidence, prevalence, treatment and outcomes for a wide range of diseases and other risks to public health; d) Responsive and timely local health intelligence service: Analyses of the data will be used to respond to ad hoc internal and external requests for information and intelligence on the health status and outcomes of the local population generated and received by the Director of Public Health and their team. These lists of the statutory duties and wider public health responsibilities of the Local Authority are not exhaustive but set the broad parameters for how the data will be used by the Local Authority to help improve and protect public health, and reduce health inequalities. All such use would be in fulfillment of the public health function of the Local Authority. No sensitive data is requested under this application. The data provided would include derived demographic and geographic fields, the standard non-sensitive HES diagnostic and operative fields, and a common (across all Local Authorities) pseudoHESID to enable admissions to be linked over time. Processing activities The Pseudonymised HES Extract Service will enable the Local Authority to undertake a wide range of locally-determined and locally-specific analyses to support the effective and efficient discharge of its statutory duties in relation to health, and wider public health responsibilities. Access to the data is provided to the Local Authority only, and will only be used for the health purposes outlined above. The data will only be processed by Local Authority employees in fulfillment of their public health function, and will not be transferred or otherwise made available to any third party, including Commissioning Support Units, Data Services for Commissioners Regional Offices, any organisation for the purposes of health research, or any Business Intelligence company providing analysis and intelligence services (whether under formal contract or not) to / or on behalf of the Local Authority. {If applicable, the individual Local Authority will detail here any alternative processing arrangements that do not conform to the “standard” model of an internally provided Local Authority public health function, for example, any outsourced shared data and intelligence services arrangements.} DARS Application template v4.6 09/12/2014 Page 5 of 10 NICCase Manager: DAO: The Local Authority will use the data to produce a range of quantitative measures (counts, crude and standardised rates and ratios) that will form the basis for a range of statistical analyses of the fields contained in the supplied data. Typical uses will include: 1. Analyses of disease incidence, prevalence and trends: The age, sex, LSOA, ethnic group, Indices of Deprivation and diagnosis fields typically will be used to produce directly standardised coronary heart disease admission rates for the Local Authority, and for appropriate benchmark and comparator areas. Confidence intervals will then be produced for these rates, and the rates analysed using statistical process control methods, to determine whether there are any significant variations in the prevalence of heart disease with the Local Authority. The data will also be used to analyse changes over time in the prevalence of heart disease. The results of these analyses will then be used to inform the production of local health profiles, JSNAs and JHWSs; support the ‘core offer’ public health advice provided by the Director of Public Health to NHS commissioners; and advise any enquiries into health inequalities requested by the Health and Wellbeing Board. 2. Analyses of hospital admission rates: The data will also be used, for example, to produce comparative and longitudinal hospital admission rates among children and young people, particularly for injury and self-harm, to support the overarching responsibility of the Local Authority to safeguard and promote the health and welfare of all children and young people under the 1989 and 2004 Children Acts. Statistics based on these analyses will be used by the Director of Public Health to advise the Director of Children’s Services and Lead Member for Children’s Services, and inform and guide the provision of safeguarding services by the Local Authority. Conditions of supply and controls on use In addition to those outlined elsewhere within this application, the Local Authorities will: 1. only use the HES data for the purposes as outlined in this agreement; 2. comply with the requirements of the HSCIC Code of Practice on Confidential Information, the Caldicott Principles and other relevant statutory requirements and guidance to protect confidentiality; 3. not attempt any record-level linkage of HES data with other data sets held by the Local Authority, or attempt to identify any individuals from the HES data; 4. not transfer and disseminate record-level HES data to anyone outside the Local Authority; 5. not publish the results of any analyses of the HES data unless safely de-identified in line with the anonymisation standard; and 6. comply with the guidelines set out in the HES Analysis Guide; 7. implement role-based control access to manage access to the HES data within the Local Authority. The Director of Public Health will be the Information Asset Owner for the HES data and be responsible on behalf of the Local Authority to the HSCIC for ensuring that the data supplied is only used in fulfillment of the approved public health purposes as set out in this application. The Local Authority confirms that the Director of Public Health is a contracted employee to the permanent role within the Local Authority, accountable to the Chief Executive. Data retention A maximum of ten years data will be retained at any point, such that as each new data year is received, the oldest year will be deleted eg. the 2004/05 data year will be deleted once the final complete 2014/15 data year has been received. The Local Authority will securely destroy the year’s data within six weeks of receiving the latest annual dataset and provide a data destruction certificate to HSCIC. The historic data will be used by the Local Authority in fulfilment of its public health function, and specifically to: DARS Application template v4.6 09/12/2014 Page 6 of 10 NICCase Manager: DAO: a) recognise and monitor trends in disease incidence and prevalence and other risks to public health; b) recognise and monitor trends in treatment patterns, particularly hospital readmissions, and outcomes; c) recognise and monitor trends in access to treatment and care between demographic, geographic, ethnic and socio-economic groups in the population; and d) recognise and monitor trends in the association between the wider social, economic and environmental determinants of health and health outcomes for the purpose of informing the planning, commissioning and provision of effective health and care services at a local level. Specific outputs expected, including target date The results of the analyses of the data will be used by the Local Authority to support the discharge of its statutory duties in relation to public health, and wider public health responsibilities. Outputs will include (but not be limited to) the routine and ad hoc production of: a) b) c) d) e) Joint Strategic Needs Assessments; Joint Health and Wellbeing Strategies; the annual report of the Director of Public Health; reports commissioned by the Health and Wellbeing Board; public health and wider Local Authority health and wellbeing commissioning strategies and plans; f) public health advice to NHS commissioners; g) responses to licensing applications and other statutory Local Authority functions requiring public health input; h) local health profiles; i) health impact assessments and equity audits; and, among other outputs j) responses to internal and external requests for information and intelligence on the health and wellbeing of the population. The specific content of and target dates for these outputs will be for the Local Authority to determine, although it is required to comply with national guidance published by the Department of Health, Public Health England and others as appropriate, for example, on the timetable for publishing refreshed JSNAs. All outputs will be of aggregated data with small numbers suppressed in line with the HES Analysis Guide. Expected measurable benefits to health and/or social care including target date Access to the data will enable the Local Authority to undertake locally-focused and locally-responsive analyses of health status and health outcomes. For example, the data will be used to produce analyses of health inequalities for non-standard geographies and for specific social or ethnic groups in the local population to help ensure that the health challenges facing the local population – particularly the most disadvantaged – have been identified and responded to appropriately by the Local Authority and its partners. It is recognised that in fulfilling its public health duties using HES data, the Local Authority will deliver significant benefits. The Local Authority therefore commits in any renewal request to providing additional detail on benefits that relate to their local use of the data. Is the purpose of this No application in anyway commercial? DARS Application template v4.6 09/12/2014 Page 7 of 10 NICCase Manager: DAO: 6. Approval Considerations Materials Reviewed Version and Date of Document Protocol Not applicable Ethics Review Not applicable Consent form Not applicable Patient information Not applicable Patient/GP letters Not applicable Section 251 support Not applicable ONS Not applicable Date of Approval Expiry / Review Date Comments Details of users should be entered in section 8. Fair processing ICO guidance on privacy notices: https://ico.org.uk/for_organisation s/data_protection/topic_guides/pri vacy_notices It is the responsibility of the Local Authority as data controller to ensure that it complies with the ICO privacy notice code of practice. Local Authority to select and update one of the two paragraphs below as applicable (and delete the other) :The Local Authority already has a privacy notice (provided in easily accessible forms and formats) explaining that health and other data is being processed in fulfilment of its public health function, and a copy is provided with this applicable / website link provided here … (Local Authority to insert) OR The Local Authority does not yet have a privacy notice that complies with the ICO code of practice in that it does not explain that health and other data is being processed in support of its public health function. The Local Authority commits to including such information in the Local Authority privacy notice, and provide evidence of this to the HSCIC within eight weeks of the Data Sharing Agreement being commenced else a data destruction letter will be issued. The Local Authority may wish to use the following or a similar form of words to ensure a compliant privacy notice: All Local Authorities have a duty to improve the health of the population they serve. To help with this, we use data and information from a range of sources including hospitals to understand more about the nature and causes of disease and ill-health in the area. 7. Security Assurance Complete this section for each organisation involved. Security Assurance IG Toolkit Version and Date Complete Local Authority to insert if applicable ISO 27001 DARS Application template v4.6 09/12/2014 Comments Org code and score: Local Authority to insert if applicable Please supply the certificate Local Authority to insert (if IG Toolkit not held) Page 8 of 10 NICCase Manager: DAO: Other DPA Registration Expiry date Local Authority to insert Local Authority to insert Activity recorded (ICO application forms list Sector and reasons for processing data) Local Authority to insert 8. ONS Users Only complete if ONS data is requested Name Position Organisation Legal basis (if different from applicant) (s42 (4) SRSA 2007, Consent, AR+MRP, Other) Expiry / Review Date (if applicable) Not applicable 9. Specification and Service Requested Dataset(s) Standard Extract Bespoke Extract Tabulation Linkage Patient Status and Tracking Personal Demographics Service (PDS) Hospital Episode Statistics (HES): Inpatient HES: Outpatient HES: A+E HES: Critical Care Mental Health Minimum Data Set (MHMDS) SUS Payment By Results (PBR) Diagnostic Imaging Dataset (DID) Patient Reporting Outcome Measures (PROMS) Scottish NHS / Registration Mortality Birth Cancer Registration Linked datasets, please specify: Other, please specify: Bespoke standard extract for Local Authorities, covering HES: Inpatient HES: Outpatient HES: A&E Frequency One-off Periodic - Monthly Periodic - Quarterly Periodic - Annually Ad hoc – irregular dissemination DARS Application template v4.6 09/12/2014 Number of Disseminations Expected Not applicable Not applicable Page 9 of 10 NICCase Manager: DAO: Continuous – user access to HSCIC system Not applicable 10. HSCIC Governance Path (for HSCIC use only) IAO Not required Required Approved Unable to approve Director Not required Required Approved Unable to approve DARS Application template v4.6 09/12/2014 DAAG Not required Required Recommended for approval Unable to recommend for approval SIRO Not required Required Approved Unable to approve Page 10 of 10