January 28th 2015 FOR IMMEDIATE RELEASE PROTECT YOUR UNBORN BABY FROM INFECTION International Prenatal Infection Prevention Month - 1 to 28 February 2015 If you are pregnant, or know someone who is, be aware of group B Strep. Group B Strep is the UK’s most common cause of life-threatening infection in newborn babies and of meningitis in babies up to the age of 3 months. It is more common than spina bifida and as common as Down’s syndrome, yet few pregnant women have heard of it. Group B Strep is a normal bacterium carried by between 20% to 30% of women and although rarely dangerous to women, it can be passed onto baby around labour and birth with potentially devastating consequences for the newborn baby. Approximately 500 babies a year in the UK are infected with group B Strep. One in ten of these babies sick with group B Strep infection die, one in 20 survivors suffer long-term problems and five in ten survivors of group B Strep meningitis suffer long-term mental and physical problems. The NHS does not currently offer routine testing of all pregnant women in the UK. The UK is one of only a handful of developed countries using a risk-based prevention strategy. Tragically, the number of newborn babies developing group B Strep infection has risen by 21% since the risk-based prevention guideline was introduced in 2003. Other countries routinely screen pregnant women, using sensitive tests rarely available in the NHS. They have seen rates of group B Strep infection in newborn babies fall dramatically - by 71%1 to 86%. The only sensitive testing option currently widely available to pregnant women in the UK is to purchase a home-testing pack from a private laboratory, which usually costs around £35 per test. 1 Albouy-Llaty M, Nadeau C, Descombes E, Pierre F, Migeot V. Improving perinatal Group B streptococcus screening with process indicators. J Eval Clin Pract 2011 The best time to test is between 35 to 37 weeks of pregnancy. But most pregnant women do not know about group B Strep as they are not told about it by their healthcare professionals. Is your baby at risk of group B Strep infection? There are six key situations where a newborn baby is known to have a higher risk of developing group B Strep infection – Mum has had a previous baby infected with group B Strep Group B Strep found in Mum’s urine during this pregnancy Mum has a raised temperature during labour (37.5oC or higher) Group B Strep found on a vaginal or rectal swab during this pregnancy Labour starts or waters break before 37 weeks of pregnancy Waters break more than 18 hours before delivery How to protect your unborn baby from group B Strep: The best time to test for group B Strep is in the latter stages of pregnancy – between 35-37 weeks of pregnancy. REMEMBER to ask your midwife or health professional about group B Strep and to ask if they will test you for group B Strep. If not, contact one of a number of private laboratories that offer a home-testing pack for the test (see www.gbss.org.uk/test for which organisations offer the sensitive, ECM test both on the NHS and privately). If you have had a previous baby infected with group B Strep, you should be offered antibiotics (usually penicillin) from the start of labour and at intervals until your baby’s birth. If group B Strep has been detected during your pregnancy, your health professionals should offer you antibiotics that help protect your baby during labour and birth from developing group B Strep infection. HOWEVER without a positive group B Strep test during the current pregnancy, you will not be offered intravenous antibiotics in labour unless one or more of the other risk-factors are present. Jane Plumb MBE, chief executive of Group B Strep Support, the UK charity dedicated to preventing life-threatening group B Strep infection in newborn babies says, “There has been no fall in the rate of group B Strep infection in newborn babies since the current risk-based prevention strategy was introduced in 2003. It simply is not working. Many other countries have seen their rates fall with the introduction of screening. It’s time for the UK to change strategies – our babies deserve it.” Case Study: Mum Kirsty Jeeves from Lincolnshire had neither heard of group B Strep infection nor was she offered testing to detect group B Strep carriage during her pregnancy. Although her pregnancy was difficult, Kirsty had none of the recognised risk-factors for group B Strep infection in her baby when she went into labour. Oliver was born in January 2014 and, within moments of being born, was transferred to intensive care – initially to combat a supposed ‘lactic acid build-up.’ After a day of tests, Mum and Dad were informed that Oliver had group B Strep septicaemia. “We had no idea what group B Strep was or how serious it could be, until we researched it. Our hearts sank when we realised how poorly our newborn son was. We sat by Oliver’s bed praying for him to recover,” says Mum Kirsty. During his nine days in hospital, Oliver rallied and recovered. He is making good progress and is now a healthy, happy little boy. Oliver’s infection and the family’s trauma could have been avoided had Mum Kirsty been informed about group B Strep, offered a test for group B Strep carriage late in pregnancy and then offered antibiotics during labour to protect Oliver from group B Strep infection. Mum Kirsty says, “Women need to be made aware of just how devastating group B Strep infection can be.” Kirsty Jeeves (Lincolnshire) is happy to be interviewed/photographed for media. Please contact Sarah Fiedosiuk to be put in touch. Offer: To support February’s International Prenatal Infection Prevention Month, The Doctors Laboratory (TDL) is offering the ECM test for GBS for £29 – Tel: 0207 307 7373 http://www.tdlpathology.com/ ENDS For comment or greater detail: Jane Plumb MBE, Chief Executive, Group B Strep Support Tel: 01444 416176 (offfice hours) e-mail: jplumb@gbss.org.uk For media enquiries and further information: Sarah Fiedosiuk, Media and Awareness, Group B Strep Support Tel: 01444 416176 (out of hours mobile 07984 649898) e-mail: sfiedosiuk@gbss.org.uk For free information on group B Strep, please visit www.gbss.org.uk Notes to Editors Group B Strep is the most common cause of life-threatening infection in newborn babies and meningitis in babies up to the age of 3 months, passing from mother to baby around labour and birth. 20% to 30% of women carry group B Strep, usually without harm or symptoms. Identifying pregnant women likely to be carrying group B Strep and giving them intravenous antibiotics (usually penicillin) during labour can reduce group B Strep infection in newborn babies by up to 90%. By 2013, the number of newborn babies developing group B Strep infection had risen by 21% since the Royal College of Obstetricians and Gynaecologists 2003 prevention guidelines were introduced. Even with the best medical care 1 in 10 babies of these babies sick with group B Strep infection dies, 1 in 20 of the survivors suffer long-term problems and 5 in 10 survivors of group B Strep meningitis suffer long-term mental and physical problems, including cerebral palsy. Routine testing of all pregnant women in the UK for group B Strep carriage is not currently recommended by the UK National Screening Committee. The current UK group B Strep prevention strategy has failed. The rate of group B Strep infections in newborn babies per live birth is higher now than it was in 2003, when the Royal College of Obstetricians and Gynaecologists introduced their risk-based prevention guidelines. These guidelines (updated 2012) were expected to reduce the incidence of early-onset group B Strep infection significantly – by up to 60%. This has not happened (see Data Series). Carrying group B Strep at delivery is the key risk factor for group B Strep infection in babies. Determining whether a pregnant woman carries group B Strep late in pregnancy (35-37 weeks) is a better indicator of a baby’s risk of developing the infection than risk-factors. Other countries which routinely screen have seen falls in the rate of these infections in newborn babies by up to 86%. Providing the test on the NHS would cost £11 per test. A handful of NHS trusts offer the sensitive test for group B Strep and home-testing packs are available from a number of private laboratories for around £35. Visit Testing. A report on Group B Strep - Preventable Death and Disability caused by group B Strep, summarises the pros and cons of the current group B Strep prevention in the UK. http://www.gbss.org.uk/filepool/GBSSReport_2013.pdf Charity Group B Strep Support is a UK charity dedicated to preventing life-threatening group B Strep infection in newborn babies, providing information and support to families affected by group B Strep, and their health professionals. It is calling for every pregnant woman in the UK to be informed about group B Strep and offered a sensitive test for group B Strep carriage to prevent unnecessary tragedies. Group B Strep Support is supported by an independent medical advisory panel.