Websites:
Website: http://neurodevnet.ca/fetal-alcohol-spectrum-disorder-resources
About: NeuroDevNet, a Canadian Network of Centres of Excellence (NCE), is dedicated
to understanding brain development and to helping children and their families overcome
the challenges of neurodevelopmental disorders. The website provides commentaries on
research news releases on FASD, videos, FASD resources, research funded by
NeuroDevNet and more.
Website: www.phac-aspc.gc.ca/hp-ps/dca-dea/prog-ini/fasd-etcaf/index-eng.php
About: The Public Health Agency of Canada website provides information regarding
FASD in Canada, Canada’s low-risk alcohol drinking guidelines, links to other resources
including the National screening toolkit, and the alcohol use and pregnancy clinical
guidelines.
Website: http://ken.caphc.org/xwiki/bin/view/Main/WebHome (includes videos)
About: A website by the Canadian Association of Paediatric Health Centres (CAPHC)
for professionals, parents, and families looking to find and offer information about
healthcare and health services for children and youth. On this website you will find
webinar series, information from the FACE research roundtable meetings, FASD
screening tool kit, and more.
Website: www.knowfasd.ca
About: This website provides all types of information for individual affected by FASD
from birth to adulthood. There are list of resources, information about what may be
happening with your child and what to expect in the future, tips for educators, support
groups for caregivers, and more.
Website: http://fasd.alberta.ca/index.aspx
About: This website by the government of Alberta provides information on programs and
services in Alberta, healthy pregnancies, news and research about what’s going on in
Alberta, and a learning series videos on a wide variety of topics.
Website: http://lcfasd.com/
About: The LCFASD is a not-for-profit organization and a recognized Canadian charity
and provides information about FASD, and effective prevention, diagnosis and support
services are available in the Lakeland Area (Cold Lake, AB). Their website includes a list
of clinics, supports for children and families, support for mothers-to-be, and more.
Website: www.fasdontario.ca/cms/
About: FASD Ontario Network of Expertise (FASD ONE) is a group that works together
to address issues related to Fetal Alcohol Spectrum Disorder (FASD) in the province.
Their website contains a list of diagnostic clinics and support groups in the province,
several working groups and committees, and more.
Website: www.fasdchildwelfare.ca/
About: The FASD and Child Welfare Community of Practice is an interprovincial
project that connects with many different communities and stakeholders (including
children diagnosed with or suspected to have FASD, caregivers, researchers, service
providers, policy-makers). This website includes up to date news on FASD, current
information on organizations that provide services in relation to FASD and child welfare
practice, links to training opportunities, conferences and other related online resources,
innovative research on FASD and child welfare practice, as well as blogs and forums on a
variety of topics.
Website: www.mcf.gov.bc.ca/fasd/index.htm
About: A website by the Ministry of Children and Family Development of British
Columbia provides information on services and supports within the province, including
prevention, assessment and diagnosis, key worker and parent support services, resources
for schools, and more.
Website: www.asantecentre.org/
About: The Asante Centre is governed by the FASD Society for BC and their website is
dedicated to providing up-to-date resources in the field of brain-based disabilities (FASD,
ASD, and other complex developmental needs), including a current list of upcoming
events, including conferences, workshops; links to community services that provide
support or information for individuals with brain-based disabilities, their families and
service providers; print and video resources on FASD, ASD and general complex
developmental needs.
Website: http://www.ccsa.ca
About: A website by the Canadian Centre on Substance Abuse that provides information
regarding substance use and abuse and how they affect the health and safety of
Canadians.
Website: www.fasdconnections.ca/index.htm
About: FASD Connections is committed to helping Adolescents and Adults with FASD,
their families, those who provide them services and those who love them. Their website
includes a list of programs and event, a birth mom page, research articles on a variety of
topics, and more.
Website: www.fasdoutreach.ca/
About: POPFASD is a British Columbia Ministry of Education provincial resource
program. They provide resourses and training to increase educators' capacity to meet the
learning needs of students with FASD. Their website provides educational resources,
such as: eLearning videos; print resources; conferences & events; FASD news;
downloadable resources; and a listing of our POPFASD district partners.
Website: www.fasdwaterlooregion.ca/
About: This website is supported in partnership with the Waterloo Region FASD
Diagnostic Steering Committee and the Waterloo Region FASD Action Group. Their
website is intended to offer strategies, tips and community supports for families. Included
are resources for educators and other professionals that can be used when supporting
children and youth diagnosed under FASD.
Website: www.canfasd.ca
About: The Canada Fetal Alcohol Spectrum Disorder Research Network (CanFASD) is a
collaborative, interdisciplinary research network, with collaborators, researchers and
partners across the nation. Their website provides information on diagnostic clinics,
information for parents and caregivers, a list of National and International FASD
organizations, and information and publications on diagnosis, intervention, and
prevention.
Website: www.camh.ca
About: The Centre for Addiction and Mental Health (CAMH) is Canada's largest mental
health and addiction teaching hospital, as well as one of the world's leading research
centres in the area of addiction and mental health. Their website includes a list of
addiction services, child, youth, and family services, information for parents about drug
and alcohol use in children and youth, and more.
Websites: www.von.ca/FASDonline/en/introduction.aspx
www.von.ca/FASD/
About: VON Canada (Victorian Order of Nurses) is Canada's largest, national, not-forprofit, charitable home and community care organization. Their Parenting Guidelines for
Families of Children with Fetal Alcohol Syndrome/Fetal Alcohol Effects is a tool that
they developed and was originally funded for three years through the Public Health
Agency of Canada’s Fetal Alcohol Syndrome/Fetal Alcohol Effects Strategic Project
Fund. These guidelines include strategies on how to establish routine and consistency,
managing behaviour, learning strategies, making and keeping friends, how to education
professionals and the public, as well as a list of other resources.
Website: http://whitecrowvillage.org/
About: Whitecrow village FASD society is a non-profit, charitable organization
committed to educating communities and professionals about FASD and to improving the
lives of those who are affected by this prominent neurodevelopmental disability.
Whitecrow Village provides training and camps for children and families affected by
FASD, educators and schools, as well as FASD Addictions Recovery Support Programs
and more.
Website: http://fasdcenter.samhsa.gov/grabGo/factSheets.aspx
About: A website by the substance abuse and mental health service administration
providing information on preventing and addressing FASD, effects of alcohol on the
fetus, FASD and the justice system, tips for teachers, and FASD and co-occurring mental
illness. There are links to prevention, diagnosis, and intervention; education and training;
resources for Native communities; and more.
Website: www.nofas.org/living-with-fasd/
About: Facts about FASD throughout the lifespan, tips and strategies for success,
resources for families, educational webinar series, and several videos on living with
FASD.
Websites: www.cdc.gov/ncbddd/fasd/index.html
www.cdc.gov/ncbddd/fasd/freematerials.html
About: A website by the Centers for Disease Control and Prevention providing basic
information on FASD, research, education and training, scientific articles, data and
statistics, and information for women, partners, families, educators, and health care
professionals.
Website: www.alertprogram.com/index.php
About: The Alert Program® contains clear steps for teaching self-regulation awareness to
children, teachers, parents, etc. It was developed for use in children with attention and
learning difficulties but has been adapted for a larger audience.
Website: http://fafasd.org/
About: A website by Families Affected by Fetal Alcohol Spectrum Disorder
(F.A.F.A.S.D). Their mission is to spread information, awareness, and hope for
caregivers of people with FASD. The website provides webinars, workshops, and
support groups.
Website:
www.mnadopt.org/Factsheets/FASD%20Strategies%20and%20%20Intervention.pdf
About: A website by MN ADOPT which is a program contracted by the Department of
Human Services through the Minnesota Adoption Resource Network. This fact sheet
provides information on strategies and interventions for parents of children with FASD as
well as a list of other resources and websites.
Website: http://depts.washington.edu/fmffasd/
About: The Families Moving Forward (FMF) Program helps children with fetal alcohol
spectrum disorders (FASD), their families, and the professionals who care for them. It is
a positive parenting program designed for children from ages 3 to 13 (approximately).
Website: www.fasaware.co.uk/
About: FASAWAREUK is a charitable organization that provides information regarding
upcoming events, resources for caregivers and professionals, an overview of epigenetics
and FASD, information on educational success for children with FASD, and more.
Website: www.nofas-uk.org/
About: The National Organisation for Foetal* Alcohol Syndrome UK (NOFAS-UK) is
dedicated to supporting people affected by foetal alcohol spectrum disorders (FASD), and
their families and communities. Their website provides information on online training
for professionals, resources for teachers, a variety of leaflets and fact sheets, a list of
support groups, and videos.
Videos:
http://www.fasdoutreach.ca/elearning/modules-guide/modules-guide
http://findinghope.knowledge.ca/home.html
www.youtube.com/watch?v=vY1K7VHXnVQ
www.youtube.com/user/AlcoholFreePregnancy?feature=watch
www.youtube.com/watch?v=m7zfJCW9Yco
Booklets:
-
FASD Strategies not Solutions by Edmonton and Area Fetal Alcohol Network
Calming the Storm: Strategies for children with FASD by Joanne Lussier-Ring,
Lakeland Centre for Fetal Alcohol Spectrum Disorder
-
www.bccf.ca/shop/products/strategies-parenting-children-fasd
FASD Across the Span of Childhood: The clinical staff of the Children’s
Research Triangle
Trying Differently: A Guide for Daily Living and Working with FASD. 4th
Edition. (2013). Fetal Alcohol Syndrome Society Yukon (FASSY) 71 pages.
Books:
About:
- Trying Differently Rather Than Harder (FASCETS; Diane Malbin)
- FASD Relationships: What I Have Learned About Fetal Alcohol Spectrum
Disorder (Dory Spirit Books Ltd: Salmon Arm, BC; Rod Desmore, M.D. 2011)
- Fetal Alcohol Spectrum Disorder: Management and Policy Pespektives [sic] of
FASD (Wiley-Blackwell: Weinheim, Germany; Editors: Riley, Edward P.,
Clarren, S., Weinberg J., Jonsson, E.; 2010)
Resources:
- FASD Toolkit for Aboriginal Families (Ontario Federation of Indian Friendship
Centres; Author: Jennifer Wemigwans; Contributor: Mary Cunningham) available
at http://ofifc.agiledudes.com/sites/default/files/docs/FASD%20Toolkit%20%202008-01.pdf
- Living with FASD: A Guide for Parents (2006; 3rd Edition; Society of Special
Needs Adoptive Parents/Ben Simon Press; Sara Graefe)
- Re:defining Success: A team approach to supporting students with FASD (Alberta
Education) available at
http://education.alberta.ca/admin/supportingstudent/diverselearning/redefining.aspx
- Adopting a Child Living with Fetal Alcohol Spectrum Disorder. Liz Lawryk
- Fetal Alcohol Spectrum Disorders: Interdisciplinary Perspectives. Berry
Carpenter, Carolyn Blackburn & Jo Egerton
- Our FAScinating Journey: Keys to Brain Potential Along the Path of Prenatal
Brain Injury, 3rd Edition. Jodee Kulp,
- Pathways to Competence for Young Children: a Parenting Program (Book and
CD-ROM). Sarah Landy & Elizabeth Thompson
- Transforming the Difficult Child: The Nurtured Heart Approach by Howard
Glasser and Jennifer Easle
For Educators:
- Understanding Fetal Alcohol Spectrum Disorder: a Resource for Education
Practitioners in Ontario. Gal Koren & Michelle Todorow
- Speaking and Learning the FASD Way. Carol McAndrew
- Fantastic Antone Grows Up: Adolescents and Adults with FAS by Judith
Kleinfeld, Barbara Morse and Siobhan Wescott
- Fantastic Antone Succeeds: Experience in Educating Children with FAS by Judith
Kleinfeld and Siobhan Wescott
- www.gov.mb.ca/healthychild/fasd/fasdeducators_en.pdf
- www.rise.duke.edu/download/FASD_Guide.pdf
Other (novels):
- When Rain Hurts: An Adoptive Mother’s Journey with Fetal Alcohol
Syndrome by Mary Evelyn
- The Best I Can Be: Living with Fetal Alcohol Syndrome or Effects by Liz and
Jodee Kulp
Books for children:
- Forgetful Frankie by Jill and Katherine Bobula
- My Invisible World by Morsha Winokur
Website with comprehensive book list:
www.parentbooks.ca/Fetal_Alcohol_Syndrome.html