REPORT TO THE NEW MEXICO DEPARTMENT OF HEALTH BEST PRACTICES MODEL INCLUDING THE NEEDS OF PEOPLE WITH DISABILITIES, SENIORS, AND INDIVIDUALS WITH CHRONIC MENTAL ILLNESS IN EMERGENCY PREPAREDNESS AND PLANNING PREPARED BY ANN MCCAMPBELL, MD Research By Dee Martinez FOR THE THE GOVERNOR’S COMMITTEE ON CONCERNS OF THE HANDICAPPED (GCCH) (Has been renamed to Governor’s Commission on Disability in 2006) April 7, 2003 TABLE OF CONTENTS I. II. III. IV. V. VI. INTRODUCTION SUMMARY OF KEY BEST PRACTICE RECOMMENDATIONS WHO ARE PEOPLE WITH DISABILITIES, INDIVIDUALS WITH CHRONIC MENTAL ILLNESS, AND SENIORS? A. People with Disabilities B. Children with Disabilities C. Individuals with Chronic Mental Illness D. Seniors BARRIERS ENCOUNTERED AND LESSONS LEARNED IN PREVIOUS DISASTERS A. World Trade Center Disaster (9/11) B. World Trade Center (1993 Bombing) C. Northridge Earthquake (1994) D. Florida Hurricane E. Grand Forks Flood (North Dakota, 1997) F. Ice Storm in Southeastern Canada (1998) PRINCIPLES THAT SHOULD GUIDE DISASTER RELIEF MAJOR ISSUES A Communication B. Emergency Health Information C. Registries D. Evacuation E. Transportation F. Public Health Service Sites G. Assistance Animals H. Shelters I. Isolation and Quarantine J. Training for First Responders and other Rescue Workers K. Recovery Phase and Points of Service 2 VII. VIII. CONCLUSION APPENDICES A. Process and List of Contributors B. Bibliography / Background Materials C. Accessible Checklists for Public Health Service Sites and Shelters D. Tips on Assisting People with Disabilities, Individuals with Chronic Mental Illness and Seniors 1. Specific Assistance Techniques for those with: a. Vision Impairments b. Animal Guides c. Hearing Impairments d. Learning Disabilities e. Mobility Impairments f. Chemical Sensitivities G.. Electromagnetic Sensitivities h. Other Limitations 2. Carry Techniques 3. Evacuating Wheelchair Users 3 I. INTRODUCTION. There is growing concern over the threat of terrorism using weapons of mass destruction (such as biological, chemical, radiological and other agents) by terrorist groups, foreign governments, or individuals. The use of such agents could have a devastating impact on public health. People with disabilities, individuals with chronic mental illness, and seniors are vulnerable populations who may be particularly impacted by a terrorist attack. The needs of these populations need to be identified and included, along with methods of meeting them, in the New Mexico emergency response plan. In addition to terrorist events, people with disabilities, individuals with chronic mental illness, and seniors are at increased risk following other disasters, such as explosions, toxic spills, transportation catastrophes, nuclear power plant accidents, fires, floods, earthquakes, mud slides, hurricanes, tornadoes, volcano eruptions, winter storms, very cold or very hot weather, power outages, and/or loss of phone or water service. Disasters vary in their severity. Some cause only minor disruptions in everyday life whereas others can cause massive loss of infrastructure, including loss of roads, phones, electricity, and water that can last for days to weeks. In addition, the impact of a terrorist strike on New Mexico would depend on whether a biological, chemical, or radiological agent was released directly in the state or whether it was released elsewhere in the U.S. In the latter case, it could still impact New Mexico by interfering with the flow of goods and services here and instilling possible fear and panic in residents. In some ways, people with disabilities may have an advantage over people without disabilities during disasters because they deal with altered and frequently difficult physical and environmental limitations on a daily basis (Disaster Strikes). In particular, people with chemical sensitivities have vast experience managing their air and water, segregating and decontaminating their belongings, wearing protective masks, using air filters, sealing windows and doors to keep out smoke and other noxious fumes, being in a constant state of preparedness for potential assaults, e.g., from neighbor pesticide sprayings or someone walking by wearing perfume, as well as having lots of practice with evacuations. In general, however, people with disabilities, individuals with chronic mental illness, and seniors have a more difficult time during disasters than the general population. When the support system of a person with a disability or senior is disrupted, the person’s ability to live independently changes dramatically. According to June Isaacson Kailes in her Emergency Evacuation Preparedness Guide, “For people with disabilities, barrier-free, as well as barrier-ridden environments, can become a great deal more hostile and difficult to 4 deal with during and after an emergency. For example, people with physical disabilities may have reduced ability to get to accessible exits, as well as reduced access to their personal items and emergency supplies. People with vision and hearing loss and people with speech related disabilities often encounter many more communication barriers, especially when regular communication channels are down or overloaded. These barriers appear at a time when rapid communication may be crucial to survival and safety.” As a result, people with disabilities who were self-sufficient prior to a disaster may have to rely on help of others following one. And people who were previously able-bodied may become disabled, temporarily or permanently, after a disaster occurs. Other people may perform well in a drill, but experience problems during an actual disaster. On the other hand, some people with obvious disabilities or conditions may not need additional assistance in an emergency. Whether an individual with a disability requires electricity to power a respirator, lifesustaining medication, mobility assistance, or post-disaster recovery services, relief organizations and rescue personnel increasingly must be prepared to address the needs of these individuals in the hours and days following a disaster (Blanck, Ctr. Access). But in the aftermath of earthquakes, hurricanes, or other disasters, many people with disabilities have criticized disaster-relief organizations such as the Red Cross and the Federal Emergency Management Agency (FEMA) for being ill-equipped to deal with their unique concerns. When forced from their homes, people with disabilities may encounter evacuation centers that are wholly or partially inaccessible. Distribution of food, water, and other supplies may be conducted from inaccessible locations, with no means of getting supplies to people who cannot reach the centers. Frequently, the procedures of agencies do not take people with disabilities into account, or if they do, staff members are not aware of them. (Disaster Strikes) II. SUMMARY OF KEY BEST PRACTICE RECOMMENDATIONS People with disabilities, individuals with chronic mental illness, and seniors need to be included in an ongoing and meaningful manner in disaster preparedness planning, and not just in the development of initial plans. It is important to include individuals in disaster planning who represent a broad range of physical and mental disabilities and seniors, and to include community members as well as government employees in the process; this should include as many people as possible who have a disability or are seniors. Strategies should be identified that will better enable state, local, and federal agencies, non-profit organizations, and community groups to work together to enhance emergency preparedness, especially in the areas of communication, transportation, and accessibility. 5 Public Health Service Sites (PHSS) and emergency shelters should at least comply with the minimum accessibility requirements of the Americans with Disabilities Act (ADA) and the New Mexico Building Code (NMBC) 1997, as determined by a certified access specialist. (See Appendix C – Checklists for PHSS and shelters.) People with disabilities, individuals with chronic mental illness, and seniors need to be included in all emergency drills and practices. First responders and emergency personnel need additional training on how to help seniors and people with a broad range of mental and physical disabilities, including how to interact with assistance animals. Having patience and respect are key. Special attention should be paid to identifying developing technologies that can be used to improve communication with seniors and people who have disabilities. The best way to prepare for caring for people with disabilities during an emergency is to increase awareness of disability issues and improve access for people with disabilities during non-disaster times. A state ADA coordinator should be established. III. WHO ARE PEOPLE WITH DISABILITIES, INDIVIDUALS WITH CHRONIC MENTAL ILLNESS, AND SENIORS? A. PEOPLE WITH DISABILITIES. Fifty-four million people in the United States are living with a disability. Approximately 220,000 people with disabilities live in New Mexico. The Americans with Disabilities Act (ADA) defines a disability as a physical or mental impairment that causes substantial limitations in a major life activity, such as hearing, seeing, speaking, thinking, walking, breathing, or performing manual tasks. People with disabilities are a diverse group that includes people of all ages with a variety of physical and mental disabilities that manifest in different ways and to different degrees. Many have more than one disability, such as those who are deaf-blind. Some people’s disability will be obvious whereas others have less noticeable or invisible disabilities. In addition, people with disabilities may have health problems for which they are dependent on daily medication, oxygen, dialysis treatments, or other medical equipment or procedures. Some people with disabilities live in residential care facilities or group homes, but the majority lives and work independently and are thus dispersed among the population. Some may rarely, if ever, leave their homes. Approximately 800,000 people live in assisted living facilities nationwide. 6 People with disabilities include, but are not limited to, those with: Communication and Speech impairments Hearing impairments Visual impairments Cognitive impairments Mobility impairments, Psychiatric impairments Chemical and electromagnetic sensitivities As well as: Users of life support equipment Users of assistance animals Individuals who are immunocompromised Barriers that people with disabilities may encounter during an emergency include lack of wheelchair access, inaccessible restrooms, and shelters full of perfume or pesticide, lack of needed medications, and/or emergency notices that are inaccessible for people with vision and/or hearing impairments. After a disaster, people with disabilities may also have a hard time reaching or getting help from personal assistants and other home health providers (Red Cross). And they may not be able to wait in lines for long periods to receive water, food, and other disaster relief assistance. According to the National Organization on Disability’s Emergency Preparedness Initiative: 61% of people with disabilities have not made plans to quickly and safely evacuate their homes. 58% of people with disabilities do not know whom to contact about emergency plans for their community in the event of a disaster. 50% of people with disabilities who are employed full or part time say no plans have been made for a safe evacuation at their workplace. People with disabilities are not a homogeneous group. They have different capabilities, opinions, needs, and circumstances. No one individual or organization speaks for all people with disabilities. Therefore, it is important to include representatives from a diverse range of disability advocacy groups in disaster planning efforts, such as representatives from independent living centers, local groups serving disabled populations (e.g., people who are blind, deaf, have limited mobility or cognitive disabilities or chemical sensitivities), and individuals with disabilities who, though not affiliated with a group, are interested in participating. (N.O.D.) . 7 It is also important to treat all people with disabilities as individuals. One should not ‘lump’ all people with disabilities into one category. For example, there are some emergency plans where all people with disabilities were directed to go to the area of rescue assistance to await members of the emergency team to escort them to safety. As a general rule, there is no reason that individuals with hearing or vision loss cannot use the stairs to make an independent escape as long as they are effectively notified of the need to evacuate.” (Kailes) In New Mexico, Americans with Disabilities Act (ADA) issues are handled by the Governor’s Committee on Concerns of the Handicapped (GCCH) and other state agencies, but there is currently no single person designated as the state ADA coordinator. B. CHILDREN WITH DISABILITIES. Children may be medically fragile and/or have other disabilities like those of adults. However, the needs of these children differ from those of adults with disabilities because (Amer. Academy of Peds): Children are particularly vulnerable to aerosolized biological or chemical agents because they breathe more rapidly than adults and because some terrorist agents, like sarin and chlorine, are heavier than air and accumulate close to the ground in the breathing zone of children. Children are more vulnerable to agents that act on or through the skin because their skin is thinner and they have a larger surface-to-mass ratio than adults do. Children are more vulnerable to effects of agents that induce vomiting or diarrhea because they become dehydrated more easily than adults do. Children have smaller circulating blood volumes than adults, so loss of relatively small amounts of blood can more rapidly lead to shock. Other factors increasing children’s risk of shock is their increased sensitivity to changes in body temperature and faster metabolisms. Children require different dosages and/or different medications than adults. Skin decontamination showers that are safe for adults may result in hypothermia in children unless heating lamps or other warming equipment is provided. Children have greater susceptibility to the effect of radiation exposure than adults (Montefiore). Children’s motor skills and cognitive levels, which can include the inability to follow directions from others, may impede their ability to escape from danger. 8 Children may struggle against the efforts of health care workers because they do not understand what is going on or may be frightened by the appearance of workers in protective gear. Providing quality mental health care to children following a disaster requires ageappropriate intervention. Many children with special health care needs require technologies to keep them out of a health care crisis. When a power outage or other disaster occurs, the lives of the following children are threatened (Family Voices): Children dependent on life-sustaining technology, such as oxygen, ventilators, IVs, apnea monitors, and total parenteral nutrition (TPN) lines. Children who cannot be easily moved because of physical fragility. Children affected by extremes of temperature. Children in large casts or other equipment that impedes movement and carrying. Children who have conditions such as autism, brain injury, developmental disability, head injury, or visual impairment that makes it hard for them to adjust to sudden environmental changes. Children with cancer who are hooked up to IVs and other equipment. Premature babies. C. INDIVIDUALS WITH CHRONIC MENTAL ILLNESS. Approximately 115,000 people in New Mexico report having a mental disability. People who have a chronic mental illness include, but are not limited to, those with bipolar disorder, panic and anxiety disorders, post-traumatic stress disorder (PTSD), depression, schizophrenia, autism, and Alzheimer’s disease, as well as alcoholism, drug and other addictions. Some people with these disorders may be medicated or receiving other treatment which reduces or eliminates their symptoms. Others may be anxious, panicky, delusional, or paranoid, especially in the midst of a crisis. In addition, the presence of a thought disorder, hallucinations and/or delusional beliefs can make it difficult to comprehend an emergency. In fact, some people with chronic mental illness may seem oblivious to a disaster. People with chronic mental illnesses comprise a significant portion of the homeless population. Others may live in private residential housing, group homes, motels, the state psychiatric facility, or stay with friends or family members. Some people with chronic mental illness are competent to make their own decisions. Others may have a guardian, conservator, or treatment guardian to make certain decisions for them. 9 There are differing opinions on the degree to which people with chronic mental illness are negatively impacted by disasters. While stressful events are known to trigger relapses -- such as paranoia, hallucinations, or mania -- a surprising number of people with chronic mental illness have coped well during previous disasters, as long as mental health services continue to be available. On the other hand, studies have shown that people with chronic mental illness are more likely than others to develop post traumatic stress disorder (PTSD) following a disaster. This is in addition to the estimated 30-40% of people with chronic mental illness who currently have PTSD. (Nat’l Ctr. for PTSD) While there are already acknowledged gaps in the availability of required services and medications for people with chronic mental illness during normal times, access to these services is often further jeopardized during a disaster. D. SENIORS. Seniors are people over 65 years of age. The numbers of seniors are growing throughout the United States. They comprise 11.7% of the population in New Mexico. Many are perfectly healthy, while others may have a mental or physical illness or disability. It is not unusual for seniors to have increasing trouble with seeing, hearing, walking, balance, concentration, and memory. In New Mexico, ten to twelve thousand seniors are blind or visually impaired. Seniors may also lose their sense of direction and tend to get lost easily. In addition, their diminished immune and detoxification systems make them more vulnerable to biological and chemical agents. As with people with mental and physical disabilities, some seniors may be homeless, while others may live in residential care facility and/or rarely, if ever, leave their homes. Some seniors are competent to make their own decisions, while others have a guardian or conservator to help them. The majority of older New Yorkers are reported to have held up extremely well in the chaos of September 11th and its aftermath. This is consistent with studies that have found that older adults who have survived previous disasters are more psychologically able to cope with subsequent disasters than less experienced people. On the other hand, for some seniors who have already suffered multiple losses, such as loss of health, ability to work, and loss of loved ones, the occurrence of a disaster can be the final straw that overcomes their ability to cope. The frail elderly, many of whom require institutional care, are also likely to suffer adverse impacts during a disaster situation. Over 90% of nursing home residents carry at least one psychiatric diagnosis and/or one behavioral problem. The additional stress of a disaster will likely tax the already limited psychological and cognitive capacities of this population. Even in facilities with exemplary preparedness, “transfer trauma” is common when institutionalized elderly are evacuated from familiar surroundings. This trauma can be minimized if routines and ties with caregivers, relatives, and friends, are quickly reestablished. Even seniors who are living independently may be extremely reluctant to leave their homes, especially if they are not allowed to take their pets with them. (Psych Times) 10 IV. BARRIERS ENCOUNTERED AND LESSONS LEARNED IN PREVIOUS DISASTERS A. WORLD TRADE CENTER DISASTER (9/11): A wheelchair user who worked on the 68th floor of the World Trade Center (WTC) was safely carried from the building thanks to a specialized chair purchased after the 1993 bombing. Two wheelchair users escaped from the WTC using evacuation chairs with inexperienced helpers because they broke the rules and left before being found by rescue workers. Most who did what they were expected to do, that is, waited to be rescued, died. (Kailes) People who were deaf and hard of hearing could not receive instructions on the stairwell after the power and lights went out (Kailes), however those with text pagers did receive disaster and evacuation information (Davis). Some people with respiratory problems acknowledged that prior to the emergency they had not considered themselves as having a disability that would qualify them for inclusion in the emergency evacuation plans for those requiring specific assistance. (Kailes) Equipment installed in the Pentagon to help blind people evacuate in emergency situations also helped others evacuate the smoke-filled corridors. The entire staff of the Associated Blind safely evacuated their building’s 9th floor which they attributed to their advance planning and evacuation drills. Because emergency workers believed that buildings had been evacuated, some seniors and people with disabilities who were unable to leave their apartments were left behind with no electricity (and therefore no television, lights, elevators, refrigerators, etc.), no running water, and no information about what was happening and what they should do. (O’Brien) Within 24 hours following the 9/11 terrorist attacks, animal advocates were on the scene rescuing pets, yet some seniors and people with disabilities waited for up to seven days for an ad hoc medical team to rescue them. (O’Brien) It is reported that one quadriplegic person was alone for three days until the Red Cross team of medical professionals searched the building and found the critically ill resident. (O’Brien) It was difficult or impossible for home health aides to check on whether or not their clients had been rescued. 11 There are reports that younger able-bodied individuals commandeered evacuation buses leaving some seniors and people with disabilities behind. (Lewis) There were problems for some people with hearing impairments who were evacuated without their hearing aids. Some people with disabilities assumed the emergency shelters would be inaccessible and paid to stay in hotels instead. Some agencies had hotlines that did not show TTY/TTD (teletext typewriter / telecommunications device for the deaf) numbers. Even when a hotline was TTY/TTD accessible, the media frequently did not publicize this information. Closed news captioning disappeared for a period of time on the few televisions that were still working. In the days to weeks following the attacks: Paratransit service in the Ground Zero area was suspended and placed under stricter limits citywide [Note: Paratransit is specialized curb-to-curb service, usually in vans or sedans, for people with disabilities who are unable to ride fixed-route public transportation, such as buses and trains, and/or cannot get to boarding locations.] Some people who previously had used paratransit services or had received mobility training for a certain route, or used accessible train stations couldn’t get to work or home. Some people were not able to get necessary prescriptions filled. Wheelchair and other equipment repairs were delayed or unfinished because repair shops were closed. Many people were not making it to critical health care appointments, either because they could not find transportation or were afraid to leave their homes. People who are blind or have low vision had to spend hundreds of hours learning how to navigate the rearranged city, on foot and by re-routed public transportation. People with disabilities who were displaced from their homes had a very difficult time finding other accessible apartments, which constitute only small percentage of the already scarce apartments in New York City. (CIDNY) Y2K preparedness plans were useful in providing already established plans to convert from computer to paper-based operations, such as issuing emergency paper vouchers for food stamps when the food stamp cards ceased to work. 12 Elizabeth Davis, who was the Special Needs Adviser to the New York City Office of Emergency Management at the time of the WTC attacks, adds the following observations: Information and Notification – A media antenna was lost when the WTC collapsed which initially wiped out television transmission to the tri-state area (New York, New Jersey, and Connecticut); power went out, cell phones did not work, computers went down, and mail and newspaper delivery was halted in the disaster area. Evacuation – Elevators did not work in surrounding buildings; some isolated elderly individuals were frozen in shock and had to be found via door-to-door searches and urged and helped to evacuate. Transportation – Was a big problem and slow to restore; bridges, tunnels, and airports were closed; subway service was down for a year in the disaster zone; paratransit had difficulties because streets were not cleared; certain bus routes were either unavailable or altered; some people with disabilities were unable to read the signs announcing route changes and/or were unable to reach other boarding locations. Geography – Some streets and buildings were gone; blind individuals had to retrain to find new landmarks, which were constantly changing during cleanup. Shelters – Were minimally used; most people sought refuge with family and friends; even though emergency shelters were advertised as “evacuation centers,” some people may have avoided them because they sounded like homeless shelters, which they found unappealing; all the shelters/evacuation centers met minimum accessibility criteria for people with disabilities. Prescriptions – The inability to refill their prescriptions was a critical problem for seniors and others dependent on medications; people had trouble getting their medications refilled because their usual pharmacy was closed, Medicaid or Medicare cases were pending but the federal building was closed, people could not physically get to open pharmacies, and/or some pharmacies would not honor “emergency” Medicaid as the vouchers were paper (old system) and not plastic swipe cards (new electronic system); however, major pharmacy chains agreed to provide a small supply of non-controlled substance medications to people who had an empty bottle that indicated they were entitled to a refill. Services – There was a disruption in many services, including food stamps, meals on wheels, home health, attendant and other services that many seniors and people with disabilities rely on. Some caregivers were hesitant to enter what was possibly a contaminated area. Examples of transportation impacts on people with disabilities due to enhanced air travel security following the World Trade Center attacks: 13 People with visual impairments were forbidden to bring their canes on board a plane because they could be used as weapons. Some people with a service animal were suspected of having a vicious attack dog. A traveler's Braille 'n' speak computer device was taken from him and not returned until he got off the plane. Hearing aids were inspected in case they were secret transmitters. People's power wheelchairs were dismantled and scrutinized. One man was bodily lifted out of his wheelchair so guards could check under the seat cushion for weapons. Insulin syringes were seized as weapons. Medicine bags were taken away as excess carry-on-luggage. B. WORLD TRADE CENTER (1993 Bombing) – Another of the lessons learned from the World Trade Center incident involved the complaints of blind tenants who, after being escorted down and out of the building, were left in unfamiliar surroundings in the midst of a winter ice storm, where they had to negotiate ice covered sidewalks and falling glass from overhead. C. NORTHRIDGE EARTHQUAKE (1994) (Earthquake): Following the Northridge earthquake, complaints received by the Independent Living Center of Southern California included complaints of inaccessible shelters, unreachable supply distribution points, and poorly trained volunteers, among other problems. In a number of cases, disabled people were turned away from shelters and told to go to hospitals by staff members who assumed that they were sick or injured. (Disaster Strikes) Initially there was no power, television, or telephone. Loss of electrical power had serious and possibly dangerous repercussions for those dependent on motorized wheelchairs, respirators, and other pieces of equipment (Disaster Strikes). A woman who uses a wheelchair was forced to leave her fifth-floor apartment because of damage to the elevator. She applied to the Federal Emergency Management Agency (FEMA) for emergency housing assistance, but was turned down because the building had been “green-tagged” (inspected and judged to be safe for occupation even though the elevator was not working). (Disaster Strikes). 14 There were problems with the Red Cross shelter. A man with a hearing impairment was denied shelter because its personnel could not understand sign language. People with cerebral palsy conditions were not served because shelter volunteers thought they were on drugs or alcohol. A quadriplegic man could not take a shower for a week because the shelter was not equipped with an accessible shower stall. A man was not permitted to bring his seeing-eye dog into a shelter. He was angry at the ignorance and lacks of compassion that he felt were displayed by organizations supposedly set up to help people in times of crisis. He felt everyone should be given equal treatment and that he wasn’t. In an attempt to improve or resolve such problems, members of a disability advocacy center led on-site awareness sessions at shelters during the first week after the earthquake. (Disaster Strikes). In another report, it was noted that trash and glass were everywhere after the quake. It was hard to get around, especially for wheelchair users and the visually impaired. Elevators went out, and that combined with the minimal transportation availability (most of it non-accessible) made it nearly impossible for most people with disabilities to make it to shelters. Once in shelters, people with disabilities had access problems, especially with restrooms and showers. No guide dogs or assistance animals were allowed in any emergency shelter. Many people with disabilities were unable to stand in line for up to 7 hours for post-disaster services. (Berkeley) After the quake, many services normally available to people with disabilities were no longer available or were stretched beyond demand. For example, people could not get extra attendant hours allotted for clean-up or in-home support help. Finding accessible replacement housing was very difficult. The Red Cross and other local emergency preparedness plans either did not include people with disabilities at all or their plans were inadequate. D. FLORIDA HURRICANE – One major problem was that people with hearing impairments could not keep up with storm warnings on radio and television. In response, television stations now close-caption their hurricane coverage and several deaf organizations have set up TTY/TDD hotlines to keep those with hearing-impairments upto-date on storm warnings and evacuation orders. (Disaster Strikes). In another Florida storm that caused severe flooding, a chemically sensitive man tried to use an emergency shelter, but was made so sick by the perfume, laundry detergent fumes, scented hair products, and tobacco smoke residue on other people that he had to leave. When he asked the shelter director what he was supposed to, he was told to go back home (even though residents had been instructed to leave the area) because the shelter was only set up to deal with the majority of people and could not worry about problems like his. The man ended up spending the night in his car. He was very angry because he felt he was entitled to shelter services like everyone else. 15 E. GRAND FORKS FLOOD (North Dakota, 1997) – A man who used a wheelchair and lived independently was flooded out of his accessible home. The man was offered temporary accessible housing, but it was 250 miles away and would have removed him from his support network. Local emergency planners arranged for accelerated repairs and cleanup of his home and he was able to return to it without a prolonged disruption. (N.O.D.) F. ICE STORM IN SOUTHEASTERN CANADA (1998) – People with chronic mental illness coped well because they continued to have access to medications and other mental health services. Some individuals even reported that they enjoyed the 2-week period of the ice storm, since they had uncharacteristically easy access to food, shelter, and company. (Canada) IV. PRINCIPLES THAT SHOULD GUIDE DISASTER RELIEF (7 Principles Blanck, adapted) A. 1. Accessible Communications and Assistance: Communication is vital for people with disabilities during a disaster in order to help assess damage, collect information, and deploy supplies. People with hearing impairments require interpreters, TTY/TDD communications, and signaling devices. In addition, written materials must be produced on cassette tape, on CD-ROM, or in large print for people with visual impairments. People with cognitive impairments, such as those with developmental disabilities, Alzheimer’s disease, or brain injury, require assistance to cope with new surroundings and minimize confusion. The media, in partnership with disability and governmental organizations, should provide emergency information in formats accessible to people with disabilities. 2. Accessible Disaster Facilities and Services: Access to appropriate facilities, including housing, beds, toilets, and other necessities, must be monitored and made available to individuals with disabilities before, during, and after a disaster. This access also must be ensured for those who incur a disability as a result of a disaster. Appropriate planning and management of information related to architectural accessibility improves the provision of disaster services for people with disabilities. Disaster relief plans should embrace the concept of universal access and design. Universal design is the design of products and environments to be usable by all people, to the greatest extent possible, without the need for adaptation or specialized design (Universal Design Center). 3. Disaster Preparation, Education, and Training: Relief and rescue operations must have the appropriate medical equipment, supplies, and training to address the immediate needs of people with disabilities. They may require oxygen, bladder bags, insulin pumps, walkers, or wheelchairs. Relief personnel must be equipped and trained in the use of such equipment. In addition, relief personnel should provide training, particularly for personnel and volunteers in the field, on how to support the independence and dignity of people with disabilities in the aftermath of a disaster. 16 4. Cooperative Partnerships: Leaders and experts within the disability and seniors communities should establish a cooperative relationship and ongoing dialogue with members of relief organizations (including the Red Cross), media professionals, and local, state, and federal officials in order to include people from these communities in disaster preparedness plans.(Blanck, Annenberg) B. MORE PRINCIPLES TO GUIDE DISASTER PREPAREDNESS (N.O.D. adapted, Emergency Preparedness Initiative and N.O.D. web information) The best way to prepare for taking care of people with disabilities in an emergency is to improve their access and others’ awareness of disability issues during non-disaster times. Provide first responders and other emergency personnel with training, information, and practice in taking care of people with a variety of disabilities, including individuals with chronic mental illness, and seniors. Make sure that the needs of people with disabilities are adequately addressed prior to an emergency. Make the needs of people with disabilities, individuals with chronic mental illness, and seniors, as well as other vulnerable populations, a priority in emergency planning rather than the current focus on the healthy able-bodied majority. People with disabilities must be included in preparedness planning for all emergencies, and all plans must take people with disabilities into account. Ensure that people with disabilities are included in the emergency planning process for all four phases of emergency management – mitigation, preparedness, response, and recovery. Hold public hearings and solicit public input on emergency preparedness plans for people with disabilities and seniors. People with all types of disabilities must be included in emergency plans and planning, including those who are deaf/hard of hearing, blind, or have a mental illness, chemical sensitivities, or a physical, cognitive, or invisible disability. Ensure that people with a variety of different disabilities are included in drills and practice emergencies. Informational materials and emergency notification communications must be provided in alternate formats including closed-captioning, audio alerts, and interpreter services. 17 All notices of meetings and interactions relevant to disaster preparedness must mention the needs of people with disabilities and such meetings shall be held in accessible locations (including speakerphone access) with all information pertaining to them available in accessible formats. Identify where concentrations of people with disabilities and/or seniors live or work in the community, such as senior housing developments, residential care facilities, schools with large populations of students with disabilities, and apartment complexes that may house large numbers of residents with disabilities. Make allowances at blockades, shelters, and other impacted areas for access by attendants, home health aides, visiting nurses, assistance animals, and other individuals crucial to the immediate health care needs of people with disabilities. Identify the impact on the disability community of an interruption in utility services and make plans for providing alternative energy sources and/or restoring utility services as quickly as possible. Plan for accessible shelters and appropriate temporary housing needs. Address how people with disabilities who are employed by businesses that are able to open soon after a disaster will get to work. Involve representatives of the disability community in “after action reviews” in order to assess the true impact of the disaster and to improve plans for the future. Prior to an emergency, train volunteers on the basics of serving and caring for seniors and people with disabilities. Address questions of whether nursing homes are required to have an onsite source of redundant power and what level of emergency plans home care agencies are required to have in place for their clients with disabilities. Make maximum use of universal design standards. Compliance with such standards often provides the best opportunity to escape from buildings and homes. Ensure that the medical community is prepared to advise and treat people with disabilities who may have severe medical problems during emergencies. Have plans to deliver services from alternate locations and in alternate methods if needed during an emergency. People with disabilities must be given priority during a disaster’s recovery phase to avoid further trauma or interruption of established services. 18 Ensure plans identify appropriate exceptions to standard plans such as allowing access to restricted zones for people with disabilities using paratransit and other accessible vehicles and permitting access to restricted zones to personal care attendants who need to reach their clients who are seniors and/or have disabilities. Rely on appropriate members of the disability community to help research emergency equipment for use by people with disabilities during a disaster, such as evacuation chairs, transfer-height cots, communication boards, and masks and air filters. Identify and take appropriate steps to minimize the unintended disability-related effects of security measures, including transportation barriers, limited access to buildings and facilities, restrictions on electronic information technology, exposure to environmentally unsafe environments, and reduced opportunities for employment. Ensure that necessary research relating to preparedness and people with disabilities, including surveys of specific needs, and research and development of low-tech and hightech solutions for response, evacuation and relief issues is undertaken and utilized. Ensure that all personnel of the Office of Emergency Services and Security in the NM Department of Public Safety are properly trained and regularly exercised in procedures relating to seniors and people with disabilities and include seniors and people with disabilities in developing training materials and procedures. Ensure that all state-produced emergency preparedness information for the general public, from training materials to warnings of imminent emergencies, is available in accessible formats, including closed-captioning television broadcasts. Ensure that a variety of people within the broad spectrum of disabilities are included and appropriately represented in all preparedness materials, publicity and plans. Ensure that shelters and facilities used are accessible to people with disabilities and seniors and that there is the capacity for reaching out to people who are unable to leave their homes. Promote the creation of a bank of mechanical and electronic equipment to meet the needs of people with disabilities and seniors, such as eyeglasses, hearing aids, oxygen tanks, humidifiers, canes, crutches, walkers, wheelchairs, and others. Promote the establishment of support networks for people with disabilities and seniors. Identify and offer training to volunteers and organizations interested in helping people with physical and mental disabilities and frail seniors who live alone and/or lack a primary person responsible for their care. 19 Identify strategies that will better enable state, local, and federal agencies to work together to enhance emergency preparedness in areas of communication, transportation, food and water distribution, vaccinations, evacuations, and appropriateness of shelter sites, among other things. Disaster plans should include specific protocols for management of children, including children with disabilities, in such as areas as prevention, communication, community preparedness, countermeasures, therapeutics, and emergency response (Amer Academy of Peds). Local disaster teams should include pediatricians and other personnel skilled at evaluating and treating children. Schools and child care and after-school care facilities must be prepared to evacuate children (including those who are too young to walk and/or follow directions and those with disabilities and/or special health care needs), take them to a safe place, notify their parents, reunite children with their families, provide or arrange care for children whose parents are incapacitated or cannot be reached, and render first aid. Government agencies should work to ensure that adequate supplies of antibiotics, antidotes, and vaccines are available to children. Y2K plans should be reviewed to determine their relevance to general emergency preparedness. Compile rules, regulations, laws, and legislation that pertain to people with disabilities, individuals with chronic mental illness, and seniors in New Mexico (such as the Americans with Disabilities Act) and ensure that emergency plans are in compliance with them. Use information obtained from oxygen providers to determine the number of individuals dependent on oxygen service in order to estimate the number of people who might need oxygen at a shelter following a disaster. Consider the creation of a statewide 2-1-1 phone system to provide information and referrals to community services, which can be especially helpful for seniors and people with disabilities following a disaster. Use a flexible, outreach-oriented approach to mental health service delivery following disasters. 20 VI. MAJOR ISSUES The following describes issues and best practices with regard to communication, identifying and locating individuals needing help, transportation, evacuation, and access to public health service sites, shelters, and post-disaster services for people with disabilities, individuals with a chronic mental illness, and seniors. A. COMMUNICATION Communication is crucial in an emergency to provide initial warnings, specific directions on how to shelter or evacuate, and what personal items (like medicines and life supports) to take. Emergency communication includes preparedness outreach, emergency warning or notification, emergency information and instruction, and recovery information. It is also important for members of the public, including people with disabilities, to be able to communicate effectively with first responders, other emergency personnel, and health care providers. Most disability-targeted communication can be implemented as an adjunct to more general strategies. Communication Recommendations: Use as many varied media as possible to spread information. Television stations should not run a text message “crawl” across a television screen in any area reserved for closed-captioning. All television emergency messages should be captioned, including live updates. Camera operators and editors need to include the sign language interpreter in the picture if he or she is interpreting next to an emergency spokesperson. Emergency hotlines should include TTY/TDD numbers or the instruction “TTY/TDD callers use relay”. Make sure the same information is provided by emergency spokespersons and is used on television and radio. Frequently repeat the most essential emergency information in a simple message format that those with cognitive disabilities can follow. When posting information on a web site, make sure the web site is accessible, i.e., meets World Wide Web Consortium’s Bobby standards or the Federal Government’s Section 508 standards. Provide information in alternate formats whenever possible, such as Braille, audiocassettes, large font text, and color contrasts. 21 Check with large theme parks, e.g., Disneyworld and Busch Gardens, to see how they communicate information to visitors who are deaf, hard of hearing, or have other disabilities, and to obtain information on their emergency plans for evacuations and sheltering. Reunification plans should be established to facilitate people finding each other after a disaster, especially caregivers finding seniors and people with disabilities. Soon after a disaster, locations of shelters need to be well publicized so that family, friends, and caregivers can search more effectively for people with disabilities, and vice versa. More Communication Recommendations (DP2 adapted): The state should either establish an Internet web site or add web pages to an existing web site that will communicate response and recovery information of interest to people with disabilities after a disaster. The state should publicize the existence of this information resource to the disability community in advance of a disaster and to the entire community immediately after a disaster. The GGCH should recommend information to appear on the Internet site, encourage disability service organizations to submit pertinent information, and periodically update information prepared in anticipation of a future disaster. Information should also be broadcast on Newsline for the Blind. There should be captioned video preparedness information before a disaster and closed captioning and signing available after a disaster (Berkeley). If online services and power are available after the emergency, computers could be a great resource for those in the deaf community. Attention should be paid to identifying developing technologies that can be used to improve communication with seniors and people with disabilities. Television stations should: Understand that excessive broadcast of disaster damage has an adverse impact on some people with disabilities; that footage of disaster damage always needs a geographic context; and that viewers who have disabilities (both inside and outside the disaster area) need more specific information about what they should do. Comply with the FCC rule that requires that broadcasted disaster information contain open captions. Voice all broadcast displays of telephone numbers, the names of streets and geographical areas affected, and other displayed information for those with visual or cognitive disabilities. 22 Radio and television stations should: Provide information specifically related to people with disabilities in general, as well as information pertinent to particular disability groups. Clarify whether warnings about not drinking contaminated water also apply to assistance animals used by people with disabilities. Inquire, before broadcasting announcements about disaster services for senior citizens, if people with disabilities are also eligible for the services. Produce public service announcements pertinent to people with disabilities in advance of a disaster and periodically review them for continued validity. If blimps with message boards are available, consider using them to publicize disabilityrelated information and resources. Emergency announcements should include brief notices about major sources of disability-related information, as well as TTY/TDD telephone numbers that can be passed on to hearing-impaired people. Disaster information centers (phone lines) should provide information on disabilityrelated disaster resources. Guides published on food distribution sites should include information on their accessibility for people with disabilities and, if necessary, alternative means by which they can obtain food. Telephone companies should consult with the GCCH in order to add information about disaster resources, preparedness, and response pertinent to people with disabilities to the white pages of telephone books. Telephone companies should establish an 800-number voice information system for those with visual and cognitive impairments in order to hear the white pages disaster information. The system should have an option for listening to response and recovery information following a disaster. Agencies with video information on disaster preparation and response should add captioning for hearing-impaired people and audio description for visually-impaired people. The state should urge major distributors of such videos to only market videos with captioning and audio description. 23 B. EMERGENCY HEALTH INFORMATION The state should encourage seniors, people with disabilities, and other citizens to carry emergency health information with them at all times. This information should include critical health information and emergency contacts, as well as local emergency response numbers. Emergency health information tells emergency and rescue personnel what they need to know about you if they find you unconscious, confused, in shock, or just unable to provide the information. People are encouraged to make multiple copies of this information to keep in emergency supply kits, car, work, wallet (behind driver’s license or official identification card), wheelchair pack, etc. (Kailes) In storage areas where there is room, it is also advisable to put the information sheet in a plastic ziplock bag in order to protect it from water damage. Emergency health information should at least include a person’s name, home and work address and phone numbers, birth date, blood type (if known), social security number, health plan and account number, person to contact in an emergency, how to contact one’s primary care provider, disability/health conditions, medications, allergies and sensitivities, immunizations, and information on how one communicates and what devices or other assistive equipment one uses. (Kailes) C. REGISTRIES – While there is understandably concern about reaching vulnerable people in an emergency, many people with disabilities, seniors, and individuals with chronic mental illness have mixed feelings about being listed on a registry for people requiring special assistance. These special needs registries are typically used for preemergency outreach, alerting citizens about an emergency, assisting with evacuations, and providing emergency services such as transportation and health care during a disaster. But many people with disabilities do not want to have their privacy violated by registering with a government agency for this purpose. In addition, some people may not wish to identify themselves as having a disability. Others may not view their disability as one that causes them to need more help than other people. It is a recommended best practice in New Mexico that a voluntary locally-based registry be offered to people with disabilities, individuals with chronic mental illness, seniors, and other vulnerable populations. The availability of this registry should be broadly advertised, including notices going to members or clients of organizations representing or serving people with disabilities, such as independent living centers and Commission for the Blind, for example. In lieu of, or in addition to, a voluntary registry, individuals should be advised to contact their local fire departments and emergency medical service personnel to let them know who they are, where they are, what problems they have, and the help they may need in an emergency. 24 In Berkeley, California, for example, a plan was drafted for creating a voluntary registry of people who were likely to need help within 72 hours of an emergency due to a disability and/or need for oxygen, ventilators, and batteries, among other things. Those wishing to join the registry would have made themselves, their locations and specific needs known to emergency personnel. No other information was required to be disclosed. It would have allowed emergency personnel to locate and offer help to people on the registry in the case of a major disaster. If a special needs registry is created in New Mexico, several issues need to be addressed: Are funding, equipment, and staff available to maintain the registry? Are there resources to continually update it once it is created? What will the criteria for inclusion in the registry be? Who will review applications for inclusion and make eligibility determinations? What expectations will be placed on individuals with disabilities or chronic? mental illness, or seniors, once they are listed? What allowances and accommodations will be made for people who are temporarily disabled, like those in long-term rehabilitation, recovering from a serious illness, or in the hospital? What safeguards will be put in place to protect registrants’ privacy and the confidential information they provide? When, how and with whom can this information be shared? D. EVACUATION Not all disasters require residents to flee their homes or place of work. In fact, many times the safest place to be in is one’s home. However, the need for escape or rapid exit is common enough that it should be addressed in emergency planning efforts. Unfortunately, the needs of people with disabilities have often been overlooked or inadequately addressed in the past. Several disability advocates have noted that after the years of work it has taken to get people with disabilities into buildings, the current challenge is to do a better job of getting them out. All workplaces, schools, apartment buildings, and other residential facilities should have an evacuation plan and conduct regular drills to familiarize residents and employees with the escape plans. These plans should include the needs of all people with disabilities, which can range from those who use wheelchairs or have other mobility impairments to people with visual, hearing, or mental impairments, or chemical sensitivities. In places of employment, evacuation plans should address the following questions (JAN): Do all people with disabilities have “buddies” to alert and assist them in an emergency? 25 Have employees been encouraged to make a list of medications, allergies, sensitivities, and special equipment, as well as the names, addresses, and telephone numbers of doctors, pharmacies, family members, friends, and any other important information? Are storage areas provided for necessary evacuation aids, such as evacuation chairs? Are storage areas provided in several accessible areas for emergency supplies, such as packs or backpacks that attach to walkers, wheelchairs, or scooters? Are there numerous barrier-free passageways and exits from the building? Are manual pull stations mounted at a height between 48 to 54 inches? Is the building in compliance with all federal, state, and local building codes? Are lighted strobes and other visual or vibrating alerting devices used to supplement audible alarms (taking into account that lighted strobes should not exceed five flashes per second due to the risk of triggering seizures in some individuals). Have areas of rescue, locations that are relatively safe from immediate danger, been established? If these areas do not have escape routes, they should have 1) an operating phone, cell-phone, or two-way radio so that emergency services can be contacted, 2) a closing door, 3) supplies that enable individuals to block smoke from entering the room from under the door, 4) a window and something to write with (crayon, marker) or a “help” sign to alert rescuers that people are in this location, and 5) respirator masks. Have accessible signs been placed, such as Braille or audible directional signage? Are heavy gloves, which are used to protect individuals’ hands from debris when pushing their manual wheelchairs, a patch kit to repair flat tires, and extra batteries for those who use motorized wheelchairs or scooters, available in a supply kit? Have emergency procedures been distributed in Braille, large print, and audiocassette formats? Have employees received training on understanding and interacting with people who have disabilities? 26 Have employees been trained in how to carry or assist individuals who use mobility aids, basic sign language to communicate with individuals who are deaf or hard of hearing, and instructions for helping individuals who use assistance animals? In large facilities, such as stadiums, arenas, and museums, full-scale evacuation drills are usually not feasible (with certain exceptions like schools). Nevertheless, it is critical that managers of these facilities have effective evacuation procedures in place for people with disabilities and that staff members are trained in dealing with people with all types of disabilities. For example, they must be able to communicate disaster instructions to people with disabilities during a crisis and/or under unfavorable circumstances, such as the loss of power. Community evacuation plans should be designed to allow the necessary time and assistance for people with disabilities to be adequately notified of evacuation plans. They also must be able to bring with them special equipment or supplies, e.g., wheelchairs, crutches, dialysis machines, ventilators, respirators, oxygen tanks, air filters, tolerated food and water, and guide animals. It is recommended that large care facilities be among those first notified of the need for an evacuation to allow more lead time to move its residents. Communities may need to provide accessible transportation and other resources if people with disabilities are among those ordered to evacuate an area. E. TRANSPORTATION It is vital to make accessible transportation available during and after a disaster. Because transport fleets with wheelchair lifts or ramps may not be available or might be called into service in other areas, it is helpful to include non-emergency vehicles in disaster plans. Door-to-door pick-ups have been employed in some localities and should be incorporated into emergency plans if applicable. Use of senior vans should be considered. Few people with chemical sensitivities can use public transportation and would probably need to rely on their own vehicles or other more chemically-inert vehicles owned by other chemically sensitive people. With regards to the heightened airport security since the World Trade Center attacks, the U.S. Department of Transportation says that travelers with disabilities must realize that it is as legitimate to suspect people with disabilities of bad intentions as it is to suspect people who do not have disabilities. Therefore, some of their equipment is worthy of suspicion and careful inspection, whatever that takes. However, the Department also acknowledges that violations of civil rights and the Air Carrier Access Act are not acceptable and that steps will be taken to ensure that the new security requirements preserve and respect the civil rights of people with disabilities. 27 F. PUBLIC HEALTH SERVICE SITES Public Health Service Sites (PHSS) should be as accessible as possible for as many people as possible. In addition, there should be outreach capabilities to provide services to individuals who are unable to leave their homes or do not have transportation to get to sites. Public Health Service Sites (PHSS), including triage and medical evaluation areas (separate areas for identifying and evaluating people who are ill), must comply with the minimum accessibility requirements of the ADA and the NM Building Code (NMBC) 1997 as determined by a certified access specialist. (See Appendix C, Accessible Checklists for Public Health Service Sites and Shelters.) Public Health Service Sites (PHSS) should have adequate disabled parking, be wheelchair accessible, have accessible entrances/exits and restrooms (including at least one non-chemical toilet), TTY/TDD phone capabilities, a sign language interpreter if needed (use deaf or hard of hearing person whenever possible and appropriate language), provide assistive listening devices, have ability to separate people with animal allergies from assistance animals, a separate fragrance-free room for people with chemical sensitivities, asthma, and others who are particularly impacted by poor air quality, and public rest facilities. Note that trailers used for triage or medical evaluation areas are unlikely to be accessible to mobility-impaired individuals and trailers and tents are unlikely to be accessible for some people with chemical sensitivities. In cases where the PHSS is inaccessible for people with chemical or electromagnetic sensitivities or people with other disabilities, there should be an option of receiving services outdoors. In addition, public health service sites (PHSS) should be able to provide oxygen, insulin, sugar snacks, N-100 viral protection masks, and seizure, asthma, psychiatric and other common vital medications to individuals who need them. Smoking should be prohibited inside the building and within 50 yards surrounding it. Vehicle engines should not be permitted to idle within 50 yards of the site (except when necessary to start engines). People with disabilities, individuals with chronic mental illness, and seniors who are unable to stand in line for long periods or in excessively hot or cold or otherwise intolerable areas should be allowed to go to the head of lines. ASSISTANCE ANIMALS The Americans with Disabilities Act (ADA) defines an assistance animal as any guide dog, signal dog, or other animal that is individually trained to provide assistance to an individual with a disability. Assistance animals are also known as service animals. Assistance animals are not pets or “comfort” animals. Some assistance animals are professionally trained while others are trained by their owners. Some, but not all, assistance animals wear special collars or harnesses. 28 Service animals perform some of the functions and tasks that the individual with a disability cannot perform for himself or herself. People are most familiar with “seeing eye dogs”, but other animals such as monkeys and even miniature horses can be used as assistance animals. Assistance animals can provide an array of services for people with disabilities (Guidehorse), including: Guiding people with visual impairments when walking Helping people with mobility impairments with balance and walking Pulling wheelchairs or picking up or carrying things for people with mobility impairments Alerting people with hearing impairments to sound Detecting impending seizures in people with epilepsy Detecting low blood sugar in people with diabetes Some people who use an assistance animal have obvious disabilities, while others may have a less noticeable or invisible disabling condition, such as epilepsy, heart or lung disease, or a mental illness. Therefore, people who are accompanied by an assistance animal may or may not “look” like they have a disability. By federal (ADA) and state law (NMSA, annotated, 28-11-2 et seq., Service Animal Act), people with disabilities have the right to be accompanied by their assistance animals in all places of public accommodations, including emergency shelters, public health service sites, and motels, among other places. (San Antonio) In addition, individuals who are accompanied by assistance animals are not to be routinely segregated from other people who are occupying or using the facility. A person who is accompanied by an assistance animal is not required to show proof that the animal is an assistance animal. Neither is the person with a disability required to provide verbal or written confirmation to establish his or her disability. (NYC Bar) Although some states (not New Mexico) offer certification of assistance animals, the ADA does not require states to establish licensing or certification programs for assistance animals. And even in states where certification is offered, animals are not required to be certified to meet the ADA definition of assistance animals. Therefore, if a person declares that he or she has a disability and that his or her animal is an assistance animal, then that animal should be treated as an assistance animal. Some people with disabilities or seniors, especially those who may be hard of hearing or frail, rely on their animals to alert them to people approaching their homes or to unusual noises or circumstances. While these “alert” animals, usually dogs, are not trained as “assistance” animals, they may still provide an important service to their owners. Whenever possible, these “alert” animals should be allowed to accompany the people with disabilities and seniors who use them. This would include allowing “alert” animals to accompany their owners if they are isolated or quarantined in a location other than their homes. 29 G. SHELTERS Shelters should meet the minimum accessibility requirements of the Americans with Disabilities Act (ADA) and the NM Building Code (NMBC) 1997 as determined by a certified access specialist. See requirements under Public Health Service Sites and Appendix C, Accessible Checklists for PHSS and Shelters. It is also recommended that individuals with chemical sensitivities be consulted regarding the accessibility of potential shelter sites. The level of medical oversight to be provided in shelters must be determined well in advance of an emergency. Whether or not there will be different classes of shelters (e.g., medically managed or designated for special needs) must also be established in the planning phase. In general, shelters should strive to be as inclusive as possible for people with disabilities, individuals with chronic mental illness, and seniors. It is not acceptable, for example, to send all people with disabilities to one shelter that may be far removed from their home or workplace, when suitable closer ones are available. While “special needs” shelters that offer more extensive accommodations and/or medical services are valuable, individuals with disabilities and seniors should not be forced to use them if they can otherwise safely sustain themselves at a general population shelter. Recommendations on making emergency shelters more accessible: Adequate numbers of cots should be available that are high enough for seniors and mobility-impaired people to use comfortably and safely. Be prepared to provide extra food and water to people with disabilities who are accompanied by assistance animals. In neighborhoods where familiar landmarks are altered or missing due to a disaster, some visually-impaired people may need assistance to travel about. Some people are non-vocal but still capable of thinking and making their needs known. Shelter staff needs to be aware, patient, and creative when interacting with them. Avoid using outdoor areas that are muddy, sandy, or covered by thick grass (although areas may be preferred by chemically sensitive people if the air is cleanest there). Shelter personnel should know how to use the deaf relay service -- Relay NM, 1-800659-1779 (voice), 1-800-659-8331 (TTY/TDD) -- to make and receive phone calls with hearing and speech-impaired individuals. Permit people with mobility impairments or other disabilities (which may or may not be visible) the option of going to the head of long lines. Train staff to realize that some people have the physical ability to ride buses, but do not have the cognitive ability to learn new routes established because of a disaster. 30 Train staff to know how to contact disability agencies, such as sign interpreter agencies and agencies that help families with at-risk infants with disabilities. Train staff on the difference between the medical model and the independence model of disability. Train staff not to automatically assume that a person with a disability needs medical services. Shelters should have information about transportation resources and disability service agencies. Out-of-area emergency volunteers should not be given hotel accommodations that are needed by local people with disabilities and seniors. Portable telephones should be provided that have volume controls. Public phone stations need power sockets nearby to supply power to portable TTY/TDDs used by deaf, hearing-impaired, and speech-impaired people. Train staff to know that even normal amounts of background noise may prevent a person with a hearing impairment from understanding spoken directions and instructions. Train staff to know that some disabilities may give a person the appearance of being intoxicated. Train staff to know that some disabilities in certain circumstances lead to disruptive behaviors and how to respond appropriately when such behaviors occur. Stock writing tablets and pencils for hearing-impaired people to use, but do not assume they read English. Use pictures when necessary. Shelter managers should provide or know how to obtain a folding white cane, regular cane, crutches, walker, manual wheelchair, portable ramp, shower chair, transfer board, portable accessible commode, disposable briefs (e.g., “Depends”), large-handled eating utensils, flexible straws, two-handled drinking mugs, leash and collar for service animals, pet bowl, and portable TTY/TDD. At the accessible entrance to a shelter, have signage providing information about features of the shelter that is less than fully accessible. Insure that the shelter’s address is clearly visible from the street. Insure the approach to outdoor toilets is free of stones, rubble, steps, tree roots, mud, and loose sand, and provide at least one non-chemical toilet. 31 Stock simple tools and patch kits for repairing flat tires on wheelchairs. Establish contact with local agencies that supply personal care attendants for people with disabilities, such as independent living centers. Train staff to realize the large number of hard of hearing people and their needs. Train staff to be aware of the numerous chemical barriers presented by typical shelters for people with chemical sensitivities, such as perfume, cleaning products, new carpets or paint, newly built or remodeled buildings, pesticides, disinfectants, etc. Use unscented cleaning products in the shelter. Prohibit the use of perfume and cologne by staff and shelter residents and/or provide a fragrance-free room. Discourage the use of other scented personal care products by shelter occupants. Prohibit smoking inside the shelter and within 50 yards of it outside. Prohibit idling of vehicle engines within 50 yards of the shelter (except when necessary to start engines). Train staff to be aware of barriers for electromagnetically sensitive individuals, such as electronic fluorescent lights, cell phones, computers, and other electrical equipment. Allow individuals to stay in cars or other vehicles in parking lots or other areas near the shelter if the shelter is inaccessible to them, and provide services in these areas if necessary. All shelters need information boards with notices about announcements that people with disabilities may not hear or were not present for when the announcements were made. H. ISOLATION AND QUARANTINE If a person with a disability, individual with chronic mental illness, or a senior is required to be isolated or quarantined, the facility needs to be accessible and tolerated by that individual as well as provide adequate and appropriate medical care. In keeping with New Mexico law, this should be by the least restrictive means possible and should preferentially isolate or quarantine an individual with a disability, mental illness or a senior in his or her home whenever possible. 32 I. TRAINING FOR FIRST RESPONDERS AND OTHER RESCUE WORKERS (DP2, adapted) Train personnel to regard a person with a disability as the best expert in his or her disability and to ask the person for advice before lifting or moving him or her. Train personnel to recognize that the parents or caregiver of a child with a disability are the best experts in knowing how to assist the child. Train personnel to take extra time when communicating with people who are deaf, hearing or speech-impaired, mentally ill, or emotionally upset. Train personnel in basic sign language to effectively communicate with individuals who are deaf. Train personnel to never separate a person with a disability from his or her assistive aids, such as wheelchairs, canes, hearing aids, medications, special diet food, urinary supplies, masks, respirators, or assistance animal. Train personnel to know that assistance animals are allowed to stay in emergency shelters with their owners. Train personnel to realize that the equipment of a person with a disability may not be working after a disaster occurs, or it may be insufficient for emergency circumstances. Train personnel to realize that a disaster may temporarily confuse assistance animals during which time they may not be able to help their owners as effectively as before the disaster. Train rescue workers to know that some individuals with emotional and developmental disabilities may be too unsettled to respond appropriately to instructions and directions, such as a public address announcement to evacuate a building. Some individuals may act confused or angry or may even try to hide from rescue workers. These individuals may need to be in a quiet place for a while to regain their composure Train personnel to realize that some individuals with significant mental or learning disabilities may not understand the significance of “Keep Out” signs and barricade tape. Train personnel on how to carry or assist individuals who use mobility aids, since the traditional “fire fighter’s carry” may be harmful to some individuals. Train personnel to know that removing some individuals from wheelchairs may disconnect them from life-sustaining equipment, such as a ventilator. Train personnel to know that children with disabilities may need different sizes of equipment than adults, such as needles, oxygen masks, wheelchairs, and ventilators. 33 Train personnel to know that children are highly influenced by the emotional state of their caregivers. Train personnel that decontamination showers that are safe for adults may result in hypothermia in children unless heating lamps or other warming equipment is provided. Train personnel that children may struggle against the efforts of health care workers or emergency responders because they do not understand what is going on or may be frightened by the appearance of workers in protective gear. Also train personnel that (FEMA): Individuals with disabilities, seniors, and those who have a chronic mental illness should be treated as fully competent to make their own decisions (unless the person is a child or has a legal guardian or conservator). People with disabilities generally know the best way to be assisted. A minute or so spent talking with the individual will provide crucial information. People providing assistance should be trained on how to help without causing injury to themselves or others. This is especially relevant if someone needs to be lifted or carried. (Easterseals) People with disabilities often need more time than others to make necessary preparations and take action in an emergency. The needs of many seniors are often similar to those of people with disabilities. People who are deaf or hard of hearing may not receive early disaster warnings and emergency instructions because they are often given by audible means such as sirens and radio announcements. Be their source of emergency information as it comes over the radio or television. Prepare written information in clear language that can be handed out. Some people who are blind or visually-impaired, especially older people, may be extremely reluctant to leave familiar surroundings when the request for evacuation comes from a stranger. People with impaired mobility are often concerned about being dropped when being lifted or carried. Find out the proper way to transfer or move someone in a wheelchair and what exit routes from buildings are best. Some people with mental retardation may be unable to understand the emergency and may become disoriented, frightened, or confused about the proper way to react. Many respiratory illnesses can be aggravated by stress and air pollution. In an emergency, oxygen and respiratory equipment may not be readily available. 34 People with epilepsy, Parkinson’s disease, diabetes, thyroid disease, and psychiatric or other acute or chronic medical conditions often have medication regimens that cannot be interrupted without serious consequences. Some people may be unable to communicate this information in an emergency. People with chronic illnesses may need to be reminded to take their medication after a disaster. People with disabilities may need transportation to a shelter. This may require a specialized vehicle designed to carry a wheelchair or other mobility equipment and/or be free of cigarette smoke and fragrance residues, pesticide, diesel fumes, and new upholstery. Also, see Tips on Assisting People with Disabilities, Individuals Who Have a Mental Illness, and Seniors, Appendix C. J. RECOVERY PHASE AND POINTS OF SERVICE The recovery phase of a disaster can be especially traumatic for people with disabilities, individuals with chronic mental illness and seniors. In addition to coping with personal losses or injuries they may have suffered as a result of the disaster, they may be deprived of vital connections to attendants, home health aides, assistance animals, home-delivered meals, neighbors, local businesses, and even family members. Often they are no longer able to follow their accustomed routines. Addressing the needs of people with disabilities should be given a high priority during a disaster’s recovery phase to minimize the interruption of critical services, such as attendant care; access to medications, oxygen, dialysis, diabetic supplies, physical therapy, or other ongoing medical or psychological care; and re-establishing electricity for those dependent on electrical equipment, among other things. Recommendations on how to make services accessible after a disaster: All service locations must be accessible for people with disabilities and seniors, including having accessible parking nearby with a clear loading area, and being near accessible transit. People with mobility impairments and many visually impaired people will likely need assistance to transport food and 5-gallon water containers from distribution points to their residences. Some people with disabilities may need assistance to travel to and from points of emergency and recovery services. Some people with disabilities may need assistance to wait in line at points of service or need to be allowed to go the front of the line. 35 Avoid using outdoor areas that are muddy, sandy, or covered by thick grass (except for serving chemically sensitive people who may prefer those areas if the air is the cleanest there). Permit people with mobility and other impairments, which may or may not be visible, the option of going to the head of long lines. Train staff to realize that some people have the physical ability to ride buses, but do not have the cognitive ability to learn new routes established because of a disaster. Train staff to realize that some people with emotional or developmental disabilities may be too unsettled by the disaster to return to their safe residence unless accompanied by a counselor familiar with the particular disability. Train staff to know how to locate resources for these counselors. Some people with mental retardation may need assistance understanding and filling out emergency paperwork. Train staff to know that even normal amounts of background noise may prevent a person with a hearing impairment from understanding spoken instruction and directions. Forms and explanations for FEMA and other assistance should be available in Braille, large print, and on audiotape. Stock bicycle tire patch kits for use on wheelchairs and scooters with flat tires. Train staff to know essential sign language signs. Realize that a food stamp application question such as “Do you buy and prepare your own food?” yields a misleading answer when asked of people with disabilities who use attendants. FEMA disaster centers need to have TTY/TDDs. Have the ability to make emergency allocations of Temporary Assistance for Needy Families (TANF) and food stamps, as well as emergency Medicaid authorizations. VII. CONCLUSION: The New Mexico emergency preparedness plan for people with disabilities, individuals with chronic mental illness, and seniors should be considered a work in progress. There needs to be ongoing involvement of people in these communities as plans evolve and new information, technology, and resources become available. For example, a FEMA disaster preparedness guide for people with disabilities is soon to be released and likely will contain useful information to incorporate into the emergency preparedness plan. 36 APPENDICES APPENDIX A -- PROCESS AND LIST OF CONTRIBUTORS: The Governor’s Committee on Concerns of the Handicapped (GCCH) began meeting with the disability community regarding bioterrorism and emergency preparedness in June, 2002. This workgroup expanded and has continued to meet, discuss relevant issues, and recommend best practices and tips sheets, which has helped shape this report. Members of the workgroup include: Judy Myers Dee Martinez Hope Reed Kim Banales Karen Courtney Greg Trapp James Salas Debbie Armstrong Shirley Washburn Romelia Rodriguez Ann McCampbell, MD Director, Gov’s Committee on Concerns of Handicapped Researcher, Governor’s Committee on Concerns of the Handicapped Governor’s Committee on Concerns of the Handicapped NM Commission for the Deaf and Hard of Hearing NM Commission for the Deaf and Hard of Hearing Executive Director, NM Commission for the Blind NM Commission for the Blind State Agency on Aging National Alliance for the Mentally Ill (NAMI) American Lung Association (ALA) Multiple Chemical Sensitivities Task Force of NM In addition to meeting with workgroup members, we met (by phone) with emergency management/special needs consultant Elizabeth Davis (718-330-0034, edavis@eadassociates.org) who had been the Special Needs Adviser to the New York City Office of Emergency Management during the 9/11 World Trade Center disaster. She now heads up the National Organization on Disability’s Emergency Preparedness Initiative. GCCH staff and/or the consultant also spoke with Red Cross representatives Bert Blumenfeld (505-424-1611) and Morris Huling (505-265-8514), Scott Boman at the Santa Fe County 911 center (955-5080) and county emergency manager James Leach (992-3086), and Carl Cameron of the National Center on Emergency Planning for People with Disabilities (202-546-4464, ext. 201), and met with Department of Health staff and its emergency preparedness advisory committee for people with disabilities, seniors, and the chronically mentally ill. 37 APPENDIX B -- BIBLIOGRAPHY / BACKGROUND MATERIALS: GCCH staff and the consultant reviewed the following web sites, videos, and documents in preparing these best practice recommendations. It was found that there was an abundance of available information on how people with disabilities can help themselves, but much less on best practices for emergency preparedness and advice for emergency personnel on how to help them. INFORMATION ON EMERGENCIES AND PEOPLE WITH DISABILITIES, INDIVIDUALS WITH CHRONIC MENTAL ILLNESS, AND SENIORS (Includes problems encountered in past events, advice on assisting people with disabilities and seniors, and making plans for assisting them, and/or advice on individual preparedness.) EMERGENCY PREPAREDNESS INITIATIVE, Guide on the Special Needs of People with Disabilities for Emergency Managers, Planners & Responders, National Organization on Disability (NOD), www.nod.org/content.cfm?id=1267 DISASTER PREPAREDNESS FOR PEOPLE WITH DISABILITIES – RESOURCE, National Organization on Disability (NOD) www.nod.org/cont/dsp_cont_item_view.cfm?viewType=itemView&contentId=787 DISASTER MOBILIZATION INITIATIVE: RESPONSE TO SEPTEMBER 11TH National Organization on Disability (NOD), www.nod.org/cont/dsp_cont_item_view.cfm?viewType=itemView&contentId=622&lc EMERGENCY EVACUATION PREPAREDNESS, Taking Responsibility for Your Safety, A Guide for People with Disabilities and Other Activity Limitations, by June Isaacson Kailes, 2002, www.cdihp.org/ppdf/finalv4brochure.pdf EARTHQUAKE, Coping with the aftermath can be a disaster, too, for people with disabilities; Jim Hammitt, When Disaster Strikes, Mainstream Magazine, May 1994, www.mainstream-mag.com/quake.htm DISASTER, If you have a disability, the forces of nature can be meaner to you than anyone else, but you can fight back, be prepared, Douglas Lathrop, Special Report: When Disaster Strikes, Mainstream Magazine, November 1994, www.mainstream-mag.com/disaster%20prep.htm DISASTER PLANNING INFORMATION & SUGGESTIONS FOR PERSONS WITH DISABILITIES AND THOSE ASSISTING THEM, Draft of an Appendix to the City of Berkeley’s Earthquake Preparation Handbook, published as the “CERT Handbook” in 1998. Prepared by Matthew Wangeman and Jane Nandi, December, 1996. www.members.aol.com/jeannandi/HOMEPAGE/dis_plan.html 38 DISASTER MITIGATION FOR PERSONS WITH DISABILITIES, The Center for an Accessible Society, From a report by The Annenberg Washington Program written in collaboration with the President’s Committee on the Employment of People with Disabilities by Dr. Peter David Blanck, Annenberg Senior Fellow, www.accessiblesociety.org/topics/independentliving/disasterprep.htm DISABLED PEOPLE AND DISASTER PLANNING (DP2), Recommendations for reducing problems with accessibility that many disabled people experienced after the 1994 Northridge earthquake, www.citycent.com/dp2 Prepare for What Will Happen, http://citycent.com/dp2/prepare.htm Shelter Managers Should Know, http://citycent.com/dp2/shelmngr.htm Training Rescue Workers, http://citycent.co/dp2/rescue.htm Evacuating Wheelchair Users, http://citycent.com/dp2/wheelchair.htm Communications after a Disaster, http://citycent.com/dp2/communications.htm Managing Shelters, http://citycent.com/dp2/shelters.htm Points of Service (Food, Water, Financial Aid), http://citycent.com/dp2/service.htm Related Websites, http://citycent.com/dp2/links.htm DISABILITY ETIQUETTE HANDBOOK, City of San Antonio Disability Access Office (Texas), includes information on service animals, www.sanantonio.gov/planning/disability_handbook/disability_handbook.asp TIPS FOR PEOPLE WITH DISABILITIES, American Red Cross, Information prepared, developed, and distributed by Independent Living Resource Center, San Francisco, California, in cooperation with June Kailes, www.redcross.org/disaster/safety/eqtips.html Has links to additional tip sheets on Health Cards, Emergency Documents, People with Visual Disabilities, Deaf or Hard of Hearing, Communication and Speech Related Disabilities, Psychiatric Disabilities, Developmental or Cognitive Disabilities, Mobility Disabilities, Multiple Chemical Sensitivities, People Who Use Life Support Systems, and Service Animals. DISASTER PREPAREDNESS FOR PEOPLE WITH DISABILITIES, American Red Cross, www.redcross.org/services/disaster/beprepared/disability.html DISASTER PREPAREDNESS FOR PEOPLE WITH DISABILITIES, Federal Emergency Management Agency (FEMA), www.fema.gov/library/disprepf.shtm ASSISTING PEOPLE WITH DISABILITIES IN A DISASTER, FEMA, www.fema.gov/rrr/assistf.shtm S.A.F.E.T.Y.FIRST, Working Together for Safer Communities, Easter Seals, www.easter-seals.org/site/PageServer?pagename=ntl_safety_first What It is, Program Provides Evacuation Planning Support, s.a.f.e.t.y.first Tips, Key Considerations for Someone with Special Needs, Accessibility Resources, Are Your Tenants Safe? 39 NATIONAL CENTER ON EMERGENCY PLANNING FOR PEOPLE WITH DISABILITIES (NCEPPD), www.disabilitypreparedness.org, This organization offers training kits to assist in developing comprehensive emergency plans that take into account the needs of people with disabilities. EMERGENCY PLANNING FOR PEOPLE WITH DISABILITIES AND OTHER SPECIAL NEEDS, Carl T. Cameron, Ph.D., Inclusion Incorporated, Founder of the National Center on Emergency Preparedness for People with Disabilities. THE CENTER FOR INDEPENDENCE OF THE DISABLED IN New York, INC. (CIDNY) Has your independence been disrupted by the events of September 11? www.cidny.org RECOMMENDATIONS FOR THE CARE OF MENTALLY OR PHYSICALLY CHALLENGED PERSONS AND THE ELDERLY IN EMERGENCIES Pan American Health Organization, www.paho.org/english/ped/te_snreto.htm NEW YORK CITY’S GUIDE TO EMERGENCY PREPAREDNESS for Seniors and People with Disabilities by New York City Mayor Michael R. Bloomberg, Mayor’s Office for People with Disabilities (MOPD), Office of Emergency Management (OEM), and Department for the Aging (DFTA), http://home.nyc.gov/html/oem/pdf/emergency_prep_guide_2002.pdf EMERGENCY PREPAREDNESS FOR OLDER PEOPLE, Nora O’Brien, Issue Brief, January-February 2003, International Longevity Center-USA, www.ilcusa.org/_lib/pdf/epopib.pdf THE FRAIL AND THE HARDY SENIORS OF 9/11: THE NEEDS AND CONTRIBUTIONS OF OLDER AMERICANS, Myrna Lewis, The Public as an Asset, Not a Problem, A summit on leadership during bioterrorism, Johns Hopkins University Center for Civilian Biodefense Strategies, www.hopkins-biodefense.org/pages/events/peoplesrole/lewis/lewis_trans.html THE ELDERLY MAY HAVE ADVANTAGE IN NATURAL DISASTERS, Elizabeth Fried Ellen, LICSW, Psychiatric Times, January 2001, www.psychiatrictimes.com/p010133.html THE EFFECTS OF DISASTER ON PEOPLE WITH SEVERE MENTAL ILLNESS, Kay Jankowski, Ph.D. and Jessica Hamblen, Ph.D., A National Center for PTSD Fact Sheet, National Center for Post-Traumatic Stress Disorder (PTSD), www.ncptsd.org/facts/disasters/fs_smi_disaster.html COPING WITH DISASTER, Anand Pandya, MD, NAMI-NYC Metro, Affiliate of the National Alliance for the Mentally Ill, http://nyc.nami.org/askthedoctor/ask10.htm 40 COPING WITH DISASTER – AFTERMATH OF SEPTEMBER 11, Evelyn Roberts, Ph.D. and Susan Saler, MSW, NAMI-NYC Metro, Affiliate of the National Alliance for the Mentally Ill, http://nyc.nami.org/meeting_sept11.htm NATURAL DISASTERS AND SERVICE DELIVERY TO INDIVIDUALS WITH SEVERE MENTAL ILLNESS – ICE STORM 1998, Lisa McMurray, MD and Warren Steiner, MD, Canadian Journal of Psychiatry, May 2000, Canadian Psychiatric Association, www.cpa-apc.org/Publications/Archives/CJP/2000/May/Brief.asp POWER OUTAGES AND MAJOR DISASTERS: HOW THEY AFFECT CHILDREN WITH SPECIAL HEALTH CARE NEEDS, Family Voices, www.familyvoices.org/fs/power-outages.html COPING WITH DISASTER: SUGGESTIONS FOR HELPING CHILDREN WITH COGNITIVE DISABILITIES, Anne Farrell, Ph.D. and Daniel Crimmins, Ph.D., Administration for Children & Families, U.S. Department of Health & Human Services, www.acf.dhhs.gov/programs/add/Sept11/addcoping.html FOR THE SAFETY OF YOUR PET, New York City Emergency Management, www.nyc.gov/html/oem/html/preparedness/tips_for_pets.html COMMONLY ASKED QUESTIONS ABOUT SERVICE ANIMALS IN PLACES OF BUSINESS, U.S. Department of Justice, Civil Rights Division, Disability Rights Section, on The Guide Horse Foundation website, www.guidehorse.org/DOJ.htm ACCESS RIGHTS OF PEOPLE WITH DISABILITIES AND THEIR SERVICE ANIMALS, The Association of the Bar of the City of New York, www.abcny.org/servanim.htm PRINTABLE EMERGENCY GUIDE FOR CITIZENS WITH DISABILITIES, City of New Orleans Office of Emergency Preparedness, www.new-orleans.la.us/home/departmentsAndAgencies/nooep/printable_disabilities.php ADA DESIGN REQUIREMENTS FOR ACCESSIBLE EGRESS, Resources on Emergency Evacuation and Disaster Preparedness, Architectural and Transportation Barriers Compliance Board, www.access-board.gov/evac.htm EMERGENCY EVACUATION PROCEDURES FOR EMPLOYEES WITH DISABILITIES, Job Accommodation Network (JAN), a service of the Office of Disability Employment Policy of the U.S. Department of Labor, Linda Carter Batiste and Beth Loy, www.jan.wvu.edu/media/emergency.html EVAC+CHAIR CORPORATION, www.evac-chair.com 41 DISABILITY RESOURCES ON THE INTERNET, The Disability Resources Monthly (DRM) Guide, DisabilityResources.org, http://www.disabilityresources.org FEMA EMERGENCY PROCEDURES: SPECIAL EQUIPMENT AND DEVICES, 2001, www.ican.com/news/fullpage.cfm?articleid=E778C428-9D78-46879B0777B461E3A4EF FEMA EMERGENCY PROCEDURES: PROVIDING ASSISTANCE, 2001, www.ican.com/news/fullpage.cfm?articleid=0F9E8D43-25E2-46B898787F369AABD5C6 10 WAYS TO MAKE YOURSELF SAFE AT WORK, Nicole Bondi, iCan!, www.ican.com/news/fullpage.cfm/articleid/B0547F84-4752-42B781592B326706E119/cx/employment.succeed_at_work/article.cfm EMERGENCY MEDICAL I.D. CARD (EMID) http://www.spec.net/emid.htm INTERACTING WITH PEOPLE WITH DISABILITIES, Independent Living, Community Resources for Independence, www.crinet.org/interact.php WHAT IS UNIVERSAL DESIGN?, The Center for Universal Design, www.design.ncsu.edu/cud/univ_design/ud.htm WHERE TO FIND INFORMATION ON ILLNESS OR DISABILITY, Community Health Non-Profits of New Mexico, Family Caregiver Project, University of New Mexico Health Sciences Center, http://hsc.unm.edu/consg/family_caregivers/illness_info.shtml 7-1-1 PHONE SERVICE TO HELP HEARING/SPEECH IMPAIRED CONNECT, Jay Wrolstad, ITS America (Intelligent Transportation Society of America), Oct. 1, 2001, www.itsa.org/ITSNEWS.NSF/4e0650bef6193b3e852562350056a3a7/c9df6c080b91023d 85256ad8003f0329?OpenDocument 2-1-1 INFOLINE, United Way of Connecticut, A single source for information about community services, referrals to human services, and crisis intervention, www.infoline.org/AboutUs/2002Default.asp INFORMATION ON EMERGENCY PREPAREDNESS FOR THE GENERAL PUBLIC ARE YOU READY? A Guide to Citizen Preparedness, FEMA, www.fema.gov/areyouready/ 42 UNITED FOR A STRONGER AMERICA: CITIZENS’ PREPAREDNESS GUIDE, Prepared by the USA Freedom Corps, National Crime Prevention Council (NCPC), and U.S. Department of Justice (DOJ) www.ojp.usdoj.gov/ojpcorp/cpg.pdf GET READY NOW, Preparing Makes Sense, U.S. Office of Homeland Security, www.ready.gov DISASTER LINKS ON THE WEB, Emergency Network Los Angles, Inc. (ENLA) http://www.enla.org/ENLABookMark.htm CALIFORNIA GOVERNOR’S OFFICE OF EMERGENCY SERVICES www.oes.ca.gov/Operational/OESHome.nsf/1?OpenForm NEW MEXICO EMERGENCY INFORMATION PORTAL, sponsored by the New Mexico Internet Professionals Association http://www.fire.nmipa.org COUNTY LINES, CELL PHONES CAN DELAY 911 RESPONSES, Bo Petersen, The Post and Courier, 8/20/01, http://www.kernodlelaw.com/082001.htm THE YOUNGEST VICTIMS: DISASTER PREPAREDNESS TO MEET CHILDREN’S NEEDS, Children, Terrorism & Disasters Toolkit, American Academy of Pediatrics, www.aap.org/terrorism/topics/PhysiciansSheet.pdf MODEL TERRORISM AND DISASTER PROGRAM ANNOUNCED TO TREAT YOUNG VICTIMS, Montefiore Medical Center, www.childrenshealthfund.org/pedpreprelease.html INFORMATION ON RESPONDER PREPAREDNESS FOR TERRORISM INTRODUCTION TO NBC (Nuclear, Biological, Chemical) TERRORISM, An Awareness Primer and Preparedness Guide for Emergency Responders, Robert J. Heyer, D.Sc.; Disaster Preparedness and Emergency Response Association (DERA), www.disasters.org/dera/library/Heyer%20WMD.pdf FEMA’s EMERGENCY RESPONSE TO TERRORISM SELF-STUDY COURSE www.usfa.fema.gov/dhtml/fire-service/nfa-off3ss2.cfm A 1999 self-study course designed to provide basic awareness training to prepare first responders to respond safely and effectively to incidents of terrorism. Five modules Terrorism in Perspective, Incidents and Indicators, Self-Protection, Scene Control, Notification and Coordination. 43 EMERGENCY RESPONDER GUIDELINES By the Office for Domestic Preparedness (ODP), U.S. Department of Justice, 2002, Provides information on training for first responders on awareness, performance level guidelines, and planning and management level guidelines. www.ojp.usdoj.gov/odp/docs/coursecatalog.pdf ANTHRAX INFORMATION RESOURCES FOR FIRST RESPONDERS, CounterTerrorism, U.S. Fire Administration, Federal Emergency Management Agency (FEMA), www.usfa.fea.gov/dhtml/fire-service/bioagents.cfm WEAPONS OF MASS DESTRUCTION TRAINING PROGRAM, Enhancing State and Local Capabilities to Respond to Incidents of Terrorism, U.S. Department of Justice, Office of Justice Programs, Office for Domestic Preparedness; catalog of training courses and materials on WMD for a broad spectrum of emergency responders, including fire, hazardous materials (HazMat), law enforcement, emergency medical services (EMS), public health, emergency management, and public works agencies, www.ojp.usdoj.gov/odp/docs/coursecatalog.pdf METROPOLITAN MEDICAL RESPONSE SYSTEM FIELD OPERATIONS GUIDE, Counterterrorism Program, Office of Emergency Preparedness, U.S. Department of Health & Human Services, November 1998; A field guide designed for first responders to assist in preparing for a medical response to a weapons of mass destruction (WMD) incident, www.ndms.dhhs.gov/CT_Program/Response_Planning/response_planning.html RESPONDING FIRST TO BIOTERRORISM, Web resources for “First Responders” on bioterrorism and public safety, The National Academies, www.nap.edu/firstresponders Includes sections on training programs and procedures for first responders on how to do their jobs effectively in a bioterrorism incident. LOCAL LAW ENFORCEMENT RESPONDS TO TERRORISM, Lessons in Prevention and Preparedness, COPS Innovations – A Closer Look, U.S. Department of Justice, Office of Community Oriented Policing Services (COPS), www.cops.usdoj.gov/default.asp?Open=True&Item=296 STATE AND LOCAL DOMESTIC PREPAREDNESS SUPPORT HELPINE, 1-800-368-6498, Office for Domestic Preparedness (ODP), Office of Justice Programs (OJP), U.S. Department of Justice (DOJ), www.ojp.usdoj.gov/odp/docs/helpline.htm, The Helpline is a non-emergency resource available for use by emergency responders. ELEMENTS OF EFFECTIVE BIOTERRORISM PREPAREDNESS: A Planning Primer for Local Public Health Agencies, National Association of County and City Health Officials (NACCHO), January, 2001, www.naccho.org/files/documents/Final_Effective_Bioterrism.pdf 44 LOCAL EMERGENCY PREPAREDNESS AND RESPONSE INVENTORY, A Tool for Rapid Assessment of Local Capacity to Respond to Bioterrorism, Outbreaks of Infectious Disease, and Other Public Health Threats and Emergencies, Public Health Practice Program Office, Centers for Disease Control and Prevention (Draft 2002, in process of being updated), www.phppo.cdc.gov/documents/localinventory.pdf COMMUNITY RESPONSE TO THE THREAT OF TERRORISM, Issues and Ideas Papers Presented During a Public Entity Risk Institute (PERI) Internet Symposium, November 2001, www.riskinstitute.org/ptrdocs/CommunityResponse-Terrorism.pdf RESOURCE LIST – DISASTERS, Emergency Medical Services for Children, www.ems-c.org/cfusion/resourcegroup.cfm?cat=/disasters PEDIATRIC DISASTER LIFE SUPPORT – PDLS, Caring for Children during Disaster is a two day training course for medical, EMS, and disaster professionals. It provides information on disaster planning, response, and mitigation and addresses the unique needs of children during disasters, University of Massachusetts Medical School, information on the Emergency Medical Services for Children website, www.ems-c.org/cfusion/ResourceDetailNew.cfm?id=259768130 EMERGENCY RESPONDERS … IN AN ONGOING STATE OF PREPAREDNESS, Jennifer Grow and James Parker, National Safety Council Home & Community, www.nsc.org/issues/emerg/strikes.htm INTEROPERABLE COMMUNICATIONS FOR FIRST RESPONDERS FACES CHALLENGES, National Governor’s Association Center for Best Practices, Notes that one of the biggest challenges for emergency responders is the need for a communication system that permits responders from various agencies to communicate with each other. www.nga.org/center/frontAndCenter/1,1188,C_FRONT_CENTER^D_3635,00.html EMERGENCY COMMUNICATIONS: THE QUEST FOR INTEROPERABILITY IN THE UNITED STATES AND EUROPE, Viktor Mayer-Schonberger, Belfer Center for Science and International Affairs (BCSIA) Discussion Paper 2002-7, Executive Session on Domestic Preparedness (ESDP) Discussion Paper ESDP-2002-03, John F. Kennedy School of Government, Harvard University, March 2002, http://bcsia.ksg.harvard.edu/BCSIA_content/documents/Emergency_Communications__The_Quest_for_Interoperability_in_the_United_States_and_Europe.pdf ONALERT RADIO RECEIVERS, Emergency Notification system to alert, inform, and instruct, Warning Systems, Inc. (WSI), www.warningsystems.com 45 VIDEOS – U.S. Department of Justice, Office of Justice Programs, Office for Domestic Preparedness: Managing Terrorism Incidents: Using Unified Command in WMD Incidents (Parts 1 and 2) Weapons of Mass Destruction and the First Responder Surviving Weapons of Mass Destruction Weapons of Mass Destruction and the First Responder Surviving the Secondary Device, the Rules Have Changed DISASTER PSYCHIATRY OUTREACH (DPO), A non-profit volunteer organization of psychiatrists providing on –site psychotherapeutic and psychopharmacologic disaster services, www.disasterpsych.org PUBLIC HEALTH EMERGENCY PREPAREDNESS & RESPONSE, Selected Agents and Threats, Centers for Disease Control and Prevention (CDC), www.bt.cdc.gov SMALLPOX, Public Health Emergency Preparedness & Response, CDC, www.bt.cdc.gov/agent/smallpox/index.asp SMALLPOX RESPONSE PLAN AND GUIDELINES (Version 3.0), Public Health Emergency Preparedness & Response, CDC, www.bt.cdc.gov/agent/smallpox/response-plan/index.asp SMALLPOX BASICS: INFORMATION FOR THE GENERAL PUBLIC, Public Health Emergency Preparedness & Response, CDC, www.bt.cdc.gov/agent/smallpox/basics/index.asp PUBLIC HEALTH ASSESSMENT OF POTENTIAL BIOLOGICAL TERRORISM AGENTS, Report Summary, Lisa Rotz, et.al, Emerging Infectious Diseases, CDC, www.cdc.gov/ncidod/EID/vol8no2/01-0164.htm ANNEX 3 – SMALLPOX VACCINATION CLINIC GUIDE, Logistical Considerations and Guidance for State and Local Planning for Emergency, Large-Scale, Voluntary Administration of Smallpox Vaccine in Response to a Smallpox Outbreak, www.bt.cdc.gov/agent/smallpox/response-plan/files/annex-3.pdf NEW MEXICO HOMELAND SECURITY STRATEGIC PLAN, “Readiness for today, Enhanced Capability for Tomorrow,” August 2002 PUBLIC HEALTH SERVICE SITE (PHSS) PACKET, Section 2, Information for people who are working in a PHSS, New Mexico Department of Health, Final Draft 1/31/03 46 MEDICAL MANAGEMENT OF BIOLOGICAL CASUALTIES HANDBOOK, Third Edition, U.S. Army Medical Research, Institute of Infectious Disease, July 1998, www.nbc-med.org/SiteContent/medRef/OnlineRef/FieldManuals/medman/Cover.htm [Fourth Edition, February 2001, www.usamriid.army.mil/education/bluebook.html] MEDICAL TREATMENT AND RESPONSE TO SUSPECTED SMALLPOX: Information for Health Care Providers during Biologic Emergencies, New York City Department of Health, Bureau of Communicable Disease www.nyc.gov/html/doh/html/cd/smallmd.html RECOGNITION OF ILLNESS ASSOCIATED WITH THE INTENTIONAL RELEASE OF A BIOLOGIC AGENT, National Center for Infectious Diseases, Epidemiology Program Office, Public Health Practice Program Office, Office of the Director, Centers for Disease Control and Prevention (CDC), Morbidity and Mortality Weekly Report (MMWR), October 19, 2001, www.cdc.gov/mmwr/preview/mmwrhtml/mm50541a2.htm FOCUS ON BIOTERRORISM, Web resources, American Academy of Physician Assistants, www.aapa.org/clinissues/Bioterrorism.htm THE DEMON IN THE FREEZER, How smallpox, a disease officially eradicated twenty years ago, became the biggest bioterrorist threat we now face, Richard Preston, The New Yorker, July 12, 1999, http://cryptome.org/smallpox-wmd.htm THE BIOWEAPONEERS, in the last few years, Russian scientists have invented the world’s deadliest plagues. Have we learned about this too late to stop it?, Richard Preston, The New Yorker, March 9, 1998, http://cryptome.org/bioweap.htm APPENDIX C – ACCESSIBLE CHECKLISTS FOR PUBLIC HEALTH SERVICE SITES AND SHELTERS, Governor’s Committee on Concerns of the Handicapped (See attached) APPENDIX D -- TIPS ON ASSISTING PEOPLE WITH DISABILITIES, INDIVIDUALS WITH CHRONIC MENTAL ILLNESS, AND SENIORS 1. SPECIFIC ASSISTANCE TECHNIQUES (FEMA Assistance/iCan!) a) When assisting people with VISION IMPAIRMENTS: (+Berkeley) Announce your presence; speak out then enter the area. Identify yourself and offer help, but let the person explain what help is needed. Let the person use his or her cane if desired. Speak directly to the individual and NOT through a third party. Describe the action to be taken in advance, that is, give clear directions as to what they 47 are to do or where they are to go; do not shout. Don’t be afraid to use words like “see,” “look,” or “blind”. To guide a blind person: Let the individual grasp your arm or shoulder lightly and follow the motion of your body. Walk about one-half step ahead and identify steps, curbs, doorways, narrow passages, ramps, or other obstacles as you approach them. Pause briefly at steps or curbs. Go up or down stairs one step ahead of the person being guided. In areas too narrow for walking two abreast, tell the person about the situation and Indicate that he or she should get behind you by bending your arm backward so that your hand is partly behind your back. This position, when held, extends your elbow behind you and automatically puts the person being guided more directly behind you. If circumstances make such a position impractical, improvise by having the blind person hold on to your shoulder. When helping a blind person to a chair, guide his or her hand to the chair arm or back. When a blind person is to enter a car, guide his or her hand to the leading object, e.g., door handle or edge of a door, and let the person you are guiding do the rest. Keep doors closed or wide open. A partially closed door is one of the most dangerous obstacles a blind person can encounter. Avoid walking where there are overhanging obstacles. If leading several individuals with visual impairment at the same time, ask them to hold each other’s hands. You should ensure that after exiting the building that individuals with impaired vision are not abandoned, but are led to a place of safety, where a colleague(s) should remain with them until the emergency is over. 48 Suggested bullets for tip sheets for first responders on assisting people with visual disabilities: Ask the blind person what he or she needs, and how he or she may be assisted. Do not grab or attempt to guide a blind or visually-impaired person without first gaining permission to do so. Communicate written information orally, including information on signs, posters, and instructions. Respect the person and his or her use of an assistance animal or white cane. Do not pet the animal and do not grab the cane. b) Suggestions for assisting owners of ANIMAL GUIDES: Do not pet or offer the animal food without permission of the owner. Ask the person how to deal with his or her assistance animal. When the animal is wearing its harness, it is on duty; if you want the animal not to guide its owner, have the person remove the animal’s harness. Plan for the animal to be evacuated with the owner. In the event you are asked to take the animal while assisting the individual, it is recommended that you hold the leash and not the animal’s harness. c). when assisting people with HEARING IMPAIRMENTS: (+Berkeley) Flick the lights when entering the room or area to get the person’s attention. The hearing impaired need to communicate face-to-face. Face the person directly and get as close as you comfortably can. Establish and maintain eye contact with the individual, even if an interpreter is present. If you look away, the individual will think the conversation is over. Face the light, do not cover or turn your face away. Use facial expressions and hand gestures as visual cues. Keep yours hands away from your face when talking. Eating, smoking, chewing gum, or adjusting your eyeglasses obscures your mouth and makes your speech difficult to understand. Offer pencil and paper, bearing in mind that not all deaf or hearing-impaired people can read. If the person can read, write slowly and let the individual read as you write. Written communication may be especially important if you are unable to understand the individual's speech. Keep your language simple and draw pictures as necessary. When the deaf person responds in writing, be aware that he or she may use unusual sentence structure and syntax. Also be aware that some deaf people may be wary of non-deaf people. Check to see if you have been understood and repeat if necessary. Do not allow others to interrupt or joke with you while conveying the emergency information. Be patient, the individual may have difficulty comprehending the urgency of your message. 49 Provide the individual with a flashlight for signaling their location in the event that they are separated from the rescuing team and to facilitate lip-reading in the dark. d) When assisting people with LEARNING DISABILITIES keep in mind that: You need to be patient when assisting people with learning disabilities. Their visual perception of written instructions or signs may be confused. They may need someone to accompany them because their sense of direction may be limited. Directions or information may need to be broken down into simple steps. Simple signals and/or symbols should be used. A person’s ability to understand speech is often more developed than his or her own vocabulary. Do not talk about a person to others in front of him or her. People should be treated as adults who happen to have a cognitive or learning disability; do not talk down to them or treat them like children. e) When assisting people with MOBILITY IMPAIRMENTS: (+Berkeley) Someone using a crutch or cane might be able to negotiate stairs independently. One hand is used to grasp the handrail while the other hand is used for the crutch or cane. Here, it is best NOT to interfere with this person’s movement. You might be of assistance by offering to carry the extra crutch. Also, if the stairs are crowded, you can act as a buffer and “run interference”. In other words, if you see someone with mobility impairment, offer your services but do not presume that they are needed. If the person needs assistance, he or she will appreciate your offer and tell you exactly what actions would be helpful. Be sure to listen to these instructions carefully. Wheelchair users are trained in special techniques to transfer from one chair to another. Depending on their upper body strength, they may be able to do much of the work themselves. If you assist a wheelchair user, avoid putting pressure on the person’s extremities and chest. Such pressure might cause spasms, pain and even restrict breathing. Carrying someone slung over your shoulders (something like the so-called “fireman’s carry”) is like sitting on their chest and poses danger for some people with certain neurologic and/or orthopedic disabilities. If a conversation with someone using a wheelchair will take more than a few minutes, sit down to speak at eye level. It is very uncomfortable for a seated person to look up for a long period of time. A person in a wheelchair may be paralyzed in one or more parts of his or her body, which can be accompanied by lost pain perception in those areas. Thus he or she may be unaware of serious injury there. Try to minimize the amount of time a person is separated from his or her chair and avoid abandoning the wheelchair whenever possible. 50 f) When assisting people with CHEMICAL SENSITIVITIES: Provide non-smoking personnel who are not wearing perfume, cologne, aftershave or other strongly scented products. Ask if the person needs to be moved to a less-toxic area, possibly outdoors. Do not use latex gloves, disinfectants or other volatile chemicals without asking first. Be aware that chemically sensitive individuals can react adversely to a wide variety of chemicals at very low levels, which you may not be able to detect. These reactions can include headache, nausea, vomiting, diarrhea, fatigue, muscle and joint pain, wheezing, confusion, irregular heartbeat, and seizures. Be aware that when some chemically sensitive individuals are in a reaction, they may be too confused to follow evacuation or other instructions and may need help to comply. Be aware that when some chemically sensitive individuals are in a reaction, they may temporarily lose their ability to think or speak. They should be removed to an area with cleaner air in order to communicate with them. If a person is wearing a mask or respirator, speak directly to the individual and not through a third party; there is no need to shout since the mask does not affect the person’s ability to hear. Go to a quieter location if you are having trouble hearing a person who is speaking with a mask or respirator on. Suggested bullets for tips for first responders in assisting people with chemical and/or electromagnetic sensitivities: Respect what the person says about what exposures will or are making the person sick and help the person minimize or avoid them. Provide non-smoking personnel who are not wearing perfume, cologne aftershave or other strongly scented products and turn off cell phone. Ask the person if he or she needs to move to a less-toxic area, possibly outdoors. g) When assisting people with ELECTROMAGNETIC SENSITIVITIES: Turn off cell phone. Ask if the person needs to be moved or served away from computers, fluorescent lights, high tension electrical lines, and other electronic equipment. If a person is unconscious or otherwise unable to communicate, move the person to an area with reduced electromagnetic fields (which can be measured with a handheld Gauss meter). h) When assisting people with OTHER LIMITATIONS: Pregnancy can result in reduced stamina or impaired mobility, especially in negotiating chairs. In these cases, offer to walk with the woman and be of support both emotionally and physically. Remain with her until you have reached safety and she has a safe, warm place to sit. 51 Asthma, emphysema, and other respiratory disorders can be triggered or worsened by stress, exertion, or exposure to small amounts of dust or smoke. Make sure these individuals have access to needed medication, appropriate masks, and areas with good air quality. People with heart and other medical conditions may have reduced stamina and require frequent rest periods. Offer them assistance in walking and make sure they have access to needed medications. 2. CARRY TECHNIQUES One-person carry technique: The cradle lift is the preferred method when the person to be carried has little or no arm strength. It is safer if the person being carried weighs less than the carrier’s weight. Two-person carry technique – the swing or chair carry. To use this technique: Carriers stand on opposite sides of the individual. Take the arm on your side and wrap it around your shoulder. Grasp your carry partner’s forearm behind the person in the small of the back. Reach under the person’s knees to grasp the wrist of your carry partner’s other hand. Both carry partners should then lean in, close to the person, and lift on the count of three. Continue pressing into the person being carried for additional support in the carry. The advantage of this carry is that partners can support (with practice and coordination) a person whose weight is the same or greater than their own weight. The disadvantage is the increased awkwardness in vertical travel (e.g., stair descent) due to the increased complexity of the two-person carry. Three persons abreast may exceed the effective width of the stairway. To assist in moving a wheelchair downstairs: When descending stairs, stand behind the chair grasping the pushing grips. Tilt the chair backwards until a balance is achieved. Descend frontward. Stand one step above the chair, keeping your center of gravity low and let the back wheels gradually lower to the next step. Be careful to keep the chair tilted back. If possible, have another person assist by holding the frame of the wheelchair and pushing in from the front. But do not lift the chair, as this places more weight on the individual who is behind. 3. EVACUATING WHEELCHAIR USERS a) All Wheelchair Users Discuss with the user of the wheelchair how to lift the user and the wheelchair either together or separately. When circumstances necessitate separating the user and the wheelchair, keep the period of separation to a minimum. 52 Some parts of a wheelchair are safe to lift from, others will come off when lifted. Always ask the user to confirm where it is safe to lift. Also, ask the user what else about his or her wheelchair you should know in order to lift it safely. Wheelchairs with four wheels (not three-wheeled scooters) usually have handbrakes on each side of the chair. When the wheelchair is to remain stationary, set both brakes. When more than one flight of stairs is traversed, helpers may need to switch position since one person may be doing most of the lifting. Switch positions only on a level landing. When the lifting is complete, follow the instruction of the chair’s user and restore the manual or motorized wheelchair to full operation; then direct the user to a safe area. b) Manual (non-motorized) Wheelchairs Manual chairs weight between 20 and 60 pounds. Two people are required to lift a manual wheelchair when occupied by the user. Generally, the best way to lift the chair and user together is to position one helper behind the chair and the other helper in front. The helper behind the wheelchair tips it backwards to a balance angle that is tolerable to the user. The other helper grasps the front of the wheelchair and guides its movement. The two helpers lower or raise the wheelchair one step at a time making sure both rear tires hit step edges evenly. c) Motorized Wheelchairs Motorized wheelchairs can weigh up to 100 pounds (unoccupied), and may be longer and heavier to push than manual wheelchairs. Some motorized chairs have additional electrical equipment such as a respirator or a communications device. Lifting a motorized chair and user up or down stairs requires two to four helpers. Before lifting, discuss with the user if some heavy parts of the chair can be detached temporarily, how to position the helpers, where they should grab hold, and at what if any angle to tip the chair backward. Turn the chair’s power off before lifting the chair. If the chair’s power drive is temporarily detached, the chair becomes “free wheeling”. Helpers must realize they are entirely responsible for the safety of the user since the user of a motorized wheelchair generally lacks the arm function to control the chair’s movement. 53