All District Health Boards
SPECIALIST MEDICAL AND SURGICAL SERVICES –
ORGAN DONATION COORDINATION EDUCATION
AND INFORMATION SERVICE
(ORGAN DONATION NEW ZEALAND)
TIER LEVEL TWO
SERVICE SPECIFICATION
STATUS:
MANDATORY 
It is compulsory to use this nationwide
service specification when purchasing
this service.
Review History
Date
First Published on NSFL
April 2006
Review of the 2006 Organ Donation
Coordination Education and Information
Service
Amendments: updated content, terminology and
April 2014
quality requirements.
Consideration for next Service Specification
Review
within five years
Note: Contact the Service Specification Programme Manager, National Health Board
Business Unit, Ministry of Health to discuss proposed amendments to the service
specifications and guidance in developing new or updating and revising existing service
specifications.
Nationwide Service Framework Library web site http://www.nsfl.health.govt.nz
SPECIALIST MEDICAL AND SURGICAL SERVICES –
ORGAN DONATION COORDINATION, EDUCATION AND
INFORMATION SERVICE
(ORGAN DONATION NEW ZEALAND)
TIER LEVEL TWO
SERVICE SPECIFICATION
T0108
This tier two service specification for the Organ Donation Coordination, Education and Information
Service (the Service) should be read in conjunction with the tier two Solid Organ Transplant
Services service specification and is linked to the Tier One Specialist Medical and Surgical Services
service specification.
1.
Service Definition
The Service is a national service for deceased organ and tissue donation purchased by a single
lead District Health Board (DHB), Auckland DHB, on behalf of all DHBs and delivered by Organ
Donation New Zealand (ODNZ).
The Service:
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coordinates organ and tissue donation in New Zealand (NZ) Intensive Care Units (ICUs)
coordinates tissue only donation in the hospital and community setting and refers as
appropriate to other tissue donation / banking services
coordinates referrals of livers and cardiothoracic organs from Australian coordinators to
transplant services in NZ
provides educational programmes to health professionals involved with organ and tissue
donation
provides information and follow-up for the families and whanau of organ and tissue deceaseddonors
provides information to the public and advice to health professionals about organ and tissue
donation in NZ
audits organ donation practices in NZ and works with health professionals in donor hospitals
to ensure there are nationally consistent processes for deceased donation
assists the Paired Kidney Exchange Programme (by packing and transporting kidneys).
2.
Exclusions
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The following are excluded from this Service:
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living donation of kidneys and liver1 (ODNZ will refer the public to the most appropriate
department for advice)
blood, haemopoeitic progenitor cell donation (HPC)
living bone donation
tissue coordinated and retrieved by the tissue coordinators as part of Coroner’s autopsies in
Auckland
eye tissue coordinated and retrieved by the Eye Bank for eye only donors (except in the ICU
environment).
public awareness campaigns about organ donations.
1
Living organ donation services are provided by kidney transplant services in Auckland, Wellington and
Christchurch and by the NZ Liver Transplant Unit in Auckland.
2
Specialist Medical and Surgical Services - Organ Donation Coordination Education and Information Service
(Organ Donation New Zealand Services), Tier Two service specification. April 2014
Nationwide Service Framework
3.
Service Objectives
3.1
General
The key objectives of the Service are to:
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2.2
provide, within the bounds of best clinical practice, as many highest quality organs and tissues
as possible for transplant recipients in NZ and Australia.
develop, maintain and enhance nationally consistent processes for deceased donor organ and
tissue donation in NZ
work collaboratively and in cooperation with the tissue donation services for the best outcome
for all New Zealanders.
Māori Health
Refer to tier one Specialist Medical and Surgical Service specification.
In addition, the Service must recognise the cultural values and beliefs that influence the
effectiveness for services for Māori people and must consult and include Māori in service design
and delivery.
4
Access
4.1
The Donor Coordinator
The 24 hour service for consultation for clinicians about potential organ and tissue donation is
accessed through a single direct dial number (phone 09 630 0935). This call is responded to by a
donor coordinator.
A medical specialist is available 24 hours (through the donor coordinator) to provide advice and
support for health professionals involved in the donation process.
4.2
Other services
Outside of potential organ and tissue donation, the Service is provided during normal working hours
and is accessed via telephone, email and separate websites for health professionals and the public.
5
Service Components
5.1
Processes
5.1.1
Co-ordination and retrieval services
The Service will coordinate:
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6.1.2
the donation, retrieval and transport of organs and tissues retrieved from patients who donate
following death in intensive care units in NZ
organs referred from Australia for transplant in NZ and referral to Australia of organs from NZ
according to the terms of the reciprocal organ sharing agreement between Australia and NZ
the donation of tissue from tissue only donors as defined in the Service Definition and
Exclusion sections above.
Education, support and follow-up
The Service will:
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provide information and support to family and whanau of deceased donors both prior to and
following organ and / or tissue donation
provide follow-up for family and whanau of deceased organ and tissue donors where ODNZ
was involved in the donation
provide consultation, information, advice, support and follow-up to healthcare professionals
caring for potential deceased-donors and their family and whanau
3
Specialist Medical and Surgical Services - Organ Donation Coordination Education and Information Service
(Organ Donation New Zealand Services), Tier Two service specification. April 2014
Nationwide Service Framework
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6.1.3
provide accurate and up-to-date information to the public, media and other stakeholders about
organ and tissue donation. This may require collaboration and referral to other agencies
provide education and support for Link Teams (including senior nurses in ICUs. and operating
theatres and ICU doctors). Link Teams provide a link between donating hospitals and ODNZ.
Link Team members also enable improved education, further development of donation
practices and ongoing monitoring and evaluation of the donation processes
establish and maintain educational programmes for health professionals involved in organ and
tissue donation. The educational programmes ensure that health professionals have the
necessary expertise in all aspects of the donation process.
Advisory Committee
ODNZ maintains and provide secretariat support to an Advisory Committee (which provides ODNZ
with a mechanism for obtaining input from health professionals involved in organ and tissue
transplantation, and in intensive care medicine and nursing, as well as from Māori and Pacific
peoples and the ‘consumer’).
The functions of the Advisory Committee include, but are not limited to:
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6.2
contributing to a strategic direction which ensures that initiatives to increase organ and tissue
donation in NZ are evidenced-based and coordinated, and
responding to safety concerns in organ and tissue donation.
Audit and Monitoring
The Service will:
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6.4
quantitatively and qualitatively monitor organ donation in NZ
collect information on key measures of donation practice including consultation with ODNZ,
determination of death, formal discussion with families of potential organ donors and the
number of actual organ and tissue donors
support the ‘ICU Link Nurses’ in all NZ hospitals to provided ODNZ the above information.
Budget management
The Service will manage the budget for the National Kidney Allocation System.
6.5
Key Inputs
ODNZ Staff
The Service is comprised of a part time clinical director, part time medical specialist, four donor
coordinators, a communications advisor and team support.
Link Team Members
The Link Team members play a key role as local leaders, experts and liaison persons for organ and
tissue donation in all donor hospitals in New Zealand. They consist of:
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6.6
Intensive Care Unit (ICU) Link Nurse(s)
Operating Theatre Link Nurse(s), and an
ICU Link Doctor.
Settings
The Service is located at the Greenlane Clinical Centre in Auckland, NZ.
4
Specialist Medical and Surgical Services - Organ Donation Coordination Education and Information Service
(Organ Donation New Zealand Services), Tier Two service specification. April 2014
Nationwide Service Framework
7.
Service Linkages
This section specifies services that are linked to the Service but are not purchased as a direct,
integral component of the Service. The Service is multi-faceted, requiring linkages to provide
liaison, information, education and effective working relationships as required with:
Linked Providers
Accountabilities associated with linkages
NZ ICUs
To provide a responsive co-ordination service, expert
clinical advice and education
Other NZ hospitals’ staff
To provide a responsive co-ordination service, expert
clinical advice and education
Transplant Units in New Zealand and
Australia
To provide maximum number of organs in optimum
condition for transplant services
NZ Tissue Banks, including:
•
New Zealand National Eye
Bank
•
Heart Valve Laboratory
•
New Zealand Blood Service
Skin Bank
To maintain effective working relationship, including to
refer all ‘eye-only donors’ (except in the ICU) to the New
Zealand National Eye Bank
The NZ Blood Service and
Laboratories in NZ
To maintain effective working relationship
Commercial transport operators
To maintain effective working relationship
Donor co-ordinators in Australia
Provide responsive co-ordination service and maintain
effective working relationship
Medical Director, National Kidney
Allocation System
To maintain effective working relationship
NZ Donor Families
To maintain appropriate communication
Health agencies, media and the public
To provide information, maintain effective working
relationship
8.
Quality Requirements
The Service must comply with the Provider Quality Standards described in the Operational Policy
Framework or, as applicable, Crown Funding Agreement Variations, contracts or service level
agreements.
The Service must comply with:
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the accepted Australasian clinical best practice guidelines, currently Australia and New
Zealand Intensive Care Society (ANZICS) Recommendations concerning Brain Death and
Organ Donation (Version 3.2, 2013) or, as amended in the future
Transplantation Society of Australia and NZ (TSANZ) and Australasian Transplant
Coordinators Association (ATCA) standard operating procedures
quality standards as directed by the Ministry of Health
legislation and NZ Government policy statements, as communicated.
5
Specialist Medical and Surgical Services - Organ Donation Coordination Education and Information Service
(Organ Donation New Zealand Services), Tier Two service specification. April 2014
Nationwide Service Framework
9
Purchase Unit and reporting requirements
9.1
Purchase Units are defined in the joint DHB and Ministry’s Nationwide Service Framework
Purchase Unit Data Dictionary. The following purchase unit code applies to this Service.
PU
Code
PU Description
PU Definition
Unit of
Measure
Payment
systems
T0108
Organ donation co-ordination
Facilitation of supply of donor
organs and tissue for the NZ
population and organ sharing
with Australia
Programme
Sector Services
Contract
Management
System
9.2
Reporting requirements
An annual narrative report and budget reports (as required) is to be provided to the Funder
Auckland DHB.
Reporting Requirements
Frequency
Reporting Unit
Annual
Narrative report as outlined below, and:
• number of educational programmes delivered and to whom
• the number of families of potential deceased organ donors who had formal
discussion of donation
• the number of actual organ /tissue donors
As required
Budget reports to Auckland DHB.
Narrative report
The narrative report must identify issues and trends in service provision and other matters of
interest to DHBs, the Ministry of Health and tissue banks, including:
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the terms of reference of the Advisory Committee
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the membership, including duration of members of the Advisory Committee
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outline of the material and issues considered by the ODNZ Advisory Committee
Annual trends in service provision of:
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the numbers of educational programmes delivered, and to whom
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the number of families of potential deceased organ donors who had formal discussion of
donation
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the number of actual organ / tissue donors.
6
Specialist Medical and Surgical Services - Organ Donation Coordination Education and Information Service
(Organ Donation New Zealand Services), Tier Two service specification. April 2014
Nationwide Service Framework