Mental Health Care Plan Planning for Your Loved One’s Mental Health Crisis Developed by NAMI-San Antonio Written by Mary E. Jensen, LCSW Executive Director –NAMI San Antonio Mental Health Care Plan Planning for Your Loved One’s Mental Health Crisis Introduction Learning the components of a crisis plan, Understanding provider resources, Advocating for loved ones in crisis, and Utilizing considering tools provided A mental health crisis is just as important to address as any other health care crisis. It is difficult to predict just when a crisis will happen. While there are triggers and signs, a crisis can occur without warning. It can occur even when a person has followed their treatment or crisis prevention plan and used techniques they learned from mental health professionals. We all do the best we can with the information and resources we have. Some days we can handle more than other days; this is normal and to be expected, especially for those living with mental illness. You or your loved one may need help when you have exhausted all your tools or means of coping with the crisis. We hope that this booklet will help guide you in creating a crisis plan for you or your loved one BEFORE a crisis during which it may become more difficult to think and plan. Your NAMI-San Antonio Provides free education classes and support groups to help strengthen families through education www.nami-sat.org Mental Health Care Plan This booklet is intended for families and friends of individuals living with mental illness. For the critical times, it is our hope the reader is able to recognize a crisis including: Table of Contents Recognize ...................................................................................... 4 Mental Health Care Plan Prevent .......................................................................................... 4 Plan................................................................................................ 6 Reflect ........................................................................................... 7 Advocacy ....................................................................................... 8 Sample Plan ................................................................................. 10 Resources .................................................................................... 11 RECOGNIZE-What is a mental health crisis? Definitions Crisis: any situation in which a person’s thoughts, feelings, or behavior put them at risk of hurting themselves or others: and/or when they are unable to resolve a situation with skills and available resources. Mental Health Crisis: a behavioral, emotional, or psychiatric situation, which could result in, reduced levels of functioning in primary activities of daily living (bathing, eating, working, etc.) an emergency situation in the need for placement in a more restrictive setting, including but not limited, to inpatient hospitalization. Many things lead to a crisis: Stress Physical illness Work/school problems Family changes Community/personal violence/trauma Substance use “These issues are difficult for everyone, but they can be especially hard for someone living with mental illness” – A NAMI Family to Family participant Documenting changes in behaviors by keeping a journal or making notes on a calendar may help you recognize when a possible crisis is building PREVENT- Mental Health Care Plan Symptoms can sometimes appear unexpectedly. It is possible for people living with mental illness to experience a crisis even when they are following their treatment plan. The best way to prevent a crisis is to develop a treatment plan with a treatment team and support network everyone is comfortable with following. Before a crisis occurs, ask: LEAP Dr. Xavier Amador, in his book, I Am Not Sick, I Don’t Need Help, outlines a communication skill that can be used to engage your loved one and help them to calm down. LEAP stands for Listen, Empathize, Agree, and form a Partnership. It is a family-friendly version for a form of therapy called Motivational Enhancement Therapy. Mental Health Care Plan Partner Agree Emphasize Listen The first step when taking a leap is to “Listen”. There are some key elements to the art of listening. It is one of the first things we do as human beings. Listening is how we learn and mimic what others do. Listen and Learn:drop your agenda Use questions, not statements State what you heard – all of it (reflecting) Let the person correct you Don’t avoid listening to scary topics or thoughts (Even delusions) Know your “hot-button” fears Don’t rush it Don’t have an emotional reaction to what you hear Don’t try to problem-solve while listening initially Avoid going right to empathy Empathy Express empathy for feelings This doesn’t mean you have to agree with beliefs Normalize: “I think I would feel that way too (If I had those beliefs).” Listening + empathizing = “What do you think?” Common feelings and experiences to empathize with: Only if Asked Delay 3 times before answering Follow the 3 “A’s”: o Apologize o Acknowledge fallibility o Agree (to disagree) How to delay your Opinion: “I promise to answer your question. If it’s alright with you, I would like to first hear more about . Okay?” “I will tell you what I think. I would like to keep listening to you first because I am learning a lot. Can I tell you later what I think?” I will tell you. I want you to know that I think your opinion is more important than mine and would like to learn more before I tell you what I think. Okay?” Mental Health Care Plan Listen Give your Opinion: Agree Stick to perceived problems and symptoms only. Review advantages and disadvantages of treatment or adherence from the person’s perspective. Agree to disagree when needed. It’s Okay to set boundaries. You can try to correct misinformation gently. Reflect back and highlight the advantages. Use this as the basis for a plan. Partner Mental Health Care Plan Move forward with agreed-upon goals Use phrases that support feelings of control and safety: o “Would that be all right?” o “Do I have that right?” o “So, let me see if I got this straight. Are you saying that….” o “Would you mind if I ….” o “I can see why you’d feel that way….” o “I am sure that is upsetting to hear and I know you don’t agree. It’s just how I feel. Can we agree to disagree on this one?” Practicing these strategies before a crisis occurs will make them easier to use when needed. PLAN – Create a Crisis Plan People can still experience a crisis when they have utilized the best resources available. It is important to have a written plan in place in case of a crisis. A good plan will: It is important to involve your loved one in the creation of the crisis plan. The plan should be distributed to family, friends, and professionals with permission from your loved one. It should be updated whenever there is a change in the person’s diagnosis, medication, treatment or health care providers. Other important steps include: Contact your local police department; provide them with a copy of the crisis plan. Create a safe environment by removing any and all weapons and sharp objects. Lock up all medications, both over-the-counter and prescription medications. Talk with others in the household about how to stay safe during a crisis; and Post the phone number of the mental health crisis team and/or crisis line. Crisis Kit A crisis kit should include the crisis plan, medical information, snacks, music, books, a change of clothes and basic hygiene supplies. This kit should be kept in an easily accessible place. Mental Health Care Plan Identify people willing to help List the phone numbers of the mental health providers and the mental health crisis team Include a list of current medications and their dosages List treatments that have been used in the past (e.g., talk therapies such as CBT, DBT, medications, peer support, crisis lines, etc.) Identify key words or calming techniques that have worked in the past Identify ones’ preferred treatment facilities Include a copy of their advanced psychiatric directive (if available) REFLECT- What Has Happened Following a crisis, it is important to reflect on what can be done to potentially prevent or minimize future crises. Some important questions to ask include: What situations or triggers led to the crisis? What worked to reduce tension or avoid a conflict? What steps did we or could we have taken to keep everyone safe and calm? Mental Health Care Plan Write down the results of this reflection and include it in future crisis plans. Review with your treatment team. The more you understand the underlying causes and triggers of a crisis and what strategies helped, the more prepared you will be in case of future crises. If possible, have the person living with a mental illness provide cues to help others recognize when the crisis has passed. Some examples might be eating at least two meals a day, sleeping regular hours or taking care of personal hygiene needs. Invite your loved one to develop a list of things you can do to help them feel more comfortable and recover as quickly as possible. Including your loved one in this process helps the family and other care givers feel good about the support they offer. No one likes to think that someone else will have to take over responsibility for their care. A mental health crisis is a difficult situation – one that no one likes to face alone. Organization Things you need to keep: Current diagnostic assessment and current diagnoses Copy of current crisis plan Notes from phone calls and appointments Hospitalization history List of medications and dosages Copies of their advanced psychiatric directive, and Names and phone numbers of mental health professionals and mental health agencies working with your loved one. ADVOCACYAdvocating for a person living with mental illness in the midst of a crisis can be extremely frustrating and difficult. It is not easy to navigate the health care and/or mental health system or obtain appropriate services for your loved one. You may require help learning how to advocate appropriately and effectively. Learning to be a strong advocate and developing these skills takes time. Health care privacy laws and the interpretation of them by providers may make advocacy especially difficult. Providers are generally not permitted to give information to family members without the written consent of the patient unless there are concerns about safety or abuse. Individuals may choose not to give their family access to their full medical records. You may want to ask your loved one to sign a release giving you access to communicate with their treatment team. NAMI suggests family members write down concerns and give them to your loved ones’ treatment team. Focus on the signs and symptoms you are concerned about so that the treating providers have this information to allow for the best assessment possible. Your loved one may not be able to provide as a reliable history while in a crisis as they would when more stable. Stay Calm When meeting with professionals, remember that you attract “more bees with honey than vinegar”. Try to keep the conversation focused, objective and stay in the present. As hard as it can be, try not to get overly emotional. The more you can stay calm, the more control you can have in the situation and the easier it will be for you to stay involved in decisions about your loved one. Mental Health Care Plan Over the course of your loved one’s illness, they will receive and need to keep track of a great deal of information. It is important to keep all this information together in one central place where it is easily accessible. Get Support To be an effective advocate, you need to take care of yourself. You will need to make sure that you eat, sleep and take a break from the crisis when your loved one is safe. Consider joining a support group. NAMI support groups help you deal with the stresses of advocating for your loved one. At a support group you meet with others who have similar experiences, and you gain knowledge and skills to help in future crises. You also get a chance to support others by sharing your experience. For a list of current support groups in the San Antonio community please visit www.nami-sat.org and click on the support group link to find a location near you. Mental Health Care Plan Communicate Effectively Effective communication helps ensure that your loved one receives the appropriate services. Good communication is a two-way street. Be aware of how your words and actions influence how others perceive you. Your message will be clearer and more powerful by providing information about your loved one that is current and in the here-and-now. Avoid the temptation to tell the whole story. When information is kept to what is needed now and based on facts, not feelings or emotions, you are more empowered. Remember to keep an open mind and listen to what the other person says. Legal Considerations in an Emergency: While NAMI-SAT does not provide legal advice, there are certain legal processes that can be helpful when a crisis arises. If you or your loved one is experiencing a mental health crisis that is causing an immediate risk of danger to self or others, you can call 911 and request a Crisis Intervention Trained (CIT) officer. If one is not available, the police will respond anyway (many officers are trained in crisis intervention). Law enforcement can issue a warrantless emergency detention and transport you or your loved one to a facility for evaluation where further treatment can be discussed. There are other ways for you or your loved one to plan ahead in the event of a mental health crisis. There are several advanced directives that allow your loved one to authorize consent to mental health treatment when he or she is incapacitated; these include Declaration of Mental Health Treatment and Designation of Guardian in Event of Later Incapacity. Your treatment provider can give you information and resources regarding these advanced directives. CONCLUSION If you have comments or suggestions for future printings of this publication please contact the NAMI San Antonio office at: NAMI-SAT 510 Belknap Place San Antonio, TX 78212 (210) 734-3349 www.nami-sat.org NAMI-San Antonio Community NAMI4SAT Mental Health Care Plan Advocating and caring for someone experiencing a mental health crisis can be extremely stressful. Have a plan in place, know the best techniques to deescalate the situation and know where to turn when you need help. Following the steps outlined in this guide can help you support a loved one when they experience a crisis and ensure the safety of everyone involved. SAMPLE CRISIS PLAN Individual /Family Information: ________________________ Date of Plan: ____ Person’s Name: D.O.B. Diagnosis(s) Diagnosis(s) Medication: Dosages Medication: Dosage: Medication: Dosages: Medication: Dosage: Description of immediate needs: ___________________________________________________ Safety Concerns: ________________________________________________________________ Mental Health Care Plan Treatment Choices: Interventions preferred: ____________________________________________________ Interventions that have been used with good results: ____________________________ Interventions that should be avoided if at all possible: ____________________________ Professional involvement: Psychiatrist Name / Phone: Therapist Name /Phone: Work/School Contact/ Phone: Case Mgr. Name / Phone: Crisis Team Phone: Medical Doctor Name / Phone: Hospital Name / Phone: Other: Supports to use in crisis resolution: Name / Phone: Name /Phone: Name/Phone: Name / Phone: Name / Phone: Name /Phone: Name/Phone: Name / Phone: Support Group: MH Agency: Other: Community Resources: Advocacy Group: CRISIS PLANNING RESOURCES UNABLE TO GO TO A PSYCHIATRIC EMERGENCY ROOM or CHCS CRISIS CARE CLINIC San Antonio Police Crisis Intervention Team (210) 207-7273 (Trained mental health police officers respond anywhere in the City) Bexar County Sherriff’s Office Mental Health Unit Dispatch (210) 335-6000 Monday – Friday ask for a Mental Health Deputy Saturday-Sunday inform dispatch you have an emergency so patrol will respond (Respond to all areas within Bexar County including municipalities and unincorporated areas) UNFUNDED or NON-RESOURCED PSYCHIATRIC CARE The Center for HealthCare Services (CHCS) Adult Crisis Care Clinic Adults’ phone line (210) 225-5481 601 N. Frio (Screening/assessments 24/7) 1-800-316-9241 Children’s Crisis Care Clinic Children‘s phone line (210) 223-7233 227 West Drexel (Screening/assessments 24/7) Mobile Crisis Outreach Team (MCOT) (210) 223-7233 (Licensed professional meets adults at the scene of the crisis) Children’s Mobile Outreach Team (CMOT) (210) 223-7233 (Licensed professional meets parents/children at the scene of the crisis) PSYCHIATRIC EMERGENCY ROOMS Clarity Child Guidance Center Child/Adolescent Psychiatric Emergency Service (24/7) 8535 Tom Slick Drive, 78229 (210) 616-0300 Nix Behavioral Health Center Psychiatric Emergency Service - Adults (24/7) 1975 Babcock Rd, 78229 (210) 579-3800 Mental Health Care Plan (24-hour access to mental health crisis services) ACUTE CARE HOSPITALS WITH BEHAVIORAL HEALTH PSYCHIATRIC UNITS Mental Health Care Plan Hospital Name Methodist Specialty & Transplant Hospital 8026 Floyd Curl Drive, 78229 (210) 575-0500 Nix Health 4330 Vance Jackson, 78230 (210) 579-3800 Christus Santa Rosa 2827 Babcock Rd, 78229 (210) 705-6620 Southwest General Hospital 7400 Barlite, 78224 (210) 921-2000 Baptist Medical Center 111 Dallas Street, 78205 (210) 297-2000 NE Baptist Hospital 8811 Village Dr., 78210 (210) 297-2000 University Health System 4502 Medical Drive, 78229 (210) 358-4000 Emergency Room Evaluations Yes Children Yes Yes Adolescents Adults Seniors Yes Yes Yes Yes Yes Yes Yes Yes Yes Yes Yes Yes Yes Yes Yes Yes Yes Free Standing Psychiatric Hospitals (without emergency rooms) Hospital Name Clarity Child Guidance Center 8535 Tom Slick Dr, 78229 (210)616-0300 Laurel Ridge Treatment Center 17720 Corporate Woods Dr. 78259 (210) 491-9400 SA Behavioral Hospital 8550 Huebner Rd, 78240 (210) 541-5300 Admissions Departments Yes Yes Yes Children Adolescents Yes Yes Yes Adults Yes Yes Seniors Additional Resources National Suicide Prevention Lifeline 1-800-273-8255 Bazelon Center for Mental Health law - www.bazelon.org National Institute of Mental Health- www.nimh.org Substance Abuse Mental Health Services Administration - www.samsha.org www.dshs.state.tx.us/mhsa/suicide/suicide-prevention.aspx www.TexasSuicidePrevention.org Mental Health & You (MHU) mobile application can be downloaded from the Apple store for free. Twitter: @StopTXSuicides Mental Health Care Plan