S. A. S. Registered Charity No: 1115016 Success after Stroke Winter Newsletter 2014 A Note from the Chairman 2014 was a very busy and rewarding year for all those involved with SAS. Our three main fundraising events, the BrushStroke Art Exhibition in March, the Sponsored Walk and Run in September and the Carol Concert in December were very successful both in terms of participation and in exceeding our budgeted income for these combined events. be a good resolution for 2015 for those of you looking for a suggestion! A belated Happy New Year. Richard Furlonger NICK ATHORNE As you can imagine, a great deal of work goes into their organisation, and I am very grateful to all of you who give, with so much enthusiasm, so much of your time and for those who took the trouble to support us in different ways. All these events had their highlights, but for me the most memorable was watching the members at the sponsored walk reaching the distances set for them by our Physio Jeanette and Nordic walking coach Jane. For all of our members, of varying levels of ability, these were very courageous efforts. The next sponsored Walk and Run is being held on Sunday the 12thJuly at Auberies and we will be hoping to boost entries for the 5km and 10km Run. Details are available on our website and although it is some time away, improving fitness might Nick Athorne died on 2nd January and at his funeral at St. Mary’s Church in Boxford, the following address was given by Viv Bourne: SAS - Success-after-Stroke. Somehow Nick was everything that epitomised our name. 1 I had met Nick a few times with Lisa Eden before his first stroke and in some extraordinary way, even though he was left with many disabilities, he was not diminished. He spoke, as only Nick would, very openly about his first stroke. His memories of actually being in the car when it happened and how Colchester Hospital and their Stroke Unit , headed by Moira Keating, saved his life. This last time the ambulance tried to take him to the West Suffolk but, oh no, Nick would have none of it and managed to get himself back to Colchester. Nick spoke so well that he was asked to be a Governor of Colchester Hospital which was a huge accolade for him. However, after some time he decided to give it up as he was drowning in reams of paper. I have just said 'Nick spoke so well' and so you did Nick, and indeed you should be the one up here now. Firstly, you would have loved it and secondly you would have done it so well, with gusto and humour. It was in 2010 that I went on an outreach to see Nick in his flat here in Boxford. Trevor Green, another SAS member, accompanied me and we were both amazed at what we found - a totally upbeat Nick raring to go. His keyboard was sitting looking rather neglected and dusty in a corner of the flat but with hours of practice and with thanks to his Saeboflex, he regained the use of his left hand and was able to play his beloved keyboard again. This meant that he was able to compose again and last year he played in public. This was all due to true grit and determination. In 2011 Nick organised a highly successful Networking Dinner at Stoke by Nayland and over 140 people attended. It was Nick's first time as a host since his recovery. It took a great deal of courage to compere the event and he raised over £4000 which was shared between SAS and Icanho. I know Nick would tell you that Icanho as well as SAS had played a large part in his rehabilitation and Nick's sister Jo had a lovely letter from Icanho saying that Nick's positive approach and willingness to help others and give survivors encouragement and support, was outstanding. Nick sang in The Upbeat Contemporary Choir which meets in Lavenham Church and Andrea King who runs the choir said that she was stunned to hear of his death, that he had been an integral part of her choir and because of his involvement a concert that he sang in last year raised a thousand pounds for SAS. Nick understood our continual need to raise funds and was tireless in his efforts on our behalf. He persuaded publicans to put SAS collection boxes on their bars and these, of course, needed checking regularly, particularly, I gather the one here in the White Hart. Nick was a terrific help with our newsletter, contributing on a regular basis. He played backgammon with Arthur. He egged us on to start our own choir, which then performed in Stowmarket and again raised some money for us. I think one of the most amazing things about Nick was that he was determined to spread the word about stroke; that it can happen to anyone in any walk of life, at any time, anywhere, at any age. But what he also understood was his recovery, obviously 2 with help, was down to the hard graft and determination that he put in and wow did he improve. He was a lesson to all stroke survivors. He was a stalwart of SAS. He was a showman, a flamboyant, larger than life character. He was the voice of our members and liaised between them and our Committees and will be greatly missed by all. He was a kind man but most of all, he was a man who encouraged others. One of the things we do at SAS is sail which we do with the Woolverstone Project. Unbeknown to us, Nick had been a terrific sailor, starting at the age of 10 in a Mirror in Cornwall, graduating to a Wayfarer and eventually crewing in large boats for his friends. When he first came to Woolverstone with SAS, his love for sailing was rekindled and I think I will leave you here, with a picture of Nick, sadly, probably without his trilby as it will have blown away, but with a large smile on his face, his hand on the tiller and the boat running with the wind. ---oo0oo--- Nick with Andrea from The Upbeat Contemporary Choir, presenting a cheque to SAS represented by Richard, Marian and Miranda JAMES AND SCIPIO Some of you may have realized that our ‘old’ Chairman, James Macmillan, has returned to SAS under the tutelage of Jeannette in the physio department. Apparently he is shaping up really well and he has now added another string to our bow in the shape of Scipio. Scipio is James’ daschund who has become a ‘pat dog’. A ‘pat dog’, as some of you may know, is the name given to dogs taken into homes where the residents benefit greatly from their company. Pat Fox, on the other hand, thinks Scipio is purely for her and that is why he’s known as ‘Patdog’! Welcome to both James and Scipio. Nick presenting Viv with a cheque for SAS from his Charity Networking Dinner. Viv Bourne Volunteer 3 Congratulations to Annabel (daughter of Liz Greene) and Ian on their marriage last year and a huge thank you to them both for asking their family and friends to make a donation to SAS instead of a wedding present. On Tuesday 2nd December the wonderful couple came in to see us all at SAS and were presented with a card and gifts made by SAS volunteers and members in appreciation of their generosity. The latest figure is an amazing I have been made aware that your donations have raised enough to cover the limited costs for which I claim. The remainder is ploughed back into club funds to support general activities. As a volunteer for SAS it is good to know that the service provided is not only valued, but also has a tangible benefit for the club. I hope to continue seeing my regular clients and that others who would like to utilise this service will not be shy in coming forward. The SAS fundraising tin is always on my table and your donations are very greatly appreciated! Jan Williamson Volunteer STOP PRESS: NAIL DONATIONS TOTALLED £385 FOR 2014 – THANK YOU! £6,463 !! Thank you so much! This concert was slightly different as it was earlier and therefore fell in Advent. The Ely Cathedral Choir directed by Paul Trepte had agreed to sing for us but could not do our usual week as the boys were fully committed. Thank you! To all of you who donate so generously for the nails and massage service that I provide, I wanted to say a huge thank you. As the service was in Advent we did not have as many of our usual traditional carols and some people seemed disappointed by this, others enjoyed having the more obscure ones. 4 The choir itself was wonderful. We had 16 boys and 6 Lay Clerks and the music was extremely uplifting. Our only problem was that the Choir Master was directed to park his car in a specific place only to find that he was completely bogged down and there it remained until after the service when Geoffrey and Richard and others used brute force and pushed it out! Our Readers were brilliant. We had Mark Murphy from Radio Suffolk who read the first biblical reading. Tricia Eddington read about the ‘old’ fairy on top of the Christmas tree which brought the house down. Jonathan Tham read a piece about stroke as did our own amazing Viv Hatfield and her’s was a particularly difficult passage. Alan Tapfield finished with our last biblical reading and he did it brilliantly. Our members’ readings are, to me the highlight of the evening and we took nearly £1,700 on the door so we must have got something right! The Church was full - it looked wonderful and again, I think and hope we will have raised a goodly amount for SAS. Viv Bourne Member STOP PRESS: RAISED: NET £13,910 WELL DONE! AMOUNT THANK YOU Many thanks to all who ordered Christmas cakes - I hope you enjoyed them. With the orders from SAS and my own, I made 22 cakes this year – exhausting but very satisfying. I am donating half of the price to SAS and this totals £90. Also John and Barbara Fielden kindly donated £7.50 (although they did not have a cake) making a grand total of £97.50. I hope everyone had a wonderful Christmas and wish you all a happy and healthy 2015. Diane Bayly Member It was the Friday Christmas party that got the festivities under way this year with the entertainment provided by the children from Wells Hall Primary School who gave us a wonderful selection of Christmas carols. 5 The Tuesday held on the David Padwick return visit to Christmas party was 16th December and made a very welcome entertain us all. There was the usual ‘Secret Santa’ at both parties and this always creates fun and laughter. We enjoyed hot spicy mulled wine and a wonderful selection of festive food including a gorgeous Christmas cake made by our own Diane Bayly – thank you! Our Therapist, Anne Francis brought in a selection of her handmade jewellery for sale and donated £30 to SAS. Thank you! Thanks to everyone for giving so generously to both the Christmas parties – a good time was had by all! Admin Reflections of Nick Athorne I met Nick when he joined Business Link for Essex in 1997 where I already worked as Information Services Manager for the joint team of Business Link and Essex Training & Enterprise Council. In his new role as Finance Counsellor he set up many useful connections between Essex businesses and sources of possible finance, banking contacts, accountants, lawyers and the like. His previous experience in Canada as a banker and his ability to match contacts for their mutual benefit meant he became known as the person to go to at Business Link concerning business finance. It was whilst working at BLE that Nick organised and hosted many very successful networking events for Essex businesses and as his reputation grew so did his own network, many of whom he continued to be in touch with as they became his personal friends. In 2001, I decided to move on from BLE and become self-employed and so our paths crossed much less frequently although I did still attend some of the networking dinners that he organised. So in mid-2010 it was quite a shock to hear through the grapevine that Nick had had had a stroke the previous November. As I heard it, he was apparently starting to make a good recovery and indeed was preparing to speak publically again for the first time since the stroke at a breakfast networking event in Bishops Stortford. I decided to attend, if only to give him some moral support and sure enough, there he was speaking as eloquently as he always had done but this time to raise awareness of strokes and the need to seek urgent medical attention should one occur. Then in 2011, with the help of friends from the world of business, he organised a highly successful networking dinner at Stoke by Nayland Hotel at which some 140 people attended. It was Nick’s first time as a host since his recovery and although it 6 took a great deal of courage and stamina to compere the event, he did a fine job and in the process raised more than £4000 which was split between two charities – ours, Success after Stroke and Icanho. It was at this event that my involvement with SAS began, as in true networking style, I found myself sitting next to Geoffrey Bourne, who was chairman of SAS at the time. Within a few days I had had a phone conversation with Viv and, in short order, so began my time at SAS as a voluntary stress management/cognitive behaviour type therapist, a role which I enjoy immensely. All down to Nick’s ability to be a Networker par Excellence! Nick was many things to many people – family man, business man, fund raiser, speaker, singer, musician etc – the list goes on. But of all the roles, Nick’s role as a member of SAS was appreciated by so many of the other members. He undertook the role of committee member and was never shy about speaking up when he felt the need. Many members benefitted by his support and encouragement and not least, were inspired by his example and determination to recover the use of his left hand which he did. It was a great shock to hear that he had had another stroke before last Christmas and then another on 2nd January 2015 from which he didn’t recover. He will be greatly missed by so many people, not least myself. A Poem for Nick We have to take the good with the bad. Smile when you are sad. Love what you have got and remember what you had. Always forgive but never forget. Learn from our mistakes, but never regret. People change. Things go wrong. But remember that life goes on. One small tear for one so dear now passed on but always in our hearts and thoughts. Rest in peace Nick Athorne. From your friend Alan Tapfield Member Pam Lawrence Volunteer 7 S.A.S. (Success after Stroke) The Stevenson Centre Great Cornard Marian Bagnall/Miranda Cox: 07434 931 962 By Post: Success After Stroke PO Box 105 Ipswich IP7 9BJ E-mail: info@successafterstroke.org.uk Web: www.successafterstroke.org.uk Success-after-Stroke is an active and motivated self help support group where the members are helped by dedicated volunteers and therapists in their efforts for rehabilitation, independence and confidence. On Monday mornings there is sailing at the Woolverstone Project. On Tuesday mornings the group meets at the Stevenson Centre for: Socialising Physiotherapy Speech & language therapy Reading and discussion groups Basic nail care & massage therapy On Wednesday mornings: Art, drawing and painting – beginners welcome On Thursday mornings: Swimming and exercise Riding at The Shelley Centre for Therapeutic Riding (RDA) On Thursday afternoons: Pottery On Friday mornings: Physiotherapy Speech and language therapy Reading and discussion groups Nordic Walking Basic nail care & massage therapy – first Friday of each month. ACTIVITIES SUBJECT TO AVAILABILITY 8