Government of Malawi GUIDELINES FOR CONDUCTING COMMUNITY DIALOGUE A COMMUNITY ENGAGEMENT TOOL FOR SUSTAINABLE HIV AND AIDS BEHAVIOUR CHANGE March 2007 National AIDS Commission P.O. Box 30622 Lilongwe Malawi Telephone: 265 01 770 022 Fax: 265 01 776 249 ©National AIDS Commission March 2007 All rights reserved. No part of this publication may be reproduced, stored on any retrieval system, or transmitted in any form or by any means, electronic, mechanical, photocopying, recording or otherwise, without the written permission of the copyright owner. Email: nac@aidsmalawi.org.mw Website: www.aidsmalawi.org.mw ISBN No: 99908-73-54-2 2 Acronyms AIDS BCC BCI CAC CBO DAC DEC DACC FBO HIV IEC IGA MDHS NAC NGO OVC PLHIV UNAIDS UNICEF WHO Acquired Immune Deficiency Syndrome Behaviour Change Communication Behaviour Change Interventions Community AIDS Committee Community-based Organization District AIDS Coordinator District Executive Committee District AIDS Coordinating Committee Faith-Based Organization Human Immunodeficiency Virus Information, Education and Communication Income Generating Activity Malawi Demographic Health Survey National AIDS Commission Non-Governmental Organization Orphans and Vulnerable Children People Living with HIV Joint United Nations Programme on HIV and AIDS United Nations Children’s Fund World Health of Organization 3 Acknowledgement The National AIDS Commission would like to thank the following people for their personal effort and support from their organizations in the production of this very important guide. Without their technical input and directions the guide would have been impossible. The experts are as follows: Mr. Enock Bonongwe Mr. Felix Mundukwa Ms Lydia Fulirwa Mr. Patrick Phoso Mrs. Lucy Kachapila Mrs. Olive Moyo Mr. Ndindi Mr. Rodney Chinangwa Mr. Dominic Misomali Mr. Mavuto Thomas Mr Ben Tonho Mr. Amon Chinyophiro Mr. Mahara Longwe Mrs. Maria Mukwala Mr. Eliam Kamanga Mr. Robert Chizimba Mr. Christopher Teleka : Ministry of Women and Child Development : Malawi Network of AIDS Service Organisations : Creative Centre for Community Mobilisation : Malawi Bridge Project : United Nations Children Fund : National Association of People Living with HIV : Ministry of Health (Community Health Sciences Unit) : Ministry of Local Government and Rural Development : Blantyre City Assembly : Ministry of Health : Salima District Assembly : National Association of Farmers in Malawi : National AIDS Commission : National AIDS Commission : National AIDS Commission : National AIDS Commission : National AIDS Commission Lastly, the Commission wishes to extend its deep appreciation to the Behaviour Change Interventions (BCI) team for providing very strong technical leadership when developing the guide. It is hoped that the guide will greatly assist community-based organisations (CBOs) and nongovernmental organisations (NGOs) to design and implement HIV and 4 AIDS community-led dialogue sessions that would bring meaningful involvement of community members themselves. The team comprised Bridget Chibwana, Robert Chizimba, Maria Mukwala, Eliam Kamanga, Christopher Teleka, Redgeson Chikaya and Victor Khonde. 5 Table of Contents ACRONYMS ................................................................................................... 3 ACKNOWLEDGEMENT ................................................................................... 4 TABLE OF CONTENTS .................................................................................... 6 1.0 BACKGROUND .................................................................................. 9 2.0 INTRODUCTION .............................................................................. 11 SECTION A ................................................................................................ 13 3. 0 DEFINITION OF COMMUNITY DIALOGUE CONCEPTS ..................... 13 SECTION B ................................................................................................ 19 4.0 THE CONCEPTUAL FRAMEWORK FOR COMMUNITY DIALOGUE .... 19 SECTION C ................................................................................................ 23 5.0 CONDUCTING A COMMUNITY DIALOGUE SESSION ........................ 23 SECTION D ................................................................................................ 32 ANNEXES..................................................................................................... 35 REFERENCES ............................................................................................... 50 6 Executive Summary There is growing evidence in Malawi that communities can make a big difference in the national response to HIV and AIDS once they are empowered. Continued distribution of information, education and communication (IEC) materials, mere provision of services and health products and granting of CBOs alone cannot improve the living standard of people infected or affected by the epidemic. For meaningful change to take place in the communities such as increased knowledge levels in HIV and AIDS; change in behaviours; and increased utilization of services and resources, community members must fully participate in what is being planned and implemented for them. In fact they must be the actual agents of change in the community initiatives and interventions. For community members to fully participate, they must be engaged in a dialogue with planners of various community initiatives and community members themselves to identify issues that affect them, who to engage and solutions to solve such problems. Without mobilizing community members’ informed participation, capacities, energies, and without increasing their knowledge and skills, no initiative can yield any impact in the fight against HIV and AIDS in the communities. There is, therefore, a great need for the National AIDS Commission, CBOs and all stakeholders to conduct series of community dialogue sessions at different levels in order to empower community members to actively participate in the planning and implementation of interventions that affect them. Apart from empowering community members, dialogue sessions also create a sense of ownership of interventions among community members. It is, therefore, the intention of the Commission in collaboration with district assemblies and all stakeholders to intensify community dialogue sessions in HIV and AIDS in order to effectively mobilize communities in HIV prevention, treatment, care and support programmes. Communities must be in the forefront in identifying their HIV and AIDS problems, planning and implementing interventions to address the identified problems. 7 This is why the Commission in collaboration with partners has developed this Community Dialogue Guide as a tool to assist stakeholders to plan and conduct dialogue sessions in HIV and AIDS efficiently and effectively. All CBOs, assemblies and NGOs are requested to use the guide so that we all improve the way we reach out to communities. Dr. B.S.M. Mwale Executive Director 8 1.0 Background In a continued effort to reduce further spread of HIV infection and begin to control AIDS, in July 2001 the Government of Malawi established the National AIDS Commission (NAC) to provide leadership and coordinate the national response to HIV and AIDS. The overall goal of NAC is ‘to prevent the spread of HIV infection among Malawians, provide access to treatment for PLHIV and mitigate the health, socio-economic and psychosocial impact of HIV and AIDS on individuals, families, communities and the nation’. This goal is currently being pursued within the context of the National HIV and AIDS Action Framework (NAF) 2005-2009. In exercising its role, NAC has provided leadership in the response by producing relevant policies, strategies, guidelines and manuals aimed at guiding partners to deliver quality services and interventions. The Commission has championed planning, networking, monitoring and evaluation of programs. Specifically, it has also coordinated and facilitated development and production of mobilization related documents and plans in order to direct stakeholders on how to plan and implement social and community mobilization interventions at different levels. However, despite availability of these documents NAC has noted that a number of CBOs, assemblies and NGOs still fail to engage communities in the planning and implementation of HIV and AIDS interventions. Most interventions are still being planned at NGO or assembly level leaving the intended beneficiaries out. This has resulted in NAC and other development partners supporting interventions that have minimal impact among community members since they do not address their specific needs and challenges. Most programme planners do not enter into dialogue sessions with communities. To address this gap, the Commission in consultation with stakeholders established a task force comprising experts in social and community mobilization to develop this guide whose main aim is to promote dialogue between planners and community members on HIV and AIDS issues. The 9 exercise involved review of various community mobilization initiatives and assessment of numerous documents. In summary, the guide presents directions on how to plan and conduct community dialogue on HIV and AIDS and other related topics. It is therefore, expected that this guide will be a valuable tool for all those engaged in community mobilization initiatives at various levels. 10 2.0 Introduction Malawi has one of the highest HIV infection rates in the sub-Saharan region and in the world. In Malawi the principal modes of transmission of HIV infection are unprotected sexual intercourse and prenatal transmission which account for 90% and 9% of all HIV infections in the country respectively (Malawi Demographic and Health Survey MDHS, 2004). The prevalence rate has stayed at a high level for the past seven years ranging from 15.0% in 1999 and 14% in 2005 among people aged between 15 to 49 years. According to the 2004 MDHS, HIV prevalence was higher among women (13%) compared to men (10%). This high infection rate of HIV in women of childbearing age suggests that many children are born with HIV infection. The emergence of the HIV and AIDS epidemic has simultaneously affected communities. HIV and AIDS which was initially perceived as a health problem, requiring a public health approach is now a social issue and there has been a growing shift in the emphasis of HIV and AIDS communication interventions to focus on the social environment rather than the individual. Previously, models of behaviour change perceived individuals as rational when it comes to decision-making concerning the seriousness of health risks, (UNAIDS 1999). Recent models such as Behaviour Change Intervention/Behaviour Change Communication (BCI/BCC) approaches advocate for a better understanding of individual and risk taking behaviours (UNAIDS 1999). A review of literature also suggests that BCC interventions can only be effective when combined with changes in the broader environment which impact on people’s ability to adopt and sustain new behaviours. Innovative ways to work with communities to generate an effective and structured response therefore need to be put in place in order to promote sustained behavior change. The Malawi Government through the National AIDS Commission has developed a number of strategic documents, manuals and guidelines to guide the national response to HIV and AIDS. The Behaviour Change Interventions Strategy was developed as a guide for planning behaviour 11 change interventions on HIV and AIDS and Sexual Reproductive Health. Further to this was the development of HIV and AIDS Communication Guidelines on Advocacy, Social Mobilization and Information, Education and Communication. This guide will enable communities to engage in constructive conversations about HIV and AIDS. This will promote mutual understanding of the epidemic and how to control it. These facilitated conversations complimented with the distribution of leaflets, posters and other materials will not only provide a platform for people to think through all the repercussions of a situation but will also create space for mutual learning and result in new perspectives and creativity which are sustainable. 12 SECTION A 3. 0 Definition of Community Dialogue Concepts 3.1 Definition A community dialogue is a process of joint problem identification and analysis leading to modification and redirection of community and stakeholders’ actions towards preferred future for all. A community dialogue is an interactive participatory communication process of sharing information between people or groups of people aimed at reaching a common understanding and workable solution. Unlike debate, dialogue emphasizes on listening to deepen understanding. It develops common perspectives and goals and allows participants to express their own views and interests. 3.2 Differences between debate and dialogue Debate Denying opposing views. Participants listen to refute views of other people. Questions are asked from a position of certainty. Participants speak as representatives of groups. Statements are predictable and offer little new information. Dialogue Allows expression of different views. Participants listen to understand and gain insight. Questions are asked from a position of curiosity. Participants speak with free minds. New information surfaces. 3.3 Concepts and principles of community dialogue Community dialogue is based on the following two main principles: 13 Problem based adult learning i. Individuals will go for things that are relevant to them. ii. Individuals have a lot of knowledge, skills and experience, which can be built on or improved. iii. People like to be respected and will eagerly participate in issues that affect their lives. Negotiation (dialogue is a process of bargaining, give and take) i. Dialogue focuses on the problem to be solved together with all parties based on existing experience, capabilities and opportunities rather than pre-determined messages that must be communicated by one party and received by the other. ii. All partners involved, service providers and the community may experience behavior change in the process of dialogue. Other principles include the following: Sensitivity to local, family and community experiences: working by invitation and commitment and not imposition. Facilitation rather than intervention of experts. Use of participatory approaches with space for listening, inclusion, agreement and expressions of concerns. Respect for differences and mutual trust. Willingness of facilitators to engage in a process of self– development. Working in partnerships with non-governmental and community based organizations. Belief that communities have the capacity to identify needed changes, own these changes and transfer change to other communities. A grounding in universal human rights. Gender sensitivity, a focus on participation and inclusion of women and girls. 14 Mutual learning (facilitators with community, community with facilitators, community with community, among community members, organization to organization. 3.4 Objectives for conducting community dialogue The main objective of community dialogue is to generate response from communities and individuals that result into commitment to addressing the identified problems (issues)/gaps in a participatory manner. Community dialogue aims at: Generating deeper understanding of the nature of the epidemic among individuals and communities in order to influence change. Surfacing common issues and the resources to address them, (helps identify barriers to positive change and uncover innovative ideas). Building a pool of resource persons with transformative leadership abilities and facilitation skills to scale up the community response to HIV and other related development issues. Providing a forum for the unheard to be heard. Promoting social contacts among various groups in the community. Promoting self-esteem, self-confidence, tolerance, trust, accountability, introspection and self-management. Promoting ownership and accountability. 3.5 Characteristics and key components of a community dialogue It is firmly rooted in a common set of core values (inspiring, harmonizing). It is directed towards a freely agreed common purpose. It is based on mutual respect, recognition and care. It is enabled by a safe environment and based on integrity. It entails genuine listening and acceptance of feedback even if it is different from what is expected. 3.6 Benefits of conducting community dialogue It helps to identify and enlist key individuals for sustainable partnerships. 15 It helps solicit community participation, support and commitment in problem solving for sustainable behavior change. It promotes sharing of information and ideas between individuals of different cadres and backgrounds. It facilitates joint community assessment to identify community problems and effective solutions It promotes deeper understanding of communities, their situation, current practices, interests, existing opportunities and challenges for sustainable behaviour change. It promotes skills building of the facilitator in the development and maintenance of effective dialogue with the community in order to facilitate joint decision making and problem solving for sustainable behaviour change. It helps to generate local media attention. It helps leaders of all sectors to recognize their roles in building sustainable healthy communities. It promotes accountability and ownership of agreed interventions A good dialogue offers those who participate the opportunity to: Listen and be listened to so that all speakers can be heard. Speak and be spoken to in a respectful manner. Develop or deepen understanding. Learn about the perspectives of others and reflect on ones own views. 3.7 Challenges of community dialogue Dialoguing is time consuming; therefore timing for dialogue should be appropriate. 16 It requires good facilitating skills. It requires a good and suitable venue, which is free from any disruption and where the participants are comfortable. Poor preparation and planning affects the quality of discussions during dialogue sessions. 3.8 Where can a dialogue occur? A dialogue can take many forms. It can involve five people around a fireplace to a hundred or more people attending a village meeting. A dialogue can occur: At a school. At a market place. In a boardroom. In places of worship. During club meetings. In meetings of existing partnerships. 3.9 Who can host a dialogue session? Anyone can convene and host a community conversation and anyone can participate in a dialogue. Community conversations may be initiated by: Non-governmental organizations (NGOs). Faith based organizations (FBOs) / faith leaders. Community based organizations (CBOs). Community leaders/community organizers. The youth. Health workers. Special interest groups like PLHIV. Extension workers. Officials from the local assembly 17 NB: Before conducting these dialogue sessions organizations should go through the District Assembly in order to formalize the process and gain authority to work at both the district and community levels. This will enable the District Assembly to become aware of what is happening in their district and they should be able to help out with the dialogue session or any projects resulting from it. At community level Community Based Organizations intending to conduct dialogue sessions should also inform the District Assembly of the activity and whether they require any support. 3.10 Methodologies and tools The community dialogue approach is adapted to suit the participants’ level of knowledge and skills. The following methods may be used depending on the topic and assessment of participants’ capabilities: Strategic questioning. Story telling. Historical timelines. Mapping and transect walks. Traditional Wisdom (Proverbs, songs). Discussions. 18 SECTION B 3.0 The Conceptual Framework for Community Dialogue Step 1 Problem Identification Step 7 Evaluate together and provide feedback Step 2 Problem analysis Step 6 Acting together Step 3 Identification of best option(s) Step 5 Planning together Step 4 Prioritization of options 19 4.1 Steps for conducting community dialogue i. Problem identification The first step in conducting a community dialogue is to identify the problem or issue at hand. In this case the issue could be HIV and AIDS focusing on HIV testing and counselling (HTC), human rights or gender. It could be poor hygiene and sanitation due to lack of clean water and sanitary facilities. At this point the team will identify current problems/ issues. What the community is doing about these issues, whether the actions are giving the required outcomes and what are the constraints / challenges faced by the community. The gaps between the preferred behaviour and current practices will determine what will be required to address the problem. ii. Problem analysis Problem analysis involves a thorough analysis of the issue /situation at hand. Questions that can be asked under this section include: What are the causes of the problem /issue at hand? Is the issue /problem a shared problem in this community or it is perceived as a problem for only a few? How is the community responding to the problem? What is the community’s current knowledge? What are current attitudes, practices and beliefs about the issue at hand? Has the community previously dialogued on the issue? Have traditional, religious and political leaders been involved in trying to address the problem /issue at hand? 20 NB: Community members also have a wealth of knowledge, especially about local conditions and practices and should be allowed to contribute to the dialogue. iii. Identification of the best options This section shall assist the user to identify the best options. In doing this, emphasis is placed on actions to be taken to achieve the intended behaviors and how to sustain them. Identified options are prioritized based on their effectiveness, feasibility, relevance and appropriateness within the community’s context iv. Joint planning At this planning stage participants will examine the priorities set during the previous step before designing an appropriate Community or Village Action Plan. The plan will include the following elements: What will be done. When it will be done. Who will do what. Resources required and potential challenges. Measures or indicators of success. Participatory tools for monitoring and evaluating actions. NB The plan should be developed collectively amongst the interest groups in order to collectively define results to be achieved and the activities to be carried out to achieve such results. This will help promote ownership of the projects amongst the members 21 v. Acting together After collectively developing an action plan, implementation of the plan should be conducted in a participatory manner, with each member recognizing her/his role in the project. It is therefore important to build commitment of the various community members and stakeholders in order to ensure the success of the project. vi. Monitoring, evaluation and feedback Participatory evaluation involves a collective reflection of achievements, identifying what went well and why particular actions did not go well. Participatory evaluation creates a learning process for the program recipients, which helps them in their efforts. After the evaluation process the necessary feedback should be provided. This promotes ownership of the process and the will to do better next time. Reinforcement is also important to motivate participants to do better or sustain the desired behaviour. 22 SECTION C 5.0 Conducting a Community Dialogue Session Before conducting community dialogue a rapid assessment of the community’s needs should be conducted. Rapid assessment is a quick way of collecting information with a view to analyze the current situation for effective decision making (Key Family and Community Childcare Practices, WHO, UNICEF 2005). A rapid assessment tool helps collect data from the community which describes the community, outlines important issues and provides a deeper understanding of the community’s organization, history, social context and its ability to handle situations. The assessment helps: Capture unspoken, influential rules and norms that may have a direct or indirect impact on the issue at hand. The team to take stock of the strengths and weaknesses, threats and opportunities of the community in handling situations. To reveal the attitudes and opinions of the community before the team embarks on the community dialogue initiative. The team to develop a deeper understanding of the issue at hand. NOTE Data collected during the exercise will act as a basis for community dialogue and joint planning. 5.1 Preparing for the dialogue A team approach to convening a dialogue will help build ownership and share the tasks involved. Members of the planning team should be able to articulate shared core values and work towards a vision that defines what is to be done and for whom it is done. Members of the planning team should be 23 those who are credible and perceived to be trust worthy by the community. The role of team members should be clearly spelt out. The planning team should brainstorm on the following: The specific goal of the discussion in terms of What is the desired behaviour or result, for instance increased awareness and understanding of gender, HIV and AIDS? (A list of expected outcomes should be developed). Will there be any follow up services that shall reinforce behavioural change like victim support units or community action groups? These could be set up after increasing the community’s understanding and willingness to take part in the project activities. The components of the discussion in terms of What topics should be addressed? Will the discussion be an exploration of various topics identified during the rapid assessment or is it designed to provide a single explanation of a specific topic or issue. Who will facilitate the discussion? Good facilitation is critical to a successful dialogue. A good facilitator should be selected (Refer to Annex III for Qualities of a good facilitator). Where will the discussions take place? Dialogues may be conveniently held in public areas like schools, the Traditional Authorities’ Headquarters or at a community centre that is comfortable and accessible by all. When will the discussions take place? When planning a dialogue session it is important to consider participants schedules, for 24 example, a dialogue session held in the morning when individuals are likely to go to work in their fields will not be well patronized. It is important to be flexible with the program. What resources will be required? Resources in terms of organizations that may be able to assist with either the dialogue session or any projects resulting from it are critical to successful dialogue sessions. How will the project be sustained? In order to obtain lasting impact of the dialogue session, sustainability of the project should be considered from the start. These plans on sustainability also assist in winning donor confidence. Who will participate in the dialogue session(s)? It is ideal to bring together individuals with diverse experiences to share ideas and opinions. Individuals of different status, gender, special interest groups like PLHIV should be brought together. Participants may be parents, elected officials, community leaders and members of religious groupings depending upon the complexity of the problem. Dialogue groups may be as small as five people or as large as two hundred depending upon the initiators goals and objectives. What format will the dialogue follow? The type of discussions to have, for example, small group meetings or a large meeting or a year long commitment among a group of key community leaders to study, reflect on and discuss the problem. Is the environment conducive? Seating arrangements are important to ensure strong interaction among participants. Participants should be seated in a circle or in a U formation. How to document the dialogue. An individual should be identified from the group who will be responsible for taking notes, summarize 25 important points and document the dialogue session. It would be interesting to involve the media who will document the process and will be able to take a few photos and video clips. This could be used as reference material for any future or repeat dialogue sessions. NOTE The brainstorming exercise will assist to determine the goal of the dialogue and the desired outcomes. Points to consider Target decision makers /influential people and others at household and community level. Trust, credibility and ownership should be instilled in the participants before the dialogue is initiated. 5.2 Welcome and Orientation Phase This phase sets the tone and context of the dialogue, which could begin, with the sharing of personal experiences and stories in order to level the playing field among the participants. During this phase the facilitator should: Greet participants as they come in to put them at ease and encourage them to speak up. Conduct introductions, state the purpose of the dialogue, and ask the group for any opinions before establishing any ground rules. (Refer to Annex III for the role of the dialogue Facilitator). 5.3 Problem Identification The problem or issue identified during the rapid assessment can be presented in the form of visual media or other starters like role-play, pictures, posters etc. The presentation should be short, simple, stimulating, realistic, and 26 posing one problem at a time, but mindful that it is not giving the solution to the problem. This promotes thoughtful discussion. Participants should then be encouraged to comment on what they observed from the presentations where the facilitator should guide them by asking: What did you see/ hear? What was the problem? Is the problem evident in the community? Is it affecting the lives of community members? Are there any efforts that have been carried out by the community, its leaders or any other external organizations to address the problem? Is there anything that the community could do to improve on the current situation? What can other organizations or the local assemblies do to make a difference? During this phase the facilitator should summarize the problem as experienced by the participants. The current, preferred and recommended practices should be recorded as below: Current Practice Preferred and Recommended actices Men and boys in the communities not involved in HIV and AIDS care and support activities Increased involvement and participation of men and boys in HIV and AIDS care and support activities 5.4 Problem analysis Problem analysis involves finding out more information about the current problem. The facilitator will take the participants through a process of understanding every aspect of the problem by answering the what, why, who, when and how questions. This will assist the group to work towards finding out: Reasons for the current behaviour 27 The frequency of the practice. Length of time the behaviour has been in practice. The impact the behaviour has on the lives of community members. The perceptions of the community members. Key players in solving the current problem. Tips The facilitator should be patient, respectful, open and not interrupting. The facilitator should have confidence that local people are capable of performing their own analysis. 5.5 Identification of the best options Identification of the best options involves generating solutions to the problem/issue, appraising the options and finally coming up with a decision on what solutions to be tried first. This phase requires the group to be creative in coming up with a range of solutions and it is therefore important that the facilitator promotes open discussion and encourages group members to give in their opinions. The facilitator may use the go around method so that everyone is provided with the opportunity to suggest ideas or group members may write down their ideas on a piece of paper. These ideas will be collected, discussed and summarized. The facilitator may either use the brainstorming method, which is a tried– and–true way of coming up with ideas in a group. If the recommended practices have not come out of the group, the facilitator may provide such alternatives. 28 After appraisal of all options the facilitator will then take the group through a process where the solutions will be rated in order to make a decision on the best option. Each option should be analyzed to find out whether: It is practical. It is effective. It is cost effective. It is easy to put into practice or it requires external assistance. It will be accepted or is consistent with the values and customs of the community. It is sustainable. Having weighed the solutions the facilitator guides the group in coming up with a decision. The group by consensus discusses and negotiates until the best option is reached. The facilitator finally summarizes the doable options. Tips Avoid arguing blindly for your own opinions. Do not let vocal individuals dominate the discussions. Do not change your mind just to reach an agreement. If you are making no progress take a break. The facilitator should encourage everyone to participate. The facilitator should encourage everyone to participate 5.6 Planning together In this phase, group members design appropriate plans of action based on the best possible options. The group will be guided through a brainstorming session to determine what needs to be done. The options will be broken into doable parts or action steps. The following questions should be answered: What will be done /is to be done? To what extent will the actions occur? What will be the strategies? 29 Who will do the work (is it the group members or some external assistance will be required)? When will the activities be done? (A deadline for action will help participants to focus)? What resources are required? Who will provide these resources and what resources are already available in the community? What are the potential challenges /constraints? How will these challenges be addressed? How will the activities be sequenced? The action plan should be compiled as below: Issue: Objective: Activity Indicator Lead Agency Partners Resources Time Framed 5.8 Evaluating Together An evaluation at the end of a dialogue session will allow: Participants a chance to comment on the dialogue process where participants will be able to provide perceptions on how the dialogue was conducted. Participants a chance to air their views. The dialogue leader to be provided with feedback on how the dialogue session had been facilitated. Evaluations can be written and/ or expressed verbally. A short evaluation form may be distributed to get participant feedback and to measure the impact of the dialogue. 30 NB: If the response sheets are anonymous participants are more likely to give their true opinions of what has happened. 5.9 Concluding the dialogue and next steps At the end of the dialogue the facilitator thanks the group for taking their time to share ideas and personal values and may give time to the group to air out any concerns or observations. The facilitator should let the group share the most important things gained from the discussion. The groups then collectively consider some possible steps in the action plan, for example: The group may decide on a particular idea that demands an immediate action. The group may decide to have more in-depth conversation and involve some individuals who were not present at the time of the dialogue. The group may decide to have additional dialogue sessions on other relevant issues. The group may share information about existing community initiatives that could benefit from volunteers, leadership or such dialogue. Points to consider Dialogue sessions should be recorded and documented. Such documentation could help to measure success of the dialogue and identify any needed improvements. Members of the group should be provided with a report on the dialogue session with action points clearly outlined. 31 SECTION D 6.0 Monitoring, Evaluation and Feedback Monitoring is a continuous assessment of the functioning of the project activities in the context of implementation plans and schedules. On the other hand evaluation is a technical activity that measures the impact and effectiveness of any while monitoring is a methodological arm of evaluation that tracks the programs incremental steps to its effects and forms the final evaluation report. Monitoring, evaluation and reporting should be part of the project design and not be added later when the project is near completion. Monitoring, evaluation and reporting provide insight into what is working, what is not working and help to identify ways of reviewing strategies that are being utilized to implement interventions. Monitoring community initiatives helps the facilitator and the participants to weigh actions against results. Monitoring helps to: Make decisions concerning the priorities of the initiative. Promote awareness of accomplishment. Solicit support. Secure funding for the initiative. Measure results. Identify strengths and challenges. Sound measurement tools are critical for an effective design and a good implementation and evaluation plan. A good monitoring tool will help answer the following questions: Are the planned activities being implemented? Are the activities being implemented correctly and according to schedule? Are messages and services reaching their intended audiences? 32 Are project funds spent according to budgeted amounts or do resources need to be reallocated? Refer to Annex II for the Monitoring Tool. Progress towards achieving set objectives are tracked by monitoring changes in specific variables or indicators. Indicators provide insight into the progress of the program and help to determine which components of the programme need to be changed in order to enhance progress. Indicators chosen for monitoring depend on the objectives, scale and type of project or programme. Good indicators should: Measure the phenomenon they are intended to measure. Produce the same results when used more than once to measure precisely the same phenomenon (reliable). Be specific (measure only the phenomenon they are intended to measure). Be sensitive (reflecting changes in the state of phenomenon under study). Be operational, measurable or quantifiable with developed and tested definitions and reference standards After the monitoring and evaluation process the necessary feedback should be shared. This promotes ownership of the process; helps maintain the required standard and the will to do better next time. 33 NOTE Indicators should be well defined, feasible to collect, easy to interpret and able to track changes over time. Key monitoring points for outputs are quantity, quality, unit costs, access and coverage. It is not cost effective to have high quality services available if those services are unsuccessful in reaching significant numbers of people. Similarly it is not good to provide services to a large number of people if the services provided are of poor quality and result in low client satisfaction and usage rates over time. 34 Annexes Annex I: District and Community Entry Checklist 1.1 The district entry process The district entry process shall include the following steps: Exploration. Courtesy call to the District Commissioner or Chief Executive. Awareness and orientation of district leaders including the District Executive Committee (DEC), District AIDS Coordinating Committee (DACC), etc. Identifying the animation team. Identifying frontline workers that may assist in the activities. Forming and training the animation team at the district level who are responsible to the Local Assembly (for planning purposes). Creating awareness at the Traditional Authority level. Forming and training of a team at Traditional Authority level. Identification and equipping the community based resource persons from CBOs, FBOs, and youth clubs. 1.2 The community entry process Exploration – gathering information, review of literature, meeting the key informants. Observing protocols to formalize the process and gain the necessary support. Carry out a participatory Rapid Assessment. Waiting stage (data analysis stage by initiators). Joint situational analysis with some members of the community. Feedback on the results of the analysis to the wider community. Training of frontliners based on interventions identified. Implementation. Monitoring and evaluation. 35 Annex II: The Community Rapid Assessment Tool Steps in conducting a rapid assessment I. Prepare for rapid assessment. II. Establish rapport with leaders. III. Brief community members. IV. Prepare an assessment plan. V. Collect data. VI. Waiting stage. VII. Give feedback to the community. i. Prepare for rapid assessment Preparation for the rapid assessment will include: Gathering basic information from review of literature, health facilities, and contacts with key individuals in the district like the Director of Planning and extension workers. Deciding who to interview. Preparation of tools for data collection ii. Establish rapport with leaders Initiating contact with community leaders is important to build support for collaboration and to brief the leaders on the objectives of the project and what is expected of them iii. Brief community members Community members should be informed before hand of the activity through their local leaders. Some community members will be invited to take part in the data collection exercise so that they input into the exercise and the prioritization of the issues. iv. Assessment plan An assessment plan will be drawn collectively with the community. Data collection Data is collected using different participatory rural appraisal methods such as: v. 36 vi. Transect walk / mapping. Focus group discussions. Venn diagram. Role-plays. Community history /timeline of events. Daily activity calendars. Pie charts etc. Key informant interviews. Seasonal calendar. Community based information system (village registers). Waiting stage During this stage the team will analyze the data collected. Below is a framework for analyzing the data collected from the rapid assessment Current Practices Underlying influences Barriers to adoption of practices Desired Behaviour Issue/ Theme vii. Give feedback to the community Feedback will be provided to the community in order to validate the findings and prioritize the issues. 37 Annex III: Facilitation Facilitation is a skill that has to be learned, it is different from chairing a formal meeting. In order to have a successful dialogue session a good facilitator needs to be chosen. An effective facilitator will take the group through the process of: Who are we? Where are we? Where do we want to go? What will we do as individuals and with others to make a difference? A good facilitator: Is trustworthy, impartial and culturally sensitive. Speaks clearly and positively. Listens and inspires conversations. Notices and responds when participants are losing interest. A suitably flexible facilitator Plans the agenda in advance but is flexible on the day. Can engage participants in the conversation. Ensures that the purpose of the meeting is clear and agreed upon by all participants. An experienced facilitator Focuses on guiding the meeting rather than talking. Ensures that all voices are heard and prevents vocal members from dominating the discussions. Listens actively and encourages all members to do the same. Constructively manages conflict. Clarifies where necessary by paraphrasing what has just been said and checking accuracy. Accepts and summarizes expressed opinions. Summarizes at intervals the conclusion the meeting appears to be reaching. 38 Keeps the meeting on track. Helps participants to draw conclusions at the end and determine clear actions. Builds on comments made by others so that the dialogue develops. Points to consider Choose a facilitator who is culturally appropriate and familiar with the community. The facilitator should have the necessary knowledge and skills for the task. Seek views of communities and stakeholders who have worked with the facilitator to get a balanced perspective. Contact facilitators on time to allow them to prepare for the dialogue. Arrange an initial meeting with the facilitator to plan the dialogue decide on the outcomes and let them ask questions. 39 Annex IV: Questions to help gather information about the community Socio Economic Profile A. History How far back was the community formed? History of collective action to address any health issue(s) and what were the results? B. Geography Where is the community located? Characteristics that may affect implementation of a community dialogue effort like dispersed population, highly populated neighborhoods, weather /seasons, mountainous topography C. Economy Current economic situation of the community for example high unemployment rate. What is the average income of the families in the community? What is the proportion of families considered poor in the community? What is the level of external assistance? Employment by history. D. Gender relations/roles What are the traditional men’s /boys’ and women’s /girls’ roles? What proportion of men and women does the issue directly affect? Who has access to information, services and resources? What are the power relations between sexes? E. Politics, leaders and organizations What is the traditional organizational structure of the community? Who leads? Which groups of people participate in decision-making? Who are the official community leaders? Who are the informal /traditional leaders? 40 How are community decisions made? Who participates in decisionmaking process? How is official leadership transferred? Links between the community and other external political systems (representation in a district or municipal body). F. Social cultural context Class. Ethnic groups. Dominant languages. Religions available in the area. Age of the general population. Wealthy ranking. Who is rich? Who is poor? How do you know? How do people support themselves and their families? What is the coping mechanism of affected and infected families in the community? How is land allocated? G. Epidemiology and health systems Frequency of health problems in identified groups (from existing studies, health statistics). Factors related to the health issue i.e. how HIV is transmitted among the general population. What role does traditional medicine play? Coverage /utilization of public/private /traditional health services. What challenges faced by the health system? What are the strengths and weaknesses of the health care delivery system? Partner stakeholder analysis (How many NGOs, CBOs, FBOs, youth groups, support groups work in the area?) How many organizations are engaged in HIV and AIDS prevention, care, treatment and support activities? 41 NB: Answers to some of the above may be sourced from books, reports, facility based surveys, service coverage reports, etc. 42 QUESTION GUIDE FOR SPECIFIC HIV AND AIDS ISSUES Below is a list of some of the specific HIV and AIDS issues that may be explored (this is not exhaustive): 1.0 HIV Prevention What are the risky behaviour that people indulged in? What are the cultural practices for example traditional rituals that expose community members to HIV infection? What has been the response of traditional and political leaders to the increase in HIV infection? Can you give incidences of stigma and discrimination against the affected families? Do you have groups addressing HIV prevention among major target groups like women and the youth? Are condoms readily available for HIV prevention? Is the community having open and reflective dialogue on HIV prevention? 2.0 HIV Prevention (Chichewa) Ndi njira ziti zimene zimathandiza kufalitsa kachirombo ka HIV? Nanga ndi mchitidwe uti umene ukupangitsa kuti ka chiromboko kakhale kakufalirabe? Ndi miyambo iti imene tikuona kuti ikuthandiza kufalitsa kachilombo ka HIV? Tikuchitapo chiyani kuti tipewe kutenga kachilombo ka HIV? Kodi achinyamata akutha kudzisunga mpaka atalowa mbanja? Kodi achinyamata akamalowa mbanja akumakayezetsa magazi kaye? Ndi anthu angati amene tingakhale omasuka kugwiritsa ntchito kondomu pogonana? Kodi anthu ndiomasuka kukambirana za Edzi kudera lino? Kodi pali magulu kapena mabungwe amene amathandiza kupereka uthenga wa Edzi kuno? Ndi njira zina ziti zimene timamvera uthenga wa Edzi? 43 3.0 PLHIV How is the community currently coping with the increase in AIDS related illnesses? What are the coping mechanisms for PLHIV? What community initiatives exist for PLHIV? What community support is provided for PLHIV? Do PLHIV participate in development activities? What are the priority needs of PLHIV in your community? 4.0 Care givers of PLHIV What type of support is provided to caregivers? What type of support do caregivers need? How do caregivers support one another? What is the level of involvement of men in care giving? What is the community doing to support caregivers? 5.0 Youth What youth programmes exist in the communities? What youth programmes exist in the communities? How is information on HIV prevention disseminated? How do youth learn about sex and sexuality? Where do the youth seek advice on sex and sexuality? Evidence of parent child communication on sex and sexuality? How are the youth practicing safe sex and who are abstaining from sex? What motivated them to change their behaviour? How could they be role models for other youth? What influences them to have unsafe sex? For those practicing unsafe sex what strategies could they work on as a community to protect themselves? What role do youth in the community play in supporting other community based initiatives? 6.0 Orphans and vulnerable children Which children are vulnerable in the community? How are orphans defined in the community? 44 Have orphans and vulnerable children been registered in each community? How many orphans and vulnerable children are living in the communities? Where do they live? How is the community currently coping and responding to orphans and vulnerable children? Is there any presence of child headed households and how do they feel about their role? Who supports orphans in child headed households? Are these orphans in school or not? If not why? What are their priority needs? Who provides psychological support to orphans? Who provides nutritional needs requirements to OVCs and women? How does the community ensure food security? Is there any educational support for OVC? Where do they get these services? What is the role of the community in care for orphans and vulnerable children? How do you prepare the community for adult life? What kind of activities are communities involved in? What kinds of activities are communities involved in? How long do communities engage in such activities per day? Do you have village registers? Is stigma and discrimination an issue that could be prevented? Why is it important to prevent stigma and discrimination? What rights does an orphan have? How do you ensure that care and support is provided to OVC and their families? Do you have any support groups in the community? 7.0 Guardians of orphans What problems do guardians of OVCs face? What types of support do guardians of orphans need? 45 What type of support are these guardians already receiving from the community, organizations working in the areas or opinion leaders? How do they think they may support each other? 8.0 Economic support What are the sources of income for community members? Do you have any lending institutions? Are women involved in IGAs? What IGAs do women and men have? Who controls the resources at home? What are the IGA support groups in the community? Is there a social cash/safety net scheme for the poor in the society? How does the community ensure food security? What support do groups provide to OVC and women? 9.0 Gender and human rights What are the roles of women and men in this community? Are strategies and activities involving all gender groups? Are these user-friendly by all these gender groups? What is the degree of involvement for women in decision-making issues in this community? Do these vulnerable groups deserve equal access to services Who makes decisions concerning sex in the home, community? Are female controlled HIV prevention methods like the female condom available in the community? Are there cases of gender-based violence in the community? What structures does the community have to handle gender-based violence? What are human rights? How are they violated? Is there any violation of rights of other individuals? Who are the most affected groups in this community whose rights are violated? What could the community provide to protect and fulfill the rights of these vulnerable, marginalized groups of people? 46 10.0 Cultural practices What are the prominent cultural practices that you have in this community? What are the advantages of these cultural practices Do you think some of these cultural practices can increase HIV transmission or have negative reproductive health outcomes Is there any need to modify these cultural practices Does the community ever use traditional medicine? When? Are there any alternatives to traditional medicines? What are the responsibilities of community leaders as guardians of culture? What role can these community leaders play in the modification of harmful cultural practices? 11.0 Access to HIV and AIDS services Treatment of opportunistic infections Kodi anthu amene akudwala amakapeza kuti chithandizo cha mankhwala? Kodi pali zovuta zimene odwala amakumana nazo pofuna kupeze chithandizo cha mankhwala? Anti-retroviral treatment (ART) Kodi anthu akayezetsa nkupezeka ndi kachirombo ka HIV akumalandira chithandizo chotani? Kodi anthu amakapeza kuti thandizo la mankhwala a ARV? Ndi zovuta ziti zomwe anthu amakumana nazo pofuna kupeza ma ARV. Pediatric ART Kodi ana amene anapezeka ndi kachirombo ka HIV amalandira thandizo lotani? Kodi ana amene anapezeka ndi HIV akumalandiranso ma ARV? Nanga ndi zovuta ziti zimene zimakhalapo kuti ana apeze ma ARV? 47 Prevention of Mother to Child Transmission (PMTCT) Ndi njira ziti zimene mayi oyembekezera angapatsire mwana wake kachirombo ka HIV? Tingasatire njira ziti kuti mwana asatenge kachirombo ka HIV kuchokera kwa mayi wake amene ali ndi kachiromboka? Amayi oyembekezera amalandira kuti uphungu akapezeka kuti ali ndi HIV? Amayi amene apezeka ndi kachirombo ka HIV amalandira chithandizo chotani kuti asapastire mwana wawo kachirombo ka HIV. Tingachite bwanji kuti mwana woti amai ake ali ndi kachirombo ka HIV asatenge kachilombo kuchokera kwa mai ake. PMTCT (English) Where do pregnant women access Antenatal services? Is there a programme in this community that ensures that all pregnant women deliver at a health facility? Does the community have a say in ensuring that all pregnant women access Antenatal services and deliver at a health facility? Who follows them up in the community to ensure that the women maintain the post-natal checkups? What role does the community play in ensuring safe motherhood for all pregnant women? HIV Testing and Counselling Kodi ubwino woyezesta magazi ndi otani? Kodi anthu akafuna kuyezetsa magazi amapita kuti? Kodi anthu kuno amakhala omasuka kukayezetsa magazi? Kodi anthu akapezeka ndi kachirombo ka HIV amaulandira bwanji uthengawu? Kodi anthu ali omasuka kuwawuza ena za mmene magazi awo alili? Nanga anthu a m’banja amawauza akazi/ amuna awo za zotsatira zakuyezetsa magazi awo akapezeka kuti ali ndi kachirombo ka HIV? Kodi achinyamata akamalowa mbanja akumayezetsa magazi awo? 48 Integrated home based care Kodi ndi mabungwe ati amene amathandizapo pa ntchito yo samalira odwala? Kodi pali anthu odzipereka pa nkhani yosamalira anthu amene akudwaloa? Kod udindo wa abambo pa nkhani yosamalira anthu odwala ndi wotani? Kodi anthu osamalira odwalawa amathandizidwa bwanji? Kodi pamene matenda afika popita nawo kuchipatala timayenda bwanji? Kodi anthu amene ali ndi kachirombo ka HIV amasalidwa? Nutritional support Anthu odwala Edzi amadya chakudya chotani? Pali zovuta ziti zimene timakumana nazo kuti anthu odwala apeze chakudya choyenera? Psychosocial Support Kodi anthu amene akhudzidwa ndi matendawa timakhala nawo bwanji kuti asamakhale modandaula? Timatengapo gawo lanji powapeputsa anthu odwala pa ntchito zawo? Ndi ndani amene amapereka uphungu kwa anthu okhudzidwa ndi nthendayi? 49 References AIDSCAP. (1998). HIV/AIDS Care and Support Projects: Using Behaviour Change Communication Techniques to Design and Implement Care and Support Projects. Arlington, Virginia, USA. AIDSCAP. (1991). How to Create an Effective Peer Education Project: Guidelines for AIDS Prevention Project. Arlington, Virginia, USA. AIDSCAP. (1996). Behaviour Change through Mass Communication: Busing Mass Media for AIDS Prevention. Arlington, Virginia, USA. AIDSCAP. (1996). How to Create an Effective Communication Project: Using the AIDSCAP Strategy to Develop Successful Behaviour Change Interventions. Arlington, Virginia, USA. Bhatnaggar, B. and William, A.C. (1992). “Participatory development and the World Bank-Potential Direction for Change.” The world Bank Discussion Papers, No. 18. Boot, E.M. (1996). A Participatory Process for Selecting Target Behaviours in Environmental Programmes. Academy for Education Development, Washington DC. Centres for Diseases Control. (2001). HIV Prevention Community Planning: Facilitating Meetings; A Guide for Community Planning Groups. New York, USA. Centre for Social Research. (1994). Evaluation of UNICEF Social Mobilization Programme. Zomba, Malawi. Hussain, A., Sethi, H., Wignaraja, G. (eds) (1991). Participatory Development: Learning from South Asia. Oxford University Press and United Nations University Press, India. 50 Jong, De D. (2003). Strategic Thinking: Understanding Advocacy, Social Mobilisation and Communication. International water and Sanitation Centre (IRC). McKee, N, et.al. (2004). Strategic Communication in the HIV/AIDS Epidemic. Sage Publications, New Delhi, India. National AIDS Commission and Ministry of Health (2003). National Behaviour Change Interventions Strategy for HIV/AIDS and Sexual Reproductive Health. Lilongwe, Malawi. National AIDS Commission (2003). National HIV and AIDS Policy: A Call to Renewed Action. Lilongwe, Malawi. National AIDS Commission (2005). Malawi HIV and AIDS National Action Framework (NAF) 2005-2009, Lilongwe, Malawi. National Statistical Office (NSO) Malawi and ORC Macro. (2005). Malawi Demographic and Health Survey 2004. Calverton, Maryland: NSO and ORC Macro. UNAIDS. (2001). HIV/AIDS and Communication for Behaviour and Social Change: Programme Experiences, examples, and Way Forward. UNAIDS, Geneva, Switzerland. Wignaraja, P. (1993). New Social Movements in the South: Empowering the People. ZED Books, India and Sage Publications, United Kingdom. Wignaraja, P. and Sirivadana, S. (eds) (1998). Readings on Pro-poor Planning Through Social Mobilisation in South Asia: The Strategic Option for Poverty Eradication (Vol.1), Vikas Publications, India. WHO and UNICEF. (2005). Key Family and Community Child Care. WHO and UNICEF. 51