April 19, 2007 1 Pediatric Bleeding Questionnaire (PBQ) Subject data Date Child’s Name Parent’s Name Address Email Phone Number Gender Male Age Female DOB (dd/mm/yy) Ethnic Background of: Father Mother Presenting complaint of bleeding or bruising today? Yes Ever been diagnosed with a bleeding disorder? Yes No Diagnosis: No # of 1 degree family members studied degree family members Notes: Total # of 1st degree family members # of diagnosed 1st ABO Blood Group A B AB O Present questionnaire completed by Menarche st N/A Rh - Rh + Father Yes Mother Subject Age of menarche: No Are you currently taking oral contraceptive pills? Yes Brand Name: No Specify any herbals and/or medications that you have taken in the past 30 days: Name Dose Route Frequency Duration _____________________________________________________________________________ _____________________________________________________________________________ _____________________________________________________________________________ _____________________________________________________________________________ Past Medical History Chief Complaint Temperature (day of blood work) April 19, 2007 2 Pediatric Bleeding Questionnaire (PBQ) Bleeding symptoms No Epistaxis If Yes, Trivial Significant AVERAGE PRESENTATION Age of maximum severity 0 - 4 years 4 - 8 years 8 - 12 years 12 - 16 years 16 - 20 years Number episodes/year <1 1-5 6 - 12 > 12 Duration of average single episode < 1 minute 1-10 minutes > 10 minutes Spontaneous? Yes No Both nostrils? Yes No After drug ingestion (e.g.aspirin) Yes No Seasonal correlation Yes No Specify: spontaneous after compression by medical intervention Cessation REPORT TREATMENT OF THE MOST SEVERE EPISODE Required medical attention? If yes, please specify: Consultation only Packing Cauterization Antifibrinolytics Desmopressin Replacement therapy Blood transfusion Notes Yes # of times # of times # of times # of times # of times # of times No April 19, 2007 3 Pediatric Bleeding Questionnaire (PBQ) Cutaneous symptoms No If Yes, Trivial Significant AVERAGE PRESENTATION Type Petechiae Bruises Hematomas Location of lesions (if any) Exposed sites Unexposed sites Both Size of average < 1 cm 1 – 5 cm > 5 cm Minimal or no trauma Yes No REPORT TREATMENT OF THE MOST SEVERE EPISODE Yes Required medical attention? No If yes, please specify: Consultation only Notes Bleeding from minor wounds No If Yes, Trivial Significant AVERAGE PRESENTATION Number episodes/year <1 1-5 6 - 12 > 12 Duration of average single episode < 5 mins. > 5 mins. REPORT TREATMENT OF THE MOST SEVERE EPISODE Required medical attention? Yes If yes, please specify: Consultation or Steri-strips Surgical hemostasis Antifibrinolytics Desmopressin Replacement therapy Blood transfusion Notes # of times # of times # of times # of times # of times # of times No April 19, 2007 4 Pediatric Bleeding Questionnaire (PBQ) Oral cavity bleeding No If Yes, Trivial Significant AVERAGE PRESENTATION Tooth eruption/loss Gums, spontaneous Gums, after brushing Prolonged bleeding after Type of bleeding bites to lip & tongue Hemorrhagic bullae REPORT TREATMENT OF THE MOST SEVERE EPISODE Required medical attention? Yes If yes, please specify: Consultation only Surgical hemostasis Antifibrinolytics Desmopressin Replacement therapy Blood transfusion No # of times # of times # of times # of times # of times Notes Tooth extraction No If Yes, Trivial Total # of teeth extracted # of teeth extracted followed by bleeding Significant MOST SEVERE OCCURRENCE Age at extraction Prophylaxis before extraction? Bleeding after extraction? Actions taken to control bleeding Notes Type of extraction Deciduous Permanent None Antifibrinolytics Desmopressin Replacement therapy Yes None Consultation only Resuturing Packing Antifibrinolytics Desmopressin Replacement therapy Blood transfusion No April 19, 2007 5 Pediatric Bleeding Questionnaire (PBQ) Gastrointestinal bleeding No Yes AVERAGE PRESENTATION # of episodes Type of bleeding Hematemesis Melena Hematochezia Presence of associated GI disease Yes Gastritis/ulcer No Colitis Mallory-Weiss tear Vascular malformations Other REPORT TREATMENT OF THE MOST SEVERE EPISODE Required medical attention? Yes If yes, please specify: Consultation only Surgical hemostasis Antifibrinolytics Desmopressin Replacement therapy Blood transfusion Notes # of times # of times # of times # of times # of times No April 19, 2007 6 Pediatric Bleeding Questionnaire (PBQ) Surgery No If Yes, Total # of surgeries # of surgeries followed by bleeding Specify Trivial Significant MOST SEVERE OCCURRENCE Age at surgery Prophylaxis before surgery? Bleeding after surgery? Actions taken to control bleeding Notes Type of surgery Specify None Antifibrinolytics Desmopressin Replacement therapy Yes None Consultation only Resuturing/surgical Antifibrinolytics Desmopressin Replacement therapy Blood transfusion No April 19, 2007 7 Pediatric Bleeding Questionnaire (PBQ) Menorrhagia N/A Duration of average menstruation (days) How often do you change your pads/tampons No Yes Duration of heavy (days) on heaviest days on average days _______ hours _______ hours What type of feminine product do you use? (i.e. panty liner, super absorbency tampon etc.) Comments MOST SEVERE PRESENTATION Age of maximum severity 8-12 13-16 17-20 Required medical attention? If yes, please specify: Consultation only Pill use Antifibrinolytics Dilatation & curettage Iron therapy Desmopressin Replacement therapy Blood transfusion Hysterectomy Notes >20 yrs Yes # of times # of times No April 19, 2007 8 Pediatric Bleeding Questionnaire (PBQ) Post-partum hemorrhage N/A Total # of deliveries No If Yes, Trivial # of deliveries followed by bleeding Significant MOST SEVERE OCCURRENCE Age at delivery Mode of delivery spontaneous assisted c-section Prophylaxis before delivery None Antifibrinolytics Desmopressin Replacement therapy Bleeding after delivery? Yes Actions taken to control bleeding None Consultation only Resuturing/surgical Antifibrinolytics Desmopressin Replacement therapy Blood transfusion Hysterectomy Notes No April 19, 2007 9 Pediatric Bleeding Questionnaire (PBQ) No Muscle hematomas Yes Total # MOST SEVERE PRESENTATION Please specify type & location Post-trauma? Prophylaxis? Required medical attention? Yes None Antifibrinolytics Desmopressin Replacement therapy Yes If yes, please specify: Surgical intervention Desmopressin Replacement therapy Blood transfusion Notes No No April 19, 2007 10 Pediatric Bleeding Questionnaire (PBQ) No Hemarthrosis Yes Total # MOST SEVERE PRESENTATION Please specify type & location Yes Post-trauma? No None Antifibrinolytics Desmopressin Replacement therapy Prophylaxis? Yes Required medical attention? No If yes, please specify: Surgical intervention Desmopressin Replacement therapy Blood transfusion Notes CNS bleeding No Yes Intracerebral, any intervention If yes, type of bleeding Subdural, any intervention April 19, 2007 11 Pediatric Bleeding Questionnaire (PBQ) No Yes Umbilical stump Cephalohematoma Bleeding at circumcision Venipuncture bleeding Hematuria, macroscopic Other bleeding If yes, type of bleeding Male, not circumcised Male, circumcised Female Suction Bleeding MOST SEVERE PRESENTATION Please specify type Required medical attention? If yes, please specify: Consultation only Iron therapy Surgical hemostasis Antifibrinolytics Desmopressin Replacement therapy Blood transfusion Notes Yes # of times # of times # of times # of times # of times # of times No April 19, 2007 12 Pediatric Bleeding Questionnaire (PBQ) Other bleeding continued MOST SEVERE PRESENTATION Please specify type Required medical attention? If yes, please specify: Consultation only Iron therapy Surgical hemostasis Antifibrinolytics Desmopressin Replacement therapy Blood transfusion Yes No # of times # of times # of times # of times # of times # of times Notes MOST SEVERE PRESENTATION Please specify type Required medical attention? If yes, please specify: Consultation only Iron therapy Surgical hemostasis Antifibrinolytics Desmopressin Replacement therapy Blood transfusion Notes Yes # of times # of times # of times # of times # of times # of times No April 19, 2007 13 Pediatric Bleeding Questionnaire (PBQ) Table 1 Score -1 0 1 No or trivial (≤5 per year) No or trivial (≤1cm) >5 per year OR >10 minutes duration >1cm AND no trauma Consultation only - No or trivial (≤5 per year) No >5 per year OR >5 minutes duration Reported at least once Consultation only or Steristrips Consultation only Gastrointestinal tract - No Identified cause Consultation or spontaneous Tooth extraction No bleeding in at least 2 extractions Reported, no consultation Consultation only Surgery No bleeding in at least 2 surgeries - None done or no bleeding in 1 extraction None done or no bleeding in 1 No Reported, no consultation Reported or consultation only Consultation only No bleeding in at least 2 deliveries - No deliveries or no bleeding in 1 delivery Never Reported or consultation only Post-trauma, no therapy D&C, iron therapy or antifibrinolytics Spontaneous, no therapy Spontaneous, no therapy Symptom Epistaxis - Cutaneous - Minor wounds - Oral cavity Menorrhagia Post-partum Muscle hematoma Hemarthrosis - Never Post-trauma, no therapy Central nervous system Other * - Never - - No Reported 2 3 Consultation only Antifibrinolytics or contraceptive pill use Consultation only 4 Packing, cauterization or antifibrinolytics - Blood transfusion, replacement therapy or desmopressin - Surgical hemostasis or antifibrinolytics Surgical hemostasis or antifibrinolytics Surgical hemostasis, antifibrinolytics, blood transfusion, replacement therapy or desmopressin Resuturing, repacking or antifibrinolytics Blood transfusion, replacement therapy or desmopressin Blood transfusion, replacement therapy or desmopressin - Surgical hemostasis or antifibrinolytics D&C or iron therapy Blood transfusion, replacement therapy or desmopressin Blood transfusion, replacement therapy, desmopressin or hysterectomy - Blood transfusion, replacement therapy or desmopressin Spontaneous or traumatic, requiring replacement therapy or desmopressin Spontaneous or traumatic, requiring replacement therapy or desmopressin Subdural, any intervention Surgical hemostasis, antifibrinolytics or iron therapy Blood transfusion, replacement therapy or desmopressin Spontaneous or traumatic, requiring surgical intervention or blood transfusion Spontaneous or traumatic, requiring surgical intervention or blood transfusion Intracerebral, any intervention Blood transfusion, replacement therapy or desmopressin Table 1 shows the scoring key for the Pediatric Bleeding Questionnaire. In the last row, the symptoms included in the “Other” category are: umbilical stump bleeding, cephalohematoma, post-circumcision bleeding, post-venipuncture bleeding, and macroscopic hematuria.