Epilepsy: Strategies for teachers Introduction Epilepsy is not a disease, but a malfunction of the electrical pathways in the neurons (nerve cells) of the brain. Epileptic seizures are a result of these neuro-electrical irregularities in the brain neurons. Anti-convulsant medication can either completely or partially control seizures in approximately 80 percent of the epileptic individuals. A major problem with epileptic students whose seizures are not completely controlled by medication is the non-predictability of the occurrence of seizures. General Strategies Bring to the student's attention role models with a similar disability. Point out that this individual got ahead by a combination of effort and by asking for help when needed. During a student's epileptic seizure, the first rule is for you to remain calm. There is nothing you can do to stop the seizure once it has begun. Do not try to restrain the individual. If it is a convulsive seizure, lower the person to the ground or floor in a cleared area, if possible, and clear the area of furniture or materials in order to avoid injury. Try not to interfere with movements in any way. Loosen ties and shirt collars, and place something soft under his/her head. When the person regains consciousness, reassure him/her and ask what additional assistance is needed. If a seizure lasts longer than 10 minutes, or if multiple seizures occur without the person regaining consciousness, treat it as a medical emergency and call 911. For a non-convulsive seizure, no medical action is typically needed. Stay with the individual and gently guide them away from obvious hazards. Speak calmly and be reassuringly to him/her. Stay with the person until they are completely aware of the environment around them. Teaching Strategies 1. Children with "absence" seizures frequently blank out during the day causing them to miss relevant instructions and content. Try to repeat instructions several times or use a consistent 'step-by-step' strategy for them to follow. 2. Establish a 'buddy system' for the child with seizures. The buddy can answer questions, and provide missed class work and homework. 3. Ask the child with epilepsy if they would prefer to sit at the front of the class to aid in concentration. 4. Use physical prompts (pointing to a page, writing on the blackboard) to help keep the student oriented. 5. After a seizure the child may be too exhausted to write a test or give a presentation to the class. While it is important to maximize the amount of instruction time by keeping the child in the classroom it may also be necessary to modify expectations based on seizure activity. 6. Try to make the child's experience as 'normal' as possible. It is important not to be overprotective, or to allow exemptions or restrictions in the early years to damage a child's emotional growth. 7. Do not allow the child to carry out any activity more than 1 m (3') off the ground, e.g. gym class, in the playground. 8. Children should be allowed to go swimming, but with adult supervision. Seizure Disorder In event of grand mal seizure, the student may experience moderate to severe conditions of muscle contraction, twitching and limb jerking. Keep calm and remove surrounding objects that might injure the student. Call for medical help or ask someone to call. Do not restrain bodily movements or force anything between the student's teeth. Lower the person to the floor, lay head on cushion and turn it sideways. 1. Children with "absence" seizures frequently blank out during the day causing them to miss relevant instructions and content. Try to repeat instructions several times or use a consistent 'step-by-step' strategy for them to follow. 2. Establish a 'buddy system' for the child with seizures. The buddy can answer questions, and provide missed class work and homework. 3. Ask the child with epilepsy if they would prefer to sit at the front of the class to aid in concentration. 4. Use physical prompts (pointing to a page, writing on the blackboard) to help keep the student oriented. 5. After a seizure the child may be too exhausted to write a test or give a presentation to the class. While it is important to maximize the amount of instruction time by keeping the child in the classroom it may also be necessary to modify expectations based on seizure activity. 6. Try to make the child's experience as 'normal' as possible. It is important not to be overprotective, or to allow exemptions or restrictions in the early years to damage a child's emotional growth. 7. Do not allow the child to carry out any activity more than 1 m (3') off the ground, e.g. gym class, in the playground. 8. Children should be allowed to go swimming, but with adult supervision. Watch for Signs of Depression Depression is quite common in children who have epilepsy. It may be a side effect of medication, or be caused by other factors such as stress, major disappointment, or chemical imbalance in the body. The diagnosis itself is incredibly overwhelming for a child! Depression can have a major impact on a child's life. It's important to be aware of the possibility that the child with a seizure disorder may feel depressed. Teachers, please look for these signs in the classroom and report them to the child's parents: EmotionalThe child may exhibit a troubled and unhappy state of changes:mind. The child may feel worried, guilty, angry, fearful, helpless, lonely, and be quiet or withdrawn. IntellectualThe child may have trouble concentrating or experience changes:chronic negative thoughts. Look for a child who was a good student but suddenly receives poor marks. PhysicalThe child may complain of headaches or general aches and changes:pains. He may be unmotivated, and lethargic. The child may also develop eating problems. BehaviouralThe child may withdraw from others and not want to changes:interact with friends, play or take part in fun activities he or she used to enjoy. The child may cry easily and display angry or aggressive behaviours. Emergency and First Aid Action! When to call 9-1-1 Does the child have a history of seizures? Call for help when the child who has no known history of seizures has one. Confusion after a seizure is always common. Always notify parents if their child has a seizure, unless the seizure is a brief blank spell. When a seizure lasts for more than 5 minutes, or appears to end and then starts again – seek medical assistance. This may be a condition called status epilepticus – a life threatening medical emergency. When a child is physically hurt during a seizure (cuts head, falls off play equipment, burns hands). When a seizure is in the water – inhaling water can cause heart or lung damage. Epilepsy and Learning Epilepsy is a chronic disorder. The occurrence and frequency of seizures are unpredictable. The Child, the family, and the teacher must learn to live with this uncertainty, and not let fear of a seizure interrupt a normal life. Children with epilepsy exhibit the same wide range of intelligence and ability as other children. Children don't require special education simply because they have epilepsy. Some children with epilepsy may require it just as some children without epilepsy will require it. Many children do need extra support because of the side effects of their medications and other brain anomalies. Some neurological disorders that cause epilepsy may also cause learning difficulties. In the early years severe, frequent seizures can affect the learning process, causing cognitive delays. In the school years, absenteeism can impact the learning process by causing the child to miss socialization opportunities and class instruction. Children also feel tired after nocturnal or frequent seizures. Psychosocial effects of seizures, including feelings of lack of control, poor self image, poor attitude toward school and social problems can affect school performance. Negative reactions from peer groups and teachers to epilepsy can adversely affect the child with a seizure disorder. Possible Seizure Triggers at School o o o o o o o Not taking medications properly Stress generated by change Poor diet and eating habits Stress, excitement, & emotional upset Lack of sleep Inactivity and boredom – research has shown that individuals who are isolated and overprotected are more likely to have a seizure Television, videos, computer screens, and flashing lights, or anything with a strobe effect can trigger seizures Memory and Concentration: Essentials for School There is no cure for epilepsy. Seizures can be controlled in an estimated 80% of all cases by the use of anti-convulsant medication, and in 70-80% of children the epilepsy resolves after a few years. Possible Side Effects of Medications: Learning Capacity: concentration, short term memory loss Alertness: hyperactivity, drowsiness, fatigue Motor Capacity: hand, eye, balance, speech co-ordination General well-being: unsteadiness, vomiting, dizziness Mood changes: depression, aggressiveness, anti-social behaviours Toxicity: liver damage, anemia Seizures Come in Many Shapes and Sizes Absence Seizures These are common in children and are often associated with learning difficulties. This seizure type is often undiagnosed. Simple Partial Seizures This seizure type looks like a staring spell or daydreaming. The student experiences a brief loss of consciousness accompanied by eye blinking, slight muscle movements around the mouth, or arm movements. These seizures usually last 2-10 seconds but happen frequently throughout the day. After the seizure, the child will immediately regain full awareness and be able to resume full activity. Often go undiagnosed until a more significant seizure occurs. What You Can Do to Help Inform the parent that you believe the child may be having this type of seizure. Let the student know what they missed from the lesson/activity once he or she regains awareness. Pair the student up with a buddy who can help fill in the gaps. Repeat all expectations & instructions several times. These seizures are limited to one area of the brain. The student will not lose consciousness during a seizure The child's senses could be distorted causing him to see, hear, or smell experiences that are not real. He or she may have unusual feelings. This type of seizure usually lasts 1-5 minutes although it may last longer. One or more limbs may have jerky movements which cannot be stopped. It may be necessary to comfort and reassure the child. Complex Partial Seizures These seizures may cause the child to express a variety of inappropriate automatic behaviours such as tapping the desk, picking at clothes, making chewing movements, or wandering around. Student loses awareness of surroundings. This type of seizure usually lasts 1 to 5 minutes. Recovery will be gradual and the child may feel confused for a while after a seizure. Child cannot recall what happened during a seizure. What You Can Do to Help If the child wanders, gently lead him back to his seat. Speak to the child calmly and reassure him or her. Do not grab the student or speak loudly. Guide the child away from obvious hazards such as stairs, play equipment, or Bunsen burners. If the child is confused afterwards, help to re-orient him. Generalized Tonic-Clonic Seizures At the start of a seizure, the child will cry out as the chest muscles contract, forcing air out of the lungs. The student will fall unconscious, his/her muscles will stiffen and then the extremities will jerk and twitch. The child may lose bladder and/or bowel control. The eyes may roll back and the child may drool. If the student bleeds from the mouth, it's probably because he or she has bitten his/her tongue. Breathing may be shallow or even stop temporarily, then return once the jerking movements stop. This will cause the pulse to be weak and skin and lips to turn bluish – but colour will come back. These seizures usually last a few minutes but they may last considerably longer. The child may be confused and tired after the seizure. What You Can Do to Help Do NOT put anything in the child's mouth. Do not restrain the child. Move the child away from furniture or any other object which may harm them. Turn the child on his/her side to keep the air passage clear after the seizure is over. Place a pillow or jacket (whatever is handy) under the child's head. Try to provide a sense of security (talk in a calm voice). Let the child rest after the seizure is over. If the seizure lasts more than 5 minutes, phone for an ambulance. Note the time the seizure starts and ends.