Lions LOVRNET A new Lions program to meet the growing need for effective low vision rehabilitation We need Lions as interviewers. and as direct service providers. Please consider recommending a local ophthalmologist and help spread the word in your community Low Vision Definition Low vision is defined as visual acuity of 20/50 or worse in the better eye while wearing glasses or contact lenses and/or blind spots or loss of peripheral vision that interferes with the performance of everyday activities. “Low vision” cannot be improved by glasses, surgery or medication. The growing need for low vision rehabilitation Most cases of low vision in the United States are caused by age-related eye diseases – Macular Degeneration – Glaucoma – Diabetic Retinopathy and other Retinal Vascular Diseases – Cataracts Causes of Low Vision Other 15% Cataract 5% Glaucoma 10% Macular disease 59% Retinal vascular disease 11% Nearly 85% of people who need low vision rehabilitation are not being served Each year, an estimated 5,850 visually impaired patients in MD/DE/DC region receive low vision rehabilitation services – Approximately 40% of the current annual incidence is being served – Incorporating the annual death rate for the population of people with low vision, the 5-year backlog is 18,611 (assuming annual incidence does not change and people drop out after 5 years) – Including the 5-year backlog, only about 15% of the current need in MD/DE/DC is being served Additional problems reported by low vision clinic outpatients • 40% have a hearing impairment (19% wear a hearing aid) • 19% report numbness in their fingers • 10% have memory loss • 20% have clinically significant depression • 50% have physical limitations on their mobility • 35% have experienced falls in the past 2 years • 50% have chronic pain • More than a third are taking multiple medications Summary of the problem • There is a severe shortage of eye doctors and therapists who provide low vision rehabilitation services, while the demand for services is growing rapidly • Many ophthalmologists do not order low vision rehabilitation services for their patients (“chicken or egg” problem) • Health professionals and the general public know little about the availability, quality, or effectiveness of low vision rehabilitation and community services for visually impaired people Lions Low Vision Rehabilitation Network (Lions LOVRNET) A three year demonstration project in Maryland, Delaware, and District of Columbia (Lions Multiple District 22) to: 1. Train and equip local optometrists and ophthalmologists in private practice and occupational therapists in home health agencies to provide low vision rehabilitation services Lions Low Vision Rehabilitation Network (Lions LOVRNET) 2. Create a single portal for ophthalmologists to refer low vision patients for service (online or by phone), and a system for matching patients with local service providers Lions Low Vision Rehabilitation Network (Lions LOVRNET) 3. Train and equip Lions Club members to educate the public and doctors in the community about low vision and low vision rehabilitation. Currently available with CD including discussion guide and questionnaire: “Lions Blindness and Low Vision Education Project” developed by NFB, Wilmer, Bloomberg, and Lions. Lions Low Vision Rehabilitation Network (Lions LOVRNET) 4. Measure patient reported outcomes and provide continuous professional education to improve the quality and effectiveness of low vision rehabilitation services Lions Low Vision Rehabilitation Network (Lions LOVRNET) 5. Train Lions Club members to provide transportation and in-home follow-up assistance to low vision patients. CD currently available. Sponsors • Lions Clubs International Foundation Sight First Program • Reader’s Digest Partners for Sight Foundation • Lion MD22 Volunteers Roles of Lion Volunteers 1. Community Outreach – Ophthalmologist outreach program (patient referrals) – Public education (LEHP and MD22 Low Vision Education Project, DVD Available 2006!) – Vision and eye health screening of seniors (LEHP) – Community resources for people with low vision Roles of Lions Volunteers 2. Direct Service to People with Low Vision – Transportation to and from doctors appointments – In home follow up – Troubleshooting patient’s low vision devices – Assisting with home safety and vision enhancing modifications Roles of Lion Volunteers 3. Computer-assisted telephone interviews before and after provision of clinical services 4. Volunteer staffing of LOVRNET administration 5. Program Sustainability and National Expansion Lion Volunteer Requirements Lion volunteers will be required to: – Complete an on-line Health Insurance Portability and Accountability Act (HIPAA) compliance training – Complete training (online or in class training) in the area where volunteers will be teaching patients and providing assistance, and, – Undergo a background check, (a necessary requirement since volunteers will be placed in direct contact with patients) Lions have liability insurance !! Leaders Engaging Your Team Engaging Your Team Appoint Sight Chairpersons! • • • • • • • District and MD Sight Chairperson Leadership training Orientation Sight Chairperson webpage Review existing sight projects Discuss goals and objectives Develop action plans 18 Engaging Your Team Make Vision a Health Priority! • • • • • Promote the importance of community awareness Form LEHP in your community Zone and or Region meetings and conferences Connect with other chairpersons Reach out to Lions: Newsletters E-mails Social media 19 Serving Your Community Community Outreach • Conduct community needs assessment • Work with professional partners • Contact civic organizations and places of worship to reach at-risk populations • Determine what works – and does not work in your community • Publicize - Sight and PR chairs work together 20 Training of Eye Care Professionals • Provided by the Lions Vision Research and Rehabilitation Center at the Johns Hopkins Wilmer Eye Institute • Courses online • Three levels of Professional Training – Basic (addition of low vision services to existing private optometry/ophthalmology practices and home health agencies) – Secondary (low vision specialists) – Tertiary (private and state blind rehab agencies) Lions LOVRNET Levels of Training 1. Low Vision Clinicians – Optometrists – Ophthalmologists 2. Low Vision Therapists – Occupational Therapists – Rehabilitation Therapists 3. Lion Volunteers – Local Lions club members providing direct service and public education interviews Certified Online Professional Education Courses for Low Vision Rehabilitation Professionals: – “Introduction to Ocular Anatomy” – “OT: Optics for Therapists” – “Visual Functioning and Measurement” – “Documentation and Coding for Low Vision Therapy” – “Basic Low Vision Evaluation” Online Courses for Lion Volunteers • “HIPAA Compliance Training for LIONS” • “Computer Assistive Interviewing Low Vision Patients ” • “Role of the Lion as a Driver and Guide” LOVRNET Time Lines • Project start 11/1/2013 • Official kick off June 10, 2014 • Year 1: recruitment of service providers and Lion volunteers/education of service providers, Lions, and public/pilot testing LOVRNET systems, • Year 2: full program implementation • Year 3: program continuation and evaluation, begin implementing sustainability plan and begin expanding program to areas outside MD 22 Lions LOVRNET Project Administration and Training Facilities Blind Industries and Services of Maryland (BISM) 3345 Washington Blvd Baltimore, MD Lions LOVRNET Governance • Co-Chairs – PDG Charlene Travers (Project Director) – PDG Ken Chew (LCIF Representative) • Executive Committee (Oversight of Project Operations) • Steering Committee (Oversight of Fiscal and Project Management) • Advisory Committee (Represents Lions LOVRNET Stakeholders) Lions LOVRNET Staff • Project Manager – Jim Deremeik (JHULVC) • Project Administrator – Tanesha McLeod • Lions (Volunteers) Lions LOVRNET Contacts – Project Administrator, Tanesha McLeod – 3345 Washington Blvd. – Baltimore, MD 21227 – (410) 737-2671 – tmcleod@lovrnet.org – http://www.lionsvision.org “A Roaring Thank You!” Direct Service Lion Volunteer Online Training Course The Multiple District 22 Lions LOVRNET Low Vision Rehabilitation Network Patient Interviewer Lion Volunteer Online Training Course Interviewing Low Vision Patients for Lions LOVRNET Robert W. Massof, Ph.D. Professor of Ophthalmology Johns Hopkins University School of Medicine Wilmer Eye Institute Advisory Committee • • • • • • • • • Lion PIP Clem Kusiak – LCIF liason Andy McIver – Blind Industries & Services of MD Ken Bradley, Amber Robinson – Vision Council Sue Schaffer – Maryland DORS Dan Madrid –Delaware Services for the Blind Brandon Cox – Columbia Lighthouse of the Blind Lion Jim Hindman – Patient representative TBN - Clinician representative TBN - Therapist representative Lions LOVRNET Steering Committee • • • • • • • • PDG Charlene Travers/PDG Ken Chew Co-Chairs PDG Dick Bloomquist/PCC Rowe Haywood 22A PCC John Lawrence/PDG Dave Studley 22B PID Joe Gaffigan/PDG Gary Burdette 22C PID Ted Reiver 22D PDG Clare Newcomer/Lion Bob Bullock 22W PDG Ted Ladd LVRF Chair Bob Massof/Jim Deremeik Advisors Annual incidence of low vision in Maryland, Delaware, and D.C. 282 184 294 361 408 2,037 1,624 140 994 58 68 81 1,960 282 401 1,379 60 469 1,939 224 149 135 198 142 Total annual incidence = 14,998 886 53 114 81 Nearly 85% of people who need low vision rehabilitation are not being served – Approximately 40% of the current annual incidence is being served – Incorporating the annual death rate for the population of people with low vision, the 5year backlog is 18,611 (assuming annual incidence does not change and people drop out after 5 years) – Including the 5-year backlog, only about 15% of the current need in MD/DE/DC is being served 14,000 5-year backlog of unserved patients Each year, an estimated 5,850 visually impaired patients in MD/DE/DC region receive low vision rehabilitation services 12,000 10,000 8,000 6,000 4,000 2,000 0 DE DC MD