Budget Symposium OACBDD John L. Martin, Director August 21, 2013 1 Agenda The Connection between the DODD FY 14 and 15 Biennium Budget and Olmstead 2 National Trends Olmstead and the Department of Justice: •Continued movement away from ICF/IID to waivers and smaller settings. •Movement from “sheltered work” supportive employment. 3 Supreme Court Upholds Americans with Disabilities Act ‘Integration Mandate’ in Olmstead decision on 6/22/99 In rejecting the state of Georgia’s appeal to enforce institutionalization of individuals with disabilities, the Supreme Court affirmed the right of individuals with disabilities to live in their community in its 6-3 ruling against the state of Georgia in the case Olmstead v. L.C. and E.W. The ‘integration mandate’ of the Americans with Disabilities Act (ADA) requires public agencies to provide services “in the most integrated setting appropriate to the needs of the qualified individuals with disabilities.” 4 “Olmstead was brought by, and thus decided in the context of, two women with developmental disabilities who were challenging their unnecessary segregation in a residential institution owned and operated by the State. Id. at 593. Nevertheless, neither the principles of the decision nor the integration regulation is limited to the decision’s particular facts. Thus, courts have applied the Olmstead Court’s analysis to numerous other facts and circumstances involving the unjustified isolation of persons with disabilities, including claims by persons with physical or non-mental disabilities, claims to prohibit unnecessary segregation in private segregated facilities funded under the state’s disability services system, and claims to prohibit cuts to community services that would place persons at risk of unnecessary institutionalization.” Taken from the STATEMENT OF INTEREST OF THE UNITED STATES OF AMERICA Lane v. Kitzhaber, 2:12-cv-00138-ST filed by Thomas E. Perez on April 20, 2012 in the Oregon DOJ action. 5 “Just as the text of Title II and the integration regulation is not restricted to person with mental disabilities, to state-owned facilities, or to persons already institutionalized, so too is this statutory and regulatory text not limited solely to residential settings. Accordingly, the U.S. Department of Justice has continued to make clear that the integration regulation prohibits the unnecessary segregation of persons with disabilities by public entities in non-residential settings, including segregated sheltered workshops.” Taken from the STATEMENT OF INTEREST OF THE UNITED STATES OF AMERICA Lane v. Kitzhaber, 2:12-cv-00138-ST filed by Thomas E. Perez on April 20, 2012 in the Oregon DOJ action. 6 Olmstead Activity In 2009, the Civil Rights Division launched an aggressive effort to enforce the Supreme Court’s decision in Olmstead v. L.C., a ruling that requires states to eliminate unnecessary segregation of persons with disabilities and to ensure that persons with disabilities receive services in the most integrated setting appropriate to their needs. 7 Olmstead Activity The Department of Justice continues to work with state and local governments officials, disability rights groups and attorneys around the country, and with representatives of the Department of Health and Human Services, to fashion an effective, nationwide program to enforce the integration mandate of the Department’s regulation implementing title II of the ADA. 8 Olmstead Activity An active Department of Justice armed with Olmstead and the ADA. •40 actions in 25 states in recent years –Settlement agreement –Litigation –Findings Letter 9 Ohio’s Olmstead Concerns 10 States with over 1,000 people in State Institutions age 16 and over (2009 - 2011) * State % decreased in 2 years 1. Texas 2. New Jersey 3. Illinois 4. California 5. North Carolina 6. Mississippi 7. New York 8. Ohio 9. Pennsylvania 10. Virginia National 12% 2% 12% 19% 4% 3% 12% 14% 6% 7% 12% CPD 474 622 537 908 468 310 1,430 511 753 582 # of Beds Ranking * 4,331 2,649 2,034 1,774 1,572 1,333 1,313 1,228 1,174 1,105 29,574 Indicates overall ranking of all states and D.C., number of beds adjusted for population 45 49 39 22 42 51 24 33 32 37 11 • 20 states have fewer than 100 people living in state institutions with over 16 beds. • 13 states no longer operate any facilities. 12 State with more than 1,000 private ICF/IID Beds 16 beds and above for FY 11 State # of beds 1. Ohio 1 Illinois 2 California 3 New York 4 Pennsylvania 5 Florida 6 Iowa National 3,417 3,384 2,092 2,003 1,842 1,545 1,454 23,603 13 15 states have no one living in a private facility larger than 16. 14 Nationally, over the past 10 years, the number of people living in private facilities larger than 16 beds has decreased by 33%. In Ohio, we have actually increased by 6%. 15 Our Olmstead concerns extend beyond the ICF/IID program. 16 Of the money spent in Adult Services 7% - Supported Employment 93% - Sheltered Work/Enclaves 17 There are more people receiving services in sheltered workshops in Ohio than any other state. 18 The Data Trail 19 Sheltered Workshop (SW) State 1. Ohio 2. New York 3. Minnesota 4. California 5. Pennsylvania 6. Wisconsin 7. Michigan 8. Indiana 9. Massachusetts 10. North Carolina SW People Served 17,118 14,166 11,597 10,608 9,915 6,529 4,441 4,224 3,640 3,131 20 Sheltered Workshop (SW) State 1. Minnesota 2. South Dakota 3. Ohio 4. Wisconsin 5. Iowa 6. Rhode Island 7. Pennsylvania 8. New York 9. Oregon 10. Indiana SW Person Count Per 100K 217 196 148 114 93 87 78 73 66 65 21 Integrated Employment (IE) State 1. Vermont 2. Connecticut 3. Washington 4. New Hampshire 5. Oregon 6. Maryland 7. Rhode Island 8. Ohio 9. Oklahoma 10. Iowa IE Person Count Per 100K 155 133 109 97 94 84 76 67 65 62 22 Facility-Based and Community-Based NonWork Per 100,000 1. 2. 3. 4. 5. 6. 7. 8. 9. 10. 25. Rhode Island Vermont New York Nebraska Colorado District of Columbia Alaska Wisconsin Oregon Indiana Ohio 373 286 228 223 214 208 197 187 186 181 102 23 Total Served in Day Services Per 100,000 1. Vermont 2. New York 3. Iowa 4. South Dakota 5. Rhode Island 6. Ohio 7. Oregon 8. District of Columbia 9. Minnesota 10.Nebraska 441 355 313 293 288 284 279 274 263 261 24 1. 2. 3. 4. 5. 6. 7. 8. 9. 10. 11. 12. 13. 14. 15. 16. 17. 18. 19. 20. Day Services Per 100,000 Ottawa Van Wert Henry Putnam Wyandot Sandusky Allen Paulding Richland Clark Seneca Carroll Belmont Hocking Perry Pike Lucas Darke Mercer Guernsey 51 46 46 42 41 41 40 40 40 40 38 38 37 37 37 37 37 36 36 35 25 1. 2. 3. 4. 5. 6. 7. 8. 9. 10. 11. 12. 13. 14. 15. 16. 17. 18. 19. 20. Facility-Based Van Wert Ottawa Vinton Pike Clark Guernsey Carroll Paulding Putnam Monroe Wayne Sandusky Wyandot Seneca Lawrence Richland Morgan Perry Meigs Columbiana Work Per 100,000 37 36 34 33 31 30 30 30 30 28 27 27 26 26 25 24 23 22 22 22 26 Integrated Employment Per 100,000 1. 2. 3. 4. 5. 6. 7. 8. 9. 10. 11. 12. 13. 14. 15. 16. 17. 18. 19. 20. Henry Mercer Clinton Union Allen Wood Fayette Washington Lorain Morgan Athens Medina Knox Sandusky Stark Hancock Logan Belmont Lucas Summit 20 17 17 16 14 14 11 11 11 11 11 10 10 9 9 9 8 8 8 8 27 Nationally the emphasis is on integrated employment and a deemphasis on sheltered workshops. This has created a series of trends, including employment first policies like Ohio initiated a year ago. This was a key initiative of the current chair of the National Governor’s Conference. 28 National Trends • Performance based rates • A few states are totally out of the sheltered workshop business • A number of states have closed the front door on sheltered workshop admissions • Virtually every state is looking at realigning their funding away from sheltered workshops • Increase effort to eliminate the subminimum wage exemption • Working age adult policy (can only go into adult day after 9 months in Integrated Employment) 29 DODD issued its White Paper on ICF/IID’s and its Employment First Policy as a result of these Olmstead concerns. www.dodd.ohio.gov 30 As a result of the recently passed budget: •Money and language changes will continue to support employment efforts. •ICF language and money will support downsizing and conversions. Providers have committed to 1200 beds being converted or downsized over the next 5 years. •Downsizing of developmental centers will continue at 90 per year. 31 Language Changes in the Budget Language Provisions for Employment Rebalancing: Employment First – Make changes to improve data collection – Make permanent the Governor’s Employment First Taskforce – Create a presumption that all individuals with disabilities can work – Ask local county boards to create their own employment first policies – Create a new employment first line item 32 Employment First Line Item ($3 million a year) 1. Put up a data collection system 2. Fund seven pilot local teams 3. Provide statewide training in supported employment 4. Implement with Opportunities for Ohioans with Disabilities (RSC) a program to fund job placement for 1,500 working age adults a year statewide. (Hamilton County is slated for approximately 120 slots per year) Goal: Move 5.5% of individuals served in segregated settings to integrated employment per year. 33 Our efforts to support downsizing, conversion of ICF to Waiver, and Employment are based on more than Olmstead and the fear of litigation. 34 The transition from ICF’s to Waivers and from Sheltered Workshops to Integrated Employment is based on some fundamental principles. 1.Choice: part of being human is the right to make choices. The more choices we take away from people the more we dehumanize them. Think prisons, dictatorships, communism, slavery and segregation. 35 PRINCIPLES – CHOICE continued In this context Olmstead and the “American’s with Disabilities” Act are at their core civil rights legislation. Their aim is to put choice and control in the hands of individuals and their guardians, not the provider. •In the ICF program the provider controls many choices, including day services and most important, the funding for the bed. •In the Waiver program this control is transferred from provider to the individual or guardian. They can take their money and leave. 36 PRINCIPLES - Segregation 2. Segregation: ICF’s and sheltered workshops are often larger (Ohio has 3,400 people living in facilities larger than 16 beds) segregated campus like settings. Segregation sends a dehumanizing message “they are not like us”, and either “we need to be protected from them” or “they need to be protected from us” or “they are so unlike us they can not live like us.” 37 PRINCIPLES - Money 3. Money: provides the opportunity for real choice, self-esteem and freedom. 38 These principles of segregation and choice create National pressure and National trends which question the long term viability of the ICF program and sheltered workshops and the willingness of the Federal Government to continue funding these program. 39