HOPE
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STROKE AFTER LIFE IS THERE Don & Rosella Kvernen HOPE THERE IS Thank you HOPE LIFE AFTER STROKE STROKE AFTER LIFE IS THERE Thank you • for the sacrifices you have made to help people like us HOPE • STROKE IS • THERE LIFE AFTER Today we want to: • • Tell you a patient and care partner’s view of rehab Tell you what you do that helps us Encourage you – that you make a huge impact in people’s lives Questions or Comments HOPE STROKE AFTER LIFE IS THERE Our Family Don, Rosella, Jon, and Josh HOPE STROKE AFTER THERE IS LIFE Monday morning March 18, 1991 Don had a TIA and another HOPE STROKE AFTER THERE IS LIFE Tuesday morning March 19, 1991 our lives changed forever HOPE STROKE AFTER LIFE IS THERE Left Internal Carotid Dissection HOPE STROKE AFTER LIFE IS THERE Don’s MRI November 2009 HOPE STROKE AFTER LIFE IS THERE Thank you • For your skilled care that helps your patients survive • For your kindness HOPE STROKE AFTER LIFE IS THERE Thank you • For assuring families but not forcing them to go home • For letting them decide HOPE STROKE AFTER LIFE IS THERE Don & Rosella before Don’s Stroke HOPE STROKE AFTER LIFE IS THERE In one day, we left a good life and headed into a huge unknown HOPE THERE IS LIFE Rehab! HOPE AFTER STROKE STROKE AFTER LIFE IS THERE Thank you • For not forcing your patients and their families too quickly into the realization of what lies ahead HOPE THERE IS LIFE AFTER HOPE HOPE STROKE STROKE AFTER LIFE IS THERE Thank you • For creating a pleasant environment for your patients to heal and to begin to hope HOPE STROKE AFTER LIFE IS THERE Thank you • For crying with your patients • For showing compassion alongside your professionalism HOPE STROKE AFTER LIFE IS THERE Thank you • For balancing humor with your compassion and knowledgeable care HOPE STROKE AFTER LIFE IS THERE Thank you For sensing your patients’ and their families’ discouragement • For encouraging them about their progress and their future • HOPE STROKE AFTER LIFE IS THERE Thank you • For treating your patients like regular people, not just a certain patient diagnosis HOPE STROKE AFTER LIFE IS THERE Thank you • For creating opportunities for your patients and their families to interact with and encourage each other HOPE STROKE AFTER LIFE IS THERE Tragedies happen to families HOPE STROKE AFTER LIFE IS THERE Thank you • For your medical expertise • For your wisdom to help families pull together toward their loved ones’ recovery HOPE STROKE AFTER LIFE IS THERE Thank you • For letting spouses come to therapy sessions HOPE STROKE AFTER LIFE IS THERE Thank you • For letting children come to their parent’s therapy sessions HOPE STROKE AFTER LIFE IS THERE Thank you • For showing – not just telling – your aphasic patients what to do in therapy HOPE STROKE AFTER LIFE IS THERE Thank you • For allowing your hospitals to support chaplaincy programs HOPE STROKE AFTER LIFE IS THERE Thank you • For easing your patients into their new lives by arranging home visits HOPE STROKE AFTER LIFE IS THERE The Orton-Gillingham teaching method uses learning elements that are: • Visual • Auditory • Phonetic • Kinesthetic HOPE STROKE AFTER LIFE IS THERE Visual Drills See the letter • • • • Auditory Drills Hear the letter Say name & sound (e.g. F & fff) Feel mouth Trace in rice Repeat name & sound HOPE STROKE AFTER LIFE IS THERE Don with Kay Hawley, his tutor from the Dyslexia Institute (aka) Reading Center of Rochester HOPE THERE IS LIFE TouchMath HOPE AFTER STROKE STROKE AFTER LIFE IS THERE Thank you • • • • • Speech Therapists Kay Hawley, Don’s tutor The Orton-Gillingham method The TouchMath method Don’s practice friends HOPE STROKE AFTER LIFE IS THERE Thank you • For “taking it” when patients say horrible things to you HOPE STROKE AFTER LIFE IS THERE Thank you • For teaching your patients to take responsibility for their own well-being HOPE STROKE AFTER LIFE IS THERE Thank you • For training your patients how to accomplish their ADLs • For helping them become independent HOPE STROKE AFTER LIFE IS THERE Thank you • For tending so diligently to all of your patients’ complex health issues HOPE STROKE AFTER LIFE IS THERE Thank you • For persisting until you find anticonvulsants and other meds that work well for your patients • For giving hope • For being kind HOPE STROKE AFTER LIFE IS THERE Patients slough off your suggestions because of • Denial • Pride • Embarrassment • Too much – too soon HOPE STROKE AFTER LIFE IS THERE Thank you • For continuing to gently present resources to your patients and their families Keep on offering help Perhaps on the “6th time” they will respond HOPE STROKE AFTER LIFE IS THERE Don, enjoying his John Deere HOPE Don and a friend HOPE THERE IS LIFE AFTER STROKE STROKE AFTER LIFE IS THERE Thank you • For helping patients navigate the myriad of issues involved in integration back into life HOPE STROKE AFTER LIFE IS THERE We Needed Counseling HOPE STROKE AFTER LIFE IS THERE Overcome by Recovery HOPE STROKE AFTER LIFE IS THERE Thank you • For your wise counsel • For directing your patients and their families toward a more healthy way of living HOPE STROKE AFTER LIFE IS THERE Thank you • For inviting patients to work with your PT students • For letting survivors give back HOPE STROKE AFTER LIFE IS THERE Don chose not to get bitter • He did not have to deny our pain • He just did not want to let our losses fester and control our lives HOPE STROKE AFTER LIFE IS THERE StrokeSurvivor-StoryofHope.com HOPE STROKE AFTER LIFE IS THERE Chapter 9 Tackling Challenges – Driving HOPE STROKE AFTER LIFE IS THERE Don has driven safely for many years with adaptive devices HOPE STROKE AFTER LIFE IS THERE What helped us cope and gave us hope HOPE STROKE AFTER LIFE IS THERE What helped us cope and gave us hope: Medications have controlled Don’s seizures and other symptoms • Don used a pool noodle with straps for swimming • A pedal with strapped platform has allowed Don to ride a stationary recumbent exercise bike • HOPE STROKE AFTER • • THERE IS LIFE What helped us cope and gave us hope: • We added cable TV to our exercise room A test for driving readiness was available through the OT department We adapted our vehicles for Don with a spinner knob, left foot accelerator, and convex rear-view mirrors HOPE STROKE AFTER LIFE IS THERE What helped us cope and gave us hope: • Specialized driving instruction was available for brain injury survivors • A handicapped parking sticker and well maintained handicapped accommodations at businesses have made a big difference • Shoe buttons have made dressing easier for Don HOPE STROKE AFTER LIFE IS THERE What helped us cope and gave us hope: • A wall-mounted shampoo dispenser has allowed Don to bathe independently • We installed a higher toilet in our bathroom to help Don get up easier • Don special ordered a left-handled recliner HOPE STROKE AFTER • • THERE IS LIFE What helped us cope and gave us hope: • • Grab bars have provided safety Don learned to back down staircases that have no left railing An answering machine or voicemail has allowed us to receive accurate recorded phone messages Don has learned to defer to me at times for details HOPE STROKE AFTER LIFE IS THERE Chapter 12 Lessons We Have Learned HOPE STROKE AFTER LIFE IS THERE StrokeSurvivor-StoryofHope.com HOPE STROKE AFTER LIFE IS THERE Our sons, Jon and Josh Right Left HOPE THERE IS LIFE Jon and Svea HOPE AFTER STROKE THERE IS LIFE Josh and Beth HOPE AFTER STROKE STROKE AFTER LIFE IS THERE A lot of love for a new grandson HOPE Our grandchildren HOPE THERE IS LIFE AFTER STROKE STROKE AFTER LIFE IS THERE Wonderful times with friends HOPE STROKE AFTER LIFE IS THERE Celebrating 40 years of marriage HOPE STROKE AFTER LIFE IS THERE Thanks to a large group of rehab professionals, Don survived, so we could enjoy these times together. We are extremely grateful! HOPE STROKE AFTER LIFE IS THERE Gratitude by Melody Beattie Gratitude unlocks the fullness of life. It turns what we have into enough, and more. It turns denial into acceptance, chaos to order, confusion to clarity. HOPE STROKE AFTER LIFE IS THERE It can turn a meal into a feast, a house into a home, a stranger into a friend. Gratitude makes sense of our past, brings peace for today and creates a vision for tomorrow. Beattie, Melodie. (1990). The Language of Letting Go. Center City, MN: Hazelden Publishing. Used by permission. HOPE STROKE AFTER LIFE IS THERE Rehab Professionals You make a huge difference in broken people’s lives. Thank you – to all of you! HOPE STROKE AFTER LIFE IS THERE Questions or Comments HOPE
