Week 3 Day 2
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forfor
Excellence
programme
and should
be usedprogramme
as a
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Genio. They
a resource
participants
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Excellence
foundation
forundertaken
practice by Endeavour
those who have
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Endeavour for Excellence training.
and should not be used as a foundation for practice by those who
have not
for Excellence
training.
2
Change!
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
3
A Conceptual Framework
derived from
Social Role Valorisation
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
4
What is our mission?
What is the primary purpose of our work?
What kind of outcomes or results do we hope
for?
‘THE GOOD LIFE’
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
5
Universal good things of life
Family
Work
Home
Intimacy
Being treated as an
individual
Belonging
Having a say
Friends
Access to community
places
Respect & fairness
Safety & Security
Opportunities to develop
one’s abilities
Ordinary social life
Contributing
Good health
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
6
In comparison
“Them”
“Us”
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
7
Why is it different?
Why do so many people who rely on our
supports not have the things most of us
describe as the ‘good life’?
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
8
Devaluation - A harsh reality
Someone is seen
as outside the
norm, different
The difference is
viewed in a
negative way
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
9
Societal (not individual) values
Narrow definition of beauty
Physical strength/ability, athleticism
Productivity
Material belongings/wealth
Competence, intelligence
Survival of the ‘fittest’
Youth, newness
Dominance
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
10
Valued vs. devalued
Person w/deformity
Dependent adult
Unemployed person
Homeless person
Poor person
Physical laborer
Person w/intellectual
disability
Movie star/model
Athlete/champion
Professional
Homeowner
Millionaire
Surgeon, solicitor
University graduate
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
11
Perceived devaluation
Devaluation is not about people’s
inherent worth, but their
perceived worth – it is in the eyes
and minds of others
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
12
Unconsciousness of
devaluation
Devaluation can be conscious, but is
most often unconscious
Even enlightened, kind, progressive
people (including human service
workers!) devalue others
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
13
Devaluation matters
Devaluation explains why people don’t
have equal access to the good things
in life that others do
Being devalued results in the likelihood
that bad things will happen to you, that
you will be treated in ways that
wouldn’t be tolerated for/by valued
citizens
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
14
Common life experiences
DISABILITY BECOMES LIFE DEFINING
– Disability becomes the focus of what
people know about a person, as if that is
what matters most
– Decisions are erroneously made based
on one narrow dimension of who a
person is
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
15
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
16
Common life experiences
SEGREGATED AND CONGREGATED
– People are separated (segregated) away
from valued society
– People are grouped (congregated) with
other people who are also devalued
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
17
Common life experiences
PEOPLE ARE DEPRIVED OF TYPICAL
EXPERIENCES
– Lack of opportunities to learn ordinary
things in the ordinary developmental
sequence
– Exposed to non-typical circumstances,
sometimes learning unusual habits
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
18
Common life experiences
CAST INTO HURTFUL NEGATIVE ROLES
– Eternal child
– Object of pity
– Menace
– Burden
– Client
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
19
Common life experiences
LONELY
– Very few freely-given friendships
– A disproportionate number of friends with
disabilities
– Sometimes stressed or absent family
relationships
– Almost a total lack of intimate
relationships
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
20
Common life experiences
LOW EXPECTATIONS
– People have grown up with the
expectation that they ‘can’t’
– We have limited imaginations about what
is possible
•
•
•
what people can do (or learn to do)
roles they can play,
lifestyle they can enjoy (with good support)
– Low expectations become self-fulfilling
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
21
Common life experiences
LIVES WASTED AND TRIVIALIZED
– People are not seen as having an
important purpose in life
– People are typically minded or
entertained rather than invested in
– People’s time is often wasted, services
not potent
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
22
Common life experiences
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
23
Likely impacts of devaluation
Preoccupation with one’s own condition
Feeling/acting like an alien in the world
Sorrowing over all the good things missed and
the bad things suffered
A sense of worthlessness, dislike of self
Insecurity
Fear of failure and resulting avoidance
Searching for the abandoner
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
24
Likely impacts of devaluation
Fantasy and inventions about positive
relationships that don’t exist
Seeking/demanding physical contact
Testing the genuineness of relationships
Withdrawing from contact and/or reality
Turning the hurt into resentment or hatred
Rage, perhaps even violence, at the world or self
A sapping of physical and mental energy
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
25
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
26
The relevance of
woundedness
We need to avoid providing services which
continue to impose wounds on people –
congregation, loneliness, low expectations,
etc.
We need to take into account the impact of the
wounds people have experienced
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
27
Social roles
How we introduce ourselves or become
known to others
What defines who we are, our identity
Is the place we hold in society, where
and with whom we belong
How we are remembered in the end
“I am a . . . (noun)”
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
28
Roles have a big impact
Our image in the eyes of others
Our own self-image
Acceptance and belonging
Degree of autonomy and freedom
Opportunity to make our contribution
Quantity and quality of relationships
Personal growth and development
Material possessions
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
29
Valued & devalued roles
A role may be positive or valued
- good neighbor, student, member
A role may be negative or devalued
- client, eternal child, object of pity
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
30
Primary goals of SRV
 Protect the socially valued roles held
by the person
 Avoid adding new negative, devalued
roles
 Escape or disprove negative roles
that have become a part of a person’s
identity
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
31
Primary goals of SRV
 Enter into new valued roles
 Deepen, defend and embed socially
valued roles
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
32
Common goals of service
Minding
Protecting
Entertaining
Changing
Evaluating
Keeping people busy
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
33
From activities to roles
ACTIVITY
ROLE
Going to church
Church member
Working
Employee
Swimming
Swimmer
Cooking
Cook
Taking a class
Student
Painting
Artist
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
34
Role communicators - Artist
COMMUNICATOR
EXAMPLE
PLACES
Studio space, art galleries
PEOPLE
Artists, art instructors, art shop
cashier
ACTIVITIES/BEHAVIOR
Taking classes, making art, visiting
exhibits, giving gifts, shopping for
supplies
LANGUAGE/WORDS
Canvas, pastels, acrylic, form,
impressionistic
OTHER
Original art hanging in home,
space to store supplies, art books
on bookshelf
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
35
Primary SRV strategies
Image Enhancement
Competency Enhancement
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
36
People generally
become what
they are
expected to be
Self-fulfilling
prophesy
Our role in
breaking the
vicious cycle
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
37
Culturally valued analog
“What happens for valued citizens of the
same age, gender and culture?”
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
38
Supporting choice and self
direction
It’s not about taking anything away from someone,
it is about offering better options!
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
39
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
40
Non-programmatic issues that
constrain programmatic ones
Funding
History
Legal issues
Political
Staffing
Personalities
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
41
Sequence matters!
Typically services are pre-designed based on
professional ideologies about what people
need
Decisions are made before knowing who will
avail of the service
People are then ‘fit into’ the model
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
42
Sequence Matters!
Partnership
Reflective
Learning
Discovery
Process of
Individualising
Support
Service
Delivery
Personalised
Planning
Resource
Development
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
43
Discovery
Getting to know people in a different and deeper
way
Focusing on:
–
–
–
–
Capacity
Commonality
Contribution/Citizenship
Context
Seeking potential and possibility
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
44
Defining a desirable lifestyle
A HOME of One’s Own
–
Of person’s choosing, in typical setting, with people
chosen
Valued Social ROLES
–
Adult, citizen, neighbor, sibling, aunt/uncle, employee,
volunteer, artist, member, friend
RELATIONSHIPS
–
Friends, acquaintances, colleagues, neighbors, lovers
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
45
Discovering fitting
opportunities
Assets
Interests
Conditions
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
46
Mallory
Deficiency-based focus
– Profound intellectual disability, IQ
–
–
–
–
–
immeasurable
Quadriplegic
Epileptic
Nonverbal
Tires easily
Doesn’t tolerate temperature extremes
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
47
Mallory
Capacity-based focus
–
–
–
–
–
–
–
–
–
Can move her head 90 degrees to the right
Laughs and cries at appropriate times
Loves to be read to
Enjoys young children
Cares about access and fairness
Loves her animals! Being outdoors
Appreciates nice, pretty things
Flower garden
Peaceful, serene home
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
www.genio.ie
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource
for and
participants
in theare
Endeavour
forfor
Excellence
programme
and should
be usedprogramme
as a
These notes are the intellectual property of Hope Leet Dittmeier
Genio. They
a resource
participants
in the Endeavour
for not
Excellence
foundation
forundertaken
practice by Endeavour
those who have
not undertaken
Endeavour for Excellence training.
and should not be used as a foundation for practice by those who
have not
for Excellence
training.