Week 1
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource
for and
participants
in theare
Endeavour
forfor
Excellence
programme
and should
be usedprogramme
as a
These notes are the intellectual property of Hope Leet Dittmeier
Genio. They
a resource
participants
in the Endeavour
for not
Excellence
foundation
forundertaken
practice by Endeavour
those who have
not undertaken
Endeavour for Excellence training.
and should not be used as a foundation for practice by those who
have not
for Excellence
training.
2
An SRV-derived
Theoretical Framework
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
3
What is our mission?
What is the primary purpose of our work?
What kind of outcomes or results do we hope
for?
“THE GOOD LIFE”
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
4
Universal good things of life
Family
Home
Respect, honesty &
fairness
Belonging
Being treated as an
individual
Friends
Having a say
Work
Access to community
places
Safety and Security
Ordinary social life
Opportunities to develop
Contributing
one’s abilities
Good health
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
5
Why is it different?
Why do so many people who rely on our
supports not have the very things most of us
enjoy and describe as the “good life”?
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
6
Devaluation - A harsh reality
Someone is seen
as outside the
norm, different
The difference is
viewed in a
negative way
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
7
What society values
Narrow definition of beauty
Physical strength/ability, athleticism
Productivity
Material belongings/wealth
Competence, intelligence
Survival of the “fittest”
Youth, newness
Dominance
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
8
Valued vs. devalued
Person w/deformity
Dependent adult
Unemployed man
Lazy teen
Poor/homeless person
Someone on the dole
Person w/intellectual disability
Illiterate person
Movie star/model
Athlete/champion
Professional
Homeowner
Millionaire
Surgeon, solicitor
Instructor, university graduate
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
9
Perceived devaluation
Devaluation is not about people’s
inherent worth, but their
perceived worth – it is in the eyes
and minds of others
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
10
Devaluation
How important or deeply held by observers
are the values perceived to be violated by
the person or group
How many values are perceived to be
violated by the person or group
The degree to which the values are
perceived to be violated by the person or
group
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
11
Unconscious devaluation
Devaluation can be conscious, but
is more often unconscious
Even enlightened, kind, progressive
people (including human service
workers) devalue others
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
12
Devaluation matters
Devaluation explains why people don’t
have equal access to the good things
in life that others do
Being devalued results in the likelihood
that bad things will happen to you, that
you will be treated in ways that
wouldn’t be tolerated for/by valued
citizens
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
13
Common life experiences
It isn’t the functional impacts of disability:
– Reliance on a wheelchair
– Lower intellectual capacity
– Poor sight or hearing
that pose the biggest challenge to quality of
life
It is the impact of the common life
experiences that people face as a result
of being devalued
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
14
Common life experiences
REJECTION
By:
Family
Neighbors
Community
Service workers
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
15
Common life experiences
CAST INTO DEVIANT ROLES
Nonhuman
Child
Menace, evil, or object of
dread
Holy Innocent
Trivial, or Object of Ridicule
Object of Pity
Client
Sick
Dying, dead, better off dead
Burden
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
16
Common life experiences
STIGMATISED
Supported in valued-tainted locations
Grouped with people in image-impairing ways
Experience value-impairing methods and activities
Bizarre or negative names and labels to people,
programs, services, logos
Personal appearance neglected
Services funded with image-tainted monies or
devaluing appeals
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
17
Common life experiences
MULTIPLE JEOPARDY
Being the scapegoat for anything bad that
happens
Being suspected of belong to more than one
devalued group
Being cast into more than one deviancy role
Being treated worse for a suspected or real
offense than are valued people
Upon being vindicated, receiving less
restitution, if any
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
18
Common life experiences
DISTANCED
Physically
Excluded:
Architectural barriers
Segregated: Separate places
Confined:
Prisons, nursing homes
Ejected:
Expulsion, banishment
Destructed:
Assault, euthanasia, capital
punishment
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
19
Common life experiences
DISTANCED
Socially
Avoided, ignored
Degrading treatment
Even within service: badges, keys, separate
dining areas, different toilets
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
20
Common life experiences
LOSS OF CONTROL/AUTONOMY
Being made/kept dependent by family and
services
Having to follow arbitrary rules
Having little say about things that have
personal impact
Being moved about
Having one’s associations controlled
Being deprived of legal rights
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
21
Common life experiences
PHYSICAL DISCONTINUITY
Often the cause of discontinuity is a result of
rejection
Devalued people get moved around more often,
even within the same organization
People often get moved against their will and
with little notice, almost always interpreted as
being “for their own good”
Sometimes people don’t have the resources and
ability to cope or to stay in contact with those
left behind
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
22
Common life experiences
PHYSICAL DISCONTINUITY
Impact of physical discontinuity on people
includes:
–
–
–
–
–
–
–
Disorientation or confusion
Lowered performance
Insecurity
Loss of possessions
Relationship loss
Stress
Illness and death
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
23
Common life experiences
RELATIONSHIP DISCONTINUITY
People often don’t have the skills or resources
to stay in touch with others
People are often abandoned by others
High turnover and reassignment in service
results in little continuity even with those
paid to be in relationship
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
24
Common life experiences
LONELINESS
Sometimes stressed or absent family
relationships
Disproportionate number of relationships with
other devalued people which doesn’t afford
the same degree of social capital
Formal services rarely recognize or address
this need adequately
Substitution of artificial/paid ‘friends’
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
25
Common life experiences
DEINDIVIDUALISATION
Disability becomes life-defining and primary
determinant in decisions
People are often not well-known for their
unique identities
Vast majority of supports are provided in group
settings
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
26
Common life experiences
MATERIAL POVERTY
People are kept poor in order to receive
necessary supports
People don’t have equal access to
employment opportunities
People’s belongings are not valued or
protected in many settings
People are less likely to inherit from their
families
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
27
Common life experiences
LACK OF TYPICAL LIFE
EXPERIENCES
Lack of opportunities to learn ordinary things
in the ordinary developmental sequence
Exposure to non-typical models of behavior
and custom
Absence of relevant and potent educational
programming
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
28
Common life experiences
HAVING ONE’S LIFE WASTED
Low expectations related to a person’s
potential
Few real investments made in a person’s
future
Exposed to programs and experiences that
have little meaning to the person
Time not well spent
Lack of potency in interventions
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
29
Common life experiences
ABUSE AND BRUTALISATION
Devalued people at increased risk of physical
and sexual abuse
Devalued people less likely to report or to be
believed
Institutional culture provides few safeguards
Perpetrators rarely held to same accountability
as others
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
30
Common life experiences
AWARE OF BEING SOURCE OF
ANGUISH
People often regret causing hardship on their
families
People are sometimes poorly treated by
carers
Respite is evidence of “burden” mentality
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
31
Common life experiences
FEELING ALIEN IN THE VALUED
WORLD
Lack of experience poorly prepares people for
valued involvement in the valued world
People often have insecurities and lack of
confidence
People often see themselves as not fitting in
or belonging
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
32
Likely impacts of devaluation
Preoccupation with one’s own condition
Feeling/being/acting like an alien in the world
Sorrowing over all the good things one has
missed and the bad things one has suffered
A sense of worthlessness, dislike of self
Insecurity
Fear of failure and resulting avoidance
Searching for the abandoner
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
33
Likely impacts of devaluation
Fantasy and inventions about positive
relationships that don’t exist
Seeking/demanding physical contact
Testing of the genuineness of relationships
Withdrawing from contact and/or reality
Turning the hurt into resentment or hatred
Rage, perhaps even violence, at the world or self
A sapping of physical and mental energy
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
34
The relevance of
woundedness
We must avoid services which continue to
impose wounds on people – congregation,
loneliness, low expectations, etc.
We cannot use our own valued life
experiences as a framework for
understanding where people are at the
moment
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
35
Social roles
How we are known by others
What defines who we are
The place we hold in society
“I am a . . . (noun)”
What we become over our lifetime
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
36
Social roles
A socially expected pattern of
–
–
–
–
Behavior
Responsibilities
Expectations
Privileges
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
37
Roles have a big impact
Our image in the eyes of others
Our own self-image
Acceptance and belonging
Degree of autonomy and freedom
Opportunity to make our contribution
Quantity and quality of relationships
Personal growth and development
Material possessions
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
38
Valued & devalued roles
A role may be positive or valued
- good neighbor, student, member
A role may be negative or devalued
- client, eternal child, object of pity
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
39
Social roles
Roles may be:
– Imposed ~ assigned by others
– Chosen ~ selected and pursued
Roles may be:
– Inherited ~ born into
– Earned ~ accomplished
Chosen and earned roles are most
highly regarded
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
40
Social roles
Certain valued roles are expected:
– Family roles ~ daughter, uncle, grandparent
– Adult roles ~ employee or student
– Irish citizen ~ contributor, good neighbor
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
41
Primary goals of SRV
Protect the socially valued roles held by
the person
Avoid adding new negative, devalued
roles
Escape or disprove negative roles that
have become a part of a person’s
identity
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
42
Primary goals of SRV
Enter into new valued roles (i.e., roles
that most of us take for granted such
as neighbor, church member,
volunteer, employee, etc.)
Defend and embed socially valued roles
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
43
Common goals of service
Minding people
Protecting people
Entertaining people
Changing people
Evaluating people
Keeping people busy
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
44
From activities to roles
ACTIVITY
ROLE
Going to church
Church member
Working
Employee
Swimming
Swimmer
Cooking
Cook
Taking a class
Student
Painting
Artist
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
45
Role communicators - Artist
The physical
environment
Studio space, art
galleries,
The people associated
with a person or group
Artists, art instructor, art
shop cashiers
The behaviors that are
expected and the
activities engaged in
Taking classes, exhibits,
giving art as gifts,
shopping for supplies
The language and
words that are used
Canvas, pastels, acrylic,
impressionistic, form
Other imagery such as
possessions
Art supplies, original art
in home
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
46
Primary SRV strategies
Image Enhancement
Competency Enhancement
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
47
Image enhancement
Image is conveyed by:
– Physical appearance of the person
– Physical appearance of others associated
w/the person
– Proper social etiquette and skills
– What is said ~ words, topics
– Physical surroundings
– Possessions and belongings
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
48
Competency enhancement
Current functioning does not predict a
person’s capacity
Teach relevant skills using:
–
–
–
–
The power of imitation and modeling
Positive role expectancies
High expectations
Strategies that reflect how a person best
learns
– Potent systemised instruction methods
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
49
Role expectancy and
circularity
People become
what they are
expected to be
Self-fulfilling
prophesy
Breaking the
vicious cycle
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
50
Culturally valued analog
“What happens for valued citizens of the
same age and gender?”
Which can be encountered with at least
reasonable frequency in the valued sector of
society
With which most members of society would be
familiar
Of which most members of the society would
hold most positive expectations and images
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
51
Model coherency
“Are we doing that which is most useful?”
Relevance – does the support match what the
person needs most? Are we addressing the
person’s most fundamental and most
pressing needs? Quality
Potency – is the support sufficient enough to
bring about desired results? Is there enough
of the right support? Quantity
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
52
Conservatism corollary
“Bending over backwards”
Heightened vulnerability
–
–
–
–
Prevailing stereotypes
Impact of wounding experiences
Lack of protection afforded by valued roles
Multiple jeopardizes
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
53
Conservatism corollary
Positive compensation for disadvantage
– Disprove common stereotypes by seeking
roles that contradict
– Beyond normative
– Strive for the most highly valued options
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
54
Personal social integration
and valued social integration
Adaptive participation by a devalued person
In a culturally normative quantity of contacts,
interactions, & positive relationships
With ordinary citizens
In normative shared activities, that are part of
recognizable roles, and
Carried out in a valued physical & social
setting
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
55
Personal, valued social
integration
Strategies:
Address characteristics and conditions of
person which are apt to elicit rejection
(anxiety, habits, images, roles)
Help community members identify with person
(commonalities, cooperative tasks,
invitation)
Recognize and reinforce any integrative
gestures or acts by community members
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
56
Personal, valued social
integration
Advantages:
Protection of welfare and safety
Enhancement of competencies
Higher, more normative expectations
Access to good models
More variety of experience
Enhancement of person’s image
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
57
Non-programmatic issues that
constrain programmatic ones
Funding
History
Legal issues
Political
Staffing
Personalities
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
58
High-Quality
Individualised
Supports
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
59
Confusing Terminology
Are there distinctions between ‘individualised’ and
‘person centred’?
The concept of individualising is not at all new
Calling the work ‘individualised’ doesn’t necessarily
make it so!
It isn’t reasonable or ethical to focus solely on one
person at the expense of those in their intimate
personal network
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
60
Confusing Terminology
We can still do harm when using one-person-at-atime methodology
Once individualised, not always individualised!
Term typically intended to signify high quality
Individualised strategies embrace a presumed
ideology about what constitutes good work
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
61
Sequence matters!
Typically services are pre-designed based on
professional ideologies about what people
need
Decisions are made before knowing who will
avail of the service
People ‘fit into’ the model
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
62
Process of individualised
practice
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
63
Process of individualised
practice
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
64
Discovery
Getting to know people in a different way
Focusing on:
–
–
–
–
Capacity
Commonality
Contribution/Citizenship
Context
Thinking about potential and possibility
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
65
Getting to know the person
differently
Deficiency-based focus Capacity-based focus
Assessments with
comparative scores
Finding what people have
in common with others
Diagnoses & labels; levels
of intellectual disability
Appreciating what a person
CAN do; finding their
gifts
A thorough description of
what a person CAN’T do
What’s possible with good
support!
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
66
Process of individualised
practice
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67
What is individualised planning?
Variety of methods or tools
– Personal Futures
Planning
– Essential Lifestyle
Planning
– PATH
Focused on one person
Positive possibilities
Rich in valued roles and
meaningful relationships
Customized supports
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
68
What individualised planning is NOT
– Only accomplished
using colored markers!
– Just documenting the
answers to simple
questions
– Giving people whatever
they want
– Ignoring people’s most
fundamental needs
– Sticking only to what we
know how to do
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
69
Defining a desirable lifestyle
A HOME of One’s Own
–
Of person’s choosing, in typical setting, with people
chosen
Valued Social ROLES
–
Adult, citizen, neighbor, sibling, aunt/uncle, employee,
volunteer, artist, member, friend
RELATIONSHIPS
–
Disproportionate number of friends with disabilities
– People need intentional support to cultivate meaningful
relationships with ordinary citizens
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
70
Process of individualised
practice
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71
Resource development
Mobilizing and creating desired supports:
–
How do valued citizens go about this?
–
What places and resources are used by others?
–
Who is in the best position to assist?
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72
Process of individualised
practice
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73
The proper use of formal supports
First – what is family able to do, want to do, do well
(that the person being supported finds acceptable)?
Second – who else in the person’s social network
might be interested in assisting the person in
specific ways?
Third – what other options for support are available in
the community?
Fourth – what blanks do we fill with paid supports?
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
74
Service delivery
Relevant and thoughtful safeguards
Teamwork ~ layers of people working together to
make good things happen
Effective leadership that provides vision, inspiration
Competent management of supports and assisting
people to play a bigger role in managing their
supports
Flexibility, flexibility, flexibility and more flexibility
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
75
Process of individualised
practice
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76
Evolving as we learn
Some of the assumptions we had will be wrong
and need correcting
We will learn things about people that we didn’t
know before
People will grow and develop and their interests,
opportunities and needs will change
People will, hopefully, become less reliant on us
A culture of mindfulness and reflection is needed
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77
These notes are the intellectual property of Hope Leet Dittmeier and Genio. They are a resource for participants in the Endeavour for Excellence programme
and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
78
Partnership and
Empowerment
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79
Partnership
Is hard work!
Takes time
Requires nurturing
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80
Shared values
Agreement about what is worth working toward –
‘common ground’
Consensus about how to treat one another,
especially in the face of adversity
Recognition and respect for one another’s ‘nonnegotiables’
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81
Shared responsibility
Doing ‘with’ one another vs. doing ‘to’ or even
doing ‘for’
Balancing investment and effort between parties
Taking responsibility for our actions - regretting
our errors
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82
Mutual respect
Honoring one another’s previous experience
Recognizing one another’s expertise and
perspective
Having clarity about each party’s boundaries
Portraying one another in positive ways
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83
Role clarity
Natural investments of people being supported
and their families
Proper purview of service
Clear expectations
Being ‘friendly’ but not being friends
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84
Effective communication
Being honest
Discussing differences or disagreements
Keeping one another informed
Maintaining confidentiality
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85
Conflict management
Not about IF things go wrong, but WHEN things
go wrong
–
Notice the learning
– Create a positive and productive outcome
– Avoid blame
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86
Interpersonal identification
People who identify with others will generally
– Want good things for the others
– Want to be with the others
– Communicate good things about the
others
– Want to please the others; do what they
ask
– Possibly want to be like the others
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87
Strategies for Fostering
Interpersonal Identification
Improve the approachability of each party by the
other
Improve the likelihood that when contact occurs,
it is positive
Find and emphasize commonalities shared by
the parties
Engage each party in experiences that help
them see the world through one another’s
eyes
Foster each party’s sense of responsibility for
one another
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88
Roles of Supporters
Advisor
Mentor
Teacher
Informer
Problem-solver
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89
Role of Family and Guardians
Expert regarding the person
Advocate for what is best
Authority to make decisions
Historian
Financial manager
Holidays
‘Back-up’ by design
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90
First Steps on the journey
Full disclosure of our intentions
Agreements about the process
Discussion of roles and responsibilities
Appreciating what is non-negotiable
A ‘walk in the other’s shoes’
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91
Empowerment
Is hard work!
Takes time
Requires intention
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92
Preaching to the Choir!
Starting with the assumptions that you
already believe:
– People are entitled to be the determiners of
their destiny.
– People are able, with support, to make more
decisions than they do now.
– It is our responsibility to make choices
available and to help people make good
decisions.
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
93
Why is it so important to us
to make our own decisions?
Which choices matter most to us?
What choices do we NOT have?
What do we do when we have
a difficult decision to make?
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94
Choice is Developmental
People do not learn how to make
good choices overnight.
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95
Choice is usually an
Interdependent Activity
People typically rely on trusted allies
to help them make good decisions.
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96
Choice is Relational
People who care about someone will
typically try to influence them to
make ‘the right’ decisions or at
least not make devastating
decisions.
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97
Choice involves Complex
Options
Most genuine choices are not a
simple ‘yes/no’ or ‘either/or’ or
‘right/wrong’ proposition.
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98
Choice involves
Responsibility
People typically recognize and
consider the impact their decisions
have on others.
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
99
Choice implies Having
Options Available
People we support won’t have
genuine choices unless we
embrace service strategies that
actually afford personalized options
– where, who, how, when, etc.
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100
People Tend to Choose ...
What is familiar
What is certain, less risky
What is simple, concrete
What is quick, immediate
What requires less investment
What they think others want them to
choose
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101
Non-Authentic Choosing
Rhetoric - using the word “choice” doesn’t
necessarily mean people have/had a
choice
“They” prefer . . . never honors individual
choice
Coercive circumstances which favor the
needs of others, particularly the service
system
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102
Abandoned to Choice
Standing by to observe people making
dangerous decisions is not supporting
choice, it’s irresponsible and maybe
abusive
“Suffer the natural consequences” often
means punishing people for what they
don’t understand
Recognizing our role in the cycle of
failure
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103
Necessity of Relationship
Seeking an open, honest, balanced, mutual,
reciprocal, ‘friendly’
Over time ~ gradually proving oneself
Knowing the person vs. fixing them
Understanding vs. blaming
Accompanying vs. controlling
Milton Tyree
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104
Strategic Support for Making
Choices
Advocate for people’s right to make
decisions.
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105
Strategic Support for Making
Choices
Provide a comfortable and safe
atmosphere for people to make
decisions.
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106
Strategic Support for Making
Choices
“Veto power” – at a very minimum,
the right to say “NO!”
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107
Strategic Support for Making
Choices
Informed choice - providing accurate
and relevant information in ways
that people understand
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108
Strategic Support for Making
Choices
Teach people strategies to use in
making good decisions
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109
Strategic Support for Making
Choices
Help people learn from their
experiences
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110
Strategic Support for Making
Choices
When necessary, embrace a
partnership or joint responsibility
with gradual shift of power
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111
Strategic Support for Making
Choices
Provide safeguards to keep people
from experiencing irreparable harm
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112
Support Roles
Partner – “Let’s work on this together.”
Advisor – “This is how I look at it”
Informant – “You need this information”
Teacher – “One way to weigh your options is . . .”
Cheerleader – “You did it – I knew you could!”
Connector – “I would love for you to meet . . .”
Analyzer – “What could we have done differently?
What did we learn?”
Assurer – “It’s okay. Remember, you’re still new at
this.”
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113
Discovery
The Distinctive
Identity Portrait
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114
Discovery
Discovery seeks to understand who the person is
in as many aspects of life as necessary to
inform the subsequent plan
Discovery is a systematic and intentional set of indepth activities designed to uncover a person’s
assets, interest, and conditions for success
Discovery is an optimistic process, focusing on
strengths rather than deficits
Discovery translates information into possibilities
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115
Discovery
Discovery seeks to identify information about
the person’s life, not create evaluative data
regarding performance
Discovery information is intended to be a
guide for matching a person to fitting roles
Discovery identifies a person’s complexities
and challenges for the purposes of
matching, negotiation and supporting the
person in new roles
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
116
The essence of discovery
Discovery: to gain
insight or
knowledge of
something
previously unseen
or unknown; to
notice or realize; to
make known, to
reveal
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117
The iceberg analogy
What we usually
know about the
people we try to
assist – just the tip of
the iceberg
We need to
know much
more
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118
Skills needed in discovery
Intentionality
Observation
Curiosity
Detail-orientation
Discernment
Translation
Positivity
Thoroughness
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119
Interests
“What would you like to do?” can be counterproductive!
– People have been deprived of typical
experiences of the valued world,
– People have had a very limited “menu” from
which to choose,
– People might not know their own talents and
interests
Look at activities person engages in without being
expected to do so, what is naturally motivating
Provide opportunities to explore new possibilities
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120
Assets - skills
What person can do, is good at doing
Creating an vivid description of abilities:
–
–
–
–
–
Pour liquid into a cup
Hold item and drop into a slot
Turn head toward sounds
Enter data into excel spreadsheet
Meditate effectively
Noticing all volitional movements
What a person might be interested in learning
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
121
Assets - knowledge
What information a person knows or is seen
as an expert in:
–
–
–
–
–
–
Reptiles
Irish history
80’s music legends
Automobiles
Weather
Catholicism
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122
Assets - personality
Personal traits that are engaging, inspiring,
likeable, impressive, honorable
What people who love the person would say
about them:
–
–
–
–
–
Fun to be around
Can keep a secret
Never gives up
Considerate of others
Is a peace-maker
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
123
Assets - lived experience
Potential contribution based on personal life
experience:
–
–
–
–
–
–
Survived cancer
Successful with weight watchers
Lost a parent at a young age
Grew up in the Jewish tradition
Survived institutionalisation
Learned to manage diabetes
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124
Assets - passion
What a person cares deeply about:
–
–
–
–
–
–
–
The environment
Alzheimer's
Justice
Accessibility
Animal rights
Health care
Beauty
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
125
Assets - resources
What resources or belongings a person has
that might be shared
–
–
–
–
–
Transportation
Tools
A place to meet
Time
A computer
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126
Assets - connections
What personal connections does the person
have that might be shared, what networks
they have access to:
–
–
–
–
–
Family
Friends
Neighbors
Membership
Parish
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127
Conditions for success
Task performance
Minimal need to stand, physical activity
Instructional strategies
Modeling, repeated practice, visual prompts
Environmental conditions
Indoors, well-lit spaces, intimate groups
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128
Conditions for success
Supportive strategies
Even voice tone, encouraging comments,
proactive planning
Supports needed
Job coach training for 1 to 4 weeks,
personal assistance, transport
Conditions to be avoided
Hot temperatures; novel situations
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
129
The discovery process
Explain the process to the person and family
Confirm that the ultimate goal is (supported)
valued opportunities in typical community
Address questions and concerns
Conduct home visit
Survey neighborhood resources
Ask about routines and responsibilities
Interview others
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
130
The discovery process
Identify favorite familiar activity and participate
with the person
Suggest and participate in an unfamiliar
activity with the person
Review files, and other information about the
person
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131
Discovering fitting
opportunities
Assets
Interests
Conditions
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132
Discovering fitting
opportunities
Good w/numbers
Precise
Great social skills
Sports
History
Reading
Sitting
Task
demonstrated
Indoors
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and should not be used as a foundation for practice by those who have not undertaken Endeavour for Excellence training.
www.genio.ie
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