Program : New Horizon for Seniors Program (NHSP) Overall objective: To increase awareness of ageism and the abuse of older persons in a context of care relationships. Ageism Abuse or ill-treatment Ageism in the care relationship Abuse in care, the risk factors The portrait of the abuser and the victim Under-reporting The consequences Remedies A process by which persons are stereotyped and discriminated against on the basis of age in a manner similar to that of racism and sexism (Dr. Robert Butler, 1975). It is…. possible that ageism and discrimination on the basis of age are, in our societies …. the most invisible forms of discrimination…and the best tolerated …. (Pellissier, 2009, p. 5.). To avoid marginalisation To increase awareness To prevent abusive behaviours To change the social outlook on ageing To ensure the quality of the care relationship Stereotypes that only present a negative or alarmist view of undeniable facts: «demographic tsunami»; Standardisation : assigning certain characteristics – psychological, social, economic – to all persons of a certain age; Scape-goating : accused of being responsible for most of society’s socio-political ills. Pellissier, J. (2009). Âgisme et stéréotypes. http://www.aqg-quebec.org/docs/Revue/Vie_vieillissement _o9_vol_7_no2-bonifieEricSedent.pdf dependant, vulnerable, costly, weak, useless, deaf, uncompromising, sick, technophobes, babblers, etc. wise, rich, always available, constantly traveling, etc. good mentors, transmitters of history, etc. fond of children and wonderful grandparents Des exemples précis d’âgisme. http://www.aqg-quebec.org/262/Des-exemples-precis.gerontologie “I’m lucky to be still here…” “I think I’m getting Alzheimer …..” Birthday cards: “Happy Birthday, it’s amazing that you’re still fit… “ “At 60, you have the combined wisdom of 6 ten-year-old children , the intelligence of 3 twenty-year-old youths, the wits of 2 thirty-year-old persons, and the memory of 60 one-year-old babies.” “an isolated or repeated the , or of appropriate intervention, that occurs in a relationship of trust and causes or to an older person.” (WHO, excerpted from the Toronto Declaration of 2002) http://www.medileg.fr/Maltraitance-envers-les-personnes http://maltraitanceaines.gouv.qc.ca/ abuse abuse abuse http://maltraitanceaines.gouv.qc.ca/ violations abuse Physical abuse Assaultive behaviours, the older person is: Telltale signs: struck pushed bruises roughed-up weight losses made to wait for help evasive answers behavioural changes http://maltraitanceaines.gouv.qc.ca/ http://www.radiocanada.ca/regions/ontario/2013/05/19/005maltraitance-personnes-agees-residence-stjoseph.shtml#top Psychological abuse Assaultive behaviours, the older person is: Telltale signs: humiliated threatened dependence upon others infantilized depression ignored absence of hygiene isolated alcohol or medication consumption loss of cognitive functions (rapid decline) http://www.youtube.com/watch?v=TT-wlkA90Do http://maltraitanceaines.gouv.qc.ca/ Sexual abuse The older person is: Telltale signs: a victim of touching, assault or exhibitionism ridiculed for their need to live their sexuality compelled to listen to suggestive language non respect of their intimacy http://maltraitanceaines.gouv.qc.ca/ lesions in the genital area sleep disorders aggressive behaviours distrust of others anxiety at bath time Rights violations Rights are violated when the older person: is a victim of ageism is made to accept others’ decisions when he or she has the capacity to decide for him- or herself Telltale signs: non-observance of the confidentiality of their personal information non-observance of their capacity to intervene in a discussion deprivation of freedom of choice in daily activities http://maltraitanceaines.gouv.qc.ca/ http://www.suretequebec.gouv.qc.ca/aines/la-surete-vous-conseiles lle/situations-abus-aines.jsp Negligence The older person is a victim of negligence when someone around them: fails to do something necessary for their wellbeing N.B. intentionally or through ignorance… Telltale signs neglected hygiene malnutrition social isolation etc. http://www.suretequebec.gouv.qc.ca/aines/la-surete-vous-conseiles lle/situations-abus-aines.jsp Fraud, theft and deception The older person is a victim of material or financial abuse when he or she is subjected to: emotional blackmail to obtain their money theft of possessions, jewelry pressures to bequeath their property fraud through identity theft fraud by telemarketing etc. Benevolence/ Beneficence Benevolence : a feeling by which one wants the good of another person. Beneficence : a principle of medical ethics in which one must do good to or cause good to be done to others Ageism A process by which people are stereotyped and discriminated against on the basis of their age in a manner similar to that of racism and sexism (Dr. Robert Butler, 1975) Old age: sleepless nights, less reliable memory, stiffer joints, etc. Old age and disease are not synonymous, nor is one inevitably brought on by the other. To negate the concepts of progress and compensation in the aging person = ageism Guinchard-Kunstler, P., & Renaud, M-T., (2006), p. 105 Stereotypical equation: aging = decline Caregivers who internalise negative images on aging The quality of the care relationship in jeopardy “You know, she’s still quite bright!” Compliments or the admission of the incompetence of the person to still have at that age, opinions, reasoned impressions, founded, potentially contestable… like any other opinion… Guinchard-Kunstler & Renaud, (2006), p. 105 “Let’s change your little bandage” “You know, at that age, they’re like babies” “It’s time to change your diaper” “We shall go on our walk” “ …change your incontinence briefs or protective undergarment” “I’ll accompany you, Mrs... on your walk” Every word has a specific meaning, each word can be helpful or harmful...... 1 “Isn’t she cute” “It’s amazing how young you are…!” (Pellissier, 2012) “At your age, it’s unbelievable...!” (Pellissier, 2012) “He/she’s a special case” http://www.aqg-quebec.org/docs/Depliantexposition_versionfinale.pdf The words to say it: “Not now” “Hurry up” “I don’t have the time” “Make an effort” use of overly familiar language exaggerated intonations volume too high or too low numerous repetitions sighs “Here, everybody’s the same” Empathy and willingness to listen A luxury The words to say it: taking charge of: in taking, there is to take (to confiscate) to prolong home maintenance is sometimes to lock up institutionalization: connotation of locking away Guinchard Kunstler & Renaud, (2006), p. 179. http://books.google.ca/books?id=VZzkkCvLmOoC&pg=PA173&lpg=PA173&dq=La+vieillesse+maltrait%C3%A9e&source= bl&ots=bEGeVFyY6I&sig=SBXaGLxcY5mxUK3cf5euRJ4b5qo&hl=fr&sa=X&ei=bNo4UrrsNoLfiALE4HICQ&ved=0CHIQ6AEwCQ#v=onepage&q=La%20vieillesse%20maltrait%C3%A9e&f=false doing it instead of the older person (cocooning) making them wait unduly compelling them to eat, to go to bed early… compelling them to wear incontinence briefs (“just in case”) giving medication improperly or withholding it speaking only to the accompanying person… The first major abuse that we inflict upon older persons is to give them the help that they need. abusive rules and rigid schedules sudden room changes breach of privacy non-compliance with treatment (e.g. medication, dressings, etc.) threats of expulsion insufficient or improperly trained staff unsafe facilities http://tremintin.com/joomla/index.php?option=com_content&task=view&id=545&Itemid=85 Let us house the elderly in prisons. They will be entitled to a shower every day, video surveillance in case of problems, three meals a day, access to a library, a computer, TV, cable, a gym. Let us house criminals in nursing homes. They will be entitled to cold meals, lights out at 8 pm, one bath per week, will live in a small room and pay $1500 to $2000 a month. Biomedical approach? Timed care interventions (overly technical procedures) Caregivers’ approach regarding disabilities (association young = autonomy; older persons: disabilities = loss of autonomy) Morbidity in the hospital Contribution to the stigmatisation of older persons Contribution to loss of autonomy Etc. productivity and independence fear of dying (old age – loss of autonomy - death) Distancing Ageism Older persons’ potential / perceived primarily as declining Bourbonnais, & Ducharme (2010). Sous la direction de Lagacé https://www.google.ca/search?hl=fr&site=imghp&tbm=isch&source=hp&biw=1366&bih=543&q=medecins&oq=medecins&gs_l=img.12..0l10.7252.17826.0.20437.27.20.5.1.1.3.549.4289. 1j8j7j2j0j1.19.0....0...1ac.1.35.img..9.18.2695.6NWg3b_6zao#hl=fr&q=personnes+%C3%A2g%C3%A9es&tbm=isch Workers have: practiced harsh or rough handling laughed at and insulted patients or residents made embarrassing comments pushed residents Mr. Joly has had very little to drink for several days. The doctor is worried about dehydration and asks that he be encouraged to drink. Why do you think he refuses to drink? http://www.nurseone.ca/Default.aspx?portlet=StaticHtmlViewerPortlet&ptnme=Elder%20Abuse&plang=11 Mrs. Fox “… they speak to me as if… you didn’t know anything. They speak to you in a condescending way instead of treating you with respect… it’s a peculiar sort of person who… might want to appropriate a part of you in order to reduce your capacity of being… they are…diminishing you…when they speak to you as to a child.” Lagacé, M. (2012) Lagacé, M. (2012) . Le prisme déformant de l’âgisme. http://www.aqg-quebec.org/docs/Revue/Vie_vieillissement_09_vol7_no2bonifieEricSedent.pdf. Reduction of services covered by the State: financial issues Increase of other stakeholders’ role insufficient financial resources family: insufficient knowledge and training facilities: inadequate and unsafe Imposition of the high cost related to the care(disadvantaged seniors) greater difficulties in evaluating the quality of family care failure to provide medical follow-up in the home failure to ensure a sufficient number of home care workers failure to provide sufficient family respite etc. Lafrenière, (2009) Violence triggered by: exhaustion of families or professionals ignorance of the needs of older persons greed Dependence (96% of cases) Inability to express needs Isolation Financial vulnerability http://www.nurseone.ca/Default.aspx?portlet=StaticHtmlViewerPortlet&ptnme=Elder%20Abuse&plang=11 http://www.video.tv/documentaire/la-vieillesse-maltraitee Somebody like you and me, who forgot that their job often depends on older people A man, a woman, their fellow human… Guinchard Kunstler & Renaud (2006, 84) Loved ones Children: financial abuse and neglect People hired to help Grandchildren Spouses or life partners (Harvey, 2010) Journal de Québec, 16 juin. http://vivrevieux.blogspot.ca/2010/06/denoncer-labus-envers-les-aines-du.html A vulnerable person A person living alone Often a woman, 75 and older, who lives alone and has a disability A neighbour, your aunt, sister, brother, father or friend And one day… perhaps you! https://www.google.ca/search?q=femme+victime&hl=fr&source=lnms&tbm=isch&sa=X&ei=vyHwUtWwPIu8oQStk4GYBA&ved=0CAcQ_AUoAQ&biw=1280&bih=810#hl=fr&q=femme+ %C3%A2g%C3%A9e+triste&tbm=isch Harvey (2010) http://vivrevieux.blogspot.ca/2010/06/denoncer-labus-envers-les-aines-du.html Reasons: … of not being believed of communications skills of losing services, of being abandoned, of being institutionalised or of losing their place in a nursing home Image : http://www.radio-canada.ca/regions/quebec/2013/03/28/011-campagne-maltraitance-aines.shtml http://www.radio-canada.ca/regions/quebec/2013/03/28/011-campagne-maltraitance-aines.shtml Neighbours don’t want to interfere in others’ affairs Caregivers don’t want to antagonise the family Families don’t want to lose their home care worker Older persons are terrified of reprisals Staff remains silent to avoid trouble with their employer It isn’t easy to denounce a fellow-worker In all cases we tend not to believe the older person Guinchard Kunstler & Renaud 2006, p. 93 Rachel’s story Serge’s story Madame Dupuis’ story Suzanne’s story Peter’s story Psychological harm of interiorising ageist stereotypes : self-inflicted ageist discrimination, the words you hear: apologies for the trouble they give you apologies for being a “burden” to others in short, apologies for existing (Pellissier, 2009, p. 34) prone to depressive behaviours: withdrawal, irritability… will go so far as to refuse to eat, to drink… will sometimes ask To change attitudes and alter the discourse on aging Older persons are a source of pride and their contribution to society is important http://www.lapresse.ca/le-quotidien/opinions/carrefour-du-lecteur/201303/22/01-4633723-combattre-lagisme.php Lagacé, M. (2012) . Le prisme déformant de l’âgisme. http://www.aqg quebec.org/docs/Revue/Vie_vieillissement_09_vol7_no2-bonifieEricSedent.pdf The power to act: today and tomorrow (Empowerment) Staying autonomous… in decision making Self-stimulation through active participation in society Creating an effective communications network Reminding others that to live without being able to choose or taking chances… is to vegetate while waiting for death It’s better to get involved than to demonstrate that you are useless to society Guinchard Kunstler,& Renaud,(2006). Mieux vivre la vieillesse : 100 réponses aux questions des personnes âgées et de leur entourage. Éditions de l'Atelier. Re-examining support in the care relationship Change your outlook on old age (ageism) Use the expertise of older persons Don’t forget: older persons still have desires, needs and expectations Respect the person’s values and right to make their own decisions Obtain the person’s assent or agreement Be aware of your protective role (Advocacy) Recognise that abuse can occur everywhere… http://www.nurseone.ca/Default.aspx?portlet=StaticHtmlViewerPortlet&plang=11&ptnme=Other%20Resources%20-%20PEACE%20sites Harvey (2010) http://vivrevieux.blogspot.ca/2010/06/denoncer-labus-envers-les-aines-du.html http://www.aqg-quebec.org/264/Pistes-d-action.gerontologie Guinchard Kunstler,& Renaud,(2006). Mieux vivre la vieillesse : 100 réponses aux questions des personnes âgées et de leur entourage. Éditions de l'Atelier. Objectives Develop an intervention policy regarding the abuse of older persons and their abusers Ensure the dissemination of information (public awareness campaigns, networking between agencies) Develop training programs and showcase training Promote the quality of life of older persons and the quality of services offered Raise ageism awareness Increase community awareness of the aging phenomenon Hébert, Craig et & Douglas (2012) et AQG (2011) Le guide pratique En mains (2010). Chaire de recherche et de maltraitance envers les personnes aînées http: //www.maltraitancedes aines.com/fr http://www.aqg-quebec.org/docs/Depliant_AQG_2011.pdf Association québécoise de gérontologie ( 2012). Avez-vous tendance à faire de l’âgisme ? Campagne de sensibilisation. Association québécoise de gérontologie ( 2012). Des exemples précis d’âgisme. http://www.aqgquebec.org/262/Des-exemples-precis.gerontologie. Association québécoise de gérontologie (2012). Sensibiliser vos milieux de travail à l'âgisme! http://www.aqg-quebec.org/298/Milieux-de-travail.gerontologie. Beaulieu, M. & Bergeron-Patenaude, J. (2012). La maltraitance envers les personnes âgées. Changer le regard. Les presses de l’université Laval. Bourbonnais, A. & Ducharme (2010). L'âgisme. Comprendre et changer le regard social sur le vieillissement, Laval (CAN) : Les Presses de l'Université Laval, pages 155-174. http://www.aqg-quebec.org/docs/Revue/Vie_vieillissement_09_vol7_no2bonifieEricSedent.pdf Guinchard Kunstler, P., Renaud, M-T ( 2010) Mieux vivre la vieillesse 100 réponses aux questions des personnes âgées et leur entourage. Éditions de l’Atelier. Hébert, M., Craig, J., & Douglas, A. (2012). Collaboration interprofessionnelle. Stratégies pour lutter contre les mauvais traitements à l’égard des personnes âgées. Association canadienne des ergothérapeutes. Présentation Ppoint. Harvey, D. (2010). Dénoncer l’abus envers les aînés du Québec. Journal de Québec, 16 juin. http://vivrevieux.blogspot.ca/2010/06/denoncer-labus-envers-les-aines-du.html Hugonot, R. ( 1998 ). Violences invisibles. Reconnaître les situations de maltraitance envers les personnes âgée. Hugonot, R. (1998). ). La vieillesse maltraitée. Janvier Lafrenière, R. (2009) Soutien à domicile des personnes âgées en perte d’autonomie et questions éthiques. Vie et Vieillissement. Vol. 7, no2. Lagacé, M. (2012) . Le prisme déformant de l’âgisme. http://www.aqgquebec.org/docs/Revue/Vie_vieillissement_09_vol7_no2-bonifieEricSedent.pdf Lagacé, M. (2010). L’âgisme. Comprendre et changer le regard social sur le vieillissement. Presses de l’université Laval. Pellissier, J. (2009). Âgisme et stéréotypes. http://www.aqgquebec.org/docs/Revue/Vie_vieillissement _o9_vol_7_no2-bonifieEricSedent.pdf. Vézina,J.(2010). L'âgisme. Comprendre et changer le regard social sur le vieillissement., Laval (CAN) : Les Presses de l'Université Laval, 2010, pages 133-153. http://www.bdsp.ehesp.fr/Base/436632/