Improving Post-School Outcomes for Youth with Mental Health Issues Mason G. Haber, Ph.D. Department of Psychology University of North Carolina at Charlotte Youth Voices “For me personally, I had no interest in the typical college experience” “After my experience in the crisis hospital unit, I found myself engaging in Options more fully and starting to make a lot of progress in my transition. I was able to get my G.E.D. (the “Good Enough Diploma”.) That was a big moment for me. I was always told that if I didn’t walk with my graduation class, I was nothing and would never amount to anything. “It was very helpful to me when my caseworker, my mother, and I all got on the same page. We worked really well together, and this made me feel that we had a good plan” “I needed to be taught to become an adult not when I was 18 but when I was 12,15, or 16. Now that I’m 18 in New York City, I’m no longer eligible for the programs I still need. I have nowhere to go. I need to learn to balance a checkbook, maintain an account, pay my bills, and clean my apartment. I needed to start learning these skills more than just 2 months before my 18th birthday. Taken from: Clark, H.B. & Davis, M. (2000). Transition to Adulthood: A Resource for Assisting Young People with Emotional or Behavioral Difficulties. Baltimore, MD: Brookes; Clark, H.B., & Unruh, D.K. (2009). Transition of youth & young adults with emotional or behavioral difficulties. Baltimore, MD: Brookes Understanding Outcomes of Youth with Mental Health Issues These youth voices illustrate key predictors of post-school success or failure for youth with mental health issues (MHIs): – – – – “Nontypical” learning experiences School completion, both standard and nonstandard Family involvement Training in basic skills Identifying these predictors is the first step toward improving outcomes Data on predictors are a necessary complement to data on evidence-based practices Objectives Today’s talk will focus on research predicting post-secondary outcomes of youth with MHI & its implications Specifically, we will describe: 1) existing research on post-secondary outcomes of youth with mental health issues (MHIs) 2) research on predictors of outcomes of youth w/MHIs 3) research and best practice guidelines for improving post-secondary outcomes of youth with MHI 4) policies to improve post-secondary outcomes Why Focus on Predicting Post-secondary Outcomes? Predictors of in-school success may not translate to post-school gains Questions to answer: – Which factors predictive of in school improvement also result in success post-exit? – Which programs or practices impact both in school and post-school outcomes? – Which targets for programs (e.g., skills) are most associated with improved post-school outcomes (i.e., mediators?) Why Focus on Predicting Post-secondary Outcomes? Test et al. (2008). Evidence-based Secondary Transition Practices and Predictors. Post-secondary Outcomes: Types and Timing Measures of employment Measures post-secondary educational experiences Combined measures (e.g., “productivity” or “engagement”) Other types of indicators (e.g., independent living, quality of life) Indicator 14 & beyond – Transition continues past post-exit year 1, so these “outcomes” are predictors as well Outcomes are also linked (e.g., employment may drive or inhibit education) Types of Mental Health Issues Pervasive dysregulation (i.e., SED/EBD) Clinically significant depression or anxiety Severe or complex traumatization Delinquent/illegal behavior, including substance use/abuse Dual diagnoses, including other disabilities (e.g., ID, LD) Adjustment issues Emerging or prodromal psychotic disorder Synthesis Inc. (2006; 2009) Youth with “Disability” vs. with “Issues” For MHIs, the disability label may be particularly stigmatizing (Clark & Davis, 2000) Disability label may not be a fit; even “severe” issues may not be lifelong (Burt & Masten, 2010) Focusing on MHIs is inclusive of youth who could benefit from secondary prevention – e.g., as part of a comprehensive school-based mental health plan (Simonsen & Sugai, 2009) Although our focus today is on youth classified as disabled, a wider continuum should be addressed Common Challenges Developmental Transitions Institutional Transitions These transitions may be particularly problematic for youth w/MHI “Unique” factors – – – – Disability reflects meta-cognitive deficits Strain on relationships w/adults “Invisibility” of disability All of these impact post-secondary outcomes Davis, Green, & Hoffman (2009); Davis & Vander Stoep (1997); Podmostko (2007) Post-secondary outcomes of youth with MHI Comparisons groups can include ownage peers or youth w/other disabilities Youth w/MHI vs. other disabilities have – Poorer employment outcomes – Lower % of secondary school completion – Lower % in post-secondary education – Much higher rates of negative outcomes e.g., criminal justice, drug use, pregnancy Post-secondary outcomes of youth with MHI Table 1. Outcomes of Youth with MHI, All Disabilities, & General Population Indicator NLTS1 Youth w/SED NLTS2, Wave 3 NLTS2, Wave 3 U.S. General Youth w/EBD All Population H.S.school completion 48 62 79 79 Currently employed 48 42 55 62 Post-secondary education 26 31 42 49 Living with family 45 66 73 65 Adapted from Clark & Unruh (2009) What Predicts Outcomes? – Kohler’s Taxonomy Student Development • Life Skills • Career & vocational curriculum • Structured work experience • Assessment • Support Services Student Program Structure Student-Focused Planning • Philosophy • IEP development • Program Policy • Student • Strategic Plans participation • Evaluation • Planning • Resource Strategies Allocation • Resource Development Program/Family Family Involvement • Family Training • Involvement • Empowerment Interagency Collaboration • Framework • Service Delivery System Adapted from Kohler (1996) Predictors of Outcomes – NSTTAC meta-analysis Test et al. (2009) reviewed studies on predictors of post-secondary outcomes for all youth w/disabilities – Three outcomes: Employment, Post-secondary Education, & Independent Living Studies were coded by Kohler taxonomy category Coding has just been completed for a meta-analysis and extension of this study (N = 36 studies) What has been found in the studies focusing on youth w/ MHI? Test, D., Mazotti, A., Mustian, A.L., Fowler, C.H., Kortering, L., & Kohler, P. (2009). Evidence-based secondary transition predictors for improving postschool outcomes for students with disabilities. Career Development for Exceptional Individuals, 32, 160-181. Predictors of Outcomes – NSTTAC meta-analysis 2 studies!! Study 1: A secondary analysis of NLTS-1 (Rylance, 1998) – Predictors of employment: “Functional competence”; H.S. Diploma achievement (~10% of variance) – Vocational & counseling predicted only 2.54% Study 2:“Steps to Success” (Karpur et al., 2005) – Participants later showed greater post-secondary enrollment than matched youth Karpur et al., (2005). Transition to adult roles for students with emotional/behavioral disturbances: A followup study of exiters from Steps-to-Success. Career Development for Exceptional Individuals, 28, 36-46; Rylance (1998). Predictors of post-high school employment for youth identified as severely emotionally disturbed. Journal of Special Education, 32, 184-192 Predictors of Outcomes – NSTTAC meta-analysis N=20 studies had significant #s of youth w/ MHI (> 5%) or included all disabilities Significant predictors were identified in all 5 Kohler taxonomy categories By far, student development and program structure were best represented Fewer studies focused on planning, family involvement, and coordination Note that the former categories are program level factors, the latter, system-level Predictors from NSTTAC Review Student Development predicted 3 outcomes (education, employment, and independent living) – Examples: career awareness, community experiences, diploma receipt, self-determination Program structure (e.g., specialized transition programs) predicted education & employment outcomes Planning predicted education outcomes Family involvement was only examined in a study focusing on learning disabled youth Collaboration Test et al., (2009). predicted education outcomes Findings from Scientific Proceedings (Karpur, Haber, & Clark, 2007) Karpur et al. (2007) linked Florida DOE databases to predict outcomes 2 years post-exit – Youth w/MHIs analyzed separately – Predictors: diploma type & service utilization Findings: – Certificates & nonstandard diplomas improved employment and education outcomes – MHSA service utilization related to poorer employment and education outcomes – Note, despite propensity scoring use to balance groups, MHSA youth may have more severe problems Karpur, A., Haber, M., & Clark, H.B. (2007). Utilizing statewide administrative databases to follow postsecondary outcomes for youth with emotional and/or behavioral disturbances. 20th Annual Conference of the Research and Training Center on Children’s Mental Health. Tampa, FL: University of South Florida. Post-secondary Outcomes of Youth w/EBD by School Exit Type Post-secondary Outcomes of Youth w/EBD by MHSA Service Use Research on predictors: Implications Youth w/MHI have poorer outcomes than youth w/disabilities overall Student development predicts outcomes – Functional competence & diploma achievement (both standard & nonstandard) (e.g., Karpur et al., ’05, ’07; Rylance, 1998) Programs focusing on transition issues (e.g., steps to success) predict better outcomes – Bridges to Work, TIP , RENEW General vocational services, counseling, and MHSA predict weakly, at best Research on Predictors: Implications More research and evaluation of planning, family involvement, & interagency collaboration are needed. Despite the lack of post-school outcome data, other types of evidence suggest these are promising areas of focus, including: – Data on role of family support among students in general, and also normal & vulnerable young adults – Data on wraparound and systems of care – Evidence-based practices w/similar populations – Best practice guidelines & promising program models Family Involvement Parent involvement relates to better performance on student & school levels Research on young adults suggests financial independence is not achieved until 25 or later Involvement by parents and other supportive adults also critical for youth w/MHI specifically However, the role of family changes, and working with families may become more challenging – This has important implications for planning and interagency coordination Selected References: Haber, Cook, & Kilmer (2010); Hatter, Williford, & Dickens; Jivanjee, P., Kruzich, J.M., & Gordon, L.J. (2009). Family & Youth Driven Wraparound? (Haber, Cook, & Kilmer, 2010) Caregiver Strain by Age of Youth in Wraparound Services Caregiver Strain 4 3.5 ** 3 2.5 Ages 11-13 Ages 15+ 2 ** p < .001 1.5 1 0.5 0 Objective Internalizing Externalizing Family & Youth Driven Wraparound? (Haber, Cook, & Kilmer, 2010) CFT Processes Among Older vs. Younger Adolescents 4.0000 3.8000 * Age 11-13 3.6000 Rating Age 15+ * p < .05 3.4000 3.2000 3.0000 Cohesion youth Functioning youth Cohesion caregiver Measure Functioning caregiver Solutions? In a recent review of wraparound child & family teams (CFTs) for a local transition program: – Intact CFTs performed poorly – Youth-identified CFTs were more dynamic – The best teams formed to respond to a futures plan created by youth with transition specialists. – In some cases, teams met only sporadically, had changing membership, or were not used. – In sum: team development proceeded best when tailored to youth driven plans D. Jackson-Diop (personal communication, May 17th ,2010). Interagency Collaboration Needs for interagency collaboration to support developmental transition of youth are clear In transitioning to adulthood, youth experience many changes at once and have diverse needs Institutional transitions/silos can also be disruptive Well documented examples for youth w/MHI: – The siloing of child and adult mental health system – Siloing of mental health and substance abuse services is problematic due to high rates of co-occurring disorders Reviews, expert opinion surveys, & case studies provide insights on improving collaboration (e.g., Haber et al., 2007; Davis et al., 2009) Recommendations for Interagency Collaboration – Local Placing personnel from other sectors in schools, starting from early on – VR, adult mental health, transition specialists, community college counselors, benefits counselors Transition case review teams Community Steering Committees – Youth voice and leadership are important Mechanisms for blending funding Sources: Haber, M.G., Loker, T., Deschenes, N., & Clark, H.B. (2008). Career Development for transition-aged youth with emotional disturbances: Exemplary practices of Florida mental health and substance abuse agencies (ACHA series, 220-115). Tampa, FL: University of South Florida; Woolsey, L., & Katz-Leavy, J. (2007). Transitioning youth with mental health needs to meaningful employment and independent living. Washington, D.C.: NCWD/IEL Recommendations for Interagency Collaboration – State Interagency task forces and collaboratives Learning communities State-local partnerships (e.g., Healthy Transitions) Youth summits – MA, Portland National Summit Policies to address service silos (e.g., flexible reimbursement, addressing inconsistencies in eligibility criteria) Technical Assistance to localities to use data more effectively (e.g., longitudinal data systems) Davis, M. & Konyagi, C. (2005). Summary of Center for Mental Health Services youth transition policy meeting: National experts panel; Haber et al., (2008); Koroloff, N., Davis, M., Johnsen, M., & Starrett, B. (2009). Under construction: Linkages between youth and adult systems. Rockville, MD: SAMHSA Collaborative Program & System Models Transition to Independence Process (TIP) (Clark, 1995, 2004) Rehabilitation, Empowerment, Natural Supports, Education, and Work (RENEW; Malloy, Drake, & Couture, 2009) – Both of these models were specifically developed for youth with MHI – RENEW provides guidelines for use within a School-wide Positive Behavioral Support Program Clark, H.B. (2004). TIP System Development and Operations Manual. Tampa, FL: University of South Florida; Malloy, J. M., Drake, J., & Couture (2009). RENEW Facilitator’s Manual: Secondary Transition for Youth & Young Adults. Manchester, NH: University of New Hampshire. Conclusions Research on post-school outcomes identifies important factors, programs, and targets related to post-school success Schools and communities can: – Evaluate programs by measuring in-school factors and targets related to post-school success – Use promising specialized transition programs such as TIP and RENEW, as part of a school-based mental health continuum of care – Attend to developmentally appropriate family involvement and care coordination, using models such as TIP & RENEW to guide these strategies Conclusions States can assist schools & communities by: – Providing technical assistance in measurement of in school variables most strongly related to outcomes – Promote dissemination of promising transition programs (e.g., by working with purveyors to provide centralized technical assistance) – Invest in longitudinal data systems to improve evidence-base on post-school outcomes and inform local efforts – Develop policies that address child & adult mental health as well as other service silos – Create post-school outcome focused statewide plans Thank You!!