Publications
Articles and chapters of books
Nurses' experiences and perspective on medication safety practices: an explorative qualitative study
M Smeulers, AT Onderwater, MCB van Zwieten, H Vermeulen, Journal of Nursing Management, 2014; 22: 276285
*Patient's perspectives on how treatment can impede their recovery from depression
RA van Grieken, EJAJ Beune, ACE Kirkenier, MWJ Koeter, MCB van Zwieten, AH Schene. Journal of Affective
Disorders, 2014; 167: 153-159
*Goede dokter denkt na over zijn functioneren [Good doctors are self-aware]
Myra van Zwieten. De Volkskrant, 2013, 2 november 2013, p. 35
*Gedrag co Tuitjenhorn stemt optimistisch (Intern’s professionalism in Tuitjenhorn)
Myra van Zwieten. Medisch Contact, 7 november 2013, p. 2316-2317
*A qualitative participatory study to identify experiences of coronary heart disease patients to support
the development of online self-management services
Sandra Vosbergen, Jolien Janzen, Pieter Jan Stappers, Myra van Zwieten, Joyca Lacroix, Karin Ideman, Inge
van den Broek, Hareld Kemps, Roderik Kraaijenhagen, Niels Peek. International Journal of Medical Informatics,
2013; 82: 1183-1194
* The influence of medical testing on patients’health: an overview from the gynecologists’perspective.
Jolande Y Vis, Myra CB van Zwieten, Patrick MM Bossuyt, Karel GM Moons, Marcel GW Dijkgraaf, Kirsten J
McCaffery, Ben Willem J Mol and Brent Opmeer. BMC Medical Informatics and Decision Making, 2013,13:117
*Fabry patients’ experiences with the timing of diagnosis relevant for the discussion on newborn
screening
MG Bouwman, MH de Ru, GE Linthorst, CEM Hollak, FA Wijburg, MCB van Zwieten. Molecular Genetics and
Metabolism 2013; 109: 201-207
*Research monitoring by US medical institutions to protect human subjects: compliance or quality
improvement?
JP De Jong, MCB van Zwieten MCB, DL Willems. Journal of Medical Ethics, 2013; 39 (4): 236-241
*Work participation and arthritis: a systematic overview of challenges, adaptations and opportunities for
interventions.
JL Hoving, MCB van Zwieten, M van der Meer, JK Sluiter, MHW Frings-Dresen. Rheumatology, 2013; 52:12541264
*Patients’ and professionals’ barriers and facilitators to external cephalic version for breech presentation
at term, a qualitative analysis in the Netherlands.
AN Rosman, F Vlemmix, MAH Fleuren, ME Rijnders, A Beuckens, BC Opmeer, BWJ Mol, MCB van Zwieten, M
Kok. Midwifery, 2013, ahead of print
*“Two Birds with One Stone”: Moral Awareness Skills Training to Improve Both Patient Care and
Professional Growth.
Myra CB van Zwieten. Symposium 10 at the 44th Congres of the International Society of Paediatric Oncology
(SIOP), London, United Kingdom, 5-8 October. Pediatric Blood and Cancer, Dec. 2012, p. 970
*Moral Reflection: ‘Discussing’ ethical issues with yourself
Myra C.B. van Zwieten, Symposium 10 at the 44th Congres of the International Society of Paediatric Oncology
(SIOP), London, United Kingdom, 5-8 October. Pediatric Blood and Cancer, Dec. 2012, p. 970-971
*Ethical review from the inside: repertoires of evaluation in Research Ethics Committee meetings.
JP de Jong JP, MCB van Zwieten, DL Willems. Sociologogy of Health & Illness, 2012; 34 (7): 1039-1052
*Experiences of parents and patients with the timing of Mucopolysaccaridosis type I (MPS I) diagnoses
and its relevance to the ethical debate on newborn screening.
MH de Ru, MG Bouwman, FA Wijburg, MCB van Zwieten. Molecular Genetics and Metabolism, 2012; 107 (3):
501-507
1 All * marked publications are downloadable via the website Publication list September 2014 *Counselling on disclosure of gamete donation to donor offspring: a search for facts.
M Visser, PAL Kop, M van Wely, F van der Veen, GJE Gerrits, MCB van Zwieten. Facts, Views & Vision in
ObGyn, 2012, 4(3): 159-172
*The influence of patient reported outcomes on the discussion of psychosocial issues in children with
cancer.
V Engelen, M van Zwieten, H Koopman, S Detmer, H Caron, P Brons, M Egeler, GJ Kaspers, M Grootenhuis,
Pediatric Blood & Cancer, 2012; 59(1): 161-166
*Disentangling cancer patients’ trust in their oncologist: a qualitative study.
MA Hillen, AT Onderwater, MCB van Zwieten, HCJM de Haes, EMA Smets, Psycho-Oncology, 2012; 21(4): 392399
*Patients’ and professionals’ barriers and facilitators of tailored expectant management in subfertile
couples with a good prognosis of a natural conception.
NM van den Boogaard, B van den Boogaard, A Bokslag, MCB van Zwieten, PGA Hompes, S Bhattacharya, W
Nelen, F van der Veen, BWJ Mol, Human Reproduction, 2011; 26(8): 2122-2128
*Patients' and professionals' opinions on newborn screening for Fabry disease: a focus group study.
MG Bouwman, GE Linthorst, FA Wijburg, MCB van Zwieten. Chapter 11 in PhD thesis Fabry Disease: Studies
on Diagnosis, Screening and Patients' Perspectives, MG Bouwman, Amsterdam: Universtity of Amsterdam, 2011
*Communicatie over ethische kwesties in de medische praktijk. [Communicating about ethical issues in
medical practice]
nd
Myra van Zwieten. In: Medische psychologie. [Medical Psychology] Kaptein, Prins, Collette, Hulsman (eds). 2
revised edition. Houten: Bohn Stafleu Van Loghum, 2010, p. 213-224
*Coaching in end-stage COPD: Improving palliative care provision by using the metaphor of athletics.
JM Habraken, MCB van Zwieten, EJM Weersink, DL Willems. Chapter 6 in PhD thesis Palliative care needs of
patients with advanced COPD. An exploration of ilness experiences. J Habraken, University of Amsterdam, 2009
*Patients’ views on screening for depression in general practice.
KA Wittkampf, M van Zwieten, F Th Smits, AH Schene, J Huyser, HC van Weert. Family Practice, 2008, 25(6)
438-44
Constructing results in prenatal diagnosis: beyond technological testing and moral decision-making.
Myra van Zwieten. In: Genetics from Laboratory to Society. Societal Learning as an Alternative to Regulation.
Gerard de Vries and Klasien Horstman (eds.) Hampshire: Palgrave MacMillan. 2008, p. 17-36
*Het belang van een weloverwogen keuze – maar wat behelst de keuze. De complexe besluitvorming bij
prenataal onderzoek [The importance of a well-considered choice - but what is the choice? Complex
decision-making in prenatal screening].
Myra van Zwieten. De Psycholoog [Psychologist], 2008, p. 20-25
*Comparing genetic counseling with non-genetic health care interactions: two of a kind?
Ellen Smets, Myra van Zwieten, Susan Michie. Patient Education and Counseling 2007, (68) 225-234
*Randomized, controlled trials in the emergency setting: A matter of physician-patient
relationships, responsibility, and trust.
Albert B. Bos and Myra C.B. van Zwieten. Critical Care Medicine. 2007, 35, 3, 979-980
*De toekomst van de – snelle – prenatale diagnostiek: globaal of gericht testen? [The future of – rapid –
prenatal diagnosis: should testing be general or targeted?]
Myra van Zwieten. Huisarts en Wetenschap. 2007, 50 (13), 682-685
Waardering van kwalitatief onderzoek. [Valuing qualitative research]
Myra van Zwieten en Dick Willems. In: Kwalitatief onderzoek. Praktische methoden voor de medische praktijk].
[Qualitative research: Practical methods for medical practice] Lucassen & olde Harteman, Houten: Bohn Stafleu
van Loghum, 2007, p. 111-121
*Kwalitatief onderzoek [Qualitative research]
Thomas Plochg en Myra van Zwieten In: Nederlands Handboek Gezondheidszorgonderzoek [Netherlands
Handbook of Health Care Research. Plochg, Juttmann, Klazinga, Mackenbach (red.) Houten: Bohn Stafleu Van
Loghum, 2007, p. 77-93
2 All * marked publications are downloadable via the website Publication list September 2014 *Snelle prenatale diagnostiek van chromosomale afwijkingen; beperkingen en mogelijkheden [Rapid
prenatal diagnosis of chromosomal abnormalities: limitations and opportunities] (letter to the editor).
MCB van Zwieten, NJ Leschot, DL Willems. Nederlands Tijdschrift voor Geneeskunde. 2006, 4 november; 150
(44) 2454
*Communication with patients during the prenatal testing procedure. An explorative qualitative study.
Myra CB van Zwieten, Dick L. Willems, Lia K. Knegt Lia, Nico J. Leschot. Patient Education and Counseling
2006 vol. 63 (1-2) 161-168
*How unexpected are unexpected findings in prenatal diagnosis? A literature review.
M. van Zwieten, D. Willems, L. Litjens, H. Schuring-Blom, N. Leschot European Journal of Obstetrics &
Gynecology and Reproductive Biology 120 (2005) 15-21
Een uitslag maken in de prenatale diagnostiek: professionele anticipatie op een ouderlijk besluit.
[Constructing results in prenatal diagnosis: beyond technological testing and moral decision-making].
Myra van Zwieten. In Genetica van laboratorium naar samenleving. De ongekende praktijk van voorspellende
genetische testen. [Genetics from Laboratory to Society. Societal Learning as an Alternative to Regulation]
Gerard de Vries en Klasien Horstman (eds.). Amsterdam: Uitgeverij Aksant. 2004
*Waardering van kwalitatief onderzoek [Valuing qualitative research].
Myra van Zwieten and Dick Willems. Huisarts en Wetenschap, [GP and Science] 2004, 47, No. 13, pp. 631-5
Uit de praktijk. Directief counselen: en dan? Psychologisch commentaar [From practice. Directive
counselling: what next? A psychological perspective].
Myra van Zwieten. Tijdschrift voor Gezondheidszorg en Ethiek; [Journal of Health Care and Ethics] 2003, 13:1,
20-22.
*Guidelines for quality assurance in health and health care research: Qualitative Research.
T.Plochg & M.van Zwieten. Amsterdam, 2002. ISBN 90-9018033
*Keuzeproblematiek in modern erfelijkheidsonderzoek: welke begeleiding is gewenst? [The problem of
choice in modern genetic testing: what counselling should be given?]
Tijdschrift voor Geneeskunde en Ethiek, [Journal of Medicine and Ethics] 2000, 10; 4, 116-120
*Kwalitatief onderzoek en genetica: de gangbare kaders voorbij [Qualitative research and genetics:
going beyond the standard frameworks].
Myra van Zwieten. Kwalon: Tijdschrift voor Kwalitatief Onderzoek in Nederland [Journal of Qualitative Research
in the Netherlands], 2000, 5; 3, pp. 60-63
*Geneticalisering: een nieuw concept [Geneticization: a new concept].
M. van Zwieten en H. ten Have Medisch Contact, 1998, 53, 12, pp. 398-400
Books
Opleiden tot flexibele zorgprofessionals. Visiedocument curriculumontwikkelingen ASHP [ Educating
flexible health professionals: guide for curriculum development]
Wouter Hogervorst and Myra van Zwieten. Amsterdam School of Health Professions. 2014 (internal publication)
*Professioneel Gedrag in Curius [Professional Conduct in the AMC Curriculum]
Myra van Zwieten and Coby Baane. Amsterdam: Onderwijsinstituut Geneeskunde AMC, 2009
*The Target of Testing. Dealing with ‘unexpected’ findings in prenatal diagnosis.
Myra van Zwieten. Amsterdam: University of Amsterdam (thesis). 2006
Ons gescreende lichaam - kansen en risico’s van de genetica. [Our Screened Body – opportunities and
pitfalls of the new genetics]
Myra van Zwieten and André Kalden. Amsterdam: Uitgeverij Balans. 1999
Stoppen of Doorgaan - omgaan met ongewenste kinderloosheid. [To Stop or to Continue – Coping with
unwanted childlessness]
Emmelie van Asten and Myra van Zwieten. Groningen: Uitgeverij Van Brug. 1996
3 All * marked publications are downloadable via the website Publication list September 2014 Stil Verdriet – Een ego-document over ongewenste kinderloosheid. [Silent Grief – a personal account of
unwanted childlessness]
Marianne Disseldorp, edited by Myra van Zwieten. Groningen: Uitgeverij Van Brug. 1994.
Conference presentations
*European Association for Communication in Health (EACH)
Amsterdam, 28 September - 1 October, 2014
Workshop "Moral mindfulness in shared decision making: integrated reflection and communication skills training for
health professionals"
*Conference on Communication, Medicine and Ethics (COMET)
Lugano, 26-28 juni 2014
Panel "Articulated values and skilled communication: the foundation of humanistic care"
Oral presentation "Moral mindfulness for health professionals: Knowing when and how to address your own values
Fetal heart abnormalities; prenatal and postnatal. Symposium of the Organization for Prenatal Screening
Southwest Holland
Rotterdam, the Netherlands.
Presentations (in Dutch): “Post test counseling: skillful tour guides required!”
2nd Symposium on Healthcare Communication: Fostering International Research Collaboration for Safer
and More Compassionate Healthcare Communication
Hong Kong, 24-26 June 2013, International Research Center for Communication in Healthcare (ICCH)
Invited speaker and participant in Roundtable Discussion
Presentation: “Moral Mindfulness: the next call in Healthcare Communication”
Roundtable on Social Work and Care: Client power, self-management and professionalism: an
inconvenient relation?]
Amsterdam, the Netherlands, 29 May 2013
Presentation (in Dutch): “Client power, self-management and professionalism: a most convenient relation!
*44th Congres of the International Society of Paediatric Oncology (SIOP)
London, United Kingdom, 5-8 October 2012
Invited speaker: chair and organiser Symposium 10 on Bioethics: ‘“Two Birds with One Stone”’: Moral
Awareness Skills Training to Improve Both Patient Care and Professional Growth”
Own presentation: “Moral Reflection: ‘Discussing’ ethical issues with yourself”
Ambitious and Passionate Innovation in Teaching – Competence-based Education in the Postdoctoral
Psychology Curriculae]
Amsterdam, the Netherlands, 15 June 2012
Presentation (in Dutch): “Moralmap.com: An interactive educational tool for Teaching in Professionalism
*11th World Congress on Bioethics
Rotterdam, the Netherlands, 26-29 June 2012, International Association of Bioethics (IAB)
Meet the Dutch experts: “Moralmap.com: website for moral reflection”
*International Conference on Communication in Health Care
Chicago, USA, 16-19 October 2011, American Association of Communication in Health Care (AACH)
Workshop “Moralmap.com, website for Moral Reflection. An interactive Educational Tool for Use in Medical
Training.”
Seventh International Conference on Clinical Ethics and Consultation
Amsterdam, the Netherlands,18-21 May 2011
Workshop “Moralmap.com: Interactive Educational Tool for Use in Medical Training”
*Conference of Communication, Medicine and Ethics (COMET)
Cardiff, United Kingdom, 25-27 June 2009
Workshop “MIMES – A communication model for moral counseling in the clinical setting”
4 All * marked publications are downloadable via the website Publication list September 2014 Working conference of the AMC-UWV-VUmc Insurance Medicine Centre of Expertise
Leiden, the Netherlands, 3 February 2009
Presentation (in Dutch): “Focus Groups for Dummies”
*Innovations and dilemmas surrounding screening for sickle-cell anaemia
Amsterdam, the Netherlands,18 December 2008
Chair of workshop (in Dutch) “Gaps in the care for carriers
*Mixed methods, A State of the Art.
Amsterdam, 28 November 2008
Day chair
*International Conference on Communication in Health Care
Oslo, Norway, 2-5 September 2008
Workshop “Website moral reflection: an innovative tool for medical professionals to improve moral counselling
skills”
*Fifth National Working conference on Moral Deliberation
Leusden, the Netherlands,18 June 2008
Workshop (in Dutch): “A different counselling technique: zooming into positive experiences instead of problems”
*Qualitative research: an update. Contemporary methods for use in health care research
Amsterdam, the Netherlands, 2 November 2007
Day chair
*NVMO (Netherlands Association for Medical Education) conference
Noordwijk, the Netherlands,14-16 November, 2007
Presentation (in Dutch): “A website for moral reflection in the General Practice programme: development and
possible uses”
*XXIst European Conference on Philosophy of Medicine and Health Care ESPMH
Cardiff, UK, 15-18 August 2007,
Presentation “The target of testing. Reflections on the morality of prenatal testing”
First National Conference on Prenatal and Neonatal Screening
RIVM (National Institute for Public Health and the Environment)
De Bilt, the Netherlands, 22 May 2007
Participated in plenary panel discussion (in Dutch)
*European WONCA Conference
Florence, Italy, 27-30 August 2006
Presentation “Targeted testing in prenatal diagnosis: who decides about the target?”
*European Human Genetics Conference/ European Meeting on Psychosocial Aspects of Genetics
Amsterdam, the Netherlands, 6-9 May 2006
Presentation “Targeted testing in prenatal diagnosis: the best way to deal with problematic finding?”
Publishing Qualitative Research
Amsterdam, the Netherlands, 10 May 2005
AMC seminar on the occasion of the visit of Janice Morse, founding editor of Qualitative Health Research
Organizer and chair
Eleventh Qualitative Health Research Conference
Utrecht, the Netherlands, 11-13 May 2005
Symposium “Moral Evidence. Doing qualitative research in the field of medical ethics.”
*XVIIIth European Conference on Philosophy of Medicine and Health Care
Reykjavik, Iceland, 25-28 August 2004
Presentation “Professional responsibility towards the application of new methods for prenatal testing.”
Knowledge, is that all? Genetics for all in the 21st century.
District conference, Rotary District 1590,
Heerenveen, the Netherlands, 6 April 2002
Day chair (in Dutch)
5 All * marked publications are downloadable via the website Publication list September 2014 About my work
Steun, toeverlaat én raadgever [Support, Coach ánd Counselor]
Nrc.next, 123 January 2011
National newspaper’s article on the occasion of the launch of Waardenweb.nl (Moralmap.com)
*Nieuwe website stimuleert morele reflectie [New website enables moral reflection]
Short report in local AMC magazine on the official launch of Waardenweb.nl (Moralmap.com), December 2010
*Kwalitatief onderzoek scoort [Qualitative research awarded]
Interview in local AMC magazine on the occasion of the Most Outstanding Course Award, November 2009
*“Morele kwesties agenderen zonder te moraliseren.” [‘Raising moral questions without moralizing’]
Interview Tijdschrift voor Verloskundigen [Journal of Midwifery], December 2008
*“Morele reflectie is voor artsen een 'must'”. [‘Moral reflection – a must for doctors’]
Interview in local AMC magazine, September 2008
*“Kwalitatief onderzoek is niet gereserveerd voor antropologen.”[‘Qualitative research is not solely the
province of anthropologists.’]
Interview in local AMC Magazine, January 2008
*“Wat willen we met prenataal onderzoek?” [‘What do we want from prenatal screening?’]
Interview in local AMC magazine, September 2006
6 All * marked publications are downloadable via the website Publication list September 2014