July 2014
Publications of PERRIN
All scientific publications are available.
If you are interested, please let us know:
perrin@dehoogstraat.nl
(make clear which paper you are interested in, and we
send you an electronic copy)
Abstracts of publications can be found at:
http://www.ncbi.nlm.nih.gov/PubMed/
2014
Ketelaar M, Gorter JW, Westers P, Hanna S, Verhoef M. Developmental trajectories of mobility and
self-care capabilities in young children with cerebral palsy. J Pediatr. 2014 Apr;164(4):769-774.
Rooijen M van, Verhoeven L, Smits DW, Dallmeijer AJ, Becher JG, Steenbergen B. Cognitive
precursors of arithmetic development in primary school children with cerebral palsy. Res Dev
Disabil. 2014 Apr;35(4):826-32.
Smits DW, Gorter JW, van Schie PE, Dallmeijer AJ, Ketelaar M; the PERRIN+ study group. How Do
Changes in Motor Capacity, Motor Capability, and Motor Performance Relate in Children and
Adolescents With Cerebral Palsy? Arch Phys Med Rehabil. 2014 [Epub ahead of print]
Tan SS, Wiegerink DJ, Vos RC, Smits DW, Voorman JM, Twisk JW, Ketelaar M, Roebroeck ME;
PERRIN+ study group. Developmental trajectories of social participation in individuals with
cerebral palsy: a multicentre longitudinal study. Dev Med Child Neurol. 2014 Apr;56(4):370-7.
Tan SS, van Meeteren J, Ketelaar M, Schuengel C, Reinders-Messelink HA, Raat H, Dallmeijer AJ,
Roebroeck ME; PERRIN+ study group. Long-term trajectories of health-related quality of life in
individuals with cerebral palsy: a multi-center longitudinal study. Arch Phys Med Rehabil. 2014
[Epub ahead of print]
Vos RC1, Dallmeijer AJ, Verhoef M, Van Schie PE, Voorman JM, Wiegerink DJ, Geytenbeek JJ,
Roebroeck ME, Becher JG; the PERRIN+ Study Group. Developmental trajectories of receptive and
expressive communication in children and young adults with cerebral palsy. Dev Med Child Neurol.
2014. [Epub ahead of print]
1
July 2014
2013
Scientific publications
Alsem MW, Ketelaar M, Verhoef M. The course of health-related quality of life of preschool children
with cerebral palsy. Disability and Rehabilitation 2013; 35(8): 686-693.
Schie PE van, Siebes RC, Dallmeijer AJ, Schuengel C, Smits DW, Gorter JW, Becher JG. Development
of social functioning and communication in school-aged (5-9 years) children with cerebral palsy. Res
Dev Disabil. 2013 Dec;34(12):4485-94.
Smits DW, Gorter JW, Hanna SE, Dallmeijer AJ, Van Eck M, Roebroeck ME, Vos RC, Ketelaar M; on
behalf of the PERRIN Plus Study Group. Longitudinal development of gross motor function among
Dutch children and young adults with cerebral palsy: an investigation of motor growth curves. Dev
Med Child Neurol. 2013; 55(4): 378-384.
Vos RC, Becher JG, Ketelaar M, Smits DW, Voorman JM, Tan SS, Reinders-Messelink HA, Dallmeijer
AJ; PERRIN+ Study Group. Developmental trajectories of daily activities in children and
adolescents with cerebral palsy. Pediatrics. 2013 Oct;132(4):e915-23.
Presentations and abstracts international congresses
Ketelaar M. Challenges and opportunities in knowledge translation: Using evidence to improve
outcomes. CHARM, Oslo University, 19 Nov 2013.
Smits DW, Gorter JW, van Schie PEM, Dallmeijer A, Ketelaar M. How do changes in motor capacity
and motor performance relate? Oral Presentation European Academy of Childhood Disability 25th
Annual Meeting. Newcastle, 10-12 October 2013. Developmental Medicine & Child Neurology
2013; 55(Suppl 2): 24.
Products
Harmer-Bosgoed MW, Rehorst L, Faber R, Schneider H, Ketelaar M. Filmverslag Richtlijn CP in
praktijk. 20 maart 2013. http://www.youtube.com/watch?v=AAZzAV5uaws
2
July 2014
2012
Scientific publications
Bult MK, Verschuren O, Lindeman E, Jongmans MJ, Westers P, Claassen A, Ketelaar M. Predicting
leisure participation of school-aged children with cerebral palsy: longitudinal evidence of child,
family and environmental factors. Child: Care, Health, and Development 2012; 39(3): 374-380.
Wiegerink DJ, Stam HJ, Ketelaar M, Cohen-Kettenis PT, Roebroeck ME, The Transition Research
Group South West Netherlands. Personal and environmental factors contributing to participation in
romantic relationships and sexual activity of young adults with cerebral palsy. Disabil Rehabil. 2012;
34(17): 1481-1487.
Presentations and abstracts international congresses
Rooijen M van, Verhoeven L, Smits DW, Ketelaar M, Becher JG, Steenbergen B. The influence of
cognitive factors on the development of artithmetic performance of primary-school children with
cerebral palsy. Developmental Medicine & Child Neurology 2012; 54 (Suppl 3): p 10. Oral
presentation European Academy of Childhood Disability (EACD), Istanbul, Turkey, 16-19th May
2012.
Smits DW, Gorter JW, Hanna SE, Dallmeijer AJ, van Eck M, Roebroeck M, Vos RC, Ketelaar M.
Longitudinal development of gross motor function in Dutch children and youth with CP: an
investigation of motor growth curves for ages 1-24 years. Developmental Medicine & Child
Neurology 2012; 54 (Suppl 6): p 47 – 48. Oral presentation American Academy for Cerebral Palsy
and Developmental Medicine 66th Annual meeting, Toronto, Canada, 12-15 Sept 2012.
Smits DW, Vos RC, Tan SS. PERRIN+: the longitudinal development of activities and participation in
children and youth with cerebral palsy. Oral presentation, Dutch-ACD, PERRIN+, LEARN2MOVE
Symposium - Cerebrale parese: What’s new?!, Utrecht, Netherlands, 30 November 2012.
Smits DW, Vos RC, Tan SS. Lifespan expectations for individuals with cerebral palsy. Nederlands
Tijdschrift voor Revalidatiegeneeskunde 2012; 34(5): 244. Congress reader. Innovation: From
creation to implementation. Mini symposium (oral presentation). VRA Annual Congress 2012.
Noordwijkerhout, the Netherlands, 1-2 November 2012.
Tan SS, Wiegerink D, Ketelaar M, Smits DW, Voorman JM, Vos RC, Roebroeck ME. Developmental
trajectories of social participation in individuals with cerebral palsy aged 1-24. Proceedings of the
4th International Cerebral Palsy Conference, pp 84-85.Oral Presentation. Pisa, Italy, 10-13 October
2012.
Tan SS, Dallmeijer AJ, Ketelaar M. Lifespan expectations for individuals with cerebral palsy.
Proceedings of the 4th International Cerebral Palsy Conference, p 74. Instructional Course. Pisa,
Italy, 10-13 October 2012.
Vos RC, Becher JG, Ketelaar M, Smits DW, Voorman J, Roebroeck M, Reinders-Messelink H,
Lindeman E, Dallmeijer A. Developmental trajectory of performance of daily and motor activities in
individuals with cerebral palsy: the Dutch PERRIN+-study. Developmental Medicine & Child
Neurology 2012; 54 (Suppl 6): p 25-26. Poster presentation American Academy for Cerebral Palsy
and Developmental Medicine 66th Annual meeting, Toronto, Canada, 12-15 Sept 2012.
3
July 2014
2011
Scientific publications
Rooijen M van, Verhoeven L, Smits DW, Ketelaar M, Becher JG, Steenbergen B. Arithmetic
performance of children with cerebral palsy: The influence of cognitive and motor factors. Research
in Developmental Disabilities 2011;33:530-537.
Smits DW, Ketelaar M, Gorter JW, van Schie P, Dallmeijer A, Jongmans M, Lindeman E. Development
of daily activities in school-age children with cerebral palsy. Research in Developmental Disabilities
2011;32:222-34.
Smits DW, Ketelaar M, Gorter JW, van Schie P, Becher JG, Lindeman E, Jongmans M. Development of
non-verbal intellectual capacity school-age children with cerebral palsy. Journal of Intellectual
Disability Research 2011; 55: 550-562.
Wiegerink DJHG, Roebroeck ME, Bender J, Stam HJ, Cohen-Kettenis PT. Transition Research Group
Southwest Netherlands. Sexuality of young adults with cerebral palsy: experienced limitations and
needs. Sexuality and Disability 2011;29(2): 119-128.
PhD Theses
Nieuwenhuijsen C. Adults with Cerebral Palsy. Studies on physical activity, fitness and experienced
problems. PhD Thesis Erasmus MC, University Medical Centre, 2011, Rotterdam.
Smits DW. Daily activities of school-age children with cerebral palsy: development and learning. PhDthesis University Medical Center Utrecht, 2011, Utrecht
(Chapters in) Books
Wiegerink DJHG. Kinderrevalidatie: Blik op wetenschap. In: Post M et al (Red).
Revalidatiepsychologie: Mensen leren leven met...; Hoofdstuk: Kinderrevalidatie: Aandacht voor
ouders en kinderen met diverse problemen. Nederlands Instituut van Psychologen (NIP), sectie
Revalidatie, Utrecht, 2011.
Professional publications
Smits DW. Ontwikkeling van dagelijkse vaardigheden bij kinderen met cerebrale parese. [Interview]
BOSK Magazine 2011; 1: 35.
Smits DW. Daily activities of school-age children with cerebral palsy: development and learning.
Nederlands Tijdschrift voor Revalidatiegeneeskunde 2011; feb: 35-37.
Wiegerink DJHG, Roebroeck ME, Stam HJ, Cohen-Kettenis PT. Relatievorming en seksuele
ontwikkeling bij jongvolwassenen met cerebrale parese. Tijdschrift voor Seksuologie 2011; 35: 187194.
Wiegerink DJHG. Romantic relationships and sexual experiences of adolescents and Young adults with
cerebral palsy. Ned. Tijdschrift voor Revalidatiegeneeskunde 2011; 1: 38-40.
Wiegerink DJHG. Ook dat nog...Praten over seks. NIP Nieuwsbrief Sectie Revalidatie 2011; 26(62): 910.
Presentations and abstracts international congresses
Harmer-Bosgoed M, Willems M, Berdenis van Berlekom S, Ketelaar M. Knowledge Brokers Successful
in Implementation. 8 Knowledge brokers in 1 network achieve more than 200 professionals alone!
Posterpresentatie International Forum on Quality and Safety in Health Care. Amsterdam, 6 april
2011.
Ketelaar M, Gorter JW, Westers P, Hanna SE, Verhoef M. Development of mobility capability in
young children with cerebral palsy. Poster presentation European Academy of Childhood Disability
(EACD), Rome, Italy, 9-11 June 2011.
4
July 2014
Smits DW, Ketelaar M, Gorter JW, Van Schie PEM, Dallmeijer AJ, Jongmans MJ, Lindeman E. Selfcare activities of school-age children with cerebral palsy: development and determinants.
Presentation (free paper) American Academy for Cerebral Palsy and Developmental Medicine
(AACPDM), Las Vegas, Nevada, USA, 12-15 October 2011.
Wiegerink D, Linroth R, Labhard S. Let’s talk about sex. Instructional course American Academy of
Cerebral palsy and developmental Disorders (AACPDM) , Las Vegas, Nevada, 10-14 October 2011
5
July 2014
2010
Scientific publications
Alsem MW, Verhoef M, Buis LI, Ketelaar M. De gezondheidsgerelateerde kwaliteit van leven van
kinderen met cerebrale parese op de leeftijd van 2,5 jaar. Tijdschrift voor Kindergeneeskunde 2010;
78(1): 7-14.
Eck M van, Dallmeijer AJ, van Lith IS, Voorman JM, Becher JG. Manual ability and its relationship
with daily activities in adolescents with cerebral palsy. Journal of Rehabilitation Medicine 2010; 42:
493-498.
Janssen CGC, Voorman JM, Becher JG, Dallmeijer AJ, Schuengel C. Course of health-related quality of
life in 9-16-year-old children with cerebral palsy: Associations with gross motor abilities and mental
health. Disability and Rehabilitation 2010;32(4):344-51.
Ketelaar M, Wassenberg-Severijnen J. Developments in measuring functional activities: Where do we
go with the PEDI-CAT? Physical and Occupational Therapy in Pediatrics 2010; 30(3): 185-189.
Meester-Delver A, Beelen A, van Eck M, Voorman J, Dallmeijer A, Nollet F, Becher JG. Construct
validity of the Capacity Profile in adolescents with cerebral palsy. Clinical Rehabilitation
2010;24(3):258-266.
Meeteren J van, Nieuwenhuijsen C, de Grund A, Stam HJ, Roebroeck ME, the Transition Research
Group South West Netherlands. Using the Manual Ability Classification System (MACS) in young
adults with cerebral palsy and normal intelligence. Disability and Rehabilitation 2010; 32(23): 18851893.
Rentinck IC, Ketelaar M, Schuengel C, Stolk J, Lindeman E, Jongmans MJ, Gorter JW. Short-term
changes in parents' resolution regarding their young child's diagnosis of cerebral palsy. Child: Care,
Health & Development 2010; 36: 703-708.
Sipal RF, Schuengel C, Voorman JM, Van Eck M, Becher JG. Course of behaviour problems of
children with cerebral palsy: the role of parental stress and support. Child: Care, Health &
Development 2010 Jan;36(1):74-84.
Smits DW, van Groenestijn AC, Ketelaar M, Scholtes VA, Becher JG, Gorter JW. Selective motor
control of the lower extremities in children with cerebral palsy: Inter-rater reliability of two tests.
Developmental Neurorehabilitation 2010;13(4):258-265.
Smits DW, Gorter JW, Ketelaar M, VAN Schie PE, Dallmeijer AJ, Lindeman E, Jongmans MJ.
Relationship between gross motor capacity and daily-life mobility in children with cerebral palsy.
Developmental Medicine and Child Neurology 2010; 52: e60-e66.
Voorman JM, Dallmeijer AJ, van Eck M, Schuengel C, Becher JG. Course of social functioning and
communication in children with cerebral palsy: associations with disease characteristics, personal
and environmental factors. Developmental Medicine and Child Neurology 2010;52(5):441-7.
Wiegerink DJHG, Roebroeck ME, van der Slot WMA, Stam HJ, Cohen-Kettenis PT and the Transition
Research Group South West Netherlands. Importance of peers and dating in development of
romantic relationships and sexual career among young adults with cerebral palsy. Developmental
Medicine and Child Neurology 2010;52:576-582.
Wiegerink DJHG, Stam HJ, Gorter JW, Cohen-Kettenis PT, Roebroeck ME and the Transition Research
Group South West Netherlands. Development of romantic relationships and sexual activity in young
adults with cerebral palsy: a longitudinal study. Archives of Physical Medicine and Rehabilitation
2010;91(9):1423-1428.
Zwier JN, van Schie PEM, Becher JG, Smits DW, Gorter JW, Dallmeijer AJ. Physical activity in Young
children with cerebral palsy. Disability and Rehabilitation 2010;32(18):1501-8.
PhD Thesis
Wiegerink DJHG. Romantic relationships and sexual experiences of adolescents and young adults with
cerebral palsy. Dissertation Erasmus University Rotterdam, the Netherlands, 2010.
Professional publications
Faber R. Cerebrale parese: een grote groep in de kinderrevalidatie. Revalidatie Magazine 2010; 16(2):
18-19.
6
July 2014
Harmer-Bosgoed M, Willems M, Van der Sanden K, Ketelaar M. Knowledge Brokers PERRIN,
bruggenbouwer tussen zorg en onderzoek. Revalidata 2010; 32 (158): 23-25.
Smits DW. Ontwikkeling van dagelijkse vaardigheden bij kinderen met een hersenbeschadiging.
Persbericht]. BOSK Magazine 2010; 5: 34.
Willems M. Bruggenbouwer tussen zorg en onderzoek. Revalidatie Magazine 2010; 16(2): 16-17
Wiegerink D, Roebroeck M, Stam H, Cohen-Kettenis P. Problemen met seks bij jongvolwassenen met
cerebrale parese. Revalidata 2010; 155: 17-20.
Presentations and abstracts international congresses
Dallmeijer AJ, Voorman JM, van Eck M, Becher JG. Motor functioning of children with cerebral palsy
during transition to adolescence. Developmental Medicine & Child Neurology 2010; 52(Suppl. 4): 8.
Presentatie European Academy of Childhood Disability (EACD), Brussels, Belgium, 27-29 May
2010.
Hilberink SR, van der Slot WMA, Jedeloo S, van Meeteren J, Wiegerink DJHG, Roebroeck ME.
TransitieNet - A national network to implement lifespan care in the Netherlands. Description of
network activities and evaluation. Presentation Transitions Conference 5 Bloorview Rehab,
Toronto, Canada, June 2010.
Ketelaar M, Harmer-Bosgoed M, Willems M, Russell D, Rosenbaum P. Moving research evidence into
clinical practice: the role of knowledge brokers. Developmental Medicine & Child Neurology 2010;
52(Suppl. 4): 66. Instructional course European Academy of Childhood Disability (EACD),
Brussels, Belgium, 27-29 May 2010.
Ketelaar M. Knowledge Brokers PERRIN. Presentatie Research-meeting CanChild. 4 februari 2010.
Ketelaar M. Knowledge Brokers – getting knowledge from researchers to practitioners. Presentatie
Research-meeting Health Sport Center Beitostolen, Noorwegen. 5 maart 2010.
Ketelaar M, Harmer-Bosgoed M, Willems M, Verschuren O, Verhoef M. The role of knowledge
brokers in the implementation of evidence-based measures in Multidisciplinary teams: an example of
the GMFCS and MACS. Developmental Medicine & Child Neurology 2010; 52(Suppl. 5): 58.
Presentation American Academy for Cerebral Palsy and Developmental Medicine (AACPDM),
Washington, USA, 22-25 Sept 2010.
Kruijver E, de Grund A, Schipper D, Rijnsent M, van Hoewijk J, Bender J, Breed P, Hilberink S.
Friendships, intimate relationships and sexuality – a program for adolescents to enhance selfconfidence and social skills. Poster presentation Transitions Conference 5 Bloorview Rehab,
Toronto, Canada, June 2010.
Roebroeck ME, van den Berg-Emobs HJG, Nieuwenhuijsen C, Hilberink SR, van der Slot WMA, van
Meeteren J, Stam H, the Transition Research Group South West Netherlands and the Transition
Network. Innovating transition and lifespan care for people with cerebral palsy. . Developmental
Medicine & Child Neurology 2010; 52 (Suppl. 4):74. Presentation European Academy of Childhood
Disability (EACD), Brussels, Belgium, 27-29 May 2010.
Russell DJ, Ketelaar M, Gorter JW, Darrah J, Roxborough L, Cameron D. Knowledge Brokering: A
strategy to help move measures into practice. Book of Abstracts, p 22-23. Instructional course
American Academy for Cerebral Palsy and Developmental Medicine (AACPDM), Washington,
USA, 22-25 Sept 2010.
Russell DJ, Rivard LM, Roxborough L, Ketelaar M, Bartlett DJ, Rosenbaum PL. Encouraging the
uptake of evidence-based measures among pediatric physical therapists: knowledge broker activities
and experiences. Developmental Medicine & Child Neurology 2010; 52(Suppl. 5): 83.
Posterpresentation American Academy for Cerebral Palsy and Developmental Medicine
(AACPDM), Washington, USA, 22-25 Sept 2010.
Voorman JM, van Eck M, Dallmeijer AJ, Becher JG. Motor functioning of children with cerebral palsy
during transition to adolescence. Developmental Medicine & Child Neurology 2010; 52(Suppl. 4): 8.
Presentation European Academy of Childhood Disability (EACD), Brussels, Belgium, 27-29 May
2010.
Wiegerink DJHG, Roebroeck ME, Stam HJ, Cohen-Kettenis PT and the Transition research Group
South West Netherlands. Importance of peers and dating in development of romantic relationships
and sexual activity of young adults with cerebral palsy. Developmental Medicine & Child Neurology
7
July 2014
2010; 52 (Suppl. 4):56. Presentation European Academy of Childhood Disability (EACD), Brussels,
Belgium, 27-29 May 2010.
Wiegerink D, Cohen-Kettenis P, Stam HJ, Roebroeck M. Sexualityof young adults with cerebral
palsy:experienced limitations end needs Developmental Medicine & Child Neurology 2010;
52(Suppl. 5): 22. Presentation American Academy for Cerebral Palsy and Developmental Medicine
(AACPDM), Washington, USA, 22-25 Sept 2010.
8
July 2014
2009
Scientific publications
Donkervoort M, Wiegerink DJHG, van Meeteren J, Stam HJ, Roebroeck ME. Transition to adulthood:
validation of the Rotterdam Transition Profile for young adults with cerebral palsy and normal
intelligence. Developmental Medicine and Child Neurology 2009; 51: 53-62.
Eck M van, Dallmeijer AJ, Voorman JM, Becher JG. Longitudinal study of motor perfomance and its
relation to motor capacity in children with cerebral palsy. Dev Med Child Neurol. 2009
Apr;51(4):303-10.
Gorter JW, Ketelaar M, Rosenbaum P, Helders PJ, Palisano R. Use of the GMFCS in infants with CP:
the need for reclassification at age 2 years or older. Developmental Medicine and Child Neurology
2009; 51: 46-52.
Gorter JW, Verschuren O, van Riel L, Ketelaar M. The relationship between spasticity in young
children (18 months of age) with cerebral palsy and their gross motor function development. BMC
Musculoskeletal Disorders 2009; 10:108.
Holsbeeke L, Ketelaar M, Schoemaker M, Gorter JW. Capacity, capability, and performance: Different
constructs or three of a kind? Archives of Physical Medicine and Rehabilitation 2009; 90: 849-855.
Meester-Delver A, Beelen A, Ketelaar M, Hadders-Algra M, Nollet F, Gorter JW. Construct validity of
the Capacity Profile in preschool children with cerebral palsy. Developmental Medicine and Child
Neurology 2009; 51: 446-453.
Nieuwenhuijsen C, Donkervoort M, Nieuwstraten W, Stam HJ, Roebroeck ME, the Transition Research
Group South West Netherlands. Experienced problems of young adults with cerebral palsy: Targets
for rehabilitation care. Archives of Physical Medicine and Rehabilitation 2009; 90: 1891-1897.
Plasschaert VFP, Ketelaar M, Nijnuis MG, Enkelaar L, Gorter JW. Classification of manual abilities of
children with cerebral palsy under 5 years of age: how reliable is the Manual Ability Classification
System? Clinical Rehabilitation 2009; 23: 164-170.
Rentinck IC, Ketelaar M, Jongmans MJ, Lindeman E, Gorter JW. Parental reactions following the
diagnosis of cerebral palsy in their young child. Journal of Pediatric Psychology 2009; 34: 671-676.
Rentinck IC, Gorter JW, Ketelaar M, Lindeman E, Jongmans MJ. Perceptions of family participation
among parents of children with cerebral palsy followed from infancy to toddlerhood. Disability and
Rehabilitation 2009; 31(22): 1828-1834.
Roebroeck ME, Jahnsen R, Carona C, Twyford A, Twyford M, Kent RM, Chamberlain MA. Adult
outcomes and lifespan issues for persons with childhood-onset disability. Developmental Medicine
and Child Neurology 2009; 51: 670-678.
Schuengel C, Rentinck IC, Stolk J, Voorman JM, Loots GM, Ketelaar M, Gorter JW, Becher JG.
Parents' reactions to the diagnosis of cerebral palsy: associations between resolution, age and
severity of disability. Child: Care, Health & Development 2009; 35: 673-680.
PhD Theses
Rentinck ICM. Parental adaptation in families of young children with cerebral palsy. Dissertation
Utrecht University, the Netherlands.
Voorman JM. Cerebral palsy and the transition to adolescence. Course of functioning, self-perception
and quality of life. Dissertation VU University Medical Center Amsterdam, the Netherlands.
(Chapters in) Books
Bosgoed MW. Meten van dagelijkse activiteiten met de PEDI-NL. In: Leerboek VRA: Klinimetrie bij
kinderen en jongeren met een beperking 2009, p. 89-91. Nijmegen: PAOG/VRA.
Ketelaar M. Een meetinstrument kiezen: Waar let ik op? In: Leerboek VRA: Klinimetrie bij kinderen en
jongeren met een beperking 2009, p. 10-14. Nijmegen: PAOG/VRA.
Professional publications / Vakpublicaties
Bosgoed MW. Nieuwe functie: Knowledge Broker. Revalidatie Magazine 2009; 15(1): 6.
9
July 2014
Bosgoed MW, Willems M. Knowledge broker brengt wetenschap naar de praktijk. Op de Hoogte, juni
2009.
Faber R. Beter begeleiden naar volwassenheid. Revalidatie Magazine 2009; 15(1): 16-17.
Gorter JW, van Tol E, van Schie P, Ketelaar M. De herziene en uitgebreide versie van de Gross Motor
Function Classification System (GMFCS-E-R). Revalidata 2009; 31(150): 2-5.
Gorter JW, van Tol E, Schie PEM, Ketelaar M. Acht jaar na de introductie van de Gross Motor Function
Classification System (GMFCS) in Nederland: een update. Nederlands Tijdschrift voor
Kinderfysiotherapie 2009;21(63):32-34.
Noordstar JJ, Smits DW, Gorter JW. Het zelf-concept bij kinderen met cerebrale parese: een
literatuurstudie. Beweegreden 2009; 3: 32-35.
BOSK Magazine (Tijdschrift Oudervereniging)
Gorter JW, Ketelaar M. Revalidatieonderzoek bij jonge kinderen met cerebrale parese. BOSK Magazine
2009; nr 4: 32-33.
Ketelaar M, Harmer-Bosgoed MW. Revalidatieonderzoek bij kinderen, adolescenten en jongvolwassenen met cerebrale parese. BOSK Magazine 2009; nr 5: 32-33.
Roebroeck M, Wiegering D, Donkervort M, van Nieuwenhuijsen C, van Meeteren J.
Revalidatieonderzoek bij jongvolwassenen met cerebrale parese; Een knip in de zorg. BOSK
Magazine 2009, nr 2: 35.
Smits DW, van Schie PEM. Revalidatieonderzoek bij kinderen met cerebrale parese; PERRIN CP 5-9.
BOSK Magazine 2009; nr 1: 35.
Voorman J, van Eck M. PERRIN CP 9-16 jaar: Een onderzoek naar de functionele prognose van
kinderen met cerebrale parese in de leeftijd van 9 tot 16 jaar. BOSK Magazine 2009; nr 3: 35.
Presentations and abstracts international congresses
Eck M van, Voorman J. PERRIN 9-16: Functioning of children with Cerebral Palsy during transition to
adolescence. Abstract book, p 24. Presentatie International Symposium ‘A global status quo on
cerebral palsy, with a view to the future.’ Utrecht, 5-7 november 2009.
Gorter JW, Ketelaar M, Verhoef M. Development of gross motor function among young children (age
18-42 months) with cerebral palsy. Developmental Medicine and Child Neurology 2009; 51 (Suppl.
2): 11-12. Presentatie Third International Cerebral Palsy Conference, Sydney, Australia, 18-21
February 2009.
Hilberink SR, Jedeloo S, Floothuis M, van Meeteren J, Verhoef JAC, Roebroeck ME. Lifespan care
session (aimed at youth and adults with CP). Workshop International Symposium ‘A global status
quo on cerebral palsy, with a view to the future.’ Utrecht, 5-7 november 2009.
Hilberink SR, van der Slot WA, Wiegerink DJHG, Roebroeck ME. Lifespan care session (aimed at
professionals). Workshop International Symposium ‘A global status quo on cerebral palsy, with a
view to the future.’ Utrecht, 5-7 november 2009.
Ketelaar M. Knowledge Brokers – Getting knowledge from researchers to practitioners. Invited lecture
Norwegian Conference for Pediatric Physical Therapy. Oslo, Norway, 9-11 March 2009.
Ketelaar M, Holsbeeke L, Schoemaker M, Gorter JW. Capacity, capability, and performance: different
constructs or three of a kind? Developmental Medicine and Child Neurology 2009; 51 (Suppl. 2): 62.
Presentatie Third International Cerebral Palsy Conference, Sydney, Australia, 18-21 February 2009.
Ketelaar M, Becher JG, Roebroeck M, Willems M. PERRIN: Communication between professionals
and researchers. A workshop bridging the gap between research and practice. Revalidata 2009; 31(nr
151): 11. Workshop Jaarcongres VRA. Ermelo, 30 oktober 2009.
Ketelaar M, Bosgoed M, Willems M. Knowledge Brokers: What are they and how can they help move
research evidence into clinical practice? Abstract book, p 36. Workshop International Symposium ‘A
global status quo on cerebral palsy, with a view to the future.’ Utrecht, 5-7 november 2009.
Meester-Delver A, Beelen A, Ketelaar M, Hadders-Algra M, Nollet F, Gorter JW. Construct validity of
the capacity profile in preschool children with cerebral palsy. Developmental Medicine and Child
Neurology 2009; 51 (suppl. 5): 61. Poster American Academy for Cerebral Palsy and Developmental
Medicine (AACPDM), Scottsdale, USA, 23-26 September 2009.
Rentinck ICM, Ketelaar M, Schuengel C, Lindeman E, Jongmans MJ, Gorter JW. Parental reactions
following the diagnosis of cerebral palsy in their young child. Abstract book, p 29. Presentatie
10
July 2014
International Symposium ‘A global status quo on cerebral palsy, with a view to the future.’ Utrecht,
5-7 november 2009.
Roebroeck ME and the Transition and lifespan Research Group. The Rotterdam Transition profile in
practice. Young adults with cerebral palsy and normal intelligence. Presentation (via audio link),
Young people’s health special interest group Conference (Royal College of Paediatrics and Child
health): Young people with Chronic Conditions. Birmingham UK, 1-2 october 2009.
Roebroeck M, Donkervoort M, Wiegerink D, Nieuwenhuijsen C, Stam HJ. Adolescents and young
adults with cerebral palsy: Do environmental and personal factors contribute to participation in
society? Abstract book, p 29-30. Presentation International Symposium ‘A global status quo on
cerebral palsy, with a view to the future.’ Utrecht, 5-7 november 2009.
Roebroeck M, Transition Research Group South West Netherlands. Transition into adulthood and
lifespan care for (young) adults with cerebral palsy. Abstract book, p 19. Presentation International
Symposium ‘A global status quo on cerebral palsy, with a view to the future.’ Utrecht, 5-7
november 2009.
Russell D, Ketelaar M, Cameron D, Darrah J, Gorter JW, Rosenbaum P, Roxborough L. Knowledge
Brokers: What are they and How can they help move cerebral palsy research into clinical practice.
Conference Proceedings, p. 103. Presentatie Third International Cerebral Palsy Conference, Sydney,
Australia, 18-21 February 2009.
Schie PEM van, Zwier N, Becher J, Smits DW, Gorter JW, Dallmeijer A. Physical activities in 5 and 7
years old children with cerebral palsy. Conference Proceedings, p. 118. Presentatie Third
International Cerebral Palsy Conference, Sydney, Australia, 18-21 February 2009.
Schuengel, C. Parents’ resolution of diagnosis. Paper presented at the International Symposium on “A
global status quo on cerebral palsy, with a view to the future”, Utrecht, 5-7 november 2009.
Schuengel, C. Veerkracht en kwetsbaarheid bij ouders van kinderen met aandoeningen en beperkingen.
Plenaire lezing op het eerste symposium Pediatrische Psychologie, Amsterdam. 4 juni 2009.
Smits DW, Gorter JW, Ketelaar M, van Schie PEM, Dallmeijer A, Lindeman E, Jongmans M. The
relationship between gross motor capacity and performance of daily life mobility in children with
cerebral palsy at primary school age. Conference Proceedings, p. 74. Presentatie Third International
Cerebral Palsy Conference, Sydney, Australia, 18-21 February 2009.
Smits DW, Gorter JW, Ketelaar M, van Schie PEM, Dallmeijer AJ, Lindeman E, Jongmans MJ.
Relationship between gross motor capacity and daily-life mobility in children with cerebral palsy.
Abstract book, p 33-34. Presentatie International Symposium ‘A global status quo on cerebral palsy,
with a view to the future.’ Utrecht, 5-7 november 2009.
Sobus K, Maxwell J, Healy H, Ruck-Gibis J, Roebroeck M, Wiegerink D, Linroth R. Comparing and
contrasting transition service models from the United States, Canada and the Netherlands. Breakfast
session American Academy for Cerebral Palsy and Developmental Medicine (AACPDM),
Scottsdale, USA, 23-26 September 2009.
Verhoef M, Ketelaar M, Siebes R, Rentinck I, Gorter JW. A longitudinal study of parents’ perceptions
of family-centeredness of services for their Young child with cerebral palsy. Developmental
Medicine and Child Neurology 2009; 51 (suppl. 5): 60. Poster American Academy for Cerebral
Palsy and Developmental Medicine (AACPDM), Scottsdale, USA, 23-26 September 2009.
Weerd GH van de, Smits DW, Gorter JW, Ketelaar M. Cognitive capacity in 6- and 7-year-old children
with cerebral palsy. Abstract book, p 47. Poster International Symposium ‘A global status quo on
cerebral palsy, with a view to the future.’ Utrecht, 5-7 november 2009.
Wiegerink D, Roebroeck M, Stam H, Cohen-Kettenis P. Importance of peers and dating in development
of romantic relationships among Young adults with cerebral palsy. Developmental Medicine and
Child Neurology 2009; 51 (suppl. 5): 11. Presentation American Academy for Cerebral Palsy and
Developmental Medicine (AACPDM), Scottsdale, USA, 23-26 September 2009.
11
July 2014
2008
Scientific publications
Eck M van, Dallmeijer AJ, Voorman JM, Becher JG. Skeletal maturation in children with cerebral palsy
and its relationship with motor functioning. Dev Med Child Neurol. 2008 Jul; 50(7): 515-9
Eck M van, Dallmeijer AJ, Beckerman H, van den Hoven PA, Voorman JM, Becher JG. Physical
activity level and related factors in adolescents with cerebral palsy. Pediatr Exerc Sci. 2008 Feb ;
20(1) : 95-106.
Enkelaar L, Ketelaar M, Gorter JW. Association between motor and mental functioning in toddlers with
cerebral palsy. Dev Neurorehabil 2008; 11: 276-282.
Ketelaar M, Russell DJ, Gorter JW. The challenge of moving evidence-based measures into clinical
practice: Lessons in knowledge translation. PhysOcc Ther in Ped 2008; 8:191-206.
Meeteren J van , Roebroeck, ME, Celen E, Donkervoort M, Stam HJ, Transition Research Group South
West Netherlands. Functional activities of the upper extremity of young adults with cerebral palsy: a
limiting factor for participation? Disabil Rehabil 2008:30(5): 387-95.
Nieuwenhuijsen C, Y van de Laar, M Donkervoort, W Nieuwstraten, ME Roebroeck, HJ Stam. Unmet
needs and health care utilization in young adults with cerebral palsy. Disabil Rehabil 2008; 30(17):
1254-1262.
Nijhuis BJG; Reinders-Messelink HA; Blécourt ACE de; Calame EHM; Boonstra AM; Groothoff JW;
Nakken H; Postema K. Goal setting in Dutch paediatric rehabilitation. Are the needs and principal
problems of children with cerebral palsy integrated into their rehabilitation goals. Clin Rehabil 2008;
22: 348-363.
Nijhuis BJG; Reinders-Messelink HA; Blécourt ACE de; Ties JG; Boonstra AM; Groothoff JW;
Nakken H; Postema K. Needs, problems and rehabilitation goals of young children with cerebral
palsy as formulated in the Rehabilitation Activities Profile for Children. J Rehabil Medicine 2008;
40: 347-354.
Siebes RC, Nijhuis BJ, Boonstra AM, Ketelaar M, Wijnroks L, Reinders-Messelink HA, Postema K,
Vermeer A. A family-specific use of the Measure of Processes of Care for Service Providers
(MPOC-SP). Clinical Rehabilitation 2008;22:242-251.
Wiegerink DJHG, Roebroeck ME, Donkervoort M, Cohen-Kettenis PT, Stam HJ. Social, intimate and
sexual relationships of adolescents and young adults with cerebral palsy compared with healthy age
mates. J Rehabil Med 2008: 40: 112-118.
(Chapters in) Books
Wiegerink DJHG, Gorter JW. Cerebrale Parese. In: WL Gianotten, MJ Meihuizen-de Regt, N van SonSchoones (Red), Seksualiteit bij ziekte en lichamelijke beperking. Assen, Van Gorcum; 2008. p.
211-220.
Professional publications / Vakpublicaties
Gorter JW, Nijhuis B. Interview. Noodzaak voor een gemeenschappelijke taal. In: M.Evenblij.
Voorspellen van herstellen. Uitkomsten van revalidatieonderzoek. Den Haag, ZonMw
Stiumlerinsgprogramma Revalidatieonderzoek, 2008; p.135-136.
Ketelaar M, Lindeman E. Interview. Revalidatie van kinderen. In: M.Evenblij. Voorspellen van
herstellen. Uitkomsten van revalidatieonderzoek. Den Haag, ZonMw Stiumlerinsgprogramma
Revalidatieonderzoek, 2008; p.129-130.
Ketelaar M, Lindeman E. Interview. Revalidatietherapeut als coach. In: M.Evenblij. Voorspellen van
herstellen. Uitkomsten van revalidatieonderzoek. Den Haag, ZonMw Stiumlerinsgprogramma
Revalidatieonderzoek, 2008; p.131-135.
Nijhuis BJG, ICF-CY één taal voor de kinderrevalidatie. Revalidatie Magazine 14(3), September 2008.
Nijhuis BJG, Samenwerken in de Kinderrevalidatie; gezinsgericht en doelgericht. Revalidata 30 (145),
oktober 2008.
Roebroeck ME. Interview. Adolescenten in transitie. Gevaar van discontinuïteit van zorg. In:
M.Evenblij. Voorspellen van herstellen. Uitkomsten van revalidatieonderzoek. Den Haag, ZonMw
Stiumlerinsgprogramma Revalidatieonderzoek, 2008; p.137-139.
12
July 2014
BOSK Magazine (Tijdschrift Oudervereniging)
Gorter JW, Ketelaar M. Revalidatieonderzoek bij jonge kinderen met cerebrale parese. BOSK Magazine
2008(4): 29-31.
Nijhuis B. Revalidatieonderzoek bij kinderen met cerebrale parese: ProCP. BOSK Magazine
2008(1).
Roebroeck ME. Revalidatieonderzoek bij jongvolwassenen met cerebrale parese. Het CP
Transitieonderzoek Zuid-West Nederland (PERRIN CP16-24) aan het woord. BOSK Magazine
2008(2): 23.
Voorman J, van Eck M. Revalidatieonderzoek bij kinderen met cerebrale parese: CP 9-16. BOSK
Magazine 2008(3): 32.
Presentations and abstracts international congresses
Gorter JW, Verschuren O, van Riel L, Ketelaar M. The influence of spasticity on the development of
gross motor function in young children with cerebral palsy. Developmental Medicine and Child
Neurology 2008; 50 (Suppl. 4): 9-10. Presentatie AACPDM, 17-20 september 2008.
Hilberink SR, van der Slot W, van Meeteren J, Roebroeck ME. Specialised rehabilitation care for
young adults with a disability. Presentation. Transitions Conference 4: Participation, Toronto, May
2008.
Hilberink SR, Roebroeck ME, Verheijden JMA, Jalink L, Nieuwstraten W, Stam HJ. Health issues in
adults with cerebral palsy: Towards a lifespan perspective. Poster. Transitions Conference 4:
Participation, Toronto, 2008.
Meeteren J van, Selles RW, van Rijn R, Celen E, Donkervoort M, Stam HJ, Roebroeck ME. Function
of the upper extremity in young adults with cerebral palsy: Interrelationships and importance for
participation. Presentation European Congress of Physical and Rehabilitation Medicine, Brugge. J
Rehabil Med 2008; 47:89-90.
Nieuwenhuijsen C, Donkervoort M, Stam HJ, Roebroeck M. Experienced problems of young adults
with cerebral palsy: targets for rehabilitation care? Dev Med Child Neurol 2008; 50 (Suppl. 4): 58.
Scientific Poster AACPDM, 17-20 september 2008.
Rentinck ICM, Ketelaar M, Jongmans MJ, Lindeman E, Gorter JW. Parental reactions following the
diagnosis of cerebral palsy in their young child. Clinical Rehabilitation 2008;22:1134-11355.
Presentatie VRA-Colloquium. Utrecht, 11 april 2008.
Roebroeck ME, van den Berg-Emons HJG, Stam HJ, Transition Research Group. A lifespan
perspective on functioning and health of adults with childhood onset disability. Presentation
European Congress of Physical and Rehabilitation Medicine, Brugge. J Rehabil Med, 2008; 47:
137.
Roebroeck ME, Donkervoort M, Wiegerink DJHG, Meeteren J van, Stam HJ and the Transition
Research Group South West Netherlands.The Rotterdam Transition profile; A tool to summarize
the transition process. Presentation. Transitions Pre-Conference Bloorview Kids Rehab, Toronto,
May 2008.
Roebroeck ME, on behalf of the Transition Research Group. Participation and health issues of young
adults with a childhood onset disabling condition. Presentation. Transitions Conference 4:
Participation, Toronto, May 2008.
Roebroeck ME, van der Slot W, van Meeteren J, Kent RM, Frank AO, van Mechelen MC, Miedema
HS, Hilberink SR, Stam HJ, Transition Research Group Suoth-West Netherlands. Transition from
childhood to adulthodd: who cares? Workshop. 3rd Dutch-UK Rehabilitation meeting: Ageing.
Ermelo, 30-31 october 2008.
Voorman J, Dallmeijer A, Eck M, Becher J. Prospective longitudinal study of social function and
communication in children with cerebral palsy aged 9 to 16 years. Presentatie European Academy of
Childhood Disability (EACD). Zagreb: 4-7 Juni 2008. Dev Med Child Neurol 2008; 50
(Suppl.114):28.
Wiegerink DW, Roebroeck ME, Donkervoort M, Cohen-Kettenis P, Stam HJ. Social and sexual
relationships of adolescents and young adults with cerebral palsy in The Netherlands. Dev Med Child
Neurol 2008; 50 (Suppl. 4): 39. Presentatie AACPDM, 17-20 september 2008.
13
July 2014
2007
Scientific publications
Donkervoort M, Roebroeck ME, Wiegerink DJHG, Heijden-Maessen H van der, Stam HJ, & the
Transition research group south west netherlands. Determinants of functioning of adolescents and
young adults with cerebral palsy. Disabil Rehabil 2007; 29: 453-463.
Engelen V, Ketelaar M, Gorter JW. Selecting the appropriate outcome in pediatric physical therapy;
how individual treatment goals of children with cerebral palsy are reflected in GMFM-88 and PEDI.
Journal of Rehabilitation Medicine 2007; 39: 225-231.
Gorter JW, Becher J, Oosterom I. To stretch or not to stretch in children with cerebral palsy. Dev Med
Child Neurol. 2007; 49(10):797-800. (letter to the editor)
Hilberink SR, Roebroeck ME, Nieuwstraten W, Jalink L, Verheijden JMA, Stam HJ.Health issues in
young adults with cerebral palsy: Towards a life span perspective. J Rehabil Med 2007; 39: 605-611.
Meeteren J van, R van Rijn, RW Selles, ME Roebroeck, HJ Stam. Grip strength parameters and
functional activities in young adults with hemiplegic cerebral palsy. J Rehabil Med 2007; 39: 598604.
Nijhuis BJG, Reinders-Messelink HA, Blécourt ACE de, Olijve WG, Groothoff JW, Nakken H,
Postema K. A review of salient elements defining team collaboration in paediatric rehabilitation.
Clin Rehabil 2007; 21:195-211
Nijhuis BJG, Reinders-Messelink HA, Blécourt ACE de, Hitters WMGC, Groothoff JW, Nakken H,
Postema K. Family-centered care in family-specific teams. Clinical Rehabilitation 2007;21(7):660671.
Nijhuis BJG, Reinders-Messelink HA, Blécourt ACE de, Olijve WG, Haga N, Groothoff JW, Nakken
H, Postema K.Towards integrated paediatric services in the Netherlands: a survey of views and
policies on collaboration in the care for children with cerebral palsy. Child: Care Health &
Development 2007;33(5):593-603.
Nijhuis BJG. Early use of ICF-CY in: Team Collaboration in Dutch Paediatric Rehabilitation (the
PROCP study). Newsletter on the WHOFIC 2007; 5(1): 5-6.
Rentinck ICM, Ketelaar M, Jongmans MJ, Gorter JW. Parents of children with cerebral palsy: a review
of factors related to the process of adaptation. Child, Care, Health and Development 2007; 33: 161169.
Siebes RC, Wijnroks L, Ketelaar M, van Schie PEM, Gorter JW, Vermeer A. Parent participation in
paediatric rehabilitation treatment centres in the Netherlands: a parents' viewpoint. Child, Care,
Health and Development 2007; 33: 196-205.
Siebes RC, Maassen GH, Wijnroks L, Ketelaar M, van Schie PEM, Gorter JW, Vermeer A. Quality of
paediatric rehabilitation from the parent perspective: validation of the short Measure of Processes of
Care (MPOC-20) in the Netherlands. Clin Rehabil 2007; 21: 62-72.
Siebes RC, Ketelaar M, Gorter JW, Wijnroks L, de Blécourt ACE, Reinders-Messelink HA, van Schie
PEM, Vermeer A. Transparency and tuning of rehabilitation care for children with cerebral palsy: A
multiple case study in five children with complex needs. Developmental Neurorehabilitation
2007,10: 193-204.
Siebes RC, Wijnroks L, Ketelaar M, van Schie PEM, Vermeer A, Gorter JW. One-year stability of the
Measure of Processes of Care. Child: Care, Health & Development 2007; 33: 604-610.
Siebes RC, Wijnroks L, Ketelaar M, van Schie PEM, Vermeer A, Gorter JW. Validation of the Dutch
Giving Youth a Voice Questionnaire (GYV-20): A Measure of the client-centredness of
rehabilitation services from an adolescent perspective. Disability and Rehabilitation 2007; 29; 373380.
Slot W van der, Roebroeck ME, Landkroon AP, Terburg M, Berg-Emons HJG, Stam HJ. Everyday
physical activity in adults with cerebral palsy. Disabil Rehabil, 2007; 29: 179-189.
Steenbeek D, Ketelaar M, Galama K, Gorter JW. Goal Attainment Scaling in pediatric rehabilitation: A
critical; review of the literature. Developmental Medicine and Child Neurology 2007; 49: 550-556.
Voorman JM, Dallmeijer AJ, Knol DL, Lankhorst GJ, Becher JG. Prospective longitudinal study of
gross motor function in children with cerebral palsy. Archives of Physical Medicine and
Rehabilitation 2007; 88: 871-876.
14
July 2014
PhD thesis
Nijhuis BJG. Team Collaboration in Dutch Paediatric Rehabilitation. Dissertation University of
Groningen, the Netherlands.
Professional publications / Vakpublicaties
Gorter JW. Het verschil tussen Cerebrale Parese (CP) en Infantiele Encephalopathie (IE).
Wetenschapsloket. Nederlands Tijdschrift voor Kinderfysiotherapie 2007; 19 (54): 20-21.
Nieuwenhuijsen C, Donkervoort M, Roebroeck ME, Wiegerink DJHG, Stam HJ. Ervaren problemen en
zorggebruik van jongvolwassenen met cerebrale parese. Tijdschrift voor Neuropsychiatrie en
Gedragsneurologie 2007, juni, 89-92.
Nijhuis, B. Kinderen met cerebrale parese. Samenwerken in een team van ouders, revalidatiecentrum en
school. Revisie 2007, maart, 18.
Nijnuis MG, Verhage CH, Nijsse B, Ketelaar M, Gorter JW. De PEDI in het Nederlands.
Achtergrondinformatie, relatie met normscores versus de ernst van cerebrale parese en het gebruik
van de aanpassingenschaal. Nederlands Tijdschrift voor Ergotherapie 2007; 35(1): 22-27.
Pelgröm I. Het kind beter in beeld. Stand van zaken PERRIN. Revalidatie Magazine 2007; nr 1: 16-17.
Siebes RC, Ketelaar M, Gorter JW, Wijnroks L, de Blécourt ACE, Reinders-Messelink HA, van Schie
PEM, Vermeer A. Afstemming van hulpvraag, behandeldoelen en behandeling in de revalidatiezorg
voor kinderen met CP. Revalidata 2007; 29(136): 12-15.
BOSK Magazine (Tijdschrift Oudervereniging)
Donkervoort M, Revalidatieonderzoek bij kinderen met cerebrale parese. Informatie over het CP
Transitieonderzoek Zuid-West Nederland (PERRIN CP16-24). BOSK Magazine 2007; nr.5: 40.
Gorter JW, Smits DW, van Schie PEM. PERRIN 5-9: Onderzoek bij schoolgaande kinderen met cerebrale
parese. BOSK Magazine 2007; nr 1: 17.
Nijhuis BJG. Revalidatieonderzoek bij kinderen met cerebrale parese : ProCP. BOSK Magazine 2007; nr 2:
23.
Rentinck ICM, Gorter JW, Ketelaar M. Onderzoek bij jonge kinderen met cerebrale parese: Wat gebeurt
er met de ouders? BOSK Magazine 2007; nr 3:23.
Voorman J, van Eck M. Revalidatieonderzoek bij kinderen met cerebrale parese: CP 9-16. BOSK Magazine
2007; nr 4: 23.
Presentations and abstracts international congresses
Dallmeijer AJ, Voorman JM, Becher JG. Rasch analysis of the Vineland Adaptive Behavior Scales in
children with cerebral palsy. Presented at the American Academy of Cerebral Palsy and
Developmental Medicine (AACPDM). Vancouver, Canada: okt 2007. Dev Med Child Neurol 2007;
49 (S111): 80.
Dallmeijer AJ, van Eck M, Roebroeck M, Becher JG. Validity of the Dutch ABILHAND-Kids in
adolescents with cerebral palsy. Presented at European Academy of Childhood Disability (EACD).
Groningen: 14-16 Juni 2007. Dev Med Child Neurol 2007; 49 (S110): 20.
Donkervoort M, Roebroeck ME, Wiegerink DJHG, Stam HJ, Transition Research Group. Youth with
cerebral palsy: do environmental and personal factors contribute to restrictions in activities and
participation? Presentatie European Academy of Childhood Disability (EACD). Groningen: 14-16
Juni 2007. Dev Med Child Neurol 2007; 49 (Suppl 110):10.
Eck M van, AJ Dallmeijer, JM Voorman, JG Becher. Development of skeletal age in children with
cerebral palsy. Posterpresentatie European Academy of Childhood Disability (EACD). Groningen:
14-16 Juni 2007. Congresboek 2007: 41.
Enkelaar L, Ketelaar M, Gorter JW. Association between motor and mental functioning in toddlers with
cerebral palsy. Posterpresentatie European Academy of Childhood Disability (EACD). Groningen:
14-16 Juni 2007. Congresboek 2007: 41.
Gorter JW. The place and purpose of different therapies in children with CP is uncertain and
controversial: is it clearer for adults? Novartis Invitational Conference. London (UK), 10 mei 2007.
15
July 2014
Hilberink SR, Roebroeck ME, Verheijden JMA, Jalink L, Nieuwstraten W, Stam HJ. Health Issues in
Adults with Cerebral Palsy: Towards a life-span perspective. Posterpresentatie European Academy
of Childhood Disability (EACD). Groningen: 14-16 Juni 2007. Congresboek 2007: 42.
Ketelaar M, Becher JG, Bosgoed MW, Gorter JW, Jongmans M, Reinders-Messelink HA, Roebroeck
M, Lindeman E. Paediatric Rehabilitation Research in the Netherlands (PERRIN): from questions in
clinical practice to a national multi-disciplinary research programme, and back to clinical practice.
Posterpresentatie European Academy of Childhood Disability (EACD). Groningen: 14-16 Juni 2007.
Dev Med Child Neurol 2007; 49 (Suppl.110):21.
Ketelaar M, Rameckers E, van Essen P, Visser J, Verschuren O. Functional physical therapy.
Instructional Course European Academy of Childhood Disability (EACD). Groningen: 14-16 Juni
2007.
Meeteren J van, Roebroeck ME, Celen E, Donkervoort M, Stam HJ, Transition Research Group South
West Netherlands. Functional activities of the upper extremity of young adults with cerebral palsy: a
limiting factor for participation? Posterpresentatie European Academy of Childhood Disability
(EACD). Groningen: 14-16 Juni 2007. Congresboek 2007: 60.
Meeteren J van, van Rijn RM, Selles RW, Roebroeck ME, Stam HJ. Grip strength parameters and
functional activities in young adults with unilateral cerebral palsy compared with healthy subjects.
Posterpresentatie European Academy of Childhood Disability (EACD). Groningen: 14-16 Juni 2007.
Congresboek 2007: 60.
Nijhuis BJG, Reinders-Messelink HA, Blécourt ACE de, Hitters WMGC, Groothoff JW, Nakken H,
Postema K. Family-centered care in family-specific teams. Presentatie European Academy of
Childhood Disability (EACD). Groningen: 14-16 Juni 2007. Dev Med Child Neurol 2007; 49
(Suppl.110):14.
Nijhuis BJG, Reinders-Messelink HA, Blécourt ACE de, Boonstra AM, Ties J, Groothoff JW, Nakken
H, Postema K. Goal setting in Dutch pediatric rehabilitation. Posterpresentatie European Academy of
Childhood Disability (EACD). Groningen: 14-16 Juni 2007. Congresboek 2007: 50.
Nieuwenhuijsen C, van der Slot WMA, Roebroeck ME, Bergen MP, van den Berg-Emons HJG, Stam
HJ & The Transition Research Group. Everyday physical activity in adults with bilateral spastic
cerebral palsy: preliminary results. Posterpresentatie European Academy of Childhood Disability
(EACD). Groningen: 14-16 Juni 2007. Congresboek 2007: 39.
Rentinck ICM, Ketelaar M, Jongmans MJ, Gorter JW. The status of resolution of mothers of infants
with cerebral palsy. Posterpresentatie European Academy of Childhood Disability (EACD).
Groningen: 14-16 Juni 2007. Congresboek 2007: 46.
Roebroeck ME. Participation and health care issues of young adults with a disabling condition since
childhood. Presentation. International Workshop on Quality of Life for the young adult with
neurodisability. London, May 2007.
Roebroeck ME, Donkervoort M, Wiegerink DJHG, van Meeteren J, Stam HJ, on behalf of the
Transition Research Group South West Netherlands. Transition into adulthood of young adults with
cerebral palsy: Limitations in achieving independent life. Presentatie American Academy of Cerebral
Palsy and Developmental Medicine (AACPDM). Vancouver, Canada: October 2007. Dev Med Child
Neurol 2007; 49 (supplement 111):22.
Roebroeck ME, Stam HJ, Transition Research Group. Transition into adulthood, adult life and lifespan
care for persons with a disabling condition since childhood. Presentation. Rehabilitation Center,
Sahlgrenska Universiteitssjukhuset, Göteborg, November 2007.
Roebroeck ME, HJG van den Berg-Emons HJG, Donkervoort M, van Meeteren J, Pesch-Batenburg
JMFB, Stam HJ, on behalf of the Transition Research Group. Lifespan care issues of transition into
adulthood and adult life of patients with a disabling condition since childhood. Presentatie European
Academy of Childhood Disability (EACD). Groningen: 14-16 Juni 2007. Dev Med Child Neurol
2007; 49 (Suppl):16.
Roebroeck ME, van Meeteren J, van der Slot W, Buffart LM, Verhoef JAC, Hilberink SR, Stam HJ.
Specialised rehabilitation care for young adults with a disability. Instructional course European
Academy of Childhood Disability (EACD). Groningen: 14-16 Juni 2007.
Smits DW, Van Groenestijn AC, Becher JG, Van Schie PEM, Dallmeijer AJ, Ketelaar M, Gorter JW.
Clinical assessment of selective motor control in children aged 5 - 7 years with cerebral palsy.
16
July 2014
Posterpresentatie European Academy of Childhood Disability (EACD). Groningen: 14-16 Juni 2007.
Congresboek 2007: 51.
Stam HJ. Lifespan care issues of transition into adulthood and adult life of patients with a disabling
condition since childhood. Olle Höök memorial lecture. Initiated by the Journal of Rehabilitation
Medicine and Foundation for Rehabilitation Information. Stockholm, November 2007.
Vegt M van der, Roebroeck ME, Nieuwenhuijsen C, van Meeteren J, van der Heijden-Maessen HCM,
Stam HJ. Upper limb dysfunction and limitations in functional activities in young adults with
cerebral palsy: prevalence and mutual correlations. Posterpresentatie European Academy of
Childhood Disability (EACD). Groningen: 14-16 Juni 2007. Congresboek 2007: 52.
Wiegerink DJHG, van der Doef S, Meihuizen-de Regt MJ. Let’s talk about sex. Instructional course
European Academy of Childhood Disability (EACD). Groningen: 14-16 Juni 2007. Congresboek
2007: 68.
17
July 2014
2006
Wetenschappelijke publicaties
Odding E, Roebroeck ME, Stam HJ. The epidemiology of cerebral palsy. Incidence, impairments and
risk factors. Disabil Rehabil 2006; 28: 183-191.
Schuengel C, Voorman J, Stolk J, Dallmeijer A, Vermeer A, Becher J. Self-worth, perceived
competence, and behavior problems in children with cerebral palsy. Disabil Rehabil 2006;
28(20):1251-1258.
Siebes RC, Ketelaar M, Wijnroks L, van Schie PE, Nijhuis BJ, Vermeer A, Gorter JW. Family-centred
services in The Netherlands: validating a self-report measure for paediatric service providers. Clin
Rehabil. 2006;20(6):502-12.
Voorman JM, Dallmeijer AJ, Schuengel C, Knol DL, Lankhorst GJ, Becher JG. Activities and
participation of 9 to 13 year-old children with cerebral palsy. Clin Rehabil 2006; 20(11):937-948.
Wiegerink D, Roebroeck ME, Donkervoort M, Stam HJ, Cohen-Kettenis PT. Social and sexual
relationships of adolescents and young adults with cerebral palsy: a review. Clin Rehabil 2006; 20:
1023-1031.
Proefschrift
J. van Meeteren. Assessment of functions and functional activities of the upper extremity. Thesis.
Rotterdam: Erasmus MC, University Medical Center, 2006.
(Hoofdstukken in) Boeken
Ketelaar M. Een meetinstrument kiezen: Waar let ik op? In: Leerboek VRA: Klinimetrie bij kinderen en
jongeren 2006, p. 115-118. Nijmegen: PAOG/VRA.
Ketelaar M, Bruil J. Meetinstrumenten. B: Voor kwaliteit van leven, maatschappelijke participatie en
competentiebeleving. In: R v Empelen, R Nijhuis-van der Sanden, A Hartman (Ed.),
Kinderfysiotherapie. Maarssen: Elsevier; 2006. p. 171-181.
Schoemaker M, Ketelaar M, Smits-Engelsman B. Meetinstrumenten. A: Voor de motorische
ontwikkeling van kinderen. In: R v Empelen, R Nijhuis-van der Sanden, A Hartman (Ed.),
Kinderfysiotherapie. Maarssen: Elsevier; 2006. p. 151-169.
Vakpublicaties
Donkervoort M, Roebroeck ME, Wiegerink DJHG, van der Heijden-Maessen H, Stam HJ.
Determinanten van dagelijkse activiteiten en sociale participatie van jongeren met cerebrale parese.
Revalidata 2006; 131: 26-27.
Hilberink SR, Roebroeck ME, Nieuwstraten W, Jalink L, Verheijden JMA, Stam HJ.
Gezondheidsklachten bij volwassenen met cerebrale parese: naar een levensloopbenadering.
Revalidata 2006; 134: 10-12.
Nieuwenhuijsen C, Donkervoort M, Wiegerink DJHG, Roebroeck ME, Stam HJ. Zorgbehoefte en
zorggebruik bij jongvolwassenen met cerebrale parese. Revalidata 2006; 131: 33-34.
Rentinck I, Gorter JW. Boekbespreking: Verder Kijken. Ontwikkelingen in de revalidatiepsychologie.
H. Eilander, K. Beers en L. de Vos (Red). Nederlands Tijdschrift voor Geneeskunde 2006; 150(28):
1599.
Roebroeck ME, Transition Research Group. De kinderrevalidatie, en dan? Transitie naar volwassenheid
en functioneren als volwassene. Revalidata 2006; 131: 24-25.
Roebroeck ME en Transition Research Group. De kinderrevalidatie, en dan? Transitieonderzoek in
Zuidwest Nederland. Nieuwsbrief Sectie Revalidatie, Nederlands Instituut van Psychologen,
november 2006.
Slot WMA van der, Roebroeck ME, Landkroon A, Terburg M, van den Berg-Emons HJG, Stam HJ.
Dagelijkse lichamelijke activiteit en participatie bij volwassenen met een hemiparetische cerebrale
parese. Revalidata 2006; 131: 30.
Wiegerink DJHG, Donkervoort M, Roebroeck ME, Cohen-Kettenis PT, Stam HJ. Sociale en seksuele
relaties bij jongeren met cerebrale parese (CP) vergeleken met Nederlandse leeftijdgenoten.
Revalidata 2006; 131: 28-29.
18
July 2014
Wiegerink DJHG, Donkervoort M, Roebroeck ME, Stam HJ, Cohen-Kettenis PT. Sociale en seksuele
relaties bij jongeren met cerebrale parese (CP) vergeleken met Nederlandse leeftijdgenoten.
Nieuwsbrief Sectie Revalidatie, Nederlands Instituut van Psychologen 2006; 20 (47), 9-10.
Wiegerink DJHG. Het Rotterdams Transitieprofiel. Nieuwsbrief Sectie Revalidatie, Nederlands Instituut
van Psychologen, november 2006.
BOSK Magazine (Tijdschrift Oudervereniging)
BOSK Magazine, nr 1, 2006: “PERRIN 5-9: Onderzoek bij schoolgaande kinderen met cerebrale parese” –
JW Gorter, DW Smits, PEM van Schie.
BOSK Magazine, nr 2, 2006: “Revalidatieonderzoek bij kinderen met cerebrale parese: Naar een beter
inzicht in de revalidatiegeneeskunde, de opvoeding en het onderwijs” – B. Nijhuis.
BOSK Magazine, nr 3, 2006: “Revalidatieonderzoek bij kinderen met cerebrale parese: PERRIN CP 05” – M. Nijnuis, JW Gorter, M Ketelaar.
BOSK Magazine, nr 4, 2006: “Revalidatieonderzoek bij kinderen met cerebrale parese: PERRIN CP 916” – J. Voorman, M. van Eck.
BOSK Magazine, nr 5, 2006: “Revalidatieonderzoek bij jong volwassenen met cerebrale parese:
PERRIN CP 16-24” - M. Donkervoort.
Presentaties en abstracts internationale congressen
Gorter JW, Ketelaar M. Use of the Gross Motor Function Classification System by professionals in the
Netherlands: the need for implementation strategies. Presentatie European Academy of Childhood
Disability (EACD). Barcelona: 19-21 October 2006. Developmental Medicine and Child Neurology
2006; 48 (suppl 107): 8.
Ketelaar M, Rentinck I, Jongmans M, Gorter JW. Children with cerebral palsy : What about the parents.
Presentatie European Academy of Childhood Disability (EACD). Barcelona: 19-21 October 2006.
Developmental Medicine and Child Neurology 2006; 48 (suppl 107): 12-13.
Ketelaar M, Suir I, Bruil J, Gorter JW. Development of a condition-specific quality of life instrument
for young children with cerebral palsy: a feasibility study. Posterpresentatie European Academy of
Childhood Disability (EACD). Barcelona: 19-21 October 2006. Developmental Medicine and Child
Neurology 2006; 48 (suppl 107): 34.
Smits DW, van Schie PEM, Ketelaar M, Dallmeijer AJ, Becher JG, Gorter JW. A longitudinal study on
the course and determinants of daily functioning in primary school aged children with cerebral palsy.
Posterpresentatie European Academy of Childhood Disability (EACD). Barcelona: 19-21 October
2006.Revista de Neurologica 2006; 43 (suppl 2): S36-37.
Van Eck M, AJ Dallmeijer, H. Beckerman, JM Voorman, Becher JG. Physical activity level and sports
participation of adolescents of 12 to 16 years with cerebral palsy. Presentatie European Academy of
Childhood Disability (EACD). Barcelona: 19-21 november 2006. Developmental Medicine and
Child Neurology 2006; 48 (suppl 107): 20.
Wiegerink DJHG, Roebroeck ME, Donkervoort M, Stam HJ, Cohen-Kettenis PT. Social and sexual
relationships of youth with CP in the Netherlands. Poster. 32th Annual Meeting, International
Academy of Sex Research, Amsterdam, 2006.
19
July 2014
2005
Wetenschappelijke publicaties
Gorter JW, Boonacker CWB, Ketelaar M. Rubriek ‘Meten in de praktijk’. Gross Motor Function
Classification System (GMFCS). Nederlands Tijdschrift voor Fysiotherapie 2005; 115(4): 116.
Proefschrift
Wassenberg-Severijnen, J.E. Pediatric Evaluation of Disability Inventory (PEDI). Calibrating the Dutch
version. Utrecht: Universiteit Utrecht, ISED.
(Hoofdstukken in) Boeken
Gorter JW. De diagnose: wat ouders willen weten. In: van Loen EHH, Verheijden JMA (Red). Kind en
Hemiparese. Beleven en behandelen. Utrecht: BOSK; 2005. p. 46-58.
Gorter JW, Ketelaar M. Wat is de beste behandeling. In: van Loen EHH, Verheijden JMA (Red). Kind
en Hemiparese. Beleven en behandelen. Utrecht: BOSK; 2005. p. 63-80.
Ketelaar M. De Gross Motor Function Measure in Nederland: Wetenschappelijk onderzoek en gebruik
in de praktijk van de kinderfysiotherapie. Bundelboek Nederlandse artikelen GMFM ter gelegenheid
van de promotie van Dianne Russell. 2005.
Wassenberg-Severijnen JE, Custers JWH. PEDI-NL- Vertaling en berwerking van de PEDI.
Vragenlijst voor de inventarisatie van alledaagse vaardigheden bij kinderen. Amsterdam: Harcourt
Publishers; 2005.
Vakpublicaties
Burger CA, Warmenhoven NJC, Rol M, Roebroeck ME. Transitie naar volwassenheid. De
kinderrevalidatie, en dan? Revalidata 2005; 126:12-18.
Gorter JW, Nijnuis M, Smits DW. Multidisciplinair onderzoek bij jonge kinderen met cerebrale parese:
PERRIN CP 0-4 en PERRIN CP 5-9. Kinderfysiotherapie 2005; 17(46); 37.
Gorter JW, Custers J, Wassenberg-Severijnen J. De PEDI-NL. Een nieuw instrument voor het meten
van het dagelijkse functioneren van kinderen. Kinderfysiotherapie 2005; 17(46); 24-25.
Ketelaar M. Meetinstrumenten binnen het PERRIN-onderzoek. In JG Becher, CBG Maathuis (Red),
Leerboek VRA: Cerebrale Parese. Stand van Zaken en Nieuwe Ontwikkelingen 2005, p. 100-103.
Nijmegen: PAOG/VRA.
BOSK Magazine (Tijdschrift Oudervereniging)
BOSK Magazine, nr 1, 2005: Revalidatieonderzoek bij kinderen met cerebrale parese. PEDI-NL nadert zijn
voltooiing - J.E. Wassenberg-Severijnen.
BOSK Magazine, nr 2, 2005: Revalidatieonderzoek bij kinderen met cerebrale parese. PERRIN CP 0-4 en
GMFCS - J.W. Gorter en M. Ketelaar.
BOSK Magazine, nr 2, 2005: Lichamelijke beperking en zelfbeeld - Sander Hilberink en Diana Wiegerink.
BOSK Magazine, nr 3, 2005: PERRIN CP 9-15 wordt 9-16 jaar: een onderzoek naar de functionele prognose
van kinderen met Cerebrale Parese in de leeftijd van 9 tot 16 jaar - J.M. Voorman en M. van Eck.
BOSK Magazine, nr 4, 2005 Revalidatieonderzoek bij jong volwassenen met cerebrale parese - M. Donkervoort.
Abstracts (inter)nationale congressen
Donkervoort M, Wiegerink DJHG, Roebroeck ME, Stam HJ. Transition into adulthood and its relation
with participation in adolescents and young adults with cerebral palsy. Dev Med Child Neurol 2005;
47, Supplement 103: 18-19. Presentatie European Academy of Childhood Disability (EACD).
Monaco, november 2005.
Donkervoort M, Roebroeck ME, Wiegerink DJHG, Stam HJ. Determinants of daily activities and social
participation of adolescents and young adults with cerebral palsy. Proceedings EACD 2005, pag.78.
Poster European Academy of Childhood Disability (EACD). Monaco, november 2005.
Meeteren J van, Roebroeck ME, Ceelen E, Grund A, Nieuwenhuijsen C, Stam HJ.
Validity of an arm-hand function classification system (Manual Ability Classification System) in
young adults with cerebral palsy. Dev Med Child Neurol 2005; 47, Supplement 103: 59. Poster
European Academy of Childhood Disability (EACD). Monaco, november 2005.
20
July 2014
Nieuwenhuijsen C, Donkervoort M, Wiegerink DJHG, Roebroeck ME, Stam HJ. Unmet needs and
health care utilization in young adults with cerebral palsy. Dev Med Child Neurol 2005; 47,
Supplement 103: 42. Poster European Academy of Childhood Disability (EACD). Monaco,
november 2005.
Nijhuis BJG, Reinders-Messelink HA, de Blecourt ACE, Olijve G, Nakken H, Groothoff JW, Postema
K. Rehabilitation for children with cerebral palsy: A complex interaction between rehabilitation
professionals, special education professionals, and parents. Posterpresentatie European Academy of
Childhood Disability (EACD). Monaco: 19-22 november 2005. Developmental Medicine and Child
Neurology 2005; 47 (suppl 103): 42-43.
Plasschaert VFP, Gorter JW, Nijnuis M, Ketelaar M. Classification of manual abilities by the Bimanual
Fine Motor Function and the Manual Ability Classification System for children with cerebral palsy
age 18 months. Posterpresentatie European Academy of Childhood Disability (EACD). Monaco: 1922 november 2005. Abstractbook Children with disabilities. Progress for the quality of their life. p.
76.
Roebroeck ME, Nieuwenhuijsen C, Donkervoort M, Wiegerink D, Meeteren J van, Stam HJ. Lost in
Transition? Unmet needs and implementation of special teams for young adults with a disability. Dev
Med Child Neurol 2005; 47, Supplement 103: 50. Presentatie European Academy of Childhood
Disability (EACD). Monaco, november 2005.
Vanstiphout CHG, Donkervoort M, Pangalila R, Roebroeck ME, Stam HJ. Cognitive functioning and
social participation in adolescents and young adults with cerebral palsy without severe learning
disabilities. Dev Med Child Neurol 2005; 47, Supplement 103: 59. Poster European Academy of
Childhood Disability (EACD). Monaco, november 2005.
Wiegerink DJHG, Roebroeck ME, Donkervoort M, Stam HJ, Cohen-Kettenis PT. Social and sexual
relationships of adolescents and young adults with cerebral palsy in the Netherlands. Dev Med Child
Neurol 2005; 47, Supplement 103: 61. Presentatie European Academy of Childhood Disability
(EACD). Monaco, november 2005.
21
July 2014
2004
Wetenschappelijke publicaties
Gorter JW, Rosenbaum PL, Hannah SE, Palisano RJ, Bartlett DJ, Russell DJ, Walter SD, Paina P,
Galuppi BE, Wood E. Limb distribution, motor impairment, and functional classification of cerebral
palsy. Developmental Medicine & Child Neurology 2004; 46: 461-467.
Schie PEM van, Siebes RC, Ketelaar M, Vermeer A. The measure of processes of care (MPOC):
Validation of the Dutch translation. Child: Care, Health & Development 2004; 30:529-539.
Vakpublicaties
Ketelaar M. PERRIN. Tijdschrift voor Kinderrevalidatie BOSK 2004: 34-35.
Roebroeck ME. Transitie van kind naar volwassene. Tijdschrift voor Kinderrevalidatie BOSK 2004;37-39.
Verschuren O, Gorter JW, Ketelaar M, Becher J. Gangbeeldclassificatie bij kinderen met cerebrale
parese. Is de classificatie van dr. J.G. Becher betrouwbaar? Kinderfysiotherapie 2004; 16(41): 14-19.
BOSK Magazine (Tijdschrift Oudervereniging)
BOSK Magazine, nr 1, 2004: Revalidatieonderzoek bij kinderen met cerebrale parese. Stand van zaken
PERRIN – M. Ketelaar
BOSK Magazine, nr 1, 2004: Oproep voor jongvolwassenen met cerebrale parese voor een onderzoek
naar relatievorming en seksualiteit. - D. Wiegerink
BOSK Magazine, nr 2, 2004: Gezellige aandacht. Meedoen aan het PERRIN onderzoek – J. Franssen
BOSK Magazine, nr 3, 2004: Revalidatieonderzoek bij kinderen met cerebrale parese. CP 16-20 – M.
Donkervoort
BOSK Magazine, nr 5, 2004: Revalidatieonderzoek bij jongeren met cerebrale parese. Project ProCP:
Het kind met een Cerebrale Parese naar een beter inzicht in de revalidatiegeneeskunde, de opvoeding
en het onderwijs – B. Nijhuis en G. Olijve.
Abstracts (inter)nationale congressen
Donkervoort M, Roebroeck ME, Wiegerink DJHG, Stam HJ. Determinants of participation in social life
of adolescents and young adults with cerebral palsy. Developmental Medicine & Child Neurology
2004; 46 (supplement 100): 29. Presentatie European Academy of Childhood Disability (EACD).
Edinburgh, Scotland, oktober 2004.
Gorter JW, Boonacker C, van Schie PEM, Ketelaar M. Reliability of the Gross Motor Classification
System (GMFCS) for children under two years of age. Developmental Medicine and Child
Neurology 2004; 46 (suppl 100): 16. Presentatie European Academy of Childhood Disability
(EACD). Edinburgh, Scotland, oktober 2004.
Roebroeck ME, Warmenhoven NJC, Burger CA, Rol M. Transition into adulthood after discharge from
paediatric rehabilitation: Which problems do young people encounter? Developmental Medicine &
Child Neurology 2004; 46 (supplement 100): 40-41. Presentatie European Academy of Childhood
Disability (EACD). Edinburgh, Scotland, oktober 2004.
Staijen S, Oude Vrielink J, Gorter JW, Ketelaar M. Assessment of ingestive skills in young children
with cerebral palsy. Developmental Medicine and Child Neurology 2004; 46 (suppl 100): 42.
Posterpresentatie European Academy of Childhood Disability (EACD). Edinburgh, Scotland,
oktober 2004.
Van der Slot WMA, Roebroeck ME, van den Berg-Emons HJG, Landkroon A, Terburg M, Stam HJ.
Everyday physical activity and participation in young adults with hemiplegic cerebral palsy.
Developmental Medicine & Child Neurology 2004; 46 (supplement 100): 41-42. Presentatie
European Academy of Childhood Disability (EACD). Edinburgh, Scotland, oktober 2004.
Voorendt M, Gorter JW, Ketelaar M, Pruijs JEH. Reliability of measurements of scoliosis on X-rays of
children with cerebral palsy. Developmental Medicine and Child Neurology 2004; 46 (suppl 100):
44. Posterpresentatie European Academy of Childhood Disability (EACD). Edinburgh, Scotland,
oktober 2004.
22
July 2014
2003
Wetenschappelijke publicaties
Custers JWH, Wassenberg-Severijnen JE, van der Net J, Hoijtink H, Vermeer A, Helders PJM. (2003)
Dutch adaptation of the Pediatric Evaluation of Disability Inventory (PEDI). Nederlands Tijdschrift
voor Fysiotherapie (special issue WCPT): 33-36.
Wassenberg-Severijnen JE, Custers JWH, Hox J, Vermeer A, Helders PJM (2003). Reliability of the
Dutch PEDI. Clinical Rehabilitation, 17, 457-462.
Vakpublicaties
Gorter JW (2003). Inzicht in hersenschade en uitkomst bij cerebrale parese. Revalidata; 25(113): 9-14.
Ketelaar M (2003). Meten in de kinderrevalidatie. Revalidatie Magazine; 9(1): 12-13.
Schie P van, Ketelaar M. PERRIN onderzoek en communicatie binnen de kinderrevalidatie. Keypoint
2003; 27(2): 6-7.
Verschuren O, Gorter JW, Staijen S, Ketelaar M (2003). Het meten van spasticiteit bij jonge kinderen
met een cerebrale parese: welke methode(n) moeten we gebruiken. Kinderfysiotherapie: 15(36): 511.
BOSK Magazine (Tijdschrift Oudervereniging)
BOSK Magazine, nr 2, 2003: PERRIN-onderzoek van kinderen met Cerebrale Parese van 9 tot 13 jaar –
J. Voorman.
BOSK Magazine, nr 3, 2003: Revalidatieonderzoek bij jongeren met cerebrale parese: het CP
transitieonderzoek ZWN – M. Donkervoort
BOSK Magazine, nr 4, 2003: Revalidatieonderzoek bij kinderen met cerebrale parese: ProCP – B.J.G.
Nijhuis
BOSK Magazine, nr 5, 2003: Revalidatieonderzoek bij kinderen met cerebrale parese: Wat gebeurt er
met de ouders en het gezin? - Rentinck ICM, Staijen SH, Gorter JW, Ketelaar M.
Abstracts (inter)nationale congressen
Donkervoort M, Roebroeck M, Wiegerink DJHG, Stam HJ. Participation and quality of life of
adolescents and young adults with cerebral palsy. Developmental Medicine & Child Neurology 2003;
45 (supplement 97): 22. Presentatie Congres European Academy of Childhood Disability (EACD).
Oslo, Noorwegen, oktober 2003.
Gorter JW, van der Kraats CIB, Bulten RJ, Ketelaar M. Interobserver reliability of the Surveillance of
Cerebral Palsy in Europe (SCPE) algorithm for classification of cerebral palsy. Developmental
Medicine & Child Neurology 2003; 45 (supplement 97): 42. Posterpresentatie Congres European
Academy of Childhood Disability (EACD). Oslo, Noorwegen, oktober 2003.
Ketelaar, M., Prevo, A.J.H., Vermeer, A., Helders, P., Gorter, J.W., Becher, J., Roebroeck, M.,
Reynders, K. (2003). PERRIN: Een landelijk onderzoeksprogramma op het gebied van de
Kinderrevalidatie. Abstractboek Internationaal congres NVFK. Kinderfysiotherapie: Functie en
participatie, p. 78. Posterpresentatie Congres Kinderfysiotherapie. Veldhoven, maart 2003.
Nijhuis BJG, Reinders HA, Reynders K, de Blecourt ACE, Nakken H, Groothoff JW, Postema K.
Parents, teachers, and therapists working together for children with cerebral palsy. Developmental
Medicine & Child Neurology 2003; 45 (supplement 97): 53-54. Posterpresentatie Congres European
Academy of Childhood Disability (EACD). Oslo, Noorwegen, oktober 2003.
Roebroeck ME, Donkervoort M, Van den Berg HJG, Stam HJ. Transition into adulthood and adult life
of patients with a disabling condition since childhood: a research programme. Developmental
Medicine & Child Neurology 2003; 45 (supplement 97): 55. Posterpresentatie Congres European
Academy of Childhood Disability (EACD). Oslo, Noorwegen, oktober 2003.
Staijen SH, Gorter JW, Rentinck I, Ketelaar M, Prevo AJH namens de Utrechtse CP onderzoeksgroep.
Presentatie van de studieopzet van een longitudinaal onderzoek naar de determinanten en het beloop
van functioneren bij jonge kinderen (0 tot 4 jaar) met cerebrale parese (PERRIN 0-4). ).
Abstractboek Internationaal congres NVFK. Kinderfysiotherapie: Functie en participatie, p. 76.
Posterpresentatie Congres Kinderfysiotherapie. Veldhoven, maart 2003.
23
July 2014
Torrance H, Staijen S, Gorter JW, Ketelaar M. Reliability of hip measurements on X-rays of children
with cerebral palsy. Developmental Medicine & Child Neurology 2003; 45 (supplement 97): 58-59.
Posterpresentatie Congres European Academy of Childhood Disability (EACD). Oslo, Noorwegen,
oktober 2003.
Verschuren O, Gorter JW, Staijen S, Ketelaar M. Measurement of spasticity in young children with
cerebral palsy: which method should we use? ). Abstractboek Internationaal congres NVFK.
Kinderfysiotherapie: Functie en participatie 2003, p. 76. Posterpresentatie Congres
Kinderfysiotherapie. Veldhoven, maart 2003.
Wiegerink DJHG, Donkervoort M, Roebroeck ME, Stam HJ. Transition into adulthood: profile to study
adolescents and young adults with cerebral palsy. Developmental Medicine & Child Neurology 2003;
45 (supplement 97): 30. Presentatie Congres European Academy of Childhood Disability (EACD).
Oslo, Noorwegen, oktober 2003.
24
July 2014
2002
Wetenschappelijke publicaties
Custers JWH, Wassenberg-Severijnen JE, Net J van der, Vermeer A, Hart H 't, Helders PJM (2002).
Dutch adaptation and content validity of the 'Pediatric Evaluation of Disability Inventory (PEDI)'.
Disability and Rehabilitation; 24: 250-258.
Custers JWH, Net J van der, Hoijtink H, Wassenberg-Severijnen JE, Vermeer A, Helders PJM (2002).
Discriminative validity of the Dutch PEDI. Archives of Physical Medicine and Rehabilitation; 83:
1437-1441.
BOSK Magazine (Tijdschrift Oudervereniging)
BOSK Magazine, nr.1, 2002: Revalidatieonderzoek bij kinderen met cerebrale parese – Project C: 9-15
jaar – J. Becher en J. Voorman
BOSK Magazine, nr.2, 2002: Revalidatieonderzoek bij kinderen met cerebrale parese – Project B: 0-4
jaar – S. Staijen, JW Gorter, I. Rentinck, M. Ketelaar
BOSK Magazine, nr.3, 2002: Revalidatieonderzoek bij jongeren met cerebrale parese – Project D: 1620 jaar – D. Wiegerink, M. Donkervoort, M. Roebroeck
BOSK Magazine, nr.5, 2002: Revalidatieonderzoek bij kinderen met cerebrale parese – Project E:
ProCP – B. Nijhuis, K. Reynders, H.A. Reinders-Messelink, A.C.E. de Blécourt.
Abstracts (inter)nationale congressen
Rentinck ICM, Gorter JW, Staijen S, Ketelaar M. Constructs and measures for the well-being of parents
and social support in a longitudinal study of young children with cerebral palsy. Developmental
Medicine and Child Neurology; 44 (supplement 92): 40. Posterpresentatie Congres European
Academy of Childhood Disability (EACD). Pisa, Italië, 24-26 oktober 2002.
Verhoog J, Gorter JW, Pruijs H, Maathuis K, Ketelaar M. Early determinants of scoliosis in children
with cerebral palsy: a review of literature and medical records. Developmental Medicine and Child
Neurology; 44 (supplement 92): 30. Posterpresentatie Congres European Academy of Childhood
Disability (EACD). Pisa, Italië, 24-26 oktober 2002.
Verschuren O, Gorter JW, Staijen S, Ketelaar M. Measurement of spasticity in young children with
cerebral palsy: which method should we use? Developmental Medicine and Child Neurology ; 44
(supplement 92): 30. Posterpresentatie Congres European Academy of Childhood Disability
(EACD). Pisa, Italië, 24-26 oktober 2002.
Voorman JM, Becher JM, vanderLee JH, Lankhorst GJ, Bijman A. Janssen CGC, Schuengel C.
Longitudinal study on determinants and course of the functional status of young children (age 9-15
years) with cerebral palsy. Developmental Medicine and Child Neurology; 44 (supplement 92): 31.
Posterpresentatie Congres European Academy of Childhood Disability (EACD). Pisa, Italië, 24-26
oktober 2002.
25
July 2014
2001
Wetenschappelijke publicaties
Ridder, H. de, Pierik, P. & Vermeer, A. (2001). Allochtonen in de kinderrevalidatie. Tijdschrift voor
Orthopedagogiek, 40, 347-363.
Proefschriften
Custers JWH. Pediatric Evaluation of Disability Inventory – the Dutch adaptation. Proefschrift
Universiteit Utrecht, 2001.
Vakpublicaties
Stam HJ, Roebroeck ME (2001). Transitieonderzoek op stoom. Revalidata; 102 (23): 17-18.
BOSK Magazine (Tijdschrift Oudervereniging)
BOSK Magazine, nr 3, 2001: Start van groot onderzoeksprogramma "Revalidatieonderzoek bij
kinderen" – A. Prevo, M. Ketelaar en P. van Schie (Introductie Programma)
BOSK Magazine, nr 4, 2001: Revalidatieonderzoek bij kinderen met cerebrale parese – A. Prevo en M.
Ketelaar (Verwante projecten GMFCS en MPOC)
BOSK Magazine, nr.5, 2001: Revalidatieonderzoek bij kinderen met cerebrale parese – Project A:
PEDI – A. Vermeer
BOSK Magazine, nr. 5, 2001: (Jong)volwassenen met spasticiteit - M.E. Roebroeck en W.
Nieuwstraten.
2000
Abstract internationaal congress
Gorter JW, Ketelaar M, Prevo AJH. Design of a longitudinal study on determinants and course of
functional status in young children with cerebral palsy. Developmental Medicine & Child Neurology
2000; 41 (supplement 83): 25. Posterpresentatie Congres European Academy of Childhood
Disability (EACD). Tübingen, Duitsland, oktober 2000.
26