1 OBSESSIVE-COMPULSIVE DISORDER IN CHILDREN AND ADOLESCENTS: FAMILY BASED STRATEGIES AND INTERVENTIONS James A. Gall, Ph.D., PLLC Overview 2 Family dysfunction does not cause OCD, however family members affect and are affected by a child with OCD OCD disrupts the psychosocial and academic performance of roughly 1 in 200 children/adolescents (Academy of Child and Adolescent Psychiatry) Treatment tailored to a child’s developmental needs and family context may reduce chronic nature of OCD Objectives 3 Understand the epidemiology of OCD, diagnostic criteria, symptoms, developmental factors, and comorbidity Understand the importance of parental involvement in all phases of treatment for children experiencing OCD Understand the importance of treatment tailored to a child’s developmental characteristics Objectives 4 Understand the family/parental role as cotherapists in helping a child learn to manage their symptoms Understand how the family context and parental reactions affect a child with OCD Learn strategies for working with the school as well as strategies for improving the overall family functioning Definition (DSM-IV) 5 Obsessions as defined by: Recurrent and persistent thoughts, impulses, or images which are intrusive and cause marked anxiety or distress Thoughts, images, or impulses are not simply excessive worries about real problems The person attempts to suppress the thoughts, images, or impulses, with some other thought or action Definition 6 The person recognizes that he obsessions are a product of his/her own mind Compulsions as defined by: Repetitive behaviors that the person is driven to perform in response to an obsession The behaviors of mental acts are aimed at reducing or preventing distress or some dreaded event Definition 7 The person recognizes that the obsessions or compulsions are excessive and unreasonable Note: This does not apply to children The obsessions or compulsions cause marked distress or significantly interfere with normal routine (school, social activities, relationships) Children at Risk 8 OCD affects as many as 1% of children (as common as childhood asthma; 3-5 youngsters with OCD per average-sized elementary school) 50% of adult cases of OCD are diagnosed before age 15 2% of children are diagnosed between ages of 712 OCD is more prevalent in boys (2:1 ratio) 20% of children with OCD have a family member with OCD Children and Rituals 9 Some compulsive and ritualistic behaviors in childhood are part of normal development – most common between the ages of 4-8; an attempt to master fears and anxieties Many children collect objects, engage in ritualized play, avoid imaginary contaminants Children and Rituals 10 Many childhood rituals advance development, enhance socialization, assist with separation anxiety, and help define their environment Childhood rituals disappear on their own – rituals of a child with OCD persist well into adulthood Symptoms at Home 11 May be worse at home than at school Repeated thoughts they find unpleasant – not realistic Repeated actions to prevent a feared consequence Consuming obsessions and compulsions Distress if ritual is interrupted Difficulty explaining unusual behavior Attempts to hide obsessions or compulsions Symptoms at Home 12 Resistance to stopping the obsessions of compulsions Concern that they are “crazy” because of their thoughts Symptoms at School 13 Families often seek treatment once symptoms affect school performance Difficulty concentrating – problem finishing or initiating school work Social Isolation Low self-esteem Symptoms at School 14 Other conditions – ADHD Learning disorders/cognitive problems which are often overlooked Daydreaming – the child may be obsessing Repetitive need for reassurance Symptoms at School 15 Rereading and re-writing, repetitively erasing – look for neatness, holes in paper Repetitive behaviors – touching, checking, tracing letters Fear of doing wrong or having done wrong Symptoms at School 16 Avoid touching certain “unclean” things Withdrawal from activities or friends Treatment 17 “There is nothing that is wrong with me that what's right with me can’t fix” Treatment: Psychological Interventions 18 Family-based cognitive behavioral therapy is uniquely tailored to the child’s developmental needs and family context (Bradley Hasbro Children’s research Center, 2008). Family based CBT provides the child and parents with a set of tools to help manage and reduce the OCD symptoms Young children require parental guidance and have less emotional awareness Treatment: Psychological Interventions 19 The need for education – not their fault Differentiate between the child and OCD Explain OCD in understandable language Listen to and observe your child Personifying the obsessions – give it a name Stop blaming yourself – bad parenting does not cause OCD Instill hope, learn to fight back, engage in exposure therapy – parents are co-therapists Interventions at Home 20 Therapist must work with the schoolNO EXCEPTIONS! Provide a sympathetic and tolerant environment Understand the disorder Listen to your child’s feelings Plan for transitions Interventions at Home 21 Adjust expectations until the symptoms improve Praise your child’s efforts to resist symptoms Plan for what to say to people outside the family Understand parental limits “It’s the OCD talking.” Interventions at Home 22 Celebrate accomplishments Foster hope and normalized developmental behavior Understand parental role in supporting therapy interventions at home – help child commit to exposure therapy and boss back OCD Interventions at School: Modifications, Accommodations, and Strategies 23 Develop a collaborative relationship with the school, especially the teacher and counselor. Most school officials want to help the child and work with the therapist – they want help too! Allow more time to complete certain type of assignments Interventions at School: Modifications, Accommodations, and Strategies 24 Accommodate late arrival due to symptoms at home Give the child a choice of projects Adjust the homework load Anticipate issues such as school avoidance Assist with peer interactions Interventions at School: Modifications, Accommodations, and Strategies 25 Monitor transition periods Support and reinforce behavioral strategies developed by the clinician Encourage the child to problem-solve Allow alternative ways to complete work or take tests – be creative! Interventions at School: Modifications, Accommodations, and Strategies 26 Eliminate undesirable options, e.g., use a pencil without an eraser Have the student identify and substitute less disruptive compulsive behaviors Find solutions for restroom problems Interventions at School: Modifications, Accommodations, and Strategies 27 Do not punish the child for behavior they have no control over Never tolerate teasing directed towards a child with OCD Monitor for special educational services/resources Interventions at School: Modifications, Accommodations, and Strategies 28 Flexibility and a supportive environment are essential for a student to achieve success in school “There is nothing that is wrong with me that what's right with me can’t fix” We are Done! 29 Questions & Answers References and Resources 30 The OCD Foundation of Michigan – 313.438.3293 www.ocdmich.org The International OCD Foundation: www.ocfoundation.org Anxiety Disorders Association of America www.adaa.org James A. Gall, Ph.D., PLLC 31 Office phone: 810. 543. 1050