Understanding Selective Mutism COURTNEY KEETON, PHD CLINICAL PSYCHOLOGIST ASSISTANT PROFESSOR OF PSYCHIATRY THE JOHNS HOPKINS UNIVERSITY SCHOOL OF MEDICINE DECEMBER 3 2012 Questions Addressed Is selective mutism (SM) the same as shyness? Does SM go away over time, or is treatment needed? What are behavioral treatments for SM? What is the role of the school in SM treatment? When should medication be considered? How do I effectively parent my child with SM? C Keeton PhD 12/3/12 What Is Selective Mutism (SM)? The consistent failure to speak in social situations when speaking is expected Fluid speech in other situations (usually home & familiar settings) Interferes with academic & social development Duration: at least one month (not September!) Not due to lack of knowledge/comfort with the language Not better accounted for by communication or developmental disorder, or psychosis C Keeton PhD 12/3/12 Diagnostic Classification DSM-IV-TR (2000) Selective Mutism DSM-5 (May 2013) Social Anxiety Disorder (Selective Mutism) C Keeton PhD 12/3/12 Clinical Presentation Large individual variation in communication behaviors Context: school, home, public People: peers, adults, family, strangers Nonverbal Features: gestures, nods, eye contact Verbal Features: volume, quantity, spontaneity C Keeton PhD 12/3/12 Epidemiology 1 out of 140 kids (0.7%) Comparable to other anxiety disorders such as OCD Gender difference: mixed data Preschool age of onset: before age 5 C Keeton PhD Referrals typically made between 6.5 and 9 years of age 12/3/12 Course MYTH: Child will “outgrow it” Chronic 1/3 remission 1/3 remarkably improved 1/3 minimal improvement Risk for future impairment Social Anxiety Disorder Social skills deficits Mood problems C Keeton PhD 12/3/12 Etiology Familial/Genetic component Family history of SM, shyness, anxiety Temperament Behavioral inhibition Environmental vulnerability Less socially active family Autonomy-limiting parenting Negatively reinforced behavior MYTH: trauma → SM Insidious onset C Keeton PhD 12/3/12 Other Common Concerns Other forms of anxiety Social phobia (>80%) Separation anxiety (~30%) Specific phobia (~15%) Generalized anxiety disorder (~15%) Physical symptoms Elimination problems (~30%) Constipation Enuresis Encopresis Oppositional behavior Communication disorders C Keeton PhD 12/3/12 Assessment Observational methods Interviewing Pencil-and-paper questionnaires Speech and language assessment C Keeton PhD 12/3/12 Treatment Psychosocial Treatment Pharmacological Treatment Goals Reduce anxiety Increase quality and quantity of speech across people and situations Achieve remission: spontaneous, age appropriate conversational speech across contexts C Keeton PhD 12/3/12 Psychosocial Treatment Approaches First-line treatment = behavioral and cognitive- behavioral approaches Cognitive Behavioral Therapy C Keeton PhD 12/3/12 Basis of Psychological Problems Interpersonal and environmental contexts Emotions Cognition Physiology Behavior C Keeton PhD 12/3/12 Features of CBT Time-limited Skill-based, problem-specific, goal-oriented Structured (but flexible) Present and solution-focused Collaborative Empirically-based (data shows it works!) C Keeton PhD 12/3/12 CBT for SM Anxiety Anxious Beliefs Physiology Avoidant Behavior Accommodation by Others Parenting C Keeton PhD 12/3/12 CBT for SM Avoidant Behavior Accommodation by Others Parenting C Keeton PhD 12/3/12 Targeting Avoidant Behavior Techniques: Graduated Exposure, Shaping, Stimulus Fading Read short story aloud Ask questions during “Guess Who” Whisper counting during “Chutes & Ladders” Mouth the names of pictures/colors during game Show home video of self talking to doctor C Keeton PhD 12/3/12 Targeting Accommodation by Others Reduce “mind-reading” in low stress situations Allow child a chance to respond before repeating a question Create opportunities for speech Stay involved in social activities (swimming, birthday parties) C Keeton PhD 12/3/12 Targeting Parenting Behaviors Create structure/routine Encourage independence in child Offer praise/rewards for positive behaviors Increase child’s control during play by narrating C Keeton PhD 12/3/12 Intervening at School Level Collect teacher feedback Provide education Secure services through an Individualized Education Plan (IEP) or Section 504 Plan if appropriate Enlist teacher help in defining and measuring daily speech goals Consider use of daily report card C Keeton PhD 12/3/12 Sample Daily Report Card (Advanced) C Keeton PhD 12/3/12 Pharmacologic Treatment Recommended when psychosocial interventions are ineffective or when symptoms are chronic and severe First-line treatment = Selective Serotonin Reuptake Inhibitors Fluoxetine (most studied) Sertraline Paroxetine C Keeton PhD 12/3/12 Conclusions Is SM just shyness? A formal diagnosis suggests a problem that has been ongoing, present in numerous situations, and causing impairment My child has SM. Is treatment needed? The majority of cases don’t resolve without intervention. In cases when SM “goes away,” there is high risk that anxiety persists. C Keeton PhD 12/3/12 Conclusions Why are behavioral interventions recommended? SM is maintained by avoidant behavior, and data suggests that SM can be effectively treated by learning healthy coping and approach behaviors in a gradual way. Does the school need to be involved? School is typically where the symptoms are most severe, so interventions need to be applied in the school. Treatment is most successful when school personnel are aware of the problem and part of the treatment collaboration. C Keeton PhD 12/3/12 Conclusions When should medication be considered? Data suggests that SSRIs are well-tolerated and effective in pediatric populations. These medications should be considered in treatment resistant cases, when symptoms are severe, or when additional anxiety or other problems exist. How to I effectively parent my child with SM? Be his/her biggest advocate. Understand that SM is not a voluntary phenomenon, and that progress is gradual. Collaborate with your child to make a plan. Praise brave speech and independent behavior. C Keeton PhD 12/3/12 Courtney Keeton, PhD The Johns Hopkins University School of Medicine Department of Psychiatry Division of Child & Adolescent Psychiatry Phone: 410-614-5174 Email: ckeeton@jhmi.edu C Keeton PhD 12/3/12