IMPROVING PSYCHOLOGICAL CARE AFTER STROKE Introduction Plan of the day • Delegate packs • Speakers • Workshops • Manuals • Toolkit • Poster presentations • PowerPoint Presentations The Backstory • The North East Psychologists in Stroke group first conceived the idea of developing a training package/programme around psychological adjustment following stroke just over 2 years ago. • After reviewing the training already on offer, there seemed to be a lack of training opportunities specific to psychological adjustment after stroke • A core group interested in taking the project further formed. Along the way, more Psychologists and AHP’s from the trusts within the NECVN network joined the group, ensuring all trusts had a regional representative. The Beginning • The main question we had at the very beginning of the project was basically… what shall we do? • What did the patients want/need? • To find out what staff wanted, we carried out a Training Needs Analysis, surveying almost 100 members of staff across the region – including nurses, speech and language therapists, physiotherapists, occupational therapists, healthcare assistants and doctors. • We wanted to find out what skills and knowledge staff felt were important within their job role, and what skills and knowledge they lacked confidence in. Knowledge of the brain and stroke Helping individuals to manage anger Working with communication difficulties Working with challenging behaviour Working with attention and concentration difficulties Working with motivation problems Working with memory difficulties Understanding and supporting emotional/psychological difficulties Working with executive dysfunction (e.g. problem solving, decision making) Understanding grief reactions (e.g. loss, adjustment) Complications of insight and awareness Understanding sex and relationship difficulties Understanding mental capacity Ability to set goals Helping family and individuals manage personality change Working as part of a team Confidence Skill Importance Confidence Skill Importance Training Needs Analysis Results • The results from the Training Needs Analysis were very encouraging – thankfully the vast majority of staff members felt that all of the skills listed were important. • The skills that had the biggest discrepancy between importance and confidence (i.e. rated as very important, but low confidence in using the skill) were: • • • • • Understanding mental capacity Helping family and individuals manage personality change Helping individuals to manage anger Working with challenging behaviour Understanding sex and relationship difficulties Stepped Care Model for psychological interventions after stroke (NHS Improvement 2011) (Prof House & Dr Knights • Level 3: Severe and persistent disorders of mood and/or cognition – requiring specialist intervention from clinical psychology / Mental Health • Level 2: Mild/moderate symptoms of impaired mood and / or cognition that interfere with rehab – requiring specialist stroke staff with psychol / MH expertise. • Level 1: Sub-threshold problems – requiring awareness and screening by stroke specialist staff Stroke Specific Skills and Competencies Best Practice Tool (NECVN) These competencies are designed to support the development of staff working with stroke patients and their carers. They are aimed at all disciplines of staff and while some of the competencies are generic (all), others are discipline specific (nursing, SW, physio, OT, SALT, psychology). The Next Step • After receiving feedback from staff working in stroke services, and from patients who had been through stroke services, it was time to decide on the main topics we wanted to cover in the training. • At this point we got a little bit carried away… • • • • • Interpersonal skills Psychological care after stroke Cognitive changes after stroke Challenging behaviour Difficult issues How to Deliver • We also needed to think about how we would deliver the training. • • • • Training Manual Toolkit of Resources PowerPoint Presentations Website The Training Manual • The training manual is almost 250 pages long and aims to give people a good understanding of the psychological issues that an individual can face after stroke, and how they can offer support to that individual. • Within the five sections mentioned earlier, the manual covers areas such as: • • • • • • Self esteem Anxiety Anger Distress/depression Functional analysis Executive function • • • • • • Motivation Counselling skills Screening Sex and relationships Mental capacity Insight and awareness Toolkit • Much of the feedback we received from staff told us that from training, they wanted to know what to do and they wanted the tools to be able to do it. They wanted interventions. • Our toolkit contains various resources relevant to each section of the manual, that can be used with patients who are experiencing lower level difficulties. • • • • • • Distress scale Formulation sheets Relaxation scripts Aphasia friendly screening tools Goal setting worksheets ABC charts • Worry diaries • Activity schedules • Challenging behaviour record sheets • Problem solving • Cognitive estimate tasks • Planning tasks PowerPoint Slides • Each section of the manual has been broken up further – e.g. challenging behaviour introduction, challenging behaviour assessment and challenging behaviour intervention. • There is a PowerPoint presentation for each of these topics (approx. 15 slides) which comes with an audio voiceover. • Can be used by an individual or in groups for in service training. • The content of the presentations is mostly based on the information which is provided in the manual – they are another option depending on how you prefer to receive training, and how you learn best. • Activities included within each presentation. Activity Example Pros Change No Change • One way of exploring pros and cons, is to use a decisional balance worksheet with patients. • This allows you to not only look at the pros and cons of changing, but also the pros and cons of not changing (in reality, there are positives to carrying out behaviours which are “bad for us” – otherwise we wouldn’t do them! It is important to acknowledge this as well as looking at the negatives of a given behaviour). • Draw out your own decisional balance sheet, and either use a change which you would like to make, or make up an example (e.g. stop smoking, eat healthier diet, cut down alcohol). Cons Website • Our website – www.paast.co.uk brings all of the previously mentioned aspects of training together. • Central hub where you can download sections of the manual, toolkit resources and PowerPoint presentations. • The website is password protected – you all have a card in your delegate pack with the username and password on. • Allows us to update things when needed, and release information about any developments with the training, or in the wider field of psychological care after stroke. Today • What is today all about? • Launching our training resources… • We want people to learn things today, but the day isn’t all about training. • We want to spark people’s interest, get people feeling passionate about improving psychological care after stroke. • Inspire people to want to learn more. • Show the importance of dealing with the psychological impact of having a stroke, as well as the physical. • Find champions – push forward with the PAAST training. Finally… • Thank you to everyone who has helped us to develop these training materials, and to everyone helping us out today…. • We will be around all day so if you have any questions, please let us know! • Please don’t take the training manuals away with you today… A PAAST representative will be coming out to each service in the following weeks to deliver the resources and provide any more information you need about how to use them. • If you are interested in becoming a “PAAST champion” in your service, please leave your contact details on the sheet by the poster stands. • ENJOY THE DAY!!!