International Study Tour Fetal Alcohol Spectrum Disorder Canada, America Oct-Nov 2014 December Progress Report: Robyn Williams PhD Candidate Study Itinerary: Conferences • Attended & presented at the INKIHD October • Attended Edmonton FASD Conference: Oct • Attended & presented at the Living Well FASD and Mental Health Conference: Nov Study Itinerary: FASD Training • Training: Fetal Alcohol & other Neurobehavioural conditions (Dianne Malbin) • Advanced Case Management of FASD Training (Donna Debolt) • Hosted, mentored and trained by Dr Dorothy Badry (University of Calgary) for two weeks • Canada FASD National Network Meeting The Caregiver Curriculum on FASD© Viewing FASD as a Lifespan Disability Curriculum Development Team: Dorothy Badry, PhD, RSW Jamie Hickey, BA, MSW (c) Faculty of Social Work University of Calgary Project Funder: Public Health Agency of Canada (2011-2014) Name Agency/Expertise Mary Cox Millar Director, Manitoba FASD Centre Brenda Knight Psychologist, FASD Expert, Key note speaker Dr Deborah Goodman Director, Child Welfare Institute, Toronto Dr Dorothy Badry University of Calgary (Child Welfare & FASD) Bernadette Lahtail & Dr Jean La France Creating Hope Society of Alberta Jonathon Rudin Aboriginal Legal Services Toronto Donna Debolt FASD Educator Dianne Malbin FASD Educator Sakgeeng Reservation Health and Cultural programs Dr Peter Choate University of Calgary (Child Welfare & FASD) Dr Don Fuchs University of Calgary (Child Welfare & FASD Presentations • Bow Valley College, Calgary • University of Calgary • Grand Prairie Learning Circles Our Gurlonngas, Our Future Edmonton Conference : Key points • FASD Edmonton Annual Conference Opening comments: Annual Budget $16.5million • 1 in 4 in Alberta diagnosed with FASD 36,000 people • 500 a year born with FASD • 26 diagnostic centres Manitoba FASD Centre • Centre was established in 1999 • No statistics on ethnicity, approx 200 new diagnoses a year • The oldest age they treat is 18 and cannot diagnose adults • 60% of referals come from the child welfare department • Welfare department has 4 specialised FASD officers • Community workshops are help once a month at night for parents/carers FASD Best Practice: Canada • Parent-Child Assistance Program (3 years intensive support programme for families at risk) • Specialised FASD school classrooms (Manitoba) • Caregiver Curriculum on FASD • Art and pet therapy • FASD Training, training and more training • FASD unit included in Social Work curriculum (Alberta) • Housing support and recognition of the high number of adults with FASD who are homeless • Starfish programme supporting young people with FASD • FASD camps for youth Key Points • Child welfare & FASD • Health Promotional materials: Alcohol & Pregnancy • Prevention • Early transition to adulthood • Mental Health (Suicide) Community engagement & data collection • Yorgum Counselling Service • Rockingham Strong families (DCP) • Katanning Health Service Survey • Katanning • Northam • Perth • Next: Albany & Bunbury “There is nothing mild about having a mild FASD disability” Donna Debolt, Advanced FASD Case Management training, Calgary November 2014