Ambassador Program - Introduction
Aingyea Kellom, MPA
Program Associate, Patient Engagement
Day of Research and Engagement for the Community
Markham, IL
March 1, 2014
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About PCORI
pcori.org
Why PCORI?
Research has not
answered many
questions patients
face.
People want to know
which treatment is
right for them.
Patients need
information they can
understand and use.
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PCORI Has a Broad and Complex Mandate
“The purpose of the Institute is to assist
patients, clinicians, purchasers, and policymakers in making informed health
decisions by advancing the quality and
relevance of evidence concerning the manner
in which diseases, disorders, and other health
conditions can effectively and appropriately
be prevented, diagnosed, treated,
monitored, and managed through research
and evidence synthesis...and the
dissemination of research findings with
respect to the relative health outcomes, clinical
effectiveness, and appropriateness of the
medical treatments, services...”
-- from Patient Protection and Affordable
Care Act
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PCORI Is Accountable for Changing Practice
“(g) FINANCIAL AND GOVERNMENTAL
OVERSIGHT. …
(2) REVIEW AND ANNUAL REPORTS.
…
(iv) Not less frequently than every 5
years … the overall effectiveness of
activities conducted under this section …
such review shall include an analysis of the
extent to which research findings are
used by health care decision-makers,
the effect of the dissemination of such
findings on reducing practice variation
and disparities in health care…”
-- from Patient Protection and Affordable
Care Act
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Our Mission
PCORI helps people make informed health care decisions, and
improves health care delivery and outcomes, by producing and
promoting high integrity, evidence-based information
that comes from research
guided by patients,
caregivers and the
broader health care
community.
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PCORI’s Focus on Patient Engagement
Comparative Clinical Effectiveness Research



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Patient-centered
Answering questions that matter to
patients and other clinical decision makers
Comparisons of outcomes that matter to
patients
Strategic Goals
Increase Quantity, Quality and Timeliness
of Research Information
Speed the Implementation and
Use of Evidence
Influence Research Funded by Others
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Our Work Answers Patients’ Questions
Given my personal characteristics, conditions and
preferences…
“What should I
expect will
happen to me?”
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“What are my
options and
what are the
potential
benefits and
harms of those
options?”
“What can I do
to improve the
outcomes that
are most
important to
me?”
“How can
clinicians and the
care delivery
systems they work
in help me make
the best decisions
about my health
and healthcare?”
Our National Priorities for Research
Assessment of Prevention,
Diagnosis, and Treatment
Options
Improving Healthcare
Systems
Addressing Disparities
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Communication &
Dissemination Research
Accelerating PCOR and
Methodological Research
Our Growing Research
Portfolio
pfaawards.pcori.org
Our Growing Research Portfolio
(as of January 2014)
Total number of research
projects awarded : 279
Total funds awarded:
$464.2 million
Number of states where we are
funding research:
38 states (plus the District of Columbia and
Quebec, Canada)
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We Engage Stakeholders at Every Step
Topic
Selection and
Research
Prioritization
Merit Review
Evaluation
Study Design/
Implementation
What If I’ve Never Participated in Research
Before?
PCORI Ambassador Program
Merit Review
Engagement Awards- Pipeline to Proposals
Advisory Panels
Webinars
PCORI 101
Program Overview
The volunteer initiative that trains, equips, and mobilizes patients,
caregivers, organizations and other stakeholders to share PCORI’s
vision, mission and PCOR principles with their respective communities,
participate as full partners in research and to help assure the sharing and
uptake of information generated from PCORI funded projects.
-Five modules of training
focused on PCORI, their
role, PCORI funding, and
working in research teams
- Ambassador Toolkit
Provides support material
such as talking points,
presentation template,
PCORI One-pagers,
social media guide,
glossary of scientific
terms, and PCORI’s
Patient Engagement
Rubric
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-
Ambassador Yammer
Community: Online
community that
encourages the
exchange of best
practices in different
communities
-
Quarterly Ambassador
Newsletter
Important Program Dates
October
2012
Program
recommende
d
by a
Transforming
PatientCentered
Research:
Building
Partnerships
and
Promising
Models
workshop
attendee
Septem
ber 2013
October
2013
Inaugural
Ambassador
s invited to
the join
Program
webpage
launched and
sent invites
to merit
reviewers,
workgroup,
roundtable, &
regional
event
attendees
Decemb
er 2013
March
2014
Phase I of
Training Live
Module 1:
Introduction
to PCORI &
Module 2:
The Role of
the
Ambassador
Phase II of
Training Live:
Module 3:
Understandin
g PCORIFunded
Research,
Module 4:
How PCORIFunded
Research
Teams Work
Together 1 &
Module 5:
How PCORIFunded
Research
Teams Work
Together 2
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June
2014
Annual
Convening
October
2014
Open
Program to
the Public
PCORI Ambassador Perspective
Benefits of Program:
Receiving PCORI Ambassador communications tools
and PCOR science training;
Recognized as a “PCOR Science-Trained
Ambassador” on the PCORI Ambassador webpage;
Co-authored publications, submitted guest blogs, or
participated in other media opportunities;
Highlighted for work in patient-centered research in
PCORI e-newsletters;
Learning of opportunities to serve as PCORI reviewers
or participate in working groups and on survey panels;
and
Collaborating and serving as a panelist with PCORI or
others on events such as webinars, conferences, and
panels.
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Ambassador Interest by Region and
Ethnicity
14%
33%
7%
16%
30%
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Which of the following is your primary
community?
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Program Evaluation
Evaluation of two populations:
 Ambassadors
• Web Interest Form
• Activity Report
• Mid- and one-year survey
 Organizations that hosted a PCORI Ambassador
speaking engagement
• Activity Report Follow-up
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Q&A
Aingyea Kellom, MPA
Program Associate, Patient Engagement
akellom@pcori.org
Phone: 202.827.7697
Cell: 202.603.7453
Thank Your and Please Find Us Online
www.pcori.org
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