Professor Debbie Tolson - Research Workshop

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Staff, Members & Volunteers’ Conference
&
Awards Ceremony
1 November 2013
Murrayfield Stadium
#ASAGM
Debbie Tolson
PhD MSc BSc (Hons) RGN FRCN
Professor of Dementia/Director
Alzheimer Scotland Centre for Policy and Practice
Alzheimer Scotland Centre for Policy and Practice
Alzheimer Scotland Centre for Policy and Practice
Vision
To be a centre of excellence advancing dementia policy and
practice through education, applied research and social
enterprise.
Mission
To work collaboratively with people with dementia and carers,
the scientific and practice communities to advance evidence
informed dementia policy and practice.
Centre Activities
• Applied research for policy and practice
• Dementia research capacity & capability development
• Education & Knowledge Exchange to promote evidence
informed practice & leadership
• Policy influencing and implementation
• Social enterprise designed to incubate dementia care solutions
Centre Activities
• Applied research for policy and practice
• Dementia research capacity & capability development
• Education & Knowledge Exchange to promote evidence
informed practice & leadership
• Policy influencing and implementation
• Social enterprise designed to incubate dementia care solutions
The Team
Debbie Tolson
Professor of Dementia/Director
Graham Jackson
Professor of Dementia Care
Barbara Sharp
Research Fellow
Karen Watchman
Lecturer
Nicola Douglas-Smith Doctoral Student
Paul Brown
Associated Researcher-Trainee Consultant
Affiliated Members Alz.Scot Nurse Consultants, AHP
Consultants, Academics, Practitioners,
Volunteers? you
Debbie Tolson
Professor of Dementia
Research Interests
• Dementia & Later Life Syndromes (Geriatric Giants)
• Delirium
• Psychosocial interventions (e.g reminiscence)
• Long Term Care –Nursing Home Practice
• Communities of practice
Graham Jackson
Professor of Dementia Care
• Research interests
Service delivery in NHS
Early diagnosis of dementia
Nursing Home Care
Drug treatment and dementia
• Current projects
Do people with dementia need psychiatric wards?
Use of PoA in Scotland
Dr Karen Watchman
Alzheimer Scotland Lecturer in Dementia
Research Interests
• Learning disability and dementia
• Sensory Interventions
• Reminiscence
Projects
• Enhanced sensory day care – pilot project
Knowledge Exchange
• Learning disability and dementia including development of
‘Train the Trainer course’
Barbara Sharp
Alzheimer Scotland Research Fellow
Research Interests
• Living well with dementia
• Stress and distress
• Sensory changes in dementia
Current Projects
• An exploration of the subjective experiences of stress in
people with dementia
Knowledge Exchange
• Enabling approaches to care at home
Applied Research - Building the Evidence Base
Research Excellence for Practice
Literature
Reviews
Knowledge
Exchange
Commissioned
Evaluations
Main
Research
Studies
Pilot
Studies
Doctoral
Studies
Examples of Centre Projects and
Funding Applications in
Submission
Project Funding Applications
Tolson D, Banks P, Nolan M. Advancing dementia–telephone-helpline practice:
working with family caring. £79,000. Studentship Application submitted to
Alzheimer Society May 2013. Decision Pending
Orell M, Tolson et al GIRDER Reading Out loud NIHR PHR £1.1m Outline
application-submitted July 2013. Decision Pending
Watchman et al Pilot study of football reminiscence within care homes. £5.5k
Small Grant application submitted August to Alzheimer Scotland Research.
Decision Pending
Brazil K, McLaughlin D, Watson M, Froggatt K, Nightingale P, Jackson G, Tolson
D. Determining Goals of Care at the End of Life for Residents in Nursing Homes.
Dunhill Medical Trust £234,153.00 Main Application Submitted October 2013
Decision Pending
PhD studentships
Design for Dementia in Care Home Environments:
understanding the staff
Started October 2013
Legitimising playfulness and meaningful improvisation with care
home residents with dementia
Have partial funding may have student
Working with older people with dementia during episodes of
hyperactive delirium in an acute hospital setting .
Have funding need student
Advancing dementia–telephone-helpline practice.
Have Student waiting for funding decision.
Examples of Current Projects
Current Project 1
Spanish Pilot of Football Reminiscence.
Coll Planas L, Donemeche S, Tolson D et al
Aim
To develop and evaluate a program of football based
Reminiscence
Design
Longitudinal Multicentre Pre-Post Test Intervention
Funded by Spanish Federation of Veteran Former Players.
Current Project 2
Dementia In The Workplace
The Potential For Continued Employment Post-diagnosis
Professor Pauline Banks University of the West of Scotland
Professor Mike Danson Heriot-Watt University
Professor Debbie Tolson Alzheimer Scotland -University of the West of Scotland
Dr Louise Ritchie Research Fellow
Funded by the Alzheimer’s Society 2013 -2915
Research Study
Funded by the Alzheimer’s Society 2013 -2915
Aim: To explore the employment related experiences of
people with dementia or MCI, and attitudes of employers
and/or co-workers towards supporting people with
dementia, in order to identify the potential for continued
employment post diagnosis
Case Study participants
–
–
–
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People with dementia or MCI
Family members
Employers/work colleagues
Human Resources/occupational health/unions
#DStrat2
Outcomes
Findings
 How people with dementia cope in the
workplace, challenges faced by
employers/co-workers, responses to
these challenges.
 Adjustments that people with dementia/MCI would require
to extend their working lives, and factors that would enable
or hinder employers from providing such support.
Outcomes
 Implications for policy within Scotland and wider UK
 Identification of future research direction within UK
 Address barrier to seeking diagnosis
Current Project 3
Enhanced Sensory Day Care. Pilot Study
Watchman K, Tolson D, Brown M, Jackson G et al
Aim To collaboratively evaluate and refine an Enhanced Sensory Day Care
Model for individuals with advanced dementia.
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•
•
Experienced-based understanding of model in practice.
Contribution to quality of life of individuals.
Contribution and influence on family caring and place of care.
Day Care staff and volunteer perspectives
Design
Mixed Method Case Study
Funded by Alzheimer Scotland 2014-2015
How can you get involved?
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•
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•
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Sharing your practice problems
Sharing research ideas and opportunities
Co-researcher
Project development or delivery advisor
Critical research companion
Research student
Volunteer researcher?
Research for Practice Collaborative
• Bring together people
with variety of skills and
experience
• Develop confidence and
competence in research
• Actively engage in
meaningful, real world
research
• Share, support and
develop informed
practice
Online and Social Media
• Alzheimer Scotland Centre for Policy and Practice
website
• Storify – creating stories and timelines using
social media
• Slideshare – making our presentations public
Coming soon:
• Research into Practice Collaborative webpage
• Twitter
Contact Us
Debbie.Tolson@uws.ac.uk
Tel 01698 283 100 Ext 8669
Graham.Jackson@uws.ac.uk
Tel 01698 283 100 Ext 8680
BSharp@Alzscot.org
Karen.Watchman@uws.ac.uk
Tel 01690 283 100 Ext 8690
Staff, Members & Volunteers’ Conference
&
Awards Ceremony
1 November 2013
Murrayfield Stadium
#ASAGM
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