Staff, Members & Volunteers’ Conference & Awards Ceremony 1 November 2013 Murrayfield Stadium #ASAGM Debbie Tolson PhD MSc BSc (Hons) RGN FRCN Professor of Dementia/Director Alzheimer Scotland Centre for Policy and Practice Alzheimer Scotland Centre for Policy and Practice Alzheimer Scotland Centre for Policy and Practice Vision To be a centre of excellence advancing dementia policy and practice through education, applied research and social enterprise. Mission To work collaboratively with people with dementia and carers, the scientific and practice communities to advance evidence informed dementia policy and practice. Centre Activities • Applied research for policy and practice • Dementia research capacity & capability development • Education & Knowledge Exchange to promote evidence informed practice & leadership • Policy influencing and implementation • Social enterprise designed to incubate dementia care solutions Centre Activities • Applied research for policy and practice • Dementia research capacity & capability development • Education & Knowledge Exchange to promote evidence informed practice & leadership • Policy influencing and implementation • Social enterprise designed to incubate dementia care solutions The Team Debbie Tolson Professor of Dementia/Director Graham Jackson Professor of Dementia Care Barbara Sharp Research Fellow Karen Watchman Lecturer Nicola Douglas-Smith Doctoral Student Paul Brown Associated Researcher-Trainee Consultant Affiliated Members Alz.Scot Nurse Consultants, AHP Consultants, Academics, Practitioners, Volunteers? you Debbie Tolson Professor of Dementia Research Interests • Dementia & Later Life Syndromes (Geriatric Giants) • Delirium • Psychosocial interventions (e.g reminiscence) • Long Term Care –Nursing Home Practice • Communities of practice Graham Jackson Professor of Dementia Care • Research interests Service delivery in NHS Early diagnosis of dementia Nursing Home Care Drug treatment and dementia • Current projects Do people with dementia need psychiatric wards? Use of PoA in Scotland Dr Karen Watchman Alzheimer Scotland Lecturer in Dementia Research Interests • Learning disability and dementia • Sensory Interventions • Reminiscence Projects • Enhanced sensory day care – pilot project Knowledge Exchange • Learning disability and dementia including development of ‘Train the Trainer course’ Barbara Sharp Alzheimer Scotland Research Fellow Research Interests • Living well with dementia • Stress and distress • Sensory changes in dementia Current Projects • An exploration of the subjective experiences of stress in people with dementia Knowledge Exchange • Enabling approaches to care at home Applied Research - Building the Evidence Base Research Excellence for Practice Literature Reviews Knowledge Exchange Commissioned Evaluations Main Research Studies Pilot Studies Doctoral Studies Examples of Centre Projects and Funding Applications in Submission Project Funding Applications Tolson D, Banks P, Nolan M. Advancing dementia–telephone-helpline practice: working with family caring. £79,000. Studentship Application submitted to Alzheimer Society May 2013. Decision Pending Orell M, Tolson et al GIRDER Reading Out loud NIHR PHR £1.1m Outline application-submitted July 2013. Decision Pending Watchman et al Pilot study of football reminiscence within care homes. £5.5k Small Grant application submitted August to Alzheimer Scotland Research. Decision Pending Brazil K, McLaughlin D, Watson M, Froggatt K, Nightingale P, Jackson G, Tolson D. Determining Goals of Care at the End of Life for Residents in Nursing Homes. Dunhill Medical Trust £234,153.00 Main Application Submitted October 2013 Decision Pending PhD studentships Design for Dementia in Care Home Environments: understanding the staff Started October 2013 Legitimising playfulness and meaningful improvisation with care home residents with dementia Have partial funding may have student Working with older people with dementia during episodes of hyperactive delirium in an acute hospital setting . Have funding need student Advancing dementia–telephone-helpline practice. Have Student waiting for funding decision. Examples of Current Projects Current Project 1 Spanish Pilot of Football Reminiscence. Coll Planas L, Donemeche S, Tolson D et al Aim To develop and evaluate a program of football based Reminiscence Design Longitudinal Multicentre Pre-Post Test Intervention Funded by Spanish Federation of Veteran Former Players. Current Project 2 Dementia In The Workplace The Potential For Continued Employment Post-diagnosis Professor Pauline Banks University of the West of Scotland Professor Mike Danson Heriot-Watt University Professor Debbie Tolson Alzheimer Scotland -University of the West of Scotland Dr Louise Ritchie Research Fellow Funded by the Alzheimer’s Society 2013 -2915 Research Study Funded by the Alzheimer’s Society 2013 -2915 Aim: To explore the employment related experiences of people with dementia or MCI, and attitudes of employers and/or co-workers towards supporting people with dementia, in order to identify the potential for continued employment post diagnosis Case Study participants – – – – People with dementia or MCI Family members Employers/work colleagues Human Resources/occupational health/unions #DStrat2 Outcomes Findings How people with dementia cope in the workplace, challenges faced by employers/co-workers, responses to these challenges. Adjustments that people with dementia/MCI would require to extend their working lives, and factors that would enable or hinder employers from providing such support. Outcomes Implications for policy within Scotland and wider UK Identification of future research direction within UK Address barrier to seeking diagnosis Current Project 3 Enhanced Sensory Day Care. Pilot Study Watchman K, Tolson D, Brown M, Jackson G et al Aim To collaboratively evaluate and refine an Enhanced Sensory Day Care Model for individuals with advanced dementia. • • • • Experienced-based understanding of model in practice. Contribution to quality of life of individuals. Contribution and influence on family caring and place of care. Day Care staff and volunteer perspectives Design Mixed Method Case Study Funded by Alzheimer Scotland 2014-2015 How can you get involved? • • • • • • • Sharing your practice problems Sharing research ideas and opportunities Co-researcher Project development or delivery advisor Critical research companion Research student Volunteer researcher? Research for Practice Collaborative • Bring together people with variety of skills and experience • Develop confidence and competence in research • Actively engage in meaningful, real world research • Share, support and develop informed practice Online and Social Media • Alzheimer Scotland Centre for Policy and Practice website • Storify – creating stories and timelines using social media • Slideshare – making our presentations public Coming soon: • Research into Practice Collaborative webpage • Twitter Contact Us Debbie.Tolson@uws.ac.uk Tel 01698 283 100 Ext 8669 Graham.Jackson@uws.ac.uk Tel 01698 283 100 Ext 8680 BSharp@Alzscot.org Karen.Watchman@uws.ac.uk Tel 01690 283 100 Ext 8690 Staff, Members & Volunteers’ Conference & Awards Ceremony 1 November 2013 Murrayfield Stadium #ASAGM