The Birmingham Bereavement Project Dr Dawn Chaplin Project Director Background to Project (What we aimed to do) • 2 year joint funded project UHB/ HEFT /SHA Aim: to develop and test a model of bereavement care across a range of services to provide an integrated and seamless service for bereaved people The end of life and Bereavement journey Baseline Activity – ‘Task’ Focussed why we aimed to do it Focus The living / ill patient Place of Death • Mixed quality of bereavement information available. • No standardised specific training on EOL / bereavement / individual requirements. • Little formal training on death certification. Focus Issuing documentation MCCD / Cremation paper return belongings HMC Death Certification • General Office / Medical Records Officer ‘add on’ to day job. • Little formal customer care. • No formal training / pick up on job. • Death seen as failure. •Bereavement care seen as someone else’s responsibility. Focus Ascertaining cause of death: natural, unnatural • Large responsibility: hospital funerals, patient finances, valuables, legal aspect. Focus Formal registration of death and issuing application documentation for disposal Focus Arrangement and disposal of deceased person by burial / cremation Focus Support for bereaved person Register Office Funeral Directors Bereavement Support • Seen as paternalistic. • Legal requirements. • Critical. • Document focussed. • Authoritarian. • ‘Something must have gone wrong’. • Drop in Service • Variation in service provided. • Disposal of deceased remains • Not easily accessible. • Not readily available. • Not known about. • Not always appropriate National Working Alliance for Bereavement Stakeholder Organisations Education & Training Co-ordination SHA / Cluster Representative Common Goal / Vision Jr Doctor Training with Medical Examiner Project Director With care and compassion delivering a high quality service to bereaved people Bereaved Relative (Lay Representative) Pilots and work streams – Outcomes • Bereavement care and support (carers and staff) Follow up service Fast track support Community support involvement Military project (Teresa Griffiths) MEO service • Training and Education Multi disciplinary/ Multi professional/ Medical Examiner role/ Pilots and work streams – Outcomes • New technologies Website and help line Digital Birmingham ‘app’ and QR code virtual training (Maggie and Soulla) • Working in Partnership Faith Advocacy Group Local hospice (Nikki and Jo) Cruse and other support agencies Early Adopter working group Child Sudden Death Conference Pilots and work streams – Outcomes • Research and Development Effects of bereavement on immunity; Early Adopter; Development of acute bereavement services in the UK; Research into funeral payment ….and many more opportunities • Check list for all service providers • Exec summary of the project will be available Benefits For Bereaved people • Better care for dying deceased person and the carers • Improved communication with, and feedback from, bereaved carers. People feel ‘listened’ to and their comments acted upon • Integrated systems providing the right support at the right time by the right people Benefits For Service providers • Access to appropriate training and education • Closer working relationships and two way channels of communication • Understanding the significance of each role and associated responsibility along the journey • A multi professional forum for bereavement service representatives to inform, support and share good practice Benefits For organisations • Appropriately trained and supported staff • Key performance indicators demonstrating that high quality care is being delivered • Streamlining existing resources to provide high quality, cost effective, person focussed bereavement care services • A model that demonstrates how a seamless system can be implemented and sustained Next steps • • • • Advisory group – with exec level leadership Key is sustainability - Early Adopter Close working relationships will continue National Working Alliance for Bereavement Coming together is a beginning, keeping together is progress, working together is success Henry Ford Improving the Process of Death Certification Ruth O’Leary Lead Nurse Bereavement Services Background • Process unchanged since 1935 • Shipman Enquiry (2003) • Existing arrangements were confusing • Inadequate safeguards • Government Response – ‘Learning from tragedy, keeping patients safe’ (2007) • Consultation on Improving the Process of Death Certification • Coroners and Justice Act 2009 Current System • Different processes for cremation and burial • Coroners Officers / Bereavement Officers provide advice to doctors re cause of death • Patients examined for cremation • No medical examination for burials • Medical Certificates – variable quality of completion • Causes of death sometimes imprecise • Coroners may not be notified about the right deaths Reasons For Change • Create single unified system • To strengthen current arrangements • Improve Quality & Accuracy of Causes of Death • Provide equity of service – Cremation / Burial • Increase communication with bereaved • National implementation 2014 Process • As part of the Birmingham Bereavement Project • Commenced April 2012 • UHBFT/HEFT both have centralised Bereavement Service • Pilot - ALL deaths • Cremation forms still required, legal requirement • Introduction of Medical Examiner role – senior doctors • Introduction of Medical Examiner’s Officer – Bereavement Officers • Training and Education Medical Examiners (ME) • Scrutinises the notes to find Cause of Death • Speaks to referring team and check consistency with notes • Agrees Cause of Death – referring team completes Medical Certificate (inc Cremation Forms) • ME completes forms for Register Office and medical notes • Views the patient • Ensures Cause of Death is sufficiently precise • Authority to challenge doctors / refer to Coroner if appropriate • Straight forward Coroners referrals are outside of this process Medical Examiner’s Officers (MEO) • Bereavement Care Officers at UHBFT / HEFT • Speak to relatives and co-ordinate process of Death Certification • Once determined, will provide relative with Cause of Death • Arrange collection of Medical Certificate by appointment Benefits For Relatives • Simpler process • Open and honest conversation regarding Cause of Death • Easier to Raise Concerns • Confirmed Cause of Death • Transparency and Understanding of Cause of Death • More Engagement with the Family by Medical Examiners Officers • Improved Quality of Certification Findings To Date • Beginning of the journey • Need to have robust rota of Medical Examiners • Cremation Form payments are now used within the new process • Relatives value knowing and being able to discuss the Cause of Death • No delays in families receiving Medical Certificates • Out of hours