A brief introduction to EuroQol
Group Foundation
Prof. Dr. Jan J.V. Busschbach
• Erasmus MC
• Psychiatry;
– Section Medical Psychology and
Psychotherapy
– J.vanbusschbach@erasmusmc.nl
– www.busschbach.nl
• Chair of the EuroQol Foundation
2
2
The EQ-5D-3L questionnaire
‘Simplified’ Chinese version for China
The EQ-5D-3L questionnaire
T o h elp p eo p le sa y h o w go o d o r b ad a h ealth state is,
w e h ave d raw n a scale (rath er lik e a th erm o m eter) o n
w h ich th e b est state yo u can im agin e is m ark ed 1 0 0
an d th e w o rst state yo u ca n im agin e is m ark ed 0 .
W e w o u ld lik e yo u to in d icate o n th is scale h o w g o o d
o r b ad yo u r o w n h ealth is to d a y, in yo u r o p in io n .
P lease d o th is b y d raw in g a lin e fro m th e b o x b elo w to
w h ich ever p o in t o n th e sc ale in d icates h o w go o d o r b ad
yo u r h ealth state is to d a y.
Y ou r ow n
h ealth state
tod ay
B est
im agin ab le
h ealth state
100
9
0
8
0
7
0
6
0
5
0
4
0
3
0
2 0
0
1
0
W orst
im agin ab le
h ealth state
EuroQol jargon: state 11232
Moving from 3 levels to 5…
The EuroQol Group
• Founded 25 years ago
• A network of about 100…
– International,
– multi-disciplinary,
– researchers
• Devoted to…
– measurement of health status,
– health related Quality of Life
International members
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Australia
Canada
Denmark
Finland
France
Germany
Greece
Italy
Netherlands
New Zealand
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Norway
Poland
Singapore
Slovenia
South Africa
Spain
Sweden
Trinidad & Tobago
United Kingdom
United States
Non commercial
• An non profit organization
– A foundation
– No stock holders
– Members votes for a Executive Board
• The EuroQol Office
– Executive Director: Dr. Bernhard Slaap
– www.euroqol.org
• All money goes into research
Income
• Pharmaceutical industry
– Subscriptions for 3 years
• Large non commercial users
– Delectated research allocations
• Small non commercial user
– Sometimes fees
• Might change
• Research
– Free
EuroQol Membership
• Reserved for those who actively support the
work of the EuroQol Group and make a
positive and sustained commitment to it
• Attend and scientifically contribute to the
EuroQol Plenary Meetings and participate in
Working Groups
• Access to research grants and annual
meeting
EuroQol Annual Plenary Meeting
EuroQol Annual Meeting
• Present papers and posters on:
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Methodological / valuation aspects of EQ-5D
Development of new EQ-5D versions
Alternative modes of administration
Use of EQ-5D in health population surveys
• Papers are discussed
– Authors do not present
– Authors get often much critique,…
• but quality and quantity of output is high
EuroQol Executive Office
EuroQol Office
• Handles EQ-5D license requests
• Scientific support clients
• Scientific and operational support EQ sponsored
studies
• EQ members support
• Based in Rotterdam
– The Netherlands
• 5.0 FTE + contractors
Translation Protocol
1) Two versions in target language
1. Forward Translation
Translators should be native in target
language and fluent in English
2) First consensus version
3) Report to EuroQol Group
1) Two versions in English
Translators should be native in English
2. Backward Translation
and fluent in target language
2) Comparison to the original English version
3) Second consensus version
4) Report to EuroQol Group
1) Test second consensus by 8 lay respondents
3. Respondent Testing
- Native to the target language
- Patients and healthy persons
- Range of socio-demographic characteristics
2) Third consensus version
3) Report to EuroQol Group
Final translation of EQ-5D
Other language versions
• All produced following recommended guidelines for cultural
adaptation + rating scale exercise
• Translation certificates provided for all versions
EQ-5D User Guides
EuroQol Paper version
EQ-5D-3L descriptive system
EQ-5D-3L VAS
T o h elp p eo p le sa y h o w go o d o r b ad a h ealth state is,
w e h ave d raw n a scale (rath er lik e a th erm o m eter) o n
w h ich th e b est state yo u can im agin e is m ark ed 1 0 0
an d th e w o rst state yo u ca n im agin e is m ark ed 0 .
W e w o u ld lik e yo u to in d icate o n th is scale h o w g o o d
o r b ad yo u r o w n h ealth is to d a y, in yo u r o p in io n .
P lease d o th is b y d raw in g a lin e fro m th e b o x b elo w to
w h ich ever p o in t o n th e sc ale in d icates h o w go o d o r b ad
yo u r h ealth state is to d a y.
Y ou r ow n
h ealth state
tod ay
B est
im agin ab le
h ealth state
100
9
0
8
0
7
0
6
0
5
0
4
0
3
0
2 0
0
1
0
W orst
im agin ab le
h ealth state
Other formats
Tablet, PDA, Web
Other formats
Tablet, PDA, Web
EQ-5D Web
EQ-5D Products
• EQ-5D-3L Translations
– More than 160 languages in Self-complete paper format
– Also available in; Telephone, Face-to-face, Proxy, IVR, Web
and Tablet format
• EQ-5D-5L Translations
– More than 90+ languages in self-complete paper format
– Also available in Web and Tablet format
• EQ-5D-Y Translations
– Available in more than 20 languages
– Youth between 7-12 years