Measuring progress towards
delivery of the target
Ken Nicholson, ISD
Approach
Scottish
Government
Quest &
ISD worked
with 2 PDS
test sites
Develop
local and
national
datasets
Wider
feedback
from
you
Useful
feedback
from
test sites
To inform
measures +
definitions
Facilitate
information
flow
mapping
The Population
All those newly
Diagnosed with
Dementia from
1st April 2013
All Ages
1st Year focus
on those in
the community
So….
The data
we need to
support
the target
What we
can do to help
you collect
that data
To support the target
Local IT System
(National and Local Data)
Local Patient Tracking
Patient Based Monthly
Board Submissions
(Cumulative)
ISD Excel
Spreadsheet
(National and Local Data)
To help you
Submission
File
Secure
Transfer
Data
Local
Excel
Spreadsheet
Data
Quality
Reports
Definitions
Code
Lists
National
Usage
Data
Manual
Local
Usage
Now
For The
Details
The Target
The Target
To deliver
a minimum of a year’s
expected rates of
worth of Post-Diagnostic
Dementia diagnosis
Support coordinated by
And by 2015/16, all
a Link Worker including
people newly diagnosed
the building of a Person
with Dementia will have
Centred Support Plan
The Measures
The ongoing
Confirm 12
HEAT standard
months of PDS
Ensure that PDS
Overview PDS using
has started
5 Pillars model
The Data
(Informed by Test Sites)
The ongoing
HEAT standard
Min
Nat
Rec
Nat
Rec
Local
Current
QOF
Methodology
To Inform the
HEAT standard & PDS
Min
Nat
Rec
Nat
Rec
Local
Age
Band at
Diagnosis
Legal
Status at
Diagnosis
Stage of
Illness at
Diagnosis
Identifier
(CHI)
Gender
Dementia
Sub-Type
Care Home
Residence
Ensure that PDS
has started
Min
Nat
Rec
Nat
Rec
Local
Date Referral
Received For
Diagnosis
Date PDS
Offered
Date
Diagnosis
Confirmed
Referral
Source
Outcome of
PDS Offer
Date
Allocated
Link
Worker
Confirm 12
months of PDS
Min
Nat
Rec
Nat
Rec
Local
PDS
in Place at
12 Months
Status of
PDS at 1
Month
Date of
1st Contact
With Link
Worker
Date of End
of PDS
Status of
PDS at 6
Months
End of
PDS
Reason
Overview PDS using
5 Pillars model
Min
Nat
Rec
Nat
Rec
Local
Planning
for future care
status
Plan for
future decision
making
UnderStanding the
illness
Peer support
status
Support
Community
connections
ISD Spreadsheet
The Submission
Link Worker Collects Data
Referral
(GP/Other)
Meetings
with
person with
dementia
Recording
data
(IT/Excel)
Ensure you
record all
national
data Items
HB/CHP Collates Data
Receive
data from
Link
Workers
Check all
data is
received
Sense
check data
for quality
Combine
data in
NHS board
level file
ISD Receives Data
Submission
file
uploaded
Board files
collated
Data
quality
Analysis
and reports
Data Quality Reporting
Rough
Aggregate Figures
Differences
Between
Submissions
Potential
Missing
Data
Reporting
Management
Reports To
Scottish Government
(In Confidence)
NHS Board Reports
(In Confidence)
HEAT Reporting
Questions