Stroke
Stroke helpline
helpline
0845
0845 3033
3033 100
100
Website
Website
www.stroke.org.uk
www.stroke.org.uk
Stroke Support, the
European perspective
Jon Barrick WSO Board member,
SAFE secretary
Stroke helpline
0845 3033 100
Website
www.stroke.org.uk
Stroke Alliance for Europe
Stroke
Stroke helpline
helpline
0845
0845 3033
3033 100
100
Website
Website
www.stroke.org.uk
www.stroke.org.uk
SAFE Membership 2010
Austria
Hungary
Slovenia
Belgium
Iceland
Spain
Catalonia
Israel
Sweden
Czech Republic
Italy
The Stroke Association
Finland
Netherlands
Different Strokes
UK Connect
France
Norway
Croatia
Germany
Stroke
Stroke helpline
helpline
0845
0845 3033
3033 100
100
Poland
Website
Website
www.stroke.org.uk
www.stroke.org.uk
Ukraine
What is the Stroke Alliance for
Europe trying to achieve?
Our objectives/aims are outlined in our
constitution.
1. To promote awareness and
understanding of stroke;
• to promote prevention;
Stroke
Stroke helpline
helpline
0845
0845 3033
3033 100
100
Website
Website
www.stroke.org.uk
www.stroke.org.uk
Objectives
• to identify those at risk;
• to improve access to appropriate
•
•
treatment and care for persons affected by
stroke;
to improve the quality of life of people
affected by stroke and their families and
carers;
Stroke
Stroke helpline
helpline
0845
0845 3033
3033 100
100
Website
Website
www.stroke.org.uk
www.stroke.org.uk
Objectives
• to promote better access to accurate
and understandable information
about stroke;
• to increase the priority given to
stroke by policy and decision-makers
and by health care providers;
Stroke
Stroke helpline
helpline
0845
0845 3033
3033 100
100
Website
Website
www.stroke.org.uk
www.stroke.org.uk
Objectives
• to promote research on stroke and related
•
•
areas;
to co-ordinate the efforts of national
stroke patient groups in Europe.
to encourage the growth of stroke
organisations reflecting the views of
stroke survivors and their supporters.
Stroke
Stroke helpline
helpline
0845
0845 3033
3033 100
100
Website
Website
www.stroke.org.uk
www.stroke.org.uk
Stroke
Stroke helpline
helpline
0845
0845 3033
3033 100
100
Website
Website
www.stroke.org.uk
www.stroke.org.uk
SAFE
• European Stroke Awareness
day second Tuesday in May
each year
• Further details on the SAFE
website:
http://www.safestroke.org/
Stroke
Stroke helpline
helpline
0845
0845 3033
3033 100
100
Website
Website
www.stroke.org.uk
www.stroke.org.uk
European level
• Demand equality of action against strokes
•
•
•
and their effects
To get stroke disease a decent share of the
research budget
To lobby for prevention action
Ensure medical and social care programmes
are run to the standards expected
Stroke
Stroke helpline
helpline
0845
0845 3033
3033 100
100
Website
Website
www.stroke.org.uk
www.stroke.org.uk
World Stroke Organisation
• Affiliated to World Health Organisation
• SAFE are members of the WSO
• Run World Stroke Day, October 30
each year
• Run World Stroke Congress every 2
years, now incorporating sections on
growing stroke support organisations
• www.world-stroke.org
Stroke
Stroke helpline
helpline
0845
0845 3033
3033 100
100
Website
Website
www.stroke.org.uk
www.stroke.org.uk
Stroke
Stroke helpline
helpline
0845
0845 3033
3033 100
100
Website
Website
www.stroke.org.uk
www.stroke.org.uk
SAFE Membership 2010
Austria
Hungary
Slovenia
Belgium
Iceland
Spain
Catalonia
Israel
Sweden
Czech Republic
Italy
The Stroke Association
Finland
Netherlands
Different Strokes
UK Connect
France
Norway
Croatia
Germany
Stroke
Stroke helpline
helpline
0845
0845 3033
3033 100
100
Poland
Website
Website
www.stroke.org.uk
www.stroke.org.uk
Ukraine
Most important thing is to have
strong stroke patient
organisations at local and
National level
• Local
• Can provide support to stroke survivors
•
•
and families
Can provide people to do things
Provide base for contact
Stroke
Stroke helpline
helpline
0845
0845 3033
3033 100
100
Website
Website
www.stroke.org.uk
www.stroke.org.uk
Most important thing is to have
strong stroke patient
organisations at local and
National level
• National
• May be local/regional groups organised to do
•
•
things at National level
Enable organised activity to change national laws
and decisions
Provide base for contact
Stroke
Stroke helpline
helpline
0845
0845 3033
3033 100
100
Website
Website
www.stroke.org.uk
www.stroke.org.uk
Different Cultures in each
country lead to different issues
• Northern Scandinavian, State or
•
•
•
•
National lottery funded
France, Balkans,Southern Europe ,
more regionally based self supported
Eastern Europe , no NGO tradition
Netherlands more similar to UK
Germany, company foundation
Stroke
Stroke helpline
helpline
0845
0845 3033
3033 100
100
Website
Website
www.stroke.org.uk
www.stroke.org.uk
More people involved, leads to
more possibilities
• Very important that
we grow stroke
survivor support
organisations in
Eastern Europe
• But also important
to continue
growing stroke
organisations in
the rest of Europe.
Stroke
Stroke helpline
helpline
0845
0845 3033
3033 100
100
Website
Website
www.stroke.org.uk
www.stroke.org.uk
Now is the time
• Patient organisations are required to be
part of research
• Patient organisations are increasingly
seen as important to policy formulation
• Patient organisations are seen as
important source of ideas
• Patient organisations are the conduit to
“hard to reach” patients
Stroke
Stroke helpline
helpline
0845
0845 3033
3033 100
100
Website
Website
www.stroke.org.uk
www.stroke.org.uk
European Community funded
Stroke research
• EIS,
• European Stroke
Network,
• EuroHYP
• Wake Up
Stroke
Stroke helpline
helpline
0845
0845 3033
3033 100
100
Website
Website
www.stroke.org.uk
www.stroke.org.uk
We’ll support all stroke patient
organisations
• Whether in Beveridge health systems
where health care is paid for from public
taxation
• Or in Bismarck systems where citizens
have to buy their own insurance
• Or in hybrids of the two
Stroke
Stroke helpline
helpline
0845
0845 3033
3033 100
100
Website
Website
www.stroke.org.uk
www.stroke.org.uk
Campaign activity
• Campaign across Europe
on an issue
• Specifically ask for others
who
care, to join in supporting
the
campaign
• Must have means to
engage them
Stroke
Stroke helpline
helpline
0845
0845 3033
3033 100
100
Website
Website
www.stroke.org.uk
www.stroke.org.uk
Public relations work
• Getting stories with a request for people to be
•
•
supporters in local newspapers, national
papers and magazines, TV and Radio.
Maintaining a website
Providing information to places where stroke
surviors and their families read things with
request for readers to be supporters.
Stroke
Stroke helpline
helpline
0845
0845 3033
3033 100
100
Website
Website
www.stroke.org.uk
www.stroke.org.uk
Stroke
Stroke helpline
helpline
0845
0845 3033
3033 100
100
Website
Website
www.stroke.org.uk
www.stroke.org.uk
So over next 5 years..
• Want to see lobbying progressing at
•
•
•
•
European level
Majority of European Countries with stroke
survivor support organisations in place
Campaigning and awareness work at higher
level in each country than it is now
Improvement in stroke care provision and
standards
More support to help newly established
organisations
Stroke
Stroke helpline
helpline
0845
0845 3033
3033 100
100
Website
Website
www.stroke.org.uk
www.stroke.org.uk
Together we are stronger
Stroke Alliance for Europe
Stroke
Stroke helpline
helpline
0845
0845 3033
3033 100
100
Website
Website
Together
we can improve things faster
www.stroke.org.uk
www.stroke.org.uk
Questions
• What can we do to strengthen stroke
support organisations here in the UK?
• And in Europe?
• Should we have speaker from a sister
European organisation here next year?
Stroke
Stroke helpline
helpline
0845
0845 3033
3033 100
100
Website
Website
www.stroke.org.uk
www.stroke.org.uk
The Stroke Association
and Life After Stroke
Stroke helpline
0845 3033 100
Website
www.stroke.org.uk