ETHICS: USING MOTIVATIONAL INTERVIEWING WITH OLDER AND VULNERABLE ADULTS Instructor Mary Minten, PhD, MFT, LCADC, CST • MINT Trainer, Training of Trainers in 2008 with Bill Miller • MIA STEP (Motivational Interviewing Assessment: Supervisory Tools for Enhancing Proficiency) Training of Trainers, 2009 • Supervising and training MI since 2006 • Original research with an MI intervention for couples wellness 2017 Ethical Principles Often Include: Non-malfeasance Beneficence Autonomy Justice Veracity Fidelity Ethical Dilemmas Conflict within these ethical principles. For example: Perhaps any decision we make will cause some harm to some degree to the client. With vulnerable populations, we often weigh Risk Preferences Quality of Life (autonomy, independence, meaning) Contextual Factors Factors to include for vulnerable populations Risk: What is causing the risk? How soon and how long there will be risk? How will the decision mitigate risk? How will the decision cause greater risk? Who else is at risk? Preference: Does the adult have decision making capacity? If not, is the surrogate being utilized and acting appropriately? What does the adult want? Do they have the information they need to make the decision? What is the history of their decisions? Quality of Life: How does the adult define quality of life? How does the decision help them meet their definition quality of life? What are the chances they meet that quality of life without the decision? What negative effects will the person experience from the decision? What bias do the professionals have about quality of life? Contextual: What are the family (including chosen family) and social factors? What are the financial factors? Are there religious and cultural factors? What are the justice factors? Are there available resources? What do the laws and regulations state? Are there conflicts of interest for the professionals involved? Motivational Interviewing Based on humanistic principles Person Centered Care: In MI the personal relationship between client and provider comes first. MI builds every other intervention on the therapeutic relationship. Nothing else can happen without it. Provider skills include: Accurate empathy Genuineness Unconditional Positive Regard Motivational Interviewing These three principles are most certainly requirements for effective MI practice. They are also critical for ethical practice… How can we do no harm, do some good, support autonomy, discuss justice concerns, hold truthful (and sometimes painful) realities, and truly be of service to the person without connection, a real relationship? MI suggests it is impossible. MI spirit with older and vulnerable adults In a study using MI in working with cases of Elder Abuse and Self Neglect (EASN) Prizing the therapeutic relationship and being “person-centered” Therapeutic relationship came first Clinician found it beneficial to understand the client holistically (think risk, preferences, QoL, and context) Using MI skills and spirit helped deepen the therapeutic relationship (MacNeil et al, 2023) MI: Unhurried Mind Dr. William Miller is known for saying if we act like we have five minutes, the process will likely take hours. If we act like we have all day, we are likely to only need a few minutes. Especially with vulnerable populations (lower IQ, dementia, delusions, schizophrenia, etc), we take the extra time to understand them and show that we have the time. This step is essential to the do no harm for vulnerable adults and older adults. If individuals are thinking or processing more slowly, our relaxed stance will help them communicate with us. Ethical dilemmas require slower thinking as they are more complex Yes: Older adults (and some vulnerable adults) MAY experience changes in processing speed: Longitudinal Studies on cognitive changes with aging – two categories relevant Fluid intelligence – patterns and relationship, working memory, information processing speed – tends to decline slightly Crystallized intelligence – knowledge acquired over time, vocabulary, experience, remains stable & may increase over time Overall: “As the field of cognitive aging agrees, declines in healthy aging are exaggerated; rather, variability is the rule” Conclusion: “elder stereotypes seem mostly inaccurate and certainly lack nuance. Nevertheless, they likely trigger prejudices and discrimination” (NCBI Bookshelf, p. 8) Empathy plus unhurried mind If we take the time to listen and understand accurately, we can develop an understanding of client and their risks, their preferences, what is important to them in terms of quality of life and their experience of contextual factors. Thus improving our ability to do no harm and to aim to do some good while supporting autonomy. Understanding well takes time – and it is time well invested! Empathy practice: Emotion words handout: Listen for emotion + content. Turn it into a reflection of emotion. Evaluate. Then post in chat if you want! Allow and encourage clarification (recognize even subtle markers of being off in our effort to understand: withdraw, confrontation). Non-defensively correct errors to get close to client’s meaning (let’s practice – put a new reflection of emotion in the chat). Reflections of feeling and meaning Do no harm: Empathy across differences (age, race, ethnicity, nationality, ability/disability, gender, sexual orientation, etc) goes down. This phenomenon is possibly an effect of implicit bias. MI puts our attention on maintaining empathy even when it is imperceptibly more difficult. Beneficence/Doing good: Frequent reflections (MI research suggests a minimum of three reflections of feeling and/or meaning to any other response (3:1)) improve client outcomes considerably. Improvements happen across a range of change goals (medication adherence, dental hygiene, eating better, stopping drinking, and more). The best outcomes are seen with ratios of 10:1 or 20:1. More beneficence: When we help clients identify emotions and content with accuracy and granularity, we help clients cope with their struggles (Barrett’s research). Challenging “sustain talk” Study with clinicians using MI in adult protective services, challenging sustain talk and resolving ambivalence were key MI skill providers noted (MacNeil et al, 2023) Allows them to explore what was important to client even if it what was important inhibited protection efforts Define sustain talk and change talk Practice identifying them in chat yes/no jaws of ambivalence Interventions when clients are ambivalent Ambivalence is not uncommon in the face of change. In fact, it typically accompanies change. Thus when clients have more sustain talk, little or no change talk, we want to see this phenomenon as SOMETHING WE EXPECTED. MI offers ways to help our clients as they work through their ambivalence. We’ll cover supporting autonomy first. MI: Supporting autonomy is critical to person-centered care None of us have complete autonomy all the time – that’s not autonomy! In MI, when we cannot provide one aspect of choice for a client, we aim to include some other aspects of a client’s desires and preferences and quality of life. We support choice in any area possible. We aim for harm reduction options when possible. We are direct and authentic when a choice is not on the table. We don’t coerce agreement. We tend to grief and loss. We offer empathy, dignity, connection, and affirmation even when we cannot change the decision or situation they are in. Reflections that support autonomy You are worried if you come with me you won’t get to see your grandson. You want to me keep looking for ways to help with pain. I can do that. (Only say the last part if you can.) Even though you don’t like it, you are agreeing to come with me. I appreciate your willingness. You are scared if you come with me you won’t get your medications. Trusting my word on that isn’t easy. You don’t agree that this new living situation is better than the last one. You are heartbroken you cannot see your friends. You are attending reluctantly. You don’t like it and you don’t want to be here. Supporting Autonomy Clinical note: When you use these reflections on previous slide, DO expect to hear more of the complaints/problems and the feelings that accompany them. You are not attempting to avoid hearing the problems and emotions. Listening to the client often helps them come to terms with things out of their control and subsequent losses. If we reflect emotions and meaning in this part of the process, we are doing no harm and doing good while supporting autonomy. Other examples of responses to sustain talk Double sided reflection: On one hand Jim is kind to you on visits on the other hand he has been taking advantage financially. Align with sustain talk: You want Jim’s support and sometimes he is supportive. Reframe: You wanted Jim to be an ally and support person. As we have been considering what he has done, your views are changing. Affirmation: You put your trust in someone – that always takes courage in my book. And now you are grappling with what to do next. Even considering other options can be scary (sad, irritating…). Engaging client imagination Another challenge clinicians reported in the study with adults in protective services: some adults had trouble imaging anything differently MI interventions that were particularly useful was engaging client imagination in this study. Looking forward: what alternatives might be, what they might want Imaging the situation from a loved ones perspective “What might your daughter [or other loved one inserted here] want for you?” Consider their ideal outcome Then consider a plan b – if the ideal can’t work, what is the next option? (MacNeil et al, 2023). In chat – please put your thoughts on these interventions, and if you used them or a version of them yourself in the past, what was helpful and not helpful? Cognitive challenges and supporting autonomy Ethical concerns In study on clinicians using MI in cases of Elder Abuse and Self Neglect (EASN) one of their challenges was the concept of autonomy and how to support autonomy when clients cognitive process are severely challenges (dementia and other forms of diminished capacity) (MacNeil et al, 2023) Discuss this concern – examples in chat please! Additional information and research Next up: Research on older adults that might be helpful in using motivational interviewing to support ethical practice with older and vulnerable adults. This particular set of studies focused on older adults: please use your experiences to see what overlap might exist with vulnerable adults of all ages and share in the chat as we go any connections (similarities or differences) in the chat. QoL, Autonomy, Preferences In a longitudinal study of 12 older adults (7685) in England in the years 2020-2021 the research team used sophisticated qualitative methodology to go beyond the “snapshot” quantitative approach of values/preferences, quality of life, and autonomy for older adults. QoL, Autonomy, Preferences Early findings showed the necessity of viewing these factors as complex and multifaceted constructs. The findings challenge the congruence of common interpretations of a concept such as “independence” with older people’s views, showing areas of commonality and discrepancy” (Gilmore-Bykovskyi, February 2024, pp. 1-4) QoL, Autonomy, Preferences All of the participants, 7 women and 5 men, lived in the community and lived with either a spouse (5) or alone (7), and all were white. The researchers used 16 openended questions posed 12 months apart to gather information that addressed the following concepts: 1) “participation (engaging in meaningful life activities), 2) autonomy (being able to make and act upon your own decisions), and 3) control (having control over whether and how help is received” (Ibid, p. QoL, Autonomy, Preferences Theme 1 - In most other research “activities of daily living” (ADLs)* are typically used as measures to discern the independence level of older adults and vulnerable adults. In this study, though, the participants viewed ADLs as a “pretty low bar” and realistically did not represent participant descriptions of independence. These folks uniformly acknowledged that ADLs Were important but that independence “was not just about the ability to complete an activity but about the ability to complete activities that were of value to, or on the ‘wish list’ of the individual” (Ibid, p. 12). In brief, these folks wanted to engage in meaningful activities. QoL, Autonomy, Preferences Theme 2 - Another part of this study offered participants the opportunity to review their scores on the measures of another study, a quantitative one. In doing so, participant responses indicated the “chasm that can exist between what is measured and the lived situation” (Ibid, pp. 13-14). For the participants, the “context” of the activity was critical in order to understand or appreciate the nuances of how these folks lived their lives, their lived situations.” Checking a box on a scale, a measure did not seem to account for those nuances. QoL, Autonomy, Preferences We can surmise that the stereotyped older or vulnerable adult does not exist, that older and vulnerable adults have many differences from each other in their lived lives, in how they respond to disabilities and aging. Older Adults and Health Care Professionals We are encouraged to work with an older and vulnerable adults toward a shared vision rather than striving toward an assumptions of quality of life, autonomy, meaning that hold little meaning for the individual.” Final interventions if time Value card sort Providing information and advice: Therapeutic relationship More rupture markers and options to resolve them SET: Support, Empathy, Truth Ask, exchange, ask In MI, we give the information/advice in ways that reduce harm and improve our changes of doing some good and support client autonomy Ask: Ask permission. (“Can I give you some information about that medication?”) If the person says no, allows us to give information or advice when it is more likely to be received. If the person says yes, the question reduces defensiveness significantly Exchange information: (IF the person gives permission) share what you know and listen to what they know. Often shorter pieces of information from us are more helpful. Ask: what they think about the information (and listen/reflect) Last bits Questions Thank you and have a good end of week and weekend!
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