Page | 1 KASHVI SHIRUDKAR GRADE 10 0610 THE AUTISM SPECTRUM DISORDER -Kashvi. Shirudkar Page | 2 KASHVI SHIRUDKAR Contents: The Autism Spectrum Disorder Acknowledgements Purpose of Research Introduction Properties Signs and Symptoms Diagnosis 1.2a Diagnosis in young children 1.2b Diagnosis in older children 1.2c Diagnosis in adults 2. Treatments 2.1 What really works? GRADE 10 Page | 3 KASHVI SHIRUDKAR GRADE 10 INTRODUCTION Autism or the correct diagnostical term – autism spectrum disorder, can be defined as a developmental disorder in social communication skills appearing at an early age (usually in the first 2 years of life). The ‘spectrum’ refers to the different and varying levels of severity with which it can affect someone. In layman’s terms, every patient with autism will have different symptoms and challenges. Between 1995 to 2011, autism was grouped with Asperger’s syndrome and Pervasive developmental disorder in the DSM-4; Asperger’s syndrome was said to be on the low severity scale of the ‘spectrum’ of autism. However, DSM-5 no longer follows this. The definition of the autism spectrum disorder in the DSM-5 states that an autism diagnosis requires persistent deficits in social communication and social interaction across multiple contexts. In this report we will explore the various causes, effects and properties of autism. We will also study the reason behind why the autism spectrum disorder confounds doctors to this day and remains one of medicine’s greatest mysteries. DSM: DIAGNOSTIC AND STATISTICAL MANUAL OF MENTAL DISORDERS Page | 4 KASHVI SHIRUDKAR GRADE 10 Signs and Symptoms There are a range of possible symptoms in autism which appear differently in every patient. Communication: Does not respond to his/her name by 12 months of age. Cannot explain what he/she wants. Doesn’t follow directions. Doesn't follow directions Seems to hear sometimes, but not other times Seems to prefer to play alone Gets things for him/herself only Is very independent for his/her age Seems to be in his/her "own world" Seems to tune people out Doesn't point or wave "byebye" Is not interested in other children Used to say a few words or babble, but now does not Doesn't point out interesting objects by 14 months of age Social behavior: Doesn't smile when smiled at Has poor eye contact Doesn't like to play "peek-aboo" Doesn't try to attract his/her parent's attention Page | 5 KASHVI SHIRUDKAR Stereotyped Behavior: Gets "stuck" doing the same things over and over and can't move on to other things GRADE 10 Doesn't know how to play with toys Does things "early" compared to other children Walks on his/her toes Shows unusual attachments to toys, objects, or routines (for example, always holding a string or Doesn't like to climb on things such as stairs having to put on socks before pants) Seems to stare at nothing or wander around with no purpose Spends a lot of time lining things up or putting things in a certain order Doesn't imitate silly faces Throws intense or violent tantrums Repeats words or phrases (sometimes called echolalia Is overly active, uncooperative, or resistant Other behavior: Seems overly sensitive to noise Doesn't play "make believe" or pretend by 18 months of age Has odd movement patterns Doesn't like to be swung or bounced on his/her parent's knee, etc. Page | 6 KASHVI SHIRUDKAR GRADE 10 Diagnosis 1.2.a Diagnosis In Young Children STAGE 1: GENERAL DEVELOPMENTAL SCREENINGS During regular check-ups with a child’s pediatrician, they should have autism – specific screenings which evaluate the child’s development and assess his/her behavior for any irregularities or developmental disorders. If the child shows any symptoms of developmental differences, they are referred to a specialist in child development. STAGE 2: ADDITIONAL DIAGNOSTIC EVALUATION Ideally a team including child neurologists, developmental pediatricians, speech-language pathologists, child psychologists and psychiatrists, educational specialists, and occupational therapists should conduct the additional diagnostic evaluation. They will assess the child’s behavior, development, performance in age-appropriate abilities, cognitive and language abilities (recognition-comprehension). Page | 7 KASHVI SHIRUDKAR GRADE 10 1.2.b Diagnosis In Older Children Caregivers and teachers often identify signs of Autism Spectrum Disorder (ASD) in older children and adolescents at school. The school’s special education team may conduct an initial assessment and then suggest further evaluation by the child’s primary health care provider or a specialist in ASD. Caregivers may discuss their child’s social challenges with these health care providers, such as difficulties in understanding subtle forms of communication. For instance, some children struggle with interpreting tone of voice, facial expressions, and body language. Older children and teens might find it hard to grasp figures of speech, humor, or sarcasm, and they may struggle to form friendships with peers. In essence, caregivers and educators play a crucial role in identifying ASD symptoms, leading to comprehensive evaluations and support strategies. Page | 8 KASHVI SHIRUDKAR GRADE 10 1.2.c Diagnosis In Adults Diagnosing Autism Spectrum Disorder (ASD) in adults poses greater challenges compared to diagnosing children. Symptoms of ASD in adults can overlap with those of other mental health conditions like anxiety or ADHD. Adults who recognize potential signs of ASD should consult a healthcare provider and seek a referral for a thorough evaluation. This process typically involves specialists such as neuropsychologists, psychologists, or psychiatrists who are experienced in ASD. They assess various aspects including difficulties in social interaction, communication, sensory sensitivities, repetitive behaviors, and specific interests. Additionally, the evaluation may incorporate insights from caregivers or family members about the individual's early developmental history, crucial for achieving an accurate diagnosis. Despite ongoing refinements in diagnostic methods for adults, obtaining a comprehensive assessment from qualified professionals remains essential to understanding and addressing potential ASD concerns effectively. Page | 9 KASHVI SHIRUDKAR GRADE 10 What really works? Applied Behaviour Anaylisis – Applied behaviour anaylisis(ABA) is based on the simple reasoning that beaviour can be studied and changed, that a human’s behaviour is dependent on its environment. ABA can be used to develop interventions that teach skills, increase behavior that contributes to learning, independence, and happiness, and decrease behavior that interferes with the acquisition of skills, is dangerous to self or others, or limits opportunities. ABA is not a treatment methond in itself but it is the science behind how succesful and effective interventions and treatmant plans are created for autism patients. When ABA is applied intensively and early in life, it produces magnificent results and reduces the need for special care later on in life by a humongous margin. Page | 10 KASHVI SHIRUDKAR GRADE 10 DIRECT INSTRUCTION - Direct Instruction (DI) is a structured teaching method designed by Bereiter and Engelmann in 1966 to ensure students master material through active participation and systematic procedures. DI features scripted lessons, where teachers follow detailed instructions to present content, model responses, and allow student practice. Correct answers are praised, and mistakes are corrected on the spot. This method progresses to independent student demonstrations, ensuring they’ve truly learned the material. DI curricula, like Language for Learning and Reading Mastery, cover various subjects such as reading, math, and writing. Placement tests help teachers start each student at the right level, and post-tests indicate if further practice is needed or if the student is ready to move on. This data-driven approach allows teachers to tailor instruction to each student's needs. Research highlights DI's effectiveness, with an average effect size of .59 across over 300 studies, making it one of the most impactful instructional methods. It's been shown to boost academic skills from preschool to high school, across different socioeconomic backgrounds, and among students with various disabilities, including those with autism spectrum disorders (ASD). Initial studies on DI for children with ASD focused on specific skills within broader curricula, while later research evaluated entire lessons over longer periods. For example, a study with 25 ASD children using the Language for Learning program showed significant language improvements, maintained over Page | 11 KASHVI SHIRUDKAR GRADE 10 months. Another large-scale study with 83 children found that 3 hours of DI per week for 6 months significantly benefited over half the participants. To successfully implement DI, proper training is crucial, despite its straightforward, scripted nature. Providers should choose curricula that match individual educational goals and consider modifications for ASD students, such as one-on-one instruction or additional reinforcements. Overall, DI is a proven, versatile teaching method that enhances learning outcomes across various populations, including those with ASD. It requires matching the curriculum to the student's needs and ensuring instructional staff are well-prepared through training. EARLY INTENSIVE BEHAVIORAL INTERVENTION - Early Intensive Behavioral Intervention (EIBI) provides 20-40 hours weekly of individualized instruction for children with autism starting before age four, typically continuing for 2-3 years. The UCLA Model focuses on home instruction using discrete trial training, while other models use classroom settings and different teaching methods. Research shows EIBI can significantly improve development and reduce the need for special services, though larger, well-designed studies are needed. EIBI is highly promising, warranting further investigation and information for professionals and families. PICTURE EXCHANGE COMMUNICATION SYSTEM (PECS)The Picture Exchange Communication System (PECS) is an augmentative communication system developed in 1985 by Page | 12 KASHVI SHIRUDKAR GRADE 10 Andy Bondy, Ph.D., and Lori Frost, MS, CCC-SLP. Originally designed for preschool children with autism spectrum disorder (ASD) who have limited vocal communication, PECS has expanded to other age groups and disabilities. PECS relies on Applied Behavior Analysis and Verbal Behavior principles, involving a systematic progression of communication skills across six phases. Using pictures stored in a communication book, children learn to exchange images for desired items, facilitating functional communication. PECS is structured into phases: initiating communication, generalizing it across environments, picture discrimination, sentence structure, using attributes, and answering questions or commenting. It emphasizes the importance of what is being communicated over the method of communication. The PECS protocol was updated in 2002, ensuring it remains a comprehensive and distinct system. Research supports PECS as an effective tool for teaching functional communication to individuals with ASD. The National Standards Project (2015) classified PECS as an emerging intervention, and subsequent studies have bolstered its status as an established method. PECS not only improves communication but also increases vocal requests and reduces challenging behaviors. Studies have shown that children using PECS may transition to vocal communication over time. Generalization and maintenance of PECS skills across settings are essential, with family involvement playing a crucial role. Research shows that PECS is effective in various environments Page | 13 KASHVI SHIRUDKAR GRADE 10 and maintains high social validity among parents and teachers. Proper training for those implementing PECS is critical, with behavioral skills training being particularly effective. PECS is recommended as an evidence-based practice for teaching communication skills to individuals with ASD. Continued research is needed to evaluate long-term effects and optimize transitions to other communication methods. Overall, PECS has proven to be a robust, effective intervention for enhancing communication in individuals with ASD. SELF MANAGEMENT INTERVENTIONS Self-management interventions, integral to applied behavior analysis, aim to improve socially significant behaviors by teaching individuals to alter their environments in ways that lead to beneficial changes in their own behavior. These interventions help individuals exercise self-control, making them more successful in various aspects of life. Particularly for individuals with autism spectrum disorder (ASD), selfmanagement interventions foster independence and reduce reliance on external prompts. Traditional prompting, if not gradually removed, can lead to dependency, whereas selfmanagement encourages individuals to self-cue, thereby promoting autonomy. For example, a child with autism might use a visual cue chart to respond to peer questions independently, rather than relying on adult prompts. Self-management strategies are effective across multiple domains, including academic, social, and vocational skills, and can both increase appropriate Page | 14 KASHVI SHIRUDKAR GRADE 10 behaviors and decrease challenging ones. These interventions typically involve components such as goal setting, selfmonitoring, self-evaluation, self-reinforcement, and selfinstruction. Goal setting involves selecting a performance standard to achieve desired behavior changes. Self-monitoring includes tracking one's behavior, while self-evaluation involves comparing recorded behavior with set goals or another observer’s records. Self-reinforcement allows individuals to reward themselves upon meeting goals, and self-instruction involves giving oneself reminders or instructions to promote target behaviors. While everyone uses self-management strategies to some extent, individuals with ASD may need more explicit instruction to use them effectively. Research has shown that self-management interventions improve social skills, academic performance, and daily living skills for individuals with ASD. For instance, interventions can teach responsiveness to social cues, enhance academic skills like writing and following directions, and support independent living tasks. Reviews and reports affirm selfmanagement as an evidence-based practice for ASD, highlighting its benefits in fostering behavior awareness, accountability, and reducing social stigma. Despite the strong support for self-management interventions, further research is needed to understand their long-term effects and how well they maintain improvements across different settings and age groups. There is also a need for more studies on self-management's impact on vocational Page | 15 KASHVI SHIRUDKAR GRADE 10 and daily living skills specifically for individuals with autism. Nonetheless, substantial evidence supports the use of selfmanagement interventions as effective tools for enhancing the lives of individuals with autism, making them a recommended approach for skill development and behavior improvement. BEHAVIORAL SIBLING TRAINING – Children with autism spectrum disorder (ASD) often face challenges in social interactions, making even minimal engagement difficult. Including siblings in their treatment can be beneficial, helping to build crucial interaction skills. Behavioral Sibling Training involves neurotypical siblings in interventions for their ASD siblings, aiming to foster positive interactions and improved social and play skills. For example, neurotypical siblings can be taught to target play-based language, reinforce positive behaviors, and prompt their siblings with autism to respond appropriately. Siblings can be effective agents of change, extending the benefits of peer-mediated interventions, which have long been proven effective. Besides direct intervention roles, siblings can be supported through educational programs, social opportunities, and sibling support groups, which help them communicate their needs, cope with stress, and address peer questions about autism. Extensive research has shown that engaging siblings in interventions leads to mutual benefits. Children with ASD gain in social-communication and play skills, while neurotypical siblings experience increased confidence and Page | 16 KASHVI SHIRUDKAR GRADE 10 satisfaction in interactions with their autistic siblings. These interventions also help reduce problematic behaviors in children with ASD and sibling frustration. Despite these benefits, the literature also highlights limitations. The roles of neurotypical siblings vary, and more research is needed to understand how the extent of their involvement impacts outcomes. Factors such as age, gender, and sibling closeness should also be studied. Additionally, most studies lack long-term follow-up, making it difficult to draw definitive conclusions about the long-term impacts of sibling involvement. Further research with better experimental designs is needed to fully understand the benefits of sibling training. Providers should practice within their competence scope and consider family, cultural, linguistic, and socioeconomic factors. Parents should discuss with providers their prior experiences with sibling interventions and be open about their family values and limitations. Mindfulness of the knowledge differential surrounding autism between the autistic child and their sibling is crucial for effective intervention. Page | 17 KASHVI SHIRUDKAR GRADE 10