TEXTBOOK PREVENTION IN MENTAL HEALTH Prof. Dr. Clemens M.H. Hosman Dr. Karin van Doesum Radboud University Nijmegen Revised Edition 2019 i In Honour of “the four pioneers and advocates of prevention in mental health who played a crucial role in shaping my passion, views and expertise in science-based prevention through their teaching, writings and inspiring consultations and contacts” Clemens Hosman Prof. Gerald Caplan (1917-2008), child psychiatrist, Harvard University, Boston. He was one of the founders of American preventive psychiatry. His books, lectures and workshops on preventive psychiatry and preventive consultation methods have had a major impact on the development of prevention in mental health in The Netherlands. Prof. George Albee (1921-2007), professor of psychology, University of Vermont. Chair of the influential series of Vermont Conferences of Primary Prevention of Psychopathology. In his many writings and lectures around the world, he made a strong plea for primary prevention and fighting against the social causes of psychopathology and mental suffering. He was former President of the American Psychological Association, and Chair of the US Task Panel of Prevention under President Carter. Dr. Beverly Long, public health nurse, has been for many decades one of world strongest advocates for mental health, prevention and public mental health. She is former President of the World Federation of Mental Health and chaired numerous US and international committees and initiated world conferences on prevention. In 2007, she received an Honorary Doctorate from Emery University for her life-long work for prevention and mental health. Prof. Richard Price, organizational psychologist and community psychologist, University of Michigan. Director of one of the first Prevention Research Centers in the US (Ann Arbor) specialised in work-related prevention. During the 1980s and 1990s, he played an influential role as consultant for the development of science-based prevention in the Netherlands. In his research and consultation, projects are running across many countries, including China, Finland, Spain and Ireland. ii TEXTBOOK PREVENTION IN MENTAL HEALTH iii Table of contents In honour of Curriculum Vitae Lecturers Course outline and exam instructions Educational goals of the course Introduction on the need for prevention PART I PREVENTION HISTORY AND CONCEPTS 1. Naive prevention: on the preventive nature and culture of man 2. History of preventive mental health care: From 1800 to present 3. Mental Disorder Prevention and Mental Health Promotion Concepts, strategic framework and current practice PART II 1 11 31 57 THEORETICAL APPROACHES 4. Theoretical approaches: Overview 5. Behavioural approach: A closer look at some models 111 6. Developmental psychopathology approach 125 7. Integrated stress-theoretical approach 135 8. Positive psychology approach 155 9. Social support and social network approach 165 10. Community approaches 191 PART III 91 PLANNING AND STRATEGY 11. Planning models and processes of planned change 217 12. Setting targets for preventive interventions 239 13. Intervention analysis, strategies and methods 253 iv PART IV EVIDENCE AND EFFECTIVENESS 14. Evidence of Effectiveness and Improving Effectiveness in Prevention and Mental Health Promotion 15. Database of effective youth interventions The Netherlands Youth Institute/ NJi PART V 285 305 PREVENTION THEMES 16. Prevention of emotional problems and psychiatric risks in children of mentally ill parents in the Netherlands: a comprehensive science-based approach Clemens M.H. Hosman, Karin T. M. van Doesum, Floor van Santvoort 317 17. Prevention of emotional problems and psychiatric risks in children of mentally ill parents in the Netherlands: Interventions Karin T. M. van Doesum, Clemens M.H. Hosman 335 18. Prevention of anxiety disorders 351 v About the course leaders Dr. Karin van Doesum, Ph.D. is a prevention psychologist working as the head of the Deventer Prevention Department of Dimence, a mental health service organisation in the districts of Zwolle, Deventer and Almelo. She is also a part-time lecturer and researcher at the Prevention Research Centre of the Radboud University Nijmegen and part-time researcher at the University of Tromsø in Norway. She studied prevention and clinical psychology at the Radboud University. For almost 25 years, she is a leading specialist in The Netherlands and Europe on prevention of transgenerational transmission of psychopathology. She has developed, implemented and evaluated prevention programmes for children and families of parental mental illness (COPMI). Her dissertation was focused on the development and effect evaluation of a preventive video-feedback training programme for depressed mothers and their babies. In addition, she has developed prevention programmes for pregnant women suffering from mental disorders and stress, support groups for these children and families and educational programmes for the parents. Karin van Doesum trains mental health and prevention specialists in the Netherlands and several European countries on coping with children of mentally ill parents. She also manages and supervises process and effect studies on several new prevention programmes. Over many years, her prevention team in Deventer has offered an attractive learning environment where many students have worked as ‘intern’ and written their theses. E-mail address: k.vandoesum@psych.ru.nl Room: Spinozagebouw A.07.21, Montessorilaan 3, Nijmegen (on Thursdays) Or: Impluz, Prevention Department of Dimence groep, Deventer: k.vandoesum@impluz.nl Clemens M.H. Hosman, Ph.D. (1947), psychologist, is emeritus Professor of Mental Health Promotion and Prevention of Mental Disorders at the Maastricht University (Health Sciences) and Radboud University Nijmegen (Clinical Psychology), and former director of the Prevention Research Centre, located at both universities. The Research Centre is oriented at prevention of depression, prevention for children of parents with mental illness, community-intervention strategies, programme development, effectiveness and effect management, and innovation and future of prevention and mental health programmes. He is visiting professor at the University of Zagreb, where he is one of the founders of the Croatian PhD Program on Prevention and Mental Health Promotion. The late Professors Gerald Caplan and George Albee, founders of American preventive psychiatry and preventive psychopathology, were among his teachers. He is involved in prevention since 1969 and played a crucial role in the development of prevention and promotion in the Netherlands. He wrote many publications on different aspects of prevention and prevention research, e.g. needs assessment methods, preventive goal analysis, prevention theories, international classification of preventive interventions, programme evaluation, effectiveness, effect prediction and effect management, prevention of depression, prevention of relationship problems, prevention of transgenerational transfer of mental disorders, dissemination of evidence-based model programmes, long term policies in prevention and mental health promotion and international collaboration. He is co-author of the PREFFI 2.0, a Dutch effect management instrument that aims to enhance the implementation of scientific knowledge on effectiveness in policy and practice. vi The instrument is also used in several other European countries. His research team has collaborated with over 30 mental health organisations in the Netherlands. He has played a leading role in enhancing European and worldwide prevention and mental health promotion. He was chair of the European WHO Task Force on Mental Health Promotion and Prevention (1995-1998), chair of the Clifford Beers Foundation on Mental Health Promotion (1996-2000, 2008-2011), and member of several international networks and committees, such as the European Community Psychology Network, the European Mental Health Promotion Network of the European Commission, the Prevention Faculty of the World Federation of Mental Health (WFMH), the Prevention Section Staff of the World Psychiatric Association (WPA), Global Effectiveness Program of the International Union for Health Promotion and Education (IUHPE), the Board of the international US Society for Prevention Research (SPR; 1999-2003). From 2004 to 2007 he was the Chair of the World Consortium for the Advancement of Prevention and Promotion in Mental Health (GCAPP), in which 17 international organisations are involved (e.g. WHO, World Federation of Mental Health, World Psychiatric Association, Society of Prevention Research, CDC, The Carter Center, VicHealth Australia). Since 2010, he chairs their International Taskforce for Capacity Building and Workforce Development. From 1999 – 2003 he was Board member of the US Society for Prevention Research. He received the 2002 International Collaborative Prevention Research Award of the US Society of Prevention Research; and the 2001 Friend of the Early Career Preventionist Award for his life-long work in educating new generations of prevention experts in The Netherlands and other European countries. He organised several European and World Conferences on Promotion of Mental Health and Prevention of Mental and Behavioural Disorders. He is a prevention advisor to the World Health Organization and several European countries and coordinated the WHO project on Evidence-based Prevention of Mental Disorders, (Hosman, Jane-Llopis & Saxena, 2004). The final report serves as a basis for the WHO prevention policy in this field. To facilitate the use of scientific knowledge on prevention, to enhance the dissemination of evidence-base prevention programmes, to stimulate international research collaboration of effect predictors, and to develop international training programmes the Nijmegen Prevention Research Centre hosted several European projects (IMPHA, DataPrev). These projects have resulted in a European database of Evidence-based Preventive Trials (DataPrev), a European Training Programme and a European Mental Health Promotion Policy Report. Since 2012, Clemens Hosman is emeritus professor and runs a private consultancy company, named Hosman Prevention Consultancy and Innovation that offers advice, training, lectures and workshops, nationally and internationally. Email-address: hosman@psych.ru.nl vii Introduction to Prevention in Mental Health Course outline The main goal of this course is to let you acquire knowledge and insight in prevention of mental disorders and promotion of mental health. You are taught how effective preventive interventions are developed: stepwise, systematically, theory-based and practice-based. After a general introduction to the course and the field, we will first discuss preventive behaviours and preventive mechanisms as we have encountered them for millions of years in both animal and human biology and still present in our current daily lives (chapter 1). Although we often do not realise it, every hour of the day we occupy ourselves with all kinds of preventive practices. Prevention and health promotion as a scientific and professional discipline deals with situations in which the existing preventive or protective mechanisms of individuals, populations and communities work insufficiently, resulting in a poor development of one’s health potential or well-being, the occurrence of serious mental problems and illnesses, and their huge social and economic impact on our life and society. As introductory chapter, we will discuss the arguments why professional prevention, prevention policies and prevention science are needed. The history of professional prevention and health promotion, which goes back to the mid-19th century, is discussed in chapter 2. Professional or academic ‘prevention’ and ‘health promotion’ seek to improve preventive and promoting mechanisms in individuals, groups, organisations, and communities and to develop innovative preventive practices or measures (chapter 3). The chapter discusses what we mean by the term ‘prevention’, how prevention is subdivided in multiple sectors, what is done in practice and how it is organised. The same applies to the term ‘health promotion’, which is narrowly related to ‘prevention’. During the course many examples will be given from concrete programmes and practices viii in prevention and promotion. An impression of the activities of prevention teams and health promotion teams currently active in many health organisations is given. Basic Planned Change Model A major goal of this course is to explain different scientific models on which preventive interventions can be based. These concern theoretical approaches from psychology, psychiatry and sociology, such as behavioural models, stress and coping models, developmental psychopathology and positive approaches, and social network and community models. These are discussed in the chapters 4 to 10 (Part II). Basic to the development of any prevention and health programme is the use of so-called planning of change models. These describe the different stages needed to plan, develop, implement and evaluate a prevention or health promotion intervention. We present three types of planning models. First, the Basic Planned Change Model (Figure 2) describes the various basic steps that must be followed in any process of planned change, so this also applies to the process of developing an effective prevention programme. A systematic planning approach as described in Figure 2 is one of the essential conditions needed to achieve preventive effects in target populations. The model provides a central framework for this course and is discussed more extensively in chapter 11. Developmental Trajectory of Effective Prevention In the same chapter, also a more extensive planning model is described that integrates this basic planning model in a so-called public health approach, called the Developmental Trajectory of Effective Prevention (Figure 3). This means that the model not just describes the steps toward an effective intervention, but also the steps needed to achieve aimed preventive effects in a target population or community as a whole (public impact). For instance, how can we reduce the high prevalence of depression in the population of a whole city, or one neighbourhood? This requires the development, selection and combined implementation of multiple interventions and measures. Compare this, for example, with the many measures a city takes to reduce traffic accidents and related traffic injuries and deaths. This stepwise process reflects, therefore, a community health planning approach. This extended model also includes several additional stages: the dissemination, adoption, implementation and institutionalisation of effective prevention programmes. In prevention practice these additional steps are essential to achieve a wide reach of prevention programmes within the population, a high degree of impact in ‘at risk’ populations, and ultimately a broad mental health, health and social impact in society as a whole. In addition, the authors will also discuss the Precede-Proceed model, common in health promotion, which integrates a planning model with a theoretical model on health behaviour, health and quality of life. ix Fig. 3 Developmental Trajectory Effective Prevention Communityanalysis Program-development Needs Current prevention Practices Setting priorities Policy problem analysis goal analysis strategy development designing materials multiple try-outs process evaluation effect evaluation Model programs Combining Effective modules Integral multi-component approaches cost-effectiveness improved versions Preventive effects Large scale dissemination in the general population Adoption and Adaptation and populations at risk Institutionalizing and Reach In chapters 12 and 13, two important stages in both models are discussed in more detail: (1) Defining targets of preventive and health promotion programmes, and (2) the process of designing a preventive strategy, based on making reasoned choices on strategic dimensions. The stages of evaluation, effectiveness, and dissemination of ‘model programmes’ are discussed in chapters 14 and 15. In this textbook, and during the lectures and exercises, the use of these planning models is discussed and illustrated through themes and risk groups that get a lot of attention in the current prevention and mental health promotion practice. Since the number of lectures is limited, not all chapters and items from this textbook can be discussed during the sessions. Students are required to study some parts themselves without extensive presentations during the course meetings. This applies, for instance, to chapter 2 about the history of prevention and how different ideologies and scientific developments have shaped current prevention in mental health. The educational goals of the course (see later in this chapter), and the study questions at the end of each chapter should give sufficient support to study the non-discussed chapters independently. The reader Originally, this textbook was written in Dutch. In 2009, it was translated in English to make it accessible to foreign students as well. In the next years, the book has been stepwise revised and updated, based on the feedback of last year’s students and on recent developments in science and practice. In 2014, the book was significantly revised and updated. Part V of this textbook presents applications to a range of core themes in current prevention and mental health promotion. Chapters 16 and 17 focus on children of mentally ill parents (COPMI), a topic that for 25 years has been a core issue in our own prevention and research work. For other applications (depression, anxiety disorders, child abuse and E-health), we will refer to some recent publications in peer-reviewed journals that can be downloaded through the Electronic Journal website of the Radboud University Nijmegen. x Although in 2015 we have put much effort in improving the used English language, it is still possible that you as a reader will come across typing and grammatical errors. If you have suggestions for further improvement, also in terms of the content of this textbook, we welcome any comments. These can be sent to Dr. Karin van Doesum, k.vandoesum@psych.ru.nl. Finally, this course builds upon earlier provided information on prevention and health promotion in the psychology curriculum at the Radboud University, especially during single sessions on this topic in the B1 year and in the B2 course on Health Psychology. As students from pedagogical sciences have not followed this first introduction, some earlier discussed concepts will be summarised during the course presentations and in this textbook. Instructions for the exam Exam material The exam material that must be studied consists of: 1) The textbook Introduction to Prevention in Mental Health, edition 2018 (completely revised) 2) Scientific articles are accessible for students through online databases, accessible through Brightspace. 3) Subjects discussed during the lectures and in the PowerPoint presentations PowerPoint presentations will be posted in Brightspace. The PowerPoint presentations of the lectures are meant to a) explain the text in the textbook, but b) they also give additional information and are therefore exam material unless otherwise indicated. Starting point for learning the exam topics are the educational goals of the course and the study questions at the end of each chapter. These study questions are formulated to support the student in studying the course material and preparing for the exam. The exam consists of 40 multiple-choice questions with four response categories. The questions do not only test knowledge, but are also designed to test understanding and ability to think critically. Additional questions regarding the content of the lectures will be posted separately in Brightspace. Additional to the multiple-choice exam one can earn a bonus by participating in a group assignment. xi Educational goals of the course Knowledge and insight Have knowledge and understanding of: Naive prevention Concepts of mental disorder prevention and mental health promotion Different types of prevention History and origin of prevention and recent developments Organisation of professional prevention and health promotion Theories and models of mental disorder prevention and mental health promotion, e.g. cognitive-behavioural, developmental, stress-theoretical, social support, community Preventive strategies and methods Intervention analysis, strategic dimensions, making strategic choices Prevention on specific themes and target groups Problem analysis, risk factors, strategies and programmes, outcomes Effectiveness of prevention and providing evidence Effect management: strategies to optimise effects and cost-effectiveness Relation between preventive and curative care / therapy Skills Be able to: Defend the importance of prevention Think critically about prevention Discuss the dangers and bottlenecks of prevention Apply staged planning models Design a preventive intervention and provide theoretical and empirical justification Attitude Acquire a professional preventive attitude Have an own opinion regarding prevention viewpoints and prevention practice Have an opinion regarding the place of prevention in your own professional future or current professional practice xii Introduction to the need for prevention Introductory historical notes 2 The importance of prevention 3 Psychological and psychiatric morbidity Increasing mental health care use and treatment gap Social and economic significance Conclusions and implications 7 1 Introduction to the need for prevention Clemens M. H. Hosman Introductory historical notes Over the last 150 years, many countries around the world have developed a strong preventive health sector in addition to a curative health care sector. This prevention sector has evolved as a typically multidisciplinary field, involving public health scientists, epidemiologists, doctors, educators, district nurses, psychologists, pedagogical scientists, social workers, and recently health economists. Prevention started as a professional field in the midst of the 19th century with public health measures such as safe water supply and sewer systems, and with the emergence of district nurses at the end of the century as its first professional discipline. Their family-focused work included preventive education and hygiene support. In the Netherlands and worldwide, behavioural scientists became first active in disease prevention and health promotion (HP) around 1970. Currently, many professional institutions, within and outside the health system have experts and even whole departments specialised in prevention, health education or health promotion. In addition, many health and prevention scientists are working in universities, research centres and national institutes to develop new knowledge and effective interventions to strengthen health and fitness of people and to prevent common diseases. The current prevention field addresses a wide range of diseases, such as cancer, cardiovascular diseases, caries, accident-related injuries, AIDS and other sexually transmitted diseases, but also mental disorders (e.g. depression, anxiety disorders) and addiction. Frequently, interventions aim to influence risk and health behaviours that are related to these diseases, such as smoking, alcohol use, drug use, exercise, eating habits and dieting behaviour, child abuse, and bullying. Prevention experts are also involved in reducing social problems such as poor parenting practices, school dropout, discrimination, domestic violence, aggression, delinquency, and poverty. Awareness is growing about the narrow relationships between physical health problems, mental health problems and social problems, and the need for more integral preventive approaches that address clusters of multiple related problems. This book is focused on prevention and health promotion in the field of mental health. During the last 25 years, mental health problems and mental disorders are worldwide recognized as one of the most important burdens of disease, a significant threat to human wellbeing and quality of life, and a major cause of the increasing economic health costs. In addition, the evidence is growing that positive mental health (mental fitness and mental capacities) represents a significant condition for positive social outcomes such as school achievement, productivity at work, good citizenship, public safety and social cohesion. In this introductory book, both science and practice of prevention will be discussed. Although examples from preventive practice will be presented from all over the world, special attention will be given to prevention in The Netherlands and other European countries, where the authors of this book have their professional roots. For practical reasons, we will use the term ‘prevention’ to refer to both prevention of mental disorders and mental health promotion. 2 The importance of prevention Societies have become more and more prevention-oriented over the last century and health care has become increasingly preventive in its approach. Also within mental health care, prevention has gained a position. The need for prevention became explicit in response to the growing insight in the high prevalence of mental disorders and poor mental health, the alarming increase in use of mental health services and related economic impact. Taking the Netherlands as an example, the Dutch Scenario Committee on Mental Health and Mental Health Care concluded that the demand for specialised mental health care had increased dramatically over the period 1970 – 1990 and predicted a further rise in service use until 2010 (Scenario Commission GVG and MHC, 1990). The facts of the last 20 years have confirmed this prognosis. As from 2000, specialised mental health care in the Netherlands has even become the fastest growing sector within the whole health care system. We will discuss this increase in use later more in detail. With the increase in treatment use, the involved economic costs have increased dramatically as well. In the Netherlands, the direct treatment costs of mental health care for 2011 were estimated at € 5.7 billion and all treatment costs for mental illnesses across the whole health system at €19.6 billion (RIVM, 2011). Due to these rising costs in combination with the economic recession, governments and health organisations are challenged to find innovative solutions that maintain high quality of mental health care for many, while reducing the total costs significantly. More investment in prevention might prove to be an effective cost reduction strategy, apart from its value for reducing avoidable human suffering. Psychological and psychiatric morbidity According to the figures presented in a five countries study (US, Canada, Netherlands, Germany, Chili), the annual prevalence of DSM-IV mental disorders in the population is estimated to vary between 17% and 29%, as measured by the CIDI instrument (Bijl et al., 2003). In the Netherlands, a prevalence of 24.4% was found, including an annual prevalence of 8.2% for mood disorders, 13.2% for anxiety disorders and 9.9% for substance use disorders. This means that each year around one in four persons experiences severe psychiatric or psychosocial problems that meet the international diagnostic criteria of the DSM-IV. In an extensive review on the current knowledge on psychiatric epidemiology and prevention, a committee of researchers at the American Institute of Medicine concluded that in both children and adults, the one-year prevalence of a diagnosable psychiatric disorder is about 20% (Mrazek & Haggerty, 1994; National Research Council and Institute of Medicine, 2009). There are several indications that 'psychiatric morbidity' has increased in recent decades, particularly concerning problems and disorders in which social and cultural factors play a major role. Hard evidence for this increase does not yet exist because of a lack of reliable epidemiological comparisons based on longitudinal studies. An increase can be expected due to the improved life expectancy at birth in braindamaged children, and an increase of dementia because of the growing number of elderly over 80 years of age. It is also expected that a growing proportion of the world population will be exposed to circumstances that lead to more risk and vulnerability to mental disorders due to, for instance, disappearing traditional networks, economic recession, globalisation and their social consequences. Globalisation causes, for example, economic migration with a strong impact on family life, a clash of cultures and a loss of traditional values and social networks, 3 drugs criminality, poverty and trafficking of women and children. It is expected that growing environmental problems, shortages of natural resources (e.g. food, water and energy), conflicting religions and inequity between rich and poor will increase risks of social conflicts, wars, refugee flows and related losses and traumatic experiences. The call from citizens, health professionals and organisations is becoming louder to reflect on ‘social answers’ to these social threats of mental and physical health. This is illustrated by two recent ‘Declarations’ accepted at world conferences on mental health and mental health promotion, the Melbourne Charter on Promoting Mental Health and Preventing Mental Disorders 2008 and the Lyon Declaration on Globalisation and Mental Health (October 2011). Increasing mental health care use and treatment gap In the Netherlands, between 1990 and 2005 the number of clients in outpatient mental health care increased by 123% and for intensive treatment even by 239% (Trimbos Institute publications). Converted in absolute numbers, there were “only” 535,000 clients in mental health care in 2001. This number grew from 638,000 to 757,000 between 2003 and 2005, and further increased to over 1 million clients in 2010. This could be seen as a success of longterm efforts to make mental health services more available and accessible to those who are in need. It is, however, questionable if we should consider 1 million inhabitants (from a total of 16.5 million) with serious mental health needs and receiving specialised mental health services as an acceptable public mental health situation. Nevertheless, the number of people with Box 1 Treatment gap in Europe mental disorders who do not receive professional Many do not receive professional treatment help is still large, as data show (Box 1). Comparisons • Alcohol dependence 92.4% from epidemiological studies in the US, Canada, • Anxiety disorder 62.3% Netherlands, Germany and Chili show that even • Panic disorder 47.2% among the severe cases of mental illness one third • Major depression 45.4% to two third did not receive any professional • Bipolar disorder 39.9% • Psychosis 17.8% treatment (Bijl et al., 2003). Among the cases with a mild mental disorder, between 50% and 75% were Source: Kohn et al. (2004) found untreated. For the Netherlands, the percentages of untreated cases were 33.7% for serious disorders and 57.0% for mild disorders. These figures illustrate, as George Albee already argued in 1959 and at many occasions later, that the mental health treatment system will never be able to treat all cases of mental disorders present in a population. This offers a strong argument for changing national mental health policies from a dominating focus at curative care and specialised treatment to more investments in preventing the onset of mental disorders (Albee, 1959; 1996). Professor Albee was former president of the Clinical Psychology Division of the American Psychological Association and one of the most famous advocates and pioneers of prevention for almost 50 years. In addition to this ‘treatment gap’ argument, Albee stated that even when treatment facilities would be expanded, it is not expected that this will result in a substantial reduction of psychiatric disorders in society: "Public health teaches us that no mass disease or disorder has ever been controlled or eliminated through individual treatment or by increasing the number of therapists” (Albee, 2005, p. 37). Here, the Dutch expression “Dweilen met de kraan 4 open” (“Mopping the floor, while leaving the tap open”) is very appropriate. To stop a serious water overflow (new mental disorders) one should close the running tap (prevention); mobbing the floor with a running tap (treatment) does not help. Prevention is aimed at averting new cases of mental disorders by removing or neutralizing the causes. Social and economic significance The importance of prevention is not only inspired by ethical considerations about preventing avoidable human suffering and the ever-increasing demand for care. In addition, the social and economic consequences of psychiatric morbidity argue for an increasing investment in developing effective forms of prevention. This concerns in particular the large impact of mental disorders on social security costs, labour productivity, absenteeism, and social benefits. For the last 20 years, the social and economic value of mental health has been increasingly understood. For instance, depressive disorders are responsible for a larger loss of productivity than any other health problem, except for cardiovascular disease (Mrazek & Haggerty, 1994). In England, the cost of depression, both for direct treatment and indirect costs such as loss of production are estimated at €14.5 billion per year. Only 4% of these costs are treatment costs (Thomas & Morris, 2003, Figure 2). The costs of depression in the Netherlands are about €1.3 billion per year. This amount includes €660 million for medical expenses and a similar amount of money for absenteeism and loss of productivity (GGZ Nederland, 2007). Mental disorders and poor mental health lead also to other type of costs such as school dropout, loss of academic achievement, lower income levels, unemployment, youth and adult delinquency and related costs for police and justice. Some years ago, the total European total costs for affective disorders, anxiety disorders, psychotic disorders and addiction were estimated at €360 billion by a Swedish economic institute (Andlin-Sobocki, Jonssen, Olesen & Wittchen, 2005). Recently, the World Economic Forum estimated the total costs of mental disorders worldwide to be $2.5 trillion in 2010 and expects that by 2030 these costs will more than double to an amount of $6 trillion ($ 6.000.000.000.000) (WEF, 2012). Insight in these costs and which stakeholders in society are affected by it is crucial to develop coalitions of multiple organisations and social parties who are willing to invest in prevention of mental disorders and promotion of mental health. Many different stakeholders are directly or indirectly affected by the human, social, and economic burden of mental disorders. Stakeholders include first of all citizens themselves being either patients, family members, neighbours, colleagues or tax payers, but also health care professionals, schools and teachers, companies, health insurers, social benefit officials, local governments, justice, and police. In a positive way, good 5 mental health is considered to be a keystone in a wide spectrum of positive human and social outcomes, such as a higher quality of life and well-being, better physical health, less chronic diseases and mortality, better academic achievements, higher productivity at work, good citizenship, social cohesion and social participation, safe communities and less violence, and finally to significant cost reductions in health, social security and justice. The more we can convince different stakeholders in our society of the impact mental health has on their primary interests, the more we may expect them to be willing to invest and support health promotion and preventive programmes to improve ‘mental capital’ and to reduce the burden of mental illness. Opportunities for implementing prevention and health promotion programmes are heavily dependent on their support. The main arguments for the need to invest in the prevention of mental disorders and promoting mental health are summarised in Box 2. Box 2 Ten arguments for investing in prevention of mental disorders 1. Humans are by nature preventive beings, but the efficacy of their ‘naive prevention’ has its limits and regularly fails. Professional prevention aims to restore and strengthen the preventive capacities of citizens, families, organisations and communities. 2. Serious psychiatric problems are prevalent in society and have reached epidemic proportions. This number is expected to further increase as well as the demand for treatment, unless the society invests more in mental health promotion and prevention. 3. An important number of people with serious psychiatric problems is without help (untreated morbidity) notwithstanding expanding services: the treatment gap. 4. In the end, therapeutic help resembles at “mopping up the floor while the water tap keeps running” (Dutch expression). “Therapy has never eliminated a disease from society” (George Albee, one of the founders of prevention of psychopathology). 5. The costs of curative mental health care and many other social and economic costs of mental disorders are high and expected to increase significantly. Investments in prevention can reduce these costs. 6. Psychiatric disorders are a significant risk factor for chronic physical disorders and preterm mortality. Preventing mental disorders is expected to contribute to less physical illnesses and mortality. 7. Mental health care often means individualising problems of people, while many problems are the outcome of social factors (e.g. poverty, domestic violence, discrimination). Therapy is not addressing such causes and does not have the potential to change them; prevention and health promotion may also include efforts to influence social risk factors. 8. Historically, the focus of health care systems has evolved from caring to curative and, during the last century, more and more to prevention. Society as a whole develops steadily towards a more preventative orientated society, across multiple social sectors investments in prevention are increasing. 9. Preventive interventions are found to be effective in controlled studies and show a wide range of health-, social- and economic effects. 10. A mere treatment-focused health care system should be considered as unethical when possibilities for effective prevention exist. 6 Conclusions and implications Why did we start this book with an introduction on the need for prevention and an overview of the arguments? When a person develops an illness, he mostly feels sick and suffers from physical pain, emotional stress or other symptoms. When these symptoms subsist, a feeling of suffering usually urges the person to go to his (her) general practitioner to seek professional help. When needed the general practitioner involves medical specialists and hospital departments for further diagnostic support and specialised treatment. As many people in the population suffer from a physical or mental illness there is a constant and large public demand for ‘curative care’, i.e. medical and mental treatment. Our health system and related financing systems (e.g. health insurance) are primarily designed to cover this demand for treatment of diseases. Managers of health services (e.g. hospitals and outpatient services) and the medical professions strongly protect their established budgets for treatment and care. Especially nowadays, while governments and health insurance companies pressure them to reduce their budgets. As a result, the part of the national health budget spent on prevention is and stays marginal (Box 3). This also applies to the field of mental health. The highly skewed distribution of health investments, mainly financing curative care, is highly debatable from both an ethical and an economic perspective. Box 3 Some facts about costs of the Dutch health care and prevention • The total costs for health care in The Netherlands were 89.2 billion in 2010 • Costs of health care as percentage of the gross national income (GNP), spent on health care have increased from 8% in 1972 to 13% in 2010. A recent study by the Netherlands Bureau for Economic Policy Analysis predicts these costs will increase further to between 19% and 31% of the GNP in 2040, i.e. between one fifth and one third of the national income. Awareness that such increases become unaffordable. • In 2007, the national expenses for prevention were about €13 billion. From this budget, €10 billion were spent outside the health care system on health protection, especially on improving traffic safety and reducing air pollution. Only €3 billion of these prevention budgets was spent by the health care system, mostly for screening of patients, preventive medication, and vaccination (€2.5 billion). • Only €0.5 billion, which is less than 1% of the national health budget, was spent on life style improvement (health promotion) and behaviour-focused preventive interventions. Sources Centraal Planbureau (2012). Trends in health care. The Hague: Netherlands Bureau for Economic Policy Analysis. RIVM National Institute for Public Health and Environment. CBS 2011. Uitgaven aan zorg groeien minder snel (Spendings to care show a lower increase). Press release, 18 mei 2011, Netherlands Bureau for Statistics. Efforts to improve resources for prevention and health promotion face at least two major barriers. To begin with, prevention advocates cannot refer to an immediate need for action as easily as patients who are suffering from an acute illness. Secondly, it is hard to overcome the 7 resistance of established and powerful stakeholders in medical care defending their budgets. Strong arguments are needed to convince health managers and policy makers that they should shift part of the health budgets from care to prevention. In addition, for their implementation in practice, prevention and health promotion programmes depend heavily on collaboration with and support from local organisations (e.g. schools and companies) for whom preventive work is not their core business. Asking them to invest in prevention could on first sight, even compete with their primary concerns (e.g. efficient use of teachers’ hours, or intensifying productivity). As a result of these circumstances, prevention and health promotion managers and practitioners spend much of their time convincing policy makers, financing agencies and other stakeholders of the need for and the benefits of prevention and health promotion. The perspectives for their work are depending on their expertise in convincing different stakeholders in society of such benefits. This requires a deep understanding of the core interests and priorities of these stakeholders and how promotion of mental health could benefit these interests. This chapter has presented a range of arguments and ways of thinking that advocates of prevention can use to strengthen their argumentation and position. Such advocates are not only prevention and health promotion managers, but also individual practitioners as primary health care psychologists and youth care professionals who want to increase their preventive work with clients, schools and workplaces. Literature Albee, G. W. (2005). Call to revolution in the prevention of emotional disorders. Ethical Human Psychology and Psychiatry, 7(1), 37-44. Andlin-Sobocki, P., Jonssen, J., Olesen, H. U., & Wittchen, B. (2005). Cost of disorders of the brain in Europe. European Journal of Neurology, 12, 1-27. Bijl, R., de Graaf, R., Hiripi, E., Kessler, R., et al. (2003). The Prevalence of treated and untreated mental disorders in five countries. Health Affairs, 22, 3, 122-133. Kohn, R., Saxena, S., Levav, I., and Saraceno, B. (2004) The treatment gap in mental health care. Geneva: Bulletin of the World Health Organization, 82 (11). Mrazek, P. J., & Haggerty, R. (Eds.). (1994). Reducing risks of mental disorder: frontiers for preventive intervention research. Washington: National Academy Press. Melbourne charter 2008: http://www.vichealth.vic.gov.au/en/Publications/Mental-health-promotion/ Melbourne-Charter.aspx National Research Council and Institute of Medicine. (2009). Preventing Mental, Emotional, and Behavioral Disorders among Young People: Progress and Possibilities. Committee on Prevention of Mental Disorders and Substance Abuse Among Children, Youth and Young Adults. Washington, DC: The National Academies Press. Thomas, C. M., & Morris, S. (2003). Cost of depression among adults in England in 2000. The British Journal of Psychiatry : The Journal of Mental Science, 183, 514–519. Study question for this chapter What are the arguments for investing in prevention of mental disorders and promotion of mental health? 8 PART I PREVENTION HISTORY AND CONCEPTS 9 10 1 Naive prevention: on the preventive nature and culture of man1 1.1 Introduction 12 1.2 Preventive behaviour in animals 13 1.2.1 Natural selection 14 1.3 Naive prevention 15 1.4 Humans as prevention-oriented beings 16 1.4.1 Preventive role of reflexes and learned responses 16 1.4.2 Preventive behavior in daily life 16 1.5 Prevention in primitive cultures 17 1.5.1 Sculptures, masks, fetishes and amulets 17 1.5.2 Taboos 18 1.5.3 Myths and legends 19 1.6 The preventive meaning of rituals 19 1.6.1 Functions of rituals 20 1.6.2 Transition rituals 22 1.6.3 Mourning rituals 23 1.6.4 General decline of rituals 25 1.7 Conclusions 25 1.7.1 Elements of preventive processes and capacities 26 1.7.2 Failing naive prevention 26 1.7.3 Challenges for professional prevention 27 Literature 29 Study questions for this chapter 30 1 This chapter is a revised version (2013) of a text originally written by Clemens Hosman in 1985. 11 1 Naive prevention: on the preventive nature and culture of man Clemens M. H. Hosman 1.1 Introduction As an academic, it is tempting to consider the development of preventive practices and preventive care in a community as mainly initiated by professionals and researchers. It is a dominating tendency to assume that "prevention" was invented by public health specialists. It is true that ‘prevention’ as a formal task of health systems in societies was introduced in the midst of the 19th century when public health services emerged. It is also true that professional preventive care has been strongly developed during the 20th century with extensive use of scientific knowledge and intervention theories and social technology, from neurobiology, psychiatry, epidemiology, psychology, pedagogical science, sociology, social marketing and health promotion. This attitude, however, might cause preventive mental health care, like other health care sectors, to fall into the trap of progressive professionalisation, also called ‘protoprofessionalisation’, and not recognizing the true preventive nature of human beings, communities and societies. Proto-professionalisation refers to the process of making people for their health and wellbeing more and more dependent on professionals and academic knowledge. Although scientific knowledge has proved to contribute significantly to better health and lower mortality rates, overestimation of their value can also have a detrimental effect on the survival of natural care systems and natural preventive systems in society. As argued by the philosopher Iwan Illich, proto-professionalisation leads to "structural iatrogenesis”: the decline of non-professional or natural health care and self-care in a society, because professional health care increasingly takes over care functions that previously belonged to preventive or curative care provided by people themselves, or by their family, friends, neighbours or other community support systems (Illich, 1974). The term ‘iatrogenesis’ is derived from Greek and means illness producing. By emphasising more and more professional health care to address health threatening conditions, the preventive capacities that humans, communities and cultures have developed over many generations and even millions of years, might decline and citizens become more and more dependent of professional care. This in turn might increase their vulnerability to diseases or serious mental and social problems. On the other hand, since the 1980s there has been a strong plea in favour of further professionalisation of efforts to prevent mental disorders like it has been done for other disease categories such as cancer, cardiovascular diseases and AIDS (Hosman, 1989, 1991). If prevention as a professional sector wants to have a legitimate place in the health care system and society as a whole, it should offer additional value to ‘natural’ preventive practices and self-care. To create this additional value, the use of scientific knowledge is crucial and scientific evidence that such interventions are effective and indeed add value should be provided. This also requires national policies for prevention and health promotion, more research, a specialized professional workforce, and professional training. Creating these conditions is already on international agendas since the 1980s, and they are still relevant to date. At the start of the 21st century, international organisations such as the World Health Organization (WHO), the European Union (EU) and the World Federation for Mental Health, have declared 12 science-based and practice-based prevention of mental disorders and the promotion of mental health to be high public priorities. At first sight, these stances seem contradictory: a plea for non-professionalisation versus a plea for professionalisation. Criticism on the proto-professionalisation in health care during the 1970s and 1980s especially found support among health promoters and preventionists, who advocated for ‘empowerment’ of natural health promoting capacities in citizens and communities and stimulating self-help approaches. Originally, this resulted in a reserved position against a scientific approach to prevention. This attitude has significantly changed in the last 30 years, while our field increasingly became aware that empowerment of citizens and communities, and scientific approaches can productively go together, and need each other. Certain risk factors only become visible through long-term scientific research, such as the impact of stress, anxiety and depression during pregnancy on the developing cognitiveemotional brain systems of the child, or the wide spectrum of long-term detrimental effects of early child abuse and neglect. In longitudinal studies, popular parenting practices many people believe to be effective (e.g. harsh punishment) have found to be counterproductive. Also common views of local practitioners on the effectiveness of some local preventive practices, have found to be untrue when tested in controlled research. Like medical interventions and pharmaceuticals, professional prevention and health promotion has to legitimize its existence by providing evidence for its added value and lack of negative side effects. This requires scientific research and expertise, in combination with critical reflections by practitioners and other involved stakeholders. Over the last decades much has been invested in expanding the science base of prevention and health promotion, resulting in evidence for many effective prevention programmes (Coie et al., 1993; Mrazek & Haggerty, 1994; Hosman et al., 2004; US National Research Council and Institute of Medicine, 2009). Nevertheless, prevention experts and scientists need constantly to be aware of the danger of creating too much dependency on professional care (proto-professionalisation), and the need to respect, use and reinforce the capacities already present in people and communities. This chapter discusses preventive functions and behaviours that show itself in nature and culture, not elicited by professional interventions. Scientific prevention without the drawbacks of professionalisation is only possible when it chooses this ‘natural prevention’ or ‘naïve prevention’ as a starting point and understands its role. The chapter describes examples of preventive practices we encounter in our current everyday life of animals and human beings, and can already be found in the life of primitive human cultures. 1.2 Preventive behaviour in animals Some animals stand out because their looks and behaviour seem to have an obvious preventive value. For instance, animals such as the chameleon and certain fishes and birds have a perfect camouflage and can therefore easier escape the attention of an enemy (Fig. 1.1, left). Several animals even have different appearances in summer and winter, which makes them less visible for predators, for example, brown in the summer and white in the winter (e.g. hares in the Nordic countries). Other animals, such as the peacock and certain butterflies (e.g. the moth) have eye-like spot patterns to deter predators (Fig 1.1, middle). 13 An elephant is easy to spot, so he will seek protection in the herd when there is danger. Baboons use the so-called "two phase shout", a signal to indicate threat to their colony and an incentive for collective flight behaviour to avoid confrontation with a dangerous intruder. Animals not only show preventive behaviour when they are in danger, but it may also occur long before such a threatening situation becomes reality. A squirrel stocks up on food provisions at the end of the summer. At that moment it seems useless, but later when it is winter it becomes clear that his behaviour was useful: he will not starve by a lack of food (Fig. 1.1, right). Birds migrating to the south is another example of natural preventive behaviour when the winter is approaching in the north and food will become scarce. Sometimes, the period between such animal behaviour and its effects is even bigger. When young lion cubs regularly fight with each other, they develop strength, speed and dexterity. These skills will help them later as adults to look for food and self-preservation. At first sight, these examples suggest that animals have the ability to deliberately aim for a preventive goal: self-preservation, hazard avoidance, and guard against future threats. However, as the etiologist van den Assem already stated in 1973, it is obvious that animals do not have the same sense of purpose as humans do, i.e. a pre-conceived objective, pursued through rational behaviour. We assume that animals are not aware of what they do or why they do it. There is no evidence to suggest that on a beautiful summer day the squirrel thinks, “Well this is a good time to start my winter stock of nuts. If I do not start soon I might starve in the winter”. In such cases, therefore, it is better to speak of behaviour with a preventive 'function' or 'survival value', as Darwin states it. Behaviour that appears to have a preventive function is more likely to persist through the process of natural selection. 1.2.1 Natural selection Natural selection is mainly based on a simple principle: a statistically unequal chance to contribute to the next generation. Between individuals of the same species differences (variation) exist both in structure and in behaviour. These are partly based on differences in the environment where the animals live or grow up, and partly due to hereditary differences. Because of these differences some individuals are better adapted than others to threatening 14 environmental conditions. The squirrel that was not able to stock enough food for winter will be the first to starve and does not produce offspring the next year. Better-adapted individuals produce more fertile offspring than their less adapted counterparts. The (preventive) characteristics of better-adapted animals will pass on by inheritance and may become more represented in the next generation. This process repeats itself across many generations and, if conditions remain the same for a long time, these "preventive" capacities of the better-adapted animals will become increasingly common. Darwin called this favouring of certain genetic patterns over others, ‘natural selection’. Natural selection is not the only way in which animals develop behaviour with a preventive effect. It is generally known that individual animals are capable of learning, as it applies to human beings. A dog can learn through training or by trial and error that he should not run onto the busy motorway in front of the house. However, learned behaviour is - to our knowledge- not genetically translated onto a next generation. This makes natural selection, at least for animals, the main base from which they develop preventive behaviours and characteristics. 1.3 Naive prevention In general, preventive behaviour can be seen as behaviour that prevents harm or exposure to harmful situations. In the context of this chapter on biological roots, the term prevention is less appropriate, because this word has not been introduced earlier than in the 19th century to refer to planned actions and measures to reduce diseases in the population (chapter 2: History of preventive mental health care). To describe preventive behaviours or mechanisms that have developed through biological and social evolution, other terms might be more suitable, such as self-preservation, self-defence, avoiding danger, or adaptation. Present prevention experts and health promoters use educational programmes and social and environmental measures to promote people showing healthier and more preventive behaviour (e.g. healthy eating, daily exercise, safe driving, no domestic violence). It is important that professionals are aware that people are not a blank sheet when it comes to prevention. Biological evolution, cultural transmission, socialisation, and life experiences have already pre-programmed people to many preventive behaviours, although not all of them might be effective. This includes physiological, cognitive, emotional and behavioural types of programming. When designing preventive interventions, we must take this existing programming into account, as people will not simply change their behaviour because professionals advocate for certain new behaviours as being healthier. Preventive behaviour in the domains of mental and physical health has always been an integral part of human nature and culture. The science and practice of prevention could benefit from knowledge of this so-called "naive prevention", the natural preventive behaviour that can be expressed in biological, psychological and social ways. Prevention and health promotion experts should therefore constantly ask questions like: What do people already use in their daily lives to prevent harm in the future or to safeguard their well-being? Do certain values, norms, habits and rituals have a preventive function? What positive and negative effects do they have? Are there ‘blind spots’ or incapacities in our natural preventative care, which might lead to diseases and disorders? Have traditional preventive mechanisms lost their original value due to the rapid economic and cultural changes? 15 1.4 Humans as prevention-oriented beings Humans have a wide variety of congenital and acquired capabilities to preserve their species. The following examples will show how much this preventive orientation is interwoven with everyday life. 1.4.1 Preventive role of reflexes and learned responses Reflexes on sensory stimuli form the most basic preventive capacities in human biology. An obvious example is the blink reflex. Each of us has experienced that our eyes automatically close when they are overly stimulated by bright light or an impending collision with an object. The narrowing of the pupil in bright light (pupil reflex) has a similar preventive function; it prevents tissue damage in the retina. Also pain sensations try to protect the body against (further) injury. A small child touching a hot stove, will pull back immediately to avoid a serious burn. Pain is a preventive reaction providing very pervasive signals that “tell" us that something threatens to go wrong. Apart from the prevention of direct damage, the pain signal is also a protective response in long-term prevention. Those who have once been badly burned will be wary that it does not happen again. The experience of pain enables us to learn adequate responses to avoid similar dangerous situations in the future. Reflexes are preventive capabilities that humans have acquired through biological selection processes during their evolution. Furthermore, we learn signals ("cues") of potential dangers through classical and instrumental conditioning and through tradition and education. Examples are beginning toothache, "something sharp", and a thermometer with a value below zero, a red light signal, a siren, a label with a skull, and the smell of smoke. Knowledge of the meaning of these signals helps us to prepare for risks and future damages and to avoid or reduce them. Depending on when a threatening situation is already present or is to be expected in the near future, we speak of reactive and proactive prevention. The experience of pain or a direct confrontation with violence indicates that there is already a health-threatening force ("stressor") present. Preventive behaviour in response to this existing stressor is called "reactive prevention” and aims to reduce its harm. When we respond to signals of future dangers and show anticipatory behaviour to avoid or prepare for them, or even prevent them to occur, we speak of "proactive prevention". This is the case when we protect our house against burglary, brush our teeth, and take driving lessons or when parents or teachers inform children about the danger of sexual abuse and how you should act when such a situation should arise. 1.4.2 Preventive behaviour in daily life Although we are not always aware of it, there are innumerable examples of preventive behaviours in our daily lives. Parents explain their children what dangers they might encounter when they will participate in traffic or start using alcohol, in the hope that they are better prepared for these risks and learn to avoid them. Dangerous drugs and bottles are stored in a way children cannot poison themselves. They are taught social skills to be capable to build and maintain good social relationships in their later life (Figure 1.2). 16 Parenting has everything to do with prevention: teaching and developing knowledge, social-emotional and cognitive skills and resilience to stress during childhood, to prepare the later adolescent and adult to be able to tackle many problem situations and to make them able to further develop themselves. Taking out an insurance policy is another example of prevention. People insure themselves against the risk that they will face unaffordable costs in the future, due to illness, accidents, fire or damage to others. Preventive behaviour requires a current investment (cost) to avoid higher costs or receive important benefits (profit) in the future. We have become used to information about fire, accidents or burglary prevention through TV programmes, posters, brochures and other warnings. Even many simple tools we use daily have a preventive value, such as a winter coat, bicycle-bell, toothbrush, door key and an umbrella. They have become a familiar part of our everyday environment. In short, our everyday life and social life are intertwined with many preventive behaviours and mechanisms. 1.5 Prevention in primitive cultures The need to prevent disaster, to avoid all kinds of ‘evil’, and to secure our own survival and happiness is typical for human nature. Preventive customs are a substantial part of any society and culture, and are already very visible in so-called primitive cultures. 1.5.1 Sculptures, masks, fetishes and amulets This preventive attitude is clearly reflected in the sculptures of primitive tribes. For the modern Western world, these sculptures are mainly aesthetic objects, but originally they were not purely created for this purpose. In primitive societies the artist had an important functional and religious role. Primitive men live in a difficult world, faced with lack of food, illness, death, danger in the hunt and attacks from other tribes. 17 To protect themselves humans in primitive cultures sought refuge in magic and religion, and asked for the help of gods and the spirits of ancestors. The artist's role was materialising the contact with this supernatural world. Sculptures, masks and amulets are primitive tools to come into touch with and visualise the spiritual world (Figures 1.3 and 1.4). People in primitive cultures believe that gods and ancestors are actually present in these images and when in a good mood - have a protective (preventive) effect on their daily life (Fraser, 1962; Winizki, 1972; Africa Museum, 1981). These images and sculptures were placed in the house, at the front of a temple (guards) or sometimes on the borders of the village to protect residents against diseases and hazards. In a threatening situation, a new nail was beaten in an ancestor sculpture to activate the protective power of the ancestor. Terrifying masks were used to ward off impending epidemics or other evil. Amulets are small versions of these statues and masks that people carried with them to protect themselves. In modern society amulets and charms are still used for this purpose. Museums on primitive art, such as the Africa Museum near to the university town Nijmegen, offer collections of such protecting sculptures and masks. 1.5.2 Taboos The use of taboos, found in all societies, also has a preventive meaning. Taboo is originally a Polynesian word (tapu) which refers to ‘something that needs to be avoided’. This can be persons, objects or acts that may possess a threat or dangerous powers. Because of the demonic conception of life in primitive cultures, ‘madness’ was seen as possession by evil spirits or as punishment from the gods for the breaking of a taboo. When the behavioural constraints of taboos were breached, an automatic supernatural punishment was supposed to follow. For example, food taboos on consuming meat of particular animals exist worldwide. Although taboos are often related to religious notions (e.g. pure and impure), the origin of taboos often had mostly a very practical reason. The taboo on eating pork meat in the Jewish culture can be explained from the time that bacteria were often present in pork meat, and the food often led to disease or death. We can speak of a rational measure with a clear preventive function, even though at the time people did not know about bacteria and attributed a religious meaning to the harmful effects. The modern use of fridges and preservatives made the original function of this taboo superfluous, but the religious tradition continues. There are probably many more of these in origin preventive actions and taboos that we now no longer recognise as such. They have lost their function due to material and cultural changes over time. They still exist because of their derived purpose, which already in early social psychology is called the principle of functional autonomy (Allport, 1937). Another well-known taboo is the taboo on incest (e.g. Freud's 'Totem und Tabu', 1912). Margaret Mead (1968) describes how the opinions of scientists on the taboo function of incest 18 diverge widely. Some suggest that the purpose of the incest taboo is the prevention of inbreeding and mental retardation. Others, such as Freud, consider the function of the incest taboo as protection of the integrity and continuity of the family. Biologists state that the incest taboo serves to arrange complementary relations with other social groups, because these relations are necessary for the development of the gene pool and the chances of survival of our species. Especially in the last 25 years, psychological and psychiatric research has made evident that incest has a very harmful and long term impact on the social-emotional development of a child and later functioning of adults. Independent of the type of explanation all theories attribute a preventive function to the incest taboo. 1.5.3 Myths and legends Also myths and legends perform a preventive role in ancient cultures and Eastern philosophies. Referring to Chinese philosophies such as Taoism, Mora (1962) states in his essay on the history of psychiatry: "The principle of prevention achieved through proper education was also stressed: the ancient sages did not treat those who were already ill, they instructed those who were not ill" (p. 18). Myths and legends, ancient types of story-telling, are used to prepare us for possible disaster, but also to educate on coping with common life issues such as illness, death, and parenting problems. Mostly they do not offer a concrete advice how to act, but give courage and self-confidence to people, and offer a positive outlook on problem situations. They contain a clear ideological message: to make sure that life does not get you, it is important to develop your physical and mental strength. This message strikingly resembles to what in modern mental health promotion is called the "educational approach" or “positive mental health approach”. This approach has a strong emphasis on strengthening people’s personal skills (resilience). More confidence, more selfunderstanding and greater self-realisation are partly pursued as an end in itself, and partly because they offer protection against many life threatening conditions, including mental disorders. This approach builds on ancient philosophical traditions such as Zen Buddhism, in which the process of self-realisation is also seen as the main condition for mental well-being. Educative story-telling through myths and legends is associated with past times and does not appeal to modern youth, who will disregard them as outdated practices. It would be incorrect, however, to conclude that educative story-telling has disappeared in modern culture. Current practices of story-telling with an educative function can easily be found in comic educational strips, children’s books and modern saga (e.g. Harry Potter, Lord of the Rings), modern movies and documentaries (e.g. relational problems, parenting) and on the internet (e.g. websites of NGOs, blogs and Facebook of experts with a lived experience, you-tube films by fellow-sufferers). 1.6 The preventive meaning of rituals Rituals exist in all societies, both primitive and modern. Due to numerous scientific studies much is known about the psychological and social meaning of rituals (e.g. van der Hart, 1978; d'Aquili et al., 1979; Lukken, 1984; Salemink, 2006). This can help us understand how ‘natural’ preventive mechanisms work, because rituals represent a clear example of these natural 19 mechanisms. Moreover, these studies show that the disappearance of traditional rituals and the lack of renewing rituals can have a strong impact on the mental health of people. It is not easy to describe what a ritual is, while multiple characteristics are attributed to rituals, reflecting different views. Rituals can have religious, psychological and social meanings. In general, it can be said that rituals have a symbolic character. They are “habits with something extra: the acts refer to something else” as the clinical psychologist Van der Hart already stated in 1978 (p.32). He defines rituals as: "prescribed symbolic acts that need to be performed in a certain way and in a certain order- whether or not accompanied by verbal formulas” (p.33). For this book on prevention, especially the functional meaning of rituals for a person, his environment or Box 1.1 Types of society as a whole is important and will be discussed in the rituals relevant to mental health next sections. There is a large variety of rituals, e.g. protest rituals, Healing rituals war rituals, healing rituals, liturgical rituals and opening Birth rituals rituals. There are also repetitive rituals, for instance greeting Initiation rites rituals. Seen from a mental health perspective the most Marriage rituals important rituals are the ‘transition’ rituals (rites de passage) Family rituals because they help us cope with important changes in our Mourning rituals Meeting rituals lives. As the death of a child, partner, parent or a friend Religious rituals places a heavy emotional burden on people and strongly Conflict-related rituals challenges their emotional competence and capabilities to Reconciliation rituals mourn, mourning rituals are discussed more extensively (Box 1.1). 1.6.1 Functions of rituals This paragraph will give an overview of the different functions rituals can have, as described in anthropological (d'Aquili et al., 1979; Lukken, 1984) and psycho-logical theories (van der Hart, 1978). The adaptive and economical function Generally, a distinction is made between psychological and social functions of a ritual, in which social can refer to functions of rituals within groups, communities and the society as a whole. Throughout their lives individuals, groups and communities have to deal with many problems, have to react to threats and challenges, and to adapt to internal and environmental changes. This was also the case for previous generations, so for most problems we can use the creativity and solutions that others before use have developed. Adequate solutions will be repeated and transferred from generation to generation, which is an essential element of ‘culture’. Rituals are the carrier of important learning experiences from the past that make them available for the present. In a way, they can be considered as the preventive memory of a society. As long as they are a useful solution for current problems, rituals will form an important part of our adaptive systems and preventive capacities. Besides this adaptive function, rituals have an economic function. Because they serve as ready solutions, they save us a lot of thinking, risky try-outs and disappointments, and needless loss of energy in difficult periods of our life. However, there is a drawback. When rituals do not longer offer a good solution to our problems due to significant changes in our cultural and social environment, and people stick to those rituals by habit or tradition, they might backfire and hinder more adequate solutions. 20 For example, in the 1950’s there were strict rules regarding sexual behaviour before marriage, often dictated by the church. Adolescents had to adhere to certain courting rituals in which talking about sexuality or birth control was taboo. Nowadays, with different opinions about relations and sexuality before marriage, we are aware that such traditional taboos pave the way to unwanted teen pregnancies. Especially among teenagers, unwanted pregnancies are an important risk factor for the development of serious mental problems and problem behaviour in both the young mother and her child, as many developmental studies have shown. New adaptive rituals have emerged, such as talking about birth control measures during a first sexual encounter and parents who inform their children about the use of preservatives during early adolescence. A Dutch study on sexual health among almost 5000 youngsters between 12 and 25 years showed, however, that in some ethnic cultures or religions, these traditional rituals are still common (De Graaf, Meijer, Poelman & Vanwesenbeeck, 2005). Other functions that have been attributed to rituals are mostly specifications of the adaptive function. They are connected to specific stages of the adaptation process: perception and interpretation of the situation, emotional response, selection and implementation of an adequate behavioural response. These stages constitute the core elements of modern stress and coping theories. Perceptual function. Rituals may structure perception, offering an interpretational framework that helps people understand and calculate their situation. Rituals indicate what is and what is not important in a situation. It secures against disintegration of the perception of our environment in times of stress. Rituals protect us from a collapse of our cognitive systems, offer a cognitive matrix and regulate our affective state (McManus, 1979). This applies, for instance, to conflict resolution rituals in situations that are highly emotional. Emotional function. Rituals can play an important role in emotional dealing with problems or transitional situations. This function is expressed in different ways: it gives room to emotional expression, and they can be confrontational. Regular confrontations with farewells, such as memorial events, limit the need to suppress our feelings. Rituals can also provide emotional support. Behavioural function. Offering behavioural reactions in times of stress is one of the best known adaptive functions of rituals. Lukken (1984) describes these situations as “need-to-act-butdon’t-know-how” (pag.24). The “don’t know how” refers to situations that are new to the person involved, and he does not know how to react. It may also be that the problem situation exists of an overdose of different impressions which makes it difficult for him to choose from the different behavioural reactions that are available. In the first case the rituals offer an effective response; in the second case the rituals contribute to a reduction of choices among the many possible reactions. This is not only useful for individuals, rituals also offer collective behaviour models to communities in times of traumatic events or ecological stress, and may serve as a buffer against extreme social changes in the environment. This is the case, for instance, when schools or communities are confronted with deadly shootings, which unfortunately has happened in the US and Europe many times over the last decades. In such hard times, rituals can help a community to collectively deal with rage and grief. Religious or magical function: some ritual behaviours or thoughts have a magic function, which means that persons who use such rituals think they can evoke supernatural forces to support and protect them. This has been discussed earlier when we talked about the protective function 21 of statues and amulets. Also using prayers as a common way of coping behaviour among religious communities in times of stress and threat, exemplifies this function. Irrespective of the question whether supernatural forces actually exist, the mere belief in the existence of such forces can already make a huge difference in dealing with highly stressful situations. This is similar to the empirical finding that perceived social support is probably more related to stress reactions then enacted support. Besides these basic functions, rituals may have other functions such as sense making, contacting the past, strengthening identities of persons and groups, reinforcing group cohesion and social control. The discussion above reveals that rituals not only serve multiple adaptive functions for individuals, but also for social systems such as families, organisations or communities. 1.6.2 Transition rituals In many places and times people have used rituals and ceremonies to highlight transitions from one stage of life to another. These transitions may bring radical changes and can even become a crisis. Therefore, some authors also speak of "rituals for life crises”. Gerald Caplan, one of the founders of preventive psychiatry, argued in his crisis theory that it depends on how a crisis is processed whether a person ends up weaker or stronger, with more self-confidence, skills and less vulnerable, or with severe mental problems and weakened capacities (Caplan & Grunebaum, 1967). Major life crises can be a source for both the emergence of mental disorders and strengthening resilience and social-emotional development. Which of the two outcomes will occur depends on how the coping process during the crisis proceeds and whether social support is available. Transition rituals have an important supporting role in coping with a crisis: by restoring a lost balance and developing a new identity. They offer a framework that invites those who are affected to express and process their grief or fear. They indicate what kind of support neighbours, family, friends or colleagues should give to people who go through a difficult or challenging transition, such as having a first child, becoming seriously ill or coping with the death of a partner. Rituals accompany changes in position and status of individuals and structural changes within groups. They contribute to the creation of new social relationships between people. Rituals are the scenarios of a culture, on how such transitions can be made. For these reasons it is important to integrate insights about the role of rituals with insights from crisis theory about how people deal with crises in their lives. Well-known transition situations are marriage, pregnancy, birth, a child leaving home, and the death of a spouse. These are transition situations for which culture offers or prescribes many rituals. The most sustainable rituals are probably those surrounding marriage and funerals, although many changes in the form of these rituals have taken place over time. Other rituals have even completely disappeared from our society and can only be found in other cultures. Puberty rites or initiation rites are well-known examples. During these rituals the life as a child is ended by symbolic acts and the boy or girl is initiated in the adult world. Although some initiation rituals are no longer used, others still exist in our culture, such as the initiation rites that are practiced by student fraternities. 22 1.6.3 Mourning rituals Our country, the Netherlands, had an extensive culture of mourning rituals, which remained most preserved in smaller rural communities, although many of those rituals have disappeared. Lukken (1984) gives a striking description of these old mourning rituals: "When someone died, he was laid in state at home. The curtains of the mourning house were closed and the mirrors covered. The survivors were in mourning: They wore black or dark clothing; around the sleeve of the overcoat often a black belt was worn. The condolence visit began and often ended by saying goodbye to and praying for the dead. On the day of the funeral the body was brought to the church and the cemetery in a mourning coach. The horses were covered with black sheets. The windows of the accompanying coaches were closed with black curtains; the survivors sat in the twilight. After the funeral service, people stayed in mourning for a long time. They did not appear on festive occasions. Especially widows and widowers continued to be marked as such for a long time." (pag.46) In the past death and mourning were much more a public event. Also, the fact that people usually died at home and not in hospital, made a large difference for this visibility. Former mourning rituals offered ample opportunity to say goodbye to the deceased and prevented that death was obscured. In the months after the funeral, the survivors were often confronted with the dead when they made their way through the village; the cemetery was often not far from the village centre and mostly next to the central church. Moreover, in the year after the death periodic memorial services were held in church for families and neighbours. The supportive role of rituals in the mourning process is especially visible in the rules concerning mourning clothes. In the 19th century and the beginning of the 20th century, there was a whole cult of mourning clothes. All major cities had well-stocked stores specialising exclusively in mourning clothes. The black clothes reminded the survivors constantly of the separation from their beloved. But for the immediate surroundings, such clothing was also a continuous reminder to inform how it went and to offer help. Both the commemoration services and rules for mourning clothes provided for a gradual reduction of mourning and a transition to normal life and a new identity (e.g. a single). In successive periods mourning clothes were gradually reduced, as can be seen in Figure 1.5 (Tayler, 1983). In primitive cultures, mourning rituals were often much simpler. For instance, mourning women in West-Iran often covered themselves with white ashes and clay in the period after the funeral. In many oriental countries like China, the mourning colour is white. 23 Decline of mourning rituals The preceding description has made clear that mourning rituals serve many psychological and social functions. They provide ample opportunity to pay the last respects, to express emotions and there is little occasion to escape confrontation with death. The mourning rituals provide clear behaviour rules at a time that most people are overcome with grief. Rituals ensure that others will be there to offer emotional and practical support. Ritualised mourning has the psychological benefit that the mourning period has a clearly prescribed end, making a permanent fixation on mourning less likely. When these types of rituals and their associated functions suddenly disappear, we become aware of their preventive significance. Rituals play an important role in the prevention of serious problems with mourning. When we look today at how death, funeral and mourning take place, the difference with previous periods becomes apparent. Most of the time people die in hospital. Many people do no longer have a religious affiliation, which makes the use of rituals like a traditional funeral and memorial services offered by churches less accessible. City dwellers often do not know who passed away in their neighbourhoods. Traditional visiting rituals throughout a neighbourhood after someone died are no longer in place. The funeral often takes place outside the local community. In our daily lives a social taboo on death exists. Frequently death is hidden and buried away. There are few rituals left to express sorrow and mourning. They have been replaced by a social reward for controlling feelings of sadness and getting back to normal as soon as possible. Given this tendency it is not surprising that unresolved mourning problems are a common issue in modern psychotherapy. Complicated grief disorder has a prevalence of 6.7% after major bereavement (Kersting, Brahler, Glaesmer, & Wagner, 2011) and among grieving older adults even 25.4% (Newson et al., 2011). Fortunately, in recent years there has been a renewed interest in mourning rituals, e.g. dying at home, erecting shrines for those who killed in a traffic accident and silent parades after violent accidents in the community (Fig. 1.6). At funerals new rituals have been developed over the last two decades. Also the public funerals and memorial services of well-known personalities (e.g. Princes Diana, Michael Jackson, and Andre Hazes) helped in the renewed attention for mourning rituals. 24 1.6.4 General decline of rituals Traditional rituals fall into disuse when they are no longer effective, that is when they no longer have a function or become outdated. This can have many reasons: new social ideologies, secularisation, blurring of the meaning of traditional symbols, commercialisation, and the increasing pluralism in society. Rituals are bound by place, time and culture. Given the rapid social changes in the last 50 years, it is not surprising that we do no longer find recognition in many traditional rituals. This doesn’t need to be a problem. From a functionalist view, it is clear that behaviour is abandoned when it is no longer effective. New forms of behaviour are then used to replace it. This is exactly the problem when old rituals disappear, but new ones are not yet developed. To date, the transition from one life phase to another is no longer ritually emphasized, or only very little. The increasing pluralism in society contributes to less room for new rituals becoming generally accepted. Already in the 1970s, Van der Hart stated that traditional cultural rituals are partially replaced by different types of rituals that are smaller and family centred: "Rituals have a more ‘worldly’ and less religious nature; they are more intimate and less public, less repressive and authoritative; they are fewer in number and less extensive. Members of a family copy rituals from their parental house, but adapt them to their own needs”. (van der Hart, 1978, p. 248). He describes that psychotherapists frequently have the task to help their clients to develop their own new rituals in order to improve coping with major losses and changes in life. The plea to use rituals and the development of new rituals as a therapeutic factor is also useful for prevention. Educational programmes in schools can indicate the use of functional rituals and teach youngsters to design or adapt their own rituals. This has happened, for instance, in school-based programmes to prevent bullying, were new rituals are introduced to enhance communication between bullies and their victims. 1.7 Conclusions This chapter started with the proposition that preventive mental health care without the drawback of professionalisation is only possible when it takes naive prevention (i.e. existing preventive behaviours of people) as its starting point. Knowledge on naive prevention enables professional preventionists and health promoters to better attune to the needs and strengths of the people they serve (Box 1.2). This can avoid that professional prevention has an alienating or even iatrogenic effect. More attention to naïve prevention makes it easier for prevention experts to adopt a respectful and democratic attitude towards their target groups What has naive prevention taught us about prevention and preventive mechanisms? It became evident that we are daily involved in numerous preventive behaviours. Preventive behaviour is not something we have learned from professionals in the 20th and 21st century; it is a basic feature of the nature and culture of both animals and man. Preventive behaviour is closely related to our daily battle for existence and survival, the evolution of the species and adaptation to the constant changes around us. This chapter discussed many examples from the animal world, primitive cultures and modern western culture. The study of animal and human behaviour showed that it is meaningful to make a difference between functional preventive behaviours, i.e. inborn behaviours with a preventive effect, and intentional preventive behaviours, in which people purposefully want to achieve a preventive effect. Many preventive behaviours features are innate and result from processes of natural selection; 25 others are acquired and the result of learning processes, reflection, parenting and education, sometimes concerning learning processes across multiple generations. 1.7.1 Elements of preventive processes and capacities This discussion on preventive behaviours, features and processes has revealed the following: • Preventive capacities can be inborn or learned. Sources for the development of preventive capacities are: biological influences and natural selection (heredity), socialisation (e.g. parenting, model behaviour, education, myths and legends), personal learning experiences and self-reflection. • Preventive reactions can be reflexes, intuitive or rational in nature, more internal or external (behavioural). • The perception and evaluation of impending danger, understanding its causes and the execution of preventive behaviours are all basic adaptive capacities of humans, which can be biological, psychological or social in nature. • To protect health and to prevent disease many types of preventive behaviours and mechanisms can be used. They can refer to behaviour or processes of individuals, organisations, neighbourhoods or societies. • In response to danger or threats humans and animals make use of signals to enable the perception of danger and to enhance timely preventive behaviours. The time period between signal, preventive behaviour, and the moment that the preventive effect becomes visible can vary significantly. Preventive behaviours can focus reactively on preventing damage in the present (e.g. pain), but also proactively on achieving long term benefits (e.g. strengthening capacities for adulthood, preservation of health, preventing future disease). • The social environment can have different preventive roles: direct protection against danger by influencing the danger source or prevent exposure to it, sending signals, social support, implementing taboos or rituals, setting behavioural norms, and creating legal barriers to expose people to high risks and obligations to prevent danger. • The prevention of serious mental and physical problems can be studied as an individual phenomenon (e.g. instinctive reactions, attitudes, individual preventive behaviour), but also as a behaviour that is contingent on our social environment and culture (e.g. taboos, norms, customs, parenting, education, legislation). 1.7.2 Failing naive prevention Experience shows that natural prevention has its boundaries and sometimes fails. Especially, when failing occurs frequently and systematically, professional prevention can play a significant role, for instance to help preventing diseases, accidents or domestic violence. Crucial questions are: In what situations does naive prevention fail? Why is this the case and which groups are especially affected? It is possible to discern some typical situations in which practices of naive prevention could fail (Figure 1.7)? 26 • Overdose of threat or damage: The danger is too grave compared to the natural preventive capacities available to a person and his direct environment, for instance in extreme circumstances as natural disasters, child abuse, hostage, war violence or combinations of threatening circumstances. • Unforeseen danger or consequences: A danger was not perceived or too late because (a) there were no alarming signals or they were not recognised as such and (b) lack of knowledge of the dangers and the harmful consequences of certain circumstances. • Only short term anticipation: A selective focus on the ‘here and now’ and the inability to anticipate long term dangers and benefits. It is more difficult to recognise long term dangers and benefits than those that we face directly. Eating unhealthy food and harsh parenting are good examples. • Insufficient knowledge of the causes: People might not be familiar with the causes of a certain danger, or might have incorrect beliefs about the causes. For instance, parents might not understand what causes aggressive behaviour in their children, or might have wrong ideas about what causes such behaviour. As a consequence, they are poorly equipped to prevent such behaviour in their children. • Lack of preventive capacities: This lack can be, for example, insufficient knowledge or skills to deal with a problem, or inability for long term investment. This can be caused for example by a lack of coping skills or by exposure to inadequate role models. • Lack of support and protection from the social environment: This could be caused by a loss of rituals or by rituals being outdated, growing individualisation in society, decline of traditional family ties and neighbourhood networks, more single parent families and the increase of single elderly, designs of new neighbourhoods not attuned to current needs for communication and support. 1.7.3 Challenges for professional prevention These six causes of failing naive prevention each offer an important entry point for actions by prevention or health promotion professionals. For instance, prevention can be aimed at the elimination of child abuse (overdose of stress), making schools aware of the long term negative effects of bullying (lack of awareness about consequences), educating about mechanisms 27 through which children of parents with a mental illness develop a high risk for problems themselves (knowledge) and how parents and children can tackle these causes (skills), and creating new opportunities for social support for these children at risk. As these examples show, prevention of health problems can follow different types of strategies: 28 • Making people aware of our preventive nature, and advocating the importance of investing in prevention and health promotion. People need to become more aware of their preventive capacities and strengths, so they can use them more often and more adequately. This applies not only to individual persons and families, but also to schools, non-profit organisations, local communities and companies. • Stimulate awareness and reflection on the impact of one’s own behaviour and social risk factors: people, families, schools, and companies need to be stimulated to look critically at present risk behaviour and social threats to mental health and well-being. • Improve preventive capacities and health promotion competence through education: if necessary support people breaking the habit of ineffective preventive behaviours and learning new, more effective behaviour through education and training. Health promoting capacities also refer to the way schools, neighbourhoods and communities function. The use of rituals with a preventive function and the introduction of new, effective rituals are an example of such preventive capacities. • Health protection: prevent an overdose of threat of important stressors by implementing social and environmental interventions, e.g. mass education, social policy implementing local measures, fighting against repressing ideologies, supporting human and child rights, and implementing preventive legislation. • Strengthen social support: promote the possibilities of people to support each other in solving problems and protecting each other’s health. Examples are parenting education, strengthening social networks and supportive peer contact, and the creation of self-help organisations or supportive internet communities. Literature Afrika Museum (1981). Achter Spiegels. Spiegel en spijkerbeelden uit Neder Kongo. Berg en Dal. Allport, G. W. (1937). Personality. New York: Holt. Assem van den, J. (1973). Gedrag als aanpassingsfenomeen, een beschouwing over de functie van gedrag. In Ethologie, de biologie van gedrag. Wageningen. Caplan, G., & Grunebaum, H. (1967). Perspectives on primary prevention. A review. Archives of General Psychiatry, 17(3), 331–346. Coie, J. D., Watt, N. F., West, S. G., Hawkins, J. D., Asarnow, J. R., Markman, H. J., et al. (1993). The science of prevention. A conceptual framework and some directions for a national research program. American Psychologist, 48, 1013-1022. D' Aquili, E. G., Laughlin, C. D., & McManus, J. (Eds.). (1979). The spectrum of Ritual. A biogenetic structural approach. New York: Columbia University Press. Fraser, D. (1962). Primitieve Kunst. Den Haag: Gaade. Graaf de, H., Meijer, S., Poelman, J., & Vanwesenbeeck, I. (2005). Seks onder je 25e: Seksuele gezondheid van jongeren in Nederland anno 2005. Delft: Eburon. Hart van der, O. (1978). Overgang en bestendiging. Over het ontwerpen en voorschrijven van rituelen in de psychotherapie. Deventer: van Loghum Slaterus. Hosman, C. M. H. (1989). Toekomst en innovatie van de preventieve geestelijke gezondheidszorg. Tijdschrift Gezondheidsbevordering, 10, 184-207. Hosman, C. M. H. (1991). Adaptatie en gezondheid: een integratieve benadering. In C. P. F. van der Staak & C. A. L. Hoogduin (Eds.), Psychologische aspecten van leefstijl en adaptatie. Nijmegen: Bureau Bêta. Illich, I. (1974). Medical nemesis. London: Calder & Boyars. Kersting, A., Brähler, E.H., & Wagner, B. (2011). Prevalence of complicated grief in a representative population-based sample. Journal of Affective Disorders, 131, 1–3, 339–343. Lukken, G. (1984). Geen leven zonder rituelen. Baarn: Ambo. McManus, J. (1979). Ritual and Ontogenetic development. In E. G. D'Aquili, C. D. Laughlin & J. McManus (Eds.), The spectrum of ritual: a biogenetic structural analysis. New York: Columbia Press. Mead, M. (1968). Incest. In: International Encyclopedia of Social Sciences. London: Collier and MacMillan Publishers. Mrazek, P. J., & Haggerty, R. (Eds.). (1994). Reducing risks of mental disorder: frontiers for preventive intervention research. Washington: National Academy Press. National Research Council and Institute of Medicine. (2009). Preventing Mental, Emotional, and Behavioral Disorders among Young People: Progress and Possibilities. Committee on Prevention of Mental Disorders and Substance Abuse Among Children, Youth and Young Adults. Washington, DC: The National Academies Press. Newson, R.S., Boelen, P.A., Hek, K., Hofman, A., & Tiemeier, H. (2011). The prevalence and characteristics of complicated grief in older adults. Journal of Affective Disorders, 132, 231– 238 Salemink, O. (2006). Nieuwe rituelen en de natie. Inaugurele rede, Vrije Universiteit Amsterdam. Tayler, L. (1983). Mourning Dress. London: George Allen and Unwin. Winizki, E. (1972). Gesichter Afrikas. Luzern: Kunstkreis. 29 Study questions for this chapter An exercise to become aware of everyday behaviours that are preventive in nature: Take in mind a random weekday. Write down all actions you usually perform during the day. Then note for each behaviour if it helps to prevent a certain (future) damage or negative outcome from occurring. Differentiate between behaviours with a short and a long term preventive outcome. In conclusion: How preventive do you consider yourself? What improvements in your preventive behaviour do you consider as necessary? A second exercise: Imagine what would happen if warning signs such as in traffic and on products would disappear overnight? Imagine what would happen (and has happened) when various rituals disappear in your life that have a meaningful function? On a social level: What would be the impact on mental health and wellbeing when a number of social laws would be abolished e.g. Anti-discrimination, Labour and Security Act? What is meant by naïve prevention? Why is knowledge of naïve prevention important for prevention professionals? How can they use this knowledge in their work? Why is man essentially a prevention-oriented human being? What are differences and similarities between preventive behaviours and functions of animals and human beings? Explain the concepts "structural iatrogenesis” and “proto-professionalisation” and why these should be avoided. What qualifies as "reactive prevention" and what as "proactive prevention"? What has this reflection on naive prevention revealed as basic features, elements or mechanisms of preventive processes? What are the developmental processes through which animals and humans have acquired preventive capacities? What role do rituals play in prevention? List some different types of rituals. What functions can rituals perform? When do rituals start working counterproductive to health and wellbeing? Can you think of new rituals with an evident preventive value? Explain in what ways naive prevention can fail. Which tasks and strategies for professional prevention can be extrapolated from this failure? 30 2 History of preventive mental health care: from 1800 to present 2.1 Introduction 32 2.2 Treatment of mental illness before 1800 33 2.3 The nineteenth century 34 2.3.1 Reform movement in the period 1790-1885 and the moral treatment approach 34 2.3.2 Development of social medicine and the role of the state 36 2.3.3 Darwin and Social Darwinism 38 2.3.4 Psychiatry after 1850 39 2.4 The period around the turn of the century until the 1950s 40 2.4.1 Adolf Meyer and psychobiology 40 2.4.2 Mental Hygiene movement 41 2.4.3 Freud, Adler and the Neo-Freudians 44 2.4.4 Eugenetic movement 46 2.4.5 Influence of First and Second World War 47 2.5 The 20th century until 2010: Prevention Developments in the Netherlands 48 2.5.1 Mental hygiene in the Netherlands 48 2.5.2 The impact of the Community Mental Health Movement 49 2.5.3 Gerald Caplan: consultation method and Dutch prevention 49 2.5.4 Prevention departments in mental health services 50 2.5.5 Developments in the Netherlands after 2000 51 2.5.6 Governmental policies 52 2.5.7 International collaboration and programme exchange 53 2.6 Conclusions 54 Literature 55 Study questions for this chapter 56 31 2 2.1 History of preventive mental health care: from 1800 to present Introduction Compared to psychotherapy, science-based mental disorder prevention as a professional approach made a much later entrance into the field of mental health care. Nevertheless, its history goes back to the first half of the nineteenth century. First, knowledge of the history of prevention in mental health offers insight into its social and scientific roots and the theoretical paradigms and ideologies that have influenced preventive thinking over the course of time. The development of ideas about preventing mental disorders is closely related to the emergence of social medicine, sociology, psychology, educational sciences and psychiatry in the nineteenth century and the beginning of the twentieth century. The historical ties with these different scientific disciplines accounts for why prevention and prevention science constitute a typical multi-disciplinary field. Secondly, one of the main distinctions in prevention, namely its differentiation into primary, secondary and tertiary prevention, is strongly grounded in the subsequent historical stages of this field. The development of a preventive approach first focused on tertiary prevention (improving the quality of life of psychiatric patients and relapse prevention), then secondary prevention (timely recognition and treatment of mental illness) and more recently primary prevention (preventing the emergence of mental illnesses). Thirdly, studying the history of the emergence of prevention and health promotion offers a better understanding of the social and political conditions under which prevention and health promotion practices and the development of this new professional field could flourish. The presence of ideas and theories on preventing mental disorders are in themselves insufficient to develop a thriving prevention practice in the society at large. Crucial additional conditions are, for instance, an active role of governments accepting responsibility for public health and prevention, nationwide prevention policies and financial investments in preventive programmes, prevention research and prevention expertise, and the active involvement of citizens, community leaders and a wide range of non-profit and profit organisations. Fourthly, historical analyses could also provide insight into the mistakes made earlier in the development of prevention, which could help us avoid similar mistakes in the future. For instance, the development of preventive care in the period before 1970 was almost exclusively based on ideologies and lacked a proper scientific foundation. For this reason, the initial enthusiasm and support for the idea of preventing mental disorders gradually made room for scepticism during the 1980s. This only changed after the emergence of a solid scientific foundation for mental health promotion and prevention, and evidence of the effectiveness of preventive interventions gradually became available after 1990. In this chapter, the history of mental health prevention will be divided into four periods (Figure 2.1). First, we will describe the period up to 1800 in which no systematic vision on prevention of mental illness existed. Next, developments during the 19th century will be discussed; a period in which the first steps toward a science of public health and prevention of physical diseases emerged. The third section of this chapter describes the developments in the first half of the 20th century, characterised by the emergence of a global “mental hygiene 32 movement”, representing the origin of current mental disorder prevention. It was not earlier than two decades after World War II that a specialised professional prevention and health promotion sector entered the field of primary health care and mental health care, with social scientists in a role of prevention and health promotion experts. 2.2 Treatment of mental illness before 1800 According to Hippocrates and other Greek doctors from the pre-Christian era, mental illness could be regarded as a disease process that is not distinctly different from physical illnesses. The causes were sought in natural rather than in supernatural or spiritual causes. Therefore, mental illnesses should be left to the care of doctors and not priests. Despite this relatively 'modern' vision of Hippocrates, a religious or demonic vision on the development of mental disorders dominated well into the Middle Ages. As we have seen in the previous chapter on naive prevention, this demonic vision on the origin, treatment and prevention of illness was present in various primitive cultures. In this vision, the causes of illness are attributed to the influence of the evil powers of gods, demons, and ancestors. In medieval feudal society, care for the mentally ill was in the first place a family affair (Beek, 1974). The mentally ill person was seen as a deviant who was at the least tolerated. Only the acutely dangerous insane were isolated. In those days, there was no form of institutionalised care for the mentally ill (Fox & Stoop, 1975). Some insane persons were ‘treated’ by doctors, priests, ‘medicine men’ or ‘saints’. The healing practices often consisted of a mixture of religious, magical and medical methods, such as pilgrimages, exorcism, flogging, and herbal and thermal treatments. During the 15th century, the first large madhouses were created, such as the Reinier van Arkel Asylum in ‘s-Hertogenbosch, the Netherlands (Figure 2.2). These were designed especially for the most delirious mad persons. These madhouses can be considered as precursors of the increasing societal isolation of mentally ill and other ‘poor deviants’ which takes place in the course of the 16th, 17th and 18th centuries. The ‘lunatics’ who were less seriously ill often ended in disciplinary institutions and workhouses. These accommodated those who were unproductive or cast a stain on civil order with their unruly behaviour. These houses saw 33 beggars, vagabonds, the unemployed and the dangerous mentally insane, but also those who behaved in an unruly and disobedient manner, such as rioters, drunkards, prostitutes and heretics. The emergence of asylums, correctional institutes and workhouses has been linked to the rise of a capitalist society in which families had no opportunities or were no longer willing to look after disturbed relatives (Crossley, 2006). During the Enlightenment and its glorification of the ‘Reason’, there was little attention for the mentally ill, except for a group of humanistic professionals. Under the influence of the French Revolution and the huge need for cheap and unskilled labour by the end of the 18th and during the 19th century, a division was made in these houses between the ‘insane’ and the ‘criminals’. Those criminals who were considered fit to work were urged to become factory workers. The French philosopher Foucault made the comment that in the 18th century this division originally was advocated because criminals deserved a better fate than to be locked up with the insane (Foucault, 1964). The result, the isolation of the 'mad', was the basis on which psychiatry and psychiatric science could develop in the course of the 19th century. 2.3 The nineteenth century 2.3.1 Reform movement in the period 1790-1885 and the moral treatment approach Towards the end of the 18th century the so-called ‘moral treatment movement’ emerged in response to the inhuman conditions in the madhouses. The leaders pleaded for a more humane, psychosocial and personalised approach of the insane. This can be considered as the earliest example of efforts in the field of what later is called ‘tertiary prevention’. One of the best-known representatives was Phillipe Pinel, a hospital doctor in revolutionary France, who made history as the ‘liberator of the mad’ (Figure 2.3). Pinel worked as medical director in two hospitals in Paris in which both mentally ill and criminal patients were detained. He was touched by the fate of the ‘poor fools’, who had to live in filthy cells, often chained, abused and neglected and in general bad hygienic conditions. In 1793, Pinel pleaded to free the insane from their chains and create decent establishments in which they could live. According to Pinel, the patients became ‘difficult persons’ by a lack of freedom and fresh air. Despite the opposition of the Commune de Paris, they managed to open an "asyl" where the "poor fools” could get a humane treatment without chains. Pinel was also driven by scientific motives and is considered as the father of the French psychiatry. In his “Traité medico-philosophique sur aliénation mentale ou la manie" he advocated a new psychiatric theory based on clinical observations. He was the first doctor who systematically described the case history of patients (Hodiamont, 1982). 34 The "moral treatment" approach resembles the application of current methods of behaviour modification. The liberation of the insane was mainly made possible by the liberal ideals of the French Revolution: liberty, equality, fraternity and human dignity. During the revolution, the “Declaration of human and civilian rights” (1789) was drafted. It declared that any form of unlawful detention was illegal, unless based on official justice. Based on the Declaration a commission was formed, which had to decide on the fate of the “hospiteaux” in which still thousands of people were kept without any form of justice. As we will see later on in this historical analysis, far-reaching reforms in the care for the mentally ill always took place in periods during which there were important changes and reforms for society as a whole (Reimann, 1967). This period was no exception. Those who in the 19th century were responsible for the reform of mental institutions were not acting on new scientific visions on the development of mental illness. The reforms were mainly inspired by humanistic professionals, who detested the dishonouring way in which the ‘insane’ had been treated so far. They gave more freedom to the 'patients' despite heavy protest of those still considering the mentally ill as ‘potentially destructive beasts’ (Gibbs et al, 1980). During the 19th century, similar moral treatment movements emerged in other countries such as England, Italy, Germany, the Netherlands and the United States. Characteristics of the 'moral treatment' Three aspects can be distinguished in the reforms that the 'moral treatment' movement pursued. The first goal was to change the inhuman situations in the workhouses and institutions. A second goal was to plea for state appointed advocates who would monitor the human situation in the institutions. This way, the moral treatment movement has contributed to the disappearance of abuse and the instalment of state control over the insane. The 1840 laws on insanity have been adopted everywhere in Europe, as well as procedures for monitoring and emergency admissions. A third feature of the 'moral-treatment' was an optimistic view on the possibility of treating mental illness. Under the influence of rationalism and humanism, treatment of the insane acquired an educational nature (Bockhoven, 1963). Purpose of the treatment was that the patient revealed the 'morality' of his personal and social live. The patient had to be activated. This was done by labour projects, recreation, religious meetings, talks in small groups, and social contacts with the personnel of these institutions. Recreation was promoted through fishing, gardening, drawing and music. This humanistic-interactive approach was possible because the doctors often treated only a limited social group of patients with which they could identify. The 'moral treatment' actually remained limited to the richer insane in private establishments (Caplan, 1969). It is not surprising that institutions using moral treatment 35 showed very positive results. About 60 to 90% of the patients were eventually considered to be fully improved (Bockhoven, 1956). These results showed that under certain conditions it was considered feasible to treat the mentally ill, something that was hitherto unheard of. Decline of the 'moral treatment' One of the factors that facilitated the development of a "moral treatment" approach was the small number of mentally ill admitted in establishments in the early 19th century. However, the situation changed dramatically during the course of this century. Social and economic developments led to a significant increase in the number of recorded mentally ill (Schuurmans & Stekhoven, 1922). The main reason for this increase was the growing industrial capitalism and the rapid urbanisation in Western society. Industrialisation drew large groups of people from the countryside to the cities and major industries. This was accompanied by a large increase of “disabled" persons who were admitted to institutions for the mentally ill. In the United States, also the Civil War and the great flow of immigrants from the European continent had their impact. Mental illness was more prevalent among immigrants. In the middle of the 19th century in the U.S., large numbers of people lived in mental institutions, especially poor immigrants. These institutions could barely cope with this large influx of patients given their limited budget and diminishing support from society (Rappaport, 1977). This caused the end of the moral treatment and the beginning of the “great confinement" or the "asylum era". As a result, also, the number of discharges fell and the number of chronic patients increased. The percentage of mentally ill that was declared cured dropped to below 4% (Hodiamont, 1982). That the 'moral treatment' did not succeed as a new form of treatment was probably also due to the lack of a scientific foundation. The moral treatment was the product of a 19th century humanist movement and was not accompanied by a scientific analysis. In summary, we conclude that the ideas of 'moral treatment' were hardly implemented on a large scale. The success of the 'moral treatment' lies mainly in the elimination of the worst inhuman conditions in the institutions. Viewed from the modern division between primary, secondary and tertiary prevention, the 19th century developments in the care for the mentally ill can be characterised as an important contribution to tertiary prevention (see next chapter). 2.3.2 Development of social medicine and the role of the state In the 18th century, many already accepted the idea that protection of health was not merely an individual responsibility, but one of the governments as well (Thoma, 1975). In the first half of the 19th century, numerous studies were carried out on the relationship between social and material living conditions and disease. In that period, research particularly focused on the relationship between working conditions and illness. Several studies in the late 18th and early 19th century demonstrated a clear link between morbidity, mortality and poverty (Thoma, 1975). The risk of disease and mortality was especially high in the lowest social classes. Social medicine and the emergence of preventive health care Against this background, social medicine arose in the middle of the 19 th century. Equivalent terms are "public health” and “'social hygiene”. In 1838, Rochoux made a distinction between ‘personal hygiene’ that should be left to the care of the individual, and 'social hygiene' or ‘public hygiene’, which should be promoted through laws and governmental measures (Rochoux, in: Rosen, 1979). In 1848 in France the surgeon Jules Guérin introduced the term ‘social médicine’: "La médicine sociale est l'ensemble des rapports entre la médicine et la societé". 36 He pleaded the medical profession to promote actively the living conditions of the population. He divided social medicine in four areas: - Social physiology: the study of the relation between the physical and mental health of the population, and the role of laws and other social institutions; - Social pathology: the study of the influences of social problems on health and disease; - Social hygiene: determining and executing measures to promote health and prevent disease; - Social therapy: providing medical and other measures to deal with social disintegration and other harmful social conditions The second half of the 19th century shows a further development of social medicine and an emerging prevention focus in Europe, with a gradually increasing influence of sociology, best illustrated by the work of the French sociologist Emile Durkheim on social alienation and suicide (1897). Besides examining the relationship between employment and health, social medicine doctors in that period also worked on infant deaths, alcoholism, the impact of poor nutrition, poor housing conditions, social disintegration and school health care. Prevention strategies of social medicine Many of the prevention strategies we know today have been developed in the 19th century (Verdoorn, 1965; Rosen, 1979) (box 2.1). Firstly, legislation can be considered as an influential preventive instrument. In the Netherlands, for example several laws were implemented to improve working conditions and to eliminate child labour. In order to reduce Box 2.1 Prevention strategies developed the risk of infectious diseases many in the 19th century environmental measures were taken, Preventive legislation such as the construction of sewers and Environmental policies water refreshment. For the protection of (e.g. sewerages, municipal cleaning, protection drink water) public health, special services were Improvement of labour conditions established such as the Municipal Health Inspection of food Service (in Dutch: GGD). Education Health education became a widely used instrument to Vaccination promote public health and enhance Infant care, home nursing services hygienic behaviour (Verdoorn, 1965). Community Health Services Around the middle of the 19th century, England appointed the first "health officers” whose role was to implement these educational programmes. In the Netherlands, these initiatives were installed in the second half of the 19th century. The district nursing services played a special role here. As of their introduction in the 1880’s they were actively engaged in educating the population by providing information on hygiene and child care in people’s home situations and through lectures, groups for mothers, and informative brochures. They acted as the first prevention professionals. Successes of social medicine In the past hundred years, impressive health effects have been achieved by preventive measures. In our Western societies diseases as diphtheria, plague, cholera and tuberculosis 37 are virtually eliminated, while in the 19th century large groups of people still died due to such epidemics. In some periods during the Middle Ages, a third of the European population died because of plague and cholera. Examples of effective preventive measures are the introduction of the sewerage system, the protection of drinking water, the improvement of sanitary facilities in houses, education on hygienic lifestyles, and the introduction of vaccination and screening programmes among the population. Another example is the improvement of health care, especially pregnancy counselling and infant care. Within a period of 100 years, neonatal mortality was reduced by 900%. Across 150 years, our average lifespan has been extended by nearly 40 years, just by improving living conditions and implementing preventive measures. In relation to the slow evolutionary path along which mankind develops, it is apparently possible to establish almost revolutionary changes in health through preventive measures. Many of these measures have become so common in society, that we do not even recognise them as preventive anymore. 2.3.3 Darwin and Social Darwinism No one influenced scientific thinking in the second half of the 19th century as strongly as the biologist Charles Darwin (1808-1882) did. Darwin's evolution theory influenced psychology in different ways. His concept of heredity offered an explanation for the infirmity of the human structure, while also being able to explain differences between individuals. With the increased understanding of the role of heredity the realisation grew, that ‘current’ man can only be understood from his developmental history. For preventive thinking, Darwin’s concept of adaptation was of particular importance, namely the idea that animals and man are involved in a continuous process of adjustment to their surroundings. From a phylogenetic point of view, an anatomic structure, a behavioural feature or emotion is adaptive when it contributes to the survival of the species. Similarly, but now from an ontogenetic perspective, a behaviour or personality trait is adaptive when it improves the chance of survival of an individual member of the species. Darwin also applied his evolution approach to emotional reactions. He stated there is not only an evolution of morphological structures but also of what Darwin called ‘the mental and expressive capacities’ (Klerman, 1979). Darwin’s influence on thinking about disease and mental illness and the opportunities and (un)desirability of preventive interventions settled mainly through the so-called Social Darwinism, which refers to the application of the biological evolutionary theory to social processes. This social movement won many adherents in-between the American Civil War and the First World War, especially in the United States and several European countries. In the 19th century, it was particularly the philosopher Herbert Spencer who was involved in the significance of evolution theory for psychology and sociology. Spencer saw human society as a product of the struggle for existence and survival of the fittest. The weak will perish and the strong will contribute to the further development of society. He thought that society should be equipped to secure its survival and improve the quality of life. Spencer was against any form of state intervention and social legislation because this interfered with the process of natural selection. He opposed to public education and state intervention in private health care. Social welfare assistance in his view destroys the biological potential and helps 38 the weak to breed. Thus, Social Darwinism can be regarded as a normative theory. Supporters of Social Darwinism felt that patients with mental disorders, either inherited or caused by their social position, were unsuited to survive in the new industrial order. Nineteenth century psychiatrists adopted these views and defended them as scientific by retaining only a biological explanation for mental illness (Bockhoven, 1963). Mentally ill were regarded as failures and placed in large psychiatric hospitals, many of which were built in the second half of the nineteenth century. Until the 20th century and even into the current 21th century, Social Darwinian ideas heavily dominated the ideas of intellectuals and the population in the United States and England (e.g. Roman & Trice, 1974). For a long time they were the basis of the economic structure and government politics. To this day, the Social Darwinian ideas play a role in whether governments want to invest much, little or nothing in preventive mental health care, social welfare and poverty reduction. These ideas are contrary to the notion that preventive care should particularly provide support to the weak and the groups at risk in society. This difference in views is still present in contrasting political visions of right-wing and left-wing, respectively conservative and social-democratic parties and their related governmental health and social policies. In general, social-democratic governments support the further development of prevention and public health, while conservative or right-wing governments usually reduce public investments in these areas. 2.3.4 Psychiatry after 1850 Two main streams, a scientific, medically orientated approach and a more social approach marked psychiatry in the second half of the 19 th century. The first became the most dominant in that period. Most psychiatrists then thought mental illness was caused by a somatic illness or by hereditary transmission. The somatically oriented psychiatrists saw mental illness as a symptom of an organic disorder, caused by metabolic disease, brain damage or other neurological defects. Among others, the German psychiatrist Kraepelin, mainly known for his classification of psychiatric diseases, complete with syndrome descriptions, diagnoses and prognoses, belonged to this "somatic school". The somatically oriented psychiatrists had a rather pessimistic view on the chances of recovery, not even mentioning prevention. Because of this, psychiatry at the end of the 19th was mainly a form of "custodial care”. Under the influence of Darwin's publications, a large number of psychiatrists agreed at the turn of the century (1900) that mental disorders should be considered as a hereditary disease (Caplan & Caplan, 1967). They saw mental illness as nature’s way to eliminate the poor and weak, as they were unable to adapt to their environment. Psychiatrists advised the public against marriages with people showing signs of mental illness. Putting the grounded ethical objections to such an advice aside for a moment, one could nevertheless consider this advice as a first example of aimed preventive psychiatry. The dominance of the somatic-biological approach in psychiatry in the second half of the 19th century did not mean that the humanist and social approach to mental illness (moral treatment) had completely disappeared during that period (section 2.3.1). It is among the followers of these more social orientations that we find the first important steps to the prevention of mental illness. Firstly, there was the influence of social medicine that has set the stage for modern social psychiatry. Another example of a 19th century impetus to prevention in the field of psychiatry comes from the United States. In 1880 in Cleveland, a number of reform-oriented 39 social workers, neurologists, psychiatrists and lay people created the National Association for the Protection of the Insane and the Prevention of Insanity. The association fought for the rights of patients, improving the conditions in asylums, creation of facilities for early treatment and education of the public regarding the nature of mental illness. The association attracted, however, strong hostility from the powerful association of medical directors of mental institutions (Reimann, 1967). 2.4 The period around the turn of the century until the 1950s At the beginning of the 20th century, in the field of mental health a reform movement started which would play a major role in spreading ideas about prevention and mental health promotion until well into the twentieth century: the mental hygiene movement. This movement was part of a wider range of social movements and changes that characterises the progressive era between 1890 and 1910, such as movements to improve poor labour conditions in factories, actions for abolishment of child labour, and the emergence of a women’s liberation movement fighting for the right to vote (suffragists). This section will discuss the origins of this movement and the role of biology, psychiatry, psychology and the psychoanalytical framework in its development. An assessment is given of the successes and limitations of the mental hygiene movement. Next, an evaluation will be given of the eugenics movement, which was strongly influenced by Darwin’s evolution theory and social Darwinism. In the end, this also included practices such as sterilisation of mentally ill and mentally retarded. Finally, the influence of both two World Wars on the development of prevention of mental disorders prevention will be discussed. 2.4.1 Adolf Meyer and psychobiology The medical-psychiatric model, which was represented among others by Kraepelin (18551926), already received some serious criticism at the beginning of the 20th century. There were strong voices against the prevailing medical approach of "mental illness". Adolf Meyer, a Swiss psychiatrist who moved to the United States and became head of the New York Psychiatric Institute in 1906, led this critical approach. He focused his research on the family, social network, community and work environment of his patients. Meyer made a clear shift from the strictly somatic approach to a more psychological and social approach to psychiatric symptoms. He regarded disorders as a specific response of the personality on the total of physical, psychological and social influences from the environment. In his psychobiological approach, psychiatric disorders are failed adjustments of a person to different requirements, restrictions and threats. The influence of Darwin on his thinking is clearly recognisable, especially his ideas about adaptive processes. Meyer also referred to "biological" as to the continuous struggle of a person with his environment. With this dynamic view on the emergence of psychiatric disturbances, Meyer turned away from the static psychiatry of Kraepelin and his classification system. His psychobiological approach was an explicit 40 opposition to the rigid application of biological determinism in psychiatry, which at that time was in its heydays. He was strongly inspired by leading functionalist psychologists as William James, John Dewey, Leon Thorndike and Stanley Hall. He had a close friendship and collaborative relationship with William James. Both were among the founders of the Mental Hygiene Movement, which in the end would become the strongest advocate group worldwide for prevention of mental disorders and promotion of mental health, as an additional approach to the treatment and care of mental patients. The basic concept of Meyer's psychobiology is that of integration, also called the holistic approach. Man can only be understood in his ‘totality’, where he is considered as an indivisible unit of study. Humans can be studied at different levels, e.g. chemical level, the reflex level and the psychobiological level. Phenomena at a certain level cannot be understood without using knowledge of the influence of the other levels as well. Activities at a given level are affected by changes in other levels. Thus, psychobiology assumes that the study of the individual inevitably must go along with the study of the actual context in which this individual develops. For Meyer this multi-system level approach also meant that mental health interventions could be chemical, psychotherapeutic and social in nature. Psychobiology also looks at the human developmental perspective: the relationship between an individual’s past, present and future. Personality is a temporal phenomenon and is under continuous development through individual experiences and social influences. The focus on the interaction between an individual and society and the longitudinal development of a person’s nature, are features that make psychobiology a dynamic approach. At the time, there was much resistance against Meyer’s ideas, because in the psychiatric establishment medical thinking dominated. Meyer was optimistic about the possibilities to prevent mental disorders. He particularly stressed the possible preventive improvements that could be achieved through parenting and environmental change. Moreover, he thought that psychiatric patients should be guided in their return to society. For this service to succeed, the general public needed to be better informed about mental illness and the conditions in the institutions. Health care should be more educative instead of accumulating knowledge in the ivory towers of their own profession. These were revolutionary ideas because academic psychiatry at that time was dominated by a neurological approach to mental illness. 2.4.2 Mental Hygiene movement The Mental hygiene movement, (in Dutch: Psychohygiënische Beweging) historically is one of the most important sources of contemporary preventive mental health. The mental hygiene movement was the first organised international movement that had incorporated the prevention of mental disorders in its goals. The beginning of the mental hygiene movement is usually linked to the appearance of the book "A mind that found itself” (1908) by Clifford Beers. He was a former psychiatric patient who suffered from a serious psychosis and suicidal behaviour. As a former patient, he protested strongly against the humiliating and abusive conditions in mental asylums and fought for the reform of the mental health institutions. His book about his history as a patient 41 and his recovery was at that time a bestseller in America especially in the academic world, and had 26 reprints, the latest of which in 1956. In the epilogue of one of these reprints Clifford Beers later characterised his own book as "the opening gun in a permanent campaign for improvement in the care and treatment of mental sufferers, and the prevention, whenever possible, of mental illness itself" (1950, p.255). He advocated successfully for his ideas across not only the US, but also worldwide including in Europe. In 1908, the first "Committee for Mental Hygiene” was established in Connecticut, followed one year later by the establishment of a “National Committee for Mental Hygiene”. As stated earlier, besides Beers the founders also included William James and Adolf Meyer. Meyer proposed to call the organisation “Mental Hygiene”. The novelty of the movement was its multidisciplinary character. Psychiatrists and psychologists but also sociologists, lawyers, teachers, theologians and historians supported the mental hygiene movement. Both lay people and scientists were represented in the movement. The mental hygiene movement had four goals: 1. Improving the health and living conditions of the mentally ill. This process involved among others the development of outpatient services and other alternatives to hospitalisation, a community orientation, and elimination of abuse in institutions. 2. Psychiatric prophylaxis, i.e. prevention of psychiatric diseases by (a) preventing the emergence of mental illness and (b) early recognition and treatment. 3. Dissemination of knowledge of psychosocial health (e.g. on effective parenting) among the public and among key social figures in order to improve mental health. 4. Cooperation with civil organisations in society that can influence the mental health of people. These goals were formulated in 1908 and run more or less parallel with the modern division into "mental health promotion" (objective 3 and 4), primary prevention (objective 2a and 4), secondary prevention (objective 2b) and tertiary prevention (objective 1). The fourth objective refers to a particular strategy to achieve the other goals. We may even conclude that these goals are virtually identical to the goals of the prevention movement in the 1960’s and 1970’s, and are even reflected in the "Health for All ' strategy which the WHO implemented in the 1980’s and 1990’s. Current ideas on primary, secondary and tertiary prevention, mental health promotion and even the plea for a multi-sectoral approach to mental health were in fact already present in the initial phase of the mental hygiene movement at the beginning of the 20th century. Within twenty years after its creation, the movement had spread worldwide. In most countries, 'Associations for Mental Hygiene’ were established, e.g. in Finland (1917)and in Germany (1928). Between all these national associations and interest groups, a global network of mutual contacts arose in the twenties and thirties. In Europe, the mental hygienists succeeded in organising international meetings where prevention also was a topic of discussion. The Mental Hygiene Movement constituted the basis for the establishment of the World Federation for Mental Health in 1947, an organisation associated with the United Nations. Still to date, the Federation (WFMH), together with the Clifford Beers Foundation, are the strongest worldwide protagonists for prevention of mental disorders and promotion of mental health. 42 Child Guidance Movement, and focus on education As we will discuss in the next section, the mental hygiene movement became more and more influenced by psychoanalytic thinking, which also received wide international interest in the first decades of the 20th century. This influence is reflected in the importance the mental hygienists attached to parenting issues and encouraging a parenting style that was conductive to healthy social-emotional development of the child. They attributed a strong impact of childhood experiences on adult mental health. Mental hygienists considered parents and other educators as a potential entrance to achieve short-term and long-term preventive effects, especially through parenting education. Besides parents, also teachers were an important target group for the mental hygienists. In their view, the school was not just the place for developing academic skills, but also for providing a favourable environment for the development of the entire person. It was partly a task of teachers to stimulate actively the development of the personality, including the emotional, intellectual and social development of the child. Successes and failures of the mental hygiene movement Looking back, what can be considered main achievements of the mental hygiene movement? To begin with, there were the obvious improvements in reducing inhuman conditions in mental institutions, better quality of care for psychiatric patients, and the development of earlier ambulatory care through which admissions could be prevented. Also, the development of psychosocial treatment facilities for children was among the successes of the mental hygiene movement. Nevertheless, these positive developments could not prevent that until around 1980 mental health care in many European countries was still dominated by psychiatric hospitals and inpatient care. The mental hygiene movement also strongly contributed to the fact that for the first time different scientific views on mental illness, mental health, and parenting reached the large public. This has undoubtedly led to more social acceptation of psychiatry and to less stigmatisation of psychiatric patients. However, concerning the development of specific prevention programmes and practices (especially in primary prevention) and of specific prevention expertise, the results of the mental hygiene movement have been very small. In several mental health reports published after the World War II, the concept of prevention appeared only incidentally and was approached with scepticism by traditional mental health professionals and policymakers (Breemer ter Stege & Gittelman, 1987; Freeman, Fryers & Henderson, 1985; May, 1976). The systematic development of professional mental disorder prevention practices will eventually have a cautious start in the 1970’s. How can it be explained that the mental hygiene movement was a successful global movement, but that - despite its preventive goals and ideas about prevention – it has failed to develop an influential prevention sector during more than 50 years? Although no systematic research has been done on the causes, it seems likely that the following factors have played an important role: - The scientific basis of mental hygienic activities was relatively weak, the supportive sciences were still in development and moralistic thinking and humanistic ideologies dominated the movement. For example, it was recommended by mental hygienists that young people should not visit the cinema, as this would have a corrupting influence on their mental health. 43 - The movement failed to translate its vague preventive goals into specific targets, and to make a long term planning for the systematic development of intervention programmes. The science of determinants of mental disorders and the science of planned interventions were still in their infancy. - The preventive ideas of the movement were not translated into governmental policy or legislation. - Many countries only had a very limited budget available for mental health care; mental health had a low priority in society. Investing in the promoting mental health was seen as a luxury. 2.4.3 Freud, Adler and the Neo-Freudians Freud never launched explicit ideas about the prevention of mental disorders (Lemkau, 1956). However, his psychodynamic theory has had a major influence on the development of contemporary scientific thinking about prevention. His theories and practices gave many for the first time the idea that the human mind and behaviour can be influenced. This can be considered as a prerequisite for preventive thinking. The influence of Freud's psychodynamic theory is very well recognisable in the mental hygiene movement and especially in the related child guidance movement. The large influence of Freudian ideas on the development of the mental disorder prevention after 1960 is mainly due to the work of a number of his followers, the Neo-Freudians and ego-psychologists. Neo-Freudians Although Freud in particular stressed the importance of the somatic origin of passions and constitutional factors, he also acknowledged the influence of culture on the development and change of a personality structure (Cofer & Appley, 1962). Yet a number of critics believed that Freud neglected the influence of social and cultural factors in the development of the personality in favour of a unilateral biological point of view. Freud often referred to external or social forces as ‘accidental factors’. Some of these critics, also known as 'Neo-Freudians’, turned strongly against the - in their eyes - rigid doctrine of Freud concerning the instincts. These Neo-Freudians had a significant impact on mental hygienic thinking. Therefore, on the basis of modern preventive mental health care we will devote some attention to their ideas. The most famous Neo-Freudians were Karen Horney, Harry Stack Sullivan, Erich Fromm and Erik Erikson. Although they do not deny that each personality development has a biological basis, in their personality theory they focus primarily on the influence of social and cultural factors. Because of this strong sociological thinking, the Neo-Freudians are also known as the "School of Cultural Psychoanalysis”. The Neo-Freudians played an important role in the spreading of mental hygienic ideas in society. Adler’s vision on prevention In the history of psychology and psychiatry, Alfred Adler (1870-1937) is best known for his work in psychotherapy and his collaboration with Freud and Jung in the Vienna Psychoanalytic Society. By training, Adler was a doctor of social medicine, and in that function, he was involved in preventive health care from the beginning of his career. Unlike Freud, he did not base his work on a medical model, but on a humanistic and educational model of man. In his writings already at the end of the 19th century, he extensively pays attention to prevention. In his 44 preventive work, Adler was inspired by Rudolf Virchow (1821-1902), an eminent physiologist and humanist activist, who is considered the founder of social medicine in Germany. Adler's first publication, "Health Book for the Tailor Trade” appeared in 1898 in a series called 'Guides to Occupational Hygiene: Advice for the Prevention of Occupational Diseases and Industrial Accidents’. In his book, he discusses the relationship between economic circumstances and health and more specifically the impact of poor work conditions and living conditions on the health of tailors. He pleaded for improvement of legislation on labour conditions, better housing conditions, the introduction of disability insurance and a pension plan. This publication shows his interest for a social approach of health and prevention, which is also to be found in his later work. Adler was also one of the persons to introduce the concept of ‘life style’, which would later become a leading concept in modern health promotion. Many of his later publications contain a plea for prevention; not only in medical sense but also in the field of psychological prevention. In his view, psychologists should more explicitly take a stand in social and societal conditions that threaten mental health, such as social inequality between men and women, and domestic violence; Adler’s views have also contributed significantly to the emergence of humanistic psychology. In his article ‘The physician as educator’ (1904) he states: “Not to treat and cure sick children but to protect healthy children from sickness is the logical and noble challenge of the science of medicine” (reprint 1973, p. 203). In the same article, he also argued for a focus on improving the mental health condition of children by enhancing their self-confidence, feelings of independency and decision skills. In his view, this could contribute to the prevention of neurotic illnesses. For this reason, both general practitioners and parents should be offered training on improving mental health and parenting. Through his influence, 28 parent education centres were established in Vienna. Schools should contribute to the prevention of depression by educating children in social competence, the ability to collaborate with others, and problem solving skills. In his view, special preventive attention should be given to the guidance of physically handicapped and neglected children. In his later years, he also became involved in prevention of delinquency in children. Karin Horney A Neo-Freudian who played a major role in the development of a new view on mental illness and mental health was Karin Horney (1885-1952). Although she contributed a lot in disseminating Freud’s ideas among the general public, she was also one of his major critics. In her view neuroses are the product of cultural influences and of disturbed relationships between parents and children, more than of ‘preformed instincts’ as Freud stated. In her article ‘Culture and neurosis’, Horney discusses the impact of social factors on the development of neuroses. She points at the dominating influence of economic competition on human relations, the economic exploitation of people, the excessive emphasis on 45 success, and the inequity in rights and opportunities between people. Also, contradictions in ‘modern’ culture feed the development of neurotic conflicts in persons. She refers, for instance to the contrast between the emphasis on ‘success and winning’ and the need for ‘social companionship’, the stimulation of aggression and the suppression of it, and the continuous stimulation to need satisfaction that in our daily society which is in conflict with continuous and structural barriers to satisfy them. Especially, when these contrasts affect children and adolescents they may create feelings of helplessness, insecurity, low self-esteem and social isolation. She rejected Freud’s pessimistic concept of man. Inspired by Adolf Meyer’s psychobiology, she adheres his optimistic and humanistic view on human beings: a belief in inner dignity and freedom of people, a human drive to self-actualisation and a constructive attitude towards life. She considers a positive self-image as a crucial condition for mental development. Her optimistic view of man can be considered as a forerunner of current positive psychology that currently strongly influences paradigms of mental health promotion and prevention (e.g. the work of Martin Seligman). 2.4.4 Eugenetic movement The supporters of the eugenetic movement advocated a very specific way of preventive thinking. They were almost completely opposed to the ideas of the mental hygiene movement and the child guidance movement. The eugenetics supported the idea that the performance of both individuals and entire populations depended largely, if not solely, on hereditary predetermination. Education would have little or no effect. Eugenetic ideas The eugenics movement developed under the influence of Social Darwinism and the growing knowledge of genetics in the 19th century. Like the mental hygiene movement, the eugenics movement had an international character. Social Darwinism applies Darwin's ideas about survival of the fittest to the development of the human species (section 2.3.3). They assumed that the nature and quality of the human species is maintained by ensuring that the fittest survive and the weak do not. Protection and conservation of the weak would be against the principle of selection. Based on this principle they rejected any social or political support for the weakest in society. In their view, social legislation withdrew the weak, disabled and intellectually inferior from the struggle for existence. This would lead to degeneration of the human species. The supporters of the eugenics movement advocated the maintenance of high genetic dispositions and improvement of the race by controlling reproduction. The eugenetics pleaded for restriction of procreation of criminals, epileptics, mentally impaired, mentally ill and alcoholics. For this purpose, measures were appointed such as medicinal screening before marriage, a martial prohibition for the named categories, sterilisation and isolation of the "mentally inferior”. Eugenetic practices During the 1930s, large-scale forced sterilisations took place among mentally disabled and mentally ill in Germany and Sweden. In 1939, Hitler gave the command to kill all mentally disabled children. This took place in Hadamar under the guise of euthanasia and 'der Gnadentod' (operation T4). The forced sterilisation and the murder of the children (estimated 46 200,000 victims) were defended with the argument that mental illness was a major threat for public health and the purity of the race. Also, references were given to the high cost of care for the mentally ill. The practice of forced sterilisation was not limited to Europe. Between 1899 and 1907, 465 criminals were sterilised in the U.S. state of Indiana. In 1935, 27 American States had laws that saw to the sterilisation of the biologically unfit. Based on this argument, over 20,000 people were involuntary sterilised. 2.4.5 Influence of First and Second World War The severe economic depression, which was initiated by the stock market crash in 1929, gave impetus to the decline of Social Darwinism in the US. The idea that personal happiness and progress depend purely on personal qualities and hard work, proved no longer tenable. The consequences of the crisis on the threatened welfare of millions of people were so evident that state intervention in the socio-economic life and the creation of social services for victims had become inevitable. The crisis made clear that social and economic factors were important determinants of personal happiness of the people. These changes reduced the influence of Social Darwinism. Against this background, in the United States during the period 1930 to mid-sixties various national, social incentive programmes were designed and implemented, such as the New Deal, War on Poverty, Head Start and Great Society. Within these programmes, much experience was gained with systematic interventions aimed at improving economic development opportunities and health of vulnerable groups in society. These programmes have provided a major impetus to the development of contemporary prevention strategies in the field of mental health. For example, the programme "Sesame Street", now transmitted all over the world, was created in the sixties to stimulate the early cognitive and emotional development of children, a typical early example of mental health promotion. The two World Wars have also played an important role in the development of preventive mental health care. During the Second World War, there was a huge increase in psychiatric patients. To prevent that the army would lose its forces, two strategies were developed, both of which had a preventive character. To maintain the armed forces, it was essential to identify and treat the early stage cases of psychiatric diseases among soldiers at the battlefront. Psychiatrists in the military developed so-called secondary prevention methods, such as crisis intervention, and other early intervention and treatment methods. Another prevention strategy was the development of screening tools in order to identify young people with a high risk for psychiatric disorder during recruitment, which could be used as a selection procedure or be followed with preventive guidance of those at risk. The experiences in World War II made a significant contribution to the development of early screening tests (Sanford, 1974; Gleiss, Abholz and Seidel, 1973). Another reason to develop a more preventive approach to mental health problems occurred after the Second World War and the Korean War. The U.S. were then faced with a huge increase of the number of patients in psychiatric institutions. Many of them were former soldiers (veterans) struggling with posttraumatic stress and other mental disorders due to war experiences. Later we saw the same because of the wars in Vietnam, Iraq and Afghanistan. In the early 1950s there were hundreds of thousands hospitalised psychiatric patients, often with chronic diseases. The U.S. government started to realise that mental disorders constituted a public health problem number 1, creating an enormous economic problem (Gleiss et al, 47 1973). In the first place, the large number of psychiatric patients led to a sharp increase in direct costs of psychiatric hospitals. However, just as important were the high indirect costs. The many hospitalised psychiatric patients were a serious loss of economic productivity, a serious problem in a period of upward economic development with a big demand for labour force. For both reasons, a need arose in the U.S to reform the mental health care system significantly, including the need for a more preventive approach. 2.5 The 20th century until 2014: Prevention Developments in the Netherlands In this last section, we discuss how the professional field or prevention and mental health promotion developed in our own country, the Netherlands. We also discuss how some international developments had a special impact on what happened in our country. 2.5.1 Mental hygiene in the Netherlands From the 1920s, the mental hygiene movement also reached our country and in the next decades until 1960 gave rise to the establishment of an extensive network of local outpatient mental health services. These included social psychiatric services (SPDs), youth psychiatric services (JPDs), child guidance clinics for parenting issues and early child psychiatric problems (MOBs), adult mental health counselling services (LGVs) and institutes for medical and multidisciplinary psychotherapy (IMPs). Given the exclusively inpatient mental health care up until then, these new services represented a revolution in mental health care. At that time, such services were frequently still affiliated to religious organisations. For instance, in the city of Nijmegen, until 1980 separate catholic and protestant child guidance clinics and adult counselling services existed. The Dutch psychiatrist Querido, one of the great pioneers in the field of mental hygiene, played an important role in the development of mental health services outside the psychiatric hospitals. During the 1930s, he became worldwide famous for founding in Amsterdam one the first Public Health Services, an outpatient facility with a strong mental health focus. Its purpose was to prevent admissions in mental hospitals by using a community approach and guidance for mental patients at home. Querido also introduced the so-called ‘echelon principle’ in Dutch health care: a division of health care in primary health care (district and community based care by general practitioners, social services, district nursing, etc.), secondary echelon care (specialised ambulatory care at district level) and third echelon care (hospitals, clinics, nursing homes). More simply, it was labelled as ‘first line’, ‘second line’ and ‘third line’ care. This system could provide care in a much earlier stage of a developing physical or mental disease (secondary prevention). Because care more frequently started to take place in the client’s own community, the social conditions under which diseases developed became more visible (e.g. child abuse, neglect and poor living conditions). Although the term prevention was used regularly, its practice involved mainly early individual- or family-oriented treatment (secondary prevention) and rehabilitation and re-socialising of patients discharged from a mental hospital (tertiary prevention). At that time, prevention was mainly considered as a characteristic of good early treatment. Especially treatment of early child behavioural and psychiatric problems was assumed to contribute to preventing psychiatric problems during adolescence and adulthood, although any evidence for such a long-term effect was lacking. 48 According to their mission statements, the discussed ambulatory treatment facilities were prevention-oriented. However, efforts to prevent the onset of new psychiatric disorders were not systematically developed. This would only start after 1980 when the different local mental health services merged into one comprehensive regional outpatient mental health centre (RIAGG), influenced by community-based service models from the United States. 2.5.2 The impact of the Community Mental Health Movement The developments in the US after the First and Second World War (par. 2.4.5), offered ground for major change in mental health policy and the mental health system during the 1960s. After Pinel and his liberation of the 'mad' during the French Revolution, and after the emergence of psychoanalysis, this Community Mental Health Movement is commonly considered as the third psychiatric revolution. In 1955, the U.S. government installed a 'Joint Commission on Mental Health and Illness', with the task to examine thoroughly possibilities for changing the hitherto mainly inpatient-based mental health care towards a mainly community-based mental health care. Studies of this committee clearly indicated that a large proportion of people with serious problems did not receive professional help, and that admittance to a psychiatric hospital could be prevented by more outpatient facilities. This was especially true for people from lower social classes and other disadvantaged groups. The final report "Action for Mental Health '(1961) contained a plea for a drastic reform of the mental health system: more integral communityoriented care, closer to people, more accessible, with more attention to social conditions of clients and involving community leaders and local key people. This would also make the prevention of serious problems possible. Community Mental Health Centres and Dutch RIAGGs In 1963, President John F. Kennedy issued a memo based on this report, advocating for a national mental health policy for the first time in American history. This resulted in the adoption of the ‘Community Mental Health Centres Act’. In this law, financing was arranged for Community Mental Health Centres (CMHC's). In each health region, a CMHC would have to offer a wide range of mental health care services to the local community: hospital and outpatient care, crisis shelter, therapeutic assistance, facilities for day or night care, as well as specific programmes that assist patients to return to society and find employment. Important goals were increasing the accessibility of care and improving continuity of care for psychiatric patients. Each CMHC also got a preventive task, called "Consultation and Education". This "Community Mental Health Movement" was an important impetus to the systematic development of prevention programmes, also targeting social risk and protective factors. In addition, prevention was also practiced through a variety of programmes for disadvantaged social groups in the context of the so-called "war against poverty". In the 1970s, this Community Mental Health Movement became a major source of inspiration for the development of mental health in the Netherlands. The RIAGG’s (in Dutch: Regionale Instituten voor Ambulante Geestelijke Gezondheidszorg), established in the early 1980s, were modelled after the American Community Mental Health Centres, although restricted to outpatient care, but with inclusion of special prevention departments. 2.5.3 Gerald Caplan: consultation method and Dutch prevention During the sixties of the 20th century, the debate on prevention focused on whether prevention could be given a broader interpretation, i.e. beyond preventive oriented treatment of patients. 49 The first attempts to more explicit preventive actions were linked to the term 'consultation'. In 1964 and 1965 the child psychiatrist Gerald Caplan, founder of American preventive psychiatry, visited the Netherlands to deliver seminars on mental health consultation. Consultation was introduced as a specific method by which mental health professionals could transfer their specialised expertise to primary health care, social workers and other key persons in the community such as teachers, pastors, police officers and personnel officers (Caplan, 1963). Transfer of such knowledge and skills to professionals and organisations more close to people and communities, could contribute to reach more people, to offer appropriate help with mental health problems in an earlier stage (secondary prevention), to prevention of new disorders (primary prevention) and to promotion of positive mental health population-wide. Bringing more mental health expertise to local communities could prevent that people with mental health problems would be referred to very specialised and costly treatment facilities. Simply put, moving expertise to local communities, instead of moving patients to specialised mental health centres. The consultation methodology still fits in the 21st century and current national policy perfectly through the concept of strengthening the mental health capacities of primary health care, social services and local community organisations. This would warrant a revival of again investing developing the skills of consultation methodology among mental health professionals and prevention experts. The influence of Caplan on the Dutch prevention sector has been much larger than the introduction of the consultation method alone. Both through his writings and through various seminars and trainings in the 1960s and 1970s, he has transferred the basic ideas of Community Mental Health and preventive psychiatry to Dutch experts. His main ideas can be found in his influential book “Principles of preventive psychiatry” (Caplan, 1964). This book, now almost fifty years old, presents a wide range of preventive strategies of which several are still innovative to date in the 2010s. These include, for instance, collaboration with city planners and architects on community planning to design urban neighbourhoods that are supportive to the development and protection of mental health. A strategy that would perfectly fit, for instance, to current efforts of urban development and designing new neighbourhoods, such as recently took place in Nijmegen where on the other side of the river a whole new city quarter has been built. 2.5.4 Prevention departments in mental health services The major force that created a professional prevention sector for mental health was the introduction of specialised prevention experts and prevention departments in the outpatient mental health services from the 1970s and the RIAGGs from the 1980s. Commonly addressed prevention themes in these early years were parenting problems, social-emotional development of children, sexual education, relationship problems, social isolation, coping with inability to work, and mental health consultation to general practitioners. During the 1980s, the number of prevention professionals steadily increased and many prevention projects were initiated, although their effectiveness had to be proven. After a first decade of try-outs, a critical reaction emerged from both the professionals themselves and from governmental agencies concerning the quality of these projects and the lacking evidence of effectiveness. The prevention field was challenged to invest more in becoming more professional and developing a scientific base and proof of their preventive 50 impact. The first National Conference on Prevention in Mental Health held at the University of Nijmegen in 1987 offered a major turning point to such a more sciencebased prevention approach and a tradition of programme effect research (Hosman, van Doorm & Verburg, 1988). Since the 1990s, all mental health services, addiction clinics and public health services have a prevention or health promotion department, which is unique in comparison to other countries. The most common themes they addressed in the period 1980-2000 are listed in Box 2.2. Their work is nationally supported by prevention and health promotion departments of national institutes (e.g. Trimbos institute for Mental Health and Addiction) and prevention and health promotion research centres at universities. Box 2.2 Prevalent topics in prevention programmes of mental health and addiction services Parenting education and support Sexual abuse and child abuse Children of parents with psychiatric problems School-based prevention programmes Bullying and aggressive behaviour Depression and anxiety Addiction (alcohol, drugs, gambling) Work, stress management and mental disability Early detection of schizophrenia Chronic psychiatric patients and their carers Elderly dementia patients and their carers Mental resilience and fitness 2.5.5 Developments in the Netherlands after 2000 Recently, several major changes are ongoing in the field of mental health promotion, prevention and care. First, due to new legislation the financing of preventive services has changed dramatically. Since 1980, all preventive activities by RIAGGs were integrally financed by one national budgeting system. From 2014, the budgeting of preventive services has been changed. From 2007 to 2014, the Care Insurance Act (Zorgverzekeringswet) had arranged that Health Insurance Companies financed part of preventive activities. This applies to evidence-based indicated prevention, i.e. preventive services for individuals with subclinical symptoms. Only indicated prevention of depression, anxiety and alcohol dependency was recognised as such by the insurance companies. In addition, a second law was introduced, it regulates the financing of preventive programmes and projects: the Law on Personal Support (WMO, Wet Maatschappelijke Ondersteuning), which is completely an affair of municipalities. The WMO offers the local government the opportunity to finance prevention initiatives that fit into their local priorities. Prevention departments have to compete with other local organisations for getting such local grants. This facility offers the opportunity to support financially local initiatives for mental health promotion, selective prevention (targeted at populations at risk) and universal prevention (targeted at whole population segments, e.g. schoolchildren). Since 2014, most of the selective preventive activities are financed by the municipalities (WMO) and partly by the GP-practice. Mental health consultants offer indicated preventive services (groups and e-health) in the GP-practice. This is paid by the insurance. This development resulted in disappearance of prevention departments in the specialised mental health care. A second development is an outcome of the current economic recession; we refer to cuts of 20% or more in mental health care and prevention budgets. A related trend is replacing expensive specialised mental health care by ‘basic mental health care’, i.e., short- term early 51 treatment provided by primary mental health care professionals in local communities, such as psychiatric nurses and health care psychologists. In some parts of the Netherlands, the prevention teams are part of this new basic mental health care service (www.mindfit.nl or www.indigo.nl). A third development is a specific way in which prevention, treatment and care currently become integrated by the adoption of a stepped-care-model in mental health services. The model means that for certain mental health problems (e.g. depression) a layered package of services is offered to the population. It starts with low intensive and low budget services for a large group of people (e.g. written or internet-provided information, self-help materials and consulting hours), through stepwise more extensive services (e.g. home visiting, short preventive courses, short treatment methods) and ending with the opportunity for the intensive forms of treatment and eventually admission to an inpatient facility only for a limited group of severe cases. The idea is to have a system that is both preventive and curative in orientation, is cost-effective by offering services that are sufficiently intensive for the problem addressed, and to guarantee an easy accessible service system that offers continuity of care to those who are in need. The introduction of such a stepped-care system for the prevention and treatment of depression in elderly (>75 yrs.) resulted in a reduction in incidence of depression and anxiety disorders by 50% (van’t Veer-Tazelaar et al., 2009). Finally, another major change in both preventive and treatment services is the fast growing practice to offer internet-based health and mental health services. Generally, such services are called E-health. Internet treatments for mental disorders are found to be effective for certain groups of clients. Many specialised mental health services in our country have planned to turn 20 to 40% of all treatment into internet-treatment within the next years. Also developing preventive services through E-health is becoming a booming business, for instance internet-based self-help sites with information and support to improve mental fitness (Dutch example: www.mentaalvitaal.nl), or to address relationship problems, oncoming depressive complaints or problems with alcohol (self-help website by Trimbos-instituut: www.zelfhulpwijzer.nl). Preventive E-mental health also includes participation in online courses and chatboxes under guidance of a mental health expert. Several studies have shown that internet interventions are able to reduce the onset of mental disorders. More information on this topic will be provided in the last two chapters of Part V of this book. The developments above also mean that under the current economic and political circumstances funding for primary prevention programmes has become at least more difficult. It has challenged prevention experts and health promoters to find innovative ways to attract the support of new stakeholders and investors especially from outside the health sector, for example from companies or other commercial organisations through ‘social innovation’ initiatives. It stresses the need to explain to them the value of mental capital for their primary interests and core business. For instance, many companies have fitness rooms for their employees, as fitness lowers sickness costs and increases quality and productivity of the employees. For the same reasons, employees could be offered exercise and other opportunities to increase their mental fitness. 2.5.6 Governmental policies Since 1983, each new Dutch government has published a long range of national memoranda and policy papers on mental health, public health, health promotion, prevention, and specifically mental disorder prevention. The most important ones are listed in Box 2.3. 52 In these papers the importance of Box 2.3 Dutch governmental memoranda health promotion and prevention is further and policy papers on prevention explained, as well as the need for evidence and health promotion and outcome research, effective use of prevention resources, prioritisation of mental health issues to be prevented, Outpatient mental health and its interfaces (1983) cooperation between local agencies, Health in limited resources (1983) creating conditions for prevention practices New Mental Health Note (1984) at local level, and the delegation of Note 2000 on health promotion (1986) responsibilities between professional Preventing Mental Health Memorandum (1988) services, citizens, communities and Discussion paper Suicide Prevention (1989) government. As illustration, in the paper Draft Document on Health Policy (1989) "Choosing for Healthy Living” (2006) the prevention of obesity, depression and Prevention for public health (1992) addiction problems have been assigned as Mental health in social perspective (1993), key national priorities. The current Minister Healthy and Well (1995) of Health considers preventive actions Choosing for Healthy Living (VWS, 2006) primarily as a responsibility of citizens Health nearby (2011) themselves and of local communities, with a limited role of governmental agencies (in contrast to the view of previous governments). This view applies especially to the responsibility of adults for their own health. Prevention and health promotion for children is still considered as also an explicit governmental task. 2.5.7 International collaboration and programme exchange The "Health for All” strategy of the World Health Organization (WHO, 1984) has been a strong driving force for international cooperation in developing health promotion and prevention. The Netherlands also participated in a range of international WHO projects like "Healthy Cities" and "Health Promoting Schools”, and EU-based projects such as Dataprev and Depression. WHO projects have contributed significantly to the improvement of health conditions in communities and schools around the world (see relevant WHO websites). Most of these programmes however, were focused on improving the physical health of children, adolescents and adults (e.g. exercise, food consumption, safety, sex education and HIV/AIDS, cardiovascular disease). A focus on mental health promotion, especially in schools, has emerged more recently (e.g. parenting, social competence, problem solving, stress management, bullying). (Hosman, Llopis & Saxena, 2004) For prevention of mental disorders and mental health promotion, we see from the early 1990s an international market emerging of international exchange of best practices and effective programmes. This is supported by several international and national databases and websites that provide descriptions, outcome data and materials on theory- and evidence-based programmes. Well-known US-based websites are the database on social-emotional learning programmes of CASEL (http://www.casel.org) and the prevention database of the Governmental Department of Mental Health and Addiction SAMHSA (https://www.samhsa.gov/ebp-resource-center). In the Netherlands, the National Youth 53 Institute provides such a database (http://www.nji.nl/Databanken) and the National Institute for Public Health and Environment RIVM (http://www.loketgezondleven.nl/leefstijlinterventies/). Over the years, several American, English and Australian programmes on violence prevention, parenting education, social-emotional learning, prevention of depression and anxiety have been introduced in the Netherlands. Vice-versa, Dutch prevention programmes are now adopted and implemented in other countries. This applies, for instance to various Dutch Prevention Programmes for Children of Parents with Psychiatric Problems (COPMI), such as the Parent-Baby intervention and support groups for children between 8 and 18 years (Van Doesum, 2007). In addition, EU and WHO launched a European-wide action plan for the prevention of mental disorders and the promotion of mental health (Mental Health: Facing the challenges, building solutions). In 2005, this plan was adopted by ministers from 52 countries in the WHO European Region and has since been further elaborated (EU Green Paper on Improving the Mental Health of The Population in the European region, downloadable from the internet). With support of the European Community, our Prevention Research Centre developed the two European projects Implementing Mental Health Promotion Action (IMHPA) and DataPREV. These projects have developed a European collaborative network, a description of ongoing activities in this field in each of the EU countries, training opportunities, policy guidelines and an international database, which systematically describes effective programmes. 2.6 Conclusions Mental disorder prevention and mental health promotion are no invention of the last decennia, but have a long history that goes back to the first half of the 19th century. Social medicine in the 19th century and the mental hygiene movement in the beginning of the 20th century contributed significantly to the development of modern preventive mental health care. Many current ideas on prevention and its strategies already developed a long time ago. The need to develop mental disorder prevention first arose from humanistic and protest movements. Only much later, after a combination of the following conditions was met, ideas on mental disorder prevention were tested on their efficacy and became systematically implemented in practice on a large scale: • • • • • Sufficient social and political support Social and economic need to develop mental disorder prevention A government that takes responsibility for the creation of a prevention sector and its finances Prevention science that offers prevention a scientific basis and evidence on its outcomes, to replace mere ideology-based prevention An organisational structure exists providing preventive interventions on a regular base from health organisations or other providers By studying the history of prevention, we learn from mistakes made in the past in order to create better chances for effective prevention in the future. In recent years, international collaboration has proved to be essential for the development of effective prevention. This international point of view is important for three reasons: 1) since the 54 beginning of the 20th century the development of mental disorder prevention in our country has been closely linked to similar developments in other European countries and especially in the USA; 2) national developments in prevention and health promotion are influenced by international agreements and policies of the World Health Organization (WHO) and the European Union; 3) International collaboration is particularly focused on prevention research and the development, dissemination and larger scale implementation of effective prevention programmes. As one of the trendsetters in health promotion and prevention, the Netherlands have become one of the leading countries in this international collaboration. Literature Beek, H.H. (1974) Waanzin in de Middeleeuwen. Beeld van de gestoorde en de bemoeienis met de zieke, ICOB. Bockhoven, J.S. (1963). Moral treatment in American Psychiatry. New York: Springer. Bosma, M. W. M., & Hosman, C. M. H. (1990). Preventie op waarde geschat. Een studie naar de beïnvloedbaarheid van determinanten van psychische gezondheid. Nijmegen: Beta. Breemer Ter Stege, C., & Gittelman, M. (1987) The direction of change in Western European mental health care. International Journal of Mental Health, 16, 6–20. Bremer, J. B. G. (1964). De zorg voor de kleuter, voordrachten over psychisch hygiënische, sociaal hygiënische en pastorale kleuterzorg (Vol. nummer 26). Utrecht: Spectrum. Caplan, G. (1963).Types of mental health consultation. American Journal Orthopsychiatry, 33, 470-48 Caplan, G. (1964). Principles of preventive psychiatry. New York: Basic Books. Caplan, R. B. (1969). Psychiatry and the community in nineteenth-century America. NY: Basic Books. Crossley, N. (2006). Contesting Psychiatry: Social Movements in Mental Health. New York: Routledge Foucault, M. (1964). Madness and Civilization: A History of Insanity in the Age of Reason. New York: Routledge. Fox, A., & Stoop, B. (1975). Psychische stoornis en maatschappij. Doctoraalscriptie. Katholieke Universiteit Nijmegen, Nijmegen. Freeman HL, Fryers T, Henderson J (1985) Mental health services in Europe 10 years on (Public health in Europe 25) World Health Organisation, Copenhagen Gibbs, M., Lachenmeyer, J. R., & Sigal, J. (1980). Community psychology: theoretical and empirical approaches. New York: Gardner Press. Hodiamont, P. P. G. (1982). Historische en Theoretische trends in de psychiatrie. Nijmegen: Afdeling Sociale Psychiatrie, Katholieke Universiteit Nijmegen. Hosman, C. M. H., van Doorm, I. & Verburg, H. (Eds.) (1988) Preventie in-zicht. Swets & Zeitlinger, Lisse. Rappaport, J. (1977). Community psychology: values, research and action. New York: Holt, Rinehart & Winston. Roman, P.M., & Trice, H.M. (Eds). (1974). Sociological Perspectives on Community Mental Health. F.A. Davis, Philadelphia. Rosen, G. (1979). The evolution of social medicine. In H. E. Freman, S. Levine & L. G. Reeder (Eds.), Handbook of medical sociology. Englewood Cliffs, N.J.: Prentice-Hall. Thoma, P. (1975). Die Geschichte der Sozialmedizin als Einführung in der Gegenstand der Medizinsociologie. In B. Geissler & P. Thoma (Eds.), Medizinsoziologie. Frankfurt: Campus Verlag. Van Doesum K. 2007. An early preventive intervention for depressed mothers and their infants, its efficacy and predictors of maternal sensitivity. Thesis Radboud University Nijmegen. Van’t Veer-Tazelaar, P. J., van Marwijk, H. W. J., van Oppen, P., van Hout, H. P. J., van der Horst, H. E., Cuijpers, P., … Beekman, A. T. F. (2009). Stepped-care prevention of anxiety and depression in late life: a randomized controlled trial. Archives of General Psychiatry, 66(3), 297–304. Verdoorn, J. A. (1965). Volksgezondheid en sociale ontwikkeling. Utrecht: Spectrum. 55 Study questions for this chapter What was the "moral treatment" approach and to what type of prevention does it resemble most? What was the mental hygiene movement and what were its goals? Explain why the mental hygiene movement partially failed. Explain how the stages in the history of mental health can be associated with current prevention divisions. What is meant by Social Darwinism? How do Social Darwinists think about prevention? What were the core ideas of the psychobiology of Adolf Meyer? How are his ideas related to modern theories in prevention, as discussed in part II of this text book? How would you summarise the view of Alfred Adler on prevention? Name some prevention strategies that social medicine already developed in the 19th century. What were the major successes of social medicine in the field of prevention? What influence did social medicine have on the position of prevention in society? Explain both the positive and negative impact several ideologies discussed in this chapter have had on the development of prevention. What does this historical analysis show about the conditions that need to be present in society for an effective prevention sector to develop? What role does international collaboration have in the development of prevention and what role do WHO and the European Community have in it? Describe the meaning of the ‘consultation method’ as introduced by Gerald Caplan. What are the aims of this method and why could this method be characterised as a prevention method? Why is this method currently highly relevant again? What major trends have occurred between 1920 and 2000 and more recently in the field of prevention? What is the meaning of ‘stepped care’ and ‘Basic mental health care’? 56 3 Mental Disorder Prevention and Mental Health Promotion Concepts, practice, providers and partners 3.1 Introduction 58 3.2 Concepts of mental illness and mental health 58 3.2.1 Mental illness 58 3.2.2 Mental health 59 3.2.3 Views about the relation between mental illness and mental health 60 3.3 Classifications of prevention 62 3.3.1 Primary, secondary and tertiary prevention 62 3.3.2 Universal, selective and indicated prevention 65 3.3.3 Disease specific and "broad spectrum" prevention 67 3.3.4 Mental health promotion 68 3.4 Profile of practice 69 3.4.1 Professional roles and specialisations in prevention 69 3.4.2 Professional tasks 70 3.4.3 Intervention methods 72 3.4.4 Organisations providing prevention and health promotion 72 3.4.5 Stakeholders and coalition development 74 3.4.6 Professionalisation and quality management 80 3.4.7 Availability of effective programmes 80 3.5 Limitations, risks and and bottlenecks of professional prevention 81 3.6 Conclusions 83 Literature 85 Study questions for this chapter 87 57 3 Mental Disorder Prevention and Mental Health Promotion Concepts, practice, providers and partners Clemens M.H. Hosman 3.1 Introduction Before we discuss the theoretical base and strategies of effective prevention of mental disorders and promotion of mental health, we first need to address a range of conceptual issues. Mental disorders, mental health, and the term ‘prevention’ are no clear-cut concepts. Prevention, for instance, could refer to a broad spectrum of possible goals and actions. Its definition varies among professionals, organisations and sectors. Furthermore, prevention and health promotion are partly overlapping concepts. Many interventions that aim to prevent mental disorders are actually focused on promoting mental health. Likewise, mental health promotion programmes may also, in the end, result in a lower incidence of mental disorders. This chapter first examines a range of key prevention and promotion concepts. Next, a profile of practice is presented to offer insight into different roles and tasks of professionals that work in the practice of mental health promotion and prevention. It offers a first introduction to policies, strategies and intervention methods used in this field. The work includes collaboration with many stakeholders and sectors outside the health system. To achieve significant improvements of the mental health condition of target populations multisectoral coalitions and partnerships are needed. Finally, some criticisms and bottlenecks of professional prevention are discussed and ways to cope with them. 3.2 Concepts of mental illness and mental health 3.2.1 Mental illness Over the last decades, mental illness is internationally recognised as a major public health problem, comparable with physical diseases already given priority, such as cardiovascular diseases, cancer and HIV/Aids. As explained in the introduction chapter, populations across the world show a high prevalence of mental disorders and this has resulted in an enormous human, social and economic burden for societies. Due to the high level of relapse and recurrence, mental disorders are considered as one of the modern chronic diseases. While most epidemics are currently under control, to date health policies are mainly targeted at controlling and preventing prevalent chronic disorders. Definitions of 'mental health' and 'mental disorder' changed over time. The search for international consensus on defining psychiatric illnesses took many decades. Current classification systems like ICD-10 and DSM-V provide an internationally shared framework of concepts, classifications and diagnostic criteria. These have facilitated the development of population-based monitoring tools to assess psychiatric morbidity in populations, to identify populations at risk, study social risk factors, and compare psychiatric morbidity between countries. They also made it possible to estimate the social and economic costs of mental disorders. This significantly contributed to the raise of awareness on mental disorders and poor mental health as a major public health problem. Classification systems have also contributed to the development of science-based prevention strategies and programmes. 58 In spite of these achievements, these psychiatric classification systems have been criticised for several reasons. Firstly, they do not cover the whole spectrum of serious mental health problems in the population. For instance, burnout problems, pathological grief, severe parenting problems, and serious partner-relation problems are not covered by the ICD-10. Secondly, the arbitrary nature of chosen boundaries between disorders and normality is much debated (Widiger & Coker, 2003). Here we are facing a serious dilemma. When a person has mental or behavioural symptoms that fail to meet criteria for a psychiatric diagnosis, it does not mean that professional support would be needless. For instance, subclinical levels of depressive symptoms could cause substantial dysfunction comparable to or worse than that of patients with major chronic medical conditions such as hypertension, diabetes and arthritis (Wells et al., 1989). In addition, subclinical depression is found to be a risk factor for later mild and serious depressive disorders which deserves preventive action. Among clinicians, such findings have yielded a tendency to include ‘subclinical and minor disorders’ and labels like ‘not otherwise specified (NOS)’ in psychiatric classification systems (Brown & Barlow, 2005; Widiger & Samuel, 2005). On the one hand, it means that these less severe problems are also taken seriously. The danger of such inclusions is, however, that we extend psychiatric labelling of human problems. By accepting this, we support the process of ongoing medicalisation of our society. In the end, it contributes to a further increase of the costs of health care and making people more dependent on professionals and psychotropic drugs to solve their problems (structural iatrogenesis). Another issue of criticism is that clinical classification systems reduce ‘problematic behaviour’ to individual processes that must be treated individually. The high prevalence of depression and excessive alcohol consumption in some groups, however, also reflects serious social problems (e.g. discrimination of minority groups, poverty, domestic violence, poor social cohesion in neighbourhoods, trafficking) that primarily need a social and political response. Such social policy measures become less likely when psychiatric labelling has defined the human consequences of such social problems as individual pathology. 3.2.2 Mental health Over many decades, efforts have been made to find a positive, measurable and science-based definition of mental health. An important historical example is the landmark book "Current concepts of mental health" by Marie Jahoda (1958). Based on a survey of scientific opinions at that time, she defined six clusters of criteria for "mental health": (1) the attitude of a person in relation to himself (esteem), (2) the presence of growth, development and self-actualisation, (3) the extent to which a person is internally integrated, (4) the autonomy of a person, (5) having a sensible perception of reality, and (6) having a reasonable control over the own environment (environmental mastery). Over the past decades, many authors tried to define such positive features of mental health, see for instance “Mental health promotion” by Keith Tudor (1996), the series of volumes on "Promotion of Mental Health, (Trent & Reed, 19931997) and the work of Corey Keyes (2002, 2007). As important features of mental health several authors have suggested human qualities such as happiness, ability to love, self-confidence, identity, autonomy, assertiveness, positive attitude toward life, happiness, the capacity to develop and change oneself, being physically healthy, access to social support and ability to live productively (e.g. Tudor, 1996; Health Education Board of Scotland, 1998). According to advocates of the positive mental health concept, these qualities need to be promoted because they represent fundamental positive human values, and not just because they might protect against mental disorders. These qualities as indicators of mental health have long been criticised because of the lack of theory59 based inclusion and exclusion criteria and their unverifiable character. Also, some definitions mix basic features, antecedents and outcomes of mental health (Hosman, 1997a; 1997b). For instance, should we consider physical health a determinant, a feature or a consequence of mental health? When mental health has diverse meanings, it will be difficult to develop research-based knowledge on determinants of mental health that could become widely accepted targets of mental health promotion activities. Recent developments in the science of positive psychology have countered this criticism by better assessment tools, theoretical embedding and a cumulating body of evidence showing the importance of positive features for a wide range of aspects of human life (Seligman, 2000; Carr, 2004; Keyes, 2007, chapter 8). 3.2.3 Views about the relation between mental illness and mental health It has long been debated how 'mental health' and 'mental disorder' exactly relate to each other. Are they qualitatively different concepts or do they form ends of the same continuum? In general, four distinct views on mental health can be differentiated, described here as models of mental health (Hosman, 1997; Figure 3.1): 1. Categorical medical model: A person is mentally healthy when no mental disorder is present. Health and illness are treated as a dichotomy; you are either sick or healthy. This corresponds to the categorical view on which classification systems like ICD-10 and DSM-V are based. 2. Dimensional medical model. In a more recent view, psychiatric diseases and mental health are considered as two sides of a continuum that is defined by the number of psychiatric symptoms. There is no clear-cut separation assumed between the two. The presence of many psychiatric symptoms represents psychiatric illness, while few or no symptoms point at mental health. The more symptoms the more seriously ill, the less symptoms the healthier a person is functioning. According to both the categorical and dimensional model, logically there would be no difference between promoting health and preventing disease, as the promotion of health is defined by the prevention of illness or symptoms. In both cases, health is defined negatively as the absence of a disorder or symptoms. That is not the case it in the following two views. 3. Positive model of mental health: Many scientists, health promoters and mental health practitioners consider the two models above as unsatisfactory. According to them, the categorical disease-model and the more recent dimensional view on psychiatric illness are too dominated by traditional medical thinking, i.e. viewing health only from a negative perspective as the absence of disease, deficits and symptoms. They advocate for a different and more positive definition of mental health, independently from the term mental disorder. For instance, Keyes (2002) defined mental health as a syndrome of symptoms of hedonia and positive functioning, operationalised by measures of subjective well-being, such as individuals’ perceptions and evaluations of their lives and the quality of their functioning in life. Positive 60 mental health is becoming increasingly conceptualised as a multi-dimensional concept. In his empirical study of basic features of mental health, Keyes (2005) differentiates between three factors, i.e. emotional well-being, psychological well-being and social well-being. Recently, Vaillant (2012) even distinguished seven models of positive mental health. These include (1) positive functioning as measured by the DSM-GAF-score, (2) presence of multiple strengths over weaknesses, (3) maturity, (4) positive emotions, (5) high social-emotional intelligence, (6) subjective well-being, and (7) resilience. In several positive definitions also functional aspects are underscored, which we will discuss separately as the next model that links mental health and mental illness in a functional way. 4. Functional model of mental health. In this model (Figure 3.2) mental health is considered a cluster of psychological resources and abilities, that people need for well-being, to develop themselves mentally and physically across the life span, to have a satisfying and productive life in domains as health, relationships, love, school, parenting and work, to be able to cope with life stressors and challenges, and to reduce the risk of negative life outcomes such as mental disorders, physical diseases and serious social problems (Hosman, 1997a, 1997b; Lavikainen, Lahtinen, & Lehtinen, 2001). This functional model is in agreement with current definitions of mental health that differentiate between an internal dimension of mental health (subjective wellbeing) and an external one (capacity to relate positively and productively with one’s environment). It conceives mental health as cluster of adaptive features. The functional model considers mental health and mental disorders as different concepts but assumes a functional relationship between the two (Hosman, 1997a, 1997b). As is illustrated in Figure 3.3, the functional model makes a distinction between (1) characteristics, (2) determinants and (3) outcomes of mental health. Mental health can be considered as 'functional' as it contributes to a wide range of important individual, social and even societal outcomes, including the possible development of a mental disorder. This broad spectrum of different outcomes is important for practice, because they provide a basis for getting public support for mental health promotion programmes, such as from schools, private companies and the justice sector. Even if such ‘stakeholders’ are not primarily interested in investing in mental health (e.g. less depression, conduct disorders), secondary effects of such programmes (e.g. public safety, less school absenteeism, better academic achievements, more productivity at work, more social cohesion in communities) could motivate their readiness for political or financial support. 61 This functional view is reflected in two recent authoritative definitions of health and mental health. Recently an international group of health scientists has proposed a new definition of health to replace traditional WHO definitions of health. They suggest considering: Health as an ability to adapt and to self-manage, when life is facing people with physical, emotional and social challenges (Huber et al., 2011) In addition, WHO adopted a new definition of mental health that stresses human capacities and their functional value: Mental health is a state of well-being in which an individual realises his or her own abilities, can cope with the normal stresses of life, can work productively and is able to make a contribution to his or her community. In this positive sense, mental health is the foundation for individual well-being and the effective functioning of a community“ (WHO, Factsheet 220, 2010). In this book on mental health promotion and prevention, we will use these capacity-based and functional definitions of health and mental health as our base. 3.3 Classifications of prevention Over the last five decades, prevention has been defined and subdivided in different ways. Below we discuss the most important classifications. 3.3.1 Primary, secondary and tertiary prevention Best known is the original public health classification of disease prevention (Commission of Chronic Illness, 1957) which differentiates between primary, secondary and tertiary prevention (Figure 3.4). This classification distinguishes interventions according to the developmental stage of a disease and corresponding preventive goals. Primary prevention refers to interventions aimed at preventing the onset of new cases of diseases or disorders, thus reducing ‘incidence’. Primary prevention is not the same as preventing "problems" in general. Psychological problems are actually a part of a healthy life. 62 Learning to cope with problems of life can even be seen as a prerequisite for healthy psychosocial development. Primary prevention aims to prevent healthy people developing serious mental problems that are no longer manageable for them, resulting in serious mental suffering or serious harm to their environment. Such problems require professional treatment to be solved. These kinds of problems are classified as diagnosable psychiatric disorders and described in the DSM-V and ICD-10. Primary prevention is often focused on groups at high risk or sometimes at an entire population, but can also be individually-oriented. Three examples: (1) Preventing child abuse by parent education can contribute to lower risk of subsequent depression, anxiety disorders, behavioural disorders, substance abuse and chronic diseases (2) Preventing anorexia nervosa through educating and counselling of catwalk models in the fashion industry who are a risk group for this disorder, or by legal measures on minimal body mass index to be allowed as model. (3) Prevention of bullying in schools, through classroom education, social skill training, peer counselling and measures affecting the school culture and norms (Box 3.1). Secondary prevention aims to detect disorders in an early stage, enhance their early treatment and prevent them staying untreated. This prevents beginning or moderate disorders from developing into severe disorders, and helps to avoid chronicity and long-term mental suffering. By reducing the duration of a disorder, its prevalence will also be reduced, which is the number of existing cases of a disease in the population during a defined period. Prevalence mostly refers to the percentage of cases during the period of a year (12-months prevalence), but may also be measured as the percentage of cases in the population at a certain date (point prevalence), or during the past life time (lifetime prevalence). A prerequisite for secondary prevention is knowledge of the early course of a disease, and the availability of reliable methods for its early detection. It is still unclear which impact secondary prevention can have on the ever-increasing use of mental health facilities and the associated costs. On the one hand, it is hoped that early detection and treatment can prevent severe disorders and chronicity, shorten the duration of necessary treatment and reduce health care costs. Generally, untreated mental disorders result in a poorer prognosis of the progress 63 Box 3.1 Prevention of bullying: a "textbook example" of a multi-component primary prevention programme A classic example of successful prevention is a Norwegian bullying prevention programme, originally developed in Norway by Olweus (1991, 1993). Problem: Epidemiological data have shown that about 15% of primary school pupils are involved in bullying, either in the role of victim or perpetrator. Both groups have a high risk of developing serious psychological problems. For victims that can be social anxiety, depression or even suicidal behaviour. The perpetrators are at increased risk for behavioural disorders, delinquency and alcohol addiction. Programme: The programme is based on a multi-component approach. First it is considered important to encourage a school environment that is characterised by warmth and positive interest in students and their emotional well-being, commitment and social support from adults, and that set limits and non-physical sanctions for unacceptable aggressive behaviour. To create these conditions, teachers and parents are first made aware of the problem of bullying and receive knowledge about its consequences. Second important element is to create a monitoring system in schools for detecting bullying. A variety of interventions is used to prevent and reduce bullying. For instance, at the level of the school system this is done by creating a more attractive playground, setting up workgroups for parents and teachers, and by organising consultation meetings between the two groups. Teachers receive an instruction manual, parents a brochure and to both groups a video is presented about bullying. At the level of the class, clear rules are made to combat bullying. Students learn new behaviours through role playing, classroom work on solutions and written information. Direct consultations are given between parents, children and teachers to address bullying problems. Individual interventions were also part of the overall strategy, such as individual guidance of children and parents of bullies and victims, support by a neutral fellow student (peer counsellor), or transferring a child to another class. Effects: In a period of 20 months after the start of the programme the incidence of bullying decreased by at least 50%. The incidence of new bullying victims decreased from 2.6% to 0.6% for boys and from 1.7% to 0.5% for girls. In this period, other forms of antisocial behaviour such as vandalism, truancy and stealing reduced as well (Olweus, 1991). Broad implementation: Based on this success, the Norwegian Government decided to run this programme in all primary schools. Partly inspired by its success many Dutch schools and schools in other countries around the world have adopted the programme as an essential part of their prevention of bullying strategy. Where needed, the programme has been adapted to local context and culture. 64 of a disorder and more risk of chronicity. On the other hand, secondary prevention may contribute to more cases of mental disorders entering the care system and therefore increasing health care costs. Early recognition is a major task for primary health care. Examples are early recognition and treatment of depression or alcohol abuse by nurses and general practitioners, and of developmental problems in child health centres. Tertiary prevention seeks to decrease the disability associated with an existing disorder or illness. Successful tertiary prevention aims to reduce problems in social functioning of people with a severe disorder and to improve their quality of life. Simply put: preventing that new problems arise from severe psychiatric problems. Some examples are: the prevention of hospitalisation, combating stigma and social isolation and promoting the reintegration of psychiatric patients into society. In addition to these categories, the term relapse prevention is used. This type refers to interventions that aim to prevent a previously existing disorder from occurring again or to prevent new acute episodes of a chronic disorder. Relapse prevention is often considered as a component of tertiary prevention. Well-known are activities to prevent relapse in people who earlier successfully overcame their addiction to alcohol, drugs or smoking. Relapse prevention is also important in depression and other Axis-I disorders. Several studies have shown that a person who had a first depressive episode during adolescence or early adulthood has a high risk of getting subsequent depressive episodes (Lewinsohn et al, 1999; Mueller et al. 1999). A large part of current depression prevalence consists of relapsed cases. Effective relapse prevention is an important tool to reduce the prevalence and incidence of mental disorders in society. People, who already have experienced a period of severe psychological suffering, might be more motivated to engage in preventive activities than those without such a history. Although the division into primary, secondary and tertiary prevention is a classical one, there are many who consider only primary prevention as ‘true’ prevention. Secondary and tertiary prevention can also be seen as forms of adequate treatment and care (high quality care). 3.3.2 Universal, selective and indicated prevention A second and widely used classification is the distinction between universal, selective and indicated prevention (Gordon, 1983; Mrazek & Haggerty, 1994, Figure 3.5). They can be regarded as a subdivision of primary prevention. This classification is primarily based on differences in risk level between populations and in the size of targeted populations. These two aspects are related, populations with a defined high-risk are mostly much smaller that lowrisk populations. For groups at high risk more expensive prevention programmes are considered as defendable. The higher the risk in a population the more people could benefit from an intervention and the higher the economic benefits could be. Still, if a low-risk population is very large, many cases could be prevented if a low-cost large-scale intervention would prove to be effective. Universal prevention is defined as interventions targeted at the general public or at a large population segment with no increased risk level, such as all schoolchildren, all pregnant women or all elderly. For these audiences, the introduction of preventive interventions is only feasible and justifiable when they concern low labour-intensive interventions that target each person at relatively low costs. An example in the field of mental health is introducing a programme to increase social resilience of all children in primary schools through socialemotional education. Of course, such a general group will include certain children at high risk, for instance children who have a parent with a mental disorder. 65 Selective prevention targets individuals or subgroups of populations whose risk of developing a mental disorder is significantly higher than average, as evidenced by the presence of biological, psychological or social risk factors. The higher the risk, the more people in such a group are in need of preventive support and the higher the potential benefits of effective preventive interventions could be. Even a prevention programme with relatively high costs, could be an economically sound investment for this reason. Groups at high risk for mental disorders include, for instance, children of parents with psychiatric problems or drugdependent parents, victims of child abuse or partner violence, professionals with high work stress (e.g. teachers) or at high risk of traumatic experiences (e.g. emergency workers), survivors of suicide, and those living in poverty . Indicated prevention targets high-risk persons having minimal but detectable signs or symptoms forewarning a likely developing mental disorder, or who have biological markers indicating a predisposition for a mental disorder, but who do not yet meet the diagnostic criteria for that disorder. In such cases, clinicians also speak of the presence of subclinical symptoms. Examples are adolescents with an increased level of depressive symptoms but no diagnosed depressive disorder, an adolescent female with deviant dieting behaviour but no anorexia, or someone with excessive alcohol consumption that could eventually lead to a serious alcohol addiction and related physical disorders. The risk of developing a mental disorder in these groups is demonstrably higher than in the population at large. As Figure 3.6 shows, the two classifications can be combined. Universal, selective and indicated prevention can be 66 considered as subdivisions of primary prevention, while all their definitions refer to situations wherein no diagnosable disorder is present yet. 3.3.3 Disease-specific and ‘broad spectrum’ prevention A third classification can be made between disease-specific prevention and "broad spectrum" or generic disease prevention (Figure 3.7). This distinction refers to differences in the width of the targeted preventive outcomes. In disease-specific prevention, the goal is to prevent one particular disease or disorder (e.g. depression, anorexia nervosa or alcohol addiction). Risk factors or determinants of that disease are investigated and preventive interventions are designed to influence as many of these factors as possible. Interventions aimed at preventing a specific disease are generally based on the assumption that risk factors for that disease are predominantly disease-specific in nature, for instance, that they mainly predict depression and no other disorder. If that is the case, disease-specific prevention programmes are most appropriate. However, the emergence of many diseases and disorders, including depression, depends not only on disease-specific risk factors, they also share risk factors with other diseases. Generic prevention, also called broad-spectrum prevention, is based on the assumption that multiple diseases and disorders have major risk or protective factors in common, and that only a limited part of the incidence can be explained by disease-specific determinants. Examples of common factors are poverty, child abuse, social and problem-solving skills, self-esteem and social support. A lack of social skills can contribute to an increased risk of depression, eating disorders, excessive alcohol use and juvenile delinquency. Child abuse appears to increase the risk of a wide range of mental and physical disorders. Interventions aimed at influencing common risk or protective factors may result in a broad-spectrum of preventive effects, which means a reduction of multiple diseases and problems. A distinction can also be made according to the differences in the type of primary benefits that are aimed with preventive interventions. Most common goal of prevention in the health sector is disease prevention, which differs for instance from the primary aim of mental health promotion (3.3.4). It might also be the case that different stakeholders in a prevention 67 programme might have different views about the targeted primary benefits. For some, it could be less cases of a disorder, for others a reduction of care consumption or health care costs, while for other stakeholders a resulting social benefit might be the primary reason of support for this programme. These distinctions have strong implications for how we should define the effectiveness of interventions, for stakeholders might use different criteria of success. 3.3.4 Mental health promotion The primary aim of mental health promotion is to empower people and to enhance their positive mental health and well-being, not primarily to prevent illness. To achieve this, mental health promotion aims to support individuals, families, groups, organisations, communities and governments to create the individual capacities and social conditions that are needed for people to develop and protect their mental health and well-being. Individual capacities might include the type of capacities we defined earlier as features of mental health, such as selfesteem, emotional resilience, social competence, problem solving skills and feelings of mastery. Enhancing social conditions for mental health means on the one hand to empower people to create supportive and stimulating environments and positive experiences that enhance and protect their mental health and well-being, but also to eliminate, reduce or avoid social conditions that represent a threat to mental health, such as poverty, discrimination, abuse, violence, and unemployment (Joubert & Raeburn, 1998; Hodgson, Abasi, & Clarkson, 1996; WHO, 2008). Typical for health promotion is also to use a participative approach with citizens and to avoid a top down approach in which only professionals define goals. Citizens are stimulated to play an active role in shaping needed actions and policies that could improve the health and mental health conditions of their life. Health promotion stresses not only governmental agencies and professionals have a responsibility, but that it is in the first place a responsibility of citizens and communities themselves. Although there is no overall consensus on a definition of mental health promotion, the following definition summarises its main principles: Mental health promotion aims to protect and improve mental health, and related health and social outcomes by enabling individuals, families, groups, organisations and communities to enhance mental health promoting factors and to reduce harmful factors through intersectoral public policy, and educational and environmental actions at micro, meso and macro level with use of participatory methods. Mental health promotion is usually targeted at whole population segments, not specifically at those at high individual risk to develop mental illness. For instance, mental health promotion can be targeted at all schoolchildren, or specifically at all schoolchildren living in poverty areas. While large population groups also include some people who are at high risk for developing, for instance depression, mental health promotion activities can strengthen protective factors and can contribute to preventing the onset of mental disorders. For this reason, mental health promotion and primary prevention partly overlap in practice. Originally, mental health promotion and primary prevention were even considered as more or less interchangeable concepts (Perlmutter, 1982). Figure 3.8 schematically shows the various classifications of prevention according to the main criterion on which each classification is based. 68 3.4 Profile of practice This section presents a profile of the practice of mental health promotion and prevention, and the type of professionals and organisations operating in this field, which differs between countries. It illustrates that mental health promotion and prevention concerns a multidisciplinary field and that its work includes many challenging tasks. Successful prevention and health promotion in our society requires the input from a wide range of expert domains. 3.4.1 Professional roles and specialisations in prevention Within the field of prevention and health promotion there is a variety of professional roles and academic specialisations. The most important are: Senior prevention and health promotion experts: Their work consists of developing new science-based intervention programmes, testing and evaluating them, policy development, team and project management, quality control, advocacy and training of professionals and organisations. Some experts are generalists and able to address a wide range of themes and target populations, others are specialised in working with specific age groups (e.g. children or elderly) or on specific themes such as depression and anxiety, substance abuse, domestic violence or work. Usually such experts have an academic degree in health promotion or in social sciences with a specialisation in prevention and health promotion, or more specifically in mental health promotion. Such experts are appointed, for instance, by national institutes or by local public health organisations, mental health centres or addiction clinics. 69 Prevention and health promotion practitioners, whose primary task is implementing health promotion and preventive interventions on a daily basis, for example providing courses, training, educational activities, offering preventive consultation and developing preventive collaboration between different local professionals and organisations. Mostly, on top of the basic training in their discipline (e.g. social work, youth work, psychology), they have received a special graduate or postgraduate training in providing health promotion and preventive interventions. Their work covers a wide variety of activities as we will illustrate in the next sections and chapters. Health and mental health care professionals, with a part-time prevention task, as part of their curative work and through their participation in prevention programmes. These include, for instance, public health nurses, psychiatric nurses, psychotherapists, gerontologists, primary care psychologists, school psychologists, organisational psychologists, hospital psychologists and school-based social workers. Professionals working in social services and educational institutes, who consider health and mental health promotion as a part of their work. This group includes for instance teachers and school counsellors, fitness professionals and stress management counsellors in companies, personnel working in homes for elderly. Staff and policy officers in governmental institutions, professional organisations, and in organisations of interest groups. Part of their task is to develop health promotion and prevention policies for countries, districts, cities, or companies. Prevention and health promotion researchers, at universities, research institutes or working in large service organisations. They usually collaborate closely with practice. Teachers in prevention and health promotion at universities and professional schools with the task to educate new generations of prevention and health promotion professionals, and to increase the prevention capacity in a wide variety of disciplines. All these different professionals are needed to move our society into a healthier and mentally healthy one. 3.4.2 Professional tasks What kind of work is performed by these professionals? In order to achieve preventive effects in a population, community or target group, involved professionals need to fulfil a range of tasks. We summarise the main ones: 70 Needs and risk assessment at the level of individuals, groups and communities: This involves identifying needs and opportunities for prevention and health promotion through various assessment methods, the identification of target groups (at risk), and detection of risk and protective factors. This requires the use of various research methods such as case studies, surveys, epidemiological research, group interviews, community observation methods, social indicator studies and network analysis. Running problem analyses. Prevention experts have a task in analysing how risk and problems have developed over time and which major causes could be influenced by health promotion and prevention policies and interventions. For generalists, the problems and themes they study can vary over time and between the communities they serve. Other experts are specialised in a specific domain, for instance, depression, substance abuse, child maltreatment or elderly. This requires scientific knowledge of developmental psychopathology, mental health development and theories or in-depth knowledge about a specific issue. Programme Development: systematic development and testing of new prevention and health promotion programmes, based on problem analysis, goal analysis, target group analysis, feasibility analysis. Designing an effective programme requires the use of science-based and practice-based knowledge about programme planning, processes of change, intervention strategies and moderators of effectiveness and public impact. . Development of educational and advocacy materials, such as leaflets, brochures, workbooks, lesson plans, games, videos, press releases, social media messages, websites and Internet-based interventions (E-health). The development of attractive and effective educational materials, for example making a video film, requires much preliminary work, such as literature analysis, interviews with people from the audience, and pre-testing new materials on comprehension, attractiveness and usefulness. Implementing interventions: this means providing prevention and health promotion programmes to target groups and applying a wide variety of intervention methods (chapter 13). In this work, professionals can play different roles such as being an advocate, educator, trainer, consultant, facilitator, mediator or coalition builder. A distinction is made between interventions aimed directly at the final target population (e.g. children, pregnant women, depressed adolescents, employees) or at intermediate target groups (e.g. teachers, nurses, doctors, police, community leaders, business managers, civil officers). Intervention methods may target individuals, groups, organisations or entire populations. Professionals may choose from a wide range of standardised, evidence-based programmes described in national and international databases. Safeguarding sustainable implementation: Activities to ensure that organisations (e.g. schools, companies, local non-profit organisations) will adopt and implement new prevention and health promotion policies and programmes on a structural and sustainable basis. This requires a professional to perform tasks such as advocacy, negotiating, instructing and coaching organisations, staff training and making interventions a steady part of their long term agenda. Programme-evaluative research: conducting process evaluations, effect studies and economic evaluations (e.g. cost-benefit and cost-effectiveness analysis). From such studies conclusions should be drawn for the improvement of prevention policies, and programmes, and for a more efficient use of available resources. Positive outcomes can be used for advocacy purposes. Prevention policy and management: This includes setting of priorities and goals for preventive actions by governmental, non-profit and for-profit organisations, or writing a policy plan for how prevention is implemented. It can also include making agreements on how prevention tasks are distributed across organisations, setting quality standards, implementing quality control, and acquisition of economic resources and manpower. Furthermore, prevention work requires many managerial tasks, such as managing a department or team, developing a local coalition and project management. Professional education and training: providing education and training in prevention and health promotion to professional groups who are involved in such activities, often alongside other tasks. Examples of professional groups are general practitioners, baby 71 clinic personnel, school nurses and doctors, school counsellors, therapists, police, company social workers and staff officers. For instance, to increase the preventive capacity of nurses, they could be offered training in early detection and treatment of depression among pregnant women. This multitude of tasks requires professionals to have broad expertise and have knowledge and skills in different domains. This is what makes health promotion and prevention work so interesting and varied. Another common strategy to ensure the availability of all these types of expertise is working with multidisciplinary teams and collaborating with other organisations at local or national level to bring in additional strengths. In the next part of this book the required expertise and professional skills for these tasks is discussed further. 3.4.3 Intervention methods Although professionals in this field have many different tasks, the practice or mental health promotion and prevention derives its identity especially through the type of intervention methods they use. These partly overlap with those used in treatment of mental disorders, such as preventive medication, cognitive-behavioural intervention methods and psychoeducation but then applied for preventive purposes in groups at high risk. Cognitive-behavioural methods are used, for instance, in face-to-face courses, self-help manuals and E-mental health programmes for people with increased levels of depressive symptoms, who are at risk for developing a clinical depression (indicated prevention). Prevention professionals also use a wide range of other intervention methods, such as skills training, organising support groups for people facing similar problems, involving former clients as trained volunteers or mentors, home visits and use of social media. To increase mental health promotion and preventive capacity in communities, schools, health care, workplaces and other organisations, they use advocacy methods, mass media and internet, staff training, workshops, symposia, protocol development, organisational consultation, task forces, and network development. At national level, it can include advocacy and consultancy to promote preventive measures, policies and legislation. Such methods may be used to reduce social risk factors, to enhance health-promoting environments or to increase the resources for prevention. Professionals working in this field will each not use all these methods, but may specialise themselves in a selection of them. Chapter 13 offers an extensive discussion of intervention methods and strategies. 3.4.4 Organisations providing prevention and health promotion Health promotion and preventive interventions are provided by a wide range of health and nonhealth organisations. These could be governmental organisations, nongovernmental organisations and for-profit organisations. The situation differs largely between countries, especially in the case of preventive services in the field of mental health. For instance, in the Netherlands for many decades the outpatient mental health services were the major initiators and providers of preventive interventions in this domain. In England, public health services played a major role in implementing mental health prevention programmes in districts and communities. In Sweden, the provision of preventive services has always been strongly decentralised across local health and social service organisations. Also, national organisations play an active role in implementing mental health promotion and prevention programmes such as Mentality, The Samaritans, Mental Health Media and the Royal College of Psychiatrists in England. In The Netherlands, the Trimbos institute, the National Institute for Mental Health and Addiction, plays a significant role in countrywide provision of E-mental health services. The 72 organisational structure of prevention in European countries is described in a study supported by the EU (Jané-Llopis & Anderson, 2006). WHO has strongly pleaded for integrating prevention efforts in primary health care centres worldwide (WHO, 2008). In general, we may conclude that services for mental health promotion and prevention are provided by a wide range of national and local organisations. Which service or programme is provided by which organisation depends on the type of mental or social problem that is addressed (e.g. child and parenting problems, depression, substance use, aggressive behaviour, domestic violence, dementia), and on the type of prevention. For instance, schools and public health organisations mostly provide mental health promotion and universal prevention programmes, while primary health care services, hospitals and mental health care centres mainly focus on indicated prevention, relapse prevention and suicide prevention. Which organisation provides which kind of preventive services and in what volume also depends on the health and social legislation in a country and the financing systems for preventive and health promotion services. For instance, through the Law on Collective Prevention, Dutch Public Health Services became explicitly involved in mental health promotion and prevention, e.g. through school-based prevention programmes, bullying prevention programmes, programmes for disadvantaged youth and the elderly. Recently, through a change of Dutch health laws the long existing budgets for prevention by district mental health services was strongly reduced and many of their preventive tasks were transferred to primary health care and community care services. To illustrate the wide range of organisations that can be involved in implementing mental health promotion and preventive services in the domain of mental health, Figure 3.9 lists the organisations involved in the Netherlands. We stress here the importance of involving a wide range of national and local organisations in the provision of mental health promotive and preventive interventions. This seems to us an essential condition for making this a field that is deeply integrated in the societies of the future. Up until now, international models for the organisation and provision of prevention programmes in the field of mental health do not exist. Multiple organisational models should become available to support countries and communities 73 in selecting the model that fits best into their social and professional culture, health system and available resources. 3.4.5 Stakeholders and coalition development Which programmes are provided by whom and for whom, and in which frequency and size, is not just up to a providing organisation. Actually, there are many stakeholder organisations directly or indirectly involved in such policies and decisions. Some stakeholders may influence the availability of budgets for prevention and mental health promotion or who is providing what type of preventive service. Other stakeholders may be crucial to acquire needed knowledge and expertise, to create access to settings for implementation or as partner in providing prevention programmes to target populations. Finally, stakeholder organisations might become involved because of their influence on specific social conditions for mental health that lie outside the health system, or because they are mainly interested in social and economic benefits of improved mental health. In this field we frequently have to deal with complex problems, this means clusters of related problems of which mental health problems are just a part. The context in which prevention and mental health promotion is developing and implemented, could best be considered as a social arena. This label stresses the practice of mental health promotion and prevention being influenced by many parties that might have different but related interests, and sometimes competing interests. For preventionists and mental health promoters it means that they should understand who the major stakeholders are, what their interests and strengths are, how these are related, and which windows of opportunities they could provide. Improving the mental health of populations or reducing targeted problems requires partnership and the development of coalitions of stakeholders and combinations of multiple actions to generate ‘collective impact’. Figure 3.10 gives a schematic overview of the most important sectors and actors in this social arena of mental health. Their role and interests are discussed below. 74 Government Health policy is a concern of all national governments around the world. In each country, the Ministry of Health has the primary responsibility to safeguard the health condition of its citizens, including mental health. Governments develop health legislation, public health policies, provide health budgets and collaborate on this with all other countries within the World Health Organization (WHO). A classic example of this is the WHO Health for All Strategy that was initiated in 1984, and advocated investments in the promotion of the health of populations and collaboration across multiple public sectors to achieve this (WHO, 1985). This need for intersectoral collaboration and policies is based on the idea that health problems (e.g. heart diseases, ebola, cancer, mental disorders, and suicide) and premature death affect many sectors of society, not just the health sector. In addition, many causes of poor well-being and diseases are rooted in environmental, social and economic conditions that are outside the control of the health sector. For mental health, such conditions include, for instance, road safety, crime, emancipation, poverty, school policies, stress at work, social security, and refugee policy. Efforts to improve mental health also require measures in other sectors, and successful mental health promotion programmes are found to generate benefits outside the mental health domain, such as better school achievements, more safety and increase in productivity. Public health and mental health problems can only be effectively addressed through cooperation between multiple sectors, such as education, health, justice and public safety, work and industry, social benefits, sport, recreation and urban development. This not only stresses the need for health promotion to stimulate collaboration between governmental agencies, NGO’s, the private sector and citizen organisations, but also at national and local level between different ministries or municipal departments. Because of current decentralisation trends in many countries, local governments (municipalities) increasingly become major players in the field of health and mental health. This is supported by new legislations that increase the responsibility of local governments for health care, health promotion and populations at risk. During efforts to develop intersectoral collaboration, also conflicting interests may become visible. For instance, in efforts to reduce alcohol problems the economic interests of the distillers and the Ministry of Economic Affairs are diametrically opposite to the interests of the Ministry of Health. Economic measures to reduce the national deficit by lowering social benefits might increase poverty and lower social cohesion, which may contribute to more health problems and related costs. Education and schools An increasing appeal is made on schools to take up a ‘health educational’ role to help preventing health, mental health and social problems. Primary and secondary education can contribute to healthier life styles in children and adolescents, but also teach them skills that will increase their emotional resilience, social competence and coping with stress. They can achieve this by adopting special educational programmes or a health-promoting school policy. It is also recognised that the school system and the school environment itself may produce risk factors by a lack of rules for social interactions, high levels of bullying and aggression, or by teachers who lack sensitivity to social-emotional problems of children and adolescents. Today, in many countries, schools have implemented such programmes and policies, and research has provided strong evidence for their effectiveness (Durlak et al., 2011). Schools might have problems with this appeal in a period with steady lowering budgets. In this respect, it is important that outcome studies have shown that investments in school-based mental 75 health promotion programmes also result in better school achievements and less school dropout. Industry and business sector Working conditions are a major source of mental health problems owing to stressful work conditions, work overload and burnout, child labour or very low wages. At the same time, work contributes to mental health through meaningful daytime activities, social contacts, social appreciation and income. This means that companies have some control on conditions that influence the mental health of employees. Many companies do not see, however, promotion of mental health as one of their responsibilities. Investing in such activities might only become relevant when companies recognise that some common interest exists. This may be the case when they become aware of evidence showing that ‘mental capital’ significantly contributes to their primary concerns, such as high labour productivity, product quality and low costs due to reduced sickness leaves by their employees. This stresses the need to understand better the economic value of mental health. Health insurance companies For health insurance companies it is important that costs of care are under control and kept as low as possible. Increases in health care costs are their major concern. In the Netherlands, for instance, the costs of mental health care were rising faster during the last decade than the costs in any other health domain. To counter rising costs, they use several strategies, such as increasing revenues by raising the insurance premiums, lowering or maximising the level of reimbursement of costs of health care services, and excluding certain services from their insurance policy. This raised questions such as: Should the criteria for psychiatric disorders be redefined in a more restrictive way? Can the length of insurable psychiatric treatments be reduced? Can early detection and treatment by primary health care reduce the need for longterm care and costly treatments? Will covering also costs of prevention boom expenses? Health insurance companies are interested in prevention as is evident from their covering of costs of vaccinations, early detection of diseases and relapse prevention. However, their interest is mainly restricted to indicated prevention and secondary prevention, which means to evidence-based preventive services only for patients with subclinical or beginning diseases. Among these groups, they expect the best return of investment. For instance, in our country the costs of participating in interventions aimed to prevent the onset of depression among those with subclinical symptoms are included in all insurance policies. Health insurance companies are, however, very reluctant to reimburse the costs of general preventive services because they expect that this might increase their expenditures exponentially. In addition, they consider the field of health promotion, universal prevention and selective prevention as primarily a responsibility of local and national governments. On a local level, municipalities increasingly negotiate with health insurance companies on dividing responsibilities concerning prevention or on financing prevention projects together. Health insurers are also entrepreneurial and competitive, which triggers questions such as: Which new "markets" can we tap? How do we attract customers? The creation of prevention centres by health insurers, with emphasis on fitness and stress reduction, can be understood as an interest in primary prevention, but also as services that are initiated for marketing reasons, thus to attract new customers. On the other hand, it offers a good example of how private companies can be persuaded to support prevention initiatives to increase their market position or and to serve as co-financers for shared benefits. 76 Employers / managers in mental health care The growth of prevention is among others dependent on the degree mental health services adopt prevention policies and practices. Usually the primary loyalty of managers in these services is to curative care, which they consider as the core business of mental health services. They mostly consider prevention as a minor issue, which from our point of view is a debatable stand. Mental health services should present themselves as centres of mental health expertise offering citizens the best and most up-to-date support to maintain, increase or restore their mental health. This reflects a broader and flexible view on mental health services. Moreover, due to the dominating clinical culture of current mental health services, managers will not easily approach the issue of prevention from an epidemiological and public health perspective, which would be essential for understanding the need for primary prevention and mental health promotion. If they support preventive services, their major criterion is whether such preventive services fit in the existing treatment and care system, and not the mental health needs of the population. Recently, the interest in a public mental health approach is noticeable in response to increasing mental health care costs and the economic recession. There is strong political pressure to reduce the client inflow to highly specialised and expensive treatment, to strengthen early and short-term mental health services in primary health care, and to stimulate self-care and community care in the case of mental health problems or people at risk. In conclusion, mental health care managers are faced with dilemmas. Some skip prevention tasks as a way to deal with shrinking budgets, others consider the development of community-based and treatment-based preventive interventions as a challenge to innovate mental health services and to find new sources to finance mental health services in the future. Over the next decade, we consider it as very likely that the dominance of the traditional oneto-one and face-to-face psychiatry and psychotherapy will make room for a much more community based response to the mental health needs and risk of the population. Mental health, health promotion and public health professionals Psychiatrists, social workers, psychiatric nurses, educationalists and psychologists traditionally play an important role in mental health services as diagnostic experts, therapists and professional care providers for those who suffer from mental disorders. In a period of shrinking mental health budgets, they may become more protective of treatments budgets at the cost of their involvement in prevention. Over the last decades it has been debated in many countries whether the development of preventing mental disorders should be a primary responsibility and task of mental health professionals, or should be assigned to specially trained prevention and health promotion experts. In the Netherlands, for instance, prevention experts and prevention teams are since the 1970s appointed by mental health services to be leading professionals in prevention. They can involve other health and mental health professionals in preventive work. Appointing prevention experts requires the availability of institutional budgets for such positions; there are only a limited number of countries in the world who can afford such appointments within mental health care. Mostly, preventive services are provided by mental health professionals who feel some affiliation with prevention. This affiliation is likely to vary between mental health disciplines. For instance, psychiatrists are more interested in relapse prevention, while psychiatric nurses have by training a more public health orientation, and are more open to community-oriented work, home-visiting, early detection and collaboration with primary health care. Pedagogues are inclined to value parent education and early child interventions as their main focus of prevention, while clinical psychologists are especially interested in cognitive-behavioural 77 training of those who are at high risk and showing subclinical symptoms of disorders such as depression, eating disorders or substance abuse problems. In our experience, children of parents with psychiatric problems represent a population at high risk in which mental health professionals have a special interest because they are already treating the parents or while their young or adult clients in treatment are frequently themselves a child a parent with a mental illness or substance abuse. In several countries, the development and implementation of mental health promotion and prevention programmes is initiated from public health agencies by health promotion and public health experts. Through their professional background and institutional embedding, they might be more inclined to focus at universal prevention and population-oriented efforts to promote mental health. This could include, for instance, supporting schools with implementing programmes to enhance emotional resilience, problem-solving skills and social competence in children and adolescents. In sum, professional disciplines and the positioning of professionals in certain health organisations will influence their interests in preventive and health promoting services and the chances they get to be involved in them. Their affiliation with prevention will also depend highly on the policies and financing systems of health insurance companies, local governments and ministries of health. Client organisations and social interest groups outside health care Over the last decades, client and consumer organisations are increasingly recognised as important partners in the health and mental health sector. The number of such organisations has expanded tremendously over the years. Just as illustration, the Dutch National Mental Health Fund identified already during the 1990s no less than 76 clients, patient and family organisations in the field of mental health (Dercksen & van ’t Hof, 1996). Their activities are focused on a wide range of targets, such as stimulating mutual aid between clients, sharing life stories and learning experiences, disseminating information about mental diseases, advocacy for mental health to influence public opinions and policy makers, and participation in boards of services. They also provide school-based education to increase the literacy about mental health and reduce stigma to mental diseases. Client organisations are particularly interested in improving the quality of life of chronic patients and innovations of outpatient mental health care to make them more accessible and sensitive to their needs. Also social interest organisations are interested in health promotion and disease prevention activities, such as organisations against alcoholism, organisations fighting child abuse and domestic violence, and national NGO’s on child protection, sexual education, mourning support or on the quality of life and rights of elderly. The interest of these client and social interest organisations is primarily the improvement of the mental health and well-being of patients and their families, not the reduction of health budgets. Nevertheless, governments and health insurers strongly appeal to such organisations to stimulate self-care, social networks and community care to prevent the need for costly specialised treatments and long term stay in mental hospitals. Coalition development As discussed, multiple sectors and stakeholders are involved in this social arena of mental health with different but related agendas and strengths. Single organisations independently usually do not have the capacity to create significant changes in the mental health condition of target populations and communities. This stresses the need to develop temporary or more permanent partnerships and coalitions of organisations with complementary strengths. For 78 instance, reducing domestic violence in a city - a major risk factor for mental health and many other problems - requires effective collaboration between primary health care, child and youth care services, child protection services, mental health services, women’s services, police and justice, local governments and mass media. In addition, multisectoral coalitions offer the opportunity for a dialogue with non-health organisations about the meaning and value of mental health in our society. This prevents that mental health is only associated with psychiatric hospitals and treatment of severe disorders. Health promoters and prevention professionals have a significant role in developing partnerships and coalitions, which requires specific attitudes and skills. Experience with coalition building and maintenance in the past has learned that they largely vary in success. Some coalitions offer poor outcomes, end prematurely or don’t even reach their initiation phase. Common pitfalls are lack of clarity about shared goals, lack of shared views and trust, poor communication, lack of time and resources for collaboration, less benefits then costs, and an unbalanced division of benefits between coalition partners. Based on shared experiences from coalition building in different countries we have listed in figure 3.11 a range of features that characterise successful coalitions and can be considered as guidelines for coalition builders at local or national level. As an example, coalitions are only feasible when the partners have common or complementary interests. It might be possible that some parties participate in a coalition to achieve mental health goals, while others have other reasons, such as public safety (justice) or better education productivity (schools). Such different benefits are highly related and mutually dependent. When coalition partners experience mutual benefits, it offers a more workable basis for intersectoral collaboration than just asking other parties to contribute just because mental health is an important charitable issue. 79 3.4.6 Professionalisation and quality management The past 30 years, significant steps have been made to ensure professionalisation of mental disorder prevention and mental health promotion and to increase quality and effectiveness of programmes (Hosman, van Doorm & Verburg, 1988; Hosman, Jane-Llopis & Saxena, 2004; Molleman et al. 2006). Initiatives for quality enhancement, improving effectiveness and capacity building have been started in many countries (e.g. US, Canada, Norway, UK, Netherlands, Finland, Sweden, Croatia, and South Africa). These initiatives have resulted in: National research programmes on programme development, effectiveness and cost-effectiveness that have resulted in thousands of controlled outcome studies and a rich knowledge base on effectiveness, benefits and effect moderators. National and international databases of evidence-based programmes, to stimulate exchange and large-scale implementation of the best programmes. Bachelor and master courses, master programmes and postgraduate training programmes in (mental) health promotion and prevention at universities and professional schools. Trained mental health promotion, prevention and public health experts in different organisations. Quality standards and quality assessment instruments to evaluate ongoing practices and programmes and to select programmes for implementation grants. National institutes and university research centres, with research and development programmes on mental health promotion and prevention, and supporting policy and practice. National and international professional associations (e.g. Society for Prevention Research, European SPR, International Union for health Promotion). National and international policies on mental health promotion and prevention, among others by the European Union, UNICEF and World Health Organization (e.g. the EU green paper on Mental Health Promotion). Regular international conferences and symposia on mental health promotion and prevention. Through all these initiatives, a professional infrastructure has emerged to safeguard high quality research and practice. In developing such an infrastructure, international collaboration plays a significant role. This collaboration is supported by governmental organisations as WHO and EU, and by professional organisations as, for instance, Society for Prevention Research, International Union for Health Promotion and Education, and World Psychiatric Organization. The DataPrev project on identification and dissemination of effective programmes across Europe offers an example (Anderson, Llopis & Hosman, 2011). Some international networks are initiated by prevention researchers themselves, such as the International Network of Children and Families of Parents with Mental Illness (COPMI). Still large differences in progress exist between countries, which offers a further challenge to strengthen international collaboration and especially to support middle- and low-income countries in closing this gap. 3.4.7 Availability of effective programmes To improve mental health in a target population, a first requirement is that preventive interventions and health promotion programmes are ‘evidence-based’. There should be valid proof that programmes work and valid information on what effects they are able to produce. To date, governmental agencies, health insurance companies and other funding agencies require such proof of effectiveness as condition for financing large-scale implementation of an intervention. When such proof is not present, such as in the case of programmes that are 80 developed bottom-up in a specific community with involvement of local stakeholders, it is recommended to apply evidence-based principles and guidelines for effective interventions. As we will explain in subsequent chapters, especially in part VI and V of this textbook, evaluation has provided convincing evidence that preventive interventions can indeed be very successful. In recent years multiple review studies and meta-analyses of controlled studies have been published (e.g. IOM Report, 2009; Cuijpers et al., 2008; Hosman, Llopis & Saxena, 2004; Durlak et al., 2011; Anderson, Jane-Llopis & Hosman, 2011). For instance, significant reductions of new depressive episodes in adolescents and adults, eating disorders, conduct disorders in children and juvenile delinquency have been demonstrated as outcomes of prevention programmes. Numerous risk factors and protective factors can be successfully influenced, such as premature births and low birth weight, parent-child interaction and parenting competence, child abuse, problem-solving skills, negative cognitive styles, bullying, stress management, socio-emotional support, and self-esteem. Furthermore, it appears programmes also have numerous social benefits, such as better academic outcomes, fewer school dropouts, more safety, higher labour productivity, lower youth unemployment and reductions in social benefits. As discussed in chapter 14 and 15, national and international databases are currently available on evidence-based mental health promotion and prevention programmes. Countries like for instance US, Norway, Netherlands and Germany have national databases. However, we should be modest in our expectations while prevention successes when measured at the level of whole populations are currently still very small or even non-existent. Programmes need further improvement to become highly effective. In addition, major investment is needed in large-scale implementation of effective prevention programmes and policies to generate a large-scale reach and public mental health impact. Public impact is the outcome of a combination of programme effectiveness and programme reach in a target population. 3.5 Limitations, risks and bottlenecks Although the need to prevent mental disorders is evident and recent developments in knowledge about the outcomes of preventive interventions are promising, the practice of prevention in this domain is also criticised. Criticisms addressed at prevention fundamentals and practices We have listed a range of common criticisms from different stakeholders that we have encountered in our preventive work over the last decades, irrespective of our view on their validity: Knowledge about determinants of mental disorders is still too limited to invest on a large scale in the development and implementation of prevention programmes already. The idea of preventing mental disorders in populations at risk or in the total population is premature and too pretentious. Mental disorder prevention focuses too much on promoting positive qualities of people but is criticised by traditional psychiatrists as having little to do with preventing severe psychiatric disorders. Some insight exists into the effectiveness of prevention programmes but knowledge about effective interventions that actually reduce the incidence of mental disorders is 81 still too limited to justify diverting mental health budgets from curative care to prevention. A sound long-term vision on how to develop science-based prevention that will have a proven impact on the mental health of whole populations is still lacking. Prevention practice still offers prevention programmes to the public for which the preventive effects have not been demonstrated. Mental disorder prevention programmes currently provided reach only a marginal part of the population, so their impact on the mental health of the population is marginal. Interventions are needed with potential to reach large segments of the population (at risk). In addition, interventions and measures are lacking that aim to reduce social risk factors that have impact on the mental health of large groups of citizens. Existing beliefs about potential risks and adverse effects in prevention Money for prevention is taken from the funds needed for curative care: treatment. Care of psychiatric patients and urgent problems should always have priority even if this would mean a lack of funding for prevention. Prevention is tutelage: it means too much interference in the privacy of people. Prevention is therefore no task of the government. The danger exists that by increased preventive care, the care for health becomes even more professionalised (proto-professionalism, structural iatrogenesis) and people become even more dependent on professionals for their well-being. Successful prevention programmes reduce the stigma on mental problems and improve access to mental health services, which will result in increasing numbers of clients. So prevention really does not lead to cuts, but to an increase of health care costs. Risk of stigma through identification of groups at risk while attributing the causes to the individuals themselves (‘blaming the victim'), and by more distress due to the awareness of being at risk of a serious disease. Person-focused prevention (e.g. coping with stress) may be used by the government, employers and other social parties as a tool to let people adapt to adverse circumstances, such as work overload, poverty and social inequality. It lowers the social pressure for political measures and social actions to reduce social risk factors. These criticisms are a selection of the issues that are discussed between prevention advocates and critical stakeholders in response to the calls for more investment in prevention of mental disorders and mental health promotion. They come from different public parties (e.g. psychiatrists, health insurance companies, mental health service managers, governmental agencies, critical consumers) and some from prevention experts themselves. Are presented criticisms justified? We will not take a defensive stand here, as good criticism is essential for the further development of effective prevention with an accepted role in society. We invite you as a reader to develop your own reactions using your own experiences and views, but also the body of knowledge that is presented in this textbook on prevention science, prevention practice and preventive programmes. In the Introduction chapter of this textbook, we have already 82 summarised a range of arguments in favour of prevention that could be used to counter several criticisms. In our view, some criticisms are very justified (e.g., the still moderate public reach and impact of current prevention). Other critical statements are not supported by us, but are more an issue of views and values (e.g. no investment in prevention, while all resources are needed to respond to already existing mental illnesses). Several of the mentioned statements are not defendable anymore if we take into account the huge progress that has been made over the last three decades in scientific knowledge about the risk and protective factors for mental health, and about prevention programmes with significant mental health and social effects. 3.6 Conclusions Mental health is a far from clear concept and diverse meanings have been attached to it. These are described in this chapter as ‘models of mental health’. Most recent views, also defended in this chapter, support a positive functional definition of mental health, in which mental health is seen as the capacity of people to realise their own abilities, to cope with the challenges and stresses of life, and to function effectively in their communities. Such capacities are also essential in preventing onset of mental disorders. This view on mental health also makes it possible to understand how efforts to promote mental health and efforts to prevent mental disorders are linked to each other. Next, we have presented several subdivisions of prevention, showing that prevention encompasses a wide range of targets and approaches. These subdivisions play an important role in defining the objectives of prevention. They are also used in dividing different types of preventive work between organisations and funding agencies. The major part of this chapter was devoted to presenting a profile of the practice of mental health promotion and prevention, first by describing the professional roles and tasks that characterise the work in this field. In later chapters, more concrete examples of programmes are described. The profile describes this field as a typical multidisciplinary one and as one that requires the performance of a wide variety of roles and tasks. For professionals, it makes working in this field a fascinating challenge, not only because of the variety of professional activities, but it also challenges professionals to explore innovative ways to further develop the field bringing in new ideas, knowledge and fields of expertise. By offering a profile of the professional work, one could be inclined to consider this further development and implementation mainly a task of health promotion and prevention professionals. As we have explained, a more appropriate model describing this field is to consider it as a social arena in which different stakeholder organisations are involved, each with different interests, strengths and agendas. For the successful development and anchoring of mental health promotion and prevention in society, it is essential to understand which stakeholders should be involved, what their interests are, how they are related to mental health, and what their role and contributions could be. Developing a better mental health condition of populations requires that we are able to create a critical mass of investors and synergy between them. Therefore, professionals should be able to advocate for mental health in different sectors, to link mental health with other health and social interests, and to develop effective coalitions of stakeholders that can generate significant collective impact in communities. This is not a challenge unique to the domain of mental health, but similar to what happens in other public domains, such as in the protection of our environment, the creation of 83 safer communities and workplaces, and the war on poverty and in community approaches to reduce sex and racial discrimination. Finally, we have discussed a range of critical statements that different parties in society have expressed toward our prevention field. We invite the reader to study them critically and to find arguments to counter or endorse them. This textbook and the related course meetings offer a rich source to find counterarguments that show that some criticisms are not justified. In the end, we expect that you will be able to formulate your own grounded stand on these issues. In the next two parts of this book we will discuss the theoretical and scientific base for the practice of mental health promotion and prevention, the planning process that rules programme development and implementation, dealing effectively with defining goals and objectives, designing effective strategies and interventions, and evaluating their outcomes. 84 Literature Anderson, P., Jane-Llopis., E., & Hosman. C. (2011). Reducing the silent burden of impaired mental health. Health Promotion International, 26 (suppl 1): i4-i9. Brown, T. A., & Barlow, D. H. (2005). 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Turner (Eds.), Adult psychopathology and diagnosis (4th ed., pp. 3-35). New York: John Wiley & Sons. Widiger, T. A., & Samuel, D. B. (2005). Diagnostic categories or dimensions? A question for the Diagnostic and Statistical Manual of Mental Disorders-Fifth Edition. Journal of Abnormal Psychology, 114, 494-504. World Health Organization (1985). Targets for health for all. Copenhagen, WHO Regional Office for Europe. World Health Organization. Mental health: strengthening mental health promotion. Fact Sheet 220. WHO; 2007. World Health Organization (2008). Integrating mental health in primary health care: a global perspective. Geneva: World Health Organization and World Organization of Family Doctors (Wonca). World Health Organization (2008). Closing the gap in a generation Health equity through action on the social determinants of health. Geneva: WHO. 86 Study questions for this chapter What different views exist concerning the meaning of ‘mental health’? What is the 'functional model' of mental health and how is mental health defined within the functional model? How does the functional model differ from other models? Why does the functional model offer insight in how mental health promotion and prevention are linked? What criticisms exist on classification systems for psychiatric disorders, such as DSM-IV, DSM-V and ICD-10? What classifications exist in prevention? How can the different classifications be distinguished from each other? How can they be combined? What is the meaning of each of the terms for specific subdivisions of prevention (e.g. tertiary prevention, selective prevention, indicated prevention, and general or non-specific prevention)? Can you describe in your own words what mental health promotion means and how this is related to prevention? Why does the author state that mental health should be understood as a ‘social arena’? What does this mean? What are the implications for prevention practice? What is meant by ‘intersectoral policy’ in health promotion? What is the background of this term? Why is it so important for effective mental health promotion? What types of professionals are involved in mental health promotion or prevention? What kind of tasks and roles do they perform to prevent mental disorders and to promote mental health? What type of organisations can be involved in prevention of mental disorders and mental health promotion? Who are major stakeholders and what could be their role? How could we deal with the different interests between these stakeholders when we try to develop a coalition and synergy for promoting mental health? Argue why a significant impact on the mental health condition of target populations is only possible through partnerships and coalitions. What are pitfalls in running coalitions for prevention and mental health promotion? What are important guidelines for successful developing, running and maintaining such coalitions? Give some examples. What criticisms and bottlenecks exist for professional prevention? How can you counter or support these criticisms based on the discussed arguments in favour of prevention (Introduction Chapter) and on knowledge and visions presented in other chapters of this textbook? Define your own grounded stand on the criticisms presented in section 3.5. 87 88 PART II THEORETICAL APPROACHES 89 90 4 Theoretical approaches: Overview 4.1 Introduction 92 4.2 Type of determinants and their interrelations 93 4.2.1 Risk factors and protective factors 93 4.2.2 Attributable risk 94 4.2.3 Relationships between factors 94 4.3 Theories on determinants in development and course of mental health and mental disorders 96 4.3.1 Ordering of theories on development of mental health and mental disorders 96 4.3.2 Biological models 98 4.3.3 Cognitive behavioural models 99 4.3.4 Developmental Psychopathology 99 4.3.5 The stress theoretical approach and integrative stress model 100 4.3.6 Competence models and positive psychology 100 4.3.7 Social support and social network models 101 4.3.8 Community prevention and macrosocial models 101 4.3.9 Choosing between theoretical approaches 101 4.4 Strategy and programme development 104 4.4.1 Stage models 106 4.4.2 Strategy development and intervention analysis 107 4.4.3 Effect management 108 4.5 Conclusions 108 Literature 109 Study questions for this chapter 110 91 4. 4.1 Theoretical approaches: Overview Introduction To develop effective preventive interventions, to implement them effectively and to achieve evidence based mental health effects in a target population, scientific theories are indispensable. The kind of theories we need for effective mental health promotion and preventive interventions can be divided into five clusters (Figure 4.1): Five clusters of theory development Fig 4.1 Mental health Mental disorder 1 Facilities and care consumption 3 Determinants and Development 4 Preventive interventions 5 Individual, social economic consequences 2 Planning phases & Management of effective prevention Development, evaluation, implementation, dissemination, adoption, adaptation, institutionalization 1. Theories about the meaning of the terms 'mental health’ and ‘mental disorder’, which is the core target of prevention and health promotion in this book. Already discussed in chapter 3. 2. Theories about the health, social and economic impact of mental health and mental disorders on persons, families, social networks, schools, community, work, society, health care use. This impact is reviewed in the introductory chapter on the need for prevention. 3. Theories about determinants (i.e. risk, protective and positive factors), development and course of mental health and mental disorders. 4. Theories of change: theories about influencing human behaviour, risk and protective factors, populations and social conditions and systems. Theories of effect management: knowledge about what moderates effects and principles of effective preventive and health promoting interventions. 5. Planning Theories: Theoretical models on the process of development, implementation, dissemination, adoption and institutionalisation, and evaluation of mental health promotion and prevention programmes, and about combining multiple programmes into a comprehensive community approach. This also includes theories about generating the conditions to make the development and implementation of intervention programmes possible, e.g. policy making, capacity building, coalition development, financing and resource development. 92 In this and the following chapters, the theoretical approaches that play a major role in modern prevention, health promotion and mental health will be discussed. Attention will be paid to biological models (section 4.3.2), cognitive behavioural models (section 4.3.3 and chapter 5), the developmental psychopathology approach (section 4.3.4 and chapter 6), the stress theoretical approach (section 4.3.5 and chapter 7), competence and the positive psychology approach (section 4.3.6 and chapter 8), the role of social support systems (section 4.3.7 and chapter 9), and community models (section 4.3.8 and chapter 10). These theoretical approaches belong particularly to the clusters 3 and 4 in figure 4.1. Some of them are also relevant for other clusters. For instance, positive psychology is also about research on meaning and outcomes of positive mental health (cluster 1 and 2). Theories about community functioning can also be used to understand the impact of mental capital and illness on communities (cluster 2) and the opportunities for capacity building, coalition development and creating political support for investments in mental health promotion. A specific mental health problem, for instance depression, can be approached from a wide variety of theoretical angles. Which theoretical approach or combination of approaches a scientist or professional uses to ground preventive interventions, is a matter of choice. This might be a personal choice based on your own visions and values, it could also be related to your discipline or the type of organisation from which a professional is working. Anyway, academics are required to make a reasoned choice for a specific theoretical approach and to be able to defend this choice to other stakeholders. Such explicit choices are important for they will have far-reaching consequences for which studies we run, which mental health problems and determinants we select for intervention, what preventive strategies or interventions we choose, and what kind of effect we can expect from it. We challenge the reader to use this chapter to practise making such choices. 4.2 Types of determinants and their interrelations To understand how to use a theoretical model for designing a preventive intervention, it is essential first to have knowledge about types of relationships that can exist between causal factors (determinants) and the different roles such factors can play in the development of mental health and mental disorders. 4.2.1 Risk and protective factors A distinction is made between risk factors and protective factors. Preventive interventions are focused on reducing risk factors and enhancing protective factors which both are assumed to have a causal influence on the development of mental disorders, their severity or duration. Risk and protective factors can be found at each system level, so within a person, a family, a neighbourhood, a school and in the society at large. Risk factors are factors that are likely to increase the development of poor mental health and mental disorders. Examples of such factors are genetic vulnerability, traumatic events, child abuse, poor parental skills, insecure attachment, growing up with addicted parents, bullying, poverty, and social isolation of older people. Factors that increase the risk for one disease are called disease-specific risk factors (e.g. role model behaviour of an anxious parent), and factors that contribute to the development of multiple diseases and problems are called generic or nonspecific risk factors (e.g. child abuse and neglect). 93 Factors that can reduce the risk of mental disorders in the presence of risk factors are called protective factors. They protect humans against the harmful influence that risk factors may have. The effects of individual protective factors are consistent with the medical concept of 'immunity'. The more protective factors a person has available the better his immune system and level of resilience. Examples of protective factors are: positive affectivity, problem solving skills, positive self-image, stress resistance, parental warmth and care, social support from family and friends, or a social-emotional supportive school environment. They strengthen the resiliency of a person and offer social protection and support in threatening circumstances. Non-specific risk factors can cause a "broad-spectrum effect", meaning that they can influence the development of a wide range of mental problems or other negative outcomes. Protective factors are usually non-specific in nature and can have two functions: a buffering function against the impact of risk factors, or a main effect function, i.e. a direct independent positive impact on mental health (e.g. the effect of parental warmth on the emotional development of a child). In the case of mental health promotion, it is more common to speak of positive factors or health promoting factors instead of protecting factors, which is a term more linked to prevention. 4.2.2 Attributable risk In epidemiology, the strength of the impact of a risk factor (X) on the development of a disease is called ‘attributive risk (AR)’, which is defined as that causal part of the onset of a disease that can be explained by exposure to risk factor X. The level of attributive risk linked to a risk factor also tells us what the maximum preventive effect (incidence reduction) is that can be achieved in a given population by preventive interventions when they are 100% effective in removing that risk factor. The attributive risk of a risk factor can be calculated by subtracting the incidence of a disease (new cases within a specified period) among persons who were not exposed to the risk factor from the incidence of the disease in the total population. Another usual name for attributive risk is ‘etiological fraction’. Likewise, the proportion of disease cases that could be prevented by the presence of a protective factor is called the ‘prevented fraction’. 4.2.3 Relationships between factors While mental disorders and also mental health are always caused by multiple determinants, a next important question is how risk factors are related to each other. As we will discuss, the type of relationship has major implications for how we select and use risk factors in prevention strategies. We differentiate between four possible types of relationships: additive, exponential, interactive and sequential, as is illustrated in figure 4.2. Additive model: when risk factors have an additive relation to each other, each of the factors independently contributes to the development of a disorder. Their independent effects can be added up in estimating what their total impact is on the development of a mental disorder. For instance, the death of a partner, a negative style of thinking, and a history of child abuse can each independently contribute to the onset of depression in women during mid-life. When a preventive intervention is aimed at influencing only one of these determinants, the maximum achievable preventive effect on depression will never be larger than the part that this factor explains in the onset of the disorder (attributive risk). If we want to achieve a 94 considerable preventive effect, it would be wise to target a preventive intervention or the factor with the highest attributive risk or preferably a combination of independent determinants which together explain a substantial part in the emergence of the disorder. For this reason, a successful preventive approach based on an additive model of risk factors, is preferably composed of multiple preventive interventions (), each targeting a different risk factor (). Fig 4.2 Types of relations between determinants of depression A B Moderators Competencefactors Depression Stressors Depression Social support Interaction model Additive model/exponential model depression mother sensitve brain development response child ego-resiliency child Mental health Depression Behavioural problems Sequential causal model C Exponential model: Multiple risk factors can also have an exponential effect on the onset of a mental disorder. Michael Rutter (1984) and other researchers have shown that it is often the accumulation of multiple risk factors that is responsible for the emergence of psychopathology. For instance, it is known that as the number of risk factors (e.g. number of traumatic events) in children cumulates, the probability of the emergence of depression could increase exponentially. After one or two stressful events, the risk is still relatively low, but with three or more events, the risk increases exponentially. What does this mean for prevention? Interventions could be aimed at reducing the number of risk factors by addressing the most malleable risk factors, while leaving ‘the hard to change’ untouched, and still produce a significant preventive effect. We give an example: for children a divorce can cause a chain of traumatic stress experiences (e.g. witnessing domestic violence, moving out of town, loss of friends or contact with father, parental depression, lack of emotional warmth and support, low family income). Preventive interventions aimed at guiding divorcing parents in coping with the stress of their children can reduce the chance of an accumulation of risk factors for their children. Wolchik et al (2002) demonstrated in a randomised experiment that such a preventive programme for divorcing parents and their children resulted in a significant lower risk of developing mental disorders in children during a period of six years after participating in this intervention (i.e., 23.5% in the control group vs. 11% in the prevention condition). In the case of an additive effect, the number of risk factors have a linear relationship with the incidence rate of a disorder, while an exponential effect will result in a curvilinear relationship and might make it possible to identify a threshold effect, which refers to the critical number of risk factors above which the risk of onset of a mental disorder quickly increases. Interaction model. The impact of a risk factor on the onset of a disorder can be dependent on the presence of a second factor. In that case, both determinants interact. A classic example is the impact gender has on how children react to family conflicts. Most studies show that girls are more likely to develop internalising problems (e.g. depressive symptoms), while boys are more inclined to react with externalising problem behaviour (e.g. aggressive behaviour). Such interactions are also at stake in the relation between risk and protective factors. As stated earlier, the presence of a protective factor (e.g. problem-solving skills or 95 social support) can provide a "buffer" against the influence of a risk factor, such as parental conflict, unemployment or the loss of a loved one. From a preventive point of view, interactive models offer the choice between reducing or eliminating the risk factor, or strengthening a protective factor. In the case of an interaction, successful manipulation of one of the two factors might be sufficient to cause a preventive effect. Sequential model. Multiple risk factors, but also multiple protective factors can have a sequential causal relationship over time, which means they could form a causal chain. For instance, early childhood risk factors can be the beginning of a series of consecutive risk factors wherein each risk factor evokes a next one, resulting in trajectory of subsequent risk factors over time. Developmental psychopathologists study such sequential causal processes during childhood, adolescence and early adulthood (chapter 7). For example: depression in young mothers often leads to insensitive and non-responsive contact with the baby. This can cause insecure attachment in the child, which is likely to result in poor social competence. This in turn can contribute to an increased risk of behavioural problems or depression in adolescence. Next, such problem behaviour might contribute to greater social isolation and negative peer reactions and an escalation of problem behaviour and depression, which in their turn increase the risk of alcohol dependence. Note that these are not 'necessary' sequences, but that each subsequent development in such a long-term risk trajectory is defined by increased risk. 4.3 Theories on determinants in development and course of mental health and mental disorders 4.3.1 Ordering of theories on development of mental health and disorders To understand better how various theories about the onset and course of mental disorders differ, in figure 4.3 their differences are described as positions on three dimensions: scientific discipline, system level and a developmental dimension. Scientific discipline: refers to the scientific perspective from which mental health is examined: such as genetics, neurobiology, psychiatry, psychology, educational sciences, sociology or economics. Each of these disciplines offers its own explanation for the development of mental disorders, that each can be seen as a starting-point for designing preventive interventions. Progress in knowledge can be expected especially from research into the relationship between factors that are studied by different disciplines. For instance, it 96 appears that social and cognitive stimulation in early childhood leads to a more differentiated neural development and contributes to prevention of mental retardation in children of retarded mothers (Ramey & Ramey, 1998). In turn, this stimulation seems to depend on the social and economic circumstances of the family. System level. Determinants that influence the development of mental health and mental disorders are anchored in different system levels: micro-level (individual, family, and group), meso level (e.g. neighbourhood, school, work, community) or macro-level (e.g. social ideologies, mass media, economic conditions, legislation, health policy). Health determinants influence each other across different system levels. As an example, national education policy (macro) influences whether primary schools and their teachers in the classroom (meso) have time and expertise to invest in socio-emotional learning of children (micro). Social-emotional competence could serve as a powerful protective factor in the life of children and as an important condition for their further flourishing during adolescence and adulthood. Improving emotional competence and mental fitness in children requires concerted actions at multiple levels: national policies, school, teachers and classrooms, children, peers and families. The developmental dimension. Some theories focus on the present or the very recent past (e.g. stress and coping theories, cognitive behavioural theories, social support theories), thus on behaviours and risk factors directly preceding the onset of a health problem or disorder. This approach has long dominated in prevention and health promotion, but currently their limitations become more evident. During the last 25 years, scientific knowledge from developmental research has stressed the importance of early risk factors and early enhancement of resilience for the development of mental health and mental disorders during the different stages of the life span up to adulthood and even old age. Leading research fields in this life course approach are developmental psychopathology, epigenetics, neuropsychological development, developmental psychology, attachment theory, and studies on transgenerational transmission of risk factors and strengths in the case of parental mental illness or addiction. For the study of mental disorders and their prevention, we need theoretical approaches along all these three dimensions. For instance, to understand the onset of depression knowledge is needed about biochemical processes in the brain, transgenerational risk transmission through genetic risk factors and child-parent interaction, long term impact of early traumas (e.g. child abuse), cognitive-behavioural processes (e.g. negative thinking), coping and social support in stress situations, and the impact of economic recession and poverty on these micro-level processes. The multidimensional framework in figure 4.3 shows how the described theories are positioned to each other. The developmental and system-level dimensions of this framework are also part of the integrative stress theoretical model (chapter 7) and included in the system of dimensions that are used in defining intervention strategies (chapter 13). Based on the above-discussed three dimensions, we can distinguish eight types of theories and theoretical approaches on the emergence of mental health and mental disorders (figure 4.4): biological explanatory models, vulnerability-stress theories, cognitive behavioural models, competence development models, social network and support models, communityoriented models and macro social models. The field of developmental psychopathology and 97 developmental epidemiology represents a multidisciplinary approach that seeks to integrate different scientific approaches and is for that reason placed in the centre. To date, developmental psychopathology represents the most comprehensive theoretical approach for designing mental health promotion and prevention programmes. Fig 4.4 Theoretical paradigms in prevention and health promotion Stress & vulnerability models Cognitive behavioural models Biological models Competence models Developmental epidemiology Developmental psychopathology Macro social models Social factors Community prevention models Social support models Below, we offer a short profile of each of them. In the following chapters of Part II, several of them are discussed more extensively. 4.3.2 Biological models Although much criticism has been expressed on the individualising medical model of mental disorders, medical and biological sciences have generated a wide area of knowledge that is not only relevant for the development of new types of treatment for mental patients, but also for prevention. This applies, for instance, to the study of genetic, prenatal and perinatal processes in the development of psychosis. This knowledge might offer perspectives for early interventions during pregnancy and prophylactic medication to prevent the onset of a full-blown psychosis in adolescents and young adults. Further, each episode of psychosis has been found to reduce the ‘grey matter’ of the brain, as brain-imaging studies have revealed. This knowledge stresses the importance of preventing first psychotic episodes in ultra-risk adolescents and preventing relapses after the first episode. Highly interesting are recent research outcomes on early gene-environment interactions, showing how environment can act on gene-expression and gene-development. Another area relevant for prevention is the studies on the impact of social stress, depression and anxiety during pregnancy on the developing neuropsychological systems in the unborn child that could result in long-term psychiatric vulnerability. In this period the main ‘hardware’ of the neurological and emotional systems of children and adolescents is developed. This biological approach of psychopathology and mental health draws on contributions from neuroscience, neuropsychology, psychopharmacology, biochemistry, genetics and physiology. A main challenge for further research is to understand how social factors influence these neurobiological processes. 98 4.3.3 Cognitive behavioural models (chapter 5) In these models, health and illness are considered as outcomes of the health and risk behaviours of people. Many diseases are regarded as so-called "behavioural diseases", i.e. they are considered as the result of unhealthy and risk behaviour. These could be behaviours of the people at risk themselves, but also risk behaviours of others. This applies, for instance to overweight, hypertension, cancer, cardiovascular diseases, sexually transmitted diseases, caries, traffic accidents, eating disorders, psychotraumas, phobias and depression. In such cases, prevention aims to prevent or reduce unhealthy or damaging behaviours, such as smoking, excessive drinking, drunk driving, unhealthy eating habits, domestic violence, bullying or discriminative behaviours. Prevention and health promotion make extensive use of scientific behavioural models. Core determinants in these models are knowledge, expectations about behavioural outcomes, attitudes (affective), subjective skills (self-efficacy) and social norms. By influencing these behavioural determinants through prevention programmes, we expect that citizens at risk will show more preventive and less harmful behaviour. Chapter 5 describes three of the most common cognitive behavioural models: ‘Health Belief Model’, the ‘Theory of Planned Behaviour’ and the ‘ASE Model’. All approaches are closely related. The Model of Planned Behaviour can be regarded as a model that integrates several other cognitive behavioural models. The trans-theoretical model of behaviour, also called 'Stages of Change Model’, is a different type of cognitive behavioural model. It describes behaviour as a cognitive and motivational process in which different stages can be distinguished, each requiring specific attention of professionals who want to encourage people to change their behaviour. This model is applied, for example, to smoking cessation, promotion of moderate alcohol use and bullying prevention. 4.3.4 Developmental Psychopathology (chapter 6) Developmental epidemiology and developmental psychopathology have a more recent history (Rolf et al, 1990, Cicchetti et al, 1995). Developmental psychopathology studies have shown that mental disorders and mental health are the result of lengthy and complex interaction processes between the person and his environment that already start during pregnancy and infancy. An important feature of developmental psychopathology is its interdisciplinary and integrated nature, in which scientific knowledge from various scientific approaches are combined. Furthermore, it is characterised by a life-cycle approach in studying the development of psychopathology. Developmental psychopathology traces etiological lines from early development to psychiatric problems during adolescence and adult life. This makes it possible to apply preventive interventions in a much earlier stage. It is widely assumed that preventive interventions are more effective when they are applied early in life, when risk factors have not yet been ingrained in the person. For instance, the Nurse-Family Partnership programme offers pregnant women at risk parent education, stimulation of health behaviours and support through home visits during pregnancy and the first two years. Several controlled studies have found a wide range of long-term preventive effects in these children up to 15 years after the intervention (Olds, 2006). These include for instance, large reductions in child abuse, onset of drug use, alcohol problems, promiscuous sexual behaviour and delinquent behaviour. 99 4.3.5 The stress theoretical approach and integrative stress model (chapter 7) Stress theoretical models often focus on the interaction between three clusters of variables: type and number of stressors, personal capacities to cope with them, and social support. Social support can help a person with the cognitive and emotional processing of a stressful experience and with avoiding, reducing or eliminating the stressors. These models are also labelled ‘strain-capacity models’ (Dutch: draaglast-draagkracht modellen). Strain refers to the degree of stress that a person is exposed to, while capacity refers to the degree of own competence (emotional resilience) and the degree of social support which is available. Stress models will be discussed in chapter 7, with special attention to the cognitive stress and coping model of Richard Lazarus. This model offers insight in the cognitive and emotional processes that are linked with the interaction between stressors, competence and support and their impact on the development of pathological behaviour. Secondly, the ‘integrative stress model’ is discussed that offers a framework for grounding various kinds of prevention strategies. These include for instance: reduction of external or internal stressors, stress inoculation, modification of subjective needs, enhancing psychosocial resilience (e.g. general problem-solving and social skills), influencing personality variables such as internal control and self-esteem, increasing problem-specific knowledge, strengthening the size or quality of social support, and improving feedback on the outcomes of coping behaviour. The model also includes a life-span and multilevel dimension, that can be used to design interventions for different life stages and social interventions at micro, meso and macro level. 4.3.6 Competence models and positive psychology (chapter 8) Prevention of mental disorders is criticised for its negative approach of people, by primarily targeting illnesses and problems, and by aiming to repair weaknesses, defects and risk behaviours. Although many prevention programmes in fact also target competencies and strengths of people at risk, the ultimate intention is to counter risk factors and to prevent disease and problems. This criticism goes back to the longstanding debate about the objections against the ‘medical model’ of psychiatry versus a ‘positive model’ of mental health (section 3.2.3). George Albee, one of the founders of modern primary prevention of psychopathology advocated his whole life against the dominating illness approach and in favour of a focus at people’s competences and strengths. “A Competence Model Must Replace the Defect Model’ was the title of his address at the start of the Fourth Vermont Conference on Primary Prevention of Psychopathology in 1980 (Albee, 1980). Albee stated that the incidence of emotional problems and ‘pathological’ behaviour is not just the outcome of a combination of stress and organic causes, but the imbalance between these risk factors and people’s competence, coping skills, self-esteem and support systems. He strongly pleaded for a shift towards building human competence and promoting social environments early in life and in schools where children and adolescents can fully develop their cognitive and emotional strengths and their potential to cope with the hazards of life. In the work of Albee, Garmezy and the developmental psychopathologists, competence is primarily valued as a protective factor, human strengths protecting children and adults against the negative impact of risk factors. Ten years later, Martin Seligman, one of the most influential psychologists to date, started to advocate a fundamental change in the focus of psychology, including prevention, and initiated the concepts of positive psychology and positive prevention (Seligman & Csikszentmihalyi, 2000; Seligman, 2002). Positive 100 psychology aims to study and promote human happiness, well-being, human strengths, the flourishing of people and building competence. They are not only relevant because they provide a buffer against mental illness, but they represent core human values in itself and they contribute to a wide range of positive outcomes, such as school success, intimate relationships, and productivity. It also aims to understand and foster the factors that allow individuals, communities, and societies to thrive. The views, values and theoretical model of positive psychology have been translated in positive interventions that are nowadays implemented in many schools around the world. 4.3.7 Social support and social network models (chapter 9) The social support and social network approach is not directly centred on the behaviour of the person at risk, but on the behaviour of individuals and social systems in his surroundings, such as parents, friends, teachers, work colleagues and peers. Many studies have convincingly demonstrated that social support has a strong health and mental health protecting impact, for instance on the onset of depression and anxiety disorders, but also on mortality. This approach studies the social network of a person, and multiple functions of social support for people dealing with stress and mental health problems are mapped. Network analysis identifies the different partners in a social network, their interrelations, and the type and quality of their supporting roles. Multiple support-focused preventive strategies are outlined, that use this model. Improving the quality and presence of social support contributes to preventive effects as many studies have shown. The lack of support or an environment that obstructs healthy behaviour, contributes to the emergence of serious health and mental health problems. 4.3.8 Community prevention and macro-social models (chapter 10) Some models describe the impact of social factors and 'community' processes on the development of mental health and well-being of people. Humans are not isolated entities but a part of a larger environment or community. A community usually refers to a group of people who share the same norms, values, neighbourhood and institutions, such as schools and a municipality. Theories of health education and health promotion recognise that the (health) behaviour of people and their mental health status is highly determined by their local environment. Community factors that were found to affect mental health and well-being of citizens include social cohesion and isolation, community violence, poverty, unemployment, quality of housing, but also the local availability of health and social services. On macro-social level, social risk factors for mental health include the impact of economic crisis, migration, globalisation, discrimination against minorities, wars and exposure to cruelties, large-scale parental death through AIDS, child pornography and trafficking of women. At the Sixth World Conference on Mental Health Promotion and Prevention of Mental Disorders in Washington (November 2010) several speakers discussed the expected huge impact that climate change, pollution and environmental conditions might have on the mental health of populations in the next decades. For instance, the expected shortage in drinking water, usable agricultural area and food caused by pollution and increasing temperature, in combination with a growing world population may raise the likelihood of war, large-scale migration and refugees. Such conditions affect the well-being, health and mental health of millions of people (e.g. impact of war traumas, rape, malnutrition, orphan children, repression, and violence against women. 101 4.3.9 Choosing between theoretical approaches Which theoretical approach would you choose to understand what causes the development of depression, alcohol problems, borderline disorders, or emotional resilience in adults? A first requirement for the academic quality of your work is that you make an explicit and reasoned choice, not just relying on what the usual approaches are. All the discussed theoretical approaches are applicable in illuminating causal processes. This is illustrated in box 4.2 where different theoretical approaches are applied to ground strategies to reduce alcohol problems. The box shows that different theoretical approaches will ultimately lead to very different prevention strategies. Which approach would you choose and why? Box 4.2 Prevention of alcohol problems from different theoretical perspectives The choice of a particular theory on the development of mental disorders can have a significant impact on the choice of subsequent prevention strategies. Below we give an example of the relationship between various theoretical models on the emergence of alcohol problems and corresponding preventive strategies. 102 Theoretical approach Stress and Coping Prevention strategy (examples) Reduction of stress in risk groups Increase stress-management skills (other than ‘drinking’) Expanding social and problem solving skills Cognitive behavioural models Increase knowledge about harmful effects of alcohol Change attitudes towards alcohol Strengthen resistance against social pressures to drink alcohol through skills training in dealing with social pressures Urgent behaviour advice to pregnant women to avoid alcohol Social support Strengthening support from environment for moderate drinking and a sensible approach to alcohol Encouraging Self-help groups (e.g. Alcoholics Anonymous) Macro-social models (environment and public focused) Reduce availability of alcohol, e.g. through increased alcohol tax, age restrictions, reducing sales points, and monitoring compliance with these measures; Banning alcohol on the streets, in stadiums, in canteens Ban on alcohol advertising Preventive mass media campaigns to influence behaviour Preventive billboards along the road Developmental psychopathology Prevent traumatic experiences in children (e.g. child abuse) Prevent occurrence of insecure attachment in children Preventative support to children of addicted parents Early treatment of alcoholic parent Foster identity development in children Enhance individual skills, positive self-image, self confidence and mastery in youth Academics are required to make an argued choice and should be able to defend that choice. Some choose cognitive behavioural theories and social learning theories to understand how depression emerges and to ground the design of a preventive intervention. Others prefer to study the causes of the high prevalence of depression from a societal perspective, as an outcome of living in poverty, being the victim of domestic violence, or having poor perspectives on getting a job due to their migrant status. Empirical evidence exists for both choices. Some others prefer to combine multiple theoretical approaches. So the next question is what arguments are used and what arguments do we consider as acceptable? What arguments would you use to defend your choice? Based on our own experiences of over 40 years of prevention work, it is evident that different researchers and professionals make different choices when targeting the same mental health problem. We came across a wide range of arguments used to defend a choice for a specific theoretical approach: best supported by empirical evidence fits best to the type of problem offers the best perspective for action fits best to my professional role, e.g. therapist or prevention expert fits best to my discipline: e.g. clinical psychologist, psychiatrist, pedagogue, sociologist, community nurse, public health expert. fits to the identity and mission of my organisation fits to the type of prevention for which financing is available fits in to my personal values, views on human functioning and world views fits best to my personal capacities: I am good in …… fits best to the way of thinking of my clients or the stakeholders I work with offers the best perspective on reaching many people and achieving a largescale preventive effect in the population. These arguments may result in very different choices. Reflect on the following examples of argumentation by two professionals. First case. A professional states: given my personal views about life and the world and supported by available epidemiological knowledge, I would like to analyse and reduce social risk factors of depression, and I have problems with the individualising interpretation of the causes of depression by traditional mental health care and psychiatry. However, I am aware that in practice only for person-centred interventions a budget is available from health insurance companies. In addition, the culture of my mental health service does not allow a preventive strategy that addresses social risk factors (e.g. poverty issues, social cohesion of a community, domestic violence). Therefore, in the end my choice is to ground my preventive work in depression on social-cognitive theories of depression. Second case. A social psychologist working in a district public health service is asked to draft a community prevention policy and suggests to prioritise interventions to reduce aggressive behaviour among young adolescents in an at risk community. He is educated as a behavioural psychologist and is familiar with studies showing evidence for the role of biased perception processes and lack of social skills in the onset of aggressive behaviour. He has identified a range of school-based behavioural intervention programmes for adolescents and found evidence for their effectiveness. He recommends their large-scale implementation at 103 secondary schools. A local consultative meeting is held where he presents this proposal and asks for feedback from colleagues and local stakeholders. A colleague developmental psychologist, with an academic training in developmental psychopathology and working at the community child health department, argues that many longitudinal studies have shown that aggressive behaviour is found to be a rather stable type of behaviour. The core group of aggressive adolescents starts to show this type of behaviour already in an early stage, at kindergarten and primary schools. She, therefore, states that the available prevention budget could better be invested in programmes for young children, at an age where this type of behaviour is not yet deeply rooted and easier to change. She also reports that evidence-based primary school programmes have been found not only to reduce the aggressive behaviour but also to show a wider spectrum of positive outcomes in children over time, such as more emotional resilience and better school achievements. At the same meeting, a municipal official reports that she has recently visited a meeting of colleagues from other cities to discuss common public safety issues. At that meeting she heard a presentation about the Communities-that-Care Program (CtC) that is currently implemented in several Dutch cities to reduce violent behaviour, alcohol abuse, school drop-outs, delinquency and teen pregnancy (chapter 10, box 10.6). In other countries, the programme had already proved to be successful. She was impressed by the CtC approach, for it actively involves citizens - supported by professionals - in running a community self-diagnosis and managing the programme. Based on their community diagnosis a local committee develops an integral community programme that is composed of a selection of evidence-based interventions meeting the risk profile of their community. Her positive attitude towards CtC was especially based on the programme’s underlying philosophy: to be successful, prevention programmes need to be based on active community involvement and citizens taking responsibility for the quality of life in their own communities. During the meeting, the pros and cons of each of these approaches were discussed. Based on this discussion and the argumentations a small Task Group was installed by the City Government to formulate a final proposal for the next city council meeting. These examples illustrate that a theoretical approach to a specific problem is not a given, but is based on a choice between alternative approaches. Such choices can make a huge difference in how a health or social problem in a local community will be addressed. 4.4 Strategy and programme development: Theoretical models of development, dissemination, adoption and implementation of prevention programmes This textbook aims to provide students and professionals with knowledge and tools for improving health, mental health and well-being in the population through science-based development and implementation of ‘prevention programmes’ and ‘health promotion programmes’. During several decades, we have witnessed a range of major public efforts to create healthier populations. We have seen successful approaches that have reduced major risk factors in society, such as smoking, high fat levels in food, unsafe sex, fatal traffic accidents and more safe cars and roads. Governments, public health services and private sectors for years have made huge investments to stimulate people to exercise more, consume healthy food, moderate their alcohol use and drive safely. Such efforts aim, for 104 instance, to reduce the incidence of cancer, cardiovascular diseases, coronary heart diseases, diabetes, physical handicaps and premature death. To date, mental health, mental fitness, mental capital and well-being have become major issues on national and international public agendas. Could we reduce the high prevalence of depression in the next 15 years with 20%? Is it possible to significantly lower violence, school dropout and youth delinquency by improving social-emotional competence in children and youngsters in high-risk communities? Could we reduce the ever-ongoing transgenerational transmission of psychiatric problems from parents to children by 2040 with at least 30%? Is it possible to prevent in a city as Rotterdam or Berlin one of every three cases of child abuse and domestic violence, especially in high-risk neighbourhoods? What can we do to achieve such targets, and how much time does such intervention processes take to reach such reductions? Achieving significant preventive effects in individuals or individual families is currently part of daily practice in health and social care. To achieve the same in whole populations or segments of them is a lengthy and complex process. Experiences with complex change processes in other fields, such as in industry, reducing criminality and protecting the environment, have taught us that such challenges can best be approached through wellmanaged, staged planning processes. These processes were first described in the Planning of Change literature of the 1960s and 1970s (Lippit, Watson & Westly, 1958; van Beugen, 1969; Bennis, Benne and Chin, 1970; D’Zurilla and Goldfried, 1971; Zaltman, Kotler & Kaufman, 1972). These classic publications were required literature in the university training programme on social change, in which the first author of this textbook participated at the beginning of the 1970s. Core principles described in this early literature still hold at the beginning of the 21th century. They are further elaborated for prevention and health promotion in more recent leading textbooks such as Health Promotion Planning (Green & Krauter, 1999, 2005) and Planning Health Promotion Programs (Bartolomew, Parcel, Kok & Gotlieb, 2006). Reducing alcohol use and addiction is in our field a well-known example of a lengthy and complex process in which multiple stages can be distinguished. These include, for instance, performing epidemiological research on the prevalence, causes and development of alcohol use and alcohol-related problems; designing-testing-evaluating new prevention programmes; disseminating and anchoring these programmes in the community, and ensuring that they become adopted, implemented and institutionalised by local organisations (e.g. schools, companies, justice, mental health and public health institutions). Only when all such steps are taken, prevention could lead to a reduction of alcohol problems in a population. Furthermore, to reduce of a major health problem in the population we cannot merely rely on the implementation of just one single intervention. Such an ambition requires the implementation of a combination of multiple, well chosen programmes and measures that together have the power to generate significant collective health impact in populations. In the next section, we have limited ourselves to a brief sketch of three theoretical frameworks that play an important role in planned change and programme development: stage models, strategy development and effect management. In Part III and IV we will consider in more detail the use of stage models in programme development (chapter 11), running a goal analysis (chapter 12) and how to design a prevention strategy (chapter 13). The current progress in effectiveness and effect management will be discussed in chapter 14. 105 4.4.1 Stage models Stage models describe the various stages in planned change and problem solving processes, and provide guidelines for effective action. The realisation of preventive goals in our society can best be understood as a challenge to solve a complex problem. This could concern questions such as how to reduce countrywide the amount of electricity used by citizens or the rate of crimes, but also the question of how to reduce the number of depressive disorders or cases of child abuse in a city. To solve complex problems successfully, they first need to be divided in a series of smaller manageable sub-problems and tasks that can be addressed partly separately and simultaneously, partly in subsequent steps. Solving the main problem successfully will depend on our ability to solve interrelated sub-problems in the right sequence. Solving one sub-problem in this functional sequence is called a stage. Outcomes of each preceding stage serve as building stones for solving the next sub-problem in the next stage. All professions dealing with targeted change use stage models. Planning of change models exists in a wide variation. The core stages are mostly the same, but they might be adapted or extended to make them more suitable for specific situations, tasks and aims. We illustrate these stages in the case of reducing depression. We need to start with analysing the prevalence and incidence of depression in a community, where it concentrates, what the causes are why so many people develop a depressive disorder, and if these causes are sensitive to change. Based on such an analysis we can define goals for a depression prevention programmes and select target groups. Having insight into the problem, its causes and the aimed preventive goals and target groups, we can start designing a prevention programme or strategy that could in the end lead to achieving stated preventive objectives. After the implementation of such a programme, we are in need of getting feedback. Did we reach our target population? Was the implementation process successful? Did the programme produce the targeted effects? Were risk factors reduced? How many depressions were prevented in the population? What are the costs of preventing one depression? Did the financial investment (costs) balance the total of benefits of the programme? Did we use the right combination of measures and interventions? As we stated at the start of this textbook, the availability of an effective prevention programme (model programme) does not mean that we will be directly successful in reducing a health or mental health problem in a whole population or target group. This will also depend on how successful we are in disseminating the programme nationally or locally (distribution), and seeing it adopted and implemented by many organisations and in multiple settings, in order to reach many citizens. How could we achieve large-scale implementation? Only through widespread dissemination and coverage, prevention programmes can be expected to affect public health. These issues follow the stages that were discussed in the basic Planned Change Model that we presented at the start of this textbook. We can learn here from successful dissemination strategies that are used by private companies to get their innovations and new products sold all over the world (Apple, Microsoft, and Toshiba). In his famous book "Diffusion of Innovations" (1995), the late Everett Rogers describes his experiences with dissemination of innovations all over the world. The theoretical models on dissemination he developed based on his experiences have been used worldwide to enhance the dissemination of prevention and health promotion programmes. In chapter 11, we discuss our extended stage model that also includes the stages of dissemination, adoption and large-scale implementation. 106 4.4.2 Strategy development and intervention analysis The design of an intervention programme always begins with making an argued choice about what the programme should achieve and for whose benefit, thus about its goals and target groups. The next question is: What can we do to achieve these goals? Chapter 13 describes how prevention strategies are designed and what alternative strategies are possible in prevention. A strategy is described as a series of choices that one should make about how to go successfully from A to B, for instance from annually 10.000 new cases of depression in a region of 400.000 inhabitants to 7.000 new cases (30% less). In chapter 13, we will discuss eight strategy dimensions for making such choices that together build up the unique profile of each intervention or programme. Examples of such choices are: How do we define – as precisely as possible - the target population of our planned intervention? Do we need to segment the target population in several subpopulations to make a better reach possible and to tailor interventions to their specific needs and culture? From an ecological perspective, do we primarily want to focus our interventions at individual citizens at risk, or also at their social network, school or work setting, local community or municipal policies? What type of intervention methods will we use to change behaviours of citizens, community leaders, health personnel, school boards, private companies or municipal councils? Do we also want to change regulations, professional quality standards, policies or even laws? Whom do we choose as the messenger, advocate or trainer? Ourselves as prevention experts, or local key persons, trained volunteers or peers? Do we want to achieve our goal by using one intervention tool (e.g. a course or a website) or by a combination of multiple interventions at different ecological levels and in different settings? Together, these and many other choices make up in the end the unique ‘profile’ of a chosen intervention strategy and programme. Throughout this textbook, numerous examples will be given of such choices and the resulting prevention strategies. The effectiveness of preventive interventions depends on the extent to which involved professionals and stakeholders are able to make explicit and informed choices on such strategic dimensions, based on the best available scientific knowledge and practice-based knowledge. In designing prevention strategies and programmes, we need not only theories about determinants of health and mental health problems, but also theories and principles of effectively influencing people and their environment. Most prevention and health promotion programmes use theories and principles of change from behavioural sciences, such as theories about social learning, classical and instrumental conditioning, modelling, feedback, attitude and behaviour change, communication, motivation processes, goal setting, socialisation, parenting, stress inoculation and social support. For designing successful interventions that aim to change social, organisational and environmental conditions for better mental health and well-being, we can make use of a diversity of theories from social, organisational and cultural sciences. These include, for instance, theories about social ecology, social marketing, advocacy, diffusion and dissemination, institutionalisation, social networks, organisation change, learning organisations, community development, social innovation, social movements, and about the role of mass media, internet and other social media. In sum, to design and ground interventions we can make use of a rich scale of theoretical approaches and their related empirical research. This requires from professionals openness for alternative theories and bodies of knowledge and to be able to select the 107 approach that fits best to the targeted problem and context. It also underlines the importance of multidisciplinary teams and collaboration between experts and stakeholders with diverse training backgrounds. Finally, it challenges us as scientists and professionals to learn to cope with complexity, as human beings and the environment in which they life and develop are complex. We have no other choice then learn to deal with that as effectively as we can. 4.4.3 Effect management (chapter 14) Prevention programmes can result in impressive effects. Throughout this textbook, multiple examples are presented of effective programmes. Research has also shown that many prevention and health programmes in practice have only small or short-term effects, no effects or even negative effects. Besides being effective in improving mental health in individuals and families, we need to understand how to create mental health impact in communities and whole populations. For this reason, it is important to understand what conditions and ingredients enhance effectiveness (success factors), and what conditions bar the road to success (failure factors). The last two decades many prevention and health promotion experiments have been evaluated by professionals and stakeholders and by researchers, resulting in a rich body of knowledge about the pitfalls and strengths of the used approaches. Recently, meta-analytic studies have started to identify participant, programme, implementation and context characteristics that are related with higher effect sizes (e.g. Jane-Llopis, Hosman, Jenkins & Anderson, 2003; Stice, 2008; Fisak, Richard & Mann, 2011). Some 15 years ago, our research centre and some colleagues around the world have started to develop a theoretical framework on ‘effect moderators and effect predictors’. In chapter 14 on “Evidence of effectiveness and improving effectiveness in prevention and mental health promotion”, we offer an introduction to this framework. These science-based and practice-based insights in effect moderators have been translated in guidelines of effect management for practitioners, policy-makers and scientists who are involved in designing and implementing prevention and health promotion programmes. Based on these insights and learning systems we expect future programmes and policies to become more effective in improving mental health and well-being of programme participants, groups at high risk and in the end of populations at large. 4.5 Conclusions Earlier in this textbook, we described the many preventive behaviours that we as human beings, as organisations, and as society put into practice on a daily basis, based on our biological nature, cultural traditions, and learning experiences. We differentiated them from the preventive activities and programmes by professionals. The main difference is that prevention and health promotion professionals design their preventive work on a systematic analysis of determinants of health and disease, and on scientific and professional knowledge of processes of change. Theories and theoretical models are the main tools we use to integrate and validate this knowledge, and to convert knowledge into policies and professional practice. This chapter gave an introductory overview of the type of theoretical frameworks that professionals need in order to act effectively in prevention and health promotion. 108 We have also seen that different scientific approaches are used to analyse the determinants and processes of how mental health and mental disorders develop across the lifespan. These differences are related to scientific disciplines, but also reflect personal values of professionals and the cultures and policies of their organisations. We have stressed that the choice of theoretical approach has a significant impact on what strategies professionals and scientists will use to prevent mental illness and promote mental health. Professional quality requires they are aware of the possible theoretical approaches that can be applied and their implications. In such choices, not only scientific arguments but also ethical dilemmas play a role. For instance, how do we deal with known social causes of mental illness in a mental health care system dominated by person-centred approaches? Finally, the wide spectrum of possible theoretical and scientific approaches in this field also stresses the need to combine multiple approaches in an integral preventive strategy or policy, as each approach might reflect a different part of the same reality. For this reason, the field of mental health promotion and prevention is a typical interdisciplinary field that requires interdisciplinary and interorganisational collaboration. Literature Albee, G. (1980). A competence model must replace the defect model. In: L.A. Bond & J.C. Rosen (Eds.) Competence and coping during adulthood. Vermont Conferences on Primary Prevention of Psychopathology. Hanover: University Press of New England. Bartholomew, L. K., Parcel, G. S., Kok, G., & Gottlieb, N. H. (2006). Planning health promotion programs: an Intervention Mapping approach (2nd ed.). San Francisco, CA: Jossey-Bass Bennis, W.G., Benne, K.D., & Chin, R. (1970). Planning of change. London: Holt, Rinehart & Winston. Cicchetti, D., & L., T. S. (1995). Developmental psychopathology perspective on child abuse and neglect. Journal of the American Academy of Child and Adolescent Psychiatry, 34, 541-565. D’Zurilla, T.J., & Goldfield, M.. (1971). Problem solving and behaviour modification. Journal of Abnormal Psychology, 78, 1, 107-126. Fisak, B.J., Richard, D., & Mann, A. (2011). The prevention of child and adolescent anxiety: a metaanalytic review. Prevention Science, 12, 255–268. Green, L.W., & Krauter, M.W. (1999). Health promotion planning: An educational and environmental view. Mountain View: Mayfield. Lippitt, R., Watson, J. and Westley, B. (1958). The Dynamics of Planned Change. New York: Harcourt, Brace and World. Jane-Llopis, E., Hosman, C. Jenkins, R., & Anderson, P. (2003). A meta-analysis of depression prevention programmes: What predicts effect? British Journal of Psychiatry, 183, 384-397. Olds, D. (2006). The nurse–family partnership: an evidence-based Preventive intervention. Infant Mental Health Journal, 27, 1, 5–25. Ramey, C. T., & Ramey, S. L. (1998). Early intervention and early experience. American Psychologist, 53(2), 109-120. Rogers, E. (1995). Diffusion of innovations. New York: The Free Press. Rolf, J., Masten, A., Cicchetti, D., Nuechterlein, K., & Weintraub, S. (Eds.). (1990). Risk and protective factors in the development of psychopathology. New York: Cambridge University Press. Rutter, M., & Quinton, D. (1984). Parental psychiatric disorder: effects on children. Psychological Medicine, 14(4), 853-880. Seligman, M. (2002). Positive psychology, positive prevention, and positive therapy. In C. R. Snyder and S. J. Lopez (Eds.), Handbook of Positive Psychology (pp. 3-9). London: Oxford University Press. Seligman, M., & Csikszentmihalyi, M. (2000). Positive psychology. American Psychologist, 55, 1, 514. 109 Stice, E., Marti, N., Shaw, H., & O’Neil, K. (2008). General and program-specific moderators of two eating disorder prevention programs. International Journal of Eating Disorders, 41, 611–617. Van Beugen, M. (1969). Sociale technologie. Assen: van Gorcum. Wolchik, S. A., Sandler, I. N., Millsap, R. E., Plummer, B. A., Greene, S. M., Anderson, E. R., et al. (2002). Six-Year Follow-up of Preventive Interventions for Children of Divorce: A Randomized Controlled Trial. JAMA, 288, 1874-1881. Zaltman, G., Kotler, Ph., & Kaufman, I. (1972). Creating social change. New York: Holt, Rinehart & Winnston Psychologist Study questions for this chapter Prevention uses very different types of theories. What types of theories do we need in prevention? For which purposes? What is the difference between risk and protective factors? Illustrate the difference by some specific factors that play a role in e.g. depression. What kind of relations can causal factors have with each other during the process of the development of mental health or a mental disorder? What are the implications of these different kind of interrelations for designing a prevention programme? What is the meaning of: etiological fraction, prevented fraction, attributive risk, broad spectrum effect? What types of theoretical models on determinants of (mental) health are used in prevention? What are the main differences between these types of models and what consequences can these differences have for the choice and outcome of prevention strategies? Select one of the following problems: alcohol problems or aggression problems in youngsters, or depression or anxiety disorders among elderly. Or select another problem that you are familiar with. Do you prefer a specific theoretical approach to analyse this problem? Explain why you favour this theoretical approach. Can you imagine that a colleague or a different stakeholder might prefer a different theoretical approach to the same problem? How would you explain that you both have different views on this? Anticipate on what your choice of theory implies for the type of interventions that you will design or select to prevent the problem? What might it imply for how successful you will be in preventing the problem? Now looking back, are you satisfied about the choice of your theoretical approach? Why do we need stage models in prevention and health promotion? (See also chapter 11) 110 5 Behavioural approach in prevention and health promotion A closer look at some models 5.1 Introduction 112 5.2 Health Belief Model 112 5.3 Theory of Planned Behavior 114 5.4 ASE-model 117 5.5 Transtheoretical model (Stages of Change Model) 119 5.6 Conclusions 120 Literature 122 Study questions for this chapter 123 Preface The aim of this chapter is to learn to apply different cognitive-behavioural models to problem behaviours and health behaviours that are targeted in preventive interventions and health promotion programmes. These applications include, for instance, reducing bullying behaviour, stopping smoking, decreasing alcohol consumption, asking for help from social networks, changing unresponsive or harsh parenting behaviour. 111 5 Behavioural approach in prevention and health promotion A closer look at some models Clemens M.H. Hosman 5.1 Introduction In prevention and health promotion, all behavioural models are based on the assumption that health and disease are largely determined by how people behave. For health behaviours, it is possible to differentiate between ‘health-promoting’ or 'preventive’ behaviours (e.g. diet, exercise, assertiveness) and ‘health-risk’ or 'illness' behaviours (e.g. smoking, systematically ignoring problems, rumination). In the terminology of this reader, the first behaviours are similar to protective factors, and the second ones resemble behavioural risk factors. The promotion of healthy and preventive behaviour and the reduction of risky behaviour can both contribute to improving health and preventing disease. To achieve preventive effects with a behavioural approach, it is important to influence determinants of health behaviour and risk behaviour effectively. In recent decades, many behavioural models that describe which determinants affect health behaviour and show how this behaviour can be influenced, have been developed and scientifically tested. In this chapter, four frequently used behavioural models will be discussed, each of which can be used to derive strategies to motivate people to show preventive behaviour: the Health Belief Model, the Theory of Planned Behaviour, the ASE-model and the Transtheoretical model (Stages of Change Model). At the end of this chapter, an overview is given of different types of prevention strategies, which can be used to influence the different behavioural determinants. 5.2 Health Belief Model The Health Belief Model (HBM, figure 5.1) is a psychological model developed by Rosenstock (1974) and Becker (1974) that attempts to explain and predict health behaviours. Originally, the model was designed to predict behavioural responses to treatment received by acutely or chronically ill patients, but in more recent years the model has been used to predict the likelihood that an individual undertakes recommended actions to improve or protect his health. The HBM is based on the understanding that a person will take preventive action if he or she: 1) feels that a negative health condition can be avoided, 2) has a positive expectation that by taking a recommended action this negative health condition can be avoided, and 3) believes that he or she can successfully perform the recommended action. The HBM assumes that people will not show preventive behaviour, unless they feel a ‘readiness to act’ based on the following considerations: 112 Perceived susceptibility: refers to a person’s perception that a health problem is personally relevant and that he might be at risk, or that a diagnosis of an already present illness is accurate. Example: I might become seriously depressed if I don’t do something about my increasing depressive feelings. Perceived severity: even when one recognises personal susceptibility, it is not likely that a person will take action unless he considers the condition or disease and its consequences as serious (e.g. poor prognosis, negative impact on quality of life, high costs). Example: Getting heavily depressed would seriously interfere with my relation and my study. Perceived threat of disease: based on the combination of perceiving susceptibility and perceptions about the severity of the disease. It refers to the experienced negative consequences, if the person would not take preventive action. Perceived benefits: an individual's assessment of the positive consequences of performing a preventive behaviour (belief that the action will prevent the illness or its severity). Example: visiting the website on depression, study about what I could do to better cope with my depressive feelings and use the advices in my daily life to prevent that I become seriously depressed. It is a website of the Trimbos institute so I trust the quality. Perceived barriers: an individual's assessment of the factors that facilitate or hinder the performance of the promoted health behaviour (e.g. the complexity, duration, accessibility, costs). Example: Using internet does not cost any money, nobody will know about it, and I can do it at any time during the day that I like. Comparing perceived benefits and barriers will determine the likelihood that a person takes preventive action in response to the perceived threat. Three clusters of external or background variables were added to the model as factors that might moderate the health and behavioural perceptions of a person. Demographic variables: such as age, gender, ethnicity, occupation. Socio-psychological variables: such as socioeconomic status, personality, coping styles, knowledge, and peer behaviours. 113 Cues to action: external influences promoting the desired behaviour. This may include information provided or sought, reminders by powerful others, persuasive communications, and personal experiences. These can all activate the readiness to adopt the preventive behaviour. Motivational strategies Based on this model there are different strategies possible to motivate someone to exhibit a desired preventive behaviour. For health educators and health promotes, each of the variables in the HBM provides an opportunity to stimulate people to a targeted preventive behaviour: Make people aware of their perceived susceptibility. Education can teach people the risk of a particular disease or hazard, and through tailored education personalise risk perception based on a person's features or behaviour (Am I really at risk? How large is the risk?). Increase the perceived severity in the target person or population: give insight into the personal consequences of the risk and condition (How bad will it be if I would get this disease? Are the negative consequences only temporary or long term?). Educate people about the perceived benefits of the preventive behaviour: convince the audience that behaviour X is effective in substantially reducing the risk of a particular disease or problem, and in achieving significant health or other individual or social benefits (Does it help if I show this behaviour? How will this be beneficial to me? When?). Identify and reduce perceived barriers for the behaviour: through reassurance (e.g. show that the behaviour has little disadvantages or requires low investment), incentives (e.g. lower the price of more healthy products or services), and assistance (e.g. provide training and guidance in performing the preventive action). In later versions of the HBM, the factor self-efficacy was added to the model, as was the case in the Theory of Planned Behaviour Model and the ASE-model, as will be discussed below. 5.3 Theory of Planned Behaviour Like the HBM, the Theory of Planned Behaviour (TPB, figure 5.2)) was developed to explain and stimulate behaviour change at individual level. It was proposed by Ajzen as an extension of his original Theory of Reasoned Action (Fishbein & Ajzen, 1975). The model has been applied in many fields such as advertising, public relations, media campaigns, safety, health care, and in prevention and health promotion. The Theory of Planned Behaviour specifies the nature of relationships between beliefs, attitudes and behaviour. According to this model, people’s evaluations of, or attitudes toward behaviour are determined by their beliefs about the behaviour and their own and other’s use of that behaviour (Ajzen & Fishbein, 2005). It is restricted to those behaviours of which people are conscious and that they may choose to perform as a result of a reasoning process. This is a restriction while many behaviours, also health-relevant behaviours, are not the result of reasoning about the pros and cons, but are ruled by nonconscious brain processes and habits. The theory of Planned Behaviour has three components: 114 Attitudes towards behaviour: the degree to which behaviour is valued positively or negatively by the person. In this model these attitudes are determined by the belief that a desired outcome will occur if that behaviour is performed (behavioural beliefs) and that the outcome will be beneficial to the person or to others that are important for him (evaluation of behavioural outcomes). For example, people will be more likely to have a positive attitude towards reporting suspected child abuse if they believe it is an effective means of stopping child abuse and prevent further hard to a child. Subjective norm: relates to a person’s beliefs about what others think he or she should do (normative beliefs), and by an individual’s motivation to comply with their norms. For example, if a smoker estimates that most people do not smoke and that most of his friends want him to quit, it is more likely that he will develop a positive subjective norm towards quitting. Perceived behavioural control: recognises that a person’s intentions will become significantly more likely to perform a specific behaviour if he feels personal control over that behaviour. The term ‘perceived behavioural control is’ similar to Bandura’s concept of self-efficacy. According to Bandura, self-efficacy is the belief in one's ability to succeed in specific situations (Bandura, 1986). One's sense of self-efficacy can play a major role in how one approaches specific goals, tasks, and challenges. People with high selfefficacy - that is, those who believe they can perform well - are more likely to view difficult tasks as something to be mastered rather than something to be avoided. Perceived behavioural control is influenced by control beliefs: an individual's beliefs about the presence of factors that may facilitate or impede performance of a specific behaviour (Ajzen, 2001). For example, a school kid who is bullied is more likely to show a social assertive response when the child has some confidence that he or she is able to perform such behaviour adequately. The three components lead to a behavioural intention that indicates an individual's readiness to perform a specific behaviour. The intention to act is the key determinant of behaviour, and all other factors affecting behaviour are mediated through behavioural intention. As a general rule; the more favourable the attitude toward behaviour and subjective norm and the greater 115 the perceived behavioural control, the stronger the person’s intention to perform the behaviour in question. Finally, given a sufficient degree of actual control over the behaviour, people are expected to carry out their intentions when the opportunity arises (Ajzen, 2002b). For an example, see Box 5.1. Box 5.1 TPB applied to bullying and multiple actors The first question is: whose behaviour influences the bullying? These persons are for instance the bully, the bullied child, peers, teachers, school management and parents. The TPB assumes that bullying is primarily based on an implicit or explicit choice of the bully: will I do it or not? This choice (“I'm going to bully Theo” or “I'm going to force Astrid to give me money”) depends on his attitude towards bullying, the benefits the bully expects compared to the disadvantages; second, it depends on the expected reactions of other students ("They think I am cool"), teachers (“They do not dare to interfere”) and parents ("They won’t find out”). Finally, it is about experienced behavioural control. For the bully: Am I able to control my tendency to bully, am I able to show prosocial behaviour? For the bully victim: Am I able to respond assertive? The behaviour of the bully may be influenced by the behaviour of others. This might be the supervision of teachers or intervention by peers. For these bystanders it is important that they feel able to effectively intervene in these situations without harming themselves. Preventive interventions may influence each of these elements and actors supported by TPB. Motivational strategies The TPB is useful in first understanding what beliefs drive current behaviour of people who are at risk (e.g. bully victims) or the behaviour of those who put someone else at risk (e.g. bullies, drivers with alcohol). Based on this knowledge tailored educative intervention can be designed to stimulate people to more preventive behaviour. The TPM model offers several options to motivate target persons to change their behaviour: Provide information about the benefits of healthy behaviour and reduce the expected disadvantages of that behaviour. Provide information about the disadvantages of risky behaviour and how the expected benefits of that behaviour can be overestimated or misperceived. Promote social norms in the environment that support preventive behaviour and reject harmful behaviour, make target persons aware of these norms, and encourage them to conform to these behavioural norms through rewards and penalties. Fight social norms and rewards in the environment that encourage risky or harmful behaviour, and encourage people to act independently against such an environment (stimulate less conformity, put such harmful norms under pressure through public policies or school policies, local media and social media). Remove barriers that may hinder or demotivate your target persons to perform the preferred behaviour, (e.g. increase skills to deal with social pressure for alcohol or drug use; create facilities in the environment to change risky behaviour in healthy behaviour, such as healthy snacks in a vending machine instead of chocolate bars and chips). 116 5.4 ASE-model The previous models received a number of criticisms. Repeatedly mentioned major deficiencies are: The lack of attention to the influence of ‘skills' and 'social support'; The absence of a distinction between behaviour and behaviour maintenance; Absence of feedback processes. To deal with these criticisms, the ASE-model was developed at the Maastricht University (De Vries et al, 1998). This model (figure 5.3) is based on the TPB and Bandura’s view on the explanation of behaviour. The model states that behaviour can be explained from the behaviour intention and that intention in turn can be explained by the three main determinants: 1) Attitude (A): like in the TPB, attitudes refer to the expected consequences of the behaviour, both affective and cognitive. How positive is someone about the behaviour (pro’s and con’s)? 2) Social influence (S): refers to social norms, but includes social support and the perceived behaviour from others as well. How positive is the environment concerning the behaviour? 3) Self-Efficacy (E): is the degree to which a person expects that he/she is able to perform the specific behaviour successfully. Can you perform the behaviour (possibilities, skills)? The fewer skills a person attributes to himself and the more expected barriers to perform the behaviour, the lower the self-efficacy. In addition, two other factors are included in the ASE model: actual skills and barriers. Both factors could moderate the impact of attitudes, social influence and self-efficacy on behaviour. Even if each of these variables support the intention to perform the preferred behaviour, the actual performance of that behaviour may be impeded while a person lacks the behavioural skills to enact the intended behaviour, or while unforeseen external barriers block the behaviour (e.g. through interventions by others, lack of situational opportunities, unforeseen costs). 117 The model also indicates how the person perceives his own health behaviour and its consequences. This generates feedback: the perception of success will motivate the maintenance of the behaviour and perception of failure and insufficient performance or only moderate outcomes might lead to behaviour change or de-motivation. This feedback mechanism is an important element of the ASE model, which facilitates the model to be a dynamic one. The more specific we define the targeted behaviour, its determinants and context, the better we are able to predict future behaviour in similar or renewed conditions. For example: “going to a local sport accommodation twice a week” is more specific than just “exercise more”. The model assumes that other external variables do not directly influence the behaviour, but only through the discussed direct determinants. For example, gender does not directly influence exercise behaviour, but indirectly it might be the case. Imagine, for instance, differences in attitude, in which boys want to exercise to be fit, and girls to lose weight. Or think of social influence in choosing typical male or female sports, such as respectively rugby and ballet. Recently, the ASE model has been extended with ideas from the TPB, Bandura’s Social Cognitive Theory, Prochaska’s Transtheoretical Model, the HBM, and goal setting theories. The Integrated Model for explaining motivational and behavioural change is called the I-CHANGE Model (De Vries et al., 2008). The I-Change Model is a staged model and distinguishes three stages in the behavioural change process: 1) Awareness; 2) Motivation; 3) Action. For each phase, particular determinants are more relevant. The I-Change Model assumes that motivational processes are determined by various predisposing factors such as behavioural factors (e.g. life styles), psychological factors (e.g. personality), biological factors (e.g. gender, genetic predisposition), social and cultural factors (e.g. the price of liquor, policies), and informational factors (quality of messages, channels or sources used). Motivational strategies In addition to motivational strategies mentioned earlier, the ASE model indicates the following possibilities to motivate and facilitate preventive behaviour: Strengthen self-efficacy to perform the specific behaviour, but also offer opportunities for the person to increase the cognitive and behavioural skills he needs to convert his intentions into actual and effective behaviour. Promote a supportive environment that encourages the person to show the preventive behaviour. Create an environment where others show the preventive behaviour. Not only motivate the person to show new preventive behaviours, but also to maintain the new behaviour. Promote behaviour that leads to motivating attributions on preventive behaviour in future situations (internal attributions for success). Prevent demotivating attributions ("the situation cannot be changed” or “I do not have the capacity to change”). 118 5.5 Transtheoretical model (Stages of Change Model) The Transtheoretical model is also known by the acronym ’TTM’ and by the term ’Stages of Change model’. This theory was developed by Prochaska and DiClemente to explain the different stages of change, which appear to be most common for the majority of behaviour change processes (figure 5.4). The Transtheoretical model is based on the assumption that behaviour change is a process, not an event, and that individuals have varying levels of motivation or readiness to change (Prochaska & DiClemente, 1983; Prochaska et al., 1992; 1997). The model has been developed based on research about the prevention and early treatment (therapy) of various forms of addictive behaviour (smoking, excessive drinking, overeating). The authors note that change always shows the same sequence of stages, which applies equally to individuals who ‘self-initiate’ a change and to those responding to advice and encouragement to change. The model is currently widely used in different domains of prevention. The TTM has two major sets of constructs: stages of change and processes of change. During five stages of change, people move from a state of ‘no motivation to change’ to actual action and, finally, to internalisation of the new behaviour: 1) Precontemplation: a person is not intending to take action in the future, usually measured as the next 6 months. Usually in this phase people do not experience a problem and do not consider changing their behaviours. If people decide to seek advice, it is usually done because other people put them under pressure to do so. 2) Contemplation: a person considers making a change to a specific behaviour. People are aware that there is a problem and consider changing it, but they do not yet have a concrete intention to do so. In this phase, they consider the pros and cons of their current situation and of the possible solutions. 3) Preparation: a person makes a serious commitment to change in the immediate future, (usually measured as the next month) and begins to make the necessary preparations to do so. 119 4) Action: In order to solve the problem a person initiates to change his own behaviour, experiences or environment. People have successfully made specific overt modifications in their life styles within the past 6 months. 5) Maintenance: a person sustains the change over time. This also means to keep working on it to prevent relapse. This stage is estimated to last from 6 months to about 5 years. In addition, the researchers conceptualised ‘relapse’, which is not a stage in itself but rather the ’return from action or maintenance to an earlier stage’. People appear to move through these stages in a predictable way, although some move more quickly than others do. The theory is circular rather than linear, as people can enter or exit at any point. The basic idea is that preventive interventions need to use motivational strategies in each of the stages in the change process, unless sufficient motivation is already present in a specific stage. Neglecting one or more steps in this process can have a negative influence on the effectiveness of an intervention. The model provides a useful way of thinking about the types of persuasion, information, and support people need to move through the stages of change. Progress requires firstly to monitor precisely in which stage a person or a group of persons is in this stepwise change process and to attune interventions on to that stage. Secondly, apply specific change processes for each stage, such as raising awareness (education and feedback) at the precontemplation stage, re-evaluation of outcome expectations (information on the benefits of change) to make the change from precontemplation to contemplation; reinforcement and social support during the action stage, and guided practice for skills improvement can help with the change from action to maintenance. The experience in using this model in practice is that people pass the first three stages a couple of times before actual behaviour change occurs. Similarly, people sometimes go through the first four stages several times, before they are ready to maintain the new behaviour. For instance, it is necessary to practice smoking cessation several times before one is able to sustain this behaviour. The same may apply to stopping dieting behaviour among female adolescents at risk for developing an eating disorder, such as anorexia. 5.6 Conclusions Box 5.2 summarises the prevention and education strategies that can be derived from the models discussed in this chapter. We do not pretend to offer a complete overview of useful behavioural models. There are other models as well, such as the Protection Motivation Theory (Rogers), Social learning Theory (Bandura), the MODE Model (Fasio) and the Composite Model of Attitude-Behaviour Relations (Eagly & Schaiken). Several of these models are variants or improvements of the Health Belief Model and the Planned Behaviour Model. For a discussion about these additional models, we refer to Predicting Health Behaviour (Conner & Norman, 2005) and The Psychology of Attitudes and Attitude Change (Maio & Haddock, 2009). 120 Box 5.2 Prevention strategies based on a behavioural approach Influence attitude and beliefs Provide information about the chances of getting a disease or disorder and the severity of the consequences (perceived risk). Provide information about the positive impact of preventive behaviour and the negative consequences of risk-increasing behaviour Other interventions to strengthen a positive attitude towards preventive behaviour and negative attitude towards risk-increasing behaviour, e.g. behavioural exercises, statements by "idols". Influence Self-Efficacy Increase self-confidence to carry out preventive behaviour and avoid risk-increasing behaviour, e.g. gain positive experiences with the behaviour through role-play and homework exercises, receiving positive feedback, expressing confidence in a person. Increase or reduce Social influence Reduce negative social norms in the environment on the preventive behaviour, and reinforce positive norms (e.g. from friends, parents, teachers, idols, neighbourhood, public opinion). Reduce positive social norms in the environment for risk-increasing behaviour, and reinforce negative norms. Empower people against social pressure to exhibit risk-increasing behaviours (e.g. binge drinking). Increase social support for showing healthy behaviour, e.g. support groups, provide individual emotional support, and show model behaviour. Promote intentions for healthy behaviour Encourage overt statements about behavioural intentions. Increase skills and reduce barriers Increase behavioural skills in preventive behaviour through behavioural advice, modelling, behavioural training, and rewards. Remove material, financial or other situational barriers for preventive behaviour. Create physical, financial or other barriers to risk-increasing behaviours (alcohol sales ban, fines, and controls). Influence feedback Give positive feedback on the impact of the changed behaviour to improve maintenance. Influence attributions of failure in behaviour change. 121 Literature Ajzen, I. (2001). Nature and operation of attitudes. Annual Review of Psychology, 52, 27–58. Ajzen, I. (2002). Perceived behavioral control, self-efficacy, locus of control, and the theory of planned behavior. Journal of Applied Social Psychology, 32, 665-683. Ajzen, I., & Fishbein, M. (2005). The influence of attitudes on behaviour. In Albarracin, D., Johnson, BT., Zanna MP. (Eds.). The handbook of attitudes, Lawrence Erlbaum Associates. Bandura, A. (1986). Social foundations of though and action: A social-cognitive theory. Englewood Cliffs: Erlbaum. Becker, M.H. (1974). The Health Belief Model and personal health behaviour. Health Education Monographs, 2 (entire issue). Bridle, C., Riemsma, R.P., Pattenden, J., Sowden, A.J., Mather, L., Watt, I.S., & Walker, A. (2005). Systematic review of the effectiveness of health behaviour interventions based on the transtheoretical model. Psychology and Health, 20, 283–301. Brug, J., van Assema, P., & Lechner, L. (Red.) (2007). Gezondheidsvoorlichting en gedragsverandering: Een planmatige aanpak. Assen: Van Gorcum. Conner, M., and Norman, P. (Eds.) (2005). Predicting Health Behaviour: Research and Practice with Social Cognition Models. Maidenhead: Open University Press. De Vries, H. & Mudde, A. (1998). Predicting stage transitions for smoking cessation applying the Attitude - Social influence - Efficacy Model. Psychology & Health, 13, 369-385. De Vries, H., Kremers, S., Smeets, T., Brug, J., & Eijmael, K. (2008). The effectiveness of tailored feedback and action plans in an intervention addressing multiple health behaviours. American Journal of Health Promotion, 22(6), 417-425. Fishbein, M., & Ajzen, I. (1975). Belief, Attitude, Intention, and Behavior: An Introduction to Theory and Research. Reading, MA: Addison-Wesley. Maio, G. & Haddock, G. (2009). The Psychology of Attitudes and Attitude Change. SAGE Publications. Prochaska, J.O., & DiClemente, C.C. (1983). Stages and processes of self-change of smoking: toward an integrative model of change. Journal of Consulting and Clinical Psychology,51(3), 390-395. Prochaska, J.O., & DiClemente, C.C. (1992). Stages of change in the modification of problem behaviours. Progress in Behaviour Modification, 28, 183-218. Prochaska, J.O., & Velicer, W.F. (1997). The transtheoretical model of health behaviour change. American Journal of Health Promotion,12(1), 38-48. Prochaska, J.O., DiClemente, C.C., & Norcross, J.C. (1992). In search of how people change. Applications to addictive behaviours. American Psychologist, 47(9), 1102-14. Rosenstock, I.M. (1974). Historical origins of the Health Belief Model. Health Education Monographs, 2, 1-8. 122 Study questions for this chapter Apply the cognitive-behavioural models described in this chapter to your own health behaviour, such as your alcohol use, physical exercise, smoking, assertive behaviour, handling conflicts, or asking for emotional support of friends. Which preventive interventions for your own health can you derive from this? Who could influence your health behaviour? Which behaviour changes are needed from these persons to achieve change in your health behaviour? Give arguments why motivation is important for preventive interventions. Why is it necessary to look at multiple actors when designing a prevention programme? Give some examples based on prevention of bullying. What are the core concepts of the Health Belief Model, ASE-model, and Transtheoretical model? What are the main differences between the HBM model and the ASE model? Which prevention and educational strategies can be derived from each of the discussed behavioural models? Do differences in models have consequences for differences in intervention strategies? Could you give an example? What are the disadvantages of the presented behavioural models? How could you combine these behavioural models with for instance the stress model, social support model and developmental psychopathology approach (chapters 7-9)? Chapters 16 and 17 discusse the problems of children of mentally ill parents (COPMI), the consequences of living with a mentally ill parent, the risk and protective factors, and what preventive interventions are available. These chapters are written from a developmental psychopathology background. Could you think of some examples of how you could apply cognitive behavioural models to understand the problems of these children and their parents, and to design preventive interventions for them? 123 124 6 The developmental psychopathology approach 6.1 Introduction 126 6.2 Core concepts and dimensions 125 6.2.1 Multidisciplinary and integral approach 127 6.2.2 Equifinality and multifinality 127 6.2.3 Developmental pathways 126 6.2.4 Psychopathology and mental health 127 6.2.5 Sensitive periods 127 6.2.6 Multiple system levels 127 6.3 Summary of features and principles 128 6.4 Conclusions 129 Literature 131 Study questions for this chapter 132 125 6 The developmental psychopathology approach Clemens M.H. Hosman 6.1 Introduction The most recent development in prevention theories is represented by the field of developmental epidemiology and developmental psychopathology (Achenbach, 1982; Cicchetti et al., 1995, Hankin & Abela, 2005; Kellam et al., 1999; Luthar, Burack, Cicchetti & Weisz, 1997; Wenar & Kerig, 2005). Developmental psychopathology studies have shown that mental disorders and mental health are the result of long term and complex interaction processes between a person and his environment, and between risk and protective factors. These interactions start already during pregnancy and the first years of life. Developmental psychopathology is characterised by an interdisciplinary and integrated character, and by a life course approach. It traces early developmental factors and long term developmental trajectories of mental disorders that might encompass multiple life stages into adulthood. This makes it possible to offer preventive interventions in a much earlier stage than is common in prevention and health promotion based on behavioural models. In general, we assume that preventive interventions are more effective when they are offered early in life, at the time risk factors first emerge and still are not rooted in the person or its social environment. Figure 6.1 outlines the multidisciplinary and life span framework of developmental psychopathology. 126 6.2 Core concepts and dimensions 6.2.1 Multidisciplinary and integral approach Developmental psychopathology is a field of interdisciplinary science that links and integrates knowledge on psychopathology and mental health from several disciplines, such as psychiatry, clinical and developmental psychology, pedagogical sciences, developmental epidemiology, neurobiology and neuropsychology, genetics, experimental psychopathology, sociology and educational sciences. It is the combination and cross-fertilisation of knowledge from different sciences from which we expect the most innovative contributions to the understanding of how mental disorders develop and how mental health can flourish. Developmental psychopathology has become one of the core scientific pillars for designing prevention programmes and policies in the field of mental health. 6.2.2 Equifinality and multifinality Scientific research has revealed numerous biological, psychological and social factors that influence the development of psychopathology and mental health of people. The DSM classification differentiates both within childhood and adolescence and within adulthood many disorders. Researchers mostly study each disorder, its development and its determinants separately. This has created a complex and scattered body of knowledge that is hard to translate into a comprehensive prevention policy. Developmental psychopathology aims to disentangle this complexity by introducing concepts such as common risk factors, etiological pathways, equifinality and multifinality, and by studying how multiple disorders are related. Equifinality refers to the phenomenon that a mental disorder can have multiple etiological pathways. Literally, equifinality means multiple roads leading to the same end. Developmental psychopathologists study these different developmental pathways and their related risk factors to reveal likewise multiple strategic entries to prevent such a disorder. By combining such strategies in one comprehensive prevention policy, in the end we will be better able to reduce that disorder in the population. It also may reveal different populations at risk for the same disorder, each requiring a preventive approach tailored to a specific developmental trajectory. Researchers have found different causal trajectories for the onset of depression. One trajectory starts with a history of child abuse that could cause long-term emotional and neurological vulnerabilities. Other factors that can contribute to the onset of depression are living with a depressed parent, lack of parental care, the death of your only child through an accident, sexual abuse, and exposure to violence, long-term unemployment or loneliness among single elderly in disintegrated communities. Each of such backgrounds can trigger a pathway to depression, especially when they are combined with poor coping skills and a lack of emotional support. Multifinality refers more or less to the opposite: the finding that one specific risk factor or lack a specific protective factor can result in multiple negative outcomes. For instance, a history of child abuse and neglect has been found to increase the risk of a wide spectrum of psychological and pathological outcomes. These include insecure attachment, low selfesteem, less social competence, anxiety disorders, conduct disorders, depression, alcohol abuse, injuries, mortality and suicidal ideation, but also an increased risk of chronic diseases later in life. For this reason, we frequently speak of a ‘common risk factor’ or ‘broad spectrum risk factor’. For prevention, common factors represent an important target, for preventive 127 interventions that successfully eliminate or reduce such a common factor might, likewise, produce a broad spectrum of preventive outcomes. For this reason, we have introduced in chapter 3 the concept of ‘broad-spectrum prevention’. The same reasoning applies to protective factors yielding a broad-spectrum of positive effects. 6.2.3 Developmental pathways Knowledge on developmental pathways can also be used to understand the high prevalence of comorbidity between mental disorders, and between mental and physical diseases. We differentiate between two types of comorbidity: combinations of multiple disorders in one person simultaneously (concurrent comorbidity) and combinations of disorders that appear subsequently (sequential comorbidity). Over time, risk factors can trigger each other to form long-term risk trajectories. Likewise, the outcomes of earlier mental disorders can trigger secondary disorders and diseases. For instance, anxiety disorders in childhood are a risk indicator for depression in adolescence, and depression in adolescent girls increases risk of bulimic pathology and overweight in adult females (Stice et al., 2004). Earlier substance abuse symptoms are found to be a predictor for the onset of depression in adolescent females (Stice, et al., 2004). When risk factors and mental disorders trigger each other over time, preventing early risk factors and early disorders might prevent the emergence of longterm high-risk trajectories. In the case of simultaneous comorbidity, common risk factors might play a causal role as we discussed in the previous section on multifinality. Addressing a common cause could produce a broad-spectrum preventive effect. Developmental psychopathology scientists are longitudinally studying long-term pathways of multiple causal chains of risk and protective factors, and subsequent problem behaviours through so-called ‘Cascade models”. We refer to a special edition of the journal Development and Psychopathology on developmental cascade studies (Masten & Cicchetti, 2010). The concept of cascades refers to waterfalls starting as a normal river but splitting up step by step in multiple falls and streams, reflecting multifinality (Figure 6.2, left picture). The other way around, is also common, i.e. multiple independent falls and streams ultimately feeding the same river, reflecting equifinality (Figure 6.2, right picture). Fig. 6.2 128 Symbolic representation of cascades. Left resembles the process of multifinality, right the process of equifinality 6.2.4 Psychopathology and mental health In spite of its name, developmental psychopathology studies both the pathological pathways to mental disorders (vulnerability) and the pathways that strengthen competence and resilience in children over time, thus mental health. Both pathological and normal developmental trajectories can be better understood, when they are studied in relation to each other, which is frequently the case in developmental psychopathology studies. In addition, risk factors and protective factors can be considered as two sides of the same coin. Child neglect is studied as a major risk factor in the development of a range of later risk factors such as insecure attachment and poor social competence. Reducing child abuse implies enhancing the opposite, i.e. parental care, responsiveness and warmth, which in turn are conditions found to enhance the positive social-emotional development and resilience in children sustainably. 6.2.5 Sensitive periods Since developmental psychopathology studies when specific risk and protective factors emerge at different stages and transitional periods in life, it offers scientific information that could guide decisions on the best timing of preventive interventions. Preventive interventions are considered more effective when they are offered during sensitive periods. This idea goes back to the work of Erick Erikson on developmental stages and related developmental tasks. He considered the transition from one developmental period to the next as a time of developmental crisis, in which children and adolescents run an increased risk of developing emotional and behavioural problems. Knowledge on the subsequent ‘developmental tasks’ of a child during early childhood, late childhood and adolescence could inform us on sensitive periods in which specific protective factors start to develop such as secure attachment, social competence, cognitive problem solving skills or self-esteem. Children starting to go to school, or moving from primary to secondary school, are also examples of sensitive periods. During these periods, children encounter large changes in their lives. When children cope well with such phases of crisis, they increase their competence and selfesteem. At the same time, these developmental crises are considered as periods in which children are more unbalanced and sensitive to external influences. Caplan, the founder of the crisis theory and preventive psychiatry, identified these sensitive periods already fifty years ago as great opportunities for effective emotional support and preventive education (Caplan, 1964). Finally, sensitive periods also refer to periods in which the onset of risk behaviours and specific disorders is more prevalent than during other periods. For instance, epidemiological studies have identified mid-adolescence as the period most sensitive to the onset of first depressive episodes, psychotic episodes, and the beginning of pathological dieting. Developmental psychopathology research informs us about the pre-clinical episodes for such disorders with beginning symptom behaviour. During these periods, children can be targeted by indicated prevention programmes. This requires systems for early detection of such pre-clinical symptoms in early or mid-adolescence. 6.2.6 Multiple system levels Due to its multidisciplinary nature, developmental psychopathology studies risk and protective factors across multiple systems levels. In this respect, the developmental psychopathology framework is strongly influenced by social ecology theories (e.g. 129 Bronfenbrenner). It includes studies on biological, behavioural and family risk factors, as well as on the impact that social risk factors in schools, communities and societies exert on the development of emotional vulnerability and resilience. Examples of evidence-based social risk factors are poverty, economic crisis, domestic violence, poor housing conditions, aggressive school climates, living in disadvantaged neighbourhoods, lack of social cohesion, and exposure to war violence. This can be illustrated by studies that show evidence for causal relations between poverty and domestic violence, stress, depression and smoking during pregnancy and their impact on the developing emotional systems in the brain of the unborn child (Braveman et al., 2010; Lundquist et al, 2012; Lovisi et al., 2005; van den Bergh et al., 2005). Insight in these multi-level interactions is of great importance to feed future prevention programmes and policies. Of special interest are studies about the interaction between risk and protective factors that are operating at similar or different system levels. At different levels applies, for instance, to the study of the interaction between genetic risk factors and environmental influences. Such studies have revealed that the likelihood that genetic vulnerability results in the onset of mental disorders (genetic expression) depends on its interaction with environmental conditions (Caspi & Moffitt, 2006; Jaffee & Price, 2007). For instance, Kaufman et al. (2007) showed that the impact of child maltreatment on later early alcohol use (e.g. getting drunk) was around 30% higher among children with specific genetic features (resp. 5-HTTLPR allele) in comparison to maltreated children without these genetic characteristics. Exposure to environmental stressors increases the likelihood of genetic expression, while environmental protective factors reduce the risk that genetic factors will lead to mental disorders. 6.3 Summary of features and principles Developmental psychopathology is not a specific theory, but a scientific approach. It offers an organisational and conceptual framework that combines and integrates different theoretical perspectives. Although individual studies are focused on specific factors and mechanisms, the field as a whole aims to provide a holistic approach towards psychopathology and mental health. Furthermore, it is important to be aware that developmental psychopathology is not identical to the mere study of child and adolescent psychopathology. Developmental psychopathology represents a specific scientific approach of the study of psychopathology across the life span. Summarising, this approach is characterised by a combination of the following principles and features: Studying the different stages of the development of mental disorders (onset, course, maintenance, recovery, recurrence) as well as normal development (mental health); A lifespan approach, including the development of long term pathways of related causal factors, and trajectories of subsequent and related disorders (sequential comorbidity); outcomes of earlier developmental stages have an impact on later stages; Studying both risk and protective factors and the impact of their interactions, as well as their role as mediators or moderators in the developmental process; Study of multiple developmental pathways in the onset and course of a single disorder (e.g. behavioural problems, depression, eating disorders), known as equifinality, as well the multiple 130 outcomes of a common risk or protective factor (e.g. adverse early experiences such as child abuse), known as multifinality; A multilevel analysis, i.e. the study of interactions between causal factors at different system levels (e.g. person, family, school, work, community, society); A transactional approach, i.e. person and environment mutually influence each other over time. Given the many factors that are involved in normal development and the development of mental disorders, developmental psychopathology represents a probalistic and not a deterministic approach; The short term and long term outcomes of mental disorders in terms of subsequent vulnerabilities (‘scars’); Identification of sensitive periods in which certain risk or protective factors are more open to change as a result of interventions. The research on risk and protective factors in the lives of children of mentally ill parents (COPMI) described in chapter 16, is a typical example of developmental psychopathology research (Hosman, van Doesum & van Santvoort, 2009). Studies on the long-term pathways in the development of conduct disorders represent another well-known example. Aggressive and antisocial behaviour in children emerges frequently already very early in life (from the third year) and early aggressive behaviour has found to be fairly stable during later childhood and adolescence. Prevention of the early signs of conduct disorder through interventions in childhood is probably in the end far more effective than interventions during adolescence. During this later period, aggressive and antisocial behaviours are much more difficult to change because by that time they are usually strongly anchored in habits and in relationships with aggressive peers. For instance, ADHD in combination with family stressors increases the risk of early oppositional behaviour disorder during childhood, which then increases the risk of severe behavioural disorders and alcohol and drug problems in adolescence. Since it emergence during the 1980s, developmental psychopathology research has developed a rich body of knowledge on determinants and developmental trajectories of mental health, especially through numerous fundamental longitudinal studies and through interventions studies. For more information on such studies, we refer to Development and Psychopathology, which is the leading scientific journal in this field. 6.4 Conclusions Developmental psychopathology plays an important role in prevention science and practice. The major dimensions and features of this approach parallel major strategic dimensions and options in preventive strategies. This applies to choices, such as (a) focusing on reducing risk factors or on increasing protective factors; (b) choosing the system level of intervention: targeting preventive interventions at biological, emotional, behavioural, social or communitybased risk and protective factors, or combinations of them; (c) the timing of interventions across the stages of the life span; and (d) aiming primarily at preventing mental disorders or enhancing mental health, or both. 131 Another major strength of the developmental psychopathology framework is its potential to integrate a wide diversity of pieces of scientific knowledge into a coherent view on multiple causal factors at different life stages and different ecological levels. For the same reason, a developmental psychopathology approach provides not only a useful basis to develop specific preventive interventions, but also to design a comprehensive strategy to reduce psychiatric problems and enhance mental health in communities with use of a smart combination of multiple interventions. Such a science-based comprehensive approach could include interventions directed at multiple risk and protective factors, timed at crucial sensitive stages along the life span, targeted at the most important populations at risk, and combining person-based and system-based preventive actions. Finally, the longitudinal perspective of developmental psychopathology also offers a crucial framework for outcome research. The concept of multifinality and developmental pathways informs evaluation researchers about the spectrum of potential effect indicators of preventive interventions. One common problem with outcome studies in prevention is that they mostly test a too small spectrum of potential effects (many times only one or two core indicators), while the intervention might actually produce a broad spectrum of positive outcomes. Secondly, prevention researchers for understandable reasons restrict their evaluation period mostly to pre- post studies or to studies with only short-term follow-up tests. As a result, such studies might only be able to test immediate and short-term effect and changes in risk and protective factors. Many potential positive effects may stay invisible. Developmental psychopathology stresses the need for longitudinal outcome studies of interventions. Such studies might point at additional potential effects later in the life span. The study of David Olds on the Nurse-Family Partnership programme for pregnant women at risk offers an excellent example by showing a wide range of very significant effects becoming visible when the unborn babies become adolescents. Therefore, the approach could make more benefits possible (Olds, 2006). Developmental psychopathology knowledge might inform prevention researchers and practitioners where and when prevention outcomes can be expected. This facilitates them to select research designs and a set of outcome indicators that are better able to show the potential value of preventive programmes. Showing the full range of benefits to all relevant stakeholders is crucial for strengthening the perspectives for investments in prevention in the future. 132 Literature Achenbach, Th. (1982), Developmental psychopathology. Second edition. New York: Wiley. Braveman, P., Marchi, K., Egerter, S., Kim, S., Metzler, M., Stancil, T., & Libet, M. (2010) Poverty, near-poverty, and hardship around the time of pregnancy. Maternal and child health journal, 14, 20 -35. Caplan, G. (1964). Principles of preventive psychiatry. New York: Basic Books. Caspi & Moffitt (2006). Gene–environment interactions in psychiatry: joining forces with neuroscience. Nature Reviews Neuroscience, 7, 583-590. Cicchetti, D. & Cohen, D. (1995). Perspectives on developmental psychopathology. In D. Cicchetti & D. Cohen (Eds.), Developmental psychopathology: Vol. 1. Theory and methods (pp. 3-20). New York: Wiley. Cicchetti, D. & Toth, Sh.L. (1997). Transactional ecological systems in developmental psychopathology (a general introduction in developmental psychopathology with child maltreatment as major example). In S. Luthar, J. Burack, D. Cichetti & J. Weisz Developmental psychopathology. (p. 317-349). Hankin, B.L., & Abela, J.R.Z. (Eds.) (2005). Development of psychopathology: A vulnerability-stress perspective. Thousand Oaks, CA: Sage Publications. Hosman, C.M.H., van Doesum, K.T.M., & Santvoort, F. (2009). Prevention of emotional problems and psychiatric risks in children of parents with a mental illness in the Netherlands: I. The scientific basis to a comprehensive approach. Australian e-Journal for the Advancement of Mental Health, 8, 3, 14 pages (ISSN: 1446-7984). Jaffe, S.R., & Price, T.S. (2007). Gene–environment correlations: a review of the evidence and implications for prevention of mental illness. Molecular Psychiatry, 12, 432–442. Kaufman, J., Yang, B., Douglas-Palumberi, H., Crouse-Artus, M., Lipschitz, D., Krystal, J., & Gelernter, J. (2007), Genetic and environmental predictors of early alcohol use. Biological Psychiatry. Vol.61(11), 1228-1234. Kellam, S., Koretz, D., & Moscicki, E.K. (1999), Core elements of developmental epidemiologically based prevention research. American Journal of Community Psychology, 27, 463-482. Lovisi, G.M., Lopez, J.M., Coutinho, E.S., &, Patel, V. (2005). Poverty, violence and depression during pregnancy: A survey of mothers attending a public hospital in Brazil. Psychological Medicine. 35, 10, 1485-1492. Luthar, S., Burack, J.A., Cicchetti, D., & Weisz, J.R. (Eds.) Developmental psychopathology: Perspectives on adjustment, risk and disorder. New York: Cambridge University Press. Lundquist, R.S., Seward, G., Byatt, N., Tonelli, M.E., & Kolodziej, M.E. (2012). Using a multidisciplinary approach for pregnant women with nicotine dependence and co-occurring disorders, Journal of Dual Diagnosis, 8:2, 158-167. Masten, A.S., & Cicchetti, D. (Eds.) (2010), Developmental cascades. Development and Psychopathology, Special journal edition, 22, 491 v.v. Olds, D. (2006). The nurse–family partnership: an evidence-based preventive intervention. Infant Mental Health Journal. 27(1), 5–25. Stice, E., Burton, E., & Shaw, H. (2004), Prospective Relations between Bulimic Pathology, Depression, and Substance Abuse: Unpacking Comorbidity in Adolescent Girls. Journal of Consulting & Clinical Psychology, 72(1), 62–71. Van den Bergh, B.R.H., Mulder, E.J.H, Mennes, M., & Glover, V. (2005). Antenatal maternal anxiety and stress and the neurobehavioural development of the fetus and child: links and possible mechanisms. A review. Neuroscience and Biobehavioral Reviews 29, 237–258. Wenar, C., & Kerig, P. (2005). Developmental psychopathology: From infancy through adolescence Fifth Edition. New York: McGraw-Hill. 133 Study questions for this chapter What are the main features of the developmental psychopathology approach? What could be the benefits of designing preventive interventions from a developmental psychopathology perspective? How can developmental knowledge inform researchers and practitioners about strategy development and evaluation in prevention? What is meant by the statement: “Developmental psychopathology is a scientific approach”? What do the terms equifinality and multifinality mean? How are these two terms related to making choices in designing a prevention strategy or prevention policy? What could be the implications of the existence of concurrent comorbidity and sequential comorbidity for designing prevention programmes? To what other theoretical model discussed in this textbook is developmental psychopathology most related? What is a sensitive period and what is its meaning for prevention? What are the implications of developmental psychopathology for designing evaluation studies in prevention and mental health promotion? 134 7 Integrated stress-theoretical approach 7.1 Introduction 136 7.2 Concept of adaptation 137 7.3 Stress and mental health problems 139 7.3.1 Concept differentiation 139 7.3.2 Transactional perspective 140 7.3.3 Life course perspective 141 7.3.4 Intergenerational transfer 142 7.3.5 Multifactorial approach 142 7.3.6 Multisystem and multilevel approach 143 7.4 Transactional Model of Stress and Coping 144 7.4.1 Limitations 144 7.5 Integrated Stress Theoretical Model 145 7.6 Conclusions 151 Literature 152 Study questions for this chapter 154 135 7 Integrated stress-theoretical approach Clemens M.H. Hosman 7.1 Introduction The integrated stress model, presented in this chapter, emerged in the beginning of the 1980s during a range of lectures on epidemiology, stress and mental disorders that were part of our courses on epidemiology and prevention. Over the years, the model has been used by many prevention practices in the Netherlands as their core theoretical base for the development of prevention programmes and policies. Practitioners reported that the model helped them to understand better the major strategic options for preventive interventions and used it as a framework to relate the many single pieces of scientific knowledge that they learned during their academic training. Although the model was not inspired by the field of developmental psychopathology that emerged later, the integrated stress model is very much in line with the basic principles of the developmental psychopathology approach. The difference is that developmental psychopathology offers a specific ‘approach’ to study the development of mental disorders and mental health, while the integrated stress model has a specific psychological theory as its centre. The history of this model started during 1978, when I was participating in a seminar given by the late Gerald Caplan, when he was visiting The Netherlands as prevention consultant. As stated earlier he was one of the founders of Preventive Psychiatry. His basic ideas are described in his book Principles of Preventive Psychiatry (1964). In this classic book and his later book Theory and Practice of Mental Health Consultation (1970), he presented a coherent theoretical and methodological framework for prevention that was grounded in both scientific knowledge and his rich experience from the practice of preventive child psychiatry. Caplan is also the father of the crisis theory. Even for current standards, his books offer principles and frameworks that are still relevant to date. His views on primary prevention strategies, social support systems, community dynamics and on mental health consultation methods to local professionals, organisations, communities and policy makers are highly topical these days, as we will discuss in chapter 10. The need for community interventions and the current changes in mental health service systems (“back to the community”) call for new approaches, for which Caplan’s views and methods are highly inspiring. During that seminar in 1978 and the guest lecture he gave to my students, he presented a theoretical model (crisis theory) that founds his primary prevention approach. This model, in his own handwriting, is imaged in figure 7.1. He wrote this model on the back of a Holiday Inn letter sitting in the canteen of our Psychological Institute in Nijmegen on Wednesday, the 31st of May 1978. He asked me to write the model with chalk on the blackboard of the lecture room, as PowerPoint did not exist yet at that time. The model considers the development of (mental) diseases as well as (mental) health as an outcome of 136 the interaction between life stresses, personal competences and social support. Competence and its counterpart ‘vulnerability’ are considered as the outcome of two clusters of forces: biological and social risk factors (e.g. birth trauma, pregnancy complications, family discord, Figure 7.1 Caplan’s crisis theory as basis of primary prevention (May 31st, 1978) parental mental illness, cultural deprivation) and competence promoting forces in the social environment (e.g. parental care, school education). Social support is influenced by the quality of the social network system (Caplan, 1974). Caplan differentiated explicitly between risk factors, mental health promoting and protecting factors (intervening variables). Implicit in the model are a lifespan and an ecological dimension. Caplan’s model became the centre of my own thinking about mental health and mental disorders. Combined with Richard Lazarus’ cognitive theory of stress and coping, the model evolved to the integrated stress model that I will introduce in section 7.5. As a background to this model, I first discuss the concept of adaptation, which is narrowly related with coping with stress and human development (7.2), summarise developments in thinking about stress and its impact on mental health (7.3), and describe the cognitive stress model of Lazarus (7.4). 7.2 Concept of adaptation Hans Selye, one of the founders of the stress theory, begins his book on stress (1956) with the phrase: "Adaptation is perhaps the most characteristic feature of life”. Without adaptation, there is no life, no survival, and no human development. In life sciences, such as biology and psychology, adaptation is one of the most central concepts. In a theoretical base to efforts for promoting the development of mental health and preventing the development of mental disorders, adaptation should be a core concept. Adaptation refers to the ability of living organisms, including humans, to adapt to the environment. The purpose of adaptation 137 is to increase chances of needs satisfaction, self-protection and survival, and the adaptive interaction with one’s environment offers opportunities for further biological, cognitive and emotional development. People with a strong adaptive capacity are better able to survive and maintain their health. When individual adaptive capabilities (such as problem solving skills) are not sufficiently developed or damaged by early traumatic experiences, clinical and developmental psychologists try to restore them through therapeutic interventions. Preventive interventions aim to strengthen the adaptive skills of individuals and the social systems in which they live. One strategy is to prevent conditions that damage adaptive capabilities and to strengthen social conditions that protect and promote them. This includes for example, programmes that stimulate pregnant mothers to abandon smoking and alcohol use, offer support to reduce stress, depression and anxiety during pregnancy. In addition, the prevention of child abuse and neglect through parenting education serves as a good example, given the evidence of the impact of early traumas on the developing neuroemotional system in the brain. Individual adaptation cannot be seen separately from social adaptation processes at other system levels, such as adaptive processes at the level of social networks, organisations, schools and government. Individual adaptation depends on the adaptive capacities of these social systems to protect individuals against extreme levels of stress and traumatic experiences, to provide support when needed and to safeguard conditions in which people can develop their skills to survive and adapt. Some examples: After a serious shooting incident at a school, emotional coping of students and prevention of trauma-related disorders depend on the capabilities of the school and community to support students and their parents. The social policy of a company and the way it cares for work-stress prevention and how this is defined in protective laws or national or international standards for the quality of the work environment. Preventive interventions focused on threatening factors and adaptation capacities at higher social system levels are necessary when we aim to reduce serious mental health problems in people at risk and in whole populations. Such interventions aim to increase health promoting and preventive capacities of schools, communities or companies. In turn, such a “healthy’ environment can contribute to the preventive capacities of individuals. In most cases, people are able to adapt to difficult circumstances. Stressful circumstances and the challenge to cope with them are prerequisites for a healthy mental development. On the other hand, traumatic stress or an accumulation of stressors together with a lack of social support can lead to serious and lasting psychological problems. This chapter presents the ‘integrated stress theoretical model’. This model adds a developmental psychopathology view to the usual stress and coping models and can be seen as a broad framework in which several theories can be integrated, such as behavioural theories, social support theories and the positive psychology approach. 138 7.3 Stress and mental health problems The last 30 years, in both epidemiological and stress research, an avalanche of studies has appeared on the relationship between adaptation and psychopathology, and especially on the role of stress, personality characteristics, competence factors, coping, and social support (Cohen, 1988; Paykel & Dowlatshahi, 1988; Kessler, Price & Wortman, 1985; Neufeld, 1989; Coyne & Downey, 1991; Martins et al. 2011; Ditzen & Heinrichs, 2014). This research involved, for instance, the prediction of depression (Paykel, 2003; Stroud, Davila & Moyer, 2008), schizophrenia (Beards et al., 2013), panic disorder (Klauke et al., 2010) and alcohol use (Veenstra et al., 2006), but also the mental health impact of specific stressors as sexual abuse (Spaccarelli, 1994), work stress (Ganster & Rosen, 2013) and unemployment (Strandh et al., 2014; Ziersch et al., 2014). These studies clearly show evidence that a relationship exists between the experiences of severe or enduring stress and the onset of mental disorders. Originally, epidemiological research studied the direct relationship between the occurrence of stressful life events and the emergence of psychiatric symptoms and disorders, and found weak relationships. Clearly, there exists no one-to-one relationship between stress and psychopathology. Many people who experience stressful life events (e.g. the death of a partner, becoming unemployed) do not develop serious psychiatric symptoms. For that reason, some psychiatrists even concluded that social stress apparently has little to do with the development of psychopathology (Lamb, 1985). However, models that are more complex have replaced the old, simplistic models on this relationship. These appear to provide a better prediction and offer favourable prospects for preventive intervention. Current stress-theoretical approaches to psychopathology have the following characteristics: use of a more differentiated conceptual framework; transactional perspective; life course perspective; intergenerational transfer; multifactorial approach (accumulation of multiple risk factors; moderating factors); multisystem approach. Overall, there exists a trend towards a more inclusive and multidimensional approach. 7.3.1 Concept differentiation The low correlations between stress and mental disorders as found in earlier research could be partly attributed to the sloppy and indiscriminate use of terms such as stressors, psychological disorders, social competence and support. Today these concepts are more differentiated and better operationalised, which has improved their predictive value. For instance, the amount of stress someone experienced was originally measured by simply adding the number of recent stressful life events. Currently, a distinction is made between different types of life events. Events with certain features are more likely to increase risk of mental disorders, or more precisely certain mental disorders. For example, take the following life events and early stressors: 139 Experiencing a serious loss (e.g. death of parent, spouse or child, a serious disease), Confrontation with a serious and unexpected threat or shocking event (e.g. a life-threatening accident or becoming a victim of violence), Physical abuse, emotional abuse, physical neglect in early life. Loss situations are particularly predictive for depression, traumatic experiences for both anxiety disorders and depression, and early emotional abuse and physical neglect for adult personality disorders, such as borderline disorder (Carr et al., 2013). Generally speaking, a stressful event leads to a higher psychiatric risk when it: is perceived as negative or threatening; trigger other life events or enduring stressful situations requires a prolonged or permanent adjustment; has an ambiguous character, is unknown and leads to uncertainty about its impact or the right way to react; is unpredictable (no preparation); evokes feelings of loss of control (powerlessness). Risks for psychopathology are particularly high when there is an accumulation of stressors (Appleyard et al, 2005; Rutter, 1984). That may be the case, for instance, when a stressful event is the start of a chain of negative events (e.g. someone had a serious car accident becomes a disabled person looses job substantial decline in income has to move for lower rent etc.). Divorce, a serious illness, becoming unemployed and losing income are other examples of events that may trigger an accumulation of subsequent stressors. Now current stress research is not restricted to the study of stressful life events as was common in the past. Modern stress research also studies the impact of chronic stress and how this increases risk (e.g. poor working conditions, poverty, chronic conflicts in a relationship, a parent with a chronic mental illness). 7.3.2 Transactional perspective A second development in psychological stress research has been the transition to a transactional approach. Typical for the transactional approach to stress is first the importance of how stressors are perceived: How do people experience potentially stressful situations? The interpretation of - objectively - the same stressor can vary largely depending on differences in needs, knowledge, experience, coping skills, and perceived control. Presenting a lecture for a large audience can be a fun challenge for some and a nightmare for others. Secondly, the transactional approach emphasises the dynamic relationship that develops over time between a person and his environment. A person does not only experience a stressor (being the passive victim) but also reacts to it, mostly with a series of successive attempts to reduce the stress experience (coping responses). An individual or group of persons can try to shape their environment, for instance by creating a more safe, supportive or rewarding environment; or one that offers better opportunities for emotional development or to get a job as a member of a minority group. The environment will respond again to these reactions, triggering subsequent reactions of the person. 140 7.3.3 Life course perspective Well-known scientists as Arnold Sameroff, developmental psychologist, and Michael Rutter, child psychiatrist, have taken the transactional perspective a step further by describing it over a longer period of life. Sameroff, for instance, describes how mother and child react to each other through a long series of problem situations and inadequate coping behaviours. Over time, such a sequence of disturbed interactions may ultimately lead to serious cognitive and behavioural disturbance in children (Sameroff & Fiese, 1989). On the other hand, when problem situations between parents and children are adequately resolved and children receive warmth and support, children will develop more resilience and hardiness. This life course-oriented approach to adaptation has received much attention in the epidemiology and prevention, as evidenced by the rapidly growing interest in developmental psychopathology. (e.g. Cummings et al, 2000; Hankin & Abela, 2005; Rutter, Izard & Read, 1986; Kerig & Wener, 2005; chapter 6). Since the 1980s, this development and life course view has become indispensable for gaining insight in the aetiology of mental health and psychopathology. We have included a developmental dimension in our Integrated Stress Theoretical Model (figure 7.2, and figure 7.7 in section 7.5). Developmental epidemiology, an integration of epidemiology and life course research, aims to reveal in population samples the developmental pathways that lead to psychopathology (Kellam & Werth Amer-Larsson, 1986). A classic example of such a long-term developmental process ending in a high risk of psychopathology is provided by the renowned British epidemio-logist George Brown in his studies about the impact of social risk factors on the onset of depression among low-income women in London. Based on a range of studies, Brown and his colleagues describe a similar trajectory of depression development in women who lost their mother early in their life (Harris et al, 1987; Brown, 1988). The death of their mothers during childhood led to a prolonged period of lack of care, which contributed to a negative self-image. The lack of care increased the likelihood that girls leave home at a very young age, having a higher risk of teenage pregnancy and marrying a person unable to develop an intimate relationship. These marriages were not only unsatisfactory for both partners, but also increased the risk of a sequence of new stressful events, serious relationship problems and ultimately depression. It is especially the long-term accumulation of risk factors during the course of life and the lack of opportunity to develop resilience that is considered responsible for the development of mental disorders, recurrent episodes and chronicity. Knowledge on these longitudinal processes offers insight in multiple opportunities for early professional and network support to reduce the risk of depression onset during adolescence and adulthood. The life course perspective is also important because it provides insight in the stages of life 141 in which risk and protective factors are beginning to develop. This information is essential for proper timing of preventive interventions, i.e. the choice of age at which exposure to a preventive intervention would be most effective and probably requires the lowest investment to be successful. 7.3.4 Intergenerational transfer The combination of a developmental and transactional perspective provides an excellent conceptual framework to describe also the intergenerational transmission of psychological problems and disorders. Research has found evidence for such transmission of physical and sexual abuse (Finkelhor, 1986; Ruf-Leuschner, Roth & Schauer, 2014), serious relationship problems and divorce (Schaap, Widenfelt & Hosman, 1991; de Graaf, 1991), and for children of parents with psychiatric problems (van Doesum, Hosman & Riksen-Walraven, 2005; Hosman, van Doesum & van Santfoort, 2009; chapter 16). Transgenerational transmission might be mediated by different mechanisms. For instance, Ruf-Leuschner, Roth and Schauer (2014) found that traumatised mothers with PTSD transmitted such symptoms to their children, but not directly but mediated by increased violence in the family. Other studies suggest that epigenetic processes could mediate this. Experience of early abuse and neglect has been found to cause altered BDNF gene expression in the adult prefrontal cortex (Roth et al, 2009). In children of depressed mothers, increased psychiatric risk in offspring is likely mediated by poor mother-child interaction (chapter 16). 7.3.5 Multifactorial approach Numerous studies on the relationship between stressors and psychopathology have focused on the influence of personality traits and social support on coping with stress. A multifactorial approach appears to explain better why some people show pathological reactions to stress and others do not. Stressful conditions lead in particular to an increased risk of psychopathology when there is more psychological vulnerability and low social support. Social support turns out to perform a protecting function against the impact of stressful experiences (buffer effect), as well as a direct positive influence on mental health (main effect), even when stressful events are absent. A main effect indicates that social support can directly fulfil needs, e.g. need for love, appreciation and membership of a social group. Veltman et al. (1991) and Coyne and Downey (1991) studied the interaction between these variables for depression. Regarding the influence of individual adaptation and social support, the risk of depression appears to be greater in subjects with: A low level of fun activities; Low self-esteem and low self-confidence; Depressive attributions and cognitive thinking errors (irrational thoughts); A strong tendency to dogmatic thinking; Less cognitive problem-solving skills; Strong feelings of helplessness (external control) and a tendency to passive responses and ineffective avoidance behaviour; Little ability for self-reward; Low social skills; Low perceived social support, in particular from an intimate partner. The studies by Brown (1988) among women with low SES to which we referred above illustrate this. In his prospective studies, he examined the effect of a combination of some of 142 these factors. In the group of women with severe life events, low social skills and low social support, 63% developed a depression within one year, opposed to only 2% of the women in the control group of women not exposed to these risk factors (Brown, 1988). 7.3.6 Multisystem and multi-level approach In different ways, individuals are for their health highly dependent on social systems in their environment. These systems are present at micro, meso and macro level, as is elaborated in the social systems theories and the social-ecological theory of Bronfenbrenner (section 9.1.2 in chapter 9). We have illustrated this in the figures 7.3 and 7.4. From our own daily experiences, this is evident for the impact of the family, school, neighbourhood, health services, work places and the local government of a city or village. At a higher system level, this applies to, for instance, media, commercial food chains, labour unions, social benefit systems, justice system, national governments and even to multinational organisations (e.g. Apple or Samsung, Shell, European Union, United Nations, WHO). For efforts to promote mental health and prevent mental disorders, we need also to understand what role they play in the onset, maintenance or prevention of risk factors, or in the opportunities to develop emotional resilience and protective factors in our social environment and ourselves. From social system theory, we can learn two relevant principles on how systems function. The first is that in systems at different levels similar internal dynamic processes exist. At each system level, we can define factors such as stressors, competence and support. This applies not only to ourselves as individuals (psychological stress theories), but also to families, schools, companies and communities. Secondly, social systems theory also is about how different systems relate to each other. This can be at a same systems level (e.g. between individuals, between social networks, between organisations), but also between system levels (e.g. relations between student, family, and school system). Systems can have different functions and impacts on other systems. They can function as sources of stress, restriction or even suppression, but also as systems that protect against harmful social or environmental conditions, that facilitate opportunities for emotional and competence development, or that offer social, emotional, informational or technical support to other 143 systems who have to deal with stress or other challenges. Therefore, such higher-level systems should also be targets of health promotion and prevention actions. A common mistake in prevention is to define risk and protective factors for mental health only on individual or micro level, and not recognising that powerful risk and protective factors are anchored in meso and macro systems and also should be targeted at those levels. 7.4 Transactional Model of Stress and Coping Richard Lazarus introduced his appraisal model of stress and coping as an approach to understand human adaptation and as a transactional theory (Lazarus, 1966, 1991; Lazarus & Cohen, 1977; Lazarus & Folkman, 1986; Cohen 1984). He explicitly has included in his model: coping with stressful events is seen as a process of person-environment transactions that are firstly mediated by a person’s appraisal of the stressor. When faced with a stressor, a person evaluates the potential threat (primary appraisal). He makes a judgment about the significance of that event as stressful, positive, controllable, challenging or irrelevant in relation to his needs. Next, a secondary appraisal follows, which is an assessment of possible coping resources and options (Cohen, 1984). In other words, what can one do about the situation? Moreover, an assessment is made of the expected effectiveness of the various coping options in order to make the best choice. Primary and secondary appraisals influence each other and jointly determine the degree of stress, the emotional response and finally the coping response. According to Lazarus, both appraisal processes and the coping responses have an impact on the person’s physical, psychological and social wellbeing. Appraisals and coping responses are assumed to be moderated by perceived personal, social and cultural resources. Lazarus defines coping as: "Constantly changing cognitive and behavioural efforts to manage specific external and/or internal demands that are appraised as taxing or exceeding the resources of the person" (Lazarus et al., 1984, p. 141). Depending on the level of difficulty of the stress situation and the strength of the available resources, coping can be a simple or a complex process. Multiple parallel coping responses might be needed, and coping responses can change over time when previous coping trials appear to be unsuccessful. Dealing with a problematic situation means in many cases that not just one but many coping responses are needed to solve the problem. For instance, solving the problem of being regularly bullied or adapting to the loss of a partner requires not just one coping act but a combination of coping responses. Such coping responses can be aimed either at regulating negative emotions, or on trying to solve the stressful situation (active coping). 7.4.1 Limitations The transactional model of stress and coping also has several limitations. The model does not pay attention to a specification of ’goals and needs’ that are assumed to provide a reference criterion against which a situation is appraised as stressful or not. One way to cope with a stressful situation is to adapt one’s goals and acquired needs. For example, a patient with severe arthritis can try to accept that previous activities (e.g. sports, walking, being pain free) are no longer possible. This acceptance and adaptation of goals could result in less stress. In addition, we should recognise that stressors might be balanced by compensating positive circumstances. When stressors are present, the emotional balance 144 can persist if a person experiences compensating positive circumstances. A coping strategy could be to actively create such compensating experiences in the case a stressor cannot be avoided or reduced. The theory of Lazarus also lacks an intergenerational and life course perspective that explains the relationship between current coping techniques, previous coping and even coping histories. As we have discussed, in developmental psychopathology this dimension plays a major role in the development of competence and resilience of a person, or of his psychological vulnerability in severe stress situations. In this context, it is also important that a theoretical model is able to describe the long-term process of subsequent coping responses that a person applies to end his problem, and the feedback processes on the effects of past successful or unsuccessful coping attempts (feedback loops). Finally, Lazarus' theory is a psychological theory, and pays little attention to factors at the meso- and macro level that are often responsible for stressors and coping resources as well (figures 7.3 and 7.4). As these higher-level factors could also provide a target for health promotion and prevention interventions, we consider it as essential to include also a systems level dimension in a stress-theoretical model. 7.5 Integrated Stress Theoretical Model Based on the limitations described above, Hosman designed a multidimensional stress theoretical model (Hosman, 1988; Bosma & Hosman, 1990) which has been used as a theoretical basis in many Dutch prevention programmes. This model aims to combine several theoretical approaches, such as: Caplan and Lindemann’s crisis theory Cognitive coping and stress theory (Lazarus) Behavioural approach (e.g. Health Belief Model, Theory of Planned Behaviour) Theories about the role of social support and social networks Developmental psychopathology approach Social-ecological and social systems theories (e.g. Bronfenbrenner) Public health models A social critical approach As it aims to combine and integrate different theoretical approaches, it is called the integrated stress theoretical model, abbreviated as ISTM (figure 7.5). The core of this IS-model is a staged appraisal process of stress and coping, based on Lazarus’ cognitive theory (Lazarus & Launier, 1978) and Caplan’s crisis theory. Inspired on the transactional model several stages are distinguished between the onset of a stressor and the final coping reaction. The process of primary and secondary appraisal has been extended to six stages: 1) The appearance of a stressor This can be caused by the environment (e.g. unemployment, illness, relationship problems), but also by the person himself (e.g. because of risk behaviour like alcohol abuse). 2) Observation, interpretation and evaluation of the stressor 145 The person perceives the stressor or at least its threat. This perception can be accurate or biased. The person interprets to what extent this stressor is a barrier for the realisation of important goals or needs, and whether coping with this stressor will be easy or not given the competences and social support the person has. This includes an evaluation of the causes of the presence of the stressor (causal attribution). 3) Problem awareness and crisis When the contrast between stressor and needs or goals is perceived as low to moderate and solvable, a person feels triggered to select a suitable response and to act likewise. This could be the case, for instance, in responding to daily hassles. When the contrast is seen as large and important (serious obstacle or threat), and solving it as possibly transcending one’s resources, the person becomes aware that there exists a serious problem. According to Caplan, this state is labelled as a ’crisis situation’. It leads to an emotional and physiological alarm that might challenge the person to make extra effort in solving the problem or protect oneself somehow by another strategy (e.g. via denial). When the emotional alarm is extreme, it might even lead to a freeze of his cognitive functioning or a feeling of complete helplessness. 4) Preparation of a coping reaction This refers to the conscious and rational process or an unconscious process of selecting a coping (problem-solving) response. Coping theories identify many types of coping responses. Overall, these can be divided into: active problem solving, palliative reactions: coping aimed at reducing the stress feelings (e.g. repression by medication, alcohol, drugs, relaxation), do nothing and wait. To this stage, we could apply cognitive behavioural models and models of preventive behaviours (e.g. Health Belief Model, Theory of Planned Behaviour, chapter 5). Depending 146 on the nature and seriousness of the perceived problem, a coping response is selected from one’s reservoir of available problem-solving abilities and strategies (competence) or from the perceived options for social support in solving the problem or crisis. In terms of the ISTM, coping reactions may target at reducing or avoiding the stressor, changing one’s problem appraisal, adapting one’s needs, investing in increasing competence or appealing for support from one’s network. In Chapter 13 on interventions, an overview is presented of optional preventive strategies that are grounded in the Integrated Stress Theoretical Model (Box 13.3). For an insight in the different options for social support, see chapter 9. 5) Implementation of the coping response Actually executing the response may apply to active or passive coping reactions, asking support, negotiating, preventive behaviour, illness behaviour, acting out, excessive alcohol use, anxiety reactions, delinquent behaviour, suicidal behaviour etc. 6) Consequences of coping reaction and feedback The consequences of coping behaviour will be determined by the extent to which it contributes to a reduction of the experienced problem or its emotional burden. In the ISTM, the effects of the coping reaction can also be assessed to the extent in which they contribute to the improvement of competence, adaptation of goals, satisfaction of needs, reduction of stressors or improvement of social support. In the model, this is indicated by the effect and feedback lines. Problem reactions can also be ineffective or even aggravate the problem, e.g. through excessive alcohol use or acting out behaviour. Coping effects and perceived feedback are not only determined by the nature and power of the coping efforts, but also by the environment. For instance, people in your network might disapprove new coping reactions. Out of self-interest, they might even give distorted feedback to the enacted problem solving behaviour and its impact. Each of these six stages could be selected as target for preventive intervention. This could start with measures to reduce the onset or exposure to stressors (e.g. child abuse, bullying, war traumas), but could also consist in supporting people to analyse a problem situation, to lower a paralysing feeling of crisis, to offer help in finding the best coping response, or get a selected coping response effectively implemented. Moderating factors The ISTM differentiates between four clusters of variables that can moderate what happens in the six stages of the stress and coping process, and influence the outcomes of this process: (1) Compensating circumstances or alternatives for need satisfaction, (2) Goals, values and needs, (3) Competencies, or problem solving capacities, (4) Social support and social networks. Compensating circumstances. Stressors, especially when they are difficult or impossible to change (e.g. chronic illness, death of a partner, losses caused by being a refugee), could be compensated by positive experiences. This could prevent a feeling of crisis, may make a loss more acceptable, or could generate new energy to solve problems and focus at other goals in life. In some cases, it could be as simple as having a nice evening with a friend, concentrating on a hobby or taking a vacation. Several aid organisations such as War Child, Red Cross and UNICEF use this strategy to help severe chronically ill, refugees and war children to create positive experiences that could 147 balance the sequelae of traumatic experiences or severe restrictions caused by an illness or handicap. Goals, values and needs. The appraisal of potentially stressful situations is influenced by the degree of threat a person experiences from this situation for the satisfaction of important needs, or for meeting central values or goals in one’s life. An objectively identical situation could be stressful or not depending on your needs or standards. Maslow’s hierarchy of needs could be used to estimate the kind of needs that are at stake and their relative importance. This cluster also includes central belief systems that could help to interpret a stressful situation. For instance, many people take comfort in religious beliefs when they face the death of a loved one, or those who have a Buddhist view of life might consider losses or situational constraints as part of life and less frightening. Reflecting on your values, needs and goals as a person in stress or reflecting on those of a target group might help to better appraise the situation, might offer opportunities to adapt values of goals to make the situation more stressful, or to find other ways to reach them surpassing the existence the identified stressor. Competencies. These refer to the biological, cognitive, emotional and social capacities that a person has available in himself or herself to use for understanding problem situations and for dealing effectively with stressors or important challenges. They could be innate or acquired through experiences and learning. We could consider them as the ‘strengths’ of a person and they constitute the core features of mental health, as we have discussed in Chapter 3. Evaluated as strengths they represent protective factors in the presence of stressors. In mental health promotion, they refer to the concept of personal empowerment. One of the reasons people could fail in coping with life stressors are some weaknesses or even defects in their capacities, besides existing strengths. This is often the case in psychiatric patients, but also in children or adults at risk due to the exposure to early stress and neglect during pregnancy, infancy or early childhood. We have defined such weaknesses in chapter 3 as internal risk factors. Biological capacities and features refer to genetic factors or to neurobiological features that are acquired through environmental and maternal influences during pregnancy and the early years of life and childhood when the brain is still developing. These could include, for instance, temperamental features such as positive affectivity, optimism, activity level, stress reactivity, neuroticism, self-control and impulsiveness. It is likely that such personality features could be influenced by mental health promotion and prevention programmes that target pregnancy conditions, parenting competence and domestic violence. Cognitive capacities could include analytic skills, creativity, information processing, perspective taking, cognitive problem solving skills, critical thinking and the availability of knowledge about relevant problems and solutions. For instance, for children of mentally ill parents it is considered crucial for their emotional development that they have some understanding of their parent’s illness. This prevents that they start to blame themselves for the problems of their parents, and develop feelings of guilt and negative self-esteem. Emotional capacities refer, for instance, to self- esteem and self-confidence, emotion regulation and stress management skills, and the ability to delay gratifications. Social skills include assertiveness, showing empathy, negotiation skills, successfully asking for social support and the ability to accept offers for social support. Increasing these capacities in children and adolescents is the aim of social-emotional learning programmes (SEL). Many evidence-based SEL-programmes can be found in international and national databases of effective intervention programmes, such as the one of the Collaborative for Academic, Social and Emotional Learning (CASEL, www.casel.org) or national databases for youth intervention programmes (e.g. http://www.nji.nl/nl/ Databanken/ Databank-EffectieveJeugdinterventies). 148 Social support and social network. We will be short here on this cluster as chapter 9 is completely devoted to this issue. In that chapter we will discuss different types of social networks at microlevel but also at higher system-levels that could be involved in the process of solving problems, preventing stressors or increasing a person’s competence. Different types and functions of social support are discussed, and a differentiation is made between social support and social networks, as they are actually present in the environment of the person, and what is perceived and valued by a person as support. It might be that a person is unaware of and/or has no access to available support systems, or he might consider an offered support as not effective or not sufficiently sensitive to the culture of his or her social group. In chapter 9, we also discuss the different types of preventive strategies that could be used to strengthen social networks and social support. Multiple system dimension In its core, the ISTM is a micro model, which means a social psychological model about individual factors and micro-social factors in the direct environment of a person. However, the model assumes that these factors are also the result of the interaction with the mesolevel (e.g. school, company, and neighbourhood) and forces at the macro level (e.g. ideologies, cultural norms and values, legislation, economy). For this reason, we have added a system-level dimension to the ISTM (figure 7.6). Influencing factors at the micro level can also be achieved through interventions aimed at risk and protective factors and support systems at meso and macro level. At meso- and macro, we could identify different settings and networks that can be addressed in mental health promotion and prevention programmes and policies. For more information on this dimension, we refer back to section 7.3.6. Developmental dimension The ISTM is designed as a transactional and dynamic model, which means that is has a developmental dimension and includes a feedback system (figures 7.7 and 7.5). The model has actually two developmental dimensions, namely to the development of a person and his competencies across the life span, and the stages of the development of a problem. 149 The developmental dimension applies in the first place to the developmental process of a person along his lifespan, starting from pregnancy and infancy, until adulthood and old age. Secondly, at micro-level it could also be applied to the developmental process of a problem, which includes subsequently a situation or phase of no risk, increased or high risk, beginning problems and symptoms, onset of serious problems and disorders, recurrent episodes and chronicity, and the phase of recovery or return to a healthy situation. Preventive interventions can be targeted at each of these phases, as we will discuss in section 13.9 on ‘making choices of the strategic dimension ‘Time and Timing’ (chapter 13). The developmental dimension of the ISTM does not only apply to micro-level but also to higher systems levels. To promote mental health effectively, we should not only be informed about the developmental processes of a person and how risk and protective factors and trajectories influence this process along the life span. We also need to understand how risk and protective factors and support systems at higher system levels develop over time and how we could influence them timely in order to empower them and to create mental health promoting life conditions. For instance, this is the issue in the community approach of mental health promotion and prevention (chapter 10). Currently, many developments and changes are ongoing in communities and health systems because of new health and social policies that aim to reduce the role of expensive, specialised health services and to enhance the role of community self-care and local social support systems. Health promoters and prevention professionals are challenged to play a proactive role in these developments and to increase the mental health promoting capacities of such local systems. Likewise, do the fast developments in social media, internet and local mass media offer opportunities timely strengthen their role in supporting the development of mental and social capital in local populations. 150 7.6 Conclusions The ISTM offers a broad frame of reference for mental health promotion and prevention in which different types of theories can be integrated. In the stress model, cognitive behavioural theories can be used in the process of preparation of coping behaviour. Social support and social network theories can be used as an elaboration of the social support factor. Theories on risk perception, attributional theories and social comparison theories can be used to define the interactions between stressors, their perception and interpretation, and subsequent emotional reactions. Theories on social determinants (e.g. the influence of the media, poverty, unemployment, prejudice) relate to the model by explaining how a person experiences stress because of these social factors, but also how social determinants might influence the exposure to stressors, shape values and goals in life through prevailing ideologies, and how they could facilitate or block the development of individual competence and resilience, and opportunities for social support. The recent appeals by WHO to also address social determinants of mental health and not just individual or micro-social determinants, challenge us to include also social criticism to the way our society deals with mental capital, just as we do this in the domain of environmental protection and health (WHO, 2008, 2010, 2013). This is not an issue of advocating just for mental health, but also of learning to understand how mental capital is a cornerstone for good citizenship, social development, public safety and economic development. Further research, reflection and critical debate is needed to extend our knowledge about the interplay of genetic, neurobiological, cognitive-emotional, social and macro-structural factors in shaping mental health. 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A longitudinal study of the mental health impacts of job loss: The role of socioeconomic, sociodemographic, and social capital factors. Journal of Occupational and Environmental Medicine, 56, 7, 714-720. 153 Study questions for this chapter What are the main features of the modern stress-theoretical approaches to psychopathology? Which theories were used as basis for the integrated stress theoretical model? What is the authors view about the relation between individual and social adaptation? What dimensions are distinguished in the Integrated Stress Model? Which clusters of factors are distinguished in the model? What is the significance of these clusters and dimensions for the design of preventive interventions? What is meant with a transactional approach? What kind of theories described in other chapters could easily be integrated into the transactional model of stress and coping? Explain where and how? How do the stress-theoretical models in this chapter differ from the behavioural models that have been discussed in chapter 5? What characteristics of stressful life events lead to a higher risk for mental disorders? Which stages of stress development and coping do the ISTM and the transactional stress model use? How is the ISTM related to the idea of developmental psychopathology? What stand does the author take in relation to social determinants of mental health? What kind of prevention strategies could be derived from the ISTM? 154 8 Positive psychology approach 8.1 Introduction 156 8.2 Principles and concepts of positive psychology 157 8.3 Measuring positive mental health 159 8.4 Interventions enhancing positive mental health 160 8.5 Conclusions 161 Literature 162 Study questions for this chapter 164 155 8 8.1 Positive psychology approach Introduction Prevention of mental disorders is criticised for its negative approach of people, by primarily targeting illnesses and problems, and by aiming to repair weaknesses, defects and risk behaviours. Although many prevention programmes in practice also target competencies and strengths of people at risk, the ultimate intention is to counter risk factors and to prevent disease and problems. This criticism goes back to the longstanding debate on the ‘medical model’ versus the ‘positive model’ of mental health (chapter 3). George Albee, one of the founders of modern primary prevention in the domain of mental health advocated his whole life against the dominating illness approach and in favour of a focus at people’s competences and strengths. “A Competence Model Must Replace the Defect Model’ was the title of his address at the start of the Fourth Vermont Conference on Primary Prevention of Psychopathology in 1980 (Albee, 1980). Albee stated that the incidence of emotional problems and ‘pathological’ behaviour is not just the outcome of a combination of stress and organic causes, but the imbalance between these risk factors and people’s competence, coping skills, self-esteem and support systems. He strongly pleads for a shift to a competence model: building human competence and promoting social environments early in life and in schools were children and adolescents can fully develop their cognitive and emotional strengths and their potential to cope with the hazards of life. This competence model is reflected in both the positive model and the functional model of mental health we have discussed in chapter 3. The competence model got support from the work of leading developmental psychologists such as Norman Garmezy, a pioneer in the study of emotional resilience. A core question was: How could we explain that many children do not develop psychiatric disturbances while exposed to serious stressors and traumas? What could we learn about their strengths and how can we in general encourage children to develop such strengths? It is interesting is that Cicchetti, Rolf and Masten, founders of developmental psychopathology, were all students of Garmezy. The competence approach became an integral part of the developmental psychopathology framework that emerged during the 1980s (chapter 6; and Development and Psychopathology journal). In the work of Albee, Garmezy and the developmental psychopathologists, competence and resilience are primarily valued as a protective factor, human strengths that protect children and adults against the negative impact of risk factors. Resilience refers to positive adaptation in the context of adversity and risk. With the same functional meaning, a competence factor is also integrated in stress theories where individual competence serves as a buffer against the impact of stressors and as a container of capacities that can be utilised to cope with stressful situations or to achieve important goals in life (chapter 7). In his crisis and stress theory, Gerald Caplan (1964) emphasised that competence is not just a protective factor that could prevent mental disorders when people are faced with significant risk factors, but that using one’s competence and being able to cope successfully with stressors and challenges of life also contribute to the strengthening of mental health. Likewise, modern developmental 156 psychopathology is not restricted to the study of developmental trajectories of mental disorders, but includes also studies on the development of positive mental health capacities, as is evidenced by the type of articles published in the peer-reviewed journal Development and Psychopathology. During the 1990s and short after 2000 several psychologists, such as Diener, Ryff, Seligman and Keyes, started to advocate for an orientation of psychology on happiness, well-being, meaningful life and human flourishing. Martin Seligman (photo), known for his earlier work on learned helplessness and depression, became internationally the strongest advocate for this fundamental change in psychology, and extended his criticism to the field of prevention of psychopathology. He initiated the concepts of positive psychology, positive education, positive prevention and positive therapy (Seligman & Csikszentmihalyi, 2000; Seligman, 2002; Seligman, Ernst, Gilham et al., 2012). For most of its existence, psychology, especially clinical psychology, was targeted at human suffering, stress, understanding the causes of pathology, and treating mental illnesses. Positive psychology does not deny the need to support people who suffer from mental disorders and serious mental problems. A psychology, however, that is mainly driven by a negative approach to mental health is considered by positive psychologists as science that has lost contact with the positive emotions, motivations and psychological strengths of people that constitute their daily well-being and happiness. These strengths empower them to develop themselves, to relate with others, to shape their environment and to achieve important goals in life. Positive psychology aims to supplement what is known about human suffering, weakness, and disorder with knowledge about positive development (Seligman, Steen, Park, & Peterson, 2005). Increase in well-being is found to produce better learning. Positive emotions broaden the array of attention, thoughts and behaviour, stimulate more flexible, creative and holistic thinking, and contribute to social compassion, and the building of sustainable psychological resources and social support (Seligman et al., 2012; Fredrickson, 2001). These processes are explicitly described in the ‘Broaden-and-Build’ theory of Barbara Fredrickson and supported by a long range of experimental studies (Fredrickson, 2013). In conclusion, she states “when people learn to self-generate more frequent positive emotions—either through meditation or through more elemental shifts in their attention—they launch themselves onto positive trajectories of growth”. (p. 32). 8.2. Principles and concepts of positive psychology Positive psychology aims to study and promote human happiness, well-being, human strengths, the flourishing of people and building competence. These features are not only important because they buffer against mental illness, but also because they represent core human values in itself and contribute to a wide range of positive outcomes in life, such as school success, intimate relationships, productivity and good citizenship. The mission of 157 positive psychology is to understand and foster the factors that allow individuals, communities, and societies to thrive (Kobau et al., 2011). For this reason, theories and research of positive psychology offer a crucial scientific base for efforts to promote mental health and well-being. Well-being and flourishing are core concepts of positive psychology. Well-being can be subdivided into three components: emotional well-being, psychological well-being and social wellbeing (Keyes, 2005; Bohlmeijer, Westerhof, Bolier et al, 2013). Emotional well-being refers to the presence of positive feelings, the absence of negative feelings and satisfaction about life. A meta-analysis by Lamers, Bolier, et al. (2012) showed that emotional well-being has a positive effect on recovery and survival of people who suffer from physical diseases. Psychological well-being concerns the ability for self-realisation and personal growth, and related positive self-images. Social well-being refers to the evaluation of positive functioning in social life and one’s society, feeling connected and valued by others. The term ‘flourishing’ refers to optimal well-being and positive psychology scholars mostly define the term by summarising its main dimensions. In his book Flourishing (2011), Seligman described the meaning of flourishing through his PERMA model, in which he differentiates five essential elements that should be in place for people to experience lasting well-being: 1. 2. 3. 4. 5. Positive emotions (P): happiness, joy, love, hope, inspiration, gratitude, curiosity etc. Engagement (E): using your strengths to meet challenges, getting in a state of flow Positive relationships (R): connecting with others, intimate relationships, Meaning (M): meaning in life, finding your purpose Accomplishment (A): pursue and accomplish goals These features are grounded in positive individual traits (e.g. optimism, creativity, attachment, resilience, kindness, perseverance). As experimental and longitudinal studies have shown, resilient people experience more positive emotions, and positive emotions broaden people’s attention and curiosity, and enhance successful outcomes in work, social relationships and health (Kobau et al., 2011). Positive emotions, positive traits and subjective well-being are considered partly as heritable, but also as acquired through learning experiences in family life and through supportive and stimulating environments in schools and workplaces. Outcomes of many controlled evaluation studies have shown that subjective well-being and positive functioning can be learned and effectively taught in schools (Seligman et al., 2012; see also 8.4). The dimensionality of well-being and positive mental health is much under debate. The number of identified dimensions in research varies from 2 to 7 (Kafka & Kozma, 2001). For instance, Ryff (1989) distinguished six dimensions of psychological well-being: Selfacceptance, Positive relations, Autonomy, Environmental mastery, Purpose in life, and Personal growth. Forty years earlier, based on her study Marie Jahoda also defined six dimensions of positive mental health (chapter 3), but only four of them overlap with those of Ryff. The PERMA model of Seligman includes ‘positive emotions’ and ‘engagement’ that are not covered by Jahoda or Ryff. In addition, outcomes of factor analytic studies have raised questions about the independence of factors that are differentiated on theoretical grounds. They show that factors share common underlying dimensions (e.g. van Dierendonck et al. 2008). More research and scientific debate is needed to understand better the differences, overlap and relationships between the many dimensions that are 158 differentiated in the literature. More unity would be welcome in this labyrinth of concepts and dimensions. 8.3 Measuring positive mental health Those who advocated for positive mental health and positive psychology were criticised for using vague and poorly defined concepts. This would make it difficult to study such concepts scientifically, measure them and to test the effectiveness of interventions aimed to promote positive mental health. In response, positive psychologists have invested in developing valid instruments to measure positive mental health and well-being, and their building stones. We give some examples: Scales of Psychological Well-being (SPWB), developed by Ryff (1989) to measure the six dimensions of well-being that were mentioned in the preceding section. Social Well-being Scales (Keyes, 1998) differentiates between 5 dimensions of social-wellbeing: social integration, social contribution, social coherence, social actualisation and social acceptance. Keyes’ study supports the construct validity of these dimensions. Values in Action Inventory of Strengths (VIA-IS), developed by Peterson and Seligman (2004) measures character strengths as the core of positive mental health. This self-report questionnaire is completed by over one million individuals in more than 200 nations, and was found to have an acceptable validity and reliability. It is currently available for public use. The VIA-IS has also been adapted and validated for use among adolescents (VIAYouth; Park & Peterson, 2006). Oxford Happiness Questionnaire (OHQ, 29 items; Argyle, Martin, & Crossland, 1989; Hills & Argyle, 2002), found to be a one-dimensional scale with good validity and high reliability. Of this scale, a short version is made of 8 Likert items that predict with 90% accuracy the scores on the full scale. Satisfaction With Life Scale (SWLS; Diener, Emmons, Larsen, & Griffin, 1985) is a onedimensional instrument of 5 items, measuring global life satisfaction, the cognitive component of psychological well-being. The instrument is translated and validated in many languages. Mental Health Continuum-Short Form (MHC-SF); a 14-item self-report questionnaire for measuring emotional, social, and psychological well-being. The MHC-SF is found to be a reliable and valid instrument to measure positive aspects of mental health (Lamers, Glas, Westerhof & Bohlmeijer, 2012). The Warwick- Edinburgh Mental Well-Being Scale (WEMWBS), a one-dimensional scale composed of 14 positively formulated Likert items, was developed in the United Kingdom showing good face validity and reliability (Tennant, Hiller, Fishwick et al., 2007). Both hedonic and eudaimonic dimensions of mental well-being focused on the positive aspects of mental health including affective–emotional aspects, cognitive–evaluative dimensions, and psychological functioning. The scale is also translated and used in several other languages (e.g. Spanish, Chinese). A randomised waiting-list controlled study showed that participants in an internet-based mental health promotion programme (1529 participants; 1561 controls) showed after 6 and 12 weeks significant better results on the WEMWBS. 159 The intervention (MoodGYM) consisted of 5 interactive modules that teach participants cognitive-behavioural principles (Powel, Hamborg, Stallard et al., 2013). Besides well-being questionnaires for use in the general population, there are also tests specifically designed to measure well-being and quality-of-life in specific groups such as pregnant women (see review by Morrell, Cantrell, Evans et al., 2013). In addition, more traditional measuring instruments of psychological features could be used to measure aspects of positive mental health, such as measurements of self-esteem, social competence, problem solving skills, creativity, self-efficacy, feelings of mastery and emotional intelligence. For public access to available instruments that measure positive mental health or aspects of it, we refer to the website of the Questionnaire Center of Penn State University (www.authentichappiness.sas.upenn.edu/testcenter). 8.4 Interventions enhancing positive mental health The views, values, and theoretical model of positive psychology have been translated to different types of positive interventions that are implemented in home and preschool settings, schools, health services, and in sport and work settings all over the world. These include, for instance, parenting programmes and school-based social-emotional learning (SEL) programmes. Of the parenting programmes, Triple P (Positive Parenting Program) is a well-known example and is implemented in 25 countries around the world. The programme got worldwide recognition by the United Nations. Although some doubts exist about the rigor of some outcome studies, systematic reviews and a meta-analysis across several dozens of controlled studies show that the Triple P programme has generated a wide spectrum of positive effects, such as more effective parenting, better well-being and marital relationships in parents, less parental depression and child abuse, and fewer child behavioural and physical problems (Prinz, Sanders, Shapiro, Whitaker, & Lutzker, 2009; de Graaf, Speetjens, Smit, de Wolff, & Tavecchio, 2008). Positive school programmes are also known under the term Social-Emotional Learning (SEL). Access to evidence-based SEL-programmes and the advocacy for their evaluation, dissemination and implementation is provided by the Collaborative for Academic, Social, and Emotional Learning (CASEL; www. Casel.org). This website offers numerous descriptions of school-based programmes that meet the principles of positive psychology. It also contains many reviews of the scientific knowledge on which these programmes are based and on the evidence of their effectiveness. For instance, the Penn Resilience Program (PRP) is one of the most known SEL programmes for children between 7 and 15 years and is offered as an after-school programme to enhance learned optimism. Several controlled studies have shown that this programme increases optimism in youngsters, and reduces depression, anxiety and behavioural problems (Gillham et al., 2012; Brunwasser & Gilham, 2008; Seligman et al., 2009). PRP aims to enhance more optimistic explanatory styles in children and youngsters by stimulating positive thinking, detecting inaccurate thoughts and learning to challenge negative beliefs. The programme has been adopted and implemented in many countries around the world, such as United States, United Kingdom, The Netherlands, Portugal, China and Australia. Internet is used to offer such exercises and training to large groups of children, adolescents and adults. 160 In Australia, the positive psychology principles were also successfully translated to a whole school positive education programme (Seligman et al., 2009). To reach the population at large with positive psychology, the challenge is to make this mental health promotion approach an integral part of national and local public health policies (Kobau, Seligman & Peterson et al., 2011). Positive interventions cannot only be offered in settings such as schools, but also in health care settings, workplaces and through the internet. This requires staff training and guidance to institutions to help them to provide a mental health-promoting environment to children, adolescents and adults. Other effective positive psychology interventions include mindfulness training (Regehr, Glancy & Pitts, 2013; Zoogman, Goldberg, Hoyt & Miller, 2014), gratitude exercises, daily monitoring good things in life, and identifying character strength and practice using them in a new and different way (Seligman, Steen, Park & Peterson, 2005). Also for positive psychology interventions in organisations, there exists growing evidence for their efficacy in improving well-being and performance among employees, and a tendency to less burnout and depression, as was found in a systematic review of 14 controlled intervention studies (Meyers, van Woerkom & Bakker, 2013). 8.5 Conclusions and Discussion Positive psychology represents a valuable and useful theoretical framework to ground interventions aiming to improve mental health across the lifespan. The outcome research that we reviewed supports the assumption that mental well-being of people can be improved by positive psychology interventions in diverse settings such as for instance preschool settings, schools and workplaces. According to the functional model of mental health that we described in chapter 3, these studies suggest that such interventions increase competence and well-being, and have the potential to prevent mental suffering and disorders, such as severe stress, depression, anxiety and burnout. Although the available evidence is promising, it needs further expansion in different ways. First, more controlled outcomes studies in different countries are needed to be able to draw strong conclusions about the robustness of the effects and to prove that positive psychology interventions can work in different populations and cultures. The evidence-base for positive psychology programmes and for “what works and why?” is still limited. Secondly, the range of psychological, health, social and economic outcome indicators in such studies need to be expanded, in order to provide more insight in the full range of possible benefits that these interventions could provide for different stakeholders in society. Thirdly, the available knowledge on their effects is still mainly restricted to short term outcomes. As positive psychology interventions might be successful in improving sustainable features (e.g. positive thinking, problem solving skills, self-efficacy, social competence), it is likely that they might generate long-term effects. Due to the recency of this field, such longitudinal positive psychology studies hardly exist yet. We may use examples from some long-term outcome studies of competence-enhancing programmes for young children that have been executed from the 1980s on. Finally, studies on positive psychology interventions have mainly addressed the research question “Effective or not?” and “Are effects sustainable across 3 to 6 months after the intervention?” To our knowledge, the insight in programme features, participant characteristics or external conditions that have influence on the level of 161 effectiveness, is still very marginal. Such knowledge is important as so far available main effect sizes of these programmes show only small to moderate effects. In addition, programmes vary in efficacy; some did not show aimed effects. Knowledge on effect moderators is needed to improve programmes, the quality of implementation and implementation conditions. The current positive psychology programmes are mainly person-oriented, which means that they provide educational interventions that directly address target persons in whom they want to strengthen positive mental health. To broaden the opportunities for improving mental well-being in large segments of the population, the positive psychology approach should be expanded in two ways. The first is to develop more knowledge on how positive psychology principles and interventions can be deeply anchored in communities, non-profit organisations, companies, public and private policies, justice and international educational programmes. The second way is to also address social risk factors that raise barriers for the normal development of positive mental health. This especially concerns the conditions that impede the development of positive psychological capacities early in life and during childhood, such as enduring stress in pregnant mothers, prenatal alcohol use, child abuse and neglect, domestic violence, lack of emotional learning in schools, bullying, poverty, traumatic war events, refugee status, and childhood experiences of being discriminated or bullied. 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Mindfulness, Published online 15 January 2014, DOI 10.1007/s12671-013-0260-4 Videos/Youtube: Students are invited to look at Youtube films with presentations by Martin Seligman: http://www.youtube.com/watch?v=zKqVy1OUI8E Lecture of Martin Seligman about well-being and public policy (2011) http://www.youtube.com/watch?v=weVPtrXMMx8&feature=related Lecture of Martin Seligman about positive psychology, well-being and flourishing (2011) http://www.youtube.com/watch?v=oSx_RxJjjMk&feature=related Interview with Martin Seligman (2010) Study questions for this chapter In what way are positive psychology, developmental psychology and the integrated stress model related with each other? What are the main goals and targets of positive psychology? Are these goals measurable? What kinds of components are differentiated within the overarching concept of psychological well-being? Does consensus on the dimensions of well-being and the components of mental health exist? What kind of interventions fit into the positive psychology approach? Are such evidencebased interventions available? What are major limitations of current positive psychology and challenges for the future? What is your own view on the value of positive psychology? Would it be an approach that you would like to support and practice, or maybe not? Offer an argumentation for your stand. 164 9 Social support and social network approach 9.1 Introduction 166 9.1.1 The history of social support research 166 9.1.2 Ecological Systems Theory 168 9.1.3 Social networks, Social resources, and Social capital 169 9.1.4 The empowerment approach 170 9.1.5 Social support in prevention practice 171 9.2 A theoretical framework for social support 172 9.2.1 Basic elements of social support 172 9.2.2 Bidirectionality and empowerment 174 9.2.3 Diagnostic tool to assess the quality of social support 176 9.2.4 Mapping social networks 177 9.2.5 Functional analysis of social support 178 9.2.6 Goals and targets of social support 179 9.2.7 Types of social support: What could support systems offer? 181 9.2.8 Timing of social support 181 9.3 Strategic options for professional action 183 9.4 Effectiveness of social support 185 9.4.1 Evidence of effectiveness 185 9.4.2 Effect moderators and effective ingredients 186 9.5 Toolkit for quality assessment and programme development 186 Literature 188 Study questions for this chapter 190 165 9 Social support and social network approach Clemens M.H. Hosman 9.1 Introduction This chapter discusses the role of social support and social networks in the development of both mental disorders and mental health. Over the past 30 years, much research has been done on the role of social networks in our societies and on the effects of social support on health. Strengthening social support and social networks represents one of the major strategies for preventing mental health problems and promoting well-being. In this chapter, we first introduce the concept of social support by a short summary of its long history in social sciences. In this section, some research data on the effects of social support on health are also discussed. We link the social network approach to related concepts and theories such as the social ecology theory, the social resource and social exchange theory and to concepts such as supply networks and social capital. Next, we present a theoretical framework on social support and social networks and describe its basic elements, the types of social support and their psychological and social functions. We pay special attention to how professionals and scientists can map the relations within a social network and assess the quality of social support and social support systems. Next, we explain how they can use the presented theoretical framework to design social support and network interventions. Section 9.4 discusses what is known about proven effects of supportenhancing interventions. Throughout the chapter, you will find multiple schemes, figures and boxes that together form a toolkit that professionals and researchers can use in their work for improving the social support capacity in communities, populations at risk. How is this chapter related to other chapters in this textbook? First of all, social support is also an element in other theoretical models that we have discussed earlier. The term ‘social support’ is part of the ‘social influence’ factor in the ASE model (chapter 5) and one of the core factors of the integrated stress model (chapter 7). In the developmental psychopathology framework, social networks are assumed to play a major role in the interactions between system levels that shape the development of mental health and mental disorders across the life span (chapter 6). Next, social networks and social support represent an essential dimension of prevention strategies and programmes. Making a network analysis is defined as an integral part of each problem analysis a prevention professional or health promoter has to perform before designing an intervention programme (see chapter 11 on programme planning). How professionals can include a social network approach in prevention programmes is discussed in chapter 13 on strategy development. 9.1.1 The history of social support research Although the concept of social support was introduced in the scientific public health and prevention literature during the seventies of the last century (Caplan, 1974; Cassel, 1973), the study of the influence of social networks on mental health is rooted in a long research tradition. The sociologist Emile Durkheim was one of the first who studied the influence of social cohesion and solidarity on humans, as he describes in his ‘La division du travail social’ 166 (1893). His investigations showed that the number of suicides was highest in the group of people with the lowest number of social contacts (La Suicide, 1897). According to Durkheim, reduced social contacts and the associated reduction of social roles and norms lead to a higher number of suicides. Since the 1980s, several large epidemiological studies tried to predict mortality through the size of one’s social support network (Sarason, Sarason & Pierce, 1990). In prospective studies, Berkman & Breslow (1983) and Lyyra & Heikinnen (2007) found that people with weak social ties and a lack of emotional and practical support have almost 2.5 times higher risk of death than those with a strong social network that provides emotional and other types of support. This impact remained after the researchers controlled for other risk factors such as weight, alcohol consumption and cigarette smoking. Poorer levels of social support are found to be related with a wide range of health conditions (Berkman, Glass, Brissette, et al., 2000; Hogan, Linden, & Najarian, 2002), such as a poorer functioning immune system (Uchino, 2006), more risk of cardiovascular disease (Uchino, 2009), depression (Pelkonen, Harttunen & Aro, 2003; Brugha et al., 2004), and more complications during pregnancy (Elsenbruch et al., 2007). Social support is also found to have a beneficial effect on recovery and long-term survival among patients with acute myeloid leukemia (Pinquart, Hoffken, Silbereisen, & Wedding, 2007), bone marrow transplantations (Foster et al., 2012), dialysis patients (Plantinga et al., 2011), arthritis patients (Fitzpatrick et al., 1991), and breast cancer (Nausheen et al., 2009). Overall, epidemiological and clinical studies show that social support and social cohesion can improve health and the quality and duration of life. Although size of a social network plays a role (Brugha et al., 2004), it is not merely the size of social networks that ensures beneficial effects. For instance, some studies show that having only one supporter, such as a spouse, can also lead to positive outcomes for the recipient (see review by Hupcey, 1998). Much research attention has been given to the emotional, cognitive and social functions that a social network can provide, and the impact of the quality of supportive relations on the social-emotional development of Social Support systems Social support in the family Action for Happiness Network Local social support group Linked to Online network Local interest organisation COPMI International Prev Network 167 children, adolescents and adults, especially when they are exposed to risk factors. Psychologists and psychotherapists have long underestimated the power of social and community processes in the development of mental health and well-being, by exclusively concentrating on the inner cognitive and emotional processes related to pathological behaviour. These inner processes, however, are shaped by a continuous stream of interactions with the physical and social environment. The work of Bowlby and other developmentalists on the long-term impact of early attachment between parent and child, represent a classic example of this type of research. There is substantial evidence that children with secure attachments in childhood develop more positive social–emotional competence, cognitive functioning, physical health and mental health, whereas children with insecure attachments are more at risk for negative outcomes in these domains (Ranson & Urichuk, 2008). Recent studies also suggest that attachment style affects the immune system (Picardi et al., 2013). Numerous other developmental psychopathology studies have provided convincing evidence of the impact of early caring and supportive environments on the social-emotional development, resilience and vulnerability of children and adolescents (See Journal of Development and Psychopathology). 9.1.2 Ecological Systems Theory The social ecological theory of Urie Bronfenbrenner is one of the leading international frameworks on the interrelations of risk and protective factors at different system levels. Bronfenbrenner studied how factors at each of these levels impact the social-emotional development of the child (Bronfenbrenner, 1975). In his view, child development is not only an outcome of the genetic impact of the parent and the interactions between the child, parent, other caregivers and peers at micro-level. Also social forces at higher social system levels have directly or indirectly a powerful impact on the development of the child over time. Children are nurtured in multi-level nested environments. Bronfenbrenner delineates four types of nested systems: The micro-system, such as the family, classroom, peer group, family doctor, teacher; The meso-system, which is two microsystems in interaction; The exo-system: external environments which indirectly influence development, (e.g., parental workplace, health system); The macro-system: the larger socio-cultural context, which includes ideologies and cultural values, public policies, laws. The model shows that entries for interventions to prevent child mental disorders and to promote social-emotional development can be found at multiple systems levels. The higher 168 the chosen entry in the hierarchical system, the more distance to the child, but also the larger the number of children it might affect in the end. The model invites to study how the interrelations between system levels work, and what kind of causal pathways are linking the impact from one level to the other. It is evident that social networks represent one of the most important pathways of intersystem interaction. Social influences on mental health could form a multilevel cascade. Protective factors could start at macro level and affect the microenvironment of children through mediating processes at meso level: national policies regulate school curricula and school budgets, curricula and budgets influence the room for social-emotional education in schools, adopted curricula on social-emotional learning guide the behaviour of teachers, teacher behaviour affects the social-emotional development of children. Later, Bronfenbrenner added a fifth system, called the Chrono-system, that refers to the patterning of environmental events and transitions over the course of life, but also to the evolution of the external systems over time. Each system contains roles, norms and rules that can powerfully shape development, but such social norms and rules may change over time. In times of large societal changes due to economic crisis, economic migration, globalisation, and worldwide access to the Internet, we see macro-systems and exo-systems quickly changing. At micro level, this may result in confusion about cultural values and norms, exposure to conflicting messages and views, and loss of social networks. The longterm economic crisis has a deep impact on the lives of populations all over the world through increasing poverty, loss of one’s house, and sharply reducing local budgets to support communities, local organisations and day care facilities for children. It has also resulted in huge cuts on budgets for prevention and mental health promotion in neighbourhoods and schools. By adding the chrono-system to his model, his theoretical framework mirrors closely that of developmental psychopathology and the integrated stress model that we discussed in the chapters 6 and 7. All these theoretical approaches have a multilevel dimension in combination with a developmental dimension in common. A final last remark concerns the value that can be attributed to the influences that the higher system levels have on the micro system, and in the end on individual children, adolescents and adults. These influences can be at the one hand supportive and facilitate social-emotional development across the life span (social protecting and promoting factors); they also may exert restraining or even harmful effects (social risk factors), as we have illustrated above. 9.1.3 Social networks, Social resources, and Social capital Caplan’s introduction of a support systems approach as strategy for preventive psychiatry and health promotion was based on a nutritional model and resource model (Caplan, 1974; Caplan & Grunebaum, 1967). In these models, the development of a person’s health, competencies and emotional development depends on the availability of physical, psychosocial and socio-cultural resources. Food, shelter, adequate living space, sensory stimulation, opportunities for exercise and sleeping are resources that are necessary for physical growth. Likewise, for a healthy cognitive and emotional development in addition to these physical resources, also psychosocial resources (e.g. love, care, control, protection, esteem, feedback, opportunities for social participation, family ties) and sociocultural resources (e.g. stimulating school climate, work, safe and cohesive community, social benefits, and protective legislations) are needed. Social networks and social support systems are the vehicles through which children, adolescents and adults get access to these essential resources. Supportive relationship is the pathways through which resources flow 169 through networks. This stresses the crucial role of social networks as catalyst in the development of emotional health and human strengths. For mental health professionals and health promoters, providing mental health consultation to informal caregivers, local health professionals, community leaders, local organisations and policy makers represents a powerful strategy to enhance availability and accessibility of necessary psychosocial and socio-cultural resources (Caplan & Grunebaum, 1967; Caplan, 1970). 9.1.4 The empowerment approach Social networks have multiple outcomes, positive and negative ones. In this chapter, we focus primarily on the actual and potential positive functions networks could exert for individual citizens, families, local groups and organisations. From our perspective, functions are ‘positive’ when they directly or indirectly contribute to more mental capital and human well-being, and less emotional and behavioural disorders. To achieve this, social networks and social support systems exert protective functions against hazards of life, and provide citizens and local organisations the resources they need to create a healthy, productive and fulfilling life. In turn, professional health promoters and prevention professionals aim to empower the social networks and support systems in order to increase their preventive and health promoting roles in society. The philosophy of empowerment was introduced by the pioneers of community organisation, population education and community psychology, such as Saul Alinsky, Paulo Freiri and Julian Rappaport in the period between 1950 and 1980. The WHO’s strategy for health promotion, as defined in the Ottawa Charter on Health Promotion (WHO, 1986), has adopted these views to launch a worldwide innovative approach to public health. The Ottawa Charter describes five major strategies to improve physical health, mental health and social well-being: (1) build healthy public policy, (2) create supportive environments, (3) strengthening community actions, (4) develop personal skills, and (5) reorient health services increasingly in a health promotion direction, beyond its responsibility for providing clinical and curative services. Empowering people and communities as major strategy to health, is the common idea behind this visionary policy. The framework, presented in the Charter, links the concepts of supportive communities, social resources, individual strengths and empowerment with mental health and well-being. Over the last decades, the Ottawa Charter has guided public health and health promotion policies and actions in communities and countries all over the world. The multi-level concept of Empowerment refers to the process by which people individually and collectively in organisations and communities gain control over the factors and decisions that shape their life and influence their health. It is the process, by which they increase their assets and attributes, and build capacities to gain access to resources, develop partnerships and networks, and a voice, in order to gain control. Developing personal skills is a strategy for individual empowerment. Community empowerment refers to the process of enabling communities to increase control over their lives. Community empowerment seeks to build partnerships across sectors and local organisations in finding solutions for health threatening conditions and to make the best 170 use of opportunities in the community to promote health and well-being. It can also concern the development of networks of citizens such as local support groups for caregivers of family members with dementia, and citizen action groups for more social safety or the preservation of a community centre. Since the 1980s, internationally ‘Healthy Cities’ and ‘Healthy school’ networks are developed to exchange best practices and to support these local projects. 9.1.5 Social support in prevention practice In prevention and health promotion practices, interventions to strengthen social support and social cohesion in social networks are widely used (Röhrle, Sommer & Nestmann, 1998; Hogan et al., 2002). Box 9.1 lists a range of common examples found in several countries. From our own Dutch practice in working with children at risk, below we describe one example more extensively, targeted at children of mentally ill parents (COPMI) in the age of 8 to 12 years. The most common prevention programme for these children is support groups where they can meet other children who live in similar situations (see also chapter 16). Such support groups are offered all over the country by district mental health services. They aim to provide emotional and cognitive support to these children who usually feel isolated due to the stigma attached to the parental mental illness. Often the children blame themselves for the problems of their mother or father due to a lack of knowledge about the parental illness. They have a hard time in dealing with the difficult situation at home. In the meetings, the children receive information about parental mental illness, and how to cope with it. The group leader explains in simple terms, how such illnesses develop, and that their mother’s or father’s illness is not caused by them. The children give each other emotional support, and discuss how they deal with the situation at home and how they could make their life enjoyable. The group meetings also offer pleasant activities as a temporary compensation for the stress at home. For many years, these local preventive practices are supported by national and international organisations and networks, such as the National Platform of COPMI professionals, patient organisations, universities, the National Institute for Mental Health and Addiction, and by the International COPMI Network of researchers, programme directors and advocates. The national and international networks exchange innovative approaches, new interventions, educational materials, and the latest scientific knowledge. The participants use this innovative input to improve the quality of the COPMI programmes in their countries and in the local communities where they meet the children 171 and families. This illustrates how supportive influences go up and down through the multilevel ecological system. Although the use of a social support approach is common in health promotion and prevention since the 1970s, practitioners have often rather simple ideas about what social support is, how it works and how you can improve its quality. Many professionals lack a science-based framework to diagnose the support problems of their clients, to identify opportunities for improvement, and to design an effective preventive intervention based on a social network strategy. In both the prevention and treatment sector, professionals are insufficiently aware of the opportunities they have to prevent serious problems in their clients by helping them to improve social support and strengthen social networks. This makes their preventive work less effective. The presented social support approach offers a diagnostic framework for assessing the quality of existing social support, support systems and networks, and to design or select the best actions for improvement. Accordingly, this remaining part of this chapter is centred on two types of questions. The first category concerns diagnostic questions: Who provides which type of social support, to whom, for what purpose, using which methods, is it delivered with sufficient quality, and does the support work, so what is the actual effect? The second type concerns design questions: How can we improve the availability of social support for the client, make the support fit better to what is needed and improve the quality of the enacted support? How could social support and social network theory guide professionals in selecting or designing an effective intervention? What standards should a support programme meet to effectively reduce the risk of emotional disorders, and increase mental fitness and well-being? 9.2 A theoretical framework for social support In this section, we describe a theoretical framework on the interrelations between social networks, support systems and supportive behaviours, and their impact on mental health and well-being. Although this chapter is about the relevance of social support theory for prevention of mental problems and promoting mental health, the framework can also be used for prevention in other areas where social support strategies are used, such as physical illnesses (e.g. cardiovascular diseases) and social problems (e.g. unemployment, violence, discrimination). Social support principles are also utilised by clinicians, who try to enhance social support for their patients as part of their treatment strategy, for instance for those who suffer from a chronic mental illness, a depression or a serious limiting physical disease. 9.2.1 Basic elements of social support The social support model that we present here is made up of the following elements: 172 Support systems, the providers of support, exist at micro, meso and macro level. A support system could be a person in a dyadic relationship (e.g. child-parent, friendfriend), a group (e.g. family, group of friends, local support group), or an organisation (e.g. school, patient organisation, labour organisation, professional association). Support systems at each of these levels are part of social networks of individuals, groups or organisations (e.g. a family network, a network of organisations fighting for the social acceptance and safety of homosexuals, a local network of schools). For reasons of simplicity, we have combined the meso-system and exo-system of Bronfenbrenner into one label, ‘meso level’. Recipients of social support, including their needs, risk factors and strengths. The focal recipients in health promotion are citizens, and in prevention especially citizens at risk. They represent the ultimate target population. In this multilevel model, in turn, support systems are not only ‘providers’ but also ‘recipients’, as the quality of their functioning as providers of support depends of the support they themselves receive from other support systems at the same or higher system levels. For instance, the quality of the support teachers give to children to stimulate their social-emotional learning (SEL), is enhanced by training and programmes in SEL, offered to them by public health services or national institutes. Normally, a support system is embedded in a multilevel network of support systems. Perceived support: the receiver’s awareness and perception of the provided support. Perceived support is assumed to have a stronger reducing impact on stress, than the objectively measurable presence of social support. It might occur that a person is not aware of the available or even enacted support from his social network, or he might perceive this support not as support but, for instance, as interference in his privacy or as an act reflecting primarily the interest of a caregiver. In this case, not receiving support might be a perception or interpretation problem in the first place. Offered or enacted social support. This is about the actual support given by the provider. Its nature and quality can be defined by the following five features: (1) the content of the offered support, so ‘what’ is offered; (2) the intended aim or target of the provided support, so what does the support is aimed to achieve in the eyes of the provider; (3) the method used to offer the support and the quality of its implementation; (4) the timing of the support; and (5) the fit between the offered support and the needs and culture of the receiver. Quality of a support system. These include, for instance, the level of knowledge and skills of a support system has available, his attitudes, cultural sensitivity, ethical standards, and the openness towards the needs and opinions of those they aim to support. These support system features are assumed to influence the quality of the actual supportive behaviours and their impact on the receiver. Networks of support systems. A support system is usually part of a wider social network of relations with other actors or systems. These can be relations at the same ecological level (horizontal networks) or with systems at higher levels (vertical networks). Horizontal relations exist within micro level networks (e.g., the whole of family members, friends and neighbours of person), the meso level (e.g., collaborative health promotion network of local health and social organisations), or the macro level (e.g. collaboration between multiple national institutes for health and well-being, government, and professional organisations). Networks also exist across system levels (multilevel or vertical networks), such as patient and consumer 173 organisations who operate both at local and national level, and have at each of these levels collaborative relations with other stakeholders. Quality of social networks can be described along structural dimensions and with use of process indicators. Structural features of micro, meso and macro networks might be studied, such as size, density, homogeneity, openness and accessibility. These structural features may influence the intensity and quality of the flow of social support activities within a network. The quality of the processes in a network may be indicated, for instance, by the presence of a common mission and common targets, frequency of contacts, level of information exchange, internal democracy, leadership, reciprocity of support, and level of output. Figure 9.3 outlines how these different elements build up to a multilevel social support model. It describes support systems and networks at micro, meso and macro level, the relations between them, and differentiated between offered or enacted support and perceived support. 9.2.2 Bi-directionality and empowerment The model, as reflected in Figure 9.3, primarily outlines the supportive actions from support systems to receivers, represented by upward arrows. However, system theory and current health promotion approaches stress that influences are going both ways: upstream and downstream. To date, we consider people not only as passive receivers of support or treatment, but also as active citizens who to take action and responsibility for their own health, and seek to improve the social and community conditions for their well-being. The vertical lines of influences between system levels are bidirectional in nature, and work 174 through information exchange and learning, supportive and empowering actions, and exerting power (Figure 9.4). These cascades of influence go ‘top down’ from macro to meso level and from meso to micro level (e.g. government and national NGOs schools teachers parents and children), but could also stream ‘bottom-up’, for instance, through parent committees, student actions, teacher organisations and school networks. Support systems are not only used to get emotional relief in times of stress or to improve individual capacities to cope with a problem, they can also be used to build social influence and collective power that is strong enough to change social risk or health promoting factors. This reflects the empowerment philosophy that we have discussed earlier. What does this view mean for the work of health promoters and prevention professionals? First of all, they are challenged to focus preventive interventions not only on improving coping skills and health behaviours of citizens at risk, but also on empowering citizens, groups and organisations to become themselves health promoters and prevention experts in their communities. This stresses the need to reorient professional work from mainly health education to also building prevention and health promotion capacities in communities. Secondly, it means that we as professionals should consider citizens and local organisations not only as potential consumers of capacity building for mental health promotion. We should also support citizen groups and local organisations in their role as capacity builders of organisations and policymakers at higher levels. Their practice-based expertise is essential as a bottom-up input for decision making by local and national governments, national organisations or private companies that affect the conditions for the health and well-being of citizens. Over the last decades, we have witnessed inspiring examples of bottom-up influence and capacity building by the environmental movement. In sum, to be effective mental health promoters and empowerment agents, professionals need to understand the multiple ways in which people may use their support systems and social networks to cope with the social stressors, challenges and opportunities in their life. 175 Box 9.2 Diagnostic checklist to evaluate the quality of social support, and of support systems and networks of support systems Assessment of the availability and quality of social support for a person or a group at risk could reveal one or more of the following weaknesses that could be repaired by preventive actions aimed at people at risk, a support system or support network. 1. A relevant social support system or network is lacking, not activated, or poorly accessible 2. A target person or group (client system) lacks the knowledge, motivation or skills to get access to available social support and networks 3. Poor quality of support offered by a support system: Poor fit of offered support to needs (content and goal) Right kind of support, but of insufficient quality, poorly presented, too late, and not effective enough Offered social support is counterproductive 4. Low quality of an existing support system: Lacks necessary skills, knowledge, attitudes or other capacities Lacks support from others at the same system level (horizontal) Lacks support from organisations at meso or macro level (vertical) 5. Low quality of the network of social support systems: Support from multiple support systems or persons in a network is poorly coordinated Support from different parties in a network is conflicting Reflect on how you would act as prevention professional in each of these cases. 9.2.3 Diagnostic tool to assess the quality of social support Before choosing a network-oriented intervention strategy, it needs to be estimated whether improving the availability and quality of social support systems could contribute to the targeted preventive effect. For this reason, we made network analysis an essential part of a problem analysis at the start of each programme planning process (chapter 11). The diagnostic checklist presented in Box 9.2 offers a tool to assess bottlenecks in existing social networks and supportive relationships. It includes a range of possible barriers to effective social support, and opportunities to strengthen support systems or networks. Preferably, professionals and members of a targeted population or network make together an assessment of the current support situation and options for improvement. In addition, researchers could use the tool as a framework for a social network studies. There may be multiple reasons why someone has a small or no social network (Davison et al., 2000, in: Hogan et al., 2002). Some people have poor social skills and have difficulty building relationships and making friends. Others, for instance single elderly, might have lost their spouse and have in their neighbourhood poor opportunities to develop new 176 social contacts. Their problem might be solved by ‘Befriending’ programmes that nowadays are offered at many places in the world. People with social contacts might also have difficulty asking for support when they are struggling with an emotional problem. They might be shy, introvert or even distrusting because of a negative or traumatic experience with opening up themselves to others in the past. Also having an emotional disorder, such as a depression, anxiety disorder or borderline disorder, may result in cognitive or emotional barriers to develop social supportive relationships (Henderson et al., 1978; Miller, Ingham, & Davidson, 1976; Silberfeld, 1978; Winograd, Cohen, & Chen, 2008). For each of these situations a tailored response is needed to break through these barriers. Another quality indicator of social support is the fit between what is offered and what is needed (Cohen & McKay, 1984). Someone who has recently lost his spouse has a need to share his grief with a trusted person or to get practical support like assistance in the funeral preparations. Someone who just lost his job may benefit more from contacts that may help to find a new job. Uncontrollable life events are best addressed with emotional support, while people who are exposed to controllable events need practical problem solving support in the first place (Cutrona and Russell, 1990). Based on an analysis of the problem, type of needed support, and support opportunities in the social network, we can design a tailored prevention strategy. This should aim in the first place to activate, enhance or expand the preventive capacities of natural social support systems. In the case this turns out to be insufficient or not easily possible, professionals can organise a temporary support system, such as a support group for children of mentally ill parents (for other examples see Box 9.1). 9.2.4 Mapping social networks To assess the need and opportunities to improve social support for a client or target group, it is helpful to first draw a map of the social network of the client. This is possible through different formats. Figures 9.5a and 9.5b offer exemplary illustrations of how social networks of a group at risk can be mapped as a part of a problem analysis (see also chapter 11 on stages of programme planning). They illustrate the example of a prevention professional who makes a social network analysis to explore options for network interventions to prevent the onset of eating disorders in adolescent girls. Such an analysis could also be made by the target group itself, in this case adolescent girls already showing excessive and unhealthy efforts to lose weight. As a first step, the girls are asked to map their current social network, using circles and lines to represent their ties with the people in the network (Figure 9.5c). Next, we ask them to describe and evaluate the quality of these relations. Are they supportive, non-supportive or even destructive in their efforts to abandon deviant dieting behaviours and their urge to lose weight? Do they fail to satisfy emotional needs that might trigger their weight and shape concern? A group of female adolescents that share the same problem could also make such an assessment collectively. As a next step, they discuss how existing ties could be used to support them in their efforts to cope with their problem. How could they activate such support? What kind of support do they need from whom? Finally, as a group or together with a professional they could explore what kind of support systems might be added to their network to make it more supportive. For instance, they could reflect on how friends or the school could support them to counter peer pressure to unhealthy dieting, and to work through the public images of beauty and develop media literacy. 177 To stimulate these discussions professionals could ask them to both map and appraise their actual social network and an ideal support network. Such an analysis might offer a powerful incentive to change, for both themselves and the school environment. One of the tasks of the prevention professional could be to bring in new perspectives on alternative support systems. This example also clarifies, that a social network could both serve as a support system, and as a system reinforcing deviant behaviour or blocking healthy solutions. Preventive interventions aim to serve as catalyst to increase the supportive value of a social network. 9.2.5 Functional analysis of social support To identify the kind of additional support people need, or whether existing support needs improvement, a functional analysis of supportive behaviours is required. Supportive behaviour is functional when the: 1. Nature of the enacted support (type) is congruent with the intended aim of the support (goal) 2. Intended goal fits to the experienced or objective need of the recipient system 3. Offered support actually contributes to a change in a targeted risk factor or capacity, and 4. Intermediate outcomes are found to contribute to problem solution or goal attainment. 178 In short, functional supportive behaviour is about the fit between offered support, need and targeted preventive outcome. So, social support is not just about getting someone to support someone else, but about the fit between offered and needed support, and if the support in the end turns to be effective. A criterion for social support quality is some evidence for its added value. In the next two sub-sections, we present a model to select functional goals for social support and a classification of types of support. 9.2.6 Goals and targets of social support When someone gives support to a friend who is dealing with a serious problem (e.g. a loss, separation, illness, conflict), it mostly concerns first giving emotional support and understanding. The purpose is to offer this friend comfort and to mitigate his feelings of stress or sorrow. In the end, the needed support might also concern other needs of this friend, such as getting a better picture of the problem, finding a good solicitor, accompanying the friend during his visit to the hospital, or helping him prepare a strategy for conflict management. To offer adequate support, the support system needs to assess what the friend needs to be better able to solve his problem. In daily life, this assessment is usually based on intuition, good knowledge of the friend and his situation, or simply by asking the friend what kind of support he needs. In most cases, this will run smoothly without complications. Contributions from prevention professionals and in the end psychotherapists are required when a person is not able to solve a serious emotional problem or risk, and there is no support system available to help or the available support is not sufficient or effective. To assess the needs of the person and to organise the best possible support, the professional requires a frame of reference that helps him understand what the problem is and what support is needed to solve the problem. He needs to understand what risk factors the person is facing, which competence or other protective factors are lacking, and why the present social network is unable to provide the support that is needed. As we have illustrated in Figure 9.6, the integrated stress model that we discussed in chapter 7 offers such a framework. It can be used to identify the needs of the target person or target group and, thus, what the goals should be of the additional support that is needed. Following the factors in the stress model, the goals of social support could be to help the target person: to reduce a stressor or other risk factor to create positive experiences to compensate for the impact of a non-avoidable stressor to get a better picture of the problem, its causes and its consequences to mitigate feelings of stress and crisis to adapt his goals and values to make them fit better to the situation to increase his knowledge, skills, confidence and other capacities (strengths) to find additional social support to prepare the most effective coping response to the situation to support or join the person in performing that response 179 Effective social support requires that the support is well targeted. The stress model provides a tool to assess for what a person needs support, and to make strategic decisions about what the target of the support should be. The model also offers room for choosing the best from alternative strategies to reach the same support goal. Let us take the situation wherein a person asks a female friend: “Tell me what I should do to prevent that my classmates continue to bully me?” The first option is, to advise the best response to a bully straight away. However, she might decide that on the long run it is more empowering for his friend to follow a different support strategy. She might prefer to help her friend (recipient person) in getting a better understanding of how bullying situations arise (perception and analysis). This might be sufficient for her victimised friend to find a good response by herself to this and similar situations in the future. Secondly, she could decide to focus at strengthening the person’s coping skills by suggesting a role-play, or by statements that reinforces the person’s self-esteem and self-confidence, which could help the person to be better able to cope with the situation. Thirdly, she might refer the victim to adequate support from someone else, such as to consult a website for bully victims (e.g. www.bullying.co.uk), to discuss the problem with her teacher, to involve a ‘peer mediator’, or to follow a social skills and assertiveness training. As illustrated, the integrated stress model provides a tool to discover alternative support strategies. This not only guides professionals, but also offers a useful framework for those direct involved, such as the person or group at risk and the direct support systems, and for support systems at meso level (e.g. school, local health centre, online student counselling services). 180 9.2.7 Types of social support: What could support systems offer? After a support system has determined what a recipient person needs and what the support goal should be, the next questions to answer are: What support should I offer to meet this need? How should I offer it? This parallels the items ‘content’ and ‘method’, mentioned in the support framework presented in Figure 9.3. For instance, would it be better to provide information, to give advice, to serve as a role model, or to interfere in the social situation directly? If a support system decides to provide information, what would be the most effective way to do so? One could provide oral information in a supportive talk or give the person, who might be in a crisis, the information through a short brochure or provide a website-address that contains all the needed information. In these last cases, the information might stay better available when the recipient person needs it the most and might have less access to his memory. In addition, cultural sensitivity plays an important role in defining the content and method of an effective support response. This applies especially to situations wherein a support giver and a support recipient have a different cultural background. This is, for instance, the case in supportive relations between immigrant families and schools or health services. Cultural training of the staff, hiring indigenous or immigrant professionals or involving immigrant volunteers could bridge cultural distances and make the support more effective. Box 9.3 offers a list of seven types of support a support system can offer. The literature on social support makes a distinction between person-centred and situationcentred support. Person-centred support aims to affect the emotions, capacities or behaviour of the recipient person directly, and includes four subtypes: cognitive, emotional, appreciative and normative support. Situation-centred support aims to create alterations in the social or physical environment that might help to reduce or solve the problem, and is subdivided in three categories: material support, practical support and social or community action. When a support system or organisation decides to target their action on social risk factors or health-promoting conditions in the social environment, the multilevel framework offers even more alternatives for action. A support system may choose to target such conditions directly (micro level action). This is the case when a parent of a bullied kid directly approaches the parents of the bully to get the bullying behaviour stopped. Alternatively, parents or other support systems might turn themselves to the media, local politicians or school management. Triggered by a suicide of a bully victim, parents might even consider forming a national interest group of parents to pressure the parliament, ministry of education and national school organisations to take action. 9.2.8 Timing of social support Offering effective support to a person, group or organisation is not just a matter of finding the right aim, content and method, but also about good timing. Of course, the general rule is, offer support when the person is most in need for it, not too early when the person might not be motivated yet to make use of it, and not too late when the support is not useful anymore. For making a decision on timing, the issue of sensitivity to change is of special relevance. As Gerald Caplan already stated in his preventive crisis theory (1964), people are more sensitive to change in a period of personal ‘crisis’. In such periods, support might be more effective and change in opinions, attitudes and behaviour can be achieved with less 181 Box 9.3 Types of social support Person-centred support Cognitive support Offer information, advice, and feedback about: - diagnosis, type and severity of a problem, risk level or a prognosis - causes of the problem - possible solutions, coping reactions, preventive behaviours - possibilities for other social support or professional assistance - expected consequences of different solutions - feedback about consequences of actual coping behaviours of a person Emotional support - Show empathy, comprehension, love Listen; give attention, comfort, and encouragement Offer solidarity, physical affection, affiliation, or express displeasure Appreciative support - Show appreciation, affirmation, and trust in a person Offer a compliment or reward for a specific coping behaviour by a person Normative support - Set or express behavioural norms, give behaviour advice; show tolerance; give normative feedback on a specific behaviour Exert pressure through sanctions or using power Modelling, comparison or reference function Create awareness of value systems or ideologies of reference groups Stimulate a person to deviate from suppressing, limiting or harmful social norms Situation-centred support Material support Offer financial support, living space, transport, and other facilities Practical support (also called Instrumental support) - Temporarily assume business, offer nursing, looking after a child Take out for a dinner or film, have fun together Help perform a coping behaviour or a common action Social influence: social action and community action - 182 Reduce social stressors on which you can exert control Seek additional support from other persons in the network Mediate with community leaders, local organisations, interest groups, government Organise a new support or pressure group, or be a person’s advocate investment then in stable periods. Caplan differentiates between two types of crisis, developmental and accidental crises. Developmental crises refer to periods between two developmental stages. They are usually called sensitive periods wherein a child or adolescent is challenged to cope with new developmental tasks. In such a period, he might be more sensitive to influences from his network and preventive support might be more effective. Accidental crises are caused by exposure to a serious life event, such as a loss of a loved one or traumatic event. Developmental crises are more or less predictable, which makes it easier to prepare effective support on time. For instance, parent education can prepare pregnant parents for the changes and new tasks in their life after the birth of the child. At the start of secondary school, when young adolescents become exposed to a world of new experiences and challenges, they might be more open to education about healthy coping strategies, in comparison to halfway their secondary school when their new adolescent lives and networks are more stabilised. Accidental crises can be predictable and unpredictable. When they are predictable, prevention should be focused on timely education and anticipatory guidance to make those at risk well prepared for such stressful events. This applies, for instance, to ambulance nurses, police and fire workers who will be regularly exposed to fatal accidents; to soldiers who are sent to war area’s; to bank or shop personal at high risk for robberies; to workers who are informed about the closure of their factory in six months; or to caregivers of elderly becoming gradually more demented. In sum, the provided theoretical framework helps us to understand the functional and dysfunctional pathways in support networks of those who are facing serious problems or major challenges in their life, starting from the awareness of a need for support to a targeted health effect through the enactment and perception of tailored supportive actions. Such actions might be taken at each of the discussed system levels. 9.3 Strategic options for professional action This introduction to social support systems, social networks and supportive relationships at multiple ecological levels aims to give understanding of how social support works or could work for citizens, patients, communities or organisations. We have discussed what the options are for social support and what their impact is on health and well-being. We wrote this textbook, however, for health and mental health professionals, health promoters, prevention experts and policy makers to inform them about options to improve mental health in the population by preventive interventions and health promotion programmes. This brings us to the question: What can professionals do to improve the availability and quality of support systems for citizens? What are their strategic options for support-enhancing actions? As stated earlier, support-enhancing activities are common in the field of prevention, health promotion and care, but professionals lack an elaborated framework on social support to guide their daily work, to open new opportunities for action, and to make their work more effective. Based on the presented social support framework, in Box 9.4 we describe what options for action exist for professionals who aim to improve social support among citizens and in communities. In this box, we differentiate between actions aimed to improve the accessibility and quality of existing support systems, and actions aimed to create new 183 Box 9.4 Strategic options for professionals using a social support and social network strategy What can professionals do to improve social support? Make social support more accessible Provide information on possibilities for social support and available support systems Improve citizen’s skills and motivation to seek social support Mobilise existing informal support systems to take action (e.g. family, friends, teachers) Establish new support systems (temporary or permanent) Non-professional support (e.g. befriending, self-help groups or organisations, buddy system, community development) Professional support (e.g. child helpline, victim support, interactive websites, consultation hours in a local centre, consultancy agency for local organisations) Mix of professional and non-professional support (e.g. support groups, trained peers, volunteers) Improve quality of existing informal support systems Improve quality of existing support (e.g. fit to needs, content, used methods, timing, intensity through education, consultation, training, evaluation, feedback) Reduce negative impacts of social networks, e.g. by removing emotional barriers for providing support to target group, prejudices, restricting practices Improve informal network qualities, such as internal communication, accessibility, common views, positive attitudes and skills for providing support, mutuality of support Get informal support system supported by other informal support systems, or by support organisations at meso and macro level (network development) Improve existing professional support and support systems Improve their accessibility, create awareness of needs of a target group Train professional skills in supporting the target group, enhance cultural sensitivity Stimulate professionals to adopt an evidence-based prevention programme Improve collaboration between local professionals or organisations (networking) Stimulate local policies, regulations and budgets that facilitate social support support systems. Secondly, we make a distinction between actions to improve informal support systems and to improve professional support systems. In this time of economic crisis, governments heavily cut budgets of expensive specialised health and mental health services and substitute them by less-expensive solutions in primary health care. They propagate the strengthening of self-help, local support networks and a more active role of local professionals in increasing community capacities to cope with health and mental health problems. In turn, this requires us to explore how local physicians, nurses, social workers, local organisations and community leaders can 184 strengthen their own capacities to perform this role. Prevention experts in public health and mental health services could play a crucial role in this. In their roles as consultants, trainers, educators and mental health advocates, the can help local professionals and organisations to increase their capacities to support citizens in coping better with emotional problems. Mental health consultation to local professionals by mental health experts (Caplan, 1963, 1970) is a powerful strategy to increase such capacities. Although this method became less practiced by the highly specialised mental health services during the 1990s due to changing ideologies and financing systems, in light of the current changes in the health and mental health system (‘back to the community’), this method has again become highly relevant and deserves a revival. 9.4 Effectiveness of social support According to the presented framework, the aim of social support is to influence one or more factors in the stress model to facilitate problem solving, goal attainment or preventive behaviour in a target person or target group. For this purpose, different types of social support and social support strategies are available. The ultimate question is, is there evidence showing the effectiveness and added value of support-enhancing interventions by professionals? As we discussed at the start of this chapter, ample evidence exists on the impact of social support and social cohesion on physical health, mental health and wellbeing. This suggests that interventions that improve social support will also lead to better mental health and less mental disease. 9.4.1 Evidence of effectiveness In 2002, Hogan, Linden, and Najarian published a review on the outcomes of various social support interventions in care and prevention. They identified 92 controlled studies, published between 1970 and 2000. The studied interventions use several strategies, such as ‘direct support vs. strengthening capacities to gain support’, ‘group support vs. individual support’, and ‘strengthening professional support vs. lay support’. Of the 92 studies, 39 showed that the effects of the social support interventions were better than the effects of standard care or no care at all. In 12 studies, social support gave better results than other (also successful) treatments, and 22 studies found at least some positive effects of social support interventions. Seventeen studies found no effect and there were two studies in which the participants were even worse off after the intervention. Overall, in 79% of the interventions social support had positive effects. A meta-analysis by Röhrle and Sommer (1997) of controlled outcome studies on 21 network-focused interventions compared their effect sizes (ESs) with those of nointervention control groups or other treatments. Their outcomes revealed a wide variation in effectiveness between network-focused interventions. Several interventions (9) showed relative high effect sizes (>.70), 3 showed moderate ESs (>. 30 to <.70), 7 small ESs (<.30 to >.00), while 4 interventions showed negative outcomes. When compared with the effect of other types of treatment, in average no difference in ESs were found (mean ES =0.09). Comparisons at 3 months follow-up found a mean ES of .32 when compared with no intervention and .11 when compared with other types of interventions. A homogeneous group of seven interventions, providing also follow up tests after 3 months, showed an 185 average effect size of .32, which is comparable with average effect sizes for other samples of prevention programmes. We may conclude first, that network-targeted interventions show still much room for improvement, given their in average still small to moderate effectiveness and the large variation in effectiveness between such practices. The studies also show that networktargeted interventions could be as effective as other type of professional interventions. The presented theoretical framework might help prevention practitioners and experts to design more effective interventions, and guide researchers in designing theory-driven outcome studies. 9.4.2 Effect moderators and effective ingredients In their meta-analysis, Röhrle et al. (1998) also searched for programme characteristics and participant characteristics that moderate programme outcome. Such research might identify the ingredients of the most effective strategies. Due to the still small number of comparable outcome studies, only a few effect moderators were identified. For instance, long-term network interventions (6 to 24 months) were found to be more effective than short-term interventions (< 6 months), which stresses the need for investing in improvements of structural support networks. Interestingly, positive effects were especially found among women. Special attention is given to the study of effective ingredients of peer support interventions. In a qualitative study by Cuijpers (1993), using in-depth interviews, participants in support groups for caretakers of dementia patients attributed the experienced positive effects of the groups to the cognitive, practical, normative and emotional support they received. Other studies mentioned the same active ingredients: being understood, having the same problems, being accepted, comparing yourself with others, being valued, exchanging experiences and getting information and advice. Insights in how social support between peers works can also be found in the group therapeutic literature. In particular, the American group therapist Yalom has done pioneering work on this issue (Yalom, 1975), later followed by Bloch and Crouch (1985; Bloch, Crouch & Reibstein, 1981). They suggest the following classification of active factors: selfunderstanding, learning interpersonal actions (interactions), acceptance (cohesion), selfdisclosure, catharsis, information and advice, universalism, altruism, learning by observation and giving hope. In addition, the work of Haley et al. (1987) and Glosser et al. (1985) shows that most of the above-mentioned factors and processes play a role in informal support groups. 9.5 Toolkit for quality assessment and programme development In this chapter on social support systems, we have presented several frameworks and tools that may help prevention professionals and health promoters to make together with citizens and organisations an assessment of the quality of their support systems and networks. We consider all of them as essential elements of a comprehensive toolkit that could guide professionals in applying a social support approach in prevention and health promotion. 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Journal of Child Psychology and Psychiatry, and Allied Disciplines, 49(9), 933–941. 189 Study questions for this chapter Is there any evidence for the frequently assumed relation between social support and health? What have empirical studies found? What are the basic features of the social ecology model of Bronfenbrenner, and what do you consider as the main contribution of this model to our understanding of social support processes? Social support is an interactive process between people. What are the basic elements of the presented Social Support and Social Network framework? What is the relevance of the distinction between offered and perceived social support? Which bottlenecks can occur in social support processes? When is a supportive behaviour considered to be ‘functional’? What is meant by the goals of social support? Which theoretical model is well suitable to help us understand how social support acts on a person who is in need for such support? What kinds of impact can social support have according to this model? What considerations have been discussed underpinning the importance of good timing in offering social support? The chapter presents a toolkit of instruments that professionals can use to assess the strengths and weaknesses of support systems, social networks and processes of support. What tools are included? Which strategies are available for professionals to improve the functioning of social support systems and supportive networks? What is known about the effectiveness of support groups? What are effective ingredients in support groups, such as peer support groups? What do you consider as your most relevant learning point from this chapter? 190 10 Community approaches for mental health promotion Reasons, Theory, Choices and Principles 10.1 Introduction 192 10.2 The context of prevention: developments in health care and society 193 10.2.1 Developments in Dutch MH-prevention from 1970 193 10.2.2 Scaling up of mental health organisations 195 10.2.3 Impact of new health legislation and economic problems 196 10.3 Communities: definitions, types, features and functions 199 10.3.1 What does ‘community’ mean? 199 10.3.2 Sense of community 199 10.3.3 Community characteristics and their relevance 200 10.3.4 Community functions 201 10.4 Strategies and scenarios for community-oriented prevention 203 10.4.1 Concept of ‘community approach’ and community interventions 203 10.4.2 Alternative community intervention scenarios 203 10.5 Professional roles and competencies 207 10.6 Collaboration and coalition development 208 10.7 Conclusion 211 Literature 212 Study questions for this chapter 213 191 10 Community approaches for mental health promotion Reasons, Theory, Choices and Principles 10.1 Introduction As we have seen in the previous chapters, many theories and interventions in prevention and health promotion are directed at individuals or groups at risk. In this chapter, ‘communities’ are the central unit of analysis and the target of interventions and strategies of change. Interest in community approaches is rapidly increasing over the last decades. It refers to prevention and health promotion programmes targeted at whole neighbourhoods, schools and other types of communities. The community approach is a response to the limitations of micro-level oriented prevention strategies. Such strategies mainly imply personalised, family- or group-based education, training and support methods, or early individual and family treatment to strengthen competencies of those exposed to stressors of life, to stimulate healthy behaviour and to enhance positive development. This personfocused approach is very common but has several disadvantages such as use of labourintensive methods, poor range in the population, leaving social causes of health and mental health unaddressed, and mainly using top-down approaches. A community-approach targets individuals in their social context, is population-oriented, involves social networks and local organisations, and addresses public policies. Such efforts aim to improve health conditions in a community, to utilise existing health promoting capacities in a community and empower such capacities, and to contribute to ‘Competent communities’ that are able to protect and effectively enhance mental health and well-being of its citizens. For more understanding of the context and aims of the community approach, in section 10.2 we discuss interacting developments in prevention, public health, health care and society, which provided the ground for the emergence of a community approach to health and mental health. Linked to the developments in these domains a diversity of motivations can be identified for supporting a community approach. Insight in these motivations is needed to advocate successfully for a community approach in a world where the dominating health system is primarily client- and person-focused. As we will see, different motivations result in different types of community-oriented approaches. They also provide different criteria for evaluating success of community-oriented programmes and policies. In section 10.3 the meaning of the concept of ‘communities’ is further analysed and a differentiation in types and functions of communities is presented. Which community-oriented strategies can be used to promote mental health and to prevent mental disorders is discussed in section 10.4. Some examples of community programmes are discussed partly derived from the developments in our own country. Running successful community interventions requires a range of special professional competencies, for which additional training is required (section 10.5). One of these competencies is the capacity to develop effective collaborative relationships and coalitions between different professionals, groups and organisations in a community (section 10.6). 192 10.2 The context of prevention: developments in health care and society The field of prevention in mental health has gone through several transformations since its emergence during the 1970s. These transformations are related to significant developments in the health system and in the society as a whole. However, how prevention in mental health has developed differs considerably between countries. This applies firstly to the period during which such preventive practices first emerged and to the progress that is made in developing and implementing effective programmes. Secondly, the type of organisations and professionals that initiate and provide mental health promotion and preventive interventions varies significantly between countries. For instance, in the Netherlands and Finland, and to a lesser degree in Belgium, preventive programmes are provided by mental health services, which is not the case in countries such as Germany, France and the United States. In other European countries, such programmes are mainly initiated by sectors outside the mental health system, such as primary health care centres, youth health care, schools, religious organisations and workplaces. We will use the developments in the Netherlands as an illustrative example to explain how prevention in mental health could change over time through several transformations and how developments in health care and society influence the interest in and chances of a community approach, The different ways in which the community approach in mental health is motivated and defined appears to be strongly related to the social changes outside the prevention domain. This does not only apply to the Netherlands. Although community approach is less common and less developed, we discuss the social context of this theoretical approach more extensively than the earlier presented approaches because in our opinion it is crucial for improving mental health conditions in populations. 10.2.1 Developments in Dutch MH-prevention from 1970 During the early 1970s, professionals working in local child- and family mental health and addiction services started to develop the first prevention activities, for instance by offering parenting education, training teachers and giving lectures at schools on alcohol, and by starting support groups for single parents, children of divorce, mourning relatives, and those who are work disabled. In those years, it was still an issue of invention and trial-and-error. There existed no scientific knowledge on prevention, no professional training to acquire prevention expertise, and no national prevention policy. Preventive practices mainly used person-oriented educational methods, group work techniques used in therapeutic group treatment, and self help and support group methods borrowed from community work practices. Preventive practices were incidental, small-scale and short-term in nature. The 1980s were characterised by a transition to a planning-driven and project-based way of working, which means stage-wise working to reach well-defined goals using reasoned intervention strategies within a defined period of time. During this period prevention work gained a structural position in mental health and addiction policies, outpatient mental health and addiction services and related budgeting systems. This resulted in a fast growth of the number of preventive projects and prevention professionals around the country (Van Doorm et al., 1986; Verburg & van Doorm, 1988). Parallel to the increase of these preventive practices criticism was growing: interventions were considered too smallscale and scattered, targeting a too wide range of issues without priorities, absence of 193 quality criteria, poor efficiency, and no insight in outcomes and public impact (Hosman, Verburg & Van Doorm, 1988). During the 1990s, efficiency and effectiveness became priority issues on the prevention agenda. In terms of efficiency, the new policy was to move from running one-time projects to the development of tested ‘model programmes’, which could later be disseminated and implemented at large scale. Such model programmes were considered as high quality, transferrable prevention ‘products’ (product-based and supply-based prevention). This approach was borrowed from industry and the profit sector, where the development and large-scale implementation of standardised, high quality products became an essential factor of economic progress during the 20th century. The main advantages of adopting this commercial approach to the prevention field was its potential for a larger public reach, more efficient use of developmental costs, and more quality control. If larger public range of these products could be achieved, it could in the result in a significant impact on the mental health of the population (public impact). In this period of the 1990s, the first steps were made to explore the actual effects of preventive interventions. Influenced by similar developments in medicine, ‘evidence-based prevention’ became the norm. However, at that time insight in evidence-based prevention effects was still marginal and mainly based on foreign research (Hosman, Price & Bosma, 1988; Bosma & Hosman, 1990). In addition, no insight existed in the fit between the supply of preventive interventions and mental health needs of communities due to a lack of public health orientation and epidemiological knowledge in mental health services. This also applies to the lack of interest in social determinants of mental disorders and poor mental health, notwithstanding the existence of a social movement of preventionists during the 1980s that made a strong plea for a social-oriented prevention and developed innovative social prevention practices in the Netherlands (Nuyten, Nijmeijer & Sterenborg, 1985; Terheijden, 1993; Baars & Kal, 1995) and the US (Joffe & Albee, 1981). These socialoriented ideas and innovative practices did not survive in a mental health system that became more and more dominated by psychiatric ideologies, a-theoretical classification systems (DSM) and by pharmaceutical and cognitive behavioural treatment. The trend of the nineties continued and became even stronger after 2000. The number of science-based and standardised prevention programmes increased significantly, mostly targeted at individuals at risk and using micro-level intervention methods. Programmes were partly developed in our own country and partly adopted and adapted from successful model programmes in other countries. Methods of quality management became widely used in practice (chapter 14). Controlled outcome studies in many countries, including the Netherlands, have proved that mental health promotion and prevention programmes can result in wide range of positive effects among those who participate in such programmes. The same applies to prevention programmes targeting alcohol and drug use. This is without a doubt a positive development. There are also major criticisms. Notwithstanding the underlying dissemination philosophy behind the idea of evidence-based model programmes, we have to conclude that to date their public reach in populations and communities is still very marginal, which also applies to their total public mental health impact. This challenges us to look for innovative strategies and policies that have the potential for mental health effects in whole populations or populations at risk. For instance, wouldn’t it be better to make prevention communityoriented instead of product-oriented. Secondly, the emphasis on ‘evidence-based’ 194 interventions contributed strongly to a selective support for person-oriented interventions, as only this type of interventions fit into the dominating research methodology of randomised controlled trials (RCTs). Research methodology to test the impact of social-oriented interventions was poorly developed and had a low scientific status. All together, these developments formed a major obstacle for investments in community-oriented programmes and addressing social determinants of mental health. This person-centred approach fitted well in the strongly individualised psychiatric culture that started to dominate in the mental health services from the 1990s on caused by the central role of the DSM-classification, not only within clinical assessment and treatment but also in the new financing systems for mental health care including preventive services. In this culture, there was no room any more for the social-oriented prevention of the 1970s and 1980s. 10.2.2 Scaling up of mental health organisations From the early 1980s, the organisational system of mental health services in the Netherlands has undergone major changes that had a deep impact on their preventive activities. Around 1980 the scattered world of different mental health services became nationally integrated in one integrated system of Outpatient Mental Health Care (RIAGGs) for each health district, of which prevention became for the first time an official branch. This was inspired by the emergence of Community Mental Health Centres in the US, but unique in Europe. The basic philosophy of this new system was to provide the full spectrum of outpatient curative and preventive services for children and adults in a defined health district of around 400.000 inhabitants. The original RIAGGs had a public mental health mission. Their mission was to close the gap between population and mental health care, to tailor their services to the specific mental health needs in communities and cities within their district, and to strengthen mental health capacities of primary health care and local organisations through consultation and to develop local preventive activities. At that time, outpatient services were organised separately from the large mental hospitals. After 1990, however, a process of organisational upscaling started. First, in most districts outpatient service organisations and mental hospitals merged into large districtbased mental health organisations. Next, large mental health organisations from different districts began to merge, resulting into huge organisations, serving populations of between 1 to 2.5 million inhabitants. This upscaling in combination with a growing focus on specialised individual treatment in mental health care, resulted in a growing gap between what happens in the treatment room and the community environment and the social networks of the client. These became separated worlds. These developments created a huge barrier for mental health services to relate with local social networks, to support primary health care and community organisations to increase their capacities for early mental health treatment and prevention. In this context, it is not surprising that for solving their mental health problems citizens became increasingly dependent on treatment in specialised mental health services. Primary health care became primarily a referring system to these specialised services, besides their role of prescribing antidepressants and other psychopharmaceutic drugs. Between the 1970s and the 2010s, the number of clients in specialised mental health services increased from around 100.000 to over 1.000.000. Although this increased accessibility can be viewed as a success in reducing the number of untreated cases, it also raises major questions about the capacity of citizens, social networks, communities and local primary health care to deal with emotional, 195 behavioural and social problems. This is exactly what Iwan Illich (1974) warned against when he wrote about social iatrogenesis (see the beginning of chapter 1). 10.2.3 Impact of new health legislation and economic problems During the 1990s and 2000s, several new health and social Laws were implemented that had a deep impact on the practice of prevention. The three laws are the Public Health Act, the Social Support Act (Wet Maatschappelijke Ondersteuning), and the Care Insurance Act (Zorgverzekeringswet). The different laws represent several changes in national health policies and ideologies. The first change can be labelled as decentralisation, which refers to a nationwide transition of responsibilities for health, health policies and health care systems from the national government to the local government. The idea behind this is that firstly local governments are better able to attune policies and services to the needs of the local population. Secondly, by moving the emphasis to local health policies and primary health care, the huge national costs of the health system are expected to decrease. For instance, The Social Support Act arranges that municipalities are responsible for policies, actions and services to citizens in social need or at risk for poor mental health and well-being. However, their budgets were significantly smaller than the available budgets under the AWBZ. This Law replaced the original Special Health Costs Act (AWBZ) from which budgets were provided to Regional Mental Health Services to, among other things, run Prevention Departments, which could themselves decide on their targets and programmes. Under the new Social Support Act, all kind of local organisations including prevention departments could apply for local grants to finance a proposed prevention project. The second change was related with the introduction of the new Care Insurance Act. This law arranged that health insurance companies have the responsibility for financing health care and mental health care. From then on mental health care was only financed based on proof of the presence of an individual mental disorder, defined by the DSM-IV. In addition, it arranged which services would be paid. Insured mental health services became restricted to individual treatment, only marginally person-oriented preventive interventions were insured for cases of subclinical disorders, which equals the definition of indicated prevention (high level of psychiatric symptoms preceding the onset of a disorder). These developments implied that budgets for preventive services were cut significantly in practice, that mental health services (the cradle of Dutch mental health prevention) only got insurance money for individualised indicated prevention, and not any more for primary prevention programmes that are addressing populations at risk and community interventions. Opportunities for these purposes needed to be found in limited municipal budgets. Through this last development, an impulse emerged to integrate mental health promotion, universal and selective prevention in local public health and social programmes that are more focused at communities. In addition, three other developments had and still have a major impact on prevention in the mental health domain. First mental health care became a fast growing sector in the health system. Then a fast increasing number of people applied for treatment by specialised mental health services. This number grew to 1 million clients in a year coming from a population of 16 million inhabitants (Netherlands). This resulted in a huge increase of national mental health care costs to a level that became unacceptable for government and parliament. As a 196 result, mental health care budgets were cut by over 30%. In response, mental health services first skipped as much as possible their investments in preventive services, which were not considered a core business of mental health services anymore. This coincided with the economic recession resulting in additional pressure to cut the costs of the mental health system. These developments triggered a political discussion about the role of the state and fed neo-liberal criticism on the too costly ‘Nanny State’. Liberal ideologies emphasised that responsibilities for health and well-being should be brought back to the citizens and their informal networks. The government should interfere less in private lives, should appeal on local communities and citizens to organise solutions and support themselves. In addition, the role of primary health care should be strengthened, being the cheaper part of the health system. This would save huge amounts of tax money. This ideology became more and more the ruling one and was used as a justification for cuts in health system budgets in a worsening economic climate due to the economic recession. So, in this case overburdened mental health care, a libertarian ideology and economic arguments resulted in a renewed interest in the role of community self-care. The core argument here is how could we keep the health care system affordable and the dominating response is by cutting services, by creating thresholds in the use of specialised and expensive care and calling upon citizens’ own responsibilities and the role of self-care. For reasons of clarity, we stress that these motivations for an emphasis on communities is different from interests in community approaches coming from those who are linked to public health, health promotion and social and humanitarian ideologies. Their interest in community policies and programmes is targeted at explicit investments in empowering communities, supporting citizen groups and local organisations to improve their impact of social and environmental conditions of their health, mental health and well-being. Addressing social determinants of health is a traditional target of public health and health promotion. We see an upcoming revival of interest in social determinants, social policies and social programmes, as is evidenced by recent appeals by the WHO to invest in them and by the recent insight in the growing gap in our societies between rich and poor, with a huge evidence-based impact on health inequalities and significant differences in life expectancy. In sum, the interest in community approaches is growing again, but the motivations for this interest are very diverse. Different motivations lead to different solutions and to different community approaches, also in the domain of mental health. Box 10.1 offers some first examples of community-oriented programmes in the field of mental health and addiction. Need for more conceptual and methodological clarification Although there is some experience with community-approaches in mental health promotion, much is still unclear about what this approach contains and how an effective communitybased programme should be designed. What does the term ‘community’ mean? What is the theoretical base of an effective community programme? What are the core principles that make a community-oriented programme effective? What kind of professional expertise is needed for running such programmes? Community interventions are not an issue of top down implementing standardised evidence-based programmes, but require working together with local organisations and citizen groups on solving health, mental health or social issues about which they are concerned, using both science-based and practice-based knowledge, 197 including learning experiences from involved citizens. In this chapter, we will further discuss these issues. Box 10.1 Examples of Dutch community-based approaches Local Preventive Consulting hours (Prevention Division of Parnassia (GGZ) in The Hague) Preventive consulting hours give citizens easy access to preventive information and the option to ask advice about mental health problems, alcohol or drug use and gambling. These office hours are implemented in particular in health centres in the community, but also at mental health care locations. One can ask questions by phone, via email, or through a personal interview. It usually is a one-time contact, but sometimes more contacts are offered. The consulting hours are the front door to prevention. Information and advice is given on appropriate preventive training and courses. If necessary, visitors are referred to a mental health care service. Systemic approach of alcohol problems (Alcohol Prevention Foundation, STAP) How can alcohol problems be addressed at municipal level? American evaluation studies indicate that there is more chance of success at the local level if a system-oriented approach is used. The basic assumption is that to reduce alcohol consumption you can best begin by affecting the alcohol friendly environment of young people. Young people make their own choices whether or not to drink, but it's their environment that facilitates drinking and hardly puts a brake on alcohol consumption. Wherever young people spend their free time alcohol is available: at home, with friends, in the shack, in the sport canteen, in the disco, on holiday, at school parties. On TV, on the internet and when going out, young people are faced with canny promotion campaigns. Young people know little specific 'alcohol-free' moments apart from the workplace and traffic. Young people under 18 have easy access to alcohol: parents or friends offer it and who wants to buy it for himself often succeeds because not all providers pay attention to the age limits. STEP calls for municipalities to make the best possible use of the beverage and catering regulations to combat alcohol consumption by young people. In addition, municipalities can conduct a restrictive permits and licensing policy, in cooperation with the food and consumer product safety authorities, and intensify enforcement, set up a drinking shed policy and research the situation of groups causing nuisance. “Soup with Love” (Context, Prevention Division of the Parnassia Groep in Rotterdam) Soup with Love is a community-oriented mental health prevention project aiming to prevent or reduce mental health problems (particularly depression) among immigrant women. In the area open committees are set up consisting of neighbourhood service providers and immigrant women belonging to the target group. Also living room meetings are organised, by and for the women, where they discuss their own proposed themes. A number of women are trained to become recreational sports leaders and they coach their fellow female neighbours during exercising activities. Organising workgroups and living room meetings in the community, in the homes of the target group, is fun and sensible, but difficult and complicated. Complicated because recognising depression in the culture of the target group is difficult. It is an alternative to the traditional approach of "counselling and taking pills". The intervention uses the "empowerment"-principle by training people from the target group to activate other citizens. 198 10.3 Communities: definitions, types, features and functions 10.3.1 What does ‘community’ mean? The concept of community is defined in very different ways. Surprisingly, already in the middle of the 20th century scientific literature contained 94 different definitions of this concept (Wikipedia). Definitions of community usually refer to a group of people that share some of the following features: living in the same geographical area, having regular social contacts, common interests and concerns, shared norms and values, are emotionally connected and giving support to each other, using the same public or private services, and are governed by the same local administration. People that live in the same neighbourhood, village or town (geographical community) is the most common association. ‘Community’ also refers to people connected to each other within a specific organisation, such as a school, company or local association of elderly (organisational community). The children in a school or the employees of a company might come from different neighbourhoods or cities. In another sense, people may feel connected to each other through common identity or concern, which is not linked to a local geographical area or organisation (communities of interest). This could apply to a religious community, ethnic community (e.g. “the Moroccan community”), gay community, national association of family members of mental patients, or a Facebook community. Finally, there are also professional communities that may be an important target of mental health promotion actions. We could target our preventive efforts, for instance, at a national association of district nurses to advocate for more attention for preventing depression in pregnant women and young mothers during their home visits and consultation hours in primary health care centres. 10.3.2 Sense of community In several of the described cases the label ‘community’ is used when people share specific objective features, such as living in the same neighbourhood, belonging to the same secondary school, or being all members of a professional organisation. Communities defined by such objective indicators could be relevant for us to get connected with target populations or for other reasons that we will discuss later. These objective definitions should be distinguished from the use of community in a subjective sense, as is the case in the concept of ‘sense of community’ that was introduced in 1974 by Seymour Sarason, one of the first leaders of the Community Psychology Movement. McMillan & Chavis (1986) define sense of community as "a feeling that members have of belonging, a feeling that members matter to one another and to the group, and a shared faith that members' needs will be met through their commitment to be together". The relevance of this concept for mental health promotion and prevention is its link with social support and social networks (chapter 9) and with the concept of ‘social cohesion’, which represents a core target in current national and European public health and social policies. Such policies are aimed at strengthening the role of communities and its citizens to protect and promote their health and social well-being, and to become less dependent on governmental actions and expensive professional care. Social cohesion is defined as “the willingness of members of a society to cooperate with each other in order to survive and prosper” (Stanley, 2003). These concepts have not only a strategic value for mental health promotion as referring to conditions of community readiness to take action for the sake of health and well-being, but also because they represent important social determinants of mental health. 199 10.3.3 Community characteristics and their relevance To design effective community interventions prevention and health promotion professionals need to have thorough knowledge of the specific profile of a community and its characteristics. In box 10.2, we have listed the most relevant ones. Not all of them are part of the known community definitions. They include, for instance, also poverty level, safety level, unemployment rate, social cohesion, and availability of social services. The same types of communities can show large differences on certain variables. For instance, age distribution, level of social cohesion, poverty level and sense of community could vary significantly between city neighbourhoods. These characteristics could be used to describe the profile of a community and inform us about mental health needs and strategic options for mental health promotion. They can be used by prevention and health promotion professionals during the different phases of projects and programme planning. Based on the community profile of needs and strengths a combination of evidence-based programmes could be selected that fit the needs, strengths and culture of that community. During the phase of community needs assessment such features can first be used to select neighbourhoods or other communities that should be prioritised in health and prevention policies because of their high needs and risks. Secondly, they can be used to identify specific risks and strengths within a targeted community. For instance, neighbourhood features such as social cohesion, poverty, safety and migration have found to be social determinants of mental health. For this reason, some of them could be selected as target of intervention or social policy. Professionals or other stakeholders could advocate for public measures to compensate poverty, to reduce community violence or to increase facilities for people to meet each other. They themselves could also provide support to Box 10.2 Characteristics of citizens and local organisations to help them to communities increase social cohesion, to cope with violence in public places, or to increase mental and Social contact, networks, cohesion social capital that is needed for successful job Communication channels finding. Social structure and organisation As illustration, we refer first to the JOBS Social service level Cultural norms and values programme, a prevention programme designed Common interests and concerns by the University of Michigan and implemented Shared history or experiences in the US, Finland, the Netherlands and several Social identity other countries (Vuori & Price, 2005). By Geographical boundaries increasing social skills, job finding skills and External dependency social support among the unemployed, the Population profile JOBS programme was found not only to reduce Safety and violence unemployment but also to prevent the onset of Work and unemployment depression. In the case of a community with low Income and poverty level social cohesion and many elderly people, a Migration and ethnic composition Green space local mental health promotion project could Sport and recreational facilities advocate for physical opportunities to meet, Communication channels organise training on how to make friends (befriending programmes), enhance the use of social media and stimulate the development of 200 social networks. Such projects can increase the quality of life and reduce depression and suicide among the elderly. In addition, knowledge on the strengths of a community is essential for effective prevention and health promotion. It offers insight in what kind of appeals can be made on a community to use their own opportunities to deal successfully with local health and social problems. For instance, in a neighbourhood with many young families, experienced mothers could be invited to join a voluntary organisation ‘Mothers for Mothers’. In collaboration with district nurses and with some additional training, they could offer home visits to pregnant women and young mothers at risk. Such a support programme run by local mothers could contribute to more parental competence and less risk, maternal depression and better mother-child attachment. Helping communities to organise and utilise their strengths is a core feature of what is called a social empowerment strategy in health promotion. It also strengthens social cohesion in a community. Finally, such a strategy gives citizens a feeling of ownership over mental health promotion programmes, which both strengthens positive self-esteem in support mothers and increases the likelihood of sustainability of the programme. Finally, good knowledge of a community profile also offers strategic advantages, such as assessing community readiness for involvement in a mental health promotion programme, insight in potential stakeholders who can become involved to make a community programme successful, knowledge about local communication channels that could be used, and insight in local cultural values and customs that should be respected in new programmes. 10.3.4 Community functions Like knowledge of community characteristics, also insight in the functions communities have for citizens is of great value for building effective community-based programmes. Some of these functions were already mentioned in the preceding sections, such as offering opportunities to meet other people, social support, feeling of belongingness and the provision of services. In addition, communities exert also many other functions that are relevant to the mental health of citizens. Prevention professionals who use communityfocused strategies need to have a good understanding of these functions and should use this knowledge in their analysis of problems and development of intervention strategies. For instance, communities are formed by people to fulfil basic human needs, such as the need for social contact, the need for a safe environment and the need for care in the case of illness. Local governments and community organisations have a role in helping citizens to fulfil these needs. Communities, however, do not always function positively and effectively. Unsafe or disorganised communities can also function as a source of stress or as a barrier to the development of supportive social networks. Without aiming to be comprehensive, we have sketched in Box 10.3 a range of functions that communities exert and to which mental health promoting professionals could respond. 201 Box 10.3 202 Functions of communities for quality of life, health & well-being Communities are an important source for protecting and improving the health and wellbeing of citizens through, for instance, supportive social networks, social control, community planning and development, community organisations, local working groups, city and community councils, and collective approaches of local problems and health conditions by social and public health policies. Communities can also function as important sources of stress for citizens, for instance, through high levels of poverty, poor housing, discrimination, low social cohesion, criminality, street violence and lack of accessible social and health services. Through local organisations, local policies, elections, lobbying and community actions, communities can influence social risk factors of mental health, e.g. improving social cohesion, safety, opportunities for education and work. Relevant organisations are present in different public and private sectors, such as schools, work, sport, housing, health and justice. Communities have their own communication channels that influence the knowledge, attitudes, norms and behaviours of citizens. These can include local radio and TV, local newspapers, social media and internet, community meetings and contacts within local organisations. These channels can be used to reach citizens with messages about health, mental health and opportunities to participate in mental health promotion and prevention programmes. Communities have specific cultural values and norms, which health promoters and prevention professionals should take into account when they develop mental health promotion and preventive interventions and define their objectives. A successful and sustainable implementation of a prevention or health promotion programme in a community can only be expected when it is supported by the local community and local organisations. Communities provide social instruments and opportunities that citizens need to reach their goals in life and to deal with stressful circumstances. These social instruments include, for instance, schools, religious communities, health services, community organisations, volunteers, social networks, local rituals, social benefit systems Communities represent for municipalities important units to make decisions about the distribution of budgets for prevention, health promotion and social projects. Relationships between different types of problems become visible especially within the context of local communities. Some communities show an accumulation of multiple problems that can best be approached by an integral and coherent local prevention policy with involvement of a coalition of local organisations. 10.4 Strategies and scenarios for community-oriented prevention 10.4.1 Concept of ‘community approach’ and community interventions There are different views on what a community approach means. A first division is based on two kinds of choices. Do we aim to work community-centred, (a) primarily to attune externally provided preventive services better to the needs and culture of the ‘local market’, (b) to improve the accessibility and reach of available prevention programmes to citizens by offering them through local health centres and within the communities people live in (community-based work) or (3) to have the opportunity to influence social risk and protective factors in neighbourhoods, schools and workplaces and to create mental health promoting communities (community development). The second choice refers to the difference between working ‘top down’ and ‘bottom up’. Top down means that prevention policies and programmes are primarily based on professional and scientific knowledge and on policies that have been decided upon by professional organisations or by national or local politics. These policies can be based on information from epidemiological research, monitoring systems and needs assessment studies in local populations (community-targeted). Bottom up means that prevention and health promotion are developed in close collaboration with citizens and local organisations. They are challenged and supported to make their own assessments of local needs, strengths and risks, to choose their own priorities, to develop or select their own health promotion and preventive programmes and activities, and to evaluate the outcomes and learn from it themselves. In sum, we can distinguish between four community approaches: community-targeted community- and market oriented community-based working within the community (nearby) community-driven working with the community (= bottom up) community development working at improving community conditions (= bottom up) 10.4.2 Alternative community intervention scenarios Based on these dimensions and subdivisions we describe six different scenarios for community-centred work. They are currently used in our country to explore options for community work in prevention and to make choices. Scenario model 1 (local consulting hours): Working in the community to increase the accessibility of existing prevention programmes and services (products). During local consulting hours, mental coaching can be offered and citizens in need can be referred to intervention programmes. Prevention professionals and health promotors work closely together with primary health care professionals and stimulate that they also refer to available prevention programmes. This scenario is mainly aimed at improving the reach of existing programmes that mostly are offered by organisations outside the community to whole city or district populations. Much attention is paid to marketing, being visible and accessible. 203 Scenario model 2 (integrated in primary health care): Prevention professionals work as part of primary health care teams or community centres. The aim is first to increase the accessibility of preventive services (like in scenario 1), but also to integrate such services in primary health care by collaboration with other professionals and, secondly, to increase the preventive capacities of other primary health care professionals through case-centred or professional-centred consultation, educational methods and joint team meetings. Scenario model 3 (community-oriented project): Responding to signals from local organisations or by using other methods of needs assessment a specific prevention programme is developed or selected and offered to the community. This may be a school project on bullying prevention, a parenting education programme, or a project for elderly on befriending and preventing depression. The prevention professional acts as project leader. The professional can be working from an organisation located outside the community. Scenario model 4 (public health planning): Using epidemiologic research, monitoring systems, interviews with community leaders and local organisations all health and mental health needs are assessed. This can be done, for instance, by a district public health or mental health centre. Based on the outcomes an integral health promotion plan is designed for that community and a package of programmes is proposed by the Centre that is tailored to the assessed needs of the community. Next negotiations start with local organisations and community leaders to get the programme in the package implemented. Some related problems could be addressed by specific clusters of related interventions. Scenario model 5 (Communities-that-Care): This model is described extensively in box 10.4, overlaps with scenario model 4 with one crucial difference. CtC offers communities a standardised and science-based framework for community work on youth problems. From the start of the assessment process, local organisations and citizens are given an active role in defining their own profile of needs, making their own selection of programmes tailored to their needs, and taking responsibility for the implementation and evaluation of outcomes. The CtC model applies a standardised set of risk and protective factors for needs assessment and uses prevention programmes and interventions that are nationally recognised and evidence-based. CtC uses a standardised planning model combining a top-down and a bottom-up approach. A professional acts as project leader and is supported by a multidisciplinary local prevention team. Scenario model 6 (community empowerment model): Citizens, local organisations, local professionals and community leaders are stimulated and supported to deliver as a coalition their own needs assessment, making use of questionnaires, social media, panel groups, working committees and community meetings. They are not only stimulated to make a profile of their needs but also of their strengths, which they can use to deal with local problems. Identified problems in the community may also include social conditions considered a threat to the health and well-being of citizens in the community. This community analysis could also include making an inventory of bottom-up ideas about possible solutions and actions. 204 Box 10.4 Communities that Care Alcohol and drug use, aggressive behaviour, depression, school drop-out, youth delinquency and teenage pregnancy are common youth problems in many countries. In response, the last three decades many evidence-based intervention programs, especially school-based programs have been developed en implemented. Many of these programs are single programs that address one specific problem (e.g. bullying or depression) or use one specific method (e.g. a classroom approach or a range of course meetings). Communities-that-Care (CtC), however, represent a more comprehensive response to these problems that uses a community approach (Hawkins & Catalano, 2002). It was first introduced in the US during the 1990s and is to date adopted by many countries around the world, including several European countries and Australia. In our country it has been implemented in more than 20 municipalities (Steketee et al., 2006). Communities that Care is not a prevention program in the traditional sense, but could best be characterised as a theory-based, integral and organisational prevention approach to local youth problems. It aims to develop safe and viable neighbourhoods, where children and youngsters can feel appreciated and are stimulated to develop and use their capacities. Ultimately it is expected that different types of youth problems, especially externalising problems (as substance use, youth delinquency and school drop-out) can be reduced and prevented. The essential features of CtC are: 1. A community approach of youth problems: these problems are analysed across whole neighbourhoods, local citizens and organisations are actually involved in making this analysis, choosing specific intervention programs, helping to implement them and evaluating results. 2. Problem analysis and selection of interventions are science-based. CtC targets a cluster of related problems and 19 common risk factors and 14 protective factors that are anchored in 4 domains (family, individual children/youngsters, schools, community). By way of local research problems and factors are identified that are most relevant for that community. They are described in a community profile from which priorities are chosen. 3. Only evidence-based prevention programs are used. Based on the selected priorities, community representatives choose the best fitting programs from a pool of programs that have proven to be effective in communities or schools elsewhere. This pool is accessible through a national database in which only effective programs are included that meet high quality standards. For the Netherlands: www.nji.nl. 4. CtC works with a standardised implementation process of 3 years: (a) preparation period, (b) introduction of CtC and getting community support, (c) making a community profile of problems, risk factors and protective factors, and already ongoing activities (d) developing a CtC prevention plan, and (e) implementation of the plan and outcome evaluation. 5. Outcome research: Evaluation studies are stimulated in the CtC communities through regular monitoring of problem behaviour, risk and protective factors, participation in CtC interventions using standardised indicators. CtC is an example of a smart combination of a ‘top down’ and ‘bottom up’ strategy in which citizens, local organisations, policymakers, prevention teams and scientists work closely together. 205 Box 10.4 continued Evaluation and effects of CtC The CtC strategy seems implementable and contributes to community involvement and more collaboration on prevention between multiple organisations and public sectors. It improves the fit between local needs and provided prevention programs, and also the number and quality of the provided programs in a community (Steketee et al., 2006) Training of local professionals, community leaders and the local prevention team results in significant improvements of their attitudes and relevant knowledge, and in better internally and externally functioning of the local CtC coalition (Feinberg et al., 2002). The experienced effectiveness of CtC is related with the quality of functioning of the local CtC coalition and the level of ‘community readiness’ (problem awareness, already present prevention activities, knowledge about prevention options, investment by local organisations, leadership and available resources for prevention (Feinberg et al., 2004). It takes 3 to 5 years to get evidence of community effects at the level of risk and protective factors, and over 5 years to show community effects in terms of reduced alcohol and drug use and youth delinquency. In comparison to control communities, in CtC communities a reduction in risk factors and less early delinquent behaviour was found (Hawkins et al., 2008). Based on Feinberg et al., 2002; Hawkins et al., 2008; NIZW, 2000; and “Opgroeien in veilige wijken / Growing up in safe communities” (Steketee et al., 2006). Based on the outcomes an action plan is made. Next, projects, activities or proposals for measures are developed by the local participants. These actions can also aim to improve community conditions (e.g. more safety, more opportunities for jobs or voluntary work, support systems, and more resources for prevention activities). After community approval, participants play an active role in the implementation of these activities to actually improve their community. A health promotor or prevention professional could act here as a supportive advocate, as an expert consultant or as a facilitator of the process. Core principle in this model is the empowerment of a community to create themselves a health promoting living environment. Together these six models compose more or less a dimension from low intensity to a high intensity community approach, and from working top down to bottom-up. The Community Empowerment Model is the most profound ‘bottom-up’ scenario. 206 10.5 Professional roles and competencies In community practice, many different disciplines are involved such as general practitioners, public health nurses, paediatricians, social workers, psychologists, educationists, health promoters who work in primary health care, schools, occupational health, local social or mental health services, hospitals or services for elderly, district public health centres or community organisations. In community practice, they fulfil different roles, which are partly traditionally defined by their discipline. In the currently changing health settings and community practices, professionals with the same discipline, for instance a psychologist, can choose between divergent professional roles and tasks. These are linked with the different scenarios for community work that we sketched in the preceding section. In their community practice, they could do client-centred, professional-centred, organisation-centred or programme-centred work. In Box 10.5, we describe nine role profiles. For simplicity here we use only the term ’prevention’, with the intention also to include mental health promotion. Professionals could focus at one profile or chosen for a combination. Box 10.5 Possible professional roles and tasks in community prevention Role, function, task Description Client-centred mental health professional or consultant Early detection and short-term psychological treatment in primary health care; individual mental health consultancy and coaching. (indicated or secondary prevention) Client-centred and groupcentred educator and trainer Providing preventive interventions and mental health promotion activities directly to citizens or groups at risk (universal, selective and indicated prevention) Mental health or prevention advocate Advocates for more attention and investment in mental health promotion and prevention by primary health care workers, local organisations, policymakers, schools, companies and citizen groups. Uses lobbying, media, reports, agenda setting techniques Organisation- or programme-centred consultant or trainer Offers consultancy, education and training to local organisations, professionals, policymakers, companies, managers, community leaders to increase their capacities in mental health and prevention Programme or project manager (a) Initiating, developing, adapting and improving new prevention programmes or projects (b) Managing and co-ordinating local projects and programme implementation Network or coalition developer or manager Developing local collaboration, networks and coalitions of local organisations and stakeholders to address collectively a local health or social problem through a common integral policy, common projects or actions, co-ordination of services, or mutual support. 207 Community developer Working with local organisations and citizen groups at improving community and social conditions for health, mental health and wellbeing of the community population. Emphasis on bottom-up and empowerment strategies, and increasing their power to influence local health and social policies. Practice-oriented researcher Needs assessment: epidemiological, indicator and record studies; individual and group interviews, observational studies and literature research to identify local problems, prevalence, risk factors and strengths, groups at risk, social networks, activities, service use. Evaluation and monitoring studies to assess process, quality and reach of interventions and activities, community satisfaction, intervention outcomes, public impact, and economic evaluation. Fundraiser In combination with other roles (e.g. advocate, project manager, network manager), writing grant applications; negotiating with local governments, funds, health insurers, companies or other stakeholders about financial or technical support. These different roles each require different capacities. For instance, to be a good mental coach to citizens in need or a provider of preventive group courses for citizens at risk for depression requires different knowledge and skills in comparison to the capacities that a coalition developer, a programme manager or researcher needs. In the end, to develop a competent community each of these roles need to be covered. Some professionals may combine multiple roles, mostly they are distributed among different professionals and organisations. This underscores the importance of effective collaborative networks between local organisations and other stakeholders, and the need for co-ordination and shared governance. 10.6 Collaboration and coalition development To be successful, community-oriented work requires effective collaboration between relevant local parties. We have stressed this already in chapter 3, section 3.4.5 where we described the field of mental health promotion and prevention as a social arena with different stakeholders each with their own interest. A challenge to professionals is to find creative and effective ways to relate these interests and to bring stakeholders together in common multibenefit policies and actions. Over the previous chapters, it has become evident that for reaching a significant mental health impact in target populations and communities many tasks need to be performed that require a wide variety of capacities. Specific capacities are needed for each of the phases of programme development and planning, capacities from different disciplines that together are able to influence various types of mental health determinants, and access opportunities to different population segments, settings and media, different types of intervention methodologies and different managerial capacities. Even when individual professionals each 208 provide high quality preventive work in their daily practice, we need the investment of many complementary capacities from different professionals and organisations to reach targeted mental health goals in local populations. This again stresses the need for effective interdisciplinary and interorganisational collaboration and co-ordination. Successes in public health are always the result of ‘collective action’. Methods of collaboration in prevention can vary widely in intensity and degree of organisation. The list of examples below, illustrate this: 1. Periodically exchanging information between organisations to improve tuning of their services and divisions of tasks, and continuity of care for citizens. This could also apply to offered preventive services by different organisations. 2. Making agreements on improved collaboration between health organisations and other service providers about the quality of their preventive services and collaboration between professionals who serve similar clients or groups. 3. Development and implementation of a common prevention programme by multiple organisations. This could apply for instance to improving social-emotional learning in schools, or improving social contacts and networks between elderly and reducing loneliness and depression. 4. Structural collaboration between organisations in providing primary health care to citizens, youth care or services to reduce substance abuse. 5. Development of a common prevention policy by multiple organisations, for instance in a community at high risk. This also includes managerial co-ordination of activities and programmes by different organisations. Communities that Care offers a framework for such a communal approach (Box 10.4). Another example is a common agreement on collective action to reduce depression in a community or city. 6. Integrating preventive services of different organisations in a new joint organisation, collectively owned by the delivering organisations. For instance, the founding of a safe house for women and children who are exposed to severe domestic violence (e.g. www.veiligheidshuizen.nl ). Experience has learned that such collaborative relations are not always successful. Effective collaboration and running effective coalitions is a challenge by itself and requires specific skills. Studies on large numbers of collaborative projects (DHHS, 2002) and also our own experience of over forty years of involvement in prevention and health promotion practice have resulted in a range of insights in features and conditions of effective collaboration. They can be used as guidelines for collaboration in the future. We have summarised them in Box 10.6. 209 Box 10.6 Features of effective and sustainable collaboration and coalitions in neighbourhoods, communities and municipalities Structural conditions for successful coalitions All crucial ‘stakeholders’ participate Sufficient partners participate to create a ‘critical mass’ to influence local public or private policies and decisions and to generate changes in social determinants of mental health. Collaboration at multiple levels: both at administrative and policy level (e.g. Boards, CEOs, managers, local government), and at the level of practice and implementation (e.g. practitioners, citizens) Visibility and recognition of a coalition or collaborative project in the community, for instance, through public meetings, media attention and representation in local committees and networks. Relation between partners Mutual respect, understanding and trust Recognition of the added value of collaboration Collaboration should have benefits for all partners (Win-Win), and partners are willing to take into account interests of other partners. Optimal use of ‘strengths’ of each partner (e.g. specific expertise, influence, contacts) and effective concentration of these strengths in an common integral approach Goals and outcomes Common vision, passion and targets and these are made explicit Goals and objectives are well-defined and feasible within the available time span Goals and objectives could be diverse as long as they are functionally related, different partners might have primary interest in different parts of this goal system (see goal trees) Achieving visible results of collaboration and providing rewards and recognition Process Open and regular communication Clarity and agreement on the division of roles and tasks within the collaborative network High quality of leadership in combination with Flexibility: response to new and unexpected developments and innovations Willingness to reach compromises Capacity building Training, education and consultation for participants when needed to perform new tasks or actions resulting from the collaboration. These could be joint training activities or forms of capacity building that partners offer each other based on their specific expertise Resources Sufficient financial and personnel resources for co-ordination, support, joint activities Involve partners who have resources Safeguard continuity in resources to prevent premature endings of successful activities Recruit external community support from community leaders, local organisations, media 210 10.7 Conclusion This chapter on community approaches has discussed a rather new and timely development in prevention. Community approaches are currently in a process of development worldwide. Developments in fields such as environmental protection, citizen movements, war on poverty and the stream of social innovation projects around the world (see for instance Stanford Social Innovation Review) offer a wide range of learning experiences, models and guidelines for successful community approaches. Prevention in mental health has been for too long a bit isolated field restricted to the health domain and isolated intervention programmes. Organising prevention using a community approach offers new opportunities to reach more citizens, to address a wider range of risk and protective factors and to generate much more public impact. Mental health promotion and prevention not only contribute to better mental health and well-being, but also to a wide range of other social outcomes. Communities are an excellent setting to make this broad spectrum of outcomes visible. This discussion about community approaches has clearly showed that improving public mental health not only requires prevention professionals and interventions that each show high quality and evidence-based outcomes. It has also made evident that such impact requires working near and with citizens, empowering citizens and local organisations to increase their capacities to get more control over conditions that influence their life and emotional well-being. In addition, the chapter illustrates that achieving significant improvements in mental health of local populations requires a combined effort of multiple professionals and organisations using a combination of science-based and practice based interventions that are effective. The next four chapters offer additional insight in how effective prevention strategies can be developed and how their effects can be made visible. Finally, we have explained that a community approach is not just one specific strategy. The term could refer to very different ways of working in and with communities. Which kind of community approach is chosen depends heavily on what motivates professionals or policy makers. These motivations could be based on different analyses about the determinants of mental health (person-related or social), on different views on societies and the role of citizens and governments (liberal versus social), and on a diversity of interests among different stakeholders (e.g. mental health or economic interests). We end with the question: What is your stand in this? 211 Literature Baars, J., & Kal, D. (Red.). (1995). Het uitzicht van Sisyphus: Maatschappelijke contexten van geestelijke (on)gezondheid. Groningen: Wolters-Noordhoff. Bosma, M. W. M. & Hosman, C. M. H. (1990). Preventie op waarde geschat. Een studie naar de beïnvloedbaarheid van determinanten van psychische gezondheid. Nijmegen: Beta Boeken. Feinberg, M.E., Greenberg, M.T., & Osgood, D.W. (2004). Readiness, functioning, and perceived effectiveness in community prevention coalitions: A study of Communities that Care. American Journal of Community Psychology, 33, 3/4, 163-176. Feinberg, M. E., Greenberg, M. T., Osgood, D. W., Anderson, A., & Babinski, L. (2002). The effects of training community leaders in prevention science: Communities That Care in Pennsylvania. Evaluation and Program Planning, 25, 245–259. Feinberg, Mark E; Riggs, Nathaniel R; Greenberg, Mark T. (2005). Social Networks and Community Prevention Coalitions. The Journal of Primary Prevention, 26(4), 279-298. Hawkins, J.D., Catalano, R.F., & Arthur, M.W. (2002). Promoting science-based prevention in communities. Addictive Behaviors, 27, 6, 951-976. Hosman C.M.H., van Doorm H., & Verburg, H. (1988) Preventie In-zicht. Lisse: Swets en Zeitlinger. Hosman, C. M. H., Price, R. H., & Bosma, M. W. M. (1988). Evaluatie van preventieve interventies. In C. Hosman, H., van Doorm, & H. Verburg (Eds.), Preventie in-zicht (299-308) (Dutch). Amsterdam: Swets and Zeitlinger. Illich, I. (1974). Medical nemesis. London: Calder & Boyars. Joffe,J.M. & Albee, G.W. (1981). (eds) Prevention through political action and social change. Hanover, N.H. : Published for the University of Vermont by the University Press of New England. McMillan, D.W., & Chavis, D.M. (1986). Sense of community: A definition and theory. Journal of Community Psychology, 14(1), 6-23. NIZW (2000). Communities that Care: Opgroeien in een veilige en leefbare wijk. Utrecht: Nederlands Instituut voor Zorg en Welzijn. Nuyten, C., Nijmeijer, B., & Sterenborg, H. (1985). Maatschappijgerichte preventie. Utrecht: Landelijk Ondersteuningspunt Preventie-ggz. Sarason, S.B. (1974). The psychological sense of community: Prospects for a community psychology. San Francisco: Jossey-Bass. Stanley, D. (2003). What Do We Know about Social Cohesion: The Research Perspective of the Federal Government's Social Cohesion Research Network. The Canadian Journal of Sociology, 28, 1, Special Issue on Social Cohesion in Canada, pp. 5-17. Steketee, M., Mak, J., & Huygen, A. (2006). Opgroeien in veilige wijken. Communities that Care als instrument voor lokaal preventief jeugdbeleid. Verwey-Jonker Instituut en Van Gorcum, Utrecht/Assen) Van Doorm, J.S., Otten, A., & Verburg, H., & (1986). Overzicht RIAGG preventieprojecten 1986. Utrecht: Landelijk Ondersteuningspunt Preventie-ggz. Verburg, H., & Van Doorm, J.S. (1988). Inventarisatie RIAGG preventieprojecten 1988. Utrecht: Landelijk Ondersteuningspunt Preventie-ggz. Vuori, J., Price, R. H., Mutanen, P., & Malmberg-Heimonen, I. (2005). Effective Group Training Techniques in Job-Search Training. Journal of Occupational Health Psychology, 10(3), 261– 275. 212 Study questions for this chapter What are developments within prevention, within the health system and within society that have increased or decreased the interest in community approaches? What are the different motivations behind the interest in community-oriented policies and activities in prevention? What are the implications of the different motivations for how community approaches are defined and for chosen strategies? What is the meaning of the concept of community? Are there different types of communities? What are important features and functions of communities? What is their relevance for mental health promotion and prevention? What are the differences between ‘community-targeted’, ‘community-based’, ‘community-driven’ and ‘community empowerment approaches’? What kind of scenarios is possible within a community-oriented approach? What are the underlying differences? What are basic features of the ‘Communities-that-Care’ programme? What are results of evaluation studies on this programme? What kind of roles and functions could professionals perform within community approaches? Does this call for different competencies? What are features and conditions of effective collaborative relationships and coalitions for prevention? 213 214 PART III PLANNING AND STRATEGY 215 216 11 Planning models and processes of planned change in mental health promotion and prevention 11.1 Introduction 218 11.2 Common stages in planned change 219 11.3 General characteristics and assumptions of stage models 220 11.4 Precede-Proceed Model 223 11.5 The Basic Planned Change Model 226 11.6 From a basic change model to a comprehensive population-based approach 234 11.7 Conclusion 236 Literature 237 Study questions for this chapter 238 217 11 Planning models and processes of planned change in mental health promotion and prevention Clemens M.H. Hosman 11.1 Introduction The development, testing and successful implementation of an effective prevention programme is a process that takes many years. Achieving an evidence-based impact on the mental health condition of a whole population or population at risk is a long-term affair. This is what we learn from earlier successful public health efforts to reduce, for instance, the population rates of smoking, fatal traffic accidents, fatal coronary artery disease and HIV. Currently, several programmes that target mental health problems have proven to be effective in multiple controlled effect studies, and have been disseminated, adopted and implemented in a wide range of countries across the world. Well-known examples are Triple P on parenting education, Friends on anxiety prevention, the Coping with Depression Course for people with depressive symptoms, Communities-that Care for youngsters at risk for externalising problems, and the Nurse-Family Partnership programme based on home-visiting for pregnant mothers at high risk. Taking these examples as a point of reference, we estimate the total period from the first preparations for their designing to their ultimate international adoption and implementation as a full-blown and effective programme at between 10 to 20 years. The process from first invention through many improvements, try-outs and outcome studies to their international dissemination, acceptance and use is a complex process, in which many and very diverse tasks have to be accomplished, each successfully. Prevention and health promotion professionals need to understand the ins and outs of such long-term planning processes and how to manage them. Of course, these long trajectories do not represent the work that is typical for prevention professionals and health promoters in local community practices. They can adopt an existing evidenced-based prevention programme, adapt it to the needs and culture of a specific school or neighbourhood, and implement it. They also can develop a new preventive intervention in response to local needs, or support a bottom-up initiative for a preventive intervention by a primary health care centre, or by a coalition of local organisations and citizens. Such bottom-up trajectories are, of course, much shorter. Also, when professionals develop their own local preventive intervention, they need to follow the basic rules and guidelines for effective programme development. To this end, they use development and planning models that have proved their value over many years and across many communities and countries. For our field, such models are described in multiple basic textbooks on planned prevention and health promotion that we highly recommend to study. We give two examples of excellent textbooks on programme planning: Green and Kreuter, (1999). Health Promotion Planning: An educational and environmental approach. Bartholomew et al. (2006), Planning health promotion programs: Intervention mapping approach. San Francisco: Jossey-Bass. 218 This chapter describes the different steps (stages) that need to be performed during the process of programme development, implementation and evaluation. Models of staged processes of planned change have been developed to guide processes of problem solving, decision-making, counselling, psychotherapy, management and consultancy. “Planned change’ refers to each process of intentional, prepared and goal-oriented change guided by practice-based and science-based knowledge. Staged models have a long history that goes back to the 1970s. The systematic use of stage models is regarded a general and necessary feature of all successful processes of planned change, including the development of effective prevention programmes. In this chapter, we first elaborate on the meaning of the term 'stage' and what the most common stages are in planning of change models. Next, we discuss the elementary principles and assumptions of stage models. In the remainder of this chapter, we present three different stage models that are used in the field of prevention and health promotion: the Basic Planned Change Model, the PRECEED-PROCEED Model and the Development Trajectory of Effective Population-based Prevention (DEPP). 11.2 Common stages in planned change In many public and private sectors, ‘planning models’ and ‘stage models’ are used to guide processes of solving complex problems or reaching challenging targets. This applies to prevention and health promotion, as it does for areas such as organisation development, marketing, psychotherapy, urban renewal, engineering, road construction, industrial innovation, and governmental policy. Reducing the onset of depression in a local population by 15%, or increasing the average level of social-emotional competence in children and adolescents in local schools are examples of complex challenges. To accomplish such goals, we need to plan carefully all the tasks that have to be performed in a coherent way and a correct sequence in order to achieve in the end targeted mental health objectives. Planning refers to thinking and decision making in advance about what needs to be done, when, where, how and by who to achieve chosen goals. It concerns the process of setting goals and objectives, and outlining all the tasks, strategies and conditions that we have to realise in order to achieve the targeted objectives. Required conditions could include for instance, raising money, getting political support, involving relevant stakeholders, and developing knowledge and expertise to perform the planned tasks and strategies. Despite the large variety in theoretical models of problem solving and planned change, they share the notion that the likelihood of successful outcomes is increased when these processes are divided in subsequent steps or stages, and managed accordingly. The term stage refers to a cluster of related activities, which together form a specific functional step in a longer process of planned change. In stage models, each stage has a specific function, which means a separate goal and the performance of specific tasks. Examples of such tasks are making a problem analysis, choosing an intervention strategy, and assessing the outcomes. Successful completion of the activities belonging to a specific stage is a requirement to perform the activities in the next stage successfully. In prevention, health education and health promotion multiple stage models are in use. They differ depending on their scope, context of use and the nature of their final goal. Some 219 are designed to guide a one-time local project, others to develop transferrable model programmes or to implement them on a large scale. Planning might concern the nationwide prevention of a specific disease in a defined target group at risk, while in other cases multiple highly related problems and diseases might be addressed. The different stage models, however, also share many similarities, for instance most stage models have the same basic structure. Figure 11.1 reflects such a Basic Planned Change Model that we introduced in the Introduction chapter. The model differentiates between seven basic stages and their mutual relationships. 1. Orientation and defining starting position 2. Problem analysis 3. Goal and target population analysis 4. Strategic analysis and programme design 5. Operational analysis 6. Intervention 7. Evaluation A full description of this basic model is presented in section 11.5. First, we discuss the core characteristics and assumptions that all stage models have in common. 11.3 General characteristics and assumptions of stage models As explained above, stage models are popular among professionals involved in processes of planned change or solving complex problems. Which common principles do stage models have? Below we describe the following six: segmentation of a problem, functional order, goal orientation, rational thinking, cyclic character, and offering a structure for task allocation and needed resources. Segmentation in sub-problems Problems are often so complex that one can become overwhelmed by the large number of themes and issues that need to be addressed at the same time. Precisely for this reason, it is difficult to resolve complex problems. One way of coping with this is to divide a complex problem in several sub-problems or tasks, which each can become more easily resolved. Segmenting a problem can be done in different ways. Take, for instance, the case of lowering the high incidence of depression in a community. One way to segment such a challenge is to divide the problem of depression into five segments, each addressing a different group at risk. We could run five prevention projects simultaneously, each targeted at a different, but smaller group. Even then, each project is still a challenge. Through stage models, the process of 220 achieving a targeted outcome (i.e. lowering depression incidence) can be segmented in dealing with a range of subsequent smaller problems, each representing a specific task in this problem solving process. For instance, first solving the problem of understanding what the causes are of the high incidence of depression; secondly, the challenge of selecting and formulating realistic and achievable preventive goals (e.g. Is a reduction of 15% achievable in 4 years?); thirdly, designing an effective preventive strategy; fourthly, getting the strategy implemented community-wide; and fifthly, finding valid tools to evaluate whether the implemented strategy has been successful and whether the incidence has been reduced. Functional order As is illustrated above, a complex problem could be segmented into smaller sub-problems that are functionally related and need to be solved in a specific order. Typical stages in this process of problem handling are problem orientation, problem definition, generation of solution alternatives, decision-making, execution, and evaluation of the effects (D'Zurilla & Goldfield, 1971; Nezu, 1987). The functional order makes that each sub-problem can be considered as a specific stage with its own targets. The resolution of each previous sub-problem is always a prerequisite to work on a next one successfully. Each stage needs to result in a certain outcome that provides the basis for working successfully on the challenges in the next stages. When sub-problems are not resolved in the right order, the chance of resolving the total problem becomes smaller. A typical pitfall among practitioners is to select very quickly a standard intervention method after a problem is presented to them, without taking time to run a deeper problem analysis and intervention analysis to understand what intervention method might be the best to solve the problem and achieve the goal. Mutual qualitative dependency In addition, qualitative dependency is assumed between the stages. The better the results of the previous stage, the more chance exists to successfully resolve the next stage. The quality of each separate stage depends on three conditions: rational decision-making, sufficient and valid information, and expertise. For example, running a problem analysis stage poorly might lead to the selection of ‘risk factors’ that are only correlates of the targeted problem, not causal factors. Addressing them in interventions will have no impact on the incidence of the problem and will not result in any preventive effect. Goal orientation Stage models and separate stages have a goal-oriented character. Stage models are used as a tool to achieve a certain end goal better. Each separate stage in the model has also its own goals. The goals of all the subsequent stages together constitute a functional goal-chain that in the end should result in achieving the ultimate goal of a programme or project. The nature of these intermediate goals reflects the functions of the subsequent stages. Some examples of stage related goals: having insight in the risk and protective factors of a problem and in the groups most at risk; having defined all relevant intermediate and ultimate objectives; having a realistic intervention plan available; having the plan translated in a concrete and implementable programme, the successful implementation of the programme and having reached a sufficient large part of the target population. 221 Rationality Both for stage models as a whole and for each individual stage, working systematically and making rationally informed choices are necessary to resolve the targeted problem successfully. Rationally informed choices require the availability and consideration of both science-based and practice-based evidence. Not only a whole planning process, but also each stage in itself represents a problem solving and decision process, in which several sub-stages can be defined. For each stage (a) the aims and the planning of work needs to be defined, (b) planned work needs to be executed professionally and in accordance with the plan, and (c) the results need to be evaluated on their quality and relevance. For instance, during the problem analysis stage: (a) a planning needs to be made for the problem analysis (e.g. type of questions, assessment methods, way of analysing the results), (b) the planned problem analysis needs to be executed, and (c) in the end it needs to be evaluated whether the problem analysis has been done properly and whether it has served its purpose. Such a problem analysis might include running an epidemiological study or organising a range of interviews and focus groups. As we will discuss later, a problem analysis is also subdivided in answering different analytical questions (section 11.5). Stage models as a whole and each separate stage represent a rational process, in which the best solutions are sought purposefully and systematically. This rationality maximises the perspective on an effective prevention programme and serves to justify the choices made to funding agencies, government, or clients. Cyclic character Although this is not true for all stage models, most of them use feedback mechanisms. This means that in each stage certain problems can arise which make is necessary to return to an earlier stage and to go through it once again, but in a different way or more precisely. Sometimes professionals go through the stages of problem analysis, goal analysis and strategy development several times, first globally and next increasingly more specified (Hosman, 1994). A first global problem analysis can lead to a global, preliminary strategy selection, which already gives some direction to a prevention programme, for instance offering a preventive training to those at risk. For the elaboration of this strategy and to decide what exactly needs to be trained and how, it is necessary to look again but more specifically at the problem analysis. Results of try-outs can call for a redefinition of goals or a change in strategic choices. Although a functional order usually refers to a linear process, in practice it is a cyclic process with many feedback loops. Structure for allocation of tasks, necessary skills and information Each stage requires different professional tasks and therefore different skills and familiarity with different fields of knowledge. For instance, problem analysis requires skills in using different types of needs assessment methods (e.g. survey techniques, epidemiology, interview techniques, and focus group method) and knowledge about theories and research on problem development and causal factors. Strategy development requires thorough knowledge on evidence-based prevention strategies and programmes, their outcomes and relevant effect moderators. Evaluation requires skills in applying qualitative and quantitative evaluation methods, and understanding the principles and strategies of controlled effect studies. Moreover, working professionally with staged models requires the skill to make grounded decisions in each stage. This means, that stage models also offer a framework to describe the 222 different fields of information and expertise that professionals need to acquire through professional training and experience (Price, 1987; Hosman and Brinxma, 1978; Diekstra and Hosman, 1980). In summary, we conclude that: Stage models can be used as a tool - planning instrument - to solve complex problems and to control processes of change; Complex problems are broken down in manageable sub-problems or tasks which are functionally related; Working on their solutions needs to be done in a certain order, in which the solution of each sub-problem represents a separate stage in the total process; Successful completion of a specific stage depends on the outcomes and quality of the work in the previous stage; Stage models and their separate stages are goal oriented, and characterised by a rational decision process; Stages are not completed in sequence, but there is regular feedback to previous stages, which could lead to running previous stages again but in a more specific or better way; The use of stage models provides a planning framework for the different types of information needs and needs of professional expertise. In the next sections of this chapter, we will discuss three types of such stage models: the PRECEED-PROCEED planning model, the Basic Planned Change Model, and the Developmental Trajectory for Effective Population-based Prevention. For another well-known planning approach in health promotion, the Intervention Mapping Approach we refer to the textbook on this approach by Bartholomew, Parcel, Kok, and Gottlieb (2006). 11.4 Precede-Proceed Model The PRECEDE-PROCEED planning model, used in health education and health promotion worldwide, is designed by Green and Kreuter (1999). Its unique feature is that it depicts a systematic planning process in which a link is made between elements of a social-behavioural model of health and stages in designing, implementing, and evaluating a health promotion programme. PRECEDE (Predisposing, Reinforcing, and Enabling Constructs in Educational Diagnosis and Evaluation) involves problem analysis and intervention planning. PROCEED (Policy, Regulatory, and Organisational Constructs in Educational and Environmental Development) guides the implementation and evaluation of the programme designed during the PRECEDE phases. PRECEDE consists of five steps or phases (Figure 11.2): Social diagnosis: involves determining the quality of life or social problems and needs of a given population. Emphasis is on people’s own perceptions of such needs and involving citizens in making a diagnosis of their own life and community. Also, other relevant stakeholders can be involved in this diagnosis (e.g. community leaders). Epidemiological diagnosis: consists of identifying the most important health problems in the population (prevalence and incidence) and determinants of these problems (risk and protective factors) with use of epidemiological research methods. 223 Behavioural and Environmental diagnosis: involves analysing the behavioural and environmental determinants of a health problem that is prioritised during the social and epidemiological diagnosis. In the behavioural diagnosis, a study is made of the type of behaviours and lifestyle components that influence the onset of the targeted health problem. These could concern risky behaviours and life styles (e.g. regular substance use, smoking, counterproductive coping styles, anxious behaviour) but also health promoting behaviours (e.g. exercise, healthy eating habits, support seeking, positive parenting). The environmental diagnosis concerns the analysis of social and physical factors that may influence behaviour or have a direct influence on health or quality of life (e.g. influence of drug using peers, quality of foods in supermarkets, availability of fitness facilities, parental mental illness, domestic violence, school policies). Educational and Organisational diagnosis: identifies the factors that predispose to, reinforce or enable behaviours and lifestyles identified in stage 3, and selects those behavioural and environmental determinants that you want to influence. These could also include behaviours of relevant stakeholders, such as teachers, caregivers or managers. - Predisposing factors provide the motivation or reason behind a behaviour; they include knowledge, attitudes, cultural beliefs, readiness to change, etc. - Enabling factors make it possible for a motivation to be realised; that is, they "enable" persons to act on their predispositions; they include skills, available resources, supportive policies, assistance, and services. 224 - Reinforcing factors come into play after a behaviour has begun, and provide continuing rewards or incentives, that contribute to repetition or persistence of the behaviour. Social support, praise, reassurance, and symptom relief might all be reinforcing factors. Administration and policy diagnosis: involves ascertaining which health promotion and preventive interventions or which policies and measures would be best suited to generate the desired changes in behaviours or environments and in the factors that support those behaviours and environments. PROCEED is composed of four additional phases. Implementation: converting a programme design to actual activities, and coordinating the implementation and management of the programme. Process evaluation: the evaluation of the quality and feasibility of a new policy or programme, the quality of the used materials, staff, presentation and offered services, and how participants and other stakeholders respond to the programme. This could also include identifying unexpected negative outcomes or side effects of a programme. Impact evaluation: involves evaluating the immediate effects of a programme on intermediating goals such as behaviour determinants, behaviour and environmental factors. Effect evaluation ('outcome evaluation'): determining the ultimate effects of the interventions on indicators of the health and quality of life of the population, or on a specifically targeted health problem. We emphasise here that the labels ‘impact’ and ‘effect’ are used in different ways in the literature. In many other publications, impact usually refers to the range of ultimate outcomes that a programme is able to generate in a targeted population. Besides population health effects, such ‘public impact’ might also include social and economic benefits that result from improved health. PRECEDE and PROCEED function as a continuous cycle. Information gathered in PRECEDE guides the development of programme goals and objectives in the implementation phase of PROCEED. This same information also provides the criteria against which the success of a programme is measured in the evaluation phase of PROCEED. In turn, the data gathered in the implementation and evaluation phases of PROCEED offer a check on the relationships that were studied in PRECEDE between the health or quality-of-life outcomes, between behaviours and environments and these health and social outcomes, and a check on the factors that were assumed to generate the desired behavioural and environmental changes. These data might also suggest how programmes could be improved to reach their goals and targets more closely. Limitations Despite the international popularity of the PRECEDE-PROCEED model, it also has some drawbacks and limitations. First of all, the model does not really make a distinction between: (a) one-time prevention programmes that are developed bottom-up with local citizens or organisations (b) the development and testing of effective model programmes, and (c) the 225 large-scale dissemination and implementation of best practices and evidence-based programmes across many communities, nationwide or even internationally. Secondly, PRECEED-PROCEED is centred around a specific social-behavioural health model that does not sufficiently reflect the complexity of risk and protective factors that play a role in the development of health and disease, nor how they emerge and their dynamic interplay across the lifespan. Especially for the underpinning of preventive interventions in the field of mental health, the included determinant model is insufficient and does not reflect current theoretical frameworks on mental health. The developmental psychopathology framework (chapter 6) and the integrated stress theoretical approach (chapter 7) offer in our view a better starting point for the deduction of strategies that can prevent mental disorders and improve mental health. A framework is needed that is able to integrate the numerous bits of information from the many thousands of studies on risk and protective factors in mental health. With such an integrative framework we will better understand what the summarised research outcomes tell us, how different factors across multiple levels and across the life span interact (chapter 4), and what this means for strategic options to preventive action. Aside from these limitations, the PRECEED-PROCEED model has also many strengths, as is evident from the wide use of this model in health promotion. The model offers a very clear structure for planning and analysis and its 9 phases are transparently linked to well-defined domains of relevant actions, factors, and outcomes. The book on Health Promotion Planning (Green and Kreuter, 1999; Tones and Green, 2004) offers an elaborate description of the model, its phases and its application to planning and research. 11.5 Basic Planned Change Model The Basic Planned Change Model consists of seven stages that can be used to develop an effective prevention programme (figure 11.1). The goal of this model is to provide practitioners and researchers a framework for the stepwise design, implementation and evaluation of prevention programmes. The model can also be useful for the development of evidence-based model programmes aimed to be suitable for large-scale implementation. However, for the planning of large-scale implementation of programmes the model should be extended with additional stages that specially target the process of dissemination, adoption and implementation of model programmes. Such an extended model is described in section 11.6. Each stage in the basic model is elaborated in a number of sub-stages, in which specific subtasks and decision moments are discerned. These are summarised in Box 11.1 and described below: Stage 1: Orientation and defining starting position When setting up a local prevention programme the first and very important action is to orientate yourself at and define your starting position. This means answering questions like: Who is or are the initiator(s) and leaders of the project? What interests and whose interests do they represent? These might be interests of the target population or entirely different interests of other stakeholders such as health care managers, school managers, government, companies or health 226 Box 11.1 Stages of Basic Planned Change Model Stage 1 Focus on a specific problem from the start? Which problem or theme? Who is initiator? Other stakeholders involved? What are their interests? Features of your own organisation and implications (e.g. mission, positioning, disciplines, expertise, capacity restrictions, role in this project) Access of your organisation to target populations Stage 2 Analysing the starting position Problem analysis: Policy or Programme-focused? Problem description & Needs assessment Analysis of determinants & development Network analysis: who has what kind of influence? Capacities & strengths assessment, and comparing needs with capacities Drawing conclusions for goal setting, target population and strategy Stage 3 Goal and target population analysis Goal analysis and goal setting Multiple goals and hierarchy of goals Ultimate and intermediate goals (short-long term) Defining goals and ‘goal-trees’ Analyse and define target population Selecting, defining, segmenting target populations Ultimate and intermediate target populations Stage 4 • • • • • Stage 5 Implementation Recruiting and involving participants Actual implementation Quality management of implementation (training and supervision; programme fidelity; implementation monitoring; reducing drop out) Enhancing frequency and duration implementation Stage 7 Operational planning Writing a programme manual and developing materials Try-outs and improvements Marketing and advocacy, getting community support & developing coalitions Capacity building: personnel and training; financial resources Planning evaluation Stage 6 Intervention analysis and strategy development Targeted determinants and target groups Settings and system level Intervention methods & mechanisms; one intervention or combination Timing and dosage Choice of provider Evaluation and feedback process evaluation and satisfaction efficacy and effectiveness reach in target population costs and cost-effectiveness feedback and improvements Hosman 2014 227 insurers. The primary interests of these other stakeholders may concern a reduction of health care costs, less school dropout or less production loss. - What is the problem and why is it necessary to take action? For example, there might be an acute problem that must be resolved quickly (e.g. increased violence by juveniles in a neighbourhood) or a long-standing problem, such as high levels of depression in society. It might also be a problem that is expected in the future, e.g. increase of dementia due to the growing number of elderly above the age of 80 years. - Who and which organisation(s) will be involved in the development and implementation of the programme? Are these primary health care organisations and mental health care services, or also governmental agencies, employers or citizen groups representing the target population? - From which point of view will the problem be approached: from a prevention expert and science point of view, a mental health care point of view, a public administration point of view, an economic point of view, or from the experienced needs and views of the involved citizens? When a scientific approach is used, which theoretical model will dominate in the project? - What budget and human capacity possibilities does the prevention project have? What constraints should it take into account? Stage 2: Problem analysis In this stage, an in-depth analysis is made of the problem, its background and social context. This stage is subdivided in three types of analysis: 1. Problem description: involves (a) an analysis of the type of the problem, (b) an estimation of the seriousness of the problem (expected short and long term health, social and economic outcomes), (c) prevalence and incidence of the problem and (d) the identification of groups at risk. 2. Determinant analysis: this analysis is preferably performed from one or more explicit theoretical approaches with an open eye for different views. It includes: (a) identifying risk and protective factors, their longitudinal development and their causal importance (attributable risk); (b) estimation of their changeability; (c) identification of previous attempts by the audience and its social network to influence the problem and the effects of these attempts; (d) assessment of the strengths of the target population and their communities that could be activated to find solutions; and finally (e) drawing conclusions about the need for professional preventive support. Based on these questions it will be determined which aspects are eligible for preventive interventions. The determinant analysis usually looks at factors at micro-, mesoand macro-level, both those that directly precede the onset of the problem and those that have originated much earlier in the lifespan. To identify determinants theoretical approaches can be used, that we have discussed in chapters 4 to 10. 3. Network analysis: The goal of this analysis is to get a clear picture of the social interactions and social contexts of the target group and how they affect the development or persistence of mental health problems or support mental health. Preventive interventions are often not directly targeted at groups at risk, but at persons, groups or organisations in the social context of the target group. They represent potential ‘intermediate’ target groups, as they have or might have some influence on identified mental health determinants and could play a role in preventing problems or improving mental health. Among them, we differentiate between persons and groups at the micro level (e.g. family, friends, colleagues, and peers), 228 organisations and systems at the meso level (e.g. neighbourhood, school, work, care institutions) and at macro level (e.g. ministries, mass media, justice, national NGOs). A network analysis can be described in text, but preferably also in a visual map of the network that can be used for communication purposes or planning. This map can be displayed in two ways. One scheme consists of a series of concentric and increasingly widening circles (Figure 11.3). The ultimate target group is placed in the centre, i.e. the group in which eventually a preventive effect has to be achieved. The circles step-wise further from the centre represent respectively the micro-, meso- and macroenvironment. In each of these environmental levels individuals, groups, organisations or other systems can be specified that might have contact with people from the target group or have influence on them. The other possible scheme consists of a series of small, independent circles that each are connected with other circles by arrows. Each arrow represents a possible influence from one system or person on the other. Figure 11.4 offers an example of such a map from bullying prevention. Chapter 9 on social networks provides a more detailed description of the method. Stage 3: Goal and target population analysis Goal analysis Preventive interventions often have multiple goals. In Chapter 12, we will discuss the issue of goals setting and differentiation between types of goals more extensively. First, you need to define the primary long-term goals you want to achieve through a preventive intervention or mental health promotion programme. Apart from defining the mental health objectives, it is also important to define which social or even economic benefits might be achieved by your mental health interventions. These are useful as secondary goals. This requires insight in how mental health or mental disorders are related to other negative or favourable outcomes outside 229 the mental health domain. For instance, stronger mental capacities might contribute to better school achievements, more chance of getting a job, more satisfying relationships and being more productive. We have discussed such positive personal, social, and economic outcomes of mental health at the start of this book and when we discussed the functional model of mental health (section 3.2.3). Defining such secondary goals and outcomes might provide a strong base for getting wider public support for mental health promotion and prevention, collaboration from different stakeholders, more investment of resources, and better conditions for successful large-scale implementation of programmes. Ultimate goals are only achievable when we first are able to achieve several intermediate and proximal goals, such as reducing selected risk factors and strengthening protective factors. We need to make use of functional goal chains (section 12.5), that describe multiple goals as subsequent and functionally related steps, necessary to reach a final goal, for instance, a significant reduction of depression or substance use in a community. Such goal chains can also include goals we need to achieve in intermediate target groups (e.g. teachers, parents, local community leaders, health insurers). Target group analysis Define as precisely as possible the target populations of your intervention, while making use of inclusion and exclusion criteria. Especially in selective prevention, where we target populations at high risk, it is common that such populations are defined too broadly. This increases the risk of working inefficiently by including many persons that are not really in need of such a programme. For instance, several prevention programmes target in general young children of parents with a mental illness (COPMI), while we know that not all these children are at high risk. Therefore, for specific programmes we could better narrow the target group definition to only those children living in families wherein parental mental illness is associated with an accumulation of risk factors and poor support systems. As we have stressed earlier, it is common to differentiate between the ultimate target population, in which you want to achieve preventive effects, and intermediate target groups such as parents, teachers, GPs, employers or municipality officials. Intermediate target groups are chosen from network analyses as we earlier discussed. Using such intermediate persons or groups may serve a diversity of strategic aims. For instance, they could be necessary to reach the final target population at risk, to get a risk factor changed that is under their influence (e.g. child neglect), or to provide the actual intervention on a larger scale. Understanding what their strategic role could be requires a good understanding of what role such network persons or systems fulfil in relation to your target population. Finally, as an outcome of a network and target group analysis, a functional chain of subsequent target groups could be defined. This chain describes a series of persons, organisations or groups from which we assume that they will consecutively influence each other, e.g. journalists teachers and health care professionals parents COPMI children. We sometimes assume in such cases that we are able to create domino-effects across such a chain of target groups. An important part of each target group analysis is segmentation: usually within each target group, multiple segments can be defined. Segmentation can be needed because a target group is not easily reachable through one setting or one communication channel. Subgroups could be differentiated to reach the total target population better with recruitment strategies that are adapted to each subgroup. People in the same target population at risk might also have different profiles of risk factors, different cultural features or may be different 230 in readiness to change. Prevention programmes need to be adapted to such features. Special programme versions might be needed for different age groups, cultural subgroups, or for lower educated people. For instance, for COPMI we have designed special programmes for children of 0-4, 4-8, 8-12, and 13-18 years old respectively. Stage 4: Strategic analysis and programme design This stage is focused on making a range of strategic choices, which together define the major features of the preventive intervention you want to design. These include choices on multiple strategic dimensions: a. Determinants: Which risk and protective factors are targeted directly or indirectly through the intervention? Which chains of causally related factors do we aim to influence? b. Target populations and segments: At which target groups or segments, intermediate target groups or networks is the intervention programme targeted? Is the preventive target population addressed directly or through intermediate target groups or systems? Or both? c. System levels: At which system levels is the intervention directed (micro, meso, and macro)? d. Settings: In which setting is a prevention programme offered and implemented (e.g. primary health care, school, work, and neighbourhood)? e. Intervention methods and mechanisms of change: Which intervention methods and mechanisms of change are selected to generate the targeted changes in the target population or environment? Examples of methods: group courses, self-help books, staff training, organisational or policy advice, legislation. Examples of mechanisms: modelling, emotional support, setting norms, rewards and sanctions. f. Timing and dosage: At which moment or phase along the live span will the intervention be most effective? How long should be the duration of the programme to make it effective? g. Providers: Who should actually implement the interventions? Who is best able to connect and support a target group? Health promotion specialists, caregivers, community leaders, persons from the social networks, experts by personal experience, peers? (See chapter 13 for a more detailed discussion of these dimensions) The choices on these dimensions together determine the profile of a prevention strategy. At each of these dimensions not only one but several alternatives can be chosen (e.g. several factors, several intermediate targets and multiple methods), also we need to choose whether we go for a single intervention or a multicomponent prevention programme by combining several interventions. Combined interventions can be performed simultaneously or sequentially. The last is recommended if the results of intervention A serve as a precondition for the successful implementation of intervention B. For example, in a school programme a first intervention is often targeted at teachers (e.g. training) after which the trained teachers can effectively provide school-based interventions directly to children and parents. 231 Logic modelling The final document of this stage includes a description of the chosen intervention strategy, where choices on the strategic dimensions are briefly described and justified. In the case of a multi-component programme, the individual sub-programmes are specified. To make such a strategic plan and its underlying theory and assumptions visible, it is common to use logic modelling also called a visual representation of the programme theory. Descriptions of how to design a logic model can easily be found on the internet and in the following publications (W.K. Kellogg Foundation, 2004; Funnel & Rogers, 2011; Taylor-Powell & Henert, 2008). A useful framework for making a logic model is presented in Figure 11.5. Working with logic modelling has several advantages. First, it is a tool to describe briefly the whole idea of a mental health promotion or prevention programme. It serves, therefore, as a useful tool to communicate about a programme design with stakeholders, to stimulate reflection and debate, and finally common decision making on a new programme. Secondly, logic modelling challenges programme designers and other stakeholders to make their assumptions about the programme and how it will work explicit. The model requires describing the “theory of change” that is underlies the programme. Thirdly, the model defines the chain of aimed outcomes, which differentiates between “what we do”, short-term outcomes, medium term outcomes and the final impact of the programme. By defining this chain of outcomes, the model offers also a framework to guide outcome research. Finally, having such a logic model available makes it easier to disseminate the programme to others and to enhance large-scale implementation. 232 Stage 5: Operational analysis This preparatory stage of the actual implementation involves the operational planning and preparation and the concrete development of the chosen methodologies. It refers to a range of practical tasks that need to be performed before the actual intervention can start successfully. These include, for instance, time planning, writing a programme manual, designing educational materials, generating support for the intervention from community and health organisations, fund raising, training of programme providers, developing a supportive website. Furthermore, in this stage a first try-out of parts of the programme can be done (pilot study) after which materials and methods can be improved. Stage 6: Intervention In the intervention stage, all previous stages come together. During this stage, there is direct contact with the intermediate or preventive target groups. This usually starts with recruiting and selecting participants. Subsequently, the actual implementation of the chosen intervention strategy takes place. Within the intervention, multiple sub-stages can be distinguished such as motivating for change, learning new behaviour and ensuring the maintenance of new behaviour. The stage model of Prochaska and DiClemente (1983, 2005) can be used to guide the stepwise process of developing sustainable behaviour changes in target populations and their segments. Sometimes the intervention stage overlaps with earlier stages of the cyclic model. This is the case when target populations are invited to be actively involved in the problem analysis, goal setting and strategy selection. This is, for instance, mostly the case in community intervention programmes. An important task during the implementation is safeguarding the quality of the implementation. This could include organising continuous support to the actual programme providers, and monitoring implementation quality and programme fidelity. During the completion of the implementation, attention should be given to drawing explicit conclusions on what has been achieved; discussion about the need for follow-up interventions, and stimulating continuation of the implementation of the programme in the future to new groups of participants. Stage 7: Evaluation This stage concerns the evaluation of the implementation and the programme outcomes, but may also include an evaluation of the prevention project as a whole, including the process of programme development. Different aspects of a prevention programme or project can be analysed. We distinguish the following types of evaluation: Process evaluation and reach evaluation This covers questions like: What was the quality of the programme implementation? Which problems occurred? How did participants evaluate the programme and the providers? What were the most and least instructive parts? What part of the target population has been reached so far? What are main bottlenecks in reaching the target population? How could the programme be improved? Effect evaluation In effect evaluation, a distinction can be made between efficacy evaluation and effectiveness evaluation. Efficacy evaluation refers to research, testing the effects of a new programme in experimental and carefully controlled conditions: Does the programme work under ideal 233 circumstances? Effectiveness evaluation refers to research that examines whether the programme also has the expected effects when it is carried out in daily practice, under less controlled circumstances and on a larger scale. What effects does the programme have then? Effects can be assessed at three levels. What intermediate effects are achieved in the intermediate and ultimate target groups (determinants)? What effects can be seen in the ultimate target groups in terms of better health or disease prevention? What benefits has the programme achieved at social or economic level? For whom was the intervention most effective and for whom the least? What are the short and long-term effects? Are we sure the observed changes can be attributed to the impact of the programme? Cost evaluation/ Cost-benefit ratio What costs and other investments were needed to implement a project? How do the costs of a project relate to the actual benefits (cost-benefit analysis)? For example, a study showed that the Perry Preschool Program (skills development in children of 3-4 years in risk populations) yielded economic benefits of $ 258,000 per person over a period of 40 years, which is over $17 benefit for every dollar invested in the programme (Schweinhart et al, 2005). Are there any 'costs' in terms of non-intended negative side effects? Could the invested costs be reduced without decreasing the effect? Could the same effects also be achieved with less labour intensive and expensive interventions (cost effectiveness analysis)? Although we have described the seven stages of the model one after the other, the model is of a cyclical nature. As previously explained, this means that it is possible to switch back to earlier stages when necessary. Moreover, after the end of a process of programme development in which all stages have been gone through, there might be a need to test a new, improved version of the programme based on evaluation of the previous version. 11.6 From a basic change model to a comprehensive population-based approach Let us assume that a professional from a local child mental health service has used the Basic Planned Change Model to run a school-based prevention programme to reduce aggressive and bullying behaviour among grade 5 children in a local elementary school. The professional was invited by the school to help them cope with this growing school problem. In collaboration with teachers and parents, the professional developed and implemented a programme, which was positively received by the school. Outcome indicators showed that the programme has been reasonably effective in reaching its goal. The level of problem behaviours declined. If this was the only aim of the prevention project, the cyclic process can be concluded by drawing the conclusion that the intervention was successful. Mission completed! Usually, however, the ambition of prevention or health promotion projects is much wider, and not restricted to one school or community and to a one-time affair. A common ambition is to create similar outcomes across a much wider population and to enhance sustainable implementation of such a programme across many years. In such cases, the Basic Planned Change Model is insufficient to guide the further steps and we need a much wider planning framework. The Developmental Trajectory of Effective Population-based Prevention (DeTEPP model), presented in figure 11.6, describes such a wider planning framework. Before we 234 discuss the main differences with the Basic Model, we sketch different options of how the prevention project described above could be widened in ambition. First, the initiating organisation might want to repeat the school-based programme on request in some other schools and other parts of the same district. Basically, the same staged process can be repeated as in the first described project, but the stages can be completed much faster as much work has already been done during the earlier project. Goals, problem analysis, strategy and practical methods and materials might need some adjustments to the specific characteristics of the other schools or communities. As second option, the developed programme is transferred from the agency responsible for designing the model programme to another agency in the region to ensure the large-scale implementation of the programme in the coming years. For instance, the responsibility for the implementation could be transferred from the local child mental health service to schools and in the future the programme could be provided by teachers or psychologists from these schools. Performing such a transfer successfully requires several additional steps. First, schools in the district need to be motivated to adopt the programme. This requires advocacy activities to the schools to make them aware of the importance of reducing aggressive behaviour and bullying, and the availability of a successful approach that can be used by the schools themselves. Secondly, the programme, its materials and the way to implement them need to be described in a transferrable manual. Thirdly, in some cases the programme might need some adaptation to make it fit better to the specific needs and culture of some schools. For instance, adaptation might be needed as some schools may differ in cultural composition of kids in comparison to the situation in the first school. Fourthly, investment in capacity building is needed to make the schools capable of providing the programme themselves with sufficient quality. This could imply the development and implementation of a teacher training and offering supervision or consultation when the programme runs in the coming years. Finally, to safeguard a sustainable implementation of 235 the programme, its provision needs to be institutionalised by making it a structural part of the long-term school policy plan and finding the resources to make such a long-term implementation possible. It might also be the case that the programme is being developed to become a national model programme and the first school has offered the opportunity to run a pilot project. Developing an effective and evidence-based model programme that could be disseminated nationwide will require pilot implementations in various parts of the country. It also requires that the evaluation stage be well executed to get a valid understanding of the efficacy and effectiveness of the programme. Before a programme can be distributed as a national model programme, there should be convincing evidence that it works (evidence-based). This is discussed in chapter 14 on evidence of effectiveness and chapter 15 about databases of effective model programmes. Creating an effective model programme typically requires the programme to be implemented and evaluated several times on a trial basis, after which it is systematically evaluated and improved. This cycle of design, testing and improving a new prevention programme is called a programme development project. When this is done successfully and an effective model programme is available, the stage of enhancing large-scale dissemination, adoption and implementation project is started. This requires that the model programme gets national publicity to ensure that the programme is executed in as many places as possible and achieves a large reach in the population. Only a large-scale implementation can ensure preventive impact at population level, such as a nationwide reduction of bullying or depression among children and adolescents (Figure 11.5; also Hosman & Engels, 1999). The DeTEPP model builds on the earlier discussed Basic Planned Change Model. Actually, the basic model is integrated in the extended trajectory, as can be seen in the second block on programme development in figure 11.6. The dissemination and large-scale focus is represented in the lower blocks of the extended model. Finally, it needs to be stressed once more that it is rather unlikely that a single programme, even when implemented on a large scale, is able to generate a significant population-wide mental health impact. Like in the earlier discussed successful case of reducing traffic deaths, such population-wide effects, require large-scale implementation of a combination of effective interventions and measures and well-planned governance of such an integral approach. For this reason, we have included in the Trajectory Model a special planning stage that stresses the need to reflect on combining multiple effective programmes into a more comprehensive prevention approach, using well-selected packages of prevention programmes. Chapter 17 offers an illustration of such an approach. 11.7 Conclusion This chapter has stressed the need to invest in carefully planning our efforts to achieve reductions in the onset of mental disorders and improvements of mental capital in target populations. Successfully running the development and implementation of effective mental health promotion requires a stage-wise process, composed of functionally related tasks that need to be performed subsequently and each with high professional quality. We have discussed several useful planning frameworks varying from a Basic Planned Change Model that can easily be applied to all kind of mental health promotion and prevention projects, to a Developmental Trajectory of Effective Population-based Prevention (DeTEPP-model). This 236 model, aimed at reaching population-wide effects, has several additional stages targeted at combining effective interventions in a comprehensive prevention approach, and at the largescale dissemination, adoption and implementation of effective programmes. A major challenge for professionals and researchers is to combine these planning models with the necessary theories on the development of mental health and mental disorders, as discussed in the preceding chapters 4 to 9. Green and Kreuter (1999) designed a smart combination of both types of models into their integrated PRECEED-PROCEED planning model. As we have stressed, the rather general health model they use as a centre of their approach, does not sufficiently reflect the current theoretical models and scientific knowledge on mental health development. For this reason, we challenge the readers of this textbook to make their own combinations between these staged planning models and theoretical approaches such as discussed in the chapters on developmental psychopathology, the integrated stress model, social support and positive psychology. In the next four chapters, several elements and stages of the presented planning models are discussed more in detail. This applies to the tasks of goal setting (chapter 12), strategy development (chapter 13), effect evaluation and evidence (chapter 14), and the largescale dissemination of evidence-based programmes (chapter 15). Literature Bartholomew, L.K., Parcel, G.S., Kok, G., & Gottlieb, N.H. (2006). Planning health promotion programs: An intervention mapping approach (2nd ed). San Francisco: Jossey-Bass. D'Zurilla, T.J., & Goldfield, M.R. (1971). Problem solving and behaviour modification. Journal Of Abnormal Psychology, 78, 107-126. Funnel, S.C., & Rogers, P.J. (2011). Purposeful program theory: Effective use of theories of change and logic models. San Francisco: Jossey-Bass. Green, L. W., & Kreuter, M. (1999). Health promotion planning. An educational and environmental approach (3rd edition). Mountain View: Mayfield. Hosman, C. & Engels, C. (1999). The value of model programmes in mental health promotion and mental disorder prevention. International Journal of mental health promotion, 1(2), 1-14. Hosman, C.M.H. & Brinxma, J.L. (1978). Naar een beleidsondersteunend informatiesysteem in de preventie. In: H. de Bont, J. Hagendoorn, A. Otten, B. Prinsen & B. Wardekker (Eds.) Gezondheid en Gedrag: Preventie in de ambulante Geestelijke Gezondheidszorg (pp.48-76). Groningen: Wolters Noordhoff. Hosman, C.M.H. (1994). Omgaan met doelen, in de preventieve geestelijke gezondheidszorg. Nijmegen: Research Group on Prevention and Psychopathology. Nezu, A.M. (1987). A problem-solving formulation of depression: A literature review and proposal of a pluralistic model. Clinical Psychology Review, 7, 122-144. Price, R.H. (1987). Linking intervention research and risk factor research. In J.A. Steinberg & M.M. Silverman (Eds.) Preventing mental disorders: A research perspective. Rockville MD: Department of Health and Human Services. Prochaska, J. O., & DiClemente, C. C. (2005). The transtheoretical approach. In J. C. Norcross & M. R. Goldfried (Eds.), Handbook of psychotherapy integration 2nd ed. New York: Oxford University Press. Prochaska, J. O., & DiClemente, C. C. (1983). Stages and processes of self-change of smoking: toward an integrative model of change. Journal of Consulting and Clinical Psychology, 51, 390-395. Schweinhart, L.J., Montie, J., Xiang, Z., Barnett, W.S., Belfield C.R. and Nores, M. (2005). Lifetime Effects: The High/Scope Perry Preschool Study Through Age 40. Ypsilanti, Michigan: 237 High/Scope Press. Taylor-Powell, E., & Henert, E. (2008). Developing a logic model: Teaching and training guide. University of Wisconsin, Extension, Program Development and Evaluation. Tones,K., & Green, J. (2004). Health Promotion: Planning and Strategies. London: Sage W.K. Kellogg Foundation (2004). Logic Modelling Development Guide. Study questions for this chapter What are the main features and assumptions of stage models? What are the main stages of the Basic Planned Change Model? What are major sub-stages in the planned change model of the stage on problem analysis, the stage of goals setting and target group analysis, and the stage of a strategy development? Are stage models linear models or circular models? Explain your answer. What are typical features of the Developmental Trajectory of Effective Populationbased Prevention (DeTEPP), and how is this model related with the Basic Planned Change Model? What are the differences between the two models? In prevention and health promotion, different types of phase models are used. What is the main difference between the PRECEDE-PROCEED model and two other discussed planning models in this chapter? What are the strengths and what the limitations of this model? Why is segmentation of target populations needed? Offer different arguments. What is a social network analysis? What role do network analyses have in the planning of mental health promotion and prevention programmes? What is ‘logic modelling’? How is logic modelling related to programme planning? What are the advantages of logic modelling? What are the implications if one aims to develop a prevention programme as a model programme to be disseminated and implemented on a large scale? Are you able to make a link between the theoretical approaches to mental health discussed in chapters 4 to 10 and the planning models discussed in this chapter? What kinds of evaluation studies can be distinguished? 238 12 Formulating goals in prevention 12.1 Introduction 240 12.2 Importance of defining goals 240 12.3 Elements of goals: goal variable, normative element, and specifying parameters 241 12.4 Types of goals and goal variables 242 12.5 Functional goal chains and goal trees 247 12.6 Conclusions 251 Literature 252 Study questions for this chapter 252 239 12 12.1 Formulating goals in prevention Introduction Quality and effectiveness of prevention programmes are for an important part determined by how prevention experts, health promoters or other programme designers deal with goals. The better the goals are supported by knowledge from science and practice, the more specific they are defined, the more attention has been given to their feasibility and acceptance in society, the more likely it is that prevention programmes will show the desired effects. In the previous chapter, we have seen that goal analysis is the third planning stage in the development of programmes. Experience shows that prevention practitioners and policy makers in the health and social domain have major problems with formulating clear, achievable and verifiable goals. For a long time the value of conscientious goal setting was underestimated, their development and formulation generally received limited attention. To date, the prevention and health promotion sector increasingly needs to justify the quality and effectiveness of its programmes (‘evidence based prevention’) which requires well-defined and well-reasoned goals. In this chapter, we will start with explaining why carefully defined goals are so important. Next, we discuss the basic elements of goal definitions and the different types of goals that need to be defined to be able to design effective programmes. Finally, the issue of goal chains and goal trees is addressed, which is about how different types of goals are related and how these relations are based on the programme theory and theories of change. 12.2 Importance of defining goals A core feature of operating professionally on a mental health promotion or prevention challenge is a practitioner’s ability to work systematically towards achieving well-defined goals. These goals can be very different in nature, such as reducing the number of people suffering from depression, enhancing social support networks, getting stricter standards accepted on the use of alcohol in traffic, or reducing stressful working conditions. A goal can be described as a desirable situation to be achieved in the future, which differs from the present. Goals give meaning and direction to preventive actions, since they formulate the intended effects. Conversely, effects can be defined as the extent to which previously defined goals have been achieved. Goals and effects are two sides of the same coin. They are the central reference point from which choices are made concerning target groups, programme content, and intervention strategies. Different opportunities for action are weighed against each other by considering which of possible interventions contributes most to achieving a predefined goal. Let’s take an example: suppose our goal is to reduce in the population the prevalence of child abuse by 20% in the next five years. We need to discuss what will be more effective to reach this goal: (1) invest in mass media campaigns informing the public about the serious consequences of child abuse and possibilities for early detection of child abuse, or (2) improving the opportunities for stress management and educational support for young parents, particularly those living in stressful circumstances? Likewise, we have to decide whether the large-scale implementation of one specific intervention will be 240 sufficient to reach a population-wide reduction of 20%, or that such a reduction would require the implementation of a combination of multiple evidence-based interventions targeted at different groups at risk and at different risk factors. Moreover, goals provide the benchmark by which we can decide whether an intervention has achieved the desired success. When goals are missing or when they are extremely vague, we cannot estimate the success of our efforts and neither can we get feedback on the need to improve a programme further. Goals are the backbone of evaluation, as Donker stated in her book on programme evaluation (Donker, 1990). Finally, explicitly defined goals also have a democratic value. They offer the opportunity to all stakeholders in a prevention or health promotion project, including the possible consumers or target population, to have some control over the direction and value of such an activity. Explicitly formulated goals and objectives facilitate debate on the relevance of a project and needs to adapt its direction. Stakeholders usually want to recognise their own interests in the selected goals. The logic model of a programme, of which goal definitions and aimed impact is an essential part, can be a helpful tool to initiate a debate among stakeholders about goals (section 11.6). In the past, training programmes for prevention and health promotion experts did not devote much attention to the formulation and analysis of goals. Therefore, it is not surprising that goals in prevention practice were often formulated in rather vague terms and professionals struggled with making a thorough goal analysis. To illustrate this we summarise some findings from a Dutch study by Hosman and his colleagues who analysed how goals were formulated in policy documents, programme descriptions and project reports from mental health prevention in the period between 1970 to 1990 (Bosma, Hosman, de Vries & Veltman, 1994, box 12.1). The examples illustrate that when goals are poorly defined, it is hard to make any judgments about the level of success of preventive practices. They also reflect the lack of outcome research in prevention before 1990. Outcome studies started only after that period and have strongly stimulated the use of well-defined and well-reasoned goals and objectives. These observations have triggered us during the 1990s to reflect on the principles of defining goals, the differentiation between multiple types of goals, and the relation between them (Coping with goals in mental health prevention, Hosman, 1994). In the following section, we will further discuss these issues. 12.3 Elements of goals: goal variable, normative element, and specifying parameters The formulation of a goal is composed of three types of elements. The first two elements are the definition of a goal variable and a norm, and cannot be missed in any goal formulation. The third element facilitates to make goals more specific. Together they form the basic elements of each goal: as is reflected in the following formula: GOAL = goal variable + normative element + specifying parameters 241 Box 12.1 Goals and targets in the first decades of prevention Especially, in the early years of prevention in mental health in the Netherlands, goals were defined vaguely and often formulated in a barely verifiable manner. As illustration, we offer some goal definitions from prevention programmes and policies, cited in the book Practice as a source of knowledge by Bosma et al. (1994) on Dutch preventive practices from the mental health sector between 1970 and 1990: Improving contacts of people in a two-relationship, by talking and listening, finding recognition in each other, making discoveries, also related to the possibilities within yourself. Prevention of psychological imbalance. Creating opportunities for conversation. Develop early activities (for parents) in order to prevent problems, to determine their impact and solve problems. Improving the functioning of teachers and educational organisations Contribute to the emancipation of disabled persons. Develop and implement activities related to dementia problems. In none of these cases more specific versions of goal definitions were offered, neither indicators to measure the level of their achievement. It is unclear what concepts such as imbalance, possibilities within yourself, early activities for parents, and functioning of an educational organisation exactly mean and how progress could be measured. Most programme descriptions from that period describe only the targeted problem, target group and used intervention methods, without a statement on the preventive goal. From 1980 on, when a process of professionalisation of prevention and health promotion was initiated through the formulation of national quality standards, the situation improved (Prevention Report, 1980; Verburg & van Doorm, 1989), This is illustrated by the following goal definitions found in projects between 1980 and 1990: Maintain elderly (with psycho geriatric problems) as long as possible at home. Reduce relapse and recurrence by 50% in psychotic patients with DSM-III diagnosis of schizophrenia, living in district The Hague Centre-West, aged between 12-65 yrs. registered in psychiatric services between 1/1/1986 and 1/4/1987. Prevent a client career in hyperactive children. (= more than two years in treatment). Realising at the municipal level, a cooperation platform that develops preventive policies that support older people who are socially isolated or at risk to become so. Problems with using goals in prevention not only concerned their formulation, but also a lack of insight in different types of goals and how to use multiple goals within a prevention programme. From: Bosma, Hosman, de Vries & Veltman, Practice as a source of knowledge (1994). 242 The goal variable defines what we want to change, e.g. level of mental health, incidence of depression, cases of child abuse, coping skills, emotional support, health care consumption, availability of day care for chronic mental patients. The different types of goal variables that can be distinguished in prevention programmes will be addressed in the next section 12.4. The normative element describes the direction in which a goal variable is aimed to be changed or even a specific value it should adopt as a result of an intervention. The direction is often described only in broad terms such as: more, less, better, promote, enhance, strengthen, or reduce. However, terms like 'more' or 'less' are vague. For example, if a project aims "to reduce the number of depression in the elderly", this can refer to a reduction of 5%, 10%, 20%, or even more. A reduction of 20% requires different investments and probably also different prevention strategies in comparison to a reduction of 5%. Moreover, a reference date or period needs to be specified as well, otherwise such quantifying statements are meaningless. An alternative for scientists evaluating the efficacy of a preventive intervention would be to prove in a controlled trial that the intervention has reduced or increased the targeted outcome to an amount that is statistically significant. An effect size could offer an indication of the level of efficacy. Another example of a specific description of the normative element is taken from the World Health Organization (WHO). In its action report “Health for all by the year 2000", commonly established by the European countries in 1985, the following targets were defined for the whole European region (WHO, 1985): Target 5: Around the year 2000 congenital syphilis should no longer occur in the region. Target 10: Around the year 2000, cancer mortality in people under 65 should be reduced in the region by at least 15%. Target 12: By the year 2000, the current rising trends in suicide and attempted suicides in the Region should be reversed. Several specifying parameters can be added to a goal definition, for instance time and place indicators, to define more precisely where, when, in who and how a goal should be reached. Adding specific parameters is optional in a globally defined goal, but highly desirable. Box 12.2 summarises the different elements of a goal formulation. By adding specifying parameters to a general goal as: "Reducing suicides”, this goal can be translated into a much more specific and verifiable objective such as: "By offering to all general practitioners in city X the training ‘Recognition and Treatment of Depression’ and assuming that 75% of the GPs will participate, the number of suicides among GP patients in that city should be reduced by 20% within three years”. That such an objective might be realistic is supported by an early study on the impact of such a training offered to all general practitioners on the Swedish island Gotland (Rihmer, Rutz, & Pihlgren, 1995). In the 2.5 years before the training 42% of all suicides were committed after a person developed major depression, in the 2,5 years after the training this was reduced to 12% and remained low over a period of 9 years after the training (16%). Above we used both the term goal and objective. The term goal is usually applied to statements about the general aim of an action or policy (e.g. reducing depression, improving resilience of children), while terms as ‘objective’ and ‘target’ are used to refer to more specific 243 statements about what we want to achieve as in the case of the mentioned training for general practitioners. To label a goals statement as an objective, it should be measurable and tangible. Box 12.2 Basic elements and specifying parameters in goals Basic elements Target variable Normative element What do you want to change? In what direction? To what extent? Changed to which quality? Specific parameters Time Place Target group Type of intervention Costs 12.4 To be achieved by when? How permanent should be the outcome? Where? In what geographical area? In who? In which group or population segment? How? By which methods or strategy? Reached against which maximum costs? Which negative side effects should be avoided? Types of goals and goal variables The goal variable is the most essential element of each goal; it refers to 'what' should be changed or achieved. Goals of preventive interventions can be very diverse. In this section, we present a typology of goal variables and associated differences between goals. In the previous chapters about theories, we explained that prevention programmes are usually aimed at influencing multiple factors, which in the end should result in achieving a final preventive objective. Separate interventions within a comprehensive multicomponent programme can each influence a different risk factor or operate at a different system level. So, to prevent depression in adolescents some interventions might be aimed at reducing the risk factor 'child abuse' already early in life, while other interventions may try to improve problem solving skills and self-esteem in all primary school children, and a third group of interventions might be aimed at reducing negative cognitive styles in adolescents with beginning depressive symptoms. Each type of intervention is aimed at a different proximal objective while they have a common final objective, i.e. reducing the onset of depression during adolescence. To design an effective programme, a programme developer needs to understand what goals should be achieved first (proximal goals) to be able to prevent in the end the onset the targeted problem (ultimate or distal goal). Proximal goals refer always to risk, protective or positive factors that play a causal role in the developmental process of a targeted problem. Likewise, the programme developer should understand the chain of forces that he has set in motion to get a set of risk and protective factors changed in a desirable direction. Such factors 244 and forces for change are functionally related with each other: factor A influences factor B, factor B influences factor C, and factor C is directly related to the incidence or prevalence of a particular problem. To prevent a problem, the entire causal chain has to be targeted. In other words, a chain of intermediate effects needs to be achieved to realise the intended preventive end effect (domino effect). We use the example of bullying prevention to illustrate this (figure 12.1). Prolonged bullying has a significant effect on victims, such as high stress levels, traumatic experiences, and social isolation. This might result in serious depression and anxiety problems, poor school results, and even a risk of suicide. The challenge is to both reduce the bullying behaviour of the bullies and to increase resilient and assertive behaviour of the victims. This requires that we have some influence on the determinants of such behaviours, such as attitudes, social skills, the availability prosocial behaviours, and supporting norms and practical support from by-standers, parents and teachers. To get such norms and support available, peers, parents and teachers need to be involved in the anti-bullying programme and should be stimulated to provide such norms and support. This in turn might require educative actions, teacher training and consultative support from experts on this subject. Finally, to get the problem recognised at school level, to set school standards on social behaviour and to get all parties involved in such a school-based approach of bullying, the school board, school management and parent committees should decide that such a programme is needed and should be implemented. As is reflected in figure 12.1 all these conditions are functionally related. A change in factor A is more likely if we first are able to change a determining factor B. The structure of the final set of intervention goals should reflect the described functional relations between the variables that need to be changed. For this reason prevention professionals have to define ‘functional goal chains’ and ‘functional goal trees’, as we further will discuss in section 12.5. This idea of 245 functionally related goals and effects is also used in logic modelling as we have discussed in the previous chapter. Before we continue our explanation of such chains and trees, we first differentiate between different types of goals that are used in a functional goal system. We distinguish five types of goals: social end goals, health end goals, intermediate goals, implementation goals and condition-related goals. Figure 12.2 systematically shows the different levels at which effects can be realised. 1. Social end goals They describe the social, economic and other non-health effects of better mental health or less mental disorders that are achieved by a prevention or mental health promotion programme. These secondary outcomes could include, for instance, less physical health problems, better job perspectives, less need of social benefits, less crime, fewer school dropouts, higher labour productivity, and safer communities. From a health perspective, social end goals may be ‘additional effects’, but for stakeholders from outside the health sector such benefits may be the most important reason to be a partner in a mental health prevention project. It is therefore important to include such aimed benefits in the goal system of a prevention programme and in the evaluation of the intervention outcomes. What could be considered as primary and what as secondary outcomes may differ between involved stakeholders with different interests. 2. Mental health end goals These describe the beneficial mental health effects that represent the core end goals of mental health promotion and prevention programmes. These end effects could include: 246 a. b. c. d. e. f. Strengthening or maintenance of mental health (health promotion), Less new cases of mental disorders, or serious mental suffering (primary prevention), Shorter duration and lower severity of mental disorders through early intervention (secondary prevention), Improved quality of life of mental patients, less relapse/recurrence (tertiary prevention), Improved quality of care: better available, accessible, earlier, more client friendly, Less need for and less use of professional help. 3. Intermediate goals These goals refer to the intended changes in biological, cognitive, emotional and social determinants of mental health, mental disorders or care consumption. Which risk or protective factors will be targeted, depends on the chosen theoretical model, the available evidence for their influence on a targeted problem, and the level of their expected changeability with available interventions tools. We differentiate between intermediate goals that aim to influence: a. determinants within the ultimate target group, also called preventive target group, e.g. brain development, perceived stress, knowledge, attitudes, negative thinking styles, self-esteem, subjective norms, perceived support, coping and health behaviour. This could concern, for instance, all children of a primary school, young children of parents with a mental illness, bully victims, adolescents with beginning depressive symptoms, women involved in domestic violence, elderly in a low-income community. b. determinants in the social environment. These could be located in a large variety of persons, social networks or systems that could be addressed as ‘intermediate target group’ in prevention programmes. Examples: parents of children at risk, peers, a neighbourhood network, teachers, a whole school system, community organisations, primary health care professionals, managers, policy makers, a client organisation, or national organisation of district nurses. We may want to improve parenting skills, emotional support from a network, mental health skills of district nurses, prosocial school climate, or we may want to reduce domestic violence, bullying or discriminating behaviour, social isolation in a community, poor labour conditions, or traumatic events to which refugees or citizens in war areas are exposed. 4. Implementation goals These concern targets we want to meet in providing preventive interventions on a large scale and reaching a large part of the targeted population. Health population effects of preventive programmes depend largely on how successful we are in reaching all the people in a community or a targeted population at risk. In marketing, this is called ‘penetration level’. Examples of implementation objectives are “Getting within the next 4 years an anti-bullying programme implemented in at least 80% of the primary schools in a district”, or “to increase the number of children and families of mentally ill parents that we reach with our preventive programmes with 50% in the next 2 years”. Implementation goals may also pertain the quality of how prevention programmes are implemented (e.g. programme fidelity, client satisfaction, sensitivity to cultural differences, openness to consumer influence, good timing and sufficient dosage). Meeting such quality standards are found to have influence on programme effectiveness, as we will discuss in chapter 14. 247 5. Condition-related goals The successful development and implementation of a prevention programme or health promotion policy is only possible if we first assure that a range of necessary organisational, financial and professional conditions are present. Some conditions might already be available, for other conditions strong effort might be needed to get them achieved. Sometimes such an investment could even require the structure of a small project. For instance, getting a grant for the development, implementation and evaluation of a new programme requires the writing of an extensive and well-grounded grant application that has to compete with others. It might also require lobbying and developing a coalition of supporting organisations, Other examples of such conditions are: having a supportive local prevention and health promotion policy, sufficient manpower, expertise, leadership and management capacity, epidemiological and other scientific knowledge about the targeted problem, attractive project materials (e.g. workbook, videos or website) and community support for implementation. A challenging part of the work of prevention and health promotion professionals is to facilitate the availability of such conditions. This also requires special competence such as skills in policy development, advocacy, lobbying, networking, negotiating and raising funds. This section shows that goals can differ along various dimensions as we have summarised in Box 12.3. Box 12.3 Five key dimensions of goals in prevention 1. Hierarchical position in a functional goal chain or tree End goal, intermediate goal, implementation goal, condition-related goal. 2. End goals related to the stage in health and problem development Health promotion, primary, secondary or tertiary prevention 3. Goals related to the level of risk in the target population Universal, selective or indicated prevention 4. Goals according to geographical area or population size Group, neighbourhood, organisation, community, local or national goals 5. Goals differing along the time dimension Short, medium or long term goals (when?) Temporary or sustainable outcomes (how long?) 248 12.5 Functional goal chains and functional goal trees We return to the discussion on goal chains. As discussed and illustrated, goals can have a functional or hierarchical relationship with each other. Achieving goals higher in the chain depends on first completing goals lower in the chain. Functional goal chains can differ in length and complexity as is illustrated by the goal dimensions described in Box 12.3. A functional goal chain may simply consist of two levels as is mostly the case in information brochures or internet, which are based on the idea that providing information will improve knowledge and attitudes, which then will help consumers to choose a more healthy or prosocial behaviour (e.g. buying a healthy product, becoming a volunteer in local support programme for frail elderly). Longitudinal goal chains In mental health promotion and preventing mental disorders such chains are usually much longer and more complex. For instance, when we aim to reduce child abuse and neglect by parents to prevent later onset of emotional disorders in children and adolescents, preventive efforts could already start with providing preventive support to parents during pregnancy, aiming to increase their stress management skills and parental competence, and reduce smoking and alcohol during pregnancy. After birth, they may be in need of emotional and informative support from home visiting nurses and get help in strengthening their social network. When maternal postnatal depression is involved, preventive support could be targeted at reducing depressive symptoms and improving mother baby interaction. This should result in better parent-child attachment and a positive development of the emotionregulating brain system. Next, such a healthy start of life is assumed to contribute to the development of emotional resilience, social competence and cognitive learning processes, and to positive and proactive reaction styles instead of depressogene or aggressive reaction patterns. These conditions should enhance the later development of social-emotional competence, positive self-esteem and supportive social-emotional relations during early adolescence which in turn should protect the adolescent against the development of depression and serious social problems. What is this example teaching us? First, it shows that a long chain of mediating causal links is assumed between early preventive interventions and much later preventive outcomes, such as prevented depressive disorders among adolescents. At each of the links in this long chain, certain outcomes (intermediate goals) should be achieved before we can expect a lower incidence of adolescent depression. Longitudinal research is needed to test if these mediating outcomes are indeed achieved and contribute to fewer cases of depression. Secondly, partially this long functional chain of intermediate and final outcomes will be considered as an assumed domino effect resulting only from interventions very early in life. Even then, at the start of life a combination of preventive actions might be needed that each should result into outcomes that are in line with their proximal objectives. For instance, reducing the risk factor maternal depression during pregnancy or postnatal, several determinants of maternal depression and its impact on the child could be addressed. In children at special high risk, additional preventive support could be offered at later sensitive periods during this causal trajectory, for instance during late childhood and early adolescence, for instance to strengthen their social competence, positive thinking and active coping. Such a long-term comprehensive approach is built around a science-based chain of subsequent goals for action. Some of the 249 intermediate goals might be directly addressed through interventions, other intermediate goals might be assumed to change indirectly because of a domino effect of an intervention. In sum, prevention approaches are full of assumptions that need to be underpinned with sciencebased and practice-based evidence. This is exactly where the ‘assumptions’ and ‘evaluation” domain in logic modelling are referring to (chapter 11). 250 Functional goal trees Both the example on bullying prevention and that of a long term trajectory to prevent adolescent depression through early life interventions, show that some preventive approaches require the definition of not just one but several functional goal chains. These different goal chains could refer for instance to the multiple ‘roots’ of a problem or the existence of separate causal trajectories that each separately could result in the same disorder (see equifinality in chapter 6). Functional goal trees combine multiple functional goal chains. In a very simple way, this is illustrated in figure 12.4. When we want to achieve a certain goal at a higher level in a functional goal chain, it is often necessary to meet not just one but simultaneously multiple, related goals at a lower level. For instance, in the bullying example at the same time intermediate goals need to be met among bullies and victims, and at a meso level also among parents, teachers, school system and local community. Each chain in the functional goal tree might be activated by a different preventive intervention. A simple version of this idea is reflected in the lower part of figure12.4. For this reason, goal setting in multicomponent programmes requires always a functional goal tree. This should also be reflected in the logic model of a multicomponent programme or policy. Multifinal goal trees As we take the image of the tree in figure 12.4 as a visual symbol, the bottom part (“the roots”) represents the multiple causes and multiple causal trajectories towards the same outcome, represented by the trunk. This symbolises the concept of equifinality (chapter 6). The upper part of the tree (the multiple branches growing from the trunk) symbolises the different outcomes that could grow from the same set of roots and the same trunk. This reflects the multifinality concept from developmental psychopathology. In terms of end goals, it means that common risk factors or a same disorder (e.g. depression) could lead to a variety of secondary outcomes. These could include for instance the prevention of several secondary diseases, and a diversity of social and economic benefits in other sectors than health. To make the public value of investments in prevention fully visible to relevant stakeholders, we recommend to also fill in a multifinal goal tree and to use it as a frame of reference in outcome research and in contacts with stakeholders. This could also be reflected in the last column of a logic model. 12.6 Conclusions We have stressed in this chapter the importance of running a well-grounded goal analysis for every intervention, programme and policy, and of discussing goals with relevant stakeholders. The likelihood of achieving successes in mental health promotion and prevention is highly dependent on our ability to run a goal analysis and to formulate well-defined goals. Understanding the basic elements of each goal definition is a first step. We presented a classification of different types of goals and objectives and defined the dimension along which they may differ. On the one hand, together with stakeholders we have to make science-based and practice-based choices between multiple, alternative goals that will guide our preventive efforts. On the other hand, we need to understand how to combine and relate multiple goals in goal chains or goal trees that will steer our search for an effective and comprehensive action 251 plan. Goal analyses drive intervention analyses and how we build effective programmes, as well as the evaluation of new programmes. Both the goal analysis and intervention analysis require a thorough insight in mental health and prevention theories and knowledge of the long term and short-term processes that precede the development of mental disorders and positive mental health. Literature Bosma, M., Hosman, C.H.M., de Vries, W.J., & Veltman, N.E. (1994). Practice as a source of knowledge (Original Dutch title: De praktijk als bron van kennis). Research report. Nijmegen: Prevention Research Centre, Radboud University Nijmegen. Donker, M.C.H. (1990). Principles and practice of program evaluation (Principes en praktijk van programma-evaluatie). Utrecht: Nederlands centrum geestelijke volksgezondheid. Hosman, C.M.H. (1994). Coping with goals in mental health prevention. (Original Dutch title: Omgaan met doelen in de preventieve geestelijke gezondheidszorg). Prevention Research Centre. Radboud University Nijmegen. Rihmer, Z., Rutz, W., & Pihlgren, H. (1995). Depression and suicide on Gotland. An intensive study of all suicides before and after a depression-training programme for general practitioners. Journal of Affective Disorders, 35(4), 147–152. Verburg, H. & Van Doorm, J.S. (1989). Overview of mental health prevention projects 1988. (Original Dutch title: Inventarisatie RIAGG preventie projecten 1988. Utrecht: Landelijke Ondersteuning Preventie-ggz. World Health Organization (WHO). (1985). Target for Health for All: Targets in support of the European Regional Strategy for Health for All by the year 2000. Geneva: World Health Organization Regional office for Europe. Study questions for this chapter Explain why careful formulation of targets is so important. What elements does a target formulation contain? Give an example. How can you ensure that targets are formulated more specific? What types of targets are distinguished in this chapter and along what dimensions could you classify targets in preventive interventions? What is meant by a functional goal chain and a functional goal tree? How are the concepts of equifinality and multifinality related to a functional goal tree? To what does a multifinal goal tree refer? Choose your own prevention theme (e.g. depression, child abuse, COPMI) and formulate different types of goals that you consider needed as basis for a successful prevention programme. 252 13 Intervention analysis and strategy development 13.1 Introduction 254 13.2 Intervention analysis 254 13.3 Dimensions of intervention strategies 256 13.4 Strategy dimension 1: Target groups and network 257 13.4.1 Ultimate target groups 257 13.4.2 Network analysis and intermediate target groups 260 13.5 Strategy dimensions 2 and 3: Determinants and goals 263 13.5.1 Choosing which factors to influence 263 13.5.2 From determinants to intervention strategies 264 13.5.3 Criteria for selection of intervention factors 266 13.5.4 Determining the number of target factors: Mono or Multi factor approach? 268 13.5.5 Influencing factor chains 269 13.6 Strategy dimension 4: Intervention system levels 270 13.7 Strategy dimension 5: Methods and mechanisms 271 13.8 Strategy dimension 6: Setting 273 13.9 Strategy dimension 7: Time and Timing 275 13.10 Stategy dimension 8: Providers and implementation 278 13.11 Conclusions 280 Literature 280 Study questions for this chapter 281 253 13 Intervention analysis and strategy development Clemens Hosman 13.1 Introduction This chapter discusses how intervention strategies are designed to prevent mental disorders and to promote mental health, and what strategic options are available. It describes strategy development as a stepwise process of multiple choices and decisions. For most professionals translating available knowledge of mental health and processes of change into an effective prevention strategy is still a major challenge. The varying degree of effectiveness found in tested prevention programmes shows that this is indeed still a core bottleneck in our field. When we have insight in the risk factors of a problem, how can they be tackled through an effective prevention strategy? There are few models available to guide such a translation. Programme designers and practitioners need a framework that can guide the choices they need to make in developing an intervention programme. This chapter provides such a framework, both to guide the development of new intervention programmes and to improve existing programmes. 13.2 Intervention analysis An intervention analysis refers to the process that aims to design an effective prevention strategy and programme, based on the results of a problem analysis, network analysis, goal and target group analysis, and using science-based and practice-based knowledge on effective processes of planned change (Figure 13.1). The intervention analysis should answer the question: Given the problem, its determinants and social context, and given the goals that the major stakeholders want to achieve, which intervention strategy is best able to achieve the aimed effect in the target group, at minimum costs? Implementability, expected effectiveness, expected reach in the target population and expected costs of an intervention are four important criteria to assess the value of a programme design and to make a choice between candidate programme designs. When we can choose between multiple designs, the 254 preference should go to the programme that has the best perspective to be implemented on a large scale, to be highly effective, and to reach a large part of the target population against relatively low costs. What do we mean by the term ‘intervention strategy’? We define an intervention strategy as reasoned decisions on the design of a mental health promotion or prevention programme that describes how we want to reach an aimed mental health or preventive goal in a target population. A strategy always implies making a range of choices. The core question in this chapter is: What kind of choices? How do we choose? Why is a choice better than the other? Next, the chosen strategy needs to be translated into a practical programme. This includes for instance, identifying the core messages and tasks, making educational materials and a website, writing recruitment brochures, and designing exercises for participants, all summarised in a transferrable manual. Once other conditions are covered as well, including training the providers, financing the implementation and signing contracts with target organisations (e.g. schools and businesses), the programme implementation can be started. The first times a newly designed programme is implemented, usually evaluations of such try-outs still show a range of weaknesses. Just as in business, a new product needs a series of try-outs, improvements and experimental versions before the product reaches sufficient quality and maturity, and can be considered a complete and effective product. Hence, regular evaluations are needed to test the quality of a prevention programme. These try-outs may lead to the improvement of the contents of a programme (e.g. making educational texts more comprehensible and attractive), or might require certain changes in the original strategy. For example, after try-outs of an anti-bullying programme targeted at teachers and children, one might decide to add intervention components targeted at the parents. The feedback lines in Figure 13.1 from evaluation back to intervention analysis; strategy and programme represent this learning and improvement process. The probability that an intervention analysis will lead to an effective prevention programme depends on the extent to which deliberate choices are made based on high quality information. This requires an understanding of: - dimensions on which intervention strategies are based; - alternative options on each dimension to choose from; - criteria (considerations) for making the best choice between these alternatives - type of information and its quality needed for applying selection criteria in making a choice between strategic alternatives. We give an example. Part of strategy development is making a choice on the dimension of ‘determinants’. When we aim to prevent depression, we need to understand what the different risk and protective factors of depression are. As we are not able to address all known risk factors in one prevention programme, we are forced to make a choice. Which risk factor(s) should we target and what kind of criteria should we apply in making such a selection. One of these criteria should be the level of attributable risk of the risk factors. An intervention will be more effective in reducing depression onset when we target at risk factors that have the most impact on onset. To apply this criterion, we need to have valid information available on the attributable risk of different risk factors. The quality of this information differs significantly if we retrieve it from one correlation study in comparison to information from a meta-analysis based 255 on 10 prospective studies. Of course, attributive risk is only one of the criteria to apply for making such a selection. We will discuss the issue of selection of target determinants in section 13.5. Although many choices need to be made during the development of a prevention strategy, when it involves the design of a single intervention choices are still fairly easy. It becomes more difficult when, as often is the case, a multi-component programme should be designed consisting of a combination of different interventions. The selection process becomes more complex because the best choices for each intervention should be tailored to the choices of other interventions. 13.3 Dimensions of intervention strategies The design of an intervention or programme requires answers to many questions. Some questions are very common, such as on which target group should we focus, and what intervention method should be used. Other questions, however, get less systematic attention, such as: What is the best timing for this intervention? What should be the minimal duration to generate a preventive effect? Does segmentation of the chosen target population offer a better perspective to large reach? Which change mechanisms work best with this target population and social context? In practice, frequently no efforts are made to find deliberate answers to such questions, which lowers the perspective on success. The strategy model, described in this chapter, differentiates between eight strategic dimensions (Figure 13.2) and some sub-dimensions. On each dimension, the professional has to make a reasoned choice between a range of options. In combination, the choices within these dimensions define the identity of a specific prevention strategy. They provide the blueprint of a particular prevention programme. Differences between two prevention programmes can always be traced to differences in choices at one or more of these dimensions. We first introduced these dimensions in the chapter 11 (Basic Planned Change Model, section 11.5). Above, they are depicted in the circle of strategic dimensions (Figure 13.2). In the next 256 sections, we will discuss each of the eight dimensions separately. In each of these dimensions a leading question is applicable: 1. 2. 3. 4. 5. 6. 7. 8. Target group and network: Who? Determinants: What change? Goals: What goals should be achieved successively? System Level: intervene at what system level? Setting: In what setting? Methods and mechanisms: How to bring about change? Time: When and how long? Provider: By whom? Box 13.1 presents an elaborate overview of questions linked to each strategic dimension. 13.4 Strategy dimension 1: Target groups and network In general, we differentiate between two types of target groups: the ultimate target groups in which we want to achieve mental health benefits, and intermediate target groups that we involve to reach and influence an ultimate target group, or to change risk or protective factors in the social environment of the ultimate target group. We discuss them separately. 13.4.1 Ultimate target groups Mostly when we speak about target groups in prevention we refer to ultimate target groups. The term ‘ultimate’ is used when a programme is in the first place targeted at an intermediate target group, such as parents, teachers, or public health nurses. For reasons of simplicity, we will use ‘target groups’, adding ‘ultimate’ only when relevant. We use the terms ‘target group’ and ‘target population’ interchangeably, as is common in our field. How do we define and select a target group? What kinds of target group or population definitions are used in mental health promotion or prevention programmes? Just as an illustration, we list a range of common target groups in preventive work in our country: people with depressive symptoms low SES women with depressive complaints suicide attempters parents, or more specifically: parents with poor parenting skills primary school children victims of domestic violence or child abuse children with early-stage behavioural problems children of parents with a psychiatric problem or addicted parents babies and infants of depressed mothers pregnant women under stress patients with a first psychotic episode employees suffering from work stress whole population of the city of Maastricht and surroundings 257 Box 13.1 Making choices on strategic dimensions Target groups and network At which target population, intermediaries or network is an intervention targeted? Are they defined with use of inclusion and exclusion criteria? Are whole population groups approached? Groups at risk? How defined? Does the target population need segmentation in subgroups? Which target groups will be approached directly, which indirectly and through what intermediary target groups (e.g., nurses, teachers, community leaders)? Goals Which goal chains need to be realised by the interventions? Mental health, health, social and goals? Intermediate goals in different target groups? Implementation goals? Capacity enhancing goals? Determinants Which risk and protective factors should be influenced to get a preventive effect? Problem-specific risk factors or broad-spectrum risk factors? System levels At which system level or levels is the intervention targeted (micro, meso, macro level)? Settings In which setting(s) can target groups be reached and determinants be influenced? (E.g. school, work, health care, justice, Internet) Methods and Mechanisms (input) Which intervention methods and influence mechanisms need to be used to be effective? - Intervention methods, e.g. education, legislation, training, organisational advice - Influence mechanisms, e.g. knowledge transfer, persuasion, modelling, reward, sanctions Timing and dosage At what moment (e.g. media attention), developmental stage of the lifespan, and stage of problem development should an intervention be offered to be most effective? Short or long-term intervention? Which frequency and duration of sessions, messages? Providers Who could most successfully provide the intervention? Volunteers, peers, teachers, community leaders, primary health care workers, mental health professionals, prevention or health promotion specialists? Screening this list of examples, it is evident that target groups are defined in different ways. First, they may be defined by demographic features such as gender, age or social indicators (e.g. low SES, children, women, and employees). Secondly, according to the difference between universal, selective and indicated prevention, secondary prevention and relapse prevention, target groups can be defined according to their risk level (low, high or ultra-high 258 risk) or problem stage (e.g. with symptoms, first episodes, past episodes, or none of them). Thirdly, target groups can be identified by the presence of a risk factor (e.g. child abuse, maternal depression, stress). Fourthly, they could be defined by geographical characteristics (e.g. health region, city of Maastricht, or a specific neighbourhood). Fifthly, target groups might also be defined by the setting in which they could be reached, for instance, school children, patients of general practitioners, or visitors of house parties. It is also common to combine such target group definitions, such as in the case of low SES women with depressive complaints living in a high-risk neighbourhood in the City of Maastricht. Limiting the width of a risk group definition: A major issue in defining a target group is how broad or small we define such a group or population. In mental health promotion, it is common to address large groups, such as all schoolchildren in certain grades, pregnant women, parents or elderly. In such cases, we aim to improve mental health conditions in all persons belonging to such a group. Many prevention programmes, however aim to target groups at high risk, for instance children of parents with a mental illness (COPMI), employees with work stress, or patients with a first psychotic episode. The challenge is to define groups at high risk in a such way that the group (a) includes a high number of people that will actually develop a mental disorder in the future and (b) a very low number of people who will not develop such disorders. The better we are able to make such predictions and selections, the more efficient we will use the limited resources for prevention. It is, however, not possible to know with 100% certainty who will and who will not develop a mental disorder in the future. For this reason, we are bound to the concept of ‘high risk groups’, that include by definition also persons who never will develop a disorder (false-positives). There exists a large variation in how precisely we define groups at high risk. The less precise, the more persons we include that do not need the offered preventive support. What can we do to avoid including them? The main strategy is to increase the number of risk predictors as inclusion criteria in the target group definition. McGorry and his colleagues, who aim to prevent the onset of first psychotic episodes in young adolescents (McGorry, Killackey, & Yung, 2008), provide a well-known example. Originally, they defined the group at risk as those adolescents showing an increased number of (pre) psychotic symptoms (precursors). However, many of such precursors do not specifically point at a developing psychosis. As a result, their risk groups included many adolescents who actually did not develop a first episode. To improve their risk definition, they redefined their target group as adolescents at ultra-high risk by combining the presence of precursors with an indication of a family history of psychotic illness. The same issue applies to defining the group of children at risk because they have a parent with a mental disorder. Several of the interventions discussed in chapter 17 are targeted at “children of parents with a mental illness” (COPMI). This raises two problems. First, defined as such it refers in our country of 16 million people to a population of 1.2 million children. To address them all with supportive preventive interventions is an impossible task that far transcends the available resources for prevention in our field. Secondly, although being a population at high risk we do know that a substantial part of these children will cope well with their situation and will not develop serious problems. To reduce this target group in size and to prevent the inclusion of a large group of risk false positives, the children at high risk could be identified by the presence of a mental disorder in their parents in combination with a range of other risk factors (e.g. chronicity of the parental disorders, poor parenting conditions, 259 lack of social support). As we discussed in section 4.2, it is especially the accumulation of risk factors that put people in a high-risk position. Segmenting target groups: Another common practice in dealing with a large population at risk is the use of segmentation, that is subdividing the target group in multiple segments. This is a technique frequently used by commercial companies to better attune their products to the needs of their customers and in the end to increase their market. The large diversity in types of smart-phones, tablets and phone-internet contracts serves as a good example. In the end, more customers will be reached, there will be more customer satisfaction and the product will be sold more often. For the same reasons this marketing principle is applied to target populations in prevention and health promotion. Segmenting target groups in our field has two major purposes, reaching a larger part of the target population and better serving the varying needs and adapting to various cultures within the target population. To segment a target population, the same features can be used as we have suggested above when discussing the different ways target groups can be defined: demographic variables, stage of problem development and level of risk, type of risk factor, geographical nominators, and setting or channel through which a segment could be reached. We take the target group of people with elevated levels of depressive symptoms as an example (indicated prevention). Depression prevention to this as target population has been segmented in age groups (adolescents, adults, elderly), using other demographic and cultural variables (e.g. low SES women, ethnic minorities), risk factors (e.g. refugees, children of depressed parents, victims of domestic violence), or setting for case-finding (e.g. patients of GP’s, hospital patients with a heart attack). For each of these subgroups special recruitment strategies have been applied and tailored interventions have been developed. 13.4.2 Network analysis and intermediate target groups A next choice in this target group analysis is whether to involve intermediate target groups in the prevention strategy (Figure 13.3). These are persons or entities in the social network of the target group or in the wider environment that are addressed because they are in a position to affect the development of risk or protective factors. Their influence may be based on different roles, e.g. caregiver, companion, primary health care professional, teacher, school dean, employer, journalist, hospital, government, or police. They can influence the target group e.g. on the basis of their frequent contacts with the target group, their position of trust, emotional bond, their role as information source, while they exert normative functions or by their possibility to give sanctions or rewards. Figure 13.3 shows that different types of strategies can be chosen to influence the ultimate target group, in this example, adolescent girls who are at risk of developing an eating disorder. A direct approach of the target group is possible, but also several indirect approaches or a combination of both. Target group chains consist of a series of intermediate target groups that can exert influence on each other successively. For instance, a prevention programme can be targeted at teachers who address both the girls at risk directly, as well as the students in the classroom as a whole and the parents. In these last two cases, the aim is to improve their support to the girls at risk and to reduce negative modelling behaviour. In making the choice for using an indirect strategy, it is important to be aware of the advantages and disadvantages of such a strategy. We discuss them in Box 13.2. 260 Box 13.2 Benefits and disadvantages of an indirect approach Benefits of an indirect approach Indirect intervention strategies are often used in prevention programmes because they have several benefits. The most important benefits are: - More efficient: an indirect approach can reach a much larger part of the ultimate target group. Compare for example, a depression prevention course of 8 meetings with 10 participants in a group to a training course for 15 general practitioners who together might reach about 5000 persons with elevated levels of depressive symptoms. - Less social distance: local key figures are better informed about the social situation of the target group and have a smaller social distance to this group. This makes them better able to adapt educational messages to the target group and its specific situation, e.g. a teacher, neighbourhood, social worker. - More influence: a prevention expert does not always have the right position to influence a target group, e.g. because the target group does not know him or the social distance is too large. Local key figures have more influence because of their social position as reference person, opinion maker, teacher role, charismatic leader, communication position. - Prevention of proto-professionalisation and social iatrogenesis (chapter 1): an indirect strategy can strengthen the preventive qualities of non-professional care systems in society. This can contribute to long-term problem solving in the target groups and key persons and they become less dependent on professional health care to solve their psychosocial problems. - Prevention of stigmatisation: when an intervention is directly aimed at a certain group at risk, this might lead to stigmatisation, e.g. children of addicted parents. This is less likely with an indirect strategy, because the risk group is offered the preventive support in a subtler way through existing informal or service-related contacts e.g. a general practitioner or teacher. Disadvantages of an indirect approach The indirect approach has also some disadvantages. One disadvantage is that intermediate groups, such as teachers or community nurses, can be less knowledgeable than prevention experts are on how to perform preventive interventions with high quality. They might be less motivated to implement the interventions as intended or with a lower dosage than is needed. When a prevention expert transfers the implementation of effective prevention programmes to primary care professionals or other key figures, he loses control on the implementation, and its quality and continuity. Take for instance the case that a prevention expert has designed and implemented a social skills training for children in a school. They train the teachers to implement the programme themselves in the future, but there is always a chance that the school or the teacher will decide not to run the programme in the next year due to lack of time. In Figure 9.5 in chapter 9 on social support, a wider network analysis of this group at risk for eating disorders is presented that also includes relevant social systems at meso and macro level. 261 Running a network analysis. For the choice of who to involve in an indirect strategy, we first need to run a social network analysis as described in section 11.5 (Basic Planned Change Model) and chapter 9 on social support and social networks. To do so, we need to draw a map of the social network or potential social network around the target group, as is illustrated in figure 13.4 using the example of children of parents with a mental illness (COPMI). The relations within a social network can be mapped, by positioning the target group (COPMI) as a circle in the middle, and the individuals or social systems that have contact with the target group placed at a shorter or longer distance from the centre connected by lines. The length of the line reflects the social distance to the target group. relevant, mutual When connections between the partners in the social network can also be drawn. In figure 13.4, the first figure depicts the "ideal situation", the lower diagram shows the situation as often encountered in COPMI children: important contacts with people from the social network are missing. Next, answering the following questions can further extend a network analysis: 262 What preventive functions do the various persons and social systems in the network have towards the target group and what is their impact on risk and protective factors? For example: providing emotional support, informational support, setting standards and penalties, model function, practical help, providing social influence. Is there a need to improve the quality of certain support functions within the network? Is there a need for better coordination between separate support systems in the social network, for example to improve cooperation between district nurses and mental health professionals? Is it possible and desirable to expand the social network and thus its preventive capacity, e.g. by bringing the target group in contact with fellow sufferers? For a more extensive discussion of social networks and functions, we refer to chapter 9. 13.5 Strategy dimensions 2 and 3: Determinants and goals The third dimension involves the selection of risk and protective factors that will be directly or indirectly influenced by preventive interventions. This could concern factors such as knowledge, attitudes, coping skills, child abuse, parenting behaviour, social support by peers, poverty, or a school policy on bullying. For a more extensive discussion, we refer to the chapters on theoretical approaches and on specific mental health problems such as depression and COPMI. 13.5.1 Choosing which factors to influence Preventive programmes never aim directly to reach a preventive end goal, for instance preventing the onset of a depressive disorder. Preventive interventions primarily aim to influence certain risk, protective or mental health promoting factors within a target group or in their social environment. If we are successful in changing these factors (proximal goals), it is expected that shortly or on the long run the intended preventive end effect will follow. The nature of the chosen prevention strategy depends among others on the kind of determinants that are targeted. Take for example the prevention of work incapacity due to mental problems, such as depression or burnout. When oncoming work incapacity is attributed to a lack of stress management skills among employees, preventive efforts require a different strategic approach than when work circumstances are seen as the most important cause. In the first case, a stress management-training programme for employees at risk would be a proper strategy, while in the second case policy making on setting quality norms for work conditions, and consultancy to managers and the board of directors would be more appropriate. To choose which determinants an intervention programme should target at, the programme designer should have thorough knowledge on malleable causes and the developmental processes of a targeted problem. After the problem analysis is completed successfully, such knowledge should be available. Next translating the analytical knowledge of multiple determinants into an effective intervention strategy is one of the most challenging parts of designing a preventive intervention. Practitioners experience problems with making such translations, as we have observed in our study among project managers in this field 263 (Bosma, Hosman, de Vries and Veltman, 1994). At least four considerations or questions play an important role: What kind of strategic options do the different theoretical approaches offer? What justifies the choice for specific risk or protective factors as target of intervention, while not choosing others? Which strategic intervention options are available to influence a selected determinant? How to deal with multicausality? Should prevention programmes try to influence each of the known determinants? What consequences do mutual relationships between determinants have for making a strategy design? 13.5.2 From determinants to intervention strategies As discussed in previous chapters, a variety of theoretical models exists to guide strategy development. These include biological models, cognitive-behavioural models, stress models, social and community models, and models specifically designed to describe the developmental processes of specific disorders. Each of these can be chosen as a framework to select factors as target for mental health promotion or preventive interventions. For instance, in chapter 5, we discussed how the different factors in cognitive-behavioural models could each be used as focus for intervention to influence health behaviour (Box 5.2), such as the reduction of smoking and alcohol use. In the scientific literature on mental disorder prevention, stress and coping models are often used. These models are very suitable to identify alternative preventive strategies. For instance, in preventing the onset of depression or anxiety disorders strategies can be focused on reducing stressful life conditions, increasing problem solving skills and positive thinking, or strengthening social support and social networks. Box 13.3 presents an overview of prevention strategies that can be based on the factors and processes in the Integrated Stress-theoretical Model (IS-model, chapter 7). Each of the factors offers an entrée point for multiple preventive interventions. The intervention options described in Box 13.3 are mainly targeted at individuals or groups of people, so at micro level. The IS-model can also be applied to higher system levels, such as schools, companies, neighbourhoods or national policies. In schools, for instance, it is possible to identify school-based stressors (e.g. frequent violent behaviour, burnout of teachers), school ideologies (norms and policies), school competencies to deal with social problems, provision of opportunities for social-emotional learning, and the presence of a supportive network (e.g. parent involvement, student mentors, emotional support by teachers). The application of the IS-model to the school level can be used to design prevention strategies that aim to improve the functioning of the school and provide a supportive and mental healthpromoting environment to children and adolescents. The IS-model and the developmental psychopathology approach also include a developmental dimension, which offers a framework for making important strategic choices on the time dimension. For instance, it instigates a choice when to address risk factors and protective factors, in the period preceding the onset of a mental disorder, when problems are already beginning to emerge; or to address them during the period in the lifespan where they start to develop, mostly very early in life. Aggressive behaviour can be more effectively addressed when such sustainable behaviour styles start to emerge in childhood than when such behaviours are already deeply rooted in a person and the peer environment during 264 adolescence. In this respect, also the growing knowledge of the impact of stress exposure during pregnancy and infancy on the developing cognitive-emotional brain systems of the child is highly relevant for making a strategic decision about timing of interventions. In sum, when deciding which factors should be the focus for preventive interventions the following questions need to be answered. Should an intervention strategy address: 1. 2. 3. 4. 5. 6. Risk factors and/or protective factors? Problem specific factors and/or non-specific factors? Factors at micro level, meso level or macro level? Biological, behavioural, physical or social factors? One factor or a combination of factors? At which developmental period of the life span? Box 13.3 Prevention strategies derived from the Integrated Stress Model 1. Influence stressors Reduce external stressors: eliminate or reduce sources of stress in the environment, e.g. discrimination, child abuse, bullying, bad work circumstances Reduce internal stressors: eliminate or reduce sources of stress caused by own behaviour, e.g. too much drinking, aggressive behaviour, work too much Stressor avoidance: prevention exposure to stressors or remove someone from a threatening situation, to prevent long term exposure, e.g. avoid unsafe places, outplacement of children, women protection shelters Stress induction (stress inoculation): temporarily increase stress to increase resilience e.g. vaccination, survival trekking, confrontation with stressors through role play 2. Satisfy compensating needs Improve compensating situations: situational possibilities to satisfy other needs, e.g. extra relaxation possibilities, extra compensation for heavy work, extra support Behaviour influence: promote behaviour that results in the satisfaction of other needs in stress situation, e.g. learn to do nice things in times of stress, learn self reward, choosing a more satisfying pass time 3. Influence goals, values and needs Alerting: alerting of own goals, needs and values, e.g. alerting to a repressed need for attention or support Prioritising: make priorities among the competing goals that need to be achieved, e.g. in times of too much stress or conflicting interests Adaptation: adapt goals to possibilities and restriction, e.g. adapt demands, make more realistic goals Emancipation: breaking through adaptations to repressing ideologies and values in society, e.g. after insights on the role of our education and sex-stereotyped ideas. Valuing positive prevention: promote prevention-oriented goals and values, e.g. through education about negative consequences of risky life styles, positive psychology 265 4. Increase competences (problem solving capacities) Problem specificity: improving non-specific, generally applicable skills and/ or problem specific competencies, e.g. enhance problem-solving skills and selfconfidence, or knowledge or specific mourning rituals or parenting skills Stage-related: improve skills needed for a specific stage in the problem solving process (problem analysis, think of solutions), e.g. understanding the causes of recurrent depression, learning more ways to reduce the risk of a depressive episode Factor specific: cognitive, emotional, social, physical, positional (influence) and/or physical competences, e.g. improve knowledge, confidence, social skills, physical fitness or dominance, influencing attitudes, biochemical processes and genetic characteristics 5. Improve social support and reduce social limitations Improve support seeking skills: e.g. information about support possibilities, learn to ask and receive social support, learn to make friends Create new support systems: formal or informal support systems of temporary or permanent nature, e.g. non-professional support through self help groups, counsellors and fellow patients, or professional support through help lines, crisis relief Improvement quality of informal support: activation of support from family, friends, colleagues or peers, improve their support capabilities through education, training or advice Improve quality of professional support: improve accessibility of help (awareness, image, range, price), make support more responsive to needs of the target group, more customer-friendly and less iatrogenic (damage by care), better cooperation and coordination between various services 6. Improve feedback and learning processes Enhance learning abilities: improve the ability of individuals or organisations to learn from previous experiences and their own behaviour, e.g. by promoting positive attitudes towards feedback, learning to accept feedback, capacity for critical self-reflection, translating feedback into successful solutions Feedback from network: improving the size and quality of feedback, e.g. improve ability to give constructive feedback, reducing the issue of bias and demotivating feedback Organise additional feedback: temporarily provide additional feedback by peers or experts (experienced experts) through diagnostic research, professional consultations, awareness-raising questions, involve experts-by-experience” 13.5.3 Criteria for selecting targeted factors Theories and empirical research about the development of mental health and mental disorders include always multiple determinants as we have seen. Each of them represents a possible target for intervention. Professionals and programme designers have to choose from them. On which factors should a prevention or mental health promotion programme focus? Making a reasoned decision requires that we are able to apply explicit selection criteria. What are relevant criteria to take into consideration in making such a choice? We suggest the following: 266 1. Impact of a factor on the onset of the targeted problem (see also section 4.2): The larger the impact (attributable risk), the larger the preventive effect that can be expected from successfully influencing this factor (preventable fraction). The maximum achievable preventive effect will - even with a perfectly successful intervention - never be greater than the influence of this factor on the health problem. The same applies to determinants of positive mental health. The importance of an etiological factor depends not only on the strength of its association with the onset of a problem, but is also determined by the prevalence of that factor in the population (Population Attributable Risk, PAR). Which part of the population is exposed to that factor? The larger this proportion, the more people could benefit from successfully addressing that factor through interventions and public measures. 2. The spectrum of expected outcomes. As we have discussed several times in this textbook, a risk factor, protective factor or mental health promoting factor shows mostly a wider impact than just at the onset of the targeted mental disorder or mental health indicator. They might also influence the onset of other mental disorders and physical diseases, or contribute to a range of social or economic benefits. Choosing between determinants as target for intervention requires that we take into account a wider spectrum of possible positive outcomes. This will increase the public value of an intervention programme and will make the intervention attractive to a wider group of stakeholders and possible sponsors. 3. Changeability. Some factors are more easily changeable with currently available intervention strategies than other factors. For instance, is it easier to increase knowledge and skills or to change attitudes and beliefs, than to change personality features or social factors such as poverty and war-related trauma’s? Some factors are not or hardly changeable such as genetic profiles, death of a partner, or natural disasters (e.g. earthquake). The level of influence we can achieve is of course relative. It depends on the available knowledge, current state of intervention technology, power positions and available resources. The main source for assessing the extent to which a factor can be influenced is, of course, earlier research on interventions that aim to change such factors. A common indicator for changeability is the mean effect size of such interventions, computed across multiple controlled intervention trials. In addition, outcomes of qualitative intervention studies offer useful information on how interventions work and what their value is for consumers. To illustrate the relevance of some of these criteria, we offer a simple calculation example. Suppose a particular risk factor explains 18% in the emergence of a specific disorder and a prevention programme is effective in changing that risk factor in 60% of the participants, then the expected reduction of the risk by the intervention is 0.60 x 18% = 11%. If the intervention only reaches 20% of the target group in the society, then the maximal impact of the intervention in the entire population will not be more than a risk reduction of 2.2%. So, the larger the influence of a factor is on explaining the problem, the better this factor can be influenced, and the more people can be reached by the intervention, the more impact we can expect from a preventive intervention on the incidence of the problem in the population. In addition, also other considerations need to be taken into account such as the public 267 acceptability of the measure to influence those factors and the associated costs. These are criteria connected to the choice of the intervention method, which will be discussed later. 13.5.4 Determining the number of targeted factors: Mono or Multi factor approach? A next strategic choice relating to determinants is choosing between a single-factor approach and a multi-factor approach. It is commonly accepted that health and diseases should be considered as multicausal and this applies to mental health and mental disorders as well. Even when people are exposed to a very powerful risk factor or 'agent' (virus, bacteria, earthquake, child abuse or other traumatic event, etc.), the effects on health are also dependent on the presence of many other factors (e.g. immunity, emotional resilience, coping skills, social support, protective measures). One might conclude from this that a multi-factor approach should be preferred above a single-factor approach, and this is what many authors have concluded in the past (Mrazek and Haggerty, 1994, Yoshikawa, 1994; Bosma & Hosman, 1990). The more determinants are changed in a favourable direction, the more likely prevention investments will result in less new problems in a target population. A multifactorial approach is, however, not necessary and even not desirable in all cases. There are several good reasons to state that under certain conditions programmes should be targeted at only a few or even just a single mental health determinant. The first reason is the need for efficiency and limiting the cost of prevention programmes. It is likely that multifactorial programmes are more expensive because they frequently use a multicomponent approach. Secondly, the more causal factors you want to address within a restricted time span of a prevention programme, the less time can be spent on each factor. This could mean in the end that none of the factors gets sufficient time and attention (programme dosage) to be changed, resulting in an ineffective programme. Third, in terms of attractiveness of programmes, a focus on a determinant that has wide interest for the target population or involved stakeholders (e.g. parenting, domestic violence, emotional resilience, support systems in a community) might strategically be preferred over a programme that has a psychiatric disorder as a central focus. In the following cases, a single-factor approach may be sufficient or preferable: 1. When a prevention programme, targeted at a single common risk or protective factor, is able to generate a broad spectrum of positive mental health, health and social effects (broad-spectrum prevention, section 3.3.3). 2. When a problem analysis and multiple prospective studies have provided evidence that from a range of known causal factors the attributable risk (AR) of one factor exceeds by far the AR of the other factors. 3. When a single-factor programme or measure has the potential to reach a large proportion of the population against low or reasonable costs. This applies, for instance, to internetbased programmes that aim to disseminate knowledge on positive parenting, nationwideimplementation of an anti-bullying programme at schools, or a public campaign to reduce domestic violence. 4. When multiple risk factors interact with each other and the impact of Factor A (e.g. high stress level) depends on the presence or absence of a factor B (e.g. problem solving capacity, social support). In such cases, programmes that either reduce the source of stress, or increase coping skills, or strengthen social support systems might be sufficient to prevent the onset of a serious mental health problem. 268 5. When a programme targets a risk factor that triggers a chain of other risk factors over time. This applies, for instance, to children who are exposed to early traumas. 6. When the onset of a mental disorder (e.g. depression) is caused by an accumulation of risk factors. Removing one risk factor might reduce the number of risk factors below an evidence-based threshold, or to a level of stress that people are able to deal with. To conclude, making a choice for a single-factor or multifactorial approach requires careful consideration and thorough understanding of how determinants are related to mental health problems and other outcomes, and how determinants are mutually related. 13.5.5 Influencing factor chains We already mentioned the possibility that risk factors could form a causal chain that may extend even across several stages in the life span. For example, factor A during infancy or early childhood influences factor B, factor B affects factor C, factor C affects factor D, and the latter has a direct impact on the emergence of disorder X during adolescence. Mostly causal chains are assumed that concern shorter periods: peers using drugs show modelling behaviour to young adolescents, communicate about drug use and successfully exert pressure to try-out drug use. Consequently, some adolescents may start to experiment with drug use. In response, they receive appraisal and status from their deviant peers. This first experimentation and peer feedback lowers the threshold for drug use in near the future. In all prevention programmes, such causal chains are assumed, explicitly or implicitly. Commonly, it is expected that a successful influence on factor A will also have a beneficial effect on later risk factors in the chain and that these mediating effects ultimately will reduce the likelihood of problem behaviour X or disorder Y. It is a common assumption that influencing early factors in the chain will trigger a preventive domino effect. Below we give some examples of domino effects based on assumptions related to the integrated stress model. - Stress inoculation training includes temporary planned increase of stressors under relatively safe conditions that is assumed to strengthen the resilience of the target group (emotional competence), which will increase adequate coping behaviour in future stressful situations, which ultimately will contribute to a lower risk of psychiatric problems. - A social skills training aims to encourage help seeking behaviour, which is expected to lead to offered social support from the direct environment. This support could contribute to compensatory positive experiences, more realistic goals, more knowledge (competence), or to social influence in eliminating stressful working conditions (stressors). - By training GPs in dealing better with grief issues in their patients, the GP learns more skills to support a grieving patient. The perceived support the GP will help the patient to cope with mourning and reduces the chance that it results in unresolved grief and ultimately reduces the risk of depression or an adjustment disorder. Often, however, these effect chains remain implicit, which makes is difficult to check for thinking errors or deficiencies in a programme. At each link in the effect chain, the process can stagnate, so the domino effect fails. In such a case, we consider to add additional interventions later in the chain where the probability of stagnation is the biggest, to secure the effect chain. 269 13.6 Strategy dimension 4: Intervention system levels Suppose you want to reduce the onset of eating disorders, specifically anorexia. A common strategy is to identify female adolescents at risk due to their beginning pathological dieting behaviours. The same applies to female models on the catwalk who represent a well-known group at high risk for eating disorders. Next, such females are offered face-to-face or through the Internet, a cognitive behavioural programme targeted at challenging their beliefs making use of cognitive dissonance theory principles. Outcome research shows that this is an effective strategy to change their beliefs and behaviour, resulting in substantial evidence-based reductions of incidence of eating disorders (Taylor et al., 2006). Among females who participated and had a high risk because of beginning risky dieting practices the onset of new cases of eating disorders dropped over 40% across a follow-up period of 3 years. The limitation is, however, that it works only with females at risk who are willing to participate in the internet-based intervention programme. A totally different strategy at macro level, however, can be found in Spain where legislation has been accepted stating that women with a Body Mass Index (BMI) of lower than 18 are not allowed on the catwalk, which is a powerful measure that applies to all female models, which means in principle a 100% reach. To date, no studies are available on the outcomes of such a legislative measure. These two examples show that different intervention methods each at different system levels have their own strengths and potential to be effective. Box 13.4 System levels in approaching target groups Level Individual Examples individual education or advice Family treatment to prevent relapse domestic violence Group group training or prevention course Network advising a self-help organisation Organisation school-based social emotional learning education Local community implementing Communities-that-Care programme Population category Entire population websites, brochures and DVD’s on parenting education Educative soap series to reduce stigma on discussing mental health problems Defining a target group does not mean that it is clear how this target group can best be reached and at what system level. It is possible to develop contacts with preventive and intermediate target groups at different system levels, as illustrated in Box 13.4. In more general terms, we differentiate between interventions at micro level (individual, family, group), meso level (district, school, business), and macro level (legislative, social ideologies, mass media, subsidies, anti-discrimination policies). Preventive interventions provided by health care or mental health care professionals usually are completely restricted to the micro level, i.e. they target individuals, aiming to influence person-based risk or protective factors and using micro-level methods of change. Given the evidence for social determinants of mental health and mental disorders, and the need to increase the mental 270 health promoting quality of health services, schools, workplaces and communities, investments in interventions at meso and macro level are highly needed. Activities directly targeted at individuals, families, groups, schools or community leaders offer more opportunities for personal influence, interaction feedback and adapting the intervention to the circumstances of the target group. This is more difficult when actions are targeted at higher system levels (e.g. through policies, measures, legislation, mass media). On the other hand, through higher-level interventions many more people can be reached. The choice of system level will therefore depend among others on the relationship between investment, expected impact and expected reach. 13.7 Strategy dimension 5: Methods and mechanisms This dimension involves two types of choices that are closely related and together determine how an intervention programme aims to achieve aimed changes in risk and protective factors. It involves both the choice of one or more specific intervention methods and the choice of specific influence mechanisms. Box 13.5 Working mechanisms and active ingredients Information Emotional support Persuasion Recognition Self-discovery Appreciation Self-reflection Reward & punishment Feedback Setting norms & standards Incentives Conflict strategy Modelling Coercion and power Exercises, assignments Preventive medication Homework Economic support The choice of an influence mechanism revolves around the question which active forces or ingredients we want to use to exert influence on a risk or protective factor. We may use, for instance, information, providing emotional support, giving feedback, modelling or setting norms. These are basically the same questions as those made in psychotherapy, i.e. what are the active ingredients or critical change factors that the psychotherapist applies in a therapeutic approach, for example modelling, instrumental conditioning, a warm therapeutic relationship or behavioural training (Bergin & Garfield, 1994, 2013; Arkowitz, 1997). Box 13.5 lists a number of mechanisms and ingredients that are frequently applied in the context of preventive and health promotion interventions. Prevention works with a large variation in intervention methods. An overview of possible methods at different system levels is presented in Box 13.6. From this list professionals or other stakeholders select one and preferably a combination of several methods. The choice of methods and influencing mechanism are not completely separate. Some intervention methods can be defined by their use of specific influence mechanisms. For 271 instance, preventive laws make use of norms, punishment or coercion. In the consultation method (Caplan, 1970) information is used, but also advice and stimulation of self-discovery. Workshops often use assignments, modelling, practical exercise, self-discovery and feedback. For a successful intervention, it is important to choose an intervention method and a selection of influence mechanisms that fit well to the nature of the target group, the social context and the type of determinant that we want to influence. Box 13.6 Preventive intervention methods at micro, meso and macro level MICRO LEVEL Treatment methods Early case-finding and recognition and early treatment, crisis intervention and crisis support, preventive oriented family therapy, preventive medication Individual education Oral education, personal advice or consult, home visits, written materials (e.g. brochure, flyer, indicator, manual) Self-observation Keeping a diary, doing self-research, using a screening or checklist, or electronic reminders and self-tasks through smartphones and tablets Self- help methods and social support: ⋅ Self-help booklets and using self-help websites ⋅ Mobilising and improving social support by family, friends, neighbours, colleagues, peers, buddies and volunteers, access to support groups provided by nonprofessional organisations, writing and sharing ego-documents Referral and Mediation Referral to self-help organisations and professional help; mediation (e.g. divorce) Group methods and training Local talk groups, ‘play and talk’ groups for children, body work groups, fitness, skills training and lectures 272 Box 13.6 cont’d MESO LEVEL Health care organisations Developing and implementing organisation-wide protocols for preventive oriented care Introducing system of stepped care and blended approach (face-to-face + E health) Group education (intermediaries) Graduate or postgraduate curriculum or course; Symposium, forum discussion, info market; Group consultation or training, workshops; Written education (manual, professional guidelines or E-education Consultation and supervision (intermediaries) Case-oriented consultation; professional-oriented consultation; Programme-oriented consultation; professional supervision Network development, collaboration and coalition development (intermediaries) Working group, project group; local task forces and committees local professional networks, inter-organisational collaboration and coalitions; community organisation Organisational consultancy (e.g. to schools, companies, hospitals, NGO’s) Consultancy on: self-help, work processes, quality of work environment, developing and implementing quality monitoring systems, organisational policies and policy plans Staff training and capacity building; hiring a temporary prevention expert Supporting inter-organisational collaboration Developing new organisations or services Local consultation office, parenting shop, support desks for groups at risk, telephone hotline, counsellor (e.g. for sexual harassment), employment agency and innovative work projects for mental patients or people with mental retardation; establishing a new self-help organisation 13.8 Strategy dimension 6: Setting A next choice concerns the setting in which we try to offer a preventive intervention. This choice needs special consideration if we want to reach our target populations, to find optimal opportunities for influence, and to integrate mental health promotion and prevention in their daily environment. We have earlier stressed that public reach is a crucial condition for creating mental health impact in target populations. Poor reach means poor preventive impact. Settings offer a crucial opportunity to reach people. For instance, when we try to reach persons with an increased level of depressive symptoms, a good choice would be the setting of general practice, as adults mostly already have regular contact with their family doctor (GP) to 273 Box 13.6 cont’d MACRO LEVEL Mass media education ⋅ Press releases, article in journal, glossy or newspaper, advertisements, open letters ⋅ Broadcasting items (news at prime time, information programmes) ⋅ TV item or programme: prime time news, information programmes, documentary, educational amusement and educative soap-series, school TV ⋅ E-health, websites, social media ⋅ Educational film or movie Publications ⋅ Writing a literature review or research report on prevention programmes and policies, disseminating programme manuals ⋅ Exhibitions, educative theatre productions ⋅ National conferences, symposia, and debates ⋅ Databases of effective programmes Curriculum-development in professional training ⋅ Development of new masters on prevention and (mental) health promotion; integrating prevention and mental health promotion in existing training curricula, master programmes Social action and advocacy ⋅ Debates and negotiations with social key figures, politicians and / organisations ⋅ Developing inter-organisational coalitions, pressure and lobby groups and new interest organisations (NGO’s) ⋅ Asking questions in the parliament ⋅ Getting people on influential positions, influencing function profiles for vacancies of crucial positions ⋅ Test trial at Court of Justice Preventive legislation and national policies ⋅ Advocacy for and preparation of new national preventive or health policies and legislation. reinforcing obedience to preventive of laws and regulations ⋅ Developing and influencing policies of national funding agencies discuss health issues. Moreover, a programme to which a GP refers will be seen as a reliable and effective opportunity to improve your health and well-being. A recommendation by a GP will also motivate a patient to take action. To reach youngsters with depressive complaints the school, social media and the Internet might be better settings to reach them. Other examples of settings to reach a preventive target audience include nurseries, neighbourhood centres, mental health centres, hospitals, nursing homes and workplaces. Figure 11.3 in the chapter that discusses the Basic Planned Change Model depicts a range of settings across different system levels. Settings might also be chosen to be able to reach 274 intermediate target groups or relevant stakeholders. By involving and training, for instance, GPs, nurses, teachers and peer counsellors we broaden the range of people that could implement certain preventive interventions or offer advice in finding preventive solutions for problems. At the same time, such training could help to integrate prevention in communities in a sustainable way. Regularly, a multi-setting approach is needed, because one specific setting might offer insufficient opportunities to reach your target group or to influence all relevant determinants. For example, in an effective prevention policy that aims to reduce alcohol consumption among young people, preventive interventions should be aimed at the school, sports and entertainment settings, schools and primary health care. Settings are not only relevant for reaching target populations, a setting might also be chosen because the target problem and its causal factors are heavily intertwined with that setting. Organisations, professionals or other persons in such a setting might be in a position to have influence on such factors. For instance, for a ‘Prevention of bullying’ programme is the school setting of course an obvious choice. A significant proportion of bullying behaviour of children and young people happens in or around schools. Teachers, school environment and school climate influence the extent of bullying. The same idea applies to work settings, where managers and occupational health physicians might have impact on work conditions. 13.9 Strategy dimension 7: Time and Timing This dimension has two sub-dimensions on which choices have to be made: timing and duration of a preventive intervention. Both choices appear to affect the efficacy of programmes as we found in a large meta-analytic study across around 150 programmes (Llopis, 2002). Timing can be further subdivided in timing along the lifespan, timing along a process of problem development, and timing across subsequent stages of the problem solving process. Timing: the Intervention Moment Those involved in programme designing have to choose at which age or developmental stage along the lifespan, an intervention might have the largest effect. Especially in children and adolescents, it is possible to distinguish developmental periods and related ‘sensitive periods’ for change. These are mostly transitional periods when a child goes from one stage to the next stage, or periods where new risk or protective factors start to emerge. In such periods, a child is the most sensitive for learning certain skills or external risk factors do not have a structural impact on the child yet. Such transitional and sensitive periods are also present later in life when people start to live together, getting a first job or a first child, or when children leaving home, retirement is near, or becoming widowed. During such periods, people have to adapt to new challenges, tasks and roles. It is assumed that they are more open to change in these periods, such as learning new knowledge, attitudes, cognitive skills and behavioural skills. Stage of problem development At what stage of the development of a problem can a preventive intervention be addressed? It is possible to distinguish the following stages (see also chapter 3 on subdivisions of prevention): 275 • • • • • No problem present (primary prevention) Exposure to risk factors (primary prevention) Beginning symptoms / complaints (secondary prevention) Recovery period after a pathological episode with risk of relapse (tertiary prevention) Presence of serious and lasting problems or psychopathology to prevent chronicity, irreversible impairments and disability (tertiary prevention) For primary prevention, when no problems are experienced yet, prevention strategies should take into account that the target groups might be less motivated to participate in prevention programmes. In those cases, extra energy must be put in motivating audiences to change their attitudes and behaviour. This might require the involvement of, for instance, parents or idols to motivate people to such health behaviours, or to show that such behaviours could also result in other short-term benefits. Stage of problem handling Another key question is, at what point in a problem solving process stagnation occurs. It is not always necessary to support the people in a target group in all stages of a problem solving process. This increases the danger of proto-professionalisation or social iatrogenesis as we have discussed in the chapter 1 of this book. If, for instance children or parents have trouble to understand the consequences and causes of parental depression, providing sufficient information through the internet could be sufficient, especially when they have sufficient skills to turn that information in an effective coping strategy. The following stages can be distinguished: • • • • • • • Awareness of a problem or risk Problem analysis: its nature and causes Emotional problem perception: crisis perception Generating and choosing solutions Using and improving solutions Evaluating effects Maintaining health behaviour Such stages are described in all models of problem-solving processes, as is illustrated by the transtheoretical model of change of Prochaska & DiClemente (section 5.5) and the integrated stress model of Hosman (chapter 7). Timing: Linking actions to News items and topicality Especially in cases where people in target groups have difficulties in recognising a risk or developing problem, as is often the case in primary prevention, it requires much effort to motivate people to change their behaviour or to take part in a prevention programme. Instead of heavily investing in recruiting and motivating such people, you might also consider whether it is possible to connect the issue to current events that show up in the news. For example, news items on violent events in schools or public places or a suicide of a bullied youngster might offer a good opportunity to address the issue of prevention of aggressive behaviour in schools. Another, but different example is the media coverage of suicides of famous idols (e.g. Kurt Cobain). Extensive and detailed attention in media to such a suicide is found to offer an incentive to some youngsters to copy such behaviour, thus increasing the number of suicides 276 among young people who find themselves in serious problem situations. It is therefore very important that such incidents trigger immediately preventive actions to mass media (i.e., to stimulate them to low-profile coverage of such a suicide) and youth (e.g. offering telephone support for who are in need). Sometimes, it is better to delay the start of a prevention programme until there is a situation where the problem is a major news item. This may occur because of a public incident, the release of a major research or policy report, a documentary on TV, or a debate in the parliament that attracts much attention. Another option is to link the item to the media coverage of "World Mental Health Day” (October 10), World Health Day (April 7) or Human Rights Day (December 10). Duration and intensity of intervention Regarding the duration of prevention programmes the following types of interventions can be distinguished: • • • • Single session interventions (e.g. a lecture, school meeting, symposium) Short or long term temporary interventions (e.g. a training, course, 3-year curriculum) Periodic interventions (regular returning attention and actions, e.g. via the media) Permanent interventions (e.g. speed limits, telephone helpline, E-mental health, whole school mental health promotion policy) In the context of integrated prevention programmes, for instance in schools, a cycle can be established from primary to secondary school with different types of age appropriate interventions. For effective crisis intervention, it is important to have a quick succession of supportive sessions within a short period. For primary prevention programmes targeting children it is usually needed to spread the interventions (e.g. sessions of a course) over a longer period of time. Too short interventions often prove to be ineffective. In general, to achieve preventive effects, programme designers are required to make a reasoned estimation of the needed dosage and duration of an intervention programme. In the prevention of child abuse, home-based parenting support of less than one-year duration is considered not to be effective. At the other hand, when interventions take too long, they may suffer from weakening attention and fast increasing costs without leading to increased effectiveness. A meta-analytic study by our Nijmegen Prevention Research Centre showed an interaction between the duration of programmes and the age of the audience in their effect on the impact of prevention programmes. It was found that in children and youth long-term prevention programmes are more effective and short-term programmes were less so, while for older populations precisely the opposite was the case (Jane-Llopis, Hosman, Jenkins, & Anderson, 2003). Single one-time interventions, for instance a lecture or one classroom session, are generally considered as meaningless and not resulting in any preventive effect. 277 13.10 Strategy dimension 8: Providers and implementation The term provider of a programme could refer both to an organisation that offers a mental health promotion or prevention programme to target groups and to the professional educators or change agents that actually implement a programme. The last types of providers have often face-to face contact with participating clients, but the contact could also be restricted to the use of written materials, mass media methods and the Internet. Characteristics of the provider As numerous education and intervention studies have shown, interventions are more likely to be effective when the provider shows a combination of the following characteristics: - Understanding the audience, their culture and speaking its language; Highly motivated; Charisma; Equality (companion, peer-like); Expertise as professional or by experience; Credibility and reliability. In some cases, it is important to use an expert as intervention provider, for example, when it is necessary to transfer science-based knowledge to practice, or when programmes are complex. This could be a health promotion or prevention expert, or a mental health professional. When it comes to experience with the problem, emotional support, or influencing behaviour standards, it may be important that the intervention be provided by a volunteer from the local community, by a peer, or someone who has personal experience with the problem. In ‘support groups’, one often works with a combination of professional experts and peers. Another important issue in the implementation of a prevention programme is whether the programme is implemented exactly as planned and described in the original script. This is particularly important when it comes to implementing an existing and elsewhere developed model programme. On the one hand, the advice is that such a programme should be performed exactly as described by the makers. This is called programme fidelity. The argument is that effectiveness of an evidence-based programme is only guaranteed if the programme is executed according to the original manual, which was used in the effectiveness study. The omission of key elements of change during implementation could lead to a loss of effectiveness. Omitting parts of an intervention could happen when there are limited resources and time constraints, or because the new provider or the participants want to give their own flavour or identity to a programme. On the other hand, to keep a programme effective when implemented in a new situation, it is recommendable to adapt a standard programme to the needs and characteristics of the target group and social context in a new situation. No group and no situation is exactly the same. In addition, allowing the new providers and participants to adapt a programme to their needs and culture will also create a feeling of pride and ownership, which enhances the sustainability of the implementation of the programme in the new situation. For these reasons, it is desirable that the developers of an effective prevention programme indicate what in the programme is considered as essential, so what are indispensable elements and components, and what is eligible for adjustment. For the new providers and participants, it is essential to have knowledge on what those essential working elements are and they are familiar with science-based and practice-based knowledge on effect 278 moderators, also called the principles of effectiveness. We will discuss this issue more extensively in chapter 15. 13.11 Conclusions This chapter argues for the use of more rational choices in programme development. From an effectiveness point of view, it is important that prevention specialists and professionals become more aware of the often implicit choices they make in the design of prevention programmes. More conscious choices, by carefully weighing the benefits and drawbacks of different alternatives, will reduce the chance of erroneous decisions. This chapter presented an analytical framework to support scientists and professionals in building effective prevention strategies, using both science-based and practice-based knowledge. It aims to stimulate among them a more critical attitude towards strategy building. It also showed that in theory multiple strategies might be possible to reach a targeted preventive goal. Designing prevention programmes requires that one makes a range of explicit strategic decisions on eight dimensions. The decisions together define the unique identity of a programme. The presented framework could nevertheless create a '1000-choices problem’ for practitioners. Theoretically, the number of strategies to choose from in designing a programme increases exponentially, the more decisions need to be made. When there are eight strategic dimensions on which we have to make a decision, and suppose with only 5 alternatives per decision, this would already result in 360.625 theoretically different strategies, assuming these decisions are made independently of each other. For practitioners, who try to argue all the choices, the danger is that it becomes too complex and unmanageable. Rational decisionmaking is important for effective professional action, but in practice, it has also its limits. In practice, this danger is less real. First, making ranges of decisions in solving health, social or political problems, is common in many professions. Being able to cope with complexity belongs to professional competence. Secondly, many choices you have to make are not independent but related. For instance, when you decide that a health risk is primarily a problem of individual health behaviour, it limits the range of relevant intervention methods tremendously. Thirdly, making intuitive decisions in complex situations based on professional experience is also part of normal practice. Likewise, a family doctor needs to make numerous decisions in daily practice, without consciously comparing all possible choices. Still we assume that such decisions are grounded in scientific and professional knowledge. In general, instead of comparing all possible alternatives, the framework could also be used to select at each decision point not all, but at least several alternatives, to compare them on pros and cons, and make in the end a more reasoned decision. The framework can also be used in teams or among involved stakeholders to discuss critically the logic model of a specific intervention proposal. The framework can make us aware of certain alternative strategic options that are worth considering. 279 Literature Arkowitz, H. (1997). Integrative theories of therapy. In P. L. Wachtel & S. B. Messer (Eds.), Theories of psychotherapy: Origins and evolution (pp. 227–288). Washington, DC: American Psychological Association. Bergin, A. E., & Garfield, S. L. (Eds.). (1994). Handbook of psychotherapy and behavior change (4th ed.). New York: John Wiley & Sons, Inc. Bosma, M. W. M., & Hosman, C. M. H. (1990). Preventie op waarde geschat. Een studie naar de beïnvloedbaarheid van determinanten van psychische gezondheid. Nijmegen: Beta. Bosma, M. W. M., Hosman, C.M.H., de Vries, W.J. & Veltman, J.E. (1994). Ontwikkelen van preventieprogramma’s: praktijk als bron van kennis. Nijmegen: Vakgroep Klinische Psychologie en Persoonlijkheidsleer, KU Nijmegen. Caplan, G. (1970). The theory and practice of mental health consultation. London: Tavistock Publications. Jane-Llopis, E., Hosman, C., Jenkins, R., & Anderson, P. (2003). Predictors of efficacy in depression prevention programmes. Meta-analysis. The British Journal of Psychiatry : The Journal of Mental Science, 183, 384–397. McGorry, P., Killackey, E., & Yung, A. (2008). Early intervention in psychosis: concepts, evidence and future directions. World Psychiatry, 7, 3, 148–156. Mrazek, P. J., & Haggerty, R. (Eds.). (1994). Reducing risks of mental disorder: frontiers for preventive intervention research. Washington: National Academy Press. Taylor, C. B., Bryson, S., Luce, K. H., Cunning, D., Doyle, A. C., Abascal, L. B., … Wilfley, D. E. (2006). Prevention of eating disorders in at-risk college-age women. Archives of General Psychiatry, 63(8), 881–888. Yoshikawa, H. (1994). Prevention as cumulative protection: Effects of early family support and education on chronic delinquency and its risks. Psychological Bulletin, 115, 28-54. 280 Study questions for this chapter What do we mean by intervention analysis and on which previous analyses should an intervention analysis be based? The development of effective interventions requires a careful decision or choices. Which insights are necessary to be able to make a well thought-out choice for these decisions? What is meant by target group segmentation and give an example (e.g. for COPMI and depression)? Explain why target group segmentation is important for effective prevention. Prevention programmes can use direct intervention strategies and indirect strategies, in which so called ‘intermediaries’ are targeted. What are the benefits and drawbacks of these indirect intervention strategies? What are the 8 choice dimensions on which decisions need to be made for the development of a prevention strategy? Explain each dimension. Think of a prevention programme for a mental health problem, or pick one from the reader or the lectures. Describe which choices have been made on the 8 choice dimensions for that specific intervention. Which different types of intervention strategies can be derived from the different models on health? Which considerations are important when a choice should be made about the determinant(s) to tackle in a prevention strategy? Interventions can consist of multifactor or mono-factor approaches. Normally multifactor approaches are preferred. In which situations will a mono-factor approach be sufficient? Which influence mechanisms can be used in preventive interventions? Give some preventive intervention methods that can be used in prevention strategies at micro, meso and macro level. 281 What kind of choices can be made on the time dimension of a prevention strategy, what considerations from developmental psychopathology are important for the choices on the time dimension? Explain this with the theme COPMI, depression or another theme. What prevention instruments can be used in society to improve the mental health of a population? Give some examples for each instrument. What instrument is the most efficient in your opinion? 282 PART IV EVIDENCE AND EFFECTIVENESS 283 284 14 Evidence of Effectiveness and Improving Effectiveness in Prevention and Mental Health Promotion 14.1 Introduction 286 14.2 When is a prevention or promotion programme successful? 287 14.3 Current stage of evidence-based prevention and mental health promotion 290 14.4 Going to scale and across borders 294 14.5 Contributions from health promotion 295 14.6 Learning from failures and successes: Principles and Effect Management 296 Conclusion 301 14.7 Literature 302 Study questions for this chapter 304 285 14 Evidence of Effectiveness and Improving Effectiveness in Prevention and Mental Health Promotion Clemens M. H. Hosman 14.1 Introduction The last two decades, significant progress has been made in the development of evidencebased prevention and mental health promotion programmes. In general, prevention science became a recognised multidisciplinary field worldwide, with contributions from psychiatry, psychology, sociology, biology, neurosciences and health economy. Systems for rapid international exchange of prevention knowledge and evidence-based model programmes are emerging. National and international databases offer information on available effective programmes, for instance to increase social-emotional competence and parenting skills, and to prevent child abuse, aggressive behaviour and conduct disorders, depression, anxiety disorders, eating disorders, and alcohol and drug abuse. By designing easy accessible online exchange systems for policy makers, researchers, local organisations, and practitioners, we have a powerful tool to enhance prevention and mental health promotion practices across countries and communities, and to increase their effectiveness. To understand fully the long-term and complex causal trajectories of mental disorders and the social and physical outcomes of poor mental health, several decades of further etiological research are needed. Nevertheless, there already is a lot of scientific information available about malleable risk trajectories, mental health promoting conditions and effective interventions. To date, this knowledge offers a useful base for preventive action, i.e. to design and implement effective prevention and promotion policies and programmes. The outcomes of many controlled studies indicate significant preventive outcomes could be expected in the next decades not only in the mental health domain but also in other domains that are narrowly related to mental health, such as better physical health and less mortality, better school achievements, more productivity at work, a safer environment, and less youth delinquency. Effectiveness and economic evaluation studies have shown that improving mental health can generate a wide range of health, social and economic benefits (Hosman, Llopis & Saxena, 2004; Jané-Llopis, Barry, Hosman & Patel, 2005). This chapter has several aims. First, we discuss how we can evaluate the success of prevention or mental health promotion programmes. This requires further elaboration of concepts such as outcome indicators, evidence, effectiveness and efficacy. Secondly, a short impression is given of the status of evidence-based prevention and promotion in mental health. Thirdly, the growing international exchange and adoption of programmes is discussed and the related question about the need of programme fidelity versus the need of adapting programmes to local conditions and cultures (re-invention). Finally, as the number of intervention studies has increased dramatically over the last decades, so has the knowledge on effect moderators. This knowledge is essential for designing more effective new programmes in the future, improving existing programmes and adapting programmes when they become implemented in new settings. This is the last theme of this chapter. 286 14.2 When is a prevention or promotion programme successful? What are criteria of success for a mental health promotion or preventive intervention? The first answer is: There is not just one criterion for success or failure! It depends first on who is judging and from which perspective. Secondly, it depends where in the process of multiple needed steps towards the ultimate goals you locate criteria for success. Thirdly, it also depends on which criteria you or other stakeholders want to use for the level of evidence needed to make a satisfying decision about the level of success. Stakeholders and their perspectives There are different criteria possible depending on the position and perspective from which you look at outcomes. This could be very different among stakeholders. Take for example the positions of a city government, a health insurance company, school management, a company, a university researcher, and a community leader, and health practitioner, manager of a mental health centre, prevention expert, or consumers. They might have a genuine and common interest in reductions of mental disorders or an increase in mental capital of local citizens, but is very likely that they also use different criteria to conclude whether a preventive practice has been successful. In some cases, the primary interest might even be something else then improved mental health. For instance, health insurance companies are primarily interested in cost reductions, thus the potential of prevention to reduce the need for specialised and expensive treatment. Local governments might be especially focused on what a prevention programme could contribute to less social problems in specific neighbourhoods, more social cohesion, and less need for social services and welfare. Departments of Justice might be more interested in the impact of improved mental health on reductions in violence and delinquency. Schools and companies might evaluate their potential investment in terms of its benefits in terms of their contribution to a better organisation climate, more goodwill to parents or consumers, achievements that are more academic and productivity. Consumers will ask what such interventions mean for their subjective well-being and quality of daily life. Outcomes such as social inclusion and good citizenship might be the special concern of community leaders and local governments. It is very important to take these different perspectives into account in your advocacy for mental health, and when you are defining interventions, goals and selecting outcome indicators for evaluation. This requires that you have a good insight into both the determinants and the multiple individual, social, and economic outcomes of mental health. A stakeholder might primarily be interested in a specific determinant or outcome. To give yourself a good idea of the relevant stakeholders and their interests, it is recommendable to run a stakeholder analysis. Each of the multiple steps needs to be successful Secondly, the criteria are different depending on where in the stepwise process of outputs and outcomes you want to measure success. We remind you that usually a mental disorder is the end of a long-term developmental trajectory. An intervention could be targeted at a specific step in this trajectory. For instance, an intervention could be targeted at improving the quality of the mother–baby interaction while ultimately aiming at a reduction of internalising and externalising problems in childhood and adolescence. In addition, the development and implementation of a successful intervention until the final prevention of a mental disorder 287 Box 14.1 Successes and failures of interventions measurable in multiple stages of the intervention and outcome process Local support for a preventive intervention Implementation of a preventive intervention Participation level in the target population Changes in determinants of mental health / mental disorders ˗ biological, psychological, social, physical and societal factors ˗ risk factors and protective factors Direct indicators of improved mental health, e.g. more problem solving skills Reduction in mental and behavioural disorders, e.g. depression, eating disorders Improved physical health, e.g. less cardiovascular diseases, mortality Earlier use of health care (secondary prevention) or less use of care (primary prevention) Social outcomes, e.g. better school achievements, less violence, more social cohesion Economic outcomes, e.g. less health costs, more productivity, less costs for justice system represent a process of multiple steps. Each step needs to be successfully completed and is thus connected to an intermediate goal, for instance the successful completion of a pilot intervention, the successful recruitment of many participants from the target population, the active involvement of participants in a learning process, and the successful reduction of a powerful risk factor. The extensive planning model offers a good illustration of these multiple steps that each needs to be performed well. For instance, to reduce bullying among all schoolchildren, anti-bullying programmes need to be implemented in a large group of schools, which in itself is a huge challenge. Attaining such a goal is certainly a success in itself. Prevention practitioners will already consider it as a major success when they are able to create a high participation of children, parents and teachers in many schools within their health district. Nevertheless, this is only a first step towards the ultimately desired outcomes, a significant drop in bullying behaviour in the youth population. In sum, successful promotion and successful prevention is based on a long chain of successive achievements. This could even require multiple successive interventions by different agencies and parties. Mental health promotion has many different success criteria and together these criteria represent a chain of interrelated outcomes. Box 14.1 shows outcome criteria linked to these different levels and perspectives. Efficacy and Effectiveness Most of the currently available knowledge on the effects of interventions is based on efficacy studies only. Efficacy refers to the evaluation of the effects of first or second implementations of a new intervention under relatively ideal and controlled conditions. Such experimental trials of new programmes are usually accompanied by a high level of scientific input, inspiring leadership by the programme designer, special attention to adequate training of intervention providers, and a check on programme fidelity during implementation. The word effectiveness is used when a controlled study shows that a programme still shows positive outcomes when implemented at a large scale within the routine of daily practice and under much less controlled 288 conditions. It is a common experience that under such conditions it is more difficult to repeat the effects found in efficacy studies. For instance, in daily practice a programme might be implemented with less fidelity due to local circumstances, time pressure or lack of skills among programme providers. In prevention and mental health promotion, only a minority of the available evidence-based programmes have provided this robust evidence of effectiveness. Level and duration of effect Even when studies have shown that effects of an intervention are significant, the level of effect could highly vary from small, medium to high effects. In addition, effects found in outcome studies might represent only short-term effects that could fade away over time. For this reason, it is important to include follow-up tests in outcome studies in addition to a pre-post test. Even better would be to use longitudinal outcome studies on the effects after 5, 10 or even 20 years. The opposite is also found, namely that short-term tests do not show efficacy, but long-term evaluation does. This is what we call a sleeper effect. The working ingredients of preventive intervention might take time to show their effects. For instance, this could be the case because intervention increases resilience against risk factors to which a person is exposed somewhere in the future. It might also be attributed to the long-term developmental processes that are addressed by the intervention. Reach in the target population and population-wide impact Even if a programme is found to be highly effective in several controlled studies, it will have a poor impact on the prevalence and incidence of a problem in the community when the programme reaches only a marginal part of the target population at risk. This is currently one of the main bottlenecks in prevention and health promotion. Population impact is a function of both the effectiveness and reach of a programme. Therefore, reach is also a crucial criterion of success and should be included as an indicator in outcome studies. Level of evidence The next issue is how much evidence is available for the found level of effect of an intervention. Conclusions could be based on qualitative studies only or on controlled studies. Controlled studies could be quasi-experimental or based on randomisation of individuals or randomisation of schools, practices or even cities (cluster-randomisation). These designs differ in the quality of evidence they produce. Usually randomisation is preferred to create a high level of evidence, with a low risk of incorrect conclusions. However, this needs some comment. First, this reasoning applies only to what is called internal validity, i.e. how certain are we that the outcomes can be attributed to the exposure to a prevention programme. For instance, reductions of problems can also be found as many problems are time bound and reduce over time, like in the case of a depressive episode. The presence of data from a control group could provide more certainty about the impact of the intervention. Secondly, some interventions cannot be studied in a randomised design. For instance, the introduction of new national measures or legislation to reduce alcohol and drug abuse cannot be studied in a randomised design. Similarly, community interventions and programmes consisting of multiple interventions (e.g. to reduce child abuse, or community violence) ask for a different type of design, such as a quasi-experimental study, a time-series design or a series of qualitative studies. To evaluate the external validity (i.e. ability to generalise outcomes to new situations of implementation) qualitative studies are very 289 important, as they provide information about the specific context of a successful implementation. The level or quality of evidence depends not only on the quality of the research design but also on the number of outcome studies. The more studies on the same intervention or on similar interventions show significant effects, the more robust the evidence is. To decide on a national implementation of a prevention programme, an expensive investment, those who are responsible for such a decision usually require that significant positive effects have been found in multiple studies executed by different research groups and in different sites. To come to conclusions about the average effectiveness of certain preventive interventions, a mean effect size is computed using the statistical outcomes of multiple intervention studies. A single effect size is a standardised score, based on the difference in changes between the experimental and control group divided by the pooled standard deviation. 14.3 Current stage of evidence-based prevention and mental health promotion Where are we to date in the process of developing and implementing effective Box 14.2 programmes to promote mental health Online databases of evidence-based and prevent mental disorders? Below prevention and promotion programmes we give a short impression. in mental health Over the last three decades, we estimate that over two thousand Dutch databases effective interventions: outcome studies have been published. Nederlands Jeugd Instituut; www.nji.nl Based on reviews covering separate Rijksinstituut Volksgezondheid en Milieu domains within mental health http://www.loketgezondleven.nl/leefstijlinterventies/ promotion and prevention, we estimate that currently over a hundred NREPP database of US Ministry of Mental programmes exist for which some Health and Substance Abuse (SAMHSA) evidence exists of their efficacy. These https://www.samhsa.gov/ebp-resource-center ‘evidence-based’ programmes and their research outcomes are described OJJDP database Delinquency Prevention in several online national and www.ojjdp.gov/mpg international databases (Box 14.2). CASEL: Social-emotional learning and The aim of these databases of school-based programmes www.casel.org effective programmes is to stimulate that they are widely adopted and Norwegian database Youngmind implemented. For this reason, they are www.ungsinn.no also called ‘model programmes’. Especially, the last ten years the number of replication studies has increased significantly. For some programmes, even several dozens of outcome studies have been implemented, showing robustness of their efficacy, even when implemented in different countries (e.g. Coping with Depression Course, Triple P, and Bullying Prevention Programme). There is also evidence that implementation in different settings or countries not always results in similar positive results. For instance, in the 1990s we adopted the PREP programme 290 in the Netherlands, a successful American programme on preventing relationship problems and divorce in young couples. In contrast to an American study, we did not find any efficacy of the programme in our Dutch randomised trial (Van Widenfelt, Hosman, Schaap, & van der Staak, 1996). Although the number of controlled outcome studies is quickly growing, still many prevention and promotion programmes are implemented in local practices not having been tested whether they really work. As an illustration, we refer to a survey of the European Mental Health Promotion Network on promotion and prevention programmes for children between 0 – 6 years old in 17 European countries (Mental Health Europe, 1999). In this study about the situation in the late 1990s, we collected information about the ‘best practices’ in these countries. Of the 197 programmes we identified the far majority (89%) could not provide any scientific evidence on their efficacy or effectiveness. Most providers could only present some anecdotic evidence of effects based on qualitative studies. In the Netherlands, the National Research and Development Council (ZonMw) has financed dozens of controlled outcome studies to increase our knowledge on the effects and cost-effectiveness of prevention programmes. What can we conclude from the many controlled outcome studies? Several international review studies, among others for the World Health Organization (WHO), the International Union for Health Promotion and Education (IUHPE), US Institute of Medicine (IOM), and for the European Union, show an interesting diversity of evidence-based positive outcomes (Mrazek & Haggerty, 1994; Hosman et al, 2004; Jané-Llopis et al., 2005; Anderson, Jané-Llopis, Hosman, 2011; IOM, 2009), as summarised in Box 14.3: 1) Improvements in a large variety of protective factors for mental health, 2) Reductions of many different risk factors, 3) Reductions in serious mental and behavioural problems mental disorders, and and some 4) A broad range of positive social and economic outcomes. Also, the authoritative report of the US Institute of Medicine offers an impressive overview of current achievements in preventing mental disorders and promoting mental health in children and adolescents (IOM, 2009). If you are interested in this excellent overview, use the following website: https://www.ncbi.nlm.nih.gov/books/NBK32776/. Currently, many meta-analyses on the outcomes of prevention programmes are available. They show that mostly mean effect sizes are between .20 and .35, indicating that in average prevention programmes have still 291 only a small to moderate effect. These mean effect sizes are in a way misleading, for they summarise the outcomes of programmes that show a large variation in efficacy and effectiveness: from very effective and moderately effective programmes to non-effective programmes and sometimes even programmes showing negative effects. These outcomes stress the importance of testing whether programmes really work and what room there is for further improvements. Changing protective and risk factors The most well-established effects are the positive outcomes of interventions in terms of improvements in risk and protective factors. Improvement of protective factors include, for instance, more self esteem, better problem solving and social skills, more stress management competence, feelings of mastery, and improved social support. Each of these outcomes have been found in numerous intervention studies, especially in studies on preschool and schoolbased programmes aimed to increase resilience in children and adolescents. Furthermore, there is ample evidence that preventive interventions are able to reduce important risk factors in mental health, for example preterm deliveries, child abuse and neglect, poor parenting skills, exposure to violence and bullying, risk behaviours in children and adolescents, and social isolation. Especially in the early life situation, preschool age, and elementary and secondary school a large range of efficacious programmes are currently available (Greenberg et al., 2003) (see also databases at www.casel.org and www.nji.nl). Preventing the onset of mental disorders The evidence for significant reductions of mental disorders because of preventive interventions is rapidly growing but still limited. To date, controlled studies have shown successful reductions in the onset of mental disorders, such as conduct disorders, depression, anxiety disorders, and eating disorders. In these cases, malleable risk and protective factors are successfully addressed resulting in lower incidence of disorders. Many studies have shown that preventive interventions can reduce high levels of psychiatric symptoms before they reach a clinical stage. For example, in depression, longitudinal studies have shown that high levels of depressive symptoms are predictive for the onset of later clinical depression. Especially in children and adolescents, reductions in depressive symptoms could reduce the risk of later depression. Studies of Clarke and others (2001, 2002) and Garber et al. (2009) on the Coping with Depression Course for adolescents at risk showed a drop of the onset of first depressive episodes of around 60% to 30%, depending on the duration of the measured outcome period. A meta-analysis on 19 RCTs of selective and indicated prevention programmes for depression showed an average reduction of 22% in the incidence of depression (Cuijpers et al., 2008, on 19 RCTs). A Dutch prevention-oriented stepped care programme for elderly (< 75 yrs.) showed even 50% reduction in onset of anxiety and depressive disorders in comparison to elderly in a control condition up to 24 months after the intervention (‘t VeerTazelaar et al, 2009, 2011). The most effective element of these depression prevention programmes is found to be their cognitive behavioural approach, i.e. using training methods to change negative thinking styles in positive ones. In addition, several studies show that the implementation of relapse and reoccurrence prevention during or following treatment for depression could reduce its recurrence by 40% or more (e.g. Kuhner, Angermeyer & Veiel, 1996; Ma & Teasdale, 2004; Bockting et al, 2005). 292 When mental health services would decide to implement such relapse prevention strategies systematically in the practice of mental health care, such a measure can have a very significant impact on the development of depressive episodes in the community and lower the existing prevalence rates. This is especially important for depression, given the high risk of relapse and reoccurrence without such (40% within one year and 50% in 2 years). As an illustration of a programme that successfully aims to reduce conduct disorders, we offer below a description of the Fast Track Programme and the outcomes of several controlled studies run by the Conduct Problems Prevention Research programme. The Fast Track Program, a multi-year school-based and home-based programme targeted at preventing antisocial behaviour and conduct disorders. The programme includes among other parent training, home visiting, academic tutoring, social skills training, and friendship groups for those at risk, combined with a universal classroom intervention aimed to enhance social and emotional competence. In a longitudinal randomised-controlled study, intervention effects were detected as early as grade 3 and were robust through grade 9. Among the highest risk group in grade 9 assignment to intervention was responsible for reducing the risk of conduct disorders by 75%, of ADHD by 53%, and 43% of all externalising psychiatric disorder cases. Outcome studies also showed a significant preventive impact on juvenile delinquency and arrests. Children participating in the programme showed also reduced use of health, paediatric and emergency department services relative to control youth. Among control-group youth, the use of general health services for health and mental health purposes were roughly 30% higher and 56% higher. Among children at moderate risk, the programme had only a limited effect. (Conduct Problems Prevention Research Group, 2007, 2010, 2011). While this Fast Track is an example of an intensive and time-consuming prevention programme doubts exists if this programme can also be considered as cost-effective and recommendations are presented to find more economic strategies to find the same outcomes (Foster, 2010). For more information, see the programme’s website: www.fasttrackproject.org Social and economic outcomes of prevention Another important outcome of mental health promotion and preventive interventions are their social and economic outcomes and the evidence for their cost-effectiveness. Prevention studies have found evidence for increases in school achievements, productivity at work, safer environments, and less domestic violence, juvenile delinquency, arrests, and reductions in unemployment as a result of mental health promotion. Several programmes, such as the JOBS program and the Perry Preschool Program show financial benefits several times the costs of such programmes. An analysis of over 50 early prevention and promotion programmes for children showed in average a benefit of 17.000 $ against 7.000 $ programme costs per child, which means a Return-of-Investment of 2.4 (Aos et al., 2004). To advocate for investments in mental health and to recruit financial and political support for mental health promotion and prevention, such outcomes are of vital importance. In box 14.4, an example is presented of the Perry Preschool Program for young children, which has showed a wide range of social and economic long-term effects. 293 Box 14.4 The High/Scope Perry Preschool Project The overall objective was to prepare economically disadvantaged children for success in school. Children received two-and-a-half hours sessions of “high quality early childhood education”, five days a week for one or two years (depending on age). The programme was designed to promote cognitive, social, behavioural, and language development, and to broaden each child's base of information and experience. Children set daily goals for themselves. The preschool component was coupled with home visits for 90 minutes each week, with the goal of promoting parental interest in their child's learning. A longitudinal randomised control study over 15 years showed among others the following outcomes (figures between brackets show the results for the control group): less developmental delay better school achievement less school dropout At age 19: Employment rates 59% (32%) Detention and arrest rate 31% (51%) Less use of welfare benefits At age 27: Arrest rates for drugs dealing 7% (25%) Homeowner 36% (13%) Income of $2000 or more 29% (7%) At age 40: Arrest rates for violent crimes 32% (48%) Government assistance (e.g. welfare, food stamps) 59% (80%) Employment rates 76% (62%) Homeowner 37% (28%) At age 27, the economic benefit was already 7 times the costs of the programme. At age 40, the economic benefit even grew to 13 times the costs of the programme. The programme is also implemented in the Netherlands by the name of Kaleidoskoop (Schweinhart and Weikart 1988, 1997; Schweinhart, 2004) 14.4 Going to scale and across borders Effective programmes will only have a significant impact on the mental health of populations when such programmes are scaled up, i.e. are widely disseminated and implemented in many communities and even countries. Public impact is defined by effectiveness + reach. The earlier discussed national databases are one of the tools to enhance broad implementation after evidence of effectiveness is found. Mental health promotion and prevention become increasingly an international market place. Many effective model programmes are now being exchanged between countries. After adoption by another country frequently replication studies are done to test if a programme also works in the new environment and culture and if tailoring is needed. An example of a successful programme that is scaling up, even across borders, is the so-called JOBS programme, 294 developed by the Michigan Prevention Research Center (Price & Vinokur, 1995). The programme is based on training unemployed people for 5 half days. Participants learn a range of skills, such as job seeking skills, communication skills, and skills to cope with emotional problems and setbacks. The programme has been repeatedly shown to be effective in reducing unemployment, as well as reducing new depressive episodes (Vinokur et al., 1995; Vuori et al., 2005). In a period of 2.5 years, this course reduced serious depressive episodes with almost 40% in a group of unemployed people with high risk for depression. After the intervention, 25% in the prevention group had a depression, compared to 39% in the control group. Even for those who later became unemployed again the training protected them against the risk of depression. The results of a cost-benefit study resulted in a positive net benefit of $ 12.619 over a 5-year period for the participants. This programme is currently implemented in several states of the US, in some European countries (Finland, Netherlands and Ireland) and even in China. In a period of economic recession and high uncertainty among citizens about their jobs, this programme offers an interesting option. In the Netherlands, we have adopted many evidence-based programmes that were originally developed in the United States, United Kingdom, Norway, Israel, and Australia. For example, programmes on parent education, reduction of child abuse, prevention of depression, aggression, bullying, and behavioural disorders and on the development of psychosocial resilience in children. The most well known example is the ‘Coping with Depression Course’, in the early 1980s developed by Lewinsohn and Munoz in the US, translated, and adapted to the Dutch culture in the 1990s. This cognitive behavioural indicated prevention programme can be offered by all mental health centres in the Netherlands and is found to be effective in preventing the onset of depression. Tailored versions have been made for different target groups at risk and an internet version is available. In most of these cases, controlled replication studies on their efficacy have been performed or are currently ongoing, supported by the Dutch National Prevention Research Programme (ZonMw). Some successful Dutch programmes, such as The COPMI Mother-Baby Programme, are adopted by other countries (chapter 16). 14.5 Contributions from health promotion An important question is whether we should rely only on programmes specifically designed for mental health problems. Can we expect that intervention programmes designed outside the domain of mental health to contribute to positive mental health outcomes as well? Over the last decades, a major investment took place worldwide in developing health promotion programmes aimed at enhancing health life styles (e.g. exercise, no smoking, healthy eating habits) and at reducing obesity, cardiovascular diseases, and cancer. In addition, the United Nation and related international organisations invest in reducing poverty, starvation, and AIDS in low-income countries, especially in Central-Africa. These conditions represent known risk factors for mental health for those who are exposed to it and their children. Therefore, we might expect that programmes that are successfully addressing these risk factors might also have a preventive impact on mental health. Exercise programmes (e.g. fitness, tai chi) seem also to influence mental health (van Waerden, 2011). There are indications from several studies, both in Western countries and in Asia that exercise also results in better cognitive skills, more positive mental health and less 295 depression in adults and elderly. Several intervention studies have showed that exercise improves the memory functioning in the elderly (memory span, short-term memory span) (Fletcher et al., 1999). There is strong evidence that improving nutrition in socioeconomically disadvantaged children can lead to healthy cognitive development and improved educational outcomes, especially for those at risk or who are living in impoverished communities (Jané-Llopis, Barry, Hosman & Patel 2005). The most effective intervention models are those that combine nutritional interventions (such as complementary feeding, growth monitoring, food supplementation) with counselling, and psychosocial care (e.g. warmth, attentive listening). Such programmes are also cost-effective (WHO, 2002a). For example, iodine is known to play a key role in preventing mental and physical retardation and impairment in learning ability (WHO, 2002b). Global efforts, such as those supported by UNICEF (2002), have led to 70% of the world’s households using iodised salt. This means 91 million new-borns are protected from iodine deficiency and therefore from the associated mental and physical health problems. Poor quality housing has been used as an indicator of poverty and as a target to improve public health and reduce health inequalities. A systematic review suggested that housing improvement has a promising impact on self-reported physical and mental health, perceptions of safety and social and community participation (Thomson, Petticrew & Morrison, 2001). Over the last 25 years, the Healthy Cities programme of the WHO has had a great impact on the health policy of many cities in Europe. A large range of social and environmental interventions has been implemented as part of this programme. Mental health promotion, however, was poorly represented as a specific target. Nevertheless, it is very probable that Healthy City programmes also have a positive impact on mental health because of safer environments, stimulating exercise, housing projects, and more playgrounds for children, greater social inclusion of minority groups, and better social networks. 14.6 Learning from failures and successes: Principles and Effect Management As stated earlier in this chapter, besides successes of preventive programmes, efficacy studies show failures as well. Outcomes of a meta-analysis by the Nijmegen Prevention Research Centre on 149 studies from different countries revealed that large differences exists in the outcomes of prevention programmes in the field of mental health, ranging from negative effects, to no, minor, and large effects (Figure 14.1) In addition, outcome studies show that effects sometimes fade away in the year after the intervention, effects are frequently only found in subgroups of the target population, and effects can be restricted to only a part of the outcome indicators. This means in the first place that we should not take the efficacy or effectiveness of a programme for granted just because it looks innovative, or that the programme designers and providers are proud of their products. Even satisfied responses from participants offer no guarantee that the preventive goals are achieved. Failures and unsuccessful programmes can be considered as valuable learning experiments. They are crucial for further building our prevention science. Comparisons between successful and unsuccessful programmes help us to answer questions such as: What are the crucial programme differences between the two groups? What are successful and unsuccessful strategies of dissemination and implementation? In general, what are the basic 296 principles of effective mental health promotion and prevention? For whom does a specific prevention programme work and for whom not or only marginally? How can we use such knowledge to improve the quality of programmes, better select the target population for whom it works, or for tailoring versions of an existing programme to the need of specific segments of a target population? Studies on these differences have resulted in insight into a range of effect predictors that can be translated into guidelines for effect management by programme designers and practitioners. Professionals working in this field are not only the providers of preventive interventions, but are also expected to play a role as ‘effect manager’. Effect management refers to the process of continuously improving the efficacy, effectiveness, cost-effectiveness, and reach of preventive interventions by translating evidence-based and practice based knowledge on effect predictors into guidelines for effect improvement and by implementing these principles in prevention policy and practice. Principles of effect management can be applied during: (1) The development, dissemination, implementation, and institutionalisation of new programmes; (2) the selection, adoption, and adaptation of ‘model’ programmes that have been developed in other communities or countries; and (3) for the improvement of already implemented programmes. Effect moderators, also called effect predictors are factors that influence the ‘evidence-based’ effects of preventive interventions on those who participate in such programmes but also the effects of such programmes or programme combinations on the population at large. Effect moderators can be found in the following domains: Characteristics of the way a programme is developed (e.g. planning-based, theory-based, history of try-outs, and pilot studies, involving representatives of the target population) Characteristics of the programme itself (e.g. SMART goals, type of method, duration, dosage, tailored to target population, type of provider, combinations of interventions) Characteristics of the participants and target population (e.g. motivation, risk level, gender, pre-existing attitudes, participation level) Characteristics of the social context of implementation (e.g. community support, community values and norms, competing messages, supporting legislation, and policies) 297 Quality of programme implementation (e.g. training of providers, programme fidelity) Characteristics of how a programme is disseminated and adopted across communities, schools, workplaces, regions (e.g. database, accessibility and tryability of new programmes) Available resources (e.g. budget, supporting policies, personnel, training facilities, knowledge, expertise, management, leadership, interorganisational collaboration) Characteristics of outcome research (e.g. quality of research design and measurement instruments, number of outcome studies, meta-analysis). Figure 14.2 shows a theoretical model of how the different clusters of effect predictors are related to each other. In effect management each of these clusters could be taken as a target and starting point to find opportunities to improve the effectiveness of a prevention programme. For instance, when for certain participants a depression prevention programme is not efficacious, one could re-design the programme to make it more responsive to a variety of participants, or one could design multiple ‘tailored’ versions of a programme, one for each of the different segments in the target population (e.g. specific versions for immigrant groups, youngsters, elderly, low-income women). When a programme reaches only a small group of individuals from the target populations by using group methods, one could consider the use of internet or mass media to reach a larger proportion. When a group of local practitioners wants to develop a programme based on their experiences with a mental health problem (e.g. aggressive behaviour among youngsters), a more effective version could be developed by making use of the available scientific knowledge on determinants of aggressive behaviour. Sometimes preventive effects do not become visible in a controlled outcome study, when studies measure only short-term outcomes, which is often the case. Follow up measures after a year, five years or even longer are frequently lacking. This would require a change in the research design. 298 Some effect predictors further elaborated Single outcome studies but also systematic reviews, meta-analyses, and in-depth discussions with policy makers, programme designers, providers, and consumers are providing more insight in what the ingredients are of effective programmes, practices, and policies (e.g. Greenberg et al., 2003; Nation et al., 2003; Jané-Llopis, 2004; Stice et al., 2004, 2009). Below we have highlighted some of these findings. - Programme development and resources: Take a long-term perspective when developing an evidence-based programme. The most successful programmes that are currently available, have taken around 10 to 20 years to be developed from start till the moment of repeated evidence of its effectiveness. Given the large investment that is needed for developing and implementing very successful programmes and the limited budget available, it is recommended not to spread available budgets for programme development across too many programmes and to focus on the most promising ones. - Participant and target population: Segmentation of problem and target groups makes it possible to make more tailored interventions for specific subgroups, as stated earlier. Outcome research has confirmed this hypothesis. Tailoring increases the effectiveness of a programme. For instance, in most cases but not all, outcome studies show that preventive effects are greater among those who are more ‘at risk’ due to an accumulation of risk factors. Careful risk assessment and identifying individuals or groups most at risk will increase effectiveness. - Timing of intervention (programme): Developmental psychopathology studies have shown that mental health and mental disorders mostly have a long-term developmental trajectory that starts already early in life. This stresses the importance of intervening as early as possible in such a developmental trajectory and at ‘sensitive periods’. Sensitive periods are those periods wherein a risk or protective factor is starting to emerge or wherein children, adolescents or adults are in a transitional period and therefore more open to change. For example, to prevent serious conduct problems it is recommended to intervene already in preschool and early elementary years, instead of waiting until adolescence when risk factors have become strongly interrelated and stabilised. Known sensitive periods are at the start of new developmental periods (pregnancy and early life, early adolescence, beginning relationships) or in a period of crisis (e.g. divorce, death of a loved one, losing a job). - Programme strategy: Over the last decade, there is a movement from single interventions to multi-component and integral programmes (i.e. consisting of multiple interventions or programmes). There is evidence from many sources that programmes are more effective when they use multiple methods, and address for instance not only children but also simultaneously parents, peers, teachers, the school system, and the local community as a whole. Multi-component programmes could also encompass multiple settings to reach more people or address multiple risk and protective factors. - Targets of programmes (risk and protective factors): Prevention is frequently focused at a specific disorder or a specific unhealthy behaviour, e.g. depression or excessive drinking. In such an approach, we try to influence as many responsible factors as possible. However, epidemiological and evaluation studies have shown that different problems and disorders have frequently common risk and protective factors. Therefore, an alternative 299 would be to focus at common factors to create a broad-spectrum effect (multiple outcomes). Such a wider approach requires the use of a wider set of outcome indicators to make the full spectrum of expected positive outcomes visible. - Targets of programme (community programmes): Epidemiological research has shown that different mental health and social problems are frequently related and show a high level of co-morbidity. These problems are usually concentrated in certain populations or neighbourhoods at high risk. When problems trigger each other, it can be more effective and efficient to use a comprehensive community approach, as is used for example in the Communities that Care Program. In this programme, a specific cluster of evidence-based prevention programmes that best fits the ‘at risk’ community is selected based on a community needs assessment, involving multiple parties in such a community. In general, an innovative option is not to focus on separate problems, but to use an integral approach to address ‘smart clusters’ of narrowly related problems. - Duration and dosage of programmes: programmes that are too short run the risk to be ineffective or to produce only short-term effects. Several studies have shown that, at least in children, expanding the contact time over a longer period is more effective then offering the same contact in a much shorter period (e.g. couple of weeks). Interventions that exist of only one session (e.g. school hour, afternoon) usually do not show effect. - Dissemination and used methods in programmes: One of the main problems in current practice is the limited reach in the community, as we stated above. More effort and attention needs to be given to the development of support to large-scale dissemination and implementation of successful programmes. This is currently a serious bottleneck in many European countries. Another option is to select intervention methods that have a larger reach in the community, such as the internet (E-health) and mass media (chapter 18). - Implementation: Effectiveness does not only depend on the quality of a prevention programme, but also on the quality of its implementation. Programmes have been found to be more effective when programme providers (practitioners) receive more training and supervision, and show fidelity to the originally designed, evidence-based programme (programme fidelity). PREFFI 2.0 Over the last 20 years, a lot of new knowledge has been developed on what makes prevention programmes more effective and what could be serious barriers to efficacy and effectiveness. To make the knowledge on effect predictors more accessible and usable the Dutch National Institute of Health Promotion and Disease Prevention and the Prevention Research Centre of the Radboud University and Maastricht University have collaborated since the end of the 1990s on the development of an effect management tool for practitioners, programme designers and policy makers. This tool is called the PREvention EFFect management Instrument, known as the PREFFI. The current version, the PREFFI 2.0 offers a large list of effect predictors divided into 8 clusters and a system to assess the quality of prevention programmes and to improve the perspective on effectiveness (Molleman et al, 2003; 2005a; 2005b). The 8 clusters roughly parallel the domains specified in Figure 14.2. The PREFFI 2.0 is found to be a reliable and valid instrument. This instrument is used widely in Dutch prevention and health promotion 300 practices and its framework is also used in selecting promising and evidence-based programmes for national databases (next chapter). The PREFFI 2.0 is also translated in several European languages (English, French, Norwegian, and Croatian) and used in other countries. Currently, our Prevention Research Centre collaborates with Croatian prevention researchers to further study the validity and reliability of the instrument, to improve the instrument, and to study the impact of a PREFFItraining on the quality and effectiveness of prevention programmes in Croatia. A Dutch and English website is available on the PREFFI (www.preffi.nl) 14.7 Conclusion To conclude, there is ample evidence that mental health promotion and preventive interventions are able to change many risk and protective factors. Controlled studies show that they can significantly reduce the risk of mental disorders and improve mental health (mental capital). Also, evidence of their cost-effectiveness has been found. In addition, these programmes are also able to generate a wide range of health and social outcomes outside the domain of mental health. This shows their wide public value for different domains of life. On the other hand, there is still a long way to go, and measures are needed to improve the effectiveness of such programmes and their wide reach in the population. The many studies that have been published on the outcomes of mental health promotion and prevention programmes also have generated insight in what makes such programmes effective, for whom, and under what conditions. A wide range of effect predictors have been identified and translated in guidelines for effect management (PREFFI 2.0). Taking into account that until the early 1980s almost no scientific knowledge existed on prevention in this domain, we may conclude that huge progress has been made in the last three decades. Notwithstanding this progress, we are currently exposed to several huge challenges. The evidence on existing mental health promotion and prevention programmes need to be further expanded. New programmes need to be developed and tested for risk factors and mental health problems that are not sufficiently addressed yet. Especially, more knowledge is needed on opportunities to influence social risk factors that have a significant impact on mental health (e.g. economic recession, poverty, individualisation and poor social cohesion in communities, economic migration, AIDS, social conflicts). Another important challenge is to understand how preventive and health promoting interventions targeted at the social environment of pregnant women, parents, and young kids could influence the neurobiological systems that function as the hardware of mental capital and emotional resilience responsible for chronic psychiatric vulnerability. Finally, we are just beginning to develop a theory on what constitutes effective prevention and mental health promotion. Future outcome studies should not only study whether a programme is effective or not, but give more priority to understand what the ingredients and conditions are of effective programmes, policies, and practices. 301 Literature Aos, S., Lieb, R., Mayfield, J., Miller, M., & Pennucci, A (2004). Benefits and Costs of Prevention and Early Intervention Programs for Youth, Washington State Institute for Public Policy. Anderson, P., Jané-Llopis, & Hosman, C. (2011). Reducing the silent burden of impaired mental health Health Promotion International, 26 (suppl 1), i4-i9. Bockting, C.L.H; Schene, A.H, Spinhoven, P., Koeter, M.W.J., Wouters, L.F., Huyser, J., & Kamphuis, J.H (2005). Preventing Relapse/Recurrence in Recurrent Depression With Cognitive Therapy: A Randomized Controlled Trial. Journal of Consulting and Clinical Psychology, 73, 4, 647-657. Clarke, G. N., Hornbrook, M., Lynch, F., Polen, M., Gale, J., Beardslee, W., O'Connor, E., & Seeley, J. (2001). A randomized trial of a group cognitive intervention for preventing depression in adolescent offspring of depressed parents. Archives of General Psychiatry, 58, 1127-1134. Cuijpers, P., Van Straten A., Smit, F., Mihalopoulos, C., & Beekman, A. (2008). Preventing the onset of depressive disorders: a meta-analytic review of psychological interventions. American Journal of Psychiatry, 165,1272–1280. Fletcher, A., Breeze, E., & Walters R. (1999) Health promotion for older people: what are the opportunities? Promotion & Education, 6(4), 4-7. Garber, J., Clarke, G., Weersing, R., et al. (2009). Prevention of depression in adolescents at risk: a randomized controlled trials. Journal of American Medical Association, 301, 21, 2215-2224. Greenberg, M. T., Weissberg, R. P., Utne O’Brien, M., Zins, J. E., Fredericks, L., Resnik, H., & Elias, M. J. (2003). Enhancing school-based prevention and youth development through coordinated social, emotional, and academic learning. American Psychologist, 58, 466–474. Hosman C, Jané-Llopis E, Saxena S (2004). Prevention of mental disorders: effective interventions and policy options. WHO, Geneva. IOM, National Research Council and Institute of Medicine. (2009). Preventing Mental, Emotional, and Behavioral Disorders Among Young People: Progress and Possibilities. Committee on Prevention of Mental Disorders and Substance Abuse Among Children, Youth and Young Adults. Washington: Institute of Medicine. Jané-Llopis, E. (2004). What makes the ounce of prevention effective? A meta-analysis of mental health promotion and mental disorder prevention programmes. Nijmegen: Radboud University Nijmegen, Dissertation. Jané-Llopis, E., Barry, M.M., Hosman, C., & Patel, V. (Eds.). (2005). The Evidence of Mental Health Promotion Effectiveness: Strategies for Action. Promotion & Education, Special Issue, Supplement 2. Kuhner, C., Angermeyer, M.C., & Veiel, H.O.F. (1996). Cognitive-behavioral group intervention as a means of tertiary prevention in depressed patients: Acceptance and short-term efficacy. Cognitive Therapy and Research, 20, 4, 391-409. Ma, S.H., & Teasdale, J.D. (2004). Mindfulness-based cognitive therapy for depression: Replication and exploration of differential relapse prevention effects. Journal of Consulting and Clinical Psychology, 72, 1, 31-40. Mental Health Europe (1999). Mental Health Promotion for Children up to 6 Years. Directory of Projects in the European Union. Molleman, G.R.M., Peters, L.W.M., Hosman, C.M.H. et al. (2003). De PREFFI 1.0: Systematische ontwikkeling van een kwaliteitsinstrument voor gezondheidsbevordering. Tijdschrift voor Sociale Gezondheidswetenschappen, 81, 5, 238-246. Molleman, G.R.M, Peters, L.W.H, Hosman, C.M.H., & Kok, G. (2005a). Implementation of a quality assurance instrument (Preffi 1.0) to improve the effectiveness of health promotion in The Netherlands. Health Education Research, 20 (4), 410-422. Molleman, G.R.M., Peters, L.W.H., Hosman, C.M.H., Kok, G., & Oosterveld, P. (2005b). Project quality rating by experts and practitioners with preffi 2.0 as a quality assessment instrument. Health Education Research, 21(2), 219-229. 302 Nation, M., Crusto, C., Wandersman, A., Kumpfer, K., Seybolt, D., Morrissey-Kane, E., & Davino, K. (2003). What works in prevention: Principles of effective prevention programs. American Psychologist, 58, 6-7, 449-456. Mrazek, P. J., & Haggerty, R. J. (1994). Risk and protective factors for the onset of mental disorders, Illustrative preventive intervention research programs. In P. J. Mrazek & R. J. Haggerty (Eds.), Reducing risks for mental disorders: Frontiers for preventive intervention research (pp. 163-171, 286-289). Washington: National Academy Press. Price, R.H., & Vinokur, A.D. (1995). Supporting Career Transitions in time of organizationaldownsizing: The Michigan JOBS Program. In M. London (Ed.). Employees, careers, and job creation: Developing growth-oriented human resource strategies and programs (pp. 191-209). San Francisco: Jossey-Bass Publishers. Schweinhart, L. J. (2004). The High/Scope Perry Preschool Study through age 40: Summary, conclusions, and frequently asked questions. Ypsilanti, MI: High/Scope Educational Research Foundation. Schweinhart, L. J., & Weikart, D. P. (1997). The High/Scope Preschool Curriculum Comparison Study through age 23. Early Childhood Research Quarterly, 12, 117 - 143. Schweinhart, L. J., & Weikart, D. P. (1988). Education for young children living in poverty: Childinitiated learning or teacher-directed instruction? Elementary School Journal, 89, 213 -225. Stice, E., Bohon, C., Nathan Marti, C., & Rohde, P. (2009). A Meta-Analytic Review of Depression Prevention Programs for Children and Adolescents: Factors that Predict Magnitude of Intervention Effects. Journal of Consulting and Clinical Psychology, 77, 3, 486–503. Stice, E., & Shaw, (2004). Eating disorder prevention programs: A meta-analytic review. Psychological Bulletin, 130, 2, 206–227. Thomson H, Petticrew M, Morrison D. (2001). Health effects of housing interventions: a systematic review of intervention studies. British Medical Journal, 323,187-190. UNICEF (2002). UNICEF annual report 2002. New York, UNICEF. Van ‘t Veer-Tazelaar, P.J., van Marwijk, H.W., van Oppen, P., et al. (2009). Stepped-care prevention of anxiety and depression in late life: a randomized controlled trial. Archives of General Psychiatry, 66, 297–304. Van ’t Veer-Tazelaar, P.J., van Marwijk, H.W., van Oppen, P., et al. (2011). Prevention of late-life anxiety and depression has sustained effects over 24 months: a pragmatic randomized trial. American Journal of Geriatric Psychiatry, 19, 230–239. Van der Waerden, J. B. E., Exercise without worries, Prevention of stress and depressive symptoms in women from disadvantaged communities (2011). (Doctoral dissertation) Retrieved from http://digitalarchive.maastrichtuniversity.nl/fedora/get/guid:a02e4ca7-a5d3-40e1-90ec14852dd1d2d8/ASSET1 Van Widenfelt, B., Hosman, C., Schaap, C., & van der Staak, C. (1996). The prevention of relationship distress for couples at risk: A controlled evaluation with nine-month and two-year follow-ups. Family Relations, 156–165. Vinokur, A.D., Price, R.H, & Schul, Y. (1995). Impact of the JOBS intervention on unemployed workers varying in risk for depression. American Journal of Community Psychology, 23, 1, 39-74. Vuori, K., Price, R.H., Mutanen, P., & Malmberg-Heimonen, I. (2005) Effective Group Training Techniques in Job-Search Training. Journal of Occupational Health Psychology, 10, 3, 261– 275. WHO (2002a). Prevention and promotion in mental health. Mental health: evidence and research. Geneva, Department of Mental Health and Substance Dependence. WHO (2002b). Prevention of psychoactive substance use: A selected review of what works in the area of prevention. Geneva, World Health Organization. 303 Study questions for this chapter Why is it not possible to use just one criterion for success or failure of mental health promotion and preventive interventions? What different criteria exist to evaluate the outcomes these interventions? Which stakeholders play a role in this and what are the implications of their involvement? What is the difference between ‘efficacy’ and ‘effectiveness’? What are the major building stones of ‘evidence’ for the efficacy and effectiveness of prevention and promotion programmes? What influences the impact of programmes on the mental health of whole populations or populations at risk? Overall, what do we currently know about the evidence-based effects of mental health promotion and prevention? Are existing prevention and mental health promotion programmes effective? What kind of evidence-based effects are found? Are we able to prevent mental disorders, which disorders and to what degree? To create preventive effects on mental health, would it be recommendable to focus interventions specifically on mental health issues and mental health targeted programmes? What is meant by the term ‘effect predictor’? Why is it important? Which effect predictors can be distinguished? How could they be clustered and how are they interrelated? What is the meaning of effect-management? What strategies for effect management could be derived from the model described in figure 14.2? Could you offer some recommendations on how the effectiveness of prevention programmes can be improved? What does the author consider as major challenges for future prevention research? 304 15 Database of effective youth interventions 15.1 Introduction 306 15.1.1 The Netherlands Youth Institute 306 15.2 Database aims 306 15.2.1 Principal aims 306 15.2.2 Database in development 307 15.3 Database contents 307 15.4 Recognition 308 15.4.1 Inclusion criteria 308 15.4.2 Recognition criteria 308 15.4.3 Types of recognition 309 15.5 Classification systems for effect studies 311 15.6 An example: Triple P 311 Literature 313 Study questions for this chapter 313 305 15 Database of effective youth interventions 15.1 Introduction In the light of a growing interest in the Dutch youth sector in evidence-based practice and ‘what works’, a database of effective youth interventions, and an associated website (www.nji.nl/jeugdinterventies) have been developed. The Database of Effective Youth Interventions gives professionals, policy-makers, researchers, and financers, information on effective youth interventions carried out in the Netherlands. All interventions included in the database have been assessed by the national Youth Intervention Admissions Committee using stringent criteria and have been acknowledged as effective intervention. The database holds information on interventions whose effectiveness has either been demonstrated by effect studies in the Netherlands, or for which this effectiveness can be assumed on solid theoretical grounds. This also applies to interventions developed outside the Netherlands and which have proved to be effective over there. The database is publicly accessible via the website; the information held in the database is in Dutch. 15.1.1 The Netherlands Youth Institute The Database of Effective Youth Interventions is developed and maintained by the Netherlands Youth Institute (or NJi, after its Dutch name Nederlands Jeugdinstituut). The NJi is the Dutch national institute for compiling, verifying, and disseminating knowledge on child and youth matters, such as youth care, parenting support, and child education. The NJi considers it important to be able to share its knowledge and activities to improve the quality and effectiveness of care services for young people and their carers at an international level. Information on the database and its associated developments is primarily intended for professionals and organisations who share the NJi’s task of linking practice and research and making the results accessible. 15.2 Database aims 15.2.1 Principal aims The database principally intends to stimulate and support practitioners striving to supply the highest possible quality of care services to young people and their carers. As a knowledge broker, the NJi hopes the Database of Effective Youth Interventions will help care workers in the field to benefit from scientific insights into the effectiveness of youth interventions, both in the Netherlands and abroad. The Netherlands have a rich tradition of practical expertise in providing services to young people and their parents or carers. At the same time, however, most approaches have received little or no research attention and practical developments have only scarcely been linked to scientific effect research. To optimise the provision of care services they must be linked to research and practice. In recent years, there has been a strong demand for the combination of practice development and effect studies. The Database of Effective Youth Interventions and its associated website set out to meet this demand: They 306 make scientific findings on the effectiveness of youth interventions accessible to care workers in the field and at the same time, they stimulate the improvement of the care provisions on offer. In other words, the database and the website bring research and practice together. 15.2.2 Database in development The NJi works closely with other parties in the youth sector to implement and further develop the database, so that they can offer information on a wide range of prevention, support, treatment, and sanction programmes. The database is not intended as a tool for financiers to select and use only those interventions that are indicated as being particularly effective; the current level of knowledge about what works and does not work is inadequate for this purpose. Moreover, it is essential that practice is given a free rein to develop new interventions and to assess the effectiveness of existing but untested practices. The Database of Effective Youth Interventions can assist in this process by providing inspiring and well-documented examples of effective interventions. 15.3 Database contents Interventions in youth and child-rearing The Database of Effective Youth Interventions contains information on the effectiveness of interventions for children, young people (up to 24 years), their parents/carers, and the care environment. The term ‘intervention’ is an umbrella term that covers programmes, projects, training methods, forms of treatment and supervision, sanctions, etc. A youth intervention is a goal-directed and systematic approach that differs from what is usual for the group concerned, and which aims to improve the psychological, social, cognitive, and physical development of children and young people where this development is under (possible) threat. The interventions are carried out by youth health care providers, pedagogic facilities, youth workers, (special) education institutes, ‘community schools’, youth welfare organisations, and juvenile justice organisations, amongst others. Provisions related to the curriculum have not been included in the database. Effective interventions Only those interventions that have been recognised by the National Youth Interventions Admissions Committee are included in the Database of Effective Youth Interventions. On the 1st of October 2014, the database included 223 interventions. These are interventions that the Committee holds to be effective in practice- or at least in theory, by which is meant that a clear description and solid theoretical foundation is available which makes it plausible that the intervention might work. The Committee is a central body with a national working area. Applying strict criteria for evidence of effectiveness, only for 27 of the 223 interventions strong evidence was found for effectiveness based on RCTs. Description components Every intervention in the database is described in the same way. The description of an intervention contains information on its aim(s), target group(s), approach, and materials, and on the conditions for its effectuation, such as an implementation plan and a quality assurance system. Moreover, it must include a problem analysis based on actual scientific theory and a theoretical foundation regarding the supposed effectiveness of the intervention. If available, the description must also include details of any Dutch effect study that shows that the 307 intervention did indeed achieve its goals, and that this achievement was caused by the intervention. Any foreign effect studies into intervention equivalents or similar interventions are also briefly described. Not included Those interventions which are inadequately documented, or which do not have an adequate theoretical foundation, have not, yet been included in the database. These interventions do however appear in a separate section (‘not yet included’) of the website. Interventions that are not eligible for inclusion in the database also appear in their own section of the website (‘not eligible for inclusion’) together with the reason for their ineligibility. 15.4 Recognition The Admission Committee works with a set of procedures and with well-established, carefully considered criteria. These procedures and criteria are transparent and accessible to third parties. The Committee currently employs two kinds of criteria: inclusion criteria and recognition criteria. Interventions must meet all inclusion criteria in order to be eligible for an assessment on the grounds of the recognition criteria. 15.4.1 Inclusion criteria There are four inclusion criteria: 1) There must be documentation on the intervention, which provides information on its aim(s) and target group(s). There must be a Dutch-language manual or protocol and where available, Dutch data on research, evaluation, or experience. There must also be a contact person or organisation who can provide information on request. 2) The intervention must represent a goal-directed and systematic activity that differs from what is usual for the target group. 3) The most important aim of the intervention must be reducing problems for young people and their parents or carers, preventing such problems from occurring, or stimulating development. The intervention must apply to young persons, to their parents or carers, or to their care environment. In other words, interventions must be intended to promote competent behaviour or the quality of the child-rearing environment. 4) The intervention must be directed towards young people between the ages of 0 and 18 years (an extension to 24 years is possible), their parents/carers, or the child-rearing environment. 15.4.2 Recognition criteria If a submitted intervention description meets all these inclusion criteria, it is then assessed using the recognition criteria, which have to do with the intervention’s theoretical foundation, the soundness of its methodology, its practical implementation, and any available research on its effectiveness. 1) Criteria for theoretical foundation - There must be an analysis of the problem, including data on the nature, severity, scale, and distribution of the factors associated with this problem if relevant. - There must be a theoretical foundation that encompasses the problem, the target group(s), the aim(s), and the approach. 308 - Target group(s), aims, and working methods must form a logical, coherent whole. 2) Criteria for soundness of methodology - The target group(s) must be closely defined and described, including, for instance, attributes such as its culture, its own experience of its problems, its motivation, its potential, and its acceptability. - There must be data on indications and counter-indications - Explicit aims must be stated. - The working methods must be described at the level of concrete activities as fully as possible. - The order, frequency, intensity, duration, and timing of contacts and activities must be given. - The materials required and their availability must be clearly described. 3) Criteria for practical implementation - The intervention must be transferable. - The implementing organisation possesses HKZ registration. HKZ stands for Harmonisatie Kwaliteitsbeoordeling in de Zorgsector, or Harmonisation of Quality Assessment in the Care Sector. A HKZ certificate indicates that the implementing organisation meets predetermined quality standards of care supply. 4) Criteria for effect studies - If available, Dutch effect studies of the intervention (including attributes and research results) must be described. - The effects of the intervention must be given in figures, and are positive. - The degree of effectiveness of the intervention must be stated (for instance, in the form of an effect size). - Where different studies indicate different effects, then the overall effect must be given. 15.4.3 Types of recognition The Committee can accord three types of recognition to interventions: ‘effective in theory’, ‘demonstrably effective’ and ‘cost-effective’. Effective in theory All interventions included in the Database of Effective Youth Interventions are effective in theory at least. For this recognition to be conferred, the theoretical foundations of the intervention must be of a satisfactory standard, there must be a full description of its effects on all required elements, and the intervention has to meet a set of preconditions and requirements for quality assurance. A clear argument must be put forward as to why the proposed activities would achieve the stated aims of the intervention. These interventions will not have been subjected to empirical research indicating the effectiveness of this approach in the Netherlands. Demonstrably effective Interventions which are effective in theory and for which Dutch studies have shown that the stated aims are achieved, respectively that this is caused by the intervention, can be considered for recognition as ‘demonstrably effective’. Two dimensions play a role in the empirical substantiation of an intervention: the quality of the research study and the persuasiveness of the resulting evidence. 309 Cost effective Interventions, which the Admissions Committee accords as being cost effective, are deemed not only effective, but also practical and efficient to carry out. Current developments have shown that very little can be said now about the cost effectiveness of interventions; too little is known about the cost of interventions and research into cost-effectiveness in practice is scarce. It is the Committee’s intention to be able to confer this type of recognition in the future. A developmental model The distinction between ‘effective in theory’ and ‘demonstrably effective’ is based on a developmental model concerning the evidence of effectiveness. This implies a tentative recognition of the intervention, based on a comprehensive description and on theoretical and practice-based evidence. The model consists of a so-called ‘staged’ system from the assessment of the quality of intervention. In this model, four levels of evidences regarding the effectiveness of an intervention are distinguished: descriptive, theoretical, functional, and wellestablished evidence. The levels of evidence can be seen as phases in the development of an intervention. The model shows that each developmental phase of an intervention can be tied to an appropriate study design. In general, one can say that the greater the freedom to choose a study design, the less certainty there is about the effectiveness of the interventions, which means a lower level of evidence. According to the four levels of evidence, the effectiveness of an intervention/ the developmental phase of an intervention can be classified as follows: 1) Potentially effective: the essential elements of the intervention (e.g. goals, target group, methods and activities, requirements) have been made explicit. 2) Effective in theory: as above (potentially effective), but the intervention now has a plausible rationale (i.e. a programme theory) to explain why it should work and with whom. 3) Effective in practice: as above (effective in theory), but is has now also been demonstrated that the intervention clearly leads to the desired outcomes (e.g. goals are attained, target problems decrease, competences increase, clients are satisfied). 4) Efficacious: as above (effective in practice), but there is now sound and substantial evidence that the outcome is caused by the intervention and/or clear evidence showing which ingredients of the intervention are responsible for the outcomes. Developmental trajectory The levels in the proposed model lead for evidence-informed practice to evidence-based practice. Thus, they provide not only a classification scheme, but also a developmental trajectory that leads to an empirically supported evidence-based practice. Reassessment of a recognised intervention after five years will include an assessment of the progress that is made according to the developmental model. In this way, the developmental model forms a stimulus for those working in the field to strive for obtaining more insight into the effectiveness of the interventions they develop and use, plus it invites scientists and practitioners to work together to improve the quality of care provision step by step. 310 15.5 Classification systems for effect studies The developmental model concerning the effectiveness of an intervention can be linked to the classification system for effect studies. Figure 15.1 shows the relationship between the developmental phases of an intervention and their associated research types, together with the classification system used to categorise the effect research. Fig 15.1 Classification of effect studies and the developmental model Developmental level Types of research Descriptive studies Observational studies Analysis of documents Conduct of interviews Classification system 1. The intervention is potentially effective - 2. The intervention is effective in theory - Reviews - Literature studies - Implicit knowledge studies 3. The intervention is effective in practice - Quasi experimental studies - Theory of change studies 0 - Norm references approaches - Benchmark studies - Monitoring studies (pre-post) * - Client satisfaction studies - Goal attainment studies - Quality assurance studies 4. The intervention is efficacious (well- established) - Randomised Controlled Trial - Repeated case studies (n=1 design) The threshold for inclusion in the Database of Effective Youth Interventions: recognition as ‘effective in theory’ from the National Youth Interventions Admissions Committee ** *** **** ***** 15.6 An example: Triple P We have selected the parenting programme Triple P as an example of a programme that is described in this database as an effective programme with strong evidence. The programme was developed in Australia but currently implemented in many countries around the world. To find the programme description and research evidence for its effectiveness we recommend the reader to go to: the original Triple P database from Australia (www.triplep.net/glo-en/home/) the Nji database (www.nji.nl/nl/Databank/Databank-Effectieve-Jeugdinterventies), Wikipedia (https://en.wikipedia.org/wiki/Triple_P_(parenting_program)) 311 312 Literature Matsumoto, Y.; Sofronoff, K.; Sanders, M. R. (2010). "Investigation of the effectiveness and social validity of the Triple P Positive Parenting Program in Japanese society". Journal of Family Psychology 24 (1): 87–91. doi:10.1037/a0018181 Mihalopoulos, C.; Sanders, M. R.; Turner, K. M. T.; Murphy-Brennan, M.; Carter, R. (2007). "Does the Triple P Positive Parenting Program provide value for money?". Australian and New Zealand Journal of Psychiatry 41: 239–246. doi:10.1080/00048670601172723 Nowak, C.; Heinrichs, N. (2008). "A comprehensive meta-analysis of Triple P-Positive Parenting Program using hierarchical linear modeling: Effectiveness and moderating variables". Clinical Child Family Psychology Review 11: 114–144. doi:10.1007/s10567-008-0033-0. Sanders, M. R. (2008). "Triple P-Positive Parenting Program as a public health approach to strengthening parenting". Journal of Family Psychology 22 (3): 506–517. doi:10.1037/0893-3200.22.3.506 Study questions for this chapter For the study of this chapter, you can use the evaluation report on Triple P as an example (see database NJI) to answer the following questions: With what purpose / which aims, has the Database of Effective Youth Interventions been created? What levels of scientific evidence are available to classify a particular intervention? The database distinguishes different types of recognition for an intervention. Describe what each of these types implies. Based on what assessments does the Admission Committee decide whether an intervention is ‘effective in theory’ or ‘demonstrably effective’? Briefly describe the content and target group for each of the five Triple P intervention levels. Try to link each of the Triple P levels to the different prevention types (e.g. universal, selective, indicated, primary, secondary, tertiary prevention). How would you describe the main differences between the Triple P programme and other prevention programmes such as the Coping with Depression Course (chapter 13 and 17 or the Mother Baby Intervention (see chapter 16)? What can be concluded on the scientific evidence for the Triple P intervention as a whole, or for each of its different levels? 313 314 PART V THEMES PROGRAMMES EFFECTIVENESS Children of Mentally Ill Parents (COPMI) Depression E-health interventions Child abuse Anxiety disorders 315 316 16 Prevention of emotional problems and psychiatric risks in children of mentally ill parents: the science base to a comprehensive approach 16.1 Introduction 318 16.1.1 Epidemiology and impact on children 318 16.2 Disorder-specific transmissions or broad-spectrum risk? 319 16.2.1 A developmental model of mental health and psychopathology of offspring 320 16.3 Parent-related factors 321 16.3.1 16.3.2 16.3.3 Characteristics of parental psychopathology predicting increased risk Risk factors during pregnancy Parenting competence and parent–child interaction 321 323 323 16.4 Family conditions 324 16.5 Child-related factors 324 16.6 Factors in the extra familial environment: networks, community, and care 326 16.7 Conclusions 326 16.7.1 16.7.2 16.7.3 16.7.4 Estimating the level of risk Risk and protective factors Value of a theoretical framework Needs for further research 327 327 328 328 Literature 329 Study questions for this chapter 334 317 16 Prevention of emotional problems and psychiatric risks in children of mentally ill parents: the science base to a comprehensive approach 16.1 Introduction Over the past four decades studies have established a strong connection between mental illness among parents and increased lifetime psychiatric risk for their children. The transgenerational transmission of mental illness represents one of the most significant causes of psychiatric morbidity. Over the last twenty years, a comprehensive preventive approach has been developed in the Netherlands to support children of mentally ill parents (COPMI) and their families by offering a wide range of preventive services, mostly from community mental health centres. From the start, the approach was jointly developed by practitioners and scientists, using a combination of bottom-up and top-down strategies guided by scientific evidence regarding intergenerational transmission of psychopathology, process evaluation, and outcome studies. The aim of this chapter is to summarise the knowledge base of the Dutch prevention policy and programme for COPMI, in particular the knowledge on malleable risk and protective factors in the transmission of psychiatric and related problems from parents to children. We present a developmental theoretical model that serves as a framework to integrate the extensive knowledge on these transmission processes from the fast growing number of studies in this field. The model is also used to guide the development of the comprehensive Dutch programme as a whole. The major assumption is that an effective approach to reduce the risk of psychiatric problems and enhance the social-emotional development of COPMI needs to be grounded in both practice-based and theory-based knowledge and related evidence. 16.1.1 Epidemiology and impact on children The need to prioritise COPMI in our national and local prevention and health promotion policies is based on knowledge from a wide range of sources including epidemiological and clinical studies, clinical and preventive practices, and extensive contacts with the children and their families. These sources all pointed out that children of parents with a mental illness are at much higher risk of developing mental disorders and multiple other adverse outcomes at some point in their lives than children of healthy parents. Longitudinal studies have shown that the risk of developing mental disorders among these children lies between 41% to 77% (Beardslee et al, 1993; Downey & Coyne, 1990; Goodman et al., 1994; Orvaschel, Walsh-Ellis & Ye, 1988; Rutter & Quinton, 1984; Weissman et al., 1987). Evidence for this elevated risk has been found across the whole diagnostic spectrum of parental psychiatric disorders, including substance abuse (Cuijpers et al, 1999; Edwards et al., 2006; Steinhausen, 1995), anxiety disorders (Beidel & Turner, 1997; O’Connor et al., 2002), panic disorder (Biederman et al., 2001), obsessive compulsive disorder (Black, Gaffney, Schlosser, & Gabel, 2003), depression (Beardslee et al., 1998; Weissman et al., 2006), dysthymic disorder (Lizardi et al., 2004), bipolar disorder (DelBello & Geller, 2001, Birmaher et al., 2009), eating disorders (Park et al., 318 2003), suicide (Bronisch & Lieb, 2008), and personality disorders (Coolidge et al., 2001; Westman, 2000). For instance, in a study among the offspring (7-12 yrs) of parents with an anxiety disorder, 33% of the children had an anxiety disorder as well, compared to 8% of children whose parents had no mental illness (Beidel et al., 1997). Rates for the occurrence of major depression by the end of adolescence have been found to be as high as 40% in offspring of depressed parents (Beardslee et al., 1993). Among children of depressed parents, rates of depression have been found to be two or three times (Weissman et al., 2006) to even eight times (Wickramaratne & Weissman, 1998) higher than among children whose parents have no mental illness. The Dutch NEMESIS study found a lifetime prevalence of abuse/dependence disorders of 28.5% among children of problem drinkers, compared to 17% among children of other adults (Cuijpers et al., 1999). Parental mental illness affects not only the lifetime psychiatric risk of their offspring, but has also multiple mostly related adverse outcomes, such as a higher risk of stress reactivity, living in high-conflict and divorced families, exposure to child abuse and neglect, identity problems, poor academic achievement and school failure, problems in developing intimate relationships, and a higher risk of suicidal behaviour (e.g. Ashman et al., 2002; Cicchetti et al., 1998; Goodman & Gotlib, 1999; Leinonen et al., 2003a). Children of parents with a mental illness represent a large segment of the population. Even in a small country such as the Netherlands, with 16.8 million inhabitants, there are about 1.6 million of such children younger than 22 years, including 900,000 younger than 12 years of age. Although this group as a whole has found to be at elevated risk, this does not count for all COMPI because risk levels may vary significantly among them. As will be discussed in this article, the level of risk is depends highly on the presence of an accumulation of risk factors and the role of protective factors. 16.2 Disorder-specific transmissions or broad-spectrum risk? There is much debate on the question whether the transmission of mental disorders from parents to children is disorder-specific or not. Are children specifically at risk of the same disorders as their parents? Is the transmission dominated by disorder-specific risk factors or do children of parents with different mental disorders share common risk factors that in turn might cause an increased risk for multiple disorders? Answers to these questions are critical to the designing of effective prevention programmes. For instance, are children of depressed in need of different preventive support than children whose parents suffer from a generalised anxiety disorder, alcohol addiction, schizophrenia or a borderline personality disorder? There is strong evidence that children of parents with a mental disorder have an increased risk of developing the same disorder as their parents, but there exists also overwhelming evidence that these children are at increased risk of developing a wide range of other disorders, reflecting a so-called broad-spectrum effect (Bijl et al., 2002; Lieb et al., 2002; Lizardi et al., 2004). For instance, longitudinal studies by Wickramartne and Weissman (1998) found that, compared with children of parents without psychiatric disorders, children of parents with major depressive disorder had an eight times greater risk of childhood-onset and five times greater risk of early-adulthood-onset major depressive disorder, three times greater risk of anxiety disorder, and five times greater risk of conduct disorder and alcohol dependence (Weissman et al., 1997; Weissman et al., 2006). Increased risk of multiple disorders has also 319 been found among children of parents with schizophrenia (Keshavan et al., 2008; Niemi et al., 2004; Hans et al., 2004; Tienari et al., 2000) and substance abuse (Clark et al., 2004; Cuijpers et al., 1999; Harter, 2000). The finding of a variety of disorders in the offspring of parents with a specific disorder does not necessarily point exclusively at the role of broad-spectrum risk factors. The multiple disorders found in offspring might simply reflect the frequent prevalence of comorbid disorders in parents, as this is common in psychiatric patients in general. For instance, in a study of the offspring of parents with substance abuse disorders by Clark et al. (2004), the increased risk of each of several disorders in the child sample could be predicted by the corresponding comorbid disorders in the parents. As a prelude to the discussion of risk factors in the next section, the most likely conclusion from current risk factor research is that both disorder-specific and common factors are responsible for the increased risk of psychopathology in offspring (e.g. Avenevoli & Merikangas, 2006). Disorder-specific risk factors include genetic and biochemical factors, but also parental modelling behaviour and reinforcement of pathological coping styles (e.g. substance abuse, externalising behaviour, emotional eating, overprotective behaviour). Also, many common risk factors have been identified in the transmission of risk across different parental diagnoses. They might be common outcomes of the parental disorder (e.g. insensitive responsiveness, neglect, abuse, exposure to family conflict and violence, parentification) or refer to common risk factors influencing the onset of psychopathology in both parents and offspring (e.g. poverty, exposure to neighbourhood violence, substance abuse, and domestic violence). Such factors are not only common mediators across different parental diagnoses but they themselves are likely to increase the risk of a wide range of problems in offspring. For this reason, we label them as common or broad-spectrum risk factors. Protective factors that have been found to buffer the impact of risk factors are also mostly not disorder-specific (e.g. care by the other parent, the child’s own problem-solving skills, and social support by family, friends, or teachers). These findings suggest that prevention programmes for COPMI should address both common and disorder-related factors. Addressing common factors might increase the likelihood of a broad-spectrum of favourable outcomes and improve the cost-effectiveness of interventions. In addition, it will increase the feasibility of such programmes. Implementation would be much more complicated if separate interventions are to be provided in relation to each individual parental diagnosis, and recruitment strategies are to be governed by diagnostic labels. We conclude that the children’s situations have much in common across different parental diagnoses. On the other hand, children and their parents might have specific questions and needs relating to the parental disorder (e.g. knowledge about the disorder, how to cope with symptom behaviour). These disorder-specific issues should also be addressed as part of a comprehensive approach. 16.2.1 A developmental model of mental health and psychopathology of offspring To guide the development of preventive interventions and the overall prevention policy for COPMI in the Netherlands, we developed a theoretical model that describes the main domains of risk and protective factors in the development of mental health and psychopathology in children of parents with mental illness (Van Doesum, Hosman, & Riksen-Walraven, 2005). This model (Figure 16.1) is based on a range of principles, mainly derived from the field of developmental psychopathology. First, the model differentiates between multiple interacting 320 domains and systems of influence: parents, children, family, social network, professionals, and the wider community. To each of these domains specific risk factors and protective factors are linked providing the basis for identifying relevant intervention targets. Secondly, in line with other scientists working in this field (Goodman & Gotlib, 1999), we differentiate between various mechanisms of transgenerational risk transmission: (a) genetic risk transmission, (b) prenatal influences, (c) parent–child interactions, (d) family processes and conditions, and (e) social influences from outside the family. Thirdly, the theoretical framework differentiates between successive developmental stages in the child’s life, starting from pregnancy. Each stage is assumed to be linked to specific developmental processes and tasks, sensitive periods, and age-related onset of risk factors and psychiatric disorders. Together they point at the need to develop multiple preventive interventions along the life span, each tailored to the developmental needs and risks of a specific stage. Fourthly, the concepts of equifinality and multifinality are used to describe two major views on cause-and-effect relations in the developmental trajectories of psychopathology. Equifinality refers to the view that a single disorder or problem can be the result of multiple causes or developmental trajectories. This means that a specific disorder in the offspring (e.g. depression) can be the result of different risk trajectories and the exposure to different types of parental diagnosis. The concept of multifinality is based on the notion that a particular risk factor (e.g. a specific parental diagnosis) can result in multiple outcomes such as multiple types of disorders or social outcomes in children. This means that targeting risk factors or protective factors that are common across children and families with different parental diagnoses is a feasible prevention strategy that might result in a wide range of favourable outcomes. Ample empirical evidence for both concepts has been found in developmental psychopathology research, as reflected in numerous articles in the peer-reviewed journal Development and Psychopathology. Fifthly, the model aims to provide both insight in the development of psychiatric and related problems in COPMI, as well as in the conditions promoting their resilience and socialemotional development. Sixth, we have used this framework to organise and integrate the current knowledge from numerous empirical studies published on this subject in the last two decades. Finally, the model and the related knowledge base are used for translational research, i.e. to identify and study opportunities for preventive interventions and to guide the development of effective multi-component programmes and a comprehensive prevention policy for COPMI. The next sections summarise some of the main findings from empirical research linked to the main domains in the model. Limitations of space prevent us from discussing each risk factor and protective factor in detail. Instead, we summarise major findings and discuss some illustrative studies. 16.3 Parent-related factors 16.3.1 Characteristics of parental psychopathology predicting increased risk In addition to the mere presence of a mental disorder in a parent, studies have identified several characteristics of parental mental illness that are associated with increased risk in their offspring, such as chronicity of the disorder, parental age of onset, timing in the developmental 321 stages of the child, family history of psychopathology, comorbidity, and psychopathology in both parents. Fig.16.1 A developmental model of transgenerational transmission of psychopathology Many studies have replicated the finding that it are especially the children exposed to recurrent and chronic parental disorders who are at major risk (e.g. Ashman et al., 2002; 2008; Beardslee et al., 1987; Foster et al., 2008; Horowitz et al., 2004). For instance, among mothers suffering from postnatal depression or a later depressive episode without subsequent episodes, some studies found no increased risk of depression in offspring (Halligan et al., 2007). There is some evidence showing that the presence of multiple disorders (comorbidity) in parents increases the risk in offspring (Kim-Cohen et al., 2006; Goodman, 2007). Ample evidence exists for the impact of both parents having a mental disorder. When both parents suffer from the same disorder, the risk for this disorder in offspring is higher than if only one parent suffers from it. This risk increase is larger in the case of bipolar disorders (Birmaher et al, 2009) and substance abuse disorders (Clarke et al., 2004) than in the case of major depression (Lieb et al., 2002). The Netherlands Mental Health Survey and Incidence Study (NEMESIS, N=7,076) found a lifetime prevalence of psychiatric disorders of 48% to 55% in the offspring of parents with a history of a single psychiatric disorder (Bijl et al, 2002). When both parents suffered from psychopathology, the risk increased to 66.5%. The age of onset of parental disorders has also been found to have predictive value. In their longitudinal study, Wickramartne et al. (1998) found a much higher relative risk of depression in offspring when the onset of the parental depression occurred before the age of 30, compared to a later onset (RR=13.1 versus RR=4.1). This could be caused by a stronger 322 impact of genetic factors in early transmissions of psychopathology; it also could refer to the impact of adverse social circumstances and maternal psychological vulnerabilities frequently found in young, especially teenage mothers. In addition, the timing of exposure to a parental mental illness across the child’s lifespan influences both the type of impact on the child and the level of risk. Most of the current knowledge suggests that the largest impact occurs during the early stages of the child’s lifespan, including the pregnancy period. This might be attributable to the impact of disorderrelated parental behaviour and exposure to early stressors that interfere with a healthy development of cerebral functioning and emotion-regulation systems (Maughan et al., 2007; Ronsaville et al., 2006) 16.3.2 Risk factors during pregnancy Several studies have identified risk factors during pregnancy. High levels of stress and anxiety during pregnancy impair the functions of the growing brain and emotion-regulation systems in the HPA-axis, and increase the risk of high stress reactivity and emotional and behavioural problems during childhood and adolescence (e.g. Ashman et al., 2002; Huizink et al, 2003; O’Connor et al., 2002; Robinson et al., 2008; Ronsaville et al., 2006; Van den Bergh & Marcoen, 2004). Such stress can be caused by high levels of antenatal anxiety, bereavement and other loss experiences, but also by economic hardship, domestic violence or divorce, not uncommon in the context of parental disorders. These conditions might also be responsible for risk behaviours, such as smoking and alcohol use during pregnancy, which have a proven negative impact on children’s functioning and may cause problem behaviour up to adolescence (e.g. Wakschlag et al., 2002). 16.3.3 Parenting competence and parent–child interaction As many studies have found, the transgenerational transmission of psychiatric risk is significantly mediated by the way parents interact with their children and by poor parenting skills. Parental psychopathology increases the likelihood of insensitive responsiveness, low involvement in their children, low monitoring or even hostility and rejection, and child maltreatment (e.g. Bifulco et al., 2002; Duggal et al., 2001; Harnish et al., 1995; Elgar et al., 2007; Leinonen et al., 2003a; Murray et al., 2003). It is especially when these behavioural patterns are present during the early years of life that they trigger deregulated emotion patterns, negative emotionality, insecure attachment and decreased perceived competence in children (Hipwell et al., 2000; Maughan et al. 2007; Rogosch et al., 2004). These outcomes have been found across different parental diagnoses, such as major depression, anxiety disorders, substance abuse disorders, antisocial personality disorder and borderline disorder (e.g. Leinonen et al., 2003a). Parents might also provide children with pathological model behaviour and coping styles over a prolonged period, which will be copied by their offspring, for instance in the case of anxious and overprotective behaviour, emotional eating and the use of alcohol as mood manager. There is also evidence that these behavioural risk factors are transmitted across multiple generations. Parents who show neglectful, abusive or violent behaviour have frequently themselves been a victim of such behaviours during their childhood (Sidebotham & Heron, 2006). Positive parenting was found to have a protective influence on the development of future conduct problems in children of depressed mothers (Chronis et al., 2007). This stresses the relevance of parent education as a valuable preventive strategy for COPMI. 323 16.4 Family conditions Enduring family discord, domestic violence, financial hardship and family-related life events could be both consequences of as well as risk factors for parental psychopathology. Depending on its severity and durations, the presence of a mental disorder in one of the parents could have a profound impact on marital relationships and family life. Several studies have found that such conditions mediate the impact of parental disorders on a child (e.g. Ashman et al., 2008; Avenoli & Merikangas, 2006; Cicchetti et al., 1998; Leinonen, et al 2003b). When they do not play a mediating role, i.e. when they are present independent of parental psychopathology, such conditions moderate the risk in offspring because they contribute to an accumulation of risk factors in the child’s life. Irrespective of the type of parental disorder, a well-evidenced relation has been found between the number of risk factors and the onset of psychopathology in offspring (Appleyard et al., 2005; Dickstein et al., 1998; Nair et al., 2003; Rutter & Quinton, 1984; Sameroff, 2000; Whitaker et al., 2006). It is not clear yet if this is a linear relation, or a curvilinear relation indicating a threshold effect. This suggests that identifying the presence of an accumulation of risk factors and reducing their number might be an adequate preventive strategy for COPMI. The other parent could play a protective role or could represent an additional risk factor. For instance, the presence of a parent who is caring and supportive to the child and understands the disorder of their partner can successfully buffer the negative impact of a maternal depression (Chang et al. 2007; Crockenberg & Leerkes, 2003). However, if the partner also suffers from a mental disorder or shows violent or abusive behaviour, this will further increase the risk to the child (e.g. Birmaher et al, 2009; Clark et al., 2004). In the case of one-parent families, not uncommon in the case of COPMI, support from the other parent might be absent at all. 16.5 Child-related factors The children themselves also play an important role in the way the situation of their parent and family impacts on them. Vulnerable children run an increased risk in the context of adverse life conditions (e.g. parental mental illness), while highly resilient children do well even under harsh conditions (e.g. Werner & Smith, 2001). The major child-related risk factors identified in multiple studies include: difficult temperament, behavioural inhibition, negative emotionality, stress reactivity, insecure attachment, negative self-esteem, poor cognitive and social skills, lack of knowledge about the parental disorder, parentification and self-blame (see reviews by Beardslee et al. 1998; Goodman & Gotlib, 1999; Göpfert et al, 2004). Vulnerabilities can operate as mediating factors between parental mental illness and the child’s risk of psychopathology when they are caused by the impact of the parental disorder or by related parental risk factors. For instance, several studies suggest that insecure attachment mediates the relation between parental psychopathology and socio-emotional development in children (Cicchetti et al., 1998; Rangarajan, 2008). Vulnerabilities might also be present independent of a parental disorder and function as moderators of the impact of a parental disorder on the child. 324 Vulnerabilities in mentally ill parents might be transmitted genetically to their children (e.g. temperamental features), and might be counterbalanced by resilient characteristics inherited from one or both parents. Even when genetic risks are present, current genetic research suggests that their expression is influenced by interactions between genetic factors, neurobiological processes and environmental conditions (Caspi & Moffit, 2006; Rutter et al., 2006). Some of these processes and conditions might be modified through preventive interventions. For instance, neurobiological processes during pregnancy in depressed mothers have been successfully influenced through massage (Field, 2009). Prenatal massage therapy was found to reduce postpartum depression, as well as lowering cortisol levels and improving neonatal behaviour in the new-borns. Resilience factors refer mainly to the opposite of these risk factors, for example positive emotionality, safe attachment, cognitive and social competence, positive self-esteem, selfreliance, relevant knowledge about parental disorders and perceived social support (e.g. Beardslee & Poderefsky, 1988; Hammen, 2003). Although the preventive role of resilience factors in the socio-emotional development of children has been extensively studied and recognised within the realm of developmental psychology and positive psychology, surprisingly little research has been done to study their role in the transmission of parental psychopathology. An illustrative example of this research is offered by a study by Silk et al. (2006) on the role of emotion regulation in children of depressed mothers, aged 4 to 7. Findings suggest that positive reward expectation in children has a significant protective influence on the development of internalising problems in a context of maternal depression. Prevention and health promotion efforts targeted at COPMI and their families may strengthen the resilience of the children and reduce their vulnerability. First, knowledge about environmental risk and protective factors during pregnancy, infancy and later stages as discussed in this article could be used to enhance the development of resilience and prevent the onset of vulnerability factors in children. Examples of malleable determinants of socio-emotional vulnerabilities in children include maternal stress, depression and anxiety during pregnancy, and early maternal insensitivity, lack of parental warmth and child abuse and neglect (e.g. Ronsaville et al., 2006; Huizink et al., 2003; Van Doesum et al, 2008). Secondly, screening of vulnerability and resilience features in children can be used to correct risk factors that are already present and to enhance the children’s strengths in the context of parental mental illness. Finally, the roles of age and gender have been studied repeatedly as moderators in socio-emotional development and problem behaviour in the offspring of parents with mental illness. Overall, as stated above, one may conclude that the outcomes of exposure to parental mental illness are related to the age and developmental stage of the child, but that the impact is expected to be most powerful during the first years of life. The moderating role of gender has also been the subject of numerous studies. It is obvious that gender plays a moderating role, especially in predicting the risk of internalising versus externalising problems in offspring, but its impact seems largely depending on contextual factors (e.g. parental gender, family composition). 325 16.6 Factors in the extra familial environment: networks, community, and care Just as in other domains, the social environment outside the family can play both a protective and a risk-increasing role for COPMI. Most knowledge about the factors in this domain has come from retrospective and qualitative studies, such as in-depth interviews with adolescents and adult children of parents with mental illness (e.g. Drijver & Rikken, 1989; Knutsson-Medin et al., 2007). Social networks may offer cognitive, emotional and practical support to the parents and the children, for instance by providing compensatory care when a parent is actually or emotionally non-available, or by offering parenting advice, a listening ear or opportunities for respite and positive events. Network persons could include grandparents, neighbours, friends, teachers or peers living in similar circumstances. A large-scale prospective study in the US showed that the onset of internalising problems in children of depressed mothers was lower when the mothers received social support and the children received care from caregivers other than the mother (Lee et al., 2006). Schools are regularly identified by COPMI as settings where they can escape from harsh family circumstances and where they can find opportunities for diversion and positive experiences. Schools, neighbourhoods and social networks can also become a source of additional stress and social isolation, due the prevalent stigma attached to mental illness. COPMI report frequent exposure to negative responses from peers and even bullying, and are reluctant to take friends home. A common complaint of COPMI is the lack of attention and support they get from the mental health professionals treating their parent. These complaints have been reported in studies in the US, Sweden, New Zealand, Australia and the Netherlands (e.g. Knutsson-Medin et al., 2007; Fudge & Mason, 2004; Drijver & Rikken, 1989). From our own experiences in mental health care, it is obvious that there is a widespread lack of awareness and sensitivity, especially among professionals in adult care, regarding the impact that problems of adult patients have on their children. Even when such awareness exists, children do not get the support they deserve due to a lack of child-targeted skills among professionals treating adults and the lack of collaboration between adult and childcare. Lack of support and information about the parent’s condition might increase the likelihood of self-blame and parentification. In sum, factors in each of the domains of our model contribute to the socio-emotional development of COPMI. The multicausality of the risk to the offspring of parents with a mental illness stresses the need to assess carefully the accumulation of risk factors within and across domains, and the interactions between risk factors and protective factors. This multicausal context, as summarised in figure 16.1, offers a wide range of options for preventive interventions to reduce transgenerational transmission of psychiatric risks and to enhance positive socio-emotional development in COPMI. 16.7 Conclusions Although this review does not aim to cover all relevant epidemiological and developmental studies that have been published, it makes clear that the transmission of psychiatric problems from parents to children is extensively studied, especially during the last two decades. There exists a fast growing body of knowledge that can be used to guide the development of effective interventions and a comprehensive approach reducing psychiatric and other risks in COPMI 326 and promoting their healthy emotional development. In this last section, we highlight some major conclusions, discuss their implications and identify further needs for research. 16.7.1 Estimating the level of risk The estimated level of risk among COPMI varies widely across studies, depending on the features of the population under study, the study design and the length of the period over which the risk is calculated. A more systematic comparison of risk levels across studies is needed to make estimations on the public mental health gains that theoretically could be derived from a highly effective and comprehensive prevention strategy. However, irrespective of the variations in expected risk level, longitudinal epidemiological studies have generally shown that the transmission of psychiatric problems from parents to children is responsible for a significant part of new psychiatric morbidity and lost opportunities for offspring to develop resilience and positive mental health. This phenomenon seems true independent of parental diagnosis. While the number of COPMI in the population and their risk level are substantial, and the outcomes of living with a parent with a mental illness can be pervasive, making COPMI a priority target in local and national public health policies seems warranted. 16.7.2 Risk and protective factors As summarised in this review several causal mechanisms and a wide range of mediating and moderating risk factors play a role in the transmission of psychiatric and related problems from parents to children. Both risk and protective factors are located in the child, the parents, the social network and the wider social environment (figure 16.1). Multiple studies have shown that parental disorders and risk factors might have broad-spectrum effects, increasing the risk on a range of different outcomes and disorders in the child. Many of these factors seem malleable and together they offer a wide window of opportunities to interfere in these transmission processes and to reduce the risk of adverse outcomes and to enhance positive socialemotional development in offspring. Given its possible implications for developing prevention programmes and policies, it seems important to understand better the similarities and dissimilarities of the transmission processes across different parental diagnoses. For instance, are children of parents suffering from chronic depression, anorexia nervosa, substance abuse or schizophrenia exposed to similar risk factors indicating the need for common preventive interventions; or do risk factors and needs for support vary between these diagnoses. Current preventive interventions for COPMI and their families are dominantly based on the assumption that they share common needs, such as getting recognition for their problems, information on the illness, breaking through the circle of silence, learning to communicate about the illness and to deal with stigma, and improving parenting skills and social support. COPMI interventions address children of different parental diagnoses mostly as one integral target population, only differentiating in providing knowledge on the specific parental disorder to which the child is exposed. Research on outcomes of parental disorder suggests that the transmission of risk is ruled by both common and disorder-specific risk factors. Specific parental disorders might call for tailored interventions, such as specific training in how to deal with anxious or paranoid behaviour of a parent, or how to educate children in substance use when as a parent you are addicted yourself. A more systematic review on outcomes of different parental diagnoses that is currently run by a common research project of the Radboud University Nijmegen (Netherlands) and The Monash University (Australia) could set more light on this issue. 327 On the one hand, this review underscores the need to base our prevention practices and policies on a deeper knowledge of all the individual and social factors and processes that influence the emotional and social development of COPMI. On the other hand, the discussed findings support Rutter’s original finding (Rutter & Quinton, 1984) that the impact of parental mental illness is influenced by the mere number of accumulating risk factors: the more risk factors, the higher the risk for COPMI. This finding is in line with our conclusion that COPMI vary widely among each other in their level of risk. A part of COPMI are doing reasonably well or increasing even their resilience when a healthy balance is present between risk and protective factors. This approach might have several implications for practice. First, more attention should be given to the assessment of risks and strengths in COPMI and their families to identify which are in serious need for intensive preventive support due to an accumulation of risk factors, and which are not or could be sufficiently supported by simple interventions (e.g. information through internet). Redefining ‘need’ is this way, might generate more tailored and thus more effective interventions, and might also reduce the problem of limited resources and low reach of COPMI interventions as currently reported across multiple countries. This approach identifies two further research priorities, namely the need for valid risk assessment tools applicable in daily practice and for knowledge on levels of risk factors that are normal for children and levels of accumulated risks that seriously threaten their social-emotional development. Some risk factors, such as chronic disorders, might trigger a chain of accumulating adverse conditions for the child. 16.7.3 Value of a theoretical framework The fast growing number of studies on parental mental disorders and COPMI confront those who are involved in programme development and practice to support these children and families with a fast expanding body of research outcomes that might be hard to oversee and integrate. The theoretical model we have developed in the Netherlands and presented in this article (figure 1) aims to support policy makers, programme designers, practitioners, consumers and researchers with a framework in multiple ways. According to our Dutch experiences, it could help (1) to organise the multiple science-based and practice-based findings in a transparent way and to better understand the mediating and moderating interrelations between causal factors (developmental trajectories), (2) to identify opportunities for new preventive interventions and mental health promotion, to develop ‘programme theories’ and to improve the effectiveness of existing interventions, (3) to design a comprehensive, multipronged policy that respond to the multicausal pathways influencing the well-being of COPMI, (4) to evaluate the multiple outcomes of COPMI interventions, and (5) to identify gaps in our current knowledge and to formulate new research questions on the mediating and moderating processes in the relation between mentally ill parents and their offspring. 16.7.4 Needs for further research In the above discussion already several research needs have been identified, related to relative and absolute levels of risk, impact of the type of parental disorder, and to critical thresholds in the number of accumulating risk factors. In expanding the knowledge base for designing effective prevention programmes and policies also more knowledge is needed on the influence of sensitive periods along the life span where risk and protective factors might have a significant stronger and more long lasting impact then in other periods (e.g. pregnancy, infancy, and early adolescence). We further conclude that the outcomes of certain parental mental 328 illnesses are extensively studied (e.g. depression, substance use) while over the impact of other parental disorders substantial knowledge is lacking, such as in the case of prevalent personality disorders (e.g. borderline). The same applies to children of incarcerated forensic patients, who are hard to reach due to the additional stigma linked to parental criminal history. 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Is transgenerational transmission of psychiatric risk disorder-specific, so do the children get the same disorders as their parent, or does it have a broad-spectrum effect? Is there evidence for difference in risk levels for children with different parental diagnoses? What is meant by the concepts ‘equifinality’ and ‘multifinality’? Could you offer an example of multifinality in the case of COPMI? Which transmission mechanisms play a role in the transmission of psychiatric disorders from parent to child? What are the risk and protective factors that play a role in the development of psychiatric disorders in COPMI children? Make a difference between disorder specific and non-specific risk factors. Would the presence of a single risk factor be sufficient to make COPMI a high risk population? Deliver arguments for your answer. Which stand is taken in this chapter on the impact of the number of risk factors? What are the values of a theoretical model of risk factors in intergenerational transmission of psychiatric disorders? On which general theoretical model(s) or approach(es) is the here presented model of risk factors based? 334 17 Prevention of emotional problems and psychiatric risks in children of mentally ill parents in the Netherlands: Interventions Karin T. M. van Doesum and Clemens M.H. Hosman 17.1 Introduction 336 17.2 Interventions focusing on children 337 17.2.1 17.2.2 17.2.3 17.2.4 17.2.5 17.2.6 Play-and-talk groups for children up to age 15 Support groups adolescents (aged 16-23 yrs) & adult children (aged > 23 yrs) Web-based interventions Open educational meetings for youngsters and adolescents (aged 16-25 years) Local activity days for children aged 8-16 years ‘Opkikkertje’ Parent and Child Groups (children aged 1-5 years) 337 338 338 338 338 339 17.3 Interventions focusing on parents and families 339 17.3.1 17.3.2 17.3.3 17.3.4 17.3.5 17.3.6 Child and parent talks Psycho-educational family intervention Parent training www.kopopouders.nl website KOPP Mother–baby intervention Squeak says the mouse’ for 4-8 year-old children of stressed families 339 340 340 340 341 341 17.4 Interventions for the professionals 342 17.4.1 17.4.2 17.4.3 17.4.4 Education: workshops, conferences, lectures Implementation of routines Preventive case management Training intervention providers 342 342 342 343 17.5 Interventions focused on the context and community 343 17.5.1 17.5.2 17.5.3 Activities by family or user organisations Activities in the community School-based activities 343 343 343 17.6 Conclusions 344 17.6.1 17.6.2 17.6.3 17.6.4 17.6.5 17.6.6 Solving barriers to implementation and increasing reach More efficient use of resources Increasing the effectiveness of the programme New opportunities for interventions Research needs International collaboration 345 345 346 346 347 347 Literature 348 Study questions for this chapter 350 335 17 Prevention of emotional problems and psychiatric risks in children of mentally ill parents in the Netherlands: Interventions 17.1 Introduction Children of parents with a mental illness are 1.5 times more likely to develop a mental disorder at some point in their life (50%) compared to children with a healthy parent (30%) (Trimbosinstituut Factsheet, 2012). Over the last twenty years, a comprehensive preventive approach has been developed and implemented in the Netherlands to support these children of mentally ill parents and their families by offering a wide range of preventive services. From the start, the approach was jointly developed by practitioners and scientists. The interventions are based on the developmental model of transgenerational transmission of psychopathology (Hosman & Van Doesum, 2009) and put in practice by the practitioners. In the last 15 years, prevention teams from all over the country met several times a year to exchange newly developed materials and interventions for COPMI, discuss experiences with implementation, work on programme innovation and quality management, and develop national guidelines. These preventive practices are supported by a network of research centres and national institutes, and a national programme for prevention research and development. Practically all Dutch mental health services, addiction clinics, and some local public health services and national organisations, offer preventive interventions for COPMI and their families. Interventions Fig. 17.1 Overview of interventions in the prevention programme for children of parents with mental illness in the Netherlands 336 have been developed. Across these domains a wide range of intervention methods have been used (e.g. educational materials, family meetings, group methods, internet, protocols, and conferences). Together these interventions constitute the current national Dutch prevention programme for COPMI. For many years, they were exclusively focused on children of mentally ill parents, but now children of parents with substance abuse disorder also have access to these interventions. This chapter describes the interventions in more detail, including findings from (process) evaluations. The final section offers a discussion of the strengths and weaknesses of the current multicomponent programme and the main challenges ahead. 17.2 Interventions focusing on children This first cluster of interventions is directly targeted at children of different age groups, with the aim of supporting and informing them, to improve their competence and diminish their burden. These interventions mainly make use of group-based methods, the internet and written and audio-visual materials. 17.2.1 Play-and-talk groups for children up to age 15 The groups are open to children of parents with a mental illness or substance abuse disorder in a specific age range (i.e. 6-8, 8-12 and 13-15 yrs). The intervention is described in a standardised protocol. Children participate in a group, which runs parallel to two group sessions for parents. First, the group trainers meet with the child and the parents during an individual interview. This is followed by eight group sessions in which the children receive information about the problems of their parents and social support from the group, and are trained in strategies to enhance their competence in coping with their parents’ problems. The sessions aim to decrease risk factors and strengthen protective factors, by breaking through social isolation and the taboo on talking about psychiatric and substance abuse problems in the family, providing information about the parent’s disorder, fostering mutual recognition between children in similar situations, decreasing the burden on children, and stimulating and searching for social support. Techniques used include education, group conversations, roleplaying and homework instructions. In addition, the programme includes relaxation/leisure activities. For the youngest children, the programme contains more leisure activities. The two parental meetings are scheduled halfway through and at the end of the child programme. These meetings are intended to inform parents about the aim and content of the intervention for their children, to improve their understanding of and involvement with the child’s situation, and to provide parenting advice and information on the outcomes of the intervention. The Prevention Research Centre of the Radboud University Nijmegen assessed the effectiveness of this Dutch support groups for children aged 8–12 years (Van Santvoort et. al. 2014). Children from 254 families were randomly assigned to the intervention or a control condition. The results showed that children in the intervention group experienced a greater decrease in negative cognitions and emotions and sought more social support, immediately after participation and 3 months later, as compared to control group children. No difference was found in problem development. In both groups there were lower rates of problem development in the children. 337 17.2.2 Support groups for adolescents (aged 16-23 yrs) and adult children (aged > 23 yrs) The group sessions have the same aims as the above play-and-talk groups and also consist of eight meetings. The content of the programme is more flexible and chosen in consultation with the participants, to tailor the programme to their needs. Common topics are heritability, feelings of guilt and shame, feeling responsible for the parent, leaving home and starting to make a plan for the future. Participants can bring in additional topics. In a pilot evaluation study, participants reported that they had acquired more knowledge about the mental disorder of their parents, felt supported by the group members and felt happier after the group sessions (Beurskens & Siebes, 1998). 17.2.3 Web-based interventions A website called ‘kopstoring’ (www.kopstoring.nl) was developed especially for and by children of mentally ill parents or parents with a substance abuse disorder. It offers information about mental disorders and substance abuse disorders, stories of children and a forum where they can leave messages. There is also an e-mail service available and the opportunity to chat with professionals. Furthermore, visitors can join an online psycho-educative programme for adolescents and young adults aged between 16 and 25 years. They meet at a fixed time in eight online weekly chat sessions and one evaluation session. Besides improving the mental health of the children themselves, this prevention programme is designed to educate children about their parents’ illness and create understanding between children and parents. There are eight themes; each week another theme is prepared by the participants and discussed. Themes include describing the situation at home and roles in families; thoughts, feelings and self-blame; questions about addiction and mental problems; coping with different behaviours; parentification; using social networks and leading your own life and preparing for your own future. The programme is similar to that of the above face-to-face support group and also includes homework. An evaluation of the ‘Kopstoring’ intervention showed significant effects on the key clinical outcome measures. The quality of life of the participants improved and deterioration was prevented (Van der Veen & Van der Zanden, 2007). A randomised controlled effect study and a cost-effectiveness study on the psycho-educative programme, initiated by Maastricht University, started in 2010 (Woolderink et al. 2010). 17.2.4 Open educational meetings for youngsters and adolescents (aged 16-25 years) These meetings aim to inform adolescents and adult children about mental illness, ways to cope with having a parent with mental illness and ways to get support. During the meetings, they receive information about mental illness in the family, tips on ways to cope and information on ways to get support for themselves. The meetings are also used to recruit participants for the support groups. The meetings are organised by local mental health centres and family organisations. The ‘Labyrint /In Perspectief’ family organisation organises a special national day for children of mentally ill parents, based on a specific theme, offering opportunities for children to meet and exchange experiences. 17.2.5 Local activity days for children aged 8-16 years During school holidays, activity days for children and adolescents are organised throughout the country in cooperation with mental health centres, addiction clinics, volunteer aid organisations, community workers and family organisations. Depending on the age category, 338 there are opportunities for sports, (street) dance, creative activities and play. The aim is to give children of mentally ill parents an opportunity to relax, to have fun and meet peers. 17.2.6 ‘Opkikkertje’ Parent and Child Groups (children aged 1-5 years) The main aim of these parent and child groups is to improve the quality of the parent–child interaction and support parents in raising their children. The target group is mothers with a mental illness, mothers who experience parenting stress or mothers with children from multiproblem families. Although these groups do not necessarily all work in exactly the same way, the overall programme usually involves about 8 group meetings for parents and children together and one follow-up meeting. The themes of the meetings include positive interaction with your child, daily child care, structuring and setting limits, emotions of your child and your own emotions, improving positive behaviour and improving social support. The programme offers both psycho-education and exercises, for instance on playing with your child (Boeder, 2006). Results of a pilot outcome study focusing on depressed mothers and their children showed improvement in their depression status (lower levels of depression), improvement of their parenting skills and decreases in their parenting stress, and they also reported fewer behaviour problems among the children. A group of 21 mainly depressed mothers participating in the group were compared with 20 healthy mothers from the same region (Sijtma, 2008). 17.3 Interventions focusing on parents and families A range of interventions specifically focuses on parents and entire families, to make them aware of the impact of the home situation for the children, as well as to support and inform them, to improve the quality of the parent–child interaction and to stimulate social support for children and parents. They include individual psycho-educational sessions, a psychoeducational family intervention, parent training, mother–baby intervention and a web-based programme. 17.3.1 Child and parent talks As a routine service, mental health services initiate psycho-educational and supportive meetings with children and parents after the intake of each adult patient who has children living at home (aged 0-23 years). A trained mental health professional invites the family for three separate conversations: an initial conversation with the patient and his/her partner, followed by two conversations with the parents and the children involved. The main aims are: improving the children’s coping skills and offering them emotional and social support, improving the parents’ competence by increasing their awareness of their children’s perspectives, and informing them of the consequences a parent’s mental illness may have for the children. In response to conversations with the children, concerns might be reported to parents about early indications of problems that the children experience, and advice is offered about the available additional help and support. Information brochures are available for parents and for children in different age groups, which can be used in the meetings. After the meetings, the children and parents can choose to participate in other preventive interventions (groups, parent training, website etc.). In case of a family crisis, the talks are offered in the same week to support the children and parents immediately. These family talks are generally highly appreciated. Evaluation showed that parents became more aware of what it means for a child to have a 339 parent with a mental illness; there was more mutual understanding between parents and children, and they were better informed about available support (Kok, Konijn & Geelen, 1994). This intervention is implemented in all mental health hospitals in the North of Norway (Reedtz, Lauritzen & Van Doesum, 2012). 17.3.2 Psycho-educational family intervention This intervention was developed by Dr. William Beardslee of the Children’s Hospital in Boston (USA), especially for families with a parent with affective disorder and children aged between 9 and 14 years. The Dutch version of this intervention targets a wider age range of children living at home (4 to 21 years) as well as families with any parental mental disorder (rather than only affective disorder). Only families where parents acknowledge the presence of this parental mental illness are included. This ‘whole-family approach’ consists of 6 to 8 sessions. First, parents are invited to report the history of their situation, after which they are taught about improving the resilience and strength of their children, and their concerns are discussed. Subsequently, the children are seen in separate sessions to provide information and to discuss their concerns, and finally the prevention specialist works with the family until the family feels comfortable about having a whole-family meeting to discuss the mental illness, to develop a shared coping strategy and to agree on positive steps to promote healthy functioning of the children. The key mechanism of this intervention is to start a process of communication between the family members about the parent’s mental illness. The results show that talking helped children understand their parents better and that parents understood their children’s perspective and learned how to support their children (Beardslee, 2003). Experiences with this intervention in Netherlands have also been favourable, especially in families with depressed and anxious parents. No controlled outcome studies have been performed in the Netherlands so far. 17.3.3 Parent training The main aim of the parent training course is to support both parents in raising their children. The training course includes an average of six group sessions with the following topics: how to talk to children about mental illness, what is important in the children’s development, how can you support your children, what is good-enough parenting, the role of family and friends in taking care of the children and exchanging experiences between parents. Although the participants reported that they were highly satisfied with the training course, the threshold to participate in parent group training appears to be high for these parents, as became evident from problems with recruitment for the training course. Parents are usually referred to the course by their individual therapists, who have to be motivated to do so, which is frequently not the case. Experiences with recruitment presenting parent training as a regular part of the treatment programme for parents have been more positive (Zonneveld et al., 2000). 17.3.4 www.kopopouders.nl website In response to the problems with recruitment for parent training courses and new developments in online availability of information and support, a new website was launched in 2007, designed especially for parents with a mental illness or substance abuse disorder. It offers information and practical guidelines for raising children and refers to web clips with parents talking about their situation. Furthermore, the site offers an online training course, supported by mental health professionals. The aims of the course are the same as those of 340 the face-to-face parent training course, with topics like your role as a parent, the impact of your problems on your child, feelings of guilt and shame, what is good-enough parenting and what practical pedagogical support is available, as well as the opportunity to exchange experiences between participants. A pilot evaluation showed that parents who participated for one year improved their parenting competence (n=39). Participants were on the whole highly satisfied with the online course (Van der Zanden et al., 2009). Recently, a self-help version of ‘Kopopouders’ is available as well. 17.3.5 KOPP Mother–baby intervention The mother–baby intervention is an early intervention programme that aims to improve the quality of the interaction between mentally ill mothers and their infants, and to promote a secure attachment relation in order to prevent developmental problems in the children. Home visitors (qualified prevention specialists) affiliated to one of the regional community mental health centres visit mothers and infants at home, where they record the mother–child interaction on videotape, usually involving the mother bathing her baby. Video feedback is used as the core intervention method, provided parental consent is obtained. The use of video feedback offers room for tailoring the method to the individual mothers and their context, for instance by adapting the dosage and adding various techniques like baby massage, modelling and practical pedagogical support. The intervention comprises a total of 8 to 10 home visits. (Van Doesum et al., 2005). In 2007, a study was completed examining the effect of the mother–baby intervention on the quality of mother–child interaction, infant–mother attachment security and infant socioemotional functioning, in a group of depressed mothers with infants aged 1–12 months. The randomised controlled trial compared an experimental group (n=35) receiving the intervention (8–10 home visits) with a control group (n=36) receiving parenting support by telephone. There were pre- and post-assessments and a follow-up assessment after 6 months. The intervention significantly improved the quality of the mother–infant interaction, and prevented the deterioration that was found in the control group. Infants in the experimental group had higher scores for attachment security and early emotional competence (Van Doesum et al., 2008). The follow-up study after 5 years showed in the total sample no lasting intervention benefits, but in families reporting a higher number of stressful life events, children in the intervention group had fewer externalising behaviour problems as rated by their mothers than children in the control group. In the context of multiple stressful life events, the intervention served as a buffer by preventing the development of externalising problems in the child. The results warrant cautious interpretation because of the relatively small sample size and differential attrition revealing the mothers that completed the follow-up assessment to have improved less on maternal sensitivity following the intervention than the mothers who did not participate in the follow-up (Kersten-Alvarez, Hosman, Riksen-Walraven, Van Doesum & Hoefnagels, 2010). 17.3.6 ‘Squeak says the mouse’ for 4-8 year-old children of stressed families ‘Squeak says the mouse’ is a Dutch children’s song and is used as the name of a preventive programme for children of families that are under stress due to parental mental illness, substance abuse or chronic physical illness, relationship problems and sometime domestic violence. It is a community approach and is targeted at children and families in disadvantaged areas. The aims are to break through isolation, and to improve the social competence of the children, as well as parent–child interaction and parenting skills. The programme comprises 341 15 play-and-talk group meetings for children and five parent meetings. In addition, each family gets tailored support from a family counsellor. The meetings are organised in a community centre near the families’ homes. In the programme, prevention psychologists of a mental health centre collaborate with local social workers and community workers. Experiences have been positive, with more children from high-risk and low-SES families being reached compared to the play-and-talk groups, and improved cooperation between professionals of different organisations. Parents and children reported being highly satisfied with the programme. 17.4 Interventions for the professionals The interventions in this domain are targeted at professionals in a wide range of services who usually have contact with parents and children having to cope with parental mental illness. These include professionals of community mental centres, in-patient and outpatient clinics, youth health care, social workers and community care workers, school doctors and counsellors, child protection workers and students in professional training. The aims of the interventions for the professionals are: raising their awareness of the risk to children of mentally ill parents and training them to talk to children and their families, detect problems in children of mentally ill parents at an early stage and offer help and support for the families. 17.4.1 Education: workshops, conferences, lectures In one or two meetings, professionals are informed about the risk to children of mentally ill parents, the risk factors, and the availability of preventive interventions. The programme often also includes a training course on talking to children about the mental illness of the parent and talking with families. Professionals have perceived these meetings as very useful and fitting in with their daily practice. Participants reported having become more aware of the position of these children and better able to detect problems in children at an early stage. An additional advantage of these meetings is that they foster cooperation between different disciplines and organisations. 17.4.2 Implementation of routines Mental health centres have developed routines to integrate consistent attention for children of adult patients into the intake and treatment of adult patients. These routines vary between centres. They focus on children of mentally ill parents at an early stage and are offered as part of the treatment. They include various elements or combinations of them, such as checking whether the patient has any children, child and parent talks or psycho-educational family interventions as part of the treatment package, presenting an overview of available preventive services, and offering educational brochures for children and parents, and additional help when children are already having serious problems. 17.4.3 Preventive case management In one of the provinces in the west of the Netherlands, mental health services (the Parnassia Group) started a new case management programme for multi-problem families with chronic parental mental illness and an accumulation of risk factors for poor parenting. This Preventive Basic Care Management Programme, known for short as Basic Care Management (BCM), is an innovative and theory-driven programme focusing on support for the children in a patient’s family who do not yet show serious mental health problems. The protocolled programme aims 342 to ensure the presence of sufficient ‘basic care’ for the child to allow it to develop good mental health and to prevent behavioural problems. The intervention includes three elements: the systematic assessment and monitoring of risk and protective factors and parenting behaviour and the assessment of early signs of child behavioural problems; organising and coordinating supportive services, tailored to the risk factors identified in these families; and monitoring and evaluating the implementation of the indicated services and their effects. There are usually regular meetings between a Basic Care Manager, professionals from services involved and the parents, to decide on action plans, enhance access to services and evaluate the progress made by the family. Pilot studies have shown positive effects of BCM on parenting behaviour and risk factors (Wansink, 2002; 2006). In 2009, a four-year randomised controlled trial was started by Radboud University Nijmegen and the Parnassia Group, to investigate the effectiveness of the BCM. 17.4.4 Training intervention providers At national level, various training courses are offered to educate professionals in implementing the psycho-educational family programme, the mother–baby intervention, the ‘Squeak says the mouse’ programme, the support groups and other protocols. All training courses are organised by Trimbos Instituut, the Netherlands Institute for Mental Health and Addiction, with senior prevention specialists and mental health workers serving as trainers. 17.5 Interventions focused on the context and community These interventions aim to change the prejudice and stigma surrounding mental illness, break through social isolation of families with parents suffering from mental illness and improve social support for the children and their families. 17.5.1 Activities by family or user organisations These include support and psycho-educational groups for family members of mentally ill patients organised throughout the country by family or user organisations, in some cases in cooperation with mental health centres. 17.5.2 Activities in the community Educational meetings or workshops are held for people in the community to educate them about mental illnesses and inform them how to get support. Participants are family members, friends, volunteer workers but also the persons with mental health problems themselves. 17.5.3 School-based activities School-based programmes are available in which professionals talk to pupils about psychiatry and mental illness. Information materials on mental disorders and substance abuse disorders are available for use in school curriculums. There are also opportunities to invite a former mental health patient as a guest speaker. A school programme focusing on normalising mental illness, involving guest teachers, is nationally disseminated by the Pandora Foundation, a mental health advocacy organisation with a history of almost five decades. Teachers can be provided with educational materials about early detection of mental health problems in children, and tips on how to support them. These materials relate especially to children of mentally ill parents. 343 Together, the interventions described above constitute the current National Prevention Programme for COPMI in the Netherlands, initiated by the prevention departments of mental health services and addiction clinics. This programme is in essence a dynamic programme, i.e. new elements are regularly developed by local organisations, piloted and evaluated across health districts and disseminated for national implementation. Some of the above interventions are already nationally available to parents and children (e.g. mother–baby intervention, parent and child talks, play and support groups, national websites), while others are still in a developmental stage and have only been implemented in certain provinces (e.g. the Preventive Basic Care Programme, the Psycho-educational family programme and group sessions for parents and children aged 1-5 years). 17.6 Conclusions The ultimate aim of the Dutch COPMI policy is to have a comprehensive and sustainable prevention programme in place that: 1) Successfully prevents transgenerational transmission of psychiatric disorders and optimises socio-emotional development in COPMI, 2) By using a combination of interventions tailored to the needs of the identified target populations in the different domains of our model; 3) That addresses directly or indirectly the major evidence-based risk factors and protective factors in this transmission process; 4) That is implemented nationwide with a high degree of reach in the target populations, and 5) that is able to provide evidence for the effectiveness and cost-effectiveness of its components. During the last twenty years, great progress has been made in the development of this science-based multicomponent programme, as we have illustrated in this article. COPMI has become a priority theme in the Dutch prevention sector. Currently, all mental health services and several other organisations provide preventive services for COPMI. A range of manualised preventive interventions has been developed across the different domains described in Figure 17.1. Interventions are tailored to the needs of children in different developmental stages. A nationwide network of prevention experts and trained mental health professionals is available to implement them. Several research projects are ongoing to extend our knowledge about the effectiveness of the interventions and to provide guidelines for their further improvement. The national COPMI prevention network and several institutes and universities have developed a system for further policymaking, capacity building, quality management, research and reflection. Over the years, many foreign colleagues have visited our programme, and workshops and training courses have been held in other European countries where people were interested in learning from the Dutch experiences and sharing best practices. Reflection on our current practices and achievements has also revealed some weaknesses and challenges for the near future. Major current limitations concern the implementation process and reach, efficiency issues and the effectiveness of the programme and its components. 344 17.6.1 Solving barriers to implementation and increasing reach One major concern is the as yet limited reach of the available interventions in the targeted populations. The lower a programme’s reach, the lower its public health impact. Although preventive interventions for COPMI are provided by all mental health services, they still reach only a marginal proportion of COPMI and their families. This is due to a combination of causes, such as lack of awareness of their availability, the tendency to rely heavily on labour-intensive group- and family-based interventions, limited willingness to refer among the parents’ therapists, and a low implementation rate caused by a shortage of resources and trained capacity for implementation. There is a clear need for further improvement of the infrastructure for the COPMI programme. This firstly concerns the implementation of routines in all mental health centres. Although COPMI interventions are offered in all centres, only a few have standard routines in place for the children of patients, e.g. standard rules about recording whether the patient has any children, giving information to the children, talks with the whole family and providing information on preventive services. A national policy is needed that requires adult mental health centres to take responsibility for offering preventive interventions to the children of their patients. The Norwegian parliament passed a new law (Effective in 2010) stating that adult mental health centres have to meet the children’s needs (in terms of information and support). In addition, extra resources are needed to train adult mental health care workers to talk to the children of patients. Funding is needed for time to talk with the children. The current funding system is based on adult patient contacts, and the children are not regarded as patients. Secondly, long-term cooperation is needed between adult and youth care. These departments currently function mostly as completely separate units with no regular connections. Support for COPMI needs to become a shared responsibility, and both adult and youth care workers should be directly involved in offering interventions to these children and families. Thirdly, capacity building is also needed among health and primary care professionals, especially in terms of awareness raising, early detection and screening, and options for referrals to preventive interventions. Community workers should be trained in offering low-threshold interventions (like the ´Squeak says the mouse´ programme), and public health nurses should be trained in providing the mother–baby intervention to mothers with depressive symptoms. 17.6.2 More efficient use of resources The limited resources and reach also highlight the need to consider options for more efficient use of the available resources. To facilitate access to educational support, a system of internetbased services was introduced in 2006 as part of a preventive stepped-care approach. The experiences so far confirm that this educational strategy indeed can successfully reach a much larger proportion of COPMI and their families. A second strategy to increase efficiency is to define more strictly who is in need of preventive interventions, especially the more labour-intensive interventions. As discussed by Hosman & Van Doesum (chapter 15), the limited resources available should be specifically used for those COPMI who are most at risk. This would require the use of cost-effective risk assessment procedures in the recruitment strategies. Apart from the as yet experimental Basic Care service, this is currently not yet the case in the Netherlands; most interventions are targeted at the population of COPMI as a whole, overestimating the need. 345 A third strategy is to optimise the use of mainstream opportunities for prevention and health promotion. The current COPMI programme is composed of interventions that are specifically designed for COPMI and their families. The advantage of this is that well-tailored interventions are usually found to be the more effective ones. A danger, however, is that the COPMI programme becomes an isolated segment of the Dutch prevention system. Likewise, these children and families might come to be treated in an isolated programme, which may cause underuse of other options for preventive support. A challenge for the coming years is to explore how COPMI and their families could also make better use of mainstream prevention and mental health promotion programmes that are not specifically designed for them but address common factors described in our theoretical model. Several of the identified risk factors and protective factors, such as parenting competence, child abuse and neglect, family discord and divorce and children’s problem-solving capacities are not unique to the situation of COPMI. More generic evidence-based programmes are available for several of these issues. They are described in the Dutch national database on effective interventions for youth that currently covers over 80 intervention programmes (www.nji.nl/jeugdinterventies, chapter 14). A good example is Triple P, a multicomponent programme adopted from Australia and aimed at enhancing parenting competence, which might also be relevant to parents with a mental illness (Sanders, 1999). It might be possible to integrate into such programmes additional options for information on COPMI issues, or to make use of tailored versions, such as Pathways Triple P, specifically targeted at parents at risk of child abuse. From the perspective of enhancing social integration of families with parental mental illness, it might also be preferable to involve COPMI not only in specifically tailored interventions but in more generic health promotion programmes as well. 17.6.3 Increasing the effectiveness of the programme Another challenge is the issue of combining interventions to optimise their effect. Although a wide range of interventions have been made available to address the risk of transgenerational transmission, it is questionable if one specific intervention, for instance the mother–baby programme, can be sufficient to achieve the intended sustainable outcomes, i.e. normal socioemotional development and prevention of psychopathology in the offspring. It is likely that such outcomes are only achievable in response to combinations or successions of interventions with sufficient duration and dosage. For instance, evaluations of school-based prevention programmes suggest that multi-component and multi-year programmes are necessary to achieve significant and sustainable outcomes in children (Domitrovich & Greenberg, 2000). This also involves the issue of cost-effectiveness: which combinations offer the best balance between high effectiveness and low costs? 17.6.4 New opportunities for interventions Comparing the current Dutch programme with the theoretical model and research presented in this chapter reveals some opportunities for strengthening our preventive approach. Addressing the risk factors which are already present during pregnancy and which are likely to cause long-term vulnerabilities in offspring is currently considered a major gap in our approach. The growing knowledge about the harmful impact of stress, anxiety and substance abuse on the developing cognitive and emotion-regulation systems in the brains of children highlights the need to explore if interventions during pregnancy to reduce these risk factors might have preventive effects in infants and children. Some intervention studies suggest that 346 this might be the case. Examining the value and opportunities of routine prenatal screening for risk factors in primary care and well-baby clinics seems to us a valuable investment, provided the outcomes are linked to the provision of prenatal or postnatal preventive interventions for parents with mental illness or at risk of postnatal disorders. Recently a new intervention is developed for pregnant women with a mental illness; ‘Pregnant and then?’ by Dimence. This intervention includes psycho-education, massage therapy, stress management training, and early treatment. Studies show some promising outcomes. For instance, Field et al. (2009) found evidence for reduced prematurity, low birth-weight and postpartum depression due to massage therapy during pregnancy and early treatment of depression. A pilot evaluation on the programme ‘Pregnant and then?‘ with a pre and post-measurement showed that the participants are highly satisfied and the women had lower stress levels after participating in the programme (Van Laarhoven, 2012). In addition, some studies suggest that remission of maternal depression in response to treatment might also result in better mother–infant relationships and improvement in children’s symptoms and functioning (Gunlicks & Weissman, 2008; Poolaban et al., 2007; Pilowsky et al., 2008), although an explicit focus on the mother–infant relationship during the treatment might be essential (Forman et al., 2007). Recently, an online preventive programme ‘A Pink Cloud?’ (Hoezo Roze Wolk?) is developed for depressed mothers with a baby until 12 months. The programme contains cognitive behavioural exercises but also a special part focused on the mother-child relationship. It is available for mothers in the East of the Netherlands in the area of the Mental Health Organisation Dimence. 17.6.5 Research needs Our review has also revealed several topics that need to be investigated to fill the gaps in our current knowledge (see also chapter 15). A better understanding of the developmental trajectories of COPMI requires more research into the role of disorder-specific versus generic risk factors. Limited research has so far been done on the influence of protective factors in transgenerational transmission, even though several prevention programmes specifically focus on such factors. In terms of intervention studies, more research is needed into implementation processes, and the relative effectiveness and cost-effectiveness of different prevention strategies, with special attention to long-term outcomes and ‘broad-spectrum’ outcomes. 17.6.6 International collaboration The last decades have seen a rapidly emerging interest in preventive interventions for children and families of mentally ill parents across the world. In Europe, this has resulted in several international conferences on this subject. There is growing international collaboration in terms of sharing knowledge, expertise, materials and programmes. For instance, the psychoeducational family programme developed by William Beardslee (US) is now implemented in Finland, the Netherlands, Norway, Belgium and Sweden; and the Dutch play-and-talk group intervention has been adopted in Norway. 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Opvoedcursus 'Opkikkertje' doelgroep en effectiviteit (Parenting training 'Opkikkertje': target group and efficacy. Utrecht: University of Utrecht. Trimbos-instituut. (2012). Factsheet KOPP/KVO retrieved at: https://assets.trimbos.nl/docs/4f580503a4f5-497c-b9d3-5045b142e1d2.pdf Van der Veen, V., & Van der Zanden, R. (2007). Procesevaluatie Kopstoring: Een onderzoek naar de preventieve online groepscursus voor jongeren van 16-25 jaar (Evaluation report Kopstoring). Utrecht: Trimbos-Instituut. 348 Van der Zanden, R., Arntz, K., Veenema, T., & Speetjens, P. (2009). KopOpOuders.nl: Evaluatieonderzoek naar een preventie online opvoedondersteuningsaanbod voor ouders met psychische en/of verslavingsproblemen (Evaluation report the preventive online parenting support for parents with a mental illness or substance abuse problems). Utrecht: Trimbos instituut. Van Doesum, K. T. M., Hosman, C. M. H., & Riksen-Walraven, J. M. (2005). A model-based intervention for depressed mothers and their infants. Infant Mental Health Journal, 26(2), 157176. Van Doesum, K. T. M., Riksen-Walraven, J. M., Hosman, C. M. H., & Hoefnagels, C. (2008). A randomized controlled trial of a home-visiting intervention aimed at preventing relationship problems in depressed mothers and their infants. Child Development, 79(3), 547-561. Van Laarhoven, M. (2012). Een pilotonderzoek naar een nieuw preventief programma voor zwangere vrouwen met psychische problemen: ‘Zwanger en dan?’. Masterthesis Radboud universiteit Nijmegen. Van Santvoort, F., Hosman, C. M. H., van Doesum, K. T. M., & Janssens, J. M. A. M. (2014). Effectiveness of preventive support groups for children of mentally ill or addicted parents: a randomized controlled trial. European Child & Adolescent Psychiatry, 23(6), 473–84. http://doi.org/10.1007/s00787-013-0476-9 Wansink, H. (2002). Formative Evaluation of the Programme Basic Care Management [Dutch]. Den Haag: Parnassia. Wansink, H. (2006). Basic Care, risks and protective factors for parenting and social-emotional development of children of mentally ill parents [Dutch]. Den Haag: Parnassia. Woolderink, M., Smit, F., van der Zanden, R., Beecham, J., Knapp, M., Paulus, A., & Evers, S. (2010). Design of an internet-based health economic evaluation of a preventive group-intervention for children of parents with mental illness or substance use disorders. BMC Public Health, 10(1), 470. Zonneveld, J. (2000). Handleiding KOPP Oudercursus (Manual COPMI parenting course). Utrecht: Trimbos-instituut. 349 Study questions for this chapter Which prevention strategies and methods are used to prevent mental disorders in children? Which types of prevention programmes are effective in the reduction of risk factors and the reinforcement of protective factors in COPMI children? What are important conditions for realising a broad implementation of effective prevention programmes? Describe some examples of preventive activities targeted directly at COPMI children and interventions focused at intermediate target groups. Go back to chapter 12 where the eight dimensions of a prevention strategy are described. Compare the Mother-baby intervention and the Support group intervention for COPMI between 8 and 12 years. On which of these dimensions do these two interventions differ? What are the differences? What are opportunities to further improve or innovate these COPMI interventions? You also could try to apply knowledge on effect predictors discussed in chapter 13. 350 18 Prevention of Anxiety Disorders 18.1 Introduction 352 18.2 Epidemiological Profile 352 18.2.1 18.2.2 Prevalence and incidence Populations at risk 352 354 18. 3 Risk and protective factors 354 18.3.1 Psychological risk and protective factors 357 18.4 Preventive strategies 359 18.5 Evidence-based preventive strategies 359 18.5.1 18.5.2 Indicated, selective and universal prevention in childhood and adolescence Indicated prevention for adults 360 363 18.6 Promising developments 364 18.7 Conclusions and recommendations 365 Literature 367 Study questions for this chapter 371 351 18 Prevention of Anxiety Disorders Clemens M.H. Hosman, Heleen Drijver 18.1 Introduction Feelings of fear and anxiety are a part of normal, healthy life, especially in situations that are perceived as threatening. Fear and even panic are considered as alarm reactions of the organism to danger. Fear is the emotional response to real or perceived imminent threat, whereas anxiety is anticipation of future threat (American Psychiatric Association, 2013). When perceptions of danger are realistic and anticipatory in nature, feelings of fear and anxiety can trigger adequate preventive behaviour, such as avoiding dangerous situations, asking for help or performing social behaviour that reduces escalation to violent encounters. Fear and anxiety are postulated as part of evolved defence mechanisms that keep organisms away from anticipated life-threatening situations or to prepare the body for vigorous defensive action. However, when feelings of anxiety are intense and overwhelming they can paralyse animals and human beings, and reduce their ability to adequate cognitive and behavioural functioning. Regular biased perceptions of threat and excessive feelings of anxiety, that a person finds difficult to control, can significantly impede their functioning in school, work, parenting, marital relationships and the development of social skills and friendships (e.g. LaGreca & Lopez, 1998). In such situations, persons might suffer from an anxiety disorder. The DSM-5 (American Psychiatric Association, 2013) differentiates among a range of DSM-5 Classification Anxiety Disorders (APA, 2013) anxiety disorders (see Box). 18.2 Epidemiological Profile 18.2.1 Prevalence and incidence Separation Anxiety Disorder (SAD) Selective Mutism Specific Phobia Social Anxiety Disorder (Social Phobia) Panic Disorder Panic Attack Specifier Agoraphobia Generalized Anxiety Disorder (GAD) Substance/Medication-Induced Anxiety Disorder Anxiety Disorder Due to Another Medical Condition Other Specified Anxiety Disorder Unspecified Anxiety Disorder Children and adolescents Among children, anxiety disorders represent the most common form of psychopathology. Epidemiological studies show prevalence estimates, ranging from 5.7 to 17.7%, with half of study estimates above 10% (Costello & Angold, 1995). The lower prevalence rates have been found in studies using more stringent diagnostic criteria. Reviewing epidemiological knowledge on anxiety disorders in children and adolescents, Malcarne and Hansdottir (2001) report a rate of 3–5% for separation anxiety disorder, around 6% for special phobia and between 1.7 and 14.3% for overanxious disorder. Panic disorders and agoraphobia are rare in children. Dutch researchers conducted interviews with young people (Verhulst et al., 1997) and young adults (De Graaf et al., 2010). The half year prior to the study more than 10 percent of the Dutch youth from 13 to 17 years had an anxiety disorder. This comes down to about 114,000 young people. In the category 18 to 24 years the percentage of anxiety disorders was 352 11.7 over the past year. The most common anxiety disorders in both age groups are the social anxiety disorder and specific phobia. These disorders are more common in girls than in boys. For the timing of preventive interventions, it is important to have insight in the age of onset of disorders and their precursors, as well as in the time lap between onset and clinical diagnosis. Most anxiety disorders in children (Separation Anxiety Disorder (SAD), Generalized Anxiety Disorder (GAD), Social Phobia, specific phobias) first appear in middle childhood, i.e. between 7-9 years, while a mean age of onset is found in adolescence (Malcarne & Hansdottir, 2001; Hazen & Stein, 1995). The mean age of onset of generalised social phobia is much earlier (11 yrs) than for nongeneralised phobia (17 yrs) and agoraphobia (27 yrs) (Mannuzza et al., 1995; Emmelkamp, Bouman & Scholing, 1989). Anxiety disorders in adolescence and adulthood are frequently preceded by anxiety disorders and behavioural inhibition in young children (Francis & Radka, 1995). For prevention, it is necessary to consider the whole developmental trajectory of anxiety problems, including sequences of subsequent anxiety disorders. Evidence from both retrospective and prospective studies of children suggests that a high proportion of children do not ‘outgrow’ anxiety disorders (Majcher & Pollack, 1996; Spence, 1996). Unless successfully treated, anxiety disorders in childhood frequently persist or develop into some other anxiety disorder. Finally, with respect to secondary prevention, it is relevant to know that clinical diagnoses of anxiety at the first contact with mental health care follow mostly not earlier then 3 to 4 years after onset. Adult population According to the US National Comorbidity Study Replication in 2001/2003 (NCS-R) (Kessler, Petukhova, Sampson, Zaslavsky, & Wittchen, 2012) one third of the adult population was estimated to develop an anxiety disorder at some time in their lives. In about 21%, an anxiety disorder was found currently or in the past 12 months. Lifetime prevalence for the most common anxiety disorders was 13.0% for social phobia and 13.8% for specific phobia. In terms of year prevalence, correspondingly, the highest rates were found for social phobia (8.0%) and specific phobia (10.1%), and much lower rates for panic disorder (3.1%), agoraphobia (1.7%), and generalised anxiety disorder (2.9%). According to NEMESIS-2 (De Graaf et al., 2010) lifetime prevalence for the Netherlands for anxiety disorders was 19.6%. The year prevalence was 10.1%. Virtually all anxiety disorders are more common among women than among men. A cross-cultural study by WHO at 15 primary health care sites, using similar diagnostic instruments, showed a considerable variation in generalised anxiety rates, ranging from 0.9 to 22.6%. The highest rates were found in capital cities within the South American region (18.7 – 22.6%), while the lowest rates were found in Ankara, Shanghai and Seattle (0.9 – 2.1%). This points to the role of cultural factors in the onset, diagnoses or reaction to anxiety disorders across regions. Comorbidity Anxiety disorders show a high level of comorbidity, both between anxiety disorders and with other disorders. Around half of the patients with a principle anxiety disorder have one other anxiety or depressive disorder (Brown & Barlow, 1992). Especially for GAD, high levels of comorbidity are found, such as a 90% lifetime comorbidity rate in the NCS community study (Wittchen et al., 1994). Anxiety disorders are most comorbid with depression, ranging from 15.9 to 61.9% across studies (Brady and Kendall, 1992), with anxiety disorders mostly as the primary disorder. Several prospective studies have identified anxiety disorders and especially multiple anxiety disorders as a significant risk factor for the development of later depression (Woodward & Ferguson, 2001; Reinherz, Paradis, Biaconia, Stashwick & Fitzmaurice, 2003; 353 Stein et al., 2006). Comorbidity has been found also with Attention Deficit Disorder (ADD), oppositional disorder, and alcohol abuse and dependence (Mannuzza, Schneier, Chapman et al., 1995; Kessler, Sonnega, Bromet et al., 1995). Furthermore, high levels of comorbidity exist with Cluster C type of personality disorders (avoidant, dependent and obsessive compulsive), which points to the prevalent chronic character of the symptoms in those who are suffering from anxiety disorders. Health and economic burden: Andlin-Sobocki and Wittchen, (2005) estimated that in 2004 anxiety disorders cost more than 41 billion euros in the European Union. There is also convergence in studies that anxiety disorders account for a substantial amount (at least 35%) of all disability and sick leave days due to mental disorders (Wittchen & Jacobi, 2005). In the top ten of diseases with the greatest burden of disease in the Dutch population in 2015, anxiety disorders take the fifth place (Men: 6th place, women 2nd place). Burden of disease is expressed in Daly's (Disability Adjusted Life Years). The DALY is a composite measure of health loss and is made up of two components: the years lost due to premature death (years of life lost) and the years lived with disease, taking into account the severity of the disease. Virtually all disease burden caused by anxiety disorders is formed by the years lived with the disease. (www.volksgezondheidenzorg.info/onderwerp/angststoornissen) 18.2.2 Populations at risk Several population categories have been identified with increased vulnerability to anxiety disorders, namely children of parents with an anxiety disorder, those with history of anxiety sensitivity or behavioural inhibition as a child, persons with a high level of neuroticism and those already showing increased levels of anxiety symptoms. Empirical evidence for their risk is presented in the next section. 18. 3 Risk and protective factors The onset of anxiety disorders is the outcome of a combination of biological, environmental and psychological factors across the lifespan, both risk and protective factors. Some are related to one specific anxiety disorder only, others play a part in the onset of several or all anxiety disorders, in the development of both anxiety and depressive disorders, or contribute to the risk of psychopathology in general. Several excellent reviews of risk and protective factors in anxiety disorders and preventive interventions have been published, that we gratefully have used as one of the sources for this chapter (Malcarne & Hansdottir, 2001; Donovan & Spence, 2000; Roth & Dadds, 1999; Zuckerman, 1999; Spence & Dadds, 1996; Lau & Rapee, 2011; Stockings et al., 2016). Demographic profile According to the findings in the NCS study (Kessler et al., 1994), the ECA study (Regier, Narrow & Rae, 1990; Robins & Regier, 1991) and NEMESIS-2 (De Graaf et al., 2010), the incidence of most anxiety disorders in women is twice as high as in men. Taken as a whole, anxiety disorders are prevalent across all the age categories, although the incidence of individual anxiety disorders varies with age. Incidence is negatively related to income, social class and employment status, with rates twice as high in the lowest income group as in the highest one, and among the unemployed versus the employed. There is no indication that 354 anxiety disorders are related to ethnicity when other demographic variables are controlled. Furthermore, rates of anxiety disorders were higher in those who are separated or divorced, and especially in single parents (Zuckerman, 1999). These findings do not allow any causal interpretation because, for example, lower income and divorce might also be a consequence of anxiety disorders or other psychopathology. Parental anxiety disorders Children of parents with anxiety disorders are at greater risk to develop anxiety disorders across their lifespan than children of parents without such disorders (parental panic disorder: Biederman, Faraone, Hirshfeld-Becker et al., 2001; Van Santvoort et al., 2013). Such a history is especially found to be predictive for comorbidity of anxiety disorders in combination with other disorders in children. For instance, the Dutch National Mental Health Survey (de Graaf, Bijl, Smit, Vollebergh, & Spijker, 2002) found among adult offspring of parental psychopathology odd ratios of 1.28 for pure anxiety disorders, 1.81 for anxiety disorders comorbid with mood disorders and 2.29 for comorbidity with substance use disorders. The study did not offer a differentiation concerning the type of parental disorder. Several mechanisms could be responsible for the impact of parental anxiety on offspring. Although the knowledge on such mechanisms is still meagre, it seems likely that both genetic influences and parental behaviour play a mediating role in this. Genetic and temperamental factors Twin studies have shown evidence for genetic effects in the onset of anxiety disorders, although the estimated impact of environmental factors seems to be much larger. In such studies only modest heritability (23-39%) was found, in comparison to non-shared environmental effects (61-73%) (Zuckerman, 1999). Research on genetic transmission of anxiety to children is mainly focused on the study of ‘Behavioural inhibition (BI) to the unfamiliar’, a temperamental construct that is found in approximately 10 –15% of the children. BI refers to withdrawal, timidity, excessive shyness, emotional restraint in children and seeking comfort of parent or caretaker when exposed to unfamiliar people, places or contexts. Next to a strong genetic component, stability of behavioural inhibition might be mediated by parental behaviour (Donovan & Spence, 2000). Several prospective studies (e.g. Kagan et al., 1990), some over a period of 7-12 years, have found evidence for behavioural inhibiting characteristics in early childhood as risk factors for anxiety disorders in middle childhood and adolescents (Malcarne & Hansdottir, 2001). In addition, neuroticism/negative emotionality is hypothesised as another temperamental risk factor in the onset anxiety disorders. People with anxiety disorders, except specific phobia, show higher scores on neuroticism and negative affectivity and lower scores on extraversion scales then people without such disorders. Evidence suggests that this relation is mediated by a higher occurrence of stressful life events and avoiding coping styles in those with higher levels of neuroticism and negative emotionality (Watson, David & Suls, 1999). Neuroticism/negative emotionality is also found as a risk factor in other disorders. For instance, a large twin study found neuroticism to be also a significant predictor for the onset of major depression (Kendler, Neale, Kessler et al., 1993). As genetic factors as such are not eligible as targets for preventive interventions, they might be used to identify children at risk who may benefit from available preventive interventions, for example by enhancing the development of problem-focused coping skills and through parent education. 355 Environmental influences In addition to genetic factors, there is ample evidence for environmental influences in the development of anxiety and anxiety disorders, especially concerning the impact of parental behaviour and traumatic experiences. It is likely that environmental influences are mediated by several biological and psychological mechanisms. Evidence found in both animal and human studies suggests that early adverse life events create a neurobiological vulnerability that predisposes individuals to the development of affective and anxiety disorders in adulthood (Heim & Nemeroff, 1999; Heim et al., 1997). Such events can result in long-lived alterations in neurological systems that regulate mammalian stress responses, and especially generate increased activity of the corticotrophin-releasing factor (CRF). Increased CRF neuronal activity has been found in patients with major depression and some anxiety disorders. As Heim and Nemeroff conclude, genetic disposition coupled with early stress in critical phases of development may result in a phenotype that is neurobiological vulnerable to stress and may lower an individual’s threshold for developing depression and anxiety upon further stress exposure. Convincing evidence exists for the mediating role of learning mechanisms, such as direct classical conditioning, vicarious learning, and information transmission. Direct classical conditioning occurs when individuals are exposed to traumatic experiences. Vicarious learning refers to conditioning caused by the observation of fear reactions in a model. For example, children of anxious parents can model their parent’s anxious or phobic behaviour. When such parents conceal their fears in the presence of their children, the impact on children’s behaviour disappears (Muris, Steeneman, Merckelbach et al., 1996). The role of information transmission in anxiety development is illustrated in child studies of Barrett, Rapee, Dadds, and Ryan, (1996) and Barrett, Dadds and Rapee (1996). They suggest that parents of anxious children differ in the way they teach their children to interpret and respond to ambiguous threat cues, and are more likely to suggest avoidant solutions than pro-social solutions. Both environmental factors as well as learning processes are viable targets for preventive interventions. Parental behaviour and parent-child interactions It is highly likely that intergenerational transfer of anxiety problems is not only genetic in nature, but that parental anxiety also has direct influence through the behaviour of parents. The above examples illustrate this. Several parental behaviours have been empirically identified to increase anxiety reactions and even the risk of anxiety disorders in children, especially overanxious behaviour, overprotectiveness and overcontrol by parents (reviews by Malcarne & Hansdottir, 2001; Donovan & Spence, 2000). For example, evidence has been found suggesting that parental overcontrol tends to interfere with children’s acquisition of effective problem-solving skills, resulting in low efficacy and low expectancies for success (Costanzo, Miller-Johnson & Wencel, 1995; Krohne & Hock, 1991). In addition, mothers with anxiety disorders or depression show more aversive control and are less responsive to their children what fosters insecure attachment. Interactions between insecure attachment and behavioural inhibition would put children at greatest risk. However, most of this research is only retrospective and hard evidence on such interactions from prospective research is missing. Trauma and stressful life events Exposure to fear-evoking, health-damaging and especially life-threatening stressors is one of the most significant risk factors in the onset of anxiety disorders. The impact that traumatic experiences can have on children is often undervalued through references to their resilience and plasticity. Numerous studies have shown that childhood 356 trauma may have serious and long-lasting effects. Also in large-scale epidemiological studies, adult psychopathology is strongly associated with childhood trauma. For example, among adults with a history of childhood trauma the Dutch National Mental Health Survey found odd ratios of 1.66 for anxiety disorders, 2.66 for mood disorders, and 5.28 for comorbidity of mood, anxiety and substance use disorder (de Graaf, et al., 2002). However, such figures need to be interpreted with care while they might be influenced by biased memory processes. Child abuse is worldwide one of the most prevalent traumatic events among children. Approximately one third of the children exposed to child abuse develop PTSD (Ackerman, Newton, McPherson, Jones, & Dykman, 1998) (Famularo, Fenton, Kinscherff & Augustyn, 1996), while also phobic disorders, ADHD, oppositional defiant disorder, and separation anxiety disorder are highly prevalent among such victims (Ackerman et al., 1998). In a controlled, prospective study over a period of 25 to 30 years among 1.196 abused and nonabused children, Widom (1999) found a lifetime prevalence of PTSD of 30.6 to 37.5% depending on the type of abuse. Adolescents or young adults who were both physically and sexually abused during childhood appeared to be at the highest risk, between 45 and 55%, while PTSD among the nonabused is estimated at 3.8% (Ackerman et al., 1998; Schaaf & McCanne, 1998). Longitudinal research among abused/neglected and nonabused/neglected children suggests that the long-term risk of adult psychopathology might be mediated by a significant increase of vulnerability factors in abused children (Sanchez, Ladd & Plotsky, 2001; McGloin & Widom, 2001). Risk factors for child abuse and neglect are discussed more extensively in chapter 16. These include evidence for the intergenerational transfer of parental child maltreatment and PTSD. Traumatic events during infancy and early childhood are of special importance since evidence from neurodevelopmental research suggests that such experiences can have an adverse influence on the organisation of the developing brain (Perry, Pollard, Blakley et al., 1995). Accumulating evidence (as reviewed by Sanchez, Ladd & Plotsky, 2001) shows that early traumatic experiences in children are associated with long term alterations in coping style, emotional and behavioural regulation, neuroendocrine responsiveness to stress, social ‘fitness’, cognitive function, brain morphology, neurochemistry, and expression levels of central nervous system genes that have been related to anxiety and mood disorders. Exposure to trauma is discussed here especially in relation to the onset of ASD and PTSD; nevertheless, we need to consider exposure to traumatic events as a non-specific risk factor, while it can trigger also a variety of other psychiatric disorders, especially anxiety disorders, major depression and substance abuse. Not only traumatic events but also other stressful events that are more common to the daily life of children, such as first school entry, school transitions, bullying, hospital admissions, surgery, dental treatment, family conflict and the death of a family member, can trigger persistent anxiety reactions and increase the risk of anxiety disorders, such as phobia and GAD (Donovan & Spence, 2000; Spence, 1994). 18.3.1 Psychological risk and protective factors Personality characteristics as risk factors The presence of personality disorders of the avoidant, dependent and obsessive compulsive types increases the risk of the development of anxiety disorders. For example, the avoidant defence mechanism is what turns a panic disorder into agoraphobia (Zuckerman, 1999). An individual panic attack is not only a potential precursor of a panic disorder, but could also trigger the onset of agoraphobia, as an avoidance reaction to panic attacks and their complications. 357 As will be discussed below, some preventive interventions are specifically targeted at persons who have experienced only one panic attack and who are considered at risk for panic disorder or related disorders. There is ample evidence to conclude that cognitive learning and other conditioning processes play a significant role in the onset of anxiety disorders. For example, persons with panic disorders, social phobia and GAD show a sense of lack of control and consequent feelings of helplessness and low self-efficacy, an increased sensitivity to threat stimuli, biases in information-processing, and negatively biased self-perceptions (Zuckerman, p.125, 286; McNally, 1990; Barlow, 1991). Specifically, panic attacks are mediated by catastrophic interpretations of unexpected body sensations. Feelings of lack of control and biased perceptions of negative evaluations by others might be the outcome of negative life events over which the child had little or no control, such as child abuse or being a regular victim of bullying. Such experiences are believed to foster a psychological diathesis that put children at risk for anxiety and other disorders. According to Chorpita and Barlow (1998), long-term influence of perceptions of low control would be to intensify behavioural inhibition and would ultimately lead to the experience of generalised anxiety. Furthermore, Muris (2002) found that low self-efficacy was associated with high levels of anxiety disorder symptoms and depressive symptoms, even when controlling for trait anxiety. In addition, some support was found for a relation between the specific domain of selfefficacy and particular types of anxiety problems. Social efficacy was most strongly connected to social phobia, academic self-efficacy to school phobia, and emotional efficacy to generalised anxiety and panic. Several of the above-mentioned risk factors are not specific for anxiety disorders. Risk factors such as insecure attachment, lack of self-perceived control and low self-efficacy are also predictive of increased risk of depression or psychopathology in general. Some evidence is found for ‘anxiety sensitivity’ as cognitive risk factor, especially for panic disorder. Anxiety sensitivity refers to someone’s fearful response to anxiety symptoms that are based on beliefs that these symptoms have harmful consequences (McNally, 1996). Such sensitivity can be a consequence of earlier panic attacks, but also of misinterpretations of heart attacks, or through observational learning of parental ‘fear-of-fear’ behaviour. Trait anxiety, however, denotes a general tendency to respond fearfully to stressors. Protective factors Social support is considered as a generic protective factor reducing the onset of psychiatric and physical disorders, especially when one has to face stressful or traumatic life events. Empirical evidence, as reviewed by Donovan and Spence (2000), has shown that family social support reduced the development of anxiety problems when children are exposed to stressors such as community violence, divorce and sexual abuse. For example, in a prospective study among 11 to 14-year olds who were exposed to community violence White, Bruce, Farrell and Kliewer (1998) found less increase of anxiety level when they received social support from their family. Furthermore, it is suggested that emotion-focused and avoidant coping strategies are associated with higher levels of anxiety then problem-focused coping. The available evidence points mainly to the more generic impact of coping styles on the development of psychiatric problems, and only marginal evidence is available for its protective role on the development of anxiety problems. 358 18.4 Preventive strategies To reduce the onset or recurrence of anxiety disorders a wide range of intervention strategies have been developed that can be differentiated with respect to their timing, type of addressed disorder(s), target population, targeted risk or protected factors and the choice of methods and mechanisms of change. Timing refers to choices in terms of the targeted period across the life span (e.g. infancy, late childhood or adolescence), interventions before or after an anxiety-provoking event (proactive or reactive), or the targeted stage of problem development (e.g. primary, secondary or recurrence prevention). Interventions, designed to prevent the onset of anxiety problems, are mostly directed at populations at risk (selective or indicated prevention) and only incidentally at universal populations. In terms of addressed risk and protective factors, interventions are focused at reducing the onset of or exposure to stressful events that might trigger anxiety reactions, decreasing vulnerability and increasing resilience, coping skills or anxiety mastery of people who might be or have been exposed to such events, and to strengthen emotional or other types of support. Box 18.1 comprises the main preventive strategies that are currently implemented. They include a wide range of methods and techniques, such as for example in vivo- or videomodelling by parents and peers, information, stress inoculation, skills training, exposure techniques, and environmental measures. The overview of current preventive strategies reflects that a successful community approach to prevent anxiety disorders needs to be intersectoral, i.e. requires the involvement of a range of health sectors (e.g., primary health care, public health organisations, outpatient mental health services, hospitals), as well as many other public sectors, such as schools, workplaces, traffic, transportation, fire-arms and the safety sector. This includes actions and policies that might not primarily be focused at mental health, but having the potential to reduce the number of and exposure to severe traumas, for instance armed bank or shop robberies. 18.5 Evidence-based preventive strategies What do we know about the efficacy and effectiveness of these strategies? In comparison to other sectors of prevention (e.g. prevention of antisocial behaviour), controlled outcome trials on interventions specifically designed to prevent anxiety disorders are scarce. Most of the available research concerns selective and indicated prevention of anxiety disorders in early and middle childhood and prevention of phobia related to medical procedures. To date, there appears to be no controlled evaluation of the effectiveness of treating parental anxiety in preventing childhood anxiety (Donovan & Spence, 2000). 359 Box 18.1 Overview of strategies to prevent anxiety disorders 1. Reducing environmental conditions that can trigger severe and enduring anxiety reactions Preventable conditions include, for instance, marital violence, child abuse, armed robberies, shootings, workrelated accidents; traffic accidents. Examples of preventive strategies: safety measures in traffic, workplaces and neighbourhoods, safety legislation, gun control, violence prevention programmes, prevention of bullying in schools. 2. Reducing the exposure to threatening situations, or its duration For example, evacuation plans in cases of a threatening disaster, removing individuals from disaster scenes, and protecting them from direct exposure to disaster stressors; early detection and intervention in bullying, child abuse or other forms of domestic violence (e.g. child protection measures); and reducing children’s access to violent movies. 3. Enhancing emotional resilience, and reducing personality characteristics that make children and adolescents prone to anxious reactions and vulnerable to anxiety disorders This includes both universal prevention and mental health promotion (e.g. in school settings) and selective prevention (e.g. for children of anxious parents) pre-school programmes and parent-focused programmes to reduce overprotection, anxious model behaviour and insecure attachment, and to increase positive reinforcement and teaching coping skills; for example, by training of appropriate parenting strategies (e.g., parent education courses, video home training) or early treatment of parental anxiety disorders. school-based programmes: teacher training and direct training of children’s cognitions and skills, generic in nature (e.g., problem and social solving skills, self-efficacy) or anxiety-related (e.g., safety behaviour, coping with threat and fear). 4. Anticipatory education and training Strengthening relevant coping skills in those who are at increased risk of exposure to threatening situations using information, stress inoculation, skills training, disaster training, leadership training and personnel selection. Main target populations at risk: professionals (e.g. fire-fighters, rescue teams, police officers, bank personnel, soldiers), potential disaster victims (e.g. workers in chemical industry, inhabitants in areas at risk of natural disasters), and persons who have to face stressful life events or life conditions, such as school transitions, unpleasant or painful medical treatment (e.g. prevention of dental fears, pre-operation education), elderly with reducing hearing and sight capacities). 5. Indicated prevention Interventions directed at children, adolescents or adults already showing increased levels of anxiety symptoms that might foreshadow the onset of an anxiety disorder. For example, persons at risk because they have suffered from a first panic attack, or who show increased levels of social anxiety but no disorder. Training in early detection and treatment skills of teachers, personnel officers, primary health care workers (general practitioners, nurses) Courses or training programmes or for those with increased levels of anxious symptoms. 6. Recurrence prevention Interventions offered at people who have recovered from a past anxiety disorder and who are at risk of recurrence of a similar or other anxiety disorder. 360 18.5.1 Indicated, selective and universal prevention in childhood and adolescence As inhibited temperament has been identified as a major risk factor in anxiety disorders, Rapee and Jacobs (2002) studied the possibility to reduce withdrawn and inhibited characteristics in 4- to 5-year old children. Mostly such temperamental characteristics are assumed hardly malleable. They offered the mothers a six-session programme to educate them in managing their children’s fears and their own anxiety. In their uncontrolled pilot study, they found marked reductions in mother’s perceptions of withdrawn temperament and anxious symptoms. Interestingly, the reduction on temperamental characteristics became only significant 6 months after the intervention. Notwithstanding the limitations of the study, the pilot has shown that it is potentially possible to reduce withdrawn behaviour in preschool children. In Canada, LaFreniere and Capuano (1997) used a randomised controlled trial to evaluate the efficacy of a preventive intervention for anxious-withdrawn preschool children and their mothers (N=43). The home-visiting programme covers 20 sessions with the mothers across 6 months, and includes reading materials on child development and parenting, feedback from observations by the home visitor, video home-training, child-directed play sessions, individual coaching and stimulation of building a more effective social support network. These methods were used to increase mother’s insight in the developmental needs of the child, promoting the parents’ competence to respond sensitively to these needs, reduce parenting stress and to provide social support. The outcomes showed a significant improvement in appropriate maternal control, social competence in the children of the participating families over those in the control condition. However, the improvement of children’s anxious-withdrawn behaviour in the treatment condition reached only marginally significance when compared with changes in the control group. No effect of the programme was found for the aimed reduction in parental stress and maternal affect. Australian researchers have made significant FRIENDS Anxiety Prevention Programme progress in preventing child anxiety disorders by modifying a successful A cognitive behavioural programme for cognitive-behavioural treatment children of 7 to 16 years old that programme for anxiety disorders, into a assists them in developing skills to cope prevention format (Lowry-Webster, Barrett with and manage anxiety more effectively & Dadds, 2001; Dadds, Holland, Laurens et builds emotional resilience, problem solving al., 1999; Dadds, Spence, Holland et al., abilities, and self confidence 1997). This so-called FRIENDS ten one-hour group sessions and two programme is based on the Coping Koala booster sessions programme (Barrett, Dadds & Rapee, 1996), an Australian modification of the three parental sessions on managing their child’s and their own anxiety Coping Cat anxiety programme for children (Kendall, 1990). FRIENDS is widely used in workbooks for children and parents public and private schools, community designed for school, hospital and health centres and hospitals across community settings Australia, and adopted by other countries based on extensive scientific research and such as Sweden, the United States, and the controlled outcome studies Netherlands. Several controlled prevention trials have shown evidence for its efficacy, when used in universal, selective or indicated target populations. In the first prevention trial FRIENDS was applied simultaneously as early intervention for children with mild anxiety disorders (secondary prevention), and as indicated prevention for at risk children, who had anxiety features but 361 remained disorder free (Dadds, Spence, Holland et al., 1997). Children (7-14 yrs) were identified through a school-based screening procedure involving children, teachers and parents. Of those who had anxiety features, but no disorder at pre-treatment, 54% of the monitoring only group progressed to a diagnosable disorder at 6-month follow-up, compared with 16% in the intervention group. These differences in onset of anxiety disorders were reinforced by comparable differences in child and family adjustment. Also, in the secondary prevention group, the intervention resulted in a significant reduction of anxiety disorders at 6 months follow-up. At 24 months follow-up, the outcomes were still significant for the whole group, with a 39% diagnosis rate in the monitoring group and 20% in the intervention group (Dadds, Holland, Laurens et al., 1999). This reduction was almost exclusively found in the children with a mild to moderate pre-treatment disorder, while at that time the reduction in the disorder-free group was only marginal (16% vs. 11%). The efficacy of FRIENDS and related programmes as a secondary prevention tool has been demonstrated in many trials. For instance, in an early treatment study by Muris and Mayer (2000), schoolchildren were screened for anxiety disorders and offered the Coping Koala Program; half of them as individual treatment and for the other half a group format was used. In both versions, around 75% of the children showed a clinically significant treatment effect, with large effect sizes between 0.8 and 1.1. In a pilot study, the FRIENDS programme was used as selective prevention instrument for adolescents at high risk, i.e., former–Yugoslavian teenage refugees (Barrett, Moore & Sonderegger, 2000). The results of the quasi-experimental trial revealed that students participating in the programme showed a significant decrease in anxiety, while the waiting list group showed an increase in internalising problems. Similar results were found in a second quasi-experimental study among children and adolescents from immigrated families from multiple countries and regions (Barrett, Sonderegger & Sonderegger, 2001). Participants showed greater improvements in self-esteem, level of anxiety and future outlook than those belonging to the waiting list group. These outcomes suggest that the programme is efficacious across risk groups of different cultural origin. The FRIENDS programme has also been implemented as a universal preventive intervention, involving all children in school classes from grades 5 to 7 (Lowry-Webster et al., 2001). The preliminary outcomes of their controlled trial (N=594) suggest that the intervention resulted in a significant reduction of anxiety symptoms, regardless of the initial risk status. In addition, 75.3% of children in the intervention group who were at risk at pre-test (high anxious group) were no longer at risk at post-test, compared to 54.8% of children who were at risk at pre-test in the comparison group and who remained at risk at post-test. Among the clinically depressed children at pre-test, the intervention resulted also in lower levels of self-reported depression. Prevention of specific phobia and panic disorder The longest tradition concerning selective and indicated prevention of anxiety exists in the field of prevention of anxiety for stressful medical treatments, such as dental, operation and hospitalisation fears (e.g. Melamed & Siegel, 1975). Reviewers of controlled trials in this field, mostly dating from the 1970’s and 1980’s, conclude that the provision of only preparatory information on medical procedures has not been found to reduce fear, pain and disruptive behaviour (Spence, 1996; King, Hamilton & Ollendick, 1988). Positive effects, however, have been found by using modelling videotapes, and especially by a combination of training of coping skills plus modelling. 362 Effective multiple outcome programmes To reduce the risk of anxiety problems, programmes do not need to be designed specifically for that purpose. Many studies on multiple outcome programmes have found reductions in anxiety symptoms and risk factors for anxiety disorders (Roth & Dadds, 1999). For example, in their meta-analytic study of 108 controlled prevention studies, covering 149 programmes on diverse mental health topics, Llopis and Hosman identified 13 multiple outcome programmes that showed medium to large effect sizes (ES > .50) on anxiety indicators and a mean effect size of .84. Most of these programmes were not primarily designed to prevent anxiety problems, but target issues such as coping with parental divorce, coping with child problem behaviour, job stress management, and depression and fitness. Such programmes have shown significant effects on a range of other outcome criteria in addition to anxiety, such as depression, problem behaviour, school and school achievement. For example, several controlled trials on prevention programmes for children of divorce have found significant reductions in anxiety and behavioural problems in comparison to children in control groups. Given the high comorbidity between anxiety and depressive disorders, interventions addressing risk and protective factors in the onset of depression might also generate a reduction in the onset of anxiety disorders. This was indeed found in a randomised control study by Seligman, Schulman, DeRubeis et al. (1999) on a cognitive-behavioural programme to prevent depression. The programme consists of 8 weekly group sessions of 2 hours, and 6 individualised meetings continuing until almost one year after the end of the group intervention. The programme included topics such as challenging negative thinking and irrational beliefs, behavioural activation and assertiveness, and interpersonal and coping skills. Over the 3-year follow-up period participants did not only show a trend of less major depressive episodes in comparison to the control group, but also significantly less episodes of generalised anxiety disorder and less anxiety symptoms. Topper et al. (2017) performed a RCT evaluating the efficacy of a preventive intervention for anxiety disorders and depression by targeting excessive levels of repetitive negative thinking in adolescents and young adults. The intervention, based on CGT, was delivered by group or by the internet. Both versions reduced the levels of worry and rumination. After a year there was a significantly lower rate of depression prevalence (average: 15%) and generalized anxiety disorder (average: 17%) compared to the waiting list (32%, and 42%). Reductions in repetitive negative thinking mediated the effect of the interventions on the prevalence of depression and generalized anxiety disorder. Stockings et al. (2016) performed a meta-analysis to examine the joint efficacy of universal, selective and indicated preventive interventions upon both depression and anxiety among children and adolescents while accounting for comorbidity. These preventive interventions prove to be efficacious in the short term. Their advice is to repeat the exposures in school settings across childhood and adolescence. Additionally, many preschool and school-based programmes have been developed successfully targeting generic resilience factors that reduce the vulnerability for anxiety problems in children and adolescents, faced with stressful and anxiety-provoking conditions. 18.5.2 Indicated prevention for adults To date, no studies are available showing that panic disorders can be prevented by reducing risk factors and strengthening protective factors in people who never have suffered from a panic attack. Interviews with panic disorders patients revealed that they contacted mostly nonpsychiatric medical services at the time of their first panic attack, when a panic disorder was not yet present (Amering, Berger, Dantendorfer et al., 1997). This points to a missed 363 opportunity for indicated prevention. Gardenswartz and Craske, (2001) (prevention of panic disorder) developed a one-day prevention workshop for this group, including psychoeducation about the aetiology and nature of panic and agoraphobia, and the use of cognitive behavioural techniques for relaxation and cognitive restructuring. In the six months follow-up period almost 14% in the waiting-list group developed a panic disorder while only 2% among those who participated in the workshop. Meulenbeek and colleagues developed an intervention called ‘No Panic!’. People presenting subthreshold and mild panic disorder benefit from this brief intervention. It is a group intervention for panic symptoms based on cognitive–behavioural therapy, and offered by community mental health centres, in a sample of self-referred people presenting with subthreshold or mild panic disorder. (Meulenbeek et al., 2010). In contrast to these findings: the Internet-based guided self-help course ‘No Panic’ appears to be ineffective for individuals with panic symptoms. However, intervention completers did derive clinical benefits from the intervention. (Van Ballegooijen et al., 2013) Moreno-Peral, Conejo-Cerón, Rubio-Valera et al. (2017) conducted a systematic review and meta-analysis in order to evaluate the effectiveness of preventive psychological and/or educational interventions for anxiety in varied population types. The interventions were based on the principle of CBT, psychoeducation, or acceptance and commitment therapy ('Voluit Leven' see Fledderus, Bohlmeijer, Pieterse, & Schreurs, 2012). The pooled effect size (43% reduction in the incidence of anxiety) was modest compared to sizes found in treatments. Enough yet for Moreno-Peral and colleagues to encourage that more programs should be more widely implemented. 18.6 Promising developments Using treatment protocols for prevention: Studies in the field of anxiety disorders have illustrated that transforming successful treatment programmes into a prevention format and applying them to selected or indicated populations is a promising venue, as is illustrated in the FRIENDS programme and prevention of panic disorder programmes. This suggests that the range of preventive tools could be further extended by identifying other treatment protocols that lend themselves to application in a preventive setting as well. For example, efficacious treatment programmes for social phobia in adolescents (Albano, 2000). Test situations offer another focus of anxiety reduction with a long tradition. Current programmes to reduce test anxiety are mainly focused at treating students who have already serious problems with test situations (Spence, 1994). Effective methods include among others relaxation training, positive self-talk training, modelling, cognitive restructuring and training in study skills. Such treatments could be adapted for preventive use in whole school classes or with students with only moderate test anxiety. Recently, the internet has become a viable instrument to reach persons with anxiety problems. Online support groups for anxiety disorder sufferers have been evaluated positively by participants depending on the level of support from online friends, the frequency of accessing the online group and perceived sense of community in the group (Glasser-Das, 1999). Such online support groups could also be used as an instrument for indicated prevention. However, to date, no outcome data are available. Bibliotherapy in coping with panic attacks is another low cost intervention with a potentially wide reach in the community. Bibliotherapy, such as Franklin’s Self Mastery Training, in co