Chapter Data Management 6 This section presents the details to be captured for line-listing for HIV & Syphilis components of EVTHS and key indicators for monitoring the programme (Table 6.1 – 6.3) Table 6.1 Line-list Details for HIV (Pregnant Women & exposed infants) S. No Variable/details (Pregnant Women) Data Source Person responsible 1 HIV screening numbers HMIS/IIMS/ RCH portal ANM/data entry operator at health facility 2 Basic demographic details IIMS HCTS counsellor 3 HIV test and counselling details, index testing IIMS Counsellor at HCTS confirmatory facilities 4 Obstetric Details (LMP Months of pregnancy completed-in months, Expected date of delivery, gravida) IIMS Counsellor at HCTS facilities/ART centre 5 Para, Birth planning, Pregnancy outcome, mode of delivery, place of delivery, Family Planning counselling, Infant feeding option selected, VL test details at 3236 weeks, next VL Date, ART adherence IIMS Counsellor at ART centre 6 ART related details like regimen, lab investigations, OIs, co-infections, S. No Variable/details (HES) Data Source Person responsible 1 Basic demographic details IIMS HCTS counsellor 2 EID test related details- 10 drops down options for type of test IIMS Counsellor at HCTS 3 ARV prophylaxis, CPT prophylaxis IIMS Counsellor at HCTS facilities/ART centre 4 Growth & Development, clinical assessment and birth weight, current feeding practices at each EID interval, ARV start and stop date IIMS Counsellor at HCTS facilities/ART centre Elimination of Vertical Transmission of HIV & Syphilis: Guidance Note 27 Table 6.2 Line-list Details for Syphilis (Pregnant Women & exposed infants) S. No Variable/details Data Source Person responsible 1. Screening of Pregnant Women for Syphilis HMIS/ IIMS/ RCH ANM/data entry portal operator at health facility 1 Basic demographic details IIMS Counsellor at DSRC/ HCTS 2 Confirmatory testing for Syphilis IIMS Counsellor at HCTS 5 Obstetric Details (LMP Months of pregnancy completed-in months, Expected date of delivery, gravida, Para, Birth planning, family planning) for Syphilis infected pregnant women IIMS Counsellor at HCTS 4 Spouse testing for Syphilis IIMS Counsellor at HCTS 3 Treatment for Syphilis IIMS Counsellor at DSRC S. No Variable/details Data Source Person responsible 1 Basic demographic details IIMS Data Entry Operator 2 Diagnosis, prophylactic and curative treatment for congenital Syphilis IIMS Data Entry Operator The details of the key indicators which will be used to monitor the progress of the EVTHS programme are mentioned in Table 6.3. Table 6.3 Key Indicators for Monitoring of EVTHS Programme S. No. Indicator Data Source Person responsible 1. Number of pregnant women registered HMIS ANM/LT 2. Number of pregnant women screened for HIV HMIS ANM/LT 3.a. Number/percentage of newly identified pregnant women confirmed as HIV positive IIMS Counselor LT 3.b. Number/ percentage of Women IIMS living with HIV(WLHIV) reported pregnant at ARTC (known positive) Counselor LT 28 Elimination of Vertical Transmission of HIV & Syphilis: Guidance Note S. No. Indicator Data Source Person responsible 4. No. of HIV positive women started ART or already on ART IIMS Patient care related indicators – NACP Counselor/ART MO Lab related indicators (CD4, VL) – ART LT, Confirmatory facility LT, Lab LT 5. Unmet need of Women Living with IIMS HIV (childbearing age group) for family planning services All related indicators will be filled by the facility (ARTC/LAC) where services provided 6. No. of HIV positive pregnant women linked with Family planning services/birth planning IIMS All related indicators will be filled by the facility (ARTC/LAC) where services provided 7. No. of pregnant women undergone VL between 32-36 weeks IIMS Patient care related indicators – NACP Counselor/ART MO 8. No. of live births reported IIMS All related indicators will be filled by the facility (ARTC/LAC) where services provided 9. No. of infants on Exclusive breastfeeding IIMS All related indicators will be filled by the facility (ARTC/LAC) where services provided 10. No. of infants on Exclusive replacement feeding IIMS All related indicators will be filled by the facility (ARTC/LAC) where services provided 11. Total No. of HIV exposed infants provided ARV prophylaxis IIMS All related indicators will be filled by the facility (ARTC/LAC) where services provided 12. Out of the above, No. of HIV IIMS exposed infants provided dual ARV prophylaxis All related indicators will be filled by the facility (ARTC/LAC) where services provided 13. No. of HIV Exposed Infant (HEI) initiated on CPT prophylaxis IIMS All related indicators will be filled by the facility (ARTC/LAC) where services provided 14. No. of HIV Exposed Infant (HEI) IIMS undergone for EID testing at age of < 2 months (6 week to 2 months) All related indicators will be filled by the facility (ARTC/LAC) where services provided 15. No. of infants undergone EID at 6 months All related indicators will be filled by the facility (ARTC/LAC) where services provided Lab related indicators (CD4, VL) – ART LT, Confirmatory facility LT, Lab LT IIMS Elimination of Vertical Transmission of HIV & Syphilis: Guidance Note 29 S. No. Indicator Data Source Person responsible 16. No. of infants undergone EID at 12 months IIMS All related indicators will be filled by the facility (ARTC/LAC) where services provided 17. No. of infants undergone EID at 18 months IIMS All related indicators will be filled by the facility (ARTC/LAC) where services provided 18. No. of HIV exposed infants who are confirmed as HIV positive. IIMS All related indicators will be filled by the facility (ARTC/LAC) where services provided 19. No. of HIV positive babies who are on ART IIMS All related indicators will be filled by the facility (ARTC/LAC) where services provided 20. No. of HIV positive babies reported as general clients IIMS All related indicators will be filled by the facility (ARTC/LAC) where services provided 21. Number of pregnant/ Direct-InLabor (DIL)women screened/ tested (with VDRL/ RPR/ TPHA/ RDT/ PoC) for Syphilis HMIS/ IIMS All related indicators will be filled at the screening sites (Labour Room Register & facility-specific respective mechanism for HMIS reporting to be followed) 22. Number of pregnant/DIL women found seropositive for Syphilis by VDRL/ RPR/ TPHA/ RDT/ PoC test HMIS/ IIMS ANM/Data entry operator 23. Number of pregnant/DIL women infected with Syphilis and given treatment with injection Benzathine Penicillin (IM) HMIS/ IIMS DSRC Counsellor 24. Number of live births reported among Syphilis HMIS/ IIMS Labour Room/ DSRC Counsellor HMIS/ IIMS SNCU (Labour Room Register & facilityspecific respective mechanism for HMIS reporting to be followed) seropositive pregnant women 25. Out of above, Syphilis exposed babies who received treatment (prophylactic/ curative) 26. Out of above, babies with congenital Syphilis HMIS/ IIMS SNCU 27. Number of still-births reported HMIS/ IIMS Labour Room/DSRC Counsellor 30 Elimination of Vertical Transmission of HIV & Syphilis: Guidance Note