Elizabeth Ainsworth, MOccThy, Grad Cert Health Sci Private Practice Occupational Therapist and Access Consultant Home Design for Living Coorparoo, Australia Desleigh de Jonge, MPhil (OccThy), Grad Cert Soc Sci Adjunct Research Fellow School of Health and Rehabilitation Sciences The University of Queensland St Lucia, Australia SLACK Incorporated 6900 Grove Road Thorofare, NJ 08086 USA 856-848-1000 Fax: 856-848-6091 www.Healio.com/books © 2019 by SLACK Incorporated Senior Vice President: Stephanie Arasim Portnoy Vice President, Editorial: Jennifer Kilpatrick Vice President, Marketing: Michelle Gatt Acquisitions Editor: Tony Schiavo Managing Editor: Allegra Tiver Creative Director: Thomas Cavallaro Cover Artist: Stacy Marek Project Editor: Dani Malady An Occupational Therapist’s Guide to Home Modification Practice, Second Edition includes ancillary materials specifically available for faculty use. Please visit http://www.efacultylounge.com to obtain access. All rights reserved. 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Library of Congress Cataloging-in-Publication Data Names: Ainsworth, Elizabeth, author. | De Jonge, Desleigh, author. Title: An occupational therapist’s guide to home modification practice / Elizabeth Ainsworth, MOccThy, Grad Cert Health Sci, Private Practice Occupational Therapist and Access Consultant, Home Design for Living, Coorparoo, Australia, Desleigh de Jonge, MPhil (OccThy), Grad Cert Soc Sci, Adjunct Research Fellow, School of Health and Rehabilitation Sciences, The University of Queensland, St Lucia, Australia. Description: Second edition. | Thorofare : Slack Incorporated, [2018] | Includes bibliographical references and index. Identifiers: LCCN 2018037252 (ebook) | ISBN 9781630912192 (epub) | ISBN 9781630912208 (web) Subjects: LCSH: Occupational therapy. | Home care services. | People with disabilities--Housing--Design and construction. | BISAC: MEDICAL / Allied Health Services / Occupational Therapy. Classification: LCC RM735 (ebook) | LCC RM735 .A635 2018 (print) | DDC 615.8/515--dc23 LC record available at https://lccn.loc.gov/2018035903 For permission to reprint material in another publication, contact SLACK Incorporated. Authorization to photocopy items for internal, personal, or academic use is granted by SLACK Incorporated provided that the appropriate fee is paid directly to Copyright Clearance Center. Prior to photocopying items, please contact the Copyright Clearance Center at 222 Rosewood Drive, Danvers, MA 01923 USA; phone: 978-750-8400; website: www.copyright.com; email: info@copyright.com DEDICATION Dedicated to our families and friends, who have loved and supported us during this project, and to our clients, who provide inspiration and wisdom to expand our thinking and our practice and who challenge us to make a real difference in their lives. We would also like to dedicate this book to our colleagues who continue to embrace the complexities within the home environment to achieve quality outcomes for older people and people with disabilities. CONTENTS Dedication . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . v Acknowledgments . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .ix About the Authors . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .xi Contributing Authors. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .xiii Preface . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . xv Foreword by Carolyn Baum, PhD, OTR/L, FAOTA . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . xvii Chapter 1 The Home Environment . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .1 Tammy Aplin, PhD, BOccThy (Hons) and Bronwyn Tanner, BOccThy, Grad Cert Occ Thy, Grad Cert Soc Planning, MPhil Chapter 2 Approaches to Service Delivery . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 17 Bronwyn Tanner, BOccThy, Grad Cert Occ Thy, Grad Cert Soc Planning, MPhil; Desleigh de Jonge, MPhil (OccThy), Grad Cert Soc Sci; Andrew Jones, BA, MSW, GCE; Rhonda Phillips, MPhil, BA, Grad Dip; and Jon Pynoos, MCP, PhD Chapter 3 Models of Occupational Therapy . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 41 Desleigh de Jonge, MPhil (OccThy), Grad Cert Soc Sci and Merrill Turpin, PhD, Grad Dip Counsel, BOccThy Chapter 4 Legislation, Regulations, Codes, and Standards Influencing Home Modification Practice . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .63 Elizabeth Ainsworth, MOccThy, Grad Cert Health Sci; Desleigh de Jonge, MPhil (OccThy), Grad Cert Soc Sci; and Jon Sanford, MArch, BS Chapter 5 The Home Modification Process . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .83 Elizabeth Ainsworth, MOccThy, Grad Cert Health Sci and Desleigh de Jonge, MPhil (OccThy), Grad Cert Soc Sci Chapter 6 Evaluating Clients’ Home Modification Needs and Priorities. . . . . . . . . . . . . . . . . . . . . . . . . . 111 Desleigh de Jonge, MPhil (OccThy), Grad Cert Soc Sci and Melanie Hoyle, BSc (Psych), MOccThySt, Grad Dip Health Sci, Post Grad Dip Psych Chapter 7 Measuring the Person and the Home Environment. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 145 Elizabeth Ainsworth, MOccThy, Grad Cert Health Sci and Desleigh de Jonge, MPhil (OccThy), Grad Cert Soc Sci Chapter 8 Drawing the Built Environment . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 175 Elizabeth Ainsworth, MOccThy, Grad Cert Health Sci and Desleigh de Jonge, MPhil (OccThy), Grad Cert Soc Sci Chapter 9 Developing and Tailoring Interventions . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .195 Desleigh de Jonge, MPhil (OccThy), Grad Cert Soc Sci; Melanie Hoyle, BSc (Psych), MOccThySt, Grad Dip Health Sci, Post Grad Dip Psych; and Elizabeth Ainsworth, MOccThy, Grad Cert Health Sci Chapter 10 Sourcing and Evaluating Products and Designs . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .225 Desleigh de Jonge, MPhil (OccThy), Grad Cert Soc Sci and Melanie Hoyle, BSc (Psych), MOccThySt, Grad Dip Health Sci, Post Grad Dip Psych Chapter 11 Access Standards and Their Role in Guiding Interventions . . . . . . . . . . . . . . . . . . . . . . . . . . . 247 Elizabeth Ainsworth, MOccThy, Grad Cert Health Sci; Desleigh de Jonge, MPhil (OccThy), Grad Cert Soc Sci; and Bronwyn Tanner, BOccThy, Grad Cert Occ Thy, Grad Cert Soc Planning, MPhil viii Contents Chapter 12 Ethical, Legal, and Reporting Variables: Pathways to Best Practice. . . . . . . . . . . . . . . . . . . .259 Elizabeth Ainsworth, MOccThy, Grad Cert Health Sci and Barbara Kornblau, JD, OTR/L, FAOTA, FNAP, DASPE, CDMS, CCM, CPE Chapter 13 Evaluating Outcomes . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .283 Desleigh de Jonge, MPhil (OccThy), Grad Cert Soc Sci and Melanie Hoyle, BSc (Psych), MOccThySt, Grad Dip Health Sci, Post Grad Dip Psych Chapter 14 Literature Review: Home Modification Outcomes for Older Adults and Adults With Disabilities . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 313 Elizabeth Ainsworth, MOccThy, Grad Cert Health Sci; Tammy Aplin, PhD, BOccThy (Hons); Louise Gustafsson, PhD, BOccThy (Hons); and Desleigh de Jonge, MPhil (OccThy), Grad Cert Soc Sci Chapter 15 Case Studies . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .337 Elizabeth Ainsworth, MOccThy, Grad Cert Health Sci; Kathleen Baigent, Dip COT, Dip Health Prom; Ruth Cordiner, Dip COT, Grad Cert Occ Thy; Shirley Darlison, BOccThy; and May Eade, BOccThy Appendix Appendix Appendix Appendix Appendix Appendix Appendix Appendix Appendix A B C D E F G H I Minor Modifications: It’s Not as Simple as “Do It Yourself” (DIY). . . . . . . . . . . . . . . . . . . . . . Outline of Shapes and Occupied Wheelchairs . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Fundamental Types of Compact Turns . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Ramp Installation Considerations . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Home Modification Practice Resources . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Access Standards Resources . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Home Visit Checklist . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Home Modification Report Template . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Example of an Occupational Therapy Report . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 381 389 391 395 415 419 421 433 443 Financial Disclosures . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 455 An Occupational Therapist’s Guide to Home Modification Practice, Second Edition includes ancillary materials specifically available for faculty use. Please visit http://www.efacultylounge.com to obtain access. ACKNOWLEDGMENTS We would like to thank Brien Cummings and staff at SLACK Incorporated for providing us with the opportunity to showcase occupational therapy research and practice, and for supporting and promoting our work. We are grateful for the generous support and assistance of the various knowledgeable writers and others who contributed to the first edition of the book, and to those who reviewed and contributed new material for this second edition. We thank our clients and colleagues around the world who have read and used the first edition, and provided us with invaluable feedback to further refine the book. We are indebted to our colleagues at The University of Queensland who have provided us with encouragement and support to continue refining the material gathered from our home modification research and practice. Finally, we would like to thank our partners and families for providing us with support and encouragement as we have worked on this project for our profession and for older people and people with disabilities over the last decade. ABOUT THE AUTHORS Elizabeth Ainsworth, MOccThy, Grad Cert Health Sci graduated in 1989 with a bachelor of occupational therapy (honors) degree and completed a master’s in occupational therapy (contemporary clinical practice at the University of Queensland) and a graduate certificate in health science (environmental modifications at the University of Sydney) in 2000. She is a private practice occupational therapist, accredited and qualified access consultant, and PhD candidate at The University of Queensland. Elizabeth has had over 20 years’ experience aiding older people and people with disabilities who require home modifications or alternative housing. She has a history of working in government and non-government agencies that assist people living in a range of housing tenures such as private and social housing and private rental accommodation. Elizabeth provides consultancy services to clients and their families, and to organizations, about housing and home modification solutions. She also completes medico legal work, providing information to the courts in Australia and overseas about the housing and home modification needs of people who have had complex or catastrophic injuries. She provides home modification and universal design education and training to occupational therapy university undergraduate and postgraduate students and to occupational therapy clinicians working in a range of settings in the community, both in Australia and overseas. She is a member of the Australian Network for Universal Housing Design (ANUHD), Universal Design Australia, the Australian Access Consultants Association (ACAA), the Australian Rehabilitation and Assistive Technology Association (ARATA), and Values in Action. Desleigh de Jonge, MPhil (OccThy), Grad Cert Soc Sci graduated in 1978 with a bachelor of occupational therapy from The University of Queensland, completed a master’s in philosophy in 2001, and is currently completing a PhD at this university. She has over 35 years’ clinical experience as an occupational therapist and 12 years teaching and research at the School of Health and Rehabilitation Sciences at The University of Queensland, where she currently holds an honorary research title. Her teaching and research is focused on interventions and outcome measures that recognize client goals and priorities. Desleigh’s national and international reputation in client-oriented analysis of assistive technologies, environmental design, and home modifications has earned her invitations to present at international conferences on assistive technology and home modification services and outcomes in the United States and Australia, and she has been published extensively in national and international journals. Desleigh was on the editorial board of Disability and Rehabilitation: Assistive Technology from 2006 to 2012 and regularly reviews articles for national and international journals. Elizabeth and Desleigh have worked together for at least 18 years to provide training to occupational therapy students and practitioners. They have presented at national and international conferences on home modifications and universal design to a broad range of people from various backgrounds. The second edition of this book is testament to their dedication to equipping occupational therapists to achieve quality home modification outcomes for older people and people with disabilities internationally. CONTRIBUTING AUTHORS Tammy Aplin, PhD, BOccThy (Hons) (Chapters 1, 14) Lecturer Division of Occupational Therapy School of Health and Rehabilitation Sciences The University of Queensland St Lucia, Brisbane, Queensland, Australia Kathleen Baigent, Dip COT, Dip Health Prom (Chapter 15) Occupational Therapist Housing and Homelessness Services Queensland Department of Housing and Public Works Brisbane, Queensland, Australia Ruth Cordiner, Dip COT, Grad Cert Occ Thy (Chapter 15) Occupational Therapist Housing and Homelessness Services Queensland Department of Communities Brisbane, Queensland, Australia Shirley Darlison, BOccThy (Chapter 15) Senior Occupational Therapist Housing and Homelessness Services Queensland Department of Housing and Public Works Brisbane, Queensland, Australia May Eade, BOccThy (Chapter 15) Former Senior Occupational Therapist Queensland Department of Housing and Public Works Brisbane, Queensland, Australia Louise Gustafsson, PhD, BOccThy (Hons) (Chapter 14) Associate Professor Division of Occupational Therapy School of Health and Rehabilitation Sciences The University of Queensland St Lucia, Brisbane, Queensland, Australia Melanie Hoyle, BSc (Psych), MOccThySt, Grad Dip Health Sci, Post Grad Dip Psych (Chapters 6, 9, 10, 13) Honorary Associate Lecturer/PhD Candidate School of Health and Rehabilitation Sciences The University of Queensland St Lucia, Brisbane, Queensland, Australia Andrew Jones, BA, MSW, GCE (Chapter 2) Emeritus Professor The University of Queensland St Lucia, Brisbane, Queensland, Australia Barbara Kornblau, JD, OTR/L, FAOTA, FNAP, DASPE, CDMS, CCM, CPE (Chapter 12) Adjunct Professor Florida Agricultural and Mechanical University Tallahassee, Florida Rhonda Phillips, MPhil, BA, Grad Dip (Chapter 2) Adjunct Research Fellow Institute of Social Science Research The University of Queensland St Lucia, Brisbane, Queensland, Australia Jon Pynoos, MCP, PhD (Chapter 2) UPS Foundation Professor of Gerontology, Policy and Planning Andrus Gerontology Center Director, National Resource Center on Supportive Housing and Home Modification Co-Director, Fall Prevention Center of Excellence University of Southern California Los Angeles, California Jon Sanford, MArch, BS (Chapter 4) Professor, School of Industrial Design Director, Center for Assistive Technology and Environmental Access (CATEA) Georgia Institute of Technology Atlanta, Georgia Bronwyn Tanner, BOccThy, Grad Cert Occ Thy, Grad Cert Soc Planning, MPhil (Chapters 1, 2, 11) College of Healthcare Sciences James Cook University Queensland, Australia Merrill Turpin, PhD, Grad Dip Counsel, BOccThy (Chapter 3) Senior Lecturer, Occupational Therapy School of Health and Rehabilitation Sciences The University of Queensland St Lucia, Brisbane, Queensland, Australia xiv Contributing Authors General Contributors to the Book Catherine Bridge, PhD, Arch, BAppSc, MCogSci Director, Home Modification Information Clearinghouse Research Leader, Community Engagement CRC LCL— Faculty Leadership Associate Dean of Research, ADR Unit Architectural Studies Architecture, Enabling Environments Program Smart Cities University of New South Wales Sydney, Australia Diane Bright, OTR, MSc ID Director, Alliance Therapy/Access Answers Troy, Michigan Ben Burton, PG Dip Surv, LLB idapt planner 3D (part of the idapt Group) Bristol, England Nigel Burton, CIOB, MAPM, MAPS, MCMI idapt planner 3D (part of the idapt Group) Bristol, England Paul Coonan, BDesSt, BArch Registered Architect (Queensland) Director, Queensland Government Accommodation Office Queensland Department of Housing and Public Works Brisbane, Queensland, Australia Richard Duncan, BA, MRP Executive Director, Universal Design Institute Better Living Design Institute Asheville, North Carolina Alan Healey, BOccThy Occupational Therapist, Housing and Homelessness Services Queensland Department of Housing and Public Works Brisbane, Queensland, Australia Mitch Hubbard, BOccThy Director, OT Draw Sales and Support Insighted Pty Ltd New South Wales, Australia Rodney Hunter, FDip, Arch RMIT, Architect (Retired) Managing Director, Rod A Hunter and Associates Pty Ltd T/A Hunarch Consulting Balwyn, Victoria, Australia Rob Imrie Visiting Professor Goldsmiths, University of London London, England Richard Kirk, BDesSt, BArch Registered Architect (Qld) Director, Richard Kirk Architect Brisbane, Queensland, Australia Kate Kirkness BOccThy Occupational Therapist Scope Home Access New England Region, New South Wales, Australia Trish Lapsley, BOccThy Private Practice Occupational Therapist Brisbane, Queensland, Australia Mary Law, PhD, FCAOT, FCAHS Professor Emeritus, School of Rehabilitation Science Co-Founder, CanChild Centre for Childhood Disability Research McMaster University Hamilton, Ontario, Canada Danise Levine, March, AIA, CAPS Architect and Assistant Director, IDeA Center School of Architecture and Planning University at Buffalo Buffalo, New York Rachel Russell, PhD Occupational Therapist Salford University Salford, England Dory Sabata, OTD, OTR/L, SCEM, FAOTA Clinical Assistant Professor University of Kansas Medical Centre Department of Occupational Therapy Education Kansas City, Kansas John P. S. Salmen, FAIA, CAE President of Universal Designers & Consultants, Inc. Silver Spring, Maryland Bevin Shard, Assoc Dip App Sc Building Former Superintendent Representative in Queensland Government Builder North Ipswich, Queensland, Australia Nicholas Smith, Occupational Therapist Housing and Homelessness Services Queensland Department of Housing and Public Works Brisbane, Queensland, Australia Jonathan Ward, BDesSt Architect Australia Amy Wagenfeld, PhD, OTR/L, SCEM, CAPS, FAOTA Assistant Professor Department of Occupational Therapy Western Michigan University Kalamazoo, Michigan PREFACE With the integration of people with disabilities into society, there has been increasing interest in modifying homes to enable them to live independently in the community. The aging population has also raised concerns about how well homes can support people’s health and safety as they age. Occupational therapists have been identified as having the skills and knowledge to assess the modification needs of these clients, including consideration of their current and future requirements and the nature and use of the home environment. However, to be effective, therapists also need to understand the technical aspects of the built environment, design approaches, and the application of a range of products and finishes to determine appropriate modification solutions. This book aims to provide therapists with all the knowledge and skills they need to effectively provide home modification recommendations. In this book, we use a transactional approach to examine the person-occupation-environment interaction and provide therapists with a detailed understanding of the various dimensions of the home environment that impact on home modification decisions. We also examine the context of home modification services and the impact of various demographic, legislative, policy, and service delivery traditions on the development and delivery of home modification services. In particular, we explore the roles and perspectives of each stakeholder in the home modification process, and we present a range of strategies to assist occupational therapists to achieve effective and positive service delivery outcomes. Additionally, we review the current legislative environment and the funding schemes that facilitate service delivery. We examine, in detail, the home modification process, including a review of approaches to evaluating, measuring, and drawing the environment; identifying and evaluating interventions; applying design standards; and reporting and legal issues. To assist the reader in identifying bases for evidence-based practice and topics for future research and theory development, we provide an overview of the literature on evaluating home modification outcomes and review the evidence for home modification interventions. The book concludes with a series of case studies that highlight the application of the home modification process in developing effective solutions for a range of client groups. Our challenge in developing this text has been to provide a textbook that not only presents the theory relating to the person-occupation-environment transaction, but also one that provides therapists with the information they need to examine and influence this transaction. This knowledge has been acquired through years of extensive clinical, educational, and research experience in home modification practice and in training undergraduate, graduate, and postgraduate occupational therapy students as well as novice and experienced practitioners. This book provides us with an opportunity to share our expertise and years of experience of working with older people and people with disabilities to identify their home modification requirements. In addition, our experience as supervising practitioners working in the field has enabled us to identify the essential learning needs of occupational therapists providing home modification services. To date, the small amount of the literature in this field has been based solely on expert opinion. This book emerges from a solid theoretical foundation to provide practical real-life applications and strategies. It also provides a framework for examining the efficacy of home modification practice, shaping future research using evidence in practice. Home modification practice is of interest in many countries around the world today. This book capitalizes on this international interest by focusing on the theory, knowledge, and skills that cross borders. People who require modifications to their homes face similar issues across the world. Similarly, occupational therapists worldwide are concerned with optimizing occupational performance and ensuring that people can live safely, independently, and comfortably in their own homes. This book seeks to address these universal issues while acknowledging the legislative and funding contexts that shape service delivery in respective countries. We have written this book to meet the needs of students and clinicians from a range of settings. It is often challenging for students when translating general theoretical principles, which are outlined in generic occupational therapy texts, into practice. Particularly difficult is balancing the many complexities when working in the home environment—how to work collaboratively with the client to develop a mutually acceptable outcome and how to utilize scientific, narrative, pragmatic, ethical and interactive reasoning to develop an effective intervention. In this text, we discuss how to consider the physical, personal, social, temporal, occupational, and societal dimensions of the home in decision making and provide students with a systematic process for identifying and evaluating home-based interventions. The practical application of theory, xvi Preface legislation, and standards is a strong focus of the information presented and will equip student occupational therapists to work with people with a broad range of disabilities and to implement an occupational therapy process in the home environment. It takes them systematically through the process in a detailed and practical way, which is often not provided in generic occupational therapy texts. This book also supports students on clinical placement and those new graduates who find themselves in practice with foundation knowledge and skills but who are keen to acquire a deeper understanding of how to deal with the complexities they face in various settings. Although students are provided with an overview of knowledge required for practice during university training, it is not until they are faced with real-world practice situations that they understand the importance of the information presented in class and are ready to integrate the detail that is provided in this text. This text also provides practitioners with tools and resources for home modification practice. We have provided several comprehensive case studies to assist novice therapists to understand the range of issues they need to consider conceptualizing solutions. For experienced therapists, we have provided theory and practical detail that draws on research and international literature to affirm and refine their practice. The depth of this book also supports practicing therapists by providing a rich and detailed description of the issues they encounter in day-to-day practice. It draws on the expertise of clinicians with extensive experience in providing interventions in the home and reviews international legislative and service systems, research, and literature to support practice. The text also encourages experienced therapists to develop structures to systematically gather information on the outcomes of home modification practice to ensure good outcomes for clients, to refine occupational therapy intervention, and to build a body of evidence to support this field of practice. This information will assist them in continuous improvement of service delivery and in advocating for the systemic change required to achieve good home modification outcomes for individuals, groups and populations. This book provides a range of resources and tools, and it can be used as a teaching aid to support students, interns, and novice therapists or as a manual for more experienced home modification practitioners. The case studies also expose therapists to scenarios that they may not have encountered and broaden their knowledge base to inform future practice with a range of client groups. The book is unique in that it strongly focuses on the practical application of theory and research in day-to-day practice, working toward enabling people to stay in their homes and communities. In identifying contributors for the book, one of our goals was to draw on the views of experts practicing in the field to bring a breadth of perspectives to the discussion about how to undertake home modification practice. Although occupational therapists might experience limitations in their home modification practice because of a lack of funding or the requirements of the service in which they work, we hope that the theory presented in this book will stimulate interesting and lively thinking and promote discussion about future research and practice in the field. An Instructor’s Manual and a series of presentations, based on the content of this book, has been developed for use by students and clinicians to enable them to further reflect on and learn from their practice. Home modification practice is a dynamic and evolving area of practice, and we see this book as a starting point for the future development of occupational therapy knowledge and skill. We welcome comments and contributions to further inform this area of practice. Elizabeth Ainsworth, MOccThy, Grad Cert Health Sci Desleigh de Jonge, MPhil (OccThy), Grad Cert Soc Sci FOREWORD As our population ages and the number of people with chronic disease and disability increases, the occupational therapist has a major role in creating livable environments that support the everyday lives of people and support those who provide care for individuals that have experienced occupational performance problems. We are very fortunate that the team of Elizabeth Ainsworth and Desleigh de Jonge have again joined forces to edit a second edition of An Occupational Therapist’s Guide to Home Modification Practice. All of us have created living environments that support our daily lives. Many people’s lives have been interrupted by disease, trauma, or disability, and those interruptions need knowledgeable occupational therapists to help them develop strategies and alter their environments so they can care for themselves and engage with their friends and families, work, and engage in their communities. This is the book that employs an occupational therapist’s lens and very specific information to prepare the occupational therapist for assessing client and family needs to create the best possible environments to support independence and participation. The information in this book will be valuable to practitioners who need information to work with families prior to hospital or rehabilitation discharge. The depth of the book will prepare clinicians to work with architectural and engineering firms as a consultant to address the design issues that will support the needs of their client. The book will also prepare the practitioner who wants to work with community planners to work at a population level as more emphasis is placed on universal design and preparation for a normative environment for older adults who will need their mobility, sensory, and cognitive needs addressed without obvious alterations. I am excited that knowledge is evolving in this area of occupational therapy practice that requires a second edition of the book. I want to repeat a reference and comment I made when I wrote the foreword for the first edition 8 years ago. Stegner (1992) asked us to consider space as a container of experiences and remind us that no space is a place until that which happens in it is remembered. Occupational therapists are the enablers that help clients maximize their experiences in their space to move in it, function in it, be safe in it, and, when there are problems, identify and remove barriers that compromise it. The editors and authors of chapters in this book fit the qualifications of extreme excellence. When we look for guidance, we look to people with both knowledge and experience. Occupational therapists in Australia have worked for the Department of Housing serving the Queensland State Government for well over a decade. Many of them are the authors of chapters in this book. As more and more policy worldwide is focused on health, safety, and well-being, occupational therapists bring the unique perspective of fostering social participation to this initiative. Actually, occupational therapists are leaders in this work, and this book gives us the tools to lead in this movement. Reference Stegner, W. (1992). The sense of place. In W. Stegner (Ed.), Where the bluebird sings to the lemonade springs (pp. 199-206). New York, NY: Random House Carolyn Baum, PhD, OTR/L, FAOTA Elias Michael Director and Professor Occupational Therapy, Neurology and Social Work Program in Occupational Therapy Washington University School of Medicine St. Louis, Missouri 1 The Home Environment Tammy Aplin, PhD, BOccThy (Hons) and Bronwyn Tanner, BOccThy, Grad Cert Occ Thy, Grad Cert Soc Planning, MPhil Ô Explain how home environments become places of significance and meaning Occupational therapists play a key role in recommending modifications to the physical home environment, usually to enhance a person’s occupational performance, health, safety, independence, and well-being. Yet as a profession, we have given little consideration to the meaning that this unique context has for our clients or to the impact that these changes may have on their experience of home. Drawing from recent occupational therapy literature and the disciplines of environmental psychology and gerontology, this chapter explores the nature of home and then presents a framework for considering the experience of home, describing the physical, personal, occupational, social, temporal, cultural, and societal dimensions that occur when one engages with or occupies the home environment. The relationship between a person and their dwelling is unique and complex, and it is important that therapists understand and acknowledge the nature of this relationship if they are to successfully negotiate changes. CHAPTER OBJECTIVES By the end of this chapter the reader will be able Ô Describe the role of person-environment transactions in the creation of home as a place of being, doing, becoming, and belonging Ô Describe his or her own personal experience of home, including values and beliefs about home and how this may affect home assessments Ô Outline the various dimensions of the experience of home Ô Utilize these dimensions of experience when exploring client needs, concerns, and requests during the home modification process Ô Interpret how the experience of home may affect occupational therapy practice, in particular, decisions made about changes to the home environment INTRODUCTION: DEFINING HOME “The ache for home lives in all of us, the safe place where we can go as we are and not be questioned.” Maya Angelou (1986). to: -1- Ainsworth, E., & de Jonge, D. An Occupational Therapist’s Guide to Home Modification Practice, Second Edition (pp. 1-15). © 2019 SLACK Incorporated. 2 Chapter 1 The use of the word home in our general vocabulary is so commonplace and unconscious that it almost defies definition. In a sense, it is an archetype—a concept that seems to represent something universal to human nature, as indicated in the quote from Maya Angelou. For centuries poets and songwriters have utilized the nostalgic and emotional response that this one word evokes. If you were asked to write a list of words that reflected what “home” means to you, your response may include comfort, support, intimacy, belonging, family, and safety. Although many of us may have similar responses, the experience of home is a deeply personal experience and concept. “Home” is used to denote a range of places and meanings. It can evoke images of the home we currently live in, a childhood home, a hometown, or a home country. Historically the concept of home has been widely researched, and a proliferation of writing exists within the areas of sociology, anthropology, psychology, human geography, architecture, and philosophy. The concept of home and its meaning in theoretical, social, and cultural contexts has also been the focus of several decades of research in the fields of environmental psychology and gerontology. Although there exists within the literature “pronounced conceptual and empirical diversity” about the meaning of home (Oswald & Wahl, 2005, p. 21), many researchers argue that, in essence, home is a relationship created between an individual and his or her environment in which the individual attaches psychological, social, and cultural significance and meaning to objects and spaces (Dovey, 1985; Hasselkus, 2011; Moore, 2000; Werner, Altman, & Oxley, 1985). In other words, when we talk about a “house” we are speaking of a dwelling place, but when we talk of “home” we are often speaking of a relationship between an individual and a setting (Felix, De Haan, Vaandrager, & Koelen, 2015). Rowles and Bernard (2013) emphasize this critical distinction between physical living spaces such as houses and apartments and home. They propose that a dwelling place is an empty space or location without meaning that only becomes a home when the space is claimed and afforded meaning by an individual or a group through habitation. It is this understanding of home that will be the focus of this chapter. Home as Place Within environmental psychology and gerontology literature, much of the writing about the concept of home is based on the premise that people live in worlds of meaning. An example of this is the idea of space and place. Space is a neutral physical dimension that lacks meaning, whereas places are spaces that have been shaped and transformed by human events and interaction into places of meaning (Hasselkus, 2011; Mayes, Cant & Clemson, 2011; Rowles & Bernard, 2013). Places hold the memories of personal experiences and have personal meaning in the context of ongoing life (Hasselkus, 2011; Rowles & Bernard, 2013). Throughout life, people interact with their social and physical environments and create “meaningful representations of the self within the environment” (Oswald & Wahl, 2005, p. 23). Frankel (1978, as cited in Hasselkus, 2011) suggested that the search for and creation of meaning is an essentially human characteristic. The meanings that individuals give to experiences and contexts are influenced by their own unique needs, goals, histories, and experiences, as well as shared social and cultural understandings and knowledge. In attributing such meaning, people make sense of their life experiences (Hasselkus, 2011; Rubinstein, 1989). The creation of place as a context of personal meaning usually comes about through action. Rowles and Bernard (2013) outline three key elements in the process of transforming space into place. First, there is the use of an environment—usually through repeated patterns of habitual behavior, such as daily routines that make up everyday life. Through the repeated routine use of a physical space, people develop an intimacy with the physical aspects of the home environment—a “physical insideness” (Dovey, 1985, p. 362). Rowles and Bernard (2013) refer to this “insideness” as a cognitive awareness of the physical home environment, and this is the second element in the process of creating place. This “profound sense of familiarity” is often unconscious and only becomes apparent when threatened or destroyed (Dovey, 1985, p. 362). The final element in the process of place-making is the emotional attachment and sense of ownership that develop for the individual through the use and awareness of familiar and known spaces (Rowles & Bernard, 2013). This transformation of space into place can occur across a range of frequently used settings such as a regular table in a frequented café or restaurant or a favorite chair in the local library. However, the home environment is likely to be the strongest experience of place as it involves an “intimate interweaving of person and location over time” (Rowles & Bernard, 2013, p. 11). For many people, the creation of home and emotional attachment to a dwelling occur because of some action on the physical environment, such as personalizing a space by putting up objects of personal value, or creating new spaces, such as a garden. In acting on the environment, a person establishes a history of being “in place” and spaces take on a significance that they previously did not have for the individual. Home, as The Home Environment a relationship, is created through the transactions that occur between individuals and the environment where action results in the creation of meaning (Dovey, 1985). This idea of acting on and being acted upon is at the heart of a transactional approach to people and environments. Person-Environment Transactions: The Heart of Home A transactional view of people and their contexts has been explored by philosophers such as John Dewey (Bunting, 2016) and was adopted by environmental psychologists to explain the relationship between people and their contexts. As outlined in environmental psychology, a transactional approach interprets the interaction between a person and their environment or context as something that is dynamic and always changing. The person and context can only be understood when examined together as a unified system (Werner et al., 1985). Trying to gain knowledge or understanding about the person as separate from the context in which they live and act is a meaningless exercise because the two elements (person and context) are interwoven and interdependent (Altmann, Brown, Staples, & Werner, 1992). Within a transactional approach, the term context refers to much more than just the physical surroundings and encompasses personal, social, cultural, and political aspects. To illustrate this, consider the case of an older woman in a hospital who is being considered for discharge to her home following a stroke. In therapy, she can manage three to four steps easily with the assistance of one person. A pre-discharge visit to the home reveals an entrance with two to three steps. As part of her discharge plan, education is provided to her husband regarding how to aid her when using steps in the hospital. Based on her performance in the hospital, she is deemed to be safe to manage the steps at home and is discharged. When the community health team visits a few weeks after discharge, however, they find that she has not been able to leave the house, as she is unable to use the two to three steps. Why is her performance at home different from what she was doing in the hospital? She has not deteriorated physically, but the context has changed. In the first place, the steps of her home have a slightly higher rise than those in the hospital, creating a greater level of difficulty. This, however, was not the only reason. In the hospital, she was either assisted or supervised by a trained aide or therapist who provided her with encouragement and confidence when undertaking the task of climbing stairs. In her home context, her husband did not feel 3 comfortable assisting her, partly because of a lack of experience but also because assisting his wife was not in line with his cultural expectations. Both husband and wife came from a cultural background where the wife was the one who gave assistance, and this had been her role up until her stroke. He therefore was neither comfortable nor willing to take on the role of her assistant, and she was unable to use the steps without his help. The approach taken in discharging this woman was to assume that her performance (managing two to three stairs) in the hospital would be the same in the home context. A transactional approach would not assume that a person’s performance or behavior would be the same if the environment or context changed. A different context is highly likely to result in a different outcome as the nature of person-environment transactions are dynamic and interdependent. In addition to seeing people and contexts as interrelated and interwoven, a key defining feature of a transactional perspective is the realization that person-environment transactions are both observable and unobservable. Transactions occur at the level of observable actions (activities, tasks, routines, rituals) and through unobservable psychosocial processes by which people evaluate, interpret, and ascribe meaning to their experiences (Werner et al., 1985). This understanding of person-environment transactions has formed the basis of many occupational therapy frameworks that focus on occupational performance such as the Person-EnvironmentOccupational Model (Law et al., 1996), the Model of Human Occupation (Keilhofner, 2002), the Ecological Model of Occupation (Dunn, Brown, & Youngstrom, 2003), the Person-Environment Occupational Performance Model (Baum, Christiansen, & Bass, 2015), and the Canadian Model of Occupational Performance and Engagement (Polatajko, Townsend, & Craik, 2007; Polatajko et al., 2013). Although these frameworks acknowledge the dynamic nature of person-context interactions as well as the “subjective (emotional or psychological) and objective (physically observable) aspects of performance” (American Occupational Therapy Association, 2008, p. 628), in day-to-day practice, occupational therapists are often so focused on the observable, measurable aspects of people acting in their environments that they are at risk of giving little consideration to the unobservable meaning-making processes that occur within the home context. The focus on observable activity is historically embedded within the occupational therapy profession (Hasselkus, 2011). Although finding a universally agreed definition is difficult, occupation has 4 Chapter 1 often been “categorized as everything people do to occupy themselves, including looking after themselves (self-care), enjoying life (leisure), and contributing to the social and economic fabric of their communities (productivity)” (Canadian Association of Occupational Therapy, 2002, p. 34). This focus on “doing” has been “inadequate to address issues of meaning in people’s lives” (Hammel, 2004, p. 296), and recent theorists have challenged traditional understandings of occupation. Occupation: Doing, Being, Belonging, Becoming Wilcock and Hocking (2015) present a conceptual model of occupation in relation to health comprising four elements: doing, being, belonging, and becoming. Doing relates to the observable elements of occupation and is a central and familiar aspect of our professional practice (Hitch, Peppin, & Stagnitti, 2014). Being is the sense of personal existence, supported by beliefs and values. It is the personal aspect of occupation and is often experienced as a quiet time of thinking and reflection (Wilcock & Hocking, 2015). Although linked to doing, being can be independent of occupational engagement, a time to sit with emotions or simply exist (Hitch et al., 2014). Belonging pertains to the social aspects of occupation—being a part of groups, communities, and places. It relates to the idea of being a part of something bigger than oneself, of friendship, affirmation, and mutual support (Hitch et al., 2014). Becoming relates to the notions of change, development, and transformation over time. For some people (e.g., those with a chronic illness) becoming may not always mean improvement; it can also mean maintaining or even managing over time as a condition progresses. Although only briefly outlined here, this view of occupation aligns well with the perspective that views transactions as both observable and unobservable meaning-making processes. As occupational therapists, we observe and assess the day-to-day routines and habits that people “do” as part of their daily occupations in their home environments. It is important to realize that even the most mundane “doing” has elements of “being.” How we structure our daily routines—the way we make the bed, clean our teeth, when we shower—all have some connection to our sense of who we are, or the “being” side of occupation. Even small changes to these elements of “doing” can dramatically affect “being,” “belonging,” and even “becoming.” Within the context of home, a focus on the observable, doing elements of person-environment transactions alone can significantly affect the relationship that exists between a person and his or her home and can detract from the meaning of home to an individual (Aplin, de Jonge, & Gustafsson, 2015; Hawkins & Stewart, 2002; Heywood, 2005; Tanner, Tilse, & de Jonge, 2008). It is therefore essential that occupational therapists working within the home environment and those engaged in recommending alterations to that environment understand the place that is home and the possible impact that they may have on this domain of significant personal meaning. UNDERSTANDING THE EXPERIENCE OF HOME: THE DIMENSIONS OF THE HOME FRAMEWORK For many occupational therapists, their place of work and the focus of their intervention is the client’s home environment. This is particularly true of therapists working in the field of home modifications; however, to date, there has been limited information in our professional literature about this particular context and the impact our interventions have on a person’s experience of his or her home environment. When the home environment has been examined, researchers have referred to the experience of home as occurring across various domains (Hayward, 1975; Sixsmith, 1986; Smith, 1994). Recent work, involving a review of the literature base, and a substantive qualitative study aimed to build upon this earlier work to provide a comprehensive framework for understanding the experience of home. The physical, personal, social, temporal, occupational, and societal dimensions were identified to contribute to the experience of home (Figure 1-1; Aplin, de Jonge & Gustafsson, 2013, 2015). The physical, personal, and social dimensions were previously well-established core dimensions of the home environment (Oswald & Wahl, 2005; Sixsmith, 1986; Tanner et al., 2008). The temporal and occupational dimensions, although not as well described, were also previously defined in occupational therapy, architecture, gerontology and environmental psychology literature as contributing to the experience of home (de Jonge, Jones, Phillips, & Chung, 2011; Despres, 1991; Haak, Dahlin-Ivanoff, Fänge, Sixsmith, & Iwarsson, 2007; Hayward, 1977; Sixsmith, 1986; Tanner et al., 2008). The societal dimension had not been previously clearly described in the literature. This dimension acknowledges the macro environment and its influence on the meaning of home (Aplin et al., 2015) and is a context that the literature had previously been critiqued for its bias in ignoring (Despres, 1991). The Home Environment 5 Figure 1-1. Six dimensions of home. The Dimensions of Home Framework was developed to provide a way to understand each person’s unique experience of home and the various dimensions that contribute to this experience. It seeks to make explicit the various aspects of person-environment transactions by describing unobservable as well as observable aspects of the home environment so that therapists might develop a deeper understanding of each client’s unique and personal experience of home. The relative importance of each of these dimensions will differ from individual to individual and is influenced by the cultural context. Individual priorities will also change over time as life circumstance, values, and roles change. When considering the experience of home for our clients, it is important to understand the dimensions of home that are most important now, how this might change in the future, and what compromises and trade-offs are acceptable. The Physical Dimension The physical home is concerned with the idea of real space—the raw material from which the dweller builds a home. Professional education and training alert occupational therapists to the physical environment, and it is therefore the dimension with which occupational therapists are most familiar. Literature outside of occupational therapy, from gerontology and psychology examining the home environment and its meaning, also identify the physical dimension as important in understanding the experience of home (Despres, 1991; Oswald & Wahl, 2005; Sixsmith, 1986; Smith, 1994). The interconnected nature of the dimensions of home is demonstrated by the physical dimension, as it both influences and is influenced by the other dimensions. Consider the changes that people might make to their home, such as a new kitchen, an extra bedroom, or a deck or patio. While these are physical changes, the motivations for and the considerations required when making these changes reflect the wider dimensions. The addition of another room, for example, may be important to create a study area (occupational dimension) or a room for friends and family to be able to stay overnight (social dimension). A deck may be added to provide an entertaining area to socialize (social dimension). The importance of the physical dimension and its influence on the experience of home is illustrated by the fact that when people describe negative experiences of home, it is most commonly in relation to the physical aspects (Smith, 1994). To illustrate this, consider the case of Janice. Janice lived in a small social 6 Chapter 1 housing studio unit and had previously been close to homelessness. Her experience of her current home, however, was one of discomfort that affected her well-being. The small space meant she was unable to have friends or family over for dinner and unable to have her granddaughter visit and stay overnight. These were dearly missed occupations. At times, she found the ambience of the house unbearable. She felt closeted in the small space. It was dark, and the smell of cigarette smoke had seeped into the brick walls from a previous tenant, affecting her sleep. She described her home as a “big dark coffin.” Janice’s story demonstrates that the physical aspects of home are powerful, influencing our day-to-day comfort and well-being. Most people are aware of this impact, as evidenced by the simple changes many of us make to our homes, such as painting a room, adding new furniture, tidying up, or adding a garden, which often enhances our experience of home. The physical dimension has been conceptualized as having four elements (Aplin et al., 2013, 2015). These are (1) the structure, services, and facilities; (2) space; (3) ambient conditions; and (4) the location of home. Structure, Services, and Facilities The structure of the home refers to the raw structural elements such as the roof, floor, and walls, and the materials and finishes such as flooring and paint. This element of the physical dimension also includes the fittings and fixtures such as taps, sinks, and cupboards (de Jonge, 2011; Sanford & Bruce, 2010). The services and facilities of home include those that make the home comfortable and usable, such as wiring, plumbing, air conditioning, and ventilation (de Jonge, 2011). Other examples of services and facilities include internet access, rubbish removal, and sewage. Seemingly “nonessential” features might include a pool or smart technology features such as automated lights, doors, and blinds. Space The space in and around the home influences what we do and our comfort at home. If you have ever lived in a small home with many people, you will know that it can be difficult to find a quiet or private space. The amount of space is determined by the layout and orientation of structures and furniture within the home (Hayward, 1975; Sanford & Bruce, 2010). For example, a room with windows and doors on every wall affects the usability of the space, making it difficult to fit in all the furniture. Our need for space changes over time. The space required for a single person compared to couple or a family of five or six is different. This need for more or less space is often a driving factor in relocating. For example, a larger home is needed when a family grows or a smaller home is needed when older adults are wanting to downsize. Storage space is another important factor. A lack of storage space often means the usable space in rooms and walkways is reduced to accommodate extra pieces of furniture, equipment, and belongings. Storage space can often be overlooked when considering renovation or modification. Yet, for many people, it is critical, as insufficient storage space often results in clutter that affects the experience of home and subjective well-being (Roster, Ferrari, & Jurkat, 2016). The space needed to store and maneuver equipment can require significant modification and frequently makes relocating necessary. This is often the case for families of children with disabilities, who speak of the arduous decision of whether to modify their existing home or move to something more accessible. If they choose to modify, however, the enhanced space can make important changes to daily life in the home, enabling freedom of movement, enhancing privacy, or facilitating relationships that may have been harmed by a lack of space (Heywood, 2005). Ambient Conditions The ambient conditions include those aspects of the home that can bring comfort and enjoyment, creating our favorite places where we sit in the morning sun or enjoy the view out of a window. Occupations like these of rest and relaxation in an enjoyed place reflect the “being” aspects of occupation that are important in creating a positive experience of home. Ambient conditions include lighting, airflow and breezes, shade, a view, sound, and the weather or the climatic impact on the temperature and comfort of the home (Aplin et al., 2013; Sanford & Bruce, 2010). In the earlier description of Janice’s experience of home, her poor experience was in part due to the darkness and smell of her home. For a number of people, noise can also be a significant barrier to their enjoyment of home, such as noise from a busy road. The significance of the ambient aspects of our homes is often highlighted only when they are lost or negatively experienced. Before I moved into my current home, I lived in a unit that overlooked a vacant large block of land. My view was of trees and birdlife. While I was living there, it was cleared for a unit development. I had not realized how much I enjoyed my view until it was gone. My view was replaced with overcrowded back decks used to store items such as washing lines, bikes, and boxes that did not fit into the small flats. The sounds also changed, from birds and running water to the private conversations of neighbors, children, and cars. The Home Environment Location of Home The location of home relates to its position within the neighborhood, in the street, and on the site. Location is a particularly important physical aspect of home and is often a key priority when we are looking to rent or purchase an existing home or build a new home. Location considerations such as the climate; the topography or lay of the land; and the proximity to family, friends, local services and facilities such as shops, doctors, recreational activities, and transport contribute to our quality of life (DahlinIvanoff, Haak, Fänge, & Iwarsson, 2007; Despres, 1991). Where we live with regard to the climate influences our day-to-day activities and the design, services, and facilities in our homes. When living in a cold climate, heating and insulation are a priority. In warmer climates, ventilation and air conditioning are important, along with outdoor living spaces for socializing. The topography of the area may also influence the activities that can be undertaken. For example, older adults who live in hilly areas may experience limitations to participation if they are unable to walk to the local shop, doctor, or bus stop. Consider the significant impact location would have on your daily life if you had no control or choice over where you lived. In a research interview, Joan and Greg expressed their disappointment over the location of their dwelling. As social housing tenants, they were given little choice in their location, and their house was a great distance from their family and grandchildren whom they had been supporting and visiting regularly prior to the move. The move to a new location resulted in a loss of important social roles and reduced family engagement. The Personal Dimension The personal dimension assumes an emotionally based, meaningful relationship exists between an individual and his or her dwelling place (Dovey, 1985; Moore, 2000). This dimension captures those aspects that transform a physical dwelling place into a home where we experience security, comfort, and a place to belong. Our emotional relationship with home is complex, individual, and linked to our history and values. Four aspects to the personal dimension of home have been identified in the literature and home modification research, including (1) safety and security; (2) privacy; (3) control, freedom, and independence; and (4) identity and connectedness (Aplin et al., 2013). Safety and Security Home should be where we feel most safe; it is a haven from the outside world, a place of security and 7 comfort. For this “safe haven” to exist, a place for retreat, refreshment, and relaxation, we must have control over the home to keep intrusions from the public or “outside” separate to the private or “inside” domain. Our sense of safety and security at home is both physical and emotional. The physical aspects, which contribute to the sense of safety and security, include the physical structure of the home, the functionality and ease of use of the home amenities, and living in a familiar neighborhood with help at hand if needed (Dahlin-Ivanoff et al., 2007; Smith, 1994). For example, some people feel more secure or safe in a brick home compared to a timber home. For others, having security screens and being high off the ground can feel safer. The presence of supportive neighbors, or having neighbors who will “keep an eye on things,” can also make a big difference to how secure we feel in our home and neighborhood. Emotionally, feeling secure in our home is associated with the sense of permanence and familiarity that home can bring (Dahlin-Ivanoff et al., 2007; Sebba & Churchman, 1986; Sixsmith, 1986). Home ownership is a goal for many and reflects the sense of security that comes from having a permanent home—a home that you have control over and where you can make plans for the future. In contrast, many people who rent experience poor security of tenure, requiring them to move if the owner chooses to sell, for example. This lack of secure tenure is recognized as a cause of stress and threat to a renter’s well-being (Lewis, 2006). Continuity and the memories associated with the home are also important in contributing to the sense of security (Dahlin-Ivanoff et al., 2007; Sebba & Churman, 1986; Smith, 1994). Living in one place for many years, feeling a part of the place, and growing old in one place create security and comfort in daily life. Compare this to when you move to a new location, the sense of familiarity and security can be initially lost and daily stress might increase due to the simple things being difficult (e.g., not knowing how to get to the local shop or how to use public transport). Privacy Privacy has been described as having an important contribution to the experience of home (Smith, 1994; Tognali, 1987; Zingmark, Norberg & Sandman, 1995). Home is our most private space, and it is only when we are able to control the access of others, our social interactions, and space that privacy is afforded to us (Gifford, 2002). In our homes, there are both public and private spaces, which can differ for each household and different family members (Sebba & Churchman, 1986). For example, the bathroom may be a shared space, but private for all at certain times. 8 Chapter 1 In some households, bedrooms are private for parents and caregivers but not for children. The significance of privacy within the home is most strongly felt when it is not present, with negative experiences of home associated with a lack of privacy and freedom (Smith, 1994). These include, for example, a lack of control over social interactions, having intrusive flat mates or guests, lacking a space of one’s own, or lacking privacy from the street (Smith, 1994). These experiences are common and illustrate the importance of privacy to achieve a positive experience of home. For adults receiving formal caregiver support in the home, privacy can often be lost, with the home no longer being a private space, but a workplace for staff (Lund & Nygard, 2004). There may be a loss of control over not only who is in the home, but also the control of private spaces and activities, such as bathing and toileting. The impact of support workers on the experience of home can be dramatic. Craig and Susan’s experience reflects this. They were a couple who lived together and had daily paid workers coming into their home to assist Craig with his self-care activities. They described their experience of having paid support workers in the home as feeling like their home had been invaded. They felt their home had become institutionalized and their privacy was continually compromised by the presence of support workers. Additionally, workplace health and safety requirements of the service provider had reduced Craig’s independence, requiring him to use more equipment. Overall, Craig felt as though his home had become more of a workplace than a home. Craig and Susan’s story demonstrates the significance of privacy in the home, as their loss of privacy and control significantly altered their relationship with their home. This loss was keenly felt by Craig, who had lived in his home for over 18 years and which had previously been a symbol of his independence. Control, Freedom, and Independence Privacy is closely linked to our sense of control and freedom at home, as we need control to have the privacy we desire (Gifford, 2002). As a refuge from the outside world, our home is where we should have control and independence, free to make our own choices and actions (Despres, 1991). Control has been described as an important aspect of the experience of home (Oswald and Wahl, 2005; Sixsmith, 1986; Tanner et al., 2008). It is central to our experience, as control over our home and access to ourselves creates privacy, facilitates a sense of security, permits routines and order to develop, and allows us to personalize and create a home that is our own (Despres, 1991; Smith, 1994; Zingmark et al., 1995). For many, the first move out of the family home into your own home brings a sense of control and freedom. You have far greater control and choice over your daily routines, such as when you have dinner, what you eat, and who you invite into your home. You are able to choose your own furniture and decorate and use your home space as you choose. Having a space that you can truly make your own, a place for yourself, is a freedom that many are unable to obtain. For both older adults and people with a disability, home can facilitate independence by providing control over what they do and when they want to do it (de Jonge et al., 2011; Heywood, 2005). It is this presence of control that distinguishes home from other living situations, specifically institutions. Loss of control is what people most fear about living in an institution. In considering the experience of living in an aged care facility for example, control over many aspects of life is lost. The choice of location may be limited, and you may be required to move to an area not familiar to you. You usually can only bring limited personal items and have limited choice in the setup of the room, furniture, or style. It is likely that you will have no choice over your neighbors or roommates, or even who sits with you at dinner. Your daily routine is usually structured by others, including when you shower, when and what you eat, and when you can have visitors. Your activity and mood are recorded, and your life becomes medicalized and monitored. This loss of control in such an institutional setting is in sharp contrast to what most of us experience in our home environment and highlights the important role that control plays in our experience of home. Identity and Connectedness Home as a place of identity and connection is the most personal aspect of home as it is associated with our sense of self. There is a deepening relationship with home that begins with how we personalize our homes through self-expression and extends to the deeper connections of identity and belonging. We express our style, interests, and values through our home; it is a reflection of how we want to see ourselves and how we want others to see us (Despres, 1991; Hayward, 1977; Sixsmith, 1986). Our identity is often reflected in how we decorate and organize our homes. When we first move into a home, we organize our personal items, decorate, paint, or renovate. It is through this process of self-expression that the physical space of a house or apartment begins to become a home (Tognali, 1987). Home as a place of identity represents who we are and is an extension or embodiment of ourselves (Hayward, 1975, 1977; The Home Environment Sixsmith, 1986). This identity is not only associated with the physical home and its reflection of our values and style, but also our routines and the history and memories associated with home (Sixsmith, 1986). Our home connects us to our past. When memories are found in each room and on each corner of the neighborhood, we form an emotional attachment to our home, and our sense of identity becomes connected to place, particularly if we have lived there for some time (Dovey, 1985). This identification with place over time is particularly important for older adults. Rowles (1983) describes this identity connected to place as “autobiographical insideness,” or “being a part of the places of one’s life and of the places being a part of oneself” (Rowles, 2000, p. 531). The connection we feel to our homes is also related to the sense of rootedness and continuity of home (Hayward, 1975, 1977; Heywood, 2005; Oswald & Wahl, 2005; Smith, 1994; Tognali, 1987; Zingmark et al., 1995). Having control over one’s home, a sense of ownership and permanency, and of knowing it is your place in the world leads to continuity (Hayward, 1977). It is only over time that this sense of continuity and rootedness, where home is the center point for life and a place to return to, can develop (Despres, 1991). Home can therefore lead to a strong sense of belonging. The story of my grandfather illustrates this deep connection to home. He lived and worked on the family farm his entire life. He watched his children and grandchildren play in the same places where he grew up. His connection to place extended to the local town, where he had a house to be close to services when his wife was unwell. This deep sense of rootedness to place appeared to create a contentedness in life, the sense of knowing oneself in the world. There was no uncertainty of where to be or what to do, he was sure of who he was and where he belonged. He was grounded and demonstrated a confidence and calmness in life from his connection to place. The introduction of modifications or equipment can be challenging for many reasons, but some of the key concerns can be associated with identity and connection to home. Changes to the home may be affronting because they look “clinical” or “disabled” for example, and this is not how the person sees him- or herself. There can also be important connections and memories associated with furniture, objects, and the design or fixtures and fittings in a room that may lead people to be resistant to suggested changes. For example, a colleague told the story of an older client who needed access to her home. The most important consideration for the client was that the front steps were not altered. Her father had 9 built the stairs and, because of this, they retained strong personal meaning. These concerns related to aspects of the personal dimension can be difficult for people to articulate and reflect those unobservable meaningful aspects of home. It is important that we consider these unobservable aspects when gathering information about the home and in discussions about recommendations as modifications can change these deeply personal aspects that contribute to the experience of home. The Social Dimension The social dimension refers to the emotional environment created by relationships with others. First of all, the social home involves those relationships most significant to the individual, such as a spouse or family who may live in the same dwelling. The social dimension also expands beyond this to include those who enter or occasionally may influence the home, such as relatives, neighbors, friends, and community networks. These relationships and connections within the home are central to the meaning of home (Despres, 1991; Hayward, 1977). Home is often described as the center of family life, a place where children grow, learn, and explore (Somerville, 1997). The childhood home can be a place with strong emotional connections (Mallet, 2004). The social dimension recognizes that home is often where our closest relationships occur. It is the place where these relationships are strengthened and developed, with feelings of love, caring, and intimacy associated with home (Despres, 1991; Hayward, 1977). In our homes, we spend time with family and pets and entertain and socialize with friends. The importance of good social relationships, both within and external to the home, is highlighted when there are negative relationships at home. This can create an atmosphere of unease, where the home is no longer the warm and comfortable place one expects (Sixsmith, 1986). For older adults, living close to friends, helpful neighbors, and family is important for a positive experience of home (de Jonge et al., 2011). For many people, being close to others, especially those who are important in their lives, and fulfilling valued social roles are reasons they stay in their home. Consequently, it can be the most important aspect of home for older adults (Tanner, 2011). An example of this is Betty, reported by Tanner and colleagues (2008). Betty was in her late 60s and lived in a larger, older house. She had great difficulty accessing her home environment, including the front steps and bathroom. Minor modifications had been made; however, due to her functional limitations, she was 10 Chapter 1 unable to properly access the bath area and washed using a basin. When offered new accommodation that was fully accessible within the same suburb less than 1 km away from her current home, she chose to remain in an inconvenient and ill-suited physical dwelling. The reason for this was to maintain her ongoing involvement with the local children who gathered in her front yard each morning to get on the school bus. As she said, By them (the children) being here the bus comes along up the road here, they walk across to catch it and I know they’re safe … It makes you feel you’re doing something even though I’m not really doing anything … to most of the neighborhood children, I’m Nana. It doesn’t matter whether they are related or not. I’m Nana. Even the 18- and 19-year-olds still refer to me as Nana. I’ve got a very large family! (Tanner et al., 2008, p. 203) This valued social role and important social network would have been lost by the move because the new accommodation was not on the school bus route (Tanner et al., 2008). This type of social relationship and connection with others is an integral part of the experience of home, particularly as one ages. Being able to contribute and do things for others has been found to be important in strengthening personal identity and the sense of being a valued part of society (Haak et al., 2007). An absence of relationships with others, however, can result in loneliness and isolation for older people, and home can be experienced as “a prison” (Haak et al., 2007, p. 99). Thus, the location of home with regard to its ability to facilitate and sustain social networks and support valued social roles is an important aspect of the social dimension and consideration for occupational therapists. It is these meaningful aspects of the social dimension of home—having family close, grandchildren being able to visit, being able to provide care for others, and being able to pop in to see a neighbor for a cup of tea and chat—that are essential to the meaning of home for many and contribute to the sense of belonging. The Temporal Dimension The temporal dimension highlights the dynamic and changing nature of home, where occupants’ needs and wants change over time. There are both cyclical and linear aspects to the temporal dimension of home (Werner et al., 1985). The cyclical nature of home describes the familiarity, routines, and order of home, whereas the linear aspects refer to home in the past, present, and future. Home as Routine and Order The home moves through daily, weekly, and annually occurring events and activities. These routines of life and the order of our homes are personal and have cultural and social influences (Dovey, 1985). With these unique influences, each home has its own order and routine, developed from childhood, and changing over time as circumstances and preferences change. This influences the placement, storage, and use of household goods and furniture and the activities that occur in our homes. For example, cooking may occur indoors or outdoors; food may be eaten at the table or on the couch. Further, the routines of home life prescribe the timing and responsibility of household chores and unique family traditions, such as Christmas, Sunday morning breakfasts, and birthdays, which can be markedly different across households. These everyday routines and order of life are most markedly noticed when a change occurs, such as a new resident in the house or physical changes to the home as a result of renovations or a home modification. For some, particularly older adults who have lived in their home for decades, the idea of changing a bath to a level access shower, moving a piece of furniture, or moving to a different bedroom would be unthinkable. So strong is their sense of order and familiarity with what is in place that they often cannot explain why the suggestion is a problem, just that this is the way things have always been and should not change. There is a comfort in familiarity, and when these familiar aspects of the home are combined with an enjoyed ambience and aesthetic, they can have even more significance, making change more difficult. This order to home or the familiarity with the home environment was described by Rowles (1983) as physical insideness, where habitual routines and a familiarity with the home develop over time. This explains how a home environment, which may seem unsafe, is easily navigated and compensated for by older people. Knowing the home environment inside and out is also described by Rubinstein’s (1989) first aspect of a person-centered process: accounting. This physical order of home, as known only by its occupants, is how people can navigate in the dark and know where those little-used items are, such as a flashlight or spare light bulbs. Sociocultural influences affect the routines and order of everyday life. For example, traditionally in Western cultures, men of the household performed outdoor household chores such as mowing and repairs, whereas women undertook cleaning and cooking. There can also be shared norms and social roles within a neighborhood or community. For example, within a neighborhood, there may be The Home Environment shared expectations about garden maintenance or the appearance of homes. These routines and order develop over time and therefore can have more significance to older adults, who have a stronger attachment to homes they have lived in for some time (Rowles, 1983). Home as the Past, Present, and Future Home is not static but rather constantly adapting with the changing needs and preferences of its occupants, as well as external societal influences. Sixsmith (1986) described the home as occurring within a temporal framework, where the meaning and needs of home change through different stages of life, such as childhood, early adulthood, having a family of one’s own, and retirement. This can sometimes mean a change in home, such as relocating to a larger home when having more children or downsizing in later life. Sometimes this can be outside of our control. We may need to move for work or to provide support for a family member. For many older adults and people with a disability, this may be a decision that is forced upon them due to the poor accessibility of their home, a lack of housing, or support services being close by. The temporal nature of home is closely related to the personal dimension, providing a connection to the past through history and memories (Dovey, 1985). The past events of home provide the story of the home, the significance of objects, features, and places within the home that are often invisible to the visitor. The future is also an important consideration as we often imagine future possibilities through the lens of our homes or where and how we are living (Dovey, 1985). Our future plans often include improvements to the home or a move to a new home. For example, we may move to be closer to friends or family, to have more space, or to live at the beach or in the country. In these moves, we aim to facilitate a more positive experience of home. The Occupational Dimension The occupational dimension recognizes the home as a place of doing, where many of the everyday activities of life occur and where some of our most meaningful occupations take place. Literature outside and within occupational therapy highlights the significance of occupation to home and the importance of activities performed within the home contributing to the meaning and value of life at home and “being” in the home (Rowles, 1991). Home has been described as a “center” or “base” of activities supporting work, hobbies, leisure, eating, sleeping, and recreation (Despres, 1991; Hayward, 1977). 11 In occupational therapy literature, the relationship between occupation and home has been examined closely, with home being identified as a place for valued and meaningful occupations (de Jonge et al., 2011; Haak et al., 2007; Heywood, 2005). When we first consider the home from the perspective of “doing,” we can understand the home as a hub of activity. It is where the day-to-day “doing” of our life occurs, such as getting ready for work or school, making meals, cleaning, gardening, relaxation, and rest. This “doing” of the everyday activities of life (e.g., moving from room to room, getting in and out of the house, making a meal, using the toilet and shower, and taking out the trash) should be easily completed without hassle, fear, or frustration. When the “doing” at home is easy, the home is a place of comfort and ease. It is often when we experience difficulties that the value of this dimension of home is highlighted. When a home is being renovated, for example, there is often mud and dirt in the yard, and planks of timber may be put down so you can access the house. A camping kitchen may be set up, and a family of four uses the en suite bathroom while the main bathroom is not available. “Doing” in this environment becomes stressful, may create tension in a family, and may negatively affect the comfort and well-being of those living in the home. Home modifications have been reported to positively affect the ease of “doing” within the home environment for older adults, people with a disability, and their family members (Aplin et al., 2015). The value of this ease to everyday life cannot be underestimated as difficulty in daily activity can create a negative experience of home and affect important aspects of “being.” Consider the story of Bec. Bec lives in a home with her two adult children. She had an above-knee amputation and mainly used a wheelchair for mobility rather than her prosthesis. Her home had three steps, and her children had built her a homemade ramp over the steps. Using this ramp was difficult because it was not fixed, and Bec required the assistance of both her children when using it to leave the house. Because of this difficulty, Bec rarely left her house, mostly staying indoors. Bec spoke of missing the simple enjoyment of sitting in the garden, which was her favorite place to spend time and reflect. Because of the difficulty in daily “doing,” Bec missed the opportunity to just “be” in her favorite part of her home. Bec’s story reflects the importance of both “doing” and “being” and demonstrates that, although being able to do activities in and around the home is important, feeling “at home” or simply “being” at home is equally valuable. The activities performed within the home are unique and personal and contribute to a sense of 12 Chapter 1 “being.” Whether sitting in the garden, reading a book in a favorite room, or reflecting on life as you hang out the washing in the sun, everyone seeks to find a place of reflection or to simply be with oneself. These activities are key to creating meaning and connection and enriching our home life, which contribute to our sense of well-being. We engage in some of our most enjoyable and valued occupations at home. Leisure activities, hobbies, or activities that are important to our well-being and valued roles contribute to our sense of self as we fulfill and experience our identity (Christiansen, 1999). The story of Andrew reflects the need for our homes to enable these meaningful occupations. Andrew worked in music production and used his home as his office with clients frequently visiting. Andrew’s bathroom housed a range of mobility and transfer equipment, which he felt identified him as having a disability and did not reflect his identity as a professional. He modified his home to have an additional accessible en suite bathroom that was able to house his equipment, leaving a bathroom for the use of his clients that was free of disability-related clutter. Occupations also provide a means by which we engage with others within the home (e.g., preparing food and eating together), or even being a contributing member of the household through tidying up, taking the bins out, and working in the garden. These activities build relationships and connections with others at home and create a sense of belonging. People with a disability, who are often unable to access spaces or participate in and contribute to household activities, can find themselves isolated within the home, thus limiting their opportunities to belong. For example, if the kitchen, deck, or family room are inaccessible, people are unable to participate in the daily activities that are part of the fabric of home life. The home is also a place of change and growth, providing opportunities for development, transformation, and, ultimately, “becoming.” People often seek a home to support their idea of their future selves, such as buying a home with additional space for a growing family, a private space for study, enough land to raise animals, or a basement for retirement activities. The home, in this realm of change and growth, can be an important place for recovery; for example, participants recovering from stroke found engaging in everyday activities at home to be important in creating a new sense of fulfillment and “becoming” (Hodson, Aplin, & Gustfasson, 2016). Parents of children with a disability also seek to provide opportunities for “becoming” within the home by creating spaces for the child to grow, explore, develop, and enjoy life (Aplin, Thornton & Gustafsson, 2017). Parents may modify a bathroom to allow the child to develop independence in selfcare activities or provide access to the kitchen to allow the child to make his or her own lunch, building self-reliance and mastery. The home as a place of occupation is complex, and it is difficult to observe the meaning and value that activities have for the individual. As occupational therapists, we are often restricted to focusing on a limited range of “doing” occupations in the home, prioritizing self-care, domestic activities, and community access without a full appreciation of how these contribute to being, belonging, and becoming. Occupational therapists have a responsibility to recognize the activities that are meaningful to their clients and the potential these offer for being, belonging, and becoming. The Societal Dimension Our homes and their meaning in our lives do not occur in a vacuum. Many external factors influence the experience of home, such as rental policies, government housing policies, and the resources we have available to change our homes. The societal dimension has emerged in the literature as an important dimension influencing the experience of home (Aplin et al., 2013, 2015). The societal dimension recognizes the impact of political and economic conditions on the resources and control that people have over their homes (Aplin et al., 2015). For example, the affordability of homes is dictated by a range of external factors that influences where and what type of home we live in. Our home design, and the changes we can make to our homes, is also determined by a range of building codes and government guidelines. The impact of the societal dimension is deeply felt by people who rent. For renters, the continuity of home life is influenced by the length of a lease agreement, and control over the home environment is dictated by the landlord. The experiences of residents living in social housing in the United States who were forced to relocate due to urban renewal policies demonstrate the influence of the societal dimension. Residents described the experience of relocation as traumatic due to loss of community, social networks, and attachment to place (Fullilove, 2004). Societal factors also affect older private renters, who often experience difficulty accessing home modifications, as home modification services are reluctant to invest in rental homes, and landlords may oppose the completion of modifications (Jones, de Jonge, & Phillips, 2008). Government policies significantly impact the experience of home, influencing funding for The Home Environment modifications, the resources available in a local area, and the planned infrastructure and services to the home. Government policies also dictate whether your local area will have suitable community services available to provide in-home support. Further, national standards such as fire safety or electrical and plumbing codes that are prescribed by government influence the design of housing, as does the availability of services involved in modifying, maintaining, and renovating. UNDERSTANDING THE EXPERIENCE OF HOME: CULTURE The dimensions of home described earlier highlight the dynamic and complex nature of it. Within the literature, culture is not identified as a separate dimension or influence; rather, that the experience of home is tied to its cultural context (Lloyd, 2012), with culture shaping each dimension. For example, when considering the physical dimension, the design, layout, space, furnishings, and all aspects of the architecture of the home are influenced by the prevailing culture, which changes over time. Modern home design has changed from a segregated design where the kitchen was a separate workspace and children shared bedrooms to a more communal open floor plan with individual bedrooms (Madigan, Munro, & Smith, 1990). This highlights the cultural changes of the roles of women and children within the home over the last century. The routines and order of the temporal dimension are also largely culturally influenced. Where we place items in our home, the type of furniture we have, and how and when we complete activities in our home are all culturally defined. Culture also influences the societal dimension. For example, home modifications tend to have a lower priority than other social and health service funding, and the funding focus results in interventions that target activities of daily living and safety. This is a reflection of Western culture, where people with a disability and older adults are viewed from a medical model, which prioritizes basic care needs over social and psychological needs. This cultural view of disability also affects the personal dimension of home, with many modifications having a clinical appearance with minimal acknowledgment of aesthetics. The influence of culture can be seen in the literature describing the experience of home and home modifications. The descriptions of home have evolved over time with associated economic, ideological, and cultural changes (Madigan et al., 1990). A large proportion of this body of work is older and 13 has been widely criticized for its White, Western, owner-occupier, family focus, with diverse perspectives lacking (Despres, 1991; Mallet, 2004; Zuffery, 2015). Consequently, it has had a largely positive perspective of home, with meanings focused on family, safety, and belonging (Mallet, 2004). Varying experiences do exist, and although not widely discussed in the literature, home can be a place of fear and abuse (Mallett, 2004). A recent study examining how the lived experience of class, gender, ethnicity, and age constituted meanings of home for men and women in Australia found differing experiences for different cultural groups (Zufferey, 2015). For refugees and migrants, although they felt safe in Australia, there was not the sense of cultural and familial belonging that they associated with home, and that feeling “at home” occurred when ethnicity and cultural backgrounds were not in question (Zufferey, 2015). In contrast, experiences described by middle-class Australians with no recent family history of migration focused on improving housing circumstances, renovations, descriptions of the ideal home, and living in good school zones (Zufferey, 2015). This highlights the importance of the cultural context of home and the need to understand varying experiences of what makes one feel at home. Understandings of home have also been criticized for their lack of viewpoints from Indigenous peoples. For example, it has been highlighted that the Western view of home being a single-family dwelling place and a physical structure is inappropriate for Indigenous Australians and does not recognize Indigenous mobility or land as home (Zufferey & Chung, 2015). It is important that occupational therapists have an understanding of the influence of culture on the dimensions of home as it will enable them to practice in a culturally responsive way. Therapists should value and prioritize their client’s experiences of home and participate in collaborative decision making that responds to the needs of those from a different cultural background than their own. CONCLUSION In this chapter, we have explored the meaning and experience of home drawing from environmental psychology, gerontology, and occupational therapy literature. The aim in doing so was to provide a better understanding of the complex, dynamic, and unique relationship that is “home” and within which the process of home modification assessment and intervention takes place. People live in worlds of meaning and, as such, change neutral spaces such as a house or apartment into places of significant personal meaning, shaping 14 Chapter 1 and transforming them into homes. This transformation occurs through transactions between people and their environments that are both observable actions (activities, tasks, routines, rituals) and unobservable psychosocial processes by which people evaluate, interpret, and ascribe meaning to their experiences. The Dimensions of Home Framework provides a way to capture the elements of the experience of home as a place of significant and unique meaning. These dimensions provide a clear picture of the dynamic, complex, and personal environment of home within which the home modification process occurs. Home modifications have the potential to enhance the experience of home, to provide a place that is comfortable, enjoyable, and facilitates the unique way in which we live in our homes. The potential also exists for home modifications to undermine the meaning and experience of home for an individual or family. When the dimensions of home are not valued or understood in the home modification process, negative outcomes can arise, where clients feel out of control, frustrated, and live in homes that do not meet their needs, making day-to-day activities more difficult or unsafe. This can occur if the physical aspects of accessibility and functionality are emphasized and the personal and social meanings of home held by the home dweller are neglected or disregarded. The challenge for occupational therapists is to first be aware of the complexity of experience that exists in the relationship between a person and their environment and to understand that the meaning of home is not only unique and changing, but also unobservable, not self-conscious, and often taken for granted until threatened. Having an understanding of the dimensions that contribute to the experience of home enables therapists to move beyond a simplistic, functionalist view of person-environment fit to one that embraces the complexity of what home means to an individual and, as such, provide modifications and solutions that benefit the client and enhance their experience of home. REFERENCES Altman, I., Brown, B. B., Staples, B., & Werner, C. M. (1992). 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Journal of Rural Studies, 41, 13-22. Approaches to Service Delivery 2 Bronwyn Tanner, BOccThy, Grad Cert Occ Thy, Grad Cert Soc Planning, MPhil; Desleigh de Jonge, MPhil (OccThy), Grad Cert Soc Sci; Andrew Jones, BA, MSW, GCE; Rhonda Phillips, MPhil, BA, Grad Dip; and Jon Pynoos, MCP, PhD Occupational therapists have long been interested in helping people to live well in their home environment and have become key stakeholders in the delivery of home modification services. Toward the end of the 20th century, a range of home modification services and resources were developed that enabled occupational therapists to access a selection of public and private services to address those needs. A number of factors have influenced the development and delivery of home modification services. This chapter aims to provide therapists with an understanding of the various demographic, legislative, policy, and service delivery traditions that have influenced, and will continue to influence, the development and delivery of home modification services. The chapter will also examine the roles, perspectives, and responsibilities of key stakeholders in the home modification process and provide a range of strategies to assist occupational therapists achieve effective and positive service delivery outcomes. CHAPTER OBJECTIVES By the end of this chapter, the reader will be able to: Ô Describe various demographic, legislative, policy, and service delivery traditions that have influenced the development and provision of home modification services Ô Describe the impact of health, community care, and housing service systems on the way home modification services are delivered and the associated implications for occupational therapists and clients of home modification services INTRODUCTION As the demographics of societies change, governments and service providers seek to plan for and respond to the changing needs of the community. Advances in health care have resulted in increasing numbers of people surviving significant injuries and poor health conditions and living into old age. The soaring costs of health care and the aging population have impelled governments to establish strategic directions that allow older people and people with disabilities to continue to live in their own homes and communities. Policies such as deinstitutionalization meant that people with disabilities were integrated back into the community in the latter part of the 20th century, and “aging-in-place” policies - 17 - Ainsworth, E., & de Jonge, D. An Occupational Therapist’s Guide to Home Modification Practice, Second Edition (pp. 17-40). © 2019 SLACK Incorporated. 18 Chapter 2 reflect a commitment to helping older people, as well as people with disabilities who are living longer, to remain in their communities. Developments in directed care within the disability and aged care sectors in a number of countries have also resulted in people determining where and how money is spent, thus shifting service provision to priorities. Recent demographic changes and policy developments have affected how funding is allocated across a number of service systems—health, community care, and housing—to enable older people and people with disabilities to live safely and independently in the community. Funding allocation and choice and control have also stimulated the development of a range of home modification services. These developments have had a significant impact on the work opportunities for occupational therapists, and while they have traditionally worked within the health system, they are now finding themselves increasingly in demand across a wide range of sectors. Models of health and disability have also had an influence on how health and disability are conceived and funded and, subsequently, how services are delivered. Disability was viewed traditionally as an attribute of the person, which meant that services were primarily focused on treating the person’s disease or disorder. More recently, the social model of disability, which views disability as the inability of society to accommodate the diverse abilities in the community, has shifted the focus from addressing the limitations of the individual to addressing barriers in the environment. Furthermore, antidiscrimination and civil rights legislation, which acknowledges the rights of all people in the community, has led to the development of policies that aim to provide everyone equitable access to community facilities and services. Consequently, revised building standards now ensure that people with disabilities can access public buildings. A growing interest in the design of residential buildings—to enable people to function well in their home environments across their life span—has also led to residential design standards and legislation being developed. DEMOGRAPHICS Increased life expectancy, improved child mortality rates, falling fertility rates, and unprecedented socioeconomic development over the last 50 years have resulted in populations aging in almost all countries of the world, with most people worldwide expected to live beyond 60 years of age for the first time in history (United Nations, 2015; World Health Organization [WHO], 2015). Existing evidence shows that older people contribute to society in many ways, despite existing and misleading stereotypes of frailty and dependence (WHO, 2015). The contribution of older people is, however, significantly dependent upon their health, and although poor health does not need to dominate old age, disability is part of the human condition. At some point, almost everyone will experience temporary or permanent difficulties in functioning, and those who live into old age are at increasing risk of acquiring impairments (WHO, 2015). In 2004, it was estimated that over 1 billion people in the world have a disability, approximately 15% of the world’s population. Between 110 and 190 million adults worldwide had significant difficulty in daily functioning (WHO, 2011). Lower-income countries had a higher percentage of people with a disability than did higher-income countries; however, in all countries, older people had higher rates of disability (WHO, 2011). Data from the U.S. Centers for Disease Control and Prevention reported that in 2013, over 50 million U.S. adults (22.2%) reported having a disability, with mobility impairment being most frequently reported, followed by cognitive impairment (Courtney-Long et al., 2015). In the United Kingdom, there are 11.9 million people with a disability, with 67% of people over the age of 75 years reporting a long-standing illness or disability (Papworth Trust, 2016). In Australia, 18.5% of the population has reported having a disability (over 4 million people), with 14.9% (3,412,500) of the Australian population reporting a core activity limitation (limitation in self-care, mobility, and/or communication; Australian Bureau of Statistics [ABS], 2013). Over half (50.7%) of people over age 65 years report having one or more impairments (ABS, 2015). The incidence of disability is growing worldwide due to both an aging population and an increase in chronic diseases. Population aging has emerged as a key issue for governments globally as the proportion and number of older people in populations around the world increase dramatically as a result of increases in life expectancy and a steady decline in fertility rates (WHO, 2015). In many developed countries, the rise in the birth rate between 1946 and 1964 means that a large number of people are in or approaching retirement. This “wave” of baby boomers is expected to have an enduring impact on Western societies for many decades to come (Freedman, 2007). In 1950, when baby boomers were first counted in the U.S. Census, people aged 65 years and older made up just 8% of the population. In 2010, people aged 65 years and older were projected to represent 13% of the total U.S. population, and by 2030, this figure is expected to reach 19% (Vincent & Velkoff, Approaches to Service Delivery 19 Figure 2-1. Disability and aging. (Reprinted with permission from Bernard Steinman, MS, Research Assistant at the Fall Prevention Center of Excellence, Andrus Gerontology Center USC. Data Source.) 2010). Globally in 2015, people over age 60 years made up 12% of the world’s population. This is projected to rise to 22% by 2050, resulting in significant challenges to the economic, health, and social systems (WHO, 2015). Although there is great diversity in function and health in older individuals, aging is associated with a general decline in physical function, an increased vulnerability to environmental challenges, and a growing risk of disease (WHO, 2015). Aging is frequently associated with loss of sensory function, reduced mobility, declining immune function, and some cognitive changes (WHO, 2015). Older people are also likely to experience more than one chronic condition at the same time (multimorbidity), as well as health conditions that are usually only experienced in old age such as frailty, continence issues, and high risk of falls (WHO, 2015). As a result, daily functional ability and levels of activity may decline. In the United States, for the population of people 65 years and older, 26% reported activity restrictions as a result of disability (Johnson & Wiener, 2006). Although the incidence of activity limitations is not significantly rising for this population in the United States, there is an increasing incidence of activity limitation for people 55 to 64 years since 2000 (Freedman et al., 2013). Figure 2-1 displays the growing rate of disability that occurs when people age. The capacity of people to engage in daily activities and remain living in the community as they age or acquire a disability is not only influenced by individual physical and mental capacities, but also by the quality and nature of their living environment, including social, political, physical, and built environments (WHO, 2015). Relocation in old age is usually the result of a number of interacting aspects of housing and health, including level of dependency in daily activities and the usability or accessibility of the home environment (Granbom, L fqvist, Horstmann, Haak, & Iwarsson, 2014). In 2007, a survey of housing in England identified that only 3.4% of homes had features that made them “visitable” for people with mobility problems, with particular problems associated with older-style housing (Communities & Local Government, 2009). In Australia, many people live in detached houses in the suburbs that are designed for young families with private transport. These dwellings have features that create hazards and barriers for occupants with disabilities or who are aging (Bridge, Parsons, Quine, & Kendig, 2002; Faulkner & Bennett, 2002). Existing housing that is targeted for older people in Australia is also problematic as it often fails to meet accessible design and livability standards (Aged and Community Services Australia [ACSA], 2015). Lack of housing accessibility has been identified as a key indicator for relocating older people to special housing in European countries such as Sweden (Granbom et al., 2014). Housing is generally designed and constructed with little thought to the access, safety, independence, and location needs of the residents, and the need for accessible housing far exceeds supply in most countries (Imrie & Hall, 2001; Liebermann, 2013). Most housing in the United States is inaccessible, and policy priorities in some states can impede the production of accessible housing (Liebermann, 2013; Steinfeld, Levine, & Shea, 1998). Houses with 20 Chapter 2 stairs, narrow doorways and corridors, inaccessible toilets and bathrooms, and limited space “create” disability (Heywood, 2004a; Oldman & Beresford, 2000) and can compromise the safety (Stone, 1998; Trickey, Maltais, Gosslein, & Robitaille, 1993), independence (Frain & Carr, 1996), and well-being (Heywood, 2004a) of older residents and those with disabilities. These design features are costly to modify (Tabbarah, Silverstein, & Seeman, 2000) and can contribute to early institutionalization (Rojo-Perez, Fernandez-Mayoralas, Pozo-Rivera, & Rojo-Abuin, 2001). Because activity limitations are likely to increase as people age, it is not surprising that governments throughout the world are actively engaged in social and health reforms to ensure the ongoing health and well-being of older people and people with disabilities living in aging and unaccommodating homes in the community. LEGISLATIVE AND DEVELOPMENTS AND POLICY DIRECTIONS The emergence of the civil rights movement and antidiscrimination legislation in the 1960s and 1970s resulted in many governments committing to ensuring the acceptance and inclusion of people with disabilities in society. More than 40 nations adopted disability discrimination legislation during the 1990s (WHO, 2011). Legislation such as the Americans With Disabilities Act (1990), Australian Disability Discrimination Act (1992), U.K. Equality Act (2010), and the proposed European Accessibility Act all provide provision for the development of accessibility standards for public buildings, recognizing the role of the built environment in affording people access to community facilities. In the residential sector, the movement toward deinstitutionalization contributed to the emphasis on also creating housing environments that could accommodate people with disabilities, as indicated in the United States by the Fair Housing Amendments Act (1968) and in the United Kingdom by the Lifetimes Home Standard (2010). Deinstitutionalization shifted the focus from providing care in specialized settings to supporting people in their own communities. These policy initiatives have stimulated the development of other policies and services dedicated to building and modifying home environments to move people from congregate care to independent community living. In the United States, the 1999 Olmstead Decision requires that states provide services to older people and people with disabilities in the “most integrated setting appropriate,” resulting in an increase in demand for community-based services and housing (Pynoos, Nishita, Cicero, & Caraviello, 2008, p. 85). The creation of the United Nations Convention on the Rights of Persons with Disabilities (2006) and the ongoing implementation of disability discrimination or antidiscrimination legislation continue to influence policy relating to the provision of accessible housing within various countries. The concern around the world about the aging population and its impact on health and social services has resulted in a number of policy initiatives being proposed and implemented. In the United States, the role of housing in supporting older people in the community is gaining recognition from policymakers (Lipman, Lubell, & Salomon, 2012; Pynoos, Liebig, Alley, & Nishita, 2004). Older Americans have been exerting political pressure through organizations such as the American Association of Retired Persons and are increasingly recognized as having significant voting power (National Institute on Aging, 2006). These demographic, social, and policy changes have stimulated a rapid expansion in industries providing services for older people, including health care, aged care, financial services, and housing. These service industries have also become increasingly vocal, organized, and politically influential (Jones, de Jonge, & Phillips, 2008). Although policy has concentrated on the need for more inclusively designed residential environment, for the most part, the U.S. regulations have applied to multi-unit developments, omitting the vast array of single-family and smaller complexes where older people live. In the United States, there have been attempts to rectify this problem by concentrating on designing existing units and building housing to suit a diversity of users, including older people and people with disabilities in the first instance. The Eleanor Smith Inclusive Home Design legislation has been created to ensure new homes are built with visitable features (to allow someone to visit the home using the no-step entry, sit in the living room, and access the toilet in the bathroom) but has yet to be passed by the U.S. Senate. There are ongoing efforts to make accessible, adaptable, and universal design part of new home design construction through groups lobbying the government’s national construction codes (e.g., Australian Network of Universal Housing Design) and trying to institute voluntary programs with the building sector (e.g., Better Living Design in the United States [http://betterlivingdesign.org/], Livable Housing Australia [http://www.livablehousingaustralia.org.au/], Lifemark Homes in New Zealand [http:// www.lifemark.co.nz/home.aspx], and Lifetime Homes in the United Kingdom [http://www.lifetimehomes. Approaches to Service Delivery org.uk/]. Although there has been a lack of take-up in the new construction arena of the design guidelines created by these organizations, the guidelines are being used by occupational therapists as a major reference when recommending home modifications to residential dwellings. However, the reliance on new building development to meet the needs of older people or people with a disability is tenuous, considering it is widely acknowledged that “development, design and building processes are inattentive to the needs of disabled people” (Imrie & Hall, 2001, p. 3). Of the more than 60 countries that have accessibility legislation worldwide, very few of these consider accessibility to new private residences part of the legislative framework. Even in countries where the concept of “visitability” (basic accessibility features in newly constructed residential homes) is legislated, provisions have been “beset by problems of vagueness and ambiguity and rarely used to their full potential” (Imrie, 2006, p. 15), and it is acknowledged that there is a “long way to go in increasing the number of homes that are accessible and supportive” (Nishita, Liebig, Pynoos, Perelman, & Spegal, 2007, p. 13). Given this situation, there is a clear role for modification of existing housing as a strategy to support community living for older people and people with a disability. In the United Kingdom, a housing condition survey found that only minor works were needed to increase the number of existing accessible houses from 110,000 to 920,000 (Communities & Local Government, 2009). However, in many developed countries, home modification services, although on the increase, continue to lack appropriate recognition at a legislative and policy level (Jones et al., 2008). Home modifications are starting to be considered in policy development as they can make a general contribution to the implementation of aging policy and, more specifically, to health, community care, and housing policy for older people. Home modifications can reduce the need for hospitalization of older people and the demand for expensive in-home and residential aged-care services (Kim, Ahn, Steinhoff, & Lee, 2014; Mann, Ottenbacher, Fraas, Tomita, & Granger, 1999). Home modification can also play an important role in preventive health by reducing the incidence of accidents and falls among older people, reducing the costs associated with home injuries, and reducing the mental and physical strain on caregivers (Heywood, 2005; Keall et al., 2015, Newman, 2003). Modifying the homes of older people can also reduce expenditure on social housing because it constitutes a less 21 expensive form of housing assistance than direct social housing provision (Jones et al., 2008). Home modifications can also help caregivers who form the backbone of personal care assistance for disabled people of all ages. There is even some preliminary evidence that home modifications, in conjunction with occupational and physical therapy, can reduce mortality (Gitlin, 2003). In terms of promoting positive aging, home modification provides a means of facilitating healthy and independent living and allowing older people to continue to participate actively in home and community life. Appropriate housing is fundamental to an individual’s well-being and social participation (Jones et al., 2008), and modifications can play an important role in enabling people to live independently and safely, to actively participate in household activities, and to maintain involvement with family and friends (Aplin, de Jonge, & Gustafsson, 2015). When people choose to remain living in their own home for as long as possible, modifications, along with other community care services, can enable them to age in place. If people choose to relocate, they will have access to more suitable housing and locations, where the homes might be designed or adapted to better suit their requirements. The establishment, design, and delivery of a home modification service varies between countries and, like accessibility in the built environment, is influenced by the type, nature, and direction of legislation and policy in existence in a particular country. Legislation and flow on policy directly affect the way home modification services are resourced, including the amount of funding available, eligibility criteria, and the type and level of modification that is provided (Jones et al., 2008). In many non-Western or developing countries, minimal legislative and policy frameworks are in place and there is minimal welfare support for people with a disability. This lack of legislative support results in few resources or limited infrastructure to support modification of home environments for older people or people with a disability (Imrie, 2006). Though many developed countries have legislation and policy in place that support full participation and equity for people with disabilities and aging in place for older people, the outworking of these principles is complex, and there is often no overarching framework that legislates the provision of home modification services (ACSA, 2015). In countries such as the United States, New Zealand, and Australia, disability issues are considered within a human rights legislative framework rather than a rehabilitative or health framework as in Sweden. 22 Chapter 2 Sweden provides a clear example of how legislative and policy frameworks support consistent and comprehensive home modification service development. Sweden’s legislation in relation to older people and people with a disability establishes a framework for the development of support services, including provision of personal care and home modification services (Anderberg, 2009; Lilja, Mansson, Jahlenius, & Sacco-Peterson, 2003). The Home Modification Law (1992) in Sweden mandates that local authorities provide grants for housing modification services to anyone who has a disability, irrespective of financial or housing situation (Anderberg, 2009; Petersson, Lilja, Hammel, & Kottorp, 2008). Policy arising from the legislation ensures that people with a disability do not bear the cost of reducing environmental barriers to their activities of daily living. Under this legislative framework, home modifications are considered essential elements of health care, and consistent provision of home modifications is supported through policy and practice frameworks (Petersson et al., 2008). As outlined in Chapter 4, human rights legislation, such as the Americans With Disability Act (1990) and the Fair Housing Amendments Act (1968; housing-specific amendments to the Civil Rights Act of 1968; U.S. Department of Housing and Urban Development, 2007), enshrines the right of people with a disability to equitable and nondiscriminatory access to housing and housing services. However, supporting a person with care needs to live in the community very often requires a diverse array of services, including home help, home maintenance, personal care and assistance, assistive technology, and home modifications. Many of these services vie for the same funding, and home modification service does not always receive distinctive treatment (Lilja et al., 2003; Pynoos, Nishita, & Perelman, 2003). In many countries such as the United States, the United Kingdom, and Australia, there is a historic fragmentation of housing, health, and community care in policy areas, with the result that there is a lack of coordinated policy development and consequent service provision to support communitybased living (Faulkner & Bennett, 2002; Heywood & Turner, 2007). This lack of specific acknowledgment of home modification services within policy and the associated poor integration of related areas at a policy level significantly affect the development and funding of home modification services, with public funding for home modification services being limited. In the United States and Australia, home modification service delivery has been frequently described as being less than ideal, with lack of sufficient funding, poor coordination of services, and lack of geographic coverage of services cited as some of the main barriers to effective service delivery (ACSA, 2015; Duncan, 1998a; Jones et al., 2008; Pynoos, 2001; Sorensen, 2012; Tabbarah et al., 2000). Funding and Home Modification Services As indicated previously, funding arrangements for home modification services are directly linked to provisions within the legislation of a particular country. Both Sweden and the United Kingdom have legislation that ensures a specific allocation of funds for home modification services. Within the United Kingdom, the mandatory Disabled Facilities Grant requires local authorities to fund a range of modifications to the homes of eligible people with a disability. However, even within countries that legislate for funding for home modifications, problems exist. Within the United Kingdom, the Disabled Facilities Grant is criticized as being poorly publicized, and the grant is distributed in a reactive rather than proactive way, resulting in poor uptake and lessthan-effective administration and outcomes (Awang, 2002; Heywood, 2005). Unlike Sweden, where funds are available irrespective of individual financial circumstance, in the United Kingdom, funding is limited to people on pensions and with low incomes, and there are differing levels of service across different geographical areas. In both the United Kingdom and Sweden, concerns exist as to the impact of an aging population on the viability of the current schemes, with an increasing gap existing between need and available resources. In contrast, although funding is available for home modifications in both the United States and Australia, it is not mandated by legislation and is generally considered to be difficult to access and insufficient to meet existing needs (ACSA, 2015; Smith, Rayer, & Smith, 2008). Both countries have described the organization and provision of home modification services as a complex “patchwork” of programs (ACSA, 2015; Jones et al., 2008; Pynoos, 2001). Programs are often funded from a variety of diverse sources (federal, state, local, and community), resulting in fragmentation, inflexibility, and administrative burden, and there is an absence of integrated information systems about home modification services (Jones et al., 2008; Smith et al., 2008; Sorensen, 2012). Without a legislative mandate for funding, the cost of home modifications is often borne by the individual (The Scan Foundation, 2010). In both the United States and Australia, even federally funded programs differ from state to state with regard to requirements and resources available, Approaches to Service Delivery and funding is often in a block grant with a range of other essential services related to community care vying for priority (Duncan, 1998b; Jones et al., 2008; Sorensen, 2012). In many countries, such as Australia, the United Kingdom, and the United States, there has been a call to reconsider the current approach to the organization and provision of home modification services. There is a clearly identified need to establish specific policy goals and benchmarks for service delivery to address the great disparity that exists in levels of service provision within various countries (ACSA, 2015; Duncan, 1998b; Jones et al., 2008; Pynoos & Nishita, 2003; Sorensen, 2012). SERVICE DELIVERY SYSTEMS As identified previously, home modification services in many countries have not developed as a planned and cohesive strategy. Various types of services have been developed and delivered through different service systems, each with their own particular goals, approaches, and interventions. This is largely because modification services in many developed countries have been developed and funded through a variety of programs and provided through an assortment of services with various aims. Occupational therapists generally work across different programs in an effort to stitch together a suitable modification solution for each client. It is often difficult for both therapists and their clients to comprehend the range of services available and what each can offer any given individual. Much of this complexity of home modification services is a result of being at the intersection of health, community care, and housing services and policies. Each of these has a different perspective on the goal of home modifications and tends to shape home modification practice through different policies and funding regimes. As a consequence, the roles of stakeholders involved in home modification practice also vary. Although the role, level, and nature of involvement of each key stakeholder differ between perspectives, there is a general consistency in the type of people (stakeholders) who are usually involved in the delivery of a home modification service (Pynoos, Sanford, & Rosenfelt, 2002). The key people involved in the delivery of home modifications commonly include the person (home dweller) and his or her significant others (this can be family, friends, or caregivers); the referring agency; the organization managing and/or providing funding for the service; construction and building professionals; design professionals; and the health professional, most often an occupational therapist. 23 Commonly, home modification programs use a combination of employed staff (such as a program coordinator and employed tradesmen/handymen to carry out minor work) and subcontractors, who are usually licensed professionals (including occupational therapists) operating under contract. The challenge for occupational therapists is to operate effectively within and across programs to develop an approach to home modifications that transcends one particular program. In order to appreciate the impact of the service context on practice and to develop a holistic approach to home modification, each of these service environments needs to be examined. HEALTH PERSPECTIVE Home modifications and home adaptations are widely defined in health care contexts as “any permanent alteration to a building carried out with the intention of making [it] more suitable for a disabled person” (Heywood, 2004a, p. 134). In this context, changes are made to the home environment “in order to accommodate a particular set of human abilities” (Bridge, 2005, p. 2). Like many interventions within health and rehabilitation settings, home modifications are viewed as a means of addressing or correcting problems specific to an individual (Wylde, 1998). Home modifications are provided as part of discharge planning following hospitalization (Auriemma, Faust, Sibrian, & Jimenez, 1999; Lannin, Clemson, & McCluskey, 2011) or within a community health or health-funded in-home service. Within a health context, home modifications are generally recommended by professionals to ensure that an individual with a particular impairment or health condition is safe and independent in his or her home (Auriemma et al., 1999) or to decrease the likelihood of admission to a hospital or care facility (Auriemma et al., 1999; Gitlin, Miller, & Boyce, 1999). Health conditions, which are generally viewed as having a standard presentation and predictable pathology, are managed using practice guidelines or protocols of care. This can result in recommendations focusing on a specific health problem, with less consideration being given to other difficulties, impairments, or aspirations the person might have (Tinker et al., 2004). The primary focus of interventions within the health context is often on remediation or correction of the health condition, with medications and interventions that remediate the condition taking precedence over other interventions. Home modifications, assistive devices, and an array of other interventions that promote the safety 24 Chapter 2 and independence of people with chronic conditions or long-term disabilities are frequently less of a priority within the health system. This factor is often reflected in the priority these services are given, along with the budget allocated for them. Focus of the Health Perspective Within a health perspective, the home environment is typically conceptualized as a discrete physical entity where modifications can be routinely recommended to accommodate specific functional impairments or health-related limitations. Although pre-discharge home visits are acknowledged as important in preventing readmission to hospital, increasing trends toward early discharge have contributed to reduced discharge preparation and decreased numbers of home visits within some health services (Lannin et al., 2011). Frequently, an individual’s functional ability is assessed in a clinical setting, and recommendations for modifications to the home environment can be made without undertaking an on-site visit (Lannin et al., 2011; Pynoos, Tabbarah, Angelelli, & Demiere, 1998). When a home visit is undertaken, the focus is often on potential safety hazards or physical barriers to performing self-care activities. Consequently, the inside of the home—in particular, the bathroom and bedroom, as well as an access point in and out of the home— receives most attention. Typically, modification recommendations in health-based services tend toward nonstructural changes, such as grab rails, shower seats, and other assistive devices (Pynoos et al., 1998; Renforth, Yapa, & Forster, 2004). Although funding programs for major modifications involving structural changes such as widening doorways, modifying bathrooms, and installing ramps, do exist in many developed countries, such modifications are less common because of the design and construction time involved, the financial cost, and the expertise and resources required in attaining these modifications (Auriemma et al., 1999; Pynoos et al., 1998; Tabbarah et al., 2000). Moreover, because of regulatory and budget constraints, there is often little follow-up to ensure that modifications are working effectively (e.g., there might be a problem with faulty equipment or poor installation, or the resident or caregiver might need training in how to use them). With health-based services focused on ensuring that people with health conditions, injuries, or impairments are able to return home from the hospital and be safe and independent when performing self-care tasks in their home, practice and client outcomes are constrained in a number of ways. When function is defined in terms of impairments resulting from a specific injury or health condition, care protocols are developed for each of these. Consequently, the unique needs of the individual are often not well addressed. When people have similar injuries or conditions, the functional limitations—and the impact of these—can vary from one person to another. This generally necessitates a targeted assessment of each individual to assess his or her abilities and the performance of various activities. Furthermore, the particular priorities and preferences of individuals, their personal resources, and the strategies they use to address activity restrictions combine to influence the nature of difficulties identified and how these might be best addressed. With a focus on individual function, less attention is likely to fall on the environment—the challenges it presents when undertaking various activities or how it might be modified to promote further activity engagement. In addition, if performance is evaluated in the hospital environment, this does not acknowledge the interaction between the individual, his or her activities, and the home environment. Consequently, the ability of a person to function on returning home can be either under- or overestimated because the familiarity of, or challenges within, the home environment have not been recognized. Recent concerns about the prevalence of falls among older people living in the community and the resultant costs to the health system have directed attention to addressing hazards in the home environment. With approximately half of falls occurring inside the home (Rogers, Rogers, Takeshima, & Mohammod, 2004), home modifications have been identified as one of a number of risk-management strategies to reduce the number of falls among the elderly (Gillespie, Gillespie, Cumming, Lamb, & Rower, 2001; Keall et al., 2015; Petersson et al., 2008). A number of potential environmental hazards have been identified, including clutter, obstacles, loose rugs, lack of supports, and poor lighting (Clemson, Roland, & Cumming, 1997; Keall, Baker, HowdenChapman, & Cunningham, 2008), and interventions are focused on removing these to promote safety. Falls risk and hazard identification have provided the foundation for many health-funded initiatives, and there is some evidence that broadly targeted programs aimed at removing environmental hazards in the homes of older people in the community reduce the incidence of falls (Keall et al., 2015). Success has been achieved with tailored programs targeted at the specific needs of people with increased falls risk, such as the frail elderly (Cumming et al., 1999) and those who have fallen previously (Close et al., 1999; Nikolaus & Bach, 2003). This suggests that the individualized and holistic approach to environmental Approaches to Service Delivery interventions favored by occupational therapists is likely to be more effective in reducing falls than those focused on hazard reduction alone (Gillespie et al., 2012). A meta-analysis of fall prevention interventions also indicates that multifactorial interventions including medical risk assessment and management, physical activity, and home assessment and modification are likely to produce the largest reduction in falls among those at moderate to high risk (Gillespie et al., 2012; Rubenstein & Josephson, 2006). In this scenario, occupational therapists play a role as members of an interdisciplinary team. Regardless, as a profession, occupational therapists need to provide more evidence of the efficacy of their unique approach if their services expect to benefit from the funding being made available to reduce the incidence of falls among the elderly. Traditionally, home modification services within health systems have largely focused on physical impairments. This has resulted in well-developed assessments, designs, resources, and services aimed at addressing physical impairments. Somewhat less attention has been given to addressing the sensory, cognitive, emotional, and social changes associated with aging. With the high prevalence of vision and hearing impairment among older people, there is a growing interest in making the home environment more manageable and safe for those with sensory impairments (e.g., using modifications such as enlarged fittings, enhanced lighting, amplification devices, auditory signals, and contrasting colors; Auriemma et al., 1999; Rooney et al., 2016). Although it is important to address existing impairments through environmental interventions, further attention also needs to be directed to creating emotionally and socially supportive home environments that make it easier to carry out daily activities in the home. This would help to promote older people’s self-confidence and self-esteem (Pynoos et al., 1998), and it would ensure that they maximize their engagement in daily activities, thus optimizing their general health and well-being. As a result of our less well-developed understanding of sensory, cognitive, emotional, and social issues in the home and associated environmental interventions, there are fewer assessments, designs, resources, and services dedicated to addressing these concerns within the health arena. Consequently, therapists can struggle to adequately address these needs with their clients, who, as a result, continue to struggle to manage in their home environment. With the aging population and the rising incidence of dementia (Plassman et al., 2007), there is a growing interest in supporting older people with cognitive changes to remain living safely and 25 independently in the community (Giovannetti et al., 2007; Struckmeyer & Pickens, 2015). The focus of health interventions is also to assist the caregivers, who are often responsible for supervising and assisting people in daily activities and managing those who are difficult or dangerous (Colombo, Vitali, Molla, Gioia, & Milani, 1998; Gitlin & Corcoran, 2000; Silverstein & Hyde, 1997). Home modifications might include nonstructural changes, such as reassigning rooms, installing fencing and gates, fitting safety locks on doors and cupboards, adding outlet covers and night lights, and improving lighting. A range of electronic devices has also been used, such as smoke detectors and movement monitoring and alarm systems (Silverstein, Hyde, & Ohta, 1993). Occasionally, structural changes such as an additional bathroom or bedroom are undertaken. Key Stakeholder Roles and Perspectives Within the health perspective, the role of the occupational therapist and associated outcomes for clients can be constrained through the health service/organization’s policies and funding systems. The role of the occupational therapist within home modification service delivery has been promoted as one of understanding and meeting the individual’s goals so that the individual is enabled, enhanced, and empowered to make choices, solve problems, and maintain control (Pickering & Pain, 2003; Pynoos et al., 2003). However, the immediate focus on discharging the person from the hospital into a safe environment can mean that the long-term suitability of the home environment is not adequately addressed (Lannin et al., 2011). Minimizing safety concerns and maximizing independence in self-care activities can often divert therapists’ attention from determining the real extent of risk and maximizing engagement in meaningful occupations in the home. A focus on mobility and access into and within the home can result in inadequate attention being paid to access to the yard, neighborhood, and community. In addition, issues of personal concern, such as security, managing the ongoing maintenance of the home and garden (Jones et al., 2008), the social acceptability of the modifications, or the impact of the modifications on the meaning or value of the home (Heywood, 2004b), tend to not be acknowledged or are undervalued. Within the health perspective, the home dweller may be in the role of “patient” and as such is seen as a passive recipient of services rather than as an active participant in decision making. Inclusion of the home dweller and significant others in decision making about changes to the physical environment is of paramount importance. The issue of participation and control over the modification process is 26 Chapter 2 one that has been identified as a key area in the literature (Heywood, 2004b, 2005; Johansson, Borell, & Lilja, 2009; Pickering & Pain, 2003; Tanner, Tilse, & de Jonge, 2008). Poor outcomes in home modification services have been identified as being related to poor understanding of the individual’s need and limiting assessment to a functional understanding of the person without consideration of issues of control, participation, or the needs of significant others (Heywood, 2004b). It is essential that the occupational therapist be committed to a participatory decision-making process. The occupational therapist needs to ensure that the home dweller is actively engaged in the decision making around the intervention planned. Communication needs to be clear and choices around options provided (Heywood, 2004b). This approach will help reinforce the meaning of home as a primary territory with a perceived degree of personal control (Smith, 1994; Tanner et al., 2008). If the person is accustomed to a passive role with health care or other professionals, the home dweller may not feel confident to voice his or her opinion or to take an active role in decision making. The occupational therapist needs to be sensitive to this dynamic and support the person to give his or her views and opinions, not only in his or her own interactions but in interactions between the person and other stakeholders, including other health professionals, discharge planners, and building professionals. Because the occupational therapist is the person who gathers assessment information about the individual, he or she is often well placed to negotiate better outcomes for an individual. In summary, health care systems, policies, and programs are key contextual elements in developing and providing home modification services. Within this context, modifications largely have been associated with discharge planning following hospitalization, with care of people with disabilities or chronic health conditions in the home environment (including the older people with dementia and their caregivers), and with fall prevention. Though practices vary widely from one service to another, there are a number of prevailing characteristics of the health approach to home modifications. The primary focus is often on a particular health problem or condition, with home modification perceived as one of a suite of interventions designed to remediate the problem or address dysfunction. Key concerns center on safety and the capacity to independently perform self-care activities. Environmental interventions are generally minor, nonstructural modifications, and structural changes are used infrequently. With a focus on individual function, health-based services are less concerned with the long-term suitability of a residence; the social acceptability of modifications; and issues of identity, meaning, and lifestyle. The occupational therapist’s role may involve promoting the home dweller as an active rather than passive participant in decision making, ensuring optimal home modification outcomes for the individual and their significant others. Although there is a growing appreciation of sensory, cognitive, emotional, and social issues and associated environmental interventions, assessments, designs, resources, and services aimed at addressing physical impairments are more highly developed. New technologies present increasing opportunities to assist, as well as manage and monitor, people in their homes; however, these need to be used judiciously to ensure they do not encroach on the rights and autonomy of the householder. COMMUNITY CARE PERSPECTIVE In recent decades, home modifications have emerged as one of a range of services provided by community care agencies. Others include home nursing, delivered meals, home help, transport, shopping assistance, allied health services, and respite care. Community care services are designed to directly assist older people and people with disabilities to remain living in their own homes and communities, as well as support their families and caregivers in providing care (Steinfeld & Shea, 1993) and reduce admissions to residential care (Duncan, 1998a; Stone, 1998). Modifications and associated services are seen as being essential in delaying reliance on personal assistance and avoiding an unwanted move (Gitlin et al., 1999). Within this service environment, home modifications have been defined as “adaptations to living environments intended to increase ease of use, safety, security and independence” (Pynoos et al., 1998, p. 3). Although the main focus of health contexts is on home modifications to ensure safety and independence, the community care sector also provides maintenance and security services, acknowledging that older people and people with disabilities also need to maintain the dwelling and be safe and secure in their homes in addition to managing activities in and around the home. The way in which these services are delivered varies considerably from one location to another. However, modification assessments are generally undertaken by professionals working in either health or social services (Klein, Rosage, & Shaw, 1999), whereas maintenance and security assessments can be undertaken by a wide variety of individuals, Approaches to Service Delivery including handymen, tradespeople, building contractors, social service organizations, and families themselves (Pynoos et al., 1998). Although the modification work is primarily contracted out to builders and other tradespeople, some service providers employ their own trade staff. Some of these providers might be familiar with making modifications; however, many are untrained, thereby requiring specific instructions from the occupational therapist regarding what and where to install them. A range of strategies is used in the community care context to enable people to remain living in their own homes. These strategies have been classified as being additive, subtractive, transformative, and behavioral (Pynoos, Steinman, Nguyen, & Bressette, 2012; Steinman, Nguyen, & Do, 2011). Additive modifications are those in which supports and structures are added to the home environment. These can be major changes such as ramps, lifts, and stepless showers or minor ones such as additional lighting, grab rails, or special equipment or assistive devices. Subtractive modifications are where items are removed from the environment to improve safety, such as the removal of clutter or hazards. Transformative modifications change or reconfigure existing structures and spaces in the home such as the reorganization of kitchen utensils and rearranging lounge furniture to improve access, as well as structural changes such as widening existing doorways or lowering countertops. Behavioral adjustments alter the way in which activities are carried out in the home environment such as using a shower recess instead of a plunge bath to improve safety (Pynoos et al., 1998). In the United Kingdom, housing modifications or adaptations are classified as an assistive technology, defined as “any device or system that allows an individual to perform a task that they would otherwise be unable to do, or increases the ease and safety with which the task can be performed” (Cowan & Turner-Smith, 1999, p. 235). However, assistive devices are typically mobile and are not attached to the structure of the house (Pynoos et al., 1998), whereas home modifications are generally permanent, secure, and fixed in place. Assistive devices are sometimes preferred by clients and professionals, especially when they are uncertain about how to undertake structural changes (Pynoos et al., 1998; Steinfeld et al., 1998), when they are reluctant to commit to a permanent or costly modification (Pynoos & Nishita, 2003), or if they are renting and are uneasy about making changes to which a landlord might object or require them to remove if they leave. 27 Focus of the Community Care Perspective In community care, the focus shifts from the specific performance limitations of the person to an analysis of the fit between the person and his or her home environment. Lawton and Nahemow (1973) were the first to recognize the challenges, or “press,” provided by the environment and proposed that these were unique for each individual. Subsequently, practice models developed over the past decade have highlighted the limitations of focusing on either the person or his or her impairments or on the barriers in the environment, promoting the value of examining the interaction between the person and the environment (Rousseau, Potvin, Dutil, & Falta, 2001). The use of these models in the community sector also encouraged a shift from assessing narrowly defined self-care activities to examining an individual’s capacity to manage in the home and the community (Peace & Holland, 2001). The focus is on establishing balance between environmental demands and individual competencies and adapting the home environment to match the capabilities of the person (Gosselin, Robitaille, Trickey, & Maltais, 1993; Rousseau, Potvin, Dutil, & Falta, 2002). In this approach, difficulties experienced by the person in the home are observed and analyzed, and identified environmental challenges are then addressed using environmental interventions tailored to meet the particular needs of the individual. The role of the environment in supporting competence or creating incapacity is also reflected in the way in which the global view of disability has altered in recent decades. Rather than simply viewing disability as a problem with an individual, disability is now seen as “a dynamic interaction between health conditions and contextual factors, both personal and environmental” (WHO, 2011, p. 4). This “biopsychosocial model” of disability is presented as a “workable compromise” between medical models that focus on the person as disabled and social models that focus on society as the cause of disability (WHO, 2011, p. 4). Problems in the home result from an inability of the home environment to accommodate the changing capacities of the person (Cowan & Turner-Smith, 1999; Tinker et al., 2004). Older people have been described as being “architecturally disabled” by inadequate design (Hanson, 2001), leading to an emphasis on reducing environmental barriers in the homes of older people and in residential design generally. However, the biopsychosocial model of disability does not restrict its view to purely physical aspects of the individual’s immediate environment. 28 Chapter 2 It also acknowledges the impact of society on an individual’s capacity to engage in activities identifying “support, relationships, attitudes, services, systems and policies” as environmental factors that can facilitate or hinder an individual’s participation (WHO, 2011, p. 5). Independence is a central concept in community care, both generally and with respect to home modification services (Clapham, 2005). It is commonly understood in this context to mean that the person is able to live at home rather than in residential care. Occupational therapists generally conceive independence to be the ability to perform a task without assistance; therefore, they seek to provide training or a device or to modify the environment in order to remove the person’s reliance on others. However, for many people, independence holds a more nuanced association, including “being able to look after oneself,” “not being indebted to anyone,” and “the capacity for self-direction” (Clough, Leamy, Miller, & Bright, 2004, pp. 119-120). Independence reflects a “sense of being in control with respect to family, friends and formal caregivers” (Heywood, Oldman, & Means, 2002, pp. 55-57). It is possible, then, that some people might consider their independence enhanced by the assistance of others, a home modification, or a move to residential care where they have ready access to caregiving, providing they retain control of when and how assistance is provided. In reality, this paradigm acknowledges the interdependence of people. Place of Home Modification Services in Community Care Although home modification services have been established within community care systems in many countries, these services tend to be underdeveloped relative to other community care services as a result of limited funding and scarcity of trained providers (Pynoos et al., 1998). Because community care systems tend to prioritize those at risk of being institutionalized, services are prioritized and directed toward those defined by the service as having the fewest resources and the greatest level of need (Clapham, 2005). Consequently, health and safety concerns take precedence over independence and quality-of-life issues (Mann, Hurren, Tomita, Bengali, & Steinfeld, 1994), leaving home modification services fighting for resources in a system that provides so many essential and costly support services. Although modifications are seen as part of the range of interventions with the potential to ensure safety and independence and assist people to remain in their homes and community, in reality, it is less developed than the other services in the community care sector where providers are more familiar with the use of formal supports. The use of modifications is also hampered by a lack of understanding of the benefits of environmental interventions, restricted access to services and personnel with appropriate expertise, and the limited budgets available for such interventions (Sorenson, 2012). Balancing priorities and funding across maintenance, security, and modification services is also problematic when these services are competing for their share of inadequate budgets. Key Stakeholder Roles and Perspectives Within the community care sector, a key stakeholder is the administrating or funding organization that is often responsible for the coordination of a range of community services, including home modifications. Many organizations that administer home modification services are by nature bureaucracies; that is, organizations based on rationalism, hierarchy, and impersonal rules. Such organizations tend to have a centralized system of policy and procedures that reflect a response to a “typical,” situation, and this approach to meeting individual need can result in negative outcomes (Crozier, 1964, cited in Dovey, 1985, p. 56; Heywood, 2004a; Sakellariou, 2015; Tanner et al., 2008). As well as being limited in their response to individual need, the bureaucratic organization model is nonparticipatory by nature, with little scope for service users or recipients to shape or determine service delivery (Awang, 2002). The majority of service organizations have policies and practices regarding eligibility criteria, which also define the population they are able to serve and the limit of their service. For example, an organization may decide to use allocated funds for minor modifications only and in this way provide service to a larger number of people than if they did major, more costly modifications. This, however, will place limits on the amount and type of modification that can be recommended. For the home dweller or householder, dealing with a bureaucratic organization can be overwhelming, often due to the complexity of forms, people, and processes that need to be negotiated to get an outcome (Awang, 2002). The “typical situation” approach of bureaucracies also means that, in the application of rules and regulations, the individual becomes invisible and may not be granted power to influence outcomes (Sakellariou, 2015). There is an inherent tension between the bureaucratic organization delivering the home modification service and the service recipient around the issues of power and control. Culturally, a bureaucracy is service-oriented Approaches to Service Delivery and inflexible, with little scope to allow users or recipients of the service control or power in decision making (Awang, 2002). These negative experiences of organizational service delivery can undermine the experience of home for the person and be profoundly disempowering for him or her, resulting in negative health effects (Dovey, 1985; Heywood, 2004a; Sakellariou, 2015). Coordinating the variety of services and service providers required for the successful implementation of home modifications remains a prevailing issue (Pynoos, 2004; Steinfeld et al., 1998). Modification services require health and social service providers to work with tradespeople, which can be complex given the differences in roles, knowledge, language, expertise, and expectations. Miscommunication and mistrust prevail if the various stakeholders are not afforded an opportunity to share knowledge and develop an understanding of each other’s roles, language, expertise, and expectations. Community care services, which have invested in the development of trained home modification personnel, knowledge, and resources, are well placed to achieve good client outcomes. Services that require health and social service providers to contract out modifications to the private building sector are likely to experience difficulties in delivering high-quality services and outcomes. This is because of the difficulties in locating contractors with the necessary expertise, communicating requirements, and overseeing the work being undertaken. In the community care sector, occupational therapists have access to a range of services and interventions to assist their clients to remain in their homes and communities. However, the ease with which these resources can be accessed depends largely on the structure of the funding and service system. The development of modification services over the past decade has resulted in a growing body of knowledge and an increasing number of designs and products being available. Recognition of the role of the environment in “disabling” people has resulted in the development of occupational therapy models and practice approaches that address the complexity of the interaction between the person, activities, and environment. Occupational therapists are unique in their understanding of the activity engagement and the role of the environment and stand out among other health professionals in their capacity to provide home modification services. An understanding of environmental fit allows therapists to move from addressing problems to creating enabling homes and communities that recognize the uniqueness of each person and his or her environment. However, restricted funding and service policies 29 often constrain practice in addressing essential issues and make it difficult for therapists to promote activity engagement within the home and community. For example, often the priority in hospital discharge is getting a person out as quickly as possible. As pointed out earlier, even though an occupational therapist assessment and home modification might be essential, these often do not occur, if at all, until the person is already back in his or her home, struggling with both his or her own limitations and that of the environment. It is important that, wherever possible, the organization’s restrictions and limitations do not, in turn, compromise the assessment process for the occupational therapist (Heywood, 2004a). The occupational therapy assessment should reflect as much as possible a full understanding of the needs of the home dweller rather than being restricted to what the organization will or will not fund or what organizational processes typically promote. Because of their focus on the individual, therapists are well placed to speak up for the individual and promote a full understanding of his or her needs within the organizational framework. If necessary, the occupational therapist should push the boundaries of bureaucratic administration if it is important to address the needs of the individual. It is also important that the home dweller be fully aware of the options that are available to him or her and be informed of ways his or her needs can be met through other systems or services. Use of Technologies Increasingly, the potential of a range of new technologies is being recognized to help older people and people with disabilities to live safely in their homes and to assist in monitoring and managing people with complex health conditions in the community (Colombo et al., 1998). Mainstream technologies such as mobile phones, sensors, passive alarms, and security cameras are being used to enhance the safety and independence of older people (Tinker, 1999), and dedicated environmental controls, robotics, and communication and security technologies are being developed and integrated into the design of “smart homes” (Cowan & Turner-Smith, 1999; Tinker et al., 2004). Increasingly, smart technologies are being used to help people remain living safely and independently in their own homes. Smart technologies have the potential to decrease adverse incidents in the home and to allow health conditions to be managed at home rather than in a health setting. These technologies support people in their home environment, and the potential to save overall health care costs makes them attractive to those who fund services. 30 Chapter 2 Security and home automation systems such as security cameras, automatic door openers, keyless entry, remote window and curtain opening, automated lighting sensors, etc. afford older people and people with disabilities safety and security and provide them with a means to manage services, devices, and appliances within the home environment. People can regulate the temperature, lighting, electrical outlets, air conditioning, and security of homes, and answer and open front doors through connection with intercoms via an app on their smart phone. Alarms, automated detectors (e.g., falls and seizure), and emergency call devices/systems provide people with access to assistance as required. People with complex health conditions can use devices, sensors, administration aids, and apps at home to monitor vital signs, identify changes in performance and/or behavior, and work with remote health care teams to prevent an adverse event. Medication management devices can also ensure people take their medications regularly and send alerts if medication is not taken. Reminder and scheduling technologies can also be used to prompt people through scheduled activities and specific tasks such as their self-care routine in the bathroom, cooking, and collecting the mail. A range of high- and low-technology assistive devices can also assist people in daily activities by reducing the impact of impairments and conditions/ symptoms and enabling greater participation. However, these technologies can often be costly to purchase and support. Without a significant injection of funding into the already strained reserves of in-home services, they are likely to be overshadowed by low-technology options or remain a wonderful resource that is difficult to access. When budgets are allocated and prioritized, how will intangible and client-related benefits of environmental modifications hold up against the tangible financial benefits of in-home monitoring? These technologies also raise several ethical dilemmas (Tinker, 1999). Whose needs are being met through these technologies? What is their effectiveness in reducing the cost of health care delivery? What impact will they have on the concerns of well-meaning relatives who want assurance that their elderly relative is safe? What role will they play in enabling people to stay safely in their home environment? Homes are a place of privacy, and intrusive technologies could be resented by residents and negatively affect the meaning of home (Heywood, 2004a). Furthermore, there is the possibility that people would be at risk of increased isolation if they are managed and monitored remotely. On the positive side, new communication technologies could increase compliance with drug regimens and summon help quickly if a person has fallen. They can also put older people and people with disabilities in touch with people who otherwise may be unavailable to them and provide reassurance that problems will be relayed quickly to family members or service providers who can respond. Although there are many complexities to consider with the advent of these technologies, occupational therapists are well placed to implement them effectively and balance the other needs of the householder with the potential benefits of ongoing monitoring. In summary, a key value underpinning community care and occupational therapy services is promoting independence. However, although these services define independence as enabling people to remain living in their own homes or reducing reliance on others for daily tasks, older people and people with disabilities generally think of it in terms of personal control. Recent developments in the community care sector have provided significant impetus for the development of home modification services. Although home modification services remain relatively underdeveloped when compared with other community care services, they have been established as being a legitimate part of the repertoire of community care services designed to enable people to remain living in the community. In community care, additive, subtractive, transformative, and behavioral modifications are closely associated with maintenance and security services. Administration and coordination difficulties persist in working across health, social, and construction sectors, and good intersectoral collaboration is likely to enhance the development of high-quality modification services. An understanding of the interaction between people and their living environment allows modification interventions to be tailored to the individual’s unique individual circumstances and promote his or her active participation in the home and the community. HOUSING PERSPECTIVE Many people make changes to their home environments quite independent of health and community care systems. It is therefore useful to examine how people use generic services to make changes to their housing, commonly known as housing adjustments, to meet their changing needs and preferences. Throughout life, people encounter changes that necessitate them relocating or altering their existing housing—whether it is the composition of their family and household, their health and employment status, or their interests and lifestyle. Consequently, people access a range of housing services that thrive Approaches to Service Delivery on assisting people to accommodate changes in their circumstances. Occupational therapists often need to work with these services or work with people who use these services to address their ongoing housing needs. In addition, therapists are increasingly recognizing a role for themselves within a diversity of housing services. Consequently, developing a broader view of housing adjustments can assist therapists in understanding home modifications as part of a continuum of housing arrangements and anticipating where occupational therapy can contribute to the delivery and further development of housing services. From a housing perspective, people alter their housing or relocate when their existing home no longer meets their changed circumstances or lifestyle or no longer reflects their tastes or projected image or identity. Though this view encompasses the notion of “accommodating a particular set of human abilities” (the health perspective; Bridge, 2005, p. 2) or “adapting living environments to increase ease of use, safety, security and independence” (the community care perspective; Pynoos et al., 1998, p. 3), it is more universal in scope in that it recognizes that people make many different types of changes to their housing throughout their lives. These changes are referred to in the housing literature as housing adjustments (Howe, 2003; Masnick, Will, & Baker, 2011), housing careers (Beer & Faulkner, 2008; Kendig, 1984), housing pathways (Clapham, 2005), or housing transitions (Beer & Faulkner, 2011). Housing decisions made in response to a health condition or changing capacities are unlikely to be made in isolation and are likely to incorporate a range of goals. Housing adjustments were first described by Peace and Holland (2001) as the actual changes that individuals and households make to their housing in response to their particular needs, circumstances, and preferences at any point in time. Housing careers is a term that is used to describe the sequence of housing adjustments that an individual or household makes over a lifetime. It is recognized that widespread societal changes, including demographic changes and improvements in the standard of living, are transforming established patterns of housing careers in many countries (Beer, Faulkner, & Gabriel, 2006). Housing pathways describe the “patterns of interaction … concerning house and home, over time and space” (Clapham, 2005, p. 27). The concept of housing careers primarily focuses on changes in the consumption of housing related to factors such as age, household structure, income and wealth, employment, and disability, whereas the notion of housing pathways places emphasis on the social meanings and relationships associated with housing 31 (Jones et al., 2008). The pathways perspective views housing as being more than a set of physical characteristics (i.e., space, layout, condition, access, etc). It recognizes the meaning that a house might hold for the occupants, the patterns of interactions contained within it, and the lifestyle and identity the house affords its residents (Clapham, 2005). More recently, the term housing transitions (Beer & Faulkner, 2011) has been used to capture the fluid and complex relationship between individuals and their housing, reflecting the dynamic change that occurs throughout life and placing equal importance on patterns of housing and the subjective experience of housing. In addition to providing shelter, home has personal, social, physical, temporal, occupational, and societal dimensions that contribute to its meaning and overall experience for individuals (Aplin, de Jonge, & Gustafsson, 2013). It should be a safe place, a refuge, and where we have autonomy and control over the use of space and time (Peace & Holland, 2001). This autonomy allows privacy and the freedom to express oneself. Central to the meaning of home are the relationships with family, friends, neighbors, and the community. It is the presence of these important people and relationships that contribute to the feeling of home (Sixsmith, 1986). It is well recognized that housing contributes significantly to quality of life (Pynoos & Regnier, 1997). The significance of the home is even greater if people have lived there for many years (Pynoos & Regnier, 1997) or if they spend a considerable amount of time at home (Newman, 2003). Increasingly, people are not just interested in finding a house. For many, the home is both emotionally and financially the single biggest investment they make in their lives (Hanson, 2001). Consequently, many seek a community that offers them a distinctive mode of living or a particular lifestyle that enables them to express and define their identity (Clapham, 2005). Focus of the Housing Perspective The housing perspective provides a number of distinctive insights into housing decisions that have implications for development and delivery of home modification services. First, people use a broad range of strategies when addressing housing concerns. When making housing adjustments, some have a strong preference to remain living in their own home (Peace & Holland, 2001) and current community (Wiles, Leibing, Guberman, Reeve, & Allen, 2012), whereas others are willing to relocate in response to changes in their needs and preferences (Heywood et al., 2002; Perry, 2012; Stone, 1998). Although home modification services are recognized as assisting 32 Chapter 2 people to adapt their homes to their changed circumstances (Tinker, 1999), there are some who are clearly better served by relocating to more suitable accommodations. It is important to recognize that housing adjustment, although common in the general community, is not widely recognized or supported in health and community care services except in determining when someone needs to move into supported accommodations. Many modification services tend to assume that people intend to or should remain in the current home and leave people to make decisions themselves about relocating and downsizing. Many people live in homes that constantly challenge their safety and independence and require a great deal of upkeep (Tinker, 1999). A home that was once a “castle” and a reflection of a person’s identity and status in the community can become a “cage” or millstone, undermining identity and restricting freedom and lifestyle (Heywood et al., 2002). Little support is offered to people with the often overwhelming and complex task of making a housing adjustment, and the emotional component of relocation is often neglected (Perry, 2012). Although people who have made many moves during their lives are well placed to deal with the financial, legal, and real estate complexities they are likely to encounter, many are not sufficiently experienced or informed to successfully navigate these systems. Services with a housing perspective could provide an important way of enhancing the range of options available to people to make housing adjustments and “enable people to take control of their pathway through the ability to make choices” (Clapham, 2005, p. 234). These services could also manage the complex systems involved in moving house for people with low incomes or limited skills or capacities. Second, the housing perspective has also highlighted that people seek housing that reflects their identity and lifestyle aspirations. Very few people consider themselves to be “old” (Wylde, 1998), and even fewer regard themselves as “disabled” (Heywood et al., 2002; Wylde, 1998). Consequently, housing decisions are likely to be shaped by identity and lifestyle choice rather than perceptions of functional need. The health and community care approaches tend to favor professionally defined concepts of functional need, where services are provided to people; consequently, they are unlikely to acknowledge people’s lifestyle and identity aspirations (Clapham, 2005). Concern has been raised about the negative impacts of home modifications on the meaning of home and the lack of attention to this dimension by home modification services (Messecar, Archbold, Stewart, & Kirschling, 2002). Adaptations to the home can have a negative impact on routines, self-image, connection with the home, and a sense of heritage (Heywood, 2005). Modifications can result in people being viewed as different and, of greater concern, can make them vulnerable to ridicule or violence (Fisher, 1998). For example, a person may be willing to put a grab bar in his or her own private bathroom adjoining the bedroom but not in another bathroom that might be used by guests, where it would bring attention to the disability and change the decor of their living space. This underscores the importance not only of choice, but also of identifying home modifications that are attractive and acceptable. When making changes in the home, it is essential that all aspects of the home environment be considered rather than focusing solely on the performance of specific self-care tasks (Heywood, 2005). Acceptance of interventions, such as assistive devices, has been shown repeatedly to be influenced by whether they support or undermine the older person’s sense of personal identity (Harrison, 2004). Householders have been found to reject modification services if their perspectives and priorities differ from that of service providers (Gitlin, Luborsky, & Schemm, 1998) or if they anticipate that the changes will affect their sense of independence and autonomy (Messecar et al., 2002). Third, when building or remodeling housing, there are opportunities to plan ahead to pay particular attention to areas such as entrances, pathways, lighting, kitchens, and bathrooms. This is an ideal time to bring together occupational therapists, remodelers, architects, and interior designers to work as a team to help people plan ahead in terms of thinking about aging in place and adding features that might help them stay in their homes. For example, when remodeling, a resident could install a zero-step entrance, install a walk-in or roll-in shower instead of a conventional bath or shower/bath combination, and fit cabinets in the kitchen that are within easy reach or provide somewhere to sit down to prepare food. These types of features might be found in a universally designed house but can be incorporated into existing homes as well. In addition, rather than considering the dwelling’s suitability solely for the resident, it should be seen as a place where others of varying abilities visit. This aspect incorporates the communal nature of housing and underlies the charter of the visitability movement, which has made advances in both England and, to a lesser extent, the United States. Key Stakeholder Roles and Perspectives Although involved in both health and community care approaches to home modifications, building and design professionals are central to the housing Approaches to Service Delivery perspective. Their services are essential when considering the remodeling of a home, undertaking major renovations, or constructing a new dwelling. It is important when working with building or design professionals that occupational therapists understand that all professions have an embedded culture, which includes the norms, values, beliefs, traditional knowledge, skills, and core practices that guide and shape professional behavior and identity (Watson, 2006). It is into this culture that new professionals are socialized through education, training, and work experiences. Understanding the cultural orientation of a profession is important in understanding how professional reasoning and decision making occur. The building profession has a culture that is strongly embedded in a regulatory environment. It is an industry that is prescribed, regulated, and inspected—and rightly so, given the issues of safety that are involved. This perspective is extremely valuable to home modification services delivery because the building professional is able to advise what is possible and not possible in accordance with various codes and regulations within a home environment. The downside of this, however, is that standard responses to an individual’s needs can become entrenched, and documents such as public access standards can be given a higher priority than is practicable or advisable in a unique and dynamic individual situation (Pynoos et al., 2002). Accessibility codes are typically designed to determine minimal legal guidelines for public access and have a stereotypical view of the end user (e.g., a user of a wheelchair). They have very little to do with the needs, aspirations, desires, and uniqueness of a particular individual and do not cater to the many variations of individual functioning of people who have a disability (Danford & Steinfeld, 1999; Imrie & Hall, 2001). For example, current public access standards in many countries are not based on research for older people, and the assumption that designing for wheelchair use will also meet the needs of an older person with a range of mobility requirements is an untested hypothesis that has not been evidenced in research. In fact, research in the United States has shown that some modifications to the existing accessible standards “may promote more disability among older adults than it ameliorates” (Pynoos et al., 2002, p. 16). Architectural or technical aspects are emphasized by building professionals, with the home dwelling considered a “piece of hardware” and the personal and social aspects of home disregarded (Imrie, 2006, p. 14). In this way, technical knowledge dominates the construction professional’s decision making and actions. Many building professionals have time and 33 money constraints and can be financially vulnerable, particularly if they are subcontractors. Tradition also plays a strong role in the builders’ work, with many being resistant to changing the way they do their work (Burns, 2004). Current literature suggests that the construction industry in many countries does not respond well to the needs of people with a disability and that formal education of building professionals on the needs of people with a disability is “more or less non-existent” (Burns, 2004; Imrie, 2006; Imrie & Hall, 2001, p. 6). Imrie and Hall assert that “inattentiveness to and exclusion of the needs (of people with a disability) are evident at all stages of the design and development of the built environment” (2001, p. 6). The house building industry has been characterized by a lack of innovation and a “poorly developed sense of customer focus when compared to other service sectors” (Burns, 2004, p. 768). This lack of interest or willingness to be innovative has resulted in a standardization of house design where “certain household types and certain bodies are targeted” (Burns, 2004, p. 769). The drive for standardization has been linked to the rise of large-scale corporate property development in which standardized fittings and fixtures are commonplace and the construction “revolves around industry standards, which are inattentive to bodily diversity or differences” (Imrie & Hall, 2006, p. 9). Older people and people with a disability often have requirements that are not met by standard housing designs and thus provide builders with challenges to their traditional designs and techniques (Burns, 2004). Within the professional culture of the design professions, such as architecture or interior design, designing for the needs of people with a disability has not been a significant feature of design theory or a major part of the design and development process (Goldsmith, 1997; Imrie & Hall, 2001; Liebermann, 2013). The focus of the design process tends to be aesthetics and technical cleverness more than the user or functionality of the building (Goldsmith, 1997), with “the concern of the decorative and the ornamental” remaining a “powerful part of the design professions” (Imrie & Hall, 2001, p. 12). Where the needs of people with a disability have been incorporated into a project, “there is the tendency to reduce disability to a singular form of mobility impairment, that of the wheelchair user” (Imrie & Hall, p. 10; Liebermann, 2013). Within the architectural profession, there have been, and continue to be, challenges to the dominant design culture. Imrie and Hall (2001) use the terms social architecture and social design to describe a trend that proposed to “recognize the multiplicity 34 Chapter 2 of needs of building users” and the need to accommodate them in building projects (p. 12). This movement has sought to recenter the design process on the user of the building and to incorporate a broader and more holistic understanding of the needs of users of the buildings. The core values of social design align with environmental and social justice and human rights; however, Imrie and Hall report that the movement has had little impact on the thinking of the design professions in relation to people with a disability. Inclusive design and universal design are similarly social movements that have gained prominence in both the United Kingdom and the United States. Inclusive design, like the social design movement, is concerned with the “sustainability, flexibility and adaptability” of buildings to accommodate the diversity of building users, placing the user of the building in the center of the design process (Milner & Madigan, 2004, p. 734). Universal design is concerned with making products and environments as usable as possible to the broadest range of users. Applied to housing, universal design far exceeds the minimum specification of access standards, seeking to create homes that are “useable by and marketable to people of all ages and abilities” (Mace, 1998, p. 22). This type of design process is in contrast to the compensatory approach in which elements of accessibility are added on to previously inaccessible or standard designs (Imrie & Hall, 2001). Although universal design has been widely accepted and is endorsed by global agencies such as the WHO and United Nations (Imrie, 2012), it is “yet to make an impact on mainstream architectural practice” (Liebermann, 2013, p. 14). Though professional orientation and culture differ between building and health professionals, they are complementary, and consideration of each stakeholder’s perspective is important in establishing good communication, understanding, and effective outcomes. Clear and ongoing communication is the best strategy to facilitate a good working arrangement. It is helpful for the therapist to have a basic understanding of building terminology to be able to understand to some extent the construction issues involved with the modification process. Asking questions and getting clarification are important. Often, therapists need to work through alternative solutions on site with the building professional so that they can fully understand the regulatory requirements and engage in problem solving to explore how performance requirements might be met differently. Therapists also need to communicate their recommendations clearly, both when speaking and writing. The therapist also has a responsibility to ensure that the individual and his or her needs remain the focus of the work carried out. The therapist needs to ensure that the individual, as the expert of his or her life, is recognized and that his or her thoughts, ideas, and wishes are not overwhelmed by the technical discourse of the building and design professional. Although there is excellent scope for collaboration, differences in professional culture can also lead to situations of conflict, and good conflict resolution skills are an important part of the occupational therapist’s repertoire. Assertive communication that provides, in plain language, the professional reasoning that informs the opinions and decisions regarding occupational therapist recommendations is essential to ensure good understanding and communication. In summary, from a housing perspective, people make adjustments to their housing throughout life in response to their changing circumstances. These adjustments can include making changes to the current dwelling or seeking alternative living environments. Increasingly, housing decisions are shaped by a quest for a particular lifestyle that allows people to express and define their identity. This perspective alerts occupational therapists to the need to consider people’s housing concerns more broadly, to ensure that they are afforded adequate choice, and to ensure that they are provided with sufficient information and support that reflects their housing needs and preferences into the future. Furthermore, it reminds the profession to recognize people’s aspirations and the personal nature of the home environment when undertaking modifications. FUTURE CHALLENGES FOR HOME MODIFICATION SERVICE DELIVERY Strategic Policy Direction Awareness of the benefits of home modifications has been increasing; however, there are still significant challenges to the viability and usefulness of home modification service delivery. Emphasis at a legislative and strategic policy level is on implementing change in new construction, as seen by the increase in visibility legislation in most developed countries. Although moves toward inclusive and universal design are gaining momentum at an international level, significant issues still face those living in existing inaccessible and unsafe housing. At a strategic policy level, there is a need for greater recognition of the importance of home Approaches to Service Delivery 35 modification to community living for people with a disability and for our increasingly aging population. In many countries, home modification services are intrinsically linked to health and community care policy areas. A report from the Office for Disability Issues in the United Kingdom (Heywood & Turner, 2007) highlighted four main ways in which the provision of housing modifications and equipment produces savings to health and social care budgets. These were savings in the cost of residential care through enabling people to remain in their homes and reducing the cost and need for in-home care services; savings through the prevention of accidents with associated high costs of hospital and residential care admissions; savings through prevention of waste brought about because of underfunding of modification services, which resulted in delays in implementation and provision of inadequate or ineffectual solutions; and, finally, savings through achieving better outcomes for the same expenditure by improving the quality of life of recipients and caregivers and family members (Heywood & Turner, 2007). Though the report found evidence of the preventive and therapeutic role of home modifications, it also highlighted the ongoing issue of underfunding for home modifications and increasingly restrictive eligibility criteria related to this, reducing the availability of home modifications to many people who would benefit (Heywood & Turner, 2007). As indicated previously, Jones et al. (2008) believe that there is a strong case for reconsidering the current approach to the organization of home modification services and suggest that the future of home modification service delivery may lie in the recognition that home modification services are a major contributor to the housing policy area, rather than being seen primarily under the banner of health and community care policy areas. Aligning home modification services with strategic housing policy links the home modification service to the areas of accessible and inclusive housing and national strategies for housing, while still maintaining links to the health and community sectors (Jones et al., 2008). In this way, strategic policy direction that provides a coordinated funded service delivery response across public and private housing and also links housing into health and aged care services may be more achievable. ago. First, although there is an increase in the organizations and programs funded to provide home modification services, there is a lack of a systematic approach to the organization of such services, with limited policy development, few benchmarks for service delivery, and great disparities in the level of service provision (Jones et al., 2008; Pynoos et al., 1998; Sorenson, 2012). Resourcing is considered to be insufficient to meet demand, and lack of funding results in delays in work being carried out (Jones et al., 2008; Pynoos et al., 1998). Services and service recipients are often overwhelmed by the cumulative impact of numerous building, health, disability, and legal requirements (Awang, 2002; Jones et al., 2008; Sakellariou, 2015), which are in themselves barriers to accessing and delivering an effective home modification service. Although levels of expertise have developed over the past decade, there are still shortages in skilled professionals from both the health and construction sectors that contribute to delays in service provision (Sorenson, 2012). A lack of awareness about the advantages of home modification continues to exist within both the community and service sectors, resulting in unreliable referral processes (Jones et al., 2008; Pynoos et al., 1998). Though many issues exist, research has shown overwhelmingly that home modification services are well received, and positive outcomes such as improved independence, heightened confidence and well-being, greater security, prevention of accidents, and improved quality of life are generally reported (Heywood & Turner, 2007; Jones et al., 2008; Keall et al., 2015; Petersson et al., 2008). There is, however, a clear need for the continued development of a research evidence base to underpin home modification services development and delivery, particularly in the areas of the need and demand for home modification services; the outcome and cost-effectiveness of home modification as an intervention; and the identification of particular factors that affect service provision and outcomes, including the supply of expert professionals (Heywood & Turner, 2007; Jones et al., 2008). Service Design and Delivery Direction Involvement with home modification services delivery presents new challenges to occupational therapists, both in the knowledge base they need to acquire and in the professional sectors with whom they collaborate. Effective home modification service delivery relies on ensuring that the individual and his or her unique and particular needs remain At a service level in the United States and Australia, many of the issues facing home modification service delivery today were being raised more than a decade Implications for the Occupational Therapist 36 Chapter 2 central to the assessment and decision-making process, and the occupational therapist has a key role in ensuring that this occurs. Although the focus of occupational therapy has traditionally been on the individual receiving his or her service, therapists are increasingly being challenged to step outside of their conventional clinical roles and become involved in home modification service delivery as agents of change. First and foremost, occupational therapists are well placed to observe the effect of policy and procedural issues on individual service delivery. Poor communication and information about home modification service delivery and complex application procedures and forms are key barriers to effective home modification service delivery against which therapists can advocate for change. Establishing and undertaking formal evaluation processes, seeking and recording individual client feedback, and providing reports of concerns to the relevant people within organizational structures are all strategies that can be undertaken by individual therapists. A lack of awareness of the benefits of home modifications is another identified barrier that occupational therapists can assist in addressing. Therapists can play a key role in the education of both community and service sectors regarding the benefits of home modification through both formal presentations about the home modification service to client and referral agencies and through informal professional networking. Building an evidence base for intervention in this area is also an important role for the profession. Quality research into the outcomes of home modifications from the perspective of the home dweller and evaluating the effectiveness of home modification service delivery are areas that occupational therapists are well equipped to address. Engaging in formal evaluation of environmental interventions can yield important data that can be formulated into reports, publications, or professional presentations. Linking with agencies or institutions that may be interested in undertaking formal research, such as universities, is also advantageous for therapists in terms of professional development, as well as building a much-needed evidence base for practice. CONCLUSION Recent demographic, legislative, policy, and service developments have resulted in a range of services being created to promote people’s safety, health, independence, and well-being in the home environment. Occupational therapists have an important contribution to make in enabling people to live well in the home and community and need to work effectively within and across health, community care, and housing systems to achieve good outcomes for their clients. Home modification services developed in the health care system are primarily concerned with ensuring safety and enabling independence through the use of minor or nonstructural modifications. Health-based services perceive the home as a physical entity that needs to be modified to accommodate functional deficits, and in so doing, therapists can overlook the long-term suitability of a residence; the social acceptability of modifications; and issues of identity, meaning, and lifestyle when designing interventions. Therapists working in this context need to be mindful of the personal, temporal, social, and cultural nature of the home environment when addressing physical aspects of the environment. Within community care services, behavioral, nonstructural, and structural modifications are used in conjunction with a range of other services to support people to live safely and independently in the community. An understanding of the interaction between the person and his or her living environment allows modification interventions to be tailored to the individual’s unique circumstances and promote his or her active participation in the home and the community. Therapists working in community care settings need to work across health, social, and construction sectors to develop good intersectoral collaboration and enhance the development of quality modification services. Services developed within the housing sector acknowledge that people make adjustments to their housing throughout life in response to their changing circumstances. Within this sector, modifications are seen as part of a continuum of adjustments, which can also include seeking an alternative living environment that better suits the individual’s identity and lifestyle aspirations. Within this perspective, occupational therapists are encouraged to consider people’s broader housing concerns, to provide clients with sufficient information and support when making adjustments, and to help clients think ahead in terms of the suitability of modifications to help them age in place. Clients are likely to be seeking to maintain their safety, health, and well-being as well as their identity and lifestyle within the home and community, regardless of where they access home modification services. Therapists need to be aware of the context in which they work, the way this can shape their service delivery, and the importance of extending their service to acknowledge clients’ broader needs or referring them to a service that is better suited to Approaches to Service Delivery addressing their needs. Furthermore, professionals such as occupational therapists and the organizations that represent them have an important role to play in improving the policies that affect their practice and the lives of the clients they serve. REFERENCES Aged and Community Services Australia. (2015). The future of housing for older Australians: Position paper, January 2015. 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Technology and Disability, 8(1-2), 51-68. Models of Occupational Therapy 3 Desleigh de Jonge, MPhil (OccThy), Grad Cert Soc Sci and Merrill Turpin, PhD, Grad Dip Counsel, BOccThy Models provide a framework for thinking and clinical decision making. They make explicit the profession’s scope of concern (and, therefore, role) and how it identifies and understands issues and problems, and they provide a structure for systematic and comprehensive practice (Turpin & Iwama, 2011) that guides notions of appropriate evaluation and intervention strategies and ways of evaluating outcomes. A number of occupational therapy models of practice have been developed over the years that assist occupational therapists in understanding the difficulties individuals are experiencing and the factors that contribute to them. Each model of practice conceptualizes the person, occupation or performance, environment, and interaction between these in different ways, all of which have an impact on how occupational therapists engage with issues and implement occupational and environmental interventions. This chapter reviews four key approaches used by occupational therapists when undertaking home modifications and examines how each shapes home modification practice and outcomes. The chapter describes the rehabilitation model, Canadian Model of Occupational Performance and Enablement (CMOP-E), ecological occupational therapy models, and Kawa model and examines how each contributes to our understanding of how people engage in meaningful occupations in the home and community. Also examined is the evolution of occupational therapy practice models and their relevance and integrity in light of politico-sociocultural trends, such as the shift to a social model of disability and the development of client-driven services. CHAPTER OBJECTIVES By the end of this chapter, the reader will be able to: Ô Describe how models have shaped occupational therapy practice in the area of home modifications Ô Describe how the rehabilitation model, CMOP-E, ecological models, and Kawa Model structure practice Ô Identify the strengths and limitations of each of these models with respect to home modification practice INTRODUCTION As a profession, occupational therapy continues to evolve in response to scientific advancements, - 41 - Ainsworth, E., & de Jonge, D. An Occupational Therapist’s Guide to Home Modification Practice, Second Edition (pp. 41-61). © 2019 SLACK Incorporated. 42 Chapter 3 as well as philosophical shifts in society and within particular service contexts. Changes in the scope and focus of the profession are clearly evident in the successive models of practice developed to guide and describe occupational therapy practice. Models reflect our thinking and shape our practice (Duncan, 2011) and can be described as being conceptual or procedural in nature. Conceptual models are usually presented in a graphic form, overviewing concepts and describing the relationships between the identified elements. This type of model defines the domain of concern of a profession and assists a professional to think about and interpret situations (Turpin & Iwama, 2011). In contrast, procedural models specify a procedure for attending to issues and elements, directing the process at a very practical level. To illustrate the function of each of these models, imagine you were to plan a trip using a map. A map is like a conceptual model, outlining the boundaries of the geographical area to be explored, various places of interest, their spatial relationships, and their means of connection. Because many of us travel with a finite amount of time and financial resources in mind, we also need to develop a travel schedule (procedural model) so that we can visit all of the important landmarks and plan a methodical and efficient route of travel. Although you might be able to undertake your trip using only one of these approaches, using both a map and a schedule enhances your understanding of the destination and use of relevant resources. The same is true when using models in practice. Occupational therapists need both conceptual and procedural models to practice effectively. Many occupational therapy models are predominantly conceptual, requiring therapists to develop their own plan of action. Other models are largely procedural, requiring occupational therapists to bring their own understandings of the broader picture, elements of concern, and inter-relationships. Many frames of reference and service models provide this structure. Effective practice relies on having an understanding of all of the areas of concern and their interactions as well as a plan of operation. It is also essential that both the procedural and conceptual models align with and are relevant to each other. There is little point in having a map of the whole of Europe if you confine your trip to Italy. Also, it would be difficult to convince people you have seen Europe if you have traveled only from Rome to Florence, and it would be challenging to navigate between and within small villages if your map only has the major highways marked. Without an appropriate map, your travel experience would not reflect your intentions, nor would it live up to your expectations. Equally, occupational therapists need to ensure that their actions echo their stated focus and goals. This requires that they have sufficient understanding of the issues they are dealing with (conceptual model) and that these are reflected in an appropriate plan of action (procedural model). Occupational therapists tend to use different models of practice, either implicitly or explicitly, depending on their primary area of practice, where and when they were trained, and the models they relate to personally. Additionally, service environments and reimbursement schedules have their own procedures, which can affect the focus and scope of practice and can influence occupational therapists’ choices of model or shape the way they are operationalized. Consequently, they need conceptual models to help them maintain their discipline focus and embed the philosophy and values of the profession. Many occupational therapists are not aware of the models or other influences shaping their practice. They generally operate intuitively on internalized understandings (Owen, Adams, & Franszen, 2014; Reed, 1998) or use well-practiced and routine approaches to address issues. As a result, they select and use assessment tools and interventions without necessarily being aware of the beliefs and attitudes directing these decisions. Regardless of whether they are conscious of the models directing their actions, they hold their own views about people and have particular understandings of the cause and impact of impairment or disability. These views delineate their scope of concern; determine the nature of services they offer; and dictate how they work with clients, define and evaluate needs, and focus their interventions. Without a clearly identified model to define the scope of practice and provide a systematic approach, practice is reliant on personal experience, habits, and routines that may not be comprehensive (Turpin & Iwama, 2011). This can make it much more difficult to individualize solutions and negotiate good client outcomes. Models can maximize learning from experience by alerting therapists to the limitations of their current understandings and prompting them to extend their knowledge and skills. Occupational therapists who are conscious of their conceptual model can explain their unique contribution to the team, describing their expertise or justifying their approach. When they find themselves in conflict with clients or other service providers who might have different understandings or expectations, they can consider the situation and are able to explore the other person’s perspective, articulate their own perspective, and identify common goals. Therapists who acknowledge or reflect on their model of practice remain alert to the scope Models of Occupational Therapy of concern of the profession and select assessment and intervention approaches that address these concerns. With a clear and well-articulated conceptual model of practice, therapists are able to prioritize clients’ specific needs over service imperatives and processes. These therapists are also able to recognize and respond to conceptual developments and new knowledge in an area of practice. There is harmony between what they say they do and what they actually do because their procedures are well aligned with their conceptual model. It is therefore important that therapists be aware of the concepts shaping their practices and driving their decision making. To illustrate the impact of models on the nature of services provided and the outcomes achieved, this chapter examines each model of practice in turn, using the following case study of Mrs. Hume. The way in which each model of practice shapes service delivery and determines outcomes will be described and analyzed with particular reference to their capacity to respond to client concerns and to deal with important aspects of the home environment. Mrs. Hume is an 82-year-old woman who lives in a four-bedroom detached house in an older outercity suburb. She has lived in this neighborhood for 60 years, having raised her family in the two-story house her husband built soon after they were married. When her husband died 5 years ago, her previously widowed sister (now 80 years old) moved in. Mrs. Hume has three children—a daughter who lives 10 miles away in the same city, a son who lives in a nearby city, and another son who has moved interstate. She has rheumatoid arthritis and has been admitted to the hospital following a recent flare-up of her condition. Medication has been re-evaluated, and her condition has settled. She has been referred to occupational therapy to assist in her return home. Before reading any further, take a few moments to reflect, as her occupational therapist, on this case and write down what you would offer Mrs. Hume. Consider the following questions: Ô What would be your main focus? Ô How would you determine need? Ô How would you address needs? Ô How would you work with Mrs. Hume? Ô How do you view the home environment? Ô What outcomes are you expecting from your interventions? The way occupational therapists regard Mrs. Hume, relate to her and her home environment, and define and address her needs reveals much about the model of practice from which they work. As 43 you read through this chapter, you may recognize aspects of models evident in the approach you identified in relation to Mrs. Hume. Through the discussion of each of these models, you should come to appreciate the impact of your current conceptualizations on the nature of the services you would provide, how you would go about providing them, and the subsequent outcomes you could achieve for Mrs. Hume. In addition, you will be able to reflect on contemporary views of disability and illness, the environment, and person-centered practice, as well as how well these understandings are reflected in your current practice. REHABILITATION MODEL Occupational therapy, originally embedded in a humanistic tradition (Schwartz, 2003), has been strongly influenced by medical science and biomedical models of practice. Following World War II and the emergence of rehabilitation medicine, occupational therapy joined other allied health professionals in providing medical care to returning soldiers. By the 1970s, with the proliferation of scientific knowledge and expansion of the health care industry, and as a result of the Rehabilitation Act of 1954, occupational therapy was well established in rehabilitation services (Schwartz, 2003). The rehabilitation model is founded on extensive knowledge of the structure and function of the human body and the impact of injury and disease. This model has had an enduring influence on the way people with disabilities and illnesses are viewed and their needs defined within rehabilitation services. Within this model, people are considered human organisms consisting of a series of complex systems, with underlying structures and functions that are common to all humans. Traditionally, medical specialists and rehabilitation professionals have defined their scope of concern or responsibilities in terms of particular body systems (e.g., cardiologists are responsible for matters concerning the circulatory system and neurologists focus on the neural system). Similarly, allied health professionals tend to define their roles in terms of functional systems: physiotherapists are primarily concerned with neuromuscular function, psychologists with mental function, and speech-language pathologists with voice and speech function (Seidel, 1998). The initial focus of rehabilitation was to restore an individual’s function when his or her capacity had been altered or limited by a physical or mental impairment that could not be remediated by surgery or medical intervention (Seidel, 1998). However, this model has 44 Chapter 3 continued to evolve in response to social changes, such as deinstitutionalization and the Independent Living Movement (Schwartz, 2003), resulting in a shift to promoting independence. Consequently, occupational therapists have focused on restoring the individual’s ability to function independently in daily activities. Within this model, the primary challenge to occupational performance is impairment, which is defined as the “loss or abnormality of psychological, physiological or anatomical structure or function” (World Health Organization [WHO], 1980, p. 47). Disability is understood as a restriction or lack of ability to perform an activity in a manner or within the range considered “normal” (Seidel, 1998). Assessment is therefore focused on identifying specific symptoms and signs of abnormality and quantifying the person’s functional capacities in various areas, such as neuromuscular, mental, or cardiovascular, as well as independence in daily activities. The rehabilitation model requires the combined and coordinated use of medical, social, educational, and vocational measures to train or retrain an individual to the highest possible levels of function (WHO, 1980). Interventions involve retraining and the use of remedial activities to restore function, compensatory techniques to support the completion of tasks and activities (when restoring function is not possible), and assistive devices and environmental adaptations to accommodate lost function. In a rehabilitation model, the degree to which maximum function and independence can be achieved is believed to be largely dependent on the individual’s level of motivation. The therapist is conceptualized as an expert who brings specialist knowledge about the physiology and pathology of impairment to the process and educates the individual about appropriate remediation and adaptive strategies (Dewsbury, Clarke, Randall, Rouncefield, & Sommerville, 2004). Occupational therapists intervene to regain lost function and prescribe suitable compensatory techniques, assistive devices, or environmental adaptations to promote independence. Typically, assistive devices are recommended more frequently than environmental adaptations because these interventions are both less costly and less complex to implement (Auriemma, Faust, Sibrian, & Jimenez, 1999; Pynoos, Tabbarah, Angelelli, & Demiere, 1998; Tabbarah, Silverstein, & Seeman, 2000). Within this model, the environment is seen as a static physical entity that can be modified to accommodate an individual’s identified functional impairments. When considering the environment, the focus is largely on aspects that create barriers to independence in specific self-care activities, such as mobility, bathing, and toileting. The outcomes generally sought by therapists and services using a rehabilitation approach are for the person to regain maximum function and independence. Consequently, outcome measures focus on evaluating the extent of the person’s independence and change in functions believed to underpin independence (often measured by comparing the same assessments at baseline and therapy end). Because independence is defined as being able to complete tasks without assistance (Tamaru, McColl, & Yamasaki, 2007), many outcome measures seek to determine the extent to which individuals can complete tasks on their own. Addressing Mrs. Hume’s Home Modification Needs Using a Rehabilitation Framework In light of the previous description of the rehabilitation model, how would a therapist using this model address Mrs. Hume’s home modification needs? The following questions will be used to guide this analysis: Ô What would be the therapist’s primary focus? Ô How would a therapist using this model define Mrs. Hume’s challenges? Ô What evaluation processes would be used with Mrs. Hume? Ô What interventions or services would be available to Mrs. Hume? Ô How would the therapist work with Mrs. Hume? Ô How would the environment be addressed in this model? Ô What outcomes would Mrs. Hume expect to achieve? The extensive scientific and medical knowledge underlying the rehabilitation model would ensure that Mrs. Hume receives the very best medical care. This means that health professionals would actively manage her condition and that she could expect reduced inflammation, pain, and long-term damage to her joints. She would be under the care of a rheumatologist for the management of her arthritis and would be referred to other specialists as required. She is likely to be receiving the service of a physiotherapist to maximize her range of movement and muscle strength, and she is likely to be referred to an occupational therapist to maximize her function and independence in activities associated with daily living. She may also be referred to a hand therapist—or possibly a physiotherapist or occupational Models of Occupational Therapy therapist—for splints to protect her joints. Within the rehabilitation model, Mrs. Hume would be identified primarily in terms of her health condition and would be provided services in line with protocols for that condition. Evaluation would commonly focus on defining her level of function, including measures of range of movement, grip strength, and independence. Mrs. Hume is also likely to receive ongoing evaluations of her physical and functional capacity as successive health professionals establish a baseline and periodically re-evaluate her condition to note improvements in her response to medications and remedial exercise and activities. With a clear understanding of the health condition and its prognosis, the therapist would develop a treatment plan for Mrs. Hume and educate her about regaining function and maximizing independence. The goal of interventions would be to achieve maximum function, and Mrs. Hume is likely to be given exercises, taught compensatory joint protection strategies, and provided with splints and assistive devices to allow her to complete the activities of daily living (ADLs) considered “normal” for adults her age (e.g., all adults are expected to be independent in toileting). Assistive devices such as reachers and tap turners would commonly be recommended based on her diagnosis of rheumatoid arthritis (Mann & Lane, 1995) or in response to particular activity difficulties. Specific barriers to completing self-care activities in the home (e.g., low toilet and standard tap and door fittings) would result in recommended home modifications, such as installation of grab bars or lever taps and handles. The therapist might or might not make a home visit because potential environmental barriers could largely be determined from Mrs. Hume’s known impairments, from identified functional capacities and performance difficulties in daily activities, and through discussion with Mrs. Hume about features in the home. Mrs. Hume would receive advice from the therapist about appropriate remedial strategies to continue with at home, as well as suitable assistive devices and modifications. Lack of compliance with recommended interventions would be attributed to Mrs. Hume’s lack of motivation or understanding of her condition and the purpose of the interventions. In response, the occupational therapist would seek to educate Mrs. Hume about her condition and the benefits of adhering to recommendations. It would be anticipated that the recommended interventions would allow Mrs. Hume to function independently in self-care activities. Follow-up evaluations might be undertaken to confirm that she is completing tasks independently. 45 Implications of Using the Rehabilitation Model for Home Modifications The rehabilitation model is not specific to occupational therapy, but it is a pervasive model in health, shaping the way health is understood and services are organized. However, the extensive knowledge of body structures and functions that underlies the rehabilitation model allows occupational therapists using this model to reduce the amount of residual impairment resulting from an injury or health condition and promote high levels of function and independence. Having grown out of a medical model, the rehabilitation model uses a “medical” or individual model of disability, which sees disablement as a personal problem resulting from disease, trauma, or other health condition and requiring care and individual treatment by medical professionals (WHO, 2001). Consequently, much of the evaluation process is focused on determining the degree of a person’s impairment or specific deficits. Measures of function either rely on personal interpretations of normal function or refer to data that detail the maximum or average for any given age group. However, little is known about the strength or range-of-movement requirements for everyday tasks (Badley, 1995; Law & Baum, 2005), and assessment results might overor underestimate the specific requirements of particular tasks for any given individual in his or her environment (Dunn, 2005). A deeper understanding of the specific difficulties someone experiences in daily activities would ensure that interventions are more appropriately tailored to the individual. Often, many people are involved in providing specialized care and addressing specific deficits. This can leave the affected person feeling overwhelmed, fragmented, and disempowered. A focus on presenting physical problems can also mean that social and emotional needs are not acknowledged well within this model (Seidel, 1998). Evaluation and treatment protocols tend to focus on specific functions and often do not allow the occupational therapist to develop an understanding of the real person and their concerns and priorities. Rehabilitation goals of maximizing function and independence often take precedence over the client’s unique concerns and goals. Whereas occupational therapists are concerned with ensuring that people can function without help, clients might be more worried about having control over their daily activities and making lifestyle decisions (Clough, Leamy, Miller, & Bright, 2004; Heywood, Oldman, & Means, 2002). Consequently, 46 Chapter 3 devices or modifications recommended by a rehabilitation therapist to promote independence in the shower, for example, might not be acceptable to the client because he or she might be more interested in conserving time and energy to engage in other chosen activities rather than being exhausted by routine self-care tasks. When clients do not embrace the interventions offered, it is often perceived that they lack motivation or understanding. However, because the professional largely determines goals and interventions with specific reference to the individual’s performance deficits (Law, 1998), they might not be well suited to the person’s requirements, preferences, or lifestyle. It is often difficult for clients to shape and direct intervention in the rehabilitation model because therapists are usually the ones who have extensive knowledge of the injury or health condition, its pathology, and how it can be remediated. In addition, clients usually have little knowledge of the interventions available and are reliant on the expertise of the therapist for recommendations. Although it would be helpful to use this opportunity to educate the client about alternative options and their relative benefits, the focus instead is on increasing compliance (Law, 1998), assuming that once the person understands why the intervention is considered necessary, he or she will automatically accept it. In the rehabilitation model, restoration of function is usually the primary focus of treatment, with remediation strategies, such as assistive devices and home modifications, receiving less attention. In the hierarchy of rehabilitation interventions, these strategies are frequently seen as part of discharge planning, and there is often insufficient time to effectively plan and implement the intervention before the person is discharged. With interventions focused primarily on a client’s specific performance difficulties, little attention is given to how the environment can support and promote further engagement in activities. The restricted view of the environment as a physical entity means that its personal, cultural, and social aspects are often overlooked. Consequently, interventions might not be tailored as well as they could be to the home environment and could create challenges for the client and others instead. The outcomes of rehabilitation are generally defined and evaluated by service providers (Law, 1998) and are traditionally focused on achieving a specific performance standard or complete independence. It is difficult to measure the success of modification outcomes, especially in terms of independence achieved, using the standardized tests currently in use because many measures of independence assign a penalty for using any assistance, including a device. For example, when using the Functional Independence Measure (Uniform Data System for Medical Rehabilitation, 1997), people can only achieve the highest score of 7 if they do not use a device or have any assistance to complete the task (Cook & Hussey, 2002). In addition, rehabilitation outcome measures such as the Functional Independence Measure do not assess the value of activities for the individual or the quality or acceptability of performance. OCCUPATION-BASED MODEL In an effort to differentiate itself from other health care professions and to articulate its unique scope of concern, occupational therapy developed its own models and frameworks for practice. These models aimed to unify the profession, which had been fractured by an explosion of new knowledge about the internal workings of the body and psyche and increasingly specialized practice structured around medical conditions. An overemphasis on techniques and the use of modalities prompted the profession to re-examine its direction and to reconnect with its original philosophy, beliefs, and focus on occupation (Schwartz, 2003). Occupational performance, a term first coined in the American Occupational Therapy Association (AOTA) grant report in 1973, became the unique and central concern of the profession because it focused on individuals’ abilities to accomplish tasks related to their roles and developmental stage (AOTA, 1973; Reed, 2005). The Occupational Performance Model (OPM) was one of the earliest occupational therapy models to evolve from this shift in direction. It grew out of a series of AOTA task forces and committees in the 1970s and the writings of leaders in the profession about that time, such as Llorens, Mosey, and Reilly (Kielhofner, 2004; Llorens, 1989; Mosey, 1981; Pedretti, 1996). The OPM was primarily structured around the concepts of performance components (sensorimotor, cognitive/cognitive integration, psychosocial/psychological) and performance areas (ADLs, work/productive activities, and play/leisure). Figure 3-1 displays a graphical representation of the OPM as presented by Pedretti (1996). Failure or disruption in performance areas (ADLs and work/productive activities or play/ leisure) are assumed to result from deficits in performance components, task learning experience, and/ or an unsupportive life space or context. The temporal/environmental performance context (physical, cultural, and social) is acknowledged as important to successful occupational performance but is not developed as an integrated concept. Models of Occupational Therapy 47 Figure 3-1. OPM. (Adapted with permission from Occupational therapy: Practice skills for physical dysfunction, Pedretti, L. W., Occupational performance: A model for practice in physical dysfunction, pp. 3-12. Copyright © Elsevier 1996.) Although originally described as a frame of reference for practice and educational design (AOTA, 1973, 1974), the OPM detailed the profession’s domains of concern, focus, and areas of expertise and has had a substantial and enduring influence on practice (Turpin & Iwama, 2011), especially in physical rehabilitation. The Model of Human Occupation, first published in 1985 (Kielhofner, 1985), was the first occupational therapy model to appear after the OPM, and although the OPM was particularly influenced by rehabilitation and focused on increasing a person’s skills, the Model of Human Occupation initially addressed a conceptual gap that existed for practice areas in which clients had permanent impairments and disability and for which rehabilitation was not an appropriate model. Building on a growing awareness that a rehabilitation slant had overly influenced the profession’s approach to occupational performance (thereby limiting the profession conceptually), a proliferation of occupational therapy models occurred in the 1990s, all centered on a more contextualized and broader notion of the concept of occupational performance. One occupational therapy model that was developed at that time with occupational performance as its core concern was the CMOP (Canadian Association of Occupational Therapists, 1997). In its more recent iteration, published in Enabling Occupation II: Advancing an Occupational Therapy Vision for Health, Well-Being and Justice (Polatajko, Townsend, & Craik, 2007; Polatajko et al., 2013), the CMOP-E emphasizes the importance of engaging in occupation, regardless of whether an individual can perform it. For example, Townsend and Polatajko (2007) told the story of a father and his son with a severe disability who undertake marathons, triathlons, and iron man events together. The son engages in (rather than performing) the occupation as he is towed and pushed by the father. Within the CMOP-E, the person is conceived of as an occupational being embedded in a broader context (Figure 3-2). People can influence their physical and mental health and their physical and social environment through participation in purposeful activity or occupation. They are “portrayed as having three performance components [the language of the OPM]—cognitive, affective, and physical—with spirituality at the core” (Polatajko et al., 2013, p. 23). Moving away from the individual focus of the OPM, the CMOP-E, a client-centered model, conceptualized the client in six ways: individuals, families, group, communities, organization, and populations. From the perspective of the CMOP-E, the aim of occupational therapy is to enable any or all of the following through occupation: people’s engagement in everyday life, people’s occupational performance, and a just society in which all people are able to participate. Occupation is conceptualized as a bridge that links the person and environment. It is through their action that people connect with their environments. Occupation is important and has therapeutic value because it affects well-being, structures time and life more generally, and brings together individual and cultural aspects of the creation of meaning. 48 Chapter 3 Figure 3-2. CMOP-E. (Reprinted with permission from Polatajko, H. J., Townsend, E. A., & Craik, J. [2007]. Canadian Model of Occupational Performance and Engagement. In E. A. Townsend & H. J. Polatajko [Eds.], Enabling occupation II: Advancing an occupational therapy vision for health, wellbeing & justice through occupation [2nd ed., pp. 13-36]. Ottawa, Canada: Canadian Association of Occupational Therapists.) Although the model indicates that occupation can be categorized in a variety of ways (depending on its meaning and purpose for specific clients), it uses the three categories of self-care, productivity, and leisure (the OPM categories). It also emphasizes that occupational performance and engagement have a temporal dimension in that they are organized into patterns over days, weeks, years, and the whole of a person’s life. The purpose of engaging in occupation is conceptualized as health, well-being, and justice. Using Trombly’s (1995) distinction, occupation is understood as both ends and means. That is, being able to perform and engage in occupation is the end that occupational therapy aims to achieve, but occupation is also used as the means to achieve this aim. Occupational performance and engagement are promoted by identifying challenges to them at both individual and societal levels and addressing these challenges. Assessment and intervention planning are closely linked in that assessment aims to identify challenges to the occupational performance and participation that is meaningful to the client and required in his or her roles, and intervention is targeted toward addressing those challenges. To come to understand valued occupational performance and engagement for a specific client, CMOP-E uses a “who, what, when, where, and why” framework (Polatajko et al., 2013). This framework guides occupational therapists to be client-centered in determining specifically who is doing what, when and where, and why it is important to them (because they want or need to). The Canadian Occupational Performance Measure (COPM; Law et al., 1998, 2014) can be used as an assessment tool to determine occupational goals. Intervention could be focused on the person, environment, and/or occupation. The role of occupational therapists is to work collaboratively with clients, guided by the principles of enablement and client-centered (or person-centered) practice. The six enablement foundations outlined in this model (Townsend et al., 2013) are as follows: 1. Choice, risk, and responsibility, in which occupational therapists “enable safe engagement in just-right risk-taking” 2. Client participation 3. Visions of possibility, where both occupational therapists and their clients need to form visions of what might be possible 4. Change, emphasizing that occupational therapy goes beyond simply restoring function and preventing problems (the predominant focus of rehabilitation) but promotes change that facilitates the development or expansion of occupational patterns, balance, and transitions 5. Justice, where occupational performance and engagement are enabled by recognizing and addressing systematic injustices that affect people 6. Power sharing, emphasizing that occupational therapists work with clients in a collaborative and equal way Intervention is underpinned by these six enablement foundations and uses the following 10 (alphabetically ordered) enablement skills: Adapt, Advocate, Coach, Collaborate, Consult, Coordinate, Design/ Build, Educate, Engage, and Specialize. These enablement skills are outlined in the Canadian Model of Client-Centered Enablement. Townsend et al. (2013) also identified three categories of generic skills that underpin enablement. These are: Models of Occupational Therapy 1. Process skills: analyze, assess, critique, empathize, evaluate, examine, implement, intervene, investigate, plan, reflect 2. Professional skills: comply with ethical and moral codes, comply with professional regulatory requirements, document practice 3. Scholarship skills: use evidence, evaluate programs and services, generate and disseminate knowledge, transfer knowledge When describing the environment, Polatajko et al. (2013) stated, “The model depicts the person embedded within the environment to indicate that each individual lives within a unique environmental context—cultural, institutional, physical and social— which affords occupational possibilities” (p. 26). The environment is an important part of the “who, what, when, where, and why” framework in that it is not possible to separate the person/group and what is being done from where and when it is being done. Because the focus of the model is occupational performance and engagement, the environment is conceptualized as the context is what shapes this. It influences choice, organization, performance, and satisfaction but is not the focus of the model. The outcomes of occupational therapy using this model are occupational performance and engagement. To evaluate the achievement of these, occupational therapists would compare the outcomes of intervention with the goals that were identified in the COPM, as well reflect on the question of whether occupational performance has been enabled (i.e., on the process as well as the end result). Addressing Mrs. Hume’s Home Modification Needs Using the CMOP-E The focus of the therapist working with Mrs. Hume using the CMOP-E would be on enabling her performance of and engagement in meaningful daily activities and roles through occupation. Mrs. Hume would be viewed as someone who is actively engaging in occupations, and attention would be centered on occupations that are most meaningful to Mrs. Hume and relevant to her life stage and living situation. The therapist would interview Mrs. Hume and complete a COPM with her to identify her self-perception of performance in day-to-day activities and the importance of these to her. From this, the therapist would work with Mrs. Hume to identify goals and then negotiate with her to work on the goals related to the home environment. At the level of the person, the therapist would observe Mrs. 49 Hume undertaking meaningful and purposeful activities and roles in context and evaluate the impact of her condition (i.e., analyzing affective, cognitive, and physical performance components) on her occupational performance and engagement. At the level of the environment, the occupational therapist would undertake a home evaluation and examine the impact of physical, cultural, and social aspects of the home (and the influence of the institutional environment on the home) on Mrs. Hume’s occupational performance and engagement. The attention given to various occupational categories such as self-care, productivity, and leisure would vary depending on reimbursement schedules and the priorities of the service organization and Mrs. Hume. For example, a home modification service would prioritize Mrs. Hume’s self-care and productivity tasks related to her remaining safe and independent within the home and the immediate surroundings. The therapist would work collaboratively with Mrs. Hume to tailor interventions in light of her unique situation and preferences. The home environment would be reviewed in terms of its ability to support occupational performance and engagement. Aspects of the physical environment, such as features of the building, furniture, fixtures, and fittings that can no longer be managed, would be identified and removed, replaced, or modified. Consideration would also be given to other people in the environment and to how roles may need to be reassigned or modified to assist Mrs. Hume in daily activities. Family members would be educated about Mrs. Hume’s condition so that they can support her by undertaking more difficult activities. For example, her daughter might help Mrs. Hume and her sister prepare meals that could be frozen in smaller portions and then reheated in the microwave so that Mrs. Hume does not have to manage heavy saucepans. Cultural aspects of the home and community, such as customs and behavior standards, would be acknowledged when evaluating activities and roles and recommending changes. The occupational therapist may also encourage Mrs. Hume to write to the local council requesting that the sidewalk in front of her house en route to the local shop be repaired so that she and her neighbors of similar age can safely walk to get their daily supplies. At the completion of the intervention process, in which Mrs. Hume might also have been connected to community groups and other services, appropriate home modifications would have been collaboratively identified and undertaken that would promote her occupational performance and engagement. Occupational performance and engagement are then evaluated by returning to the COPM and ensuring that her initial 50 Chapter 3 concerns and goals have been addressed and further issues have not arisen. If the issues have not been adequately addressed, the occupational therapist may revisit the process and refine the intervention further. Implications of Using the CMOP-E for Home Modifications The CMOP-E offers occupational therapists a vehicle for defining their unique scope of practice. Much of the knowledge about body structures and functions gained by the profession during its alignment with the rehabilitation model provided the foundation for understanding and addressing function and skill development as it affects occupational performance. However, the CMOP-E moves away from a focus on body structures and functions and presents enablement through occupation as the core of occupational therapy. Conceptualizing occupation as the bridge linking person and environment means that promoting occupational performance and engagement drives any intervention targeting the person and/or environment. Occupational therapists consider people’s physical, cognitive, and affective capacities, as well as their spiritual core, in the context of their everyday activities, tasks, and roles (grouped into the areas of self-care, productivity, and leisure) and in relation to their developmental stage, culture, and environment. As people are seen as embedded in an environmental context that “affords occupational possibilities” (Polatajko et al., 2013, p. 23), the environment is a powerful resource for promoting occupational performance and engagement. The rich understanding of the environment as having cultural, institutional, physical, and social aspects means that, in home modification practice, consideration of the environment is not limited to the physical aspects of the home. Home modification would not be considered an end in itself but as a means to promote occupational performance and engagement. Concern for what people do drives consideration of how the environment could be modified to enable their occupational performance and engagement. Because occupation has unique meanings and purposes in different people’s lives, home modification practice cannot simply be a procedural process of applying similar solutions. Instead, an occupational therapist would work with each client to understand his or her occupational patterns and priorities and negotiate and problem solve with the client to determine modifications that would facilitate these, making them easier, safer, and/or more likely. At times, therapists experience difficulty attending to or prioritizing occupational performance issues because these issues may be perceived as being outside the scope of the service or not recognized within reimbursement schedules. In these situations, it is important that therapists remain mindful of the clients’ priorities and target evaluation and interventions to address these, even if performance of and engagement in valued activities are not being addressed directly. If a therapist is primarily responsible for making modifications to the home for a client like Mrs. Hume, it is very important that these modifications be constructed with the client’s occupational performance and roles in mind. For example, if gardening were an important occupation for Mrs. Hume, repairing the path to the garden would be important to her safety. It is also crucial that therapists see themselves as part of a continuum of care and refer clients to therapists in other services who have the focus and resources to address the client’s specific concerns regarding occupational performance and engagement. For example, if Mrs. Hume would benefit from raised garden beds and this is outside the remit of the home modification service, referral to another agency would be required. When occupational performance and engagement are addressed in a holistic way, all of the factors affecting performance can be identified and the full range of suitable interventions determined. Even if the therapist is not in a position to provide the solutions, the client can be empowered to investigate assistance from elsewhere or purchase preferred solutions themselves, such as writing to the local council. If therapists are addressing only a defined part of occupational therapy’s scope of concern, they need to ensure that clients understand what it is they can and cannot attend to. This is particularly important when client priorities are in conflict with or extend beyond the service focus. In such cases, clients should be redirected to services that are better aligned to their specific needs. It is also important that therapists work within the service to advocate for policy and service delivery changes that better reflect clients’ occupational performance needs. The main outcome measure used in the CMOP-E is the COPM. This measure is used to identify client goals and priorities. Because it takes a holistic approach to goal setting, it is likely to identify goals that would be beyond the scope of many home modification services, so it can be a very useful tool for determining other services that would be valuable in helping the client to achieve those goals. It would also be a valuable tool to use to evaluate the effectiveness of the home modifications undertaken in achieving the client’s goals. Models of Occupational Therapy 51 Figure 3-3. The Person-Environment-Occupation-Performance Model. (Reprinted with permission from Baum, C. M., Christiansen, C. H., & Bass, J. D. [2015]. The Person-Environment-Occupation-Performance [PEOP] Model. In C. H. Christiansen, C. M. Baum, & J. D. Bass [Eds.], Occupational therapy: Performance, participation, and well-being [4th ed., pp. 47-55]. Thorofare, NJ: SLACK Incorporated.) The strength of the CMOP-E is its emphasis on client-centeredness and its broadening of the concept of occupational performance to include engagement. In contrast to the earlier OPM, it emphasizes that a person’s occupational performance and engagement are contextualized within a cultural, institutional, physical, and social environment. However, central to the model is the notion of occupation as the bridge that connects person and environment. This differs from ecological models in which a transactive relationship exists among person, environment, and occupation. ECOLOGICAL MODELS In the 1990s, new occupational therapy models were developed that highlighted the importance of the context in which occupational performance occurs (Brown, 2014). Brown (2014) identified the following three ecological models: Ecology of Human Performance (EHP; Dunn, Brown, & McGuigan, 1994), Person-Environment-Occupation (PEO; Law et al., 1996), and Person-Environment- Occupation-Performance (PEOP; Baum & Christiansen, 2005; Baum, Christiansen, & Bass, 2015; Christiansen, 1991; Christiansen & Baum, 1997, with this model changing substantially in each version), although PEOP also conceptualizes occupation as a bridge (Figure 3-3). Referring to contemporary occupational therapy models at that time (largely influenced by the OPM), Dunn et al. (1994) stated, “In theory and in practice, context (as an area of concern for occupational therapists) has not received the same attention as performance components and performance areas” (p. 595). The term ecological refers to the interactions of organisms with each other and their environment (“Ecological,” n.d.). The ecological models in occupational therapy particularly emphasized that occupational performance occurs in and is shaped by specific contexts. These models were “built on social science theory, earlier occupational therapy models, and the disability movement” (Brown, 2014, p. 495). As with other occupational therapy models originally developed in the 1990s, ecological models consider occupational performance to be the primary interest of occupational therapists (with the latest 52 Chapter 3 Figure 3-4. Person-EnvironmentOccupational Model. (Reprinted with permission from Law, M., Cooper, B., Strong, S., Stewart, D., Rigby, P., & Letts. L. [1996]. The person-environment-occupation model: A transactive approach to occupational performance. Canadian Journal of Occupational Therapy, 63, 9-23.) version of PEOP identifying participation, performance, and well-being as the central concern; Baum et al., 2015) and recognize the dynamic and reciprocal relationship among person, occupation, and environment. Ecological models, particularly the PEO, are founded on the notion of “goodness-of-fit” (Brown, 2014, p. 495), where occupational performance is optimized by a close match between the following elements: the person’s skills and abilities and the affordances and demands of the occupation and environment (Figure 3-4). Because these elements are intertwined, they are not dealt with separately but as a whole. The various ecological models refer to the whole in different ways. For example, in PEO, an event is the unit of analysis (Law et al., 1996), in which the focus is on certain people doing particular things in specific places, at specific times. EHP uses the term performance range to refer to the tasks that are available to a specific person in a specific environment (Dunn et al., 1994). A change in any of the elements will cause alteration to their fit, resulting in changed occupational performance and participation (a change in the whole). Goodness-of-fit has a temporal dimension, and the elements of person, occupation, and environment will change over time (e.g., at different times in the life course and from moment to moment as people change what they are doing and move in and out of different environments; see Figure 3-4). Ecological models build on the traditional occupational therapy concept of people as unique. Each person is viewed holistically and is acknowledged as bringing unique personal attributes, capacities, and life experiences to the collaboration. However, using the example of the PEO, ecological models differ from occupation-based models such as the CMOP-E in that, rather than being client-/personcentered, the person is only one of three elements (person, environment, and occupation), the capacities, demands, and affordances of which must fit well together to promote occupational performance. From a transactional perspective, the person cannot be considered separately from their environment and, as Law et al. (1996) stated, “a person’s contexts are continually shifting and as contexts change, the behaviors necessary to accomplish a goal also change” (p. 10). Ecological models center on meeting goals for occupational performance and focus on the principle of goodness-of-fit when a person performs occupation in specific contexts. If any one or several of these elements change, then goodness-of-fit will alter. As people are constantly changing what they are doing and where, goodness-of-fit is not static but conceptualized as resulting from a dynamic process. All elements interact reciprocally and continuously across space and time to constrain or facilitate occupational performance (Brown, 2014). Like all occupational therapy models, need is defined in terms of a person’s specific concerns regarding occupation. Particular attention is paid to identifying the nature and extent of issues impeding the performance of occupations the person needs and wants to do (usually determined by his or her roles and preferred occupations; Law et al., 1996). Ecological models consider Models of Occupational Therapy occupational performance breakdown as resulting from poor person-environment-occupation fit (PEO fit). Occupational therapists use both subjective and objective methods to evaluate performance, participation, and the PEO fit and to understand the value and acceptability of the performance to the person (Law et al., 1996). They examine PEO fit using skilled observation of the whole event (the person performing the occupation in the natural environment) and analyzing when, where, how, and why the performance is breaking down. The occupational performance difficulty might result from a change in the person’s abilities, the way he or she undertakes the occupation or the demands of the environment, or some combination of these. Specific assessments may be undertaken to gain a more detailed understanding of any of the three elements: the person’s capacity and how this might be contributing to performance breakdown; examination of specific aspects of the environment; and occupational and activity analysis, to determine the demands of preferred and necessary occupation. However, assessments in ecological models do not consider the elements separately, but together. Therefore, examples of ecological assessment would include observing people demonstrating how they perform an occupation in their own homes; identifying through interview that someone experiences a challenge when performing an occupation in one environment while having no difficulty in a different environment; hearing a client report that since acquiring an impairment, he or she is no longer able to perform an occupation in the same way as previously in a familiar environment. The role of the occupational therapist in ecological models is to promote occupational performance by enhancing the PEO fit. These models encourage occupational therapists to use a broad range of intervention strategies aimed at making changes in the person, environment, and/or occupation (i.e., they are likely to be used in combination). When seeking to enhance the capacities of the person, they might use established rehabilitation principles, education, or tools to increase emotional well-being, such as motivational interviewing. If their intervention targets the environment, specific strategies might, for example, aim to change the various dimensions of the home. Interventions may be used to alter the demands of occupations such as grading and adapting and the provision of equipment. Dunn et al. (1994) outlined the following five principles of intervention: establish or restore an individual’s skills and abilities, alter or change the environment in which occupational performance is being undertaken, adapt the contextual features or task demands, prevent 53 difficulties arising, and create “circumstances that promote more adaptable or complex performance in context” (Dunn et al., 1994, p. 604). However, Law et al. (1996) cautioned that changes in any one of these areas will have an impact on the others, but not in a way that can be predicted. Therefore, occupational therapists need to be alert to unanticipated consequences of their interventions. In ecological models, the environment is one of three elements that lie in a transactive relationship. Drawing on theories of the environment from several disciplines, and also incorporating theories of environment-behavior (to provide a richer description of the relationship among people and their environments and occupations), ecological models conceptualize environmental contexts broadly as having cultural, temporal, social, socioeconomic, societal and institutional, and physical (natural and built environment) elements. Ecological models conceptualize the environmental context as shaping and being shaped by people (Turpin & Iwama, 2011). For example, the cultural environment shapes what people think and how they see the world, and this, in turn, shapes the cultural environment (often reinforcing shared culture; however, some strategies might specifically be employed to change attitudes). At an individual level, although EHP presents people as being surrounded by potential tasks, the environmental context will determine the specific performance range that is available to a person (often strongly influenced by that person’s roles; Dunn et al., 1994). The expected outcome of ecological models is that people will be able to perform the occupations that they need and want to do because the PEO fit has been enhanced. Evaluation measures that could be used include comparisons between assessments undertaken before and after intervention—goalbased assessments such as the COPM. Addressing Mrs. Hume’s Home Modification Needs Using an Ecological Framework In using an ecological model in the case of Mrs. Hume, the occupational therapist first recognizes the uniqueness of her experience of her condition; the occupations and roles that are expected of and/or preferred by her; and the environments in which she lives, works, and recreates and considers how these combine to affect her occupational performance and participation. Mrs. Hume’s occupational performance is likely to vary throughout the day, from one day to another, and into the future, depending 54 Chapter 3 on her capacities, the demands of her roles and occupations, and how the various environmental contexts constrain or enable performance and participation. The therapist will seek to optimize Mrs. Hume’s occupational performance by enhancing the congruence among her capacities and motivations, her occupations and roles, and the environmental contexts in which they occur. Using discussion and observation, the therapist will identify the nature and extent of occupational performance concerns in collaboration with Mrs. Hume. He or she will obtain an occupational history and profile and observe and analyze performance using standardized performance, occupational, and environmental assessment tools. The occupational therapist will identify Mrs. Hume’s occupational performance goals and, together with her, evaluate the quality of her performance to determine its acceptability and to ensure valued occupations are prioritized. These models recognize Mrs. Hume’s life experience, values, interests, personal attributes, and strengths and build on existing strategies and supports to develop interventions. With the notion of the goodness-of-fit in mind, the therapist will explore a range of alternative interventions with Mrs. Hume that could result in enhanced occupational performance and participation. These may include developing skills, exploring alternative ways of undertaking tasks, and making changes to the environment. Collaboration with Mrs. Hume is undertaken throughout so that a rich understanding of her life underpins the work of extending her involvement in occupations and roles and increasing her participation, where appropriate, in activities in the home and community. The therapist will work closely with Mrs. Hume to explore and evaluate various options to ensure that they fit with her requirements, preferences, personal style, and the way tasks are undertaken. In addition, the therapist will discuss the intervention options with Mrs. Hume to ensure that they will work within the cultural, socioeconomic, institutional, physical, and social aspects of her home environment and community. Therapists using these models are aware that any change to the person, occupation, or environment is likely to affect the other aspects in unanticipated ways. Hence, care is taken to examine these possibilities prior to recommending them and then to monitor unexpected outcomes following implementation. The occupational performance outcomes sought by Mrs. Hume form the foundation for evaluation, using tools that assess her satisfaction with her current performance as well as more objective measures of performance quality. In addition, measures of Mrs. Hume’s participation in the household, neighborhood, and wider community would be used. The therapist might encourage Mrs. Hume to write to her local council requesting improved accessibility to and additional seating in the shopping mall. Alternatively, the therapist might make representation to management of the local mall or local business community to advocate for better access or additional seating for older people and people with disabilities. The therapist might also join community or industry groups to advocate for more appropriate housing and better access to community facilities and services for older people and people with disabilities. People like Mrs. Hume would benefit if these were characteristic of their regular environmental contexts. Implications of Using an Ecological Model for Home Modifications Ecological models acknowledge the complexity and variability of occupational performance because of the dynamic transaction between the person, occupation, and environment. This closely reflects the reality of practice and enables occupational therapists to analyze and explain occupational performance in terms of the “goodness-of-fit” among person, occupation, and environment, rather than attributing problems to the individual. Ecological models also recognize the uniqueness of each person—their abilities, the way they perform tasks, and the personal nature of the home environment—and allow occupational therapists to understand and tailor interventions to specific situations. They shift the occupational therapists’ focus from evaluating the detail of each of the elements separately to trying to understand how they interact in the whole situation. Ecological models empower occupational therapists to take a holistic view of the person in context, attending carefully to what the person wants and needs to do and the specific features on the environments in which they need to perform these occupations. The models encourage therapists to gain a deeper understanding of each person’s perceptions of performance issues in their specific environments and to work with people to identify priorities, as well as existing strengths and supports, that can be used to promote occupational performance and participation. Occupational therapists work collaboratively with people and acknowledge the experience and knowledge that each person brings to the partnership. An understanding of the inevitable variability of occupational performance and participation (as outcomes) ensures that therapists develop solutions that are flexible enough to support performance across the day, the week, and into the future. By Models of Occupational Therapy providing a range of alternative intervention options aimed at enhancing PEO fit by one or several of following—improving the person’s capacity and skill, finding another way to perform the activity, or modifying the environment—therapists provide choices and assist individuals to build a repertoire of useful strategies to use in different situations. These models enable occupational therapists to work with individuals to deal with the complexity of the home environment and to determine how interventions might affect the cultural, socioeconomic, institutional, physical, and social aspects of the home environment and the community. They also require occupational therapists to look beyond just the home environment and to ensure that performance is supported in all of the environments in which the person operates. With an understanding of the complexity of the home environment and the uniqueness of each person, and knowledge that making a change in any of the three elements will alter the others, occupational therapists appreciate the need for follow-up to address any unexpected outcomes of interventions. The perceptions and experiences of the person are central to evaluating the success of the intervention, and the effectiveness of the solution is evaluated in terms of how well it reflects the goals and wishes of the individual and fits the unique PEO transaction. Finally, these models encourage therapists and the profession to look beyond the individual household and situation to examine how services, systems, and policies can be mobilized to further promote occupational engagement and performance, encouraging therapists to become involved in communities and systems to ensure all members of the community can fully participate in society (Brown, 2014). The image of the difference between maps and schedules when travelling is useful for considering the potential difficulties of using ecological models. Using this analogy, ecological models are more like maps than schedules. They are particularly valuable for taking an expanded, contextual view of occupational performance, but they might need to be combined with detailed assessment and intervention methods when putting them into practice. CULTURALLY SENSITIVE MODEL In response to the general lack of cultural relevance of existing occupational therapy models to the Japanese context, a group of Japanese occupational therapists led by Michael Iwama developed the Kawa model (Iwama, 2006). They found that existing occupational therapy models, all of which 55 had been developed in Western countries, were based on a very different worldview from that of Japanese culture. In particular, the focus on the individual and the notion of a centralized self had little resonance with the collectivist culture of Japan. In essence, the Kawa model is also an ecological model but adds extra symbolism, which can be useful to describe concepts of occupational therapy practice. The concepts of occupation and occupational engagement can be difficult to describe, particularly in other cultures where these terms are often confused with activity and function; although similar concepts, they do not reflect the full scope of occupational therapy practice. The model was initially developed to address the cultural relevance of occupational therapy models for Japanese society; however, it has found resonance in and been used with other collectivist cultures (e.g., Australian Aboriginal and Torres Strait Islander peoples) and with those from individualist cultures as well. The Kawa model uses the image of a river as a symbolic representation of life (Figure 3-5A). Just as a river flows from the mountains to the sea, a person’s life energy “flows” from birth to death. Water is used to represent this life energy, and the flow of water represents life flow. In a river, the flow of water is both shaped by the contours of the landscape through which the river flows and shapes that terrain. Thus, the river metaphor presents an individual’s life as deeply contextualized, shaped by and shaping the surroundings. In this model, the view of the person is informed by a collectivist rather than individualist viewpoint. In a collectivist culture, belonging is the most important aspect of life, and being and doing flow from this. This is in stark contrast to many occupational therapy models that prioritize doing, conceptualizing humans as occupational beings. The Kawa model emphasizes the interconnectedness of people and how their occupations are affected by this. As Iwama (2006) explained, “one’s own or one’s group’s occupations are interwoven and connected to the occupation of others.” The main focus of the model is promoting sukima, a Japanese word referring to the spaces between obstructions. Iwama (2006) refers to this as “where life energy still flows: the promise of occupational therapy” (p. 151). The strengths-based nature of the Kawa model is evident in its central concern. By focusing on the spaces, occupational therapists can build upon what is working for people in their particular contexts and work toward enhancing life flow for that person in that particular context. Turpin (2017) outlined the six steps followed when using this model: 56 Chapter 3 A B Figure 3-5. Kawa Model. (Reprinted with permission from Iwama, M. [2006]. The KAWA Model: Culturally relevant occupational therapy. Philadelphia, PA: Elsevier Health Sciences.) 1. Determine the relevance of the model and, if relevant, who should draw the river diagram 2. Clarify the context through discussion with the person(s) who draws the river 3. Prioritize issues according to the person’s perspective 4. Assess the focal points for intervention 5. Undertake intervention 6. Evaluate using person-centered goals Identifying current challenges facing the client is undertaken through drawing or conceptualizing the river. Although this will involve drawing the length of the river (to that point in the person’s life), a transection of that person’s “river” enables the occupational therapist to explore the current challenges the client experiences (Figure 3-5B). In the transection, the river elements and their relationships are presented through the various objects in and characteristics of the river. The Kawa model originally identified four elements of the river: water, river walls and floor, rocks, and driftwood (Iwama, 2006). To facilitate a strengths-based approach, two additional elements were later added: Orange Tang fish and sparkles. The river walls and floor shape the course and flow of the river, and objects in the river may obstruct or aid water flow. Each element is described as follows: Ô Water (Miso): Emphasizing the interconnectedness of people and their surroundings, life flow is represented by water, a liquid. In a collectivist society such as Japan, the group rather than the individual is often the primary focus. However, regardless of whether the social context is collectivist or individual, the liquid nature of water emphasizes that all people live within a context that shapes their lives (a liquid conforms to the shape of the container). Iwama (2006) explained that, in Japan, some of the meanings and functions of water are “fluid, pure, spirit, filling, [and] cleansing and renewing,” and he emphasized that the culturally specific understandings of the elements are important to elicit because they “will have significant bearing on the utility of this model in one’s practice” (p. 144). Ô The river walls and bottom (Kawa no sky-high and Kawa no Zoko, respectively): These elements, plus water, together form the central concern of the Kawa model. The river walls and floor represent the environment. In a collectivist culture, the social environment is emphasized, with particular attention paid to the social group to which a person belongs. In all cultures, the environments in which people live shape their lives (their life flow). Using the river metaphor, the sides and floor could be wide and deep, allowing water to flow easily, or they could be narrow and shallow, restricting its flow. Ô Rocks (Iwa—Japanese for large rocks and crags): In the model, these refer to life circumstances that impede life flow and are perceived by the person as “problematic and difficult to remove” (Iwama, 2006, p. 147). These could include conditions that have been present from birth (e.g., congenital conditions) or that have developed during a person’s life (e.g., acquired conditions). As Iwama stated, “Some of these rocks remain unremarkable until they butt up against certain aspects of the social and Models of Occupational Therapy physical environment” (p. 147) (e.g., a condition might not be problematic in some environments, but a person might be quite “disabled” in other environments). Ô Driftwood (Ryuboku): This represents personal attributes and resources. Examples include a person’s character, personality, values, and skills, as well as material (e.g.. wealth, equipment) and immaterial (e.g.. friends and family) assets. Driftwood can positively and negatively affect circumstances and life flow in that, using the river metaphor, they could enhance water flow when they knock obstructions out of the way or impede the flow of water when caught on the river walls or other obstructions. Ô Orange Tang and sparkles: These elements have been added since the original book on the Kawa model. The images of thriving fish and sparkling, clean water are associated with healthy environments. In the Kawa model, these elements represent those aspects of a person’s life that are going well. Their purpose is to emphasize the strengths basis of this model, rather than simply taking a deficit view. When using the Kawa model, the role of the occupational therapist is to promote life flow. This could be done in a wide variety of ways. Taking a strengths approach, occupational therapists would aim to build on aspects of the person’s life where life flow is occurring (sukima). From this starting point, they might explore with the person ways that obstacles (rocks) could be removed or altered to increase life flow and how personal attributes and resources (driftwood) could be strengthened or used to address obstacles (e.g., driftwood can be used to lever rocks). Occupational therapists might work with the collective or the individual, as most appropriate, and the first task is to determine who should draw the river (as this may not be confined to the person receiving services). In the Kawa model, once a good understanding of sukima and the river and its elements is obtained, a broad range of intervention strategies could be used. Intervention could be aimed at the context (river walls and floor) so that it better supports occupation. As context is understood very broadly and often includes a collectivist culture, intervention addressing the context is likely to include physical components, interpersonal elements (especially family), and the expectations associated with the social roles a person plays in society. Interventions could also aim to remove or alter obstacles to occupation and strengthen personal attributes and resources. Examples might include taking on new social roles 57 that will provide further opportunities for occupation or relinquishing others that obstruct occupation, teaching skills that will enhance personal attributes, and facilitating the acquisition of resources such as programs and equipment. Evaluation of intervention is important. As with the ecological models, because the Kawa model takes a holistic perspective, intervention targeting one aspect of the “river” will inevitably alter other aspects of it. As Iwama stated, “When change is introduced in any point in the context, all other parts of the whole are affected and also subject to change” (2006, p. 171). Therefore, occupational therapists need to be alert to unanticipated outcomes. Addressing Mrs. Hume’s Home Modification Needs Using a Culturally Sensitive Framework In the Kawa model, the central concern is promoting the person’s flow of life energy, which is conceptualized as shaped by and shaping the context in which he or she lives. Consequently, the occupational therapist would seek to understand how well Mrs. Hume feels her life energy is flowing within her broader life context, which will particularly include those with whom she shares her life. The focus would be on life within and around the home and community, with particular interest taken in Mrs. Hume’s roles and related occupations and how these are interwoven and connected to the roles and occupation of others. This contextual understanding, in which both strengths and challenges are identified, would be developed using the river drawing. The whole household might be involved in drawing a cross-section of the river at the current time, identifying obstacles, resources, and supports to life within the home. Mrs. Hume and her sister, who live in the house, and her daughter who visits regularly, could all contribute to the river drawing by sitting down together and talking about the various elements of the river. This process allows them to think about life in the home (the water—life flow) and what aspects of the house facilitate or restrict their lives (river walls and floor). The river metaphor facilitates discussion on the life they want and the areas of the home that support it (where the river is wide) or restrict it (narrowing of the river). The conversation can explore life within and around the home and how roles, occupations, and dimensions of the environment contribute. Mrs. Hume and her family might identify areas of the home where they are well supported to enjoy their valued roles and occupations, such as the lounge room where they read, watch television, and take an 58 Chapter 3 interest in the activities in the neighborhood. The bathroom and toilet might be identified as challenging because Mrs. Hume and her sister struggle with the existing layout and floor surfaces, which create uncertainty or restrict their enjoyment because they are worried about slipping and being injured, which would then prevent Mrs. Hume from continuing in her volunteer roles in the community. Mrs. Hume’s daughter might also highlight her growing anxiety about the safety and well-being of her mother and aunt when managing their medications and in dayto-day activities such as house maintenance. This discussion of the river drawing aims to generate a detailed understanding of each person’s viewpoint so that it provides an accurate representation of the household as a whole. In the cross-section of the river, the challenging and supportive elements of the home are identified and represented using rocks and driftwood. Using this strengths-based approach, evaluation and intervention are very closely intertwined because the evaluation focuses on identifying what is working well and what is not working (narrowing of the river), and interventions aim to enhance what is working well, thus expanding sukima (spaces where the water flows) while addressing identified challenges. During this process, the occupational therapist listens carefully to discussions in order to understand life within the home and to understand the family and their priorities, resources, and openness to alternatives. By encouraging people to discuss issues, the therapist develops a clear understanding of each person’s perspective and works with them as a group to ensure the drawing adequately represents their experiences. In developing the drawing, Mrs. Hume’s concerns about using the bathroom are raised by the group. Her reduced balance and agility are represented as rocks and the wet, slippery tiles are shown as narrowed river walls. The interaction between Mrs. Hume’s balance and mobility and the bathroom environment creates a high-risk situation, which may be addressed by changing the environment to reduce the risk and increase her ability to safely and confidently take a shower. This increases life flow by enhancing the spaces (sukima) between the rocks and river walls. Mrs. Hume currently manages her showering routine by being careful (driftwood) as she uses existing structures such as the shower screen and taps for support and always ensures her sister is at home when she is in the shower. Mrs. Hume’s late husband was a builder and, although she is open to suggested modifications, she is sensitive to making changes to the house he built (driftwood). The daughter who lives nearby is very supportive and has the capacity to house Mrs. Hume and her sister (driftwood) while the modifications are being made to the bathroom. Mrs. Hume and her sister are both resourceful people (driftwood) and willing to actively explore alternative strategies, the use of equipment, or other resources in the environment with the occupational therapist. Mrs. Hume has savings that she is happy to invest in making the modification suit her preferences. Her family is able to contribute financially. In addition to the drawing and associated discussion, the occupational therapist uses observation and evaluation tools to examine occupational performance in various areas of the home to quantify the magnitude of issues and ascertain their quality and nature. For example, the therapist might ask Mrs. Hume to demonstrate her showering routine to identify tasks within the activity where her safety is at risk to then discuss where further supports could address these risks and enhance her showering experience. The therapist then presents a range of recommendations that address observed problems while building on strengths. Because Mrs. Hume already uses structures in the bathroom to keep herself safe while showering, the therapist can capitalize on this and introduce safer structures into the bathroom, such as well-placed grab bars, where she is currently seeking support. However, because the shower screen cannot support a grab bar, the therapist would suggest reversing the direction of the shower door opening so that a grab bar can be attached to the wall to provide support as Mrs. Hume or her sister step over the hob. The occupational therapist would discuss the implications of this potential change for both Mrs. Hume and her sister to ensure that any changes would increase the sukima for everyone in the household. The drawing and subsequent discussions would be undertaken in the home, around a table, with all relevant people present. The conversation would acknowledge the social aspects of the environment and the roles each person plays in the household, family, and community. The interpersonal relationships are privileged in the discussion, allowing everyone to contribute to the creation of solutions. The physical environment is modified to reduce barriers and promote occupation according to the solutions that were chosen. The outcomes of a home modification would be examined in terms of how it contributes to the life flow for Mrs. Hume and her sister. A new river drawing following the modification could be compared with the initial drawing to discuss the extent to which changes increased life flow and enhance roles and occupation and whether any changes have occurred that may have narrowed Models of Occupational Therapy the river unexpectedly. These would be addressed by revisiting the collaborative process previously outlined. Implications of Using a Culturally Sensitive Approach to Home Modifications The Kawa model is essentially an ecological model that is culturally sensitive, seeing people within their context. Although it was originally designed to work with people from a collectivist culture, it also provides a transformative framework for working with households undertaking home modifications in individualist cultures. It recognizes the pervasive impacts of any changes to home on the whole household. The home is a collective of people who are intertwined financially, socially, physically, and through the rhythms of daily occupations, as well as past experiences and future aspirations. The relevance of drawing a river to home modification practice may not immediately be clear to some occupational therapists and clients because the expectations would be for the therapist to provide solutions rather than engage in a collaborative process. However, drawing the river provides an opportunity for all members of the household to contribute to the conversation about life within the home. It shifts the focus from identifying problems for an identified individual and implementing specific interventions to considering how the household works as a whole and how best to support a rich and healthy home life. Although this process might appear to be more time consuming, it allows the occupational therapist to develop a richer and more comprehensive understanding of the home life, which may save time negotiating options that are unacceptable to the people in the household because the context of the home was not well enough understood. It also increases the likelihood that all people in the household have a vested interest in the solutions that are developed. This visual tool allows the client to engage in a collaborative, creative process and to own and control the process and discussion because he or she is doing the drawing rather than being the recipient of a litany of targeted questions from the occupational therapist. The metaphor of the river allows the household to identify issues to address without being constrained by a professional lens. This is particularly useful when working with families who have children with a disability. For example, a family might want their daughter with a disability to have the experience of being involved in preparing the 59 family dinner. This issue might not have been raised if the therapist’s protocol was driving the encounter. Working with families using the Kawa model ensures interventions are appropriate to the rich ecosystem of the household and the lives people want, rather than being focused on the needs of a particular individual. Being a strengths-based model, it recognizes and builds on what is working well and what people want to achieve rather than defining and addressing problems. The potential difficulty in using the Kawa model is that it is based on a very different worldview than most other occupational therapy models and is thus less familiar for Western occupational therapists. Although it can be used as “simply another personenvironment-occupation model,” when occupational therapists take on this different worldview, the true transformative nature of this model can be realized. However, the task of seeing the world from a different vantage point is a difficult one that requires deep reflection on one’s own culture and way of seeing the world. CONCLUSION Occupational therapists use models, either implicitly or explicitly, to define their scope of concern and role, identify and understand issues or problems, determine appropriate evaluation and intervention strategies, and evaluate outcomes. Conceptual models provide overview concepts and describe the relationships between the identified elements, and procedural models specify a procedure for attending to issues and elements. Therapists need both conceptual and procedural models to operate effectively because practice requires therapists to have an understanding of all of the elements of concern and their interactions, as well as a plan of action. However, therapists need to be aware of the models they draw on in practice and ensure that their actions echo their stated focus and goals. Each model presented in this chapter conceptualizes the person, occupational performance, environment, and interaction between these in different ways, all of which have an impact on how occupational therapists engage with issues and implement environmental interventions. The rehabilitation model provides therapists with knowledge of body structures and functions and allows them to reduce the amount of residual impairment resulting from an injury or health condition and to promote function and independence. However, without a deeper understanding of the particular difficulties an individual is experiencing 60 Chapter 3 in daily activities, interventions are not tailored to the specific needs of the individual and may result in changes that are ineffective or unacceptable in the home environment. In shifting the focus of therapy to occupational performance and engagement, the CMOP-E guides occupational therapists in a client-/person-centered approach to enabling occupation. The goal of an occupational therapist using this model is to enable people’s engagement in everyday life, their occupational performance, and a just society in which all people are able to participate. People’s occupational performance and engagement are conceptualized as embedded within a cultural, institutional, physical, and social environment. The ecological models, with their understanding of the dynamic transaction among person, occupation, and environment, provide a holistic framework for addressing the complexities that individuals encounter when undertaking everyday activities in the home and community. They recognize the continual change that occurs because people continuously change their occupations and the environments in which they are performed. Recognition of the environment as a means of limiting and creating occupational performance opportunities also enables therapists to actively use the environment to promote participation within the home and community. Both ecological models and the CMOP-E encourage therapists to move beyond working with individuals to becoming agents of change within the community, thus ensuring equitable participation for all. The Kawa model is an ecological model that differs from most occupational therapy models in its symbolism and worldview. Based on a collectivist worldview, it encourages occupational therapists to consider the interconnectedness of their clients’ occupations with those of others in their lives. Models provide a framework for thinking and clinical decision making and a structure that ensures systematic and comprehensive practice. When therapists are aware of the concepts shaping their practice, they are well placed to reflect on their practice and articulate their unique contribution to stakeholders. Selection of evaluation and intervention strategies is also thoughtful and well informed, and the goal and outcomes of interventions are clearly defined. Occupational therapy has a rich history of describing and refining the models that shape practice. It is important that these continue to be thoughtfully applied to achieve good home medication outcomes for clients. REFERENCES American Occupational Therapy Association. (1973). Project to delineate the roles and functions of occupational therapy personnel. 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Boyt Schell (Eds.), Willard and Spackman’s occupational therapy (10th ed., pp. 5-14). Philadelphia, PA: Lippincott Williams & Wilkins. Seidel, A. C. (1998). Theories derived from rehabilitation perspectives. In M. E. Neistadt & E. B. Crepeau (Eds.), Willard and Spackman’s occupational therapy (9th ed., pp. 536-542). New York, NY: Lippincott-Raven. Tabbarah, M., Silverstein, M., & Seeman, T. (2000). A health and demographic profile of non-institutionalized older Americans residing in environments with home modifications. Journal of Aging and Health, 12(2), 204-228. Tamaru, A., McColl, M. A., & Yamasaki, S. (2007). Understanding “independence”: Perspectives of occupational therapists. Disability and Rehabilitation, 29(13), 1021-1033. Townsend, E. A., Beagan, B., Kumas-Tan, Z., Versnel, J., Iwama, M., Landry, J., . . . Brown, J. (2013). Enabling: Occupational therapy’s core competency. In E. A. Townsend & H. J. Polatajko (Eds.), Enabling occupation II: Advancing an occupational therapy vision for health, well-being & justice through occupation (2nd ed., pp. 87-134). Ottawa, ON: Canadian Association of Occupational Therapists. Townsend, E. A., & Polatajko, H. J. (Eds.). (2007). Enabling occupation II: Advancing an occupational therapy vision for health, well-being & justice through occupation. Ottawa, ON: Canadian Association of Occupational Therapists. Trombly, C. A. (1995). Occupation: Purposefulness and meaningfulness as therapeutic mechanisms. American Journal of Occupational Therapy, 49(10), 960-972. Turpin, M. (2017). Occupational therapy practice models. In M. Curtin, M. Egan, & J. Adams (Eds.), Occupational therapy for people experiencing illness, injury or impairment: Promoting occupation and participation (7th ed., pp. 115-133). New York: Elsevier. Turpin, M & Iwama, M. (2011). Using occupational therapy models in practice: A fieldguide. Edinburg, UK: Churchill Livingstone, Elsevier. Uniform Data System for Medical Rehabilitation. (1997). Functional independence measure (Version 5.1). Buffalo, NY: Buffalo General Hospital, State University of New York. World Health Organization. (1980). The international classification of impairments, disabilities and handicaps (ICIDH). Geneva, Switzerland: Author. World Health Organization. (2001). International classification of function, disability and health. Geneva, Switzerland: Author. 4 Legislation, Regulations, Codes, and Standards Influencing Home Modification Practice Elizabeth Ainsworth, MOccThy, Grad Cert Health Sci; Desleigh de Jonge, MPhil (OccThy), Grad Cert Soc Sci; and Jon Sanford, MArch, BS This chapter provides an overview of the worldwide range of legislation and guidelines relevant to promoting the rights of people with a disability through access to the built environment. Human rights conventions and disability discrimination legislation have shaped community values, design and construction practice, and service delivery to ensure that older people and people with a disability are afforded equitable access to goods, services, and the built environment within the community. In particular, building regulations, building codes, and access standards that incorporate access and mobility requirements have sought to address discrimination that might occur because of barriers in public facilities and spaces. Although legislation and guidelines have focused primarily on public facilities, they are not without impact on housing. Legislation and guidelines relating to the design of accessible housing continue to emerge in a range of countries through the efforts of people concerned about the lack of inclusive environments. With an enhanced understanding of the relevance and application of individual rights and building legislation, occupational therapists will be better equipped to promote the inclusion of older people and people with a disability into everyday home and community life and to empower them to claim their rightful place in society. CHAPTER OBJECTIVES By the end of this chapter, the reader will be able to: Ô Describe the development of international human rights conventions and the implications for older people and people with a disability - 63 - Ô Discuss disability discrimination and building legislation and their impact on the design of public and private built environments Ô Understand the relevance and application of rights-based legislation and building legislation to the design and modification of the home environment Ô Understand the application of the complaints and remedial processes that are used in relation to rights-based legislation and building legislation Ainsworth, E., & de Jonge, D. An Occupational Therapist’s Guide to Home Modification Practice, Second Edition (pp. 63-81). © 2019 SLACK Incorporated. 64 Chapter 4 INTERNATIONAL FRAMEWORK FOR THE CREATION OF INCLUSIVE ENVIRONMENTS Integrating people with a disability into the community and enabling them to live in homes they can call their own requires an understanding of the international convention on the rights of people with a disability and the emergence of rights-based legislation over time. Though people with a disability were once seen as being dependent on welfare, social assistance, or charity, they are now regarded primarily as citizens with equal rights and obligations. The following discussion briefly describes recent changes in the definition and models of disability, how these have influenced the development of legislation, and service delivery to people with a disability. Nations High Commissioner for Human Rights, 2006; Swain, 2004). As a result, the WHO (2001) has adopted a social definition of disability. The new International Classification of Functioning, Disability and Health not only defines disability as the interaction of body function and structure with contextual (i.e., environmental and personal) factors, but it has extended it to include the activity and participation outcomes that result from this interaction. The environment is viewed as either a barrier or facilitator to activities and participation in social roles (WHO, 2001). Simply put, for an individual with an impairment (e.g., cannot ambulate), the typical home environment (e.g., stairs) can pose barriers to everyday activity (e.g., getting in and out of the house) and participation in social roles (e.g., neighbor interaction), whereas home modifications (e.g., ramp) can facilitate these outcomes. Definition of Disability Importance of Social Models of Disability The definition of disability has changed significantly in recent decades. Prior to the end of the 20th century, disability was defined using the medical model that attributed disability to health conditions. Disability was seen as a problem within the person—a result of an individual’s physical or mental limitations. A traditional definition of disability, widely promulgated by the World Health Organization (WHO), described disability as “any restriction or inability resulting from a disturbance or loss of bodily or mental function associated with disease, disorder, injury, or trauma, or other healthrelated state” (WHO, 1980, p. 143). In the last decade of the 20th century, a number of new models of disability began to emerge based on Nagi’s work (1965, 1976) that defined disability as the outcome of an interaction between impairment and environmental factors (Institute of Medicine, 1991, 1997; National Center for Medical Rehabilitation Research, 1993). Social models of disability emerged that differed slightly from the medical model regarding the relationship among medical conditions, impairments, functional limitations, and the effects of the interaction of the person with the environment. Generally, these models agreed that disability was a function of the interaction of the person with the environment (Brandt & Pope, 1997). Social models of disability continued to develop and evolve as people with a disability, their advocates, and organizations supporting them sought to use these to stimulate change in society (Office of the United Social models of disability have encouraged a shift in focus from flaws or deficits in the individual (as described in the medical model or individual model of disability) to activity restrictions or barriers created by a society that excludes people from participating in everyday life in the community (Harrison & Davis, 2001; Oliver, 1990, 1996). These models describe disability as a complex phenomenon created, in part, by features of the physical, economic, and political environment and not simply a manifestation of a person’s impairment (Australian Institute of Health and Welfare, 2003; Dickson, 2007; Harrison & Davis, 2001; Samaha, 2007). The environment is seen to facilitate participation that enables the fulfillment of roles appropriate to age, gender, and social and cultural identity. Alternatively, it can contribute to isolation, limiting achievement of daily activities and restricting participation in social, cultural, and community activities (WHO, 2001). The social models of disability provide frameworks for the formulation of appropriate recommendations to create reasonable and necessary environments that provide appropriate access for people with a disability (Kornblau, Shamberg, & Kein, 2000). It challenges occupational therapists to reconsider their individualistic and medical approaches to occupational performance problems and encourages them to identify and eliminate social and environmental barriers to performance and participation (Whalley Hammell, 2001). Legislation, Regulations, Codes, and Standards Influencing Home Modification Practice Though social models of disability have facilitated a shift from focusing on individual deficits to examining disabling environments and practices, they are under increasing scrutiny. Like the medical model and other theorizations of disability, these models by no means provide a comprehensive description of the experience of disability and are considered reductionist in nature (Imrie, 1996). In particular, social models have a tendency to ignore how impairment, in and of itself, has the potential to debilitate, regardless of the environmental and social conditions (Imrie & Hall, 2001a; Shakespeare & Watson, 2001). Although it is undeniable that environments and social practices can alienate and disable people, addressing these issues alone might not eliminate the difficulties people with impairments experience (Shakespeare & Watson, 2001). Further, environmental design and social manipulations cannot always prevent the personal experience of physical and intellectual restrictions (Imrie & Hall, 2001a). It is therefore important to take appropriate action to address impairment in conjunction with removing environmental barriers and disabling practices (Shakespeare & Watson, 2001). Whatever model of disability is used, it is critical that all of the dimensions of the person’s experiences are considered, including those of a physical, psychological, cultural, social, and political nature, rather than simplifying disability and operating within a medical or social model (Shakespeare & Erickson, 2000). DISABILITY LEGISLATION The social models of disability, with their recognition of the environment’s influence on the experience of disability, has influenced the development of specific legislation and guidelines aimed at protecting the rights of people with a disability in a range of countries. The creation of a variety of international declarations, rules, or conventions and national legislative acts protects the human and civil rights of people with a disability throughout the world (Hurst, 2004). Human Rights Protections Human rights are those rights that are inherent in an individual’s humanity. They sit above humanmade laws and exist whether there are national laws to uphold them or not (Hurst, 2004). The universal establishment of human rights is regarded as the single most important political development influencing social change. 65 The rights of people with a disability have been the subject of much attention in the United Nations (U.N.; Office of the United Nations High Commissioner for Human Rights, 2006). Through the creation of various declarations, rules, and conventions, people with a disability are now recognized as legitimate citizens in society. The first indicators of international concern regarding the rights of people with a disability were described in the U.N. Declaration on the Rights of Mentally Retarded Persons (1971) and in the U.N. Declaration on the Rights of Disabled Persons (1975). Although these declarations did not detail the monitoring mechanisms or the reporting obligations of the international community, they served as the framework for human rights protections for people with a disability worldwide. As a result, they are regarded as the most important milestones in the development of equal rights for people with a disability (Imrie & Hall, 2001a). The 1975 U.N. Declaration on the Rights of Disabled Persons clearly called for national and international action to protect the rights of individuals with a disability. It specifically stated that Disabled persons have the right to live with their families or with their foster parents and to participate in social, creative or recreation activities. No disabled person shall be subjected, as far as his or her residence is concerned, to differential treatment other than that required by his or her condition or by the improvement which he or she may derive therefrom. If the stay of a disabled person in a specialized establishment is indispensable, the environment and living conditions therein shall be as close as possible to those of the normal life of a person of his or her age. (U.N., 1975) In the following decades, the U.N., through various activities, continued to promote human rights for people with a disability. The U.N. General Assembly proclaimed 1981 the International Year of the Disabled. In 1982, the General Assembly adopted the World Program of Action Concerning Disabled Persons, which established a world strategy to promote equality and full participation by people with a disability in social life and development. In 1983, the U.N. declared the ensuing 10 years to be the U.N. Decade of Disabled Persons (1983–1992). Because of the experience gained during the Decade of Disabled Persons, the U.N. adopted a resolution entitled Standard Rules on the Equalization of Opportunities for People With Disabilities in 1993. The purpose of the resolution was to ensure that people with a disability could exercise the same rights and have the same obligations as others (Degener & 66 Chapter 4 Quinn, 2000; Mooney Cotter, 2007). It established broad principles to guide nation states in developing domestic antidiscrimination and equal opportunities legislation (Imrie & Hall, 2001a). Although the Standard Rules on the Equalization of Opportunities for People With Disabilities are considered to be the key moral imperative for change on a worldwide basis (Degener & Quinn, 2000), they were, nonetheless, nonbinding. As a result, disability rights activists and scholars have pressed for the adoption of a new worldwide convention on the elimination of discrimination against people with a disability (Degener & Quinn, 2000). In response, the U.N. Convention on the Rights of Persons With Disabilities and its Optional Protocol were adopted on December 13, 2006, at the U.N. headquarters in New York and were opened for signature and ratification on March 30, 2007. The convention is considered the first comprehensive human rights treaty of the 21st century (U.N., 2008). The convention marks a “paradigm shift” in attitudes and approaches to people with a disability, moving them from being viewed as “objects” of charity requiring medical treatment and social protection to “subjects” with rights, who are capable of claiming those rights (U.N., 2008). Further, the convention emphasizes that people with a disability can make decisions about their lives based on their free and informed consent, as well as being full and active members of society (U.N., 2008). Unlike the Declaration on the Rights of Mentally Retarded Persons (U.N., 1971) and the Declaration on the Rights of Disabled Persons (U.N., 1975), the convention boldly sets out a plan of action for countries to enact laws and take other measures to improve disability rights and to eliminate legislation, customs, and practices that discriminate against people with a disability. The U.N. declarations have also highlighted the rights of people with a disability to have access to the physical environment. The move to incorporate accessibility requirements into the various declarations, rules, and conventions is considered one mechanism by which people’s citizenship can become a tangible outcome. The most recent U.N. Convention on the Rights of People With Disabilities (2008) details specific requirements with respect to accessibility to the built environment. However, it does not describe what accessibility should look like or how it should be created, leaving it up to the various nations that sign and ratify the convention to detail specifications and develop mechanisms for implementation and monitoring compliance. As a result, there continues to be a great deal of political diversity and complexity in providing appropriate access, conditioned by country-specific social, institutional, and political attitudes and values (Imrie & Hall, 2001a). Some countries have legislation in place to ensure there is appropriate access to public buildings; however, the convention does not stipulate how nations should meet their responsibilities in terms of access to adequate housing. Further work is needed at an international level to ensure that well-designed housing is available for people with a disability (Imrie & Hall, 2001b). Nations might use a range of strategies to facilitate the creation of appropriate housing, including the following: Ô Building publicly funded housing and accommodation programs Ô Ensuring building regulation and certification through national, state, or local government programs Ô Enforcing antidiscrimination laws Ô Introducing industry incentives Ô Providing education and awareness training (Ozdowski, 2005) Disability Discrimination Legislation and Civil Rights Although changes to the built environment go some way to providing people with a disability access to facilities and services in the community, they cannot fully eradicate misconceptions and disablist attitudes in society. Such values and structures are better influenced through the pursuit of civil rights for people (Imrie, 1996). One of the basic human rights is freedom from discrimination, and antidiscrimination legislation ensures that this right, through civil rights laws or others, such as social welfare, constitutional, or criminal laws, can be enforced (Hurst, 2004). Historically, people with a disability have been excluded from or marginalized in the community through discrimination. Disability discrimination means treating a person with a disability less favorably for a reason related to that person’s disability, without justification (Hendricks, 1995; Williams & Levy, 2006). To ameliorate disability discrimination, many countries have enacted legislation to mandate that people with a disability be afforded the right to fully participate in all aspects of society. Although many countries have some form of disability discrimination legislation, the enforcement method, strength, and effectiveness of this legislation vary considerably (Gleeson, 2001). In an analysis of international disability discrimination legislation, Degener and Quinn (2000) identified that the scope of the terminology and definitions differs substantially between Legislation, Regulations, Codes, and Standards Influencing Home Modification Practice countries. They identified that some of the most comprehensive disability discrimination laws exist in Australia, Canada, Hong Kong, the Philippines, the United Kingdom, and the United States. Their analysis included employment, provision of goods and services, and transport. Additional areas specified included housing (Canada and Australia), education (United States and Australia), land possession (Australia), access to premises (Canada, United Kingdom, and Australia), and telecommunications (United States and Australia). The strength of disability rights legislation can be attributed to different forces in different countries. In the United States, the empowerment and influence of disability advocacy groups, such as Vietnam veterans returning from war championing the need for change (Barnes, Mercer, & Shakespeare, 1999), was instrumental in moving welfare reform toward civil rights law (Degener & Quinn, 2000; Waddington & Diller, 2007). In the United Kingdom, civil rights laws focused less on individual rights and more on the achievement of social-policy gains (Gleeson, 2001). Because there is no written constitution in Britain, the rights-based advocacy model, Gleeson points out, has not been adopted. Whereas the widespread politicization of people with a disability and an advocacy group approach has been used successfully in the United States to bring about legislative change, other countries, such as the United Kingdom where various disability groups have not been as unified and effective in influencing change (Imrie, 1996), have relied on charities to drive the process (Gleeson, 2001). In contrast, Australia and New Zealand have secured improved civil rights and social structural change, largely through initiatives in state-government policy regimes (Gleeson, 2001). The United States was one of the first countries to adopt antidiscrimination legislation and civil rights laws, starting with scattered equality provisions in various laws (Degener & Quinn, 2000). Legislation within the United States began with general civil rights legislation in 1964. This seminal piece of legislation did not specifically target people with a disability, but instead served as the basis for a series of disability-specific laws that covered both the U.S. federal government and the country as a whole (Fletcher, 2004; Peterson, 1998). The push for civil rights legislation in the United States continued with the development of more comprehensive laws, such as the Americans With Disabilities Act (ADA) in the 1990s. Table 4-1 outlines the history of the development of U.S. legislation, regulations, and standards. The ADA (1990) represents not only the centerpiece of U.S. civil rights legislation related to people with a disability, it is also a landmark piece of legislation 67 throughout the world. The intent of this legislation is to ensure that people with a disability experience equal opportunity, full participation, independent living, and economic self-sufficiency, and it is considerably more extensive in its coverage than other U.S. legislation (Department of Employment, Education, Training, and Youth Affairs, 1997). Not only does it give people with a disability the same protection as other groups, it also seeks to integrate people with a disability into the social mainstream and to break down barriers created by prejudice (Waddington & Diller, 2007). The ADA requires planners to consider access as being more than a technical or design issue and to understand its role in social injustice (Imrie, 1996). As rights-based legislation, it has heightened society’s awareness of the built environment and the part it has played, and continues to play, in isolating and alienating people with a disability (Imrie, 1996). Further, it has increased the visibility of people with a disability in society, provided them with legal and often moral means of influence, and transformed some aspects of service provision for people with a disability (Imrie & Hall, 2001a). TRANSLATING LEGISLATION INTO REGULATIONS In the United States, when Congress passes a piece of legislation, it becomes a law. Laws dictating social policy alone, such as the ADA (1990), are generally insufficient to achieve accessibility. Consequently, building laws and state legislation that allow states to enforce building codes (including accessibility provisions) have also been promulgated to protect the rights of individuals with a disability. There are also design guidelines to assist developers to fulfill the requirements of these laws. These guidelines then serve as the basis for nominating the standards that detail the technical information. Figure 4-1 illustrates the relationship between laws, guidelines, and standards. The ADA is a comprehensive but complex law and is considered to have a “patchwork quilt” of regulations associated with it (Ostroff, 2001). For example, the Architectural Barriers Act (ABA) of 1968 was initially developed to ensure access to facilities designed, built, altered, or leased with federal funds. This law was one of the first efforts to ensure access to the built environment; however, unlike the ADA, it did not have its basis in equal rights. Under the ABA and ADA, the Access Board develops and maintains accessibility guidelines. These guidelines specify minimum or baseline 68 Chapter 4 Table 4-1. Developments in U.S. Legislation, Standards, and Design Documentation LEGISLATION STANDARDS AND DESIGN DOCUMENTATION 1964 Civil Rights Act 1961 ANSI A117.1 Making Buildings Accessible For and Usable by the Physically Handicapped (American National Standards Institute [ANSI], 2003)— Voluntary access standards unless adopted by state or local governments 1966 30 states pass the accessibility legislation to use A117.1 1968 National Commission on Architectural Barriers to Rehabilitation of the Handicapped (NCABRH) report, Design for All Americans, establishes groundwork for future accessibility legislation 1965 Formation of the NCABRH (1967) 1968 ABA (Public Law 90-480)—Those buildings and facilities designed, constructed, altered, or leased with federal funds required to be fully accessible 1973 49 states pass accessibility legislation to use ANSI A117.1 1973 Access Board created under Section 504 of the Rehabilitation Act 1973 1973 Rehabilitation Act 1978 Rehabilitation Act amended—Authorizes the Access Board to establish minimum accessibility guidelines under the ABA and to ensure compliance with requirements 1988 Fair Housing Amendments Act (FHAA)— Expands the coverage of the Civil Rights Act 1968 to cover families with children and people with disabilities; access required for multifamily dwellings consisting of four or more units, both public and private 1980 ANSI A117.1 revision 1982 Minimum Guidelines and Requirements for Accessible Design (MGRAD)—Access Board issues minimum guidelines under the ABA that form the basis for enforceable standards 1984 Uniform Federal Accessibility Standards (UFAS)—Four federal agencies jointly adopt standards to enforce the ABA, based on MGRAD, and cover newly constructed or renovated buildings built with federal funding, including public housing 1986 ANSI A117.1 revision 1990 ADA (Public Law 101-336)—Extends civil rights protection to people with disabilities; prohibits discrimination in the full and equal enjoyment of goods, services, facilities, privileges, advantages, or accommodations of any place of public accommodation (Title III) and state or local government (Title II). New building construction and alterations to be accessible, publicly and privately funded. Access requirements applicable to common areas for multiunit accommodation. 1991 ADA Accessibility Guidelines (ADAAG)— Covers access in new construction and alterations to places of public accommodation and commercial facilities covered by the ADA; also applicable to state and local government facilities. Guideline serves as the baseline of standards used to enforce the ADA; the Access Board issued supplements to ADAAG covering state and local government facilities (1998), children’s environments (1998), play areas (2000), and recreation facilities (2002). 1991 Fair Housing Accessibility Guidelines (FHAG) (Housing and Urban Development)—Guides design requirements for multifamily housing 1992 Council of American Building Officials (CABO)/ANSI A117.1 revision 1998 CABO/ANSI A117.1 revision 2003 International Code Council/ANSI A117.1 revision 2004 ADA-ABA Guidelines—The Access Board jointly updates its guidelines under the ADA and ABA to make them more consistent. Enforcing agencies under the ADA and ABA adopt new standards based on these updated guidelines. Legislation, Regulations, Codes, and Standards Influencing Home Modification Practice design criteria for regulations and standards to fulfill the requirements of these laws, but they are not enforceable unless a recognized agency adopts them as regulations. Prior to 2004, the ADA and ABA had separate guidelines. For example, the MGRAD (Architectural and Transportation Barriers Compliance Board, 1981) was first issued in 1982 as the accessibility guidelines for the ABA. Similarly, the ADAAG (1991) was developed by the Access Board to support civil rights legislation (ADA) by addressing accessibility to all public facilities, regardless of whether they receive federal funding (Nishita, Liebig, Pynoos, Perelman, & Spegal, 2007). These were periodically revised and, in 2004, were combined to form a uniform set of guidelines—the ADAABA Accessibility Guidelines—to cover both acts and to be more compatible with ANSI A117.1 (2003), the model accessibility code that is referenced in most U.S. building codes. By 2009, all federal agencies, with the exception of the U.S. Department of Housing and Urban Development (HUD), had adopted the ADA-ABA Accessibility Guidelines as mandatory to ensure building accessibility in the public and private sectors. Guidelines developed to reinforce the ADA and ABA serve as a baseline for the development of standards. Standards provide the technical information required to make spaces or elements accessible. This includes detailing specifications, such as dimensions, materials, and slope or gradient requirements (Bowen, 2009). In 1984, the UFAS (1988) was developed to enforce the ABA and Section 504 of the Rehabilitation Act (1973) for buildings constructed with federal funding, including public housing. UFAS was the result of combining accessibility standards developed by four separate federal agencies to comply with the Architectural and Transportation Barriers Compliance Board’s MGRAD (1981). Similarly, in 1994, the ADA standards were developed by the Department of Justice to enforce the ADA legislation and to ensure equal access in and out of commercial buildings and places of accommodation. The ADA standards have their basis in the ADAAG developed by the Access Board. Over time, the Access Board has combined both the ADA and ABA Guidelines into one unified set of guidelines (ADA-ABA Accessibility Guidelines, 2004). By 2009, some of the federal agencies vested with enforcing the ABA adopted the new ADAABA guidelines. However, by 2009, neither enforcing authority for the ADA had adopted the new version of the ADAAG as ADA Accessibility Standards. As a result, the new guidelines are not mandatory unless adopted by these authorities. Because federal laws (ADA) and regulations take precedence over state 69 Figure 4-1. Hierarchy of enforceable regulations to support legislation. and local laws and regulations, state/local laws/ regulations have to meet the minimum requirements of the federal laws, although they can specify higher standards (Rogerson, 2005). There is a complex array of legislation covering various building types in the United States. For example, building works addressed by various pieces of legislation include the following: Ô Construction or alteration of state and local government and commercial facilities (ADA) Ô Access to buildings constructed, leased, or funded by the federal government (ABA) Ô Access to public spaces in multifamily housing (ADA) Ô Construction or renovation of public housing (Rehabilitation Act) Ô Construction or modifications to federally funded, designed, leased, or altered accommodation (ADA) Ô Construction and modifications to multifamily housing through specific housing legislation (FHAA) Ô Construction and modification of federally assisted single-family housing and townhouses, (Eleanor Smith Inclusive Home Design Act— revised 2013) 70 Chapter 4 Table 4-2. Types of Facilities Addressed by Various Laws, Guidelines, and Standards LAW GUIDELINES ADA (civil law) 1991: ADAAG 1992, 1998, 2004: ADA-ABA 2003: ANSI A117.1 Guidelines Construction or alteration of facilities in both public (state and local government facilities) and private (places of public accommodation and commercial facilities) sectors, including places of public accommodation and commercial, state, and local government buildings and public spaces within multifamily housing ABA (building law) 1982: MGRAD 1988: UFAS All buildings constructed by or on behalf of the United States leased by the federal government or financed by federal dollars UFAS New construction or renovation to a building using assistance from the federal government, including public housing 504 Rehabilitation Act (civil law) STANDARD TYPE OF FACILITIES Fair Housing Act (FHA) 1968 (building law) FHAG (1991) ANSI A117.1 Sale, rental, and financing of private and public housing as well as the physical design of multifamily housing—four units of more or as few as two attached units that are not owner occupied FHAA 1988 (building law) FHAAG (1991) ANSI A117.1 Residential structures of four or more units. Newly constructed multifamily dwelling units. Visitability (selected states) Private, single-family residences Each of these laws has associated guidelines and standards that address design requirements of the specific facilities covered by the legislation (Table 4-2). IMPLEMENTING AND MONITORING ACCESS REQUIREMENTS There are various mechanisms for implementing and monitoring compliance with legislation and building regulations. As discussed in the previous section, the design of guidelines and standards is fundamental to ensuring buildings and facilities allow equitable access. These standards and guidelines assist designers, developers, and builders in the design and building of accessible facilities. Building on the requirement of Section 504 of the 1973 Rehabilitation Act, the ADA requires that government entities receiving federal funds ensure access to all new facilities and develop plans to correct deficiencies in existing facilities. To promote accessibility, there is training in ADA requirements, design guidelines and standards, and technical assistance via toll-free hotlines and publications (Ostroff, 2001). To check compliance, builders can undertake activities, including engaging experts to review plans, changing contract documents with design and construction firms to ensure proper responsibility, and completing construction site inspections and post-construction inspections. In most countries, the two main ways authorities can monitor compliance are through pre-construction approval and a post-construction complaintsbased process. Pre-construction approval requires that plans be submitted to an authority for endorsement (the issuance of a building permit that allows construction to take place) before building can commence (Richard Duncan, personal communication, July 23, 2009). This ensures that the design complies with local or state building codes (not necessarily civil rights laws) prior to construction. A post-construction complaints-based process, which generally follows compliance with the provisions of the civil rights laws and their guidelines, allows complaints about a facility’s inaccessibility to be filed with a suitable authority once the problems have been identified. Enforcing disability discrimination law is often the task of public administrative agencies and the courts (Degener & Quinn, 2000), though complaints and lawsuits can be brought by private individuals, groups, and other private entities. Some countries, such as Australia, have a national construction code that requires all new public facilities and major renovations to comply with referenced access standards. This code mandates that plans be endorsed as complying with accessibility requirements prior to construction. Such a process ensures that all public buildings meet essential accessibility requirements and that the design and building industry is clear about their responsibility to provide accessibility. This requirement also reduces the Legislation, Regulations, Codes, and Standards Influencing Home Modification Practice likelihood of a post-construction complaint process occurring relating to discrimination; however, it does not preclude it. The disability discrimination legislation is used to deal with post-construction– based complaints. Disability discrimination legislation takes precedence over, and provides a broader mandate than, building codes and regulations. Further, lawsuits involving accessibility issues are usually based on human or civil rights legislation (Ringaert, 2003). A building might be built according to a building code and/or standard, but if it excludes a targeted user or protected class of people, certain entities could sue because human or civil rights legislation would indicate that a person could not be discriminated against in the built environment on the basis of that person having a disability (Ringaert, 2003). In the United States, there are no pre-construction approval processes for ADA compliance; rather, the ADA is enforced after construction when a complaint is filed. Individuals who believe they have been discriminated against may file a complaint with the relevant federal agency or federal court (Disability Rights Education & Defense Fund, 2008). Enforcement agencies encourage informal mediation and voluntary compliance (Disability Rights Education & Defense Fund, 2008). Yee and Golden (2007) describe enforcement of the law as playing a large role in the ADA’s success in raising public awareness of the rights of people with disabilities. The Disability Rights Section of the Civil Rights Division of the U.S. Department of Justice is given the lead federal role in enforcing the legislation, and they investigate complaints lodged by the public, undertake periodic compliance reviews, and bring civil enforcement action (Mooney Cotter, 2007; Yee & Golden, 2007). However, the Department of Justice is authorized to bring a lawsuit where there is a pattern or practice of discrimination in violation of the legislation (Mooney Cotter, 2007). In enacting the ADA, Congress encouraged the use of alternative means of dispute resolution, including mediation, to resolve disputes. If mediation is unsuccessful, the various parties can pursue all legal remedies provided under the legislation, including private lawsuits (Mooney Cotter, 2007). Under the provisions of the ADA, existing structures that have been built prior to the ADA’s enactment also need to have accessibility improvements when possible. In the United States, barriers have to be removed only when it is readily achievable or structurally practicable. Readily achievable means that the changes are easily accomplished and can be carried out with little difficulty or expense. Examples include the simple ramping of a few steps 71 or the installation of grab bars where only routine reinforcement of the wall is required. In determining whether an action to make a public accommodation accessible would be readily achievable, the overall size and cost of the proposed changes to the development are considered. Full compliance is considered structurally impracticable only in those circumstances where the incorporation of accessibility features is not easily accomplished and able to be carried out without much difficulty or expense. In the United Kingdom, the Equality Act, a civil law, came into force on October 1, 2010 (except in Ireland, where the Disability Discrimination Act [DDA, 1995] is still in place and enforcement monitored by the Equality Commission for Northern Ireland). The Equality Act has two main purposes: to harmonize discrimination law and to strengthen the law to support progress on equality. The DDA 1995 has been combined with over 100 other pieces of legislation into this one act that provides a legal framework to protect the rights of individuals and advance equality of opportunity for all people. Technical guidance, rather than a strict compliance document, is provided. This guidance is considered to be a nonstatutory version of a code that provides comprehensive legal interpretation of sections of the act and the requirements of the legislation. As a result, it allows the requirements of the legislation to alter in line with changes in national best practice guidelines with regard to disability. The U.K. Equality and Human Rights Commission (1995) has a role to eliminate discrimination against people with a disability and to promote equality of opportunity (Sawyer & Bright, 2007). Under the legislation, Disability Committees have been established in England, Scotland, and Wales because of the highly distinctive nature of disability equality law. The Disability Committees have decision-making powers in relation to those matters that solely concern disability, and the commission must seek the advice of the committee on all matters that relate to disability in a significant way. An Equality Advisory and Support Service provides online advice about discrimination and rights to people who have experienced discrimination, including handling of complaints. If complaints have not been resolved, individuals may take the issue to the Government Equalities Office for review. It has replaced the helpline service previously provided by the Equality and Human Rights Commission. Prior to the introduction of the Equality Act (2010) in England, Scotland, and Wales, the DDA in the United Kingdom was considered by some to be more progressive in some areas than the ADA; it introduced a wide range of regulations to ensure 72 Chapter 4 accessibility and that reasonable adjustments are made (Imrie & Hall, 2001b). New design and planning benchmarks are emerging (Gooding, 1996; Imrie & Hall, 2001b). Access auditing of public premises has also increased over time, and businesses are questioning the implications of the DDA for their service (Gooding, 1996; Imrie & Hall, 2001b). In Australia, access to the built environment is monitored through the DDA (1992) through a postconstruction complaints-based process overseen by the Australian Human Rights Commission. The DDA requires that action plans be developed by the operators or owners of the public premises and lodged with the Australian Human Rights Commission to ensure that complaints are not submitted postconstruction. The Australian DDA recognizes that equitable access for people with disabilities could cause unjustifiable hardship for the owner or operator of the premises. The DDA does not require that access be provided in the built environment if it would impose unjustifiable hardship on the person who would have to provide the equitable access. The Federal Court or Federal Magistrates Service determines what constitutes unjustifiable hardship. Issues considered in the claims of unjustifiable hardship can include cost to the proprietor; technical limits; topographical restrictions; the positive and negative effect on other people; safety, design, and construction issues; and the benefit for people with a disability. The Disability (Access to Premises—Buildings) Standards 2010 (the Premises Standards) have been created by the Australian Human Rights Commission to ensure that dignified, equitable, cost-effective, and reasonably achievable access to public buildings and the facilities and services within buildings is provided for people with a disability, and to give certainty to building certifiers, developers, and managers that, if the standards are complied with, they cannot be subject to a successful complaint under the DDA in relation to those matters covered by the Premises Standards (Australian Human Rights Commission, 2015). The Australian Human Rights Commission handles complaints about discrimination and uses a process of conciliation. If issues are unresolved, they may be taken to the Federal Magistrates Court or the Federal Court of Australia. The Canadian Charter of Rights and Freedoms, with the federal and provincial human rights legislation, is a different approach to the complaintsbased human rights approach followed in Australia and the United States (Department of Employment, Education, Training, and Youth Affairs, 1997). The Canadian Human Rights Act (1985) emphasizes the need to accommodate people with a disability unless doing so causes undue hardship (Mallory Hill & Everton, 2001). Case law has shown that upholding this accommodation is a right and not a privilege (Mallory Hill & Everton, 2001). Undue hardship is measured against health, safety, and cost (Mallory Hill & Everton, 2001). The Canadian Human Rights Commission is responsible for human rights issues and their application at the federal level. Separate provincial and territorial human rights commissions are responsible for enacting the provisions of the Human Rights Code within each province and municipality (Mallory Hill & Everton, 2001). Private Housing Legislation Similar legislative and regulatory mechanisms exist in the residential sector, although there are few accessibility regulations that cover residential facilities and even fewer that comprehensively regulate the design and modification of private housing, specifically for people who are older or who have a disability (Hyde, Talbert, & Grayson, 1997). Nonetheless, there is a growing movement in some countries to extend accessibility regulations to private housing. A number of countries have adopted disability discrimination legislation, which has proven useful in situations where complaints have been made by people with a disability who have not been able to access the common areas of multifamily complexes. Countries such as Canada, which has specifically omitted residential design and construction from national legislation, have left residential accessibility up to local jurisdictions (Clarke Scott, Nowlan, & Gutman, 2001; Mallory Hill & Everton, 2001; Rogerson, 2005). The United States is one of the few countries in the world with civil rights legislation that covers private (multifamily) housing (Starr, 2005). Further, the ABA and the Rehabilitation Act (1973) require a small percentage (5%) of housing constructed with public funds to have accessible dwelling units, and these are generally made available only to people who are eligible for publicly funded housing (Maisel, Smith, & Steinfeld, 2008). Specifically, in the United States, the FHA, originally passed as Title VIII of the Civil Rights Act of 1964, prohibits discrimination in the sale, rental, and financing of private and public housing, as well as the physical design of newly constructed multifamily housing, based on race, color, religion, gender, or national origin (FHA, 1968). Title VIII was amended in 1988 by the FHAA, which expanded coverage of the act to prohibit discrimination based on disability or family status. The FHAA significantly expanded the scope of the original legislation and strengthened its enforcement mechanisms to cover public and private multifamily housing (accommodation with Legislation, Regulations, Codes, and Standards Influencing Home Modification Practice more than four units; FHAA, 1988). Consequently, under this legislation, property owners are required to allow a tenant with a disability to undertake modifications within certain guidelines to accommodate his or her individual need (Newman & Mezrich, 1997). However, tenants would be required to pay for the alterations, comply with the building codes, and, if requested, return the property to its original condition when they leave (Lawlor & Thomas, 2008). To reinforce the FHAA (1998), the U.S. Department of HUD released technical requirements for multifamily housing in 1991. The FHAG are designed to help builders comply with accessibility requirements as required by the government (International Code Council, 2007). It refers regularly to ANSI A117.1 (2003) and guides developments that may or may not have elevators. The FHAG cover newly constructed multifamily homes constructed by builders, private property owners, and publicly assisted landlords (Imrie, 2006). Exempt properties include newly constructed townhouses or fewer than four housing unit complexes and properties constructed in locations with unusual terrain or other site characteristics that limit accessibility (Mooney Cotter, 2007; Newman & Mezrich, 1997; Nishita et al., 2007). Builders constructing four or more owner-occupied dwelling units in buildings with one elevator or more have to make all units accessible or have to ensure accessibility to ground-floor units only if there is no elevator (Imrie, 2006; Newman & Mezrich, 1997). Accessible design required in newly constructed housing (rather than in existing housing) includes accessible common-use areas (e.g., via at least one accessible entrance, doors that are wide enough for wheelchairs to pass through, and kitchens and bathrooms that allow a person using a wheelchair to maneuver). It also includes other adaptable features within the housing (e.g., an accessible route to and through the dwelling, light switches, thermostats, and other controls in accessible locations) and reinforcement in bathroom walls for future installation of grab rails (U.S. Department of Justice, 2005). The owner of newly constructed buildings must be an active participant in making the building accessible and usable by people with a disability compared with the more passive role played by owners of existing properties (Newman & Mezrich, 1997). Under the FHAG, access to public spaces in multifamily housing (e.g., exterior spaces, elevators, corridors, and interior common spaces) is mandated by the technical requirements for public spaces in the ADA-ABA Accessibility Guidelines. If a facility does not comply with these requirements, residents with disabilities can request reasonable modifications to 73 common interior or exterior areas at the property owner’s expense (Newman & Mezrich, 1997). One goal of the FHAA (1988) is to facilitate home modifications in rental housing (Steinfeld, Levine, & Shea, 1998) by providing people with disabilities the right to reasonable accommodation. This means that a landlord cannot prevent a tenant from adding home modifications to a housing unit to increase its accessibility (National Association of Home Builders Research Center, 2007), though these changes must be negotiated. There is a requirement that tenants pay for these modifications themselves and that they use a licensed contractor to complete the work. At the end of their tenancy, they must return the area to its original condition, again at the cost of the tenant who installed the original modifications (National Association of Home Builders Research Center; Steinfeld et al., 1998). However, modifications might be made to the interior of the home that do not have to be removed if they do not affect the next tenant’s use of the apartment (Steinfeld et al., 1998). The section of the bill that deals with retrofitting existing multiunit dwellings calls for “reasonable accommodation” for people with disabilities, but it is vague on the responsibility of the owner to pay for changes, even in the common areas (Pynoos & Nishita, 2006, p. 284). As previously indicated, federal U.S. law requires access for people with mobility and other impairments to all new multifamily residences and to a small percentage of single-family homes constructed with public funds (Maisel et al., 2008). Consequently, current housing policy in the United States does not address the vast majority of single-family homes (as well as duplexes, townhomes, and triplexes) in which most people live (Maisel et al., 2008). As a result, “visitability” legislation has been developed and implemented in the United States over the past two decades, most of it occurring at state and local levels (Spegal & Liebig, 2003). The visitability movement seeks to increase the supply of housing that people with disabilities can visit or live in for a short term. Design features include the incorporation of a zero-step entrance, wide doorways, and at least one bathroom on the main floor of the home (Maisel et al., 2008). Visitability programs have also begun to spread throughout the United States, using mandates, incentives, and voluntary-based codes to encourage visitable design to be adopted in new housing. To date, visitability legislation has been created in at least 27 U.S. cities (Maisel et al., 2008). Little is known about the outcomes of these programs because of the following: 74 Chapter 4 Ô Not all locations use the term visitability in their enactments Ô There is no pattern of organizations accountable for the oversight of the ordinances Ô Agencies responsible for the implementation of the approach are not specified Ô There is no one method of keeping track of how many homes have been built (Spegal & Liebig, 2003) The extent to which visitability is adopted depends on local municipalities “buying” into the idea and ensuring it is included in local ordinances or building codes. Much of the approach is being adopted unevenly, depending on the political stance of the various states. Visitability is continuing to face opposition because of concerns about cost and consumer perception (Kochera, 2002). Because of the fragmented adoption of visitability on the state and local level, the visitability movement has inspired the creation of the Inclusive Home Design Act that was first introduced into the U.S. Congress as a bill in 2003, 2005, 2007, and then as the Eleanor Smith Inclusive Home Design Act in 2015 (now known as HR 4202). Although Congress has not yet passed the bill, it has the potential to ensure that single-family homes receiving assistance from the federal government incorporate visitable features (Maisel et al., 2008). The U.S. Supreme Court Olmstead decision (1999) has also affected accessible housing because it requires states to administer services, programs, and activities for people with disabilities in “integrated” settings (Maisel et al., 2008). The decision has led to more homes being made accessible, with some states using funding from federal grant programs for home modifications for people moving from institutions into the community (Maisel et al., 2008). Implementing and Monitoring Access Requirements The FHAA (1988) established administrative enforcement mechanisms to enable the HUD attorneys to bring actions before administrative law judges on behalf of people experiencing housing discrimination. Complaints filed with HUD are investigated by the Office of Fair Housing and Equal Opportunity (Mooney Cotter, 2007). The Department of Justice can take over the role of the department in seeking resolution on behalf of aggrieved people if it proceeds as a civil action (Mooney Cotter, 2007). A United States administrative law judge may preside over the case unless any party to the charge elects to have the case heard in federal district court (U.S. Department of HUD, 2015). Similar to disputes in the public sector, disability discrimination legislation also takes precedence over building codes and regulations in residential settings (Ringaert, 2003). Consequently, a building constructed according to a building code and/or standard may still result in a complaint or lawsuit if a person is discriminated against in the built environment based on that person having a disability (Ringaert, 2003). EVALUATION LEGISLATION OF AND CURRENT STANDARDS The rights-based approach to access policy used in the United States has also been identified as having limitations (Gooding, 1994; Higgins, 1992; Imrie, 1996; Young, 1990). First, this type of approach reinforces the individual conceptualization of disability, emphasizing the problem as belonging to the individual rather than a problem being the norms embedded in society (Higgins, 1992; Imrie, 1996). Second, it presumes that the current situation that works for the majority is the ideal; therefore, it should be available and acceptable to all (Higgins, 1992; Imrie, 1996). Third, it is underpinned by a form of legal individualism that ignores or denies the structural inequalities that perpetuate discrimination against people’s disabilities (Imrie, 1996). The onus remains with the “victim” to establish harm has been done in each situation (Imrie, 1996; Young, 1990). Rights legislation also attempts to provide equal protection to distinctly unequal groups and does not recognize the potential value of positive discrimination in addressing structural disadvantages (Gooding, 1994; Imrie, 1996). Although legislation can contain overt discrimination, it cannot eradicate it fully (Doyle, 1995; Imrie & Hall, 2001a). Consequently, the political and economic power of people with disabilities needs to be restored to enable them to influence government and corporate attitudes and practice (Imrie & Hall, 2001b). There is a great deal of diversity and complexity in the way discrimination and civil rights legislation and building legislation regulations, codes, and standards have been developed, operationalized, and monitored across the world. Consequently, international legislative frameworks have also had varying meaningful impacts on design practice and people with a disability. For example, the civil status of people with a disability is markedly different between the United States and the United Kingdom. Despite Legislation, Regulations, Codes, and Standards Influencing Home Modification Practice this difference, there continues to be a struggle for this group in both countries to gain strong and binding antidiscrimination legislation that influences service delivery and the design of the built environment (Imrie, 1996). Access issues in the United States are regarded as matters of social justice, a problem relating to a person’s civil liberties (Imrie, 1996). In the United Kingdom, the government sees access as a technical or compensatory matter that can be dealt with through redistributive measures (Imrie, 1996), and U.K. developers have noted that people with a disability have limited financial impact on their services and are reticent to build in features that meet their needs (Harrison & Davis, 2001). Almost all of the countries and territories have not yet made the access requirements of people with a disability and older people an integral part of development plans relating to different features of the built environment (U.N., 1995). There are separate approaches to formulating access legislation distinct from existing relevant laws, bylaws, codes, rules, and regulations in countries and territories such as China, the Islamic Republic of Iran, Hong Kong, Japan, the Republic of Korea, and Vietnam (U.N., 1995). In contrast, Australia, Malaysia, and Singapore adopted an integrated approach in formulating their respective access legislation by incorporating access standards for people with a disability into relevant existing building regulations (U.N., 1995). Another issue is that various pieces of legislation do not address the issues of creating livable and usable living spaces (Imrie & Hall, 2001b) that provide inclusive communities. There is evidence of failure to incorporate access considerations in urban and rural development projects and a focus on access to buildings rather than the overall development (Imrie, 2006). Although access legislation of Malaysia and Singapore applies to all types of buildings, including domestic buildings, legal instruments of other countries and territories tend to apply to public buildings only (U.N., 1995). The use and enforcement of access law worldwide is inconsistent and uneven within and between regulatory authorities (Centre for Housing Research, 2007; Mazumdar & Geis, 2001; Newman & Mezrich, 1997; Switzer, 2001). There is a perception that there have been inadequate staffing and budgetary resources at various government levels to implement and enforce the legislation (Hinton, 2003; Mazumdar & Geis, 2001). Further, there is evidence that there is a high level of ignorance about how and when to use the regulations, particularly among those people who are in roles of enforcement (Barnes, 2007; Centre for Housing Research, 2007; Steinfeld et al., 1998). For example, confusion exists in relation to how building 75 regulations interface with disability discrimination legislation, resulting in design responses that are often limited or confused (Imrie & Hall, 2001a). Builders and owners are required to have an understanding of how their buildings meet the broad civil rights requirements of the law, and yet many have never studied law or civil rights interpretations (Salmen, 2001). There is a view that even when owners understand the law, they might not understand their responsibilities (Steinfeld et al., 1998). Ambiguities, exemptions, and get-out clauses characterize access statutes, thus diminishing their coverage and effectiveness (Barnes, 2007; Imrie & Hall, 2001a; Milner & Madigan, 2001; Newman & Mezrich, 1997). For example, the ADA has get-out clauses such as “undue hardship,” “readily achievable,” and “unreasonable financial costs,” which can be used to justify not making built environments accessible (Imrie, 1996). This and other legislation have stipulations on reasonable provision of access for people with disabilities that are vague and open to interpretation (i.e., there appears to be multiple interpretations of the word reasonable, which is used frequently in legislation in this area; Imrie & Hall, 2001a). The complaint process relies on people with a disability contacting the relevant authorities. However, they often do not understand the intent and application of the legislation, regulations, and standards and experience a great deal of difficulty in navigating the complaints system. The complaints process can often be protracted and poorly articulated or promoted. At times, people with a disability do not have the emotional energy to cope with the process and can fear negative or inadequate responses to their requests, making them feel even more disempowered (Frank, 2005; Newman & Mezrich, 1997). Further, some legal systems, such as those in the United States, are adversarial in nature, influencing people’s perceptions of or reactions to the complaint process (Mazumdar & Geis, 2001). Finally, agencies and groups participating in formulating access legislation have varied greatly between countries (Nielsen & Ambrose, 1998; U.N., 1995). Consequently, legislation has tended to form without a comprehensive understanding of the needs of all people with a disability (Milner & Madigan, 2001; U.N., 1995). There is an emphasis on adults in wheelchairs and a focus on the medical conception of disability that is abstract and generalized (Imrie & Hall, 2001a). There is also a generalization of access requirements across groups of people (Imrie & Hall, 2001a). Building regulations also fail to take account of the diverse and changing needs of people with disabilities (Imrie & Hall, 2001a). Attitudes toward 76 Chapter 4 people with disabilities are still being framed by the concept of the “undeserving poor,” or buildings are being designed to provide minimum standards of access (Imrie, 2003). Architects have been described as making accessibility a legal rather than moral imperative (Mazumdar & Geis, 2001). Consequently, attitudinal and architectural barriers continue to exist that limit the participation of people with disabilities in society (Switzer, 2001). Private Homes To support disability rights, civil rights legislation has included provisions for the removal of physical barriers to activity and participation, as well as the designation of authorities to enforce those accessibility requirements. As pointed out at the beginning of this chapter, the jurisdiction for these regulations is primarily public buildings and facilities. There are few regulations that cover residential facilities and even fewer that comprehensively regulate the design and modification of private housing, specifically for older people and people with a disability (Hyde et al., 1997). Nonetheless, there is a growing movement in some countries to extend accessibility regulations to private housing. In some countries, in the absence of specific legislation, the design guidelines and standards produced for public buildings are often used as a guide when modifying private homes. As explained in the chapter on access standards (Chapter 11), this can be problematic if property developers, design and construction professionals, and occupational therapists are not familiar with the limitations associated with the use of these standards. This can include, for example, the potential mismatch between the functional ability of the person and the responsiveness of the accessible design to that person’s needs (Sanford & Megrew, 1999). Worldwide, approaches to ensuring housing accessibility are continuing to develop. For example, in Europe, housing accessibility has been secured by three main strategies: 1. Mainstreaming, where all new dwellings must meet accessibility standards (e.g., Denmark, Sweden, Norway, the Netherlands) 2. Exclusive legislation, which is applied to only certain categories of users such as wheelchair users (e.g., United Kingdom, Austria, Germany, Portugal, Luxembourg) 3. A progressive approach in which increasing degrees of accessibility and adaptability are stipulated for different building types and users (e.g., Italy; Nielsen & Ambrose, 1998) Although many countries have adopted various requirements for new housing, such as the United States, these requirements are typically intended for new multifamily housing (Kochera, 2002). Countries with multifamily accessibility policies include Italy, the Netherlands, France, Spain, Greece, and Sweden (Kochera, 2002). As an exception to this, since 2004, London, England, has had a policy that requires all new homes (including houses and flats of varying sizes in both the public and private sectors) be built to the Lifetime Homes Standard, with 10% built to wheelchair accessible standard. In Wales and Northern Ireland, the Welsh Assembly and the Northern Ireland Housing Executive require the Lifetime Homes Standard in their funded developments. The Lifetime Homes Standard is generally higher than that required by Part M of the Building Regulations (which deals with accessibility), although some elements of Part M are equal to the Lifetime Homes requirements or need relatively minor changes to comply (Lifetime Homes, 2015). Although it is easy to provide incentives and regulations for new stock, most older people and people with long-term disabilities live in established housing and cannot readily afford to purchase new dwellings. The following are examples of countries that have building regulations requiring accessibility in private homes (Imrie, 2006): Ô Norway: Building regulations require an accessible entry and external approach to the common entrance of a building that has more than four dwellings and toilets in all new dwellings, regardless of whether they are single-family homes or multiunit developments. Ô Sweden: Building regulations state that there must be wheelchair access to all units in a residential building of three stories or more, including an accessible path of travel from the pavement to the building entrance, accessible thresholds, and the provision of a lift (there is no requirement for this in single-family homes). Ô Denmark: Building regulations stipulate that single-family homes that are self-built have to be constructed to minimum levels of accessibility, including having a no-step entrance. Ô Australia, Willoughby Council, New South Wales: New developments with more than nine dwellings are to incorporate adaptable housing design (AS4299); this is similar for multiunit developments for Waverley and Ryde Councils in New South Wales. Ô Japan: All new housing, both public and private, are to be built to universal design standards. Legislation, Regulations, Codes, and Standards Influencing Home Modification Practice The U.S. approach to accessible housing is poor and underdeveloped. No single U.S. law or program regulates comprehensively for the design and adaptation of housing specifically for older people and people with a disability, although a patchwork of federal programs and mechanisms supports the implementation of home modifications (Hyde et al., 1997; Milner & Madigan, 2001). Regulations and design standards typically focus on the needs of wheelchair users with little consideration for the diverse needs of the population of older people and people with a disability. Little research exists on the changes in wheelchair size and shape and the impact of the introduction of new technology to improve the mobility of the equipment and comfort of the user, let alone the needs of the broader population of people with a disability whose access needs might differ significantly from the wheelchair user. Inevitably, future adaptations to homes designed specifically for wheelchair users are necessary to ensure better accessibility within the home and to cater to the needs of a broader range of people with a disability (Imrie, 2006). A progressive approach, with use of increasing degrees of universal, accessible, and adaptable design for different building types and older people and people with a disability, can ensure housing accessibility. For example, Italy has various laws and ministerial decrees rather than a building code or building regulations. It stipulates three levels of accessibility: accessible (access to a building, including common areas, through the entry and use spaces within the building safely and independently); visitable (access to the principle spaces within buildings and to where there is at least one accessible toilet); and adaptable design (modification to the built environment at little cost; Christophersen, 2001; D’Innocenzo & Morini, 2001). This progressive approach has developed from the movement to integrate people with a disability into the community. Details and technical prescriptions have been added gradually to existing regulations over the years, resulting in professionals needing to keep in mind the design requirements of people with a disability while developing solutions (D’Innocenzo & Morini, 2001). Initially, public buildings were introduced to access regulations; that has now been extended to include public residential buildings and neighborhoods (D’Innocenzo & Morini, 2001). Different design approaches for different building types were selected based on the needs and priorities of the neighborhood. People’s varying differences have been driving a “policy of differences” for design practice rather than designing to suit the “average man” (D’Innocenzo & Morini, 2001, p. 15.20). Though 77 there are gaps in the practice of this progressive design approach in Italy, a strong societal belief that every person has the right to access his or her own house and external built environments has emerged (D’Innocenzo & Morini, 2001). Regulations, incentives, and information have been the three mechanisms used to promote adaptable housing for people of all ages and abilities in Europe (Nielsen & Ambrose, 1998). However, statutes in relation to providing accessible housing vary in form and content and are stronger in social-housing schemes or where the government has significant influence over the construction process (Imrie, 2006). The legal basis for ensuring access to housing is generally ineffectual, with limited means of enforcement (Imrie, 2006). Consequently, some view nonlegislative means as the fastest way to improve building practice (Nielsen & Ambrose, 1998). There is a perception that regulations increase cost, stifle design creativity and innovation, and decrease responsiveness to the market (Imrie, 2006). However, although there is a clear demand for accessible housing, there has been a poor market response. Some believe nonlegislative approaches such as voluntary guidelines, branding of universal designs, and information campaigns to be the least successful strategies for encouraging the development of more accessible housing in communities (Centre for Housing Research, 2007). The countries that have been most successful in producing a market response, such as the United States, Japan, and Norway, have systematically combined regulatory, incentive, and collaborative capacity building strategies (Centre for Housing Research, 2007). Countries where populations have been growing older faster have had regulations for new housing in place for a considerable length of time (Centre for Housing Research, 2007). IMPLICATIONS FOR OCCUPATIONAL THERAPISTS Occupational therapy services will continue to be in demand to provide home modification advice as older people and people with a disability struggle with built environments that require design improvements. Occupational therapists understand that older people and people with a disability constitute a diverse population that does not suit a “one-sizefits-all” design approach. They have an awareness of the limitations of the access standards that are used as the basis for public building and private home design, and they have an important role in informing builders and developers about the individual design 78 Chapter 4 needs of clients in relation to the person’s home environment. An understanding of human rights and building legislation will equip occupational therapists with knowledge and information that can be shared with older people and people with disabilities who may need to negotiate with builders and government authorities about appropriate design solutions in the public and private sectors. Therapists can encourage and empower older people and people with a disability to advocate for their own needs and provide their perspective on improvements needed during design and planning processes. Occupational therapists are also well suited to influencing the values and perspectives of design and construction professionals and advocating for better-designed environments within the community by educating these professionals about the diverse needs of older people and people with a disability, discussing the implications of designs, and challenging builders and designers to build more creatively and to universal design goals and principles. Therapists are also well placed to contribute to the evaluation of the effectiveness of various built environments and the impact of the environment on occupational performance, health, safety, independence, quality of life, and home and community participation outcomes. They also hold a professional responsibility to monitor and respond to proposed legislative changes and to support calls for improvements to legislation, guidelines, and standards. CONCLUSION This chapter has provided an overview of the worldwide range of legislation and guidelines relevant to promoting the rights of older people and people with a disability through access to the built environment. Information has been given on the move from the medical model to social models of disability, their advantages, and their limitations. This chapter has described how human rights and disability discrimination legislation has attempted to shape community values, design and building practice, and service delivery to ensure people with a disability are afforded equitable access within the community. Information has been provided on the ADA as a landmark piece of legislation in the civil rights struggle for people with a disability in the United States. In some countries, such as the United Kingdom, building regulations and standards that incorporate access and mobility requirements have sought to address discrimination that might occur from barriers in public facilities and spaces. Very few countries have required their legislation to include mandatory accessible design of private homes. This chapter has highlighted that the emergence of home environments that do not further disable people is far from being realized. Although disability discrimination, civil rights, and building legislation in various countries have influenced the design of public buildings, they have not made private accessible housing available to everyone requiring it, nor have they eliminated attitudinal barriers (Switzer, 2001). Current legislation around the world is not likely to make a dramatic change to the housing circumstances of older people and people with a disability. Rather, significant action is required to transform attitudes and value systems to positively influence housing quality and design for diverse populations (Imrie, 2006). Occupational therapists are well qualified and experienced to make a valuable contribution to transforming these attitudes and values. They can influence the values and perspective of design and construction professionals as they work in collaboration to design a more comprehensive use of dwelling spaces by people with diverse needs. In addition, they have a valuable role to advocate for older people and people with a disability and to empower them to influence design and construction practice in the community. REFERENCES American National Standards Institute. (2003). ICC/ANSI A117.12003: Accessible and usable buildings and facilities. New York: Author. Americans With Disabilities Act. (1990). ADA home page. 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M. (1990). Justice and the politics of difference. Princeton, NJ: Princeton University Press. The Home Modification Process 5 Elizabeth Ainsworth, MOccThy, Grad Cert Health Sci and Desleigh de Jonge, MPhil (OccThy), Grad Cert Soc Sci This chapter describes the home modification process as undertaken by occupational therapists. Overall, the process involves screening and prioritizing referrals, evaluating occupational performance in the home environment, planning and negotiating interventions, and monitoring and evaluating outcomes. More specifically, occupational therapists arrange appointments, visit clients, listen to clients’ stories of their experiences in the home, gather information, evaluate occupational performance, research interventions, negotiate and recommend intervention options, seek technical advice, and evaluate the effectiveness of the interventions in relation to client outcomes. At each stage of the process, occupational therapists adopt a dynamic occupation-based and client-centered approach, which is influenced by specific models of practice and guided by professional reasoning. Such practice ensures that the health and level of participation of each client is maintained or enhanced through engagement in occupation or valued daily activities. CHAPTER OBJECTIVES By the end of this chapter, the reader will be able to: Ô Describe the process occupational therapists use when undertaking a home modification Ô Explain the contribution of the occupational therapist, the client, and other stakeholders to the home modification process Ô Explain the complexity associated with the minor modification process and the important role of the occupational therapist in this area of practice INTRODUCTION The home environment provides the context for many roles and activities and is an important setting for occupational therapists to examine when seeking to promote a person’s occupational performance (Siebert, Smallfield, & Stark, 2014; Stark, 2003). With careful planning, people can remain in their own homes and continue to participate in community life (Law & Baum, 2005). Occupational therapists work with older people and people with disabilities to promote their health, well-being, and participation through engagement in everyday life activities (occupations) for the purposes of enhancing or enabling participation in roles, habits, and routines in the home and community (American Occupational Therapy Association [AOTA], 2014). In this work, therapists develop an understanding of the interaction between the following: - 83 - Ainsworth, E., & de Jonge, D. An Occupational Therapist’s Guide to Home Modification Practice, Second Edition (pp. 83-110). © 2019 SLACK Incorporated. 84 Chapter 5 Ô The clients’ physical, sensory, cognitive, neurobehavioral, and psychological capacities Ô Their physical, social, cultural, societal, personal, and temporal contexts Ô The occupations, activities, tasks, and roles that clients identify as important (AOTA, 2014; Law & Baum, 2005) Occupational therapists take a specific approach to home modification practice that is guided by a range of various models, the client-centered and collaborative approach, and professional reasoning. Of significance to the occupational therapy process is the importance and meaning that clients assign to their homes and the value associated with completing the home modification assessment in this environment. Recently, ecological or transactional models in occupational therapy have recognized the dynamic relationship between the person, their environment, and their occupations and regard occupational performance (the ability of a person to carry out activities of daily life) as a result of the transaction between the client, the activity, and the environment or context (AOTA, 2014; Brown, 2009). The focus of home modifications intervention, using these models, is to optimize occupational performance. Occupational therapists establish a picture of a person’s occupational performance by creating an occupational profile that is a summary of a client’s occupational history and experience, patterns of daily living, interests, values, and needs (AOTA, 2014). Then, by observing how the client performs activities relevant to desired occupations, the therapist evaluates occupational performance, taking note of the effectiveness of performance and performance patterns (AOTA, 2014). The various ecological transactional models that guide this process provide the theoretical basis, or underlying concepts, that guide evaluation and the selection of environmental interventions for use to optimize occupational performance (Stark, 2003). Occupational therapists use a client-centered and collaborative approach to ensure that they develop a deep appreciation of the client’s experience and how each is managing the occupations of everyday life in the home and community. A client-centered and collaborative approach allows therapists to work in partnership with clients throughout all stages of the home modification process, including evaluation, planning, and negotiating interventions, and monitoring and measuring the outcomes (Law, Baptiste, & Mills, 1995). This approach honors the contributions of both the client and the occupational therapist (AOTA, 2014; Law, 1998). Clients bring their stories to the process, identifying and sharing their concerns and priorities, while therapists contribute their knowledge of occupational performance and the person-environment-occupation transaction (AOTA, 2014; Law, 1998). Professional reasoning skills are used by therapists as they listen to clients and observe them interacting with their environment to plan, direct, perform, and reflect on the care of clients (Schell & Schell, 2008). A framework of scientific, narrative, pragmatic, ethical, and interactive reasoning is used during the home modification process to frame issues and guide problem solving and decision making (Schell, 2014). This framework also guides therapists in selecting and negotiating interventions in collaboration with the client (Crabtree, 1998; Schell, 2014). Throughout the home modification process, therapists remain mindful that the home is a private living space and that clients attach meaning to the home, the spaces, and the objects within it (Aplin, de Jonge, & Gustafsson, 2013). Interventions can have a significant impact on the home environment, which can influence clients’ acceptance and adjustment to changes in the home (Aplin, de Jonge, & Gustafsson, 2015). Consulting with the client’s family, friends, caregivers, or other relevant stakeholders can also optimize collaboration, agreement with recommendations, and satisfaction and improve overall client outcomes (Law, 1998). Consulting with these stakeholders is required when a client is not able to make informed choices and decisions about their home modifications. To ensure that home modifications are tailored to the specific needs of each client, the occupational therapy evaluation is undertaken in the home where the activities are customarily performed (Corcoran, 2005; Law, King, & Russell, 2005; Siebert, 2005; Siebert et al., 2014). Interviewing and observing people in their home environment provide occupational therapists with an opportunity to observe activities and interactions as they occur in that setting rather than relying on reports about the situation (Corcoran, 2005) or on evaluations undertaken in an unfamiliar environment. Interviewing the client in his or her own home also enhances the occupational therapist’s understanding of the environmental context in which the client operates (Aplin et al., 2013; Corcoran, 2005). The Home Modification Process INFLUENCES ON OCCUPATIONAL THERAPY PRACTICE Home modification practice varies across the world in terms of the extent and types of services provided. Differing funding and service priorities mean that some communities have well-developed home modification services, whereas others rely on a patchwork of local resources to attend to people’s specific needs. The legislative context and building regulations in different jurisdictions can also affect which services are provided and how they are delivered. In some regions, home modifications are provided within health and home care services; in other locations, these services are provided within the housing and building sector. Within services, the types and levels of occupational therapy services provided for people requiring home modifications depend on the following: Ô The service delivery requirements of the programs Ô The source and level of funding available Ô The range of intervention options supported by the service Furthermore, occupational therapists working in a private practice might provide a specific range of home modification services, depending on reimbursement schedules or the level of funding available for their time. Occupational therapists’ competence in home modification practice varies greatly because of different types and levels of experience and the availability and quality of home modification training and education and building advice. Although occupational therapists might not be involved in the whole home modification process, they could still be required to provide the client with assistance and advice at any stage. For example, occupational therapists may be contacted to undertake the whole home modification process; they may be required to work with the client up to the point of identifying interventions; they may need to check modifications proposed by alternative parties to provide advice on their suitability or whether changes are required; or they may need to visit the client to train him or her in the use of the home modification after it has been installed. At times, the therapist might be required to visit a person’s home to examine a modification that is not achieving the desired outcome to suggest alternative interventions. The timing and extent of occupational therapists’ involvement during the home modification process depend on whether the referrer and other 85 stakeholders understand the role or contribution of occupational therapists in the home modification process and whether occupational therapists have sufficient knowledge and expertise in the area. With a good understanding of the role of occupational therapists, other parties concerned, such as clients, health and community care professionals, program administrators, insurance companies, lawyers, and design and construction professionals, can involve therapists constructively throughout the process. Occupational therapists with appropriate knowledge and experience can demonstrate the benefits of their involvement at various stages and can be called on repeatedly to contribute their expertise. ROLE AND VALUE OF THE OCCUPATIONAL THERAPIST IN RECOMMENDING MINOR MODIFICATIONS Minor Modifications: It’s Not as Simple as “Do It Yourself” A minor modification is sometimes considered a simple solution that can be implemented through a “do-it-yourself” approach, but many situations are more complex than is immediately apparent. Minor and major home modifications have not been clearly or comprehensively defined in much of the international legislation informing policy and service development. This has resulted in a divergence of opinion about how home modification services should be defined and delivered and who needs to be involved in recommending and installing these alterations. There is a limited understanding outside the profession of the value of minor home modifications. Further, there is ongoing debate both outside and within the profession about the role of occupational therapists in working with consumers to make minor home modifications. Naive understandings of the home modification practice result in the perception that minor modifications are simple and able to be undertaken by anyone. This approach can be problematic, especially considering the complexity associated with the process of determining the most appropriate solution. When the complexity of the process is not acknowledged and addressed and an occupational therapist is not considered or included in this process, poor home modification outcomes may result. 86 Chapter 5 Figure 5-1. Framework of complexity associated with minor modification recommendations. The Complexity in Home Modification Decision Making The simplicity of a home modification does not always reflect the simplicity of the situation it is addressing. Figure 5-1 presents a framework for differentiating between the simplicity and complexity of the solution versus the simplicity and complexity of the situation. A minor modification may be considered a simple solution, but the process used to determine this minor modification may be complex. Complexity may arise from factors associated with the person, their occupation, and/or how the environment presents. The complexity of the situation (i.e., the person’s circumstances, the way in which they undertake activities in the home, and the immediate and broader socioeconomic/legislative environment) affect home modification decisions and outcomes. Achieving good outcomes requires a well-considered home modification approach that includes a clear understanding of products and design solutions so they can be matched to the needs of the consumer and the household. Occupational therapists possess the knowledge and skills necessary to assist people in identifying the best home modification solution. Further information about this issue and this complexity is detailed in Appendix A. STAGES OF THE HOME MODIFICATION PROCESS There are a number of stages in the home modification process, from the initial referral to the final evaluation of the home modification and the education and training of the person in its use after installation. The specific stages of the home modification process include the following: Ô Receiving and analyzing the referral information Ô Prioritizing referrals Ô Arranging the home visit with the client Ô Preparing for the home visit Ô Traveling to the home and meeting the client Ô Entering the property Ô Interviewing and observing the client Ô Inspecting the home Ô Measuring the client and his or her equipment and/or caregiver Ô Photographing, measuring, and drawing the built environment Ô Planning, selecting, and negotiating a range of interventions Ô Concluding the home visit Ô Seeking technical advice The Home Modification Process 87 Ô Writing the report and completing concept drawings Ô Submitting the report to the referrer Ô Educating and training clients in the use of home modifications Ô Evaluating home modifications and client outcomes after installation Occupational therapists can enter and exit at various points of the home modification service delivery process, depending on the type and level of service required by the referrer, their knowledge and level of expertise, and the expertise of other stakeholders involved in the process. Receiving and Analyzing the Referral Information The home modification process begins with the occupational therapist receiving and analyzing the referral information (Figure 5-2). There is a range of reasons for seeking home modification advice from occupational therapists. Clients might have a newly diagnosed health condition, or they might have experienced a recent injury that requires changes to their existing home environment before they can be discharged from care. Individuals might be aging and experiencing increasing difficulty coping in their current home situation. Home modifications might be sought when people move to a new environment that does not adequately support their occupational performance. Alternatively, there might be changes to someone’s social context or roles that affect the fit between their performance skills and patterns, activity demands, and the environment (Siebert, 2005). Requests for a home modification evaluation are generally received from health practitioners and community and home care service providers; however, increasingly, informed clients and caregivers are contacting occupational therapists for home modification services. At times the need for home modifications may be identified as part of discharge planning from an inpatient or rehabilitation facility (Siebert et al., 2014). Referrals can arrive by phone, e-mail, fax, or letter and can contain variable amounts of information. Most contain a general request for a home evaluation because of an individual’s health condition, injury, or increasing frailty. Some referrals seek a specific environmental intervention (e.g., grab bars beside the toilet) or are requested as a prevention strategy (e.g., to reduce the risks of falls; Siebert et al., 2014). The referral stage signals the start of information gathering. As therapists review referrals, they note Figure 5-2. Receiving and analyzing the referral information. essential information, such as the client’s name, address, and age. This background information and other details, such as the person’s disability, health condition, or age-related changes, might be entered into a service database to assist with recording and tracking service requests and events. Existing records, if available, are to be reviewed to determine whether clients have been seen previously and the nature of services they have accessed. Prior to the visit, therapists might need to carry out research on specific disabilities or health conditions, their presentation, and functional implications to understand them more fully in order to develop hypotheses about their likely impact on occupational performance and potential environmental barriers. Such information can help therapists think through the range of suitable interventions in advance of the home visit. Further, an understanding of prognoses alerts therapists to future equipment and support requirements and/or alternative ways of undertaking tasks that might need to be considered when planning interventions. Other referral information of interest is whether the person is currently using equipment or receiving assistance in the home. If occupational therapists are not familiar with the equipment information provided, they might have to undertake background research to ensure that they are well informed about the specifications of the equipment and how such devices can be used. Caregiver or family support information provides a prompt for the occupational therapist to ensure that these people are present at the time of the home visit and to engage them in the home-visit process (Klein, Rosage, & Shaw, 1999). It is also important to note who lives at home with the client and whether there are any regular visitors or guests. People who use the home environment 88 Chapter 5 regularly will also need to be consulted when devising environmental interventions, especially if substantial changes are to be made to the home that may affect how they interact with and use the environment. Information about the treating doctor, therapist, nurse, or other service providers is also required to ensure that relevant providers can be contacted for further information, such as details about medical treatment, rehabilitation, or equipment that might be prescribed, or to discuss the suitability of proposed interventions. It should be noted, however, that informed consent must be obtained from the client before making contact with these providers. The referral might include information about the style of home and any environmental barriers being experienced. The details about the style of home can provide an indication of any other environmental barriers in addition to those already documented. For example, knowing that a person with mobility impairment is living in an older, two-story house alerts the therapist to examine the condition of the stairs, stair usage, and range of activities undertaken on the upper level. Some specialist home modification providers and private therapists have developed a dedicated home modification referral information form to gather referral information and document other background information essential to providing timely and appropriate service. The quality of referral information varies greatly in detail and quality. Referrers generally provide information on client demographics, background information on the person’s disability and/or health condition, and a general statement of need. However, in order to prepare effectively for the visit, therapists require additional detail, including the following: Ô The referrer and accompanying documentation Ô The current use of equipment and health and community services Ô The style of the home and existing environmental barriers Ô The type of modification/service requested Ô The ownership of the home Ô The need for an interpreter or formal or informal decision maker Ô The presence of other household members In addition, to assist therapists in establishing timelines for service provision, they: Ô Require critical time frames (e.g., the client’s expected discharge date) Ô Need to know the level of safety and risk to the client in his or her current situation (e.g., the prevalence or likelihood of accident or injury, restricted activity, or unwanted dependence) Figure 5-3 is a sample home modification referral information form. When therapists make their initial phone calls to clients to set up a time for their home visit, this is a good opportunity to discuss occupational performance issues experienced in the home and to explain the role of the occupational therapist. Clients’ expectations can be clarified in relation to the home modification and the timing, duration, and process of the home visit. Information gathered during these calls might also highlight additional issues (e.g., that the client is not eligible for a particular service and might require a referral to an alternative service). Prioritizing Referrals Occupational therapists often have to prioritize their work and allocate their time judiciously, especially if their services are in demand. Referrals are generally prioritized in light of the urgency of each individual client’s need, as well as the relative importance with respect to other referrals (Bradford, 1998). Factors to consider when prioritizing referrals are listed in Table 5-1. When considering the urgency of referrals, therapists consider whether clients are at risk of being involved in an adverse event resulting in reduced activity, injury, institutionalization, or premature death if they are not visited immediately. Those who are at a high risk are prioritized as being urgent. For example, an urgent home visit may be required if a referral indicates that the client has had falls in the home, has been hospitalized, and is not able to return home without adequate services and modifications. Alternatively, a visit may be considered nonurgent if the client has activity limitations that can be improved in the short term with the use of equipment that can be purchased or borrowed or if they have care support in the home. Once the urgency of each client is determined, clients are then prioritized based on the degree of risk in relation to other people on the waiting list. When determining the level of urgency, therapists need to determine and record the likelihood of an adverse event occurring and the consequences of an event. For example, in the urgent case described earlier, the therapist would record that the client was highly likely to receive an injury resulting in further hospitalization should he or she return home without appropriate interventions. The nonurgent case would be recorded as being unlikely to result in an adverse event in the form of an injury and that any activity restrictions could be mitigated by the use of equipment while awaiting a home modification assessment (Table 5-2). The Home Modification Process 89 Occupational Therapy Home Modification Referral Information Form Demographic Information Client name: Address: Phone number: Date of birth: Gender: ID number: Referral Information Date of referral: Referral source (including contact details): Client’s advocate or spokesperson (including contact details): Does the client require an interpreter? Does the client wish to have a particular person at the interview? If so, please provide the person’s name and contact details. Type of Referral Home modification: Postmodification evaluation: Other: List of Documentation Received Confidential medical report from a doctor or other medical personnel: Authority to request or disclose client information: Other: Health Condition or Disability Information List client’s health condition or disability or details about any age-related changes: Is the client’s condition permanent, improving, deteriorating, temporary, or stable? Has the client experienced a recent significant change in function or mobility? Describe. Has there been a recent significant change in function or mobility? What medication is the client taking for their conditions? How many times has the client been hospitalized in the last 12 months? What were the reasons for the client’s hospitalization? Is the client receiving family or informal caregiver assistance or community services to assist with self-care or household tasks, or access within the community? What community services or informal support services are being received by the client (include information on the treating doctor, therapist, nurse, or other service providers)? Does the client live alone, with a caregiver who is well, or with a caregiver who is aging or has a health or medical condition? Figure 5-3. Sample occupational therapy home modification referral information form. (continued) 90 Chapter 5 Description of the Client’s Equipment List the items of equipment that the client is currently using in the home and community to assist with mobility and day-to-day activities: Description of the Home Environment Describe the style of the client’s home: Is home owned or rented? If rented, state length of lease. Description of the Environmental Barriers Describe the environmental barriers being encountered by the client: Describe the impact these barriers have on client or caregiver functioning: Description of the Client’s Home Modification Request: Urgency of Home Visit Provide an opinion on home modifications requirements: Describe urgency of need for home modifications: Occupational Therapist’s Comments: Signature Block Staff Person Receiving Referral Name: Position Title: Signature: Date: Facility or Agency: Program: Occupational Therapist Receiving or Reviewing Referral Name: Signature: Date: Facility or Agency: Program: Figure 5-3 (continued). Sample occupational therapy home modification referral information form. The Home Modification Process 91 Table 5-1. Considerations When Prioritizing Referrals PRIORITY High Moderate Moderate to low Low RESPONSE See within the week See within few weeks See within 2 months See within 6 months CONSEQUENCE Event likely to result in death or hospitalization Event likely to result in compromised health or performance Event likely to compromise independence Event likely to affect quality of life and participation LIKELIHOOD High likelihood of adverse event Moderate likelihood of adverse event Low likelihood of adverse event Adverse event unlikely TYPE OF LIMITATION Transfers, mobility, and hygiene activities such as toileting and bathing Other self-care activities such as eating and dressing Cleaning, shopping, cooking, laundry Leisure and community participation ABILITY TO FUNCTION Unable to perform essential elements of the activity Difficulty performing essential elements of the activity Difficulty performing Little difficulty some essential performing essential elements of the activity elements of the activity ALTERNATIVES No viable alternative possible Alternative method or equipment option possible, but does not address issue fully Alternative method or equipment option can temporarily address issue AVAILABLE SUPPORT No alternative support No alternative support No alternative support Alternative support available available onsite, but available onsite, but available onsite can be purchased can be accessed at no cost TIMING Palliative condition Chronic/lifelong condition Fluctuating condition Acute, short-term condition SOLUTION TYPE Minor and/or major modifications Minor and/or major modifications, equipment Minor modifications and equipment Equipment only Alternative method or equipment option possible Table 5-2. Client Examples Illustrating Prioritization Information and Resulting Level of Urgency for a Visit NAME SUSPECTED ENVIRONMENTAL HAZARD/BARRIER CONSEQUENCE LIKELIHOOD URGENCY OF HOME VISIT Mrs. Jones Slippery bathroom floor High—injury because of a fall Likely—already been hospitalized High Mrs. Smith Low toilet Minor—reduced activity performance Low—can be managed with additional equipment or caregiver support in interim Low Where cases are not easily assessed as being high or low risk, various resources and tools are available to assist with decision making. For example, as illustrated in Figure 5-4, any event that is considered likely or almost certain with a major or critical consequence would be considered extreme and therefore classified as extremely urgent. Any event that results in a moderate, major, or critical level of consequence and could be unlikely, possible, likely, or almost certain to occur is also considered to be high risk and therefore urgent. When events are likely to be rare to almost certain to occur and have a range of consequence from insignificant to major, they are considered a lower risk and priority to those listed 92 Chapter 5 Figure 5-4. Risk assessment chart. (Adapted from Australian Standard for Risk Management [AS/ NZS ISO 31000:2009].) earlier. Events that have insignificant to major consequence but are rarely likely or are likely to occur are low risk and priority. Unfortunately, services may not have prioritization tools to assist clients and occupational therapy practice. The presence of these tools depends on the concern of organizations in relation to client wait lists, and their policies and procedures in relation to delivery of client services. Prioritization tools are required to ensure that services direct their resources to meet client need without disadvantaging people and being challenged about their service delivery processes. Prioritization tools are important for occupational therapists to use when justifying services and bidding for resources. They provide clear guidance to funding bodies as to why some clients are seen before others. Considerations affecting the prioritization of clients include: Ô The service context (e.g., hospital, community, or private practice) and the overall priorities of the service (e.g., the care requirements of clients in relation to the safety of caregivers) Ô Other available services that the client might be referred to while awaiting an occupational therapy visit Ô Whether a phone call to a client with discussion about interim options can assist in the initial stages of the referral, particularly if there is a wait list for services Arranging the Home Visit With the Client Once the priority of the referral has been determined, the occupational therapist contacts the client by phone, e-mail, text message, or letter within the recommended time frame that may be established by the therapist or the organization to arrange the home visit (Figure 5-5). Alternatively, the client may be advised that he or she has been placed on a waiting list and will be contacted in the future to arrange an appointment, assuming personal needs do not change. If clients are on a waiting list, they should be advised to contact the home modification program and the occupational therapist should their situation change. Clients might need to be reprioritized if their need for a visit becomes urgent or if their risk of accident, injury, or institutionalization increases. An informal or formal decision maker, service provider, guardian, or family member might need to be contacted if the client requires assistance to communicate their requirements. In such cases, documented informed consent should be sought from these representatives before information is gathered about the client. The Timing and Duration of the Home Visit The timing of the home visit is generally determined by the urgency of the client’s situation and the availability of the client and other members of the household to meet. Clients at high risk of injury will need to be seen urgently, whereas others can be scheduled routinely. The timing of the home The Home Modification Process visit might also need to be planned around the expected date of discharge from the hospital. If the client requires urgent home modifications to ensure his or her safety, the occupational therapist might undertake a home visit before or immediately after discharge. If it is not possible to complete all the required work in time, the therapist might recommend basic modifications and plan a second visit to discuss other interventions after the client has returned home. In some instances, when the person has recently acquired a disabling condition, the occupational therapist might delay the visit until after the person has been living in the home for a short period and has had time to settle into his or her new routine and identify the environmental barriers. This can help the client make well-informed decisions about the issues and interventions required. When arranging home visits around the availability of the client, it is important to be aware that clients are often reliant on others for help with their self-care and home management routine and medical appointments. Therefore, occupational therapists may need to arrange the visit around other scheduled activities. The duration of home visits varies and should be negotiated with the client when making the appointment. Generally, occupational therapists can anticipate the time required for the visit based on the referral or the initial conversation. Alternatively, the service or reimbursement system may allocate a specific amount of time for home visits as defined by the client’s health condition or the identified need. However, sometimes the complexity of the situation might only become evident during the visit. A range of issues can affect the timing and duration of the home visit. These include the following: Ô The energy levels of the client: The client might have limited physical, cognitive, or psychological capacity, which means that he or she can only manage short visits or visits conducted at times during the day or week. Ô The number of people in attendance to contribute to the decision-making process: The occupational therapist might need to negotiate an appointment time to suit several people and spend considerable time listening to the views of the client and others when gathering information and negotiating a range of intervention options. Ô The amount of equipment used: The occupational therapist might need time to undertake extensive measurement of the client, his or her equipment, and the home environment to determine the person’s body dimensions, reach range, circulation, and storage space and 93 Figure 5-5. Contacting the client to arrange a home visit. dimensions and location of fittings and fixtures in the environment. Ô The number and nature of occupational performance difficulties being experienced: If the person is having trouble with several activities, the occupational therapist will need to allocate a reasonable time frame to ensure that performance in each activity is adequately evaluated. Ô The number and type of barriers in the home environment: Some houses present numerous barriers to performance; others present challenges to being modified. The occupational therapist might need to take numerous photos and approximate measurements and seek technical advice from design or building professionals before proposing interventions. The greater the number and extent of environmental and construction barriers, the more time required to problem solve and plan the interventions. If considerable time is required to evaluate the person, his or her occupational performance, and the home environment, the visit time may need to be extended or additional visits booked (Silverstein & Hyde, 1997). If the occupational therapist has been allocated only a limited time for the home visit, he or she will need to negotiate with the client and formulate a mutually agreeable structure for the interview, 94 Chapter 5 allocating a specific time for each stage of the visit, including the interview, observation, measurement, walk-through of the home, and discussion of intervention options. Clients should be advised to have all concerned parties present at the visit. Involving the various stakeholders in the home modification process ensures that all relevant issues are discussed and carefully considered and that intervention options developed are acceptable and useful to everyone affected by them (Klein et al., 1999). Further, involving stakeholders at the time of the visit is likely to reduce the number of discussions and meetings, phone calls, and/or subsequent visits required to consult with various parties. If clients rely on equipment to undertake different activities in the home, they need to be advised to have devices available at the time of the home visit. This allows the occupational therapist to measure the items and observe their use in the home. Further home visits might be required if the client does not have his or her equipment available at the time of the initial home visit, particularly if the equipment dimensions and space requirements (with or without a caregiver using the equipment) are likely to affect the design of the home modification. Preparing for the Home Visit Being well prepared ensures that the home visit is productive and efficient. Occupational therapists prepare for home visits by doing the following: Ô Filling in interview forms with relevant referral information in advance of the visit Ô Gathering required home visiting resources Ô Compiling appropriate forms and evaluation tools for information gathering Ô Collecting evaluation and environmental measurement tools Ô Collating information on various intervention options Prior to the visit, therapists should read the referral information and any other background information on record and transfer relevant information onto forms to be used during the visit. It is also useful to take the referral documentation on the visit to confirm and clarify information with the client. Therapists should ensure that they gather a range of resources that can be used during a home visit, including the following: Ô Personal identification information, such as an identification badge Ô A clipboard and pens or computer technology, such as a laptop or tablet Ô Occupational therapy evaluation tools, including interview guides, checklists, and report forms (if they are not on a computer or tablet) Ô Paper and pencils for drawing diagrams Ô A cell/mobile phone Ô A street directory or satellite navigation system for directions to the property Ô Water Ô Written information on whom to contact in the event of an emergency, such as a car breakdown Ô A first-aid kit in the vehicle The forms that need to be taken on home visits can include an interview form with prompts, a home visit checklist with specific features in different areas of the home, and privacy and consent forms for use when information needs to be sought from other service providers, such as the doctor, hospital therapists, or home and community care nurses. Occupational therapists may need to take photos of the person and/or areas of the home, which might require the client’s written permission. Evaluation tools such as the Canadian Occupational Performance Measure (Law et al., 1998), Performance Assessment of Self-Care Skills (Rogers & Holm, 2007), Safer-Home (Chiu & Oliver, 2006), Housing Enabler (Iwarsson & Slaugh, 2001), In Home Occupational Performance Evaluation (Stark, Somerville & Morris, 2010), and other standardized tools can be used to establish a picture of the person-environment-occupation transaction and provide a base measure of performance for comparison with outcomes measures (Law & Baum, 2005). The choice of environmental measurement tools depends on the environmental barriers highlighted in the referral information. It is useful to have a kit that holds the following tools, with appropriate instruction sheets and forms in hard copy or electronic format, on all home visits: Ô 18-ft (5-m) tape measure to measure dimensions Ô Electronic distance meter to measure long distances Ô Camera (and spare batteries) for photos of the environmental barriers and the client’s equipment to keep as a record from the visit and to incorporate into the home modification report Ô Light meter to measure lighting levels Ô Force measure to measure the amount of force required to open doors and drawers Ô Electronic clinometer to measure the horizontal gradients of landings, paths, ramps, floors The Home Modification Process Ô Pegs, string line, and spirit level for setting out the proposed configuration of an outdoor ramp Prior to the visit, therapists also need to research and collate resource information to take with them to assist with intervention planning. The resource information might include the following: Ô Concept drawings (site and floor plans or elevations) or photos of modified environments to show the client examples of completed work Ô Access standards or guidelines and/or local building codes relevant to the type of home being visited (to discuss specific design requirements with the client) Ô Photos and product information (e.g., brochures or information from the internet) to show the client illustrations of home modification designs and products and equipment solutions Ô Products such as taps and grab rails to enable the client to see and feel items Ô Equipment such as an over-toilet frame or a bath board that can serve as a less-costly alternative to a home modification. These items may be taken on the home visit to try and evaluate their suitability for the client and the environment. Safety Considerations Prior to the visit, it is important that occupational therapists evaluate potential risks to themselves and the client during the home visit and ensure that safety measures are put in place. Communicating the Home Visit Schedule As a safety precaution, occupational therapists should advise their fellow workers of their schedule, including the addresses and phone numbers of the clients they will be visiting, the time and expected duration of these visits, and their cell/mobile phone number. Staff working in private practice might need to identify a suitable contact and advise this person of the time of their visits and their exact whereabouts, especially if they work on their own, outside of business hours, or in isolated locations. Identification and Clothing Occupational therapists should have personal identification on them at all times. They should also ensure that their appearance and clothing are appropriate and reflect community standards, in particular those that meet the expectations of the older generation. For example, when visiting older people, it is advisable for female occupational therapists to wear trousers rather than skirts to enable them to 95 maintain their modesty while moving into various positions during measuring. It is also preferable that occupational therapists not wear shirts with plunging necklines or shorts or jeans that are low cut or ripped. Therapists should also wear enclosed shoes with low heels because they are likely to be walking on a variety of surfaces, both within and outside of the home. Shoes that can be slipped on and off easily allow occupational therapists to remove shoes before entering the house. When visiting construction sites, clothing and shoes should comply with work health and safety requirements. In such situations, occupational therapists may need to wear hard hats for head protection and steel-tip boots for foot protection. Personal Safety, Training, and Support Therapists need to be conscious of the environments they are entering and the background of the people they are visiting. They need to gather information about the home environment such as the location and available phone reception, whether there are animals present and if they will pose a threat to safety, and the person’s current health status prior to their visit to ensure the therapist is safe at the visit. It is always advisable for occupational therapists to carry a mobile phone at the time of the home visit. On arrival, they need to ensure that their vehicle is in a safe, well-lit, easy-to-access location near the premises. The car should be parked on the street or in a designated parking area in the direction of exit from the street and should not block residents or caregivers needing access to and from the home. A visual check of the property on entry can also provide information about whether there are pets that might pose a safety risk to visitors. Discussion might be needed about restraining pets if the therapist is concerned about the animal or feels that it might disrupt the home visit. Inside the premises, therapists should ensure that they position themselves between the client and the exit to ensure obstacle-free egress in the event of an adverse event. If the client or other householders exhibit any suspicious or unusual behavior, it may be prudent to conclude the visit and exit the premises. It is advisable to record this information on file or report it to a supervisor on returning to the office. Similarly, if an adverse incident occurs at the time of the home visit, the therapist must advise a supervisor as soon as the home visit is completed and make a record of the incident on file. Where therapists are dealing with remote, complex, or challenging clients, it is advisable for them to undergo personal safety training. At times, it might 96 Chapter 5 Figure 5-6. Driving to the client’s home. Figure 5-7. Entering the property. be necessary to take another person along on a visit. For example, if a client lives in a remote region that requires hours of driving, a second person might be required to share the driving and ensure safety in a remote location. When clients are frail, unwell, or live alone, the occupational therapist might require assistance to assess the person’s safety in performing a range of activities in their environment. If an occupational therapist is visiting a client who has just left a mental health facility or prison or has a history of becoming aggressive toward others, he or she might need another staff member for support. Entering the Property Traveling to the Home and Meeting the Client The home visit process begins well before the therapist reaches the front door of the client’s home (Figure 5-6). Occupational therapists survey the community and gather information en route to the person’s home (Klein et al., 1999). They observe the location of local facilities in relation to the client’s premises; type and location of public transport; general topography of the district; presence and condition of footpaths, curbs, and roads in the surrounding area; and style and condition of housing in the neighborhood. By observing the client’s surroundings, therapists can gain an understanding of why people may choose not to relocate, particularly if they are located close to community facilities or support services. Reviewing the surroundings also provides detail of the potential environmental barriers to participation in the community. It enables therapists to ensure that modifications to the exterior of the home will fit with the look of the rest of the street and neighborhood. Prior to the visit, occupational therapists should ensure that they have the client’s permission to enter the property (Figure 5-7). On walking to the front door, the therapist may notice aspects of the external layout of the home that might affect the client’s occupational performance. For example, the therapist might note the slope of the land just outside of the boundary for street access to the site, height and style of fencing for privacy, slope of the land within the boundary, and presence of any paths and steps. It can also be noted whether paths are free of hazards and obstacles, the number of risers on the stairs, the condition of the steps and handrails, the presence of light fittings, and the age and style of the home. These are potential barriers to occupational performance that may require further discussion and consideration (Figure 5-8). The wider dimensions of home also should be considered when entering the property, taking note of the appearance and style of the exterior of the home, for example. If the client is not at home or does not answer the door, the therapist might call the client’s phone number provided. If there is no answer, the therapist might leave a business card with a note indicating the time of the visit. If there is evidence that the client may be at home and there may be concerns about this person’s personal safety, the therapist might call the contact person listed in their documentation or the police to seek assistance. When meeting the client at the front entry, the therapist should introduce him- or herself, show identification, and confirm that the client is available to begin the home visit and is comfortable with the therapist entering the home. As a courtesy, it is suggested to ask whether shoes need to be removed before entering the home. The Home Modification Process On entry, the therapist should observe the environment to ascertain his or her level of personal safety. If there is any feeling of unease for any reason during the home visit, the therapist needs to discontinue the visit and exit the premises. If there are no perceived threats, the visit can proceed and the therapist can establish a presence in the home. The occupational therapist should ask the client and other householders where they would be most comfortably seated and ensure that this location is well suited to conducting an interview and viewing resource materials. The occupational therapist then takes the seat suggested by the client. The therapist may politely request that seating be rearranged, the radio or television be turned off, or lights be turned on to create a more conducive interview environment. If the client offers a drink, the therapist can accept it and use this time to establish a rapport. It is also an opportunity to begin to understand the client’s experience of home, commenting on, for example, the view; the décor; or the prints, objects, or photos on display. Using this approach, clients come to understand that the occupational therapist is interested in their story and that he or she values their experiences and meaning of home. This is an important first step in creating a collaborative relationship with clients, where they feel valued as experts in their own lives and homes. A useful opening question to gather a wealth of information about the client’s connection to home is, “How long have you lived here?” This often allows people to share their history of home, whether it is home with many memories and a place they wish to remain, or a place that is new to them that they are not familiar with or perhaps a place that they do not enjoy living in. The therapist might also use this opportunity to observe the client as he or she prepares the refreshments, noting any concerns about mobility and ability to structure and complete the task, as well as concentration and communication during the activity. The therapist should be aware that performance during this activity may not be representative of the person’s usual performance and that hypotheses formulated at this time need to be confirmed through further evaluation. The therapist might note the layout and condition of the home, existing obstacles, and color and lighting of the rooms and discuss issues of concern with the client as they become relevant during the interview. When the client is finally seated, the therapist makes a full introduction, providing information about the home modification program, his or her role, and the purpose of the visit. The therapist should introduce him- or herself to everyone present and develop an understanding of each person’s relationship with the client and his or her place in the home and its routines. The therapist may also need 97 Figure 5-8. Observing the property features and the client. to clarify each person’s role in any decision making to do with modification of the home environment. For example, the client’s husband might have been involved in building and maintaining the home and would therefore need to be consulted about changes; a community care nurse might provide assistance during bathing and would therefore need to be consulted about modifications to the bathroom; the client’s daughter might be concerned about disruptions to the household that would necessitate her accommodating her parents if major modifications are undertaken. In different situations, the occupational therapist might have to vary the way the visit is conducted. For example, the therapist might sit and complete the interview first before asking the client to show how he or she currently undertakes activities in various areas of the home. Alternatively, the client may be anxious to discuss his or her concerns and show the problem areas in the home first to ensure that the occupational therapist is clear about the issues. The therapist might also decide that viewing the home is important before the interview because it could provide important information on the layout of the home and specific fixtures and fittings. Regardless of the order of events, it is essential that the therapist gains all of the information required before discussing interventions. 98 Chapter 5 Information gathered at the time of the interview is documented to ensure a record of the detail is retained (Stark, 2003). Occupational therapists may use one or more of the following to document information: Ô A notebook for handwritten interview notes or drawings Ô Paper forms with key headings or checklists to guide the interview process Figure 5-9. Interviewing the client. Interviewing the Client At the start of the interview process, the occupational therapist discusses his or her role in ensuring the privacy and confidentiality of the information gathered and asks the client to sign the consent forms. The therapist confirms the referral information and the background details with the client to ensure these are accurate (Figure 5-9). During the interview, the therapist listens to the person’s story to understand the following: Ô The person’s health condition and concerns Ô Activities, routines, and roles within the home and community Ô Use of the various areas of the home Ô The personal meaning of the home, including objects, spaces, and features within the home Ô The history of the home Ô The person’s future hopes and dreams in relation to his or her home (Siebert, 2005) The occupational therapist can use a series of open and closed questions to develop a deeper understanding of the person, his or her occupations, and occupational performance concerns and barriers in the home environment. This questioning process involves identifying and defining issues of importance to the client and understanding the history and routines within the household and how these may influence the nature, feasibility, and appropriateness of interventions (Siebert, 2005). The client’s wants, needs, occupational risks, and problems are evaluated, and information is gathered, synthesized, and framed from an occupational perspective (AOTA, 2014). This information is then considered as the occupational therapist observes the client undertaking various activities in the home at a later stage in the visit. Ô Personal computers (handheld or laptop or tablet) that contain documents with key headings or checklists. This technology may be used to type in responses directly or convert handwriting to text and upload photos so that changes can be drawn on the photo directly. Ô Digital pens and dedicated documents with key headings or checklists. The digital pens can record handwriting and concept drawings or convert these to text and electronic diagrams. The type of technology used depends on a range of factors, including the therapist’s experience with and confidence in using technology; the cost, availability, and reliability of the technology; the organization’s position on its use for home visiting; and access to technical support. Inspecting the Home During the visit, the therapist examines the environment carefully to develop a full understanding of its layout, structure, fixtures and fittings, and the barriers to occupational performance (Figures 5-10 through 5-16). Of interest will be: Ô External access around the home: Access to the mailbox, trash cans, clothesline, pool, greenhouse, front, and back yards, and the front gate; the quality and type of paths, stairs, ramps, and driveway areas Ô Internal access within the home: The layout of the home (open plan or with corridors); location and number of internal stairs; number of bedrooms and route of access to the various areas of the home; changes in floor levels and the types of floor finishes Ô Kitchen, bathroom, laundry, and bedrooms: Layout and the types of fittings and fixtures Ô Car parking facilities: Space, lighting, and access Ô Access to the vehicle or public transport: Access from the car parking facility to the home, the distance to public transport facilities The Home Modification Process Figure 5-10. Inspecting the home with the client. Figure 5-11. Observing the client. Figure 5-13. Measuring the client’s equipment. Figure 5-12. Observing the client. Figure 5-14. Measuring the client’s reach range. 99 100 Chapter 5 Figure 5-15. Measuring the client’s equipment. A walk-through also offers an opportunity to gather information about the dimensions of the home to understand what might be important about the home for the client and their family and how this may affect decision making. For example, the aesthetic and style of the home may be important to consider when thinking about the appearance of grab rails or a ramp. A walk-through of the different areas with the client will enable the occupational therapist to analyze the physical environment and its potential to enhance or constrain occupational performance (Siebert, 2005). It will also afford the client an opportunity to show where occupational performance difficulties occur. The occupational therapist then uses skilled observation and occupational analysis to analyze the client’s occupational performance as he or she demonstrates activities of concern or simulates elements of activities, such as transfers, bending, lifting, and reaching (Klein et al., 1999). The therapist listens to the client’s concerns and then observes his or her performance, analyzing the sequence of activities and discussing how, when, where, and why the difficulties occur with the client (Ohta & Ohta, 1997). This ensures that the hypotheses formulated by the therapist about the person’s capacity at the time of referral and interview are fully explored and validated or refuted as appropriate. Examining occupational performance in different areas of the home with the client ensures that he or she understands how the current design and layout of the home, or the existing fittings and fixtures, might hamper occupational performance and allows the therapist to discuss potential interventions. Figure 5-16. Measuring the environment. Measuring the Client, Equipment, and Caregiver The occupational therapist might need to measure the client, his or her equipment, and the caregiver to determine the required size of openings and circulation spaces and the location of fittings and fixtures (see Figures 5-14 through 5-16). When the client’s dimensions are required, the therapist measures the following: Ô Height, width, and length of various body parts Ô Reach range in seated and/or standing positions Ô Eye height and examines his or her visual fields In addition, the therapist measures the height, length, width, and circulation space of the equipment and caregivers. The therapist also checks the positioning and movement of the client with the equipment and caregivers in relation to managing the spaces, fittings, and fixtures. This information ensures that spaces can be designed to optimize the ease of approach and use and that fixtures and fittings are within reach. If there are going to be multiple users of a specific area, the anthropometrics of all users will need to be The Home Modification Process 101 Figure 5-18. Planning, selecting, and negotiating interventions. Figure 5-17. Measuring the environment. considered in the redesign of space and placement of fittings and fixtures, with adjustable options being integrated into the design if necessary. Photographing, Measuring, and Drawing the Environment Concept drawings and photographs can become a valuable record of the home visit and can be used to complement the written detail in the report. Therapists are reminded to seek permission from clients to photograph, measure, and draw areas of the home. Photographs Therapists may take photos of key areas and features in the home from various angles to ensure that comprehensive information is collected. Photographs can be useful in reports because they add visual detail about the home and environmental barriers. Digital photographs can be easily inserted into word processing or presentation software/apps and can be annotated by hand or electronically to highlight barriers and illustrate where the modifications are to be installed. A digital photo might also be useful for the therapist to discuss the environmental barriers and range of solutions with the client if he or she is not able to access an area of the home. Printouts can be drawn on to illustrate the location of the proposed modifications or shown on the screen of a portable device. Photos can also serve as a record of the environment before, during, and after the home modification and can be a visual aid for informing other clients, their families, and caregivers about alternative environmental interventions. Measurements The occupational therapist needs to collect a comprehensive set of measurements of the problem areas in the home environment (Figures 5-17 and 5-18). Measurements of features that are working well for the client should also be taken so that these dimensions can be incorporated in any redesign. The type of measurements taken will depend on the environmental barriers or enablers identified. Measurements can include lengths, widths, depths, and heights of fittings, fixtures, and the circulation spaces in problem areas of the home. It might also be necessary to measure the spaces adjacent to or along a path of travel to these areas, as these areas might need to be incorporated in the final redesign. It is advisable to collect any additional measurements that might be useful if alternative solutions need to be explored at a later stage. All relevant measurement information, including concept drawings of the layout of specific areas in 102 Chapter 5 Chapter 8 provides information on drawing the built environment. Planning, Selecting, and Negotiating Interventions Figure 5-19. Reviewing the professional drawings. floor plan and elevation views, is recorded at the time of the visit and is incorporated in the design of the modification. Chapter 7 provides further information about measuring the person and the environment. Concept Drawings Measurements of the environment are recorded on a concept drawing, which can be used when communicating design requirements to various stakeholders. Therapists employ various drawing methods, depending on their expertise and the type of work they do. They may choose to take only approximate measurements and create concept sketches to send on to a skilled contractor or building design professional to refine and develop into scale architectural drawings. Alternatively, therapists may develop simple concept drawings, drawn to scale, to ensure that there is adequate space for circulation and fixtures and fittings in the proposed design before passing it on to building and design professionals for detailed drawings. Therapists should check the level of service they are required to provide with their licensing boards to ensure that they do not work outside of their scope of practice with respect to the creation and provision of drawings. Once a draftsperson or builder has developed a scale drawing, the therapist needs to review the drawing and evaluate the usefulness of the design for the client and other people involved in the household. Consequently, a plan review may be undertaken with the client and others. A scale ruler is used during a plan review to confirm that required clearances and circulation spaces have been included in the design and that the plan supports the movement of the person, their equipment, and carer during activities. An individual’s occupational performance can be enhanced through a range of interventions, such as seeking alternative ways to undertake activities, providing assistive devices and social supports, and/or modifying the home environment (Figure 5-19). Once therapists have a clear understanding of the client’s occupational profile and his or her key occupational performance issues, they can select, review, negotiate, plan, and implement a range of suitable interventions. When designing interventions, therapists draw on theory, practice models, and research evidence and use professional reasoning to choose the best solution for each situation (AOTA, 2014; Fisher, 1998; Schell, 2014). Occupational therapists collaborate with clients to establish short- and long-term goals related to occupational performance in the home and community (Grayson, 1997). Short-term goals might include addressing problems associated with performance components or environmental issues; long-term goals might be to maintain or enhance the performance of daily occupations related to performing different roles in the home and community (Law & Baum, 2005). Once the client’s goals are identified and prioritized, the therapist works with him or her to identify the interventions to address these goals (AOTA, 2014). When an extensive number of changes is required, staff may need to discuss the list of recommendations with clients and, if relevant, caregivers, so that items can be prioritized (Connell & Sanford, 1997; Silverstein & Hyde, 1997). Prioritizing home modifications is especially important if there are issues relating to costs, funding, and timing of the work. Factors Influencing Intervention Options The process of planning and discussing intervention options with the client can be a complex undertaking influenced by a range of factors: client related, therapist related, and environment related. Client-Related Factors Occupational therapists should consider various areas of the home as they talk through the range of intervention options. Clients may be unable to change when and how specific activities are undertaken and therefore may be reluctant to consider some intervention options. However, they can also grow accustomed to reduced levels of performance The Home Modification Process and underestimate the barriers in the home environment (Pynoos, Sanford, & Rosenfelt, 2002; Wylde, 1998). Interventions can also have an impact on the physical, social, cultural, personal, spiritual, and temporal elements of the home environment, which should be considered carefully when selecting and negotiating modifications (Aplin et al., 2015; Hawkins & Stewart, 2002). Other factors that can affect the selection, negotiation, and acceptance of home modifications include the following: Ô The cost of the modification: Clients might not have the funds to make changes to their home, especially if most of the home modifications are to be self-funded, as they generally are (American Association of Retired Persons [AARP], 2000). In addition, some modifications require additional structural or maintenance work to be undertaken before the modification is completed, which is often at a cost clients can ill afford (Jones, de Jonge, & Phillips, 2008). Ô The person’s knowledge of the range of possible intervention options: Without a clear understanding of what is possible, clients are often not able to envision how their situation can be improved (Jones et al., 2008). Ô The person’s perception of the need, usefulness, and acceptability of the intervention: Clients are more likely to accept an intervention if they believe it supports their sense of personal identity. Conversely, interventions that undermine their sense of identity are unlikely to be welcomed (McCreadie & Tinker, 2005). Ô The availability of information about arranging the work: Clients are better able to undertake a modification if they understand the building process: how to choose and engage a contractor, how the work would be done, how to manage in the home while the work is underway, and how to cope with any mess caused by contractors (AARP, 2000; Duncan, 1998; Pynoos & Nishita, 2003). Ô The amount of disruption the intervention is likely to cause: Clients are sometimes reluctant to undertake extensive work in areas such as the bathroom if it will be out of commission for a period. Therapist-Related Factors Interventions recommended by occupational therapists are likely to be influenced by their own level of knowledge, skill, and experience in the 103 home modification field, as well as their model of practice. For example, occupational therapists with a wide-ranging knowledge of domestic products, design standards or guidelines, and resources and who undertake postmodification evaluation of previous work are likely to have a wealth of valuable information and experience that they can draw on. Therapists who use an ecological or transactive model of practice are also more likely to address occupational performance difficulties using environmental interventions than therapists who use models focused on remediating performance components. Environment-Related Factors When considering modifications for the home, the team and the client need to consider a range of factors relating to the suitability of the dwelling for alteration, including the following: Ô The cost-effectiveness of any changes, given the size, value, age, and structural suitability of the home (Connell & Sanford, 1997; Silverstein & Hyde, 1997) Ô Building rules and regulations relevant to the redesign of the area to ensure compliance with the law Ô The fit of any modification with the style and design of the dwelling and existing streetscape, if the work is located outside of the home Ô The long-term viability of the design and suitability to current and future householders. Current design trends, such as universal design, aim to ensure that products and designs are “useable by all” (Center for Universal Design, 1997) and reduce the likelihood that the modification needs to be altered or removed later as the needs change (Ringaert, 2003). Ô The dimensions of the home (outlined in Chapter 1) provide a comprehensive list of environmental factors that have been found to influence home modification decision making. Other Factors In most services, there are policies and procedures relating to home modification recommendations and a specific range of resources available to assist in the planning of interventions. Legislation, industry standards, and design guidelines might also guide the design and implementation of environmental interventions (Ringaert, 2003). Chapter 4 provides information on legislation influencing home modification practice, and Chapter 11 provides details about access standards and their role in guiding interventions. 104 Chapter 5 Ô A shopping center to try the gradients of accessible ramps Ô Another client’s home to see the home modifications Information gleaned from these trials can be used to confirm or guide the redesign of proposed home modifications. Chapter 9 provides information on developing suitable interventions, and Chapter 10 provides detail about sourcing and evaluating products and designs. Concluding the Home Visit Figure 5-20. Concluding the home visit. Educating Clients About Proposed Interventions and the Modification Process Throughout the process of selecting and negotiating interventions, the therapist has a responsibility to inform the client about the extent of change to an area required, the range of people to be involved in the process and their respective responsibilities, and the expected time frame for the modification work. In addition, the therapist should discuss the expected impact of the home modification on the way activities would be undertaken and the expected appearance of the final modification. The therapist might show the client photos and diagrams of the layout of a room to help him or her better understand how it will look and how he or she might be able to move through or use the area. Some occupational therapists find it useful to take clients to facilities that have already been modified to allow them to move around in the space and try the fittings and fixtures. This may include visiting: Ô A demonstration home or display center to view and try accessible design features Ô A hydrotherapy center to try an accessible toilet, vanity unit, and shower recess At the conclusion of the home visit, the therapist should provide the client with a brief verbal summary of the outcomes from the visit and confirm the full range of issues and options to be included in the home modification report (Figure 5-20). It is also beneficial to leave a brief written summary of the proposed interventions and an action plan stating who is responsible for each step of the plan. At this time, it is important to ensure that the client agrees with the recommendations. If the client does not agree, the therapist should extend the visit or make another time for further discussion and negotiation with the client and other stakeholders. If technical advice is required on the proposed modification, the therapist might also arrange to visit with a designer or builder before the interventions are finalized and the home modification report is written and submitted to the relevant body for approval. Seeking Technical Advice Technical building advice is sometimes required, particularly where home modification work is expected to be extensive or if the client and occupational therapist are not clear about whether the home can structurally accommodate the modification. Because occupational therapists do not receive training in construction and renovation of buildings, they consult with experts, such as design or building professionals, who provide expertise on design and building matters. For example, a therapist might need to know whether: Ô A wall can support a grab bar Ô A wall can be removed to allow more circulation space without compromising the integrity of the roof Ô Light fittings and power points can be of a particular type and positioned in specific locations in a bathroom under national plumbing and electrical code requirements The Home Modification Process 105 Ô A garage can be converted into an extra bedroom under local building regulations Ô A ramp can be designed with an appropriate gradient to suit an area with limited space or if the yard has a slope Ô A proposed extension of a home is possible under local building regulations Ô A stair lift can be installed on stairs leading to several units under the building regulations Design or building professionals generally contribute to the design and construction of modifications by: Ô Noting environmental barriers and constraints, including property boundaries, immovable structures, or items that will affect the design (e.g., protected trees and fire-rated or loadbearing walls) Ô Systematically measuring relevant areas and noting the position of services and other permanent fittings and fixtures, such as windows and doors Ô Deciding on the structural work required, such as modifying the levels or finishes of the floor and removing, moving, or installing new walls, doorways, or windows Ô Deciding on the changes required to services, such as the location of electrical points, water pipes, or drains Ô Planning the location of fittings and fixtures Ô Drawing the redesigned area to scale Ô Finalizing product finishes, such as flooring and surfaces, lighting, and color options Ô Providing an estimated cost of the works Issues discussed among the occupational therapist, design or building professional, and client might include the following: Ô The feasibility of the proposed environmental modification, such as whether the home modification is reasonable given the age and type of construction of the home or whether the changes can be easily and stylishly included in the existing layout of the home Ô The existing dimensions and space for the home modifications, such as adequate floor area to incorporate the home modification Ô The required dimensions of the modifications, such as length, height, width, or depth of spaces, fixtures, and fittings Ô The range of products and features to be incorporated into the alterations, with consideration Figure 5-21. Checking the built environment against the plans. given to the specific needs of the client as well as other people in the household Ô The cost and design of the proposed work in relation to the household budget and the degree of design elegance associated with the cost of the proposed modification The information gathered from discussions with the design and building professional might be included in the therapist’s report, or the design and building professional might provide a written technical specification report with accompanying drawings and photos. If the technical specification report and drawings have more technical detail than the therapist’s home modification report, these should be used by the contractor for quoting and completing the work. Reviewing Professional Drawings To ensure that the developed drawings are consistent with those agreed to by the therapist in collaboration with the client, the therapist compares them with those created by the design or building professional (Figure 5-21). The therapist ensures that all relevant information is included and that there are no discrepancies, omissions, or inadequate adherence to recommendations or design guidelines 106 Chapter 5 or standards. Once the plans are reviewed, the therapist provides a report on how the proposed design will or will not meet the client’s needs and either endorses the drawings or provides a report about the discrepancies noted on the plans. This report provides feedback to the design or building professional and ensures the drawings are revised to suit the client’s specific requirements. It may be necessary to undertake a plan review process with the client to double-check the layout and measurements, particularly if equipment was being scripted at the time when drawings were being developed, or if the client’s physical and functional changes require alteration of features and fittings, new equipment, or a greater level of carer support (i.e., one rather than two carers). Role Differences It is important to note that design or building professionals are not trained to have an understanding of a client’s health conditions and disabilities and the associated impact on occupational performance; hence, they have no expertise in evaluating the specific needs of clients. They are not trained to analyze the person-environment-occupation transaction, to identify a specific cause of performance difficulties, or to determine how occupational performance can be further enabled using a range of interventions. Further, they are not skilled in measuring a person with or without equipment and do not have expertise in determining future equipment and carer requirements in relation to the person’s health condition or disability. The information that is gleaned from measuring the person, the equipment, and carer and anticipating future need can affect the current and proposed layout of areas within and outside the home. Building and design professionals do possess important technical expertise on the design and construction of buildings and surrounding environments, which can assist in the planning of environmental interventions. They are also experts at providing drawings, specifications for other building and design professionals, and costings for works completion. Consequently, it is imperative that a team approach is used in home modification practice so that various professionals can contribute their unique expertise to the process and the design of environmental interventions (Pynoos et al., 2002). Writing the Report and Completing the Drawings Occupational therapists should document the findings and recommendations as soon as possible after the home visit. This will ensure that the details of the visit are captured accurately in the report. Notes and photos taken at the time of the visit can also assist with recall. The occupational therapy report should summarize information gathered at the time of the home visit. It is also important that the therapist contacts the client, family, or people assisting the client to make decisions, or other service providers after the visit to seek further information about the client’s health condition or disability and their functional capacity. As stated earlier, permission should be sought from the client prior to contacting relevant stakeholders. Some services require that client permission be recorded in writing and placed on file for future reference. It is important that therapists are clear about the documentation requirements of the original referrer (the program or individual who will receive the report) because each might have their own reporting expectations. The report should be in politically correct language and worded simply so that it can be clearly understood by the intended reader. Details about whether information has been reported by the client, family, caregivers, or others or observed by the occupational therapist should be included. More essentially, the report should provide a record of the professional and clinical reasoning and decisionmaking process and not just the outcomes of the home visit. If required, photos and drawings should be incorporated into the report to provide a detailed picture of the client’s circumstances and the areas of the home environment requiring alteration. Finally, the report should provide the client with a record of the visit, including the issues and solutions discussed and the final recommendations. The Structure of a Home Modification Report Not all occupational therapists or home modification services stipulate a structure for home modification reports; however, it is recommended that they establish a structure for these documents. For example, some services might choose to document the occupational therapy report in two sections as follows. The first section of the report should provide background information about the client; their disability or medical condition; and any personal or environmental impacts on their occupational performance, valued roles, occupations, and day-to-day activities. Other background information can include details of the equipment being used by the client in the home and, where appropriate, the dimensions of these items with and without the client. Information on the client’s current living situation and use of The Home Modification Process support services should also be included in this first section. The report should detail the issues identified and discussed during the interview as well as the options explored. Justification for the final option should also be provided, explaining why this is the best option for the client and his or her situation. This section should detail the specific needs of the client and the physical, social, cultural, personal, and temporal aspects of the home that affect decision making. A statement might need to be made against each recommendation, detailing the consequence of not proceeding with the home modification, to ensure the reader is clear about the proposal. The second section of the report is a guide for the building professional when undertaking the home modification work. This section should incorporate a general list of the modifications required, including the location and dimensions of features, circulation spaces and clearances, and performance requirements of products and finishes (Bradford, 1998). The building professional does not need to read the confidential information about the client contained in the first section; he or she requires only the technical information to undertake the home modification work. It is therefore necessary that this second section provides sufficient detail for the modification work to be undertaken successfully and, where appropriate, include the detailed specification and plans provided by the builder or architect. This section of the report should be able to stand alone in its own right and have sufficient detail to guide a builder, particularly if the building professional’s drawings and specifications become detached from the occupational therapy report. It is not satisfactory for the therapist to refer the reader to the builder’s or architect’s report and not include a detailed summary of the home modification requirements in that report. If the builder’s report is lost or goes missing, there would then be no detail in the therapist’s report to guide the same or another builder. Further, this section of the therapist’s report may be used by several builders for quoting. It is not industry standard for builders to quote off another builder’s documentation, but it is acceptable to use the therapist’s documentation. When making recommendations, it is preferable that therapists indicate only the performance requirements of products rather than specify brands to ensure no one company has a competitive advantage over others and to prevent the therapist from being sued if there is product failure. This practice also ensures that the builder can select from a range of products. There might be specific occasions when the client requires a particular product to suit his 107 or her needs. In such situations, occupational therapists might have to provide product information in their report to ensure that the client’s needs are met (Bradford, 1998). It is important that therapists develop an intimate knowledge of the wide range of products suitable for use in home modifications. They should be familiar with industry standards on how the product should be manufactured, tested for safety, and labeled for correct use. Therapists can provide each client with a copy of the report and its recommendations to ensure he or she has a record to refer to while the work is being undertaken. The therapist should be mindful that the report, and any other associated documentation relating to the client on file, is a legal document and might one day be used in court. It is therefore important to consider the extent and type of information to be kept on file and included in reports. Organizations have a specific policy in relation to the release of reports that therapists need to consider before providing documentation. Submitting the Report In the next step of the home modification process, therapists submit the report for approval and action. Some services require information only for the builder and do not need the client’s background information. In this instance, therapists can keep notes on file for future reference and to comply with the legislative requirements for storage of client records. If therapists have provided sufficient justification for the recommendations and details of the modification in the report, the work can be approved and started. On occasion, the person or program providing the funding for the home modification might not approve the modification; the alterations might be considered too costly, too invasive, an inappropriate intervention given the client’s requirements, or outside the scope of the provision of the program. There might be requested changes to the recommendations, which would require another home visit to renegotiate the interventions with the client. It is important that therapists be clear about the parameters of the program before making recommendations because this will inevitably save time. However, they should always ensure that their recommendations are in the best interests of their clients and provide them with sufficient information to make informed choices. Clients might decide to fund their preferred option themselves. Alternatively, therapists might refer clients to another service should their needs fall outside the scope of the existing service or funding. 108 Chapter 5 Figure 5-22. Reviewing the impact of the home modifications on the client’s occupational performance. Figure 5-23. Observing the client using the home modifications. If therapists are in doubt about what might be approved, they could propose a range of options in the home modification report, from the least costly and least invasive option through to the ideal solution that may be more expensive. It is important that therapists clearly document their clinical reasoning in relation to the proposed interventions, the level of importance or priority assigned to these interventions, and the consequence of each for the client. Documentation is also to include details about the consequence of not proceeding with the recommendations. This information will provide helpful detail for the decision maker as he or she reads the report. Further information about ethical, legal, and reporting issues can be found in Chapter 12. Ô Caregivers need to use the modification when assisting the client (Siebert, 2005) Further education and training in the use of modifications may be required if the client has demonstrated difficulty managing alternative interventions. This training may need to be delivered over several sessions depending on how the clients manage with the initial instruction for use. Therapists might also provide contact information for repair or maintenance (Bradford, 1998) so that the client can contact the supplier or builder for assistance if problems arise during the warranty period. Educating and Training Clients in the Use of Home Modifications Occupational therapists have a role in educating and training clients in the use of modifications once they have been installed. This training is particularly relevant in situations where: Ô The modifications have been extensive Ô The person’s impairments are newly acquired Ô The person’s occupational performance has declined over time Ô A range of equipment has been considered in the planning of the modification Evaluating Home Modifications and Client Outcomes After Installation The home modification process concludes with the occupational therapist inspecting the modification and other interventions to determine whether the home modifications have been installed properly and that they have achieved the desired outcomes for the client, are effective, and have not presented any unexpected impacts or difficulties (Figures 5-22 and 5-23). The therapist also confirms that the modifications and interventions have met client expectations and fit in with the look and feel of the The Home Modification Process home and household routines. In addition, they discuss whether the client’s occupational performance has been supported or enhanced through the new interventions. Further changes might have to be made if the modification has not helped the person’s occupational performance or if it has created further environmental barriers. The postmodification inspection can involve therapists taking a walk-through of the property with clients to examine the effectiveness of the modifications and/or comprise a formal evaluation of the outcomes of the modification using a standardized evaluation tool. In the first instance, occupational therapists might complete a detailed review of the products and finishes installed and check the specific measurements to ensure that the home modification has been completed per the therapist’s documented recommendations and drawings or per the design or building professional’s specification and drawings. Therapists should inform clients (or advocates) if they identify problems resulting from poor workmanship, incorrect installation of fittings and fixtures, or delays with work completion by tradesmen. To act in this capacity, they will need to understand the relevant legislation, such as building or antidiscrimination legislation, to help resolve issues. They will also need some knowledge of advocacy and building service organizations that can assist in the resolution of disputes. Improved occupational performance is the expected outcome of occupational therapy interventions (Backman, 2005). Performance outcomes discussed during the initial evaluation process (at the time of interviewing and observing the client) can be revisited after the modification to note any change in that performance. By using standardized tools to identify goals and evaluate performance, therapists can assess the extent of change following the modification. This information is invaluable in informing practice and demonstrating the effectiveness of home modification practice. Further information about evaluating client outcomes can be found in Chapter 13. At the conclusion of this process, the occupational therapist discusses the discontinuation of services with the client to ensure they are clear about the process. Services from the therapist should cease if the occupational performance goals have been achieved or if the goals have not been met but the person has progressed as far as he or she can toward these goals, if he or she has received the maximum benefit of occupational therapy services, if unforeseen circumstances arise (such as the client 109 relocating or dying), and if no further home modifications are required (Siebert et al., 2014). CONCLUSION This chapter described how occupational therapists receive and analyze referral information with a view to prioritizing their visit in relation to other referrals. After contacting clients to arrange a suitable time and preparing and collating required resources in advance of the visit, therapists travel to the clients’ homes, where they complete interviews; inspect the homes; measure the clients and their equipment and/or caregivers; and photograph, measure, and draw the built environment. They sit with the clients to plan, select, and negotiate a range of interventions before concluding the first visit. This chapter has also discussed how technical advice may be required from professionals with design or construction expertise before the report and drawings are finalized and submitted to the individual or organization providing funding approval. Information has been provided on the valuable role of occupational therapists in educating and training the client in the use of the home modification and evaluating its effectiveness after installation and use by the client. REFERENCES American Association of Retired Persons. (2000). 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(2005). The acceptability of assistance technology to older people. Ageing and Society, 25(1), 91-110. Ohta, R. J., & Ohta, B. M. (1997). The elderly consumer’s decision to accept or reject home adaptations: Issues and perspectives. In S. Lanspery & J. Hyde (Eds.), Staying put: Adapting the places instead of the people (pp. 79-89). Amityville, NY: Baywood Publishing Company Incorporated. Pynoos, J., & Nishita, C. J. (2003). The cost and financing of home modifications in the United States. Journal of Disability Policy Studies, 14(2), 68-73. Pynoos, J., Sanford, J., & Rosenfelt, T. (2002). A team approach to home modifications. OT Practice, 7(7), 15-19. Ringaert, L. (2003). Universal design of the built environment to enable occupational performance. In L. Letts, P. Rigby, & D. Stewart (Eds.), Using environments to enable occupational performance (pp. 97-115). Thorofare, NJ: SLACK Incorporated. Rogers, J. C., & Holm, M. B. (2007). The performance assessment of self-care skills (PASS). In I. E. Asher (Ed.), An annotated index of occupational therapy evaluation tools (3rd ed., pp. 102-110). Bethesda, MD: American Occupational Therapy Association. Schell, B.A.B. (2014). Professional reasoning in practice. In B.A.B. Schell, G. Gillen, M. E. Scaffa, & E. S. Cohn (Eds.), Willard & Spackman’s occupational therapy (12th ed., pp. 384397). Philadelphia, PA: Wolters Kluwer/Lippincott Williams & Wilkins. Schell, B.A.B., & Schell, J. W. (2008). Professional reasoning as the basis for practice. In B. A. Boyt Schell & J. W. Schell (Eds.), Clinical and professional reasoning in occupational therapy (pp. 3-12). Philadelphia, PA: Lippincott, Williams & Wilkins. Siebert, C. (2005). Occupational therapy practice guidelines for home modifications. Bethesda, MD: American Occupational Therapy Association. Siebert, C., Smallfield, S., & Stark, S. (2014). Occupational therapy practice guidelines for home modifications. Bethesda, MD: The American Occupational Therapy Association Press. Silverstein, N. M., & Hyde, J. (1997). The importance of a consumer perspective in home adaptation of Alzheimer’s households. In S. Lanspery & J. Hyde (Eds.), Staying put: Adapting the places instead of the people (pp. 91-111). Amityville, NY: Baywood Publishing Company. Stark, S. (2003). Home modifications that enable occupational performance. In L. Letts, R. Rigby, & P. Stewart (Eds.), Using environments to enable occupational performance (pp. 219234). Thorofare, NJ: SLACK Incorporated. Stark, S., Sommerville, E. K., & Morris, J.C. (2010). In-Home Occupational Performance Evaluation (I-HOPE). American Journal of Occupational Therapy, 64, 580-589. Wylde, M. A. (1998). Consumer knowledge of home modifications. Technology and Disability, 8, 51-68. Evaluating Clients’ Home Modification Needs and Priorities 6 Desleigh de Jonge, MPhil (OccThy), Grad Cert Soc Sci and Melanie Hoyle, BSc (Psych), MOccThySt, Grad Dip Health Sci, Post Grad Dip Psych In occupational therapy, evaluation is viewed as a collaborative process that aims to understand people as occupational beings and how they create meaning in their lives through occupation (Cohn, Schell, & Neistadt, 2003). A home evaluation seeks to understand and analyze the dynamic transaction between people, their occupational patterns, and the home environment. Using a top-down approach and an occupation-based framework, occupational therapists analyze occupational performance by first seeking to understand the roles and occupations of importance to the person and the impact of the injury, impairment, or health condition on the person’s life. The therapist then observes and examines the person’s performance, the home environment, and occupational elements (activities, tasks, and sequences) to identify barriers and facilitators to performance. Clients are considered central to the evaluation process, actively contributing to the therapist’s understanding of their experience and capacities, the value of the activities they engage in, and the intricacies of the home environment. Given the unique and complex nature of occupational performance in the home, therapists rely heavily on professional reasoning to deal with the diversity of information they gather during the evaluation process. This chapter describes the range of reasoning styles therapists use and how they are used throughout the process to develop and test hypotheses, understand the client’s perspective, and determine what is achievable to ensure the best possible outcomes. The chapter also details the variety of evaluation strategies therapists use to understand and interpret occupational performance in the home, including informal and structured interviews, skilled observation, and standardized assessment tools, and discusses what each strategy contributes to the home modification process. Criteria are also provided to guide therapists when they are selecting and evaluating standardized assessment tools. CHAPTER OBJECTIVES By the end of this chapter, the reader will be able to: Ô Describe the purpose of a home evaluation - 111 - Ô Explain the framework therapists use for evaluating occupational performance in the home Ô Describe how professional reasoning is used throughout a home evaluation Ô Identify the types of evaluation strategies occupational therapists use during a home visit and what each contributes to the evaluation process Ô Identify important considerations in choosing standardized assessment tools for home modifications Ainsworth, E., & de Jonge, D. An Occupational Therapist’s Guide to Home Modification Practice, Second Edition (pp. 111-144). © 2019 SLACK Incorporated. 112 Chapter 6 PURPOSE OF EVALUATION When providing a home modification service, the purpose of an occupational therapy evaluation is to gain an understanding of the clients’ skills and abilities and the barriers that prevent them from successfully completing the necessary and valued activities in their home. The home is a natural environment in which the therapist and client can develop a shared understanding of occupational performance issues. It is here that therapists can observe their clients undertaking everyday activities and see what is completed and how and where they are usually done. By using a range of evaluation strategies, the therapist identifies “misfits” involving the person, occupations, and the environment. Throughout the visit, the therapist monitors the environment and talks with people who live in the home to understand the dimensions of the home environment that influence occupational performance and are likely to affect decision making. Therapists undertake evaluations in the home to: Ô Ensure that clients being discharged from a hospital or institution are safe and able to undertake basic self-care activities independently Ô Identify fall risks, especially in the homes of older people and people with a history of falling Ô Ensure that people with congenital and acquired impairments (e.g., cerebral palsy, stroke, spinal or head injury, Parkinsonism) are able to mobilize safely and function effectively in their home environments Ô Ensure that older people, including those with and without an identified health condition, are able to remain living in their homes for as long as possible Ô Assist families to care for children, teenagers, or adults with impairments Home is where many and varied occupations are undertaken (Rigby, Trentham, & Letts, 2014). It is where people commonly eat; rest; look after themselves and others; and manage their finances, goods, and resources. It is where they develop and maintain relationships or refresh and replenish their energies through a range of restful and active leisure pursuits. It is the base from which they engage in the community and explore the world. Some activities happen routinely on a daily or weekly basis, whereas others happen seasonally or periodically. Home evaluations generally involve an assessment of the person’s ability to perform valued and important occupations in the home. Depending on the person’s roles, goals, and priorities, an evaluation would generally include an assessment of self-care and household activities, as well as those to do with leisure and community participation. Some evaluations focus primarily on the accessibility or safety of the home and community. Evaluations generally take a number of forms. First, they are used as a means of screening (i.e., determining whether a person requires occupational therapy services and how urgently). Evaluations also assist therapists to analyze and identify the nature and, in some cases, the extent of the occupational performance issue. Finally, evaluation allows therapists to determine whether there has been a change in occupational performance as a result of occupational therapy intervention. This is commonly referred to as outcome measurement. Each of these evaluation approaches uses different strategies, although some traverse a number of purposes. Screening Screening involves a cursory evaluation of the person’s occupational performance to determine whether a more thorough evaluation is required (Shotwell, 2014). This can take the form of a brief, informal interview with the person (or the referrer) to determine whether he or she has any specific occupational performance concerns or is at risk of developing associated problems. Therapists commonly use structured questioning to understand the nature of the person’s impairment or health condition and its current and future impact on occupational performance. Therapists also briefly explore the demands of various roles and activities and the nature of the home environment and potential impacts on occupational performance (Law & Baum, 2017). Alternatively, they use standardized tools to evaluate the person’s capacity to perform a range of activities or identify environmental hazards that may place the person at risk of occupational performance difficulties in the home. Both informal and structured questioning rely on the therapist’s experience and professional judgment to decide whether the client requires a service and how urgently it should be delivered. The information gathered using standardized assessments provides a mechanism for determining the extent of a performance problem, which can be used to justify and prioritize service provision. In addition, information gained from screening all referrals can assist in determining the extent of need generally in the community. Evaluating Clients’ Home Modification Needs and Priorities Analyzing and Diagnosing Occupational Performance Therapists are primarily familiar with using evaluations to analyze and diagnose occupational performance difficulties. These evaluations require a thorough approach to information gathering and analysis and are essential to designing effective interventions. Therapists generally use a range of evaluation strategies to understand the precise nature of the occupational performance difficulties being experienced and to identify aspects of the person-environment-occupation transaction that are contributing factors. Therapists use a range of evaluation strategies to identify and analyze occupational performance issues. Informal and structured interviews provide background information on clients and their living environment and help therapists develop an understanding of client concerns and their perspective on the nature and impact of occupational performance problems. Therapists also use skilled observation to closely examine occupational performance, identify where performance is ineffective or hazardous, and investigate factors contributing to inadequate performance. These observations are often undertaken in a semistructured way with performance described qualitatively, which relies heavily on the professional experience and judgment of the therapist. Therapists also use standardized assessment tools to measure the extent of the performance problem and diagnose the cause of the presenting problem. Evaluation of Outcomes Outcome evaluation assists therapists to determine the effectiveness of home modification interventions. These evaluations are undertaken to confirm that the changes have produced the desired improvements in occupational performance and to ensure there are no adverse consequences resulting from the introduced changes. The consistent use of outcome measures is also fundamental to evidence-based practice (Law & Baum, 2017). These evaluations inform therapists about the most effective interventions in a range of situations and build a body of evidence of their value and effectiveness. This information is being used increasingly by policy makers and management to make decisions about policy directions and the future funding of various service programs (Law & Baum, 2017). Outcomes can be evaluated qualitatively and quantitatively. Qualitative evaluation provides an opportunity to record the client’s and therapist’s perception of the impact of the intervention. Quantitative evaluation 113 can demonstrate the extent of impact and establish whether there have been any measurable changes as a result of the intervention, especially if standardized measures are used before and after the event. FRAMEWORK FOR EVALUATION In home modification practice, it is important that the evaluation strategies chosen reflect clientcentered practice so that clients are empowered by the process and have a sense of ownership of the modifications undertaken in their home. Evaluation methods should allow clients to identify their specific concerns about valued occupations, record their unique occupational performance requirements, and document the impact of interventions on their lives (Law, Baum, & Dunn, 2017). This requires that evaluation strategies do the following: Ô Allow occupational performance issues or problems to be identified by the client and household members and not solely by the therapist and team Ô Permit the unique nature of each person’s participation in occupations to be recognized Ô Provide opportunities for both the subjective experience and the observable qualities of occupational performance to be recorded Ô Afford the client (and relevant others) to have a say in evaluating the outcomes of the interventions Ô Recognize the unique qualities of the home environment Ô Assist clients and household members to develop a mutual understanding of therapists’ safety, prevention, or health maintenance concerns (Law & Baum, 2017) Client-centered evaluation requires that evaluation strategies extend beyond the measurement of performance components. Evaluation strategies need to be able to measure the extent of occupational engagement, giving due recognition to the uniqueness of each person’s valued roles and occupations. They should also allow the client and therapist to jointly plan interventions (Law & Baum, 2017) and to determine the effectiveness and value of these to the client in the short and long term. Evaluation should also accurately reflect the scope and focus of the profession and its practice frameworks. When using the occupational therapy practice framework, evaluation focuses on understanding the person’s occupational history and experiences and his or her patterns of daily living, interests, values, 114 Chapter 6 and needs, as well as his or her priorities and concerns about occupational performance (American Occupational Therapy Association [AOTA], 2014). Occupational performance is observed in context in order to determine supports/facilitators or barriers to performance, giving due consideration to body structures and function, performance skills and patterns, and activity demands as well as the environment. The therapist, in collaboration with the client, then determines concerns and risks and identifies problems and the probable causes. When using an ecological approach, evaluation should focus on the quantity and quality of occupational performance using both objective and subjective methods. It examines the “fit” of the person, environment, and occupations, acknowledging that these are constantly changing and evolving. These models recognize the unique personal attributes, capacities, and life experiences each individual brings to the collaboration. Evaluations need to examine the physical, sociocultural, personal, and temporal elements of the environment and the potential impact of these on occupational performance. It would also consider these environmental domains from an individual, household, neighborhood, and community perspective. PROFESSIONAL REASONING As a result of the individual and complex nature of home modification practice, therapists rely heavily on professional reasoning throughout the evaluation and intervention process. Whereas medical settings refer to clinical reasoning, the term professional reasoning has evolved to acknowledge the range of practice settings occupational therapists work in. This section focuses on the use of professional reasoning during evaluation. The role of professional reasoning in designing acceptable, effective, and workable home modification interventions will be discussed further in Chapter 9; however, good reasoning in the evaluation process is critical to developing a thorough understanding of the issues, which then contributes to developing effective interventions and achieving good client outcomes. Therapists use a “whole body” process (Schell, 2014) to understand occupational performance in the home, identify factors that constrain performance, and create a home environment that enables occupational engagement. Using a combination of theoretical knowledge and personal and professional experience, therapists analyze copious amounts of diverse information to fully understand each person and his or her occupational performance issues. They can then recommend interventions that will fit well with each unique person-environmentoccupation transaction. Therapists use a combination of thinking approaches to understand occupational performance issues in the home environment: scientific, narrative, pragmatic, ethical, and interactive reasoning (Schell, 2014). For example, from the moment therapists receive a referral, they begin to gather information and use scientific reasoning to anticipate occupational performance difficulties or generate hypotheses from their bank of theoretical knowledge of impairments and health conditions and the role the environment plays in creating disability. Therapists continue to use scientific reasoning throughout the evaluation process when choosing appropriate evaluation methods and analyzing and interpreting behavior. When talking with their clients and listening to their stories, therapists use narrative reasoning to develop a deeper understanding of people’s lifestyles, aspirations, concerns, and valued occupations. They then work with their clients throughout the visit to develop a rich understanding of their experiences and environments and to explore and create a new future. Pragmatic reasoning assists therapists to use their personal resources to their best advantage, understand the service delivery context, and work sensibly and effectively within the policy framework and available resources. Ethical reasoning ensures that the therapist maintains respect for the values and rights of all clients and provides the best possible service in every situation. Finally, interactive reasoning promotes the development of a strong therapeutic relationship between the therapist and the client, which builds a collaborative alliance and enhances the potential for success of therapeutic interventions. Professional reasoning has been described as “a dynamic process simultaneously influenced by the client and therapist’s characteristics, experience, and background” (Radomski, 2008, p. 45). The dynamic nature of professional reasoning is particularly evident when therapists use a client-centered approach, where they need to be flexible and responsive to the uniqueness of each person and his or her home environment. Scientific Reasoning What Is Scientific Reasoning? Scientific reasoning is described as “a logical process that parallels scientific inquiry” (Schell, 2014, p. 388). Two forms of scientific reasoning are described in the literature: diagnostic reasoning and procedural reasoning (Schell, 2014). Diagnostic reasoning Evaluating Clients’ Home Modification Needs and Priorities is concerned with sensing and defining professional problems (Schell, 2014), and procedural reasoning is the thinking that comes from choosing suitable evaluation and intervention approaches (Fleming, 1991, 1994). In combination, these processes assist therapists to progress from defining to resolving occupational performance problems (Chapparo & Ranka, 2000). Drawing on relevant bodies of knowledge, the therapist seeks and interprets cues and then generates and tests hypotheses (Rogers & Holm, 1991) about the person’s occupational performance difficulties and contributing factors. How Is It Used? The process begins with the therapist gleaning cues from the written referral, case file, preliminary conversation with the client, presentation of the neighborhood, appearance and design of the home, and initial encounter with the client. For example, Glenda, an older woman with osteoporosis, is referred for a home assessment following a fall. The therapist would initially determine her age, living situation, general health, and whether she sustained any injuries from the fall by reading the referral or file. He or she would ask Glenda about her health (including her vision, physical condition, memory, cognition, medication use, etc.) and the circumstances of the fall to identify potential precipitating and contributing factors. During the visit, the therapist would note the age, design, and state of repair of the house, and he or she would scan the environment for known hazards. He or she would also observe the client as she walks outside and within the house and note her agility and ability to negotiate obstacles and changes in lighting levels and flooring. These are the cues that provide therapists with initial information about clients and their physical and functional status, their occupations, and their home environments, which assist them to generate hypotheses about the person’s occupational performance. How Does It Influence the Evaluation Process? The cues sought and noted by therapists are shaped by their knowledge, experiences, and models of practice. For example, a therapist’s knowledge of factors that contribute to falls would direct him or her to collect information about a client’s fall history, number of medications, and so forth. Knowing about the consequences of a fall for someone with osteoporosis also alerts the therapist to investigate this and other comorbidities. Therapists with experience working with people with a history of falls would be alert to features in the environment that could be injurious during a fall. The various models to which therapists ascribe also define what they attend to and what they understand to have contributed to 115 the observed problem. A rehabilitation therapist might focus primarily on measuring the extent of the person’s functional impairment; therapists using an occupational performance model would focus on understanding how the person undertakes activities, whereas those using an ecological model would examine the environment and how well it supports activity engagement. Within clinical practice, therapists often draw on a number of models to develop a comprehensive understanding of the person and his or her situation. When using diagnostic reasoning, therapists draw on existing knowledge to acquire and interpret cues and generate and test hypotheses. From a given diagnosis, therapists can anticipate functional difficulties and hypothesize about how these are likely to affect occupational performance and progress in the long term. In addition, therapists analyze and interpret behavior in an effort to understand what is contributing to it. If Glenda were to trip when walking to the bathroom during the home visit, the therapist might attribute this to wearing poor footwear, being distracted, a developing dementia or neurological impairment, vision loss, reduced sensation, or uneven carpet. These hypotheses would then be tested or adjusted as further cues are sought and interpreted. For example, the therapist might ask Glenda to demonstrate how she gets in and out of the shower recess. By asking her to remove her shoes and talking about how her legs and feet feel on the floor and shower recess surface, the therapist can test whether the problem persists without footwear. Allowing her to concentrate on the task allows the therapist to observe her performance without distractions. Observing her capacity to notice and lift her feet over obstacles or level changes on the floor enables the therapist to test her concerns about Glenda’s physical and cognitive function. Her ability to negotiate changes in floor level and uneven carpet allows the therapist to examine the impact of environmental barriers on Glenda’s performance. Procedural reasoning is used to choose appropriate evaluation strategies, including valid and reliable assessment tools (Radomski, 2008). Therapists select strategies and tools that allow them to gather information about the person, his or her occupations and the environment, and the transaction between them. A combination of observation, assessment, and discussion allows various hypotheses to be modified and tested until the therapist develops a clear understanding of occupational performance and the person-environment-occupation transaction. What Does It Offer the Therapist and Client? Scientific reasoning allows therapists to draw on their knowledge and experience to gather, analyze, 116 Chapter 6 and interpret vast amounts of information. When therapists are well informed and able to use this information to generate a number of hypotheses, they are well placed to observe and interpret the person-environment-occupation transaction and understand how and why occupational performance difficulties occur. This complex process is often easier for experienced therapists who have integrated their model(s) of practice, have acquired a broad knowledge base through experience and reading, and have developed the capacity to attend to and simultaneously process a diverse range of information. Less experienced therapists often struggle to use their model(s) of practice and limited knowledge effectively, to attend to a number of cues at the same time, and to generate multiple hypotheses. This can result in a tendency for them to jump to conclusions quickly if time is not taken to critically reflect on assumptions (Chapparo & Ranka, 2000). Experienced therapists are also at risk of “contracting” to routine practices if they over-rely on experience, do not keep their knowledge current, or actively reflect on their reasoning processes (Chapparo & Ranka, 2000). Although scientific reasoning might appear to be the realm of the therapist, clients also benefit from this form of reasoning. When therapists are able to share their knowledge and articulate their reasoning, they can engage clients in a meaningful and informative discussion about risks and potentially contributing factors. This allows the client to be an active part of the issue identification and decisionmaking process rather than feeling uninformed, disempowered, and pressured by “expert” opinion. Narrative and Conditional Reasoning What Is Narrative Reasoning? Occupational therapy has been described as both an art and a science (Peloquin, 1994; Townsend & Polatajko, 2013). Narrative reasoning, which addresses the art of the profession, contrasts with and compliments scientific reasoning. Narrative reasoning is used to understand and describe a person’s unique experience of his or her situation and to work with that person to create an impelling future. It assists therapists to make sense of each person’s situation and imagine the impact of the illness, injury or health condition, aging, or disability on their lives (Schell, 2014). How Is It Used? Throughout the home visit, therapists engage in natural conversations with the householder, making comments about spaces in the house and asking questions such as, “Did you decorate this room yourself?” and “Are these photos of your family?” This generally elicits storytelling that assists in developing rapport and gaining a richer understanding of the home and the people living in it. Therapists also use semistructured interviews to gather information. These interviews can include open-ended questions that allow clients to describe their experience in the home. This allows therapists to draw information from these stories to enrich their understanding of the impact of the health condition or impairment on a client’s engagement in activities in the home and gain information about his or her occupational history. It also provides the client with an opportunity to introduce new or unexpected elements to the story that might not have been uncovered through direct or closed questioning. Active and empathetic listening is also important in building rapport and encouraging clients to openly share their experiences and aspirations. Creating a safe space for disclosure might be as simple as agreeing to have a cup of tea and listening without interjecting, instead allowing the client to discuss things that are important to him or her. By taking the time to talk with and listen to Glenda, the older woman described previously in this chapter, the therapist develops a rich understanding of the impact of her condition on her day-to-day roles, routines and activities, and the significance of her home environment. He or she would learn that Glenda was experiencing an increasing number of falls and that this was making her feel unsafe in her home and reluctant to go out without someone accompanying her. Consequently, she finds herself doing less and feeling even more uncertain. The therapist also learns that Glenda had lived in the house for 45 years of her married life and had raised five children in this home. Of significance is that she now lives alone in the home that her recently deceased husband built. Glenda is reluctant to make changes because the home provides her with a strong connection to him and their family. She also looks after two of her young grandchildren after school, bathing and feeding them before her daughter collects them after work. Narrative reasoning is not only useful for developing a deeper understanding of each person and his or her personal preferences and priorities, it is also valuable in assisting clients to explore and create a new future for themselves. When discussing issues, the therapist has an opportunity to share stories with a client and create new possibilities and a future for him or her. For example, therapists can sometimes assist clients to articulate and analyze their Evaluating Clients’ Home Modification Needs and Priorities concerns by sharing stories about other people’s experiences. Stories also help clients envision possibilities and create goals that may have been long abandoned. For example, when discussing a recent experience with a client with similar reservations about going out into the community, the therapist shared a story about how a simple modification to the front entry of the house had provided the client with greater confidence and a sense of security when entering and exiting the house. This story allowed Glenda to contemplate developing goals she might not otherwise have considered. How Does It Influence the Evaluation Process? Spending time developing a deeper understanding of each client and his or her home environments allows therapists to contextualize and make sense of information gathered during the evaluation. For example, understanding the value a client places on furniture and other objects in the home assists the therapist to acknowledge that they are more than environmental hazards. It allows them to remain open and respectful and to anticipate issues where their evaluation of risk might differ from that of their client. Narrative reasoning can often be an automatic and unconscious process for both novice and expert therapists. For example, informally observing people in their homes can reveal a great deal about their life stories. A well-tended garden informs the therapist that the householder appreciates plants and that they spend a great deal of time either tending to the garden themselves or paying someone else to do it. Photographs on the wall reveal personal connections. Shelves and floor space cluttered with valued objects and trinkets alert the therapist to the attachment that the person has to his or her belongings. These observations are different from the cues sought in scientific reasoning, where therapists seek cues to generate and test hypotheses and then filter information through their scientific knowledge to analyze or diagnose issues. In narrative reasoning, the therapist absorbs information from people’s stories and from the environment to build an understanding of their life experience and the personal and social culture of the home environment. What Does It Offer the Client and Therapist? Narrative reasoning allows clients to examine their issues and air their concerns in a safe environment. It also enables therapists to develop a deep understanding of each client’s unique experience of his or her situation. The trust and rapport developed in this process makes it easier for the client to disclose personal information and to have faith in the therapist’s evaluation of the issues because 117 it is founded on a deep understanding of the situation. This type of reasoning also allows therapists to explore the symbolic meaning of home with the client and to ensure that modifications are life enhancing, as well as rational and pragmatic. It shifts the focus from simply addressing issues of safety, function, and independence to developing a rich and deep understanding of the person, his or her valued occupations, and the home environment. It also affords clients the opportunity to be the authors of their own life story. Pragmatic Reasoning What Is Pragmatic Reasoning? Pragmatic reasoning is the consideration given to the practical realities encountered in practice. It assists therapists to work sensibly and effectively within their own personal resources as well as within the resources available in the practice context (Schell, 2014). Therapists bring personal experiences, professional competencies, and a level of commitment to professional practice that affect their capacity to deliver a service. The demands on therapists’ time within the service and outside work will also influence their availability. In addition, the practicalities and logistics of delivering services within a particular setting (in this case, the home) and the processes and resources within the service organization (Schell & Cervero, 1993) influence the type and level of service that can be delivered. How Is It Used? In daily practice, therapists use pragmatic reasoning to make the best use of their personal resources such as knowledge, skills, abilities, time, and level of commitment, as well as service resources such as evaluation resources, structures and processes, reimbursement schedules, and policy directives. For example, a therapist might have limited experience in dealing with people like Glenda who have an increased falls risk, so he or she would dedicate time prior to the visit to reading about, training in, and becoming familiar with known falls risks. This would ensure the most effective use of visit time. If a specific time was allocated for the visit by the service or reimbursement schedule, the therapist would try to structure it to ensure that all issues were addressed and prioritized efficiently. If the service did not have resources dedicated to assessing falls risk, the therapist might borrow them from another center to use in this instance, with plans to order them for the service should more clients with falls risks require assistance. The constraints placed on the evaluation by the client and the environment would 118 Chapter 6 also need to be considered in order to maximize the effectiveness of the visit (e.g., advising Glenda of the length of time required for the visit and negotiating a mutually convenient time where both the therapist and Glenda have the necessary time available). If the environment has many hazards, the therapist might need to spend more time at Glenda’s house and postpone the next client visit scheduled for that day or book a second visit to discuss issues of concern. How Does It Influence the Evaluation Process? During the evaluation process, therapists use their knowledge of and experience with various evaluation strategies to identify and define occupational performance issues. The diversity of experience and competency among therapists leads to variability in the nature and quality of evaluation, especially in a continually developing area of practice such as home modification. It is therefore important that, as a profession, therapists develop and share practice knowledge and evaluation tools and protocols to ensure that professional practice and service delivery are consistent and of a high quality. Therapists with limited experience should consult with more experienced colleagues to ensure that they have been effective in identifying all of the relevant issues in the complex practice environment. Therapists need to be flexible and responsive to the specific needs and circumstances of each client and therefore use pragmatic reasoning to choose the most appropriate strategies for any given situation. The home setting presents particular challenges to traditional evaluation methods and assessment tools. Being a private space, the client or homeowner might have sensitivities or preferences that affect which, and how, things can be evaluated. This requires therapists to search for new evaluation strategies that accommodate the diversity of issues and circumstances they encounter in this complex environment. The time available for a home visit can also influence the nature of evaluation undertaken. Timelimited or one-off home visits can make it difficult for therapists to develop a deep understanding of the person-environment-occupation transaction and to be entrusted sufficiently to recommend changes to personal routines and spaces. Consequently, therapists use pragmatic reasoning to assist clients to prioritize issues to ensure that the most important matters are attended to in the time available for the visit. Service organizations often have a particular focus and assessment protocols that might or might not align well with professional practice. In these situations, therapists fulfill their employment responsibilities by clarifying what they are able to offer the client within this service and referring him or her to other services that can address additional needs. Therapists can then work with the organization to refine and develop procedures and protocols within the service so that they are more in line with current professional knowledge or best practice. What Does It Offer the Therapist and Client? Therapists are faced with a considerable number of pragmatic considerations when undertaking home modification evaluations. They are acutely aware of the many factors in the practice context that impinge on home modification practice and use pragmatic reasoning to manage the many competing demands on their time and resources. When managed well, therapists can optimize the use of their time and resources to address occupational performance issues in the home. However, sometimes pragmatic issues can significantly constrain practice. A focus on budget, cost-effectiveness, and efficient use of resources, including therapists’ time, can sometimes result in an emphasis on throughput and short-term outcomes. The home is a very personal and private environment and, as such, sufficient time is required to allow the therapist to get to know the client and to allow him or her to focus and direct the evaluation process. The challenge for therapists is to achieve a balance between working within available resources and working long term to maximize the resources available, which includes building the capacity of therapists and services to respond to people’s diverse home modification needs. Therefore, pragmatic reasoning necessarily requires therapists to provide ongoing input to facilitate the development of service policies, procedures, and resources to ensure that home modification services are as effective as they are efficient. Ethical Reasoning What Is Ethical Reasoning? Ethical reasoning, often the culmination of the reasoning process, identifies “what should be done” from possibilities generated from other reasoning forms (Schell, 2014). When the art and science of occupational therapy meet reality, therapists call on their personal and professional values to ensure that quality services are delivered to all clients. Ethical reasoning is the thinking that therapists undertake to synthesize knowledge and evidence, client values and goals, an appraisal of his or her competencies, and practical aspects of service delivery to provide the best possible care (Radomski, 2008). When dealing with the many competing forces that affect Evaluating Clients’ Home Modification Needs and Priorities their thinking and decision making, therapists filter decisions through the core values and attitudes of the profession and its code of ethics. The profession holds a number of enduring values, one of which is that all humans are unique. This value challenges therapists to appreciate each individual’s experiences, values, and goals over theoretical understandings and routine procedures and implores them to make time and use evaluation strategies that recognize and understand each person’s distinctive nature. How Is It Used? When considering scientific, narrative, and pragmatic aspects of practice, therapists are often confronted with conflicting information and demands. Ethical reasoning requires therapists to critically reflect on competing perspectives to ensure that their actions manifest ethical practice. The Occupational Therapy Code of Ethics of the AOTA identifies six Principles and Standards of Conduct, which require therapists to: 1. Demonstrate a concern for the well-being and safety of the recipients of their services (beneficence) 2. Refrain from actions (nonmaleficence) that cause harm 3. Respect the right of the individual to self-determination, privacy, confidentiality, and consent (autonomy) 4. Promote fairness and objectivity in the provision of occupational therapy services (justice) 5. Provide comprehensive, accurate, and objective information when representing the profession (veracity) 6. Treat clients, colleagues, and other professionals with respect, fairness, discretion, and integrity (fidelity; AOTA, 2015, pp. 2-8). When visiting clients’ homes, therapists are privy to a great deal of information about their clients. For example, on entering Glenda’s home, the therapist becomes aware of a number of hazards that put her at a high risk of falling. Ethical reasoning alerts the therapist to his or her responsibility to address each of these before leaving the home. The therapist is also aware that he or she should not introduce any additional risks by placing equipment in Glenda’s path or asking her to perform an activity that would unnecessarily place her at risk. At the same time, the therapist has to respect Glenda’s right to privacy and control in her own home and can therefore not enter rooms without permission or impose solutions that are not welcomed. Additionally, the therapist must 119 not disclose information to others about Glenda and her living situation without her permission. Ethical reasoning also impels the therapist to provide a high quality of service to all clients, regardless of race, social circumstances, or attitude, and ensures that clients are well informed about what can and cannot be provided by the particular service. The therapist would also ensure that Glenda is referred to more appropriate services should her needs fall outside of his or her responsibilities. How Does It Influence the Evaluation Process? It is not uncommon that the values of therapists or service organizations sometimes differ from those of clients. These conflicts are inevitable and require the therapist to use sound reasoning to resolve differences of opinion. Respectful and open discussion with the client ensures that the therapist understands his or her perspective and collaborates to achieve a mutually satisfying outcome. Therapists also need to critically reflect on their personal and professional values in order to “confront, understand and work toward resolving the contradictions within his/her practice between what is desirable and actual practice” (Johns, 2000, p. 34). An evaluation with sound ethical reasoning ensures that the therapist evaluates the right things using the best possible approach for the particular situation, regardless of the challenges presented. Further information on frameworks for ethical decision making is provided in Chapter 12. What Does It Offer the Therapist and Client? Ethical reasoning provides the therapist with a systematic way of addressing conflicts between what should be done and what can be done (Doherty, 2009). It also ensures that all clients are treated respectfully and receive high-quality service, regardless of the situation. Within the evaluation process, ethical reasoning allows the therapist to fully explore the client’s perspective and work collaboratively with them to define and prioritize issues. Interactive Reasoning What Is Interactive Reasoning? The therapeutic relationship, defined as “a trusting connection and rapport established between therapist and client through collaboration, communication, therapist empathy and mutual understanding and respect” (Cole & McLean, 2003, p. 33-34), is an essential element of occupational therapy practice. The importance of this relationship between therapist and client has been well established as 120 Chapter 6 influential for the outcomes of therapy, such that without the relationship, interventions may be compromised (Bonsaksen, Vøllestad, & Taylor, 2013). To this end it is critical to success that the therapeutic relationship or alliance is established and maintained until goals are achieved (Tickle-Degnen, 2002). Interactive reasoning is “thinking directed toward building positive interpersonal relationships, permitting collaborative problem identification and problem solving” (Schell, 2014, p. 389). Schell states that it largely involves automatic acts that influence and form the interpersonal behaviors and communication skills used by the therapist in the creation and maintenance of a therapeutic relationship in which occupational therapy can take place with a client. It might be conscious when the therapist thinks specifically about the relationship, such as supporting a client when he or she is thinking through the challenges to day-to-day function in the home. How Is It Used? In order to build trust, a foundational basis of the therapeutic relationship, the therapist must enter the client’s life world (Crepeau, 1991) and employ strategies that are designed to engage and encourage the client (Schell, 2014). To successfully achieve this, the therapist must use interactive reasoning to choose, enact, understand, and account for the range of automatic and conscious interpersonal and communicative skills employed to establish and foster a connection with the client. This enables the therapist to make best use of communication strategies that the client responds to positively (Schell, 2014). Further, this reasoning is necessary in order to preserve the therapeutic relationship and enable the client and therapist to work in collaboration toward the resolution of performance problems and achievement of occupational goals (Schell, 2014). Due to the importance of the therapeutic relationship to the success of occupational therapy outcomes, interactive reasoning is vital, and therapists need to ensure that they consider and attend to communicative and behavioral choices that they implement when working with a client. For example, when conducting the initial evaluation with Glenda, the therapist may choose to use an open body position, active listening skills, paraphrasing, inclusion of clarifying questions, etc. that demonstrate that he or she is eager to hear about the Glenda’s needs, priorities, and concerns and to understand the situation from her perspective. These choices are made to convey to Glenda that the therapist is open to working together and will assist in establishing rapport and the base of trust on which an effective therapeutic relationship can be built. Although some of the outcomes of interactive reasoning, such as the communication skill choices mentioned, are conscious and easily identified, some are a result of more automatic acts (Schell, 2014). Therapists need to work at becoming aware of their more unconscious tendencies, as these, too, can affect the therapeutic relationship. An example might be if a therapist automatically touches Glenda on the arm to convey sympathy when she mentions that her husband is deceased, which, depending on Glenda’s preferences, she might find comforting or intrusive. Due to the presence of both more conscious and automatic influences, it can at times be easiest to see the significance of interactive reasoning when an error in reasoning occurs and negatively affects the therapeutic relationship (Schell, 2014). Despite this, it is an essential aspect of professional reasoning requiring attention, as it underpins the therapeutic relationship, which enables the collaboration and sharing of information between client and therapist that are necessary for the other reasoning types. How Does It Influence the Evaluation Process? Interactive reasoning, as previously mentioned, enables the development and continuation of the therapeutic relationship, which is central to the occupational therapy process and vital to the successful outcomes of interventions. If a strong and allied relationship that is focused on working with the client is not established or maintained, it can jeopardize all aspects of the occupational therapy process, including the gathering of information, therapist understanding of client needs and priorities, establishing goals, professional reasoning, etc., as well as associated interventions and outcomes. In order to obtain and understand the information on which the other reasonings are based, interactive reasoning is necessary to ensure a relationship between the therapist and client that enables collaboration and two-way communication. In addition, if there are problems within or a breakdown of the therapeutic relationship, interactive reasoning can be utilized to examine communication skills or interpersonal behaviors, identify potential difficulties/ issues, and enable the therapist to improve upon or rebuild the therapy relationship or, if necessary, refer the client on to another therapist or service. What Does It Offer the Therapist and Client? Interactive reasoning draws the therapist’s attention to the importance of the therapeutic relationship to ensure successful outcomes in occupational therapy practice. It provides a means to review the communication skills and interpersonal behaviors that are used to establish and maintain a trust-based Evaluating Clients’ Home Modification Needs and Priorities relationship that enables collaboration and facilitates ongoing therapy with a client. It also provides the therapist with a course of inquiry and action if there are difficulties within the therapeutic relationship that are hindering the occupational therapy process. It ensures that the client is afforded the opportunity to be a valued partner in the therapeutic relationship. This enables them to be understood as a person; their needs, preferences, priorities, and concerns to be heard; and therapy to be carried out in an environment where they are respected and approached with empathy. The successful use of interactive reasoning contributes to the establishment of a solid alliance between therapist and client, which enhances the potential for the best possible outcome(s) from therapy and can be beneficial to both client and therapist alike. A good relationship builds client trust, whereby they feel listened to, thus enabling them to have confidence that the recommendations will address their needs and improve their circumstances. TYPES OF EVALUATION STRATEGIES Therapists use a range of evaluation strategies, such as informal and structured interviews, skilled observation, and standardized assessments, to gather information about the client and his or her home and to test hypotheses. Informal Interview Home modification evaluations generally begin with the therapist engaging in an informal discussion with the client about the home, the reason for referral, or concerns the client has about his or her occupational performance. Interviewing is an essential step in the evaluation process and generally serves a dual purpose. First, interviews allow therapists to gather information; hear clients’ stories; and understand their experiences, concerns, goals, and aspirations (Henry & Kramer, 2009). Second, interviews afford therapists an opportunity to build collaborative relationships with their clients and gain their trust (Henry & Kramer, 2009). Interviewing is used by therapists to create a shared understanding of each client’s situation so that the home modification process can address his or her individual concerns and priorities. Informal interviews are useful in gathering qualitative information about the client and the home, which is essential in providing a client-focused service. These interviews can be unstructured and/ or semistructured but generally take the form of a conversation, where questions are asked and 121 information is provided without adhering to a predetermined format. This two-way communication is commonly guided by broad goals or, at most, a set of prompts that direct therapists through a range of topics. However, to explore issues further, therapists often develop additional questions in response to the client’s comments or responses. This style of questioning is used at the start of the visit to explore clients’ priorities and aspirations and then throughout the visit as they move through the home and demonstrate performance in specific areas to gather further insights into clients’ concerns and experiences. Although individual therapists are likely to have their own personal style of communication, a range of strategies can be used to increase the effectiveness of informal interviews. At the outset, it is essential to create a safe and accepting interpersonal climate for the interview. Finding a quiet, comfortable place in the house where the client and therapist can sit close to each other (3- to 4-ft apart and at right angles) is an important first step. It is equally important, however, that the therapist allows the initial conversation to flow freely while both parties are settling into the interview and becoming comfortable with each other. It can be valuable to let the client raise the topic of conversation, because the therapist can learn more about the client and what he or she feels is important. This also provides the therapist with an opportunity to demonstrate genuine interest in the client’s concerns and value his or her perspective. Once the interview climate has been established, the therapist uses a range of questioning techniques, such as open and closed questions and probing, to encourage discussion and to explore occupational performance issues in greater depth. Regardless of the quality of the interview questions, therapists need to constantly monitor the effectiveness of each interview and the quality of the information acquired. Informal interviews are difficult to conduct without a lot of experience; however, they are likely to be most effective when the interviewer: Ô Is knowledgeable about the content of the interview Ô Structures a purposeful and well-rounded interview Ô Is open and responsive to topics introduced by the interviewee Ô Uses clear communication that can be understood by everyone involved in the interview Ô Employs a gentle approach that allows the interviewees sufficient time to consider their responses and reply 122 Chapter 6 Ô Is empathetic and listens attentively to what is being said, how it is said, and what is not said Ô Has sensitive responses to the interviewees’ expressed opinions and concerns Ô Is able to take positive control of the direction of the interview or steer the interview, based on agreed goals for the interaction Ô Is able to critique or challenge what is said if inconsistencies occur or issues require closer examination Ô Remembers what has been said previously and relates back to information obtained at different parts of the interview Ô Clarifies information gained and explores the client’s perceptions of events without imposing meaning or overinterpreting information (Kvale, 1996) Informal interviews allow clients to provide therapists with a wealth of information at their own pace; however, this information can be easily overlooked or lost if it is not adequately managed or recorded. However, when utilized effectively, these types of interviews enable therapists to explore, probe, and analyze the nature of difficulties clients are experiencing. It takes time and experience to learn to use informal interviewing well because it can be difficult to obtain the right information and integrate the information provided, especially when clients are eager to talk about a broad range of topics. Equally, it can take a great deal of skill to coax reserved clients to disclose personal information, which is often required in home modification practice. Experienced therapists who have developed an internalized framework and procedure for interviewing are comfortably placed to use informal interviewing well. However, without a systematic approach and regular review, informal interviewing can result in some issues being explored haphazardly or being neglected altogether. Informal interviewing generally allows therapists to learn a great deal about clients’ particular concerns and requirements and the impact of occupational performance difficulties. Although this information is invaluable in shaping decision making and negotiations with clients, it is often not recorded formally. This lack of documentation results in “underground practice” (Mattingly & Fleming, 1994; Pierre, 2001), where discrepancies occur between what therapists do and what they record. Consequently, the complexity of issues considered when making home modification decisions is often not acknowledged and documented by therapists or recognized within services. Even if this qualitative information was effectively recorded, it is not in a form that readily allows the outcomes of home modification interventions to be measured. With the growing focus on evidence-based practice, therapists need to ensure that the client’s perspective, which occupational therapy claims to be vital, is recorded. It is crucial that this perspective is not lost in the search for standardized evaluation tools in determining the nature and extent of need and quantifying the effectiveness of interventions. Structured Interviews and Checklists Many occupational therapy services develop structured forms and checklists that are targeted at identifying occupational performance issues in the home for a particular client group. In clinical practice, these are frequently used to screen for the presence/absence of occupational performance issues and to establish the extent and urgency of the concerns. These forms provide therapists with a structure for collecting demographic information, health and/or disability history, roles and routines, and self-reported ability and support required to undertake personal and instrumental activities of daily living (ADLs). In organizations that offer home modification services, information is also gathered on the age, materials, structure, design, layout and features of the house, and the surrounding environment. A number of environmental checklists can assist therapists to identify environmental features that are potential hazards or barriers to people with specific impairments or health conditions. These tools are a useful guide for therapists who are new to the service or area of practice because they help them collect all information relevant to the particular service. With the many distractions that can occur in a home environment, these tools can ensure that therapists address everything on the form during the interview or environmental inspection. The structure of these tools ensures some consistency in the information gathered and makes it easier when clients are transferred to other therapists within the service or revisit the service at a later date. Although these tools are not standardized and do not often provide the quantitative information required for evaluating the effectiveness of an intervention, they do provide information on the preintervention situation. When clients or other staff view the information collected using these tools, the domain of concern of occupational therapy becomes immediately apparent. Evaluating Clients’ Home Modification Needs and Priorities Although structured forms and checklists are useful, they do have a number of limitations. It has been said that “what occupational therapists do looks simple, what they know is quite complex” (Mattingly & Fleming, 1994, p. 24). The use of set forms to ensure consistent information gathering often oversimplifies what occupational therapists really do. Two-dimensional information about the person, activity performance, or the environment belies the complexity of the person-environmentoccupation transaction. Often, these forms and checklists do not reflect the breadth and depth of information that therapists gain when interviewing clients, which misrepresents the nature of information therapists operate from. Second, once a form has been developed, it is often assumed that anyone could collect the information, which leads to services sometimes questioning why other staff could not be trained to do a home assessment. Third, in the interest of comprehensiveness, these forms frequently require therapists to collect additional nonspecified information to address the specific concerns of the client at the time of the interview. This may result in an unnecessary invasion of the person’s privacy, especially when information about irrelevant medical conditions is collected or spaces in the house are inspected unnecessarily. Finally, these tools are often not reviewed regularly enough in light of new evidence, theoretical knowledge, or changes in service practice, which results in traditional practices often persisting well beyond their use-by date. Skilled Observations and Occupational Analysis Observing clients in their homes, where they perform their usual daily activities, provides a wealth of valuable information more comprehensive and detailed than can be gained from interviewing alone. During the course of the home visit, occupational therapists observe clients as they move and perform various activities around the home (e.g., answering the door, moving through the home, completing transfers, and making refreshments). These general observations, often automatic to experienced therapists, provide a basis for discussing the impact of the health condition or impairment on life within the home. However, therapists also ask clients to perform specific occupations, in particular, those identified as problematic, during the initial interview. By skillfully observing occupational performance, therapists can observe behavior in its natural environment and identify factors that are either contributing to or interfering with performance (Dunn, 2000). 123 Occupational therapists have specialized knowledge and skills that allow them to analyze and evaluate occupational performance (Dunn, 2000), and they use different theoretical lenses to understand occupational performance and factors that contribute to performance difficulties (Crepeau, Schell, Gillen, & Scaffa, 2014). For example, when using an ecological model such as person-environment-occupation or person-environment-occupation-performance, therapists focus on analyzing the fit between the person, the occupation, and the environment. Occupational therapists also use their skills in occupational and activity analysis to identify the important elements of various occupations in the home and where and how breakdowns in performance occur. Occupational Analysis Occupational analysis is core to occupational therapy practice. It allows therapists to analyze occupations of value and concern to clients in the actual context in which they are performed and to gain an understanding of their possible meaning, component tasks, specific performance requirements, and potential facilitators and barriers to performance (Crepeau et al., 2014). This qualitative information allows therapists to identify the particular aspects of the task that result in difficulties or compromise. Using whole-body reasoning, therapists then examine aspects of the individual’s performance, occupational, and/or environmental demands that are impinging on successful completion. This type of analysis acknowledges the unique meaning and purpose of the activity for the individual and recognizes the distinctive way tasks are performed, depending on the purpose of the task, the experience and preferences of the person, and the demands and structure of the occupation and environment. Activity analysis, on the other hand, analyzes activities in a more abstract sense so as to assist therapists in anticipating potential difficulties in performance (Crepeau et al., 2014). When undertaking an activity analysis, therapists tend to identify common components of the task and capacities and environmental elements required for successful completion. This alerts therapists to the specific aspects of the task where breakdowns in performance are likely and helps them to understand possible contributions to difficulties and errors. For example, a simple activity such as going to the toilet incorporates a number of tasks, and there can be a breakdown at any stage of this activity if there is a poor personenvironment-occupation fit. Table 6-1 details the procedural component tasks of going to the toilet. Task breakdown can occur if the person has specific impairments that make it difficult to anticipate 124 Chapter 6 Table 6-1. Activity Analysis of Going to the Toilet Register need to go to the toilet Locate and find way to toilet Open the door Enter the room Turn on the light Close the door Travel, turn, and position at front of pedestal Undress Sit down onto toilet Reach for toilet paper/release sheet Transfer weight for wiping Attend to personal hygiene Move from sitting to standing Don and adjust clothing Turn and flush toilet Clean toilet bowl Open door Negotiate doorway Find way to sink to wash hands Turn on faucets Wash hands Dry hands Turn lights on and off at night Note potential for collapse or assistance need a toileting need, mobilize to the toilet, locate the toilet, see various fixtures and fittings, and use the toilet. In addition, there may be aspects of the environment that make it difficult for the person to carry out the activity (e.g., too great a distance, convoluted or obstructed path of travel, unfamiliar toileting environment, high positioning of door handles and locks, unfamiliar or inaccessible positioning of light fittings, low toilet pan, inoperable flush button, hard-to-reach or difficult-to-tear toilet paper, or lack of space between the entry door and toilet bowl). Therapists commonly observe people performing various aspects of activities and analyze performance difficulties as they occur. This is not a formalized process but rather one where each therapist uses an individual approach to analyzing tasks and interpreting problems. Some standardized tools, such as the Performance Assessment of Self-Care Skills (PASS; Rogers & Holm, 1994; Rogers, Holm, & Chisholm, 2016) and Comprehensive Assessment and Solution Process for Aging Residents (CASPAR; Sanford, Pynoos, Tejral, & Browne, 2002), provide a framework for analyzing and evaluating various household activities. These tools present essential task elements and a structure for examining and recording difficulties experienced and assistance required for successful completion. Although this type of analysis provides a foundation for identifying potential performance breakdowns and contributing factors, these and other activity analysis frameworks tend to focus on the physical and immediately observable aspects of activities. Less attention is paid to the sensory, cognitive, and emotional demands of activities: preparing for, initiating, and terminating activities and the routines and habits required when undertaking daily tasks in the home. There needs to be further evaluation to determine when, where, and how people undertake tasks, their experience of the performance, and the specific qualities of performance that are important to them. Therapists generally use a combination of activity and occupational analysis when observing occupational performance in the home (Crepeau et al., 2014). Using a blended approach to analysis allows therapists to understand the particular importance and issues for specific clients, as well as the factors contributing to performance difficulties and how these can be addressed (Crepeau et al., 2014). Because skilled observation is generally undertaken qualitatively, it can be difficult to measure changes in performance objectively. The nature and quality of analysis are also dependent on the therapist’s clinical experience. Furthermore, it is important to be aware that an individual’s performance is likely to vary throughout the day as his or her capacities and environmental conditions change, and therapists need to account for this variability when evaluating an individual’s performance in various household activities. Rogers and Holm (2009) have identified a number of parameters that therapists examine when analyzing occupational performance: value, independence, adequacy, and safety. Value Value is the importance or significance of the occupation to the individual. When resources are limited, people generally establish priorities and reserve their energies for highly valued occupations (Rogers & Holm, 2009). The relative value of tasks is often addressed in the interview or other assessment processes and assists in identifying client goals and priorities. However, the therapist may review and revise these priorities in collaboration with the client if further performance concerns become evident while activities are being performed. Evaluating Clients’ Home Modification Needs and Priorities Independence Independence generally refers to a person’s ability to complete activities without assistance. A person’s level of dependence is measured in terms of the type of assistance he or she requires to complete an activity. Assistance is commonly assessed as progressing from low levels of support, in the form of using assistive devices and the need for supervision or task setup, to high levels of support, such as another person providing verbal or physical prompting or physical assistance. People’s confidence in their ability to perform activities in the home is another facet of independence (Rogers & Holm, 2009). If they believe they cannot perform a task, it is likely that their performance will be compromised. Though independence is the primary goal of many services and therapists, it may not be important to the client. Some people with a disability prefer to receive assistance with routine daily living tasks to allow time and energy for activities they prefer, such as working or spending quality time with loved ones (Baum, Bass, & Christiansen, 2005). Sacrificing independence in one activity can result in more autonomy in overall lifestyle and a greater quality of life. Adequacy Adequacy refers to the efficiency and acceptability of the process and outcome of the activity (Rogers & Holm, 2009). Efficiency refers to minimizing the amount of effort required to achieve a given outcome. Rogers and Holm (2009) evaluate efficiency by examining the degree of difficulty, pain, fatigue, and dyspnea exhibited or experienced during the task as well as the amount of time taken. Acceptability of the outcome is evaluated in terms of social standards, personal satisfaction, and presence of aberrant behaviors (Rogers & Holm, 2009). The ease and comfort with which an individual undertakes activities are important considerations when analyzing occupational performance because they affect his or her personal experience of daily life within the home, which can subsequently influence overall quality of life. Therapists generally gather information about the experience of the performance from clients, informally asking whether they experience any difficulty, pain, fatigue, and dyspnea during performance. Therapists can also obtain information on the level of difficulty or discomfort experienced by using standardized tools such as the following: Ô The Usability Rating Scale (Pitrella & Kappler, 1988; Steinfeld & Danford, 1997): A 7-point bipolar measure of difficulty ranging from -3 (very difficult) to +3 (very easy), with 0 providing a neutral point at the center of the scale 125 Ô The Brief Pain Inventory (Cleeland & Ryan, 1994): A measure of the intensity and interference of pain Ô The Faces Pain Scale/The Faces Pain Scale— Revised (Bieri, Reeve, Champion, Addicoat, & Ziegler, 1990; Hicks, von Baeyer, Spafford, Van Korlaar, & Goodenough, 2001): A picture scale of pain intensity Alternatively, therapists can use customized scales in the form of Likert scales and semantic differentials or picture scales. Although customized scales might not be standardized, they provide therapists with a mechanism for identifying and discussing clients’ experiences of performance and perceptions of difficulty or discomfort. A typical 5-level Likert scale is set out as follows: How difficult is your current showering routine? 1. Very difficult 2. Difficult 3. Neither easy nor difficult 4. Easy 5. Very easy Semantic differential scales usually feature descriptive adjectives with opposite meanings at either end of a scale. For example: No pain |___|____|____|___| Worst pain imaginable No difficulty |___|____|____|___| Severe difficulty Therapists also monitor clients for clinical signs of exertion (e.g., increased effort, pallor, sweating, or labored breathing). Tools such as wearable devices and monitors can also be useful in gauging increased effort. The duration of activities can be measured using a stopwatch; however, the ideal time required for various household tasks is yet to be calculated and is likely to vary from one person to another (Rogers & Holm, 2009). It is likely that clients and their significant others will report whether the time taken for the activity is acceptable or manageable. The acceptability of the outcome is determined by establishing the person’s level of satisfaction with the end product and comparing the result with social expectations (Rogers & Holm, 2009). Overall satisfaction can be evaluated using qualitative comments, customized scales, or a standardized measure such as the Canadian Occupational Performance Measure (COPM; Law et al., 1998, 2014), or the In-Home Occupational Performance Evaluation (I-HOPE; Stark, Somerville, & Morris, 2010), which measure the client’s perception of performance and satisfaction with performance. It is difficult to clearly define socially acceptable performance. Therapists generally rely on the client’s 126 Chapter 6 level of satisfaction but would be concerned when outcomes vary significantly from social standards and place an individual at risk of social alienation from his or her family, friends, and peer group. The therapist would then discuss with the person his or her perception of performance to confirm whether the outcome required improvement. Therapists also use skilled observation to note behaviors that interfere with the process or outcome and vary greatly from the way tasks are typically performed, such as confusion in the order of the procedure, repetitive checking, inappropriate use of fixtures and fittings, and impulsive or disruptive behavior. These are then discussed with the client and significant others. Safety In home modification practice, therapists are routinely required to assess the safety of individuals in their homes. Safety is defined as the level of risk that individuals are exposed to when they are performing specific tasks and is a product of the interaction between the capacity of the individual at any given moment, the nature of the task he or she is performing, and the challenges presented by the environment (Rogers & Holm, 2009). Although safety is a complex parameter to measure and control for, it is also critical to the success of the home modification process. If it is not addressed adequately, there could be potentially catastrophic consequences for the client. A risk management framework is a useful structure for evaluating and managing risks in the home in a logical and systematic manner. Risk management involves developing processes, structures, and a culture to manage adverse events and optimize opportunities for safety (Standards Association of Australia, 2009). It is a recognized process within a range of settings and is used by a variety of organizations. Risk management is a consultative process that involves all stakeholders and, in particular, the person exposed to the risk. This ensures that all views are considered in identifying and evaluating risk and that everyone involved has ownership of the measure to be undertaken to manage the risk. Risk management in the home is likely to include consultation with the client and, in many cases, to extend to the people he or she lives with, family, health providers, personal assistance providers, and advocates. When undertaking a risk management process, it is important to define the context and determine the purpose of the risk management activity. The context refers to the internal and external environment and, in home modification practice, involves understanding the goals and priorities of clients, their capacities, their social resources, and the physical environments in which they live. The purpose of the risk management activity in this setting is to minimize risk of injury and maximize opportunities for meaningful activity in the home—two purposes that sometimes conflict. Negotiations may need to be undertaken to achieve a balanced plan that meets the needs and wants of the client. For example, a client may wish to soak in a bath regularly to relieve joint pain but may be exposed to a number of risks getting in and out of the bath. The occupational therapist or the organization for which he or she works might also be concerned about their duty of care and potential litigation in relation to the recommendations made. This may lead to risk minimization at the expense of the client’s quality of life. Therapists can use a systematic and inclusive approach to risk management to meet their duty of care while still allowing clients to take responsibility for the levels of risk they wish to include in their daily lives. This process involves identifying, analyzing, evaluating, managing, monitoring, and reviewing risks. Identifying Risks Identifying risks involves establishing which events are likely to have adverse or uncertain outcomes. When identifying risk in the home environment, it is necessary to observe the person performing the relevant tasks in his or her home. Self-report is not an adequate method of determining risk because people might not always be aware of potential risks in their home. Neither is a simple audit of the physical environment sufficient because, although an audit might identify hazards (i.e., events or situations that are the source of danger with the potential to cause harm or injury) it does not determine the degree of risk involved with the hazard. Risk is the likelihood of harm resulting from exposure to a hazard. Simply auditing the physical environment for hazards does not take into account the likelihood of exposure to the hazard and the capacities, vulnerabilities, and experience of the person and how these interact with the environment. Analyzing Risks Once the potential hazards have been identified, it is necessary to develop an understanding of the level of risk. Analyzing each risk involves all of the stakeholders making a judgment about the likelihood of an adverse event occurring and the consequences of such an event. When determining the level of risk, the therapist, client, and other relevant stakeholders need to consider the following: Ô Frequency: How often the person is exposed to the hazard Ô Probability: The probability of an adverse event occurring Evaluating Clients’ Home Modification Needs and Priorities Ô Consequences: The likely consequences of an adverse event Ô History: Previous experience of an adverse event (Pybus, 1996) In a home evaluation, a qualitative analysis of risk is undertaken in consultation with the client and other household members. For example, if we were to analyze the risk of falling or tripping on the front stairs, the client and the therapist would need to determine how often the stairs are used, the chances of the person tripping or falling, the consequences of an incident, and whether an incident has occurred in the past and how often. Levels of risk vary from one situation to another. For example, the risk would be low where a fit and agile older person lived in a dwelling in good repair, rarely used the front stairs, and had no history of tripping on the stairs. In another situation, where an older person with osteoporosis lived in a house in poor repair, used the stairs frequently, and had tripped on the stairs previously, the risk would be high. Even if this person used the stairs only intermittently (e.g., to collect the mail) the potential consequences of a fall would warrant management of the risk. The process of identifying and discussing the frequency of exposure, probability of an event, likely consequences, and history of incidents provides a useful structure for therapists to discuss their concerns and understand the client’s perception of the risk. By affording clients an opportunity to discuss the frequency of exposure and history of adverse events, therapists can gain a deeper understanding of the potential risk. Evaluating Risks Once a judgment has been made about the level of each identified risk, it is then possible to decide which risks need to be addressed and their order of priority. In home modifications, the decisions will need to take into account the level of risk, the personal priorities of the client, the role of the organization providing the service, and the resources available for managing the risk. Managing Risks In selecting the most appropriate risk management option, therapists generate a range of options and collaborate with clients and other stakeholders to agree on the most effective and acceptable solutions. Several risk management strategies are employed: Ô Avoiding the risk: In the home, one option for managing a risk is to avoid that area of the home or the activity completely. For example, a person might choose to use another entry to the house exclusively and avoid the flight of stairs in need of repair. 127 Ô Reducing the likelihood of the risk: Possibly the most common is to reduce the likelihood of an accident by providing modifications, assistive equipment, alternative ways of performing tasks, or any combination of these strategies. However, an additional evaluation will then be required to ensure that additional or different risks are not being introduced. Ô Changing the consequences: Changing the consequences to reduce the extent of injury is another approach. For example, the person might take medication, wear protective equipment to reduce the risk of fracture, or wear a personal alarm to call for help. Ô Sharing the risk: The risk could be shared, for example, by getting someone else to collect the mail or enlisting some help in using the stairs. Ô Retaining the risk: This is a valid choice where the activity is highly valued by the individual and other risk management strategies are neither feasible nor acceptable to the client. For example, people may choose to continue to use the stairs to collect mail, regardless of falls risks, because they have done so all their lives and would not entertain having someone else do it for them (Standards Association of Australia, 2009). Therapists, and the organizations they work for, might be averse to this last option because of concerns about meeting their duty of care and possible litigation. However, imposing unacceptable risk-management strategies on the client is counterproductive because they are likely to cause distress and/ or not be used. In these situations, it is imperative that the therapist works with the client to ensure he or she fully understands the probability of an event occurring and the consequences involved. It is also important that the client is fully informed on how to manage the risk and knows where to seek further assistance if required. Monitoring and Reviewing Risks It is essential that therapists maintain an ongoing review of risk management strategies to ensure that the management plan is sustainable and remains effective. Factors that affect the probability and consequences of an outcome will inevitably change over time and affect the suitability of a strategy. Therefore, it is important to follow up once a management strategy has been put in place and then again at regular intervals to ensure it continues to manage the risk. Alternatively, clients should be encouraged to contact the service should they feel that the probability or consequences of a risk have changed. Outcome measures can be used to monitor 128 Chapter 6 and review the effectiveness of risk management strategies. For further information on risk management in home modification practice, please refer to Chapter 5. Skilled observation allows therapists to analyze the person-environment-occupation fit and to identify where and how breakdowns are occurring, which then provides the foundation for developing successful interventions. This form of evaluation requires highly developed skills in observation, occupational analysis, and risk management and is often difficult for students and inexperienced therapists to use effectively. Because of the complexity of the information gathered and the qualitative nature of it, it is difficult to assess the quality of evaluations undertaken by various therapists and quantify the effectiveness of interventions. Once again, without clear documentation of the evaluation undertaken, the profession is not able to articulate its unique approach and contribution to service delivery. Standardized Assessment The Nature of Standardized Assessment Standardized assessments, whether qualitative or quantitative in nature, are developed and tested to ensure that the information collected is comprehensive, trustworthy or valid, and consistent or reliable. Trustworthiness is a term used to refer to ensuring the credibility and quality of qualitative data. For quantitative measures, validity ensures that the tool measures what it is intended to and that there is agreement about what it is measuring; reliability ensures that the measures are consistent (Magasi, Gohil, Burghart, & Wallisch, 2017). Standardized assessments ensure effective, systematic, and consistent information gathering (Law & Baum, 2005). They provide therapists with a mechanism for appraising or calculating the magnitude, quantity, or quality of a particular characteristic or attribute (Law & Baum, 2017). These tools provide a uniform procedure for administering the assessment by specifying the conditions, tools, instructions, and questions. Some standardized assessments are norm referenced, whereas others are criterion referenced (Dunn, 2017). Norm-referenced tools compare individual test scores with those of a comparison sample or an ideal (Dunn, 2017). These tools are useful for diagnosis or screening because they assist the therapist in determining the extent of impairment or difficulty and whether performance warrants further investigation. Criterion-referenced assessments are especially useful for occupational therapists because they measure performance against an identified standard rather than an “ideal” (Dunn, 2017). These tools can be used to identify and specify the goals and needs of individuals and allow therapists to evaluate the effectiveness of an intervention. When using standardized tools, it is imperative that therapists understand the focus and purpose of the tool and select “the most appropriate measure with the best psychometric properties” (Cooper, Letts, Rigby, Stewart, & Strong, 2005, p. 316). In home modification practice, assessment tools need to be sensitive to changes in occupational performance and ensure that the environment is adequately acknowledged. Traditional Assessment Tools The use of standardized assessments can result in therapists measuring “variables that can be measured rather than what should be measured” (Corcoran, 2005, p. 65). Traditionally, occupational therapists have used a range of standardized tools to assess clients’ functional capacities, independence in ADLs, or accessibility or safety of the environment (Table 6-2). Assessing the functional capacities of an individual, such as motor (sensorimotor), process or cognitive, communication, and interaction or social capacities in a standardized environment assists therapists in anticipating performance issues or understanding aspects of the person that are likely to constrain occupational performance. Establishing the person’s level of dependence in a range of ADLs also alerts the therapist to potential occupational performance concerns in the home environment. Therapists can develop an awareness of challenges to occupational performance in the home by using standardized tools to identify barriers and hazards in the home environment. Table 6-2 provides an overview of a range of standardized assessments available to therapists. Historically, the person, occupation, and environment have been viewed as discrete elements that could be assessed independently (Cooper et al., 2005). However, the interdependent relationship between these elements is increasingly being acknowledged. Occupational performance is considered to be the result of all three elements working together and affecting each other. These traditional assessments tell us little about the person-environment-occupation transaction in the home and how this affects occupational performance, something that is considered critical in assessing occupational performance in this natural environment (Law & Baum, 2005). They often have a specific purpose and focus, which make it difficult to address the unique needs of individual clients, the person’s occupational experience and interests, the specific demands of the activity, the fit between the person and the environment, or the capacity of the environment to support specific occupations (Law & Baum, 2005). Evaluating Clients’ Home Modification Needs and Priorities 129 Table 6-2. Standardized Measures of Functional Capacity, Independence, Occupational Performance, and the Environment FUNCTIONAL CAPACITIES REFERENCE Audition Screening Tool Popelka, G. R. (1997). High and low pitch sounds: A screening tool. Unpublished manuscript. Caregiver Strain Index Robinson, B. C. (1983). Validation of a caregiver strain index. Journal of Gerontology, 38(3), 344-348. Modified Caregiver Strain Index Thorton, M., Travis, S.S. (2003). Analysis of the reliability of the Modified Caregiver Strain Index. The Journal of Gerontology, Series B, Psychological Sciences and Social Sciences, 58(2), S129. Functional Reach Test Duncan, P. W., Weiner, D. K., Chandler, J., & Studenski, S. (1990). Functional reach: A new clinical measure of balance. Journal of Gerontology: Medical Sciences, 45(6), M192-M195. Geriatric Depression Scale Yesavage, J. A., Brink, T. L., Rose, T. L., Lum, O., Adey, M., Leirer V.O. (1983). Development and validation of a geriatric depression screening scale: A preliminary report. Journal of Psychiatric Research, 17(1), 37-49. Geriatric Depression Scale: Short Form Sheikh, J. I, & Yesavage, J.A. (1986). Geriatric Depression Scale (GDS). Recent evidence and development of a shorter version. In T.L. Brink (Ed.). Clinical gerontology: A guide to assessment and intervention (pp., 165-173). New York: The Haworth Press, Inc. Lighthouse Near Acuity Card Ferris, F. L., Kassoff, A., Bresnick, G. H., & Bailey, I. (1982). New visual acuity charts for clinical research. American Journal of Ophthalmology, 94, 91-96. Lighthouse International Functional Vision Horowitz, A., Teresi, J., & Cassels, L. A. (1991). Development of a vision Screening Questionnaire screening questionnaire for older people. Journal of Gerontological Social Work, 17(3/4), 37-56. Lighthouse International, 111 East 59th Street, New York, NY, 10022. Tel: (212) 821-9525, Fax: (212) 821-9706 Mini-Mental State Examination Folstein, M. F., Folstein, S. E., & McHugh, P. R. (1975). “Mini-Mental State”: A practical method for grading cognitive state if patients for the clinician. Journal of Psychiatric Research, 12, 189-198. Montreal Cognitive Assessment www.mocatest.org Nasreddine, Z. S., Phillips, N. A., Bédirian, V., Charbonneau, S., Whitehead, V., Collin, I., . . . Chertkow, H. (2005). The Montreal Cognitive Assessment, MoCA: A brief screening tool for mild cognitive impairment. Journal of the American Geriatrics Society, 53(4), 695-699. Patient Health Questionnaire—9 Kroenke, K., Spitzer, R. L., & Williams, J. B. W. (2001). The PhQ-9: Validity of a brief depression severity measure. Journal of General Internal Medicine, 16(9), 606-613. Short Blessed Test Katzman, R., Brown, T., Fuld, P., Peck, A., Schechter, R., & Schimmell, H. (1983). Validation of a short orientation-memory-concentration test of cognitive impairment. American Journal of Psychiatry, 140(5), 734-739. Timed Up-and-Go Test Podsiadlo, D., & Richardson, S. (1991). The timed “up-and-go”: A test of basic mobility for frail elderly persons. Journal of the American Geriatrics Society, 39, 142-148. Zarit Burden Interview Zarit, S. H., Reever, K. E., & Bach-Peterson, J. (1980). Relatives of the impaired elderly, correlates of feeling of burden. Gerontologist, 20(6), 649-655. Zarit Burden Interview—Revised Zarit, S. H., Orr, N. K., & Zarit, J. M. (1985). The hidden victims of Alzheimer’s disease: Families under stress. New York: New York University Press. (continued) 130 Chapter 6 Table 6-2. Standardized Measures of Functional Capacity, Independence, Occupational Performance, and the Environment (continued) LEVEL OF INDEPENDENCE REFERENCE ADL Staircase Sonn, U., & Hulter-Åsberg, K., (1991). Assessment of activities of daily living in the elderly. Scandinavian Journal of Rehabilitation Medicine, 23, 193-202. ADL Staircase—Revised Iwarsson, S., & Isacsson, Å., (1997). On scaling methodology and environmental influences in disability assessments: The cumulative structure of personal and instrumental ADL among older adults in a Swedish rural district. Canadian Journal of Occupational Therapy, 64, 240-251. Modified Barthel Index Shah, S., Vanclay, F., & Cooper, B. (1989). Improving the sensitivity of the Barthel Index for stroke rehabilitation. Journal of Clinical Epidemiology, 42, 703-709. Functional Independence Measure (FIM) Uniform Data System for Medical Rehabilitation. (2009). The FIM system clinical guide—Version 5.2. Buffalo, NY: UDSMR, State University of New York at Buffalo. Katz Index of Activities of Daily Living Katz, S., Ford, A. B., Moskowitz, R. W., Jackson, B. A., & Jaffe, M. W. (1963). Studies of illness in the aged: The index of ADL: A standardized measure of biological and psychosocial function. Journal of the American Medical Association, 185(12), 914-919. Functional Independence Measure for Children (WeeFIM) Msall, M. E., DiGaudio, K., Rogers, B. T., LaForest, S., Catanzaro, N. L., Campbell, J., . . . Duffy, L. C. (1994). The Functional Independence Measure for Children (WeeFIM): Conceptual basis and pilot use in children with developmental disabilities. Clinical Pediatrics, 33(7), 421-430. OCCUPATIONAL PERFORMANCE REFERENCE COPM Law, M., Baptiste, S., Carswell, A., McColl, M., Polatajko, H., & Pollock, N. (2014). Canadian occupational performance measure (5th ed.). Ottawa, ON: CAOT Publications ACE. Occupational Circumstances Forsyth, K., Deshpande, S., Kielhofner, G., Henriksson, C., Haglund, L., Olson, Assessment—Interview and Rating Scale L., . . . Kulkarni, S. (2005). The Occupational Circumstances Assessment Interview and Rating Scale (OCAIRS)—Version 4.0. Chicago, IL: Model of Human Occupation Clearing House, University of Illinois at Chicago. Occupational Performance History Interview II (OPHI II) Kielhofner, G., Mallinson, T., Crawford, D., Nowak, M., Rigby, M., Henry, A., & Walens, D. (2004). The Occupational Performance History InterviewII—Version 2.1. Chicago, IL: Model of Human Occupation Clearinghouse, University of Illinois at Chicago. Occupational Self-Assessment (OSA) Baron, K., Kielhofner, G., Ienger, A., Goldhammer, V., & Wolenski, J. (2006). Occupational Self-Assessment—Version 2.2. Chicago, IL: Model of Human Occupation Clearinghouse, University of Illinois at Chicago. QUALITY OF PERFORMANCE REFERENCE Assessment of Motor and Process Skills (AMPS) Fisher, A. G., & Jones, K. B. (2011). Assessment of Motor and Process Skills: Development, standardization, and administration manual (7th ed. Rev.). Fort Collins, CO: Three Star Press. Client-Clinician Assessment Protocol (C-CAP) Lilja, M. (2002). Riktlinjer för användning av Client-Clinician Assessment Protocol (C-CAP). [Guidelines for Using the Client-Clinician Assessment Protocol (C-CAP)]. Stockholm, Sweden: Karolinska Institutet. PASS Clinic and PASS Home Rogers, J. C., Holm, M. B., & Chisholm, D. (2016). The Performance Assessment of Self-Care Skills (PASS)—Version 4.1. Pittsburgh, PA: University of Pittsburgh. (continued) Evaluating Clients’ Home Modification Needs and Priorities 131 Table 6-2. Standardized Measures of Functional Capacity, Independence, Occupational Performance, and the Environment (continued) ACCESSIBILITY, USABILITY, AND REFERENCE SAFETY OF THE ENVIRONMENT CASPAR Sanford, J. A., Pynoos, J., Tejral, A., & Browne, A. (2002). Development of a comprehensive assessment for delivery of home modifications. Physical & Occupational Therapy in Geriatrics, 20(2), 43-55. Dimensions of Home Measure (DOHM) Aplin, T., Chien, C. W., & Gustafsson, L. (2016). Initial validation of the dimensions of home measure. Australian Occupational Therapy Journal, 63(1), 47-56. Home and Community Environment Kaysor, J., Jette, A., & Haley, S. (2005). Development of the Home and Community Environment (HACE) instrument. Journal of Rehabilitation Medicine, 37(1), 37-44. Home Environmental Assessment Protocol Gitlin, L. N., Schinfeld, S., Winter, L., Corcoran, M., Boyce, A., & Hauck, W. (2002). Evaluating home environments of persons with dementia: inter-rater reliability and validity of the home environmental assessment protocol (HEAP). Disability and Rehabilitation, 24(1), 59-71. Home Occupational Environment Assessment Baum, C. M., & Edwards, D. F. (1998). Guide for the Home OccupationalEnvironmental Assessment. St. Louis, MO: Washington University Program of Occupational Therapy. Home Falls and Accidents Screening Tool Mackenzie, L., Byles, J., & Higginbotham, N. (2000). Designing the Home Falls and Accidents Screening Tool (HOME FAST): Selecting the items. British Journal of Occupational Therapy, 63(6), 260-269. Housing Enabler (HE) Iwarsson, S., & Slaug, B. (2001). The Housing Enabler: An instrument for assessing and analyzing accessibility problems in housing. Navlinge och Staffanstorp, Sweden: Veten & Stapen HB & Slaug Data Management. I-HOPE Stark, S. L., Somerville, E. K., & Morris, J. C. (2010). In-Home Occupational Performance Evaluation (I-HOPE). American Journal of Occupational Therapy, 64(4), 580-589. Safety Assessment of Function and the Environment for Rehabilitation Oliver, R., Blathwayt, J., Brackley, C., & Tamaki, T. (1993). Development of the Safety Assessment of Function and the Environment for Rehabilitation (SAFER) tool. Canadian Journal of Occupational Therapy, 60(2), 78-82. Safety Assessment of Function and the Environment for Rehabilitation—Health Outcome Measurement and Evaluation Chiu, T., Oliver, R., Ascott, P., Choo, L., Davis, T., Gaya, A., . . . Letts, L. (2006). Safety assessment of function and the environment for rehabilitation: Health outcome measurement and evaluation (SAFER-HOME) version 3 manual. Toronto, ON: COTA Health. Usability in My Home Fänge, A., & Iwarsson, S. (1999). Physical housing environment: Development of a self-assessment instrument. Canadian Journal of Occupational Therapy, 66, 250-260. Fänge, A. (2002). Usability in My Home manual. Lund, Sweden: Lund University, Division of Occupational Therapy. Westmead Home Safety Assessment Clemson, L. (1997). Home fall hazards. A guide to identifying fall hazards in the homes of elderly people and an accompaniment to the assessment tool the Westmead Home Safety Assessment. Victoria, Australia: Co-ordinates Publications. 132 Chapter 6 Measures of Occupational Performance There are few standardized assessment tools that quickly and accurately assess many of the parameters of interest for occupational therapists and their clients (Corcoran, 2005), in particular, occupational performance and the person-environment-occupation transaction. When measuring occupational performance, occupational therapists need to capture both the subjective experience and the objective performance (McColl & Pollock, 2017). They require tools that allow them to understand the specific needs of the individual and assist them to explain behavior. A number of structured and semistructured interview schedules have been developed that guide therapists to systematically examine the individual’s experience of occupation (e.g., the COPM [Law et al., 1998, 2014], OSA [Baron, Kielhofner, Ienger, Goldhammer, & Wolenski, 2002, 2006], and the OPHI-II [Kielhofner et al., 1998, 2004]). Whereas the OPHI-II and the OSA both examine the impact of the environment on occupational performance, the COPM focuses primarily on defining occupational performance issues and relies on the client and therapist exploring the impact of the environment on performance through informal discussion and observation. A detailed description and review of these tools is available in McColl and Pollock (2017). These standardized tools allow therapists to develop an understanding of clients’ past and present experiences and perceptions of their occupational performance and assist in the development of occupationfocused goals (Fasoli, 2008). The client-centered nature of these tools engages the client in identifying occupational performance issues, thus increasing his or her involvement in the evaluation process and the therapist’s understanding from the client’s perspective. These tools also allow individualized intervention plans to be developed and the impact of these to be evaluated. Occupational therapists frequently use standardized assessments to assess occupational performance in relation to personal and instrumental ADLs and community participation. Assessments of ADLs usually focus on determining the level of independence across a range of tasks for the purposes of screening or measuring outcomes (e.g., the Modified Barthel Index [Shah, Vanclay, & Cooper, 1989], FIM [Uniform Data System for Medical Rehabilitation (UDSMR), 1997, 2009], WeeFIM [Msall et al., 1994], Katz Index of Activities of Daily Living [Katz, Ford, Moskowitz, Jackson, & Jaffe, 1963], ADL Staircase [Sonn & Hulter-Åsberg, 1991], and the ADL Staircase—Revised [Iwarsson & Isacsson, 1997]). Generally, these global measures of independence do not provide information on the quality of performance or problematic aspects of the tasks (Gitlin, 2005). Though they may be useful as screening tools, they are not designed to analyze or diagnose occupational performance issues or evaluate home modification outcomes. Recently, a number of performance-based assessments have been designed to assist therapists to objectively analyze the quality of performance and identify barriers to valued occupations. A detailed description of assessments of personal and instrumental ADLs and community participation is available in Law et al. (2017). Some of these tools rely on self or proxy report. However, tools that use performance observation are of particular interest to home modification therapists because they allow them to evaluate the quality of occupational performance in daily activities and the factors that contribute to this. Tools of particular interest are the AMPS (Fisher, 1995; Fisher & Jones, 2011a, 2011b) and PASS (Chisholm, Toto, Raina, Holm, & Rogers, 2014; Rogers & Holm, 1994). Therapists using these tools can select tasks relevant to the client in his or her own environment and diagnose the precise moment and nature of performance breakdown. They examine the quality of performance rather than focusing solely on the outcome of performance. The AMPS is used by therapists who undergo extensive training to examine an individual’s ability to perform specific motor and process skills within meaningful personal and instrumental ADLs selected from a bank of more than 120 standardized ADL tasks (Fisher & Griswold, 2014). This tool allows therapists to diagnose specific performance difficulties that clients experience when undertaking activities but does not measure the impact of the environment or environmental interventions on performance. The PASS is one of the few tools that examines safety and adequacy of performance in addition to level of independence on a 4-point scale (Gitlin, 2005). The PASS is available in a clinic and home version, and both include 26 core tasks related to functional mobility (5), personal self-care (3), instrumental ADLs with cognitive emphasis (14), and instrumental ADLs with physical emphasis (4) (Furphy, & Stav, 2014; Holms, & Rogers, 2017). Each task is criterion referenced, detailing the subtasks required for successful completion (Figure 6-1). Therapists can select specific tasks depending on the client’s priorities or lifestyle or use the task development template to develop a new task. The tool allows therapists to identify the precise point of task breakdown and to provide verbal support, nondirective or directive verbal support, gestures, task and environmental modification, demonstration, physical guidance, physical support, or total assistance to support task completion. Evaluating Clients’ Home Modification Needs and Priorities 133 Figure 6-1. Extract from PASS—functional mobility: toilet transfers. (Reprinted with permission from J. C. Rogers and M. B. Holm, University of Pittsburgh, Pittsburgh, PA.) 134 Chapter 6 The C-CAP (Lilja, 2002; Petersson, Fisher, Hemmingsson, & Lilja, 2007) uses both self-report and observation to evaluate an individual’s performance in terms of independence, difficulty, and safety of activities, including mobility (14) and personal (10) and instrumental (12) ADLs (Thomas Jefferson University, n.d.). It has four parts: Part I provides questions to build rapport and explore routines and support systems. Part II is a client self-report of perceived ability to perform daily life tasks and records assistive devices currently in use (see extract in Figure 6-2). Part III examines the client’s readiness to change, and Part IV consists of occupational therapist observations and rating of the client’s ability to perform daily life tasks (Petersson et al., 2007). The tool provides therapists with a structure for exploring the client’s current experience, perceptions of performance, and readiness to change and setting goals for home modification interventions. Environmental Assessments With the growing recognition of the role of the environment in disablement, a number of assessments have been developed to examine the environment in relation to the person and his or her ability to operate effectively in that environment. For a comprehensive review of quality environmental measures, refer to Cooper et al. (2005). Cooper et al. note it is difficult for any one tool to assess this multifaceted and complex entity comprehensively. Consequently, it is important to be clear about the purpose and focus of the tools available and what each can contribute to an understanding of the impact of the environment on occupational performance. There are tools designed specifically to analyze the home environment: the HE (Iwarsson & Slaug, 2010), Maintaining Seniors’ Independence: A Guide to Home Adaptations (Canada Mortgage and Housing Corporation [CMHC], 2012), the CASPAR (Sanford et al., 2002), the I-HOPE (Stark et al., 2010), and the DOHM (Aplin et al., 2013). The HE is based on the Enabler developed by Steinfeld in the 1980s (Fänge, Risser, & Iwarsson, 2007) and is particularly useful for examining the congruence between the person’s functional capacities and his or her physical environment. There is a particular focus on assessing the accessibility of the home environment for people with a range of functional and mobility impairments, such as difficulty interpreting information, severe loss of sight, complete loss of sight, severe loss of hearing, prevalence of poor balance, incoordination, limitations of stamina, difficulty in moving head, difficulty in reaching with arms, difficulty in handling and fingering, loss of upper extremity skills, difficulty bending or kneeling, reliance on walking aids, reliance on wheelchair, and extremes of size and weight (Figure 6-3). This tool (demonstration version available at www.enabler.nu) allows therapists to identify potential accessibility barriers in the home, which can then be examined further through additional performance testing (Cooper et al., 2005). The HE is administered in three steps: 1. Using a combination of interview and observation, the functional limitations (13 items) and dependence in mobility (2 items) are identified. 2. The physical barriers in the home and immediate outdoor environment (188 items) are noted. 3. The accessibility score is calculated using a complex matrix and specialized software to examine the profile of functional limitations and mobility dependence against the accessibility barriers in the environment, where a predefined severity score has been provided for each barrier. The severity of accessibility barrier is rated 1 through 4, with higher points awarded to items that are likely to present more severe problems to people with that limitation (Figure 6-4). The final score indicates the magnitude of accessibility problems in the environment. Scores higher than zero indicated the presence of accessibility problems (Iwarsson & Slaug, 2010). Currently, this tool is used to evaluate the suitability of accommodation for people with a range of functional and mobility impairments to assist in municipal planning (Fänge et al., 2007) and in research to identify the number and magnitude of accessibility problems in housing for older people and its relationship to healthy aging outcomes (Fänge & Iwarsson, 2005; Iwarsson, 2005; Iwarsson, Horstmann, & Slaug, 2007). Although the accessibility measures in this tool are based on the Scandinavian accessibility standards, this tool directs therapists to environmental features that are potential accessibility barriers to people with a range of mobility and functional impairments. Maintaining Seniors’ Independence: A Guide to Home Adaptations (CMHC, 2012) was designed for occupational therapists to identify: Ô Self-care and household activities that people have difficulty completing independently Ô Obstacles in the home that can impede activities from being undertaken Ô Home improvements and minor adaptations that are inexpensive and easy to complete Evaluating Clients’ Home Modification Needs and Priorities 135 Figure 6-2. Extract from the C-CAP (Gitlin et al., 2006; Lilja, 2002; Petersson, Fisher, Hemmingsson, & Lilja, 2007). (Reprinted with permission from Laura Gitlin.) 136 Chapter 6 Figure 6-3. HE—functional limitations form. (Reprinted with permission from Iwarsson, S., & Slaug, B. [2010]. The Housing Enabler: A method for rating/screening and analysing accessibility problems in housing [2nd ed.]. Lund and Staffanstorp, Sweden: Veten & Skapen HB and Slaug Enabling Development.) Figure 6-4. HE—environmental assessment form. (Reprinted with permission from Iwarsson, S., & Slaug, B. [2010]. The Housing Enabler: A method for rating/screening and analysing accessibility problems in housing [2nd ed.]. Lund and Staffanstorp, Sweden: Veten & Skapen HB and Slaug Enabling Development.) Evaluating Clients’ Home Modification Needs and Priorities 137 Figure 6-5. Extract from Maintaining Seniors’ Independence: A Guide to Home Adaptations. (Reprinted with permission from Canada Mortgage and Housing Corporation. [2012]. Maintaining seniors’ independence: A guide to home adaptations. Ottawa, ON: Author.) The guide uses semistructured interview and observations of the client undertaking various activities within the home and can take 1 to 2 hours. It includes 73 items grouped under topics such as general accessibility; getting up, dressing, and tidying the bedroom; bathing and personal hygiene at the basin; taking a shower; taking a bath; using the toilet; preparing meals; doing the laundry; cleaning the house; using the telephone; enjoying leisure/ doing business; and taking medication. Figure 6-5 shows an extract of items from bathing and personal hygiene at the basin. The assessment tool is aimed at working with older people who are experiencing changes in their physical autonomy (i.e., the ability to independently undertake the various ADLs due to motor, organic, sensory, or speech difficulties). It has not been designed to meet the particular needs of persons with mental or major psychological deficiencies (confusion, perceptual problems). The tool is mostly intended for people living in apartments and singlefamily homes. The suggested minor adaptations require the clinical judgment of an occupational therapist to determine suitability and tailoring to the specific requirements of the individual, and more elaborate adaptations require engagement with consultants in architectural design and residential construction (CMHC, 2012). The CASPAR (Sanford et al., 2002) is a clientdirected assessment that enables an older adult, family, or nonspecialist therapist to identify problems in undertaking tasks in the home. This tool examines 138 Chapter 6 Figure 6-6. Example of CASPAR item. (Reprinted with permission from Extended Home Living Services, Wheeling, IL.) the person’s interaction with the specific elements in the built environment when accessing the house; mobilizing throughout the house; managing controls such as lighting and temperature controls; getting in and out of bed; and undertaking daily living tasks such as toileting, bathing, grooming, cooking, and washing. Figure 6-6 provides an extract from the CASPAR, which examines the use of the bathroom. The CASPAR allows therapists to record instances where the client experiences a problem with specific task elements, receives help, or uses a device for assistance. This tool provides a useful structure for documenting problems and prioritizing personenvironment issues but does not allow therapists to document or record changes in the quality of performance. It does, however, provide detailed diagrams to guide therapists in measuring specific aspects of the built environment related to common problems and modifications. The I-HOPE is a performance-based measure that focuses on home-based activities that are essential for aging in place (Stark et al., 2010). It was developed in response to the author’s identification that there was an absence of assessments that reviewed function in relation to the environment. To address this, this measure was designed to examine the fit between the person and environment in the home, encouraging the identification and review of the effects of “person-environment misfits” (Stark et al., 2010). While acknowledging the influence of the environment on performance, this measure also considers the client’s perspective on and satisfaction with their performance in their activity participation and enables the observation of changes in the personenvironment fit before and after home modification. This measure enables a trained therapist to establish current activity patterns, ascertain activities that are difficult but important to the person, and identify environmental barriers that affect specific Evaluating Clients’ Home Modification Needs and Priorities 139 Figure 6-7. The I-HOPE process. activities. It achieves this by using a three-step process, including (Figure 6-7): 1. An activity card sort in which 44 activities are sorted into five categories: (1) I do not do/do not want to do; (2) I do now with no problem; (3) I do now with difficulty; (4) I do not do but wish to do; and (5) I am worried about doing in the future 2. Client ranking of problematic activities to measure subjective performance and associated satisfaction with performance on a 5-point scale 3. Therapist observation of client performing activities in the relevant environmental context to enable identification of environmental barriers. Therapists then rate the impact of the barriers on performance on a 6-point scale, with 0 = independent with or without a device, 1 = standby assistance/independent with difficulty/unsafe, 2 = minimal assistance, 3 = moderate assistance, 4 = maximum assistance, and 5 = no activity. From the completion of this assessment process, four subscales are derived, including an activity participation score, client’s rating of performance score, client’s satisfaction with performance score, and severity of environmental barriers score (Stark et al., 2010). The I-HOPE demonstrates sound psychometric properties and enables therapists to reliably determine a client’s participation in daily activities, ability to perform activities, satisfaction with their performance, and the influence of environmental barriers on activity performance (Stark et al., 2010). This tool was designed for older adults (60 years and older) and may not be generalizable because the designated activities may not be applicable to other populations. Furthermore, it is limited to evaluating clients in their current environment, as the client must be present at the time of assessment. Despite this, the I-HOPE appears to be clinically useful and encourages the follow-up and review of outcomes postmodification as it has the potential for measuring change in performance, satisfaction, and environmental barrier scores between preintervention and postintervention. As home modification practice becomes more person-centered, occupational therapists want to understand the dimensions of home that influence decision making and ensure that modifications are not negatively affecting the experience of home. The DOHM, based on a literature review and an extensive qualitative study (Aplin, de Jonge, & Gustafsson, 2013, 2015), was developed to examine the six dimensions of home that are important considerations in the home modification process and that can be affected by changes to the home environment. The DOHM is a self-report tool that consists of 36 items (Table 6-3) measuring various dimensions of home: personal (11 items), social (4 items), occupational (5 items), temporal (3 items), physical (12 items), and societal (a single item measuring clients’ comfort with the cost of the modifications; Aplin, Chien, & Gustafsson, 2016). Each statement is related to aspects of each dimension (see Table 6-3) and is rated on a progressive 5-point Likert scale, with response descriptors being 1 = strongly disagree, 2 = disagree, 3 = unsure, 4 = agree, and 5 = strongly agree (Aplin et al., 2016). Although still early in its development, the DOHM has established content validity following a review by six expert occupational therapists and academics, who rated the tool as being comprehensive in its overall measurement of the dimensions of home with inter-rater agreement of 0.83 (Aplin et al., 2013). The unidimensionality of the DOHM’s subscales has been 140 Chapter 6 Table 6-3. Dimensions of Home Measure (DOHM) Items PERSONAL DIMENSION: PRIVACY, SAFETY, AND FREEDOM • • • • • • • I have the privacy I want from others in my home. I have enough privacy from neighbors and other people in the street. I feel safe living in this home. I feel safe while moving around and doing activities in and around my home. I feel independent that I am able to do the things I want to myself. My home allows me to get out as much as I want. I can be myself at home. PERSONAL DIMENSION: IDENTITY AND CONNECTEDNESS • • • • I am happy with the appearance of my home. My home reflects who I am. I feel connected to my home. My home contains special memories for me. SOCIAL DIMENSION: FAMILY AND FRIENDS • • • • I can easily have friends and family visit if I want. I have good relationships with those I live with or who visit often. The modifications will/do suit others who use my home. It is easy for me to do activities with my friends and family at my home. OCCUPATIONAL DIMENSION: HOME AS A PLACE OF ACTIVITIES • • • • • My home is easy to clean. I can easily move around in my home. I can easily do the activities I need to in my home (e.g., shower, toilet). I can easily do the activities I enjoy at home (e.g., leisure activities). It is easy for my carers to help me with the activities for which I need help. TEMPORAL DIMENSION: HOME NOW AND IN THE FUTURE • I am happy with my daily/weekly routine at home. • I know where everything is and how it works in my home. • With how things are at the moment, I am well set up for the future in my home. PHYSICAL DIMENSION: STRUCTURE, SERVICES, AND FACILITIES • • • • • • The wiring in my home is in a good condition. The ventilation in my home is in good working order. The plumbing in my home is in good working order (e.g., drainage in the bathroom). I am happy with the layout of my home. My home has no structural problems. The materials and finishes in my home are in good condition (e.g., the flooring, taps, sink, and tiles). PHYSICAL DIMENSION: AMBIENCE AND SPACE • • • • • • I enjoy the ambience of my home (e.g., a view, breeze, or sunshine). I can easily keep warm/cool enough in my home. I have enough space in my home for my needs. I have enough storage space in my home. I have good light in my home. When coming and going from my home, I am protected from the weather. SOCIETAL DIMENSION: COST • I am comfortable with the cost of the modifications (e.g., initial installation costs, maintenance). Evaluating Clients’ Home Modification Needs and Priorities supported by Rasch-based principal component analysis and item-fit analysis. Hierarchical results of item difficulties, however, revealed that more items would be needed to capture the full range of a participant’s experiences of home (Aplin et al., 2016). Selecting and Evaluating Standardized Assessment Tools When choosing an assessment tool, it is critical to understand the purpose and focus of the tool and to ensure that these align with the intended application (Cooper et al., 2005). Unfortunately, there are few tools that address the issues of concern of occupational therapists and their clients and assess them in the way they need to be assessed. Once a suitable standardized tool has been identified, therapists investigate the psychometric properties of the tool to ensure that it has adequate validity, reliability, sensitivity for its purpose and clinical utility for use in home modification practice. Using valid and reliable measures allows therapists to determine the extent of the problem and evaluate the effectiveness of interventions in addressing them. Standardized evaluation tools ensure consistency and assist those therapists with limited experience to identify and address issues thoroughly and systematically. However, standardized tools may have limited flexibility when used to address clients’ specific concerns; the complex interaction between the person, environment, and occupations; and the unique situations encountered in home environments. It is often challenging to use standardized tools effectively in the home because time is often limited, and it is difficult to follow instructions rigidly in an unfamiliar and unstructured environment (Gitlin, 2005). Some tools require specialist training and have specific setup requirements. Many standardized measures are not sensitive to the changes that can result from interventions, such as decrease in time taken and making the client feel safer, and can penalize the use of standard interventions, such as the use of an assistive device. These limit their usefulness in evaluating outcomes. For example, the FIM (UDSMR, 1997, 2009) is considered a gold standard in terms of its psychometric properties. While it may be a useful tool for screening level of independence, it does not provide therapists with useful information about the adequacy and safety of performance or the person-environment-occupation transaction, and it is not responsive to changes resulting from typical occupational therapy interventions, such as assistive devices (Johansson, Lilja, Petersson, & Borell, 2007). Regardless of its psychometric properties, the FIM is useful only in specific circumstances (e.g., screening and measuring the 141 outcomes of remediation interventions) and is potentially detrimental in demonstrating the efficacy of adaptive interventions. When standardized tools are not available or not appropriate, therapists should use qualitative evaluation strategies, such as interviews and skilled observations that are trustworthy and consistent (Law & Baum, 2005) and ensure that information gathered using these invaluable strategies is adequately documented. CONCLUSION Evaluation serves a number of purposes. Primarily, therapists use evaluation to identify and examine misfits between the person, occupations, and environment. However, it is also valuable in screening referrals to identify people with potential occupational performance issues and to measure the magnitude of change in occupational performance resulting from home modification interventions. Professional reasoning is used throughout the evaluation process. Drawing on relevant practice frameworks and existing bodies of knowledge, therapists seek and interpret cues and generate and test hypotheses about the person’s occupational performance difficulties and contributing factors. They use narrative reasoning to understand and describe each client’s unique experience of his or her situation and to work with him or her to create an impelling future. Pragmatic reasoning assists therapists to work sensibly and effectively within their personal resources, as well as the resources available in the practice context, and ethical reasoning requires therapists to reflect on their personal and professional values when dealing with the many competing forces that affect thinking and decision making. Finally, interactive reasoning supports the development of a strong therapeutic relationship between the therapist and the client, enabling a collaborative alliance between the two parties that enhances the potential for success of therapeutic interventions. Therapists use a range of evaluation strategies to gather information about the client, his or her occupational performance, and his or her home. Informal interviewing is used to develop two-way communication between the therapist and the client, allowing therapists to build collaborative partnerships; earn clients’ trust and confidence; gather information; hear stories; and understand clients’ experiences, concerns, goals, and aspirations. Structured interviews provide therapists with a framework for collecting demographic information, medical history, and self-reported ability to undertake ADLs, as well as information on the age, design, and features of 142 Chapter 6 the house. Dedicated checklists prompt therapists to identify potential hazards or barriers for older people and people with specific impairments, health conditions, or disabilities. Skilled observation allows therapists to observe occupational performance in the client’s natural environment and identify factors that are contributing to, or interfering with, performance. 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Guide for the Uniform Data Set for Medical Rehabilitation (including the FIM™ instrument)—Version 5.1. Buffalo, NY: UDSMR, State University of New York at Buffalo. Uniform Data System for Medical Rehabilitation. (2009). The FIM system clinical guide—Version 5.2. Buffalo, NY: UDSMR, State University of New York at Buffalo. 7 Measuring the Person and the Home Environment Elizabeth Ainsworth, MOccThy, Grad Cert Health Sci and Desleigh de Jonge, MPhil (OccThy), Grad Cert Soc Sci Having a health condition or impairment can be disabling, limiting a person’s capacity to manage everyday tasks in the home or community. A home environment that is not designed for a person’s specific needs is more handicapping than one whose design is well suited to the occupant. This chapter describes the information that needs to be obtained to facilitate goodness of fit of the person with his or her home and discusses the contribution to this of an understanding of anthropometrics, ergonomics, and biomechanics. The chapter describes the characteristics of the home environment, such as the size of spaces, gradients, illuminance, force, and sound, that affect occupational performance and identifies tools for measuring these characteristics. The chapter concludes with information about factors that may influence measurement practice in the home. CHAPTER OBJECTIVES By the end of this chapter, the reader will be able to: Ô Describe measurement and the types needed for home modification Ô Explain the relevance and limitations of anthropometrics, ergonomics, and biomechanics Ô Describe methods for measuring people, equipment, and the home environment Ô Discuss various measures that relate to home design Ô Describe measuring tools and resources Ô Describe factors influencing measuring practice Ô Explain the consequences of not using reliable measuring techniques THE IMPORTANCE OF MEASUREMENT Increasingly, occupational therapists are recognizing the importance of measurement in detailing the attributes of clients, their equipment, and caregivers so that they can be incorporated into the redesign of the home environment. The following discussion provides a general overview of measurement and its importance, the types of measurements required for home modification practice, and the consequences of not using sound measurement techniques. During the home modification process, therapists gather information about the person-occupationenvironment fit by taking systematic and accurate measurements of that person’s physical characteristics and features in the home environment that - 145 - Ainsworth, E., & de Jonge, D. An Occupational Therapist’s Guide to Home Modification Practice, Second Edition (pp. 145-174). © 2019 SLACK Incorporated. 146 Chapter 7 affect occupational performance. Measurements are taken of the person, the equipment he or she uses, and the caregiver to determine the environmental characteristics required to support successful completion of a range of occupations in and around the home. The person’s height, weight, width, and depth (and those of his or her equipment and caregiver) and the person’s visual and hearing capacity are examined to determine the space, load capacity, clearance, size, and placement of features and illumination requirements in the environment. For example, when designing a shower area for a tall, heavy client who uses a customized wheelchair, the therapist takes measurements of the person in his or her wheelchair and observes transfers and movement within the bathroom to determine the circulation spaces required and the load capacity, size, and placement of the drop-down shower seat. A broad range of activities may occur within the different areas of the home, so it is important that therapists talk with the resident to understand how each area of the home is used and how various activities are undertaken in each area. Therapists also measure aspects of the environment and their impact on occupational performance or the health, safety, independence, quality of life, and participation of people within the home. The features that are commonly examined include lighting, color, space, heights, widths, distances, gradients, force, and sound (Bridge, 2005). For example, a person with age-related vision changes who is experiencing difficulty mobilizing at night and in transition zones (i.e., between the outside and inside of the home) may need lighting levels measured to determine the need for enhanced or consistent lighting. Good measurement practice is critical to good design. Measurement, rather than assumption or guesswork, enables modifications to be tailored to clients’ requirements. Occupational therapists can use these measurements to inform clients and other stakeholders about the functional implications of the various aspects of the design and location of features in the environment. Measurements can be used as a foundation for discussing the limitations of the current situation and how activities or the environment can be changed to support occupational performance. These measurements are especially useful for highlighting the extent to which clients’ requirements fall outside of the design and performance criteria in the existing access and design standards. Several problems can arise when clients and their environment are inaccurately measured. Clients can be unwilling to accept recommended changes if they perceive that these have not been tailored to suit their specific requirements. Inadequate measurement can also result in solutions being poorly designed, which can cause delays, disruption, and extra expense for the service or client as he or she navigates problems and renegotiates alternative options with the client. Further, interventions that have not been adequately tailored to the individual’s needs are likely to fail, resulting in an accident or injury, poor health, premature or unnecessary institutionalization, increased reliance on others, and a reduced quality of life. Effective measurement is informed by an understanding of the relevance and application of anthropometrics, ergonomics, and biomechanics. Each of these fields can contribute to an understanding of the person-environment-occupation fit. Anthropometrics can assist in understanding the dimensions of static postures and dynamic movement and how population data are used to inform design. This field of study informs therapists about the diversity of human body characteristics and the importance of providing individualized measures of people who fall outside of the typical population design range. It has also established standardized methods of measurement, which can be used by therapists when gathering individualized measurement information. Ergonomics provides therapists with an understanding of human task demands, the usability of environments, and the person-environment interaction. Biomechanics enables occupational therapists to appreciate the structural basis for human performance, strength or power capabilities of the human body, and forces generated by the body as people undertake activities (Standards Australia, 1994). ANTHROPOMETRY AND ANTHROPOMETRIC MEASUREMENT Anthropometry is the study of the shape, size, and proportion of the human body; the strength and working capacity or abilities; and the variation of these characteristics in populations (Ching, 1995; Paquet & Feathers, 2004; Pheasant, 1996; Pheasant & Haslegrave, 2006; Steinfeld, Lenker, & Paquet, 2002; Steinfeld & Maisel, 2012; Steinfeld, Paquet, D’Souza, Joseph, & Maisel, 2010). Anthropometric data arising from the static and dynamic measurements of the human body are collected on various populations and are used to guide the design of products, spaces, environments, and systems (Australian Safety and Compensation Council, 2009; Baker, 2008; Connell & Sanford, 1999; Cooper, 1998; Pheasant & Haslegrave, Measuring the Person and the Home Environment 147 Figure 7-1. The normal distribution represented by the bell-shaped curve. 2006; Steinfeld & Maisel, 2012; Steinfeld et al., 2002, 2010). Large anthropometric data sets, some of which have been derived from people in the armed forces in various countries, have been compiled and presented in multiple tables with detailed measures for different subgroups (e.g., age and gender; Conway, 2008). When measures of individuals within populations are graphed, they commonly form a normal or bell-shaped curve, with an increasing proportion of the population tending toward the mean near the middle of the curve and a decreasing proportion tending toward the tails of the curve (Diffrient, Tilley, & Bardagjy, 1974), although not all anthropometric measures are symmetrically distributed. It is important that designs sufficiently accommodate anthropometric variability (Pheasant & Haslegrave, 2006). Customarily, measurements for 90% of the population are used for designs; that is, the anthropometric dimensions occurring at either end of or between the 5th and 95th percentiles (Goldsmith, 2000; Pheasant & Haslegrave, 2006; Steinfeld & Maisel, 2012) or at or below the 90th percentile (Figure 7-1). Critics have noted that designs based on the 95th percentile for one dimension, such as height, will not accommodate the 95th percentile for other dimensions such as vision, hearing, and perception (Sanford, 2012). This approach presumes that there are no differences across populations based on gender or other individual attributes that would influence design and, as a result, it can be assumed that no design will suit 90% of all people across all abilities (Sanford, 2012). Some designs that extend beyond the 95th percentile may only cater to one type of ability, which can render the design even more disabling (Sanford, 2012). Published anthropometric data may be relevant to some people within populations but not to others as the data have historically tended to exclude people with a disability. Published anthropometric data might therefore provide little information about the characteristics of people with a disability (Steinfeld, 2004; Steinfeld & Maisel, 2012). A small number of studies, undertaken in the late 1970s and early 1980s, have provided limited data on the anthropometrics of people with a disability. Many studies on people with a disability are limited in their usefulness because they have tended to focus on specific disability groups rather than on the full range of people with a disability, lack standardized dimensional definitions and measurement methods (Bridge, 2005; Paquet & Feathers, 2004), and do not include or acknowledge the specific requirements of people with more than one disability (Bridge, 2005). Further, the data do not consider the various types of assistive devices used by a range of people with a disability and how and when they are used (Steinfeld, 2004). 148 Chapter 7 Figure 7-2. Standing anthropometrics. (Adapted from Goldsmith, S. [2000]. Universal design: A manual of practical guidance for architects. London: Elsevier.) Despite the difficulties associated with applying anthropometric data to people with a disability and across subgroups of them, the available data can assist therapists in understanding the complexities of the human form and how it interfaces with the environment (Baker, 2008). Anthropometric data are necessary when the characteristics of individuals are unknown or when establishing initial estimates of measures of the characteristics where the individual is known. Whatever the case, therapists should understand that, when designing for a particular person, it is important that individualized measuring occurs. Without individualized measurements, the suitability of the home modification for the client might be compromised. Types of Anthropometry and Their Application Two types of anthropometry are used to guide design: structural (or static) anthropometry and functional (or dynamic) anthropometry (Steinfeld & Maisel, 2012). Structural (Static) Anthropometry This form of anthropometry “is the science of measuring length, breadth, and the width of the human population” (Baker, 2008, p. 75). It can include the measurement of size of body parts, stature, and weight (Steinfeld & Maisel, 2012). Static measurements are usually taken with the person sitting, standing, and/or bending (Steinfeld & Maisel, 2012). Human dimensions are always considered in the sagittal plane (the vertical plane through the longitudinal axis that divides the body into left and right sections) or the coronal plane (the vertical plane through the longitudinal axis that divides the body into front and back sections; Baker, 2008). The standing posture involves the subjects standing erect and looking straight ahead, with their arms in a relaxed position by their side (Baker, 2008). The seated posture involves the subjects sitting erect and looking straight ahead. Their thighs should be parallel to the floor and their knees bent at a 90-degree angle with feet flat on the floor; the upper arms are to be relaxed and perpendicular to the horizontal plane with the forearm at right angles to the upper arm and parallel to the floor (Baker, 2008). Measurements are taken along imaginary horizontal or vertical lines using specific anatomical landmarks, such as the popliteal crease at the back of the knee, greater trochanter of the femur, and parts of the body, as reference points. For example, a person’s stature is determined by measuring the vertical distance from the floor to the vertex (the crown of the head). This measurement is then used to define the vertical clearance required when standing, walking, or wheeling in an area of the minimum acceptable space or with overhead obstructions. The most common static body dimensions to obtain in relation to the design of home interiors include height, weight, sitting height, eye height, buttock to knee and buttock to popliteal lengths, breadths across elbows and hips, seated knee and popliteal heights, and thigh clearance height (Panero & Zelnik, 1979; Figures 7-2 and 7-3). Measurements to note in Figure 7-2: Ô A = Floor to top of head Ô B = Floor to shoulder Ô C = Floor to elbow Ô D = Waist to hand Ô E = Floor to wrist Ô F = Floor to eye level Ô G = Diagonal reach range—floor to hand Ô H = Diagonal reach range—floor to hand Measurements to note in Figure 7-3: Ô A = Floor to top of head Ô B = Floor to top of shoulder Ô C = Floor to popliteal area Ô D = Chest to end of hand Ô E = Floor to top of knee Ô F = Floor to eye level Ô G = Diagonal forward reach Measuring the Person and the Home Environment 149 Anthropometric data on people with disabilities also include dimensions of people occupying assistive devices. Dimensions of an occupied wheelchair are used to determine the floor space and vertical and horizontal clearance requirements of people using wheelchairs. Functional (Dynamic) Anthropometry This form of anthropometry involves the measurement of a subject while in motion to help determine the properties of the body, such as range of motion or reach, grasping, stride, clearance, and space envelopes required for different body movements (Ching, 1995; Cooper, 1998; Steinfeld & Maisel, 2012). This can also include the measurement of the subject during movement associated with certain tasks, such as reaching, using an assistive device to wheel or walk straight ahead or to make a turn, or the measurement of the subject’s strength (Steinfeld et al., 2002; Steinfeld & Maisel, 2012). These types of data are more difficult to reliably obtain because of the movement of the subject during the measurement process. However, functional or dynamic anthropometry provides more accurate information about the movement within spaces and during activities. For example, when considering the ability of the body to reach forward, the static measurement that would be used is “arm length” (Australian Safety and Compensation Council, 2009). However, dynamic analysis of a person reaching forward shows that the shoulder joint also moves forward with the arm, thus increasing the person’s forward reach capacity beyond the static length of the arm (Australian Safety and Compensation Council, 2009, p. 42). The size, shape, weight, and movement patterns of people with disabilities vary considerably, requiring the environment to be customized to their unique requirements. Occupational therapists use the principles of anthropometric measurement to position clients and locate anatomical landmarks and parts of the body when establishing clients’ specific dimensions. Using an established and standardized approach to measurement, where possible, ensures that practice is accurately and consistently replicated by staff, particularly when there is a range of approaches. Individualizing the measurement process is particularly useful where usability and safety require a close fit between individuals, their equipment and caregivers, and their environment (Steinfeld, Schroeder, Duncan, et al., 1979; Steinfeld et al., 2002; Steinfeld & Maisel, 2012). For example, a bathroom needs to be designed to “fit” an individual’s stature and functional reach range to ensure his or her safety and the usability of the fittings. Specifically measuring a person allows therapists to Figure 7-3. Seated anthropometrics. (Adapted from Goldsmith, S. [2000]. Universal design: A manual of practical guidance for architects. London: Elsevier.) collect concrete and scientific information that can be used to analyze why a space is not working and design or redesign spaces to suit the needs of users with specific requirements (Goldsmith, 2000). BIOMECHANICS Biomechanics “is effort produced by the human body while moving or resisting force” (Steinfeld & Maisel, 2012, p. 103). It is the study of human movement using mechanical principles (Spaulding, 2008a). It examines movement and equilibrium using the principles of physics to investigate the influence of forces, levers, and torque on performance (Pedretti, 1996). Because the biomechanics of the human body are so complex, no single biomechanical model of the human body currently exists; rather, there are many models from various fields of use to explain movement of the human body (Kroemer, 1987). Biomechanics can be used to analyze movement in everyday activities to understand the mechanical aspects of the movement. It assists in the examination of the level of effort required to use the environment to accommodate end users’ abilities, tolerances, and preferences (Steinfeld & Maisel, 2012, p. 103). In a biomechanical analysis of the sit-to-stand transfer, Laporte, Chan, and Sveistrup (1999) highlight the role of displacement, momentum, velocity, and the relationship between the center of pressure and center of mass throughout the four phases of the sit-to-stand transfer. This type of analysis provides therapists with a detailed understanding of the elements of the movement and how variations in movement may result in performance difficulties. Using biomechanical principles, therapists systematically observe performance in order to examine 150 Chapter 7 the quality of the movement, the effectiveness of performance, the degree of effort involved, and the potential for injury (Kreighbaum & Barthels, 1996; Pheasant, 1987; Steinfeld & Maisel, 2012). By using a qualitative biomechanical analysis, therapists can identify ineffective or problematic aspects of movement. Considerations commonly include: Ô Range of movement: Working outside of safe ranges of motion and/or within extreme ranges Ô Center of gravity: Displacement of the person’s center of gravity outside of the base of support Ô Accuracy: Imprecise movements or uncoordinated Ô Speed and momentum: Slow, hesitant, uncontrolled, or impulsive actions Ô Strength: Overexertion or ineffective positioning resulting in poor use of force, levers, and torque Ô Endurance: Limited activity tolerance or excessive energy expenditure (Steinfeld, Schroeder, Duncan, et al., 1979) Occupational therapists also draw on biomechanical principles to improve movement and make it safer. They identify the most appropriate posture for the performance of a task with a view to maximizing the effect of forces and minimizing muscular effort (Pheasant, 1987). They also advise on strategies to improve the effectiveness and efficiency of movement and reduce the likelihood of discomfort, pain, incidents, accidents, injuries, or disability. For example, occupational therapists use the information on the biomechanical analysis of the sit-to-stand transfer provided by Chan, Laporte, and Sveistrup (1999) to identify a range of strategies to improve the effectiveness and safety of the movement (e.g., the ideal initial body position and the proper use of body mechanics throughout the movement). ERGONOMICS Ergonomics is concerned with shaping environments and tasks to optimize the abilities of individuals to perform activities (Baker, 2008; Conway, 2008; Stein, Soderback, Cutler, & Larson, 2006). It involves measuring and using the dimensions of objects and spaces to examine the human task demands (Conway, 2008; Stein et al., 2006). Though ergonomics emerged from the area of work performance, worker safety, and productivity, it is not solely confined to workplace environments (Berg Rice, 2008). The concepts and principles are derived from research in many fields, including industrial engineering, human factors psychology, occupational medicine, and nursing, as well as occupational therapy (Stein et al., 2006). Like occupational therapy, the field of ergonomics is concerned with the usability of environments and the person-environment transaction (Conway, 2008). The principles of ergonomics can be used to prevent musculoskeletal injures, conserve energy, and use the body in the most efficient way possible when engaging in activity or occupation (Stein et al., 2006). Two approaches are commonly used in an ergonomic evaluation: task analysis and user trial (Pheasant & Haslegrave, 2006). Task analysis involves examining what the person is doing or needs to do and analyzing the physical movements and information processing involved and the actual or potential environmental barriers or constraints (Conway, 2008). An effective task analysis involves clarifying the person’s goals; intended outcome; and potential areas of mismatch between the person, activity, and environment (Conway, 2008). A user trial involves the naturalistic trial of a product or environment to determine its usability (Conway, 2008) and to evaluate whether there is a satisfactory match with the user when considering its comfort, usability, and performance (Pheasant, 1987). With its user-centered approach and personenvironment transactive perspective (Pheasant & Haslegrave, 2006), ergonomics can assist occupational therapists to determine the adequacy of the person-environment fit (Conway, 2008; Stein et al., 2006). Ergonomic principles guide the analysis of the person’s posture, movement, and performance and the impact of the environment (Berg Rice, 2008). An ergonomic approach provides therapists with a framework for evaluating and matching the design of the layout, fittings, and fixtures to suit the specific capabilities of the person; additionally, it assists in selecting products, equipment, and designs to improve client or caregiver efficiency, effectiveness, and safety (Berg Rice, 2008). MEASURING THE CLIENT, EQUIPMENT, AND CAREGIVERS People vary in terms of their body size and movement patterns, the equipment they use, and the assistance they receive; hence, therapists often need to take an individualized approach when measuring clients, their caregivers, and their equipment. Therapists gather this information to alert builders and designers to the specific requirements of clients whose dimensions or abilities fall outside of Measuring the Person and the Home Environment the population addressed by the access and design standards. Individualized measurement is advisable, particularly for people who vary substantially in terms of height, size, or weight and for those who use equipment other than a standard wheelchair; have impairments that affect their posture, movement, or balance; have limited use of their upper limbs; or require caregiver assistance for various activities. The challenge for occupational therapists lies in knowing what to measure and how to measure it. By measuring people’s size, shape, weight, space requirements (with consideration for their equipment and/or caregiver dimensions), reach, clearance, posture, and strength, the therapist can determine the space they require and the best location for fixtures and fittings. Individuals’ body dimensions might need to be measured in various static or dynamic postures, such as sitting, standing, bending, kneeling, squatting, or lying positions, depending on the nature of the activities they are involved in around the home. Posture relates to the orientation of body parts in space and depends on the dimensions of the body and their relationship with items in the environment. People with poor strength and endurance or visual difficulties might experience change in posture throughout the day or alter their posture for different activities. Posture might vary as a result of natural biological fluctuations. For example, a person’s stature can vary approximately 15 mm over 24 hours, being the greatest first thing in the morning when the spine has been relieved of supporting body weight through lying down overnight (Pheasant & Haslegrave, 2006). Shrinkage of the spine tends to occur rapidly within the first 3 hours of rising (Pheasant & Haslegrave, 2006). It may not always be possible to measure clients in seated or standing positions. In these cases, therapists need to choose the posture that best suits the clients’ disability, the activities they wish to complete, and the environment in which they will function in that position. For example, if a client needs to reach to operate an intercom while in bed, he or she will need to be measured lying down and reaching to the area on the wall that would best suit the person’s capacity to operate the device. The following diagrams and photos provide an illustration of typical body postures and the location of the body landmarks used as reference points during the measurement process. Pheasant and Haslegrave (2006) provide a detailed description of body dimensions and what these dimensions apply to in relation to the design of the built environment. The examples provided in the following discussion are the measures most commonly taken by occupational therapists. 151 The Height, Width, and Depth of Parts of the Body The therapist uses a tape measure to determine height, width, and depth of parts of the person and the equipment above floor level. Pheasant and Haslegrave (2006) provide the following details: Ô A person’s stature is determined by measuring the vertical distance from the floor to the vertex (the crown of the head). This measurement defines the vertical clearance required when standing, walking, or wheeling in an area or the minimum acceptable space of overhead obstructions. Ô Shoulder height is measured from the floor to the acromion (the bony tip of the shoulder), and it is the reference point for the location of fittings, fixtures, and controls. Ô Knee height includes the horizontal distance from the floor to the upper surface of the knee (measured to the quadriceps muscle and not the knee cap), and it provides measurement to inform the clearance required beneath the underside of tables. Ô Popliteal height is the measurement from the floor to the popliteal angle at the underside of the knee where the tendon insertion of the biceps femoris muscle is located. This dimension defines the maximum acceptable height of the seat. Ô Hip width is the maximum horizontal distance across the hips in the seated position, and this information relates to the minimum width of a seat. Ô Hand width is measured across the palm of the hand and includes a measurement of the distal ends of the carpal bones to provide information on clearance for hand access to handles or rails. Ô Depth of the area between the popliteal area at the underside of the knee to the rear of the buttocks provides information to inform the design of the depth of a seat (Figures 7-4 and 7-5). Measurements to note in Figure 7-4: Ô A = Shoulder width Ô B = Seat to the top of the shoulders Ô C = Seat to the top of the head Ô D = Width of the buttocks Ô E = Width of the seat Ô F = Bottom of buttocks to the elbow Ô G = Seat to the lumbar area 152 Chapter 7 Figure 7-4. Rear and side views of a seated person. (Adapted from Pheasant, S. [1996]. Bodyspace: Anthropometry, ergonomics and the design of work. London: T. J. Press.) Figure 7-5. Occupied wheelchair. (Adapted from Goldsmith, S. [2000]. Universal design: A manual of practical guidance for architects. London: Elsevier.) Ô C = End of armrest to end of toe Ô D = Floor to toe with foot on footplate Ô E = Floor to seat of wheelchair (or top of cushion on wheelchair) Ô F = Floor to knee with foot on footplate Ô G = Floor to eye level Ô H = Diagonal forward reach Ô I = Height of wheelchair Eye Height The therapist also measures eye height, which is measured from the floor to the inner canthus (corner) of the eye. This dimension defines the maximum acceptable height for visual obstructions and defines sight lines (Pheasant & Haslegrave, 2006; see Figures 7-2 through 7-6). Reach Ranges Figure 7-6. Measuring eye height above floor level. Ô H = Rear of the buttocks to the popliteal area of the leg Ô I = Floor to the popliteal area Measurements to note in Figure 7-5: Ô A = Chest to toe Ô B = Edge of armrest to end of toe or footplate (whichever protrudes the most) The measurement of an individual’s functional reach ranges, when positioned in various postures, is important in determining the width and height of environmental features, such as storage cupboards, benches, and clotheslines. The therapist considers the location of the features in the environment and asks clients to move and reach either forward or sideways with the arm they are most likely to use. This activity could also be undertaken in a natural environment in which the various features are positioned, or the therapist might need to simulate the location of the various features during the measurement exercise. Refer to Figures 7-2 through 7-12. Measurements to note in Figure 7-7: Ô A to G = Side reach Measuring the Person and the Home Environment 153 Figure 7-7. Occupied wheelchair. Side reach. (Adapted from Goldsmith, S. [2000]. Universal design: A manual of practical guidance for architects. London: Elsevier.) Figure 7-8. Measuring horizontal reach dimension. Figure 7-9. Measuring forward horizontal functional reach above floor level. Figure 7-10. Measuring forward diagonal functional reach above floor level. Determining the Size of Spaces for Transfer and Mobility Equipment Reflecting the distinction between static or dynamic studies in anthropometrics, two strategies for determining the size of spaces for occupied or unoccupied mobility equipment such as wheelchairs, scooters, or wheeled walking aids can be differentiated, depending upon whether the person is stationary or moving. The distinction is made here because sizes of spaces for stationary equipment can be determined from measurements of the occupied or unoccupied equipment itself, whereas, in practical terms, determining the sizes of spaces 154 Chapter 7 Figure 7-11. Measuring side horizontal functional reach above floor level. for moving equipment cannot. Spaces to consider when measuring equipment in motion include volumetric (three-dimensional) space and planar (twodimensional) space traversed on the travel surface (i.e., the ground or floor surface). Most rooms and spaces in the home will require consideration of the motion of equipment; however, consideration of stationary equipment is necessary for storage and parking spaces and at the start and end positions of their motion. Measurements for Stationary Mobility Equipment For the minimum size of spaces to store or park equipment, measurements will be required of at least the overall width, length, and height of the equipment. For more compact storage, such as under bench tops for wheelchairs, the dimensions of foot, back, and arm support assemblies and drive wheels will also be required. For even more compact storage of equipment that can be folded, measurements will be required of them in their folded state. Occupied and unoccupied wheelchairs and scooters are typically illustrated in plain view as being symmetrical about their longitudinal and lateral axes. However, many unoccupied and especially occupied pieces of equipment are asymmetrical (Hunter, 2009). Asymmetry is attributable to the equipment, the occupant, accessories such as respirators, and loose items such as handbags and walking aids. The need for consideration of loose items in space planning should be confirmed with clients. Figure 7-13 illustrates the typical asymmetry of wheelchairs and scooters. Figure 7-12. Measuring side diagonal functional reach above floor level. Measuring unoccupied or occupied wheelchairs and scooters requires measurement of the distance between outermost points on them. These are typically on hand rims, the rear of drive wheels, the ends of handgrips, the tops of back supports, and the ends of armrests and footplates. Outermost points on users of manual or powered wheelchairs include the ends of shoes and elbows, fingers, or wrists on hand rims or controls and the top of users’ heads. Outermost points may also be on features or accessories added to the equipment by clients. Outermost points on users do not necessarily occur at the skeletal protuberances commonly used as reference points in biomechanics. Prior knowledge of key features that typically constitute the two- and three-dimensional outlines of occupied and unoccupied equipment assists in orienting to the measuring task. Of greatest importance, however, is skill in recognizing the features that constitute the envelope of occupied or unoccupied equipment and the relevant outermost points on it. The number of points is determined by the end use of the measuring. If the end use is to determine the size of a cube for storing equipment, only the Measuring the Person and the Home Environment 155 Figure 7-13. Typical outlines of occupied wheelchairs and scooters. (Reprinted with permission from Rodney A. Hunter.) pairs of points corresponding with overall width, length, and height of the equipment are required. For space under bench tops and the like for wheelchairs, dimensions of arm support assemblies, legs, and feet positions will also be required. Methods for recording outermost points include photogrammetry and laser scanning; however, these can be time consuming and costly. Simple, inexpensive, and sufficiently accurate methods for most home modifications are manual ones. The most common and quickest manual method is measuring between outermost points of the equipment with a tape measure. If only the overall length and width need to be measured, movable panels can be used. Polystyrene is a suitable material for panels; the panels need to have a base that is large and heavy enough to stabilize the panel. For this method, the panels are placed parallel to each other and at each side of the equipment and then moved toward it until they just touch it. The procedure is repeated at the ends of the equipment. There are three advantages of this method: 1. The panels can be easily placed at whatever angle with respect to each other and that most snugly contains the equipment for purpose of storage space that is not rectangular in plan 2. The panels can be used to test for the parking or storing motion of the equipment 3. No prior knowledge of measuring points is required For mobility equipment with castor wheels, a dimension that may need to be measured is the pivoting radius of the castor wheels. Castor wheels can swing outside of the envelope of equipment, especially if, after the equipment has stopped, it is suddenly moved in the opposite direction. If there is insufficient space for this, the equipment can become jammed in the storage space. The measured width and length of the stationary equipment will need to be increased to allow for typical imperfect control of the equipment as it is driven or pushed into or out of the parking or storage space. Additional measurement will also be necessary where space is required to transfer in and out of the equipment or if space is required for another person to assist the equipment user (Figures 7-14 through 7-22). Measurements to note in Figure 7-14: Ô L = Length of wheelchair Ô W = Width of wheelchair 156 Chapter 7 Figure 7-14. Unoccupied wheelchair. Figure 7-15. Unoccupied wheelchair. Figure 7-17. Occupied wheelchair. (Adapted from Goldsmith, S. [2000]. Universal design: A manual of practical guidance for architects. London: Elsevier.) Figure 7-16. Unoccupied wheelchair. Measurements to note in Figure 7-15: Ô L = Length of wheelchair Ô H = Height of wheelchair Measurements to note in Figure 7-16: Ô W = Width of wheelchair Ô H = Height of wheelchair Measurements to note in Figure 7-17: Ô L = Length from back of rear wheel to the front of the footplate or person’s toe (edge that protrudes) Measurements to note in Figure 7-18: Ô W1 = Width of the wheelchair without the person’s hands on the wheel rims; width from wheel rim to wheel rim Ô W2 = Width of the wheelchair; person’s hands on the wheel rims; width measurement to include widest point (knuckles or elbows protruding) It must be noted that some people with a disability have different body shapes, reach, and movement patterns that do not correlate with these diagrams. In such cases, an individualized measurement approach is required. Ô W1 = Width of the wheelchair without the person’s hands on the wheel rims; width from wheel rim to wheel rim Measurement for Mobility Equipment in Use Ô W2 = Width of the wheelchair; person’s hands on the wheel rims; width measurement to include widest point (knuckles or elbows protruding) Mobility equipment moves between stationary states corresponding with parked or stored positions; the path between these positions is straight, Measuring the Person and the Home Environment 157 Figure 7-19. Measuring the occupied wheelchair width. Figure 7-18. Occupied wheelchair. (Adapted from Goldsmith, S. [2000]. Universal design: A manual of practical guidance for architects. London: Elsevier.) Figure 7-20. Measuring the occupied wheelchair length. curved, or partly both. Parked positions that typically need to be considered in relation to equipment motion include those in showers and at toilet pans, hand basins, and kitchen sinks. Measuring for Straight Paths or Curved Paths of Large Diameter For the cross-sectional dimensions of straight paths or curved paths of large diameter, such as height and width of paths, the minimum required dimensions and the techniques for obtaining them may be the same as those for stationary occupied equipment. Curved paths of large diameter can be treated similarly to straight paths because the relevant outermost points on the occupied equipment will tend to be the same in each case. Therapists should be aware that even if path widths can be determined from the dimensions of stationary equipment, widths will need to be increased for typical imperfect control of equipment and hence avoidance of damage and injury. The additional width will need to be estimated or measured by trial and error using techniques discussed later. Additionally, for long footpaths and corridors (and for lifts), space might be required for a 180-degree turn, for which the required space will need to be established as discussed later. Measuring for Maneuvering and Curved Paths of Small Diameter The term maneuvering here denotes motion composed of turns with a very small diameter, including reversing turns that involve alternating forward and backward motion. Determining the size of spaces from measurements of stationary equipment is much more difficult for maneuvering and for curved paths of small diameter than it is for straight travel or curved paths of large diameter. This is because the relevant outermost points tend to be different between the two cases and different for different maneuvers. This is illustrated in Appendix B. The detail in the appendix illustrates that, for four types of 90-degree clockwise 158 Chapter 7 Figure 7-21. Measuring the height of the toe above floor level. Figure 7-22. Measuring knee height above floor level. turns, three different pairs of outermost points determine the width of the space. Because of the complexity of estimating or calculating space for equipment in motion by using measurements of the occupied equipment when they are stationary, it may be much better to measure the spaces occupied by the moving equipment. Two methods for determining the size of space for maneuvering are recording the space traversed on the floor by the moving equipment and then measuring that space, and using barriers as measuring datums between which to measure dimensions of the space. In this latter method, the barriers act as a large measuring tool with adjustable reference planes (datums). The first method does not require barriers; however, barriers add greater realism and possibly greater accuracy to path recording. For the second method, the barriers are incrementally positioned closer to or farther away from the occupied equipment until the client reports or it is observed that the maneuver occurs in the least space with reasonable ease and without touching the barriers. The space traversed by moving equipment can be recorded using a physical scale model fitted with pens (Hunter, 2003a); actual occupied equipment fitted with pens (Ringaert, Rapson, Qiu, Cooper, & Shwedyk, 2001); sonar or video recording devices; pressure-sensitive mats that record electronically or physically (Hunter, 2003b); or computer simulation (Han, Law, Latombe, & Kunz, 2002; Hunter, 2005). For home modifications, these techniques may be too costly and time consuming. Furthermore, physical scale modeling and computer simulation require additional information for estimates about spatial allowances for steering control and navigational judgments by equipment users and about the space occupied by people assisting the user (this additional information would need to be obtained by one of the other methods using actual equipment). Barriers as a Measuring Tool The use of incrementally adjustable barriers as a measuring tool is a simple method suitable for home modifications. The barriers may be simplified ones (Hunter, 2002), replicated or actual barriers (Steinfeld, Schroeder, & Bishop, 1979), or simple panels as previously noted. An advantage of this method is that knowledge of the dimensions of the occupied or unoccupied equipment or of equipment users’ steering control or navigational judgments is not required, although the latter may need to be Measuring the Person and the Home Environment 159 Figure 7-23. Imperfect turn around bollard. (Reprinted with permission from Rodney A. Hunter.) specified as part of the testing. The method can also readily incorporate the contribution to space requirements of people assisting the equipment user. Measuring may be easier in premises other than the home but may incur logistical difficulties. Measuring may be more feasible in homes if chalked or taped lines on the floor are used instead of moveable panels. If the maneuvering overlaps lines, they can be replaced or augmented by lines alongside them. Care is required to identify whether any part of the occupied wheelchair overlaps the lines. Understanding an Individual’s Space Needs A measuring project for a home is facilitated by first learning how clients move about in their homes, in particular, how areas are approached, activities in them carried out, and the areas departed. For example, when examining the space requirements of a wheelchair user during toileting, observations need to be made of the client’s capacity to wheel to the room, negotiate the doorway, wheel beside or in front of the toilet, transfer on and off the toilet, access and use the hand basin, and then depart from the area. Movement must be possible without having to move furniture or inflicting damage to walls and doorways and other fittings and fixtures. Consideration may also need to be given to the circumstance where more than one wheelchair is used in the home and whether a wheelchair may be changed in size or type after a period. The equipment that requires the greatest space will therefore probably have to take priority over the others in determining space requirements. The Geometry of Curvilinear Travel Understanding the basic geometry (shapes) of curvilinear travel can be useful for measurement projects. The geometry of curvilinear travel is infinitely variable, but some generalizations are possible. In terms of geometry of travel, common types of wheelchairs and scooters are rear-, mid-, and frontwheel-drive wheelchairs and three- and four-wheel scooters. The geometry of scooter travel is similar to tricycles. The type, size, and shape of wheelchairs determines the least possible space required for them; that is, the space required by them as if they were perfectly driven. There can be a pronounced variation between the spaces traversed by different wheelchairs in terms of sizes and shapes and the location of the spaces in relation to the physical feature with which the turn is associated. Curvilinear travel and maneuvers are typically composed of circular turns and noncircular turns such as hyperbolic-shaped turns (the diameter of the turn path becomes successively bigger or smaller throughout the turn). Each of these turn types may be performed as a single motion in the one direction (clockwise or counterclockwise) or as several motions in different directions as occurs in reversing turns. Most maneuvers involve reversing turns of varying complexity. A predominantly single-motion turn can also incorporate a very small reversing turn (Figure 7-23 shows an imperfect turn around a bollard). Motion at a feature can be regarded as a single maneuver, with start and end stationary positions (even though the equipment may be stationary for 160 Chapter 7 a barely measurable period). Approach and departure travel paths also need to be considered to this maneuver because of their contribution to the overall size of space required at the feature and, importantly, because of their influence on the type and therefore size and shape of the space traversed by the maneuvering. Of relevance to the conventional incorporation of right-angled room layouts in buildings is categorization of compact turns of wheelchairs and scooters in terms of a small number of fundamental types. These are 360-, 180-, and 90-degree turns about the midpoint between the drive wheels of wheelchairs; 90-degree turns about either of the drive wheels of wheelchairs; 360-, 180-, and 90-degree turns about the center of the smallest turning circle of scooters (or tricycles); and noncircular turns. Reversing turns can be categorized as 180-degree turns, of which two types can also be differentiated, although reversing turns are really just successive 90-degree turns. Examples of these fundamental types of turns are indicated and further explained in Appendix B. In reality, the variety of turns employed by wheelchair and scooter users, knowingly or otherwise, is infinite. Nevertheless, knowledge of the fundamental types of turns allows an approximation or initial estimation of maneuvering space requirements. Turns of 360 degrees are applicable to general living areas or other spaces in which there is no predominant direction of travel. Spaces for 180-degree turns are smaller than spaces for 360-degree turns and may be acceptable to clients. Turns of 90 degrees apply to doorways and corners of corridors or footpaths. The fundamental turns should not be regarded as absolute bases for determining sizes and shapes of spaces for equipment use. Rather, they should be used as initial approximations in designing, or for the initial setup of panels or floor lines for maneuvering trials. Whether the size of spaces should be determined with reference to any one of the fundamental turns will be a matter of trial and error and collaboration with the client. Procedures for Measuring Maneuvering Spaces 360-Degree Turn Test The occupied equipment is positioned in a corner formed by fixed panels or the walls of a room; two relocatable panels or other barriers or floor lines are placed parallel and opposite these walls to enclose the occupied equipment. Starting from a position facing one of the fixed elements, the person operating the equipment then performs a 360-degree turn. If space is insufficient or excessive, the moveable elements are gradually and successively positioned until the turn can be performed without the equipment or the person’s body touching the walls or overlapping the barriers (International Organization for Standardization, 2005) as per Figure 7-24. 180-Degree Turn Test A fixed panel or wall of a room is used as one side of a corridor, and a moveable panel or other barrier or line marking is placed parallel with it as the other side. Starting from a position between the panels and facing along the corridor, the person operating the equipment performs a 180-degree turn. If space is insufficient or excessive, the moveable element is gradually and successively positioned until the turn can be successfully performed. Two trial procedures should be conducted: one where the 180-degree turn is performed as a single turn in a clockwise or counterclockwise direction or both, and the other as a reversing turn as illustrated in Appendix B. Two reversing turn trials should also be undertaken: one where the initial motion is forward and one where the initial motion is backward as shown in Diagrams 9 and 10 in Appendix C. 90-Degree Turn Test Two types of 90-degree turns should be tested: around the corner of a corridor (or through a doorway into a corridor) or from a corridor through a doorway. Instead of or as well as the corridor corner test, turns around the outside and inside of wall corners (that is, not in a corridor) will yield additional information. The procedures are similar to those for 360- and 180-degree turns. For the outside and inside corner tests, the wheelchair users should be asked to stay as close to the corner as possible. There are a large number of other configurations and maneuvers that might also need to be tested. Specifying Circular or Noncircular Turns Though it is easy to distinguish between circular and noncircular turns on a drawing for 180-degree reversing turns and 90-degree turns, actually testing separately for these turns will probably be impracticable. What is important is that clients employ whatever strategy is most effective for them in performing turns in as little space as comfortably possible. Weight The weight of the person and his or her equipment can be measured using specifically designed Measuring the Person and the Home Environment A B C D Figure 7-24. Commencing a 360-degree turn. 161 162 Chapter 7 weight scales. Alternatively, the client might be able to report his or her own weight at the time of the home visit, and the weight of the equipment may be documented in the technical specifications available from medical equipment suppliers. This information is important in designing ramps and other structures that need to take the load of the person and his or her equipment, and these weights can be particularly important if the client has bariatric equipment requirements. Recording Measurement Information The measurement information can be recorded in a form similar to Table 7-1, which has been compiled from figures and information from Goldsmith (1976, 2000); Pheasant and Haslegrave (2006); Steinfeld, Maisel, and Feathers (2005); and Steinfeld et al. (2010). Measuring Features in the Built Environment The aspects measured in the environment depend on the nature of the environmental barrier or issue that is presented at the time of the home visit. Therapists measure the observable aspects of the home environment to gather information to assist in the redesign of the area. Environmental features typically measured include the length and width of rooms and the height and location of fixtures and fittings. Distances and gradients can also be measured when the person’s ability to mobilize around the property needs to be addressed. In addition, therapists may wish to establish noise and lighting levels throughout the home and the force required to open and close doors and drawers. At times, it might be necessary for a technical specialist to visit the home to undertake more formal and specific measurement activities, particularly in cases where major modifications are to be undertaken or the therapist does not have the skill, training, and technical expertise in specific measurement techniques. For example, a builder can be engaged to measure the levels of external areas around the home in order to design a ramp, or an acoustic engineer might be required to measure the sound levels of a household. The following section provides information on the various tools and resources used to measure features in the built environment. Dimensions Dimensions include measures of length, width, and height and are taken using key reference points within the built environment. These reference points are conventions documented in publications such as access standards for consistency and to establish the start and finish of a measure. For example, the reference point for measuring dimensions of walls is the finished face of the wall (i.e., the plaster sheeting or tiling, which can be placed on the face of the plaster sheet). The reference points for doorways are in the inside face of the door jamb on the latch side of the doorway and the face of the door leaf in the 90-degree open position. The top of the hand rail or grab bar is the reference point for measuring their height above the nosing of the stair or floor. The center of the operable part of the power or light switch is the reference point for measuring the height above the bench or floor. The center line of the toilet is the reference point for measuring the distance of the toilet from the side wall. Figures 7-25 through 7-28 provide examples of reference points in the built environment that are used during the measurement process. A number of resources are available to guide therapists in measuring specific features in the built environment and identifying specific reference points. Illustrations of the location of reference points and corresponding dimension lines can guide measurement practice, and they can be found in resources such as the Comprehensive Assessment and Solution Process for Aging Residents (Extended Home Living Service, n.d.), which provides detailed illustrations of the essential measurements for a range of architectural features important to home modifications, such as stairs at entrances and within the home (Figures 7-29 through 7-32). A range of tools are used to measure dimension as illustrated in Figure 7-33. The most commonly used tools to measure dimensions are the tape measure, distance meter (Figure 7-34), and stud finder (Figure 7-35). A tape measure should: Ô Be at least 16-ft (5,000-mm) long to measure features in the residential environment, such as the length and width of the room and the height of the ceiling Ô Be made of metal rather than plastic or woven plastic to ensure that this does not stretch, twist, buckle, or sag and result in inaccurate measurements Ô Have markings that can be clearly understood and recognized (Bridge, 1996) Ô Have a wide tape blade so it can be aligned to a feature in the home without sagging When measuring: Ô A tape measure is easier used on flat surfaces and in an environment that is well lit. Measuring the Person and the Home Environment 163 Table 7-1. Measuring a Person and His or Her Mobility Equipment FEATURE MEASUREMENT HOUSING FEATURES (EXAMPLES) BUILT ENVIRONMENT DIMENSION REQUIRED General Measurements of the Person—Seated or Standing Height Clearance below overhead obstructions Width Width of doors, hallways Depth Depth of shower seat Height above floor level standing—Head height Height of window awnings Height above floor level seated—Head height Height of window sills, mirror above the vanity Height above floor level standing—Shoulder height Height of fittings, fixtures Height above floor level seated—Shoulder height Height of fittings, fixtures Height above floor level seated—Knee height Height to the underside of sink Popliteal height—Seated Height of toilet, shower seat Hip width Width of shower seat Hand width Diameter of rails Popliteal crease to back of buttocks Depth of shower seat Height above floor level standing—Eye height Height of window sills, mirror above the vanity Height above floor level seated—Eye height Height of window sills, mirror above the vanity Functional Reach Range Measurements of the Person—Seated or Standing Distance between chest and edge of fingertips— Horizontal reach Width of counters Height above floor level— Forward horizontal reach Height of power point above bench, door handles, light switches, shelving, towel rails Height above floor level— Side horizontal reach Height of power point above bench, height of shelving, width of laundry hub, height of door handles, height of window latches Height above floor level— Forward diagonal (up) reach Height of hanging rail, clothesline, power points, or cupboards, etc., with straight-on approach Height above floor level— Forward diagonal (down) reach Height of power points or cupboards, etc., with side-on approach Height above floor level— Side diagonal (up) reach Height of hanging rail, clothesline, power points, or cupboards, etc., with straight-on approach Height above floor level— Side diagonal (down) reach Height of power points or cupboards, etc., with side-on approach (continued) 164 Chapter 7 Table 7-1. Measuring a Person and His or Her Mobility Equipment (continued) FEATURE MEASUREMENT HOUSING FEATURES (EXAMPLES) Unoccupied and Occupied Equipment Measurements Unoccupied Device Width of device (unfolded) Space for storing device Width of device (folded) Space for storing device Length of device Space for storing device Height of device Space for storing device Occupied Device Width of device (unfolded) Circulation space required at doorways off corridors, corridor width, ramp width, path width, area required between kitchen counters and in front of appliances Length of device (unfolded) Circulation space required at doorways off corridors and on ramps that turn 90 to 180 degrees; area required between kitchen counters and in front of appliances Height above floor level— Floor to toe with foot on wheelchair or shower chair footplate Height and depth of toe recesses on cupboards Height above floor level— Floor to knee or thigh (highest point) with foot on wheelchair or shower chair footplate Under sink clearance (bathroom and kitchen) or under breakfast bar clearance Height above floor level— Wheelchair or shower chair seat height To compare to toilet seat height (for side- or front-on transfers) Height above floor level— Floor to wheelchair or shower chair armrest Under counter clearance Height above floor level— Floor to hand on wheelchair control on armrest Under counter clearance Height of hoist legs Under bath clearance Width of hoist legs with legs closed Under bath clearance Turning circles: Circulation space required at doorways off corridors and on landings on ramps that turn 90 or 180 degrees; area required between kitchen counters, within a bathroom and bedroom, in front of appliances and cupboards, and at mailbox, clothesline, and garden shed areas 90-degree turn 180-degree turn 360-degree turn Weight Weight of person Weight load for lift capacity Weight of device Structural weight load for ramps Other BUILT ENVIRONMENT DIMENSION REQUIRED Measuring the Person and the Home Environment 165 Figure 7-25. Measuring the center line of the toilet. Figure 7-26. Measuring the clearance of the doorway. Figure 7-27. Measuring the datum point of the toilet. Ô The area should be measured at least two or three times to ensure the information is accurate and to establish the average measurement. Ô Wall lengths should be measured at floor level and at 35.5 in/900 mm above floor level because walls are not always straight (Bridge, 1996). A battery-powered distance meter can be used to measure horizontal or vertical distances in rooms. The distance meter is particularly useful when measuring distances greater than 197 in/5 m (e.g., example, a vertical clearance such as floor to ceiling or between two walls in a large room). Many distance meters incorporate a laser pointer to assist in accurately positioning the beam for measurement. Figure 7-28. Measuring the datum point of the vanity basin. 166 Chapter 7 Figure 7-30. Measuring the clearance of a doorway with a sliding door. The measurement on top of the line is in inches (imperial measurement), and the measurement below the line is in millimeters (metric measurement). Figure 7-29. Measuring the clearance of a doorway with a swing door. The measurement on top of the line is in inches (imperial measurement), and the measurement below the line is in millimeters (metric measurement). Figure 7-32. Measuring the height of a handrail above the nosing of a step. The measurement on the top of the line is in inches (imperial measurement), and the measurement below the line is in millimeters (metric measurement). Figure 7-31. Measuring the height of a handrail above the surface of a ramp. The measurement on the top of the line is in inches (imperial measurement), and the measurement below the line is in millimeters (metric measurement). Figure 7-34. Using a distance meter to measure the length of a room. Figure 7-33. Tools to measure dimension. Measuring the Person and the Home Environment 167 Figure 7-36. Diagram showing studs on a wall. Figure 7-35. Tool used to locate studs. When using a distance meter, ensure: Ô The tool sits squarely on a wall or floor surface. Ô The beam is aimed at a solid feature, such as a wall or ceiling, and no plants, windows, wall furnishings, lights, or other floating matter interfere with the line of sight. Ô Three sets of measurements are taken and an average established to ensure the accuracy of the data (Bridge, 1996). Locating Structural Framing The safe use of load-bearing aids in the home such as grab bars and hoists typically requires that they be fixed to wall or ceiling structural members, such as wall studs or ceiling joists. Wall studs are vertical structural framing members that occur at intervals of typically 18 in (450 mm) or 24 in (600 mm) and to which the wall lining or sheeting is fixed (Figure 7-36). Where such members do not occur or are structurally inadequate for the aid, a new structural member will need to be installed within the framing or on the face of the wall or ceiling lining but fixed to the underlying structure. Therapists may wish to determine the feasibility of soundly fixing load-bearing aids in the preferred locations for the client and therefore to identify the location of framing members. Though this can assist in designing the recommendation, it is preferable that the tradesperson undertake an accurate assessment of the position and integrity of the structural supports behind the wall facings. For this reason, therapists might locate the position of studs but not include this information in their drawings so that the builder retains responsibility for determining the capacity of the wall structure to support the grab bar in the recommended location. Framing members can be found by: Ô Looking for joints in wall or ceiling linings that indicates the direction of the framing members (they will typically run at right angles to the joints) Ô Looking for lines of nails or screws Ô Tapping along wall or ceiling linings to hear changes from hollow to solid knocking sounds (this may be ineffective for dense linings) Ô A magnetic or electronic stud finder (for timber studs) Ô A magnet (for steel studs) Greater accuracy can be achieved by using two or more of these methods. A knowledge of the era in which the home building occurred and the typical spacing and thickness of framing members will expedite finding the framing members. Electronic stud finders may be much more useful than magnetic ones. There are several different types of electronic stud finders, including ones that can be used for timber or metal framing and that identify the presence of electrical wiring and metal piping. Tapping and stud finders should be employed along a line at right angles to the direction of the framing member. This will also confirm responses of the stud finder to electrical wiring and metal piping. For example, to find a wall stud, the stud finder should be moved horizontally until a stud is found. The method should continue past the stud or else be repeated in the opposite direction so that the thickness and hence midline of the stud can be 168 Chapter 7 Figure 7-37. Tools to measure gradient. Figure 7-38. Measuring the gradient of the shower floor. capacity of wall and ceiling structures for the fixing of grab bars, hoists, and other aids. Gradient Figure 7-39. Measuring the verticality of the wall. established. The procedure should be repeated at two or more heights above the floor because the wall studs will not be perfectly parallel with each other or at right angles to floor and to avoid false readings from noggings between studs and electrical wiring or metal piping. Noggings are short horizontal members located between and at approximately the midheight of studs; they impart greater rigidity to framed walls. For ceilings, care is required to ensure that ceiling battens are not detected instead of ceiling joists. Ceiling joists are small-sectioned members that are fixed to the underside of ceiling joists to achieve, among other things, greater planarity of the ceiling lining (the ceiling lining is fixed to the ceiling battens, not the joists). Therapists should bear in mind that noggings and ceiling battens are unlikely to be adequate for fixing load-bearing aids. It would be prudent for therapists to seek confirmation from design or construction professionals about the suitability and load-bearing The gradient, or slope, of surfaces influences the ability of a person to walk or wheel around the home and whether water will accumulate on the surfaces. Obtaining measurements of gradients of ramps, paths, landings, or shower floors enables comparison with design guides and standards and thereby the determination of the suitability of the inclined surfaces for ease and safety of movement and the stationary positioning of equipment. Two methods for determining gradients can be differentiated by trigonometric calculation and by use of a gradient measuring device (Figures 7-37 through 7-39). To determine gradients by trigonometric calculations, at least two dimensions are required: the horizontal and vertical dimension or either of the horizontal or vertical dimensions plus the inclined length. Part of the horizontal or inclined length and the corresponding vertical dimension can be used to calculate the gradient, but this will tend to be less accurate than using the whole length of the inclined surface. Similarly, for greater accuracy, using the vertical dimension with either the horizontal or inclined length is preferable for calculations than use of the horizontal and inclined lengths. A gradient measuring device indicates the angular difference of a surface with respect to the vertical. Using a gradient measuring device is generally quicker and may be more convenient to determine gradients than by trigonometric calculation. Measuring devices are available in various forms and are called by a variety of names, including clinometers, slope gauges, and gradient meters. Two commonly available devices are the clocklike device whereby the gradient is indicated by a pointer with respect to Measuring the Person and the Home Environment 169 Table 7-2. Conversion of Angle Data to Gradient Ratios (Using trigonometric calculations - tan = opposite/adjacent) INCLINE IN DEGREES GRADIENT RATIO OF 1:X EXAMPLES OF USE OF GRADIENTS IN RELATION TO ARCHITECTURAL FEATURES (MINIMUM GRADIENT) 7.13 1:8 Ramp 5.71 1:10 4.76 1:12 Ramp 4.09 1:14 Ramp 2.86 1:20 Path 1.91 1:30 1.43 1:40 1.15 1:50 0.95 1:60 0.82 1:70 0.72 1:80 0.64 1:90 0.57 1:100 0.27 1:200 Landing, sideways slope of a path, ramp, car park area, or landing 1:50 to 1:60 shower recess floor 1:70 to 1:80 bathroom floor to the edge of the shower recess Adapted from “A cheat sheet for converting angle data to gradient ratios”: Trigonometric calculations provided by Tanner, D., Senior Mechanical Engineer of ABB Engineering, 1996 (as cited by Bridge, C. (1996). In Environmental measurement: A handbook for the subject OCCP 5051. The University of Sydney, School of Occupational Therapy and Leisure Sciences, Faculty of Health Sciences, Cumberland Campus, Lidcombe, Australia. (Chapter 7, pp. 32). a perimeter scale and, increasingly commonly, the electronic digital gradient indicator. The former device is commonly smaller and may therefore need to be used with a straight edge; it is also prone to inaccurate readings from parallax error. Units of measure of these devices are degrees, percentage, or both. Interconversion of degrees and percentages, or of either of these and ratios (e.g., 1 in 20 or 1:20), is readily obtainable from websites or by using published tables such as that in Table 7-2. Measurement procedure: Ô Take at least three sets of measurements to ensure they are accurate and to gain an average reading. Ô Ensure the measuring devices are well illuminated and that they are appropriately aligned on the surfaces whose gradients are to be measured. For example, to determine the verticality of walls, the device should be aligned vertically; to determine the gradient of a ramp, the device should be aligned in the direction of travel (or the intended or most common direction of travel) and at right angles to it to establish the cross-fall; to establish the gradient of a four-sided shower floor with four facets sloping to a drainage outlet, the device should be aligned along the shortest distance between the drain and each of the sides (i.e., along a line from the center of the outlet and at right angles to each side). Irregularity of surface gradient is not uncommon and needs careful consideration. Obtaining several measurements and using a straight edge enables an average or overall gradient to be determined. However, any localized gradients should also be measured because gradient irregularities can impede travel on inclined surfaces. Moreover, two relevant lengths, or scale, of localized gradient might need to be considered: that over which a wheel has to travel in, say, part of its revolution, or the length corresponding with the wheel base of wheeled equipment (the distance between the ground contact points of front and rear wheels). Three gradients may therefore need to be obtained: that of the steepest “small” irregularity on the inclined surface, that of the steepest “medium” irregularity on the inclined surface, and the overall or average gradient. 170 Chapter 7 Figure 7-40. Tool to measure lighting levels. Figure 7-42. Measuring door force. Gradient is particularly relevant in the design of ramps. Instructions on how to determine the location and configuration of external ramps can be found in Appendix D. Light Lighting can facilitate a person’s ability to see. However, if it is not set at the correct level, it can impede function and eventually damage vision (Spaulding, 2008b). In an indoor environment, lighting is provided by both ambient and artificial light. Ambient light can vary, depending on the season of the year and the time of day. It generally comes from outside through windows, whereas artificial light is emitted from fittings such as light bulbs (Spaulding, 2008b). Lighting must be provided, by natural and/or artificial light sources, so that there is sufficient illumination of the activity area but without causing glare. People vary in their requirements for levels of illumination and in their sensitivity to glare. To determine whether lighting levels are adequate, therapists examine lighting levels in different areas of the home where people mobilize and Figure 7-41. Tool used to measure force. undertake specific tasks. Measurements are generally taken on stairs and ramps; in entries and hallways; and in kitchens, living areas, bathrooms, and bedrooms. A light meter is used to measure the level of lighting, and this is recorded in lux (Figure 7-40). Recommended lux measures for various areas of the home may be found in design guides and standards. Further information on suitable lighting conditions for people with specific vision impairments should be sought from vision impairment experts or organizations such as Lighthouse International (www. lighthouse.org). When measuring: Ô Take three readings to ensure data are reliable and to establish an average measurement. Ô Take readings at different times of the day when activities are more likely to occur in the area to ensure a true reading of variation in lighting. Ô Be aware that the accuracy of these readings can vary as a result of daylight and adjacent reflective surfaces or if the batteries are low. Ô Place the light meter on the work or viewing surface. For example, if the task was writing at a desk, the light meter would be placed flat on the desk. Where the task is viewing an item on the wall, the light meter would be placed vertically on the wall (Bridge, 1996). Force Force is required to open, hold, or swing features such as doors, drawers, and windows. Although door-force gauges are mainly used to measure forces required to push moving features in the public access arena, they can also be used in the home environment if people are experiencing difficulty with specific features (Figures 7-41 and 7-42). Springload measures are used to measure the amount of force required to open features such as drawers. These gauges measure force in newtons and/or pounds. Measuring the Person and the Home Environment When measuring push force: Ô Place the device at the point on the door where the force is to be applied. Ô Move the feature using force uniformly and slowly, in a consistent horizontal/vertical/ oblique direction as required. Ô Take three sets of measurements to ensure reliability and to get an average measurement (Bridge, 1996). When measuring pull force: Ô Position the hook in the middle of the handle on the drawer where pull force is applied. Ô Use a perpendicular line of action to gain a reading at the point of maximal force to stretch the load measure. Ô Take measurements three times to ensure reliability and to get an average reading (Bridge, 1996). Sound Sound is a combination of either simple or complex waveforms (Spaulding, 2008b) and, when unwanted (now called noise), can interfere with how a person manages in the home environment. Factors affecting the individual’s response may relate to sound level, duration of exposure, or frequency of the sound (Spaulding, 2008b). Sound-level meters are used to measure noise levels. The formal testing of sound in the home environment is usually completed by an ergonomist or acoustic engineer rather than a therapist. Recording Measurements of the Home Environment Occupational therapists can develop specific forms to record the information gathered using tools to measure the built environment or add the information into existing forms such as the Comprehensive Assessment and Solution Process for Aging Residents (Extended Home Living Service, n.d.). General Considerations in Measurement Practice There may be changes in a person’s measurements and capacity as he or she ages, which might affect his or her posture, height, hand/arm and leg strength, body breadth, visual acuity, and weight. Over time, people might experience changes in their health and capacities and alterations in the type or dimensions of the equipment or level of caregiver support they use. Therapists need to anticipate 171 possible changes, accommodate variability in individual performance and household structure, and adjust measurements accordingly. In some situations (e.g., with a growing child) therapists will need to plan regular reviews as the situation changes and new equipment is required. Factors Influencing Accuracy of Measurement A range of factors influence occupational therapy measurement practice, including the following: Ô The competence of the person taking the measurements Ô Tool selection use and training Ô Time allocated for the visit Ô The nature of the measure or feature Ô The condition of the measurement tools Ô The timing of measurement The Competence of the Person Taking the Measurements Measurement error is described as having four components: error in the measuring equipment itself, error in locating the landmark or reference point, error in standardizing the posture of the person or positioning of the measuring tool, and error in the client’s understanding or response to instructions on adopting the required posture or obstacles in the environment (Pheasant & Haslegrave, 2006). To prevent measurement error, occupational therapists need to be competent and well trained in measurement practice. This includes understanding measurement practice, knowing how to take accurate measurements, and recording measurements in a meaningful format. Therapists should ensure that the measurement process generates consistent, quality information by using reliable tools and being comprehensive when gathering and documenting data. Tool Selection, Use, and Training Therapists can use various sophisticated devices and techniques to measure body dimensions, including calipers, tape scales, weight scales, protractors, and computer-aided anthropometric tools. Occupational therapists generally do not have access to such equipment and will need to observe the client and use a tape measure to measure basic body dimensions, reach range, and clearances. For analysis, therapists could also take digital footage of the client reaching and moving. Alternatively, therapists might want to undertake training in specific 172 Chapter 7 measurement techniques to enhance their competencies in the area. The environmental measurement tools selected by therapists generally provide operating instructions. Although this information might be included when tools are first purchased, it is important that the therapist checks with people providing any technical design or building advice on how they measure features in the environment as there is variation in practice within the design and construction industry. For example, a tape measure is used to check the height and size of the light switch plate, but the therapist needs to confirm the reference point for light switches with an electrician, designer, or building professional. Time Allocated for the Visit Therapists must allocate sufficient time for taking measurements during the visit. This includes time for measuring the client, their equipment, and carer, as well as the environment. The therapist will need to allocate 1 to 2 hours to observe and measure the client, the equipment, their carer, and the environment depending on the extent of modifications required. If time is limited at the initial visit, a subsequent appointment might be required to complete the measurement process. If there are insufficient resources such as time and money to undertake repeated measures, therapists are to make sure the method chosen is valid, has been tested rigorously, and compares with other measures (Steinfeld & Danford, 1997). This requires an understanding of which tool and technique to use in relation to the factors to be measured in the person-environment fit. It can be time consuming to measure all dimensions of the existing room, person, caregiver, and all equipment used in the house; however, taking thorough measurements at the initial visit can reduce the need for a repeat visit and avoid the difficulties faced when working with incomplete information. The Nature of the Measure or Feature The type of measurements taken by therapists can include, for example, static measurements of the client standing and using various postures to reach or bend or dynamic measurements of the client completing a movement to determine the space or clearance required for the activity. Some features, such as the diameter of grab bars or handrails or the width of lips on baths, are difficult to measure accurately due to the round surface. The Condition of the Measurement Tools For accuracy and ease of use, measurement tools need to be kept in good working order, be regularly cleaned or calibrated, and, for batterypowered devices, batteries regularly checked or replaced. Timing of the Measurement A person’s performance can vary between different times of the day, week, or season, depending upon factors such as fatigue, temperature, and the level and type of illuminance of the environment. Variance in posture can also occur (Pheasant & Haslegrave, 2006). Measurements of performance and posture may therefore also vary, and this should be considered in deciding upon the time and/or frequency of home visits for measuring purposes. For example, it may be preferable to visit the client at the beginning of the day when they have the most energy for activities, or the therapist may choose to visit when the client requires considerable assistance during performance of activities and to gather measurements. There may be variation in space requirements for the client, their equipment, and carer during activities with these two circumstances that need to be considered in planning the home modification. Variations in measurement may need to be recorded, with specific reference to those factors influencing the data (Dunn, 2005; Law & Baum, 2005; Law, Baum, & Dunn, 2005). Knowledge of this variation can lead to an enhanced understanding of the individual’s specific situation and ensure that the modification is designed to work for the client at all times (Dunn, 2005). CONCLUSION This chapter has provided the reader with information on the role of measurement in improving the person-environment fit. The contribution of anthropometrics, biomechanics, and ergonomics to measurement practice has been described in addition to how each is used by occupational therapists to inform home modification practice. The value of taking an individualized approach to measuring clients and their home environment has been emphasized, and the range of tools and resources that are available to assist this process has been described. Also discussed is the importance of considering the range of factors that can affect the measurement process. Although occupational therapists need to work collaboratively with building industry stakeholders to understand the building industry’s approach to measurement of the environment, it is recognized that design and construction professionals do not have the expertise to undertake such a technical Measuring the Person and the Home Environment and detailed approach in isolation from therapists. Occupational therapy training in the use of various tools and measurement techniques continues to be required for therapists working in home modifications to ensure that clinical reasoning about changes to the home environment is based on sound evidence rather than guesswork and to ensure an optimal home modification solution for the client. REFERENCES Australian Safety and Compensation Council. (2009). Sizing up Australia: How contemporary is the anthropometric data Australian designers use. Commonwealth of Australia. 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(1999). Rising from sitting in elderly people, part 1: Implications of biomechanics and physiology. British Journal of Occupational Therapy, 62(1), 36-42. Law, M., & Baum, C. (2005). Measurement in occupational therapy. In M. Law, C. Baum, & W. Dunn (Eds.), Measuring occupational performance: Supporting best practice in occupational therapy (pp. 3-20). Thorofare, NJ: SLACK Incorporated. Law, M., Baum, C., & Dunn, W. (2005). Measuring occupational performance: Supporting best practice in occupational therapy. Thorofare, NJ: SLACK Incorporated. Panero, J., & Zelnik, M. (1979). Human dimension and interior space: A sourcebook of design reference standards. London: Architectural Press Ltd. Paquet, V., & Feathers, D. (2004). An anthropometric study of manual and powered wheelchair users. International Journal of Industrial Ergonomics, 33, 191-204. Pedretti, L. W. (1996). Occupational performance: A model for practice in physical dysfunction. In L. W. Pedretti (Ed.), Occupational therapy: Practice skills for physical dysfunction (pp. 3-12). St. Louis, MO: Mosby. Pheasant, S. (1987). Ergonomics—Standards and guidelines for designers. Suffolk, UK: Richard Clay Ltd. Pheasant, S. (1996). Bodyspace: Anthropometry, ergonomics and the design of work. London: T. J. Press. Pheasant, S., & Haslegrave, C. M. (2006). Bodyspace: Anthropometry, ergonomics and the design of work (3rd ed.). London: Taylor & Francis Group. Ringaert, L., Rapson, D., Qiu, J., Cooper, J., & Shwedyk, E. (2001). Determination of new dimensions for universal design codes and standards with consideration of powered wheelchair and scooter users. Manitoba, CA: Universal Design Institute. Sanford, J. A. (2012). Universal design as a rehabilitation strategy. New York: Springer Publishing Company. Spaulding, S. J. (2008a). Basic biomechanics. In K. Jacobs (Ed.), Ergonomics for therapists (pp. 94-102). St. Louis, MO: Mosby. Spaulding, S. J. (2008b). Physical environment. In K. Jacobs (Ed.), Ergonomics for therapists (pp. 137-150). St. Louis, MO: Mosby. Standards Australia. (1994). Glossary of building terms. Sydney, Australia: Author. Stein, F., Soderback, I., Cutler, S. K., & Larson, B. (2006). Occupational therapy and ergonomics: Applying ergonomic principles to everyday occupation in the home and at work. Chichester, West Sussex, UK: Whurr Publishers, Inc. 174 Chapter 7 Steinfeld, E. (2004). Modeling spatial interaction through full scale modeling. International Journal of Industrial Ergonomics, 33, 265-278. Steinfeld, E., & Danford, S. (1997). Environment as a mediating factor in functional assessment. In S. S. Dittmar & G. E. Gresham (Eds.), Functional assessment and outcome measures for the rehabilitation health professional (pp. 37-56). Gaithersburg, MD: Aspen Publishers. Steinfeld, E., Lenker, J., & Paquet, V. (2002). The anthropometrics of disability. Retrieved from http://www.ap.buffalo.edu/idea/ anthro/the%20anthropometrics%20of%20disability.pdf Steinfeld, E., & Maisel, J.L. (2012). Universal design: Creating inclusive environments. Hoboken, NJ: John Wiley and Sons. Steinfeld, E., Maisel, J., & Feathers, D. (2005). Standards and anthropometry for wheeled mobility. Buffalo, NY: Center for Inclusive Design and Environmental Access (IDEA), School of Architecture and Planning, University of Buffalo. Retrieved from http://www.ap.buffalo.edu/idea/Anthro/ FinalAccessReport.pdf Steinfeld, E., Paquet, V., D’Souza, C.., Joseph, C., & Maisel, J. (2010). Anthropometry of wheeled mobility: Final report. Buffalo, NY: IDEA Center. Retrieved from http://www.udeworld.com/documents/anthropometry/pdfs/ AnthropometryofWheeledMobilityProject_FinalReport.pdf Steinfeld, E., Schroeder, S., & Bishop, M. (1979). Accessible buildings for people with walking and reaching limitations. Washington, DC: U.S. Department of Housing and Urban Development. Steinfeld, E., Schroeder, S., Duncan, J., Faste, R., Chollet, D., Bishop, M., . . . Cardell, P. (1979). Access to the built environment: A review of literature (pp. 98-128). Washington, DC: US Department of Housing and Urban Development, Office of Policy Development and Research. Drawing the Built Environment 8 Elizabeth Ainsworth, MOccThy, Grad Cert Health Sci and Desleigh de Jonge, MPhil (OccThy), Grad Cert Soc Sci Measuring the built environment is an important part of the home modification process to ensure that there is detail for the planning of environmental interventions. Once measurements have been taken of the existing home environment, this information needs to be put into a format that can be understood by the person approving the recommendations, developing the architectural drawings, or undertaking the modification work. Occupational therapists need to know how to read and use drawings and have an understanding of their basic components in order to communicate effectively with others in the home modification field. Therapists need to know the different stages of plan development and the alternative types of plan views and be familiar with the technical drawing conventions used in the design profession in order to communicate with construction personnel. An understanding of how and when to draw to scale and being familiar with the various types of drawing tools and technologies can enhance the professionalism and credibility of therapists as they work with others in the design and building profession. CHAPTER OBJECTIVES By the end of this chapter, the reader will be able to: Ô Describe the purpose of drawings and concept drawing requirements for occupational therapy home modification reports Ô Recognize the value of knowing how to read drawings and draw using various tools and technologies Ô Describe the range of tools and resources available for developing concept drawings Ô Recognize the importance of clear documentation to inform the work of the design and/or construction professional RECORDING ENVIRONMENTAL MEASUREMENT INFORMATION The Purpose of Drawings Drawings are a means of communicating ideas to all parties involved in the planning, design, and construction of the building represented. These ideas are set out in a pictorial format that incorporates spaces filled with shapes and objects (Housing Industry Association & Illaring Pty Ltd., 2006). Being the language of the building design and construction industry, drawings are used to visualize possibilities, study alternatives, and present design ideas about - 175 - Ainsworth, E., & de Jonge, D. An Occupational Therapist’s Guide to Home Modification Practice, Second Edition (pp. 175-194). © 2019 SLACK Incorporated. 176 Chapter 8 the form and spaces of a building (Ching & Eckler, 2013). To be useful for this purpose, they need to be clear, consistent, easy to comprehend, and free of ambiguity for the reader. Occupational therapy drawings are not architectural drawings because therapists do not have professional training in this field. Rather, therapists develop concept drawings to clearly detail what is required for the home modification and to complement the individual’s background information and the proposed scope of works in their report. Concept drawings describe the basic design and modification elements and approximate dimensions in the current and proposed home environment using basic technical drawing conventions. Depending on the type and complexity of the home modification work, concept drawings can be drawn by hand or developed using basic computer software. Concept drawings differ from architectural drawings, which are more precise and detailed and adhere to strict technical drawing conventions. Concept drawings do not contain the same level of detail, but rather provide an overview of the basic layout of spaces, fittings and fixtures and their associated dimensions. Concept drawings are used to communicate with a broad range of people from a variety of backgrounds and interests in the home modification process. These people include clients, other health professionals, people involved in the design and construction industry, and staff in organizations providing funding for the modifications. Primarily, these drawings are used by occupational therapists to describe clients’ requirements; however, they are often used as the basis of the tendering and quoting process for home modifications where the work is small in size and able to be installed by people who may or may not be registered tradespersons, or for the development of more detailed architectural drawings where home modifications are complex and need to be installed by registered building professionals. Concept drawings can provide a foundation for the following: Ô Communicating the intent of the building work Ô Discussing design and modification proposals and issues Ô Illustrating proposed changes or variations to the building work When minor changes are required to be made to the design, these alterations can be put in writing in a report and noted directly on the drawing; however, if major changes are needed, a new set of drawings is usually developed. This allows the design to evolve and the final option to be documented clearly. Concept drawings also serve as a useful audit tool during and after the home modification works have been completed to ensure that the work has been done as planned by the design and/or building professional. Resources to Assist Drawing Practice Organizations such as the International Organization for Standardization, American National Standards Institute (ANSI), Standards Australia, the British Standards Institution, and the Canadian Standards Association establish common practice across the industry and contribute to the development of rules or manuals for the preparation and presentation of drawing documents. These standards describe the technical drawing conventions used in drawings to denote the overall layout of the design and the various features in the built environment. Textbooks by Bielefeld and Skiba (2013); Ching (2015); Ching and Eckler (2013); Clutton, Grisbrooke, and Pengelly (2006); Thorpe (1994); and Yee (2012) and online resources can also be used to guide occupational therapy drawing practice. These books and online resources include recommendations for drawing practice relating to dimensioning, lines, symbols, abbreviations, scales, layout of drawing sheets, orientation of drawings, architectural conventions for cross-referencing drawings, coordinates, grids, and material representation. They also provide architects, building designers, contractors, and occupational therapists with information about methods of presenting drawings before, during, and after the modification of a building. READING AND UNDERSTANDING DRAWINGS Development of Architectural Drawings Reading and understanding the different types of architectural drawings enables occupational therapists to communicate more efficiently and effectively with design and construction professionals. Once therapists learn the language and practice of the design and construction industry, they can critically appraise plans to assess their suitability in relation to the design needs of their clients (Ashlee, Clutton, Pengelly, & Cowderoy, 2006). This ensures the person-environment fit as described in previous chapters. Drawing the Built Environment 177 There are three types of architectural drawings in home modification practice that therapists are likely to encounter and need to be able to read and understand: sketch design drawings, developed design drawings, and working drawings. Sketch Design Drawings Sketch design drawings are simple or quickly executed drawings representing the essential features of an object or scene. Lacking detail, they are often used as a preliminary study (Ching, 2015). In outline form, these drawings depict the designer’s general intention. They give an overall picture of the scheme but do not show constructional details and are usually prepared early in the development of a design with the aim to give those involved some general information on how things ultimately go together in the bigger picture. These plans indicate space but do not provide significant detail or dimensions. An occupational therapist, architect, or builder might do a range of sketch drawings of a room or area of the house to show the client how the various features might be laid out (Figure 8-1). This type of drawing can stimulate discussion about different design layouts to create the best possible option for the area being built or modified. Figure 8-1. Sketch drawing of a bathroom floor plan, not to scale. The measurement on top of the line is in inches (imperial measurement), and the measurement below the line is in millimeters (metric measurement). Developed Design Drawings Developed design drawings are more complex than sketch design drawings and are usually completed by an architect or licensed building contractor. These drawings provide detailed information about the overall layout of the built environment and the relationships of the spaces within and around the building. They can include, for example, illustrations of furniture placement and other features within and around the home and equipment turning circles using specific technical design conventions. The plans include specific illustrations and technical design conventions but are not as developed as those used at the working drawing stage. They are more pictorial than technical in nature and are less likely to feature the drawing conventions of the working drawings that are produced for construction or modification work. Sketch designs and developed design drawings are often done freehand or, if computer generated, are presented to appear freehand. The reader may feel more comfortable offering feedback if drawings are “only” freehand than if they have the “firmed up” look of technically drafted drawings. Working Drawings Working drawings show, in graphical or pictorial form, the design, location, dimensions, and relationships of elements of a building (Ching, 2015). They describe the constituent parts of a building, articulate their relationships, and reveal how they go together (Ching & Eckler, 2013). Using different technical drawing conventions than those of developed drawings, working drawings are usually developed by the architect or licensed building designer and are used to guide contractors as they undertake the building work (Figure 8-2). For example, developed drawings might show an illustration of a bathroom in pictorial form using simple lines, whereas working drawings would be more technical and use specific lines to represent the features in this area in more detail on the plan. There are usually various sets of drawings at this stage, each describing in detail different aspects of the design, such as site plans, floor plans, elevations, sections, and drainage plans. Such complex drawings are usually drawn using drafting equipment or computer software rather than freehand. Plan Documentation Process for Home Modification Work Drawings can be documented and classified according to the type of information presented. A design process for home modifications might include 178 Chapter 8 common drawing types designers use to communicate their design ideas are plans, elevations, and sections (Wang, 1996). These are the drawings through which most buildings can be read, and they make up one part of a whole series of documentation that describes a building in detail (Dernie, 2014). Occupational therapists use plan, elevation, and section views in their concept drawings, depending on the size and complexity of the home modification work to be undertaken and the amount of detail to be provided for design or construction professionals. For example: Ô An elevation might be drawn for the installation of a grab bar beside the toilet. Ô An elevation and floor plan view might be drawn for a bathroom undergoing extensive home modifications. Ô A section might be drawn of a set of stairs or a vanity to illustrate the location of the shelving in the cupboard. Site Plan Figure 8-2. Working drawing of a bathroom floor plan. The measurement on top of the line is in inches (imperial measurement), and the measurement below the line is in millimeters (metric measurement). the development of sketch and/or working drawings for the tender, quoting, and construction processes (Wang, 1996). Because home modification work can be extensive, costly, and time consuming to draw to scale, it is preferable that occupational therapists and clients rely on an architect or building designer for these complex drawings. The completion of drawings by an architect or building designer may be a mandatory requirement under legislation, depending on the nature and extent of work to be completed. This practice needs to be checked with local authorities to ensure that therapists who choose to do their own drawings are not operating outside their area of professional expertise or beyond the extent of their qualifications. TYPES OF VIEWS USED IN DRAWINGS Various types of views can be incorporated into the drawings to understand and depict the total 3D configuration of the built environment. The most The site plan is a view looking down on a site from above, illustrating location and orientation of the building on a parcel of land, and providing information about the site’s topography, landscaping, utilities, and site work (Ching & Eckler, 2013). The site plan also details site boundaries and the location of the street, paths, and existing and adjacent buildings. There are various styles of lines used in drawings (e.g., thick lines to denote the external walls of the home and covered outdoor areas; thinner lines to represent the planted areas, pavements, and driveways; and dotted lines to indicate the line of the roof of the building). From the site plan, a reader can glean the indoor/ outdoor relationship between the landscape and the building and the orientation of the building in relation to the direction of the sunrise and sunset and the prevailing breezes, as well as location in relation to structures or features on the site and adjacent to the site (Figure 8-3). Features on the site may include trees and permanent structures such as separate car parking facilities, storage facilities, and boundary fencing. Structures adjacent to the site may include trees and buildings occupied by neighbors and local council structures such as electricity poles and paths. Floor Plan Of all of the working drawings, the floor plan is one of the most important because it includes the Drawing the Built Environment 179 Figure 8-3. Site plan. Figure 8-4. Example of the floor plan of a domestic home. Elevation An elevation is a horizontal or side view of a building’s interior or exterior, usually taken from a point of view perpendicular to the principal vertical surfaces. It illustrates the size, shape, and materials of the interior or exterior surfaces, as well as the size, proportion, and nature of the door and window openings in the design (Ching & Eckler, 2013). Elevations show distance, length, width, and height dimensions of areas and features and are named by the direction they face (e.g., a north elevation faces north). Internal elevations may be cross-referenced and named through a diagram on the floor plan (e.g., four arrows labeled A to D in the center of the floor plan can each point to four internal walls represented in the corresponding elevation view; Figures 8-5 through 8-10). Figure 8-5. Bathroom floor plan. greatest amount of information. It is a sectional drawing obtained by passing an imaginary cutting plane through the walls above the floor, usually at a height that allows windows to be located. The floor plan is a view looking down from above, and it illustrates the dimensions of a building’s spaces, as well as the thickness and construction of the vertical walls and columns that define these spaces (Figure 8-4). Among other features, it will show the building layout, room sizes, door and window placement, and bathroom and kitchen design (Ching & Eckler, 2013). The floor plan illustrates distance, circulation space, width, depth, length of areas, and features (see Figure 8-4). Section A building section is a cross-sectional or horizontal view after a vertical plane is cut through a building and the front portion is removed. It reveals the vertical and, in one direction, the horizontal dimensions of a building’s spaces and can illustrate the thickness of floors, roofs, and walls. Sections can also include exterior and interior elevations seen beyond the plane of the cut (Figure 8-11; Ching & Eckler, 2013). Overall, sections add depth and meaning to the drawings, as well as interest. These types of drawings can take on a variety of appearances due to the evolutionary nature of the design process (Wang, 1996). 180 Chapter 8 Figure 8-6. Bathroom, elevation A. Figure 8-7. Bathroom, elevation B. Figure 8-8. Bathroom, elevation C. Figure 8-9. Bathroom, elevation D. Figure 8-10. External house elevation. Drawing the Built Environment 181 SPECIFICATIONS Once finalized, plans form the basis from which the agreed building work is undertaken. They can be used with, or as an alternative to, a written specification (Ashlee et al., 2006). Because drawings in themselves might not convey all of the information, written specifications can be developed to provide a detailed description of the technical nature of the materials, standards, and quality of execution of the work. The specifications are a business document, a contract document, and a working document, and they serve a diversity of readers (Standen, 1995). They provide the following: Ô Evidence to the person paying for the construction or modification that the building will include his or her requirements Ô Information on items to be priced that are not indicated on the drawings Ô A record of what has been built or modified Ô A reference during inspections to check that the correct products, designs, and features have been incorporated into the design or modification (Standen, 1995) The drawings should be used to show whatever is best displayed by the drawings, and the specification should be used to communicate information that is best described by words (Standen, 1995). By way of example, a drawing might indicate the need for tiles in a bathroom and the pattern in which they are to be laid. A specification will identify the tile manufacturer, the color, the slip resistance when wet or dry for pedestrians walking on the product, the method of installation, and the type and color of the grout. The specification can be prepared by a builder, engineer, architect, or licensed building designer to advise a contractor about the materials and workmanship that is expected and that cannot be displayed on the plans. Access standards can be referred to in a specification to direct the reader to review the most appropriate section of the standards when completing the construction or modification. It is essential that occupational therapists and the reader of the specification understand the application and intent of the access standards to ensure that they are referenced appropriately during the design and modification process. If the therapist is requesting complex or extensive home modifications, a design or construction professional might be required to develop a detailed building specification to provide the required level of technical detail for quoting and construction purposes. If required, therapists Figure 8-11. Stairs. Section view. The measurement on top of the line is in inches (imperial measurement), and the measurement below the line is in millimeters (metric measurement). should refer the design and construction professional to specific figures or clauses in the access standards that describe the specific performance criteria for products and building work. UNDERSTANDING SCALE The aim of scale drawings are to prevent confusion and to ensure consistent documentation of information for use by design and construction professionals. They are drawn to conventions, with design features such as walls, doors, windows, and stairs, that will look the same on different plans for different buildings. Scale drawings allow therapists to examine the layout, dimensions, and spaces in the drawing to determine whether the person (the caregiver and/ or the equipment he or she uses) can move between buildings and external areas or into and within the home and utilize the space, fittings, and fixtures effectively. It is a means of transferring or reducing information from actual size to a more convenient size with which to work and represent on a suitably proportioned piece of paper (Ashlee et al., 2006). Scales are used to accurately reproduce a large object on a sheet of paper in its correct proportions. 182 Chapter 8 Table 8-1. Common Scales Used in Architectural Plans TYPES OF DRAWINGS Site or dwelling floor plan Floor plan of a room (for example, a bathroom, kitchen, or bedroom) Scale uses a ratio to show the size of a real object in relation to the size of the drawn object. A full-size drawing is one with a scale ratio of 1:1 (International Organization for Standardization, 1979). The scale chosen for the drawn object depends on the size of the real object, the amount of detail required, the complexity of the object, the purpose of the presentation (International Organization for Standardization, 1979), and the size of the piece of paper being used (Ashlee et al., 2006). Drawings will indicate both scale and unit of measurement in either imperial or metric language. For example, 1/4 in equals 1 for 12 in (1/4” = 1’0” indicates that the real object is 48 times larger [1:48] than the drawn object, or in metric 1:50 indicates that the real object is 50 times larger than the drawn object). Architectural scales used in the United States are generally grouped in pairs using the same dualnumbered index line, including the following: 3” = 1’0” (ratio equivalent 1:4) 1 1/2” = 1’0” (1:8) 1” = 1’0” (1:12) 1/2” = 1’0” (1:24) 3/4” = 1’0” (1:16) 3/8” = 1’0” (1:32) 1/4” = 1’0” (1:48) 1/8” = 1’0” (1:96) 3/16” = 1’0” (1:64) 3/32” = 1’0” (1:128) In the United Kingdom, Canada, and Australia, the architectural scales are as follows: Ô 1:1/1:10 Ô 1:2/1:20 Ô 1:5/1:50 Ô 1:100/1:200 Scale changes might occur between section and elevation drawings. Table 8-1 shows common scales used in architectural plans. Small or detailed objects, such as a door sill or door furniture, are often drawn to a larger scale ratio (e.g., 1 1/2” = 1’0” [1:10] or larger). The detail on the larger scale drawing takes precedence or overrides the detail on the smaller scale drawing of the same area or object. For example, the detail in the floor plan area of the bathroom (1/2” = 1’0” or 1:20) IMPERIAL METRIC 3/16" = 1’0” 1:100 1/4" = 1’0” 1:50 1/2" = 1’0” 1:20 overrides the detail provided for the same bathroom as drawn in the floor plan of the house or apartment (3/16” = 1’0” or 1:100). The scale 1/2” = 1’0” or 1:20 is a “larger” scale than 3/16” = 1’0” or 1:100 because the drawing itself is larger than the same object (Figures 8-12 and 8-13). TECHNICAL DRAWING CONVENTIONS To read a plan, occupational therapists need to understand how objects are illustrated and labeled. This involves understanding the technical drawing conventions and symbols that are used by the design or construction professional to describe the building design (Weidhaas, 2002). Technical drawing standards contain specific information about the conventions and symbols, and they are used by the building and construction industry. Ensuring that design and construction professionals use the same terminology and symbols assists in establishing common design and construction practice. The technical drawing standards are not a mandatory requirement for architectural drawings, but they are a useful guide. Publications such as International Organization for Standardization standards, access standards (e.g., ICC/ANSI A117.1 [ANSI, 2009]) or architectural books (Bielefeld & Skiba, 2013; Ching, 2015; Ching & Eckler, 2013) and online resources set out examples of technical drawing conventions and symbols that occupational therapists can use as a guide when they develop concept drawings. In many instances, design and building professionals might further stylize the basic elements described in the technical drawing standards to increase the readability and attractiveness of the image. Technical drawing standards may contain basic conventions (e.g., dimension lines [Table 8-2] and symbols for architectural features [Figure 8-14]). These conventions and symbols vary because there is no set requirement for them to be drawn a specific way. Drawing the Built Environment 183 Figure 8-12. Example of scales (metric). Figure 8-13. Examples of floor plan views drawn at different scales. Figure 8-14. Examples of symbols for toilets. Lines The basic graphic symbol for all drawings is the line, which defines spatial edges, renders volume, creates textures, and connects to form words and numbers (Wang, 1996). Creating lines is a major element of a drawing, and good line work is critical to the development of an accurate and neat drawing (Bielefeld & Skiba, 2013; Housing Industry Association & Illaring Pty Ltd., 2006). Line work in plan, elevation, and section views should be sharp, dense, of uniform width, and consistent for the purpose of legibility (Wang, 1996). The specific types and thickness of each line and their application are often set out in technical drawing standards or textbooks. There are common line and dimensioning standards for home design (Figure 8-15). Six major types of lines are used in drawings that have specific meanings: 1. Visible object line: A solid line representing the contour of an object or the visible edges 2. Hidden object line: Hidden or unseen objects below or in front of the reader 3. Dimension: A line terminated by arrows, short slashes, or dots indicating the extent or magnitude of a part or whole along which dimensions are scaled and indicated 184 Chapter 8 Table 8-2. Examples of Conventions CONVENTION DESCRIPTION Min Minimum Max Maximum > Greater than ≥ Greater than or equal to < Less than ≤ Less than or equal to Boundary of clear floor space or maneuvering clearance Figure 8-15. Types of lines used in plans or drawings. Center line Direction of travel or approach Location zone of element, control, or feature Graphic convention for figures from American National Standards Institute. (2009). ICC/ANSI A117.1-2009: Accessible and usable buildings and facilities. New York: Author. 4. Center line: A broken line with relatively long segments separated by single dashes and dots to represent the axis of a symmetrical element or composition 5. Break line: Broken line segments joined by short zigzag strokes to show a portion of the drawing that has been cut off 6. Overhead line: Hidden or unseen objects behind or above the observer (Ching, 2015) Dimensioning Dimensions are used on drawings in conjunction with dimension lines to denote the length, height, or width of the object being represented. Although the imperial system of measurement is commonly used in the United States, a combination of metric and imperial measurements is generally noted in various U.S. design standards. When imperial dimensions are used, they are expressed as feet and inches, whereas metric dimensions are expressed in millimeters (mm), never centimeters (cm). In some instances, dimensions may be written in meters (e.g., 1.50 m), particularly at the sketch and developed design stages. The actual dimension number is conventionally written along the lines and placed above it (Figures 8-16 and 8-17; Bielefeld & Skiba, 2013). Figure 8-16. Dimension line that shows imperial and metric measurements. Creating Concept Drawings Design or construction professionals undergo specific technical drawing training to develop the skills to create drawings that are technically sound and provide significant construction detail. These drawings have a technical detail and accuracy that cannot be achieved by therapists who have not had formal technical drawing training. Therapists can create preliminary or concept sketch drawings to develop design ideas for home modifications in advance of an architect or building designer’s more detailed drawings. If therapists want to incorporate more developed drawings into their reports, they should refer the work to a design professional. If they would like to become skilled in any of these forms of drawing, they need to undertake formal training in architectural drawing. CONCEPT DRAWING INFORMATION PROVIDED TO DESIGN AND CONSTRUCTION PROFESSIONALS Concept drawings provide more detail to the written wording that is contained in the occupational therapy report. If home modification work is simple and straightforward to undertake, such as the installation of grab rails, handrails, stairs, or small ramps, Drawing the Built Environment A B C D 185 E Figure 8-17. Where to position dimension lines and measurements on plans and drawings. The measurement on top of the line is in inches (imperial measurement), and the measurement below the line is in millimeters (metric measurement). (A) Toilet floor plan; (B) toilet elevation; (C) vanity floor plan; (D) vanity elevation; (E) bath floor plan; (F) bath elevation; (G) stairs elevation. (continued) 186 Chapter 8 F G Figure 8-17 (continued). Where to position dimension lines and measurements on plans and drawings. The measurement on top of the line is in inches (imperial measurement), and the measurement below the line is in millimeters (metric measurement). (A) Toilet floor plan; (B) toilet elevation; (C) vanity floor plan; (D) vanity elevation; (E) bath floor plan; (F) bath elevation; (G) stairs elevation. a concept drawing may be sufficient to guide the builder. This concept drawing needs to have a written scope of works to accompany the illustration to ensure there is sufficient information for the modification. If the home modification work is complex, such as the renovation of the bathroom or kitchen or the installation of a lift, lengthy ramp, or additional room, the concept drawing may be used as the basis for a more detailed technical drawing and written specification that is completed by the design or construction professional. It is sometimes helpful to include photos and drawings of the existing areas to be modified as well as the drawing of the proposed changes to provide the design or construction professional with a more comprehensive picture of the area, particularly if they are developing a more detailed technical drawing for the proposed home modifications. The provision of photos and drawings ensures that the design or construction professional is able to clearly visualize the area to be modified and use these illustrations for ongoing reference during the drawing and modification stages of the work. When to Draw to Scale Drawings of minor modifications, such as grab bar installations and handrails on stairs, do not generally need to be drawn to scale. If they are not drawn to scale, this should be noted on the drawing. However, the figures should always be proportionate to ensure that the reader has a good understanding of the relationship of items and areas in relation to one another. When developing drawings for a major modification, scale drawings enable occupational therapists to determine which fittings, fixtures, equipment, or furniture can reasonably fit into a room and whether the space is adequate for items to be placed and for the circulation of individuals with and without their equipment. Scale drawings can also be used to indicate the precise location and assess the ease of access to, and use of, existing fixtures, such as doors and windows. However, drawing to scale is time consuming because it requires that relevant dimensions of the person, their caregiver and equipment, and the existing home environment are accurately measured and then translated into a scale drawing. Drawing on Photographs Drawings may be done on a photograph of an area or feature by hand or by computer, and it is advisable that occupational therapists complete an accompanying concept drawing that is either to scale or not to scale depending on the complexity of the work. The provision of the photo and line drawing for the one area ensures that the building professional has adequate information for completion of the home modification that is not open to interpretation. Drawings on a photo may be problematic if the photo is not clear or if the photo has been taken at an angle. DRAWING BY HAND Although drawing can be completed with the assistance of computer technology, therapists can make concept drawings by hand quickly and easily if they are skilled in drawing. They can translate measurements of clients, their equipment and caregiver, and the home environment into a simple concept Drawing the Built Environment drawing, particularly if computer technology is unavailable. However, drawings developed by hand using pencils, rulers, scale rulers, pens, and paper are often labor intensive and take significant time. These drawings can also vary in quality, depending on the skills of the person completing the drawings and the type of equipment used. They cannot be edited, saved, or adjusted as easily as computerassisted drafting (CAD) or computer-assisted drawings (e.g., Microsoft Word, PowerPoint, Visio, Idapt Planning [www.idapt-planning.co.uk], or OT Draw [www.OTdraw.com] drawings). Tools for Drawing by Hand Hand drawing can be completed with the aid of drafting equipment, such as a drafting board, squares, rulers, scale rulers, and other tools, for the systematic representation and dimensional specification of architectural features in the home (Bielefeld & Skiba, 2013; Ching, 2015). Quality equipment and materials make the act of drawing a more enjoyable experience, and the achievement of quality work becomes much easier in the long term (Ching, 2015). The equipment and materials need to be good quality, clean, and appropriate to the task. The following items can be used by therapists when hand drawing, including paper, pencils, pens, templates, scale ruler, set square, or T-square. Paper Various types of paper can be used when doing concept drawings: plain paper, graph paper, and drafting film. Although plain paper is the medium most regularly used by occupational therapists, they might need to talk to representatives from local drawing and drafting companies about the most appropriate paper for their drawing requirements. Sketch-grade paper is suitable for quick sketches and overlays on drawings where alternative layouts are being developed. For a quality finish to a concept drawing, drafting film is used. It is translucent and has a matte textured surface on one side and a plain, smooth textured surface on the other. It resists humidity that can affect the sheet size because it is made of a plastic that is more dimensionally stable. Although it is more expensive and resists tearing, it is also “harder” on equipment (e.g., pens wear out more quickly). Grid paper is also useful if drawings are being done to scale, as the grid can come in various scale sizes. It provides therapists with a good visual guide during drawing. The grid paper has the disadvantage of having extra lines compared to the drafting film, making concept drawings look “busy” when drawn directly onto this grid paper. The drafting film can be placed on top of the drafting paper 187 and the concept drawing done on the film to create a less cluttered drawing. Pencils The most common pencils used for drawing are 2H and H (hard), F or HB (medium), and B (soft). Often, 2B (or even softer) pencils are used for sketches (the B stands for black). The choice of pencil depends on the user’s preference and drawing skills. Sharp pencils or propelling (clutch) pencils using a narrow lead are ideal for drafting. These enable the user to continue drawing without having to stop and sharpen the tool. A soft eraser is also essential to clean markings off of the drawing sheets. Pens Final concept drawings should always be in ink or pen. Although pencil may be used initially to draw the lines, once complete, they should be drawn over in ink or felt pen. Felt-tipped technical drafting pens are available in various thicknesses and are generally used to draw specific line widths. Ballpoint pens are not appropriate for drawing work because the lines produced by these types of pen are not clean and clear on paper. Templates and Other Drawing Tools Templates and a compass can save time when drawing. Templates are generally made of plastic and have geometric shapes and shapes of plumbing fixtures and furnishings. They also have lettering, numerals, and other symbols, all of which can provide a guide for drawing objects accurately and to scale. Circles are drawn with a pair of compasses. Scale Ruler and Set Square or T-Square Scale rulers are used to draw in a precise ratio to the original (Housing Industry Association & Illaring Pty Ltd., 2006). These rulers vary in style, quality, and scale. There are common scales used for specific plans. As indicated previously, common scales used by therapists when drawing include 3/16” = 1’0” (1:100); 1/4” = 1’0” (1:50) for site or dwelling floor plans; and 1/2” = 1’0” (1:20) for floor plans of rooms or for internal elevations. Scale rulers also vary in style (Figures 8-18 and 8-19). Scale rulers need to be kept clean by washing with a mild soap and water. Ideally, they should only be used to measure drawings and not to draw lines because scale rulers become worn and the divisions of the scale can affect the quality of the line drawn. Routinely, a set square or T-square is used to rule lines. Scale rulers should not be used as a cutting edge or be used with color markers because these will destroy the edge and markings. 188 Chapter 8 Figure 8-18. A flat scale ruler does not hold to the paper tightly unless the user tilts the ruler to the paper. Drafting Board This is a flat working surface to which paper can be secured with clips or tape. Drafting boards vary in size but should be at least 25% larger than the largest piece of paper that will be regularly used on the board (Housing Industry Association & Illaring Pty Ltd., 2006). The paper is attached to the board so that it sits squarely to a T-square or straight-edge or, if preprinted, the border is used to square up the paper (Housing Industry Association & Illaring Pty Ltd., 2006). Plastic drafting boards with parallel rules will generally suit occupational therapists’ drawing needs. Square The T-square is held firm on one edge of the drafting board (e.g., to the left) and can move up and down on the page to draw horizontal lines. The T-square can also be used as a surface against which to place set squares to create vertical and angled lines. Most drafting boards have sliding rulers in place of the T-square (Housing Industry Association & Illaring Pty Ltd., 2006). The clear plastic T-square enables the user to see through to the paper. Set Squares Set squares are manufactured from clear plastic, and the most commonly used in home modification drawing are those that are 45/45/90 degrees and 60/30/90 degrees to assist with drawing angled and horizontal or vertical lines. The Drawing Process The process for completing a concept drawing includes the following: Ô Selecting the view(s) to be drawn Ô Choosing the paper type and size Figure 8-19. A different type of scale ruler that grips the paper tightly. Ô Drawing the view(s) Ô Checking that all information included in the concept drawing is accurate Ô Providing the title block on the right side or bottom of the page Ô Dating and signing the drawing The concept drawing might need to include a range of different views of the area to be modified (e.g., the floor plan to show distance, circulation space, width, depth, and length and the elevation view to show distance, heights, width, and length). Occupational therapists should ensure that each different view, or plan, of the same area contains consistent information. In particular, the measurements need to be compared to ensure that there are no discrepancies between the drawings. For example, the location of the grab bar beside the toilet—the distance from the back wall (e.g., cistern wall)—in the floor plan view needs to be identical to its location in the elevation view. Before starting their final scale concept drawings, occupational therapists might sketch them out roughly on a piece of paper first. This allows them to get a clear picture in their mind of what they want to draw. For concept drawings that are not drawn to scale, they can draw directly onto white paper, using a black pen to build on the final pencil drawings. All lines should be drawn using a ruler, and figures should be recognizable using conventional symbols, be clearly labeled, and be in proportion. If drawing to scale, therapists need to select an appropriately sized scale for the area being drawn, as per the earlier discussion on scale. For example, a floor plan of a bathroom may be drawn 1/2” = 1’0” or 1:20. There are three different ways of completing the scale concept drawing using the pens or pencils and various types of paper (Figure 8-20): Drawing the Built Environment A 189 B C Figure 8-20. Paper options for concept drawings. (A) Using drafting paper for drawings. (B) Combining drafting paper on top of grid paper for drawings. (C) Using grid paper for drawings. 1. Therapists can draw directly onto white paper or drafting film using a pencil or pen. The drafting film illustration can be photocopied onto white paper when finished. 2. Therapists can lay drafting film over grid paper, which has been set out according to a scale, to guide their drawings, using pencil and pen and a scale ruler as described previously. The grid paper provides therapists with an inbuilt reference scale during the drafting process. It helps correct alignment of features within the drawing and the whole drawing itself, and guides them as they use their ruler (International Organization for Standardization, 1979). A cross-check of the scale ruler against the grid paper that is positioned under the drafting film can be done during the drawing process. Space needs to be left around the drawing for listing lines and measurements, which requires that the drafting film be offset from the grid paper. 3. Therapists can draw directly onto grid paper. When drawing a room, therapists first outline the overall shape of the area (e.g., the walls, windows, and doors). All permanent fixtures or fittings are then drawn in their respective locations using appropriate conventions and symbols, starting with the larger items and working down to the smaller. For example, a drawing of a bathroom would include bath/shower, vanity, toilet, taps, spouts/shower roses, soap/toilet roll holder, light switches, electrical fittings, and power outlets. Dimension lines are then drawn on the outside of the drawing in line with the items they are representing. This ensures that the inside of the drawing remains uncluttered and clear. The smaller dimensions are usually recorded closest to the outside of the drawing, with dimensions increasing incrementally away from the drawing. This creates a hierarchy of dimensions. The area drawn can be divided horizontally and vertically to guide the set of the dimension lines (Figure 8-21). When divided horizontally, dimension lines with measurements are to match the items in the top and bottom halves of the drawing and located either above or below the drawing to match the half of the drawing they reference. When divided vertically, the dimension lines with measurements are to match the right and left halves of the drawing and located either to the right or left of the drawing the measurements reference. Further, the dimension lines should be written in such a way that the page is turned only once (e.g., clockwise) to read the figures on the dimension lines along the top, bottom, and sides of the drawing (see Figure 8-21). 190 Chapter 8 Figure 8-21. Floor plan of a bathroom area showing the horizontal and vertical division of the illustration to guide the set-out of measurements and dimension lines. The measurement on top of the line is in inches (imperial measurement), and the measurement below the line is in millimeters (metric measurement). Drawings are initially developed using pencil. Once the drawing has been finalized, pencil lines are built on using a felt-tip pen, and the pencil lines are removed with a soft rubber eraser. When developing a drawing, therapists should be mindful to include all of the required information in the drawing, such as the permanent fittings and fixtures and accompanying recommendations. For example, in an elevation of a grab bar on a wall, essential elements include the following: Ô Configuration of bar Ô Diameter of bar Ô Length of bar Ô Height of bar above floor level Ô Wall the bar is to be located on Ô Distance of end of the bar from the back wall (e.g., distance on the wall next to the toilet adjacent cistern wall) Ô Structure/surface of mounting wall Ô Whether studs have been located Ô Other elements described in the standards that are relevant to the client’s specific requirements A title block may be included at the side or bottom of the page to enable all relevant details about the drawing to be recorded, including the client’s name and address, project name/type, the name of the area, the type of view, whether the drawing has been drawn to scale and the size of the scale, Drawing the Built Environment the page number or set total, the date of drawing, the review date and/or number, and the name of the designer/draftsman/occupational therapist (Housing Industry Association & Illaring Pty Ltd., 2006). Other information can include the name of the area drawn, the type of view (e.g., the floor plan view or elevation), the scale, and whether measurements are in feet and inches or millimeters if the abbreviation for these measurements is not included with the dimensions. A title block at the bottom of the page or on the right side of the page allows large sheets to be folded into sections and clipped to the left, and the drawing remains easy to read. For future reference, the occupational therapist should sign and date plans to provide evidence of the authorship and the date they were finalized. Lettering on Hand Drawings Therapists are required to incorporate neat lettering into their drawings to ensure that items are clearly labeled and the document is professionally presented. Some of the most important characteristics of a lettering style are readability and consistency in both style and spacing (Ching, 2015). Skillful lettering enhances the appearance and clarity of the drawing, whereas poor lettering can be difficult to read and can detract from the drawing. Lettering needs to be consistent, dark, crisp, and sharp for the best presentation. It can be in pencil, spaced equally to the height of letters, and finished in pen. Lettering must be neat, brief, straight, and completed horizontally on drawings. It is not to be placed over part of a space or a drawn object. Numerals are to be placed outside the view shown to ensure the drawing remains uncluttered. Therapists can find more information on the placement of lettering and lines from local architects or building designers, through completing an architectural drawing course, or by referring to texts such as books by Ching (2015) or by checking resources online. DRAWING USING COMPUTER TECHNOLOGY In order to anticipate expected changes, home modification documents need to be flexible, time efficient to create, and inexpensive to revise (Wang, 1996). To accommodate minor changes and to avoid redrawing the entire sheet of documentation, Wang (1996) notes that computer technology has become popular in preparing drawings. 191 Computer Tools for Drawing Once these tools are mastered, drawings using computer technology are faster to draw, store, and retrieve. They can be created using drawing features in existing business software, such as Microsoft Word and Microsoft PowerPoint; general drawing programs such as Paint and VisioPro; dedicated CAD software of varying levels of sophistication (e.g., AutoCad, Autosketch, SmartDraw, and Google Sketch-Up); or specific software for use by health and other professionals such as Idapt Planning, and OT Draw (Figure 8-22). Items drawn using computer technology can be edited, saved, copied, resized, colored, and manipulated in a range of ways. Templates for areas around the home can be created that can be easily modified through the use of drawing tools to add more detail to the illustration. For example, therapists might create templates of bathroom or toilet areas for quick and easy retrieval to add in illustrations of grab rails. Further, photos, cut-outs, photocopies, and other documents can be uploaded and manipulated using software tools. Software packages provide a variety of tools, including pens, airbrushes, drafting tools, and texture maps (Montague, 2005). Drawings developed using CAD programs or specific software for use by health professionals appear professional and stylish and make it easier to achieve accuracy of scale (see Figure 8-22). These programs have additional desirable features, including the ability to draw to scale and to import symbols that adapt to the scale. Further, some CAD programs allow scaled drawings to be converted to two- and three-dimension images with walk-through views. However, to be able to make full use of such computer software, therapists require training. The more sophisticated the program, the more features and drawing options provided, and the greater the level of skill and expertise required to operate them. Experienced draftspeople and architects are the main users of this technology, although industry training and packages are available that range from simple to complex that can be used by occupational therapists. Further, these packages usually contain training tutorials. It is often assumed that CAD-based drawings have been developed for use by people with building and design knowledge and expertise. Bearing this in mind, therapists who use CAD to develop concept drawings should state that they are to provide an overview of the area only and do not provide the specific technical detail required for building works. They should be careful to clarify that they do not have professional knowledge and expertise in design and construction. 192 Chapter 8 Figure 8-22. Occupational therapist’s drawings of the bathroom using (A) Word, (B) CAD, (C) OT Draw, (D) (i, ii, iii, iv, v) Idapt Planning (Reprinted with permission from Idapt LLP, Acton Turville, UK); and (E) photos of bathroom features after modification (continued). B A C Drawing the Built Environment D-i D-ii D-iii D-iv D-v 193 E Figure 8-22 (continued). Occupational therapist’s drawings of the bathroom using (A) Word, (B) CAD, (C) OT Draw, (D) (i, ii, iii, iv, v) Idapt Planning (Reprinted with permission from Idapt LLP, Acton Turville, UK); and (E) photos of bathroom features after modification. 194 Chapter 8 CONCLUSION REFERENCES This chapter discussed how a client’s home modification requirements can be represented in concept drawings that complement photos and other information that has been put in writing in the occupational therapy report. Though occupational therapy concept drawings are not architectural drawings, they can become the basis for the development of more detailed technical drawings by design or construction professionals. This chapter has described the resources to guide occupational therapy drawing practice, the basic requirements for drawings, and tools and technology that can provide further information to guide knowledge and skill development in the area. This chapter has not sought to provide comprehensive information to ensure occupational therapists are competent in drawing. Rather, it has reinforced the need for therapists to consider training in the area to ensure that home visit documentation that is produced is clear and concise and communicates information that is easily understood by people working in the design and construction industry. This chapter has discussed how occupational therapists should take advantage of industry training courses and review available hard-copy and online resources in the field to become familiar with design and construction industry requirements and to ensure good communication with those completing the home modification work. American National Standards Institute. (2009). ICC/ANSI A117.12009: Accessible and usable buildings and facilities. New York, NY: Author. Ashlee, P., Clutton, S., Pengelly, S., & Cowderoy, J. (2006). Conveying information through drawing. In S. Clutton, J. Grisbrooke, & S. Pengelly (Eds.), Occupational therapy in housing: Building on firm foundations (pp. 83-108). London: Whurr Publishers. Bielefeld, B., & Skiba, I. (2013). Basics: Fundamentals of presentation. Technical drawing. Boston, MA: Birkhauser. Ching, F. D. K. (2015). Architectural graphics. Hoboken, NJ: John Wiley and Sons. Ching, F. D. K., & Eckler, J. F. (2013). Introduction to architecture. Hoboken, NJ: John Wiley & Sons. Clutton, S., Grisbrooke, J., & Pengelly, S. (2006). Occupational therapy in housing: Building on firm foundations. London: Whurr Publishers. Dernie, D. (2014). Architectural drawing (2nd ed.). London: Lawrence King Publishing Ltd. Housing Industry Association & Illaring Pty Ltd. (2006). Introduction to drafting: Participant guide. Brisbane, Australia: Author. International Organization for Standardization. (1979). International Standard ISO 5455. West Conshohocken, PA: ASTM International. Montague, J. (2005). Basic perspective drawing: A visual approach. Hoboken, NJ: John Wiley & Sons. Standen, D. (1995). Construction industry specifications. Victoria, Australia: The Royal Australian Institute of Architects. Thorpe, S. (1994). Reading and using plans. London: Center for Accessible Environments. Wang, T. C. (1996). Plan and section drawing. Hoboken, NJ: John Wiley & Sons. Weidhaas, E. R. (2002). Reading architectural plans for residential and commercial construction (5th ed). Upper Saddle River, NJ: Prentice Hall. Yee, R. (2012). Architectural drawing: A visual compendium of types and methods (4th ed). New York: John Wiley & Sons. Developing and Tailoring Interventions 9 Desleigh de Jonge, MPhil (OccThy), Grad Cert Soc Sci; Melanie Hoyle, BSc (Psych), MOccThySt, Grad Dip Health Sci, Post Grad Dip Psych; and Elizabeth Ainsworth, MOccThy, Grad Cert Health Sci Occupational therapists address a variety of occupational performance issues in the home using a range of interventions. Based on an analysis of the person-environment-occupation transaction and the home environment, occupational therapists identify alternative strategies, assistive devices, social supports, and modifications to the environment to promote occupational performance. In developing an intervention strategy, the occupational therapist collaborates with the client to find the solution that best fits with the person and the way he or she engages in occupations in the home environment. This chapter will outline the various approaches occupational therapists use to enhance occupational performance in the home and provide a structure for analyzing the suitability of various interventions. The role of clinical reasoning in determining the most suitable intervention will also be discussed. In addition, the chapter will introduce occupational therapists to architectural elements of the built environment that might be considered when tailoring interventions to suit the person-environment fit and will present a framework for developing and tailoring environmental interventions. CHAPTER OBJECTIVES By the end of this chapter, the reader will be able to: Ô Describe the typical occupational performance issues faced by people in the home - 195 - Ô Describe the range of interventions that occupational therapists use to enhance occupational performance in the home Ô Describe a systematic approach to identifying potential interventions Ô Discuss the potential interaction between interventions and the person, the nature of the occupation, and the environment Ô Discuss the use of clinical reasoning in determining the most suitable intervention option Ô Describe the use of architectural elements in developing environmental interventions Ainsworth, E., & de Jonge, D. An Occupational Therapist’s Guide to Home Modification Practice, Second Edition (pp. 195-223). © 2019 SLACK Incorporated. 196 Chapter 9 Box 9-1. Problems Reported by Older People in the Home • External access: Walking on uneven pavements, dealing with slopes, steps, clutter, and ground surfaces • Entry: Getting in/out of the house, managing stairs, locks, keys, and doorknobs • Internal mobility: Mobilizing inside the house, negotiating stairs, clutter, obstacles, level changes, slippery surfaces • Interior (general): Poor lighting, managing control and outlets, hearing doorbell, and using telephone • Living room: Getting up from chairs • Bathroom: Getting into and out of tub, completion of bathing and showering, dressing from waist down, transferring to toilet (toilet too low), completion of toileting, difficulty with faucets • Kitchen: Cabinets too high, too low, difficulty using appliances, trash disposal • Bedroom: Getting in and out of bed Adapted from Connell & Sanford, 1997; Gitlin et al., 2001, 2006; Johansson et al., 2007, 2009; and Mann et al., 1994. IDENTIFYING OCCUPATIONAL CHALLENGES IN THE HOME Occupational therapists commonly address occupational challenges that result from a poor fit between the person’s capacities, what he or she needs or wants to do, and the demands of the environment where the performance takes place. Occupational challenges can arise as a consequence of the following: Ô Changes in a person’s functional capacities as a result of aging, injury, impairment, or a health condition Ô Variations in occupational demands or the way activities are undertaken Ô Barriers or challenges presented by the environment When evaluating occupational performance of various valued and required activities in and around the home, occupational therapists analyze the person-environment-occupation transaction to identify a specific cause for any difficulties experienced and determine how occupational performance can be further enabled. From this analysis, occupational therapists are able to develop a number of alternative intervention options to address the identified concern and to further enhance performance. Traditionally, occupational therapists have focused on the impact of various impairments and functional deficits on daily activities and sought to maintain or enhance health, safety, and independence by recommending assistive devices or alternative methods of undertaking activities. Increasing focus is now being given to the environment and the demands it places on people. Conventional housing design creates a number of challenges for older people and people with disabilities as they go about their daily activities. Houses with stairs, narrow doorways and corridors, inaccessible toilets and bathrooms, and limited space “create” disability (Heywood, 2004a; Oldman & Beresford, 2000) and can compromise a person’s health, safety (Stone, 1998; Trickey, Maltais, Gosslein, & Robitaille, 1993), independence (Frain & Carr, 1996), and well-being (Heywood, 2004a). Studies undertaken by Connell and Sanford (1997); Gitlin, Hauck, Winter, Dennis, and Schulz (2006); Gitlin, Mann, Tomita, and Marcus (2001); Johansson, Josephsson, and Lilja (2009); Johansson, Lilja, Petersson, and Borell (2007); Mann, Hurren, Tomita, Bengali, and Steinfeld (1994); and other authors have identified a number of problems experienced by older people in the home environment that would be equally relevant for people with various impairments and health conditions (Box 9-1). The design of the residence can: Ô Place people at risk of incidents or accidents resulting in injury Ô Make it difficult for people to carry out daily activities in and around the home Ô Place unnecessary demands on people in terms of managing and maintaining the environment People need to feel well supported by their home environment. When the home provides too many challenges, it can place people at risk of injury arising from incidents or accidents. A challenging home environment can undermine confidence and make people apprehensive and even fearful as they go about routine activities in the home and community. Poorly designed environments may also affect relationships (Heywood, 2004a, 2005; Tanner, Tilse, & de Jonge, 2008), interactions with family and cohabitants (Granbom, Taei, & Ekstam, 2017; Heywood, 2004b), and the capacity of people to get out of the home to participate in community activities (Bedell, Khetani, Cousins, Coster, & Law, 2011; Gillespie et al., 2009; Heywood, 2004b; Law, Di Rezze, & Bradley, 2010; Pettersson, Löfqvist, & Malmgren Fänge, 2012). Developing and Tailoring Interventions People need to be able to manage their home environment—open windows, operate controls, answer the telephone and doorbell (Connell & Sanford, 1997), and maintain the home in order to feel comfortable and safe. Older people and people with disabilities often experience difficulties cleaning and maintaining their homes (Peace & Holland, 2001). Homes that are unkempt and poorly maintained can create further hazards and can expose the occupants to increased risk of home invasions when passers-by realize that residents may be vulnerable and may not be able to defend themselves (Jones, de Jonge, & Phillips, 2008). INTERVENTIONS USED TO ADDRESS OCCUPATIONAL PERFORMANCE ISSUES In the home environment, occupational therapists aim to assist people to find ways to perform routine activities of daily living and household tasks that, however inconsequential they might seem, can be integral to leading a full and satisfying life (Crepeau, Schell, Gillen, & Scaffa, 2014). Interventions can address a presenting problem by establishing or restoring the person’s capacities, altering the way the task is undertaken, or adapting or modifying the existing environment (Dunn, Brown, & McGuigan, 1994). Alternatively, the person-environment-occupation fit can be altered (Dunn et al., 1994; Iwarsson et al., 2016; Wahl, Fänge, Oswald, Gitlin, & Iwarsson, 2009) by moving the person to a more supportive environment or providing additional support in the way of informal or formal assistance. In some cases, occupational therapists support other people in caring for or assisting people with severe or degenerative conditions (Rogers & Holm, 2009). This type of intervention is referred to as a palliative intervention (Rogers & Holm, 2009). Occupational performance difficulties can also be prevented by anticipating potential problems before they occur (Dunn et al., 1994). Furthermore, occupational performance can be enriched by creating enabling environments that promote activity engagement and well-being (Dunn et al., 1994). When providing interventions in the home, occupational therapists need to not only address identified problems, but also be mindful of preventing future problems and creating environments that enrich occupational performance and the experience of home. Interventions can be focused on the person, task, or environment (Rogers & Holm, 2009). 197 Person-oriented interventions attempt to remediate the person’s capacity or manage his or her performance difficulties when undertaking activities by: Ô Maintaining or restoring functions such as muscle strength, endurance, attention, concentration, and visual scanning Ô Managing issues such as reduced vision, pain, fatigue, and short-term memory difficulties Ô Establishing habits and routines for activities that need to be undertaken regularly These interventions usually require education, training, and, in some cases, regular involvement with an occupational therapist. Consequently, they are mostly recommended for clients who can modify their usual approach to tasks, follow a prescribed program independently, or regularly access a rehabilitation program. In contrast, environment-focused interventions, such as home modifications, recognize the person’s existing capacities and seek to optimize occupational performance by eliminating barriers in the home and creating a more supportive environment. CONCEPTUAL FRAMEWORK FOR DEVELOPING INTERVENTIONS Everyday activities are commonly undertaken using a combination of strategies, tools, and social and physical supports in the environment (Dunn et al., 1994; Enders & Leech, 1996). Each individual uses a unique blend of these resources to carry out activities in a preferred way. Changes in the person’s capacities, the demands of the activity, or the resources available usually prompt people to modify their approach to the task (the strategy), the tools they use, or the way they use the social and physical elements in the environment. For example, there is substantial variation in the way people undertake a simple activity such as cooking scrambled eggs: Ô First, the activity is guided by the preferred outcome; that is, whether the individual prefers eggs light and fluffy, creamy, firm, with a natural flavor, lightly salted, spicy, etc. Ô How the task is undertaken is governed by the person’s cooking skills, experience, and knowledge and how he or she was shown to scramble eggs. Ô The nature of tools available, such as whisk, pans, microwave, and cook-top, dictates how the tasks will be performed. 198 Chapter 9 Figure 9-2. Framework for developing interventions. Figure 9-1. Generic support system for human accomplishment. (Reprinted with permission from Albrecht, G. L., Seelman, K. D., & Bury, M. [2001]. Handbook of disability studies. Thousand Oaks, CA: Sage Publications.) Ô Finally, the people available to help and the space and layout of the kitchen will shape the way the necessary tasks are undertaken. If the person is cooking for a number of guests with varying preferences, has an injured hand, breaks the whisk, is offered assistance, or is cooking in a different kitchen, he or she will need to alter the strategy, reconsider the tools, or structure the social and physical environment differently. Litvak and Enders (2001) described a generic support system for human accomplishment as including strategies, tools, and cooperation and described the function of people with disabilities as being variously supported by adaptive strategies, assistive devices (tools), and personal assistance or social support (Figure 9-1). This is a useful framework for thinking about ways in which occupational performance can be supported when people encounter difficulties. As highlighted in the ecological models, such as PersonEnvironment-Occupation-Performance (Baum & Christiansen, 2005; Baum, Christiansen, & Bass, 2015; Christiansen & Baum, 1997) and the PersonEnvironment-Occupation (Law et al., 1996), discussed in Chapter 3, occupational performance is a function of the dynamic and reciprocal interaction between the person, occupation, and environment. Therapists seek to optimize occupational performance by improving the fit between the person and his or her occupations and roles and pertinent environments. Working with the unique capacities, skills, preferences, and experiences of each individual, therapists examine how strategies, tools, and the social and physical environment are currently working to support occupational performance and how they might be modified to optimize that performance. To illustrate the relationship between the personenvironment-occupation transaction and these supports, Litvak and Ender’s (2001) model of support systems has been modified and superimposed on the Venn diagram of the person-environment-occupation interaction (Figure 9-2). The curved/Reuleaux triangle created by the intersection of the person, occupation, and environment represents occupational performance. Each side of this triangle represents the resources that support occupational performance—namely, strategies (the way the person approaches the occupation), tools (the devices in the environment used to support the occupation), and the social and physical environmental supports (the resources the person avails him- or herself of in the environment). This simple graphic representation provides therapists with a mechanism for examining and acknowledging the current supports available and exploring alternative ways of supporting and enhancing occupational performance. It also recognizes the role of occupational analysis in evaluating the person-environment-occupation transaction and the contribution of strategies, tools, and social and physical environmental supports to occupational performance. Developing and Tailoring Interventions 199 Strategies or Adaptive Approaches to Enhance Occupational Performance supports such as tools or environmental interventions such as home modifications, which can promote a change in approach and decrease reliance on unsafe methods. Occupational therapists have a long tradition of making activities more manageable by altering the way they are undertaken. Activities can be done a different way using energy conservation or work simplification techniques to reduce the physical demands on the person. People can sit to undertake parts of a task or take regular rest breaks to conserve energy. Rescheduling activities to another time when the person is more energetic and mobile (e.g., in the morning) can also enhance performance. Activities can also be scheduled at specific time intervals to remove the complexity or urgency of performance (e.g., establishing regular times for toileting to reduce accidents and the need to rush to the toilet). Sometimes, activities can be simplified and broken into a number of tasks to reduce the cognitive load. They can also be reordered or relocated to make them easier to perform. For example, during bathing, it might be easier to sit in the bedroom when undressing and dressing rather than attempting this task while standing in what might be the cluttered and slippery environment of the bathroom. People often develop their own alternative strategies to address difficulties in occupational performance. For example, when getting up from a low toilet, many people grab hold of fixtures and fittings in the room such as the toilet roll holder, towel rail, or door handle to assist. Though it is important to acknowledge people’s resourcefulness in solving everyday problems, some of these strategies are not safe, practical, or sustainable and can place the person at risk of injury. Occupational therapists might suggest a range of alternative strategies to keep the person safe during such a transfer, such as placing hands on knees to assist with lift-off or “keeping nose over toes” to maintain the center of gravity over the base of support (Chan, Laporte, & Sveistrup, 1999; Deane, Ellis-Hill, Dekker, Davies, & Clarke, 2003). However, it is often difficult to change entrenched patterns of behavior. Many occupations in the home are undertaken using individual and unique approaches that have been honed over many years and have become habitual and almost instinctive. Because people are often unable or unwilling to change the way they undertake tasks, therapists need to work closely with them to find alternative methods that are comfortable and acceptable. Alternatively, therapists can explore the use of other Tools or Assistive Devices to Enhance Occupational Performance Tools or assistive devices are another intervention strategy used by occupational therapists to address occupational performance issues in the home. This intervention strategy is often easiest for therapists to use because myriad devices are available to address a variety of performance and troublesome task components. Information on specialized devices is readily available through catalogues and equipment databases. For a number of health conditions, assistive devices are viewed as a routine element in treatment protocols. Assistive devices are frequently funded through a range of schemes because they are generally more affordable and more readily available than environmental interventions. However, assistive devices can often change the way tasks are undertaken and, in some cases, can increase the complexity of the task. For example, tub transfer benches and shower chairs require people to sit to shower. This changes the nature of the task, possibly removing the relaxation experienced when standing under a showerhead and having warm water spraying down the back. Sitting to shower may create difficulties in washing the perineal area. Tub transfer benches are frequently removed because they get in the way of others who use the bathroom. The task of then replacing the bench and fitting it safely can often prove challenging for the user. Assistive devices are not always easy to use. For example, it might be easier for some people to walk through the house leaning on the walls for support rather than to navigate a wheeled walker through narrow hallways and doorways. Useful devices are not always at hand when needed. Reachers are very useful for retrieving items out of reach; however, they need to be nearby when required. This means keeping a reacher in each room of the house or carrying it around in case it is needed. With abandonment of assistive devices a major concern (Batavia & Hammer, 1990; Hocking, 1999; Mann & Tomita, 1998; Phillips, 1993; Scherer, 2005), it is evident that many people are receiving devices they do not need or are unable or unwilling to use long term. 200 Chapter 9 Social Supports to Enhance Occupational Performance People with significant physical, psychological, social, sensory, or cognitive difficulties often receive formal and informal personal assistance to help them successfully complete activities. Support can be provided in the form of organizational assistance, verbal prompting, or physical support or assistance. Assistance might be required prior to, during, or after the activity is completed. For example, a family member could prepare the area for the activity, supervise performance, verbally prompt the person through the tasks, or physically assist the person at various stages or throughout the entire activity. Where he or she is no longer able to undertake the activity, another family member or a paid caregiver/ service provider might assume complete responsibility for completing the task (e.g., doing the laundry or mowing the lawn). Therapists need to understand what informal supports are available to assist the person and determine whether caregivers are willing, or have the capacity, to provide the required assistance. If appropriate support is available, therapists need to ensure that assistance is provided in a way that maintains the person’s autonomy and safety and, wherever possible, that the meaning of the occupation to the person is retained. For example, people might bathe before bed to relax. When a caregiver is assisting with this task, the focus often shifts to cleaning the person as efficiently as possible rather than providing a routine with activities focused on comfort and relaxation. The activity can become centered on the availability and needs of the caregiver rather than the needs of the person being bathed. This is understandable, but when someone is always dependent on others for assistance, the loss of control over daily routine and the relaxing pre-bed routine (or the routine of that whole day) can be distressing and might even have implications for the person’s long-term health and well-being. Therapists are also concerned with the health and well-being of caregivers, especially when they are providing support over an extended period. This is a particularly important consideration as it has been identified that a significant portion of primary carers have a health condition/disability themselves (Australian Bureau of Statistics, 2013). The occupation of caring can also become a focus of intervention, with alternative strategies, assistive devices, and environmental modifications used to minimize the demands on the caregiver and reduce the risk of injury (Aplin, de Jonge, & Gustafsson, 2015; Heaton & Bamford, 2001; Heywood, 2004a; Stark, Keglovits, Arbesman, & Lieberman, 2017). Formal caregiver assistance can also be used to support the completion of a range of activities; however, the amount and type of assistance available can vary from one location to another. Therapists need to be aware of the resources available within the local community and use these effectively. Formal assistance removes the demands on the family and frees the client from being dependent on family members for his or her daily needs. When clients receive assistance with routine tasks, such as bathing, it allows them to invest their limited time and energies in more highly valued occupations, such as parenting or work. However, these formal caregiver services can be costly and often determine when and how activities are completed. Caregivers can also intrude on personal spaces and disrupt personal routines. Formal support can disrupt social relationships and routines in the household and extended family. For example, a client once declined the offer of a formal service to do the weekly washing of her bed linen and larger items. The client was able to manage washing her smaller items but had her daughter wash the bed linen when she visited each week. She was concerned that if she removed the daughter’s reason for visiting, she may not visit as regularly or might cease to visit at all. This task provided an opportunity for the client to prepare a snack for her daughter while she stripped the bed and put the linen in the washing machine. She could then watch television with her while they waited for the washing to dry. Further, it allowed the daughter to do something concrete and meaningful for her mother. The mother-daughter relationship required the structure of these activities because the client appeared to be a very practical and matter-of-fact woman who did not engage easily in general social chatter. Environmental Supports to Enhance Occupational Performance Occupational performance can also be enhanced by modifying the environment. Spaces can be reallocated, expanded, rearranged, remodeled, or redesigned to allow the client to perform activities more effectively. In addition, fixtures and fittings can be removed, relocated, replaced, or added to enhance performance. Sometimes, a room on the first floor— a study, for example—can be reassigned as a bedroom so that the client does not have to climb the stairs to go to bed. Further, a separate and adjacent Developing and Tailoring Interventions toilet and bathroom may be combined by removing the dividing wall to allow greater circulation space for both activities. The orientation or position of furniture or fixtures and fittings can also be changed to facilitate access and performance in the room. For example, vanity units may be relocated, baths may be removed, and the inward swing of the door into the toilet may be reversed to increase circulation space. Home modifications can include repairs, maintenance, nonstructural or structural modifications, and the integration of smart technologies. Generally, nonstructural modifications are referred to as minor modifications and structural modifications are termed major modifications. For a review of the differences between minor and major modifications and an in-depth discussion of modification complexity and associations with situational complexity, see Chapter 5. Repairs and maintenance are essential to ensuring the ongoing integrity of the environment and the safety and well-being of the occupants. Common repairs and maintenance tasks include the following: Ô Mending stairs, handrails, paths, and flooring Ô Removing clutter and trip hazards Ô Installing and/or replacing lighting, locks, security screens, smoke alarms and carbon monoxide detectors, and faucets Minor modifications may involve installing items that incorporate nonstructural changes to the home and include the following: Ô Installing grab bars, rails, shower hoses, door wedges, stair climbers, and privacy screens Ô Fitting shower seats into shower recesses Ô Altering door swings and window openings Ô Replacing faucets and door handles Ô Installing slip-resistant adhesive strips in baths and showers and on stairs Ô Installing slip-resistant flooring Ô Inserting solid risers between open treads Ô Repainting walls, door frames, and stair edges Ô Repositioning fixtures and fittings Ô Introducing specialized shelving, drawers, and hanging rails into storage cupboards and closets Ô Adding and/or relocating controls, light fittings, and power and telephone outlets Major modifications are structural changes to the home that incorporate changes to the fabric of the dwelling and include the following: 201 Ô Widening doorways and passages Ô Moving or removing walls and combining spaces Ô Redesigning bedrooms, laundries, bathrooms, toilets, and kitchens Ô Installing ramps, pathways, roll-in shower recesses, and elevators Ô Replacing toilets with accessible pans and cisterns Ô Removing shelving and cupboards under sinks and hotplates Ô Installing additional height-adjustable pantries and shelving Ô Lowering countertops, cupboards, and windows Ô Raising flowerbeds Ô Adding or reassigning rooms Increasingly, smart technologies are being used to help people maintain their health and well-being, supporting them to remain living safely and independently in their own homes. These technologies may or may not require structural work or changes to the home’s plumbing and electrical systems. Security and home automation systems provide older people and people with disabilities with improved safety and security and an efficient means of managing their home environment. Environmental and remote control systems and devices allow people to manage their environment and the fixture and fittings within it (e.g., automatic door openers, keyless entry, remote window and curtain opening, automated lighting sensors, etc.). Mobile phones can also be used to regulate the temperature, lighting, electrical outlets, air conditioning, and security of homes and to answer and open front doors through connection with intercoms. A growing number of home entertainment options, including smart televisions, accessible/online computing and gaming systems, etc. afford people many different ways of enjoying their time at home. Mobile phones, video chat, and telepresence allow people to maintain contact with friends and relatives. Alarms, automated detectors (e.g., falls and seizure), and emergency call devices/ systems ensure that people are able to access assistance as required. Those who need to monitor the whereabouts or safety of a loved one at home can use technologies such as remote cameras, sensors, and wearable devices to oversee or monitor movement and activity remotely. Various devices, sensors, administration aids, and apps also assist people and their health care teams to manage complex health conditions, monitor vital signs, identify changes in performance and/or behavior, or record or predict 202 Chapter 9 an adverse event within the home. A range of highand low-technology assistive devices enable people to undertake their daily activities with greater ease by facilitating movement, reducing the impact of conditions/symptoms, enabling participation, augmenting the senses, and/or supporting caregivers to assist in the completion of activities. Reminder and scheduling technologies can also be used to assist people to manage their routines by prompting them through various tasks such as their self-care routine in the bathroom, cooking, and collecting the mail. Modifications to the environment can make it easier and safer for people to engage in valued occupations and to participate actively in family and community life. They can remove the burden of using an unfamiliar strategy and specialized devices or relying on others to be available for support. However, on the negative side, they can be disruptive and change the way the home is used by other household members and visitors. They may also change the look and feel of spaces in the home, the associated memories, and the personal identity derived from the design and décor (Aplin, 2013; Aplin et al., 2015). Modifications can also be costly. People mostly rely on social services or their own personal resources to fund modifications, so therapists need to be familiar with the building and funding resources available within the community to access environmental interventions effectively (Rigby, Trentham, & Letts, 2014). DEVELOPING INTERVENTION STRATEGIES Identifying a range of suitable interventions to address occupational performance difficulties is a complex task. Each person has unique capabilities, expectations, preferences, and experiences and has a distinctive way of undertaking activities. In addition, as outlined in Chapter 1, the home environment, including the physical, personal, social, temporal, occupational, and societal dimensions, needs to be considered when proposing and developing any type of intervention (Aplin, de Jonge, & Gustafsson, 2013). Therapists traditionally use occupational analysis, professional reasoning, and problem solving in developing their understanding of occupational performance difficulties and the range of possible interventions. Additionally, they tailor interventions to suit each situation, drawing on their knowledge of strategies, assistive devices, products, and design, as well as their professional experience. USE OF OCCUPATIONAL ANALYSIS Therapists use occupational analysis to develop a clear and detailed understanding of the occupation and the specific way it is performed; to identify where task breakdowns occur; and to analyze factors that contribute to the breakdown. They then generate a list of alternative strategies, assistive devices, social support, and modification options that have the potential to address the identified occupational performance difficulty. Building on the example of going to the toilet discussed earlier in this chapter and in Chapter 6, Table 9-1 details a range of alternative interventions for breakdowns at each stage of the activity. Note that this is a theoretical analysis and, as such, does not claim to be comprehensive or account for the variation that may occur in the way the activity is undertaken by an individual or the unique characteristics of a home environment. When analyzing activities, therapists are encouraged to consider the whole activity within the context of the relevant area of the home (i.e., access to and egress from the activity area and all the stages or elements of the activity from start to finish). Occupational therapists sometimes restrict analysis to select parts of the activity, for example, focusing exclusively on the transfer on and off the toilet. Problems can arise when designing a support, such as a grab bar, to assist with only one stage of the activity. For instance, the therapist is likely to overlook the impact of this support when the person is attending to personal hygiene while seated on the toilet. The grab bar might not provide the person with the support he or she requires when shifting his or her weight while seated and, more importantly, could be an obstruction to the person when performing this action. The type of intervention used is, in part, dependent on the nature of the identified problem. Experienced occupational therapists can often generate a number of alternative solutions for any one difficulty. This provides the client with the opportunity to select the interventions that best fit his or her style and preferences, the way he or she completes the activity, and the demands of the environment. Therapists with limited knowledge of alternative options can have difficulty problem solving unique situations and responding to the specific requirements of the individual and household. Because occupational therapists have traditionally used alternative strategies or assistive devices to address occupational performance issues, they are less familiar with the range of ways the environment can be modified to support performance. Developing and Tailoring Interventions 203 Table 9-1. Interventions to Address Breakdowns in Going to the Toilet TASK STRATEGY ASSISTIVE DEVICE ENVIRONMENTAL MODIFICATION Register need to go to the toilet Set at regular intervals Use an alarm to remind or register moisture Have a clock visible with marker Locate and find way to toilet Feel way along the wall Install sensor lights Use lighting or colored line to illuminate way Open the door Leave the door open Install sensor opener Install lever handle or reverse opening Enter the room Leave mobility device outside of toilet Place threshold ramp at doorway Widen doorway Turn lights on and off at night Leave light on permanently Install sensor light or timer on light (i.e., turns off at same time each night) Large switch Close the door Leave the door open Travel, turn, and position at front of pedestal Use cues or markers on the floor Remove level change Install self-closing hinge Use walking frame Increase circulation space Wear pants with elastic waist Hold onto grab bar Use supportive lowering technique Use raised toilet frame Raise pedestal Reach for toilet paper/ release sheet Use pretorn sheets Use extend-a-hand Transfer weight for wiping Stand to wipe Undress Sit down onto toilet Attend to personal hygiene Install grab bar Install automatic sheet dispenser Lean onto grab bar Use toilet duck or other wiping aid Bidet Move from sitting to standing Push up on knees Use toilet frame Push up on grab bar Don and adjust clothing Pull up to thighs while seated Use easy reacher Hold onto grab bar Turn and flush toilet Leave unflushed Modify button/lever Auto flush Clean toilet bowl Brush with extended handle Open door Leave door open Install sensor opener Install lever handle or reverse opening Negotiate doorway Leave mobility device outside of toilet Place threshold ramp at doorway Widen doorway Feel way along the wall Install sensor lights Use lighting or colored line to illuminate way Use faucet turner Level handles Find way to sink to wash hands Turn on faucets Wash hands Use moist wipes/antiseptic hand wash Dry hands Please note potential for collapse or assistance need Remove level change Use electric hand dryer Education for independent getting up the floor Emergency call system Widen circulation space and doorway to enable assistance/attention Lift off hinges 204 Chapter 9 USE OF REASONING The nature of the intervention chosen is dependent on a range of factors. First, the person is likely to have specific skills and abilities, past experiences, and preferences that influence how receptive he or she is to an intervention. Second, although some tasks are more conducive to a change in strategy, others are better supported by an assistive device, social support, or home modification. Third, other people within or external to the home environment are likely to influence decisions when interventions affect how they perceive and/or use the home environment. Finally, the home environment might also constrain what can be achieved as a result of the design and physical structure of the house, including building materials. Therapists rely on professional reasoning to determine the potential effectiveness and impact of proposed interventions by using a combination of scientific, narrative, pragmatic, ethical, and interactive reasoning to design acceptable, effective, and workable home modifications. Refer to Chapter 6 for a definition of each of these reasoning styles and the contribution each makes to the evaluation process. A description of the role reasoning styles play in developing interventions follows. Occupational therapists use scientific reasoning to identify a range of suitable interventions and tailor them to each client’s specific requirements. Knowledge of interventions and their effectiveness— derived from databases, professional literature, education and training events, and professional experience—guides therapists in selecting suitable options. Therapists also review research to ascertain the level of support for proposed interventions and the applicability of this information to each client’s situation (Chapter 10 has further information on the use of evidence in designing interventions). In addition, therapists are able to design individualized solutions using their expertise in anthropometrics, biomechanics, and ergonomics; knowledge of health conditions, impairments, and aging, including associated impacts; and an understanding of occupational performance and various aspects of the environment. Working within a person-environment-occupation theoretical framework, therapists examine the potential impact of each option on the associated interaction. For each alternative strategy, assistive device, social support, or environmental intervention, the therapist asks the following questions: Ô Person É Can the client manage the alternative strategy, device, or approach to the occupation? É Is he or she willing or able to do the activity in a different way? É Is he or she satisfied with the recommended changes? Ô Occupation É How will the recommended option affect the nature of the occupation? É Is the recommended option well suited to the unique way the person undertakes the occupation? É In what way does the recommended option alter the occupation procedure, meaning, or routine? Ô Environment É How well will the environment support the recommended option? É Are resources available in the environment to support the recommended option? É How does the recommended option affect other people in the environment? É How does the recommended option affect the physical, personal, social, temporal, occupational, and societal dimensions of the home? Therapists use narrative reasoning to explore each client’s story, particularly their preferences and perceptions of the effectiveness of the recommended options in addressing the identified problem and the potential impact of each solution on the identified goal, the meaning of the occupation, and the various dimensions of the home environment. It is essential that therapists also discuss the proposed interventions with all household members to fully explore the impact of these on the household. Therapists use pragmatic reasoning to examine the relative costs and availability of resources to implement each option. The physical design and materials of the house and immediate environment can often define the suitability of interventions, particularly modifications. The focus and policies of services can also affect what, and how, resources are made available. However, because clients retain the right to decline the options on offer, they can also access their own resources or an alternative service to address their needs in their preferred way. It is also important to remember that installation or construction might disrupt the household temporarily and that the potential impact of these disturbances on the household needs to be considered when deciding on the most suitable option. Developing and Tailoring Interventions Therapists also use ethical reasoning to evaluate the potential value of options and to identify the most suitable solution for each situation. Although therapists have a duty of care to deliver the best possible intervention, they frequently use ethical reasoning when working with inadequate resources to determine how to proficiently implement an effective solution. When clients and therapists differ in their understanding of the effectiveness and impact of various solutions, therapists seek to fully understand the person’s perceptions of each option and provide him or her with a deeper understanding of their professional perspective. An exchange of information and understanding may result in the establishment of a workable solution that meets the person’s goals and preferences and addresses the therapist’s concerns, or the development of a plan to achieve an appropriate solution. Ultimately, clients have the right to do what they think is best in their own homes, but therapists also have a responsibility to inform them of the potential risks in choosing a less-than-ideal option. See Chapter 12 for further discussion of managing ethical decisions. Throughout the development of intervention strategies, it is vital that the occupational therapist and client work in collaboration and that the therapeutic relationship remains strong and intact to enable the continuation of the necessary working alliance. To this end, interactive reasoning is used by the therapist in order to consider the client’s preferences and implement particular automatic and conscious communication skills and interpersonal behaviors that engage and motivate the client. This allows the therapist to maintain a continued allied relationship based in trust. This relationship is essential for gaining the information necessary for the other reasoning types to occur successfully and for the client to have confidence in the value and intention of the therapist’s intervention recommendations. DETERMINING AND NEGOTIATING SUITABLE OPTIONS There are usually any number of potentially useful alternative solutions to occupational performance problems in the home; however, there are several issues that can affect decision making, including economic, architectural, and social barriers (Rigby et al., 2014). Cost is often a consideration when designing environmental interventions. It is important to work responsibly within a budget, but therapists should also be mindful of the potential long-term costs of interventions. For example, some assistive 205 devices, such as a tub transfer bench for the bath or an over-toilet frame, initially cost less to install than a shower recess or an accessible toilet with grab bars. However, these interventions can prove to be more costly in the long term if the client deteriorates and cannot manage sit-to-stand transfers. In addition to possible further costs associated with additional strategies, tools, and/or modifications to meet the new needs, the client may require additional supervision or assistance to complete the task, or he or she could sustain an injury from being incapable of using the assistive device safely. It is well recognized in the occupational health and safety arena and in the area of workplace accommodations that there is a hierarchy of interventions that vary in terms of anticipated effectiveness. It is proposed that environmental interventions are among the most effective in managing risk and reducing incidents and accidents (Peek-Asa & Zwerling, 2003) as it can be difficult for people to change entrenched behaviors in familiar environments. The design and structure of the home also pose a number of challenges when designing environmental interventions (Rigby et al., 2014). Therapists need to understand the constraints presented by the built environment in order to determine what is feasible. Because this is not an occupational therapist’s area of expertise, it is advisable to consult a design or construction professional to provide technical building advice on the suitability of the home for modification. Further information will be provided later in this chapter to assist therapists in understanding the complexities they are likely to encounter when working with the built environment. Although home visits provide therapists with an enriched understanding of clients and their home environment, therapists, in reality, experience only a snapshot of people’s lives at the time of these visits. It is therefore critical to examine solutions thoroughly with clients to ensure that they will fit well with them and their families, routines, lifestyles, and home environments. Collaboration is required if interventions are to be effectively designed to suit the goals and preferences of clients and their families. The nature of interventions considered is also likely to be influenced by factors related to therapists’ knowledge, experiences, models of practice, and the service and information resources available. Each therapist tends to have a particular scope of knowledge and expertise, which will likely affect the options identified. Therapists who have worked with particular products or designs are likely to favor these over less familiar options. The models of practice therapists employ also predispose them to 206 Chapter 9 using some interventions in preference to others. For example, therapists using a rehabilitation framework are likely to focus on remediating function before compensating for lost function by using assistive devices or removing barriers in the environment to accommodate specific impairments and activity limitations. On the other hand, therapists using a Person-Environment-Occupation model would focus primarily on enabling occupational performance by ensuring that the environment was designed to promote engagement in personally meaningful activities in the home and community. Therapists might work within a particular service with its own specific focus, policy, procedures, or protocols that dictate the resources therapists have readily available to them. Some services and agencies fund assistive devices more readily than environmental interventions, which define the intervention options available. The availability of technical advice can also vary between services, which affects therapists’ capacity to consider modifications that require structural changes or building expertise. Though research and industry standards provide information on the safety and effectiveness of some interventions, there can be limited information on other options. This can result in options such as exercise, education, and assistive devices being favored in the absence of evidence on environmental interventions. Further, the detail provided in the access standards on the design requirements of independent adult manual wheelchair users often predominates because little is known about the design requirements of people with severe and multiple impairments who use other devices and rely on caregiver support to complete activities in areas of the home. TAILORING INTERVENTIONS Environmental interventions in the home need to be practicable and acceptable to the client and other household members and accommodate everyone who lives in or visits the home regularly. They should not only address the identified problem but should also promote occupational performance and ensure that the essential qualities and meaning of activities and the home environment are retained. Therapists should also ensure that the interventions will not cause any unexpected stress or discomfort and will not create new issues for the person in the home environment. Therapists generally tailor the intervention to the specific requirements of the person, the occupation, and the environment, giving consideration to the following: Ô The characteristics of the person Ô The way the activity is undertaken and, specifically, where performance breakdowns or difficulties occur and/or where the activity could be further supported Ô Whether the environment can accommodate an intervention or places any constraints on its availability, usefulness, or location Characteristics of the Person When tailoring an intervention for a specific situation, therapists consider the person’s goals; preferences; specific impairments and occupational performance difficulties; ability to cope with the intended change; and general skills, abilities, and capacities that include the anthropometrics of the person(s) likely to use the intervention. People have preferred ways of approaching activities and also personal experiences and likes/dislikes that can affect their decisions. Some people find it difficult to approach a task in a different way, so it is important that therapists acknowledge this and devise therapeutic interventions that work with the client’s preferred approach. Other household members using the space will also be affected by the changes and will need to be consulted during the planning process. Therapists determine whether the individual has specific impairments in his or her sensory, motor, cognitive, or psychosocial function that may present additional difficulties and ensure these are accommodated in the design of the solution. For example, when recommending the installation of a grab bar to assist during toileting, the therapist would consider the following: Ô Static balance in the seated and standing positions and dynamic balance when moving to ascertain the amount and type of support required Ô Strength and coordination of the upper limbs and condition of the joints and muscles to determine whether the grab bar can be used for pushing or pulling during sit-to-stand or side-on transfers Ô Sensation to establish whether additional slip resistance is required Ô Vision and visual perception to determine the degree of color contrast required Ô Cognition to establish whether the person requires any training, prompting, supervision, or assistance in using the grab bar Developing and Tailoring Interventions 207 Figure 9-3. Phases of rising. (Reprinted from Laporte, D. M., Chan, D., & Sveistrup, H. [1999]. Rising from sitting in elderly people, part 1: Implications of biomechanics and physiology. British Journal of Occupational Therapy, 62[1], 36-42.) Ô The person’s confidence and self-efficacy during the activity Anthropometrics, which uses standardized methods of measurement, can also assist therapists in determining the most suitable configuration and position for a grab bar. Chapter 7 provides a detailed description of this methodology. Therapists often use anthropometrics to tailor the intervention to suit each client. They assess the person’s: Ô Body weight to choose a rail that has been load tested to manage the person’s weight (downward and sideward force) Ô Location of key body landmarks and reach range when seated and standing to determine the required height of the bar above the floor Ô Length of forearm to establish the preferred length of the grab bar Ô Hand size to guide the size of the diameter of the grab bar Ô Grip strength to guide the size of the diameter of the grab bar and the finish on the surface of the bar Ô Right- or left-hand dominance to determine the side of the toilet on which the bar should be placed (influenced by the side of the body affected by the person’s health condition or disability, his or her presentation, and how he or she completes activities) Characteristics of the Activity and Occupation Therapists customize solutions to support clients through troublesome aspects of activities while ensuring that other aspects of the activity are not disrupted. For example, when designing a grab bar to assist an individual to transfer on and off the toilet, the therapist observes the client’s posture, movement, and center of gravity in relation to his or her base of support and notes specific aspects of the transfer that are problematic. With an understanding of the biomechanical factors that affect the sit-to-stand transfer, the therapist determines whether the client is experiencing difficulty with flexion momentum, lift-off, extension, and stabilization (Laporte, Chan, & Sveistrup, 1999; Figure 9-3) and recommends the grab bar configuration accordingly. If a client is having difficulty bending forward, the therapist might provide a vertical grab bar that he or she can pull on to move forward. If lift-off is problematic, the therapist might provide a horizontal grab bar to push up on. To assist the client in the extension or stabilization stage of the transfer, the therapist might provide a diagonal or vertical bar that the client can hold on to while transitioning into standing and to arrest the movement to maintain a static standing posture. If a client stands for toileting rather than sitting, a vertical grab bar may be required to provide stability in this position. A vertical or diagonal grab bar may also assist as the client moves from standing to sitting on the toilet, as these 208 Chapter 9 configurations allow the hand to move down the rail. It is important to note that if the client experiences difficulty at each stage of the transfer, the grab bar configuration would need to incorporate each of these elements. The therapist would also determine other aspects of the activity where the client could benefit from grab bar support and ensure that the solution is adequate for these aspects of the activity. For example, clients might require support when shifting their weight while seated to attend to their hygiene or when standing to adjust clothing. In addition, the therapist would need to ensure that the proposed design does not interfere with other actions or tasks the person performs during this activity (e.g., that the person will not knock his or her elbow on the grab bar when doffing or donning his or her clothes). The therapist would also remain mindful of the value of the activity to the person and, in particular, the unique elements and methods he or she should aim to retain when tailoring the intervention to the occupation (e.g., a modification to create a solid backrest may be required to allow the client to lean back and relax during toileting, particularly on an accessible toilet where the distance between the bowl and cistern is usually greater than a standard toilet). Characteristics of the Environment The physical, personal, social, temporal, occupational, and societal dimensions, discussed previously in Chapter 1, require careful consideration when designing and determining interventions. Each of these dimensions affects how modification recommendations are accepted, used, or rejected by the clients, their families, and other householders (Aplin et al., 2015). The physical environment poses considerable challenges to intervention planning. Often, the environment can constrain the design of a solution because there is insufficient space or structural support for the proposed modification. For example, therapists are commonly interested in maximizing circulation space in the bathroom, which is often achieved by removing other fixtures, such as the bath, or annexing spaces adjacent to the bathroom, such as the toilet, and incorporating this space into the bathroom. If the wall between the bathroom and toilet is load bearing (i.e., supporting the roof or upper floor), costly structural work can preclude this option. The positioning of grab bars can also be limited by the location of studs (vertical supports in the wall) because grab bars need to be anchored directly into studs that sit behind the wall sheeting or onto solid blocking mounted onto the studs to ensure the grab bars do not come out of the wall when used (Adaptive Environment Center, 2002). Therapists should consult with building and design professionals if they are uncertain about whether the environment can support the proposed intervention. This consultation is vital as there is often a range of different ways to modify spaces and provide additional structural support, and the expertise, insight, and advice of these professionals can be invaluable in discerning the best potential option. For example, Figure 9-4 shows a number of alternatives to securing grab bars directly into studs: Ô Using special fasteners Ô Fixing a backing board onto the studs Ô Installing blocking between studs Ô Replacing the wall sheeting with plywood that is at least 3/4 in (19 mm) or more in thickness Therapists are encouraged to develop an understanding of the physical structure of the built environment so that they have knowledge of the possibilities and constraints for designing environmental interventions and can effectively discuss alternatives with building and design professionals. Outside of the structure of the home, there are further physical aspects that can influence design and decision making. The ambient conditions of the home is one consideration that requires careful review. For example, people are often reluctant to install lifts or alter the placement of windows or walls if it means they lose a view or natural sources of light in the home (Aplin et al., 2013). Other considerations might be ensuring people are protected from weather conditions when entering and leaving the house by providing roofing to landings and pathways (Aplin et al., 2013). Therapists also need to be mindful of the impact of changing light conditions that occur across the day/night and how these might affect things like safety, ambience, and associated modification decisions. The location of the home can also influence decision making. For example, the topography and geology of an area can influence the design and placement of ramps and whether earthworks can be used to enhance access to entryways, a mailbox, or clotheslines. Further, proximity to public transport, access to shops and other services, and family and friends are important considerations when deciding whether to modify the existing home or to relocate. Although it is often easy to understand the physical dimensions of the home that affect home modification decisions, it can be challenging for therapists to develop sufficient understanding of the personal, social, temporal, occupational, and societal dimensions of the home during a home visit. The impact Developing and Tailoring Interventions 209 Figure 9-4. Alternative ways to secure grab bars. of these dimensions often comes to light when discussing alternative options and therapists encounter clients’ reluctance to modify the home, and in some cases, active resistance to modification recommendations. During these discussions, therapists come to understand the clients’ concerns and negotiate solutions that respect their experience of home. The personal dimension, the emotional connection with home, has been found to strongly influence home modification decision making (Aplin et al., 2013) and requires sensitivity dedicated to the client’s perspective. Having control over one’s home is key to a positive experience of home, so consequently having choice and control in the home modification process is paramount. The literature consistently reports that successful home modifications result from consultation and affording clients control in the home modification process (Aplin et al., 2013, 2015; Hawkins & Stewart, 2002; Johansson, Borell, & Lilja, 2009; Kruse et al., 2010; Tanner et al., 2008). The amount of control clients wish to have over their modification(s) can vary from making choices about simple aspects such as color or style of fittings to full control of the project. With the latter, clients are able to project-manage their modification(s) with a service, choosing their own materials, products, and tradespeople/building professionals to complete the work. In this approach, occupational therapists, building and design professionals, and other service providers are viewed as consultants to the client rather than leading the process. The appearance is often an aspect of home that is of importance to clients as it reflects their identity and promotes their connection to the home. This aspect of home can be challenging for therapists as it is not easily observable and can therefore take time to understand and appreciate. Some clients fear that modifications will make their home “look disabled” or “like a hospital” and want to ensure the modifications match the current style of the home (Aplin et al., 2013). Ensuring that the design of modifications is aesthetically pleasing and consistent with the look and feel of the home will often reduce these concerns, and the implementation of resources such 210 Chapter 9 as pictures and videos of potential modifications can be very useful in assisting clients to visualize proposed changes. Further, although costs are often a consideration for many clients, it is important to not make assumptions as sometimes clients are willing to pay significant additional costs to ensure modifications match their home or provide a less “clinical” look (Aplin et al., 2013). Further to aesthetics, safety and security considerations can also affect clients’ willingness to consider or undertake a modification. For example, a ramp can improve accessibility and safety when entering or leaving the home; however, people may be reluctant to have one installed at the front of the home as it potentially identifies the resident as having a disability and portrays a potential image of vulnerability to people passing by the home. Consequently, the therapist might negotiate to have the ramp installed at the rear entrance. Reducing the visibility of modifications from the street also protects a person’s privacy as some clients may prefer to conceal their disability from others’ awareness or knowledge. Additionally, some clients are reluctant to have modifications in the toilet or family bathroom because visitors will potentially be made aware of the difficulties the client is experiencing. Furthermore, an en suite bathroom may be a preferred choice to a main bathroom for modification so the client can bathe and dress in a private space rather than mobilizing or being transported through public areas of the home. Independence is generally the primary goal of home modifications; however, freedom within the home is equally important. For example, parents of a child with a disability often seek to involve the child in all household activities and may require access and circulation in spaces such as the kitchen to allow the child to watch or participate in the preparation of dinner. Further, although parents might currently be assisting the child with various activities, they may want to ensure spaces, fixtures, and fittings are accessible so they can encourage the child’s independence as he or she develops. Understanding these aspects of the personal dimension help to create solutions that are inclusive and promote future independence. Social connections and relationships with the people whom we share and invite into our home are an important aspect of life. Therapists often consider the requirements of a partner when making changes in a space. This is most apparent when placing a grab bar in the toilet for an older couple who differ in height and experience different challenges rising from the toilet. When designing modifications, therapists also consider the caregiver(s) and the demands placed on them when supporting the client in activities. Clients are also often mindful of the impact of modifications on people who may visit regularly. For example, an older grandmother may be reluctant to remove a bath to make a shower recess if it affects the ability of her grandchildren to use the bathtub when they stay over. When other people and relationships are not considered, tension can result, especially when the needs of one member are prioritized over others (Heywood, 2005). Consequently, it is critical that therapists consider the social dimension of the home, such as other people who also use the area (e.g. partners and family), visitors, and any caregivers involved in the completion of homebased activities when making recommendations. Considering the temporal dimension of home is also important in home modification decision making as many modifications are costly and fixed or permanent. The daily routines and cycles of activities in the home are not always evident to a therapist during a brief home visit. Similarly, the number of people in the environment and the range of activities that occur vary considerably from day to day and across the week. People may be resistant to modifications that disrupt the familiar rhythms of the household. For example, if the bathroom has been the same for 20 years, people may be uncomfortable with or reject the modification simply because it is different from what is known and may disrupt the order of their home and routine (Aplin, 2013). Furthermore, clients may be concerned about the disruption to the home and routine resulting from modification works, especially those that extend over a number of weeks. It is important to recognize that objection or rejection of suggested modifications may be about the change to the home itself rather than issues of identity, cost, or lack of control in the process. In these circumstances, it is important to work with the client to come up with solutions that will allow him or her to keep some of the aspects that are important to them, such as keeping a particular cabinet, reusing tiles, or painting in the same color. It is also important that clients are given the opportunity to process the information provided and consider alternative options before making a decision, even if it means that modifications need to be delayed. Anticipating changes over time, such as growth in children or deterioration or improvement in health, can also ensure that the modifications address client needs long term. One recurring preoccupation for clients and families is the impact of modifications on the resale value of the home (Aplin, 2013). In these situations, clients can be reassured by information on the removal of minor modifications such as grab bars. However, if the future needs and wants of occupants are not considered, clients can be left with unsuitable modifications and wasted resources Developing and Tailoring Interventions (Aplin, 2013). In some circumstances, people may need to consider whether it might be better to move to a more suitable home rather than modify their existing home. Occupational therapists support families facing this decision by providing information about key considerations, such as the implications of moving or remaining in the same location, considering proximity to family and services and their connectedness to their current home. Working with families to discuss these issues may help to create solutions that avoid costly errors, both financially and emotionally, for families. The meaning of everyday activities within the home and the roles the client wishes to undertake (the occupational dimension) also influences home modification decision making. The way an individual completes an occupation is important and can affect design, particularly if different from standard expectations (Aplin et al., 2013). For example, the aforementioned recommendation for the grandmother to install a shower recess to replace a bath may be declined if she herself prefers to bathe rather than shower. Within the home, people participate in a range of occupations, including but not limited to personal activities of daily living, that are meaningful to them. For example, access to the garden or shed may be necessary to participate in meaningful leisure occupations or be important to maintaining a role of home maintenance (Aplin et al., 2013). Although many services focus on personal activities of daily living, it is important that therapists recognize that clients may have other priorities for modifications and associated resources (i.e., money) and choose to focus on occupations that are considered more important. When using a clientcentered approach, therapists are mindful of meaningful occupations and the positive impact these can have on clients’ health and well-being. Consequently, therapists seek to promote safety and independence in these activities and ensure continued engagement in these valued occupations. The societal dimension can have a substantial influence on home modification decision making as it shapes the scope of practice of occupational therapists and what they offer to their clients, and consequently determines the amount of control and choice people have over their home modifications. Occupational therapists are often bound by service restrictions and guidelines, but they are also responsible for upholding professional ethics and adhering to professional frameworks that seek to enhance independence and well-being. For example, a service might only fund home modifications that improve safety and independence in personal activities of daily living and not be concerned about the client’s 211 safety when gardening, which is a meaningful occupation for the client and therefore important to their health and well-being. Additionally, services may restrict options by only making a small range of faucet fittings, grab bar styles, or tiles available (Aplin, 2013), limiting client choice and control. Changes to standard products, materials, and design can lead to additional expenses for clients; however, the freedom to choose modifications increases acceptance and enhances the enjoyment and use of the home. The competing demands between dimensions can make home modification decision making complicated and solutions difficult to negotiate with clients. Chapter 12 provides a framework for dealing with dilemmas that inevitably arise from these complexities in home modification practice. Another societal influence is building codes and design standards. Modifications that require structural, building, plumbing, or electrical work are likely to be subject to building regulations and require consultation with a contractor or designer. Although not required in private dwellings, accessible design standards are often a key consideration for home modification design and can have an oppressive impact on modification decision making as some services may not install modifications unless they meet access standards (Aplin, 2013). Clients have spoken of their frustrations with service providers who rigidly apply access standards when designing home modifications and their frustration with therapists who prioritize standards over the needs, requirements, and specifications of the person (Aplin et al., 2013, 2015; Tanner et al., 2008). It is important that therapists have a solid understanding of the access design standards and their application in residential settings when negotiating with clients and services. The appropriate use of access standards in domestic dwellings is discussed in further detail in Chapter 11. DEVELOPING ENVIRONMENTAL INTERVENTIONS As noted earlier in this and other chapters, the capacity and potential of the environment to support occupational performance are well recognized. Changes to the environment can reduce demands on the person; enhance health; increase safety, independence, and effectiveness of performance; improve the quality of life and experience; and promote further occupational engagement. Environmental changes can also reduce the need to learn new ways of performing activities and can limit reliance on assistive devices and on other people. 212 Chapter 9 Although therapists are experts in promoting occupational performance, they tend to be less familiar with home modification options and the architectural and technical aspects of the built environment. Consequently, they can feel uncomfortable proposing environmental recommendations, seeing themselves as ill equipped to assess the viability of an environmental solution. Therapists can address this in a number of ways by: Ô Liaising with specialists who can advise them on environmental solution options, including appropriate products and designs Ô Using resources targeted specifically at common occupational performance problems in the home and typical environmental interventions Ô Using tools that direct them to specific environmental problems and how these can be addressed Ô Familiarizing themselves with general resources about designing safe and accessible environments Ô Developing expertise in the technical aspects of the built environment Ô Using a framework for considering the various elements in the built environment Liaising With Specialists Occupational therapists can refer clients to specialist services for an environmental intervention or seek advice from other experts, such as more experienced therapists, design and building professionals, or suppliers of home modification products. When referring clients to a specialist service, it is important to provide them with appropriate information and liaise with them about alternative strategies and assistive devices that have been recommended. It is often necessary for occupational therapists to access the expertise of an experienced colleague, building or design professional, or supplier of home modification products when designing an environmental intervention. Ideally, it is useful for the therapist, builder/designer, and supplier of products (such as vertical lifts) to review the property together because there are often constraints when attempting to modify an existing structure. The most suitable solution is often achieved when the therapist, builder/designer, and product supplier collaborate with the client to identify the environmental intervention that will achieve the best person-environment-occupation fit. Remote strategies such as video teleconferencing have also been used by therapists with building and design specialists to observe direct measurement of the client and environment and examine activity participation in key areas of the home (Sanford & Butterfield, 2005). This technology allows the therapist, client, and specialists to discuss concerns in real time without everyone being physically present at the home and to draw on the experience and expertise of all parties in negotiating an acceptable solution in a cost-effective and efficient way. If it is not possible to visit the property with the building and design professional or negotiate a remote consultation, tools such as the Comprehensive Assessment and Solutions Process for Aging Residents (CASPAR; Sanford, Pynoos, Tejral, & Browne, 2002) can guide therapists to measure aspects of the environment that designers and builders need to be cognizant of in order to redesign or modify the area (Figure 9-5). Targeted Resources Targeted resources are generally aimed at assisting clients in identifying problems in the home and informing them of potential solutions. For example, the Adaptive Environments Center (2002) has developed the Consumer’s Guide to Home Adaptation, which can be used by a client, community care worker, or building and design professional to evaluate needs, identify solutions, plan, and undertake environmental modifications (Figure 9-6). Similarly, the Canada Mortgage and Housing Corporation (CMHC) has developed a number of useful publications to assist with making homes accessible and safe, including Accessible Housing by Design Series (CMHC, 2016a) and Maintaining Seniors’ Independence Through Home Adaptation: A SelfAssessment Guide (CMHC, 2016b). Box 9-2 provides an extract from the Maintaining Seniors’ Independence Through Home Adaptation: A Self-Assessment Guide (CMHC, 2016b) publication, detailing recommendations for people who experience difficulty stepping into or out of the bathtub. These publications introduce therapists to the broad range of environmental interventions available to address specific occupational performance difficulties in the home for older people and for people who mobilize using wheelchairs. Tools for Identifying and Addressing Specific Environmental Problems Tools such as the Housing Enabler (HE; Iwarsson & Slaugh, 2010) assist therapists in identifying and Developing and Tailoring Interventions 213 Figure 9-5. CASPAR Part 5, Description of the Home—C, Measurement of Bathrooms. (Reprinted with permission from Extended Home Living Services, Wheeling, IL.) 214 Chapter 9 Figure 9-6. Consumer’s Guide to Home Adaptation—Bathroom Solutions. (Reprinted with permission from Adaptive Environments Center. [2002]. Consumer’s guide to home adaptation. Boston, MA: Author.) measuring problematic design elements in the built environment. The HE provides therapists with details of environmental design elements that interfere with the performance of people with a range of identified functional and mobility impairments. It also provides the minimum design requirements according to Swedish accessibility standards. As noted in Chapter 6, the HE alerts therapists to elements in the physical environment that present challenges to people with varying functional and mobility impairments, such as difficulty interpreting information, severe loss of sight, complete loss of sight, severe loss of hearing, prevalence of poor balance, incoordination, limitations of stamina, difficulty in moving head, difficulty in reaching with arms, difficulty in handling and fingering, loss of upper extremity skills, difficulty bending or kneeling, reliance on walking aids, reliance on wheelchair, and extremes of size and weight (see Figure 6-3). Once potential barriers have been identified, therapists can focus on removing or modifying the environment to be more accessible (Figure 9-7). General Environmental Intervention Resources General resources on accessible design, such as the Americans With Disabilities Act (ADA; 1990) and Architectural Barrier Act (ABA: 1968), accessibility guidelines (United States Access Board, 2004/2014), and The Accessible Housing Design File (Barrier Free Environments Incorporated, 1991), assist therapists in understanding the design requirements for people with disabilities and, in particular, people with mobility impairments. Therapists often refer to the standards to identify the recommended specifications for particular design elements (e.g., the circulation spaces around various fixtures and fittings, heights of power points and light switches, and grab bar specifications, such as diameter, wall clearance, load capacity, and clearance from the centerline of the toilet). However, these standards were designed for public buildings and were aimed to suit the majority of users. Based on the anthropometrics of young adults who mobilize independently using Developing and Tailoring Interventions 215 Box 9-2. Maintaining Seniors’ Independence Through Home Adaptation: A Self-Assessment Guide Item— Canada Mortgage and Housing Corporation CMHC has developed Maintaining Seniors’ Independence Through Home Adaptation: A Self-Assessment Guide, which is designed to assist older people in addressing specific problems in the home environment. This guide details a range of activities that older people typically experience difficulties with in the home and describes adaptations to address these difficulties. Activities addressed include getting in and out of the home, using the stairs, moving around the home, using the kitchen, using the bathroom, getting out of a bed or chair, using closets and storage areas, doing laundry, using the telephone or answering the door, and controlling light and ventilation. This tool does not attempt to diagnose the specific cause of the difficulty but provides a range of environmental interventions aimed at reducing difficulty in performing the tasks such as removing, moving, modifying, replacing, or adding various fixtures and fittings. Example of Maintaining Seniors’ Independence Through Home Adaptation: A Self-Assessment Guide item: 5.3 Do you have any difficulty stepping into or out of the bathtub? ☐ NO >> If no, go to the next question. ☐ YES >> If yes, check off the adaptations below that would help you. ☐ Install vertical and horizontal grab bars in locations that will best assist you in entering and exiting the tub. ☐ Ensure the grab bars are well secured. ☐ Install nonslip flooring throughout the bathroom. ☐ Ensure floor mats have nonslip backing. ☐ Install a nonslip surface in the bathtub. ☐ Install a commercial or custom-made transfer bath bench, so that the tub can be entered from a seated position. ☐ Replace the bathtub with a shower stall or wheel-in shower if stepping over the tub wall is too difficult or unsafe. ☐ Install a separate shower stall or wheel-in shower if the difficulty is severe. ☐ Modify the tub with a custom cut-out to eliminate the need to lift legs over the side of the tub. A vertical grab bar provides support when entering the tub, while a horizontal (or angled) bar helps you to complete the entrance and lower yourself onto a shower seat or to the bottom of the tub. ☐ Install a ceiling track or other lift system for use by caregivers to transfer individuals with serious disabilities into the tub with the appropriate bath seat. ☐ Other (describe). Source: Canada Mortgage and Housing Corporation (CMHC). Maintaining seniors’ independence through home adaptations: A self-assessment guide. Revised 2016. All rights reserved. Reproduced with the consent of CMHC. All other uses and reproductions of this material are expressly prohibited. a wheelchair, the specifications in these standards are not always appropriate for occupational therapy clients, many of whom do not fit the profile on which these standards were founded. Further discussion on how the standards are used in home modification practice is provided in Chapter 11. There are also a number of resources dedicated to designing for specific groups; some examples include the following: Ô Aging: É Residential Design for Aging in Place (Lawlor & Thomas, 2008) Ô Alzheimer’s and dementia: É Adapting Your Home to Living With Dementia: A Resource Book for Living at Home and Guide to Home Adaptations (CMHC, 2009) É Alzheimer’s and Related Dementias Homes That Help: Advice From Caregivers for Creating a Supportive Home (Olsen, Ehrenkrantz, & Hutchings, 1993) É Dementia Centre: Design for Dementia (HammondCare, 2017) É Design Innovations for Aging and Alzheimer’s: Creating Caring Environments (Brawley, 2006) 216 Chapter 9 Figure 9-7. HE Environmental Assessment. (Reprinted with permission from Iwarsson, S., & Slaug, B. [2010]. The Housing Enabler: A method for rating/screening and analysing accessibility problems in housing [2nd ed.]. Lund & Staffanstorp, Sweden: Veten & Skapen HB and Slaug Enabling Development.) É Designing for Alzheimer’s Disease: Strategies for Creating Better Care Environments (Brawley, 1997) É Australia: Guide to Planning Bathrooms and Kitchens 2015 (Independent Living Centre NSW, 2015) É The Dementia Centre: Design Resource Centre (The Dementia Services Development Centre, 2012) É Australia: Livable Housing Design (Livable Housing Australia, 2015) É Occupational Therapy and Dementia Care: The Home Environmental Skill-Building Program for Individuals and Families (Gitlin & Corcoran, 2005) É Universal Design Guidelines Dementia Friendly Dwellings for People With Dementia, Their Families and Carers (Grey, Pierce, Cahill, & Dyer, 2015) Ô Visual impairments: É Making Life More Livable: Simple Adaptations for Living at Home After Vision Loss (Duffy, 2002) Ô Young people with significant disability: É New Housing Options for People With Significant Disability: Design Insights (Ryan & Reynolds, 2015) Ô Other country/locality-specific web-based/ electronic resources include examples such as: É Hong Kong: Universal Design Guidebook for Residential Development in Hong Kong (Hong Kong Housing Society, 2014) É New Zealand: Lifemark (Lifemark, 2017) É United States of America: Better Living Design (Better Living Design Institute, 2014) É United Kingdom: Housing LIN (Housing LIN, n.d.) É United Kingdom: Lifetime Homes (Lifetime Homes, n.d.) Increasingly, there is an emphasis on designing homes using a universal approach. Universal design ensures that features in the home are usable, comfortable, and convenient for everyone in the home, regardless of ability or life stage. A growing number of resources describe universal design features for residential buildings and community environments, including: Developing and Tailoring Interventions Ô Practical Guide to Universal Home Design (Wilder Research Center, 2002) is a 19-page booklet that illustrates essential universal design features for various areas of the home, including entrance, kitchen, bathroom, laundry, bedrooms, living and dining rooms, storage, garage, doorways and hallways, floors, windows, and stairs. Ô Design for the Ages: Universal Design as a Rehabilitation Strategy (Sanford, 2012) is a book written for building, design, and health professionals interested in the use of universal design for the promotion of participation and performance. It considers the influence of universal design on social and health movements and demonstrates a focus on reducing segregation and stigma that has traditionally been associated with many previous design strategies. Ô Universal Design: Creating Inclusive Environments (Steinfeld & Maisel, 2012) is a text that provides a comprehensive overview of practices and solutions in universal design. It examines the difference between accessibility and universal design and the associated relationships with active living and sustainable design. It is important to note that these resources provide therapists with a vision of what is possible and an understanding of specific design requirements. However, they do not generally assist the therapist in determining the specific design requirements for an individual or whether the existing environment is able to accommodate the proposed design elements. In addition to the aforementioned text and webbased resources, social media and social networking are means of communication that are widely being used to share and disseminate information relevant to environmental interventions and provide support for therapists and professionals working within applicable fields. These “online interactions” enable electronic communications through which a wide range of information related to home modifications can be shared through web-based media and online groups, including videos, blogs, forums, chats, networking sites (e.g. Facebook, Twitter), etc. It is important to consider these as a potential resource when sourcing information, examining options and alternatives, and seeking training and support when working in the field of home modification. However, it is also vital to be critical of the source and quality of the information that is provided, as the nature of the internet enables a vast range of people with varying backgrounds and experience to make claims and recommendations. 217 Some examples of current social networking opportunities include: Ô Association of Consultants in Access Australia, available via Facebook and Twitter Ô Australian Network for Universal Housing Design, available via Facebook and Twitter Ô Centre for Universal Design Australia, available via Facebook, Twitter, and LinkedIn Ô HomeMods4OT, available via Facebook Ô Home Design for Living, available via Facebook, Twitter, and LinkedIn Developing Expertise in the Technical Aspects of the Built Environment Some therapists find it useful to invest time reading or studying the technical aspects of the built environment to assist them in understanding building structures and systems that affect modification design. Additional knowledge assists therapists to communicate more effectively with building and design professionals and enables them to identify whether a solution is viable before referring to a builder/architect for a work design or quote. For example, if the therapist knows that the existing wall in the toilet is unable to support the installation of grab bars in the required location, he or she can discuss alternative options with the client or prepare the client with information about the structural work required to install the grab bars. It is, however, unwise for therapists who do not have formal building qualifications to provide advice that is outside of their area of expertise. Occupational therapists understand the person-environment-occupation transaction but do not necessarily have knowledge of specific products, design and construction techniques, systems and structures, or building legislation. It is always advisable for therapists to seek further advice when environmental interventions require building or design expertise. Framework for Dealing With Elements in the Built Environment A deeper understanding of the built environment will assist therapists to appreciate the impact of the environment on the person-environment-occupation transaction. Therapists have a sound understanding of body structures and functions that allows them to understand the impact of impairments on function. They also possess a deep understanding 218 Chapter 9 Figure 9-8. Structure of a stud wall. of occupational performance that allows them to analyze the value and elements of various activities. A richer understanding of the environment and the elements within an occupational performance space and their associated structure will help therapists recognize the limitations of the existing environment. This assists in determining what can be altered and how it can be improved to support occupational performance. This understanding will also enable therapists to collaborate with builders and designers in developing modifications that fit with the person, the occupations he or she undertakes in the space, and the realities of the built environment. Elements in the built environment that need to be considered when designing modifications include: Ô Building structures Ô Service systems Ô Spaces and places Ô Products, devices, and technologies Ô User interfaces Building Structures Therapists need to appreciate the importance of structures in the built environment when developing environmental interventions. The structure of a house is found in the framework, which is composed of four basic parts: floors, walls, ceiling, and roof. In modification work, therapists are mostly interested in moving or removing walls or adding, modifying, or repositioning fixtures and fittings on walls, so it is important to understand how they are constructed and the functions that walls perform. In most houses, walls are constructed using 2-in × 4-in (50-mm × 75-mm) timber. They consist of a frame with studs or vertical lengths every 16 in (450 mm) to 24 in (600 mm) along the length of the wall. This frame is then covered with some type of sheeting, such as plywood, particleboard, fiberboard, plasterboard, or some other drywall material (Figure 9-8). Increasingly, stud walls are being constructed from steel rather than timber, which has implications for whether fixtures and fittings can be attached and what extra reinforcement or fixings are required. Walls can also be constructed of concrete blocking or masonry (brickwork), which is more difficult to remove or modify and requires special tools and fasteners to install fittings and fixtures. When items such as grab bars are installed on a wall, they need to be secured into the studs or other structural supports in the wall. The nature and location of these structures can determine whether a grab bar can be safely attached and where it or other accessories can be located. Alternative structural supports can be put in place if the wall structure is inadequate or if the studs are not located in the required positions; however, the advice of a suitably qualified building contractor or designer should be sought if there are concerns about the capacity of the wall to support these fittings. Although walls are mostly used to divide up interior spaces, some walls are load bearing and serve the additional function of supporting an upper floor, ceiling, and/or roof. Therapists need to be aware that a supporting or load-bearing wall cannot be removed without being replaced by a suitable support structure. This type of alteration requires the expertise of a building or design professional and can be costly. When considering any structural modification, it is advisable to employ a building or design professional to inspect the building to ensure that it is in good repair and able to accommodate the recommended changes. It is also essential to know what is behind the surfaces of walls, floors, and ceilings before work begins to avoid damage to service systems such as electrical wiring, plumbing, and ducting. Service Systems The service systems within a home include plumbing; wiring or the electrical system; and the heating, ventilation, and air conditioning system. Plumbing in residential structures involves the water supply system as well as the drainage system. The home’s electrical system is made up of wiring, outlets, and switches and has many circuits, each of which starts from a main service panel. The heating, ventilation, and air conditioning system includes the heating or Developing and Tailoring Interventions 219 Table 9-2. Common Attributes of Physical Environment Features Proposed by Sanford and Bruce (2010) SPACES AND PLACES • • • • • • • • Entry Circulation/level changes Orientation cues Configuration/layout Location of products, devices, and technologies Location of environmental controls Ground/floor and wall materials/finishes Ambient conditions PRODUCTS, DEVICES, AND TECHNOLOGIES • • • • • USER INTERFACES Product type Dimensions Weight Location of user interfaces Materials/finishes • • • • • • • • Type of interface Minimum approach Distance and angle Dimensions Activation force required Operational attributes Materials/finishes Feedback mechanisms Reprinted with permission from Sanford, J., & Bruce, C. (2009). Measuring the physical environment. In E. Mpofu & T. Oakland (Eds.), Rehabilitation and health assessment (pp. 207-228). New York: Springer. cooling unit as well as a series of ducts leading to and from various rooms in the house. Each of these systems has lines (pipes, wiring, and ducts) that run through the wall, floor, and ceiling cavities, which need to be considered when proposing changes. Due to the potential for service systems to be housed in walls, it necessary that care is taken when securing fixtures and fittings to the wall. Furthermore, it is important to note that these systems will also need to be relocated if the wall is being moved or removed. In some buildings, it is extremely costly or impossible to relocate systems, such as electrical wiring, power outlets, water pipes, and sewage and waste outlets. For example, relocating a toilet or a waste outlet in the bathroom would require the drainage pipes and outlets in the floor to be repositioned. Where this is possible, it can be costly, and in some constructions, such as a slab-onground construction, it is difficult to undertake such changes. Consequently, when looking to remodel a bathroom, for example, it is advisable to note the location of existing fixtures and fittings and plan to keep them in those locations or to account for the cost in relocating them when discussing the relative merit of designs and installations. Though therapists are not required to possess this building knowledge, it is important that they are aware of some of the limits to what is possible and seek the advice of a suitably qualified builder, designer, or contractor when investigating modifications that require changes to the building structures or systems. When working within the existing structure of a home, a number of design elements can affect occupational performance. These elements, or attributes, of the physical environment have been identified as spaces and places; products, devices, and technologies; and user interfaces (Table 9-2; Sanford & Bruce, 2009). Spaces and Places When considering the impact of the environment on occupational performance, it is useful to examine the spatial elements of the environment and whether these elements need to be altered to promote performance. Sanford and Bruce (2009) identify key spatial considerations to include the following: Ô Entry: Can the person approach the entry and negotiate the clearance through the doorway safely and efficiently? Ô Circulation/level changes: Is there adequate room for the person to move, approach, reach, and use various fixtures and fittings in the room? Are there any changes in levels to negotiate between areas? Ô Orientation cues: Is signage clear and appropriately located? Are key landmarks well lit, visible, and located in a logical position? Ô Configuration/layout: Is the layout logical in terms of the way the person uses the space? Does the size of the spaces, configuration, or layout allow the person and/or caregivers to maneuver equipment? Do these allow flexibility in use of space? Ô Location of products, devices, and technologies: Are the switches, outlets, and fixtures visible, accessible, and located in a logical place? Ô Location of environmental controls: Are the controls visible, accessible, and located in a logical place? Can they be operated or adjusted easily? 220 Chapter 9 Ô Ground/floor and wall materials/finishes: Are the floor materials appropriate for the activities being undertaken and the people using the space? Do the materials used create a suitable look and feel? Do the materials used assist in differentiating spaces for different purposes? Do the wall materials provide flexibility in supporting future fixtures and fittings? Ô Ambient conditions: Is the lighting adequate for the tasks being undertaken, and is it located in the appropriate area? Is the room a comfortable temperature for the activity being undertaken? Products, Devices, and Technologies Products such as fixtures, appliances, and building elements (e.g., flooring, doors, and windows) have characteristics that affect ease of use. Considerations identified by Sanford and Bruce (2009) include the following: Ô Product type: What products does the user need to interact with? Ô Dimensions: Do the fixtures fit into the space or location available (leaving adequate room for approach and operation)? Ô Weight: Can the fixtures and fittings be moved if required? Ô Location and size of user interfaces: Can the controls on the fixture be reached and operated easily? Are they visible and well lit? Can they be easily read? Ô Materials/finishes: Do the materials and finishes provide appropriate contrast, friction, or resistance? Can the fixtures and fittings be operated using limited force/dexterity? Do the fixtures and fittings provide adequate auditory and/or visual information to the user? Are they comfortable to use (temperature and texture of the surface against the skin, etc.)? Will materials and finishes stand up to the anticipated wear (to suit heavy equipment use or impact by equipment)? User Interfaces User interfaces include controls and hardware such as handles, knobs, faucets, locks, and handrails and grab bars. Electronic and mechanical controls and dispensers also affect use. Key considerations identified by Sanford and Bruce (2009) include the following: Ô Type of interface: What controls and hardware does the user need to interact with? Ô Minimum approach distance and angle: Can the controls/hardware be accessed easily? Ô Dimensions: Do the controls fit into the space and location available (leaving adequate room for approach and operation)? Ô Activation force required: Can the controls/ hardware be operated using limited force/ dexterity? Ô Operational attributes: What is the direction and distance that controls/hardware need to be moved? Can they be easily read and operated? Ô Materials/finishes: Do the controls/hardware provide adequate contrast/friction? Are they comfortable to use (temperature and texture of the surface against the skin, etc.)? Will they tolerate the way they are likely to be used? Ô Feedback mechanisms: Do the controls/hardware provide adequate auditory and/or visual information to the user? The number of design elements that require consideration can be overwhelming for new therapists. Consequently, checklists and frameworks for considering these elements systematically are quite useful. However, when attempting major modifications, the expertise of a designer or builder is essential. Therapists should not take responsibility for determining the suitability or integrity of the existing building for modification. They should, however, have sufficient understanding of the built environment to be alert to its limitations to enable them to collaborate effectively with builders and designers and to ensure that their recommendations are reasonable, the needs of the client are adequately addressed in the redesign, and the modifications do not present any unanticipated difficulties or complexities for the people living in the home. CONCLUSION This chapter has described the range of performance issues that older people and people with disabilities experience in the home and the range of intervention strategies occupational therapists use to address these issues. It has introduced a framework for analyzing the resources used during activities and identifying ways in which alternative strategies, assistive devices, social supports, and environmental modifications can address occupational performance concerns and further facilitate the person-environment-occupation transaction. The role of occupational analysis and clinical reasoning in designing client-centered interventions has also been examined. In particular, this chapter described considerations in determining the most Developing and Tailoring Interventions suitable intervention and tailoring it to the specific needs of the person, activity, occupation, and environment. Finally, this chapter has detailed the range of environmental interventions used to address occupational performance issues in the home and provided therapists with mechanisms for developing their understanding of the built environment. REFERENCES Adaptive Environment Center. (2002). Consumer’s guide to home adaptation. 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Saint Paul, MN: East Metro Seniors Agenda for Independent Living [SAIL] & Minnesota Department of Human Services. Retrieved from http://mngero.org/downloads/homedesign.pdf 10 Sourcing and Evaluating Products and Designs Desleigh de Jonge, MPhil (OccThy), Grad Cert Soc Sci and Melanie Hoyle, BSc (Psych), MOccThySt, Grad Dip Health Sci, Post Grad Dip Psych Therapists use a wide range of mainstream and specialized products and design solutions to address a variety of occupational performance concerns and difficulties. Consequently, they need access to a number of different information systems to locate information on what is available. They also need to be able to evaluate the relative benefits of each option to determine the best solution for each client and his or her household. The first section of this chapter overviews the information systems therapists can use to gain an understanding of environmental interventions and then examines the nature of information provided by each of these systems. Therapists can use these resources to locate suitable options for individual clients, to enable them to remain informed about developments in the area, and to build a body of knowledge about the range of interventions available. The second section of this chapter outlines a systematic process for reviewing and comparing products and designs and details considerations when evaluating the relative merits of various options. It identifies the information therapists require to undertake a thorough comparison of options and discusses the unique perspective clients bring to the decision-making process. It also highlights the benefits of drawing on the experiences of other therapists, designers, builders, and clients to understand the advantages and disadvantages of various products and designs. The role of evidence and standards in reviewing the suitability of options is also discussed, as are the evolution and principles of good design, which strive to ensure that products and designs used for older people and people with disabilities are aesthetic, flexible, and functional in the long term. CHAPTER OBJECTIVES By the end of this chapter, the reader will be able to: Ô Identify and discuss the benefits and limitations of various information systems used to gather information on products and designs Ô Describe a systematic process for reviewing products and designs Ô Identify key issues in evaluating the potential value and effectiveness of product and design solutions Ô Describe the development of design and the implications of design approaches for older people and people with disabilities - 225 - Ainsworth, E., & de Jonge, D. An Occupational Therapist’s Guide to Home Modification Practice, Second Edition (pp. 225-246). © 2019 SLACK Incorporated. 226 Chapter 10 SOURCING PRODUCT EVALUATING DESIGN OPTIONS AND AND When developing environmental interventions, therapists draw from a broad range of products and design solutions, including specialized and mainstream options. Consequently, they need access to information on specialized assistive devices for people with various functional impairments as well as the many generic building products on the market. They also need to understand various design approaches and be able to evaluate their suitability for each situation. Because there is an ever-increasing number and range of options and information on these is scattered across industries, information systems, and suppliers, it is often difficult for therapists to feel confident that they have a good understanding of all the options available. Information on Products and Designs To develop effective interventions, therapists need to actively develop their understanding of the broad range of specialized and mainstream options available. They need to know where to find information on products and designs and how to search for solutions suited to the unique requirements of each client. It is therefore important that therapists are aware of the information systems available and can use these effectively to locate suitable options for individual clients. When searching for potential options, these questions come to mind: Ô What products and design options exist? Ô Where are they available? Ô Who were they designed for? Ô How well will they suit the person’s identified needs? Ô How long have they been tested and available in the marketplace? Ô Why choose one product over another? Therapists need a good understanding of the range of options available and their specifications, such as size, shape, weight, and finish. They need to know where they are available and how much they cost. It is also important to be familiar with who the product was designed for because this gives therapists an indication of its potential strengths/limitations and the situations it best suits. Therapists should also have knowledge of how the product can be adjusted or customized as well as understand its installation, maintenance, and service requirements. Ultimately, therapists need to be able to specify performance criteria of the recommended product type and explain why these specifications are best suited to the situation. In the case of a legal challenge, therapists need to be able to defend their recommendations. To answer these questions, therapists need to access a range of resources to gather information. These include the following: Ô Company catalogues Ô Trade exhibits or information and display centers Ô Databases Ô Online resources: Dedicated home modification websites, as well as building, government, and community websites concerned with home renovation, modification, repair, and maintenance (e.g., checklists, buyers’ guides, renovation guides, and product reviews) Ô Professional publications and resources: Books, journals, and newsletters Ô Conferences and workshops Ô People with experience: Clients, professional colleagues, builders, and designers A list of some potential online resources is available in Appendix E. Company Catalogues Many specialist and mainstream building suppliers provide catalogues of their products, either in hard copy or online. These resources answer the “what” and “where” questions well because they can provide good graphics and specifications of the products in their range. They can also provide an upto-date price list and the contact details of suppliers in various locations. Generally, companies supply a defined range of goods, which means that therapists need to access a number of companies’ catalogues to understand the full range of options available. The clear photos or drawings of each product generally provided can be used when describing alternatives to clients. Sales representatives might also be able to provide a sample of the product to view or test in various situations. It is important to remember that sales representatives are paid to promote their products, so they will be able to describe the features and identify all of the advantages of their products. A discussion with representatives from a number of companies is usually required to develop a full understanding of the relative strengths and limitations of all options on the market. Company representatives may also be able to provide information Sourcing and Evaluating Products and Designs on whom the product was specifically designed for or situations where it is best suited. Additionally, they usually have knowledge of legislative requirements regarding installation such as council requirements, access standards and/or work health and safety compliance. Therapists would then need to ascertain whether the product would meet the specific requirements of each client and meet his or her particular needs. Catalogues are useful for therapists who have a clear understanding of the requirements of the client and his or her situation and well-developed professional reasoning skills that allow them to filter and analyze the information provided. Therapists with a good knowledge of the range of options should also ensure that they access catalogues from all relevant suppliers and not limit themselves to a restricted range of alternatives. It is also advantageous to have some experience with the application of the products or access to people who have used them so that sales information can be balanced with an understanding of how well products work in various situations. Trade Exhibits or Display Centers Trade exhibits or information and display centers are an excellent way for therapists to develop an overview of the range of products available and to keep up to date with recent developments. These resources provide therapists with similar benefits and challenges; however, having a number of companies and products co-located makes it easier to gather information on a range of options and to view and compare alternatives. It should be noted that, although these exhibits and display centers have many products on display, they might not be comprehensive or representative of all the products available on the market. They are likely, however, to showcase local suppliers and contractors, which is advantageous to people who are unfamiliar with resources in the area or who live in more remote areas where such resources are often scattered. Databases There are many specialist and mainstream databases that allow therapists to search for specific products. Most of these are now available online; however, some require subscription or membership. The advantage of using a database is that many of them feature consistent fields to describe the various products they have on file. This allows therapists to quickly access information on a range of options and compare specifications and costs. It is sometimes possible to search for products with specific features, thus allowing therapists to define their search and locate suitable products quickly. The 227 amount of information and graphics provided varies, and the currency of the information depends on how regularly the database is updated. Some of the information provided may be location specific, so it is important to use databases that have information on products from the appropriate region. Therapists with sound clinical skills and a clear idea of what they want from products are well placed to maximize the use of these resources. The volume of information available can be overwhelming for therapists who are new to the area. Once again, it is advantageous to have some experience with the application of the products or access to people who have used them so that information can be augmented with an understanding of how well the products work in various situations. Online Resources There are many dedicated home modification and building websites, as well as government and community websites that display a variety of resources related to home renovation, modification, repair, and maintenance. With the increase in the aging population, and disability and aged care reforms occurring in many countries, there has been an explosion of resources designed to assist older people and people with disabilities in identifying and addressing their home modification and maintenance needs. Many checklists, buyers’ and renovation guides, and product reviews can be uncovered with an online search engine. Several of these resources have been written specifically to assist the target population to identify and address their safety and function in the home as they age. In addition, a number of resources outline how to make homes accessible for people using wheelchairs or manageable when caring for someone with dementia. These resources can be particularly useful for clients and therapists because they provide an overview of issues and an introduction to potential solutions, especially lowcost options. They may or may not provide details of specific solutions or products and, if they do, the information may be location-specific. These resources can be useful for clients and novice therapists; however, it is important that therapists check the authority of these sites by confirming, against other resources, the expertise of the authors and the validity of the information provided. It is also advisable to be aware of the domain of the website and to interpret the information accordingly. For example: Ô .com is a commercial site Ô .org is a community organization Ô .edu is an educational institution Ô .gov is a government site 228 Chapter 10 Further, there are also a range of social media and social networking sites (refer to Chapter 9) that enable clinicians to disseminate and review information and connect to share and discuss issues and gain collegial support respectively. Each of these site types has a function and perspective that need to be considered when assessing the authority and validity of the information provided. Therapists need to dedicate time to becoming familiar with, and regularly reviewing, resources on the internet. Experienced therapists are well placed to piece together these scattered resources and direct new therapists and clients to the best resources available. Professional Publications and Resources There are an increasing number of books, journals, newsletters, and websites that provide information related to home modifications. Books written by occupational therapists and other industry-related professionals on home modifications provide therapists with an understanding of a range of solutions; however, the qualifications and experience of the authors, the frames of reference from which they operate, and the focus of the book can define the range of options presented. For example, occupational therapists will generally seek to define the specific needs of the client before detailing the potential options. They also see environmental interventions as part of a suite of interventions and will, therefore, discuss these in conjunction with alternative strategies, assistive devices, and supports. On the other hand, books written by building and design specialists will provide details of alternative designs without necessarily identifying who they best suit or alternatives to costly renovations. However, these texts allow therapists to develop their understanding of the range of options and necessary considerations when designing environmental solutions. Books do not generally refer to specific products but might provide a list of suppliers relevant to the location of the publication. It is important, however, to be aware that the information may be dated, given that books generally are not frequently revised. A range of books has been written on aspects of home design for people with specific requirements, including older people, people with dementia or vision impairment, or wheelchair users. Some books focus exclusively on low-cost modifications to existing premises and others describe design elements that need to be incorporated into the design of a new home or in extensive renovations of an existing home. Journals and newsletters might also discuss and evaluate various intervention approaches or provide reviews of products. Several websites are dedicated to home design, construction, and modification. These sites are a repository for publications, reviews, and information on training and education opportunities, and they often provide links to other relevant sites. By monitoring these information resources, therapists can develop a broader understanding of the effectiveness or usefulness of various interventions and products and can search for more specific details when relevant situations arise. Therapists who need an overview of the area and an understanding of the range of possible solutions available will find such resources invaluable; however, they would also need to ensure they are well informed about current products and design approaches in their local area. Conferences and Workshops Conferences and workshops are useful in assisting therapists to understand the range of interventions, approaches, and products available and in helping to develop an awareness of existing services and expertise. The location of the conference or workshop and the background and experience of the presenters might be considerations in applying the information directly to clinical practice. Therapists might need to evaluate whether the approach, products, or designs are well suited to the needs of their client group and location. These resources provide therapists with benefits and challenges like those provided by professional publications and resources; however, novice therapists might find workshops a more efficient way of getting the basic knowledge and skills they require because the expert presenters often collate current information from a range of resources and tailor it to the background and level of experience of the workshop participants. More experienced therapists are well equipped to use information presented at conferences and will benefit from having access to the range of home modification experts and exhibitors who attend international, national, and regional conferences. Specialist Education and Training Home modification practice requires therapists to develop specialist skills and knowledge. In addition to identifying occupational performance difficulties in the home and addressing these using alternative strategies, assistive devices, and social supports, therapists are required to understand how and when the environment can be modified. Many therapists seek additional training or courses to extend their knowledge of the built environment. These courses introduce therapists to building practices, various design approaches, products, and finishes and show how to navigate funding systems and modification Sourcing and Evaluating Products and Designs services and manage building processes. This understanding complements the clinical knowledge therapists have and the reasoning they use to address occupational performance difficulties and concerns in the home. Additionally, it enables them to work more effectively with designers and builders in developing effective home design solutions. People With Experience Clients, professional colleagues, builders and designers, and suppliers with experience designing, supplying, or using home modifications can be invaluable in assisting therapists to identify alternatives or select and tailor environmental interventions to individuals’ needs. With the explosion of social networking, social media, and communication technologies, therapists have ready access to a diverse group of people with expertise and experience. Discussing situations with professional colleagues or building and design professionals can help clarify issues and solve problems associated with difficult scenarios. People with specialist skills and knowledge or experience using products and designs over extended periods can provide insights into what does and does not work well in different situations. They often have extensive knowledge of the products and designs that can be supported locally and the quality of after-sales and maintenance services for various products. Older people and people with disability who have experience with negotiating environments and living with products and designs also have a wealth of valuable experience and knowledge from which to draw. These resources are of value to novice and experienced therapists alike, allowing them to make use of the experience of others to complement their own skills and knowledge and develop the best possible solution for their clients. Reviewing Product and Design Alternatives Once the range of alternative products and designs has been identified and located, each option must be evaluated to determine the best one for each situation. When evaluating the suitability of designs or products, therapists need to ask the following: Ô For whom has the product/design been developed? Ô How well will the product/design meet the client’s specific requirements? Ô How long has the product/design been tested and available in the marketplace? 229 Ô Why choose one product/design over others? There are many considerations when examining the origin of products and designs. First, design and product requirements can vary between countries and regions. Therapists need to ensure that designs and products they recommend meet the requirements of their national and local standards or building codes. For example, design standards or building codes for a region with a low-density population, high winds, or low rainfall might not reflect the standards of a region with a high-density population and heavy snowfall. Second, commercially available products are generally designed for the mainstream market and might not acknowledge the diversity of function in the broader population. Therapists therefore need to be mindful of the needs of their client group and individual circumstances when assessing the suitability of various mainstream products and designs. For example, many fittings require fine motor control that can be problematic for older people and people with disabilities. In addition, labels or indicators are often difficult to see or read, and even specialized products or designs can be developed with one disability group in mind. For example, products and designs developed to address the needs of wheelchair users with full upper limb function might not readily address the needs of people with other disabilities. When choosing the most suitable product for a client or situation, therapists need to think about the client’s specific situation and consider the strengths and limitations of each option in relation to their requirements. Each product or design should be evaluated in terms of how well they will: Ô Be used by the client, given his or her physical, cognitive, sensory, and emotional capacities Ô Enable the client to complete the occupation in his or her preferred manner Ô Fit with the physical, personal, social, temporal, occupational and societal dimensions of the environment. In addition, each option needs to be compared in terms of the following: Ô Product features and specifications Ô Clients’ priorities and preferences Ô Experience of the product or design Ô Existing evidence of the benefits of the product or design Ô Conformity with design or product standards or building code requirements Ô Good design practice 230 Chapter 10 Furthermore, it is beneficial to know how long the products and designs have been available in the marketplace. This will provide information about whether the product, for example, has been tried and tested extensively, whether there is likely to be service support for setup and maintenance/servicing, whether parts are available, and whether there are people who can comment on its suitability for their circumstance. Such knowledge will guide practice decisions about a product’s application and use. Product Features and Specifications When reviewing products and designs, it is useful for therapists to gather information on the features, specifications, and cost of each option so that they can be systematically compared. Therapists often develop templates that allow them to gather all the information they need when considering the suitability of options. These templates can include: Ô Name of product and a description Ô Models Ô Appearance, a graphic Ô Specifications Ô Price range Ô Warranty Ô Construction (what the product is made of) Ô Installation requirements comparing options and ensure that the comparisons account for the long-term impact of solutions as well as immediate expenses. Consumers’ Priorities and Preferences Clients are often not afforded sufficient choice and control over the home modification process, which can result in them feeling disempowered (Aplin, de Jonge, & Gustafsson, 2015; Hawkins & Stewart, 2002; Heywood, 2004; Sapey, 1995) and dissatisfied that their priorities and preferences are not reflected in the outcome. Professionals often have knowledge of and experience with a range of products and designs and have assessed their functional suitability. However, clients are best placed to evaluate how suitable the products or designs would be for his or her situation and how well they will fit with the look and feel of the home, the people who live there, and the many activities that are undertaken in it. Clients can often have quite different views of their homes and needs to service providers, and this can impact on how they value advice and their willingness to proceed with recommendations (Aplin et al., 2015; Auriemma, Faust, Sibrian, & Jimenez, 1999). It is therefore crucial that the client’s experience of home is valued during this decision-making process. When clients are evaluating products and designs, they are most often concerned with the following: Ô Appearance Ô Care and maintenance requirements Ô Cost Ô Advantages and limitations Ô Longevity (including suitability over time and accommodation of future needs) Ô Compliance with relevant standards or building codes Ô Suppliers and services able to fit and maintain the product Ô Notes regarding supply (e.g., availability and after-sales support) When considering the cost of interventions, as well as the original purchase price, it is also important to consider the installation, maintenance, and replacement costs (Andrich, 2002). Further, the social cost of various options also needs to be examined (Andrich, 2002). For example, the cost of formal or informal support as an alternative to the product or design can be prohibitive. Although the cost of formal support can be readily calculated, the cost of informal support can be overlooked. Therapists need to be mindful that it might be more cost-effective to employ a product or design rather than recommend the provision of formal or informal support as an alternative (Chiatti & Iwarsson, 2014; Heywood & Turner, 2007; Scottish Government, n.d.). These issues are important considerations when Ô Safety Ô Privacy Ô Support meaningful activities and routines Ô Availability Ô Functionality or usability Ô Independence Ô Impact on other household members or visitors Ô Adaptability and suitability Ô Installation or construction requirements Ô Care requirements Ô After-sales support Ô Anticipated lifespan Modifications can sometimes have a clinical appearance, which might not fit well in the home environment (Duncan, 1998). Complying with design standards or building codes designed for public buildings and spaces can also result in modifications having an institutional appearance, which is not Sourcing and Evaluating Products and Designs generally in keeping with residential environments (Lund & Nygard, 2004). Furthermore, clients report frustration when service providers adhere to building codes which can result in modifications that do not suit his or her preferences and needs (Aplin et al., 2015). It is important that products and designs are well suited to a domestic situation, are in keeping with the style and décor of the client’s home and reflect personal preferences. When deciding on modification designs, in the forefront of clients’ minds is often their wish for enhanced safety, privacy, and independence (Aplin, de Jonge, Gustafsson, 2013). Modifications, therefore, must provide safety and consider the need for privacy. This includes both the privacy needs for private activities such as toileting and bathing, but it also extends to having a private space of one’s own in the home. Though clients are often mindful of the costs associated with home modifications, they are also likely to want quality products, designs, and finishes in their home. Many therapists can let the expectations and restricted financial resources of the subsidizing organization determine their choice of products and designs (Rousseau, Potvin, Dutil, & Falta, 2001). However, the cheapest option is not always the best value. Additionally, the future is an important consideration for clients where, for example, deteriorating health or the growth of the child should be accommodated in designing modifications (Aplin et al., 2013). Modifications that do not fully satisfy the current and anticipated needs of the household can result in wasted expenditure (Home Adaptations Consortium, 2013). Householders often have pragmatic concerns when reviewing alternative options. Once they decide to proceed with the modification, they want to ensure minimal delay and disruption. Consequently, they might show a preference for products that are readily available and choose designs that have been used locally, especially if they can view the finished product prior to confirming choice. Another important consideration is usability, or the extent to which an individual’s performance and activity patterns can be fulfilled in an environment (Bernt & Skar, 2006). Potential usability is best judged by the individual who will be using the product or space and is likely to be influenced by his or her experiences and expectations (Steinfeld & Danford, 1999). Because performance and activity patterns can vary from day to day or throughout the day, it is important to consider the capacity of the product to support or to be adjusted to account for these variations. Further, clients will seek modification designs that will provide the most opportunity for independence and freedom in the home (e.g., 231 freedom of movement and ability to have choice in what activities they do at home; Aplin et al., 2013). When there are a number of people using the product or space, its ability to accommodate all users needs to be examined. This includes the potential impact of the product or design on other household members as well as regular visitors. The installation or construction requirements might also be a matter for consideration when reviewing alternatives. Some clients find it difficult to tolerate major disruptions to their routines or households and might prefer an option that is less intrusive in the short term. It is therefore important that they are made aware of potential disturbances associated with product and design choices. In addition, the care requirements may prove problematic for some clients. For example, although textured flooring provides good grip and reduces the risk of slipping, it is more difficult to clean, especially for people with reduced mobility and upper limb strength. Over time, the buildup of soap and grime can make these floors more hazardous. The availability of after-sales support for products or the construction is also of interest to clients, who are often responsible for the repair and replacement of the modification to his or her home. Clients wanting value for money will also be concerned with the lifespan of the product. Selecting a product with a longer lifespan, even if it costs more initially, might be preferable and less expensive in the long term. Experience of the Product or Design Therapists, designers, and builders with extensive experience in home modifications can draw on this wealth of knowledge when selecting products and designs. They usually know how well a product or design works in various situations and the range of people who have used the intervention successfully. These professionals may also be aware of difficulties encountered in acquiring, installing, adapting, or getting approval for a solution in a variety of situations or locations. Experienced therapists, designers, and builders can, similarly, have a good understanding of the lifespan of products and designs that have been used over time. This information assists in anticipating how well certain materials and finishes can stand up to wear and tear in a range of situations. Follow-up with clients provides therapists with information on the usability of interventions, care requirements, and the responsiveness of after-sales support. Seeking feedback from clients and monitoring their experience over variable periods is an effective way of accumulating experience of various products and designs. This enables therapists to gain a richer understanding of the application of 232 Chapter 10 products and designs in a range of situations. It is especially valuable in identifying any unexpected issues in relation to the following: Ô Acceptance Ô Cost Ô Functionality or usability Ô Adaptability and suitability Ô Installation or construction Ô Care and repair Ô After-sales support Ô Lifespan As noted previously, these issues are also important considerations for clients. Therapists often encounter challenging situations that require products or designs with specific features and functions. Those with limited experience can benefit greatly from discussing options with their more experienced colleagues. Listservs and social networking sites where people come together online to discuss issues can be an effective medium for therapists seeking information and opinions from a wide range of experienced people. Useful information can also be gained from examining products and designs in public environments that receive extensive use. Products and designs commonly used in the building industry can also give an indication of their reliability and cost-effectiveness. Existing Evidence of the Benefits of the Product or Design Therapists draw on a range of evidence when designing interventions and evaluating the suitability of various products and designs. Evidence-based practice requires that the best available information or evidence is integrated with clinical experiences and expertise and with due consideration of the clients’ priorities and preferences (Sackett, 2000; Turpin & Higgs, 2009). It is therefore important that therapists review the nature of evidence they are accessing and consider its dependability and generalizability carefully in light of their own experience and expertise and the priorities and preferences of their clients. There are various types of evidence, including the following: Ô Anecdotal material (e.g., home modification listservs) Ô Expert opinion or theoretical/unsystematic literature reviews or standards Ô Case (i.e., case series and case comparative) Ô Observational (i.e., cohort studies, pre- and post-test studies, and cross-sectional and longitudinal studies) Ô Quasi-experimental (i.e., no randomization) Ô Randomized controlled trial (RCT) Ô Systematic review (Bridge & Phibbs, 2003) Each of these types of evidence provides a different type of information, which varies in terms of its applicability to specific situations, level of dependability, and ability to demonstrate the benefits of a particular intervention (Turpin & Higgs, 2009). Anecdotal information and expert opinion can be based on accumulated experience and often provides the detailed and practical information required when considering specific situations and local products and designs. Therapists should be aware, however, that these sources are prone to bias; the information is likely to be shaped by personal preferences and unique experiences. Similarly, case-based, observational, and quasi-experimental studies can provide detailed information about interventions, the contexts in which they have been applied, and the changes that resulted from these. It is important to note, however, that the observed changes might also be attributable to other variables that have not been controlled for. RCTs and systematic reviews provide dependable information about the outcomes of interventions because they are structured to control for confounding variables and to minimize potential bias. For example, a 2011 RCT reviewed the effectiveness of an environmental assessment and modification intervention in the prevention of falls in older people (Pighills, Torgerson, Sheldon, Drummond, & Bland, 2011). However, to date, these types of studies have tended to examine the impact of home modifications generally and in combination with a range of other interventions, and research on specific home modification interventions and their relative impact in a variety of situations is limited. Table 10-1 reviews the advantages and disadvantages of various types of evidence as described by Bridge and Phibbs (2003). Although applied research comparing the effectiveness of various environmental interventions for populations is limited, research on home modifications is increasing (Box 10-1 includes current evidence on grab bars). Literature about many traditional occupational therapy interventions is in the category of health; however, home modification and related literature can also be found in other fields of study, such as social sciences and architecture. Chapter 14 provides more detailed information on home modifications research. Sourcing and Evaluating Products and Designs 233 Table 10-1. Advantages and Disadvantages of Various Types of Evidence TYPE OF EVIDENCE ADVANTAGES DISADVANTAGES Anecdotal material • May assist in reconceptualization of problem area • May add to knowledge in terms of scoping variables or measurement methods • May be based on hearsay • May not clearly indicate assumptions or method • May be faulty or inaccurate Expert opinion/ theoretical/ unsystematic literature review/standards • May assist in reconceptualization of problem area • May add to knowledge in terms of scoping variables or measurement methods • May be based on hearsay • May not clearly indicate assumptions or method • May be faulty or inaccurate Case (i.e., case series and case comparative) • May generate hypotheses • Less expensive than other research designs • Can have large sample sizes • No statistical validity • Hard to control for confounders as no controls • Subject to recall bias as retrospective • Difficult to demonstrate causality Observational (i.e., cohort studies, preand posttest studies, cross-sectional and longitudinal studies) • Most reliable observational data are cohort studies because there is no recall bias and can ensure baseline similarities between groups • More reliable answers and less statistical problems than case control • Can take a long time • Can be an expensive, large-scale undertaking • Useful when randomized studies are inappropriate • External factors can change over time with panel or longitudinal data Quasi-experimental (i.e., no randomization) • Remains experimenter controlled • Most reliable when variables of interest and controls for these made explicit • Because variables not fully controlled may exhibit selection, performance, and measurement bias RCT • Provides evidence with causality • Considered “gold standard” in health research • Random allocation balances known, unknown, and unmeasurable confounding variables • Greater confidence that conclusions are attributable solely to intervention manipulation • Reduces selection bias • Blinding reduces measurement and performance bias • Provides evidence of causality • Assumes variables can be controlled and groups appropriately matched • Assumes randomized blind allocation of intervention is given ethical clearance by relevant human ethics review board • Very expensive in terms of time and money • May be compliance and participant attrition problems • Blinding and random allocation can be problematic Systematic review • Attempts to answer a particular research question in an evidence-based manner • Provides policymakers with a summary of available evidence • Effectively maps the inputs and outcomes under review • Cutoffs for inclusion may be too high or too low • Question under consideration may not be specified properly (i.e., it may be too broad or too specific) • Results capture a snapshot of published research at a particular time interval so results must be interpreted in relation to currency of information and change in the body of knowledge being reviewed Reprinted with permission from Bridge, C., & Phibbs, P. (2003). Protocol guidelines for systematic reviews of home modification information to inform best practice. Sydney, Australia: Home Modification Information Clearinghouse, University of New South Wales (UNSW): Sydney. Retrieved from https://www.homemods.info/about/administrative-publications/protocol-guidelines-for-systematic-reviews-of-home-modificationinformation-to-inform-best-practice#main-content. Table 4: Study design definitions. 234 Chapter 10 Box 10-1. Grab Bars—Current Evidence Grab bars are commonly installed to compensate for age-related deficits (impaired balance, range of motion, strength, and endurance) and to enable safe and independent transfers on and off toilets and in and out of baths and showers (Axtell & Yausda, 1993; Struyk & Katsura, 1988; Tideiksaar, 1997). Evidence is emerging that they may assist in preventing falls (Sattin, Rodriguez, DeVito, & Wingo, 1998). They are a common fitting in people’s homes with seniors installing two grab bars on average, (Clemson & Martin, 1996; Plautz, Beck, Selmar, & Radersky, 1996). Although some studies report that community-dwelling individuals commonly own grab bars (Parker & Thorslund, 1991; Sonn & Grimby, 1994; Trickey, Maltais, Gosselin, & Robitaille, 1993), others suggest that they may not always use them. In one study, only one participant reported using the grab bars present at the time of the fall; most participants did not use grab bars because the grab bars felt awkward or unsafe to use (Aminzadeh, Edwards, Lockett, & Nair, 2000). Such findings highlight the need for occupational therapists to be careful about grab bar recommendations in relation to other options such as equipment. WHICH CONFIGURATION IS BEST? Multiple grab bar configurations may be used by people who present with a diverse range of health conditions or disabilities (Kennedy, Arcelus, Guitard, Goubran, & Sveistrup, 2015). It is important to use clinical reasoning to determine the most appropriate configuration of grab bar. Current literature discusses a range of options for positioning of grab bars including, for example, options for people who are seated on toilets and who engage in sit-to-stand transfers. These ideas include: • Positioning the horizontal grab bar 4 cm above the person’s greater trochanter when he or she is in the seated position (Bridge, 2003; McDonald, 1997; McDonald, Bridge, & Smith, 1996; Ongley, 1999; Roland, 1996). This recommendation needs to be treated with caution as a small sample size was used in the original research and the findings cannot be generalized • Positioning the shoulder at 90 degrees flexion and elbow at 150 to 180 degrees flexion to determine the location of the grab bar (Woodson, 1981). This recommendation needs to be treated with caution as not all people like to pull on a grab bar when moving from sitting to standing. • Aligning the grab bar on the nonaffected side of body (O’Meara & Smith, 2006) Other research indicates the following findings: • Vertical grab bars are suited to stage 1 and 4 of sit-to-stand transfers (Chan, Laporte, & Sveistrup, 1999; Laporte, Chan, & Sveistrup, 1999); they require a pull-up action; they reduce total range of motion at hip, hip extension torque, movement needed at knees; they reduce perceived pain levels; and higher rails reduce biomechanical load. • Angled grab bars suit stages 1 and 4 of the sit-to-stand transfers and allow for flexible hand placement as the person moves (Chan et al., 1999; Laporte et al., 1999). • Horizontal grab bars require a push-up action, assist weightbearing, and support the forearm, but if they are too high or too low, they will not assist momentum and postural stability; they also require larger forces and kinetic and kinematic outcomes observed (Bridge, 2003; O’Meara & Smith, 2002, 2005, 2006) • Unilateral grab bars » Suit stages 2 and 3 of sit-to-stand transfers (Chan et al., 1999; Laporte et al., 1999) » Suit people with lower limb weakness and asymmetrical conditions » Need to be placed ipsilateral for hip and ankle conditions or contralateral for knee joint problems (O’Meara, 2003) • Bilateral grab bars » Suit people with kyphosis, lordosis, back pain » Ensure symmetry of body position, the alignment of center of mass and center of pressure (Chan et al., 1999; Laporte et al., 1999) » Allow the alternating of hands and bilateral hand use (e.g., when someone needs to stand to adjust his or her clothes) Most international access standards for countries such as the United States, Canada, and Australia recommend multidirection rails in public bathrooms. Occupational therapists are choosing to use this information to guide their practice and some nongovernment and government organizations are making it mandatory for their services to install grab bars to match this information in domestic homes rather than tailor the installation to suit the clinical requirements of the person (refer to Chapter 4 for a discussion about the relevance and intent of access standards for home modification work). (continued) Sourcing and Evaluating Products and Designs 235 Box 10-1. Grab Bars—Current Evidence (continued) Sanford, Arch, and Megrew (1995) found that toilet grab bar configurations preferred by most nonambulatory older adults did not comply with either American or Canadian building code regulations (Kennedy et al., 2015). Sanford and Bosch (2013) also compared an American With Disabilities Act Accessibility Guidelines (ADAAG)–compliant design with alternative designs for people needing assisted toileting. The ADAAG is a set of prescriptive requirements for accessible design in public facilities. Findings indicated that caregivers preferred the largest of the tested configurations, where there were two fold-down grab bars provided and the center line of the toilet was 30 in from the sidewall rather than the 18 in required by the ADAAG. Caregivers perceived the grab bar locations as better for helping them safely transfer subjects in a modified (non-ADAAG) configuration, and also that the grab bar style in a modified (non-ADAAG) configuration improved safety when transferring subjects. Although not statistically significant, there was a general downward trend in the number of incidents with the folddown grab bars compared to the side-mounted grab bar, and fewer incidents associated with an increase in the amount of space provided adjacent to the toilet. These international access standards can provide some helpful information to guide grab bar recommendations (such as detail on how to describe, measure, and draw grab bars in different environments), but they should not be used as the starting point for clinical reasoning. Occupational therapists need to be mindful that the grab bar configurations for ambulant or wheelchair users may not suit the specific needs of their clients. For example, this is particularly relevant if clients are of short stature, have shoulder pain or limited reach and grasp, are in the bariatric range, and/or take pain medication affecting their toileting. Further, the home environment may not have a shower or toilet configuration matching those described in the access standards for the location of the grab bar. Equipment that is not described in the access standards (such as mobile shower commodes) and the presence of a carer with their specific access requirements also need to be considered when determining the best grab bar product and location. WARNING! There are specific situations where grab bars should not be installed. For example, occupational therapists need to check with design and construction professionals about whether it is appropriate to install any type of grab bar that may pierce the waterproof lining on the bathroom floor. This may include grab bars that are swing-away (mounted to a post that fastens to the floor), wall-to-floor, or floor-to-ceiling grab bars. Occupational therapists should not encourage clients to use suction rails as these are not designed for weightbearing. Similarly, if builders wish to use toggle bolts to fasten rails to walls rather than securing them into studs, the grab bars may not hold on the wall, depending on the thickness of the wall material and the weight placed on the grab bar by the user. The following databases can be useful for locating literature on home modifications and environmental design: Ô Health-related databases: Pubmed (www.ncbi. nlm.nih.gov/pubmed/), OTseeker (www.otseeker.com), OTDbase (www.otdbase.org), and Cinahl (https://health.ebsco.com/products/ the-cinahl-database) Ô Social-sciences databases: Social Services Abstracts, Sociological Abstracts, and Ageline (aging-related information in psychological, health-related, social, economics, public policy, and the health sciences) Ô Architectural databases: The Avery Index to Architectural Periodicals, and Architectural Publications Index These databases access literature on theoretical frameworks, literature reviews, and research published in refereed journals and can be searched using keywords or broad search terms. In areas of practice with vast quantities of research, it can be useful to confine searches using specific terms related to the problem, intervention, client group, and outcome (PICO). For example, if searching for research on grab bars to assist older people into and out of the bath, the search would be defined as follows: Ô P—Problem: Getting in and out of the bath Ô I—Intervention: Grab bar Ô C—Client group: Older people Ô O—Outcome: Increased safety and independence Other terms would also need to be included in the search to ensure that all relevant literature was identified. For example, the bath might be referred to in some studies as a tub; older people are also referred to as elders; grab bars are called grab rails in some countries; and some studies might also 236 Chapter 10 identify outcomes as reduced falls or hospitalizations. It is useful to seek the assistance of a librarian when developing a list of search terms because they are aware of alternative terms and terms used in different databases, such as the Medical Subject Headings terms. Some databases also provide advanced search strategies that allow the user to define the age range of the subjects and nature of the studies (e.g., RCTs). Using specific PICO search terms assists in narrowing the search to the most relevant studies; however, targeted research is limited in many areas of occupational therapy practice. In home modification practice, it is advisable to use broad terms to ensure that all relevant literature is located. Systematic reviews of research can be located in the Cochrane Collaboration (www.cochrane.org/ reviews). Cochrane reviews examine the evidence for and against the appropriateness and effectiveness of a range of interventions in specific circumstances based on the best available information. For example, reviews have examined the impact of home modifications on the reduction of injuries (Lyons et al., 2006) and interventions for preventing falls in older people (Gillespie et al., 2009). The Home Modification Information Clearing House (www.homemods.info) is also a valuable resource, providing evidence-based reviews on a range of home modification-related interventions, such as coatings for tiled floors (Whitfield, Bridge, & Mathews, 2005), designing home environments for people who experience problems with cognition and who display aggressive or self-injurious behavior (Hodges, Bridge, Donelly, & Chaudhary, 2007), and selecting diameters for grab bars (Oram, Cameron, & Bridge, 2006). Additionally, the genHOME project (https://www. rcot.co.uk/about-us/specialist-sections/housingrcot-ss/genhome) is a collaboration between academics, practitioners, researchers and members of the public supported by the Royal College of Occupational Therapists, United Kingdom (RCOT), which seeks to raise the quality and impact of research related to housing design and home modifications (RCOT, 2017). This project aims to achieve this goal by identifying research priorities, building evidence, facilitating interdisciplinary research, promoting efficient use of research resources, influencing policy and legislation, and providing a means for creating and sharing information between health professionals (RCOT, 2017). There is also a wealth of information of relevance to home modification practice in legislative and regulatory documents and on the internet and, in particular, on websites and social media dedicated to home design and modification, and in the grey literature such as non-refereed publications posted on the internet, social media sites, industry newsletters, and manufacturers’ specifications (Bridge & Phibbs, 2003). It is important that therapists carefully evaluate information for its relevance, dependability, and generalizability and consider their own experience and expertise and the priorities and preferences of their clients before applying it in practice. Conformity With Standards, Guidelines, and Codes Legislative and regulatory documents are particularly important when selecting and designing environmental interventions and evaluating the suitability of various options. Many products and designs are governed by design and installation requirements detailed in various standards, guidelines, and codes. Therapists need to be aware of these documents and ensure that proposed products or designs meet the appropriate requirements of their region or country. The three national standards that guide the accessible design of buildings in the United States are the following: 1. Americans With Disabilities Act and Architectural Barriers Act (ADA-ABA) Accessibility Guidelines (United States Access Board, 2004/2014) 2. The Fair Housing Accessibility Guidelines (U.S. Department of Housing and Urban Development, 1990) 3. American National Standards Institute [ANSI] ICC A117.1-2009—Accessible and Usable Buildings and Facilities (ANSI, 2010) Because the specifications in these standards relate specifically to the design of public buildings and multifamily dwellings and units, they do not apply directly to the design of single-family houses, except where elements are included in local building codes. Model building codes that serve as a basis for local codes might include accessibility requirements for specific building projects within their jurisdiction. Elements of these standards can sometimes be used in the design of new homes or the modification of existing homes to promote access and mobility within the dwelling. Designers can depart from technical and scoping requirements in these guidelines when they can demonstrate that alternative designs and technologies can provide equivalent or greater access to, and usability of, the facility. In addition, variations to the specifications detailed in building standards are often required in residential settings Sourcing and Evaluating Products and Designs when residents have particular requirements or when design is limited by existing topography of the land, building structures, service systems, and space restrictions. There are several design elements specified in these standards, which include the following: Ô Dimensions (e.g., the height, width, depth of clearances and spaces, and size and location of various fixtures and fittings) Ô Features of fixtures and fittings (e.g., level handles on doors and drawers or taps) Ô Structural and technical requirements (e.g., sheer forces, maximum slope, maximum length of ramps, minimum height of edgings, minimum space between rail and wall) Ô Materials and finishes (e.g., the nature of surfaces and edges) Dimensions and the features of fixtures and fittings detailed in these accessibility standards allow adults with disabilities to function in buildings. The standards are designed to ensure adult wheelchair users can independently move into and through the structure and use various controls. These specifications provide a useful reference when designing modifications for individuals similar in stature, size, and functional ability who are using similar assistive technologies to those for whom the standards were designed. However, many young clients with multiple and severe impairments and older clients with comorbidities and secondary conditions do not fit this profile and require dimensions and features to be tailored to their specific requirements (Sanford, 2012; Steinfeld & Shea, 1993). Additionally, it is important that therapists are aware that many standards are based on research from past periods and that changes in user demographics and advances in technology can and will likely impact on the suitability for applying standards to specific situations or client circumstances in current times (Steinfield, Maisel, Feathers, & D’Souza, 2010). Therapists are often well placed to assist in customizing designs to the specific requirements of an individual because they can determine the circulation space each person requires to move throughout the home and maneuver in various areas. They are also able to measure each individual and his or her equipment to determine the best location for various fixtures and fittings. Therapists’ understanding of function and occupational performance allows them to define and identify design features that promote better performance. In addition, their observations of daily routines assist them in understanding how spaces and controls are used and when and where people are provided with assistance. Because most 237 standards do not consider the requirements of people who rely on assistance (Sanford, 2012), dimensions detailed in these documents often need to be modified to accommodate the spatial requirements of caregivers during tasks and the equipment they might use in their routine with the client. The structural and technical specifications in the standards ensure the safety of people using the building. Engineering evaluations have determined the structural strength requirements of fixtures and fittings, such as grab bars, tub and shower seats, fasteners, and mounting devices, under regular use by people within the average weight range. It is inadvisable to select products or design modifications that do not meet these requirements without the advice of an engineer or suitably qualified consultant. Therapists should check that products have been certified as meeting these specifications and that contractors are aware of the requirements when installing these fixtures and fittings. Promotional materials produced by suppliers that make a general statement that their products meet accessibility standards are not sufficient proof. Therapists should seek supporting documentation and ensure that the product meets all the specifications. For example, some products might meet the requirements in terms of dimensions but may not meet, or only partially meet, the structural strength requirements. In the ADA-ABA, specifications relating to the structural strength of shower “compartment” seats state that “allowable stresses shall not be exceeded for materials used where a vertical or horizontal force of 250 pounds (1,112 Newton) is applied at any point on the seat, fastener mounting device, or supporting structure” (ANSI, 2010, p. 62). For example, therapists would want to ensure that shower seats under consideration are able to substantiate their claims for meeting both the vertical and horizontal force requirements. Further, therapists working with people who are outside of the average weight range would need to select products that have been designed to withstand the additional forces to which they are likely to be subjected. It is particularly important that any imported products meet the legislative building requirements of the country where they are to be installed. For example, many grab bars made in the United States designed to meet the ADA-ABA would withstand a lateral load of 250 pounds (1,112 Newton). However, these would not meet the requirements set out in Australia where the accessibility standards require grab bars to withstand 1,100 Newton in all directions. It is important that therapists are aware of the specific building and plumbing legislation for the area(s) in which they are making recommendations as these 238 Chapter 10 are often region specific and variations between regions are not uncommon. For example, slip resistant surfaces must be provided on any ramp or set of stairs as per the requirements of building legislation in specific countries. Further, some legislation refers to access standards for large external modifications that must be installed in domestic homes, but others do not. Regarding access standards, the gradient or slope and maximum height and length of ramps detailed in these documents have been determined as being functionally appropriate for most adults with disabilities (Sanford, Story, & Jones, 1997). It is therefore advisable to design ramps to these requirements unless it is determined that the client or the attendant is unable to manage a ramp with these specifications. In these situations, therapists can recommend that the ramp be designed to specifications greater than the minimum required by the standards if this is practicable in the environment and if there is no legislative requirement to comply with the standard. In some situations, the ramp might need to be made steeper or the length shortened due to environmental constraints. In these situations, the therapist would need to demonstrate that the client has the capacity to traverse a steeper or shorter ramp and provide justification for deviating from the standard (Canada Mortgage and Housing Corporation, 2005, 2016). Support for varying from the standard might include a description of the existing environmental limitations, a statement of intended usage and potential users, and a report on the user’s performance when trialing a ramp of the proposed gradient, or research evidence on the effect of ramp slope on performance, such as that undertaken by Sanford and colleagues (1997). Though it is reasonable to tailor an environmental intervention to the specific needs of the current resident, therapists should also be mindful of the person’s long-term capacities, visitors to the property, and future residents when designing permanent modifications and the requirements of their local authorities with respect to installing modifications that comply with local or state/provincial planning laws. Design elements, such as the presence and height of edging to ramps or the space between grab bars or handrails and the adjacent wall, also improve people’s safety and promote effective use of the built environment. It is important that these elements or suitable alternatives are reflected in product choices and are incorporated into the design of modifications. Materials and finishes might also have safety and/or functional implications; for example, insulating exposed pipes or removing sharp and abrasive surfaces under sinks or recommending ceramic shrouds covering the pipework ensures that wheelchair users’ knees and thighs are not injured when they wheel under sinks. Grab bars that rotate in their fittings can also be hazardous to users. The recommended level of slip resistance for walkways and ramps is also an important consideration when designing modifications for the home environment to ensure the safety of householders walking or wheeling on the surface. By understanding the specifications in the accessibility standards and their intent, therapists can ensure that elements relating to safety are incorporated into the design of modifications. However, where a client’s age, stature, size, functional abilities and equipment type, and dimensions lie outside of those covered by the standards, the dimensions and functional elements of the product and design should be reviewed considering the functional requirements of each individual. Therapists also need to be mindful that there are many standards governing the design of domestic dwellings that need to be adhered to when redesigning areas of the home, and they will need to liaise closely with designers and building professionals to ensure that designs and products conform to these. In some instances, these standards might impede the design of accessible features, resulting in therapists having to work closely with building and design professionals to negotiate a mutually acceptable outcome if possible. Further information on these is provided in Chapter 11. Evolution of Design and Good Design Practice Over time, the thinking and approaches to design have changed in response to population changes and the recognition of the rights of all people in society (Persson, Ahman, Yngling, & Gulliksen, 2015). This has resulted in an evolution of design and building practice (Figure 10-1; Ainsworth & de Jonge, 2008). With the population aging, the associated influence on rates of disability, and many people’s desire to remain living independently as long as possible, there is an increased need for housing design that accommodates the needs of all people over the lifespan (Smith, Rayer, & Smith, 2008). Initially, the design approach used for people with specific housing needs was purpose-built design. This approach, design, and building practice centered on the specific conditions and needs of the individual for whom the design was primarily for. This saw the inclusion and consideration of specialized equipment and products that were necessary to support the individual’s function, particularly in activities of basic self-care. In this first stage of evolution, the environment was a prosthetic and the features of the design and associated modifications Sourcing and Evaluating Products and Designs 239 Figure 10-1. Evolution of design and building practice (Ainsworth & de Jonge, 2008). were fixed in place and noticeable. To this end, homes and modifications were designed to meet the specific needs of individuals and the emphasis was on designing and modifying to enable and improve the access for people using wheelchairs. To achieve purpose-built design, occupational therapists would often assess the individual’s function and make the relevant recommendations and suggestions for modification, which would be summarized into reports for architects to interpret and design. This approach perpetuated people with disabilities being defined in terms of their dysfunction (e.g., “a paraplegic” and as being “sick” and dependent on care). It provided a fragmented view of the person and offered little recognition of the person’s needs beyond that of basic self-care (Ainsworth & de Jonge, 2008). Purpose-built design was followed by accessible design. This stage of evolution was primarily focused on design features for access and mobility associated with public buildings and meeting the requirements of the relevant standards. In many countries, accessible design standards were established and these formed the foundation for many recommendations for home modification and design for people with disabilities (see Chapter 11 for a detailed description of the development, benefits, and limitations of accessible design standards). Access standards were established using a generalized view of the needs of the population of people with disabilities and were based on the capabilities of young people who mobilize independently in standard manual or electric wheelchairs. To this end, clearances, circulation spaces, and reach zones in the home were based on dated and restricted data and the associated specifications. Accessible design stresses the application of minimum standards to design and modification while maintaining the consideration of client specific needs, with emphasis on designing for wheelchair access. It incorporated and considered the spatial requirements and dimensions of the base building; however, design and modifications solutions were often prescriptive and lacked creativity and the fixtures often continued to be permanently fixed and noticeable. This often resulted in home designs and modifications that were clinical, oversized, and inelegant. This approach to design continued to view the person in terms of their functional ability, dimensions (anthropometrics), and how they fit the relevant standards. The emphasis remained on activities of daily living, extending beyond that of just basic self-care to include mobility and access within and around the home, however, did not consider the person’s roles in the home or community. The needs of the individual were interpreted by the occupational therapist and were communicated through and between professionals, often with little input from the client, which created and reinforced an information gap between people with disabilities and the industry (Ainsworth & de Jonge, 2008). Both purpose-built design and accessible design were more traditional approaches to design and modifications that originated from the medical model of disability. In these approaches, therapists focused on achieving independence using alternative strategies and devices designed within a medical context. Many of these are made of metal and plastic with cold, hard surfaces and have a clinical appearance. Similarly, early home modifications tended to have an institutional appearance (Sanford & Butterfield, 2005). Such devices and modifications often do not fit well with the ambience of a home environment where soft surfaces and warm colors 240 Chapter 10 often predominate. Further, when the appearance of devices and modifications provoke strong negative reactions from the user and visitors to the home, it can influence acceptance and use (Aplin et al., 2013; Hocking, 1999; Wessels, Dijcks, Soede, Gelderblom, & De Witte, 2003; Wielandt & Strong, 2000). After these more traditional approaches came adaptable design (referred to as lifetime homes in some countries). This stage in evolution offered greater choice, flexibility, and market appeal than its predecessors, while maintaining previous consideration of accessible features including clearances, circulation spaces, and reach zones. Adaptable design demonstrated an appreciation of diversity of function across the lifespan. People were seen to have a variety of needs and to interact with the social and physical environment. Additionally, there was an increased recognition of the person’s role in the home and community and their need to be able to access and socialize with friends and family. These led to an improved understanding of the intent of design elements, enabling more creativity in approaches to design and modifications. Furthermore, the traditional focus on one individual shifted and designs and modifications were developed to suit a range of individuals and could often be adjusted to be fully accessible with adjustments frequently possible using unskilled labor. This stage of evolution resulted in designs and modifications in homes that remained centered on access requirements, but also included: Ô All essential elements and some desirable elements Ô Enhanced measurements and additional residential features Ô Space for carers, security, and color contrast (Ainsworth & de Jonge, 2008) To this end, while some public design elements persisted (e.g. large open bathrooms), designs and modifications usually made good design sense and had an increased focus on safety, climate, aesthetics, flow, and affordability (Ainsworth & de Jonge, 2008). This resulted in environments appearing less institutional and the solutions being more elegant overall (Ainsworth & de Jonge, 2008). The designs and modifications of this design approach created housing that provided greater choice for people with a variety of abilities and that was useable across the life span (Ainsworth & de Jonge, 2008). This enabled people to age in place, remain in the community, and maintain natural support networks (Balandin & Chapman, 2001). With the emergence of universal design (UD) there has been an increased emphasis on designing products, environments, and systems for the broader community rather than designing specifically for people with disabilities or special requirements (Connell and Sanford, 1999). UD recognizes the diversity of capabilities of users (Wylde, 1995) and aims to make products, environments, and systems inclusive, spanning age, gender, and ability while reducing the need for accommodations and specialized assistive devices (The Center for Universal Design, 1997; Steinfeld & Maisel, 2012). It does not, however, remove the need for standards that outline the legal limits for minimum accessibility (Steinfeld & Maisel, 2012). Traditionally, UD has been defined as “the design of products and environments to be usable by all people, to the greatest extent possible, without the need for specialized design” (Mace, 1985 p. 147; RL Mace Universal Design Institute, 2017). However, due to concerns regarding specificity and impracticality, further terms and definitions have been posited, including: Design for All—design for human diversity, social inclusion, and equality. Design for All aims to enable all people to have equal opportunities to participate in every aspect of society. To achieve this, the built environment, everyday objects, services, culture and information—in short, everything that is designed and made by people to be used by people—must be accessible, convenient for everyone in society to use and responsive to evolving human diversity (European Institute for Design and Disability, 2004) and, more recently, Universal design is a process that enables and empowers a diverse population by improving human performance, health and wellness, and social participation. (Steinfeld & Maisel, 2012, p. 29) Despite the evolution of the terms and definitions, consensus is yet to be established on the specifics of a definition. It is clear, however, that benefit to the broader community and inclusion are common themes (Steinfeld & Maisel, 2012). This approach to design required a fundamental shift in thinking from previous stages of evolution (i.e., progressing from removing environmental barriers to designing to ensure inclusion of all people to the greatest possible extent, regardless of age or ability; Ainsworth & de Jonge, 2008). It addresses the design of products, buildings and information system and requires: Ô An understanding of the broad range of human abilities Sourcing and Evaluating Products and Designs Ô An appreciation of changes that occur across the lifespan Ô A creative approach to design Ô Consideration of shape, adjustability, and placement of features However, if successfully achieved, it promotes social mobility and integration for persons of all abilities (Ainsworth & de Jonge, 2008). This allows all people, regardless of ability, to be part of society and ensures that people with disabilities or special requirements are no longer viewed as being different. UD provides a range of choices that enables designs and products to be elegant and suitable for the home environment while promoting safety and ease of use for everyone living in or visiting the home (Ainsworth & de Jonge, 2008). Further, attention to the design ensures that modifications continue to be useful as the needs of clients and other householders change over time without the need to modify the product or design. Universally designed products and environments have also been found to be considered more functional, accessible, safe, and attractive by users and less visible than specialized options (Park, 2006). Moreover, while there are often additional immediate costs for designs, products, and systems, there are frequently persisting cost benefits in the long term (Ainsworth & de Jonge, 2008). When examining universally designed products and environments, it is noted that like the definition of UD, there has been a variety of descriptions proposed over time. These descriptions have also often guided the development of subsequent methods of UD evaluation in clinical practice. One such description was outlined by Wylde (1995), who described universally designed products and environments as being: Ô Usable and useful: Can be used successfully to perform the intended function simply and expediently 241 Ô Accessible, adaptable, and adjustable: Accessible to individuals of varying abilities and designed to be adjusted or adapted for those whose abilities fall beyond the ranges of practical design considerations Ô Logical: Built purposefully with each component and feature, and placement and function consistent with expectations This set of descriptors forms the basis for the Enabling Products Sourcebook 2 (Wylde, 1995), which provides a “head-to-toe” evaluation of products using the following criteria: Ô The head: Cognition, vision, audition, and olfaction Ô The upper body: Manual dexterity Ô The lower body: Strength and stamina Ô Overall safety features Ô Product features related to cleaning and maintenance While not every criterion will be relevant to every product, the criteria assist in evaluating the range of users who will be able to use the product effectively (Wylde, 1995). For example, when reviewing the visual demands of a product, Wylde (1995) examines whether: Ô Functions with a visual output are accompanied by audible and/or tactile output Ô The surface of the product has a non-glare finish in areas where vision is required Ô All graphics, signage, and coding are legible under adverse viewing conditions Ô The print and symbols provide color contrasting with the background Ô Use of colors as indicators is purposeful and visible Ô Indicator lights relate directly to the function they control Ô Neutral: Do not demand right- or left-handed performance Ô An integral light source is provided where vision is required for safe operation Ô Inclusive: Built to include a diverse population of users (i.e., of differing sizes and abilities) Ô Raised lettering is used where possible Ô Visible: Provide clear, visible clues as to how they are to be used Ô Elegant: Are aesthetically pleasing Ô Redundant: Provide additional cues to the user (e.g., acoustic, tactile, and visual information) Ô Simple: Avoid superfluous controls, ornamentation, and embellishments Ô Where audible and tactile cues are not feasible, the product accommodates Braille overlays on functions requiring vision Despite the presence of other descriptions, such as that of Wylde (1995), the most well-known and possibly popular description is that of the Seven Principles of Universal Design proposed by The Center for Universal Design (1997). These principles were developed to promote products and 242 Chapter 10 Figure 10-2. Universal Design Performance Measures for Products. (Reprinted with permission from Center for Universal Design. [2000]. Evaluating the universal design performance of products. Raleigh, NC: The Center for Universal Design, North Carolina State University. Retrieved from https://www.ncsu.edu/ncsu/design/cud/pubs_p/docs/UDPMD.pdf) environments consistent with the original definition of UD, provided on page 242. The principles encourage designers to develop products and environments that allow the following: Ô Equitable use: Useful and marketable to people with diverse abilities Ô Flexibility in use: Accommodates a wide range of individual preferences and abilities Ô Simple and intuitive use: Easy to understand, regardless of the user’s experience, knowledge, language skills, or current concentration level Ô Perceptible information: Communicates necessary information effectively to the user, regardless of ambient conditions or the user’s sensory abilities Ô Tolerance for error: Minimizes hazards and the adverse consequences of accidental or unintended actions Ô Low physical effort: Can be used efficiently and comfortably and with a minimum of fatigue Ô Size and space for approach and use: Appropriate size and space for approach, reach, manipulation, and use regardless of user’s body size, posture, or mobility (The Center for Universal Design, 1997) Further to the principles, The Center for Universal Design (2000) also developed the Universal Design Performance Measure (Figure 10-2), which designers and therapists can use to evaluate the design characteristics of options and compare the universality of various products and designs being considered in home modification practice. The measure is not intended to replace user evaluation or experience with a product or design but assists therapists and designers in evaluating the broader usability of interventions. Although these principles appear to be simple, people vary enormously in terms of height, weight, endurance, strength, balance, mobility, and visual and hearing acuity (Conway, 2008). When considering the suitability of design, therapists need to draw Sourcing and Evaluating Products and Designs on their understanding of this diversity and aim to maximize the usability of the product and environment for as many people as possible while ensuring that they continue to support clients’ occupational performance. To this end, it is vital that therapists have a comprehensive understanding of diversity to enable them to design universally. As a profession, occupational therapy encourages its members to develop and consistently expand upon their knowledge of diversity, and this can be invaluable in reviewing the potential of product and design solutions. Furthermore, this expertise allows therapists to make a significant contribution to the development of products and designs. Notwithstanding the well-intentioned nature and the benefits of UD, this approach does continue to experience challenges to successful implementation. Some of these include: Ô Confusion with accessibility using a “template” approach 243 Ô Overemphasis on physical aspects (Calkins, Sanford, & Proffitt, 2001) the others previously mentioned, one primary difference is the presence of the phrase “reasonably possible” (Persson et al., 2015). The presence of this phrase has been criticized in the literature as possibly impeding the rights of inclusion of people with disabilities, contrary to documentation, such as the United Nations’ Convention on the Rights of Persons With Disabilities, if it is too costly or difficult (Persson et al., 2015). However, this approach to design aims to give greater acknowledgement to the existing diversity in the population, identifying that it is not always feasible or appropriate to design one product that meets the needs of the entire population (University of Cambridge, 2017a). It proposes that every decision related to design has the potential to include or exclude people and highlights the necessity for understanding diversity to make informed decisions to include as many people as possible (University of Cambridge, 2017a). To respond to diversity in the population, this approach directs design through: Ô “Developing a family of products and derivatives to provide the best possible coverage of the population Ô Lack of understanding of sensory, cognitive, psychological, and social diversity Ô Ensuring that each individual product has clear and distinct target users Ô The perception that UD restricts creativity and employs a “one size fits all” approach (e.g., a “McDesign” approach; Ainsworth & de Jonge, 2008; Sanford, 2012) Ô Reducing the level of ability required to use each product, in order to improve the user experience for a broad range of customers, in a variety of situations” (University of Cambridge, 2017a) Furthermore, this approach, while not outlining a specific set of criteria, does offer a more pragmatic approach to acknowledging and responding to diversity as it offers an actionable process for decision making at the concept stage of design development. This process includes the following four phases: 1. Manage: Review the evidence to decide “What should we do next?” Ô Association with disability design (Maisel, 2005) Ô Concern about additional immediate costs Ô Principles that are incomplete, complex, and ambiguous (Steinfeld, 2006). However, of the challenges that exist, probably the most noteworthy is the absence of consensus on the definition. This challenge has seen the creation of terminology, often used interchangeably, which has been created in a similar fashion but in different areas of the world (Persson et al., 2015; The Norwegian Centre for Design and Architecture, 2010). While some of these terminologies, associated definitions, and accompanying concepts are very similar (e.g., UD and Design for All), there is another: inclusive design, evolved from product design rather than design of the built environment, which offers a slightly different focus (University of Cambridge, 2017a). Inclusive design has been defined as “the design of mainstream products and/or services that are accessible to, and usable by, as many people as reasonably possible … without the need for special adaptation or specialized design” (British Standards Institution, 2005). While this concept displays similarities with 2. Explore: Determine “What are the needs?” 3. Create: Generate ideas to address “How can the needs be met?” 4. Evaluate: Judge and test the design concepts to determine “How well are the needs met?” (University of Cambridge, 2017b) Further details about these phases can be found in the Inclusive Design Toolkit (University of Cambridge, 2017b). Approaches to design and building practice have evolved over many years in response to society’s growing awareness of population diversity and the rights of people to be included in all aspects of society regardless of age 244 Chapter 10 or disability. This has influenced the modifications, products, and services that have been available and offered to people as the perspectives have moved from seeing people as “different” and requiring specialized features to recognizing that all design should be able to accommodate all people regardless of their abilities. While this evolution has occurred in a positive trajectory overall, there is still room for further improvement and standardization of current approaches to design, particularly at the international level. CONCLUSION There is a range of resources available to assist therapists in locating and sourcing products and designs. Each of these contributes different information and allows therapists to develop a portfolio of products and designs suited to the needs of an individual in a range of situations. Initially, therapists need to establish a broad understanding of the diverse range of options available. They can then build on this solid foundation to undertake a targeted search of resources to identify products and designs suited to the specific needs of each client. It is often difficult for therapists who are new to the field or only undertake modifications as a small part of their work to establish and maintain the expertise required to do modifications well. In these situations, therapists need to consult with colleagues with greater expertise to ensure the best outcomes for their clients. To determine the best solution in each case, therapists review and evaluate options by comparing the features and specification of each, with due consideration to client priorities and preferences. Therapists also draw on available evidence and use professional reasoning to collect and interpret different types of information to determine the best option for each situation, assessing the quality and relevance of information and applying it judiciously. 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