Chapter 1 (Pgs. 13-15, 17-55), Chapter 2 (pgs. 62-83) Family-Centered Care Collaborative partnership, mutual trust, sensitivity to clients’ beliefs among the individual, family, and caregivers to determine goals, share information, offer support, and formulate plans for health care. Recognize the family as constant clients and their families are considered integral components of the health care decision-making and delivery processes. This involves listening to the family’s needs and a shift of the nurse’s authoritarian role to the family to empower them to make their own decisions within the context of a supportive environment. Informed consent/Assent- Nurses Role and Responsibilities Table 1.7 (Pg. 47), pg 46 Box 1.5 Situations When considerations to consent Informed consent: must be obtained for test, treatments, and procedures Assent: agreeing to something; child’s participation in decision making process about health care o The age of assent depends on the child’s developmental level, maturity, and psychological state o First help the child understand their condition, inform the child of treatment and what to expect, make sure child is not influenced to decide, lastly ascertain the child’s willingness to participate in treatment or research Procedures that require consent: surgery, invasive procedures-amniocentesis, internal fetal monitor, LP’s, bone marrow aspiration, chemotherapy and radiation, research, application of restraints, and photography People who can provide consent: 18 years of age, parent/ legal guardian Decision makes must be of legal age and competent Present information that is simple, concise and appropriate to the level of education and language Decision making must be voluntary Have a witness Children not living with biological/adoptive parent- legal appointed guardian must provide consent Parent consent after divorce- consent comes from parent with legal custody however, in emergency physical custody can consent Organ donation- for a minor, parents must be aware of risk, benefit and provided emotional support; minor must agree without coercion Medical Experimentation- requirement include consent from parent, assent of child and perceived benefit to child… comply with federal regulations if funds are received *Never assume the adult accompanying the child is the parent or legal guardian always clarify Nurse’s role with informed consent: Ensure the child, parent, guardian understand what they are signing by asking question Ensure the consent form is completed with signatures from client or parent/guardian Serve as a witness to the signature process Cultural Considerations Nurses need to avoid stereotyping, which can lead to misconceptions. Stereotyping or labeling can result from ethnocentrism, a belief that one’s own ethnic group is superior to other ethnic groups. This attitude can lead to a slanted view of the world, and it may hinder the nurse’s ability to provide culturally competent care. “Most cultures have remedies that people may use or consider before they seek professional health care Social and Environmental Influences Social media Social roles: specific patterns of behaviors Violence Poverty Socioeconomic status: family’s economic, occupational, and educational levels. -Low socioeconomic status typically has an adverse influence on an individual’s health. Homelessness Figure 1.3 Causes of Hospitalization pg. 14 Top causes of hospitalization is reproductive system, digestive system, Nervous system, mental disease and disorders, musculoskeletal/ connective issues Childhood mortality the number of deaths in children 1-14 ages 1-4 leading cause of death: unintentional injuries and congenital malformation ages 5-14 leading cause of death: unintentional injuries and cancer Childhood morbidity Key issues the endanger health: Obesity, environmental toxins, allergies, drug abuse, child abuse and neglect, and mental health problems Factors that may increase morbidity include homelessness, poverty, low birth weight, chronic health disorders, foreign-born adoption, attendance at day care centers, and barriers to health care. African Americans and Hispanics are particularly at increased risk for illness. The most important aspect of morbidity is the degree of disability it produces, which is identified in Atraumatic Care Care the minimizes or eliminates the psychological or physical distress experienced by children and their families Preventing and eliminating separation of the child from the family Promoting self-control Communication Effective communication is crucial to quality nursing care Trust, respect and empathy are factors needed to foster effective communication children as the number of days missed from school or confined to bed. Client Rights Ensuring the clients rights are upheld is key for the pregnant women two clients must be considered the mother and baby Bill of right of children- have basic needs met, to make choices whenever possible, have parent or other important person with child, respected as a person, respect the child’s confidentiality Confidentiality- apply to a given clinical situations Clients’ confidentiality and privacy must be in the same manner as it is maintained when using computerized documentation Security of personal login information Do not leave clients information visible when unattended Exception exists with physical, sexual abuse and injuries Verbal Communication Use open-ended questions Demonstrate active listening by using the child’s and family’s own words Acknowledge emotions Nonverbal Communication Maintain eye contact Maintain open posture- arms uncrossed Nod your head to demonstrate interest Work with an interpreter when communicating across cultures, and with deaf and hearing impaired Box 1.4 Assessing for Violence Questions for the Parent • Do you ever feel afraid in your home? • Do arguments ever become physical (hitting, kicking, pushing, throwing, or punching/breaking objects)? • Have you ever been threatened with a weapon (gun, knife, other)? • Have you ever felt trapped or like a prisoner in your own home? Does your partner ever lock you in/out of the house or take your car keys? • Have your children ever seen or heard violence in the home? • Have the police ever been involved due to violence in your home? Questions for the Child • What happens when Mommy and Daddy (or appropriate partner names) argue/fight? Is there any hitting, pushing, and so forth? • How do you feel when Mommy and Daddy (or appropriate partner names) fight? • What happens to you when you get in trouble? Page 17) Table1.2 Types of Families Nuclear Family: husband, wife, and children living in the same household Binuclear family: child who is member of two families due to joint custody Single-parent family: one parent responsible for care of children Blended family: adults with children from previous marriages or a new marriage Extended family: nuclear family and grandparents, cousins, aunts, and uncles Adverse Childhood Experiences (ACE’s)- examples of, what are the outcomes of exposure to ACE’s ACES study explored risk factors for disease and social well-being across the lifespan Abuse: emotional, physical, sexual Neglect: emotional and physical Household dysfunction: mother treated violently, household substance abuse, mental illness, separation/ Divorce, incarceration of a household member Other: poverty, racism, community violence, police brutality, sexism + affects: promoting health growth and development - affects: increase health risk TEDx Talk from Nadine Burke-Harris – mentions several interventions that can be done to addresses trauma in managing kids Hormonal, brain, and immune development causes that can happen to you as a child Interventions: Having a multidisciplinary team- home visits, care coordination, holistic care, medication as the last resort, educating parents It’s not what’s wrong it’s what happened to you Health Literacy – nurses’ role and responsibilities as it relates to health teaching Health literacy is the ability to read, understand, and use health care information to make appropriate health care decisions and successfully navigate the health care system All health care providers should use universal literacy precautions and focus on providing easy to understand information during every patient encounter. The elderly, the poor, members of minority groups, medically underserved, and people who speak English as a second language are at a higher risk Difficulty filling out registration forms, questionnaires, and consent forms; forms are incomplete, incorrect, or inaccurate. Frequently missed appointments Noncompliance and lack of follow-up with treatment regimens History of medication errors Responses such as, “I forgot my glasses” or “I’ll read this when I get home” Inability to answer common questions about their treatment or medicines Avoiding asking questions for fear of looking “stupid” Nurses need to provide understandable and accessible information to all clients, regardless of their literacy or education levels. avoiding medical jargon, breaking down information or instructions into small concrete steps, limiting the focus of a visit to three key points or tasks, and assessing for comprehension. In addition, printed information should be written at or below a 5th to 6th grade reading level with plenty of visual aids or pictures