Patient Satisfaction as it Relates to Health Information Exchange Usage Capstone Proposal for Master of Science Health Data Analytics and Informatics Concentration of Healthcare Informatics Leisa Payton University of Denver University College March 14, 2021 Faculty: Maria Creavin, RD, SM, MAS Director: Bobbie Kite, PhD, MHS Dean: Michael J. McGuire, MLS 111 2 Payton-1 Reason(s) for Selecting Capstone Subject I have always been interested in the effects of information technology on humans. In healthcare, there is a wide array of problems that can be investigated using informatics and the vast majority of data starts with a patient interaction. When visiting new physicians, I have been disappointed to be greeted with a clipboard of papers to fill out, even if I have asked for my records to be transferred. This may be especially inconvenient for patients that have a long history of illness or a long list of prescriptions to remember. Luckily, the patient may have the opportunity to opt-in to Health Information Exchange (HIE), which is a way for providers to access and share patient history electronically. For some patients, having their health data accessible through HIE will lead to a better medical experience and higher satisfaction. My project will investigate this correlation, using informatics to interpret both quantitative and qualitative methods, providing invaluable skills for my healthcare informatics career. Problem Statement and Proposed Thesis Statement Despite the passage of the Health Information Technology for Economic and Clinical Health Act (HITECH) to promote the adoption and meaningful use of health information technology, many hospitals have yet to adopt an HIE. In 2021, there are currently 115 hospitals in Colorado (American Hospital Directory 2020) and as of 2019 only 89 were connected via one or both of the two health information exchanges in Colorado, Quality Health Network (QHN) and Colorado Regional Health Information Organization (CORHIO) (Drees 2019). Whether it be because of lack of interoperability or privacy concerns, absence of an HIE could directly or indirectly impact patients’ perspectives of their hospital care. Medicare reimbursements are affected by the HCAHPS (Hospital Consumer Assessment of Healthcare Providers and Systems) Survey, a data collection methodology that is used to measure patients' perspectives of hospital 222 2 Payton-2 care. This paper will explore whether Colorado hospitals can increase patient satisfaction and related HCAHPS scores by adopting an HIE. Goals and Objectives The existing body of knowledge on this topic is general (i.e. interventions to improve patient satisfaction) or outdated. The goal of my project is to determine if hospital patient satisfaction is tied to the organization’s HIE usage. My research objectives are to use the eight HCAHPS domains’ scores as well as qualitative methods to determine whether there is an increase, decrease or absence of change in overall patient satisfaction when compared to the adoption of an HIE. The business application is to determine if it is worthwhile to adopt HIE in hospitals in order to affect patient satisfaction in a positive manner. Preliminary Literature Review The Road to Health Information Exchange Health information exchange is defined as the process of electronically exchanging patient information among different hospitals, physicians, and other healthcare providers in a community at the point of care (Wu and LaRue 2017, 410). Before any research can begin on the relationship between HIE and patient satisfaction, one must understand the barriers and facilitators of HIE adoption in the United States. The 2009 HITECH mandated building a nationwide health information communication infrastructure with the intent of “Meaningful Use” of Electronic Health Records (EHRs). Some of the challenges include privacy and security, interoperability, funding, governance and complex systems. HIE adoption promoters include technical assistance, financial incentives, single database and login, and engaging with and understanding end-users’ perspectives (Wu and LaRue 2017, 413-414). HIE can occur on the national or regional level, with the regional health information organization (RHIO) being a third 333 2 Payton-3 party that facilitates information exchange among entities within a community, county or state (Esmaeilzadeh and Mirzaei 2018, 410-411). A study performed from 2017 to 2018 in the US found that patients’ willingness to opt-in to HIE are influenced by different HIE structures and business practices, and that patients perceived regional patient-centered HIE models as being more private (Esmaeilzadeh and Mirzaei 2018, 414-416). The regional model in Colorado is Colorado Regional Health Information Organization (CORHIO). The most efficient and cost effective way for patients to access their health records through CORHIO is by using a secure patient portal, which is integrated with other healthcare management tools (Peterson 2012, 55). Health Information Exchange and Patient Satisfaction Research has been done that reviews the evidence and complexities regarding determinants of patient satisfaction (Berkowitz 2016;Batbaatar et al. 2017) and the relationship between HIE usage and patient-provider communication and patient satisfaction in hospitals (Vest and Miller 2011). Others have conducted quantitative studies that use scoring systems such as the Hospital Consumer Assessment of Healthcare Providers and Systems (HCAHPS), Survey of Healthcare Experiences of Patients (SHEP), and Healthcare Effectiveness Data and Information Set (HEDIS) to determine patient satisfaction performance (Anhang Price et al. 2018;Legler et al. 2019). A systematic literature review looked at studies involving hospital patients with interventions targeting at least 1 of the 11 HCAHPS domains and determined that more stringent research is needed to identify effective and generalizable interventions to improve patient satisfaction (Davidson et al. 2017, 597). The aforementioned topics provide a basis for, but do not specifically seek to find a correlation between HIE usage and HCAHPS patient satisfaction scores in Colorado hospitals. 444 2 Payton-4 Implementation is not Adoption – How to Measure Usage When considering HIE usage at Colorado hospitals, one must look at a quantitative method of measuring “levels” of usage of HIE and keep in mind that implementation is not adoption (Haugen and Fred 2016, 454). Characteristics of successful HIE usage like user logon statistics, data types accessed by users and reasons for use and associated outcomes can be measured. For example, HIE use in emergency departments and ambulatory clinics focuses on patients where missing information may be available in the exchange and relates to other elements including the roles of people with access, the setting, and other site specific issues that could affect routine system use (Johnson et al. 2011, 690). A longitudinal study done from 2011-2017 found that not only did HIE usage increase over the time period, but the most notable change (+29 percent) in HIE use occurred in the inpatient setting. Usage was measured using access log files from the Indiana Network for Patient Care (INPC), a mature statewide community HIE network. The log files portray an objective method to measure HIE usage (Rahurkar et al. 2020, 2). These same types of log files could be used to measure CORHIO or QHN HIE usage in Colorado. Project Description Part One: Design of Project This research project will explore whether patient satisfaction in Colorado hospitals is related to health information exchange (HIE) usage. Using a quasi-experimental design with HIE adoption as the intervention, HCAHPS scores can be compared pre- and post-intervention. Necessary attention will be made to moderators such as patient satisfaction scores measured during the COVID-19 pandemic and other confounding variables (like hospital expansion or organizational changes). Case study strategy will be used to delve into understanding HIE usage 555 2 Payton-5 within the hospital system and to draw upon the qualitative and quantitative data concurrently. The case study will allow insights into this relationship and serves exploratory, descriptive and explanatory purposes. Mixed-methods will be used to measure levels of HIE usage at Colorado hospitals, with quantitative data being derived from HIE usage logs and qualitative data coming from discussions with employees regarding HIE usage directly. Interviews will be conducted with end users at hospitals (such as nurse informaticists) and results will be described as themes or codes to be analyzed quantitatively. From CORHIO and QHN, quantitative data such as user login statistics or access log files can be used to measure HIE usage. By collecting and analyzing both methods concurrently, the research can be concluded in a reasonable timescale and provide a deeper insight into the relationship between the dependent variable, patient satisfaction and the independent variable, HIE usage. Secondary research will be conducted to discover the obstacles of HIE adoption, understand the regional health information exchange model in Colorado (CORHIO and QHN), review complexities regarding determinants of patient satisfaction and explain current scoring systems such as HCAHPS, SHEP, and HEDIS. By using a mixture of information both internal and external to the organizations, it is possible to draw conclusions about patient satisfaction as it relates to HIE usage. Part Two: Data Collection The population for my research is “all Colorado hospitals” and that will also be the sampling frame, assuming that data regarding the usage of HIE from CORHIO and QHN can be obtained as well as the HCHAPS scores for the sample. To get to the 1% margin of error for probability sampling, I will need a sample of at least 110 of the 114 hospitals in Colorado. A 666 2 Payton-6 survey of secondary data will be necessary to use the data from CORHIO, QHN and HCAHPS. The HCAHPS scores and rankings will be taken from the U.S. Government website https://healthdata.gov/ and the logs of HIE usage will be obtained from CORHIO and QHN directly. HCAHPS has a predetermined format, but it’s possible that data from the HIE could be in a raw format and will need further cleansing and formatting to get in a useable format. These longitudinal data sources can be combined to get quantifiable statistics for Colorado hospitals. Analysis will be done to determine if the data meets the needs of my project. For the qualitative data, interviews conducted will be one-to-one semi-structured/indepth where open-ended questions are asked (see Appendix). The conversation allows for an open format and care will be taken to not lead the participant and to remain objective. Purposive, homogeneous, non-random sampling for the case study will be used because random selection of hospitals may not be possible. However, participants in similar roles within each organization can be selected to allow for collection of in-depth information within a particular group. Before the interview, the purpose of the study will be revealed to the participant and the participant’s permission to record the interview will be needed. The interview process is considered “human subject research” and will need to be approved by the Internal Review Board (IRB). Part Three: Data Analysis and Application The numerical data of the HCAHPS scores will be compared to categorical data from HIE usage logs (levels of usage: high, medium low or years/months of usage). The relationship between these variables can be shown using a line graph, scatter plot or contingency table. SPSS or Excel can be used to perform chi square analysis to determine if the HCAHPS scores and the levels of usage (ordinal values) are independent. Pearson’s correlation coefficient can be 777 2 Payton-7 performed on HCAHPS scores and number of months of HIE usage to assess the strength of the relationship. As patterns are discovered during the interview process, they will be grouped into themes and those relationships will be tested. The quantitative data will be used to develop and test an explanation for the correlation between HIE usage and HCAHPS scores and to ensure that the data is reflecting reality. The conversations can be broken into categories and used for thematic analysis (i.e. “patient satisfaction”) or narrative analysis (i.e. “our plan for HIE adoption”). To ensure validity of the interview data and avoid bias, participants will answer open-ended and probing questions framed from different perspectives allowing the participant to describe their real life experiences with HIE and patient satisfaction. Patient satisfaction is an important measurement of a hospital’s success. If correlation can be shown between HIE usage and patient satisfaction as measured by HCAHPS scores, this can serve as an impetus to Colorado hospitals to implement and adopt HIE. Anticipated Challenges or Problems The most obvious challenge for this project is showing there is a real correlation between HIE usage and patient satisfaction. It will be important to point out any confounding variables that may have affected the study outcome. The determination of confounders is an important part of the interview process. Perhaps the participant thinks that the new CEO or the new facility has made the biggest impact on patient satisfaction. The thematic analysis will have to consider these narratives in an objective manner to ensure valid data for testing the relationship of the variables. Also, even though the participants will be chosen from nonrandom sampling, it could be difficult to schedule enough interviews with different hospitals to be valid and reliable. 888 2 Payton-8 This study is being proposed on the assumption that HIE log usage data can be obtained from CORHIO and QHN in some format. It’s possible that zero data may be procured during the study timeframe due to confidentiality or proprietary matters. In that case, a revision of the project strategy will be necessary, perhaps moving to use of a survey rather than the HIE logs. Survey questions will need to be devised and submitted to the IRB. It’s also possible that data will be in a raw form and need considerable time to cleanse and format. Possible Project Outcomes or Anticipated Results The Capstone project should show a positive relationship between HIE usage in Colorado hospitals and patient satisfaction, therefore providing further evidence that HIE should be adopted. The data analysis will demonstrate that as HIE usage increases, HCAHPS patient satisfactions scores go up, and the themes discovered during the interview process can support this relationship. It is possible that the interviews bring to light confounding factors for an increase in patient satisfaction outside of HIE usage. It would be an unanticipated outcome for the research to show no correlation between the two variables, or alternatively, show a negative relationship between HIE usage and patient satisfaction. 999 2 Payton-9 Project Schedule 101010 2 Payton-10 Appendix Questions for Interview Participants 1. What is your current job role? Describe your responsibilities. 2. How do you feel you play a part in making sure patients are satisfied with their hospital experience? 3. What do you think are the biggest contributors to patient satisfaction at your organization? 4. What role, if any, do you think Health Information Exchange plays in patient satisfaction? 5. How would you quantify your level of Health Information Exchange (CORHIO/QHN) usage on a daily basis? 6. Can you tell me about your experience [refer to previous conversation topic]? 111111 2 Payton-11 References American Hospital Directory. 2020. "Table of Search Results." American Hospital Directory, Last Modified June 5, 2020, accessed February 6. https://www.ahd.com/list_cms.php?submitted=Submit&mname=&mcity=&mstate%5B%5D=CO &mzip=&mphone=&fipscounty%5B%5D=. Anhang Price, R., E. M. Sloss, M. Cefalu, C. M. Farmer, and P. S. Hussey. 2018. "Comparing Quality of Care in Veterans Affairs and Non-Veterans Affairs Settings." J Gen Intern Med 33 (10):1631-1638. doi: 10.1007/s11606-018-4433-7. Batbaatar, E., J. Dorjdagva, A. Luvsannyam, M. M. Savino, and P. Amenta. 2017. "Determinants of patient satisfaction: a systematic review." Perspect Public Health 137 (2):89-101. doi: 10.1177/1757913916634136. Berkowitz, B. 2016. "The Patient Experience and Patient Satisfaction: Measurement of a Complex Dynamic." Online J Issues Nurs 21 (1):1. doi: 10.3912/OJIN.Vol21No01Man01. Davidson, K. W., J. Shaffer, S. Ye, L. Falzon, I. O. Emeruwa, K. Sundquist, I. A. Inneh, S. L. Mascitelli, W. M. Manzano, D. K. Vawdrey, and H. H. Ting. 2017. "Interventions to improve hospital patient satisfaction with healthcare providers and systems: a systematic review." BMJ Qual Saf 26 (7):596-606. doi: 10.1136/bmjqs-2015-004758. Drees, Jackie. 2019. "Colorado HIEs pool data-sharing services, expand reach to millions of patients." [webpage]. Becker’s Hospital Review, Last Modified December 19, 2019, accessed February 6. https://www.beckershospitalreview.com/ehrs/colorado-hies-pool-datasharing-services-expand-reach-to-millions-of-patients.html. Esmaeilzadeh, P., and T. Mirzaei. 2018. "Comparison of consumers' perspectives on different health information exchange (HIE) mechanisms: an experimental study." Int J Med 121212 2 Payton-12 Inform 119:1-7. doi: 10.1016/j.ijmedinf.2018.08.007. Haugen, Heather Ph.D, and Charles L Fred. 2016. Beyond Implementation: A Prescription for the Adoption of Healthcare Technology. 2 ed. Denver: Magnusson-Skor Publishing, LLC. Johnson, K. B., K. M. Unertl, Q. Chen, N. M. Lorenzi, H. Nian, J. Bailey, and M. Frisse. 2011. "Health information exchange usage in emergency departments and clinics: the who, what, and why." J Am Med Inform Assoc 18 (5):690-7. doi: 10.1136/amiajnl-2011000308. Legler, A., M. Price, M. Parikh, J. R. Nebeker, M. C. Ward, L. Wedemeyer, and S. D. Pizer. 2019. "Effect on VA Patient Satisfaction of Provider's Use of an Integrated Viewer of Multiple Electronic Health Records." J Gen Intern Med 34 (1):132-136. doi: 10.1007/s11606-0184708-z. Peterson, Kimberly. 2012. "Patient Access to Colorado Regional Health Information Organization (CORHIO)." Master of Science Health Information Management, The College of St. Scholastica, Duluth, Minnesota (UMI 1535097). Rahurkar, S., J. R. Vest, J. T. Finnell, and B. E. Dixon. 2020. "Trends in user-initiated health information exchange in the inpatient, outpatient, and emergency settings." J Am Med Inform Assoc. doi: 10.1093/jamia/ocaa226. Vest, J. R., and T. R. Miller. 2011. "The association between health information exchange and measures of patient satisfaction." Appl Clin Inform 2 (4):447-59. doi: 10.4338/ACI-201106-RA-0040. Wu, H., and E. M. LaRue. 2017. "Linking the health data system in the U.S.: Challenges to the benefits." Int J Nurs Sci 4 (4):410-417. doi: 10.1016/j.ijnss.2017.09.006.