ETHICO-LEGAL CONSIDERATIONS IN THE CARE OF THE OLDER PERSONS SHEILA MARIE OCONER, RN MAN Ethical Principles Ethical values are essential for any healthcare provider. Ethics comes from the Greek word “ethos,” meaning character. Ethical values are universal rules of conduct that provide a practical basis for identifying what kinds of actions, intentions, and motives are valued Ethics are moral principles that govern how the person or a group will behave or conduct themselves. The focus pertains to the right and wrong of actions and encompasses the decision-making process of determining the ultimate consequences of those actions. Each person has their own set of personal ethics and morals Ethics within healthcare are important because workers must recognize healthcare dilemmas, make good judgments and decisions based on their values while keeping within the laws that govern them To practice competently with integrity, nurses, like all healthcare professionals, must have regulation and guidance within the profession. The American Nurses Association (ANA) has developed the Code of Ethics for this purpose Ethical dilemmas arise as nurses care for patients. These dilemmas may, at times, conflict with the Code of Ethics or with the nurse's ethical values. Nurses are advocates for patients and must find a balance while delivering patient care. There are four main principles of ethics: autonomy, beneficence, justice, and nonmaleficence. Each patient has the right to make their own decisions based on their own beliefs and values. This is known as autonomy. A patient's need for autonomy may conflict with care guidelines or suggestions that nurses or other healthcare workers believe is best. A person has a right to refuse medications, treatment, surgery, or other medical interventions regardless of what benefit may come from it. If a patient chooses not to receive a treatment that could potentially provide a benefit, the nurse must respect that choice. Nurses have a responsibility to themselves, their profession, and their patients to maintain the highest ethical principals Long-term care involves a variety of services designed to meet a person's health or personal care needs during a short or long period of time. These services help people live as independently and safely as possible when they can no longer perform everyday activities on their own. Long-term care is provided in different places by different caregivers, depending on a person's needs. Most long-term care is provided at home by unpaid family members and friends. It can also be given in a facility such as a nursing home or in the community, for example, in an adult day care center. Most elderly people prefer to stay in their own home for as long as possible. https://www.nia.nih.gov/health/what-long-term-care Assisted living in a long-term services provide around-the-clock nursing care in a homelike setting Palliative care Relieves the side effects and symptoms of an illness, but does not replace the primary care for the illness. Its goal is to make the person comfortable and improve the quality of life. Is the treatment for the physical, emotional and psychological symptoms that can occur during a serious illness. In modern palliative care, doctors and care givers focus, not on curing or extending life, but on optimizing everyday life. Palliative Care vs. Hospice Hospice care patients have a terminal illness that they are no longer receiving curative treatment for. They typically only have months to live. Palliative care is a part of hospice treatment and it’s appropriate at any point during a serious illness. Benefits of Palliative Care •Improves communication between the patient and health care providers •Opens discussions about treatment options and symptom management so the patient is more involved •Relieves pain and discomfort from symptoms such as nausea and shortness of breath •Improves coordination of care with health care providers, the patient and family. •Meets the emotional needs of the patient •Provides for the spiritual needs of the patient https://www.seniorliving.org/palliative-care/ Advance directives Are legal documents that allow the person to lay down their decisions about end-of-life care ahead of time. They may give or tell their wishes to family, friends, and health care professionals and to avoid confusion later on. A living will tells which treatments a person wants if dying or permanently unconscious state comes. A person can accept or refuse medical care. The person might want to include instructions on •The use of dialysis and breathing machines •If you want to be resuscitated if your breathing or heartbeat stops •Tube feeding •Organ or tissue donation A durable power of attorney for health care is a document that names a health care proxy. The proxy is someone the person can trust to make health decisions if unable to do so. https://medlineplus.gov/advancedirectives.html Do not resuscitate (DNR) order Resuscitation means medical staff will try to re-start the heart and breathing using methods such as CPR (cardiopulmonary resuscitation) and AED (automated external defibrillator). In some cases, they may also use life-sustaining devices such as breathing machines In the hospital A Do Not Resuscitate or DNR order means that if the person stop breathing or the heart stops, nothing will be done to try to keep the person alive. The Doctor can be ask to add a DNR order to the medical record not wanting a hospital staff to try to revive the heart or breathing stopped. Some hospitals require a new DNR order each time the person is admitted, and might need to ask every time they go into the hospital. But remember that this DNR order is only good while the person is in the hospital. https://www.cancer.org/treatment/finding-and-paying-fortreatment/understanding-financial-and-legal-matters/advancedirectives/types-of-advance-health-care-directives.html END OF LIFE CARE Comfort care is an essential part of medical care at the end of life. It is care that helps or soothes a person who is dying. The goals are to prevent or relieve suffering as much as possible and to improve quality of life while respecting the dying person's wishes. People who are dying need care in four areas—physical comfort, mental and emotional needs, spiritual issues, and practical tasks. Their families need support as well. Death comes suddenly, or a person lingers, gradually fading. For some older people, the body weakens while the mind stays alert. Others remain physically strong, but cognitive losses take a huge toll. Although everyone dies, each loss is personally felt by those close to the one who has died. End-of-life care is the term used to describe the support and medical care given during the time surrounding death. Such care does not happen only in the moments before breathing ceases and the heart stops beating. Older people often live with one or more chronic illnesses and need a lot of care for days, weeks, and even months before death. End-of-Life: Providing Physical Comfort There are ways to make a person who is dying more comfortable. Discomfort can come from a variety of problems. For each, there are things you or a healthcare provider can do, depending on the cause. For example, a dying person can be uncomfortable because of: Pain Breathing problems Skin irritation Digestive problems Temperature sensitivity Fatigue End-of-Life: Managing Mental and Emotional Needs Complete end-of-life care also includes helping the dying person manage mental and emotional distress. Someone who is alert near the end of life might understandably feel depressed or anxious. It is important to treat emotional pain and suffering. The simple act of physical contact—holding hands, a touch, or a gentle massage—can make a person feel connected to those he or she loves. Some experts suggest that when death is very near, music at a low volume and soft lighting are soothing. In fact, near the end of life, music therapy might improve mood, help with relaxation, and lessen pain. People nearing the end of life may have spiritual needs as important as their physical concerns. Spiritual needs include finding meaning in one's life and ending disagreements with others, if possible. The dying person might find peace by resolving unsettled issues with friends or family. https://www.nia.nih.gov/health/providing-comfort-end-life Canon Law - Anointing of the Sick Sacrosanctum concilium 59 and Canon 840 of the 1983 Code of Canon Law note that sacraments are ordered for the sanctification of all people and to build up the Body of Christ in order that they may render worship to God. Known as the Pastoral Care of the Sick: Rites of Anointing and Viaticum. It also includes sections pertaining to the care of the sick, pastoral care of the dying and readings, responses and verses from Scripture. WHO MAY BE ANOINTED? Baptized members of the Christian faithful who have reached the age of reason and who begin to be in danger due to sickness or old age may receive the sacrament of anointing. Participation in the rites is encouraged broadly. For example: •The elderly who are weakened, even though no notable illness is present, may choose to participate in the ritual.5 •Those who face surgery due to serious illness •Those who suffer serious mental illness https://www.chausa.org/publications/health-progress/article/september-october-2011/canon-law---anointing-of-the-sick-thehow-and-why