CASPAR Project The Mental Health of Looked After Children/Care Leavers in Northern Ireland: A Literature Review AUTHORS: Christine Mullan & Lelia Fitzsimons SUPPORTED BY: Executive Programme Fund for Children Section Page Foreword Preface Acknowledgements i ii iii 1 Executive Summary 1 2 Introduction 3 3 The Care System in Northern Ireland 7 4 What current evidence is available regarding the mental health needs of Looked After Children and Care Leavers? 11 5 How are the mental health needs of Looked After Children and Care Leavers currently identified, assessed & monitored and how are referrals made? 17 6 What action is taken to ensure that risk factors and vulnerability are reduced in the lives of Looked After Children and Care Leavers? 25 7 What action is taken to ensure that protective factors and resilience are promoted in the lives of Looked After Children/ Care Leavers? 31 8 How are services to meet the mental health needs of Looked After Children and Care Leavers currently planned, controlled and organised? 41 9 What is the current policy and legislative framework within which the mental health needs of Looked After Children and Care Leavers in Northern Ireland are met? 47 10 What services do Looked After Children and Care Leavers want and what works well? 55 11 How should services develop in Northern Ireland and what is needed to implement these services? 61 12 Conclusions: Implications of the Review 75 13 References 77 Appendix 1 – Useful Websites Appendix 2 – Useful Journals Appendix 3 – Comparison of Studies 87 89 90 The views expressed in this report are those of the authors and do not necessarily reflect those of the Eastern Health and Social Services Board or Down and Lisburn Trust. Table of Contents Table of Contents Foreword Foreword The Caspar Project developed out of a regional multiagency working group involving voluntary and statutory providers, academics and carers who were deeply concerned about the need to explore and address the mental health of children in care. It became evident that practitioners and carers were working with children with ever increasing challenging behaviour and that a continuum of therapeutic inputs and services was required throughout the system. No one agency alone can hope to meet the complex, individual needs of care experienced children and young people. The Caspar Project recognises the absolute necessity to work in partnership. With joined up thinking, creativity and planning, our children can only but significantly benefit and we will achieve our vision, that every child in our care grows up feeling good about themselves. The Caspar Project extends you an invitation to join us in making the difference. From the child’s perspective they described coming into care as one to the most traumatic events in their young lives only to be matched by the trauma of leaving care. They enter care having experienced significant neglect and abuse. In care, they must adapt to rapid changes in lifestyles, culture and environment, whilst trying to come to terms with the reasons why they had to come into care. All these events, children have stated, have had a huge impact on their mental health. Vivian McConvey Director VOYPIC As practitioners, carers and policy makers, our job is to ensure that every child in our care grows up feeling good about themselves, feels valued, aspires to reach their dreams, has opportunities and will be able to come to terms with the issues leading up to their admission to care. To improve their life chances and provide the therapeutic services they require we must firstly understand the impact pre-care and being in care has on the mental health of children. This literature review provides the first comprehensive overview of the literature available between the United Kingdom (UK) and Northern Ireland (NI) on the mental health of Looked After Children and those leaving care. The information presented will provide an invaluable reference tool for practitioners, carers, policy makers, academics and students. Our aim is to develop your thinking and deepen your knowledge. Thus it is hoped that the literature review will influence the development of services, which adopt a child-centred, holistic approach to meeting the emotional, psychological and mental health needs of one of the most vulnerable groups in our society; that is care experienced children and young people. FOREWORD i Preface Preface French from Trinity College Dublin. Christine is registered with the British Psychological Society and hopes to continue doctorate study in this field of research. Voice of Young People in Care (VOYPIC) is an independent regional voice that seeks to empower and enable children with an experience of care (Looked After Children/Care Leavers) in Northern Ireland to participate fully in decisions affecting their lives. Our aim is to improve their life chances through working in partnership with Looked After Children/Care Leavers, staff, managers, agencies and government. We do this through listening and learning and facilitating change which impacts and influences legislation, policy and practice. One of the Agency’s core aims is to record, collate and catalogue practice experience, training materials, publications, and research to assist in developing and promoting good practice. Lelia Fitzsimons: Lelia is Project Manager for the Caspar Project. She was previously Senior Manager of Social Care at Bryson House assuming overall responsibility for the management of all social care services. In the past, Lelia worked as a Mental Health Social Worker in North & West Community Mental Health Team and as a Family Centre Social Worker at Beersbridge Family Centre. She trained as an Approved Social Worker, worked as a practice teacher for a number of years and is registered with Northern Ireland Social Care Council (NISCC). Lelia graduated with a Masters in Social Work from Queen’s University, Belfast. This literature review is the first publication from VOYPIC’s Caspar Project. The Caspar Project is being undertaken by VOYPIC in partnership with the Eastern Health and Social Services Board (EHSSB) and Down and Lisburn Trust (DLT). The aim of the Caspar project is to produce an evidence base which will contribute to the development of a strategy to meet the mental health needs of Looked After Children/Care Leavers across Northern Ireland. We believe that there is a current gap in services that requires a strategic commitment. The outcome sought by the project is: ‘That children and young people who live in care [Looked After Children] and those who have left care [Care Leavers] have improved psychological, emotional and mental health and hence improved life chances’. The project seeks to contribute to these outcomes through the production and dissemination of the findings of this review and direct research with Looked After Children/Care Leavers, foster carers, residential workers, field social workers and birth parents. We intend to give clear recommendations at the end stage of the project (October, 2006) when all this evidence is brought together. This review therefore is intended to raise questions and discussion regarding the implications for a strategy which will help us move towards this end goal. About the Authors Christine Mullan: Christine is the Research Officer for the Caspar Project. She previously worked in the field of market research, as a Research Executive with Market and Research Opinion International (MORI) Ireland and formerly with SIGNAL Business Growth Centre (based in Stockholm). She graduated with a BA Honours in Psychology and ii VOICE OF YOUNG PEOPLE IN CARE Acknowledgements Acknowledgements We are grateful to: • Other members of the Professional Advisory Group who have provided advice and assistance through out the project including Colleen Christie (Fostering Network), Prof Robbie Gilligan (The School of Social Work and Social Policy, Trinity College Dublin), Dr Angela O’Rawe and George Russell (CAMHS Policy Directorate, DHSSPS). • Caspar Management group including Marion Reynolds (Deputy Director, EHSSB) who had previously acted as a member of the professional advisory group, Bria Mongan (Operations ManagerChildren’s Services, Down and Lisburn Trust) and Alan Cowie (Programme Planner, EHSSB). Thanks are also due to Theresa Nixon for her input into the group while at the EHSSB. • Firstly, all the young people involved in the Caspar project who painted the canvas for the front cover and the young people who took part in the summer art project at VOYPIC and made the photographs that are included in the document. This really brings the report to life! • The Young people’s advisory group who have helped with the project as it has been going along. • Our funders: The Children’s Fund, The Camelot Foundation, The Eastern Health and Social Services Board and Down and Lisburn Health & Social Services Trust. • Dr Rosemary Kilpatrick (Director of the Institute of Child Care Research at Queen’s University Belfast) who has provided a key consultative role in the project and is also a member of the professional advisory group. • Karen Latimer at Queen’s University Belfast Library who kindly sourced some of the later material on our behalf. • Evelyn Heak for proof reading. Dr Emma Larkin of the Institute of Child Care Research at Queen’s University Belfast for her help with electronic searches. • Suzanne Irvine for her work on the referencing. • Our colleagues in VOYPIC for their help with various sections. • And, finally thanks to Mike & Annette for all your help/support/sympathy! • • Dr Ruth Sinclair, Nicola Madge & Natasha Willmott from National Children’s Bureau (NCB) for carrying out an initial review which provided a good starting point for the wider UK evidence. • The three independent peer reviewers Dr Roger Manktelow (School of Sociology & Applied Social Studies, University of Ulster) , Dr Ann Kilgallen (Consultant in Public Health Medicine W.H.S.S.B) and Tony Rodgers (Assistant Director of Social Services S.H.S.S.B) who carried out a review of the draft document. • Dr Colette McAuley (School of Sociology, Social Policy & Social Work, Queen’s University Belfast) who carried out an additional review of the manuscript. Colette has also provided input as a member of the Professional Advisory Group. • Members of the Professional Advisory Group who provided direct comments on earlier versions of the document and useful reference documents including Cathy Galway (DHSSPS, Childcare Policy Directorate), John Growcott (Principal Social Worker NWHSST), Billie Hughes (Clinical Services Manager, Young People’s Centre), Cathy Jayat (Foster Care Associates) and Dr Tom Teggart (Clinical Psychologist Craigavon and Banbridge HSST). ACKNOWLEDGEMENTS iii 1 Executive Summary 1 VOICE OF YOUNG PEOPLE IN CARE Executive Summary This Review is a comprehensive search of literature relating to information available within the UK and Northern Ireland on the mental health of Looked After Children and Care Leavers. improve the life chances of Looked After Children/Cared Leavers. These should be linked to the Care and Pathway Planning processes. The review is divided into thirteen distinct sections which progressively address the literature in relation to the care system, the mental health of young people with an experience of the care system, risk and protective factors which influence their lives, assessment of need, structure of services, the policy and legislative framework and young people’s views on services. • The above points need to be considered regionally to ensure that any Looked After Child/Care Leaver will receive the same standard of support, no matter where they live in Northern Ireland. The vehicle for moving this forward would be a strategy to meet these needs. Several points are of importance when considering how to develop and improve the mental health of young people who experience the care system. While acknowledging the good work which is ongoing, the literature indicates that there is currently a lack of a co-coordinated, structured, young-peoplecentred approach in the area of mental health. A number of projects are highlighted which provide examples of good practice and elements of these could be considered in terms of current provision in Northern Ireland. The main points are, however, as follows: • Young people (Looked After Children/Care Leavers) need to be listened to and their views kept central to the development, planning and delivery of services. They have clear views on what services they want. • Young people’s (Looked After Children/Care Leavers) mental health should be understood and assessed within the context of their lives and a holistic approach, which allows for the full range of need from support to treatment, should be adopted. • All of those, from professionals to carers, who are involved in the lives of Looked After Children and Care Leavers, should have a shared understanding of need and assessment. • Services should be structured in a way that adheres to clear, agreed and accepted standards and facilitates co-ordination, communication, integration and accessibility. • Risk reducing and resilience enhancing actions can be taken on an everyday basis to 1: EXECUTIVE SUMMARY There is a gap in research, investment and services which leave Looked After Children/Care Leavers in Northern Ireland doubly disadvantaged. 2 2 Introduction 3 VOICE OF YOUNG PEOPLE IN CARE Introduction Review Objectives 1: The purpose of this review is to collect, collate and summarize current knowledge relevant to the mental health needs of Looked After Children and Care Leavers in Northern Ireland with a view to examining the implications for policy and practice development. 2: 3: Conducting the review 4: The literature review has been carried out from January 2005 – May 2006. Evidence for the review has been collected through a series of electronic and manual searches conducted by VOYPIC as well as through informal consultation with colleagues who have knowledge in the field. It also draws on an initial outline review which was conducted by NCB (National Children’s Bureau) prior to February 2005 (all references were then sourced, read and incorporated into this final review). While the project scope and timetable did not allow us to carry out a full systematic review of the literature, we did carry out a comprehensive search using the following types of material: • • • • • 5: 6: 7: 8: Listening to Looked After Children/ Care Leavers Electronic database searches (Including BIDS (Bath Information and Data Services) Ingenta, Medline, NCB Child Data, ORB, Psychlit, PubMed, SCIE (Social Care Institute of Excellence) (including CareData)) and Google; Journals (see Appendix for useful journals); Books; Websites (see Appendix for useful websites); Grey literature (e.g. conference presentations, news articles). The fundamental premise behind this review is that Looked After Children/Care Leavers need to be listened to. We believe that their views are crucial to determining the nature of any difficulties they may have and in order to measure the quality of the services received, they clearly need to be consulted. It is a view that is now enshrined in legislation, particularly through the UN Convention on the Rights of the Child (UNCRC), a message clearly stated in Kilkelly et al. (2004). We also believe, as Rea (1999) states: In total, 513 sources were identified and eventually 209 were incorporated into the review. The main inclusion criteria consisted of sources relevant to ‘mental health’, ‘child and adolescent mental health’ specifically in relation to Looked After Children and Care Leavers as well as concepts related to ‘resilience’ or ‘protective factors’. Where possible we have looked at the wider UK context but our main focus has been on Northern Ireland and the sources were selected with this in mind. “Users have views on their services that pre-exist any attempt to measure them, and…these views can be expressed in ways which are lucid and comprehensible…such views may enable or assist providers in the task of evaluating existing services and of prioritising planned services” (p. 169, Rea, 1999). As an organisation, over the last 13 years, we have been listening to the views of Looked After Children and Care Leavers about their experiences of living in care and experienced first hand their readiness to participate and the richness of their insights. We have also found some good examples of work with young people but are nevertheless shocked to find that in many of the studies in this review, their views were not sought. Therefore, in this review, as the initial stage in our project, we will, where possible, bring these voices to the fore. A full bibliography (of all sources) is available from VOYPIC upon request or can be downloaded from the VOYPIC website www.voypic.org. The review questions A number of inter-related question areas frame the review. These are: 2: INTRODUCTION What current evidence is available regarding the mental health needs of Looked After Children and Care Leavers? How are the mental health needs of Looked After Children and Care Leavers currently identified, assessed & monitored and how are referrals made? What action is taken to ensure that risk factors and vulnerability are reduced in the lives of Looked After Children and Care Leavers? What action is taken to ensure that protective factors and resilience are promoted in the lives of Looked After Children/Care Leavers? How are services to meet the mental health needs of Looked After Children and Care Leavers currently planned, controlled and organised? What is the current policy and legislative frame work within which the mental health needs of Looked After Children and Care Leavers in Northern Ireland are met? What services do Looked After Children and Care Leavers want and what works well? How should services develop in Northern Ireland and what is needed to implement these services? 4 Introduction Introduction Ethical and Practical Considerations Although routine assessments of user perceptions are important, we are committed to ensuring that these views measure something which has meaning to the user (Rea, 1999) and believe there is an ethical issue in ensuring resultant change (Connolly, 2003). Some of these young people have lived very difficult lives and it is our experience that even the most general question can bring up sensitive issues, so researchers should carefully consider the ethical issues in research. The new Office of Research Ethics Committees Northern Ireland (ORECNI) is a vital step forward in protecting this vulnerable group. Any consideration of research in the field should be mindful as to how it has been conducted. A discussion of these issues can be found elsewhere (e.g. Alderson & Morrow, 2004). The Review Structure For the purposes of this review we use the terms ‘children’ and ‘young people’ when referring to the general population and ‘Looked after Children’/’Care Leavers’ when referring to those who are care experienced. If any other terminology is used, this will be set in the context of the work being described. Generally, our age-brackets concern Looked After Children/Care Leavers between the ages of 12-25 years but reference to other age bands have been retained if part of the age bracket is included or if the source is seen as applicable to the review. Our work includes this broad age-range so as to gain an understanding of the lives of children and young people while they live in care and young adults up to the age of 25 years who have left care. Throughout the review we generally address the wider UK context before considering the Northern Ireland context. We will give an initial outline of the care system in Northern Ireland and the subsequent chapters will look at each of the review questions in detail. Implications for a strategy will be summarised at the end. 5 VOICE OF YOUNG PEOPLE IN CARE Introduction 2: INTRODUCTION 6 3 The Care System in Northern Ireland 7 VOICE OF YOUNG PEOPLE IN CARE The Care System in Northern Ireland “There is both an acceptance and expectation on the part of modern society that children should be valued, and in doing so the utmost importance should be placed on their care and protection. In addition those who are deprived or disadvantaged should be entitled to the benefits of a support system which will help their families through difficult periods, or in more extreme circumstances provide an alternative form of care and upbringing for the child or children who cannot remain within the natural family” (p. 3, DHSSPS, 2003a). Children accommodated for respite care increased by 45.2%, from 677 in 1999/00 to 983 in 2004/05 (DHSSPS, 2005a). FIGURE: 1 - LOOKED AFTER CHILDREN - NI Base: 2531 (All young people in care at 31 March 2005) Before looking at the issues impacting on the lives of Looked After Children/Care Leavers it is important to start with an understanding of what brings children into care, what it means to be ‘looked after’ and an understanding of the current system in Northern Ireland. A common misconception of young people in care is that they have come into care because of personal deficit of character or behaviour (Martin & Jackson, 2002). However, as Martin & Jackson (2002) point out, most young people come into care as a result of family circumstances and through no fault of their own. These precise reasons will be explained later in the review. A child or young person who enters the care system can be referred to as ‘looked after’. A Looked After Child is any child in substitute (or in public) care, including those in foster or residential homes and those still with their own parents but subject to Care Orders. The actual term ‘Looked After’ was introduced under the Children Act 1989 and the Children (NI) Order 1995. There are two main routes into care, either on a voluntary basis to assist parents or as the result of a Care Order. Parental responsibility can then either rest with the parent or the Trust acquires it (Kilkelly et al. 2004). Overall rate of 56 children per 10,000-population aged under 18. Comparative figures in the UK are: • • • 55 children in England 106 in Scotland & 65 in Wales Source: Department of Health, Social Services & Public Safety (2005a). Children Order Statisical Bulletin. The definition of a Care Leaver, which we shall use in this review relates to a young person who has ceased to be ‘Looked After’ by the state. Depending on their age and circumstances, under the new Children (Leaving Care) Act (NI) 2002, they are still entitled to some support but the detail of this shall remain outside the scope of this review. Looked After Children under 12 are more likely to be placed in foster care (78% of all those in foster care are under 12) while those 12 or over are more likely to be placed in residential care (85% of all those in residential care are 12 and over) (DHSSPS, 2004a). Fostering Provision 3.1 Looked After Children in Northern Ireland Within fostering, placements can be allocated on a respite, short, medium and long-term basis. Foster care accounts for almost two thirds of those in care in Northern Ireland and has been the dominant placement for Looked After Children since the 1970s. However, while there has been a rise in the proportion of Looked After Children placed in foster care, there has not been a corresponding rise in foster carers (Kilkelly et al., 2004), giving rise to concern about placement choice (McAuley, 2000). Most fostering takes place on a voluntary basis At the end of March 2005 there were 2,531 Looked After Children across Northern Ireland (Department of Health, Social Services and Public Safety, DHSSPS, 2005a) and each type of care placement is shown in Figure 1. Most Looked After Children (56%) at the end of March 2005 were placed in foster care, with 12.5% placed in residential care and over a quarter (26.6%) placed with family (DHSSPS, 2005a). The numbers of Looked After 3: CARE SYSTEM NI 8 Care System NI Care System NI whereby foster carers are paid an allowance for the cost of caring for Looked After Children. Nevertheless, some fostering does take place on a private basis, outside of Social Services, provided, for example, by Foster Care Associates and Kindercare. Referrals to private fostering are received from the local HSS Trusts. Leavers came from the Eastern Health and Social Services Board (EHSSB) area (Mooney et al., 2004). Under the new Children (Leaving Care) Act (NI) 2002, Care Leavers can move into several different housing options. These may include: staying on in their current placement, supported housing, floating support schemes, foyers or their own tenancy (VOYPIC, 2006). Residential Provision At the end of March 2005, there were 52 residential homes for Looked After Children in NI including 42 statutory, 9 voluntary and 1 private Children’s Home (DHSSPS, 2005a). These homes provide accommodation for a maximum of 392 Looked After Children at any given time (DHSSPS, 2005a). The residential sector in Northern Ireland is undergoing considerable change. Within residential care, some Looked After Children may be placed in regional care centres (‘secure’ and ‘open’ units). Secure accommodation refers to accommodation provided for the purpose of restricting liberty (under Article 44 of the Children (NI) Order 1995). A Looked After Child may only be placed in this type of accommodation if he/she is at risk of absconding and likely to suffer significant harm or likely to injure himself or other persons if living elsewhere. Since November 1996, secure care has been provided for Looked After Children at the Lakewood Centre in Bangor (McMaster, 2004). However, a new build of secure accommodation will be opened in 2006. 49 Looked After Children were admitted to and 39 were discharged from secure accommodation during 2004/5 (DHSSPS, 2005a). ‘Open’ units used for ‘young people (both boys and girls) who present with challenging behaviour and whose needs cannot be met in mainstream children’s homes’ (p. 18, McMaster, 2004) are available in Lakewood and Glenmona. Youth Justice Provision Some Looked After Children may also progress into the Juvenile Justice Service and are then placed at the Juvenile Justice Centre in Rathgael. The centre is part of the Youth Justice Agency and provides secure custodial facilities for young people 10-17 years who are referred by the courts (either on sentence or remand) (McMaster, 2004). 3.2 Care Leavers in Northern Ireland 206 Looked After Children aged 16 years or more (106 boys and 100 girls) left care in Northern Ireland during the year ending 31 March 2003. Half had been looked after for over five years and a quarter had been in care for ten years or more. Almost half of these young Care 9 VOICE OF YOUNG PEOPLE IN CARE Care System NI 3: CARE SYSTEM NI 10 4 What current evidence is available regarding the mental health needs of Looked After Children and Care Leavers? 11 VOICE OF YOUNG PEOPLE IN CARE What current evidence is available regarding the mental health needs of Looked After Children and Care Leavers? While it is widely accepted that Looked After Children and Care Leavers have mental health needs, it is fundamental to this review to gather the relating evidence in Northern Ireland. 10, an internationally recognised classification system for disorder. The distinction between a Problem and a Disorder is not exact but turns on the severity, persistence, effects and combination of features found”. 3) Mental Illness: “Might be used for a small proportion of cases of mental disorders. Usually, it is reserved for the most severe cases”. (p. 13, RMHLDNI, 2005a). 4.1 Definitions of ‘Mental Health’ One of the most used and useful definitions of mental health is that of the National Health Service (NHS) Health Advisory Service (HAS) (NHS HAS, 1995). The Mental Health Foundation (1999) expanded this definition to define children who are mentally healthy as having the ability to: • Develop psychologically, emotionally, creatively, intellectually and spiritually; • Initiate, develop and sustain mutually satisfying personal relationships; • Use and enjoy solitude; • Become aware of others and empathise with them; • Play and learn; • Develop a sense of right and wrong; • Resolve (face) problems and setbacks and learn from them (p.6, Mental Health Foundation (1999) based on the NHS HAS (1995) definition). 4.1.1 Defining mental health problems of Looked After Children/Care Leavers Throughout the review, we will argue that there are further contextual issues in the lives of Looked After Children/Care Leavers which need to be considered alongside these definitions. While this review will show some shocking statistics on the mental health needs of Looked After Children/Care Leavers when compared to their peers in the general population, it is necessary to note that as Coleman (2005) points out we are not comparing like with like and states: “These are vulnerable young people, who have endured all sorts of adverse circumstances relating to mental ill health. Perhaps we should expect these children and young people to have some symptoms of internal distress, anxiety, depression and self-harm” (Coleman, 2005). One of the strengths of this definition lies in the emphasis on the broader concept of well-being rather than an absence of illness, a notion used by the Public Health Institute of Scotland (2003b). Another strength is the presumption that mental health is something shared by us all, as borne out by the ‘Promoting Mental Health Strategy and Action Plan 2003-2008 by DHSSPS (2003b): This need to understand the contextual issues has already been recognised by the World Health Organisation (WHO, 2003). Before steps are taken to diagnose a child or young person with a disorder, the WHO (WHO, 2003) cautions that we need to place importance on understanding their environment; that is their family, community and nation: “Everyone has mental health needs, whether or not they have a diagnosis of mental illness. Mental and emotional health promotion involves any action to enhance the mental wellbeing of individuals, families, organisations or communities” (p. 5, DHSSPS, 2003b). “Disorders of mental functioning cannot be seen as static diagnostic labels but rather must be seen as dynamic responses to social/environmental stressors” (p. 7, WHO, 2003). It is also necessary to define mental ill-health. For the purposes of this review, we will use the definitions outlined in the recent consultation document for the Review of Mental Health and Learning Disability Northern Ireland (RMHLDNI) Child and Adolescent Mental Health Services (CAMHS) Consultation report (RMHLDNI, 2005a). It defines three common categories of mental ill-health. This would seem particularly relevant for Looked After Children/Care Leavers given the complexity of social and environmental stress they have experienced in their lives. As young people progress through their teenage years, the range of mental health problems they face increases dramatically but Aggleton cautions that any attempt to explain mental health problems of Looked After Children whilst ignoring the fact that a young person is looked after will be limited (Aggleton et al., 2000). Rather, we need to look at what can be expected from Looked After Children. As Pearce, 2000 states: 1) A mental health problem: “Describes a very broad range of emotional or behavioural difficulties that may cause concern or distress. They are relatively common, may or may not be transient but encompass mental disorders, which are more severe and/or persistent”. 2) Mental or psychiatric disorders: “Are those problems that meet the requirements of ICD 4: MENTAL HEALTH NEEDS “A disorder occurs where the emotional state is of such 12 looked after children and those which have been reported have concentrated on a particular geographical area and have relatively small samples” (p. 1, Meltzer et al., 2003). severity and/or duration that it interferes with everyday life and is out of proportion to what would normally be expected in the circumstances taking into account the young person’s family background, culture and stage of development” (p. 51, Pearce, 2000). Recognising this gap in information, the Office for National Statistics carried out surveys in 2002 of the mental health of young people looked after by local authorities in England (Meltzer et al., 2003), Scotland (Meltzer et al., 2004a) and Wales (Meltzer et al., 2004b). As the first such prevalence studies in the UK, they are of considerable importance when analysing the mental health needs of Looked After Children. The robust design of the studies which accounts for both symptoms and impact of mental health disorders allows for more confidence in the findings compared with previous small-scale studies. This statement provides some argument for re-examining the threshold of what would normally be expected from a young person in care before making a diagnosis. Richardson & Joughin (2000) caution that diagnoses may not be helpful in understanding the emotional predicaments and feelings of Looked After Children. Nevertheless, while there is much debate on the stigma and labelling of Looked After Children, as Richardson & Lelliott (2003) remind us, a diagnosis can bring relief because difficulties are explained and help can then be sought. Among 11-15 year olds, the prevalence of mental disorders within the three countries’ looked after populations compared with those in private households was 49% (compared with 11%) in England, 41% (compared with 9%) in Scotland and 40% (compared with 12%) in Wales (Meltzer et al. 2000; 2003; 2004a; 2004b). While patterns of disorders differed, there were no significant differences in the overall prevalence of mental disorders in the three countries apart from these considerable differences between these rates of disorder and those found for children living in private households (Meltzer et al., 2000). Aligned to this point is the fact that different professions adhere to different models of mental health. Payne & Butler (2003) stipulated that professionals need to create a constructive synthesis of ‘social’ and ‘medical’ models of mental health to provide effective help to young people. The provision of this help, in their opinion, depends on the ability to draw on shared aims and responses from a range of sources and professional perspectives (Payne & Butler, 2003). Furthermore, the WHO (2003) encourages the consideration of broader categories of disorder rather than narrower disease definitions because this is more readily understood by professionals and non-professionals without previous mental health training. The WHO believe that this would assist understanding and prompt these people to make a diagnosis and refer for treatment (WHO, 2003): Many other examples of research which suggest high levels of need in the Looked After population have been carried out particularly in the last ten years (McCann et al., 1996; Philips, 1997; Butler & Vostanis, 1998; Dimigen et al., 1999; Williams et al., 2001; Minnis et al., 2001; Royal College of Psychiatrists Research Unit, 2001; Residential Care Health Project (RCHP), 2004; Blower et al., 2004). A comparison of these studies is appended (Appendix 3). Care Leavers are also at known risk of developing mental health problems (e.g. Richardson, 2002), although the prevalence studies do not tend to extend into higher age groups taking in young people leaving care. “We are well aware of the risks inherent of medicalization in any discussion of mental health problems of children and adolescents – or worse, its ‘psychiatrization’ – of problems of normal living and normal psychosocial development. We are also aware of the many spurious interests endangering an unbiased, objective approach to normal developmental issues, that tend to unduly put many problems of normal living in the basket of ‘medical or mental disorders’” (p. 1, WHO, 2003). 4.2 Mental Health Needs Mental Health Needs Northern Ireland Unlike the rest of the UK, Northern Ireland has not benefited from a large-scale prevalence study to look at the mental health of the population as a whole, or the looked after population in particular. Current indicators are therefore extrapolated from British and international studies. Some small-scale local studies however, do point to similarly high levels of need. One example is a study by Teggart & Menary (2005) carried out in Craigavon and Banbridge HSST which suggested that up to two thirds of Looked After Children aged 11-16 years potentially had diagnosable mental illnesses. Another was the assessment of need by McMaster (2004) of 52 Looked After Children The Mental Health Needs of Looked After Children/Care Leavers Prior to 2003, there was, regrettably, a lack of information on the prevalence of mental health disorders among Looked After Children. Meltzer et al. (2003) note: “There have been few studies which have attempted to estimate the prevalence of mental disorder among 13 VOICE OF YOUNG PEOPLE IN CARE Mental Health Needs aged 12-18 years accommodated in regional care centres on a given day. This study found that just over 90% of Looked After Children experienced some level of anxiety (sometimes, usually or always), 86% had some degree of difficulty in coping with life situations and 71% had a sense of hopelessness (sometimes or frequently) (McMaster, 2004). A further study found evidence of mental health needs in more troubled Looked After Children in a follow up study of long-term foster care (McAuley, 2004). and 10% anxiety. 119 young people aged 11-25 years were provided with counselling services. Again the top presenting issues for counselling were relationships (18%), self-esteem (16%), anger (13%), anxiety (10%) and family conflict (10%) (YCNI, 2004). There is some mention that, in general, people in Northern Ireland may be at greater risk of mental ill-health than individuals in other parts of the United Kingdom (O’Reilly & Browne, 20011; NISRA, 2002; McConnell et al., 2002; O’Reilly & Stevenson, 2003; RMHLDNI, 2005a). O’Rawe for example mentions that O’Reilly & Browne (2001) estimate the level of mental health need is 21% higher for men and 29% higher for women in Northern Ireland in comparison to England (as cited in O’Rawe, 2003, p. 2). Studies at local levels point to specific reasons for higher rates of mental ill-health than in the rest of the UK. One example is the McConnell et al. (2002) study in the District of Derry which shows high rates of psychiatric disorder in the general population in the area. This study found that rates of disorder were even greater than those reported by a similar study in inner London and were attributed, among other things, to widespread social deprivation (McConnell et al., 2002). Similarly, O’Reilly & Stevenson (2003) suggest that the ‘Troubles’ have significantly impacted on the mental health of the population of Northern Ireland, although it is unclear if this is attributable to the violence itself or other aspects of the Troubles. Given the lack of information on the mental health of Looked After Children the review has therefore looked at the wider population in Northern Ireland and at young people in particular. In Northern Ireland, mental health problems in the general population are among the most common forms of ill-health, and an attempt to estimate the economic and social costs of this was made by the Northern Ireland Association for Mental Health (NIAMH) in 2004. They replicated an earlier study by the Sainsbury Centre for Mental Health in England, and estimated that in 2002/03 the economic and social costs of mental illness in Northern Ireland totalled nearly £3billion. This figure, they noted, therefore exceeded the total spend on all health and social care for all health conditions (NIAMH, 2004). High rates of mental health problems have been found in general amongst young people in Northern Ireland as evidenced in the Northern Ireland Health and Social Well-being Survey (2001). In this survey, 21% of all those aged 16+ in Northern Ireland showed signs of a possible mental health problem (achieving high scores on the General Health Questionnaire, GHQ12) (NISRA, 2002). Mental health does concern young people and is one of the prevailing issues from young people accessing services such as Contact Youth and ChildLine (YCNI, 2004). The Youth Council for Northern Ireland (YCNI) carries out a Youth Barometer which compiles and collates information pertaining to children and young people aged 0-25 years and the 2004 version provides up-to-date figures of presenting issues for young people in Northern Ireland (YCNI, 2004). Between April 2003 and March 2004, 405,430 calls were attempted to ChildLine (NI) and the most common issues were bullying, family relationship problems and physical abuse (YCNI, 2004). During this same period, 4,500 calls were made to Contact Youth which provides a range of guidance and counselling services for young people (YCNI, 2004). Many of the calls related to mental health issues with 30% being due to relationships, 11% anger Other evidence appears to suggest that perceptions of general ‘health’ also seem to differ for young people in general in Northern Ireland (HPANI, 2001a; Information & Analysis Directorate, 2004). The Health Promotion Agency Northern Ireland (HPANI, 2001a) explored the mental health and well-being of the general population of young people in Northern Ireland via secondary analysis of the Health Behaviour of School Children 2 Survey (1997/8) . They found that while most of the young people who took part in the survey regarded themselves as healthy, when compared to young people in other European countries, those in Northern Ireland had a relatively negative view of their health. Similarly, the Information & Analysis Directorate reveals that in 2001 fewer people in Northern Ireland self-reported ‘good general health’ (54%) compared to England (in 2000, 76%), Scotland (in 1998, 77%) and in Wales (in 1998, 80%) (Information & Analysis Directorate, 2004). These figures suggest there is still a gap in perceived health worthy of consideration. Commissioning a large-scale prevalence study similar to 1 O’Reilly, D. & Browne, S. (2001) Health and Health Service Use in NI: Social Variations. DHSSPS. 2 The HBSC Survey is a cross-national research study carried out in collaboration with the European Region of the WHO and is administered by the HPANI in Northern Ireland. Data is collected from a representative sample of 11-15 year olds every 3-4 years regarding their health behaviours and lifestyle (HPANI, 2001a). 4: MENTAL HEALTH NEEDS 14 that of the Meltzer et al. study has been recommended on several occasions (e.g. McMaster, 2004; RMHLDNI, 2005a). It is our view that a prevalence study, particularly a subsequent one for Looked After Children is essential. Furthermore, consideration for the aforementioned differences in Northern Ireland should be incorporated into the design of the study tailored to Northern Ireland. Despite the lack of information on the prevalence of mental health problems in Looked After Children and Care Leavers, we can extrapolate from other studies and it seems likely that the needs of these populations in Northern Ireland is at least similar, if not higher than the Meltzer et al. studies, equating to just under half the Looked After population. These problems may well become more pronounced in future years given the World Health Organisation’s statement that over the next twenty years, the burden of mental ill-health in general will grow significantly (DHSSPS, 2004b). KEY POINTS FOR CONSIDERATION We do not go into detail in this review about the types of disorder which can be presented but it would be useful here to note that a young person moves through different developmental stages whereby different disorders are more likely to present. For example, conduct disorders are more common in the pre-teens, in adolescence more problems surface such as deliberate self-harm and suicide and adolescent psychosis may be a precursor to schizophrenia. It is therefore important for services to be able to respond to the likely issues which present. 15 • Lack of information on Care Leavers’ Mental Health. • The need for a clear and shared understanding of the concept of emotional well-being. • Mental health is a particular concern for young people in the general population, and more so for Looked After Children/Care Leavers. • Numbers of calls to ChildLine and Contact Youth show that many young people, in general, do try to reach out for help. • The general poorer level of mental health in the Northern Ireland population & the impact of Troubles may well be significant. • The need for an extension of the Meltzer et al. study in Northern Ireland. Mental Health Needs Mental Health Needs VOICE OF YOUNG PEOPLE IN CARE Mental Health Needs 4: MENTAL HEALTH NEEDS 16 5 How are the mental health needs of Looked After Children and Care Leavers currently identified, assessed & monitored and how are referrals made? 17 VOICE OF YOUNG PEOPLE IN CARE How are the mental health needs of Looked After Children and Care Leavers currently identified, assessed & monitored and how are referrals made? It is important to establish how the mental health needs of Looked After Children and Care Leavers are currently identified, assessed & monitored and how referrals take place. 5.1 recommend and develop a health care plan (including referrals to other services). These recommendations were discussed with the young person to develop their health awareness (RCHP, 2004). Numerous tools to assess the health and mental health of Looked After Children have been described in the literature (e.g. Altshuler & Poertner, 2002; Bonnett & Welbury, 2004). A comprehensive discussion on the merits and criticisms of such tools as screening instruments can be found in the Meltzer et al. (2003) study for example. It specifically discusses screening instruments (Rutter Scales A and B, the Child Behaviour Checklist (CBCL)), Strengths and Difficulties Questionnaire (SDQ), diagnostic instruments (including the Schedule for Affective Disorders and Schizophrenia (K-SADS), Interview Schedule for Children (ISC), Child Assessment Schedule (CAS), Child and Adolescent Psychiatric Assessment (CAPA), Diagnostic Interview Schedule for Children (DISC) and Diagnostic Interview for Children and Adolescents (DICA), and the Development and Wellbeing Assessment (DAWBA). Identifying and assessing the mental health problems of Looked After Children/Care Leavers Ideally, a full and effective assessment needs to be carried out to ensure that problems are not missed. However, there is considerable evidence to suggest that some Looked After Children fall through the net (e.g. McCann et al., 1996; Phillips, 1997; Dimigen et al., 1999; Richardson, 2002; Hill & Watkins, 2003; RCHP, 2004). In Hill & Watkins’ (2003) critical assessment of statutory health assessments for Looked After Children which tracked a cohort of Looked After Children through the assessment and review process, recommendations had only been implemented for just over half of the Looked After Children at the review stage. These findings (and others) highlight the need for a system of early assessment and referral. They also suggest that young Care Leavers may have left the system without their needs being identified. This obviously has implications for adult mental health. Mental health should not be viewed in isolation, but as interlinked with physical and social health and there is growing evidence to suggest this interrelationship (Royal College of Paediatrics and Child Health, RCPCH, 2003). A good example is that in the general population of 5 to 15 year-olds poorer general health was reported in children with mental health problems (Meltzer et al., 2000). In the UK, Williams (2005) recently provided a crude ‘guesstimate’ of the current level of service provision for the population of children and young people that might be in more serious need at 10%. He based this on a comparison of activity figures provided by the mapping exercise carried out in England for a month in 2002 with the prevalence data found in the 1999 Office for National Statistics (ONS) study of disorder (Williams, 2005). Ford et al. (2005) also carried out a follow up study to the 1999 ONS Study (Meltzer et al., 2000) to look at service provision. They found that of those young people identified in the earlier study as having psychiatric disorders, 58% had been in contact with services (such as social services, special educational needs resources, the youth justice system and mental health services) for emotional, behavioural or concentration reasons. This percentage included 23% who had been in contact with mental health services. They note that the proportion seeing specialist mental health services exceeds that normally reported in the research literature (Ford et al., 2005). This link between physical and mental health has been addressed among Looked After Children by Hill & Thompson (2003). They caution that their findings do not demonstrate causation, rather an association between these factors and outline three main ways in which Looked After Children may experience mental and physical health co-morbidity. Firstly, both may arise from a common aetiology in the child’s early experiences. Secondly, mental health problems may occur indirectly as a consequence of chronic physical ill-health. Finally, the causal path may be reversed whereby physical health problems are secondary to a mental health problem (Hill & Thompson, 2003). Hill & Thompson (2003) suggest that services need to adopt a holistic perspective representing a movement away from the traditionally separate disciplines of physical and mental health. They use the example of a Behaviour Resource Service to show how this can be done, given that a named paediatrician has the role of ensuring that physical health issues are not overlooked. Mental health assessments can work very well as a component of a comprehensive health assessment. The Residential Care Health Project (RCHP) in Scotland set up an excellent process for identifying and assessing problems for young people in residential care (RCHP, 2004). Among the key objectives was to carry out a comprehensive health assessment with a specific mental health component (rather than a routine medical) and 5: IDENTIFYING & ASSESSING Others note that statutory assessments work well when carried out from a health promotion rather than disease screening perspective and should be delivered by professionals skilled in addressing diverse health needs (Hill & Watkins, 2003). An interesting example by Grimes in 18 the US is of a ‘strength-based’ assessment (WHO, 2003). However, professionals must still consider the potential for mental health problems: Identifying & Assessing Identifying & Assessing The RMHLDNI does not recommend the use of screening tools as stand-alone assessments, but rather as a support for holistic assessments (RMHLDNI, 2005b). The review concedes that: “Consideration of formal mental health problems should be included in the general assessment of children when entering the looked after system and at regular intervals thereafter and some standardisation of assessment and notation across services may be helpful” (p. 81, Nicholas et al., 2003). “Commonly used research tools are recognised to run the risk of identifying disorders where none are present….there is not evidence to advocate the widespread use of screening tools” (p. 37, RMHLDNI, 2005b). Northern Ireland There is currently no regional assessment framework in Northern Ireland (Bunting, 2004; McAuley, in press). Bunting (2004) acknowledges that the rest of the UK has benefited from an increased focus on assessment processes for children in need through the introduction of the Department of Health (DH) ‘Framework for the Assessment of Children in Need and Their Families’ (DH, 2000) as part of the Quality Protects Initiative. Neither the framework, nor Quality Protects have been formally adopted in Northern Ireland with the result that Health and Social Service Boards (HSSBs) have been ‘left to their own devices’ to develop assessment models at a subregional level. She concludes that Northern Ireland would benefit from a regional, standardized approach to assessment so that the same information is collected (Bunting, 2004). Similarly, McAuley (in press) noted that while in England, Wales and Scotland, the DH Framework for Assessment of Children in Need and their Families and the more recent Department for Education and Skills (DfES) Common Assessment Framework place an emphasis on assessment for planning and intervention, no comparable framework has been adopted in Northern Ireland. She stated however, that the ‘Strategic Framework for Children in Need and their Families’ currently being developed should bridge this gap (McAuley, in press). There is some evidence of unmet need in Northern Ireland such as the McConnell et al. (2002) survey of psychiatric disorder which found that only a quarter of needs for treatment were met. A follow-up study to Teggart & Menary’s (2005) work mentioned earlier has been initiated to investigate what services are being offered to, and used by, Looked After Children in Craigavon and Banbridge Trust (Teggart & Menary, 2005). At present, some degree of mental health assessments do appear to be carried out in the four Board areas. For example, Sperrin and Lakeland Trust (SLT) in the Western Board has developed a Therapeutic Service for Looked After Children (TSLAC). A recommendation for the future progression of the service is to allow for a comprehensive assessment on the mental health of Looked After Children upon entering the care system (SLT, 2006). Another example is the assessment tool developed by the Ulster Community and Hospitals Trust (UCHT) in the EHSSB area as part of the latest set of Service Improvement Projects (DHSSPS, 2006a). Following a successful first wave, the second wave of Service Improvement Projects began in September 2004. The aim is to improve access for patients and clients by engaging multi-disciplinary teams in the redesign of services to reduce waits and delays at all stages of the care pathway. Prior to the project, there was no robust and comprehensive system in place to assess the mental health needs of Looked After Children in the area. The project identified the main carer as the most appropriate person to carry out the assessments, e.g. the foster carer or key worker. A multi-disciplinary clinical group was formed and tasked with developing an assessment tool which was then administered by these identified carers. Quantitatively better information was gathered when the tool was completed with the child rather than the carer independently. A learning point was that the carer’s knowledge and skills within the Looked After Children system were underused (DHSSPS, 2006a). The tool is still being used by UCHT and the Eastern Health and Social Services Board (EHSSB), at the time of writing, had planned to roll out the tool in the other Trust areas (DHSSPS, 2006a). 5.2 Discrepancies in what Looked After Children say and how others assess their needs Some evidence suggests that the views of Looked After Children often differ from those of professionals and caregivers around them regarding whether or not they have mental health needs (e.g. Williams et al., 2001; Mount et al., 2004; White & Stancombe, 2004). Williams et al. (2001) found that carers had significantly less appreciation of the difficulties young people in their care had with interpersonal relationships and perceived greater behavioural problems contrasting with the parents in a matched control group. Similarly, Mount et al. (2004) found that carers were four times more likely to identify Looked After Children as having mental health needs than Looked After Children were themselves both 19 VOICE OF YOUNG PEOPLE IN CARE Identifying & Assessing on an intuitive basis and when using a mental health screen. Two thirds of the carers were intuitively accurate. The authors note that 70% of the carers and 20% of the Looked After Children themselves noted they had mental health needs which is surprising when compared to previous studies (e.g. see comparison of studies in Appendix 3). White & Stancombe (2004) found similar discrepancies in their study which involved an assessment of the mental health needs of all Looked After Children over 7 years in Stockport. Carers completed the Devereux scales of mental disorder and Looked After Children completed the Reynolds depression scale and self-esteem inventory. They found that whilst carers reported relatively high levels of depression and antisocial behaviour for 13 to 18 year olds, Looked After Children themselves neither reported high levels of depressive symptoms nor low self-esteem. are to an extent precursors of future beliefs and attitudes. This would similarly be the case for Looked After Children/Care Leavers. Thirdly, these discrepancies may simply demonstrate that there may always be differences of opinion about difficulties and their solutions. Mount et al. (2004) gave several reasons for Looked After Children denying having a mental health problem. These included preserving selfesteem or considering the ‘symptoms’ as normal in the context of their lives. They believe it is plausible that Looked After Children in the study felt it necessary to normalize their behavior and that their main reference point for ‘normal’ feelings and behavior is their own experiences fuelled by a desire not to be perceived as different from their peers. Further, they note that the discrepancy could result from an over-reporting of young people’s emotional expression and difficult behaviour by carers (Mount et al., 2004). The fact that these discrepancies exist warrants further consideration. Firstly, the discrepancies have implications for service provision. White & Stancombe (2004) argue that while the established literature makes a strong case for investment in specialist CAMH Services, contradictory assessments of mental health needs challenge this viewpoint. The authors suggest their findings question the assumption that Looked After Children need specialist psychiatric services rather than a more mainstream and cost-effective range of support services (White & Stancombe, 2004). Similarly, Frankish & McCrossen (2005) believe good promotion and prevention services need to be in place, rather than resources concentrating solely on Tiers 3 and 4 (for explanation of the 4-Tier system, see chapter 8). The danger in such an argument is that it may lack consideration for the very convincing levels of need expressed by the ONS studies discussed earlier (Meltzer et al., 2003; 2004a; 2004b) whereby almost half of the Looked After population were seen as having a diagnosable disorder. Nevertheless, this half would still need to access lower level services as well as higher ones. In this review, we argue that both specialist and mainstream services are needed. Finally, these discrepancies may simply raise issues in relation to the tools and definitions used so we must ensure that we are comparing like with like. Similarly, discrepancies may occur in professional opinions. Phillips (1997), for instance, identified a mismatch between the decisions of social workers and child mental health professionals regarding the number of Looked After Children in need of treatment which has obvious implications for inter-agency working. Mount et al. (2004) also suggest that a replication of the study they carried out with Looked After Children and carers would be necessary with social workers to understand their identification of mental health need in Looked After Children and subsequent referral decisions to CAMHS. 5.3 Instigating, monitoring and following up on assessments – the role of Advocacy The reasons for the lack of instigation, monitoring and follow-up to assessments can range from instability of placements to young people being lost at the interface between CAMHS and Adult Mental Health (AMH) Services. Polnay & Ward (2000) state that, despite obligations of the Children Act 1989 to ensure that the developmental progress of every Looked After Child is monitored and benefits from an annual medical report, their mental and physical health problems are often overlooked or not properly managed. Looked After Children and Care Leavers is an under-developed area. Secondly, the discrepancies highlight that assessments need to be conducted from the perspective of all relevant parties and should include Looked After Children/Care Leavers. However, this is not always the case even among young people in the general population, as Armstrong et al. (2000) state: “Research exploring young people’s views towards mental health is at an early stage of development… both mental health and the perspectives of children are relatively under-explored” (p. 60, Armstrong et al., 2000). This lack of focus on the issues relating to their mental health causes difficulty, as Looked After Children have no As the authors note, the views which young people hold 5: IDENTIFYING & ASSESSING 20 real advocate to seek out services on their behalf (DH, 2002). Advocacy can be conceptualised in two different ways, as the more informal processes used by parents or frontline workers, or as a formal independent initiative. Identifying & Assessing Identifying & Assessing seemed to be no sense of him ‘owning’ the problem so the therapist doubted the potential for a therapeutic alliance but the residential worker insisted. Although Derrick had not directly asked for help, his worker was able to see that his earlier experiences had had a profound impact on his inner world and in Fleming’s words he ‘championed his emotional health’ and acted as his advocate. Fleming notes that this type of story is not uncommon, many Looked After Children do not usually find their way to psychoanalytic psychotherapy, nor is it seriously considered. However, he feels that if the referral process is exposed to the network around the child, those working closely with Looked After Children may be adept at picking up the indirect messages from them (Fleming, 2003). In the general population, most children turn first to parents with their health concerns (Meltzer et al., 2000; Madge & Franklin, 2003) and these studies show that young people in general can rely on competent adults to recognise their health problems and assist them in accessing services. Butler & Payne (1997) state that: “In the case of children living with their own parents, as we have suggested, the concern with their child’s health is a primary and primal one. Current practice would suggest that similar urgency is not felt in regard to children in public care. Greater awareness among professionals of the importance of a child’s health to her or his general well-being would help, but strong local awareness and advocacy by those with the day-to-day care of children would help even more” (p.34, Butler & Payne, 1997). The WHO sees formal advocacy as an essential element in the care of children and young people with mental health disorders but cautions that it can be fragmented: “The drawback to current advocacy is the fragmentation among NGOs [Non-Governmental Organisations] and others in the development of co-ordinated systems of care, and discipline competition” (p. 21, WHO, 2003). The RCHP (2004) reminds us that young people in residential care do not have the same network of adults as their peers (not living in care) to talk to about sensitive health issues e.g., parents, teachers, a GP known to the family. Northern Ireland In a longitudinal study of young people in long-term foster care, McAuley (in press) found that foster carers had encouraged Looked After Children to apply for courses or used local contacts to assist them in gaining employment. One creative approach, which could prove useful in the future, is that used by the RCHP (RCHP, 2004) of support to residential staff. The RCHP based their approach on the assumption that in 81% of cases Looked After Children would approach a unit staff member if they did not feel well. The project decided to build on this by developing a training and support role for these staff delivered by nurses and not dissimilar to the process a new mother goes through with a health visitor. This allowed the staff to deal with Looked After Children presenting with issues they had not previously encountered. As the project progressed, individual careplanning took over from initial crisis-management. Alongside this role, the nurses also took on an advocacy role for the Looked After Children. The need for advocacy has been highlighted in Northern Ireland (Kilkelly et al., 2004, Kilpatrick, in press) and at present VOYPIC operates the only independent advocacy service exclusively for Looked After Children and Care Leavers in Northern Ireland. VOYPIC’s definition of “Advocacy” is providing an independent and skilled service to represent the rights of care experienced children and young people. The service is independent of the Health and Social Services Trusts and brings to the attention of government and relevant agencies, the problems existing in the extent and quality of care provided for young people. VOYPIC campaign for the improvement in the provision and quality of care services in Northern Ireland. The job of a VOYPIC Advocate is to represent young people, give them a voice and consult with them on issues pertaining to their care. Presently VOYPIC offers individual advocacy, group advocacy, and campaign work. It involves helping children and young people to: Looked After Children/Care Leavers may also miss out on services which would assist them because professionals may not think they will benefit from certain services. A good example of this was a very honest account given by a child psychotherapist, Robert Fleming, regarding a psychotherapy case which benefited the Looked After Child despite the therapist’s initial reluctance to take on the referral (Fleming, 2003). When Derrick (a 14 year old living in residential care) was referred to the psychotherapist by his residential social worker, there • • • • 21 Learn about their rights; Learn about the services to which they are entitled; Make informed choices; Ask for services and adherence of their rights; VOICE OF YOUNG PEOPLE IN CARE Identifying & Assessing • judgements. They were concerned with the finding that 23% of carers did not identify needs which were subsequently identified by the mental health screen and provided reasons such as Looked After Children’s ability to conceal their distress or carer’s potential difficulties in identifying internalised behaviours. They note that some Looked After Children are extremely skilled in shutting themselves off and keeping adults at a distance (Mount et al., 2004). Ensure that the services they receive are appropriate and take account of their age, gender, race, religion, culture, language, physical or mental health, or sexual orientation. The service works in partnership with other professionals, agencies and individuals to ensure that the child’s views are taken into consideration and that each work to ensure a commitment to children’s rights and services. From December 2004 - November 2005, 107 care experienced young people were involved with VOYPIC’s advocacy service. Issues included concerns about leaving care (particularly accommodation), mental health tribunals, concerns about placement, lack of contact with siblings and concerns about education. The actual criteria for referral and process of referring to CAMHS may also be difficult. Valios (2002) notes that mental health problems in Looked After Children are often difficult to spot and if a professional does realise they have mental health problems, they may still need to see a sympathetic GP before referral to a specialised service. Valios further shows that placement instability can restrict young people’s access to CAMHS. For this reason, Callaghan et al. (2004) note that the Looked After Team, in their study, did not define placement stability as a prerequisite of referral. Similarly, the actual criteria for referral should be clear: A recent development by NICCY should prove informative through commissioning the University of Ulster to carry out ‘A Northern Ireland based Review of Advocacy Arrangements for Children and Young People with Mental Health Needs who are in Care or Custody’. This involves consultation with young people, their parents/carers and professionals working within the field. The aim of of the review is to find out what advocacy services are available to these young people, what the strengths and weaknesses of the current situation are and what needs to change (NICCY, 2006). 5.4 “Here there are many young people who are emotionally troubled but not mentally ill, for whom AMHS referral criteria currently do not apply” (p. 52, RCHP, 2004). There is a degree of anecdotal evidence to suggest that the process of accessing CAMH Services is a difficult process and referral processes are not usually designed to cope with acute or urgent referrals despite this often being the type of referral (Kerfoot, 2005). Richardson & Joughin (2000) also mention the 1999 Audit Commission report which shows that NHS clinicians are the main referral route to specialist CAMHS (52% by GPs and 15% by pediatricians). Kerfoot similarly notes the 1999 Audit Commission report which suggested that social workers referred less to CAMHS because these would be routed through a GP and then on to a waiting list. This is worrying since nowadays social workers are responsible for coordinating a number of subcontracted services for Looked After Children e.g. family centres (Kerfoot, 2005). They can be the direct referrer or an agent for foster carers and residential workers to CAMH or AMH services. Referrals The approach used by those working directly with Looked After Children/Care Leavers is a crucial step to meeting Looked After Children/Care Leavers’ needs through referrals to appropriate services. In order to be able to refer, those working with Looked After Children/Care Leavers need to have a common understanding of what constitutes CAMHS and Adult Mental Health Services. They also need to be able to explain and prepare the young person for the services they will receive: “Children need to understand whom they are going to see and why, what will happen and what they might need to say or to ask. They need to be offered choices about how, when and whom they see and whether they go alone or have their foster carer or social worker with them” (p. 27, Richardson, 2002). In order to access services, good information is needed on what these services are and how they can be accessed. Some movement towards this aim comes from a comprehensive CAMHS database which has been set up through a mapping exercise (found on the website www.camhsmapping.org.uk). Nevertheless, the RCHP (Scotland) found that often, practitioners are unclear about what CAMHS has to offer. This, they predict, is due to lack of contact outside of specific cases and crisis situations (RCHP, 2004). Conversely, CAMHS staff had unrealistic expectations of practitioners’ knowledge of Mount et al. (2004) note that carers (foster and residential) are relied upon to make intuitive judgments to initiate the referral process. This is based on their knowledge of the young person, their understanding of mental health problems and potential risk factors. They also tested the systematic use of a mental health screen for more accurate identification than these intuitive 5: IDENTIFYING & ASSESSING 22 mental health issues. They conclude: KEY POINTS FOR CONSIDERATION “Between the sides in this polarisation is a no-man’sland where, given adequate resources, social work and CAMHS might work together more effectively” (p. 52, RCHP, 2004). • Need for full and thorough assessment of Looked After Children. • Assessment needs to move beyond diagnosis to look at the Looked After Child/Care Leaver’s circumstances and the impact of this on his/her emotional well-being. • Need to understand Looked After Children/Care Leavers’ views of mental health and ill-health. • Need to include multiple perspectives, in particular those of Looked After Children/Care Leavers in all aspects of assessment. If discrepancies occur, it is necessary to try to explain why. • Need for proactive and ongoing support for Looked After Children in relation to assessments or care plans. • How is health information currently stored/tracked in Northern Ireland? • Need to develop awareness of what services are available among those working directly with Looked After Children/Care Leavers. Are there plans for a mapping exercise in Northern Ireland? Northern Ireland This view, that those working directly with young people need to have knowledge of Looked After Children/Care Leavers’ mental health needs and know how to refer to the appropriate services, has been highlighted in Northern Ireland through the RMHLDNI CAMHS consultation report (RMHLDNI, 2005a) but would be equally applicable for AMH Services. There may be a need in Northern Ireland for more priority for Looked After Children in CAMHS. Some suggest that Looked After Children can be particularly disadvantaged when needing referral to CAMHS because they move around a lot due to placement instability. McAuley & Young (2006) suggest: “Direct referral from senior social work staff responsible for planning the care of looked after children, coupled with more flexibility surrounding child referrals across authorities, might well reduce some of these problems” (p. 98, McAuley & Young, 2006). 23 Identifying & Assessing Identifying & Assessing VOICE OF YOUNG PEOPLE IN CARE Identifying & Assessing 5: IDENTIFYING & ASSESSING 24 6 What action is taken to ensure that risk factors and vulnerability are reduced in the lives of Looked After Children and Care Leavers? 25 VOICE OF YOUNG PEOPLE IN CARE What action is taken to ensure that risk factors and vulnerability are reduced in the lives of Looked After Children and Care Leavers? genetic factors, or environmental factors (Kerfoot, 2005). Latest statistics on Looked After Children who started to be looked after in England during the year ending 31 March 2004 reveal various reasons for the need to be looked after. The main reason was abuse or neglect (48%), followed by family dysfunction (13%), family in acute stress (11%), absent parenting (11%), parental illness or disability (8%), socially unacceptable behaviour (6%) and disability (3%) (DfES, 2005). There are many factors that may place some Looked After Children/Care Leavers at greater risk of developing mental health difficulties than their peers in the general population. These factors have sometimes been described as the three “Ps” (i.e., predisposing, precipitating and perpetuating factors) and were identified by the Clinical Psychology Speciality Advisory Committee (SAC) (2002) as follows: • Predisposing factors may include genetic influences, low IQ, developmental delay, communication difficulties; • Precipitating factors may include overt family conflict, family breakdown, inconsistent parenting and so on; and • Perpetuating factors involve socio-economic disadvantage, hopelessness, and living in conflict (Clinical Psychology SAC, 2002). There is also evidence to show that Looked After Children coming into care are from atypical families (Bebbington & Miles, 1989). Bebbington & Miles found that only a quarter of Looked After Children were from two parent families, only one in five lived in owner-occupied housing, half lived in poor neighbourhoods and three quarters were in receipt of income support (Bebbington & Miles, 1989). A difficulty arises when one or other of the problems are not identified and as already outlined, there is some evidence of the risk of Looked After Children and Care Leavers’ needs not being met. Some have found that physical issues can go largely unnoticed in residential units where health was a low priority given all the other crises workers had to deal with (RCHP, 2004) so it is hardly surprising that less obvious mental health issues similarly remain undetected. An often-cited study to reveal the vulnerability of this group is that carried out by Dimigen et al. (1999) among Looked After Children aged between 5 and 12 years at the time of entering care. The study revealed that a ‘considerable proportion’ of these participants had a serious psychiatric disorder when entering care but were not referred for psychological help. Steps that can be taken in response to parenting failure before the point of a child coming into care (Rutter, 2000). Rutter proposes that the care system may fail to provide what is needed or make things worse. He states that society needs to consider what can be done to make the provision of care better than it has been up to now (Rutter, 2000). Since risk factors have been well documented in the research literature, in this review, we will concentrate on discussing the main developmental stages the child in care goes through during which different risk factors present and the extent to which these are met. Subsequently, we will briefly discuss the way the young person may choose to cope with these risk factors. Northern Ireland 6.1 Three stages of vulnerability in relation to Care Experience In Northern Ireland, there has been some movement towards the establishment of early intervention initiatives such as Sure Start. However, the level of investment in the area is much less than in England and Wales. For the purposes of this review, we suggest that every child in care goes through three main stages of vulnerability: pre-care experience, the experience of care itself, and then ultimately leaving care. Each of these stages can heighten the number and severity of risk factors impacting on the young person’s mental health and will be discussed briefly below. However, many young people go through these three stages a number of times with intermittent periods at home. Predominantly, in Northern Ireland, Looked After Children come into care due to neglect associated with alcohol addiction of one or both parents (McAuley & Bunting, in press). This was also shown in the 1999 Social Services Inspection of Care Planning for Looked After Children the subject of Care Orders. It was found that both parents had longstanding problems with alcohol/drug use in 85% of cases (as cited in DHSSPS, 2004b). Stage 1) Pre-Care Experience Winter & Connolly (2005) analysed referral data in Northern Ireland at ward level from 1998-2000 and found a strong relationship between measures of deprivation and referrals to family and child care teams. Life before care and the very reasons for entering care can increase the risk and vulnerability to mental health disorders and can be either intrinsic to the child, due to 6: ACTION - RISK FACTORS 26 Action - Risk Factors Action - Risk Factors relationships, school, feeling good about themselves, feeling cared for), they often have problems associated with their living circumstances, they feel a need for someone to be ‘on their side’, and can feel a lack of safety (Houston, 2005). While in care, Looked After Children can also experience stigmatizing attitudes from others, particularly in the school environment, directly as a result of their care experience. Some participants in the study carried out by Stanley (2002) for example experienced hostility from other children as a result of their lookedafter status. While they acknowledge that more research is needed in this area in the UK in general, they stated that if they knew the multiple deprivation score for a particular ward, they would be able to predict the number of childcare concern referrals with 91.4 per cent accuracy. In other words, deprivation is likely to increase the chances of referral to Social Services. The DHSSPS 2005-2025 vision ‘A Healthier Future’ also recognises the link between deprivation and health status (DHSSPS, 2004b). This link is important to acknowledge since families in more affluent areas may be better able to curtail or contain the adverse effects of actions e.g. alcohol misuse which can be harmful to young people’s mental health. Ritchie (2005) has recently questioned the benefits of the care system: There may also be issues for some Looked After Children who come from cross-cultural backgrounds. In a prevalence study of Looked After Children across Northern Ireland, McCay & Sinclair (1999) found an overrepresentation of children from cross-community backgrounds in the care system in Northern Ireland. Compared to 5.6% of cross community relationships in the population as a whole, 17.3% of their sample came from such a background (McCay & Sinclair, 1999). Kelly & Sinclair (2005) later demonstrated how meeting the identity needs of the Looked After Children is now a statutory duty yet the majority of social workers had not received training in this respect. They note that: “[This paper] tentatively suggests that it is time to say what we know: that there is no evidence that public care reduces risk of significant harm, that there is no evidence that child protection procedures save lives and that the past 125 years of history of inquiries and legislation suggest that little will improve” (p. 765, Ritchie, 2005). However, there is evidence to show that the quality of the experience of care has important effects on behavioural outcomes (Rutter, 2000). Berridge (2005) believes we can underestimate the nature of problems Looked After Children face given the huge sense of loss they experience when their family breaks down, or when they are separated from their families. He concedes that we cannot be sure we fully understand the social and psychological effects of that. “Religious identity is directly linked to cultural and community identity in Northern Ireland. It impacts on where children can live safely, attend school, socialize and develop relationships. Therefore, asking about religious identity cannot be discarded by social workers as simply a personal matter where they should not intervene. Social workers have a legal duty to meet the religious and cultural needs of children and must actively consider the impact of placement decisions on the lives of looked after children from cross-community backgrounds” (p. 337, Kelly & Sinclair, 2005). Northern Ireland Pinkerton & McCrea (1996) recognise that the young person’s day-to-day experience with the formal care system sets the context and provides the resources they use when growing up. Furthermore, the findings of Pinkerton & McCrea (1996) show the importance of the family throughout the young person’s time in care, which acts as an informal support: Stage 2) The Experience of Care Looked After Children/Care Leavers may suffer additional problems as a result of living in care (DH, 2002) in that care itself may fail to repair and protect health, and potentially exacerbate problems. As Madge & Willmott (2005) point out, becoming looked after brings disruptions to family and other social relationships with perhaps the loss of friends at school and in the community. Houston (2005) recounted issues Looked After Children presented when calling ChildLine Scotland. First and foremost, she noted that they often present with very similar problems and concerns as their peers not living in care. However, they do have long histories of difficulties in a short life (e.g. with “Both the informal and formal systems contribute to providing the context and resources for the majority of the young people in their coping with the life tasks of adolescence. This is crucial to making sense of leaving care” (p. 149, Pinkerton & McCrae, 1996). One element of corporate parenting where more work could be done may be on the concept of ambition for the Looked After Children/Care Leavers’ future, highlighted recently by the DHSSPS: “When Health and Social Services take on parental 27 VOICE OF YOUNG PEOPLE IN CARE Action - Risk Factors responsibility for children we must make every effort to provide them with stability, protect them from further harm and be ambitious for their futures” (p. 74, DHSSPS, 2004b). by Mooney et al. in 2004. These reveal a fairly bleak outlook for Care Leavers compared to school leavers in the general population (Mooney et al., 2004). The authors’ note of caution must be kept in mind when making these comparisons: Care Leavers tend to be older, and the base numbers each year are relatively small (Mooney et al., 2004). Although these are the main source of information on Care Leavers for the moment, the authors caution that further collections of information will facilitate more reliable estimates from a larger pool of data (Mooney et al., 2004). The care system can struggle to provide a similar life to family life as Teggart (in press) states: “Despite the best of intentions the care-system cannot emulate the constancy and security of family life, and many young people in care have been so disturbed by their experiences that the activities and requirements of recovery may seem beyond their grasp” (p. 15, Teggart, in press). The Mooney et al. (2004) findings demonstrate that the level of educational achievement for Care Leavers was much lower than school leavers generally; Care Leavers were 10 times more likely than school leavers in general to leave with no qualifications at all which translates to 51% of Care Leavers compared to 5% of all Northern Ireland School Leavers (Mooney et al., 2004). Similarly, economic activity levels were much lower whereby 57% of Care Leavers (whose economic activity was known) were in education, training or employment compared to 91% of all 16-18 year olds in the population. Unemployment rates were also high among Care Leavers with 30% being unemployed compared to 5% for school leavers in general (Mooney et al., 2004). Stage 3) Leaving Care Care Leavers have also been found to be vulnerable to the development or exacerbation of mental health problems because of the difficulties they face when leaving care. These difficulties include poor educational attainment, unemployment, teenage pregnancy, entering the prison population, homelessness (e.g. Biehal et al., 1995; Social Exclusion Unit (SEU), 2003). Nevertheless, if they are given the help and support they need, education, training and employment can be improved (Martin & Jackson, 2002; Harker et al., 2004). There also seems to be limited research findings on Care Leavers in Northern Ireland but work such as The Northern Ireland Leaving Care Research Project (NILCRP) set up by Queen’s University Belfast (QUB) (Pinkerton & Stein, 1995) contributes to a growing field of information. What emerges from the literature is two different pathways summarised below regarding the transition into adulthood of a young person in the general population and a young person leaving care. Most young people (in the general population) leave home in their twenties and there is evidence that the age is increasing. Usually, they can return home over a considerable period of time assisted by what Mendes & Moslehuddin (2004) call a safety net of extended support. For Care Leavers the picture is rather different with a severe lack in support as Minty (1999) states: Young person leaving family: “There is a strong case for arguing that discharging some of our least-educated, worst-skilled, and most emotionally and socially disadvantaged young people into the community in mid-adolescence, and without adequate support, is a recipe for disaster” (p. 996, Minty, 1999). “This transition to adult citizenship involves successfully shifting from a childhood status characterised by dependency on family, school, friends and neighbourhood to an adult status based on choices such as building intimate relationships, becoming a parent and setting up a new family, becoming a householder, finding employment and choosing a locality in which to live, work and develop leisure pursuits” (pp. 697-698, Pinkerton & Stein, 1995). He argues that better outcomes are associated with the later discharge of Care Leavers but also earlier admission (rather than postponing admission and Care Leavers oscillate between home and short-term placements) (Minty, 1999). Young person leaving care: Northern Ireland “Many have to leave care and live independently at a much earlier age than other young people leave home – and they are more likely to move regularly and experience homelessness; they have lower levels of educational attainment and lower post-minimum A similar picture has been found in Northern Ireland. Work is currently being undertaken to profile the current population of Care Leavers, however, the most up-todate statistics on Care Leavers in Northern was compiled 6: ACTION - RISK FACTORS 28 Action - Risk Factors Action - Risk Factors rather than let it build up to the point where he or she can no longer cope” (p. 67, Pearce, 2000). school-leaving age participation rates; they have higher unemployment rates, more unstable career patterns, and higher levels of dependency on welfare benefits; and many (in England and Northern Ireland) enter parenthood earlier” (p. 243, Stein et al., 2000). In order to comment on the coping mechanisms of Looked After Children/Care Leavers, it is necessary to bear in mind what is ‘normal’ for young people of the same age in the general population. Drugs, for example, are no longer considered the province of a deviant minority and show signs of becoming statistically normal (Davies, 2000). Adolescence is a time of great change and we need to bear this in mind when looking at the coping behaviour of Looked After Children/Care Leavers: An interesting study of outcomes for Looked After Children in long-term foster care in Northern Ireland by McAuley (2004) was carried out with 16 Looked After Children in a ten year follow-up study. The young people were aged 17-24 years at the time of interview and the author categorised them as being ‘more troubled’ or ‘less troubled’. Findings from the more troubled group showed that they were all assessed by their social workers as having low or very low self-esteem although no evidence in the case files demonstrated work being carried out to address this. Also, the more troubled group were very isolated, compared with the majority who had supportive networks. The author found little evidence of life-story work despite young people having many unanswered questions about their identity. There were also gaps regarding social and emotional development in their files. However, she noted considerable achievement in either educational or vocational qualifications demonstrating that the majority were in full-time employment (11) or full-time education (2) (McAuley, 2004). It should be noted however, that these outcomes are more positive than other findings probably due to the long-term stability these Looked After Children have experienced compared to the general leaving care population. “Because of the rapid emotional, social and psychological changes occurring during adolescence, together with pubertal changes in growth and strength, a number of problems may become apparent which may earlier have been ‘masked’ ” (p. 18, RCPCH, 2003). Studies therefore are strengthened if they draw direct comparisons between Looked After Children/Care Leavers and their peers in the general population. One general study which is of interest related to young people talking about how they responded to negative feelings, in particular anger and sadness (Armstrong, 2000). In responding to anger, young people would take it out on inanimate objects, on siblings or, sometimes on other young people. However, they reacted to sadness and depression by internalising their feelings (Armstrong, 2000). All the young people participating in the research identified talking as an effective means of coping with negative feelings. In a recent survey by the HPANI (HPANI, 2001b), the majority (79%) of 16-25 year olds in the general population said they felt ‘OK’ or ‘optimistic’ about their future. While this was a quota-drawn sample and therefore cannot be indicative of the whole population, research into the corresponding feelings of Looked After Children would be insightful. 6.2 3 In the Looked After population, a study by Street 1999 has shown a shift from withdrawn, internalising difficulties to more overt out-of-control and aggressive behaviours among Looked After Children referred to residential provision (cited in Kerfoot, 2005). Nevertheless, Callaghan et al. (2003) talk of a veil of secrecy which some Looked After Children draw around them, something which the professionals around them interpreted as a coping strategy, and one which they as professionals had to respond to skilfully and sensitively. Coping mechanisms Rutter notes that it is striking how differently people respond to apparently the same situation and further attaches importance not so much to what coping strategies people use but to the existence of the coping process in the first place (Rutter, 1985). A useful definition of coping mechanisms is: Looked After Children/Care Leavers exhibit a variety of other coping mechanisms relating to underlying issues and these vary from severe to less severe. Self-harm has received extensive press coverage recently and much work has been undertaken on the subject, not least in the new Suicide Prevention Strategy soon to be completed in Northern Ireland which has specific targets to deal “The young person needs to find a way to reduce stress 3 Street, C. (1999) Providing residential services for children and young people: a multidisciplinary perspective. Aldershot: Ashgate. 29 VOICE OF YOUNG PEOPLE IN CARE Action - Risk Factors with self-harm. There is evidence to show that self-harm is largely treated medically, and Looked After Children/Care Leavers are rarely admitted to acute CAMHS beds either because of lack of capacity or they are not seen as having mental health problems (RCPCH, 2003). However, the same authors state that: “Management of these patients requires good links with CAMHS liaison services including social work, strong nursing skills/training in mental health issues and effective community follow-up” (p. 42, RCPCH, 2003). KEY POINTS FOR CONSIDERATION • The need to understand, in more detail, the actions taken to reduce the likelihood of young people coming into care. • What priority is given to early intervention schemes? • Need to understand what further actions can be taken to equip a Looked After Child with the day to day experiences in care which encourages ambition for their future. • What actions are taken to reduce risk factors while in care? • Need to find creative ways of enhancing the normality of the day to day experiences of Looked After Children while in care. • It would be interesting in Northern Ireland to find out how Looked After Children and Care Leavers regard the stress with which they are faced and how they choose to cope with it. 6: ACTION - RISK FACTORS 30 7 What action is taken to ensure that protective factors and resilience are promoted in the lives of Looked After Children/Care Leavers? 31 VOICE OF YOUNG PEOPLE IN CARE What action is taken to ensure that protective factors and resilience are promoted in the lives of Looked After Children/Care Leavers? problems and continuing difficulties. The review identified several models situating these factors. We will discuss these general models first before providing a synopsis of protective actions which can be taken. First it is necessary to define what we mean by protective factors, as stated by Rutter (1985): To enable conclusions to be drawn on what needs to change, it is essential that we consider what actions could be taken to ensure that protective factors are identified and resilience developed and promoted in the lives of Looked After Children/Care Leavers. Despite increased risk of developing mental health problems, there is clear evidence that not all Looked After Children/Care Leavers have problems. Buchanan (1999) for example analysed adult satisfaction among Care Leavers. Basing her findings on the National Child Development Study (NCDS), she asserted that members of the sample had been at greater risk of psychological problems compared to children who had not been in care. However, the same author identifies protective factors for Looked After Children against later mental health problems. “Protective factors refer to influences that modify, ameliorate, or alter a person’s response to some environmental hazard that predisposes to a maladaptive outcome” (p. 600, Rutter, 1985). 7.1 Models of Protective Factors/Resilience There is evidence of efforts to provide protective factors and resilience in the lives of young people in the general population. A good example is the work of Hawkins & Catalano over the last 30 years in the US regarding protective factors that can reduce anti-social behaviour (www.channing-bete.com). They mention a number of factors such as bonds and connections, hopes and dreams, rules and discipline, raised self–esteem, developing skills, activities, positive values and strengthened communities. Another example comes from Armstrong et al. (2000) who carried out a small-scale qualitative study on a range of young people’s perceptions of mental health, and in particular, positive mental health. The participants identified four main factors as contributing to positive mental health; family and friends, having people to talk to, personal achievements and feeling good about themselves. The factors are often interlinked. Factors, which impinged on mental health, were parental problems, bereavement, peer rejection and bullying. A further approach by Communities that Care (1999) also maps a series of risk and protective factors for young people’s health and behaviour (in the general population). The main protective factors are clear standards (know consequences of unacceptable behaviour), social bonding (strong attachments with those who set standards), opportunities for involvement (feel involved in their families, schools and communities), social and learning skills, recognition and praise (incentive to continue positive behaviour). The following Figure (Figure 2) creates a useful starting point for discussion, presented by Brigid Daniel at the British Psychological Society (BPS) Conference hosted by the Faculty of Children and Young People in September 2005. It shows a shift in perspective from aspects of Looked After Children/Care Leavers’ lives pointing to vulnerability and adversity towards a focus on protective factors and resilience. While we approach this section with the realisation that Looked After Children/Care Leavers do experience more adverse life events than their peers, we acknowledge that we have to look at the individual person and the context of their lives to understand resilience. A good way of summarising the concept is: “Resilience is about doing better than expected when bad things happen” (p. 105, Gilligan, 2005a). This will be the starting point of our discussion. FIGURE: 2 - PROTECTIVE FACTORS & RESILIENCE Buchanan (1999) as mentioned earlier, also identified protective factors for Looked After Children today against later mental health problems. These included achieving a qualification, help finding employment, help cutting down on smoking and drinking and more controversially, help developing successful partnerships. She asserts that all these will increase life satisfaction, something which is linked to out-of-family and out-ofwork activities. For Buchanan, it is therefore a case of developing outside interests as Looked After Children/ Care Leavers grow up, a notion which parallels the ongoing work of Daniel and Gilligan. Source: Daniel, 2005 A number of factors appear to protect some Looked After Children/Care Leavers from developing mental health 7: ACTION - PROTECTIVE FACTORS 32 protective factors, stating that there are three core areas which influence our mental health, healthy structures (e.g. unemployment, poor housing, inequality of income, discrimination, having choice and control, education), citizenship – social world (social support, strong support networks, sense of integration and social inclusion) and emotional resilience (how people feel about themselves, interpret events and cope with stressful or adversarial circumstances). For this review, one of the most useful models of resilience for Looked After Children or Care Leavers is contained in the six domains outlined by Daniel, Wassel & Gilligan (1999). A thread running through each is their shift in focus away from problems towards strengths, a fundamental principle in the resilience-based approach. We will discuss each of these in turn considering them from the viewpoint of Looked After Children/Care Leavers. Firstly, a secure base is needed for Looked After Children/Care Leavers to have stability and this acts as a springboard to the wider social world (Daniel et al., 1999). They suggest that within the theory of resilience, there is an emphasis on building up a support network from all available sources including professional support as required. Secondly, educational expectations need to be reasonable but not too high. They need to be based on an up-to-date educational assessment and incorporate the child’s perception of school. The authors maintain that we must work from the assumption that: 7.2 Specific actions that can ensure Protective Factors We have drawn up a list of four actions that can be taken to ensure that protective factors are in place in the lives of Looked After Children/Care Leavers. This has been drawn from three sources: from the above concepts of protective factors and resilience; through VOYPIC’s work with Looked After Children/Care Leavers; and through other sources in the literature. Each factor will be dealt with in turn: “Children naturally have an interest in the world, but that in some this interest has been thwarted and disregarded” (p. 9, Daniel et al., 1999). • Thirdly, friendships take on an importance, not just in the ability to make friends but also in the types of friendships made. A fourth domain is talents and interests which is linked to self esteem and should be encouraged. The fifth domain, positive values are seen by the young person’s behaviour towards others and the authors feel situations need to be created to encourage caring for other people and empathy. One particular area of discussion was in the human qualities of workers. The authors encouraged the assumption that: • • • Ensuring placement choice, stability & continuity of care (a secure base) Encouraging and facilitating contact with family and wider support networks Encouraging and facilitating education and work progression Encouraging and facilitating the development of interests/hobbies 7.2.1 Ensuring placement choice, stability & continuity of care (a secure base) “Everyone has the potential to behave pro-socially and that no matter what traumas have been experienced, all young people can learn to control anti-social behaviour” (p. 12, Daniel et al., 1999). A fundamental safeguard for Looked After Children is choice of placement, a key recommendation of The Utting (1997) Report. Another key recommendation to this end was the maintenance of spare capacity. The rationale was that the type of care placement can have an influence on the outcome for Looked After Children/Care Leavers. Kerfoot (2005) acknowledges that there is increasing evidence to show better outcomes for those adopted or fostered than those 4 placed in residential care . The final and sixth domain, social competency, is one with which Looked After Children/Care Leavers who have often been deprived of secure early attachments need considerable support through developing social skills (Daniel et al., 1999). Again, the authors acknowledge that expectations of troubled young people’s social skills may not be high. There is also evidence to indicate/suggest that Looked After Children of different ages are suited to different types of care placement. Delfabbro et al. (2002) compared Looked After Children entering care between Australia and the Northern Ireland The HPANI (1999) database specifically mentions 4 Action - Protective Factors Action - Protective Factors Direct references used by Kerfoot were: Quinton, D., Rutter, M. & Liddle, C. (1984) Institutional rearing, parenting difficulties and marital support. Psychological Medicine, 14, pp. 107-124. Triseliotis, J. & Russell, J. (1984) Hard to place. London: Heinemann. St Clair, L. & Osborn, A.F. (1987) The ability and behaviour of children who have been ‘in care’ or separated from their parents. Early Child Development and Care, 28, 3, (Special Issue). Cheung. S.Y. & Buchanan, A. (1997) Malaise scores in adulthood of children and young people who have been in care. Journal of Child Psychology and Psychiatry, 38, pp. 575-580. 33 VOICE OF YOUNG PEOPLE IN CARE Action - Protective Factors 5 comparative cost of using other initiatives (citing examples such as transport between placements and previous school, re-arranging access, direct time of social workers). However, the area needs further study (Delfabbro et al., 2002). UK using Farmer’s (1993, 1996) distinction between two types of Looked After Children. Firstly, they identified disaffected Looked After Children (adolescents placed on longer-term orders with a history of unstable placements and more mental health and behavioral problems) and secondly, protected Looked After Children (younger Looked After Children on short-term orders due to parental incapacity, abuse or neglect). They found that different policies, services and interventions were needed for the two groups of Looked After Children. The older group needed something other than family placements (e.g. mentoring, residential units and supported accommodation whereby they could live independently with other adolescents); the younger group needed more focus on their own parents and work on reunification with parents (Delfabbro et al., 2002). Continuity of care is also important not only to detect and act upon mental health problems, but also because it provides a ‘better’ service to Looked After Children themselves (Madge & Willmott, 2005). A good example is that Looked After Children in a study carried out by Stanley (2002) highlighted consistency and continuity of care as key components of good services. Stability and continuity of care are key elements of the Leicestershire Partnership Trust’s young people’s team – now a beacon NHS service (Hopkins, 2002). The scheme was established to work positively with traditionally difficult to engage groups including Looked After Children. It achieves continuity through a target response time of two weeks based on the assumption that there is little point seeing young people at all if they are not seen immediately given that so much can change in their lives in a couple of months. They also see continuity of care as equally important for Care Leavers and ensure this by following Care Leavers through the transition to adulthood working with them up to the age of 18 years (Hopkins, 2002). The team benefits from psychologists and psychiatrists as full-time team members. Hopkins (2002) concludes that: Stability has a protective influence in the lives of Looked After Children/Care Leavers (Dumaret et al., 1997; Koprowska & Stein, 2000; Stein et al., 2000; Meltzer et al., 2003). For example, Meltzer et al. (2003) demonstrate that in England, Looked After Children’s general health seemed to improve when placements became more secure (Meltzer et al., 2003). Dumaret et al. (1997) interviewed adults who had lived in stable care placements (for at least 5 years in foster families) to determine the long-term impact of adverse childhood experiences. They summarised the interview data using an overall social integration score based on a scale ranging from 3 (-) to 12 (+) points. This scale covered general health (as defined by the WHO), professional situation and financial self-sufficiency, private and home life, social relations with family/parents and/siblings as well as outsiders, relationship with the foster family and general psychological state. Dumaret et al. (1997) found that half the adults were well integrated socially and 68 per cent were well integrated or average. Stable placements have been found to be linked to positive outcomes during care and after care regarding relationship skills, educational attainment, and employment outcomes (Koprowska & Stein, 2000). This was also shown by Stein et al. (2000): “This imaginative model of service, well-funded, integrated and targeted, shows how things needn’t be the same way again” (p. 2, Hopkins, 2002). One area where continuity can be difficult to achieve is in education (Fletcher-Campbell et al., 2003). The authors discuss in detail the role of a dedicated teacher6 and the ensuing difficulties when handing responsibility over to the Leaving Care Team. Northern Ireland “For those young people who did achieve educational success this was closely linked to placement stability, more often achieved in foster care placements, combined with a supportive environment for study. And without such stability and encouragement, post-16 employment and career outcomes were likely to be very poor” (p. 244, Stein et al., 2000). Maintaining spare capacity and ensuring a choice of placement, as recommended in the studies above, unfortunately does not seem to be always feasible in the Northern Ireland Care System and McAuley (2000) argued that placement choice has been a major challenge in Northern Ireland for some time. Further concerns were raised by Mooney & Fitzpatrick’s (2003) findings that only 22% of respondents considered current arrangements for Looked After Children in Northern Ireland to be working ‘well’ or ‘very well’. It may be that there is a higher cost of placements breaking down compared to the cost of maintaining placement stability. Delfabbro et al. (2002) speculated on the 5 6 Direct references to Farmer’s work from Delfabbro are: Farmer, E. (1993) Going home - what makes reunification work? In: P. Marsh & J. Triselotis (Eds), Prevention and reunification in child care. London: Batsford. Farmer, E. (1996) Family reunification with high risk children: Lessons from research. Children and Youth Services Review, 18, pp. 403-418. A ‘designated teacher’ is a teacher who understands about care and the impact of care upon education. Each school decides the most appropriate person to fill in this role (DfEE & DH, 2000). 7: ACTION - PROTECTIVE FACTORS 34 The factors that influence choice of placement and the extent to which factors other than professional judgement of assessed needs of Looked After Children determine placement choice in Northern Ireland has been studied by Mooney & Fitzpatrick (2003). Just over a third (37%) of respondents cited ‘Assessed need’ as the most important factor influencing the decision to admit a child into residential or foster care. It seems that there are a number of other factors influencing decision-making as outlined in Figure 3 below. They see stability as follows: Action - Protective Factors Action - Protective Factors “Stability is not just about the issue of achieving stable placements, but about providing continuity in the child’s family and social relationships through maintained contacts, continuity of education through undisrupted schooling and equality of access to after school activities appropriate to the child’s age, continuity of health and social care and ensuring that the placement continues to meet the child’s needs” (p. 71, Monteith & Cousins, 2003). FIGURE: 3 - MOST IMPORTANT FACTOR IN THE DECISION TO PLACE A CHILD IN RESIDENTIAL OR FOSTER CARE It is hoped that in Northern Ireland, the implementation of the new Leaving Care legislation will serve to provide more continuity for Care Leavers, particularly through pathway plans and personal advisors and there is also a drive towards the securing of stability of those in care. Another promising development for stability could be private fostering provision. A recent study by Foster Care Associates (Foster Care Associates, 2006) randomly selected 360 Looked After Children in foster care in England and Wales and tracked their placements for 12 months. They found that 99% of the participants experienced no moves within the 12 months of the study, a rate which compares very favourably against statutory fostering (Foster Care Associates, 2006). Source: 7.2.2 Encouraging and facilitating contact with family and wider support networks p. 65 YCNI (2004) Barometer (adapted from Mooney & Fitzpatrick) While the Information & Analysis Directorate (2004) stated that Looked After Children in Northern Ireland seemed to benefit from greater placement stability than their counterparts in England or Wales in 2001/2, concern has still been expressed by policy makers regarding placement provision and stability as reported in Kilkelly et al. (2004): A secure relationship is regarded as a crucial protective factor (Rutter, 1985) and having someone to talk to is a key factor in young people’s mental health (Armstrong et al., 2000). Family contact is important in the lives of Looked After Children and efforts normally are and should, where possible, be made to preserve family ties. Contact is complicated because it exists in many forms from receiving information from a third party through to having regular face-to-face visits and stays. The manner in which contact occurs is important, as Gilligan states: “Placement instability appears to have become an accepted feature of provision for looked after children yet it is not accurately recorded and is not the subject of regular enquiry” (p. 71, Kilkelly et al., 2004). Placement instability has been linked to difficulties in placing adolescents with more complex needs, with the likelihood that these young people would be placed in residential care (Kilkelly et al., 2004). “Contact does not have to follow some dull dreary format involving tedious, stilted and predictable sessions in often ill-suited locations. Instead these sessions can be organised around activities of mutual interest to parent and child” (p. 109, Gilligan, 2005a). Both stability and continuity of care are linked to longterm planning as Monteith & Cousins (2003) point out: Support networks, for the purposes of this review consist of those stable relationships around the Looked After Child/Care Leaver which help and support them in their lives encompassing a much wider web of relationships than the parental or family context. Gilligan emphasises the importance of the extended family such as grandparents (Gilligan, 2005a). Gilligan (1999) also outlines five main adults who play a supportive role in the young person’s life, “Irrespective of whether children are to be looked after briefly or for the longer term, there is a need to plan for longer than their immediate placement if stability and continuity is to be achieved in their lives. This means building in contingency plans for when things go wrong or do not work out as planned” (p. 63, Monteith & Cousins, 2003). 35 VOICE OF YOUNG PEOPLE IN CARE Action - Protective Factors it seems that Looked After Children gain from wellestablished positive relationships with their birth family. McSherry et al. (2004) note that 33% of the Looked After Children in their study had returned to their parents in 2003 and suggest that a ‘sizeable’ percentage of parents would be amenable to a programme of support geared towards maintaining the integrity of the family unit. However, caution should be exercised when contact with birth parent(s) brings further dysfunctional interactions. the caregiver, the social worker, the advocate, the counsellor and the mentor. Mentors can be a source of positive relationships in Looked After Children/Care Leavers’ lives and can lead to positive outcomes especially if it lasts for a longer period. Koprowska & Stein (2000) suggest that mentors may act as the protective secure relationship identified by Rutter (1985). Young people interviewed by Clayden & Stein (2005) thought the mentoring relationship was a good source of practical advice and help with relationship problems, thereby helping their confidence and emotional well-being. Relationships in all contexts are of key importance to young people. Houston et al. (2000), in a small-scale quantitative study of presenting behaviours and problems in children’s homes in the Greater Belfast Area of Northern Ireland, found that relationships were a key feature in Looked After Children’s lives. They found that there was a relationship component to all the problem areas identified in their study and concluded that: Gilligan (1999) provides an different concept of mentoring referring to encouraging and supporting a young person’s talents, interests and leisure activities by a committed adult. His definition of mentoring is a common interest or enthusiasm, which is shared with the young person and this would preferably be informal. He outlines six potential sources of mentors including the young person’s own social networks, the caregiver and caregiver’s social networks, neighbourhood organizations (church, school, workplace, voluntary social service groups), special interest organisations (sport, culture, outdoor pursuits, etc.), individuals with relevant knowledge of youth needs (former foster carer, youth worker, etc.), advertising to general public (p. 194, Gilligan, 1999). Gilligan’s (1999) definition of desirable qualities in a mentor is: “The complex interplay between the psychological inside and social exterior of the problems outlined in this study might be understood better in the context of nurturing, ambivalent or rejecting relationships” (p. 18, Houston et al., 2000). Despite the realisation of the importance of these relationships, previous evidence has shown that encouraging contact with this wider social support network is neither promoted by frontline workers nor by the planning and review process (Horgan & Sinclair, 1997). In their review, Horgan & Sinclair found that: ”A deep interest in the young person, enjoying their company, having an enthusiasm which they enjoy sharing with the young person, an understanding of and respect for the young person’s cultural background, a sensitivity to the impact of negative experiences on the young person’s confidence, mood and behaviour, and an awareness of the proper boundaries of responsibility and behaviour” (p. 194, Gilligan, 1999). “Review preparation forms from all providers ask about family contact since the last review. Over half the forms, however, ask about parental, rather than family contact and no prompt is given about links with other family members” (p. 49, Horgan & Sinclair, 1997). He cautions that adults need to nurture such mentoring relationships, rather than forget them in the current climate of formal child protection, employing decision making akin to a prudent parent (Gilligan, 1999). However, one note of caution in this interpretation is that the parent may not be dealing with children with complex needs. McAuley (2004) notes that social workers should assist young people who are about to leave care to build up these supportive networks. The mentoring relationship put forward by Gilligan (1999) is quite different from formal mentoring services such as the “U” Choose Mentoring project in VOYPIC. Referrals to the VOYPIC service do not come solely from the young person’s social worker but can also be received by young people self-referring, or from fostering link social workers. The separation of this relationship from the social worker can also be beneficial such that the service is seen as more independent. In some ways the definition used by Gilligan could be seen as befriending more so than mentoring, because perhaps the latter tends to be more goal focused. The four main aims of the “U” Choose project are to create and build a social support network outside of the care system for young people aged 12-18 years currently in care, Northern Ireland Looked After Children think a lot about their parents even when placed in long-term care, illustrated by a study of planned long-term foster care by McAuley (1996) which found that even after one year in a foster placement, most of the Looked After Children were still thinking and dreaming about their birth parents often or very often. Further, McAuley (in press) showed that the less troubled participants in her ten year follow-up study had regular contact with birth parents and/or siblings throughout their time in care (McAuley, in press). From McAuley’s work 7: ACTION - PROTECTIVE FACTORS 36 to improve the self-confidence and self-esteem of young people in care, to reduce and combat feelings of isolation, loneliness and social exclusion and to increase social skills, empowering young people to get more involved in decision making. Promoting the building of the mentoring relationship can also help build other relationships. Action - Protective Factors Action - Protective Factors school…………Children and young people living at home receive their information and guidance on health matters primarily from their parents, supplemented by the school curriculum and their peers. Looked after and accommodated children are therefore doubly disadvantaged” (p. 3, RCHP, 2004). Richardson (2002) specifically mentions several initiatives relating to education and employment which have an impact on Looked After Children’s mental health. Health action zones have local strategies to improve health in deprived areas through partnership working and can include other areas such as employment which have an impact on health. Similarly, Richardson (2002) mentions education as playing a crucial role in preventing mental health problems. Personal Education Plans (PEPs) provide a record of the young person’s developmental needs, progress, achievements and aspirations. Furthermore, Educational action zones ‘aim to raise pupil attainment and tackle educational disadvantage in deprived areas, through partnership-working’ (p. 30, Richardson, 2002). Another initiative is the Connexions Service which gives advice and support to young people aged 13-19 years regarding personal development and has a particular emphasis on vulnerable young people. Social Services, in their management action plans, must show their links with the Connexions’ service planning structure (DH, 2000). 7.2.3 Encouraging and facilitating education and work progression Education, for many, is pivotal to Looked After Children/Care Leavers’ development. The reasons behind this view have been well summarised by RCHP (2004) in relation to residential care, but are equally applicable to Looked After Children in other placements and Care Leavers. Education, according to the RCHP (2004) normalizes their disrupted lives, reduces unstructured leisure time (and therefore time available for risk behaviours), provides exposure to a wider peer group, access to health screening, preventative measures and health promotion and a chance to get out of the cycle of deprivation and disadvantage (p. 19, RCHP, 2004). This opens the door to future job prospects which is encouraging given findings that employment protects both adults and teenagers from mental health problems (Koprowska & Stein, 2000). Linked to this, Gilligan (2005b) introduces the concept of childhood industry. His interpretation of this is that Looked After Children have the capacity to be active on a range of levels which may well have an important pay off. These include part-time work, household chores, school achievement and extracurricular activities. Factors which seem to enhance the educational progress of Looked After Children include the availability of support and encouragement for educational progress as well as the acknowledgement of young people’s achievements (Harker et al., 2004). In this study by Harker et al., Looked After Children participating in a follow-up stage were asked about elements of the Taking Care of Education project that had taken place in their authority. The participants reported greatest awareness and involvement with activities relating to schemes to acknowledge and encourage achievement e.g. awards ceremonies and rewards for revision scheme (Harker et al., 2004). Similar findings were revealed in a study of 38 high achievers who had spent at least 1 year in residential or foster care by Martin & Jackson (2002). The participants highlighted the importance of foster carers, residential workers, social workers and teachers in their provision of support and encouragement for their academic achievement (Martin & Jackson, 2002). One promising advance is the Guidance on the Education of Children and Young People in Public Care (DfEE & DH, 2000) which aims to raise standards of expectation. While it is necessary to increase expectations, these need to be realistic as outlined earlier. There are very real problems for Looked After Children such as more difficulties with reading, mathematics and spelling as revealed in the Meltzer et al. study in England for example. Approximately 60% of all Looked After Children were assessed by their teachers as having these difficulties (Meltzer et al., 2003). In the present review there was little evidence of childhood industry regarding part-time jobs for Looked After Children. Of particular significance to this review is the role education plays in providing Looked After Children/Care Leavers with valuable information regarding their health, encompassing both physical and mental health (Richardson & Lelliott, 2003). A number of concerns have been raised regarding the accessibility of this information to this group with low school attendance (Mental Health Foundation, 2004; RCHP, 2004). In particular the RCHP states that: Factors hindering Looked After Children’s educational progress have also been discovered (Martin & Jackson, 2002; Harker et al., 2004). Harker et al. (2004) found that peers are the most frequent cited source of hindrance on Looked After Children’s educational progress,extent, social workers. In Martin & Jackson’s (2002) study a third of the “Our system of delivery of health promotion, preventive health services and screening centres around the school health service once children are of school age, so assuming that all children will attend 37 VOICE OF YOUNG PEOPLE IN CARE Action - Protective Factors participants reported that the main obstacles to their educational success were the negative stereotypes and low expectations for Looked After Children among professionals and care providers. Indeed this worry stems from the fact that schooling is frequently missed and truanting tolerated (Martin & Jackson, 2002). A further difficulty is the lack of basic necessities such as a quiet place to do homework (Martin & Jackson, 2002; Harker et al., 2004). focus on positive aspects, rather than negatives which have been the main focus in the past (a clear finding in the study) (McLaughlin, 2002). The project is now operating in its third phase (LACE III) and has developed training materials to enhance the core curriculum in schools (VOYPIC, 2004). A major obstacle to achieving their full potential was changing school and the study found that three-quarters of the participants had changed school (McLaughlin, 2002). Similarly, education instability can be linked to placement instability as demonstrated by McAuley (in press) who found that the 16 participants in her follow up study collectively experienced 56 primary schools. She also notes a link between school and social relationships and positive interests (McAuley, in press). McAuley & Trew (2000) discuss the attitude of schools towards Looked After Children and reiterate Fletcher-Campbell’s (1997) evidence that some schools more readily exclude Looked After Children. Northern Ireland There is some evidence that there is a better recognition now of the need to improve the life chances of Looked After Children and Care Leavers through the promotion of their education. Mooney et al. (2004) state that this is evidenced in the Children Order (NI), Children Matter (1998), and the new Children (Leaving Care) NI Act as well as in short and long-term targets by the DHSSPS. In particular they note that the Northern Ireland Programme for Government (2002-2005) aimed to increase by 15% the number of Care Leavers with recognised educational and vocational qualifications (Mooney et al., 2004). They further note this commitment in the ‘Priorities for Action 2004/5’ in its interim target of achieving an attendance rate of at least 85% for Looked After Children (Mooney et al., 2004). Another development is the commitment in the consultative document for the Northern Ireland Suicide Prevention Strategy and Action plan to promote the inclusion of coping/life skills in the school curriculum (DHSSPS, 2006b). As Heenan (2004) points out, mental health is largely ignored in the Northern Ireland curriculum in schools and calls for local and global citizenship to deal explicitly with mental health issues. However, there is evidence that young people in regional adolescent inpatient units do not benefit from a dedicated education service (O’Rawe, 2003). For Care Leavers, there would similarly need to be an emphasis on some form of vocational training or personal development. This is also the case for those with mental health problems. NIAMH (2003) noted that those with mental health problems should be given the opportunity to engage in ‘meaningful’ activities such as vocational training or personal development courses as well as job coaching and supported employment. Further priority should also be given to their social networks. 7.2.4 Encouraging and facilitating the development of interests/hobbies There are numerous examples of the benefits to Looked After Children of participating in pursuits such as sport, cultural activities or caring for animals (Gilligan, 1999). Chambers (2004) also notes the area of play arts as a way of enhancing resilience. Looked After Children/Care Leavers do seem to be interested in leisure activities, for instance the RCHP (RCHP, 2004) found that 81% of Looked After Children in residential care enjoyed sports, and 50% expressed a desire for more access to sports and leisure facilities. Some research has taken place at a regional level regarding the education of Looked After Children. The LACE (Looked After Children in Education) project was carried out by Save the Children, First Key and VOYPIC (McLaughlin, 2002). It involved 52 semi-structured interviews of Looked After Children aged 9-17 years. Similar to the findings in the wider UK research, the LACE project found that the support Looked After Children received in education played a pivotal role in their progress. While Looked After Children in foster care responded positively to foster carer’s support, those in residential care felt staff focused more on their attendance at school rather than attending to what they did while they were at school (McLaughlin, 2002). Three of the important adults mentioned earlier from Gilligan’s (1999) work are noted by the authors as providing support directly relevant to leisure interests. The caregiver can help in practical ways, the social worker by securing resources and the mentor provides personal attention and encouragement. While the mentoring role is key to the actual nurturing of leisure interest, he views the social worker as responsible for ensuring this can happen (Gilligan, 1999) through three vital roles. These include prioritising the encouragement of interests and talents by placing it high on the agenda for the caregiver as well as the care review and planning The LACE findings also suggest that by the time they realised the importance of education it was potentially too late, suggesting that they had not listened to adults because it was not properly explained to them. The focus on education in LAC reviews also plays a role. The LACE project recommended that there should be more of a 7: ACTION - PROTECTIVE FACTORS 38 process, identifying and recruiting a potential mentor and helping ‘nurse the relationship into life’ and finally supporting the mentor (Gilligan, 1999). We should all strive for the entrance into care being a protective factor in itself as noted by Richardson & Lelliot (2003) by ensuring physical safety, better living conditions, fair and consistent rules to live by and an understanding and acceptance from caregivers. A key to this is attending to the nature of risk and protective factors and the interaction between them, comprehensively documented by Rutter in 1985. In fact, the WHO states that policies, plans and specific interventions relating to child and adolescent mental health should be designed with the reduction of risk factors and enhancement of protective factors in mind (WHO, 2005). The focus on hobbies and interests is linked to the notion of ‘normalisation’ of these Looked After Children’s lives. Martin & Jackson (2002) in their study of high achievers found that nearly all the participants stressed the importance of ‘normalization’ in Looked After Children’s day to day lives. This was possible through the freedom, support and finance for participation in outside hobbies and interests. The participants believed this helped them gain confidence in socialising for example (Martin & Jackson, 2002). Essentially all these protective factors (and others in the literature) should be addressed in the LAC Review Process and care planning of Looked After Children. Richardson (2002) points out that health assessments pave the way for a health care plan which is integrated into the overall care plan. Northern Ireland McLaughlin (2002) in the LACE project found that achievements for Looked After Children were much more than exam results, they talked of success in sports, art or music. By being supported and encouraged, they became more involved and did better in school (McLaughlin, 2002). Improving outcomes for Looked After Children/Care Leavers in their adult life has been a focus in the UK since the Children Act 1989 and through initiatives like Quality Protects and Choice Protects (McAuley, in press). Mendes & Moslehuddin (2004) note a movement to more substantial provision for Care Leavers since the mid seventies. It began with small-scale quantitative and qualitative research studies then followed by longer, empirically-based studies. Certain consumer groups in the UK in general such as the Who Cares Project and the National Association of Young People in Care sprang up and voluntary organisations like First Key demanded reforms and more services. VOYPIC’s ‘Making Connections’ project is an example of a specific project to encourage the participation of Looked After Children and Care Leavers. Making Connections allows children and young people with an experience of care to connect with their peers, VOYPIC staff and other relevant professionals and agencies. It delivers a number of activities including: the production of a newsletter, website design (www.bawareofwatsncare.co.uk), personal development and entrepreneurship programmes, creativity workshops (e.g. dance, drama, photography), groupwork residentials and training as well as a Young Reps programme (a peer group of volunteers representing care experienced young people across Northern Ireland). Through these activities, the project provides the young people with the keystones to make successful life changes and gain opportunities through participating and trying out new experiences and interests. Stein et al. (2000) show that positive contributions are achieved for Care Leavers through leaving care schemes and formal preparation and support. They specify that this relates to accommodation and self-care skills and also contributes to furthering social networks, developing relationships, and building esteem. Frankish & McCrossen (2005) however, caution that practical issues can take priority in Pathway Plans and emotional needs can be neglected. While the Children (Leaving Care) Act 2000 has been introduced and implemented in the UK, Mendes & Moslehuddin (2004) still note concerns about the potential continued variation in the provision of income support as well as the level of other provision such as ongoing support with accommodation and mental health. Mendes & Moslehuddin (2004) point out a concern that mental health and other support needs may still not be met. To enhance interests and activities, mentoring schemes could also prove useful. In Northern Ireland, VOYPIC delivers the “U” Choose mentoring project which is specifically and exclusively dedicated to Looked After Children. A number of voluntary agencies also run mentoring projects which include Looked After Children (e.g., Mulholland After Care Services (MACS) and EXTERN) and the Northern Ireland Association for the Care and Resettlement of Offenders (NIACRO) also operates a befriending and independent visitor scheme. In the future, it could be interesting to find more synergies between leisure-related organisations and Looked After Children/Care Leavers. 7.3 Action - Protective Factors Action - Protective Factors Northern Ireland In McAuley’s longitudinal study of outcomes of young people who had lived in long-term foster care, she later acknowledges that being accepted within the family was Good Care - Reducing risk factors and promoting resilience 39 VOICE OF YOUNG PEOPLE IN CARE Action - Protective Factors one of the striking elements of young people’s accounts. This sense of feeling they were wanted meant much to the young people (McAuley, in press). She further mentioned that some of the foster children were offered continuous support from foster carers after leaving care thus echoing the continued support parents give their own children when leaving home (McAuley, in press). particularly isolated from some of the above protective factors is when they are placed in secure accommodation (Kilkelly et al., 2004; Kilpatrick, in press). Independent representatives who participated in the Kilkelly et al. (2004) research were concerned about restricted leisure facilities and associated health issues, noting an increase in mental health issues for young people placed in secure accommodation. This echoes earlier concerns made in the report on secure accommodation by the Social Service Inspectorate and the Education and Training Inspectorate which also highlighted a lack of education provision (SSI & ETI, 2002). A priority area stemming from the Kilkelly et al. (2004) research is that ‘urgent steps should be taken to bring the operation of the Independent Review mechanism into line with international standards specifically Article 5 ECHR’ (p. 82, Kilkelly et al., 2004). The care planning process in Northern Ireland is similar to the UK. As part of the Children Order, all Looked After Children should have a regular review which looks at the progress, development, health, education, and placement needs of the child/young person. This is a formal meeting which includes the Looked After Child and all those who are involved in his/her care (Children (NI) Order 1995, part 4 section 45, Reviews and Representation). The Northern Ireland Commissioner for Children and Young People’s (NICCY) office has been carrying out research on Child Centred Planning and the report is due out in 2006. The report will address care planning in Northern Ireland. Similarly, in in-patient care, these protective factors still need to be attended to. Street (2004) talks of an earlier 7 study by Street & Svanberg where young people gave their opinion on the services they received. Of relevance to the present discussions of protective factors is the importance they placed on regular daily activities to prevent boredom, education provision within the unit and support after discharge (Street, 2004). Similar forms of political action for Care Leavers happened in Northern Ireland, with VOYPIC being established in 1994. Pathway plans for Looked After Children moving out of care are now necessary under the new Children (Leaving Care) Act (NI) 2002 (DHSSPS, 2005b). Most recently, VOYPIC has delivered a programme of conferences to prepare senior managers, practitioners and Care Leavers and launched a new young person’s guide to Leaving Care, funded by the DHSSPS (VOYPIC, 2006). KEY POINTS FOR CONSIDERATION Under the new legislation, a needs assessment is carried out before the young person leaves care so as to ensure they have appropriate support and services to meet their needs. This assessment takes in such aspects as support, education and training, independent living, family, friends and relationships, money issues, job options and health and growing up (VOYPIC, 2006). It is the starting point for the pathway plan which differs from the care plan in that it is more detailed regarding the Looked After Children’s future. The plan will include all those aspects identified in the needs assessment such as accommodation, education, training or employment needs and any financial or practical help the young Care Leaver is entitled to, relationships with family and friends, any practical skills they need and how to get them, any personal support they need, and the names of a personal advisor and the people who will help get them the support they need (VOYPIC, 2006). • Need for enriched understanding of how Looked After Children feel about being in care or Care Leavers feel about having lived in care. • A number of actions can be taken to protect Looked After Children and Care Leavers from mental ill-health. These include maintaining stability and continuity in their lives, ensuring contact with their family and wider social network and supporting them in their education, hobbies and interests. • Need for a more in-depth understanding of how well the care planning and the LAC Review processes are aligned to these factors. How has practice progressed since Horgan and Sinclair’s Review? • The promotion of these protective factors offers a way forward for practitioners. One area of care where Looked After Children can be 7 The Study’s full reference is Street, C. & Svanberg, J. (2003) Where Next? New directions in in-patient mental health services for young people. Report 1. Different models of provision: facts and figures. Young Minds. 7: ACTION - PROTECTIVE FACTORS 40 8 How are services to meet the mental health needs of Looked After Children and Care Leavers currently planned, controlled and organised? 41 VOICE OF YOUNG PEOPLE IN CARE How are services to meet the mental health needs of Looked After Children and Care Leavers currently planned, controlled and organised? “One of the best ways we can improve the health and wellbeing of the population is by improving the health and wellbeing of children and their parents” (p. 71, DHSSPS, 2004b). develop service networks to support those working with these children and young people. Most CAMHS in the UK are structured within the Four-Tiered model (Richardson, 2002). Figure 4a below outlines the presenting difficulties at each Tier followed by Figure 4b which outlines the services to meet the needs at each Tier. Across the Tiers, presenting difficulties increase in severity and the level of specialist services needed increases. Although we have looked at ways of reducing risk and promoting and protecting the mental health of Looked After Children/Care Leavers, we also need to look at the specific services which are designed for mental health and the current framework within which they are organised. We will look at these services through the frameworks of Child and Adolescent Mental Health Services (CAMHS) and Adult Mental Health (AMH) Services which may be used by Looked After Children/Care Leavers aged 12-25 years. We outline Tiered approaches from mild to severe need from both service perspectives. Our choice to begin directly with these services stems from our earlier definition of mental health as a broad concept. In recognising that we all have needs, to different degrees, these services are meeting the needs of these young people. We do not deal with primary care services explicitly but as an element of services within these Tiered models. The focus of this review extends right across the Tiers and is therefore not weighted towards the higher Tiers. 8.1 FIGURE: 4a - THE 4-TIER MODEL FOR CAMHS: PRESENTING DIFFICULTIES Child and Adolescent Mental Health Services Source: HAS Together we Stand 1995 (Adapted from a presentation by Jeffs 2005) By looking at the literature, it becomes clear that there are major regional and international differences in CAMHS but O’Rawe (2003) notes the US Surgeon General’s admission that all CAMHS are in varying degrees of crisis. Across the world there is a need to develop CAMHS at a national policy level illustrated in the following quote by the WHO (2003): FIGURE: 4b - THE 4-TIER MODEL FOR CAMHS: “The development of child and adolescent mental health services in the absence of specific national policy leads to: 1) fragmentation of services, 2) inefficient utilization of scarce resources, 3) inability to provide effective advocacy for priority concerns, 4) lack of constituent participation in program development and 5) an inability to incorporate new knowledge in a systematic fashion” (p. 14, WHO, 2003). The Four Tier Model CAMHS in the UK had been developing in a fashion not unlike that explained in the above quote until the advent of the Four-Tiered model outlined in the influential “Together We Stand” report (NHS HAS, 1995). This model was aimed at providing a comprehensive service for children and young people as an integrated whole, and to 8: CURRENT SERVICES Source: HAS Together we Stand 1995 (Adapted from a presentation by Jeffs 2005) 42 Current Services Current Services that service users, their carers and advocates have a greater say in how these services are planned, delivered and monitored, a trend toward community solutions, increased difficulty in recruiting and retaining staff and limited alternatives to acute admission (EHSSB, 2004b). The RMHLDNI is currently reviewing CAMHS in Northern Ireland and produced a consultative document in December 2005. Although the final report will not be available before the publication of this review, we feel it is important to mention some of the detail in the consultative document with the proviso that some things may not remain in the final report. That said, it is unlikely that the rather bleak picture of overall services will drastically improve before its publication in the near future as outlined in the following quote: While this Tiered model greatly influenced the development of CAMHS in the UK, there are many other areas of good practice which can be embraced. Attention has been paid to those incorporating a holistic model of child health. O’Rawe (2003) notes that the ‘National Service Framework for Children, Young People and Maternity Services’ (DH & DfES, 2004) was the first inclusion of CAMHS planning into a planning document in England following extensive lobbying by Young Minds in particular. In 1998, 24 CAMHS Innovation Projects were set up by the Department of Health with the aim of stimulating innovation, inter-agency partnerships and developing services for children and carers whose needs were not well met by existing services. A number of the 24 projects chose to work with Looked After Children and their carers (James, 2002). “The over-all quality, consistency and accessibility of services is so inadequate that urgent strategic action is needed to tackle the shortages in CAMH Services in NI” (p. 9, RMHLDNI, 2005a). There are many good examples of special designated services across the UK. One example is a mental health service set up in Birmingham in 1995 specifically for Looked After Children to provide assessment, brief psycho-social interventions and referrals to longer term services. Additionally, it supports and advises staff and families working with Looked After Children including help for foster carers (Butler & Vostanis, 1998). Butler & Vostanis (1998) found that the system at the time failed to provide stability and nurturing to Looked After Children with often very high levels of need; highlighting the potential for services like the one in Birmingham which would overcome such problems. In the review, Teggart & Linden (2005) carried out a userconsultation. They concluded that a number of areas could be improved including: “Increasing capacity at all Tiers of service, developing collaborative models of practice, developing public knowledge about child and adolescent mental health and establishing meaningful structures for increased user participation in the planning and monitoring of CAMH Services” (p. 2, Teggart & Linden, 2005). Another initiative is described by Callaghan et al. (2004) through the evaluation of a mental health team established to provide support to Looked After Children aged between 4 and 17 years. The team, structured according to the NHS HAS 1995 Tiered Model of Service Provision had a combination of skills including primary mental health work, psychology and psychiatry. It offered assessment, treatment, consultation and training to carers, residential staff, and others. Positive outcomes were observed after the first five months of the project in terms of the children’s mental health as well as client satisfaction on the part of both carers and children (Callaghan et al., 2004). From this consultative document, it became clear that the Four-Tier model has not been formally adopted by Northern Ireland as a whole although specialist professionals do currently use the concepts of the model (RMHLDNI, 2005a). The review examined a number of potential service delivery systems and concluded that the Four Tier Model would be the most effective in Northern Ireland. This means that relationships between other services providing CAMH Services (e.g. projects established by Social Services departments), youth services of the Education and Library Boards and the voluntary sector) and specialist CAMH Services need to be developed (RMHLDNI, 2005a). A good example of this already working in Northern Ireland is in Homefirst Trust which has drawn up a poster of all the available services for referrals. The consultative review document also recommends that a mapping exercise similar to that in England needs to be carried out on an annual basis by an independent research institute to include provision by voluntary, community and statutory services (RMHLDNI, 2005a). Specialist provision must be balanced against the work that needs to be carried out at the lower Tiers as stated earlier (White & Stancombe, 2004). 8.1.1 The Development of CAMHS in Northern Ireland It is useful to look at the context in which specialist services are developing in Northern Ireland, as outlined for example in EHSSB (2004b). This includes growing demands on all mental health services, an expectation 8.1.2 Current Provision in Northern Ireland across the Tiers 43 VOICE OF YOUNG PEOPLE IN CARE Current Services There appears to have been limited development at the lower Tiers as outlined in the RMHLDNI Consultative document (RMHLDNI, 2005a) which argues that a number of community services effectively contribute to Tiers 1 and 2. These include early intervention programmes e.g. Sure Start, statutory and voluntary family centres, voluntary and community providers (e.g. befriending, advocacy services), education departments providing pastoral care and school based counselling, more specialist support teams (e.g. educational psychology, educational welfare officers, emotional and behavioural support teams) and youth justice services. However, many of these services do not see themselves as CAMHS providers and this may raise issues of responsibility (RMHLDNI, 2005a). It also highlights a potential barrier of the stigma attached to mental health and may show the need for more professionals to adopt a wider definition of mental health as was stated earlier. In order to be an accessible and responsive service, this barrier needs to be overcome. Gilliland et al. (2005) further note that while a number of professionals are operating at Tier 1, there are structural problems with limited staff development or clinical support. also mentions operational and recruitment difficulties at Forster Green, Copeland and College Gardens which restrict bed availability and young people can find themselves admitted to acute adult wards (SLT, 2006). Further inpatient provision is currently located at Muckamore Abbey Hospital (Assessment and Treatment Provision) delivered by North and West Health and Social Services Trust (NWHSST) for children with severe learning disabilities and challenging behaviour (RMHLDNI, 2005a). Other provision includes outpatient services commissioned for example by the EHSSB from Down and Lisburn Trust and UCHT for their localities (EHSSB, 2004a). In Belfast, there is the Royal Belfast Hospital for Sick Children (EHSSB, 2004a). Appropriate in-patient provision is currently restricted geographically to Belfast. Looked After Children can also enter secure accommodation, and Kilkelly et al. (2004) state that demand for secure accommodation outstrips supply whereby every person who is offered a place results in three being refused and little is known about what happens to those not placed (Kilkelly et al., 2004). The new build of secure accommodation was due to be completed in December 2005 but is still not complete. VOYPIC was invited to assist with the design and development of the new regional secure unit so young people have been involved in the process (and reported feeling that their views were seriously considered) (VOYPIC, 2004). At Tier 2, Gilliland et al. (2005) list a number of common professionals working at this level including community paediatricians, health visitors with particular training in behaviour therapy, staff in family centres, educational psychologists, education welfare officers and those working in Youth Justice. It can happen that some young people are placed in Out of Area placements such as St. Andrews or Roycroft. Mc Master (2004) noted that at the time of his review, the EHSSB had 7 young people in such placements with one case pending, the total annual cost of which was estimated at £1.3m. He notes that: It appears that Tier 3 provision is now available in each of the Boards in Northern Ireland although there is wide variation on a number of factors including age limits, mode of referral, waiting times, support services, referral management/coordination system, clinical networking, directorate placed in and day hospital services (RMHLDNI, 2005a). Gilliland et al. (2005) also note that there are now specialist CAMH teams in each Community Trust but these are hindered by extensive waiting lists. “While accepting such expenditure will not always be avoidable this does raise the question of whether additional investment in local services, thus allowing early appropriate intervention, would better meet the needs of young people, improve their long term psychosocial outcome and prevent some of these Out of Area treatments” (p. 43, McMaster, 2004). It took some time to piece together current Tier 4 CAMHS provision for the review. A crude overview is that when the day and inpatient system is functioning as it should, younger Looked After Children (under the age of 14) requiring day patient or inpatient admission would be admitted to the Forster Green site (regional child psychiatry services inpatient unit). Older Looked After Children (aged 14-16/17) would be placed in the Copeland & College Gardens Young People’s Centre (YPC) (Adolescent Regional psychiatry service). The RMHLDNI Consultative document, however, notes that no day places are available at the current base in Knockbracken, but there is a planned new build for Adolescents at the Forster Green site (RMHLDNI, 2005a). Another local review, carried out by Sperrin and Lakeland Trust (SLT) 8: CURRENT SERVICES Other types of provision such as assertive outreach, 24 hour emergency cover to general hospital Accident and Emergency (A&E) departments and crisis intervention which have been embraced in England and Wales cannot be currently provided in Northern Ireland (RMHLDNI, 2005a). 8.2 Interface between Child and Adolescent and Adult Mental Health Generally, those under the age of 16 years are the responsibility of CAMHS and those over the age of 18 44 Current Services Current Services found this particularly useful for this review because it mirrors the similar model for CAMHS. years are the responsibility of the AMH Services (SLT, 2006). However, a number of Looked After Children/Care Leavers do not fit easily into CAMHS or adult services which results in a gap in provision for those aged in the range between 16-19 years. This has been acknowledged in the RMHLDNI CAMHS Consultation document which mentions 16-17 year olds in particular and recommends that CAMH Services should ideally be provided for children and young people up to their 18th birthday (RMHLDNI, 2005a). There is also a belief that the needs of this group would be better met within CAMHS rather than Adult services which tend to deal more with specific psychiatric disorder and the placement of young people in adult wards is generally considered as unacceptable by the Royal College of Psychiatrists and the Irish College of Psychiatry (as cited in SLT, 2006). Nevertheless, there is evidence to show that young people are being admitted to adult wards in Northern Ireland, with an estimated 90 children and young people being admitted to adult wards across the area in 2001/2002 (O’Rawe, 2003). This figure is proportionately five times higher than that in England and Wales. There are also implications for the type of service these young people receive due to staff having little or no training in child and adolescent mental health or paediatrics (O’Rawe, 2003). The Western Health and Social Services Board (WHSSB) has been particularly active in reviewing the best way forward for this group. One proposal is to have an early intervention service for first episode psychosis sitting within present CAMH Services (SLT, 2006). The Child and Adolescent Service in Omagh (SLT), which was set up in 1995, is currently setting up a protocol to ensure that young people experience a smooth transition between child and adult mental health services (SLT, 2006). 8.3 Adult Mental Health (AMH) Services Care Leavers aged 18 years and over are referred to AMH services. In its final Review of Adult Mental Health, the RMHLDNI (2005b) calls for consideration of the needs of younger people to be included in service plans for Adult Mental Health (recommendation 21). This would involve substantially developing plans for those with a psychotic illness which may require lifelong care, adults with developmental disorders (e.g. autistic spectrum, learning disability and attention deficit hyperactivity disorder) and adults with mental health problems relating to adverse childhood experiences (in particular abuse). The Eastern Board has identified a Four-Tier model as a framework for how AMH Services could be managed (EHSSB, 2004b) as outlined in Figure 5 and we have 45 VOICE OF YOUNG PEOPLE IN CARE Current Services FIGURE: 5 - PROBLEM TIER Source: EHSSB, 2004b (using a framework from Northumberland Mental Health National Service Trust An example of good practice is the Windsor First Episode Service based at Belfast City Hospital which provides a multi-disciplinary, multi-agency service to young people aged 18-30 living in the South Belfast catchment area experiencing a first episode of psychosis (p.171, RMHLDNI, 2005b). KEY POINTS FOR CONSIDERATION • CAMHS in Northern Ireland is seriously under funded. • Current CAMHS provision needs to be enhanced across the Tiers. • Need to highlight stronger links between CAMHS and Looked After Children services. • It would be useful to know more about what types of interventions are offered in Northern Ireland e.g. psychoanalysis, systemic family therapy. • Adult services need to be sensitive to the needs of Care Leavers. 8: CURRENT SERVICES 46 9 What is the current policy and legislative framework within which the mental health needs of Looked After Children and Care Leavers in Northern Ireland are met? 47 VOICE OF YOUNG PEOPLE IN CARE What is the current policy and legislative framework within which the mental health needs of Looked After Children and Care Leavers in Northern Ireland are met? 9.1 The Wider Picture common targets across organisations in different sectors. She placed particular hope in the ‘National Service Framework for Children, Young People and Maternity Services’ (DH & DfES, 2004) in England to make a difference by setting targets across organisational boundaries. At a global level, there has been a drive to establish a Global Child and Adolescent Mental Health Action Plan (WHO, 2003). Some aims of the plan are directly relevant to Looked After Children/Care Leavers including increasing the capacity or initiating national plans for Child and Adolescent Mental Health, identifying models of good practice, disseminating information via an updated registry and setting up a webpage as a world-wide focal point. A useful document is the DH ‘Promoting the Health of Looked After Children’ (DH, 2002) because it provides a commitment to many of the protective elements included in this review including the need for mental health to be part of a holistic assessment as well as the importance of education and interests and hobbies. It also recognises the lack of advocates to seek out services for Looked After Children and the instability of their placements as the key barriers to the achievement of their good health. Prior to assessment, information on the young person needs to be collated and the guidelines outline a number of ways in which this can be done (DH, 2002). Since this is time consuming, an administrative post has been set up to undertake this activity (DH, 2002). It further recognises that health assessments need to refer to Looked After Children’s mental health and that GPs, education professionals, social workers and carers will need training on mental health. The WHO (2005) also gives guidance on writing up Child and Adolescent Mental Health Policies and Plans and a crucial element is that they are intersectoral: “Because children’s and adolescents’ well-being is apparent in and influenced by their participation in multiple sectors of society, mental health policy should foster collaboration between the different sectors concerned, such as education, welfare, religion, housing, correctional services, police and other social services” (p. 30, WHO, 2005). The United Convention on the Rights of the Child (UNCRC) 1989 is particularly useful when situating the rights of Looked After Children/Care Leavers in the context of the rights of their peers. Although it has currently no statutory force, O’Rawe (2003) notes that all parts of the UK are bound by international law to ensure that the terms of the treaty are honoured. The three key principles are directly relevant: non-discrimination (2); best interests of the child (3); and children’s voice (12) (UNCRC, 1989). There are some rights in particular which relate to key messages from the present review including the right to maintain contact with parents (9), regard to continuity in a child’s upbringing (20), access to health and medical services (24), education and its aims of developing personality and talents and preparing the child for an active life as an adult (27, 29), leisure, recreation and cultural activities (31), and rehabilitative care (39). These and others were summarised in the Office of the First Minister and Deputy First Minister (OFMDFM, 2001) paper for appointment of a Northern Ireland Commissioner for Children and Young People (pp. 70- 73, OFMDFM, 2001). 9.2 In the document, the Department of Health outlines the responsibility of foster carers and residential staff to ensure Looked After Children’s health needs are met (DH, 2002). These are all directly applicable to our broad definition of mental health and include: • An understanding that achieving optimum health starts early and includes the provision of good quality care which starts in infancy and which provides a child with a positive sense of identity and self-esteem; • Encouraging and supporting each child in achieving optimum health and in particular exercising the corporate parent’s responsibility as health educator; • Providing a home environment which actively encourages and supports a healthy lifestyle; • Ensuring the child attends health appointments and clinics as necessary; • Contributing to the child’s health plan and care plan; • Ensuring and facilitating contact and communication with the child’s parents and family in accordance with agreed plans; • Ensuring that the child or young person makes maximum benefit from education and broader experiences offered by leisure activities, hobbies and sport (p. 36, DH, 2002). The Current Legislative and Policy Framework in the UK Across the UK, there has been a legislative and policy drive to prioritize the mental health needs of Looked After Children/Care Leavers such as the CAMHS Innovation Projects set up in 1998, the Quality Protects programme, treatment and assessment plans as well as targeted investment in CAMHS (Richardson & Joughin, 2000). Despite all these advances, Richardson later (2002) acknowledged that more needs to be done to introduce 9: POLICY & LEGISLATION The need for access to a broad range of CAMH services across the Tiers was outlined as well as the fact that leaving care services need support from CAMHS and adult mental health professionals, particularly in relation to prevention and access to referral (DH, 2002). Another significant development is The ‘National Service 48 Policy & Legislation Policy & Legislation framework for services in this area. This legislation is, however, broad-based and gives little direct guidance in the case of children and young people (although it does mention legal responsibilities for Looked After Children). The Order led, in turn, to the Mental Health Commission and the Mental Health Review Tribunal. At the moment, the RMHLDNI is reviewing this legislation. Framework (NSF) for Children, Young People and Maternity Services’ (DH & DfES, 2004) which demonstrates the degree of attention government departments are paying to children’s mental health and recognises that service provision is not the sole responsibility of one service or agency (Lindsey, 2005). Lindsey (2005) believes that the Children’s NSF recognises the psychological well-being of children and young people as an integral part of their healthy emotional, social, physical, cognitive and educational development. A vital step forward in the provision of services in Northern Ireland is The Children (NI) Order 1995, which came into force in 1996. This order places a statutory duty on Trusts to provide a range of services for children in need and introduced a systematic approach to individual assessments of Looked After Children making written care plans a requirement (SSI, 1999). The SSI was authorised by the Children (NI) Order to inspect services for children (Article 149). The need for the Children (NI) Order was well summarised by SSI (1999): 9.3 The Current Legislative and Policy Framework in Northern Ireland Generally, legislation in Northern Ireland is very close to legislation in England and Wales. The Children (NI) Order 1995 mirrors the Children Act (1989) and the recent Children (Leaving Care) Act (Northern Ireland) 2002 closely follows The Children (Leaving Care) Act 2000 previously introduced in England. Stein et al. (2000) demonstrate that while the Children (NI) Order 1995 mirrors the Children Act (1989), the main differences took account of the unique structure of Health and Social Services Boards in Northern Ireland at the time: “Research in the 1980’s identified major gaps in decision-making for children in public care. Findings indicated that there was insufficient attention given to meeting the needs of children in respect of their health, education, contact, identity, preparation for leaving care, religion and culture. There is now a statutory requirement for all these matters to be considered within each child’s Care Plan” (p. 7, SSI, 1999). “These were set up at the time of Direct Rule when a number of key responsibilities, including housing and education, were removed from local government which had been a site of many of the grievances over religious and political discrimination” (p. 237, Stein et al., 2000). It has been noted (DHSSPS, 2003a) that the Children (NI) Order enacts much of the progressive thinking in the 1976 Black 8 Report , including the recommendation that services should be based on an assessment of need and tailored to meet the identified needs of each Looked After Child (DHSSPS, 2003a). Usually the legislation in Northern Ireland follows several years after that in England and Wales which has the advantage that we can learn from the application of it; the main disadvantage is that it leaves major gaps in provision until it is implemented. It will be interesting therefore, to see how Northern Ireland follows on from the new Children’s Act in 2004. A further development came about in 1998 with The Children (1995 Order) (Amendment) (Children’s Services Planning) Order (Northern Ireland 1998). This amendment made it a requirement for each HSS Board to produce a Children Services Plan (CSP). These provide for a range of services to meet the assessment needs of each Board’s child population structured in such a way that residential care was seen as inter-dependent with family support and foster care. April 1999 saw the introduction of the first Children Services Plans. Gilliland et al. (2005) note that they could be influential in the development of CAMH services as outlined below: For the purposes of this review, we have looked at legislation and policy with elements directly applicable to Looked After Children or Care Leavers, mental health and young people in general. This is not an exhaustive overview but simply draws relevant elements from each of the sources for the review. “Children’s Services Planning offers a template within which an integrated, strategic approach to the planning and commissioning of CAMH services can be taken forward. The complexity of CAMHS in organisational terms will provide a significant challenge to the 9.3.1 Legislation A good starting point is the 1986 Mental Health (Northern Ireland) Order which provides the overall 8 The full reference for the Black Report is: Children and Young Person’s Review Group (1979) Legislation and Services for Children and Young People in NI: Report of the Children and Young Person’s Review Group. HSMO. 49 VOICE OF YOUNG PEOPLE IN CARE Policy & Legislation demonstrated that many vulnerable under 16 year olds were being discharged from care. As previously mentioned, this legislation is broadly similar to that in the UK and as such, it targets preparation and planning for leaving care including core concerns such as housing, education and employment, finances and social support. The new legislation should also help to lessen the number of risk factors presenting at this stage in young people’s lives because it serves to prepare Looked After Children for leaving care and explicitly sets in place new supports such as personal advisors, pathway plans, support for young people in education up to 25 years, and support for young people up to 21 years in general. A needs assessment will take place to inform a pathway plan to guide supports which should replicate what responsible parents would provide for their children. The DHSSPS issued ‘Leaving and After Care: Guidance and Regulations’ in 2005 (DHSSPS, 2005b). effectiveness of the children’s services planning model. However, the framework, involving as it does key agencies and disciplines in the voluntary, community and statutory sectors, provides a potentially viable mechanism for progressing the agenda” (p. 55, Gilliland et al., 2005). In the same year (1998) The European Convention on Human Rights (ECHR) was incorporated into domestic law in the United Kingdom (UK) through the Human Rights Act (1998) (Kilpatrick, in press). The UNCRC and the ECHR promote both the individual rights of children and young people within the family as well as promoting an active partnership between children, their carers and the state (Kilkelly et al., 2004; Kilpatrick, in press). Kilpatrick (in press) also states that this partnership approach is supported in the guidance and regulations of the Children (NI) Order 1995. Another relevant development was The Northern Ireland Act 1998 following the Good Friday Agreement. The New Targeting Social Need (New TSN) was re-launched as part of the Act. This is a long-term strategy to tackle social need and social exclusion. Three core elements are a focus on unemployment and employability, tackling social need in other areas, and promoting social inclusion (DHSSPS, 2004a). The Act also introduced key equality legislation through its Section 75. This Section has required since January 2000 equality of opportunity in relation to nine key dimensions: persons of different religious belief; political opinion; racial group; age; marital status; sexual orientation; men and women generally; persons with a disability and persons without; and persons with dependants and persons without (DHSSPS, 2004a). O’Rawe (2003) demonstrates how the Act may be violated by failing to meet children’s needs: A further significant change has been the Health and Personal Social Services (Quality, Improvement and Regulation) Order (Northern Ireland) 2003 which established the Northern Ireland Health and Social Services Regulation and Improvement Authority and made provision for the registration and regulation of certain establishments and agencies. It makes provision regarding the quality of health and personal social services, adoption and fostering. Across this legislative context it is important to mention that in October 2003, Northern Ireland’s First Children and Young People’s Commissioner (the late) Nigel Williams was appointed, sponsored by the OFMDFM. The Commissioner’s principal aim is “to safeguard and promote the rights and best interests of children and young persons”. His powers can be grouped under three main areas of work: promoting children’s rights; complaints and legal action; and research and inquiries. While the Commissioner’s remit includes children up to the age of 18, it extends to those leaving care, up to the age of 21. In a recent submission to the United Nations Committee on the Rights of the Child, NICCY called for a review of the specific mental health needs of Looked After Children and the provision of adequate services to meet the needs identified. “Failure to represent and address the specific needs of children under current legislative provisions, policy and funding potentially violates the S75 duty under which authorities are obliged to have due regard to the need to promote equality of opportunity” (p. 33, O’Rawe, 2003). A more recent legislative development has been the Implementation of the Children (Leaving Care) Act (Northern Ireland) 2002 which took place in 2005. The aim of the legislation is to improve the life chances of Looked After Children as they leave care and make their move to independent living (VOYPIC, 2006). It is important to mention the context of the legislation. The need for such a legislative commitment was clear from the findings of the SSI Report ‘Promoting Independence. A 9 Review of Leaving and After Care Services’ (2000) which 9.3.2 Policy A number of policy documents have put forward key themes for looking after the mental health of Looked After Children/Care Leavers. The Social Services Inspectorate has carried out numerous 9 Social Services Inspectorate (SSI) (2000) Promoting Independence: A Review of Leaving and After Care Services. Belfast: DHSSPS. 9: POLICY & LEGISLATION 50 Policy & Legislation Policy & Legislation inspections, adopting a Standards based approach to Inspections in 1994. Standards papers were issued for residential care “Quality Living Standards for Services: Children Who Live Away From Home” (SSI, 1995a) and subsequently those in a family placement who are fostered “Quality Standards for Services: Children Living in a Family Placement” (SSI, 1995b). New standards should be released in 2006. In 1997, SSI carried out the first large-scale examination of fostering services in Northern Ireland to establish a baseline against which to benchmark future practice in fostering services (SSI Fostering in Northern Ireland, 1997). approach which promotes good health, prevents mental illhealth and ensures early intervention when mental health problems do occur. This approach, similar to our earlier definition, accepts that everyone has mental health needs irrespective of whether or not they have a diagnosable illness. It works at three levels: strengthening individuals (promoting self-esteem, life and coping skills); strengthening communities (increasing social inclusion); and reducing structural barriers to mental health (promoting access to education, meaningful employment, housing). This also falls in line with the New TSN Policy by promoting social inclusion. The Strategy and Action Plan aims to encourage policy development and support emotional/mental health in two ways. The first is improving life circumstances through providing social and physical environments which assist people in obtaining help and resources to support them through challenges or crises. The second is improving life skills through enabling and empowering people to improve their own mental health by promoting positive well-being and self-esteem (p. 8, DHSSPS, 2003b). Another very important piece of work followed closely after that; Children Matter (1998) at the DHSS request. Children Matter was a crucial step in the provision of services and McAuley (2000) classed it as “Probably one of the most clearly written and hard-hitting reports emanating in recent years from SSI” (p. 49, McAuley, 2000). Children Matter (SSI, 1998) recommended that immediate action was needed either to bring the existing stock of children’s homes up to standard or to commission new property. One crucial element was that a range of differentiated and specialist residential services was seen as necessary, according to assessed need (SSI, 1998). The Children Matter Taskforce was established in 2000 (DHSSPS, 2003a). Implementing Children Matter was the 4 Board’s response to Children Matter and set out a five-year programme (DHSSPS, 2003a). Further developments will include a Children Matter Leaving Care Subgroup and a Secure Care Subgroup. One of the targets of the Strategy and Action Plan is to reduce the rate of potential psychiatric disorder by one and a half percentage points from 21% in 2001 (as measured by NISRA, 2002) to 19.5% in 2008. This compares to the earlier target set by Investing for Health. This clearly recognises the importance of the mental health of children: “Since childhood mental distress is strongly predictive of poor mental health and social outcomes in adult life, preventive interventions for children have clear potential to bring long-term psychological, social and economic benefits” (p. 23, DHSSPS, 2003b). In its 1999 Planning to Care document, the SSI found inconsistencies in Looked After Children’s Care plans particularly in relation to their content, detail and quality (SSI, 1999). They cautioned that care planning could be driven by resources rather than assessed need. They found that the LAC Review process lacked adequate consideration of the young person’s emotional health and well-being needs (SSI, 1999). Each Health Board area in Northern Ireland is committed to the Strategy and Action Plan and progress has been made both in Board areas and regionally, for example, through ASSIST (Applied Suicide Intervention Skills) training (DHSSPS, 2003c). Some of the work is particularly noteworthy, for example the Southern Board’s 2003 Conference on ‘Young People and Positive Mental Health’, its regional resource for young men’s mental health ‘Right in UR Head’ as well as the development of directories of mental health services (DHSSPS, 2005c). While progress has been made to promote mental health, it does seem that further consideration, however, needs to be given to the accessibility of this information to Looked After Children/Care Leavers excluded from mainstream education and employment. McAuley (2000) welcomed the announcement that the DHSSPS would adopt a Quality Protects Initiative tailored to local organisational arrangements but we found no formal adoption of this Initiative in the review. Several strategic documents are important in this review. The first is the DHSSPS ‘Investing for Health’ strategy for improving public health and reducing health inequalities introduced in 2002. Many subsequent developments have been linked to this strategy. The DHSSPS identified mental health as a priority within this strategy, for example by setting a target of reducing the rate of potential psychiatric disorder by one tenth by 2010 (p.60, DHSSPS, 2002). A useful document for the current review is the DHSSPS ‘A Healthier Future’ 2005-2025 (DHSSPS, 2004b). The overall aim of this twenty-year vision is to “improve the physical and mental health and social well-being of the people of Northern Ireland” (3.1, p. 38, DHSSPS, 2004b). This vision specifically states that it will focus on those ‘least able to protect themselves, including looked after Another key strategic development is the DHSSPS (2003b) Strategy and Action Plan 2003-2008 for Promoting Mental Health which relates to all age groups from 18 to 65 years. It outlines a health improvement 51 VOICE OF YOUNG PEOPLE IN CARE Policy & Legislation also delivers numerous physical activity training programmes (DHSSPS, 2004c). children’ (3.2, p. 38, DHSSPS, 2004b). An interesting aspect of this strategy is the focus on engaging users in flexible ways such as through the use of IT. They give an example of how text-messaging reminders before an appointment can reduce missed appointments by half. Information provision in mental health has also been highlighted in the 2004 Inspection of Social Work in Mental Health Services. Recommendation 8.7 is: Some outcomes are relevant to Looked After Children/Care Leavers. One key outcome is to improve the life chances of Looked After Children initially by ensuring that they are placed in an appropriate setting and that this is reflected by continuity of care (measured by a reduction in movements between placements). While a stable environment will have immediate benefits, they suggest that the longer-term benefits will lead to 95% of Looked After Children experiencing no more than three placements during any one continuous period in care (DHSSPS, 2004b). “Trusts should conduct an audit of all published information that is currently available to ensure that service users, carers and all relevant agencies are fully informed about mental health services, including social work services. Any gaps in information provision should be identified and remedied. Trusts should actively engage service users and carers in this process” (p. 68, DHSSPS, 2004d). As previously mentioned, each Board area has Health and Well-Being Investment and Action Plans and these may make some reference to Looked After Children/Care Leavers. The latest EHSSB Health and Well-Being Investment Plan (2005/8), for example, has earmarked funds for Child and Adolescent Mental Health to develop a ‘First On-Call Rota” as well as additional funding to assist with the new requirements under the Children Leaving Care Act in relation to personal advisors and additional funding for residential Children’s Homes to develop a pilot Intensive Support Unit in Glenmona (EHSSB, 2005). The vision also aims for the proportion of young Care Leavers in education, training or employment at age 19 years to be at least 75% of the level for all 19 year olds (DHSSPS, 2004b). Other key outcomes relate specifically to mental health as follows: • Between 2001 and 2025 - to have improved the mental health and well-being of young people aged 16 - 24 years by a fifth as measured by the General Health Questionnaire (GHQ) 12 score (baseline was 15% of males, 25% of females in 2001); • By 2005 to have ensured that 75% of children and young people requiring in-patient hospital treatment will receive their care and treatment in an age-appropriate setting; • By 2015 no more than 25% of those on child and adolescent psychiatry waiting lists to be waiting for 3 months or longer for a first appointment at the end of each quarter; • By 2025 all children requiring specialised CAMH Services will be able to access them in 3 months or less (pp. 71-72, DHSSPS, 2004b). The need for joined-up working has been embraced, for example, in the EHSSB (2004) Strategy for Adult Mental Health Services in the area (EHSSB, 2004b). The Strategy endorses the wider definition of mental health in the sense that it recognises that Mental Health problems do have a social component. It appreciates the need for Trusts to work with local communities and others in creative ways which may not necessarily involve Mental Health professionals but will seek to promote better Mental Health (EHSSB, 2004b). It aims to: • “Develop, in partnership with the Education and Library Boards, arrangements for the delivery of Mental Health awareness training to staff and pupils in all schools within the Board’s area” • “Provide improved information about Mental Health services to local Social Security offices” • “Review liaison arrangements between the PSNI, the Ambulance Service and Health and Social Services with a view to exploring the need for the delivery of training in the management of Mental Health crises” • “Initiate an evaluation of the extent to which mainstream leisure, training and employment opportunities are available to people attending day centres and pre-vocational training and employment schemes” (p. 80, EHSSB, 2004b). The vision will be reviewed every five years in conjunction with a regional implementation plan and supported by area health and well-being plans. Developments relating to physical health may also be noteworthy such as the DHSSPS Investing for Health consultative document on the Five Year Physical Activity Strategy and Action Plan (DHSSPS, 2004c). It outlines two actions which are directly relevant to this review. Action 5 aims to make physical education a mandatory element of the education curricula. This however, as earlier noted, may not be applicable to those Looked After Children who do not attend mainstream education. Action 6 aims to further develop policies and programmes to promote physical activity, taking account of the specific needs of children and young people and those in care settings. The HPANI 9: POLICY & LEGISLATION In November 2005, the Secretary of State outlined plans for 52 Policy & Legislation Policy & Legislation a major re-organisation of public administration in Northern Ireland to re-shape the local government made up of 26 District Councils to a new configuration of 7 Councils. As part of that review (but not dependent on it) Shaun Woodward (The Minister for Health, Social Services and Public Safety) announced his proposals for Health and Social Services on the same day (Woodward, 2005). His announcement sets in place significant changes to the current configuration of Health and Social Services Trusts in Northern Ireland which he claimed would take effect from early 2006. Woodward’s reforms take on board the conclusions of an earlier independent review in 2005 carried out by Professor Appleby of the King’s Fund. This review concluded that the system lacked clarity despite the efforts of excellent staff in Health and Social Services, and despite the additional resources invested in these services (Woodward, 2005). At the heart of Woodward’s motivation, is the need to put the patient first which he aims to do in a number of practical ways (Woodward, 2005). He has questioned the previous configuration of 4 Health and Social Services Boards and 19 Health and Social Service Trusts. His vision is a health system with a single Health and Social Services Authority to replace the four Boards, and seven Local Commissioning Groups to map against the proposed areas of the 7 District Councils. He then envisaged that the five new Trusts will replace the 18 existing Trusts (with the Ambulance Service remaining unchanged). A Patient and Client council will also be set up and there will be some changes and sharing with a number of agencies providing support services. A performance management body will also be established which will go hand in hand with inspection, regulation and improvement (Woodward, 2005). These new changes will undoubtedly have an ensuing effect on services to Looked After Children/Care Leavers. KEY POINTS FOR CONSIDERATION • To what extent is current legislation being met in Northern Ireland? • How well does the legislation and policy fit the needs of Looked After Children and Care Leavers? • Since the overview has highlighted a number of similar goals, how can cooperation be enhanced to achieve these goals? 53 VOICE OF YOUNG PEOPLE IN CARE Policy & Legislation 9: POLICY & LEGISLATION 54 10 What Services do Looked After Children and Care Leavers want and what works well? 55 VOICE OF YOUNG PEOPLE IN CARE What Services do Looked After Children and Care Leavers want and what works well? A vital component in this review is understanding what services Looked After Children and Care Leavers would be happy to take up. We have tried to decipher what works already in engaging with them and what would encourage the uptake of services particularly for this group. the Looked After Children had some concern about their health at the time (12 of the 18 young people participating). The participants also spoke of the difficulty of arranging off-site visits to doctors and other professionals as appointments were set up by care staff or permission needed to be sought to be off-site even if he/she set up the appointment personally (Bundle, 2002). 10.1 What services do Looked After Children and Care Leavers want? Another major concern is confidentiality (RCPCH, 2003; NCB, 2005) and young people in general were particularly wary of GP services including reception staff in respect of this (NCB, 2005). Many Looked After Children also felt angry at the failure of health professionals to respect the confidentiality of their health information (Ward et al., 2002). This was also seen as important in the sharing of information and the limits to this being clear (Stanley, 2002). Young people in general have quite strong views about what kind of services they want (NCB, 2005) and this is similarly the case for Looked After Children (Ward et al., 2002; Stanley, 2002) and Care Leavers. We will examine both the general perceptions of young people and then look at the particular case of Looked After Children or Care Leavers. NCB recently completed a review on children and young people’s views on health and health services. A key issue emerging was communication whereby young people wished that all service providers would be good at talking and listening to them (NCB, 2005). Another study of young people in general stressed the importance of the overall friendliness and non-judgemental approach of the professional and other staff (RCPCH, 2003). Further issues for Looked After Children in particular include the need for better information (Ward et al., 2002; Bundle, 2002). A qualitative study of the views of Looked After Children aged 12-16 years in a mixed residential children’s home in England revealed that they wanted more information, especially on mental health issues (Bundle, 2002). Looked After Children also called for better support (Ward et al., 2002; Stanley, 2002). Stanley (2002) found that Looked After Children wanted workers to spend time with them or to be able to talk to someone who had personal experience of similar problems. A suggestion for service planning was to provide formal training opportunities for Care Leavers to enable them to support younger people in the looked after system through counselling and care work (Stanley, 2002). Use of services by all young people could be encouraged with the provision of a choice of style of service (RCPCH, 2003). This view was also held in the study by Stanley (2002) whereby Looked After Children also wanted a say and to be allowed the power to choose the type of help they might receive from a range of provision (including voluntary provision) (Stanley, 2002). Young people generally attach importance to the physical environment in making them feel comfortable (NCB, 2005) and the RCPCH (2003) document highlighted the need for sensitivity to the privacy/visibility of the visit. Similarly, Looked After Children wish to avail of services which are user- friendly, accessible, flexible and discreet and welcome being able to consult these services without the knowledge of care staff or other professionals (Blower et al., 2004) Other messages emerged from an exploration of young people’s attitudes about the delivery of health care to Looked After Children and how it might be improved (Ward et al., 2002). First, it seemed that young people valued seeing and keeping their own health records. Second, their experiences of medical examinations were negative on the whole, and they often found the process impersonal, lacking explanations, and without recognisable outcomes for them. Young people in general would like services which are accessible, aided by the timing of surgeries and accessibility with public transport and being able to access information in other ways than face to face with doctors (RCPCH, 2003). This accessibility of services is also extremely important for Looked After Children/Care Leavers. In Bundle’s (2002) study, young people talked about their reluctance to request appointments, feeling that they were not encouraged to ask questions about personal health during medical examinations. This is juxtaposed against the same study’s findings that most of 10: WHAT YOUNG PEOPLE WANT A recent study by Harris & Broad (2005) identified factors leading to positive outcomes for young people leaving care after the implementation of the Children (Leaving Care) Act 2000. It explored the views of service managers, staff and young people regarding policy and practice in three East Midlands local authority areas. They found that Leaving Care services which were popular were those which cultivated a clearly distinct identity from Looked After Children Services and outlined five key points for practice relating to transition (Harris & Broad, 56 What young people want What young people want 2005). These included the presentation of the service as independent, the swift and flexible allocation of personal advisors, the time to develop this relationship between the personal advisor and Care Leaver prior to leaving care, paying special attention to goodbyes and introductions and the lengthening of transitions by a later transference of case responsibility combined with a long changeover period (Harris & Broad, 2005). A further point they noted was that the success of the process was often related to the Care Leaver demonstrating a real sense of ownership of their plans as evidence of their progress and ambitions (Harris & Broad, 2005). A final point is their suggestion that services treat Care Leavers as adults through the use of adult settings and having high expectations of them. Over the last few years VOYPIC has carried out numerous consultations with Looked After Children/Care Leavers and there are common recurring themes that are pertinent to their mental health (as we define it in this review) as summarised by McAuley & Bunting (in press): Northern Ireland In this report, McAuley & Bunting examine the findings of 18 consultation projects carried out by VOYPIC between 2002-2005. The report will be published later this year and provides in depth suggestions from Looked After Children/Care Leavers in relation to services. • • • • • • In Northern Ireland some work has been carried out with young people in general for example by the Southern Area Health Promotion Consortium (2001). It carried out a study of the emotional and mental health needs of students in Year 11 (predominately 14-15 year olds) in the area and found that the participants were very selective in who they could confide in. Key traits they sought were confidentiality, approachability and being non-judgemental. Although this study was not of the care population, this would probably remain equally or perhaps more important to this group. To feel wanted by their carers; To get placements which meet their needs; Placements where they can stay longer-term; To be kept informed about what is happening with their birth family; To have a long-term social worker with whom they spend time (e.g. on activities) outside of when in crisis; To have someone to talk to about their feelings (p. 95, McAuley & Bunting, in press). A recent study by Santin (2006) demonstrated the significant psychological impact VOYPIC’S Advocacy service has on the development of decision making attributes in care experienced young people. Results indicated that care experienced young people who had been a user of VOYPIC’S Advocacy service had developed significantly greater decision making and critical thinking attitudes compared to other care experienced young people. Further analysis demonstrated that selfconfidence to critically think is a significant psychological predictor of decision-making attitudes. Santin (2006) identifies the components of VOYPIC’S Advocacy practice that empowers young people to become competent decision makers: being listened to, working in partnership with young people, providing an open disclosure policy, providing opportunity to express views and conducting action to problems that young people agree with. Users’ and carer’s views of CAMHS in Northern Ireland were investigated by Teggart & Linden (2005). The area of most dissatisfaction was service presence and responsiveness. The participants wanted to see prompt acceptance of referrals, shorter waiting lists, more flexible working practices (e.g. appointment times and travel distances). There is growing evidence in Northern Ireland regarding the views of Looked After Children. The LACE project for example, highlighted the need for social workers and carers to know more about future courses and careers and teachers to be trained in understanding what it is like to live in care, to assist in this supportive role (McLaughlin, 2002). 10.2 What services seem to work well with Looked After Children/Care Leavers? At a general level, it seems that all young people accessing services would benefit from workers developing a specific style of engaging with them, particularly focused on building good relationships. The RCPCH (2003) review of health care for adolescents cautioned that by failing to develop good relationships with young people (in general), professionals may be setting a future pattern of poor use of services. Throughout the document, they emphasise a need for a different professional style and service for young people, with the possibility of some professionals in larger hospitals The relationship between young people and social workers has also been found to be important. McAuley (in press) notes that young people want to feel valued and respected by their social workers and the chance to establish a relationship with them (by spending time with them, getting to know them and having fun together). If this was not achieved, the young people regarded questions as an intrusion or lack of genuine interest (McAuley, in press). This can be threatened by staff turnover (McAuley, in press). 57 VOICE OF YOUNG PEOPLE IN CARE What young people want developing particular expertise with young people. many of the Looked After Children voluntarily requested a health assessment. They found that some Looked After Children needed to gain their trust first. Their approach was seen as successful because the young person was encouraged to become curious about their health and take control of it. Of the 134 Looked After Children in the target population, 105 were assessed and 103 of the 105 Looked After Children assessed were assessed in their own units (RCHP, 2004). This response rate contrasted favourably with previous findings where the uptake and interest was low with only a quarter of Looked After Children medicals being performed despite this being a formal requirement and not a ‘formal service’ (Butler & Payne, 1997). Armstrong et al. (2000) recommended that parents and professionals wishing to discuss mental health with young people should use vocabulary which mirrors the young person’s own or carefully identify what they mean. Gilligan (2005a) claims that the key to working well with Looked After Children and positively influencing them is to actually enjoy their company. Services which seem to work with Looked After Children/Care Leavers are closely aligned with their specific needs. An interesting national survey of the links between social services and CAMHS in Great Britain (GB) was carried out by Kerfoot et al. (2004). Regarding preferred models of working, 63% of Social Services Department staff wanted a service that was more closely aligned to the needs of Looked After Children but contained within the existing ‘comprehensive’ framework (Kerfoot et al., 2004). There appears to be a particular problem of uptake of CAMH Services either because the young person may be uncertain about their diagnosis and the reason for contact with mental health teams, some even denying their illness (Rea, 1999), or because Looked After Children are unwilling to attend. It may also be that Looked After Children are not encouraged or welcomed as referrals to CAMHS (Kerfoot, 2005). Kerfoot (2005) puts forward several reasons for this. Firstly, Looked After Children have complex problems which may seem intractable. Secondly, they have a complex service history and previously tried interventions may have failed. Finally, Looked After Children have disrupted placement histories and changes in placement and social worker will further disrupt their uptake of services (Kerfoot, 2005). The CAMHS Innovation projects provide a useful starting point for areas of good practice when working with Looked After Children and a useful learning resource is the evaluation carried out by Kurtz & James in 2002. They evaluated all 24 Innovation projects, nine of which focused on the needs of Looked After Children, their parents and carers. These projects offered rapid access to mental health assessment and intervention, support consultation and training for carers, creative approaches to engaging children and consultation and training for social workers, residential workers and other professionals (Kurtz & James, 2002). Findings suggested that there was increased selfawareness among Looked After Children of their strengths and difficulties (Northamptonshire), improvements in engagement with education (Liverpool, Sheffield) and better-planned and more stable placements. All in all, the projects seemed to succeed in increasing involvement with specialist CAMHS, greater inter-agency working and better engagement in education (seen as particularly important for a successful outcome) (Kurtz & James, 2002). An example of good practice to encourage Looked After Children/Care Leavers to take up services comes from a CAMHS team in Nottingham (Frankish & McCrossen, 2005) whereby the CAMHS worker is based in the Leaving and After Care Team for part of the week. Self-referrals are made often via text to the worker and the number of self-referrals are rising. They believe this is happening because the worker is based in the team, she gets to know the young person which breaks down the barriers of entry. Another success factor is that she advocates the use of flexible contact methods, in particular mobile phones, and does not attend a meeting unless the young person has responded to her text. This means that the ‘three times and you are out’ scenario does not arise. Frankish & McCrossen (2005) feel that traditionally there is more of an emphasis on diagnosis rather than the emotional needs of Looked After Children/Care Leavers. Another major consideration from the Innovation projects working with Looked After Children is how best to engage with young people who may well feel there are too many adults in their lives (James, 2002). To achieve engagement, they stress that persistence and flexibility are crucial, and have developed many ways of ensuring this such as using leisure facilities, creative therapies and engaging with carers (James, 2002). The actual building or environment is again an important element which has the capacity to cloud the Looked After Child/Care Leavers’ impression of the services (Callaghan et al., 2003) and flexibility in the location can be important. Kerfoot et al., (2004) found a general perception that CAMHS treatments are largely inaccessible to Looked After Children and Care Leavers: In the Residential Care Health Project (RCHP, 2004), when some Looked After Children were reluctant to take up services, they would make short visits until gradually 10: WHAT YOUNG PEOPLE WANT 58 What young people want What young people want “There were frequent examples cited of failed clinic appointments because young people were resistant to attending ‘psychiatric settings and CAMHS staff often saw youngsters being discharged from Care as ‘poorly motivated’ or ‘uncooperative’. The prevailing view was that the special vulnerability of children with mental health problems who are also being looked after by the local authority needed to be recognised through the provision of special treatment resources. These would be different to conventional CAMHS by being provided in neutral non-health settings where fears of labelling would be reduced” (p. 165, Kerfoot et al., 2004). simply some rethinking or a more sensitive approach by social workers or their managers. Others need investment of time and finance” (p. 98, McAuley & Bunting, in press). The Experts by Experience group in the RMHLDNI Adult Strategic Framework (RMHLDNI, 2005b) stated that: “There is consensus within the group that if only one element could be changed we would wish it to be the prevailing attitudes of those who engage with us…we need all professionals in the mental health field to have specific training in the person-centred approach as part of their overall learning” (p. 208, RMHLDNI, 2005b). Creative approaches appear to be important in overcoming the reluctance of young people to acknowledge these needs. This reluctance casts doubt on their likelihood to take up services (Mount et al., 2004). What can work instead, according to Mount et al. (2004) is to adopt creative approaches to enhance engagement such as mentoring schemes involving Care Leavers as paid volunteers who have been trained to engage other young people at a non-pathologizing, activity-based level. They note that this is already happening with young people being involved as co-researchers in the 24 CAMHS Innovation Projects (Mount et al., 2004). The uptake of CAMHS is similarly an issue in Northern Ireland. A recent review has shown that only 52% of 1316 year olds are happy to re-attend Child and Adolescent Services in Omagh after the initial assessment, and SLT have responded by recommending a focus group to explore ways of attracting adolescents to attend the service (SLT, 2006). Fleming et al. (2005) similarly note the low uptake of statutory medical assessments in Northern Ireland. Again, the environment in which services are offered is important and should be as child friendly as possible and non-stigmatising. To achieve this, the RMHLDNI recommends that they are located on the same site as or as near as possible to other children’s services (RMHLDNI, 2005a). NIAMH similarly raised issues such as user preference for care/treatment outside the psychiatric hospital (NIAMH, 2003). Specific leaving care schemes can also be successful for a number of reasons (Stein, 1997). These include being able to target so-called core needs of Care Leavers (e.g. accommodation, social support, finance and careers) in different ways, being able to engage and involve young people in important decisions in their lives, being able to work with other agencies (e.g. housing providers, benefit agencies, employment and training agencies) to meet the core needs, being able to influence policy at a local level, and finally operating within a management and policy framework with clear objectives. One question which arises from the review is that perhaps Looked After Children/Care Leavers are not offered the type of therapeutic support which could enable them to understand and reconcile their past histories. It may also be that there is a lack of individual work with Looked After Children, in general, and in CAMHS. Systematic Family Therapy approaches predominate at present, but it may be the case that other approaches could be used. Being able to explore their personal history is an important protective factor for Care Leavers and is linked to a positive self concept (Biehal et al., 1995). Gilligan (2005a) also states that a good ingredient for enhancing resilience is “helping the child to have and hold a story about their unfolding life that brings coherence and meaning” (p. 111, Gilligan, 2005a). Northern Ireland Evidence in Northern Ireland seems to raise similar issues. Again, relationships are important. Sensitivity and understanding are key elements to an effective approach with Looked After Children/Care Leavers. McAuley & Bunting (in press) in their summary of VOYPIC’s work state that: “Some of the issues raised (by young people) require 59 VOICE OF YOUNG PEOPLE IN CARE What young people want KEY POINTS FOR CONSIDERATION • What approaches are used? • How flexible are working patterns? • What processes are in place regarding confidentiality? • How welcoming are the physical environments within which Looked After Children/Care Leavers access services? • How accessible are these services in reality? • Could some of the creative approaches outlined in the review be adapted in Northern Ireland? • How much one-to-one work is carried out with Looked After Children/Care Leavers? 10: WHAT YOUNG PEOPLE WANT 60 11 How should services develop in Northern Ireland and what is needed to implement these services? 61 VOICE OF YOUNG PEOPLE IN CARE How should services develop in Northern Ireland and what is needed to implement these services? emerging from this review is that, irrespective of statutory responsibility, the responsibility for promoting the mental health of Looked After Children and Care Leavers is broadly based. The securing of protective factors and reduction of risk factors is not the sole responsibility of Social Services (an argument that has already been made in Investing for Health) or those with day-to-day and statutory responsibility for Looked After Children/Care Leavers, but, it is the responsibility of everyone linked to Looked After Children/Care Leavers. A good example of shared responsibility is found in Communities that Care (1999) which states that: The review has looked at mental health, how it is identified and assessed, actions which are taken to reduce risk factors and promote protective factors, direct services, the legislative and policy context and at young people’s views. Having done so, we are now in the position to look at the future of service development in Northern Ireland, and what is needed to implement these services. The outline of the chapter is as follows: 1. How should services develop in Northern Ireland? • Shared Responsibility - Engaging with carers and staff in the Looked After Child/Care Leaver’s existing network - Joined-up/Inter-professional/ multi-agency working • Development of a range of services based on assessed need 2. • • • • • • “By mobilising whole communities behind an holistic, multi-agency approach, Communities that Care ensures that prevention ceases to be the responsibility of a few, specialist organisations” (p. 1, Communities that Care, 1999). What is needed to implement these services? Providing structure to CAMHS in Northern Ireland Recruitment and Retention of a well-trained work force in Northern Ireland Improved Information and Training Research and Evaluation Adequate Funding A Legislative, Policy and Practice Commitment This is also acknowledged by the DHSSPS: “Health and wellbeing is the responsibility of everyone and not only the health and social services. Individuals, families, communities, the business sector and Government all have a role to play. We must also be more aware of the needs of vulnerable people and accept collective responsibility for their protection and care while promoting their independence and inclusion in society” (p. 12, DHSSPS, 2004b). 11.1 How should services develop in Northern Ireland? In Northern Ireland, the main responsibility for Looked After Children and Care Leavers is held by the DHSSPS. However, a number of other departments also hold responsibility for aspects of children and young people’s lives which have an impact on Looked After Children/Care Leavers. A few examples include the Department of Culture, Arts and Leisure (DCAL) through the unlocking creativity strategy, the Department of Education (DE) through revising the school curriculum to meet educational needs, the Department for Education and Learning (DEL) which provides further and higher education services, careers education and guidance, and vocational training, and the Department of Enterprise, Trade and Investment (DETI) which prepares young people for business and provides legal protection for children and young people at work (OFMDFM, 2003). While there will be some restructuring through the new reforms in public administration, the functions of these bodies will still have to be met. There may be limitations of organising mental health provision for Looked After Children around both social care and medical models, discussed by Teggart (in press) which brings to light earlier work carried out by Street & Davies 10 (2002) . The author notes that Street & Davies conceive the Four-Tier CAMHS Model outlined earlier as organised around needs ‘described in the presence of symptomatology’. He further outlines Street & Davies model based on health/developmental approaches (integrating the theory of childhood problems) and argues that such a model may be essential to address the complex realities of Looked After Children. This model can still exist from within a CAMHS structure (Teggart, in press) which would therefore fit well with the RMHLDNI’s (RMHLDNI, 2005a) conclusion that the Four-Tier Model is appropriate for Northern Ireland. Presumably this would equally apply to adult mental health in the case of Care Leavers whose complex histories need to be understood contextually. It is each service provider’s responsibility to advertise what they do, equally important at the lower Tiers and in adult services. The need for this in CAMHS was summed up well by Mount et al. (2004): 11.1.1 Shared responsibility The main element of the future organisation of services 10 Street, E. & Davies, M. (2002) Constructing child mental health services for looked after children. Adoption & Fostering, 26(4), pp. 65-75. 11: DEVELOPING SERVICES 62 Developing Services Developing Services “A coordinated multidisciplinary interagency response demands CAMHS professionals to take responsibility to educate other agencies about mental health issues and to advertise the services they provide” (p. 379, Mount et al., 2004). managers in the area and the North Glasgow Community Adolescent Mental health team developed a dedicated mental health service for Looked After Children (Van Beinum et al., 2002). There were two key developments in the service, the change from a ten-bed unit to smaller units for at most four young people and an ‘Open Door’ project providing a wide range of services to young people as well as training and specific support for frontline workers. This enabled frontline care staff and managers (who were recognised as having ‘informal expertise’) to work more effectively with young people. An independent evaluation by the Scottish Health Feedback for Greater Glasgow Health Board was positive. Staff were more confident and were able to work through their own anxieties rather than acting them out. They were encouraged to come up with insights into why the child was acting in a particular way (Van Beinum et al., 2002). This should be a welcome message because it reduces the sense of one party being overwhelmed with responsibility. Daniel et al. (1999) admitted that they had mixed success in designing a system to map resilience but further work was possible in the area. They note that social workers should not feel overwhelmed with the responsibility for this but that the aim is to locate a network of people capable of addressing the different aspects. There are two sides to sharing responsibility which we discuss here: the way in which there is joined working with carers and staff in the child’s existing network and the degree to which there is multi-agency working. The second is the Residential Care Health Project (RCHP, 2004), which found that in their supportive role to practitioners in residential care, consultations were requested because staff were having problems dealing with behaviour. Instead of staff feeling overwhelmed by this, they were encouraged to discuss the young person’s history and try to find an explanation. Normally one consultation was enough to come to a conclusion. Engaging with carers and staff in the child’s existing network The value of involving carers and staff to improve the mental health of Looked After Children has been demonstrated. A number of the CAMHS Innovation projects have, therefore, taken steps to ensure that services engage with the networks of adults around Looked After Children (James, 2002). Richardson & Joughin also support this work: “[Challenging behaviour] may place adult carers under severe pressure. We can think of this as an attempt by a child or children to test out whether these adults are any more reliable and consistent than those they have previously experienced; we can also think of this behaviour as an attempt to communicate to other people what it has been like for the child in the past” (p. 5, Richardson & Joughin, 2000). Similarly, work in England has some interesting developments. One example is in Lincolnshire where dedicated CAMHS support was directly provided to adults who care for Looked After Children (Prince, 2002). This support was provided both to carers in residential and foster care. Each children’s home benefited from a weekly visit from a CAMHS specialist nurse. Staff used this service in various ways ranging from training sessions, nurses taking part in staff meetings, discussions regarding the behaviour and management needs of particular Looked After Children or the nurses helping staff to decide on appropriate referral to specialist Tier 3 CAMHS. Foster care, which was the predominant type of care in Lincolnshire at the time, benefited from an additional scheme because the 250 carers were scattered across a large rural population. Two specialist community mental health workers were appointed within two CAMHS clinical bases. They supported all foster carers in the area through a telephone advice line service available every Thursday as well as visits to carers at home or discussions with carers at CAMHS offices (Prince, 2002). The author concludes that: Much work has been done in Scotland and it would be useful to outline two examples whereby these principles can be put into practice. The first is a pilot project in East Dunbartonshire to implement the ‘Looking After Children in Scotland’ materials and system of care planning that underpinned them. This system aimed to provide care which resembled more the care experienced by young people growing up at home in their families. Residential childcare “CAMHS support to the adults who care for looked after children 24 hours a day, 7 days a week is proving to be very important, not only in improving placement stability, but in ensuring that the mental health needs of children in public care are identified at the earliest opportunity, and that referral of LAC to Tier 3 CAMHS for specialist assessment and treatment is an effective and appropriate process” (p. 11, Prince, 2002). “It is possible to support the network around the child by means of consultation, offering an understanding of the problem and strategies for management, so that the carers and professionals work together consistently to alleviate the difficulties” (p. 9, Richardson & Joughin, 2000). Richardson & Joughin (2000) call for an understanding of the child’s circumstances: 63 VOICE OF YOUNG PEOPLE IN CARE Developing Services The importance and value of joined-up, inter-professional and multi-agency working to meet the mental health needs of Looked After Children is well documented in the research and policy literature. When it works well, links between Social Services and CAMHS, for example, can result in good knowledge transfer with Social Services staff remarking on the skills and knowledge gained from regular co-working and consultation with CAMHS (Kerfoot et al., 2004). There is also a need for a common language whereby professionals understand how to manage problems rather than being confused by jargon (Callaghan et al., 2003) Another area of good practice is a model of specialist psychological support to foster carers (Golding, 2004). It allows them to consult with a specific project team including a clinical or educational psychologist. Results show that carers change their perceptions of the Looked After Child following the consultation and find this useful. They usually perceive the Looked After Child as having more severe problems following the consultation. However, they caution that collaborative discussion can be hindered by the perception that the psychologist is more expert (Golding, 2004). This kind of collaboration is important given findings that foster carers are a particularly isolated and stressed group and can feel that they deal with the Looked After Child every day but information is withheld from them which would help with the situation (Callaghan et al., 2003) Nevertheless, Richardson & Lelliott (2003) pointed to the lack of ‘joined-up government’ whereby targets set for one agency do not apply to another. They also note the lack of cohesion among front-line workers who are unaware of the targets their Trust or authority are trying to meet which can result in resistance to changing practice, something they hoped the ‘National Service Framework for Children, Young People and Maternity Services’ (DH & DfES, 2004) would assist with. A final example is the Leicestershire Partnership Trust’s young people’s team which has a primary mental health worker who states that 70% of her work is providing consultation with foster carers, residential staff, link workers and social workers. The worker believes that by helping the foster carer for example to understand the issues around the child, this will not only help with the child in question but the training and experience will result in the carer being more equipped the next time (Hopkins, 2002). Joint working between education and social services could be particularly important in the future. Steps have been taken in the UK through the Guidance on the Education of Children and Young People in Public Care (DfEE & DH, 2000) which recommended that schools should identify and ensure that a ‘designated teacher’ is in place in each school to act as an advocate for Looked After Children. Fletcher-Campbell et al. (2003) examined the role of the school in providing support for Looked After Children and found that most designated teachers engaged in multi-professional dialogue, some finding it easier than others. One area of potential concern voiced earlier by Fletcher-Campbell (2003) related to continuity whereby at 16 years responsibility for the Looked After Child switched to the Leaving Care Team. Northern Ireland This need to engage with the networks around the child has been recognised in the RMHLDNI: “Clinical aspects of Looked After Children (LAC) should include the liaison with and consultation to the network surrounding the child, comprehensive assessment of need, intervention with the child and carers, supervision and training, audit, research and evaluation” (p. 56, RMHLDNI, 2005a). Another important area of joint working is between CAMHS and schools, examined by Pettitt (2003) in England with a view to providing areas of improvement. Key advantages of joint working included the ability to access children (not specifically Looked After Children) who would not normally be reached, to identify children’s problems earlier, overall improvements in children’s happiness and well-being, increased awareness and learning between health and education staff and CAMHS workers highlighted that they received more appropriate referrals. Disadvantages however, included the fact that joint working was time-consuming, they encountered management difficulties, duplication of work due to lack of effective coordination, difficulties in sharing information between the different agencies and also being inundated with referrals. Supporting carers, particularly in their understanding of the child, may also serve to enhance placement stability, as McAuley & Trew (2000) demonstrate: “How the foster carers perceive the child is much more likely to be related to whether the placement continues or not as most placements conclude at the request of the foster carers” (p. 103, McAuley & Trew, 2000). Although the attachment of CAMHS professionals to Children’s homes similar to models in England or Scotland would be a positive development, one thing to bear in mind is that a much higher percentage of the Northern Ireland workforce in residential care are professionally qualified. One shining example of good multi-disciplinary working is the Residential Care Health Project (RCHP, 2004) which essentially linked together Looked After Children in residential care with existing services in order to meet their Joined-up/Inter-professional/multi-agency working 11: DEVELOPING SERVICES 64 Developing Services Developing Services needs. A key element is that new services were not necessarily created; rather that existing ones were redirected. The project team made links with many agencies and where health initiatives were successfully underway, did not duplicate effort. area will need to engage in discussion about their differences, with a view to developing shared accounts of the young person’s needs and negotiation of the most appropriate paradigm for interventions” (p. 14, RMHLDNI, 2005a). Northern Ireland A recommendation for the development of specialist CAMHS in the review by SLT is to bring multi-disciplinary staffing levels in line with the Royal College of Psychiatry guidelines, particularly regarding the appointment of Primary Mental Health Care Workers (SLT, 2006). They further note that deliberate self-harm necessitates a speedy response with a mutually agreed protocol between CAMHS, accident and emergency departments and paediatric services (SLT, 2006). From the review, and in particular the policy overview, it appears that the needs of Looked After Children/Care Leavers have been recognised within a range of policy documents issued by government departments. The question remains, however, regarding how much linkage and cross-working occurs. In 2002, the Clinical Psychology Speciality Advisory Committee (SAC) issued a consultation document to the DHSSPS which examined services to meet the psychological and mental health needs of Looked After Children in Northern Ireland (Clinical Psychology SAC, 2002). This noted the need for a specific mental health service for Looked After Children and outlined that such a service would require partnership and sustained collaboration from the main stakeholders including service users, frontline carers, education services, social and health care services managers, child and adolescent services and voluntary sector agencies (Clinical Psychology SAC, 2002). 11.1.2 Development of a range of services based on assessed need A range of services need to be developed across the CAMHS Tiers (McAuley, 2004) and O’Rawe (2003) cautions that this needs to be a balanced development to avoid the creation of service bottle-necks since Tiers are not discrete entities. O’Rawe (2003) suggests closer and more effective connections between practice and the supportive resources available from children’s natural networks and environment. Future services will benefit from a number of new builds and developments. One development in CAMHS will include the rebuild of inpatient adolescent provision as well as regional specialist units for social/emotional/psychological provision. There may be room for progression in Northern Ireland of more joined-up working with voluntary agencies. The RMHLDNI acknowledges the pioneering work in the broad CAMHS field by voluntary organisations. It listed examples of good practice including Belfast Central Mission, Barnardos, Contact Youth, New Life, NI Association of Mental Health, NSPCC, Opportunity Youth, Extern (Turning Point), STEER, Threshold and VOYPIC. The review notes however that funding can prevent long-term planning of services and there can be problems of communication so that service users are not always aware of what is available to them (RMHLDNI, 2005a). In a study by McCrystal & Fleming (1999) there was evidence that limited partnerships had developed at the time of writing in 1999 between the voluntary and statutory sectors for the provision of services for children in need following the introduction of the Children (NI) Order. Since this was in the early stages of implementation, we should hope that more partnerships have been developed and enhanced. Similarly, assessments of need are required, on which to base services (O’Rawe, 2003): “The ambivalence towards providing a comprehensive CAMHS is perhaps most apparent in the regional lack of monitoring data, particularly with regard to needs assessment. This must be addressed as a matter of priority” (p. 7, O’Rawe, 2003). The consultative document for the RMHLDNI also cautions that the number of inpatient places should be based on a comprehensive, multi-agency needs assessment taking into account the known prevalence and incidence of mental health problems and local demographics (RMHLDNI, 2005a). On a more positive note, McTernan (2003) outlines that among the key priorities in Children’s Services Plans are Looked After Children, Care Leavers and Child and Adolescent Mental Health. He sees a progression in planning: There is also scope for cross-working with education. The RMHLDNI also recommends that the Department of Education and DHSSPS should set up an interdepartmental group and that training for educational practitioners should address young people’s mental health needs (RMHLDNI, 2005a). The Review cautions that: “We are moving away from planning on the basis of activity analysis and historical patterns of service delivery (in other words, ‘what did we do last year?’ and we will tweak it a bit) to an emphasis on the assessment of need” (p. 202, McTernan, 2003). “Practitioners both within teams and across each local 65 VOICE OF YOUNG PEOPLE IN CARE Developing Services He outlines the needs-led planning work the Western Area Children and Young People’s Committee has carried out to create a database which he says uses language understood across community, professional, cultural and organisational boundaries (McTernan, 2003). 11.2 Further elements which emerge from the consultative document by the RMHLDNI include the lack of development of the link worker concept, lack of strategic or operational planning in a phased manner, the need for CAMH Services to be addressed across health, social services, education and youth justice, the need for the development of a managed clinical network (MCN) through CAMH Services in Northern Ireland facilitated by a regional development worker (RMHLDNI, 2005a). It appears that these things will be key issues in the future. What is needed to implement these services? 11.2.1 Providing structure to CAMHS in Northern Ireland The Review of Public Administration will undoubtedly have implications for CAMHS provision, possibly in the opportunity to consolidate services which have been dispersed up until now. “The goal of CAMHS is to promote mental health and treat mental health problems amongst children and adolescents and in so doing, in collaboration with the full spectrum of professionals both within and beyond the wider CAMHS, to keep children and their families together, to support parents in strengthening their families whilst helping their children to overcome their difficulties and supporting them at school, and to keep children and young people out of care, young offenders and child protection systems. If we are sincere in achieving this goal – we must have a practical and coherent regional CAMH programme controlled by a single accountable body – and adequate resources to fund it” (p. 31, O’Rawe, 2003). 11.2.2. Recruitment and Retention of a welltrained workforce in Northern Ireland There are various levels of crisis in relation to recruitment and retention of foster carers, residential staff, social workers and those working in adolescent mental health in Northern Ireland. The decision to cease fostering may happen for a number of reasons, but a particularly worrying one is if foster carers are dissatisfied with the relationship with their social worker (Sheldon, 2004). Sheldon notes his earlier work in 2002 whereby carers aspired to being treated as partners in the process of caring for children. He therefore recommended that South and East Belfast Trust moved away from an ad hoc relationship with foster carers to an acknowledgement of them as partners. Management, coordination and accountability in CAMHS appear to be major issues in Northern Ireland and will need to be addressed in the future (O’Rawe, 2003; Gilliland et al., 2005; SLT, 2006; Teggart, in press). O’Rawe (2003) sees a lack of accountability and coordination in NI CAMHS and feels that there is ambivalence towards establishing a comprehensive CAMH Service. Her answer is that “NI CAMHS does not need a structural review or reform – it needs a structure” (p. 13, O’Rawe, 2003) and she suggests this can be done by appointing a dedicated CAMHS manager within each Board. A local review carried out in SLT reiterates the Audit Commission (1999) argument that the management of CAMHS is a key quality indicator and recommends a management structure within their Child and Adolescent Services to include the appointment of a dedicated senior manager (SLT, 2006). To provide integration across the Tiers, Gilliland et al. (2005) note one response by the NHS HAS ‘Together we Stand’ report (1995) for the development of primary mental health workers. Two recommendations by Gilliland et al. to this end include: Regarding the crisis in recruitment of foster carers, the recent call for 350 more foster carers in Northern Ireland (Fostering Network, 2006) will hopefully be met with more success than a previous call in GB. In 2001, a government recruitment campaign in GB coordinated by the National Foster Care Association yielded 1,200 contacts instead of the 7,000 expected (ADSS, 2002). The call in Northern Ireland is prompted by the reality that around 1,400 Looked After Children live with 1,300 foster families on a given day in the area which is 350 short of the number needed (Fostering Network, 2006). Some hope comes from the planned investment of £6m over the next two years which Hain (2006) announced will be aimed at increasing the number of foster carers in Northern Ireland. “Coherent organisational structures with clear managerial arrangements, a robust governance framework and transparent clinical and managerial accountability” and “integrated planning and commissioning processes informed by a regional dimension, facilitating needs assessment and linking service development priorities, implementation strategies and resource base” (p. 60, Gilliland et al., 2005). 11: DEVELOPING SERVICES The development and recruitment of a well-trained workforce in CAMHS will increasingly be an issue for the future (RMHLDNI, 2005a; Gilliland et al., 2005). Gilliland et al. (2005) note the particular training needs of staff at the various Tiers. They believe Tier 1 staff have support and developmental needs which can be difficult to address. Tier 2 staff require specialist consultation and 66 Developing Services Developing Services prompted new calls for training for social workers and foster carers. He backs up this assertion by similar calls from Young Minds, the Fostering Network and the British Association of Social Workers. Stanley et al. (2005) state that there is a particular need for the training of social workers given their pivotal role: support from Tier 3 and the same authors report that “the development of the Tier II system arguably offers a considerable challenge for service providers in the near future” (p. 54, Gilliland et al., 2005). However, this is set against the pressures of long waiting lists at Tier 3 (Gilliland et al., 2005). Some of these early recommendations in the RMHLDNI CAMHS Consultation document are to develop the workforce along the Four Tier Model and in particular to expand the role and complement of primary mental health workers, family therapists, child psychotherapists, speech and language therapists and occupational therapists in CAMH Services in Northern Ireland (RMHLDNI, 2005a). Gilliland et al. (2005) recommend: “As the professional group most likely to be providing substantial intervention to looked after children and their carers, social workers require relevant training in identifying and responding to mental health needs” (p. 239, Stanley et al., 2005). In its consultation with the wider network working with young people, The Scottish Needs Assessment Programme (PHIS, 2003b) found that a lack of training and readily available support were major concerns. A total of 900 replies were received from this network which included social workers, residential child care workers, foster carers, teachers, police, children’s hearing reporters, children’s hearing members, health visitors, general practitioners, school nurses, paediatricians and voluntary sector workers: “A workforce strategy embracing uni-professional and multi-professional training requirements, recruitment, retention and opportunities for innovation in relation to practitioner and management grades. In this regard, the development of Primary Mental Health workers appears to offer particular benefits” (p. 60, Gilliland et al., 2005). There has also been some work to show the particular 11 pressures the Troubles have had on the working life of social workers in Northern Ireland. Campbell & McCrystal (2005) found that high proportions of social work staff (working at the time in, or associated with mental health settings) received minimal agency support and training to be adequately prepared to deal with the ‘Troubles-related’ problems they faced. The main problems encountered by participants were traffic disruption, bombs and sectarian harassment and the authors note that: “The SNAP survey clearly indicates that across the network of people who work with children and young people, many practitioners recognise mental health need amongst young people and are looking for ways to develop their own capacity to make a difference. There is a need for formal learning opportunities which will support that aspiration and lead to enhanced capacity” (p. 18, PHIS, 2003b). The training needs of various stakeholders such as social services staff, foster carers and residential workers, were examined through focus groups by Callaghan et al. (2003). A number of training needs were identified by the participants including understanding trauma and the psychological impact of abuse and neglect, working with Looked After Children with behaviour problems, counselling skills, understanding what mental health is and being able to identify mental health difficulties experienced by Looked After Children. There was also a need to understand how services worked for example through knowing the steps after a referral is made, the interventions available, and how children in therapy could best be supported. “These types of problem are unlikely to have been experienced with such intensity by social workers elsewhere in the UK” (p. 186, Campbell & McCrystal, 2005). 11.2.3 Improved Information & Training The need for information and training on the mental health needs of Looked After Children recurs in the literature (e.g. Valios, 2002; PHIS, 2003b; Callaghan et al., 2003; RCHP, 2004; Martin, 2004; Stanley et al., 2005). Martin (2004) states how the confirmation of mental health needs in the looked after population by the Meltzer et al. studies (2003; 2004a; 2004b) The single most pressing area in which residential staff expressed the need for support in the Residential Care 11 Campbell & McCrystal state that the term the ‘Troubles’ “Has been used to describe the history of violence in the north of Ireland before and after the partition of Ireland in 1921. In the subsequent 80 years Northern Ireland experienced periods of sectarian conflict between Catholics and Protestants, often leading to death and injury. The current Troubles began in the late 1960s and have resulted in over 3,600 deaths and tens of thousands of injuries [Fay et al., 1999]’ (p.188, Campbell & McCrystal, 2005). 67 VOICE OF YOUNG PEOPLE IN CARE Developing Services Health Project was regarding mental health issues (RCHP, 2004). Furthermore, the work highlighted a need for less focus on crisis intervention and more focus on the underlying causes of mental and emotional ill-health in Looked After Children (in residential care) (RCHP, 2004). Those working closely with Looked After Children need to have enough information and be trained to deal with the 12 issues they are presenting with. Street’s 1999 work with residential workers highlights problems for residential carers regarding the quality and quantity of information they receive from different sectors (outlined in p. 335, Kerfoot, 2005). Looked After Children/Care Leavers and professionals need to know about what the issues are and what services are available. Information availability is a key issue in Northern Ireland, linked to the procedures in place in the Trusts. Some work has been undertaken to improve information provision in Northern Ireland. One good example is the Action Mental Health (AMH) MensSana project, established in 2002. The project provides advice and information services for parents and key workers regarding mental health issues and services relating to young people with mental health needs. A recent recommendation has been to develop information provision by designing a CD ROM directory of potential agencies/resources both statutory and non-statutory which work therapeutically with children and young people with mental health needs (SLT, 2006). From this review, it will become clear that such a directory is needed specifically for Looked After Children/Care Leavers for both therapeutic and other relevant services. Another way of ensuring public and professional awareness was put forward by SLT (2006) which was to create a child-friendly and accessible website for their Child and Adolescent Services. The HPANI has also compiled a useful database of interventions and initiatives that are intended to promote mental health in 1999 (HPANI, 1999). Although very few of the initiatives relate directly to Looked After Children/Care Leavers, a number are evidently relevant. These might involve dropin and/or counselling facilities, referral programmes, suicide prevention strategies, or school projects. An update of this publication would prove very useful for the future. Lindsey (2005) notes the development of a child and adolescent workers’ training matrix which was developed through the NSF recommendations: “All community workers in the statutory health, education and social services and voluntary sector who work with children (known as Tier 1) need, amongst other requirements, to acquire the basic skills of communication with children, a grasp of child and family development, knowledge of child protection, of risk and resilience and the promotion of mental health, sensitivity to cultural and ethnic differences, and an awareness of referral pathways for specialist help” (p. 227, Lindsey, 2005). Some training materials have already been developed which have components of, or relate specifically to, mental health. Examples include Hudson et al’s (2003) training materials ‘Learning with Care’ for teachers, social workers and carers involved in the education of Looked After Children in Scotland, Gilligan’s (2001) resource guide ‘Promoting Reslience’ for working with Looked After Children, and Young Minds’ training resource pack on mental health for professionals caring for and working with Looked After Children (Talbot, 2002). McTernan (2003) outlines the database created by the Western Area Children and Young People’s Committee which defines need using existing information from social services, health, probation, police, housing, social security and education. It has pulled together information about the agencies that supply services stating what services they provide and who they target across the statutory, voluntary and community sectors. Importantly, McTernan uses the Hardiker model to show that Looked After Children, although they are at level 4 in this model, are also dependent on access to effective services at the earlier levels (McTernan, 2003). Other examples of training include the RCHP (2004) which provided training on topics including general mental illness, mental health services and how to access them, adolescent development, staff dynamics, and how young people made workers feel. Minnis et al. (2001) also evaluated a training programme for foster carers and the impact this had on Looked After Children (aged from 5 to 16 years). While participants perceived the training as beneficial, there was only a small but not significant effect on their high levels of psychopathology. The authors noted that the group could warrant more intensive interventions. Another useful resource which could be implemented in Northern Ireland is an update of the FOCUS project by the Royal College of Psychiatrists’ Research Unit which brought together a Who’s Who in CAMHS (Joughin et al., 1999). The Northern Ireland Information Provision 12 Street, C. (1999) Providing residential services for children and young people: a multidisciplinary perspective. Aldershot: Ashgate. 11: DEVELOPING SERVICES 68 authors noted that it would be a useful resource for new CAMHS managers, professionals who liase with staff in the field, trainees and students and parents of children likely to use services. The document outlined information on the background, training and key responsibilities of professionals who work in the field. This included clinical child psychologists, educational psychologists, mental health nurses in CAMHS, child and adolescent psychiatrists, child psychotherapists, social workers, family therapists, speech and language therapists, occupational therapists, art therapists, drama therapists, music therapists, other professionals (specifically paediatricians, general practitioners, health visitors, counsellors, juvenile probation services, school nurses and teachers) and voluntary organisations (Joughin et al., 1999). Developing Services Developing Services (McMaster, 2004). However, they sought more collaboration with training providers to address these highly specialised demands and believed specialist input was needed at a number of different levels. These ranged from advice and consultation for staff, through to directly being involved with young people and if necessary with admission to a psychiatric inpatient unit (McMaster, 2004). McMaster (2004) recommends that mental health issues are included in the Training Framework for all staff within regional care centres. SLT also highlight a need for specific training to those working in their Child and Adolescent service to enable them to respond comprehensively to the needs of children and young people. They recommend this should include training in behavioural therapies, cognitive-behavioural therapies, family therapy, individual psychodynamic psychotherapy and group therapy (SLT, 2006). The need for training It is vital that those who are at the first point of contact for Looked After Children/Care Leavers are well informed and supported in knowing how to address the issues they present with (AMH, 2005). The focus of the MensSana project carried out by Action Mental Health (AMH) was on the needs of the key contacts of young people aged 16-25 years in the general population. These contacts included specifically parents or guardians and relevant professionals. One of the recommendations was that young people’s key contacts require: A commitment to training Any training can be benefited by using Looked After Children/Care Leavers in the design of the material. The Northern Health and Social Services Board (NHSSB), for example, used direct consultation with such young people to help prepare, plan, design, deliver and evaluate training for residential child care workers (Green, 2001). Wilson et al. (2005) also note significant changes in the Northern Ireland ASW (Approved Social Worker) course whereby users and carers are more involved in direct teaching (which has been positively evaluated) and the new curriculum includes, among other things, the mental health needs of children and the interrelationship between child and parental mental health (Wilson et al., 2005). VOYPIC provides input to the BSW (Bachelor of Social Work) degree at QUB (in relation to Looked After Children), as well as input to the Social Work Department in the University of Ulster (on developing good practice guidelines for service user involvement in social work training). Similarly, the LACE (Looked After Children in Education) research outlined earlier has been implemented by Include Youth, Save the Children, the DHSSPS and Department of Education. It has produced training materials for social work staff, teachers and young people through the core curriculum in schools (VOYPIC, 2004). ‘Regular training and the provision of information to enhance their knowledge of mental health issues and services and develop the skills to support young people who are experiencing mental health problems’ (p. 96, AMH, 2005). In the case of Looked After Children, it appears that staff and carers need to be adequately trained to work with their ever-complex problems and challenging behaviour. Sinclair (2005) notes that training of foster care should be realistic and allow for additional ongoing training in handling stressful placements. Kilkelly et al. (2004) also show that challenging behaviour necessitates training and support, particularly in residential settings. The need for training in complex behaviours is particularly apparent in the regional care centres outlined in McMaster’s (2004) study. Staff acknowledged this and some suggested a ‘grow your own’ approach to training social workers whereby employees would be seconded in to train and return to the centre when qualified. It was noted that this had already been successful with a psychologist in Lakewood. Unanimously, social work staff in the study agreed that social work training does not adequately equip staff for the demands of residential settings. A programme of internal training has already begun in the centres incorporating drug awareness, counselling skills, mental health awareness and interventions skills One note of caution is that consulting service users should not be tokenistic or an afterthought. The Experts by experience group in the RMHLDNI Adult Strategic plan felt that they were ‘brought in at a late stage to validate or respond to agreements already in train” rather than being central to the review from the outset (p. 207, RMHLDNI, 2005b). Crucially, those who come into contact with Looked After Children/Care Leavers with mental health problems are not always trained in mental health e.g. GPs and other 69 VOICE OF YOUNG PEOPLE IN CARE Developing Services health professionals (RCPCH, 2003). However, to share responsibility for the mental health of Looked After Children and Care Leavers, more training is needed for all those working with these young people. The RMHLDNI suggests that undergraduate courses in disciplines such as occupational therapy, speech therapy, family therapy, play therapy, art therapy, drama therapy should include awareness and foundation training in child and adolescent mental health (RMHLDNI, 2005a). children and young people as an area of practice they needed in their refresher training (Wilson et al., 2005). Some developments in the review and regulation of social work are worth mentioning here. The Central Council for Education and Training in Social Work (CCETSW) was set up in 1971 with the aim of regulating a common social work training qualification for the first time replacing a plethora of other awarding bodies. Its duties were then taken over by the Northern Ireland Social Care Council (NISCC) from 1st October 2001. This council not only registers and regulates the workforce and draws up codes of practice but also has responsibility for developing, promoting and regulating education and training (DHSSPS, 2003a). Another relevant organisation is the Social Care Institute for Excellence, an independent ‘not for profit’ organisation to review and determine what works well both in social work and in social care practice (DHSSPS, 2003a). Links between training and education There is a need for the development and strengthening of links between academic institutions and operational services (RMHLDNI, 2005a). A more developed career path in line with the developments in CAMHS provision would also enhance recruitment and this is directly linked to the creation of academic posts (RMHLDNI, 2005a). To do this, an academic department of child psychiatry was seen as a priority in this consultative document. 11.2.4 Research and Evaluation Although the review has been able to access pockets of evidence in Northern Ireland to inform services to meet the mental health needs of Looked After Children/Care Leavers, Teggart (in press) notes that research in general on the needs of this group has only developed over the last two decades. Richardson & Lelliott (2003) state that there has been little research about this group of vulnerable young people and attribute this to a number of factors. There are difficulties in reaching this hard-to-research group due to numerous placements, the conflicting use of terminology between sectors, poor systems of data collection and the complexity of problems experienced by Looked After Children thus making evaluations of mental health difficult. Therefore, there is still a strong need for research into this vulnerable group. Kilkelly et al. (2004) note that recent research shows encouraging findings that higher levels of staff qualifications and morale in residential care staff have been found in Northern Ireland compared to England. The DHSSPS (2003a) also recognised that the ‘Hughes 6 recommendation’ to improve the status of residential work specifically in relation to the calibre of workers was adhered to particularly well in Northern Ireland. It recognises that there have been advancements in education and training: “Since the 1990s there has been a recognition of the need for investment in training for the whole social care workforce with a particular emphasis on residential child care staff and foster carers” (p. 185, DHSSPS, 2003a). Current educational provision for social work in Northern Ireland does involve some input regarding mental health and Looked After Children. Regarding training on the mental health needs of Looked After Children, McAuley & Young (2006) state that: The need for longitudinal studies to inform policy and practice has been suggested (e.g. Koprowska & Stein, 2000; Teggart, in press) although some work has been done in this area in Northern Ireland (e.g. Monteith & Cousins, 2003; McAuley, 2004). However, there is still a need to know how many Looked After Children are referred to CAMHS, go on to enter AMH Services or suffer major mental health disorders later in life (Koprowska & Stein, 2000) at a regional level. Future service planning will also need to consider Richardson’s (2002) suggestions to account for differences in gender, minority ethnic groups and different faith groups. The latter would seem to be potentially more relevant to Northern Ireland. “Given that many newly qualified social workers are working with looked after children, there would also be a strong argument for its inclusion in qualifying social work training. Identifications of need is a crucial starting point for accessing services for these children” (pp. 99-100, McAuley & Young, 2006). This message is clearly stated in a recent study by Wilson et al. (2005) on Approved Social Work training in Northern Ireland which highlighted a need for improved training. They found that 43% of Approved Social Workers were dissatisfied or very dissatisfied with the training they received regarding the mental health needs of children. The Approved Social Workers outlined 11: DEVELOPING SERVICES Another area already gaining momentum, where there is need for further research is in ways to promote resilience and coping skills among Looked After Children/Care Leavers (Gilligan, 2000; Richardson 2002; Richardson & 70 Developing Services Developing Services project will serve as a first step to inform this assessment. However, further research is needed to detail the prevalence of the needs in this group. The Meltzer et al. (2003; 2004a; 2004b) studies have helped establish an information base on the type and prevalence of mental health problems of Looked After Children in England, Scotland and Wales respectively, but this has yet to be done in Northern Ireland. However, Teggart (in press) points out that many studies have focused on the presence of symptomatology and diagnosable disorder rather embracing a wider definition of mental health (the NHS HAS (1995) definition as outlined earlier in the overview of mental health) so we should bear this in mind when commissioning needs assessments. The RMHLDNI also calls for a systematic and comprehensive assessment of mental health needs in the general population, both in its Strategic Framework for Adult Mental Health Services (RMHLDNI, 2005b) and in its CAMHS consultation report (RMHLDNI, 2005a) to aid the planning of services. Lelliott, 2003). This would foster a new understanding to inform new and creative interventions or the more appropriate application of conventional ones. There has been relatively little research on high achievers (Martin & Jackson, 2002) despite the potential to transfer the understanding of why some children experience good outcomes in the face of adversity to help wider numbers of children (Gilligan, 2000). Importantly, Gilligan notes that it is that part of resilience which is due to social experience and how it is processed that is susceptible to influence (Gilligan, 2000). He highlights the potential of enhancing school experience and spare time activities in particular because they can be neglected and may further be more susceptible to professional influence than home life (Gilligan, 2000). A greater focus on assessment and evaluation by users and carers is also critical to ensure effective provision: “The SNAP survey found that few of the NHS specialist mental health services were involved in any service research. It was also reported that few were involving young people or parents in formal evaluation of their experience of these services. These are matters for early attention” (p. 24, PHIS, 2003b). In Northern Ireland, there is a need for more CAMHS specific research (SLT, 2006). Recent small-scale studies have indicated that satisfaction with CAMH services when accessed is reasonably positive (RMHLDNI, 2005a; SLT, 2006). However, more research is needed in this area, particularly since 90% of the comments in the RMHLDNI expressed a negative view or experience of some aspect of CAMHS. Common criticisms centred on waiting times and absence of specialist services (RMHLDNI, 2005a). The review also called for more consultation with carer groups. Such work has been initiated with VOYPIC’s Caspar project and AMH MensSana (AMH, 2005). There appears also to be a need for more research on the value and outcomes of different treatments and therapeutic approaches (Richardson, 2002). Northern Ireland Many of the above areas for further research are equally applicable to Northern Ireland although there are also a number of specific areas requiring more research and evaluation. Two recommendations by McAuley et al. (2006) are relevant here: the need for substantial investment in research into effectiveness of social care interventions; and the need to build stronger links between research, policy and practice. This is summed up well in their concluding remarks: Echoing Richardson’s (2002) call for more research on therapeutic skills, there is a need in Northern Ireland for such information. We have not in this review looked at the range of therapeutic services available in Northern Ireland, although McAuley (2004) did highlight a serious concern regarding the lack of available appropriate therapeutic services for the more troubled Looked After Children in her study who had been subjected to extreme forms of abuse and neglect prior to coming into care. “Clearly, evidence-based policy and practice needs to be underpinned by a body of knowledge generated from rigorous research. To obtain this, substantial investment in programmes of research into effectiveness is required. Building stronger links between research, policy and practice should also ensure that the evidence base leads to the commissioning of services for children and families which really do make a difference to enhancing the wellbeing of vulnerable children and young people and improving their outcomes” (p. 331, McAuley et al., 2006). There is a need for more studies of Care Leavers in Northern Ireland, which should be helped by the establishment of the Research and Information Group (R&I Group) in November 2005 relating specifically to leaving care, (R&I Group, 2006). The group will ensure that the needs of Care Leavers will be in the forefront in the future and the twin goals of the R&I group are: “To ensure that the necessary range of different types and levels of research and information are identified and shared to promote and monitor best practice and good outcomes during the 3 year implementation period [of the New Children (Leaving Care) NI Act First and foremost, there is a need for a comprehensive regional assessment of the mental health needs of Looked After Children and Care Leavers. VOYPIC’s Caspar 71 VOICE OF YOUNG PEOPLE IN CARE Developing Services “To promote recognition of the importance of research and information to all those involved in implementation, across sectors and levels i.e., individual young people, frontline staff, operational management, Trust level equivalent management, Board level equivalent management, Departmental level policy makers and planners” (R&I Group, 2006). interventions, a lack of systematic evaluations of interventions in a rigorous way: thereby pointing to an inconclusive evidence base and although a number of studies involved user views, these same studies lacked objective or standardised outcome measures. Among other observations were a lack of longitudinal evaluations and, at times, a lack of theoretical basis. The present review has shown that research needs to incorporate the perspective of young people, echoing earlier concerns (Stanley, 2002; Berridge, 2005), although we have found that this perspective is not often sought. A great deal of understanding is still needed regarding how young people view their lives and what they think services need to provide. The Caspar project seeks to bridge a number of gaps highlighted in this review to gain an understanding of young people’s needs as they see them. It will also examine their coping mechanisms and gain an idea of how services can be improved through areas such as training and support. Finally, and importantly, research needs to be grounded in a sense of realism, summed up well in the following quote by O’Rawe (2003): “Researchers and policy makers have traditionally been quite good at telling professionals throughout the health, social services and education fields explicitly and implicitly what needs to be done with, and on behalf of the young person with mental health needs, and to a lesser extent why, but it is not so clear that they received so much guidance in terms of how to do that is expected of them…The question of how arises both in the context of techniques required to deliver on certain expectations or guidance, secondly the cumulative time demands of doing all that needs to be done and in addition is the need for realism in the face of bright ideas for already overburdened practitioners to implement” (pp. 18-19, O’Rawe, 2003). Research is important, but the sharing of research is equally important. Research that is user-orientated both in its planning and implementation has received interest (NISSC, 2002). The Northern Ireland Social Care Council (NISSC) differentiates between social work and other clinical disciplines in that it does not have a tradition of practitionerbased research. They acknowledge that the more academically prestigious a journal is, the less likely practitioners will be to read it. The solution, they propose, is to make findings more accessible, and secondly practitioners need to read and be exposed to more research (NISCC, 2002). 11.2.5 Adequate Funding Despite the UK benefitting from much more substantial funding than Northern Ireland such as a modernisation fund grant of £85m awarded in 1999 for three years (Richardson, 2002), some suggest additional resources would have been beneficial. Michael Leadbetter, president of the Association of Directors of Social Services (ADSS) stated that: One very important development in the dissemination of research relating to children and young people has been the establishment of the Child Care Research Forum (CCRF) set up by the QUB Institute of Child Care Research in Belfast. The forum acts as a vehicle for the sharing of information on research relating to child care policy, practice and research and is supported by the R&D Office. The forum formally launched the Online Research Bank (ORB) Children’s database in December 2005 through ARK (the Northern Ireland Social and Political Archive) (www.ark.ac.uk/orb/child). The database is sponsored by the Children and Young People’s Unit in the Office of the First Minister and Deputy First Minister. This is an important instrument to use regarding research in Northern Ireland. A similar UK-wide Youth Research Forum was officially launched on 1st February 2006. Another mental health research Network for the UK is also now in place for largescale studies (www.mhrn.info). Initiatives like these encourage wider dissemination of research findings. “Many believe that, had the 1989 Children Act been implemented with additional resources, future generations of children may have been kept out of the care system” (foreword, ADSS, 2002). This does not inspire hope in Northern Ireland where specialist mental health services, particularly CAMHS, are seriously under-funded. O’Rawe (2003) states that the present practice of short-term, project-oriented funding undermines the development of capacity and limits the ability to strengthen pilot projects. She sees a need for longer-term funding in order to maintain all the qualified staff it needs to undertake this work (O’Rawe, 2003). A good example of under-funding is evident in SLT (2006) whereby despite the fact that SLT spends more per head of population on mental health than any other Trust in Northern Ireland, only 3.7% of the total mental health budget in 2004/2005 was allocated to specialist CAMHS. This is even lower than earlier reported figures in England and Wales of 5% (Audit Commission, 1999 cited in SLT, 2006). McAuley et al. (2006) outline a number of lessons which can be learned from evidence they compiled between the UK and USA. In the UK, in particular, the authors note a lack of research on the effectiveness of core child11: DEVELOPING SERVICES 72 Developing Services Developing Services safeguard that empowers these young people to make their own decisions, develop their own strategies, define their own agenda and speak for themselves” (p.8, Hain, 2006). In general, mental health services do not benefit from comparable levels of funding as the rest of the UK, the need for which was outlined by NIAMH (2003). This seems particularly urgent given the aforementioned higher levels of estimated need in Northern Ireland, the economic and social costs of mental illness and the evidence of need for Looked After Children/Care Leavers. This situation reflects the lack of expenditure on childcare services in general which is just half of the English figure per head of the under 18 population (NHSSC, 2003). Services for Care Leavers are similarly under-funded and the new Leaving Care Legislation is being implemented amidst a lack of monetary backing. This is particularly worrying as outlined in the following quote by Broad (2005): VOYPIC welcomes Mr. Hain’s focus on advocacy and mentoring as the only independent advocacy service solely for care experienced children and young people in Northern Ireland at present. As such, VOYPIC has been campaigning for the provision of mainstream advocacy services for the last four years in line with the principle of parity underlying policy and practice between the UK and Northern Ireland. This has been based on the Government’s Quality Protects programme and 13 recommendations following the Waterhouse Inquiry . One further element of this funding package which is relevant is that it will strengthen CAMHS provision through providing £0.5m in 2006/7 and £1.0m in 2007/8 for the establishment of 2-3 Child and Adolescent Crisis Response Teams in Northern Ireland, and aims to address the issue of inappropriate placements in adult mental health wards through 1.6m (of which £1.2m is recurrent) to the provision of adolescent inpatient facilities (Hain, 2006). ”Based on the evidence available to date, this author has serious reservations about the extent to which the health and well being needs are placed sufficiently high enough on wider social inclusion funding agendas compared with the social inclusion rhetorical agendas to make the differences required within the timescale demanded” (p. 135, Broad, 2005). Urgent investment is needed in both CAMH and AMH services for Looked After Children/Care Leavers. 11.2.6 A Legislative, Policy and Practice Commitment Recently Peter Hain (Secretary of State) announced a new Children and Young People funding package (as part of the 2006-8 Priorities and Budget process) which, he believes, demonstrates a clear commitment by the government to address the most pressing needs of children and young people (Hain, 2006). The package, in total, will target more than £61 million over the next two years, an element of which will be directly used to provide better services for Looked After Children (Hain, 2006). He states that underpinning this package is greater co-operation between Departments and their agencies. Through the funding, additional educational support will be provided, Care Leavers who are not ready for independence will be able to remain with their former foster carers and an independent advocacy and peer mentoring service for Looked After Children/Care Leavers aged up to 25 years will be set up (Hain, 2006). In summary: A number of developments are currently taking place or due to take place in the near future which should enhance the commitment to improving the mental health of Looked After Children and Care Leavers across legislative, policy and practice boundaries. Crucially, the Review of Mental Health and Learning Disability (NI) will shape future services. The Review is currently taking place (sometimes referred to as the Bamford Review), with the strategic framework for AMH Services already being published in June 2005 and the CAMHS report released for consultation in December 2005. The review’s draft CAMHS vision is informed by a number of principles. These include that: • Children should have access to a comprehensive array of services; • These should be individualised (taking in a holistic view of the context of their lives and be develop mentally appropriate); • Operate within the least restrictive and most normative environment clinically possible; • Be family focused encouraging the family/ surrogate family to participate as a full partner in relation to services; • Be organised by case management or similar mechanisms; • Support early identification and intervention “This package of measures will improve the stability and continuity of care for the young people, empower carers to engage competently with the education system, reduce the social exclusion of looked-after children, improve educational outcomes and levels of school attendance and contribute to better long term outcomes in terms of employment, health and wellbeing. Importantly there will be an independent 13 The New Labour Government initiated a ‘Quality Protects Programme’ in an attempt to improve and monitor service delivery from Government agencies. See also TSO (2000) Learning the Lessons, The Government’s Response to Lost in Care: The Report of the Tribunal of Inquiry into the Abuse of Children in Care in the Former County Council Areas of Gwynedd and Clwyd Since 1974, Cm 4776, June 2000 and Child & Community Care Directorate and Social Services Inspectorate (2001), The Waterhouse Inquiry Recommendations: A Northern Ireland Response, April 2001. 73 VOICE OF YOUNG PEOPLE IN CARE Developing Services • • • for mental health needs; Guarantee a smooth transition into the adult system when they reach the age for adult services; Have the skills to recognise and respect the values, beliefs, customs and language of the diverse population of Northern Ireland; Be an inclusive service irrespective of physical, mental or developmental ability (Source: pp. 11-12, RMHLDNI, 2005a). but consideration needs to be given to how standards and packages are to be implemented at a local level within the worker’s perceptions of what is important for their practice (Watson, 2003). He recognises from his study that: “[Staff] may not have the power to create, but they undoubtedly have the power to resist change that does not fit into their experience of what would constitute a quality service” (p. 76, Watson, 2003). Another influential development should be the Children and Young People’s Unit of the OFMDFM 2006 Strategy for Children and Young People in Northern Ireland, soon to be released. The Draft Strategy was put forward for consultation from November 2004 to February 2005 and the final strategy is due out in 2006. It is hoped that the strategy will put the rights of children and young people at the heart of policy development. It will set out a common vision with specific targets and outcomes over a ten-year period and will act as Northern Ireland’s implementation plan for the UNCRC. NICCY will have a key role in the independent monitoring of the strategy. The Strategy will pay particular attention to young people who are vulnerable to social exclusion (OFMDFM, 2003). A Mental Health Strategy for Looked After Children/Care Leavers The need for a strategy to meet the mental health needs of Looked After Children and Care Leavers has been recommended before this review, (Clinical Psychology Speciality Advisory Committee, 2002; RMHLDNI, 2005a). We hope, however, that this review and the future strategic recommendations from the next stage of the Caspar Project will bring this need to the fore. Such a strategy would assist in the development of tailored, equitable services for this population (Teggart & Menary, 2005) something which has been clearly demonstrated in this review. The DHSSPS is also developing a Strategic Framework for Children, Young People and Families. The Strategic Framework Steering Group held its first meeting in May 2005 and agreed, among other things, that it would be aligned to the overarching OFMDFM strategy for Children and Young People. The strategy aims to set aspirational, achievable and realistic targets and actions for the next 10 years for children’s services and will also consider services to Looked After Children and CAMHS generally. KEY POINTS FOR CONSIDERATION Other relevant strategic developments include the new DHSSPS Suicide Prevention Strategy just released for consultation (DHSSPS, 2006b), the forthcoming Fostering Strategy by the four Health and Social Services Boards and the Fostering Network in Northern Ireland and the Special Educational Needs and Disability (Northern Ireland) Order 2005. Amidst any legislative and policy development, it is the responsibility of managers to ensure that staff are kept up to date with, and trained in, national and local policies (Richardson, 2002) and some have noted the difference between policy and implementation (Watson, 2003; Vostanis, 2005). Vostanis (2005) states that people can freeze when dealing with mental health and forget that life development can be simple. He proposes that smaller things can make people stronger in a process whereby mental health is not at the top of the pyramid but throughout the whole process. Watson (2003) notes how quality of care standards should not be too abstract to avoid the danger that they will not be operationalised into the day-by-day practices of the workforce. He believes it is not simply a case of keeping staff up to date 11: DEVELOPING SERVICES 74 • A key learning point in Northern Ireland is not so much to create new initiatives but to connect together those already underway and build upon them. • Is there anything specific to Northern Ireland that might make us different? Given our small geographical area, are there ways in which we can pool resources more easily? • To implement these services in the future, consideration needs to be given to the structure of CAMHS, workforce issues, information and training as well as research and evaluation. • A funding and strategic commitment would assist with this progress. 12 Conclusions Implications of the Review 75 VOICE OF YOUNG PEOPLE IN CARE Conclusions - Implications of the Review The research evidence points to the fact that Looked After Children and Care Leavers are likely to be more vulnerable to having mental health problems but in Northern Ireland, there is currently a knowledge gap in this area at a regional level. McAuley & Young recently note that despite governmental recognition that the mental health of children and young people is our shared responsibly, “much needs to be done to turn this rhetoric into a reality” (p. 97, McAuley & Young, 2006). This Literature Review has raised a number of extremely significant and important questions which need to be considered by all those who are involved in the care of young people who are looked after and those who have left the care system: • • • interpreting and responding to the emotional wellbeing/mental health needs of Looked After Children/Care Leavers? The most important and basic question that needs to be asked is what concepts of emotional wellbeing and mental health, as these relate to young people generally and young people who are care experienced specifically, are widely used and accepted? How are these concepts agreed and understood by professionals, foster carers, parents and care experienced young people? How are services and supports developed to take account of the points above, particularly of the vulnerable points in the lives of Looked After Children/Care Leavers? • How central are Looked After Children/Care Leavers to the development of supports and services? • Is there a clear route whereby their views are sought, given value and incorporated into planning and service development? • How are assessments designed and implemented in relation to the emotional well-being/mental health of Looked After Children/Care Leavers? • On what concepts are these based, is it purely diagnostic, needs-based, strengths-based, is it holistic taking into account all aspects of the Looked After Child/Care Leavers’ life and, most importantly, is the young person central to the process? • How well supported are professionals, foster carers and parents in relation to understanding, 12: CONCLUSIONS What training is necessary to enable these groups to understand, interpret and respond to emotional well-being/mental health? • How clear, accessible and useful are current services to Looked After Children/Care Leavers, professionals and foster carers? • How can we develop clear links between services for young people and services for adults and a shared understanding of context/need? • How best can services be structured, coordinated and integrated on a regional level? • Is the emotional well-being/mental health of Looked After Children/Care Leavers a responsibility that is adequately recognised and shared across relevant government departments? A vision for the future would be to do what the Residential Care Health Project (RCHP) has achieved in residential care for all types of care: How is the context of the lives of Looked After Children/Care Leavers understood and taken into account in relation to the discussion of issues relevant to emotional well-being and mental health? • • “We have seen changes - slowly at first, then gathering momentum. A system in which residential care workers were left unsupported to find their way through the health care system with little knowledge where to turn to for help has been supported to flourish and grow. We have seen children with previously unrecognised or neglected health problems seek help for them. The children and carers together are looking at health in a more holistic way in terms of lifestyle and wellbeing. Managers in the various agencies are looking at future developments to help these young people and to support their carers. 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Youth Council for Northern Ireland. 13: REFERENCES 86 ORGANISATION WEBSITE ADDRESS Action Mental Health www.actionmentalhealth.org.uk Ark Social and Political Archive. www.ark.ac.uk Aware Defeat Depression www.aware-ni.org B Aware of Wats N Care (VOYPIC’s Young People Website) www.bawareofwatsncare.co.uk Barnardos www.barnardos.org.uk/northernireland British Association for Adoption and Fostering www.baaf.org.uk CAMHS Mapping www.camhsmapping.org.uk Care and Health www.careandhealth.com Channing-Bete Company www.channing-bete.com ChildLine www.childline.org.uk/NI Children and Young People’s Unit www.allchildrenni.gov.uk Children in Northern Ireland (CINI) www.ci-ni.org.uk ChildrenNow www.childrennow.co.uk Children’s Law Centre www.childrenslawcentre.org Citizen’s Advice Bureau www.citizensadvice.co.uk Community Care www.communitycare.co.uk Community NI www.communityni.org CYC Net www.cyc-net.org Department for Education and Skills (DfES) www.dfes.gov.uk Department for Employment and Learning (DEL) www.delni.gov.uk Department for Social Development NI www.dsdni.gov.uk Department of Culture, Arts and Leisure (DCAL) www.dcalni.gov.uk Department of Health, Social Services and Public Safety (DHSSPS) www.dhsspsni.gov.uk Every Child Matters www.everychildmatters.gov.uk Extern www.extern.org Heads Away Just Say (North and West Belfast HSST) www.heads-away-just-say.com Health Promotion Agency Northern Ireland (HPANI) www.healthpromotionagency.org.uk Include Youth www.includeyouth.org Investing for Health www.investingforhealthni.gov.uk Love for life www.loveforlife.org.uk MensSana Project (Action Mental Health) www.menssanaproject.org.uk Mental Health Foundation www.mentalhealth.org.uk Mental Health Ireland www.mentalhealthireland.ie Mental Health Research Network www.mhrn.info Mind www.mind.org.uk National CAMHS Support Service www.camhs.org.uk 87 Appendix 1 Appendix 1: Useful Websites VOICE OF YOUNG PEOPLE IN CARE Appendix 1: Useful Websites ORGANISATION WEBSITE ADDRESS National Children’s Bureau www.ncb.org.uk National Institute for Health and Clinical Excellence www.nice.org.uk Nexus Institute www.nexusinstitute.org NI Guardian Ad Litem www.nigala.n-i.nhs.uk Northern Ireland Association for Mental Health (NIAMH) www.niamh.co.uk Northern Ireland Commissioner for Children and Young People (NICCY) www.niccy.org Northern Ireland Council for Voluntary Action www.nicva.org Northern Ireland Executive www.nics.gov.uk Nothern Ireland Social Care Council www.nhssc.org NSPCC www.nspcc.org.uk Nuffield Foundation www.nuffieldfoundation.org Office of the First Minister and Deputy First Minister (OFMDFM) www.ofmdfmni.gov.uk Opportunity Youth www.opportunity-youth.org ORB Children’s Database (CCFR) www.ark.ac.uk/orb/child Praxis Care Group www.praxiscaregroup.org.uk PsychNet UK www.psychnet-uk.com Queen’s University Belfast (QUB) www.qub.ac.uk Read the Signs www.readthesigns.org Rethink www.rethink.org Samaritans www.samaritans.org Save the Children www.scf.org.uk Social Care Institute for Excellence (SCIE) www.scie.org.uk Southern Area Health Promotion Department www.goodhealthinfo.org.uk Student Mental Health www.studentmentalhealth.org.uk The Education Network www.ten.info The Open University www.open.ac.uk University of Ulster (UU) www.ulster.ac.uk Voice of Young People in Care (VOYPIC) www.voypic.org Wellnet www.wellnet-ni.com World Health Organisation www.who.int Young Minds www.youngminds.org.uk Youth Action Northern Ireland www.youthaction.org Youth Council for Northern Ireland (YCNI) www.ycni.org Youth Justice Agency www.youthjusticeagencyni.gov.uk APPENDIX 1: USEFUL WEBSITES 88 Appendix 2 Appendix 2: Useful Journals Adoption & Fostering Ambulatory Child Health Archives of Disease in Childhood British Journal of Psychiatry British Journal of Social Work British Medical Journal Child & Family Social Work Child Abuse and Neglect Child and Adolescent Mental Health Child and Family Social Work Child Care in Practice Child: Care, Health and Development Children and Society Children and Youth Services Review Clinical Child Psychology and Psychiatry Current Opinion in Psychiatry European Journal of Social Work Evaluation and Programme Planning Health, Risk and Society International Journal of Health Care Quality Assurance Irish Journal of Applied Social Studies Journal of Child Psychology and Psychiatry Journal of Health Care Quality Assuranc Journal of Occupational Psychology Journal of Social Work Journal of Social Work Education Psychiatric Bulletin Research on Social Work Practice 89 VOICE OF YOUNG PEOPLE IN CARE Appendix 3: Comparison of Studies COMPARISON OF RESEARCH STUDIES IN LAST TEN YEARS Reference - McCann et al. (1996) Aim To establish prevalence and types of psychiatric disorder among LAC compared to a comparison group of adolescents. Methodology Two phase multi-method design. Firstly Interviews using the Achenbach Child Behaviour Checklist (CBCL) and the youth self report questionnaire. The second phase used the Kiddie Schedule for Affective Disorders and Schizophrenic (K-SADS-P) on high CBCL scorers. Group Looked After Children between 13 and 17 years by Oxfordshire council. Of the 134 adolescents living in foster and residential care, initial interviews were conducted with 88 of them. While 47 were identified as high scorers, 37 proceeded to the next stage (10 refused or were missing). A matched comparison group was also used. Findings An overall weighted prevalence rate of psychiatric disorder was 67% compared to 15% in the comparison group. 57% of those in foster care and 96% of those in residential care had psychiatric disorders. Elevated rates of the following disorders in comparison to the control group were found: • Conduct disorder (28% versus 0%) • Overanxious disorder (26% against 3%) • Major depressive disorder (23% versus 3%) Also a number had multiple difficulties and a significant number were also suffering from severe, potentially treatable disorders that had gone undetected. Reference - Phillips (1997) Aim To examine social workers views on the mental health needs of Looked After Children in foster care. Methodology Semi- structured Questionnaires were completed with each social worker for each child in their care. Group 18 social workers who were allocated to 44 Looked After Children in foster care (21 girls 23 boys, average age 8.3 years). Findings 80% of Looked After Children in foster care needed treatment from a child mental health professional while only 27% received it. Anxiety, conduct disorder and depression were the most frequently reported symptom groups and only 5 of the 44 Looked After Children were found to be asymptomatic. Reference - Butler & Vostanis (1998) Aim To ascertain the characteristics of referrals to a direct access child mental health service for Looked After Children including their mental state findings and diagnosis. Methodology Full history and mental state examination according to Maudsley guidelines, ICD-10 diagnoses were made. Additionally, information was gained from social work notes and workers at the units. Group 32 Looked After Children referred to the service in its first six months (18 male, 14 female). Ages ranged from 10 - 17. Findings 91% (29 of the 32 Looked After Children) had ICD-10 diagnoses, in particular mixed affective conduct disorders. APPENDIX 3: COMPARISON OF STUDIES 90 COMPARISON OF RESEARCH STUDIES IN LAST TEN YEARS Reference - Dimigen et al. (1999) Aim To examine the mental health of some Looked After Children at the time of entering local authority care with a view to planning an early intervention programme. Methodology Two stages. Firstly, health assessments for Looked After Children within six weeks of becoming looked after. Secondly, carers or staff members for each child completed questionnaires using the Devereux scales of mental disorder. Appendix 3 Appendix 3: Comparison of Studies Group 89 Looked After Children attending health assessments in Glasgow were targeted. 70 completed questionnaires were returned (26 in residential units and 44 in foster care). Average age of 9.6 years ranging from 5-12 years. Findings Elevated rates of conduct disorders and depression were found, especially among the Looked After Children in residential care. A significant number were not referred for psychological help despite being found to have a serious psychiatric disorder. Reference - Williams et al. (2001) Aim Comparative controlled study to assess the health needs and provision of health care to Looked After Children of school age in Swansea. Methodology Interviews were conducted with Looked After Children. Carers and parents were also invited to comment at the end of the interviews. Group 142 Looked After Children between 5 and 16 years, in a variety of care placements in Wales. A matched control group (199) in terms of age and gender was used. Findings Significantly more difficulties with interpersonal relationships, more anxieties and worries, and behavioural problems than the controls. 64 of the 142 Looked After Children had, or were expecting, contact with the mental health professional compared to 5 of the controls. Reference - Royal College of Psychiatrists Research Unit (2001) Aim National child and adolescent in-patient study to generate data to inform policy decisions about future investment in, and service planning for, such units. Methodology Multi-method approach with six linked sub-studies. Group One of the six sub-studies is relevant here. It involved a survey of admissions of young people with mental disorders to general adult psychiatric wards and paediatric wards. The aim was to obtain an indication of unmet need. Findings 12 per cent of children in in-patient services in England and Wales were looked after in local authority accommodation. As the authors point out, this is much higher than the 0.5% of the general population being looked after. 91 VOICE OF YOUNG PEOPLE IN CARE Appendix 3: Comparison of Studies COMPARISON OF RESEARCH STUDIES IN LAST TEN YEARS Reference - Minnis et al. (2001) Aim Intervention study to evaluate the impact of training foster carers on Looked After Children’s emotional and behavioural functioning. Methodology A randomised controlled trial with immediate and nine month follow up. Group 182 Looked After Children in foster care (and their foster families) in 17 Scottish local councils were randomly allocated to standard services alone or standard services plus training (specifically for foster carers on communication and attachment). Findings 60% of Looked After Children had measurable psychopathology at baseline. Reference - Blower et al. (2004) Aim To assess the need for mental health services for Looked After Children. Methodology A combined quantitative (a two stage prevalence study including Psychological screening and psychiatric diagnostic interviews) and qualitative (semi-structured and in-depth interviews and a focus group, local CAMHS audit, case studies) approach was used. Group 48 Looked After Children aged between 7 and 17 years took part in the first stage prevalence study, 22 progressed to the second stage. Data was also obtained from a qualitative study from four sources which involved: • 47 Looked After Children (77%) of the population of Looked After Children) took part in semi-structured individual interviews regarding their ideal source of support, and 46 interviews regarding their roles in significant relationships. • Individual in depth interviews were carried out with 4 boys and one girl. • The local CAMHS audit was carried out for the 27 Looked After Children identified in the psychological screening as having significant mental health problems. • 4 case studies were examined. Findings 56% of sample was suffering from significant psychological morbidity. 44% had a “definite, probable or resolving diagnosis of at least one psychiatric disorder with impaired psychosocial functioning” (p. 117, Blower et al., 2004). The main disorders were substance abuse and conduct disorder. Reference - The Residential Care Health Project (RCHP, 2004). Aim This process was set up to identify and assess problems regarding the long-term health of Looked After Children in Residential Care to work towards sustainable interventions. Methodology Four needs assessments were carried out Group Took place in collaboration with Looked After Children in residential care in Edinburgh, East Lothian and Midlothian. Comprehensive health assessments with 105 (of 134) Looked After Children in residential care (observational study), an initial audit of unit held health records, a needs analysis of primary care, and an audit of training needs amongst residential care staff. Findings 97% of the Looked After Children were found to be experiencing some emotional, behavioural or mental health problem. However, only 13% had mention of mental health problems and only 3% had details of problems in their files. APPENDIX 3: COMPARISON OF STUDIES 92 This report may be downloaded as a PDF document from the VOYPIC website at www.voypic.org We welcome comments and feedback on this publication. This should be sent to: 9-11 BOTANIC AVENUE, BELFAST, BT7 1JG, NORTHERN IRELAND T: 028 9024 4888 F: 028 9024 0679 E: admin@voypic.org W: www.voypic.org www.bawareofwatsncare.co.uk Company limited by guarantee: NI 30526 Registered with the Inland Revenue as a charity X01613/95 © Copyright VOYPIC 2006 All rights reserved. No part of this publication may be reproduced, transmitted, transcribed, stored in a retrieval system, or translated into any language, in any form, by any means, without the prior written permission of VOYPIC. Published by VOYPIC ISBN: 0-9553454-0-5 ISBN: 978-0-9553454-0-1 Cost: £5 Designed by: PaperMouse Design & Advertising, Belfast Tel: +44 (0)28 9064 6981 Web: www.papermouse.net Cover Painting: Looked After Children/Care Leavers who were involved in the Caspar Project