CONTENTS Page 1 Introduction and Summary 3 2 Current Service Delivery – the basis for change 8 3 A Framework for the Future – a community based general practitioner service model for occupational therapy 18 References Annexes A Occupational science: understanding the relationship between occupation, health and well being 35 B The beliefs and values of occupational therapists in the UK 36 C Questions for change 37 PREFACE The development of a UK-wide coherent policy by a professional body is becoming increasingly complex. Scotland has a new Parliament, Wales and Northern Ireland have new Assemblies. Each is taking forward the modernisation of health and social care services in different ways (and differently from England), setting up differing structures to different time scales and defining different priorities during the change process. The four countries have distinct ‘Plans’ for their health services. For example, the National Service Frameworks only apply in England. Legislative provisions for pooling budgets differ and strategies towards the development of the Allied Health Professions are not running in parallel. Against this background, the College’s wish to describe the different legislative environments and policy drivers in this consultation threatened to make the document unduly complex and distracting for the reader. We have therefore adopted a minimalist and generalised approach. Our core purpose is to address the interface that exists between occupational therapy services provided by health and social care agencies, especially for adults with physical illness or disability. That interface exists and needs tackling in each country. This document proposes an approach to a solution, a conceptual model for service delivery to support a seamless approach for clients and organisations. The College recognises that the mechanisms for change will need to be developed within the legislative and policy context of each country. The priority levers described in paragraph 3.10 may be biased towards English policy but we believe that most will have a general, if not particular, application to the objectives of quality occupational therapy services across the UK. The vision is to achieve joint planning of an integrated range of occupational therapy services that will bring an end to confusion and duplication for people who need to use them. How we travel is less important than the determination to achieve that vision. The term occupational therapy services is used to describe the range of treatments, interventions or services provided, or facilitated, by occupational therapy personnel within health or social care. It is not intended to imply a single service management model but recognises that elements of the service will be provided by occupational therapists working in a wide variety of teams and service settings under varying line management arrangements. Similarly, the generic term social care is used in preference to duplicating the terms personal social services and social work services. 1 ACKNOWLEDGEMENT The College is indebted to Mr Bert Massie CBE, Chairman of the Disability Rights Commission, for his encouragement during the development of this consultation document. The term ‘rehabilitation’ is used throughout the text, primarily because it is well understood that occupational therapists are one of the three main professions (alongside physiotherapy and speech and language therapy) whose core knowledge and skills are applied to the purpose of rehabilitation. Bert has reminded us that occupational therapists (and, by implication, the services within which they operate) need to be equally concerned with habilitation – a concept that recognises that for young people in particular, the process of achieving life goals and aspirations may be very different from those who, in adult life, have lost, or risk losing, living skills and opportunities they may previously have enjoyed 2 A STRATEGY FOR MODERNISING OCCUPATIONAL THERAPY SERVICES IN LOCAL HEALTH AND SOCIAL CARE COMMUNITIES 1 INTRODUCTION AND SUMMARY 1.1 Occupational therapists are employed within the National Health Service, Local Authority social care services, and other sectors throughout the UK. They are educated to work across the spectrum of health and social care; across the fields of physical, mental and social health. They can operate within the medical and social models of disability, as well as taking a particular occupational approach to health. Instead of the breadth of occupational therapists’ understanding and approaches being seen as a strength, the barriers between health and social care have resulted in their dual employment being perceived as a problem, and one that has sat heavily on the shoulders of the profession. Occupational therapy has, in a unique way characterised the health and social care divide – the ‘Berlin Wall’ tackled head on by Frank Dobson when Secretary of State for Health (Dobson 1999). 1.2 The Government is now committed to removing the legislative and organisational barriers that have created this divide. New flexibilities (of lead commissioning, integrated provision and pooled budgets) are paving the way for a whole-system approach that looks afresh at how services can be redesigned to meet better the needs of service users across their experience of illness or disability. The ‘joined up’ agenda is being taken forward through different legislative arrangements by the four UK administrations; whatever the mechanism, the aim of achieving seamless service provision is firmly on the national map. 1.3 Occupational therapists welcome the move to integration. It is a concept that fits with the profession’s holistic philosophy and practitioners see the opportunity to offer something better to their service users. The profession now has the opportunity to step beyond the historical interface issue and modernise its contribution to health and social care services. Many local commissioners and service providers are being pro-active, bringing occupational therapists together to look at how their services can be re-modelled. The temptation may be to ‘stitch together’ existing services, by having shared assessments or shared posts for example. While such innovations are welcome, the College does not believe they go far enough. We believe that the time is right to develop a framework to guide the future strategic and longer-term development of occupational therapy services. 1.4 This consultation document will propose a conceptual approach based on the revised International Classification of Functioning, Disability and Health (ICF-2) (World Health Organisation 2001) set within the Ottawa Charter for Health Promotion (World Health Organisation et al 1986) (see paragraphs 3.1 – 3.3). Occupational therapy is concerned with the everyday activities of life, activity and activity limitation, social participation and life-style restriction as they relate to an individual’s experience, needs and aspirations. The College therefore considers that the ICF fits well with the profession’s philosophy, beliefs and values. It offers a framework for looking at how occupational therapy services might better address the occupational needs of people with a lasting health condition or disability. It also encompasses the vision of health being more than the absence of illness, reflecting the profession’s concern with quality of life in relation to well being. 3 1.5. Our approach is not to seek to re-define occupational therapy – that debate is healthy and will continue within the profession. An introduction to occupational science is given in Annexe A for those with an interest. The strategy focuses on the organisation of statutory service delivery. This means getting occupational therapists with the right knowledge and skills, in the right place, at the right time, delivering services which commissioners and people who need to use services want and value. The proposal is for a community based general practitioner model to ensure an integrated approach that enables services to be developed as a continuum that is focused upon, and responsive to, the needs of service users, their families and carers. 1.6 This document should be read in the context of the increasing demand for occupational therapists and the Government’s recently announced commitment to achieving a significant growth in the numbers of student education and training places in England between now and 2004 (Department of Health 2000). That growth signals the Government’s recognition of the contribution occupational therapists can make towards achieving many of its strategic goals, principally to develop services that promote independence, particularly for older people. The College is committed to ensuring that the profession responds positively to this recognition and added investment. Promoting independence is one of the core objectives of occupational therapy and the profession wishes to play its full part in delivering on that agenda. 1.7 What the College sees, for the first time in the UK, is a policy environment that is in tune with the profession’s beliefs and values (Annexe B) in respecting the importance of occupation as the means of achieving personal autonomy and self-fulfilment. This environment can provide even more opportunity to develop academic understanding and to reassert the value of occupation and activity as a route to social inclusion. While our educators, researchers and practitioners take forward that goal, it is critical that future practitioners are equipped with the knowledge and skills to contribute effectively within rapidly changing health and social care economies, in both the public and independent sectors. The College intends therefore that the final version of this strategic framework should guide the future development of occupational therapy pre-registration education, as well as the continuing professional development of current practitioners. 1.8 This document concentrates on services for adults with physical illness or disability where the interface between health and social care has presented the greatest obstacles for occupational therapy, particularly around the management of hospital discharges and the integration of care for people with continuing health and social care needs. The development of community based, integrated services for people with a learning disability or mental health problem has been accelerated by the de-commissioning of long stay institutions. This rapid change has, however, led to some inconsistency in occupational therapy provision for these client groups. There are additional challenges in services for children and young people with disabilities where occupational therapists work in collaboration with colleagues in education. The College recognises that these services have different needs and complexities that cannot be fully addressed in this document. While we believe that the principles and the proposed strategic framework could be generalised and applied broadly across the profession, we will consider what additional action the College should take to support the development of occupational therapy services for these important groups of service users. Readers’ views would be most welcome. 4 The consultation process 1.9 This consultation document is being widely distributed to national policy makers, service commissioners and providers, related professional bodies, organisations representing service users and within the profession itself. The College hopes it will stimulate lively debate. We want to ensure that key stakeholders inform the future direction of the profession. Questions are raised within the document and, to assist responses, these are summarised opposite and in Annexe C. This document can be found on the College’s web site at www.cot.org.uk. The College would appreciate responses and any additional comments by 31 March 2002: Please send replies to Sheelagh Richards Chief Executive 106-114 Borough High Street London SE1 1LB or email jane.martin@cot.co.uk 1.10 The College will consider responses at the Council meeting in April 2002 and publish its own response as soon as possible thereafter. Assuming that there is broad support for our approach, we plan to publish a series of occasional papers focusing on key implementation issues to facilitate ongoing dialogue and development. 5 Questions to Address • Is the College’s overall assessment of the status quo a reasonable representation of service characteristics around the country? • Is this a sound basis for change? • Is beginning with a conceptual model the best way to approach change? • Is ICF-2 an acceptable approach ~ would commissioners and providers be able to use it? • Does setting it in the wider context of the Ottawa Charter strengthen understanding of the health benefits of occupation? • Will it support the breaking down of rigid barriers about health and social care responsi bilities and support the development of a continuum of integrated occupational therapy services? • Are the policy objectives outlined in 3.10 the right ones – are there others we should recognise? • Is there support for restoring the importance of occupation in the lives of service users, and within the core role of occupational therapy practice? • Will commissioners and planners be committed to developing the continuum we propose ~ and is it likely to attract equal interest across health and social care? • Is there support for the strategic development of a new community based (specialist) occupational therapy general practitioner model? • What kind of implementation support would it be most useful for the College to provide? 6 ‘Occupational Therapy promotes and restores health and well-being in people of all ages through using purposeful occupation, as the process or as the ultimate goal. In this context, occupation is the meaningful use of activities, occupations, skills and life roles which enables people to function purposefully in their daily lives’ (College of Occupational Therapists 1994). ‘Occupational therapy is the therapeutic intervention that promotes health by enhancing the individual’s skills, competence and satisfaction in daily occupations … to act on the environment and successfully adapt to its challenges’ (Yerxa et al 1989 p6). ‘Occupational therapy ~ A profession whose members collaborate with clients, who may be individuals, groups, agencies or organisations, in enabling occupation’ (Canadian Association of Occupational Therapists 1997 p182). ‘Such ideas suggest that occupation is an innate behaviour; that it is an integral aspect of humanness: that it may define humanness; that doing and being have an innate relationship and that occupation has biological as well as social functions. Humans can be described as occupational beings because of this’ (Wilcock 1998b p5). 7 2 CURRENT SERVICE DELIVERY – THE BASIS FOR CHANGE 2.1 This chapter sets out the College’s assessment of the current, albeit changing pattern of occupational therapy services and the extent to which the health and social care divide constrains the delivery of seamless care and the best use of occupational therapy resources. This reflection provides the rationale for change. As indicated in paragraph 1.8, it concentrates upon services for adults with physical illness or disability. The focus of occupational therapy within the NHS 2.2 Within the NHS, the majority of occupational therapy resources have, historically, been located within acute general hospital services or within specialist services (such as services for people with a spinal injury, brain injury, mental ill health or a learning disability for example). Data collected by the Government across the UK on occupational therapy services are severely limited, are not comparable between countries and do little to support analysis of needs or service trends. However, if extrapolated nationally, Korner data in England (Department of Health 2001c) support our belief that: • A major proportion of resources remain locked in acute general hospital services with occupational therapists devoting less time to a steadily rising number of patients. More people are getting a lower level of service; • Growth in referrals from General Practice/primary care has been relatively modest, as has the volume of patients receiving a service in community settings. This is due to the lack of resource transfer to primary care and/or the ease of referral mechanisms. 2.3 The Audit Commission’s study The Way to Go Home (Audit Commission 2000, p66, exhibit 30) supports the profession’s concern that within acute general hospitals, too often the role of the occupational therapist is limited to discharge facilitation or safe discharge. This is to cope with the pressure on hospital throughput, reduce waiting lists and maximise bed occupancy levels. Whilst we have no doubt that this role is important and cost-effective when properly organised (Sutton 1998), the Audit Commission study supports our belief that too many patients, especially older people, are discharged before their potential for rehabilitation has been optimised. Since the introduction of the internal market in health care, the focus has been on quantity, not quality – on outputs rather than outcomes. Occupational therapists have witnessed the steady decline in hospital based rehabilitation and been unwilling (and often powerless) partners in people returning home with preventable levels of dysfunction and dependence. Many rehabilitation units have closed down. Traditional links with employment services to help adults with the potential to return to work (at one time a primary role of occupational therapy services) have diminished and the emphasis has moved to essential activities of daily living – or basic survival in self care. People with an illness or disability have lost out as a consequence of this reductionist model. 8 ‘I talk to occupational therapists and ask where the occupation in the term occupational therapy has gone. OTs have many skills and abilities but they have been shoehorned into adapting buildings and no longer think about how they can help people fulfil their dreams’ (Glasman 1996 p7). ‘Those who are not medically stable may be discharged inappropriately to a setting without clinical support, or they may be transferred to ‘intermediate’ inpatient beds off the main hospital site – such as those in small community hospitals – without either intensive rehabilitation or specialist clinical care’ (Audit Commission 2000 p6). ‘Within acute services, too often the role of the OT is limited to ‘discharge facilitation’ or ‘safe discharge’ (Audit Commission 2000 p80). ‘Some of the wider issues are beyond the direct control of therapists themselves. They require action at other levels … in particular, if independence is to be promoted fully, workforce planning to make good the shortfalls will need to begin urgently’ (Audit Commission 2000 p72). 9 2.4 During the late 1980s and early 1990s, these trends were accompanied by an assumption that continued rehabilitation would take place in the community. Unfortunately those services did not exist and were seldom given strategic attention or investment by health authorities. The Commission of Inquiry on Occupational Therapy, chaired by Louis Blom-Cooper (Blom-Cooper 1989) recommended that the College ‘… accelerate the pace of change, already taking place, towards a re-deployment of occupational therapists to work in the community, rather than in hospitals.’ Twelve years later, it is evident that the pressure for hospital productivity has prevented any significant shift of resources. Moreover, the presumption that capacity exists to support such re-deployment is questionable. We are of the view that past workforce planning has failed to plan for, and invest in, the increased numbers of occupational therapists needed to provide additional community based services. The focus of occupational therapy within Local Authority social care 2.5 In part, developments at a community health or primary care level have been influenced by the presence of occupational therapists within Local Authority social services (or social work) departments. Occupational therapists dealing with outpatients or planning the discharge of people from hospital routinely refer those in need of further intervention to their community counterparts. Social services occupational therapists have been unable to provide continued therapy (or active rehabilitation) per se. They are employed by local authorities to enable them to discharge their statutory functions. This is largely to assess for and provide disability equipment and housing adaptations to promote the independence of disabled people living at home. Dealing with those discharged from hospital represents only a small proportion of their work. Local Authorities have not expected occupational therapy personnel to undertake active rehabilitation as this job has been traditionally perceived as the function of the NHS. Although a considerable volume of counselling, advice and support is provided to disabled people and their carers in the course of equipment and housing adaptation provision, the scope and value of this role has not been sufficiently well recognised. 2.6 In short, the work of local authority occupational therapists continues to be dominated by a relentless pressure to respond to requests for assessment for disability equipment and housing adaptation services needed by disabled and older people. The profession is now dealing with around a quarter of all referrals to social services in England and Wales and in some authorities the proportion is as high as 40% (Association of Directors of Social Services et al 2000). 10 ‘Rehabilitation is a complex construct concerned with promoting independence and quality of life. It describes services such as community rehabilitation teams, as well as a care process involving specific interventions. The consumer group is heterogeneous, from children to elderly people, often with complex multiple needs (including mental illness, learning disabilities and sensory impairments) and vulnerable to socio-economic disadvantages such as poor housing and unemployment. Rehabilitation is an empowering process, which promotes social inclusion and social justice. As such, rehabilitation should support the consumers’ abilities, their rights to exercise control and contribute towards the improvement of services’ (Mountain & Ilott 1999 p1). ‘The evidence was that promoting independence often worked best by teamwork across the traditional dividing line between social and health care. This was partly because rehabilitation plays a big part in promoting independence and it typically utilises a mix of social care and health care interventions …’ (Social Services Inspectorate 2001a, p26). ‘the new emphasis on prevention and rehabilitation has led to the creation and development of a range of services with very productive involvement of and partnership with therapists … for some social services occupational therapists this development meant their traditional social services roles expanded significantly’ (Social Services Inspectorate 2001a, p31). ‘Some social services occupational therapists were taking on a new rehabilitation role’ (Social Services Inspectorate 2001a, p33). 11 2.7 Following Ministerial intervention in 1994 on lengthy waiting lists in England and Wales, the numbers waiting for assessment by an occupational therapist were reduced from 116,000 at September 1994 to 69,000 at September 1998. Referrals were also reduced from 706,000 to 621,000 over the same period (Association of Directors of Social Services et al 2000, p2, table A). Although the College recognises that a proportion of potential clients may have had their needs met by referral to alternative services, ‘closing the door’ by tightening service eligibility criteria clouds a proper understanding of the volume of users’ needs within local communities. We acknowledge that an additional number of clients are dealt with by occupational therapists acting as care managers and these may not be counted in the statistics. 2.8 As Mountain concluded in a research review of the outcomes and effectiveness of occupational therapy in social services departments: ‘the comparatively small numbers of occupational therapists working for social services had led to a perception of occupational therapy as a specialist service. The reality is that occupational therapists are involved in mainstream service delivery to older people and people with disabilities living in the community, who represent a significant proportion of the local authority social services client base’ (Mountain 2000, summary 2.1). Despite this perception, local authorities have been slow to use the wider specialist skills of occupational therapists within the broader range of family services, or in meeting the psycho-social needs of those with mental ill health, for example (Local Government Management Board 1995, p51, table 23). 2.9 In addition, there is little evidence that efforts to manage disability equipment and housing adaptation services more efficiently have released occupational therapists’ time to give a broader service to their existing client base. As the Social Services Inspectorate (SSI) concluded in a report about independent living arrangements for younger disabled people: ‘Occupational therapists were recognised as central to the notion of promoting rehabilitation and independence, since outside occupational therapy teams there was little emphasis on rehabilitation. However, the potential contribution of occupational therapy was often limited by organisational arrangements and by ambivalence and ambiguity about whether occupational therapists were primarily assessors or providers’ (Fruin In Social Services Inspectorate 2000, 3.31) This finding indicates that the barriers are not only organisational but also attitudinal, something that is echoed in the Joint Future Group report (2000). 12 Developments in occupational therapy within community health and primary care 2.10 While occupational therapists within the social care sector have made a very significant contribution to community care for disabled and older people, their presence has, paradoxically, clouded the extent to which rehabilitation and continuing health needs have gone unmet. There has until recent times been little incentive to develop occupational therapy within community health settings – there has been a belief that ‘the job is done’ by those in the social care sector. The College has therefore welcomed the growth of innovative, effective services within primary care and community health settings (Walker et al 1999). This has inevitably brought the interface into sharper relief; for example, when community health and Local Authority based occupational therapists are asked to intervene in the same household, or where health based occupational therapists are unable to access disability equipment without a referral and second assessment being conducted by social care services. Figure 1 The policy and practice void in occupational therapy services THE NHS SOCIAL SERVICES The policy and practice void in occupational therapy services Treatment, rehabilitation and health promotion in Primary Care and Community Health settings 2.11 The picture depicted above is changing. In England, General Practice fund holding began to drive the change, with GPs seeking a wider range of interventions for those with lasting conditions and complex needs within their practice populations. Additional initiatives have been stimulated by Winter Pressures, Partnership and Prevention grant funding (though some have had difficulty securing recurring funding). Better Services for Vulnerable People (Department of Health 1997), with its focus on joint investment plans, multidisciplinary assessment and rehabilitation, promoted the development of a variety of community based teams. Examples of these innovations were published in A Directory of Developments in Occupational Therapy, Physiotherapy and Speech and Language Therapy (NHS Executive et al 1998) and, more recently, in The Way to Go Home (Audit Commission 2000). 13 2.12 The drive for change is consolidated by the integration agenda, set out for England in the Health Act 1999 (Great Britain 1999). Rehabilitation will be the single identifying feature of the Government’s investment in the development of a range of intermediate care services (Department of Health 2001b). The College believes that this predicates a longer-term strategic reorientation of rehabilitation services, primarily based in the community, and potentially with a wider preventive focus than has previously been the case. Joint health and social care development is being taken forward in Scotland through the Joint Future initiative (Joint Future Group 2000), although this does not yet extend to wider rehabilitation services. In Wales, the Service Development Group has prepared guidance on Intermediate Care in Wales and this will be issued in the near future (National Assembly for Wales 2001). 2.13 Given the central role which occupational therapists play in the provision of community equipment and assistive technology services, the Government’s requirement that the NHS and Local Authorities in England achieve single, integrated services by 2004 is particularly welcome (Department of Health 2001a). Single unified services will require agencies to address the issue of assessment, duplication, overlaps and gaps. This will be a helpful feature towards the integration of occupational therapy service delivery. The College welcomes the Joint Future initiative that is pursuing the closer collaboration of equipment and adaptation services in Scotland. A loss of focus on the importance and breadth of occupation 2.14 Reference has been made to the reductionist model that has narrowed the focus of occupational therapy to personal activities of daily living or self-care. This has often been to the exclusion of disabled and older people’s wider occupational needs. In relation to working age adults, Welfare to Work for Disabled People was included in the White Paper Modernising Social Services (Secretary of State for Health 1998) and as Objective 3 in the 1998 National Priorities Guidance: ‘to ensure that people of working age who have been assessed as requiring community care services are provided with these services in ways which take account of and as far as possible maximise their and their carer’s capacity to take up, remain in or return to employment’ (Social Services Inspectorate 2001b, C.1). Quotations from the report of the Social Services Inspectorate’s inspection of Welfare to Work for Disabled People Making it Work substantiate our concerns (Social Services Inspectorate 2001b). Local Councils were required by April 2001 to produce, with other agencies, a local Joint Investment Plan for Welfare to Work for Disabled People. Given occupational therapists’ knowledge in this area, it would have been reasonable to expect that local Councils would have sought to use the expertise they employ. Sadly, there is little evidence in the report that Welfare to Work has been grasped for what it is, namely an opportunity to restore to mainstream practice consideration of disabled people’s occupational needs by improving their opportunities for employment. 14 ‘Little help with employment was available to disabled people receiving rehabilitative health services as a result of chronic illness or accidents. Such people are likely to have an employment history, but assessment of and responses to their employment needs were neglected areas’ (Social Services Inspectorate 2001b, p6). ‘Councils and other key agencies had a long way to go to achieve a co-ordinated approach to helping disabled people with their employment needs’ (Social Services Inspectorate 2001b, p15). ‘The forms used to record assessments generally included some reference to employment and leisure. However, the assessments we saw completed gave insufficient emphasis to these areas of people’s lives. This was not surprising if the staff completing assessments did not see supporting employment as an integral part of the council’s role and could not easily access the resources necessary to do so’ (Social Services Inspectorate 2001b, p21). ‘Most councils had not seen supporting disabled people in employment as a high priority’ (Social Services Inspectorate 2001b, p20). ‘There is a strong and rapidly developing network of occupational therapy and other discipline specific specialists in work rehabilitation in the United Kingdom … the strengths of occupational therapy lie in assisting those with more intractable or complex problems to identify their work needs, and helping them to achieve their goals, taking residual effects of illness and disability into account … occupational therapy work practice in Canada, America, Australia and Scandinavia demonstrates the potential of occupational therapy within the work place’ (Mountain & Carman 2001 p4). 15 2.15 In the next chapter we propose using the new International Classification of Functioning, Disability and Health (ICF) (World Health Organisation 2001) as the framework for the new model for service delivery. However, we would summarise this historical reflection with a depiction of the International Classification of Impairments, Disabilities and Handicaps (ICIDH) and occupational therapy. This, we believe, may also apply to health and social care more generally. Figure 2 The main domains of occupational therapy service delivery The primary focus of occupational therapy services in the NHS Impairment Disability Handicap The primary focus of occupational therapy services in community social care • The principal role of occupational therapy personnel within the NHS is to treat illness, injury or impairment. If they and others do that effectively, intervention has the potential to avoid or reduce disability and consequent social handicap; • Similarly, if disability is treated or managed effectively, there is potential to reduce the degree of disability, or to avoid or reduce handicap experienced by the individual; • However, within the current reductionist model of rehabilitation, occupational therapists are required to concentrate on the impairment and a limited dimension of disability. There is little time to focus on longer term outcomes that impact on social handicap; • In social care services, occupational therapists intervene at the level of disability. They are not expected or enabled to treat impairment and they have limited time to concern themselves with the wider dimensions of social handicap. While they recognise the need for therapeutic intervention, they have by and large been unable to access NHS or hospital based treatment services (which have not been developed to meet this out-patient demand) or additional rehabilitation services within the community; 16 ICF-2 approved as the successor of International Classification of Impairment, Disability and Handicap (ICIDH) ‘Being complementary to the International Classification of Diseases (ICD-2), ICF will hopefully open new aspects of great value for rehabilitation. ICIDH has undoubtedly had a great impact from the conceptual point of view on research, teaching and clinical work. ICF will hopefully have similar and even greater conceptual importance, especially as it uses not only negative but also positive terms and includes environmental factors, an aspect that was lacking in ICIDH. It makes it possible to describe environmental facilitators as well as barriers’ (Grimby & Smedby 2001). Brunel University uses the International Classification of Functioning, Disability and Health as an educational framework The ICF is used as a framework in the first year module ‘Occupational Performance’ to develop students’ understanding of how pathology and impairments affect activity and participation in everyday life. The ICF is presented as a model of disability with the four dimensions providing a framework for assessment and intervention in chosen case scenarios. Chapters from activity, participation and contextual factor dimensions presented in the classification hypertext have determined acquisition of practical skills and knowledge in seminars and lectures. Students are encouraged to access the WHO ICF website as a resource for case-based seminar work and written assignments. In the third year, students are re-introduced to the ICF where greater discussion of the four domains has facilitated understanding of evidence-based practice within occupational therapy and has also provided ideas for undergraduate research projects. (McIntyre 2001) 17 • The historical divide between health and social care prevents services taking a whole system approach towards the service user’s needs in the context of his/her social roles and responsibilities and the lifestyle restrictions experienced. The NHS has not adequately concerned itself with the consequences of avoidable disability and social handicap for the individual and his/her carers, or for the social care sector. There has been little incentive to measure the outcomes of service provision in terms of impact on the wider aspects of disablement and handicap. Questions ~ • Is the College’s overall assessment of the status quo a reasonable representation of service characteristics around the country? • Is this a sound basis for change? 3 A FRAMEWORK FOR THE FUTURE A new approach 3.1 The International Classification of Impairments, Disabilities and Handicaps: a manual of classification relating to the consequences of disease (ICIDH) (World Health Organisation 1980), devised ‘to capture the variety of experiences of people living with health conditions,’ is being superseded by the International classification of Functioning, Disability and Health (ICF-2) (World Health Organisation 2001). This is a bio-psycho-social model that emphases the universal nature of disablement. It has moved away from the consequences of disease, taking a neutral stand with regard to aetiology. The new classification introduces the concept that humans function at the body, personal and social levels within their individual, personal and environmental context. The ICF-2 considers functioning and disability to be the dynamic interaction between health conditions and contextual factors, namely personal and environmental factors. Figure 3 Current understanding of interactions between the components of the International Classification of Functioning, Disability and Health (ICF-2) Health Condition (disorder or disease) Body functions and structures Activity Environmental Factors Participation Personal Factors World Health Organisation (2001) 18 3.2 The ICF-2 is not a consequential or hierarchical model but one with three distinct and parallel dimensions of body functions and structures, activity and participation. There is also the fourth dimension of contextual factors where interaction between dimensions is complex and by directional. The terms body functions and structures, activities and participation replace impairment, disability and handicap. They also extend their meanings to include positive experiences. For further detail, please see Box A. BOX A Definitions from the International Classification of Functioning, Disability and Health (World Health Organisation 2001) • ICF-2 provides a description of situations with regard to human functioning and its restrictions and serves as a framework to organise this information. It provides a structure to present the information in a meaningful, interrelated and easily accessible way. • Definition of components in the context of health: Body functions are the physiological functions of body systems (including psychological functions) Body structures are anatomical parts of the body such as organs, limbs and their components Impairments are problems in body function or structure such as a significant deviation or loss Activity is the execution of a task or action by an individual Participation is involvement in a life situation Activity limitations are difficulties an individual may have in executing activities Participation restrictions are problems an individual may experience in involvement in life situations Environmental factors make up the physical, social environment in which people live and conduct their lives. Note: Personal factors are the particular background of an individual’s life and living, and are composed of features of the individual that are not part of a health condition or health states. They are not classified in ICF but are included in the ICF’s figure to show their contribution. • ICF organises information in two parts; (1) Functioning and Disability, and (2) Contextual Factors • Functioning refers to all body functions, activities and participation as an umbrella term; similarly disability serves as an umbrella term for impairments, activity limitations or participation restrictions. ICF is useful for a broad spectrum of different applications, for example social security, evaluation in managed health care, and population surveys at local, national and international levels. It offers a conceptual framework for information that is applicable to personal health care, including prevention, health promotion, and the improvement of participation by removing or mitigating societal hindrances and encouraging the provision of social supports and facilitators . It is also useful for the study of health care systems, in terms of both evaluation and policy formulation. (WHO 2001 A:4) 19 3.3 Since occupational therapy is concerned with activity (occupation) and activity limitation and with participation (or life-style restriction) as it relates to an individual’s personal experience and aspirations, the College welcomes this new model of ICF. However, when set within the wider context of the Ottawa Charter for Health Promotion (see Box B), as in Figure 4, it offers a broader way for looking at how occupational therapy might better address the health and social needs of local populations. By adopting this conceptual framework, services should be able to embrace a more positive approach, in tune with the disability movement and the emerging emphasis on strengthening community action in public health such as with Health Action Zones. 3.4 ICF-2 is based on an integration of the opposing medical and social models. It is person-centred and is therefore complementary to the occupational therapy profession’s commitment to place clients and their carers at the centre of practice. The use of such a framework can enhance clinical reasoning skills and communication with professional colleagues and, at the same time, encourage a more flexible approach to client-centred practice (Sumsion 2000). Figure 4 ICF-2 set within the Ottawa Charter for Health Promotion (Wilcock 2001) CLIENT CENTRED HEALTH FOCUS ACTION DOMAIN OF CONCERN Health Condition (disorder or disease) DEVELOP PERSONAL SKILLS CREATE SUPPORTIVE ENVIRONMENTS STRENGTHEN COMMUNITY ACTION Body functions and structures Activity Environmental Factors Participation ENABLE Personal Factors MEDIATE REORIENT HEALTH SERVICES BUILD HEALTHY PUBLIC POLICY Understanding of Health through Occupation Occupationally Just Public Policy ADVOCATE Occupational Well Being (throughout population) 20 BOX B Occupational therapy and health promotion The Ottawa Charter for Health Promotion (World Health Organisation et al 1986) is a central document in world health policy. It was the result of the combined wisdom of 212 delegates from 38 countries who met in Ottawa at the first WHO Health Promotion Conference in 1986. The Charter can be seen as developing the WHO definition and ideas of "Health For All" embodied in the Declaration of Alma Ata (World Health Organisation 1978). It also informed the Health of the Nation initiatives propounded by the UK Government. The Charter stresses that the favoured roles of all health professionals should be those of ‘advocate’, ‘enabler’ and ‘mediator’, one of which, in particular, that of ‘enabling occupation’ has taken a strong hold in occupational therapy’s ideology and language. Whilst in the past the profession has largely been concerned with enabling those who have ‘medically defined’ handicap, enabling meaningful and satisfying occupation for those who are socially and occupationally disadvantaged is an important direction for the future. The Charter recognises as pre-requisites for health – peace, shelter, education, food, income, a stable eco-system, sustainable resources, and social justice and equity. Many of these are dependent on, or manifest by, people’s occupations – occupation encompassing all manner of ‘doing’. That raises the important notion of occupational justice which, in a broad sense, is about the just and equitable distribution of power, resources and opportunity so that all people are able to meet the needs of their unique occupational natures, and so experience health and well being. In that regard, the Ottawa Charter stresses that ‘health cannot be separated from other goals’, that ‘changing patterns of life, work and leisure have a significant impact on health’, and that ‘to reach a state of complete physical, mental and social well-being, an individual or group must be able to identify and to realise aspirations, to satisfy needs and to change or cope with the environment’. As occupation is the fundamental mechanism by which people ‘realise aspirations, satisfy needs and cope with the environment’, this provides a clear mandate for the further development of services to that end. The Charter advocates five major strategies as listed in figure 4. They are that all health professionals need to: Build healthy public policy Create supportive environments Strengthen community action Develop personal skills, and Reorient health services towards the pursuit of health When considering some of the possible occupational therapy initiatives within those categories, directions for the future are apparent. To build healthy public policy, for example, ‘health giving occupation’ is a health promotion message for everyone that has been largely overlooked, and, in line with the Charter and the Health of the Nation, the role of occupational therapy must move increasingly towards a community health promotion direction and beyond its responsibility for providing clinical and curative services. (Wilcock 1998a), (Department of National Health and Welfare 1986) 21 3.5 To develop the application of this model, we could suggest that it be used to achieve a better clarity between the function and purpose of occupational therapy in the health and social care sectors. But that approach has limitations. There is no confusion about specialist spheres of practice but clarity is needed in the common ground described earlier. The majority of people who use occupational therapy services have ongoing or enduring conditions, whether of physical or psychological causation. This means that they have changing needs for health and /or social care interventions across time. Within community mental health or learning disability services, which have already achieved a better, even if imperfect degree of integration, occupational therapy personnel are able to offer a more comprehensive approach, referring to specialist colleagues when clients need help that is beyond their scope of expertise. 3.6 The value of offering the same broad approach to older people and those with physical disabilities leads the College to promote the development of a new model of community based practice, delivered by occupational therapists able to provide a core range of both health and social care interventions. The College believes that this is an objective which health service providers, with their local authority partners, should seek to achieve. As services are integrated for individual client groups, for example within intermediate care for older people, they will at the very least wish to question the continued validity of more than one occupational therapist intervening with one family unless there is good reason to do so. A strategic approach to integration 3.7 The College is therefore proposing that the ICF-2, set within the Ottawa Charter for Health Promotion, be used as a framework to guide joint service reviews which should consider: • the importance of activity in people’s lives and how recognition of its value can be restored within health and social care practice; • how services focus on enabling occupation, addressing activity limitations and life-style restrictions as experienced by service users and their families; • how occupational therapy services should be jointly planned to achieve an integrated continuum across health and social care. The continuum should embrace prevention and health promotion (Clark et al 1997) as well as health and social care service delivery. 3.8 Integration does not mean that all services have to come within one employing agency. Imaginative solutions to multi-funded, integrated services exist within areas of health and education that can be used as examples of good practice (Godbolt et al1997). Such solutions may require detailed service level agreements; however, this level of detail is for the future. What we are proposing here is an approach that brings coherence to planning – a platform to think differently about how a valuable resource is used to best effect. 22 3.9 Occupational therapists work as members of teams within hospitals, primary health care, social care, education and employment services. The multiprofessional and inter-disciplinary teams include a range of professions such as doctors, nurses, and other allied and health professionals; teachers and psychologists; social workers and home care staff; and housing, environmental health and technical staff. All will have dealings with occupational therapy colleagues and a wider set of players in the independent and voluntary sector, including representatives and groups of people who use services. Occupational therapists are forging new partnerships with colleagues in the health promotion area, as some are already doing in Health Action Zones. These working relationships are vital to effective service provision. Our proposals are not intended to cut across the continued need for good team and inter-agency working. What our proposal for the development of a new model of community based practice should do is: • enable occupational therapists, in whatever team or service, to review, and achieve clarity about, their place in the continuum of service provision, and • collaborate with colleagues to ensure that the boundaries that necessarily exist between services do not stand in the way of giving clients a person-centred approach to their life-style needs and aspirations. Questions • Is beginning with a conceptual model the best way to approach change? • Is ICF-2 an acceptable approach ~ would commissioners and providers be able to use it? • Does the wider context of the Ottawa Charter strengthen understanding of the health benefits of occupation? • Will it support the breaking down of barriers about health and social care responsibilities and support the development of a continuum of integrated occupational therapy services? 23 The context of change 3.10 If the adoption of the model of community based practice receives support, the College will be advised by its members and others on the nature of implementation guidance. For the moment, we would propose that commissioners, service managers and providers start with an analysis of population needs, epidemiological trends and current and future service demands. The need for change should be set in the context of how occupational therapy personnel can be enabled to respond to current national and country specific Government policies and priorities, including: • Promoting independence1 - focusing on health and social care needs, thus enabling disabled and older people to maintain, or achieve, the life-styles they desire; • Preventing avoidable or unwanted dependence – providing services that help to prevent avoidable admission to hospital, long term residential or nursing home care, or dependence upon personal and family carers; • Addressing social inclusion - by reasserting the wider occupational needs of disabled and older people (including productivity and leisure); • Reducing waiting lists – by re-focusing services to help prevent unnecessary referrals to secondary care; • Delivering on the objectives and standards in the National Service Frameworks (in England); • Working in partnership with individuals and their carers - as ‘enablers’, adopting the concept of the ‘expert patient’ and giving people information that enables or supports them in managing their own health conditions; • Working collaboratively within teams, and across agencies, and sharing skills to ensure a holistic and integrated approach to meeting people’s needs; • Eliminating duplication that is confusing and exasperating for people who use services; • Supporting the public health and prevention agendas by advocating the importance of occupational balance, including productivity, in healthy life-styles; • Seeking to provide services on an increasingly sound evidence base that focuses on the reduction of activity limitation and life-style restriction; • Supporting value for money and best value regimes by demonstrating (a) the efficiency of occupational therapy interventions, and (b) the value of timely rehabilitation and occupational therapy input as a way of reducing the need for additional care services, or avoidable dependence on long term state benefits; • Promote recruitment and retention by assisting practitioners to play a full role in undergraduate education through placements so that new graduates are well equipped to meet the challenges of the workplace. 1 While using the Government’s policy objective of ‘promoting independence’, the College prefers the concept of ‘inter-dependence’ which recognises that human beings are essentially dependent on each other and that ‘independence’ is a personal construct which should be determined by the individual. 24 Modernising Occupational Therapy Nottingham City Social Services Department reviewed the impact of occupational therapy skills within the framework of assessment and care management and home care teams. The review uncovered potential savings to SSDs through more creative use of then scarce occupational therapy resources. The project began with an occupational therapist assessing the dependency levels of service users who were receiving home care five to seven days a week. Using a standardised dependency index, of those assessed (n=56) just over one half were found to have the potential to be more independent. The review found that: Some people discharged from hospital still had intensive packages many months later suggesting the need for structured reviews andhome care staff were performing tasks for people that they could do themselves, wasting resource and prolonging dependency. During the same project, 21 people were referred for long term placement in residential/nursing home care. Joint visits were made with social work staff and an occupational therapy assessment completed. As a result, 12 people were kept at home, 8 of whom received support. The review of the project concluded that a more creative use of community occupational therapists by social services can lead to more effective and cost efficient community care services and can help to ensure that expensive home care packages and long term placements are only used for people who really need them. The success of this work has led to widespread creation of new occupational therapy posts within the assessment and care management framework and home care teams. It has also led to therapy-led intermediate care services based in residential local authority homes. Providing integrated community rehabilitation in people’s own homes has enabled older people to regain their sense of autonomy as well as their independence, both values at the heart of occupational therapy. (McCloughry 2001) The Joint Occupational Therapy Study The Joint Occupational Therapy Study was grounded in a partnership between East Dunbartonshire Council, Greater Glasgow Primary Care NHS Trust, Strathkelvin LHCC, and North Glasgow University NHS Trust – Stobhill Hospital. The coterminous boundaries of the three agencies coincide with the Strathkelvin area with a population of 72,843. The study included occupational therapists working with adults and older people, excluding mental health and learning disability. The review has enabled the development of a joint proposal for a new way of working, in response to a number of national and local health and social care reports and policy documents emphasising the importance of improved co-ordination of services to suit customer needs. A multi-method review of service delivery by occupational therapists was carried out between January and March 2000. Apart from highlighting the confusion in roles between different agencies and professionals, it also stressed the complex network of professions and organisations that they operate in, and emphasised the need to consider the wider context of integrated health and social care. It also emphasised the lack of knowledge about occupational therapy in general, a gap in rehabilitation provision, the importance of localised access and the need for increased follow-up, and noted that the skills recorded did not seem to vary considerably between the agencies. The length of input was found to relate to three definite time spans: under a week, two weeks to two months, and three months to two years. Having developed a jointly agreed proposal on the basis of this work, the project is now moving in to the implementation stage on a pilot basis and in acknowledgement of the rapidly developing Joint Future agenda. (Buckle 2001) 25 Preparing practitioners to work in a new model of service delivery 3.11 A good body of evidence is emerging from recent initiatives in occupational therapy service delivery about the strategic re-focusing of services, for example into accident and emergency departments to help elderly people who have fallen (Close et al 1999). The College will continue to give priority to enabling members to access and use the evidence base and to be aware of best practice throughout the UK. 3.12 The College considers that the development of a new community based occupational therapy general practitioner model is central to its wish to resolve the problems around the interface between health and social care. We see this as pivotal to an integrated approach that enables services to be developed as a continuum that is focused on, and responsive to, the needs of all service users and their carers. The term general practitioner is not intended to imply a medical model but, rather, to draw a comparison with the GP model where the concept of the ‘specialist generalist’ is well established. 3.13 To summarise, we believe: • The majority of people who require occupational therapy live at home or in supported care, within the community, and the majority have enduring health conditions; • That the profession has a responsibility to attempt to meet their wider occupational needs, to challenge the limited focus on personal activities of daily living and to address the wider aspects of activity and life-style restriction. This means restoring an occupational perspective and its importance to disabled and older people and to the health and well being of citizens; • That changes in health and social care policy, and hospital practice, across the UK (and ‘intermediate care’ in particular in England) will, and should, inevitably lead to a reorientation of rehabilitation services to community settings, and that is where the strategic development of the profession should lie. 3.14 Our perception of this community based, occupational therapy general practitioner model is outlined in figure 5. 26 Figure 5 A community based, general practitioner service model for occupational therapy HEALTH SECTOR SOCIAL CARE SECTOR Other NHS primary / secondary care specialists e.g. CPNs, district nurses, stoma care and continence nurses, psychologists, orthotists, physiotherapists, speech & language therapists, dietitians, chiropodists, dementia services Occupational therapy knowledge and expertise: • consultant or clinical OT specialists e.g. in neurology, mental health, rheumatology, learning disability • specialists in prosthetic and orthotic services • specialists in complex assistive technologies, wheelchairs/seating and environment controls Other social care, housing, employment, education and voluntary sector services and specialists e.g. social workers, sensory services, vocational/employment rehabilitation, home repair agencies, voluntary sector user and carer organisations Occupational therapy knowledge and expertise: • specialists in housing and adaptations • vocational and employment rehabilitation • specialists in disability equipment provision • moving and handling • OTs in voluntary/private sector e.g. palliative care services Planned continuum of occupational therapy services With access and direct referral Care Pathways Needs/Experience of people using Services General Occupational Therapy Practitioner The individual in own home or community setting in health, social care or integrated team or service 27 Essentially the service model proposes that: • A new (specialist) general occupational therapy practitioner should be able to provide immediate rehabilitation/treatment services, a sound range of disability equipment (assistive technologies) and mainstream housing adaptations (such as routine stair lift installations). In other words, such practitioners combine a major element of the existing roles performed by occupational therapists in community health and social care services. They also adopt a health promotion and prevention approach, address occupational and activity restriction in its broadest sense and aim to enable social participation; • Within the planned continuum of occupational therapy services, they are able to access and refer to other health (often hospital) based occupational therapists when they need advice that is beyond their core competence i.e. when service users need the input of a therapist with specialist skills in the treatment and management of the consequences of impairment. For example, experts in seating and postural management, managing oedema in cancer care, splinting in rheumatology, or cognitive function; • Similarly, the general practitioner is able to access and refer to occupational therapy specialist counterparts within the social care sector, such as specialists in complex housing adaptations, those working in vocational rehabilitation services and those in specialist teams for people with sensory impairments or mental health problems – essentially those services that provide bridges to participation. 3.15 The above examples serve to illustrate the parameters of occupational therapy services. It is axiomatic that a community based practitioner will know about and call upon the expertise of colleagues in other professions and other agencies according to the needs of the individual service user. It is also implicit that this practitioner will be able to assume the responsibilities of care management when that is appropriate, particularly in supporting the social inclusion of those with complex and enduring health conditions. Occupational therapists within this model will bring a more holistic contribution to the Government’s planned introduction of a single assessment process. Conclusion 3.16 This proposal to establish a community based, occupational therapy general practitioner model of service delivery will present a considerable challenge to the profession but the College believes it will be welcomed. It needs to be taken together with the proposal that services adopt ICF-2, set within the Ottawa Charter for Health Promotion, as a basis for reviewing their services and working towards integration across health and social care. We appreciate that there will be many questions on ‘where do we go from here’? Services are configured differently around the country. If embarking on integrating their occupational therapy services, they will be starting from diverse points, have a range of imperatives and have potential for change. Staff within both agencies will be loyal to their organisations and have different perspectives on ideal outcomes. Salaries and conditions of service are different which creates significant practical difficulty. The College does not wish to prescribe a precise approach to implementation. We believe that the approach needs to be organic. It needs to be driven by local ownership, in close collaboration with the service user community, in response to a commonly developed view of priorities and taking cognisance of the developing policy framework in each of the four countries. 28 3.17 Occupational therapy services have grown considerably over recent years, outside as well as inside the public sector. The marketplace is widening with the development of vocational rehabilitation services within industry. Occupational therapists are highly valued in the medico-legal industry providing disability cost assessment services. There is more employment within voluntary agencies, the private residential and nursing home sector, the disability equipment industry and housing services. Such developments represent a positive response to meeting the needs of disabled and older people in different ways. The College welcomes them all. In the future, we envisage further developments as occupational therapy personnel embrace the health promotion challenge and consider the occupational needs of people not currently recipients of occupational therapy services. 3.18 The growth of the marketplace does however place an added pressure on the statutory sector’s need to recruit and retain occupational therapists to meet the demand we have referred to in this document. As both health and social services management have been de-layered, it is evident to the College that many occupational therapy services lack strategic direction and effective leadership. There is considerable enthusiasm for integration but a sense of awe about turning the tide of the last thirty years. What we have outlined is a vision and possible approach to integration that may be useful in current negotiations. It is also a guide to the longer term strategic development of occupational therapy services. The model will need strategic commitment from service commissioners, service managers and the profession. It will need clear leadership and dedicated champions at commissioner and provider levels. There will need to be a coherent change management strategy, with resources committed to organisational development and staff training and development. If this Consultation attracts support, the College is committed to playing its part in providing both leadership and practical support. Questions • Are the policy objectives outlined in 3.10 the right ones – are there others we should recognise? • Is there support for restoring the importance of occupation in the lives of service users, and within the core role of occupational therapy practice? • Will commissioners and planners be committed to developing the continuum we propose ~ and is it likely to attract equal interest across health and social care? • Is there support for the strategic development of a new community based, occupational therapy (specialist) general practitioner model? • What kind of implementation support would it be most useful for the College to provide? 29 REFERENCES Association of Directors of Social Services et al (2000) Occupational therapy workload survey 1999: a survey of occupational therapy services in local authority social services departments in England and Wales, covering referrals, cases allocated, waiting lists, prioritisation systems, response times, organisational aspects, workforce planning and actions taken to reduce waiting times and lists. London: Employers’ Organisation Audit Commission (2000) The way to go home: rehabilitation and remedial services for older people. London: Audit Commission Buckle S (2001) E-mail communication on 14th December 2001 from Susan Buckle, Occupational Therapy Advisor, SWSI, to Sheelagh Richards, Chief Executive, College of Occupational Therapists. Blom-Cooper L (1989) Occupational therapy: an emerging profession in health care. London: Duckworth Canadian Association of Occupational Therapists (1997) Enabling occupation. An occupational therapy perspective. Ottawa: CAOT, p182 Clark F et al (1997) Occupational therapy for independent-living older adults: a randomised controlled trial. Journal of the American Medical Association, 287, 1321-1326 Close J et al (1999) Prevention of falls in the elderly trial (PROFET): a randomised controlled trial. Lancet, 353, 93-97 College of Occupational Therapists, Education and Practice Department (1994) Occupational therapy core skills and a conceptual framework for practice: a position statement. London: COT Department of Health (1997) Better services for vulnerable people. (EL(97)62 : CI(97)24). London: DH Department of Health (2000) Meeting the challenge: a strategy for the allied health professions. London: DH Department of Health (2001a) Guide to integrating community equipment services. London: DH Department of Health (2001b) Intermediate care. (HSC 2001/01 : LAC (2001)1). London: DH Department of Health (2001c) Occupational therapy services: summary information for 2000-01, England. London: DH Department of National Health and Welfare (1986) Achieving health for all: a framework for health promotion. (39-102/1986E). Ottawa, ON: Department of National Health and Welfare Dobson F (1999) Hansard, 297 (7 July), Column 642 Glasman D (1996) Circles of support. Therapy Weekly, 22 (29 February), 7 30 Godbolt S, Williamson J and Wilson A (1997) From vision to reality: managing change in the provision of library and information services to nurses, midwives, health visitors and PAMs: a case study of the North Thames experience with the Inner London Consortium. Health Libraries Review, 14(2), 73-95 Great Britain (1999) Health Act 1999. London: Stationery Office Grimby G and Smedby B (2001) ICF Approved as the successor to ICIDH. Journal of Rehabilitation Medicine, 33(5), 193-194 Joint Future Group (2000) Community care: a joint future. Edinburgh: Health Department Local Government Management Board (1995) Occupational therapy workload survey: report. London: LGMB McCloughry H (2001) E-mail communication on 13th December 2001 from Helen McCloughry, Nottingham City Council to Sheelagh Richards, Chief Executive, College of Occupational Therapists McIntyre A (2001) E-mail communication on 30th October 2001 from Anne McIntyre, Senior Lecturer, Brunel University, to Sheelagh Richards, Chief Executive, College of Occupational Therapists Mountain G (2000) Occupational therapy in social services departments: a review of the literature, March 2000. London: College of Occupational Therapists Mountain G and Carman S (2001) Work rehabilitation and occupational therapy: a review of the literature, September 2001. London: College of Occupational Therapists Mountain G and Ilott I (1999) Rehabilitation in primary care settings: overview of the existing evidence base and future needs for research and development. London: College of Occupational Therapists National Assembly for Wales (2001) Improving health in Wales. Health Plan Newsletter, (3, November) NHS Executive et al (1998) A directory of developments in occupational therapy, physiotherapy and speech and language therapy services. A collaborative venture between NHS Executive, The College of Occupational Therapists, The Chartered Society of Physiotherapy, The Royal College of Speech and Language Therapists. London: Department of Health. Secretary of State for Health (1998) Modernising social services: promoting independence, improving protection and raising standards. (Command Paper 4169). London: Stationery Office Social Services Inspectorate (2000) New directions for independent living: inspection of independent living arrangements for younger disabled people by D Fruin. London: Department of Health Social Services Inspectorate (2001a) Improving older people’s services: inspection of social care services for older people. London: Department of Health Social Services Inspectorate (2001b) Making it work: inspection of welfare to work for disabled people by Griffiths G. London: Department of Health 31 Sumsion T (2000) A revised occupational therapy definition of client-centred practice. British Journal of Occupational Therapy, 63(7), 304-309 Sutton S (1998) An acute medical admission unit: is there a place for an occupational therapist? British Journal of Occupational Therapy, 61(1), 2-6 Walker M F et al (1999) Occupational therapy for stroke patients not admitted to hospital: a randomised controlled trial. Lancet, 354, 278-280 Wilcock A A (1998a) An occupational perspective of health. Thorofare, NJ: Slack Wilcock A A (1998b) A theory of occupation and health. In: Creek J (Ed) Occupational Therapy: new perspectives. London: Whurr p5 Wilcock A A (2001) Visual interpretation of concepts within the Ottawa Charter (WHO 1986) and ICF-2 (WHO 2001) World Health Organisation (1978) Primary health care. Report of the international conference on primary health care, Alma Ata, USSR. Geneva: WHO World Health Organisation (1980) International classification of impairments, disabilities and handicaps: a manual of classification relating to the consequences of disease. (ICIDH-1). Geneva: WHO World Health Organisation (2001) International classification of functioning, disability and health. [ICF-2]. Geneva: WHO World Health Organisation, Health and Welfare Canada and Canadian Public Health Association (1986) Ottawa Charter for health promotion. Ottawa, ON: Department of National Health and Welfare Yerxa E J et al (1989) An introduction to occupational science, a foundation for occupational therapy in the 21st century. Occupational Therapy in Health Care, 6(4), 1-18, p6 ANNEXE A College of Occupational Therapists (1999) Vision and Mission statements. Occupational Therapy News, 7(10), 11 Quality Assurance Agency (2001) Subject Benchmark statements: healthcare programmes: occupational therapy. Gloucester: QAA Whiteford G (1997) Occupational deprivation and incarceration. Journal of Occupational Science, 4(3) 126-130 Wilcock A A (2001) Occupation for health. Volume 1: a journey from self health to prescription. London: COT Yerxa E J et al (1989) An introduction to occupational science, a foundation for occupational therapy in the 21st century. Occupational Therapy in Health Care, 6(4), 1-18 32 ANNEXE B Barnitt R (1999) Reflect, research, revise. British Journal of Occupational Therapy, 62(9), 405-412 College of Occupational Therapists (2000) Code of ethics and professional conduct for occupational therapists. London: COT Craik C (1999) Foreword. In: Sumsion T (Ed) Client-centred practice in occupational therapy: a guide to implementation. Edinburgh: Churchill Livingstone Creek J (1997) The knowledge base of occupational therapy. In: Creek J (Ed) Occupational therapy and mental health. 2nd edition. Edinburgh: Churchill Livingstone Creek J (1998) Purposeful activity. In: Creek J (Ed) Occupational therapy: new perspectives. London: Whurr Fair A and Barnitt R (1999) Making a cup of tea as part of a culturally sensitive service. British Journal of Occupational Therapy, 62(5), 199-205 Finlay L (1997) The practice of psychosocial occupational therapy. 2nd edition. Cheltenham: Stanley Thornes Finlay L (1999) The challenge of teamwork. British Journal of Occupational Therapy, 62(9), 393 Godfrey A (2000) Policy changes in the National Health Service: implications and opportunities for occupational therapists. British Journal of Occupational Therapy, 63(5), 218-224 Hagedorn R (1995) Occupational therapy: perspectives and processes. Edinburgh: Churchill Livingstone Hagedorn R (2000) Tools for practice in occupational therapy. Edinburgh: Churchill Livingstone Howarth A and Jones D (1999) Transcultural occupational therapy in the United Kingdom: concepts and research. British Journal of Occupational Therapy, 62(10), 451-458 Hume C (1999) Spirituality: a part of total care? British Journal of Occupational Therapy, 62(8), 367-370 Jenkins M (1998) Shifting ground or sifting sand? In: Creek J (Ed) Occupational therapy: new perspectives. London: Whurr Kingsley P and Molineux M (2000) True to our philosophy? Sexual orientation and occupation. British Journal of Occupational Therapy, 63(5), 205-210 Lane L (2000) Client-centred practice: is it compatible with early discharge hospital-at-home policies? British Journal of Occupational Therapy, 63(7), 310-315 Rigney C (2000) Physical or mental health: should we divide? British Journal of Occupational Therapy, 63(4), 177-178 33 Rose A (1999) Spirituality and palliative care: the attitudes of occupational therapists. British Journal of Occupational Therapy, 62(7), 307-312 Savin-Baden M and Taylor C (2000) Voices from the borderlands: engaging with qualitative evidence-based practice. British Journal of Occupational Therapy, 63(7), 303 Spalding N (2000) The empowerment of clients through preoperative education. British Journal of Occupational Therapy, 63(4), 148-154 Sumsion T (2000) A revised occupational therapy definition of client-centred practice. British Journal of Occupational Therapy, 63(7), 304-309 34 ANNEXE A Occupational science: understanding the relationship between occupation, health and well being An evolving discipline Occupational science emerged in the United States during the 1980s. It is an interdisciplinary subject that aims to understand the complex relationship between doing, being and becoming. Occupational science is defined as "the study of the human as an occupational being including the need for, and capacity to engage in, and orchestrate daily occupations in the environment over the lifespan" (Yerxa et al 1989). Although the naming and framing of occupational science is relatively new, the health and social benefits of a balance of work, rest and play has been known for a long time (Wilcock 2001). A decade of international research is contributing to a better understanding of the human need to do, to engage in activities that hold meaning and purpose and that contribute to a sense of personal and social worth. Influencing occupational therapy education, practice and research in the UK In 1999, the College of Occupational Therapists affirmed the profession’s commitment to "the achievement of healthy outcomes through occupation". In this context, occupational science is one of the foundation subjects studied on pre-registration programmes because it is considered to be fundamental to everyday practice (QAA 2001). The British Journal of Occupational Therapy contains papers that investigate occupation as an applied as well as a basic science. In May 2000, the special issue on occupational science attracted international contributors. Potential impact on public health The College believes that achieving a work-life balance is an important life style factor for tackling health inequalities. In other countries this belief is linked to action to address occupational deprivation, for example with prisoners (Whiteford 1997), and also to promote occupational justice. The latter concept focuses upon the human need for, and right to be engaged in, meaningful, satisfying and ecologically sustainable occupations. 35 ANNEXE B The beliefs and values of occupational therapists in the UK Introduction The following beliefs and values were derived from an analysis of recent literature produced by UK based occupational therapists and published in UK journals and books. Occupational therapists based in Ireland and publishing in the UK were also included. The statements make use of the words used by occupational therapy writers. Each concept is described in the context of the statement. Jargon words and those that are open to different interpretations, such as client-centred and empowerment, have been avoided. Occupational therapists in the UK believe that: 1. People are innately active beings who need to engage in a balanced range of occupations in order to develop, to maintain health and to realise their fullest potential throughout the life cycle. 2. The performance of activities, which have purpose and meaning for the individual, can promote and restore health and quality of life. 3. People live and act within social and physical contexts that influence their choices of occupation and the ways in which they perform their chosen or required range of occupations. 4. Each person has the capacity to adapt to circumstances and to make choices about how she or he lives. 5. Occupational therapists are concerned with promoting function, quality of life and the realisation of potential, and not just with restoring or maintaining health. 6. The role of the occupational therapist is to inform, support, facilitate and provide opportunities for clients to perform activities in order to improve their quality of life. 7. Occupational therapists are concerned with the total illness experience of the client and how impairment affects all aspects of his or her life. 8. Occupational therapy intervention is most effective when it is integrated into the life and context of the individual, the family and carers. 9. The occupational therapy process is most effective when it is a partnership between the client and the therapist in which the client participates actively in setting and realising goals. Occupational therapists in the UK hold the following values: 1. Occupational therapists respect and value individuality and diversity in their clients, within their own profession and in their colleagues. 2. Clients have a right to information, which will enable them to make informed choices about their care and their lives. 3. Occupational therapists listen to their clients in order to understand their needs, values, interests and aspirations. 4. The client’s goals take precedence in the treatment programme. 5. Occupational therapists are concerned with all aspects of human function: physical, cognitive, emotional, spiritual and social. 6. Occupational therapists promote personal identity by giving information and choices to their clients. 7. Occupational therapy practice is culturally sensitive and culturally relevant. 8. Occupational therapists reflect on their practice and strive to improve it. 9. Each occupational therapist has a responsibility to ensure that she or he provides a high quality of service that meets the client’s needs and does no harm. 10. Occupational therapy is part of the total care of the client and the occupational therapist is a member of the multidisciplinary team. 36 ANNEXE C Questions to Address • Is the College’s overall assessment of the status quo a reasonable representation of service characteristics around the country? • Is this a sound basis for change? • Is beginning with a conceptual model the best way to approach change? • Is ICF-2 an acceptable approach ~ would commissioners and providers be able to use it? • Does setting it in the wider context of the Ottawa Charter strengthen understanding of the health benefits of occupation? • Will it support the breaking down of rigid barriers about health and social care responsi bilities and support the development of a continuum of integrated occupational therapy services? • Are the policy objectives outlined in 3.10 the right ones – are there others we should recognise? • Is there support for restoring the importance of occupation in the lives of service users, and within the core role of occupational therapy practice? • Will commissioners and planners be committed to developing the continuum we propose ~ and is it likely to attract equal interest across health and social care? • Is there support for the strategic development of a new community based (specialist) occupational therapy general practitioner model? • What kind of implementation support would it be most useful for the College to provide?