Uncovering stories, making meaning: How the Indigo Program delivers assessment and care plan services for Victoria’s Multiple and Complex Needs Initiative (MACNI) September 2013 Table of Contents Glossary ................................................................................................................................................... 3 Acknowledgements................................................................................................................................. 3 Introduction ..................................................................................................................... 4 The Indigo Program................................................................................................................................. 4 Background ...................................................................................................................... 5 Understanding multiple and complex needs .......................................................................................... 5 The Multiple and Complex Needs Initiative (MACNI) ............................................................................. 5 The Assessment and Care Plan Coordination Service Process ............................................ 8 The importance of comprehensive and holistic assessment .................................................................. 8 Conducting an assessment and constructing a care plan ................................................. 10 Investigative phase ............................................................................................................................... 10 Written information referral and file reviews ................................................................................ 11 Interviews .......................................................................................................................................... 12 Additional clinical assessment and secondary consultation ............................................................. 12 Synthesis, analysis and formulation...................................................................................................... 12 Construction and coordination the development of the care plan ................................................... 13 Implementing the care plan negotiation, persuasion and intervention ........................................... 14 The outcome of the process – the key documents .............................................................................. 14 Strengths and challenges ................................................................................................ 16 The role of the Indigo assessor ............................................................................................................. 16 Managing risk and uncertainty ............................................................................................................. 16 Incorporating the individual’s perspective ........................................................................................... 17 Conclusion - contributing to systemic change .................................................................. 18 Appendices .................................................................................................................... 19 Appendix 1 – History of MACNI and the Indigo Assessment and Care Plan Development Service ..... 19 Sources and further reading ........................................................................................... 20 2 Glossary APCD Indigo Assessment and Care Plan Development CERG Central Eligibility and Review Group CPC Care Plan Coordination DHS Victorian Department of Human Services DoH Victorian Department of Health DoJ Victorian Department of Justice WRHC Western Region Health Centre Acknowledgements This document draws on the work of Elaine Wilcock, former Education, Training and Development Officer who undertook a comprehensive internal evaluation of the Indigo Assessment and Care Plan Development service in 2010. 3 Introduction The Indigo Program Indigo is a program of the Western Region Health Centre (WRHC) providing assessment, care plan development and care plan coordination for clients deemed eligible for the Multiple and Complex Needs Initiative (MACNI). The Indigo program has provided state wide care plan coordination for MACNI since its inception in 2004, with the assessment and care plan development service added in 2007. Indigo also provides secondary consultation, mentoring and training for those working with clients with complex support needs and/or within complex systems. The team at Indigo is currently made up of approximately twelve multidisciplinary staff working across the state of Victoria. While there exists an extensive literature about care plan coordination, there is little by way of formal documentation describing the practice of assessment and care plan development for individuals with complex needs. Hence, the unique aspects of this work may not be well understood outside the Indigo program. Indigo assessors begin their work in what can be difficult circumstances. Given the complexity of the clients they are supporting, care teams (where they exist) may be experiencing conflict, chaos and discord. Practitioners may disagree on diagnoses or suitable interventions; they may simply feel stuck and that all available options have been exhausted. As a newcomer to the situation, the Indigo assessor brings ‘fresh eyes’ and a depth of understanding of the service system. Indigo assessors are in a unique position to gather extensive client information and, more importantly have the time to reflect on what it might mean for new models of care. Indigo assessors operate horizontally across service silos and vertically through agency hierarchies. These boundary-spanning practices typify the collaborative intent of MACNI and reflect Indigo’s expertise in putting coordinated care planning into action from the outset. Maintaining a stance independent of the client’s service provision enables the Indigo assessor to develop a metaperspective that is essential in understanding complex systems. The resulting assessment and care plan documents exemplify this considered process and are comprehensive, holistic and rich in context. The aim of this paper is to disseminate Indigo’s collective wisdom from extensive experience in assessment and care planning with clients who have complex needs. In order to place the work in context there is a brief description MACNI - how the initiative emerged, its purpose and processes, and clients. The document then looks more closely at the work of Indigo assessment and care plan development. The final section explores some of the strengths, challenges and unique aspects of the work. 4 Background Understanding multiple and complex needs In the past fifteen years, terms to describe individuals experiencing multiple disadvantage such as ‘high complex behaviours’, ‘multi-morbidity’ and ‘multiple and complex needs’, have become commonplace in human services work. These terms are sometimes used with little elaboration or a clear understanding of what they mean. From Indigo’s perspective, the term ‘multiple and complex needs’ describes a person’s multiple, interlocking health and social needs. The interplay of each individual’s needs is unique and therefore requires individual assessment and often a tailored service response. This conceptualisation of multiple and complex needs recognises the inherent complexity of the service system, as well as the multiple disadvantages often experienced by the individual. Individuals with multiple and complex needs are often referred to as ‘falling through the gaps’ in the service system. Some would argue that services are structured and delivered in a way that can preclude the most vulnerable in society. The health and welfare system is intricate and services have historically been designed to meet single, specific needs. This can lead to a situation where a person is excluded from a service on the grounds of being ‘too complex’. Individuals with multiple diagnoses, particularly those with cognitive issues may find it difficult to navigate the service system. Those with behavioural issues are sometimes excluded from the services they require. This can lead to a vicious cycle where the individual is receiving inadequate or no services; their health and wellbeing deteriorates, and their presentation worsens – creating further barriers to access. The Multiple and Complex Needs Initiative (MACNI) In early 2002, the Victorian Department of Human Services (DHS) responded to concerns raised across the service system about the poor outcomes experienced by a small, but significant group of people identified as having multiple needs and complex presentations. These individuals were often experiencing multiple uncoordinated and crisis-driven service responses that failed to meet their overall needs, while drawing heavily on the resources of agencies (particularly the justice system and emergency services). Typically the service system around the person may be struggling or unable to fully meet their needs. These individuals at times pose a risk to themselves and to the community. The resulting statewide Multiple and Complex Needs Initiative (MACNI) aimed to develop more sustainable and effective individual interventions, and to build the capacity of services to work more effectively with people with complex needs. MACNI is a partnership of the Victorian Department of Human Services (DHS), the Victorian Department of Health (DH) and the Victorian Department of Justice (DoJ) - a structure that demonstrates the partnership ethos of the initiative. MACNI is a time-limited intervention (three years) established under the Human Services (Complex Needs) Act 2009. A legislative mandate was considered fundamental to supporting a model reliant on effective cross-sector collaboration. Under the Act, an eligible person is one who is: 16 years or older; and appears to satisfy two or more of the following criteria: has mental disorder, has an acquired brain injury, has an intellectual impairment, is alcoholic or drug- dependent; and has exhibited violent of dangerous behaviours towards themselves of others, or is reasonably likely to place themselves or others at risk of serious harm; and in need of intensive support and supervision and would derive benefit from coordinated services. 5 Participation in MACNI is voluntary. Although there is no requirement for informed client consent in the Act, client consent is still actively sought. The Act instead stipulates a client can refuse to participate in MACNI. This ‘opt-out’ provision reflects the experience of individuals considered for the initiative; people who may have little confidence in services or trust in professionals, and as a consequence avoid support rather than seek it out. Entry into MACNI is managed in each DHS division by Divisional coordinators who act as a gateway to the initiative. Referrals can come from any source including from the individual. A MACNI referral involves detailed documentation of the individual’s existing supports and services, what has been tried in the past (and to what effect) and a clear rationale for why referral to MACNI may benefit the individual at this point. The threshold for access to MACNI is purposely high as it is intended as an option of last resort. Once complete, a MACNI referral is considered at the local level by a divisional regional panel. These panels are typically made up of senior staff from DHS, DH, DOJ, senior representatives of local services and independent expert advisors. Once approved at the divisional level, the referral is then considered by the Central Eligibility and Review Group (CERG), a group comprising senior staff from across the three departments and independent expert advisors. If the person is determined eligible the division arranges for the development of a care plan. Indigo currently develops 99% of MACNI assessments and care plans. A brief history of the MACNI is set out in Appendix 1. More information about MACNI can be found at: http://www.dhs.vic.gov.au/about-thedepartment/plans,-programs-andprojects/projects-and-initiatives/crossdepartmental-projects-andinitiatives/multiple-and-complexneeds-initiativeWho are MACNI clients? Individuals who are determined eligible for MACNI are a small but heterogeneous group; it is difficult to describe a typical client. Box 1. A snapshot of MACNI clients Data gathered by DHS since the inception of MACNI indicates that of the clients referred: 74% are aged between 16 and 34 years Two thirds are male 94% present with the appearance of a mental disorder Around 40% experience housing instability and/or poor general health 22% are incarcerated at the point of referral 36% present with the appearance of both a mental disorder and intellectual impairment 40% present with the appearance of both a mental disorder and problematic substance use. However, the demographics shown in Half of all referrals describe the person as meeting three of the box highlight the multiplicity of the diagnostic criteria (mental disorder, acquired brain disadvantage and difficulties faced by injury, intellectual impairment, problematic substance use). many of the individuals referred. What is not so well represented is the Source: Kraner & Fisher, 2012 severity of need experienced by some individuals. For example, an individual with treatment-resistant schizophrenia who is experiencing frequent distressing positive symptoms, has high levels of substance use in order to manage their psychiatric symptoms; their presentation is also compounded by chronic homelessness. This severity of need, particularly when conventional treatment has failed, can overwhelm service providers as much as the individual and their family. Indigo staff notice strong themes among their clients such as the prevalence of trauma, unsatisfactory experiences within the service system, social exclusion and stigma. Interestingly, what also emerges are positive themes of resilience, commitment and the ability to endure. 6 Even before an assessment commences, it is apparent that many clients have experienced profound developmental trauma stemming from harm, abuse and/or neglect during their earliest years. As a consequence, many clients are or have been involved with the Child Protection system where their initial traumatic experiences may have been compounded by systemic failures. These harmful and invalidating experiences can lead to enduring problems, such as disorganised attachment, impaired self-development and difficulties in regulating one’s emotional state. Many individuals referred to MACNI have had negative experiences as service users. This can range from not receiving an appropriate level of support, to being excluded from services. In exceptional cases, clients have experienced abuse or harm while in the care of a service. For others, they may have had too many services involved in their life and , experienced a highly fragmented model of care with multiple practitioners attempting to address their various issues in isolation. Many MACNI clients are disconnected from their family, friends and have tenuous social networks. Experiences of loneliness, social exclusion and stigma are commonplace. Some clients have a prominent notoriety and face community and service rejection due to their idiosyncratic or challenging behaviours. Others are more hidden, perhaps incarcerated or in institutional care. Some individuals deliberately isolate themselves from the community as a means of avoiding stigmatisation. Amongst the stories of trauma, loss and disadvantage there are extraordinary examples of an individual’s ability to bounce back in the face of continued adversity. It might be that a person who after years of institutional care, chronic illness and isolation has been able to find a place for themselves in the community and start their process of recovery. There are examples of services and/or workers who have persevered with a client, advocating for the person’s right to support, holding on to hope and staying committed despite the many setbacks. These exceptions can provide valuable clues to Indigo assessors about what might bring about positive change in an individual’s life. 7 The Assessment and Care Plan Coordination Service Process The importance of comprehensive and holistic assessment One of the guiding principles of the Human Services (Complex Needs) Act 2009 is for a care plan to be based on a comprehensive assessment of the client’s needs. Individuals with multiple and complex needs are at times under-assessed and as a consequence their presentation is poorly understood and the support they receive may be unsuitable, even detrimental. Alternatively, they may experience numerous single-discipline assessments, which can lead to conflicting perspectives and fragmented service provision. Clear and integrated assessment is vital as it provides the foundation for a client’s care plan to guide their ongoing treatment, support and recovery. The purpose of an Indigo assessment is to understand the individual in context, and apply this understanding to develop a more effective model of care. Indigo assessments currently take four to six months to complete; a few take longer or shorter periods. While this may be considered a lengthy process the complexity of the work demands this level of time. A common misconception is that much of the time is spent reviewing files, when in reality this is a relatively small part of the work. Box 2. Case study ‘Simon’ The role of an Indigo assessor encompasses many tasks, such as: Developing relationships with the client and their service providers Conducting interviews Providing a hands-on case management role (when the client is disconnected from services) Observing the dynamics of the client and their service system Reflecting on the information gathered, collating and sharing provisional understandings Seeking additional assessment or secondary consultation (essential to the development of the care plan) Identifying and implementing the most appropriate configuration of services Bringing together and/or supporting the care team Trialling new interventions and potential practice models A full time Indigo worker undertaking assessments has a case load of two clients. This reflects the demands of the Simon is in his a late twenties and lives in a regional area. He has a mild intellectual impairment and his childhood was characterised by neglect, physical abuse and the effects of intergenerational trauma. Simon has been diagnosed with schizophrenia and problematic alcohol use. Simon has a history of offending related to his alcohol use and symptoms of mental illness. He is well known to local police and service providers. He has no housing of his own, instead moving between the homes of various family members or intimate partners. These houses are often overcrowded and chaotic. Simon has a range of services involved in his treatment and support including mental health services, disability services, accommodation providers and community corrections. He is considered non-compliant with services and his treatment is compromised during regular periods living in neighbouring towns across the state boarder. Simon has been referred to MACNI. The Indigo assessor establishes the service providers have a goal of housing stability, as they believe this would achieve greater continuity of treatment and better outcomes for Simon. She also discovers Simon’s family visits are fairly consistent in their frequency and length, and are integral to his social, cultural and spiritual wellbeing. The Indigo assessor supported the care team and Simon to understand their differing perspectives and find a way forward. Simon was eventually housed in independent accommodation. He still regularly visits family locally and interstate. His service providers have improved their communication with interstate services to ensure continuity of support, and Simon is more reliable in contacting his case manager. 8 role and the travel involved in statewide service provision. 9 Conducting an assessment and constructing a care plan While each assessment is as unique as the individual it concerns, the process of undertaking the assessment and developing the care plan includes the following stages: • Colla ng informa on • Transla ng the plan into ac on • Deriving meaning from the informa on Inves ga on Synthesis, analysis & formula on Implementa on Construc on & coordina on • Developing the care plan Investigation – collating information Synthesis, analysis and formulation – deriving meaning from the information Construction and coordination – developing the care plan Implementation – translating the plan into action This is not a linear process but dynamic and iterative in nature. The Indigo assessor starts at whichever point is most relevant. For example, in one case the client had made significant improvements since her referral to MACNI, and was being supported by a cohesive, multidisciplinary care team and the DHS Divisional coordinator. The care team had developed and were implementing an effective model of care. In this case the Indigo assessor worked backwards through the process – starting with documenting and assisting to refine the model of support. In another example, the assessment commenced at a crisis point for the client, hence the Indigo assessor initially focused on coordination - resourcing and supporting the care team to develop an immediate intervention. Elements of the process may be conducted simultaneously, while some aspects are ongoing such as formulation. Formulation is an integrated understanding of how this person comes to present in this way at this time, and is revised and shaped throughout the MACNI intervention. Investigative phase The Human Services (Complex Needs) Act 2009 allows for the exchange of personal and health information between agencies where this is considered in the best interests of the client. 10 Accordingly, Indigo assessors are in a unique position to seek a broad range of information across the lifespan of the client to inform the development of a suitable model of care. Indigo assessors typically seek information such as: hospital records, child protection files, school records, justice files, prison health records, mental health and other agency files. In addition, the assessor conducts interviews with past and current service providers, family members and most importantly, the client. Hence, the assessor’s role can be likened to a detective, looking for clues and developing hypotheses about the client and the system around them. The search for information is not exhaustive and unlimited, but remains focussed by the question, “What do we need to know about this client, and the services around them, at this time?” As an assessor becomes more skilled, and with supervisory and collegial support, they learn that it is not always necessary to know everything about an individual to develop an effective model of care. The key is in sifting through the sometimes vast amount of information to identify what is important to know. By contrast, an Indigo assessor may be faced with the situation where there are large gaps in information or where access to information is limited. This presents a different challenge to the Indigo assessor where they must look to the gaps to draw meaning about the client. This illustrates the skilled nature of the assessor role and the need for flexibility to deal with both situations. Written information referral and file reviews The assessor usually begins with the MACNI referral form and CERG meeting notes. MACNI referrals are detailed and include a comprehensive overview of the client’s situation including the perspectives of the current service providers. Referrals often include significant amounts of additional appended information such as past assessments and reports. The CERG notes can provide insight into potential areas for exploration in the assessment or suggestions about the direction of the care plan. This is often the assessor’s first glimpse of the client, which can be quite overwhelming for the assessor as the content tends to be predominately negative in terms of client diagnoses and experiences of the service system. MACNI referrals also contain a wealth of implicit information. Many referrals convey the sense of hopelessness felt by the services around the client where there is a sense that the client and the system are ‘stuck’ with all options exhausted. By contrast, some referrals may hint at more hidden positive aspects of a situation, such as an event that demonstrates the client’s resilience. Sometimes the most interesting aspect of the referral is that which is missing - issues that are absent or glossed over. Again, the curiosity and skill of the Indigo assessor to read between the lines and further explore the gaps is paramount. File reviews of past and current services are conducted for a number of reasons. Establishing what has happened to the client is an obvious starting point for any assessment. File reviews inform the development of a chronology that documents where the client has been, when, what services they accessed and how, and the nature of support received; that together form a useful framework for the assessor. Historical file information can shed light on aspects of a client’s life that are not currently well understood such as their developmental history. Reviewing records is a practical way of physically bringing together the client’s fragmented service history to capture past learning and assist developing a more integrated and balanced perspective. The decision about which files are sought is made on a case-by-case basis by the Indigo assessor in consultation with the line manager, divisional coordinator and is guided by the MACNI referral, although what is eventually reviewed depends on a number of factors. Although this is rare, agencies are not compelled to share information under the Act and may refuse access. Agencies can be hesitant to share information that may not show their service delivery in the best light. 11 Sometimes files have been destroyed either accidently or in accordance with archival policies or simply cannot be located. While reviewing files can be time consuming it is a valuable exercise as they hold a wealth of information and professional insights. Interviews A more subjective, but perhaps richer, source of assessment data comes from interviews where people tend to be more relaxed and candid. The opportunity to talk to the client about their perspective is invaluable as it is often minimised in the professional documentation. Former workers are an excellent source of information and systemic analysis. Often they have had time to reflect and consider their involvement with the client, and with the benefit of hindsight, may have new perspectives to share. While some former workers are reluctant to talk, most are willing (even relieved) to share their insights and contribute to a process that aims to improve the client’s supports. All agencies currently working with the client are also interviewed for their perspective. In the course of an assessment, the Indigo assessor may talk to a range of other people, such as family members, partners, carers, friends and neighbours. Similar to the client’s voice, these accounts may not be well represented in professional records and can add unique perspectives to the assessor’s understanding of the client. For example, an Indigo assessor conducted a 45-minute phone conversation with a client’s estranged aunt in the latter stages of the assessment. While the information she provided was subjective (some of it pejorative), it provided helpful insights into the client’s family history and family’s perspective of the involvement of Child Protection services. Additional clinical assessment and secondary consultation One of the purposes of a MACNI assessment is to address gaps in the understanding of the client. The Indigo assessor will seek input from a range of practitioners who may assist in clarifying aspects of a client’s presentation. This can include: neuropsychologists, occupational therapists, forensic specialists and psychiatrists. If a client is willing, additional assessments are undertaken to clarify aspects such as mental health diagnoses, their risk of reoffending, cognitive function or living skills. This can be particularly helpful for clients living in regional areas who may not have had access to specialist services in the past. Indigo staff frequently access practitioners for secondary consultation. This additional input is used in a variety of ways: to discuss formulation, review past assessments and provide an opinion, or to work with a care team. The use of additional assessment and secondary consultation will vary depending on the circumstances of the client, their care team and the assessor. Synthesis, analysis and formulation Deriving meaning from the information gathered is at the heart of the assessment process. The first step involves synthesis where the separate elements are built into a connected whole. The assessor collates information under the five broad domains of: health and well being, stable accommodation, social connection, safety and service system responsiveness. This process enables the assessor to draw together disparate information to create a deeper understanding of the person’s experience and presentation. Analysis is the examination of the collated information for themes, patterns, gaps and exceptions. For example looking across a person’s history from the different domains of early childhood, education and accommodation can enable the assessor to see whether patterns of offending behaviour are linked to periods of instability. Alternatively, the synthesis and analysis can highlight 12 times when things were going well for the client. Such findings often inform interventions trialled as part of the care planning process. Formulation is about drawing this understanding together into a comprehensive conceptualisation, with reference to relevant theories, research evidence and literature. Developing a comprehensive and concise formulation is one of the most challenging aspects of Indigo assessment. A formulation seeks to understand the person in context, and is more than a diagnosis. The formulations developed by Indigo are multidisciplinary and are informed by a range of theories and disciplinary perspectives. Ideally a MACNI formulation ‘…provides a map of how things are, how they came to be that way, to what extent they are changeable, and how such change can be achieved’ (DHS, 2012: 5). The resulting formulation is not static, but is interrogated, shaped and refined throughout the MACNI process. Construction and coordination the development of the care plan The Indigo assessor develops the care plan in consultation with the client and their current service providers. The care plan should reflect the person’s current assessed needs while also laying a foundation for their future support throughout MACNI and beyond. The assessor does not start with a ‘blank canvas’ as there are always elements of the client’s existing support that can be retained and/or remodelled. Care plan development is a cooperative endeavour requiring the input and support of a care team. The care team usually comprises Indigo, the services working with client (either directly or indirectly), secondary consultants, the DHS regional coordinator, and the client (directly or indirectly). Establishing an effective care team is an important task of the Indigo assessor during the assessment, as this structure forms the basis of the coordination phase of MACNI. Increasingly the care team is established and functioning prior to the assessment commencing, as coordinated approaches are becoming more widely used in the complex needs sector. If there is no care team operating, the Indigo assessor convenes an initial meeting of services. Bringing a group of service providers together for the first time is not always an easy task. Equally challenging, the assessor may be working with an existing care team that may not be functioning as well as it could. Establishing and coordinating a care team requires significant strategic skill, and an ability to maintain a meta-perspective, which is the ability to scope the multiple (sometimes conflicting) perspectives present in a complex system. This may involve recruiting new services, introducing specially brokered services/practitioners, enticing disengaged services ‘back into the fold’ or exiting services that no longer meet the client’s needs. There may be tenuous relationships or differences of opinion between practitioners or agencies, stemming from personality clashes, historically poor working relationships or conflicting views about treatment approaches or diagnoses. These early care team meetings can be challenging and require the Indigo assessor to exercise strong leadership, excellent communication skills (especially listening skills), authority and the ability to manage group dynamics. The Indigo assessor leads the care team in the development of the care plan. The care plan is directly informed by the co-occurring assessment and includes the client’s goals, rationale, and service plan outlining tasks with responsibility assigned. To achieve this, an assessor has to have a good understanding of the various needs and perspectives of individual care team members, and strong negotiation skills to assist the team to reach a consensus, in order to move the planning forward. 13 Implementing the care plan negotiation, persuasion and intervention As the formulation becomes clearer and the care plan develops, the focus of the Indigo assessor shifts to engaging services to work on implementing the proposed plan. Essentially this is about managing a change process; as the assessment introduces alternative ways of thinking about the client’s situation, the care team brings a more integrated and inter-disciplinary way of working and the care plan introduces a different model of support. The degree of change the process brings will vary but in all cases it requires active management and support, which is coordinated by the Indigo assessor. MACNI care plans are needs-based and focus on what support or services the client requires, rather than being restricted to what is provided by existing services. Client-attached brokerage funding is available to bridge this gap. Using brokerage to develop and trial the implementation of new interventions is intended not just to meet the needs of an individual client, but also to generate innovation within the service system. Typically brokerage is used to temporarily: Augment existing service models to trial an enhances service response – for example to increase the client/staff ratio in an existing residential program or to provide clinical support to attendant care workers Fund cross-service/collaborative interventions to improve service planning and responsiveness– for example, providing reflective group supervision to a care team Fund a client-specific model of care to trial a new service response Purchase goods or services to assist the client’s support or service engagement Brokerage is used judiciously as it is limited to the MACNI period with the aim of achieving sustainable options within the funded service system. Constructing a model of care that includes non-government funded agencies, public and private providers involves significant negotiation with senior management to discuss and finalise the tasks assigned to them within the plan; and, if brokerage is being used, the fee structure and accountability mechanisms. The outcome of the process – the key documents Three interconnected documents are produced at the completion of the process: an assessment report, a care plan and a service plan. The documents set out the individual’s history, needs and systemic issues under five platforms: Stable accommodation, Health and wellbeing, Social connectedness, Safety (including a risk and vulnerabilities analysis), and Service system responsiveness The assessment is the most detailed of the documents. It paints a comprehensive picture of the relevant aspects of the individual’s experience, life history and influences that have contributed to their current complex presentation. Indigo’s comprehensive assessments have been identified as a critical success factor in MACNI (DHS, 2008; DHS, 2012). The depth and breadth of Indigo assessments are highly valued by external stakeholders who expect a thorough analysis of the individual’s situation in context alongside a clearly articulated formulation and rationale for the proposed model of care. A comprehensive assessment is fundamental for service providers to enhance their understanding of the individual to inform their consequent decision making. 14 The care plan is addressed directly to the client and offers a succinct summary of their goals and wishes, their assessed needs, the main service system gaps and model of care to be offered. This is often in the form of a letter as this format is direct and personal, and easily adapted to suit differing communication styles. The service plan includes a clear rationale directly informed by the assessment, and sets out the roles, responsibilities and expectations of all services involved. Executive managers of key services involved in the care plan complete a sign-off form to affirm their commitment to the care and service plans. The written documents are used in a number of ways: to inform the client about their care plan, to inform and influence decision makers (primarily the divisional panels) and to guide the care plan coordinator and care team. In order to suit these varied audiences the documents are clear, concise and demonstrate the assessor’s competence and depth of understanding of the client and the service system, as well as being balanced and objective. 15 Strengths and challenges Indigo has significant experience and strengths in working with complex clients within complex systems. Such work is both challenging and rewarding as discussed below. The role of the Indigo assessor As highlighted in the previous section, the work of the Indigo assessor is ‘demonstrably complex, requiring high levels of conceptual ability, knowledge and skill’ (Absler & McDermott, 2009: 4). Indigo staff require a broad range of skills including: communication (written and verbal), negotiation, team building, leadership, conflict resolution, diplomacy and the ability to work autonomously. They also need experience of working with complex clients, knowledge of the service system (including in regional areas), the political and policy context, as well as an understanding of current theory and practice evidence. The values that underpin the program are a client centred approach, with a strong commitment to achieve better outcomes for people with complex needs. Indigo staff describe the work as challenging, dynamic and stimulating despite the steep learning curve involved. An assessment worker may be one day sitting in a park in small country town, talking with client about their life; the next, meeting with a group of senior practitioners to discuss risk management and negotiate intensive support options. Trying to make sense of a person’s life, unravel the complexities of the service system, plan a way forward and bring services together is no easy task. There are high expectations (at times conflicting or unattainable) placed upon Indigo, and the ongoing challenge for Indigo workers to balance the competing needs of stakeholders, while remaining client-focused. Indigo like any service, does not always get this balance right. The strong culture of reflective practice within the program assists the team to learn from mistakes or unexpected outcomes, in way that strengthens rather than diminishes their practice. The work of the Indigo program is also subject to an extraordinary degree of scrutiny. This can be as quite an adjustment for new workers and a potential source of stress. However, staff acknowledge the need for strong accountability measures given the expenditure of public funds, hence scrutiny is recognised as a vital and justifiable aspect of the role. A particular challenge for Indigo staff conducting an assessment is how to navigate and make sense of the information gathered. Assessment workers have spoken about feeling initially overwhelmed by the size and scope of the task, as well as the risk of getting lost in data and ‘bogged down’ in the detail. Regular supervision is essential to assist the assessor to maintain perspective. In addition, the material reviewed can at times be confronting and cause distress. For example, an assessor may struggle to maintain empathy for a client who has perpetrated sexual violence, or is hostile or aggressive towards others. These challenges are contrasted with strong feelings of pride and job satisfaction following the completion of an assessment and care plan, when a previously hopeless situation is rendered hopeful. Managing risk and uncertainty Considerations of safety and risk are part of every Indigo assessment process. When assessing issues of risk, Indigo assessors explore the differing expectations and wishes of the client, the family, advocates, service providers, the CERG and divisional panel, as well as considering practice evidence, expert opinion and community expectations. Indigo staff have learnt that effective care planning is achieved by balancing all the domains of the client’s life, not by a singular focus on 16 safety. These are complex situations that involve human rights, self-determination, personal safety and community protection – significant issues that can at times be hard to reconcile. Ideally, considerations of risk should inform decision-making, rather than drive it, to ensure a balanced perspective. While managing risk and potential harm is a central part of the work, it can also be contentious. How risk is defined and understood is not consistent throughout the service system. A rational and technical view of risk perceives it as something that can be measured, mitigated and at best eliminated. Such a view is often concerned with the potential of institutional risks such as negligence, loss of reputation and professional error (Green, 2007). The divisional panels have varied approaches to risk. In contrast, Indigo’s practice emerges from a community-based setting where ‘…the relationship between risk and practice is truly complex, unpredictable and contingent’ (Green, 2007 p.397). This requires Indigo assessors to clearly explain the client risk assessment and provide a rationale for the recommended management strategies, particularly when the approach suggested is unusual or novel. When working with clients with complex needs sometimes rational risk management practices fail. One example is where a client with a history of serious violent offending was placed in a stand-alone residential setting with two staff, 24 hours a day. While this model may have mitigated the institutional and community risks, in practice it exacerbated the client’s negative behaviours and distress, and increased the risk to direct care staff. The placement rapidly broke down and the client was incarcerated. Upon their release a much less intensive outreach model was implemented, with greater success. By definition MACNI clients are exceptional and do not fit easily into existing service models, including standardised risk assessment frameworks. It may not always be possible to fully understand a client’s presentation, and therefore to fully assess their risk. It is also pertinent to consider risk is not wholly negative but can be part of learning and growth. The challenge is to ensure that divergent perspectives of risk are discussed openly, as failing to do so can lead to misunderstandings and unmet expectations that undermine collaborative practice. The experience of Indigo is that ‘high risk’ situations are best managed with an approach of collective accountability, where all service providers (including decision makers) share the risk. Incorporating the individual’s perspective By the time an individual is referred to MACNI, the professional narrative tends to focus on their diagnoses or the problems of services involved, rather than the individual’s experience, needs and wishes. Given this context, accurately representing a holistic view of the client’s life is of primary concern to Indigo assessors. The client’s input into their care plan and inclusion of their perspective is essential. The preference of Indigo assessors is to meet with the client, although this may not always be possible due to their physical, cognitive or mental wellbeing; or if the client does not wish to engage with another service. In these cases, the assessor encourages input and reflection from direct workers or significant others as appropriate. External stakeholders have noted that Indigo assessments describe the client’s needs and story in a way that humanises, demystifies and de-stigmatises them. Indigo assessments ideally place a person in context, broadening the narrative to highlight the social and structural factors that lead an individual to where they are today. Indigo has continually focused on increasing client involvement and ways of representing the client’s perspective. In 2011, the program recruited a senior mental health consumer consultant to improve the quality of Indigo’s services to consumers, the vast majority whom have mental health issues. The assessment and service plan documents were also modified to increase the client’s perspective and 17 ensure client goals are prominent. Most importantly the care plan now directly addresses the individual, rather than service providers, and clearly reflects their goals as well as acknowledging divergent professional opinion. Indigo workers encourage clients to participate in MACNI at whatever level they choose. While still a small minority, some clients (and their carers) regularly participate in their care team meetings. A small number of clients have chosen to attend a panel session, although this can be a daunting process due to their size of membership and formality. While recent reforms within DHS have resulted in an increased focus on client perspectives, increasing client participation and the inclusion of consumer groups remains an area of development within MACNI more broadly, particularly at the decision making level. Conclusion - contributing to systemic change Since its inception, one of the aims of MACNI has been to improve responses to individuals with multiple and complex needs across the service system in order to achieve long term structural, legislative and cultural change. Indigo, as a service delivery arm of MACNI, plays a key role in this task as its primary focus is working with service providers to improve client outcomes. A unique aspect of Indigo assessment is that it considers systemic issues that have contributed to a client’s situation, as well as discussing ways to potentially improve the service system. While it may be relatively easy to identify how a system could be improved, achieving (and measuring the extent of) systemic change is altogether, a more difficult process. What the evidence shows is that services involved with MACNI experience increased confidence and capacity in working with complex clients. This outcome is well known to Indigo staff as they work closely with services over long periods and see the benefits emerge. Indigo assessors see services at the start of the process where staff who work with complex clients may be feeling fatigued, burnt out and helpless. As the assessment progresses, the support to services is bolstered, previous knowledge of the person is uncovered and new understandings emerge. By supporting and building the capacity of services to work in new and innovative ways with new insights and coordinated planning, what was once a seemingly hopeless situation has more often than not changed to a more positive one. 18 Appendices Appendix 1 – Indigo Assessment and Care Plan Development Service timeline Date Event 2002 The Victorian Department of Human Services responds to concerns raised by the service system about clients with complex needs. DHS establishes the Responding to People with Multiple and Complex Needs Project. 2003 The Multiple and Complex Needs Initiative (MACNI) is established under the Human Services (Complex Needs) Act 2003 2004 MACNI commences. The Indigo program (auspiced by Western Region Health Centre) commences providing care plan coordination for MACNI. The multidisciplinary assessment process is provided by Care Plan Assessment Victoria (CPAV) 2005 A comprehensive external review of MACNI conducted by external consultants commences. 2007 Final report of review recommends devolution of decision-making to DHS regions to improve efficiency, build capacity and provide scope for local service innovation in the MACNI model. The care plan assessment service is tendered to Indigo. Two teams are developed to provide care plan coordination, and assessment and care plan development for MACNI clients. 2008 Evaluation of Indigo care plan coordination conducted by external consultants. 2009 A new MACNI service model commences with the Human Services (Complex Needs) Act 2009, including several reforms: devolution of decision-making from a statutory panel to eight regional panels and the Central Eligibility and Review Group; broadened role for DHS regional coordinators; and, extension of care plans from a maximum of two years to three. 2010 The Western Region Health Centre internal evaluation of Indigo Assessment and Care Plan Service 2011 The Indigo program recruits a senior mental health consumer consultant to advise on improving the client’s participation. The Indigo program completes the integration the Assessment and Care Plan Development and Care Plan Coordination teams into one service 19 Sources and further reading Absler, D & McDermott, F (2009) Holding the system: an evaluation of care plan coordination, Western Region Health Centre. Department of Human Services (2003) Responding to people with multiple and complex needs. Phase one report, Victorian Government, Melbourne. Department of Human Services (2006) Multiple and complex needs initiative: Human Services (Complex Needs) Act 2003 summary notes, Victorian Government, Melbourne. Department of Human Services (2010) Care plan coordination: the multiple and complex needs initiative, Victorian Government, Melbourne. Department of Human Services (2012a) Multiple and complex needs initiative - client outcomes 2, www.dhs.vic.gov.au Department of Human Services (2012b) Balancing risk aversion and client autonomy in the multiple and complex needs initiative, Victorian Government Department of Human Services, Melbourne. Department of Human Services (2012c) MACNI integrated formulations, Victorian Government Department of Human Services, Melbourne. Green, D (2007) ‘Risk and social work practice’, Australian Social Work, Routledge, Colchester, 60, 395-409. Hamilton, M & Elford, K (2009) The report on the five years of the multiple and complex needs panel: 2004-2009, www.dhs.vic.gov.au KPMG (2007) Evaluation of multiple and complex needs initiative: final report, KPMG, Australia. Kraner, M & Fisher, V (2012) ‘The multiple and complex needs initiative: a coordinated and integrated response’, New Paradigm: the Australian journal on psychosocial rehabilitation, Spring/Summer 2012: 34-41. Western Region Health Centre (2008) Multiple and complex needs initiative: Indigo assessment and case management guidelines, Western Region Health Centre, unpublished. Wilcock, E (2011) Indigo assessment and care plan development service evaluation, Western Region Health Centre, unpublished. 20