The 3 Words I Want Every Single
Hospital Employee to Hear
A Letter to My Daughter’s Healthcare Team
Dear Doctor,
To you, Addie is a patient. But she is my baby. You don’t know this, but she has spent the
last nine years enduring medical procedures, appointments and hospitalizations. When she
sees you, all of those memories come with her. Your white coat is a symbol of blood draws,
x-rays, pokes and prods. Please don’t take it personally if she gives you the stink-eye. I’m
sure without the white coat, she’d love you.
Dear Nurse,
When I ask question after question about a medication or procedure, it is not because I’m
a pain-in-the-butt mom, it is because I’m exhausted and if I don’t write everything down, in
10 minutes that knowledge will have slipped into the black hole of pharmaceutical names,
insurance info and commercial jingles from the 1980s. Please be patient with me. I don’t
want to mess this up. A little life is at stake.
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©2015, Language of Caring®, LLC
Dear Phlebotomist,
The reason Addie’s screaming and holding onto me before her blood draw is not because
she’s a bratty 9-year-old who can’t handle a little pain.
It’s because during the last draw, the nurse couldn’t find the vein and after both arms, three
veins and being held down by aides, this is what she remembers as you come at her with
a needle.
You are just an accumulation. Please don’t take it personally.
Your eye rolls and sighs, I understand. I do. I would feel the same way if I didn’t live it, if this
were just another screaming kid of hundreds. Please try to put yourself in her little shoes.
They are size 4 and a half. It may be a tight squeeze.
Dear Pediatrician on-call,
When I phone on a Friday at 5:01 p.m. it is not because I waited until the last minute; it is
because my kiddo’s fever only spikes at closing time. She was born on a full moon when all
hospital beds were full and almost delivered in the hallway. It’s just how we roll. I apologize.
I would have loved the birthing suite and some pain meds.
Dear Pharmacist,
When we call in a prescription for a medication we’ve already run out of, it is not because I
want to create an emergency for you. It is because this medication is one of 20, from four
different specialized pharmacies and sometimes I cannot keep it all together. And if I am
crabby and panicked, it is not because I’m unappreciative of your hard work; it is because
I am mad at myself for not being the mom I would like to be. Please forgive me.
Dear Pulmonologist, Endocrinologist and Respiratory Therapist,
When we receive bad news from a blood test or culture, I realize you have already given
this news to 10 other people before 9 a.m. But it means our life changes from this point on.
We have come this far, learned this much and you are giving us new information. You are
saying, here is another chapter in this lengthy book. Please study, memorize and perfect
this. Sometimes it feels like too much. Yes, they’re only lab results, but to us, they are life
results.
www.languageofcaring.com
©2015, Language of Caring®, LLC
Dear Staff,
If I could tell you one thing, to newbies and old hats and everyone in between, it is this:
Please just listen.
You have the answers, but sometimes they are given before you know the question.
Just listen.
I am not challenging you. But I know my kid. We live this life, we wake up to it and go to
bed with it. This disease is like another child in our family. It’s ours. We birthed it, we feed
it, we care for it.
I have not endured 12 years of medical school and residencies, but I have paid attention
to every breath and heartbeat, to each slight fluctuation—knowing like a sixth sense that
warm breeze before the storm. Like memorizing the rhythm of a song, you don’t need to
be a composer to know when the melody is off-key.
Dear Hospital,
After a year of chronic stomach pain, and no relief, I called you for the hundredth time. A
Gastroenterologist new to the hospital returned my call. I was exhausted from medications
not helping and begged for answers. Her response left me speechless.
“You know your daughter. Tell me what to do.”
At first, I was terrified. What do you mean, tell you what to do? Aren’t you the doctor? I
don’t want this power. Here, take it back!
This doctor explained she was also a mother. She asked me what I felt in my gut. I ignored
my impulse to make a pun (GI, gut, ha!), mustered up my courage and said, “I want her
admitted today. And I don’t want to go home until she’s better.”
And that’s what we did. Two days letter, she was better. And we went home.
This doctor not only listened, but she trusted me. She knew about the course not taught in
med school or learned in residency. It is the quiet pause of a song, a flutter of a heartbeat,
a mother’s intuition. Just listen and you can hear it. Let’s listen together.
With love,
Elise Free (mama to the amazing Adelaide)
Read the rest of this post on TheMighty.com, a website that finds beauty, strength and
joy in disease and disability.
www.languageofcaring.com
©2015, Language of Caring®, LLC