SUGGESTED READING AND WEB SITES
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Following is a list of resources for patients and families to consult for additional knowledge and
support. The list is alphabetical by subject. In addition, we have included websites and publications
you may find useful. Please allow us to assist you and clarify any of the information.
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Topics on this list:
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Aging
Death & Dying
Losing a Parent
Caregiving
Funerals
Medical Matters
Children
Hospice & Palliative Care
Sudden Loss
Culture
Losing your Mate
Spiritual/Faith
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AGING
Books:
Another Country: Navigating the Emotional Terrain of Our Elders
by Mary Bray Pipher
Changing Places: A Journey With My Parents Into Their Old Age
by Judy Kramer
Choosing Medical Care in Old Age: What Kind, How Much, When to Stop
by Muriel Gillick
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Consumer Reports Complete Guide to Health Services for Seniors: What You and Your Family Need
to Know About Finding and Financing Medicare, Assisted Living, Nursing Homes, Home Care, Adult
Day Care
edited by Trudy Lieberman
Elder Rage or Take My Father...Please! How to Survive Caring for Aging Parents
by Jacqueline Marcell
From Age-ing to Sage-ing: A Profound New Vision of Growing Older
by Zalman Shalomi Shachter
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!Websites:
Aging With Dignity
www.agingwithdignity.org
American Association of Homes and Services for the Aging
www.aahsa.org
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American Association of Retired People www.aarp.org
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CAREGIVING
Books:
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Always on Call: When Illness Turns Families into Caregivers
by Carol Levine
!Another Country: Navigating the Emotional Terrain of Our Elders
by Mary Bray Pipher
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Elder Rage or Take My Father...Please! How to Survive Caring for Aging Parents
by Jacqueline Marcell
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Grief, Dying and Death
by Therese A. Rando
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The Helper’s Journey: Working With People Facing Grief, Loss and Life-Threatening Illness
by Dale Larson
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How Can I Help?
by Ram Dass
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Midwife for Souls
by Kathy Kalina
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Share the Care: How to Organize a Group to Care for Someone Who Is Seriously Ill
by Cappy Capossela, Sheila Warnock and Sukie Miller
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Websites:
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Caring Road
www.caringroad.com
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The Family Caregiver Alliance
www.caregiver.org
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The National Alliance for Care giving
www.caregiving.org
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Books:
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CHILDREN
A Broken Heart Still Beats: After Your Child Dies
by Anne McCracken and Mary Semel
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Cancer Pain Relief and Palliative Care in Children
by The World Health Organization
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Hospice Care for Children
edited by Saraha Zarbock Golzer and Anne Armstrong-Dailey
!How to Help Children Through a Parent’s Serious Illness
by Kathleen McCue and Ron Bonn
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What Will We Do? Preparing a School Community to Cope With Crises
edited by R. Stevenson
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Websites:
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Children’s Hospice International
www.chionline.org
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Project Joy and Hope for Texas
www.joyandhope.org
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Books:
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CULTURE
Cultural Issues in End-of-Life Decision Making
edited by Kathryn L.Braun, James H. Pietsch and Patricia Blanchette
Facing Death: Where Culture, Religion and Medicine Meet
edited by Howard M. Spiro, Mary G. McCrea Cumer and Lee Palmer Wandel
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The Spirit Catches You and You Fall Down
by Anne Fadiman
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The Perfect Stranger’s Guide to Funerals and Grieving Practices: A Guide to Etiquette in Other
People’s Religious Ceremonies
by Stuart M. Martins
Remembering Well: Rituals for Celebrating Life and Mourning Death
by Sarah York
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Websites:
The Health and Human Services Office of Minority Health
www.omhrc.gov
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Project on Death in America
www.soros.org/initiatives/pdia
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DEATH & DYING
Books:
Dying Well: Peace and Possibilities at the End of Life
by Ira Byock
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The Eternal Pity: Reflections on Dying
edited by Richard John Neuhaus
Handbook for Mortals
by Joanne Lynn, Joan Harrold, and Rosalynn Carter
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The Tibetan Book of Living and Dying
by Sogyal Rinpoche
How We Die
by Sherwin Nuland
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Life Lessons
by Elisabeth Kübler-Ross and David Kessler
On Death and Dying by Elisabeth Kübler-Ross
Peaceful Dying: The Step-by-Step Guide to Preserving Your Dignity, Your Choice, and Your
Inner Peace at the End of Life
by Daniel Tobin
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Websites:
!Aging With Dignity
www.agingwithdignity.org
!The American Association for Death Education
www.adec.org
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The Center for Advanced Illness Coordinated Care
www.coordinatedcare.net
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Growth House
www.growthhouse.org
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Missoula Demonstration Project
www.dyingwell.com/MDP.htm
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On Our Own Terms: Bill Moyers on Dying
www.pbs.org/wnet/onourownterms
!Partnership for Caring: America’s Voices for the Dying
www.caringinfo.org
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Project on Death in America
www.soros.org/initiatives/pdia
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Books:
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FUNERALS
At Journey’s End: The Complete Guide to Funerals and Funeral Planning
by Abdullah Fatteh, Naaz Fatteh and David R. Pearson
!A Child’s Book About Funerals and Cemeteries
by Earl Grollman
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The Perfect Stranger’s Guide to Funerals and Grieving Practices: A Guide to Etiquette in Other
People’s Religious Ceremonies
by Stuart M. Martins
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Purified by Fire: A History of Cremation in America
by Stephen R. Prothero
!Remembering Well: Rituals for Celebrating Life and Mourning Death
by Sarah York
!The Undertaking: Life Studies from the Dismal Trade
by Thomas Lynch
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Websites:
!Funerals: A Consumer’s Guide
www.ftc.gov/bcp/conline/pubs/services/ funeral.htm
!The Funeral Consumers Alliance
www.funerals.org
!The National Funeral Directors Association
www.nfda.org
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GRIEF
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Books:
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A Broken Heart Still Beats: After Your Child Dies
by Anne McCracken and Mary Semel
!A Decembered Grief: Living With Loss While Others Are Celebrating
by Harold Ivan Smith
!Grief, Dying and Death
by Therese A. Rando
!Living When A Loved One Has Died
by Earl Grollman
!The Mourning Handbook: A Complete Guide for the Bereaved
by Helen Fitzgerald
!Safe Passage: Words to Help the Grieving Hold Fast and Let Go
by Molly Fumia
!Surviving Grief and Leaning to Live Again
by Catherin M. Saunders
!Understanding Grief
by Alan Wolfett
!The Undertaking: Life Studies from the Dismal Trade
by Thomas Lynch
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Books:
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HOSPICE & PALLIATVE CARE
All Kinds of Love: Experiencing Hospice
by Carolyn Jaffe and Coral Ehlrich
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Cancer Pain Relief and Palliative Care in Children
by The World Health Organization
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The Dying Process: Patients’ Experiences of Palliative Care
by Cicely M. Saunders, Mary Baines and Robert Dunlop
!Dying Well: Peace and Possibilities at the End of Life
by Ira Byock
!Hospice and Palliative Care
by Virginia F. Sendor and Patrice M. O’Connor
!The Hospice Choice: In Pursuit of a Peaceful Death
by Marcia Lattanzi-Licht, John J. Mahoney and Gallen Miller
!The Hospice Handbook: A Complete Guide
by Larry Beresford
!Hospice: Practice, Pitfalls, and Promise
by Stephen Connor
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Living With Dying: A Guide for Palliative Care
by Cicely M. Saunders, Mary Baines and Robert Dunlop
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Midwife for Souls
by Kathy Kalina
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Peaceful Dying: The Step-by-Step Guide to Preserving Your Dignity, Your Choice, and
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Your Inner Peace at the End of Life
by Daniel Tobin
Websites:
Palliative Medicine
www.abhpm.org
Americans for Better Care of American Academy of Hospice and Palliative Medicine
www.aahpm.org
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American Board of Hospice and the Dying
www.abcd-caring.org
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American Hospice Foundation
www.americanhospice.org
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Center to Advance Palliative Care
www.capcmssm.org
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Department of Symptom Control and Palliative Care
www.mdanderson.org/departments/palliative
Growth House
www.growthhouse.org
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The Hospice and Palliative Nurses Association
www.hpna.org
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Hospice Foundation of America
www.hospicefoundation.org
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National Hospice Foundation
www.nationalhospicefoundation.org
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New York Beth Israel Medical Center
www.stoppain.org
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National Hospice and Palliative Care Organization
www.nhpco.org
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Promoting Excellence in End-of-Life Care
www.promotingexcellence.org
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LOSING A MATE
Books
Doors Close, Doors Open: Widows, Grieving
by Morton Lieberman
How to Survive the Loss of a Love
by Peter McWilliams, Harold Bloomfield and Melba Colgrove
I’m Grieving as Fast As I Can: How Young Widows and Widowers Can Cope and Heal by Linda
Feinberg
Letters to My Husband by Fern Field Brooks
Widowing: Surviving the First Year by Jane Krimbill and Nancy Brown
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Websites:
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Parents Without Partners
www.parentswithoutpartners.org
!Society of Military Widows
(National Association of Uniformed Services
Inc.)
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LOSING A PARENT
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Books
!Changing Places: A Journey With My Parents Into Their Old Age
by Judy Kramer
!Fatherloss: How Sons of All Ages Come to Terms With the Deaths of Their Dads
by Neil Chethik
!Losing Your Parents and Finding Yourself: The Defining Turning Point of Adult Life
by Victoria Secunda
!Motherless Daughters: The Legacy of Loss
by Hope Edelman
!Nobody’s Child Anymore: Grieving, Caring and Comforting When Parents Die
by Barbara Bartocci
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MEDICAL MATTERS
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Books:
!Choosing a Nursing Home: A Step-by-Step Guide
by Rick Wilfong
!Choosing Medical Care in Old Age: What Kind, How Much, When to Stop
by Muriel Gillick
!Nursing Homes 101
by Susan Goldberg
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Consumer Reports Complete Guide to Health Services for Seniors: What You and Your Family Need
to Know About Finding and Financing Medicare, Assisted Living, Nursing Homes, Home Care, Adult
Day Care
edited by Trudy Lieberman
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Websites:
!American Medical Association
www.ama-assn.org
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American Pain Foundation
www.painfoundation.org
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The Hospice and Palliative Nurses Association
www.hpna.org
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Missoula Demonstration Project
www.dyingwell.com/MDP.htm
!The National Organization for Rare Disorders Inc.
www.rarediseases.org
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SUDDEN LOSS
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Books:
Coping with Trauma: A Guide to Self-Understanding
by J. Allen
Healing After the Suicide of a Loved One
by Ann Smolin
I Wasn’t Ready to Say Goodbye: Surviving, Coping and Healing After the Sudden Death of a
Loved One
by Brook Noel and Pamela D. Blair
Living with Grief After Sudden Loss: Suicide, Homicide, Accident, Heart Attack, Stroke edited by
Ken Doka
No Time for Goodbyes: Coping with Sorrow, Anger and Injustice After a Tragic Death
By Janice Harris Lord
No Time to Say Goodbye: Surviving the Suicide of a Loved One
by Carla Fine
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Remember Lee: The End is the Beginning – A Toughing Story About the Unexpected Loss of a Child.
By Linda Musser
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SPIRITUALITY/FAITH
Books:
The Grace in Dying: How We Are Transformed Spiritually As We Die
by Kathleen Dowling Singh
Peaceful Dying: The Step-by-Step Guide to Preserving Your Dignity, Your Choice, and Your
Inner Peace at the End of Life
by Dan Tobin
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Recovering the Soul: A Scientific and Spiritual Approach
by Larry Dossey
Who Dies?: An Investigation of Conscious Living and Conscious Dying
by Stephen Levine
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Websites:
American Association of Pastoral Counselors
www.aapc.org
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Beliefnet
www.beliefnet.com
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