SUGGESTED READING AND WEB SITES ! Following is a list of resources for patients and families to consult for additional knowledge and support. The list is alphabetical by subject. In addition, we have included websites and publications you may find useful. Please allow us to assist you and clarify any of the information. ! Topics on this list: ! Aging Death & Dying Losing a Parent Caregiving Funerals Medical Matters Children Hospice & Palliative Care Sudden Loss Culture Losing your Mate Spiritual/Faith ! ! ! AGING Books: Another Country: Navigating the Emotional Terrain of Our Elders by Mary Bray Pipher Changing Places: A Journey With My Parents Into Their Old Age by Judy Kramer Choosing Medical Care in Old Age: What Kind, How Much, When to Stop by Muriel Gillick ! Consumer Reports Complete Guide to Health Services for Seniors: What You and Your Family Need to Know About Finding and Financing Medicare, Assisted Living, Nursing Homes, Home Care, Adult Day Care edited by Trudy Lieberman Elder Rage or Take My Father...Please! How to Survive Caring for Aging Parents by Jacqueline Marcell From Age-ing to Sage-ing: A Profound New Vision of Growing Older by Zalman Shalomi Shachter ! ! !Websites: Aging With Dignity www.agingwithdignity.org American Association of Homes and Services for the Aging www.aahsa.org ! American Association of Retired People www.aarp.org ! ! CAREGIVING Books: ! Always on Call: When Illness Turns Families into Caregivers by Carol Levine !Another Country: Navigating the Emotional Terrain of Our Elders by Mary Bray Pipher ! Elder Rage or Take My Father...Please! How to Survive Caring for Aging Parents by Jacqueline Marcell ! Grief, Dying and Death by Therese A. Rando ! The Helper’s Journey: Working With People Facing Grief, Loss and Life-Threatening Illness by Dale Larson ! How Can I Help? by Ram Dass ! Midwife for Souls by Kathy Kalina ! Share the Care: How to Organize a Group to Care for Someone Who Is Seriously Ill by Cappy Capossela, Sheila Warnock and Sukie Miller ! ! Websites: ! Caring Road www.caringroad.com ! The Family Caregiver Alliance www.caregiver.org ! The National Alliance for Care giving www.caregiving.org ! Books: ! CHILDREN A Broken Heart Still Beats: After Your Child Dies by Anne McCracken and Mary Semel ! Cancer Pain Relief and Palliative Care in Children by The World Health Organization !! Hospice Care for Children edited by Saraha Zarbock Golzer and Anne Armstrong-Dailey !How to Help Children Through a Parent’s Serious Illness by Kathleen McCue and Ron Bonn ! What Will We Do? Preparing a School Community to Cope With Crises edited by R. Stevenson ! Websites: ! Children’s Hospice International www.chionline.org ! Project Joy and Hope for Texas www.joyandhope.org ! ! Books: ! CULTURE Cultural Issues in End-of-Life Decision Making edited by Kathryn L.Braun, James H. Pietsch and Patricia Blanchette Facing Death: Where Culture, Religion and Medicine Meet edited by Howard M. Spiro, Mary G. McCrea Cumer and Lee Palmer Wandel ! The Spirit Catches You and You Fall Down by Anne Fadiman ! The Perfect Stranger’s Guide to Funerals and Grieving Practices: A Guide to Etiquette in Other People’s Religious Ceremonies by Stuart M. Martins Remembering Well: Rituals for Celebrating Life and Mourning Death by Sarah York ! Websites: The Health and Human Services Office of Minority Health www.omhrc.gov ! Project on Death in America www.soros.org/initiatives/pdia ! ! DEATH & DYING Books: Dying Well: Peace and Possibilities at the End of Life by Ira Byock ! The Eternal Pity: Reflections on Dying edited by Richard John Neuhaus Handbook for Mortals by Joanne Lynn, Joan Harrold, and Rosalynn Carter ! The Tibetan Book of Living and Dying by Sogyal Rinpoche How We Die by Sherwin Nuland ! Life Lessons by Elisabeth Kübler-Ross and David Kessler On Death and Dying by Elisabeth Kübler-Ross Peaceful Dying: The Step-by-Step Guide to Preserving Your Dignity, Your Choice, and Your Inner Peace at the End of Life by Daniel Tobin ! Websites: !Aging With Dignity www.agingwithdignity.org !The American Association for Death Education www.adec.org ! The Center for Advanced Illness Coordinated Care www.coordinatedcare.net ! Growth House www.growthhouse.org ! Missoula Demonstration Project www.dyingwell.com/MDP.htm ! On Our Own Terms: Bill Moyers on Dying www.pbs.org/wnet/onourownterms !Partnership for Caring: America’s Voices for the Dying www.caringinfo.org ! Project on Death in America www.soros.org/initiatives/pdia ! ! Books: ! FUNERALS At Journey’s End: The Complete Guide to Funerals and Funeral Planning by Abdullah Fatteh, Naaz Fatteh and David R. Pearson !A Child’s Book About Funerals and Cemeteries by Earl Grollman ! The Perfect Stranger’s Guide to Funerals and Grieving Practices: A Guide to Etiquette in Other People’s Religious Ceremonies by Stuart M. Martins ! Purified by Fire: A History of Cremation in America by Stephen R. Prothero !Remembering Well: Rituals for Celebrating Life and Mourning Death by Sarah York !The Undertaking: Life Studies from the Dismal Trade by Thomas Lynch ! Websites: !Funerals: A Consumer’s Guide www.ftc.gov/bcp/conline/pubs/services/ funeral.htm !The Funeral Consumers Alliance www.funerals.org !The National Funeral Directors Association www.nfda.org ! GRIEF ! Books: ! A Broken Heart Still Beats: After Your Child Dies by Anne McCracken and Mary Semel !A Decembered Grief: Living With Loss While Others Are Celebrating by Harold Ivan Smith !Grief, Dying and Death by Therese A. Rando !Living When A Loved One Has Died by Earl Grollman !The Mourning Handbook: A Complete Guide for the Bereaved by Helen Fitzgerald !Safe Passage: Words to Help the Grieving Hold Fast and Let Go by Molly Fumia !Surviving Grief and Leaning to Live Again by Catherin M. Saunders !Understanding Grief by Alan Wolfett !The Undertaking: Life Studies from the Dismal Trade by Thomas Lynch ! ! Books: ! HOSPICE & PALLIATVE CARE All Kinds of Love: Experiencing Hospice by Carolyn Jaffe and Coral Ehlrich ! Cancer Pain Relief and Palliative Care in Children by The World Health Organization ! The Dying Process: Patients’ Experiences of Palliative Care by Cicely M. Saunders, Mary Baines and Robert Dunlop !Dying Well: Peace and Possibilities at the End of Life by Ira Byock !Hospice and Palliative Care by Virginia F. Sendor and Patrice M. O’Connor !The Hospice Choice: In Pursuit of a Peaceful Death by Marcia Lattanzi-Licht, John J. Mahoney and Gallen Miller !The Hospice Handbook: A Complete Guide by Larry Beresford !Hospice: Practice, Pitfalls, and Promise by Stephen Connor ! Living With Dying: A Guide for Palliative Care by Cicely M. Saunders, Mary Baines and Robert Dunlop ! Midwife for Souls by Kathy Kalina ! Peaceful Dying: The Step-by-Step Guide to Preserving Your Dignity, Your Choice, and ! Your Inner Peace at the End of Life by Daniel Tobin Websites: Palliative Medicine www.abhpm.org Americans for Better Care of American Academy of Hospice and Palliative Medicine www.aahpm.org ! American Board of Hospice and the Dying www.abcd-caring.org ! American Hospice Foundation www.americanhospice.org ! Center to Advance Palliative Care www.capcmssm.org ! Department of Symptom Control and Palliative Care www.mdanderson.org/departments/palliative Growth House www.growthhouse.org ! The Hospice and Palliative Nurses Association www.hpna.org ! Hospice Foundation of America www.hospicefoundation.org ! National Hospice Foundation www.nationalhospicefoundation.org ! New York Beth Israel Medical Center www.stoppain.org ! National Hospice and Palliative Care Organization www.nhpco.org ! Promoting Excellence in End-of-Life Care www.promotingexcellence.org ! ! LOSING A MATE Books Doors Close, Doors Open: Widows, Grieving by Morton Lieberman How to Survive the Loss of a Love by Peter McWilliams, Harold Bloomfield and Melba Colgrove I’m Grieving as Fast As I Can: How Young Widows and Widowers Can Cope and Heal by Linda Feinberg Letters to My Husband by Fern Field Brooks Widowing: Surviving the First Year by Jane Krimbill and Nancy Brown ! Websites: ! Parents Without Partners www.parentswithoutpartners.org !Society of Military Widows (National Association of Uniformed Services Inc.) ! LOSING A PARENT ! Books !Changing Places: A Journey With My Parents Into Their Old Age by Judy Kramer !Fatherloss: How Sons of All Ages Come to Terms With the Deaths of Their Dads by Neil Chethik !Losing Your Parents and Finding Yourself: The Defining Turning Point of Adult Life by Victoria Secunda !Motherless Daughters: The Legacy of Loss by Hope Edelman !Nobody’s Child Anymore: Grieving, Caring and Comforting When Parents Die by Barbara Bartocci ! ! MEDICAL MATTERS ! Books: !Choosing a Nursing Home: A Step-by-Step Guide by Rick Wilfong !Choosing Medical Care in Old Age: What Kind, How Much, When to Stop by Muriel Gillick !Nursing Homes 101 by Susan Goldberg ! Consumer Reports Complete Guide to Health Services for Seniors: What You and Your Family Need to Know About Finding and Financing Medicare, Assisted Living, Nursing Homes, Home Care, Adult Day Care edited by Trudy Lieberman ! Websites: !American Medical Association www.ama-assn.org ! American Pain Foundation www.painfoundation.org ! The Hospice and Palliative Nurses Association www.hpna.org ! Missoula Demonstration Project www.dyingwell.com/MDP.htm !The National Organization for Rare Disorders Inc. www.rarediseases.org ! SUDDEN LOSS ! Books: Coping with Trauma: A Guide to Self-Understanding by J. Allen Healing After the Suicide of a Loved One by Ann Smolin I Wasn’t Ready to Say Goodbye: Surviving, Coping and Healing After the Sudden Death of a Loved One by Brook Noel and Pamela D. Blair Living with Grief After Sudden Loss: Suicide, Homicide, Accident, Heart Attack, Stroke edited by Ken Doka No Time for Goodbyes: Coping with Sorrow, Anger and Injustice After a Tragic Death By Janice Harris Lord No Time to Say Goodbye: Surviving the Suicide of a Loved One by Carla Fine ! Remember Lee: The End is the Beginning – A Toughing Story About the Unexpected Loss of a Child. By Linda Musser ! ! SPIRITUALITY/FAITH Books: The Grace in Dying: How We Are Transformed Spiritually As We Die by Kathleen Dowling Singh Peaceful Dying: The Step-by-Step Guide to Preserving Your Dignity, Your Choice, and Your Inner Peace at the End of Life by Dan Tobin ! Recovering the Soul: A Scientific and Spiritual Approach by Larry Dossey Who Dies?: An Investigation of Conscious Living and Conscious Dying by Stephen Levine ! Websites: American Association of Pastoral Counselors www.aapc.org ! Beliefnet www.beliefnet.com !