International Conference November 1-3, 2007, Mendel Museum, Museum of Genetics, Brno, Czech Republic Thursday, 01/11 09.00-10.30 Registration & Coffee 10.30-11.00 Opening speech by Josef Kure [Masaryk University, Czech Republic] and by Barbara Prainsack [King’s College London, UK]. 11.00-13.00 Plenary session 1: Forensic DNA profiling and databasing: Fiction, practice, and policy Chair: Frank J. Leavitt [Ben Gurion University of the Negev, Israel] Frans Meulenberg [Erasmus University, Rotterdam, NL] Crime Scene Clichés: The representation of genetic testing and DNA profiling in crime novels and movies Elazar Zadok [Director National Police Headquarters Division of Identification, Israel]: DNA and other forensic databases: Law enforcement vs. human rights Richard Hindmarsh [Griffith University, Australia]: “Essentially Australian”? Civic concerns and governance development in relation to biomedical and forensic databases 13.00-14.00 Lunch 14.00-16.00 Papers 1 - Forensic DNA: ethical and social governance Chair and discussant: Barbara Prainsack [King’s College London, UK] Robin Williams & Michael Barr [University of Durham, UK] DNA Databases and the Forensic Imaginary Helena Machado [University of Minho, Portugal] Paradoxes and contingencies within the establishment of a DNA database for forensic purposes in Portugal Johanna Veth [Mt Albert Science Centre, Auckland, NZ] Ethical implications and social impacts of forensic DNA technologies and applications Maria Corazon A. De Ungria [University of the Philippines] DNA evidence in criminal courts in the Philippines 16.00-16.30 Coffee Break 16.30-18.00 Plenary Session 2: Genetic testing and the government of the self(ves)– Between societal claims and individual entitlements Chair and discussant: Josef Kuøe [Masaryk University, CZ] Peter Dabrock [University of Marburg, Germany]: Which duty first? An ethical scheme on the conflict between respect for autonomy and common welfare Thomas Lemke [Institute for Social Research, Frankfurt, Germany]: Genetics, responsibility, and the limits of choice 20.00 Conference dinner International Conference November 1-3, 2007, Mendel Museum, Museum of Genetics, Brno, Czech Republic Friday, 02/11 09.00-10.15 Plenary session 3: Prenatal genetic testing: Scientific, legal, and societal challenges Chair and discussant: Herbert Gottweis [University of Vienna] Milan Macek [Charles University, Prague, Czech Republic]: Present state and perspectives of preimplatation and prenatal genetic diagnostics and prevention. Anne Waldschmidt [University of Cologne, Germany] Autonomy as self- governance: Biopower in prenatal diagnostics 10.15-10.45 Coffee break 10.45-12.45 Papers 2 - The governance of genetic testing Chair: Anna Durnová [University of Vienna, Austria] Naomi Hawkins [University of Oxford, UK]: Gene patents and translational research for genetic diagnostic tests Peter Kakuk [Central European University, Budapest, Hungary] Governance implications of the concept of genetic information: The case of genetic testing 12.45-14.00 Lunch 14.00-16.00 Plenary session 3: Regulating genetic testing: Are we asking the right questions? Chair: Ursula Naue [University of Vienna, Austria] Judit Sandor [Central European University, Budapest, Hungary] Therapy or Enhancement? Ethical and legal issues in reprogenetics Angus Clarke [CESAGen Cardiff, UK] Missing the point: Governance mechanisms in genetic testing, screening and research 16.00-16.30 Coffee break 16.30-18.00 Plenary Session 4: Regulating genetic testing: Are we asking the right questions? Chair and discussant: Richard Hindmarsh [Griffith University, AUS] Georg Lauss [University of Vienna, Austria] Sharing Orphan Genes: Governing a European Biobanking- Network for the Rare Disease Community Byoungsoo Kim [KoreaUniversity, South Korea] The Debate on the Establishment of a National DNA Database in Korea 18.30 Social event: Wine tasting & dinner International Conference November 1-3, 2007, Mendel Museum, Museum of Genetics, Brno, Czech Republic Saturday, 03/11 09.00-10.30 Plenary session 5: Governing genomics: What have we learned (and what is left to learn)? Chair: Renata Veselska [Masaryk University, Brno, Czech Republic] Martin Weiss [University of Vienna, Austria] Bioethical Consequences of Biotechnologies: From Autonomy to Community to the Body? Anna Durnová [Life Science Governance Research Platform, University of Vienna, Austria] The governance of genomics – A “phronetic” response Frank J. Leavitt [Faculty of Health Sciences, Ben Gurion University, Israel] - Commentary and response 10.30-10.45 Coffee break 10.45-12.30 Plenary discussion Discussing the governance of genomics: cui bono? Nikolaus Zacherl [University of Vienna, Austria] Ursula Naue [University of Vienna, Austria] Robin Williams [University of Durham, UK] Anne Waldschmidt [University of Cologne, Germany] TBA [Masaryk University, Brno, Czech RepublicCZ] Moderator: Barbara Prainsack [King’s College London, UK] 12.30 End of conference