5/10/2016 Disclosure Interventions for Children With Developmental and Movement Challenges, Part I Venita Lovelace-Chandler, PT, PhD, PCS Consultant, Adjunct Faculty UNTHSC & RMUHP • Venita Lovelace-Chandler, PT, PhD, PCS has no relevant financial relationship to disclose. • Margaret McGee, PT, PhD, PCS has no relevant financial relationship to disclose. Margaret McGee, PT, PhD, BSN, PCS Associate Professor, University of Central Arkansas Course Description Session Learning Objectives • PTs and PTAs intervening with children must meet the developmental, postural, and movement needs of young children with a variety of diagnoses. This session provides EB interventions to foster head, trunk, and extremity control; transitional movements; gait; and participation activities. All interventions utilize concepts of child motivation and interaction within the environment for cognitive growth and communication/participation with family members and peers. Examples of interventions include constraint-induced movement therapy, upright mobility, treadmill walking, hippotherapy, and powered mobility. Participants will utilize patient cases and the current guidelines to determine plans of care and support families. After completing this session, you will be able to: 1. Practice and demonstrate interventions to promote movement control and strengthening. 2. Identify and prioritize the best treatment options for specific pediatric clients. 3. Utilize recent articles and best practice guidelines to inform practice, including concepts of child motivation. 4. Plan intervention programs to meet developmental challenges, to foster cognitive and communication growth and participation, and to support families. Real Objectives Course Outline • To inspire people to think and/or act differently. 8:00 8:10 8:40 9:10 • To engage in on-going evidence-based practice 9:20 9:30 Introduction to the course Review the variety of diagnoses seen in pediatric practice and discuss current outcomes regarding early intervention. Practice and demonstrate interventions to promote motor control and strengthening based on current literature and practice guidelines. Gain consensus on the best practices to support families and enhance participation by young children. Questions and Answers Close session 1 5/10/2016 Variety and Complexity of Diagnoses in Pediatrics • • • • • Cerebral Palsy – incidence and types Down Syndrome – incidence Babies born prematurely – incidence/outcomes Torticollis – incidence/related complications Autism Spectrum Disorder – incidence and new classification • Development Coordination Disorder • Spina Bifida Variety and Complexity of Diagnoses in Pediatrics • Genetic syndromes – large variety – SMA, q deletion syndromes, dystrophies • • • • • • Effectiveness of Early Intervention Obesity – Exercise-Deficit Disorder ADHD/Learning differences Seizure disorders; Congenital anomalies – musculoskeletal; cardiac; Fractures, injuries, burns, amputations Your Practice??? Effectiveness of Early Intervention 1. Enhances parent bonding and social interaction within families 4. No specific philosophy has been shown to be efficacious for all children 2. Fosters cognitive development 5. Stretching not usually effective; static positions not usually effective; 3. Specific motor skills do not necessarily improve; more neuromuscular involvement = less improvement unless interventions are intense 6. Exploration/participation most beneficial Concepts Which Have Some Theoretical and Research Support Effectiveness of Early Intervention 1. Perceptual-motor experience within cultural and social contexts forms cognition; 2. Exploration through early behaviors broadly facilitates development; 3. Exploration that is limited = risk for global development impairments; 4. Early intervention targeting exploratory behaviors may advance abilities across developmental domains and times. Lobo, Harbourne, Dusing, McCoy 2013. Grounding Early Intervention: PT Cannot Just Be About Motor Skills Anymore • • • • Early Intervention and Healthy Activities Avoid painful experiences in interventions Practice family-centered care Accept that families (and third party payers) want mobility (upright) and participation • Strengthening & motor control/motor learning to gain, keep and advance motor skills • Consider Dosing Information (when known) 2 5/10/2016 The problem of pain • Young neonates feel pain and possibly feel the pain intensely • Neonates experience a greater intensity of pain than older children because of the inability to modulate and inhibit pain. • They are unable to communicate their pain and provide self-report • Children lose motivation to participate if experience is painful Painful Experiences Cause Structural & Physiological Changes • • • • • • • Use calories needed for growth to control the pain Decreases oxygen saturations Increased heart rate & respiratory demands Increased intracranial pressure Release of stress hormones Altered pain threshold Decreased sensitivity & Increased somatization of unspecific origin • Structural changes in the brain and spinal cord Mitchell & Boss, 2002 Examples of Physiologic & Behavioral Responses to Pain Examples of Physiologic & Behavioral Responses to Pain • Muscle tone – increase • Sleep disturbances • Oxygen saturation decreases – fatigue • Loss of appetite • Facial changes – grimacing, nasal flaring, eye bulging, quivering of chin (jaw clonus), gaze aversion • Sweating, mottling of skin, skin pallor or flushing • Increased release of stressful hormones – changes in insulin production Principles of pain intervention • Physical therapists cannot cause pain AND achieve developmental advancement • Have to manage with environmental and behavioral interventions • Pharmacological interventions may be additive • Pain is not conducive to health • Head banding, fingers and hand flexion, self-biting, back arching, pulling out hair, other self-injurious behaviors Venita’s view of strengthening and movement • Type of contractions must be considered when planning interventions • Apply that concept to total body movements • Use concepts of motor control/motor learning 3 5/10/2016 Venita’s view of strengthening and movement • Type of contractions – easiest to hardest; isometric (submaximal - maximal, joint angle specificity; short arc; eccentric + concentric = increase in strengthening • Apply that concept to total body movements • Use concepts of motor control/motor learning – Repetition, repetition, repetition (practice) to learn the skill – Vary the environment (complexity) to use the skill functionally or for participation Karen Adolph • Twelve- to 19-month-olds averaged 2,368 steps and 17 falls per hour. Novice walkers traveled farther faster than expert crawlers, but had comparable fall rates, which suggests that increased efficiency without increased cost motivates expert crawlers to transition to walking. • Immense amounts of time-distributed, variable practice constitute the natural practice regimen for learning to walk. Venita’s view of importance of being upright • Reticular activating system - The part of the reticular formation in the brainstem that plays a central role in bodily and behavioral alertness; its ascending connections affect the function of the cerebral cortex and its descending connections affect bodily posture and reflex mechanisms. Thought to influence motivation. • Most active when the head is vertical. Infants: Handling/Interventions Turn to the person next to you and suggest 2 important techniques to foster head and upper trunk control Share with group 4 5/10/2016 Venita’s view • What are the MOST IMPORTANT ACTIVITIES to Foster in Infancy and Childhood? • • • • • • Sitting Reaching Looking Standing Upright mobility Participation and exploration What Families Want Family Centered Care • Collaborative partnership with families and practitioners by: – Adapting care – Teaching family priorities – Taking into account learning styles – Addressing emotional stresses – Respecting cultural variability • Understanding that this is not what families “imagined” or “wished for” International Classification of Functioning, Disability and Health • Interactive, complex interactions between individual and the environment • Health – 1. Functional and structural integrity of body parts/systems – 2. Promotion of age appropriate postural and movement activities – 3. Appropriate interaction among the neonate, family and professionals • Upright mobility • Participation • Allows for consideration of impairments, activity limitations and participation restrictions. Principles of Best Practice: Young Children • Avoid causing pain in infants/children • Provide family-centered care • Provide Early Intervention and Transition • Look for opportunities for participatory activities • Promote Health • Use Standardized testing • Use Clinical guidelines • Use research to inform all aspects of patient management • Be able to respond to accountability of families, institutions, third party payers Infants: Handling/Interventions Turn to the person next to you and suggest 2 important techniques to foster sitting, looking and reaching. 5 5/10/2016 Older Infants and Toddlers • Turn to the person next to you and suggest 2 important techniques/interventions to foster trunk and extremity control, transitional movements, and gait activities in upright positions. • Please share some examples and let’s practice together. Dosing Why is Dosing Important? • Key component of clinical effectiveness • Dosing of therapy for children with development disabilities identified as a national priority and will impact health policy • Critical for informed clinical decision-making • Used to establish guidelines for reimbursement Strengthening and Skill • How do you incorporate strengthening into your interventions? • Motor learning principles for skill development? – Practice, practice, practice – Increase complexity through variation What are the components of dosing? • Frequency – # of sessions/week and # of weeks • Intensity – How strenuous is the exercise each session • Time – Length of each session • Type – Mode of exercise Current Topics/Trends • Participation – including tests and measures • Sitting and reaching and looking • Child motivation • Health Promotion and Physical Activity • Strengthening/Motor Learning/Endurance • Complexity or variance of tasks • Treadmill Walking • Upright Mobility • Constraint Induced Movement Therapy • Dosing • Clinical Practice Guidelines 6 5/10/2016 Review of Lit from 2015 Article • Research has indicated that, compared with typically developing peers, children with autism (Wiggs & Stores, 2004), Down syndrome, Prader-Willi syndrome, intellectual disability (Cotton & Richdale, 2010), and cerebral palsy (Newman, O’Regan, & Hensey, 2006) may experience diminished quantity and quality of sleep. This sleep debt may have negative consequences for health & performance of childhood occupations. Impaired sleep can exacerbate behavioral, anxiety, and mood disorders. Variety of Guidelines Great Site for pediatric clinical guidelines • Cincinnati Children’s Hospital Medical Center • Best Evidence Statement (BESt) • http://www.cincinnatichildrens.org/service/j/an derson-center/evidence-basedcare/recommendations/default/ Clinical Guidelines/Summaries • APTA • Section on Pediatrics • Cincinnati Children’s Hospital APTA • NICU • Torticollis • Down Syndrome • Muscular Dystrophy • AOTA and ASHA have guidelines too Suggested Journals for Therapists Treating Infants and Young Children • Pediatric Physical Therapy (journal of the Section on Pediatrics, APTA) • Physical Therapy (journal of the APTA) • The American Journal of Occupational Therapy (journal of the AOTA) • Physical & Occupational Therapy in Pediatrics • Pediatrics (American Academy of Pediatrics) • Developmental Medicine and Child Neurology • Others in your specific area of interest Findings • The findings of the current study are consistent with the emerging shift in disability research from a disablement framework to a framework with a greater emphasis on health and wellbeing (Larson, 2006) and participation in life roles and expectations. • AJOT, Sept/Oct 2015 7 5/10/2016 Purpose • Therefore, the purpose of this systematic review was to examine the broader literature on the effectiveness of occupational therapy interventions for people with ASD that improve parental self-efficacy, (decrease) stress, family coping and resiliency, and family participation in daily life and routines. Exercise Programs for Children with Disabilities • Focus of intervention for school-aged children • Important to avoid potential health issues related to decreased activity level • Avoidance of Sedentary Behavior • Cardiorespiratory Training – Aerobic Capacity – Endurance Participation (ICF-CY) • Defines participation as “involvement in a life situation” • New tests and measures being developed to measure just participation • “Participation is the context in which children develop skills” • Successful participation is critical in achievement of successful outcomes • Muscle Strengthening Participation • Positive relationship between overall functional level and participation • Important because low participation in physical activities has impact on health and overall fitness level Participation Measures for SchoolAged Children • Children’s Assessment of Participation and Enjoyment (CAPE) • Preferences for Activities for Children (PAC) • Child and Adolescent Scale of Participation (CASP) • Participation and Environment Measure for Children and Youth (PEM-CY) 8 5/10/2016 Questions??? • Vlc.phd.pt.pcs@gmail.com • Thank you so much References Begnoche DM, Chiarello LA, Palisano RJ, Gracely EJ, McCoy SW, Olin MN. 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