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A publication of St. Louis Children’s Hospital Foundation • Showing the positive impact your gifts make in the lives of children.
Fall 2014
In this issue:
2 | Showing Impact through
Inspiration
The 2013 Annual Report
website shares 10 inspiring
stories from Children’s Hospital.
3 | Stay Up Late for Play Date
Be a kid again at this totally-notboring new fundraising event
November 22.
5 | Cycling for Lifesaving
Cancer Research
Pedal the Cause event
fueled by the goal
to end cancer for
kids like Janet.
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Meet CiCi
Among the first things you notice about 12-year-old Sylicia Gregory (CiCi) are her winning
smile and her gracefulness, the result of classical dance training.
She started dance at the age of 4 to
continue developing her gross motor skills.
She has studied ballet and jazz at the Center
for Contemporary Arts (COCA) in University
City since age 8. Among the things you don’t
notice about CiCi are her hearing aid in one
ear and her cochlear implant in the other—
the only visible evidence of CiCi’s shaky start
to life.
On January 6, 2002, Latisha Gregory,
CiCi’s mom, had to undergo an emergency
C-section due to a pulmonary edema which
caused her lungs to fill with fluid. Although it
was more than three months until her due
date, CiCi seemed to be fine when she
was born. But because of her early
arrival, she was whisked from
the delivery room at BarnesJewish Hospital to the
Children’s Hospital
newborn intensive
care unit (NICU).
“She came
into the
world
crying and did
well that first day, but things went
downhill from there,” Latisha
remembers.
The next few months were
harrowing for the Gregorys, as the
NICU staff brought CiCi through
several setbacks. They even refer to one
night in that January as “chapel night,”
because that’s where Latisha and her
husband Montoya stayed. “I remember it
was January 21, my birthday, and I did not
want to lose my baby on my birthday,”
Latisha says.
With the help of Dr. Karen Wickline,
pediatric neonatologist, and the expert team
of residents, fellows and nurses in the NICU,
CiCi slowly gained strength. She went home
on April 6, her actual due date, still tethered
to an oxygen machine and wearing an outfit
from Build-a-Bear Workshop because she
was too tiny for infant clothes. She was
diagnosed with hearing loss at 22 months
old and entered the Moog Center for Deaf
“Seeing what she can do now
after seeing her go through so
much as an infant is absolutely
wonderful. The trajectory of her
life points skyward.”
—Dr. Karen Wickline
Education, in west St. Louis County, where
she attended for six years and learned
to speak.
Dr. Wickline, who followed CiCi through
the next three years of her life, still sees her
once-tiny patient regularly, but not in the
clinic. Dr. Wickline also takes ballet lessons
at COCA. “Seeing what she can do now after
seeing her go through so much as an infant
is absolutely wonderful,” Dr. Wickline says.
“The trajectory of her life points skyward.”
DID YOU KNOW? On average, the Children’s Hospital Wish List committee
grants 50-60 wishes per year, providing items funded by donors such as
family comfort bags, hospital wagons, car seats, teddy bears and other
toys, and much more.
continued on page 8
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Annual Report Shares
Inspiring Moments of 2013
A perfect ACT score. It is an impressive
feat in itself, but when the high-school junior
who took the test is undergoing treatment
for leukemia, it is awe-inspiring. At St. Louis
Children’s Hospital, our caregivers and staff
see and hear these kinds of stories every day.
That is why the hospital decided to share 10
of these remarkable moments in its 2013
digital Annual Report, “Inspired By Kids.”
Within the online report, at
StLouisChildrens.org/10, visitors are
encouraged to navigate through the
stories, click on them to watch news clips,
or read more and share with friends and
family on social media.
“It is so inspiring to learn about
patients who have overcome tremendous
challenges,” says Foundation Board
member, Jack Stapleton. “As a board
member and father of five, I know that
Children’s Hospital is a special place that
provides world-class care and is at the
forefront of pediatric research. But when
I hear about the resilience and strength
of these kids, it makes me want to
continue to support the hospital that
supports them.”
Inspiring Moment #6: A former NICU baby
herself, Maya decided to forgo gifts for her 4th
birthday and instead collect items for Children’s
from her family and friends.
PetSmart Paws for Hope is Coming
to St. Louis Children’s Hospital
St. Louis Children’s Hospital Foundation
and PetSmart are teaming up to help fund
the hospital’s pet therapy program and give
more patients and families access to canine
comfort teams. Pet therapy is one
component of Children’s
Hospital’s Healing Arts program,
which also includes art therapy,
music therapy and humor
therapy (the Clown Docs)—all
programs funded by generous
donors.
A goal of this sponsorship is to promote
pet therapy in hopes of growing the program
over the next five years. The PetSmart Paws
for Hope team is currently made up of
twenty TOUCH dogs—specially-trained by
Support Dogs, Inc. of St. Louis to provide
comfort in a hospital setting.
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“PetSmart’s commitment to support pet
therapy is truly amazing,” says Volunteer
Services Manager, Jill Mechler. “Ask the
volunteers who bring their therapy dogs to
the hospital and they will tell you the reward
is so great when they see the way the kids
respond to the dogs. Staff will tell you that
therapy dogs bring such authentic happiness
to our patients...it is incredible to watch.”
Celebrating its 10-year anniversary in 2014, Camp
Rhythm attendees enjoy all that camp has to offer,
including swimming, fishing, rock climbing, talent
shows and more. Photo courtesy of Three Little
Birds Photography.
Unique Camps
for Kids with
Unique Needs
While summer may be over, the
memories made at one of St. Louis Children’s
Hospital’s medically-safe camps are sure to
last much longer.
Funded by the St. Louis Children’s Hospital
Foundation, Camp Rhythm, Camp Hope and
Camp Independence are uniquely designed
to fit each camper’s needs. In addition to
participating in traditional summer camp
activities, kids learn to manage their disease
and have the opportunity to interact with other
children who share their medical condition.
Camp Hope, a camp for children and
families living with AIDS and HIV, marked its
20th anniversary in 2014, while Camp Rhythm,
a camp for children living with heart
conditions, celebrated 10 years. At this year’s
Camp Independence for kids with cerebral
palsy and related conditions, one camper even
expressed her gratitude to a visiting donor:
“Thank you for making this possible. I love
coming to this camp.”
Pepper, a TOUCH Dog and one of his fans at the annual Mardi Gras Dog
parade at Children’s Hospital.
DID YOU KNOW? The Food and Nutrition department at St. Louis Children’s Hospital
provides between 3,500-4,000 meals a day to patients and their families, cafeteria diners,
two day-care facilities and for catering events.
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Save the Date. Stay Up Late.
Join Us for Play Date.
St. Louis Children’s Hospital
supporters are abuzz these days in
anticipation of a new and “totallynot-boring” fundraising event on
November 22 at Union Station.
Like turning a frown upside down,
the first annual Play Date turns
the concept of a traditional gala
on its head.
Want dessert first? No problem.
Want to keep the scratchy tuxedos
and stiletto heels in the closet? Please
do. Tired of rubber chicken dinners and boring dinner speeches? Instead,
how about interactive games, bold color, lots of laughter and surprises
around every corner!
"When we were brainstorming ideas for a new fundraiser, we
asked ourselves why we were planning an event for Children’s Hospital
in the first place,” says event chair Annie Geile. “The answer was clear.
We want all kids to have a chance to be just be kids. Then we thought,
what better way to honor that idea than to help adults remember
what it was like to be kids. And just like that, Play Date was born!”
If this sounds like your kind of gala, hop on to
StLouisChildrens.org/PlayDate and register today. If you have
questions or really just can’t believe what you’re reading
(no tuxedos, we mean it), contact Dina Althardt at 314.286.1549
or dina.althardt@bjc.org.
Rain Didn’t
Dampen
Spirits at Six
Flags Event
The Schenck family enjoys dinner in
the Six Flags World’s Fair Grove after
the rain.
It was a rainy start to the 31st
Annual St. Louis Children’s Hospital
Day at Six Flags on May 30. But that
didn’t stop thousands of loyal
hospital supporters from coming out
to enjoy a catered dinner by J. Buck’s
and a night in the park all to
themselves! Thanks to the support
of many individuals, families and
sponsors, the Six Flags event raised
more than $530,000.
Season Two of The Frontline for Hope Coming Soon
The Frontline for Hope,
the documentary-style series
highlighting the patients and
staff of St. Louis Children’s Hospital
is back with six new episodes,
starting in November on KSDK
NewsChannel 5, and narrated this year by Jon Hamm, a St. Louis native,
and star of the AMC television series Mad Men.
Set to run in half-hour weekly episodes Saturday nights, from
November 22 through December 27, at 6:30 p.m., the series provides a
glimpse inside the doors of the hospital and into its culture. As with
the Emmy-winning first season, the program follows several patients,
families and hospital staff throughout their personal hospital journeys.
St. Louis-based Coolfire Media and Coolfire Originals, creators of shows
for Oprah’s OWN, the Discovery Channel, and NickMom television
networks, returned to produce the six new episodes.
The Frontline for Hope is a collaboration between the
hospital’s marketing department and the St. Louis Children’s
Hospital Foundation.
“At St. Louis Children's Hospital, we are inspired by kids,” says Steve
Kutheis, director of marketing. “That fundamental attitude is present
in everything we do, and creates a culture that is truly unique to us.
The Frontline for Hope is an extraordinary vehicle that will continue to
shine the spotlight on the hospital and recognize our patients and staff for
the stars they are.”
According to Janice Bailey, vice president of the Foundation, the series
fits hand-in-glove with the hospital’s efforts to present the hospital as a
cause worth supporting.
“The first season served to help the community understand the scope
of our services,” Bailey says. “This year, we’re hoping to drive home the
message that much of what we do is made possible only through the
generous support of the community.”
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Joe Buck Golf Classic Scores
Touchdown with St. Louis Rams
On May 12, players of the14th Annual Joe Buck Golf Classic
enjoyed 18 holes on the beautiful course at Old Warson Country
Club. Along with the tournament’s host, Joe Buck, attendees
included St. Louis Rams players who traded their shoulder pads for
golf gloves. The team added their muscle to this year’s tournament
in order to reach the event’s goal line—and it was certainly
a touchdown!
“The Rams have done so much work for St. Louis Children’s
Hospital, so this partnership seemed like a natural fit,” says
Kevin Demoff, St. Louis Rams COO and executive vice president
of Football Operations.
Thanks to sponsors, players and friends, the event
experienced its highest attendance in more than five years and
raised $460,000 to support the Joe Buck Imaging Center at
St. Louis Children’s Hospital.
(L-R) Doug Albrecht,
Kevin Demoff, Josh
Bledsoe, Joe Buck
and Dan Leary
Thank you to our 2014 Joe Buck Classic Sponsors:
Major Sponsor:
Albrecht Family Charitable
Foundation
Ace Sponsor:
Nestlé Purina PetCare Company
Eagle Sponsors:
Alberici Constructors
Alpha Packaging
BJC HealthCare
Centric Group
Enterprise Holdings Foundation
GSO Capital Partners
Hussmann
LDI Integrated Pharmacy
Anita & John O'Connell
St. Louis Rams
Eric Shaefer, Joe DiMartini,
Jake Wilson & Joey Danis
U.S. Bank
Ulrich Medical USA
Post Round Dinner Sponsor:
Bodley Group
Birdie Sponsors:
NewSpace
Schnuck Markets
Par Sponsors:
Harbison Corporation
Rawlings Sporting Goods
Company, Inc.
Tarlton Corporation
Putting Green Sponsor:
Johnson and Johnson Attorneys
Driving Range Sponsors:
Lazard Asset Management
The Northern Trust Company
St. Louis Children’s Hospital Presents Annual
Advocacy Award to Reverend Starsky Wilson
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It’s not the programs, it’s the partnerships that create an
environment where children flourish, according to Reverend Starsky
Wilson, president and CEO of Deaconess Foundation and the 2013
recipient of the St. Louis Children’s Hospital Child Advocacy Award.
The award, established in 1994, recognizes local and state leaders
who leverage their positions, influence and resources to advance
St. Louis Children’s Hospital’s mission to do what’s right for kids.
Wilson, also a pastor and youth leader, attributes his success,
and that of Deaconess Foundation, to the understanding that
making a safer environment for children does not require new
programs or initiatives.
Deaconess Foundation has applied its mission of improving child
health and well-being through its support of, and partnership with,
dozens of local organizations, including St. Louis Children’s Hospital,
where Deaconess funds have made possible programs like the
Healthy Kids Express mobile health program, and the SPOT, an
adolescent drop-in center providing at-risk teens free medical,
social and vocational services.
“Advancing health and hope for children in poverty, this is the
mission of Deaconess,” says Greta Todd, director of child advocacy
and outreach at St. Louis Children’s Hospital. “Starsky Wilson lives
and breathes this mission, focusing his work and the work of the
Foundation toward programs that do what's right for kids in
our community.”
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Reverend Starsky Wilson and Hospital President Joan Magruder (left) and
Kelvin Westbrook (right), chairman of the hospital board of directors.
The advocacy award committee chose Starsky in recognition of
his accomplishments, his partnerships, and his philosophy that any
policy or program planning should begin with the question, “Is this
good for the children?”
“I’m honored to receive the award,” says Wilson. “The greater
blessing is to do the work and to put these children at the center of
the community’s conversation.”
DID YOU KNOW? The Clown Docs, a program funded entirely by donations, bring the
medicine of laughter to nearly 5,000 patients every year.
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Volunteer Spotlight
Young Friends
“Sunny” Fundraiser
Joni Karandjeff is a St. Louis Children’s Hospital Friends
Board member and Small World Gift Shop volunteer.
“I am proud to be associated with St. Louis Children’s
Hospital and contribute to its mission to do what’s right for kids
and their families. It is so rewarding when I see patients
and their parents come into the gift shop to purchase
a memento, shirt, bumper sticker, or other logo item
to commemorate their stay—it shows that despite
the difficult circumstances of being
in the hospital, they are grateful for the care they
have received and want to remember their
experience.”
To celebrate Cancer Survivors Week in June,
the Young Friends of St. Louis Children’s Hospital
gathered poolside at The Cheshire, bringing
“Sunshine Gifts” like sunscreen and pool toys for
cancer patients at the hospital.
Pedal the Cause Team SLCH: Inspired by Janet
This fall, Janet Pruneau has started
kindergarten having already faced
challenges most people don’t
encounter in their lifetime. Before
her fifth birthday almost a year
ago, Janet was diagnosed with a
brain tumor. Before and
immediately after
successful surgery to
remove the tumor, her
doctors at St. Louis Children’s Hospital had no
reason to think hers wouldn’t fall into a welldefined category, treatment protocol and
prognosis. But when studied under a
microscope, Janet’s tumor cells stumped
“She faced the
unimaginable with a
smile on her face.”
—Laura Pruneau
even the top pathologists in the country. No
one had ever seen that kind of tumor before.
In fact, it’s thought to be the only one of its
kind in the world.
To shed light on the way forward,
pediatric neuro-oncologist Dr. Josh Rubin
and his team decided to perform genetic
sequencing on Janet’s tumor cells to decode
their DNA and mutations. They believed
those cells held the information doctors
could use to create a treatment plan with
more confidence.
After a year of radiation treatments and
chemotherapy, through months of
hospitalizations and setbacks, Janet has
shown everyone what a fighter she is. “She
faced the unimaginable with a smile on her
face,” says her mom, Laura Pruneau.
It’s that fighting spirit that moved the
St. Louis Children’s Hospital Pedal the Cause
team to name Janet its ambassador for the
2014 ride later this month.
There is still time to get involved in this
year’s ride on September 28. Whether it’s
riding in the event, Spinning, being a virtual
rider, volunteering, or supporting through a
donation, there are plenty of ways to
contribute to this worthy cause. Celebrating
its fifth year, this important fundraising
challenge benefits pediatric cancer research
through the Children's Discovery Institute
(CDI), a collaboration between St. Louis
Children’s Hospital and Washington
University School of Medicine, one of its
beneficiaries. The CDI’s McDonnell Pediatric
Cancer Center conducts research programs
designed to identify key genetic features and
the biological nature of different tumor
Children’s Hospital is riding in honor of a patient
named Janet Pruneau for Pedal the Cause.
groups, which will lead to improved
diagnostics and therapies.
Janet's brave fight is ongoing and she
continues to receive care from her team at
St. Louis Children's Hospital. Join with the
hospital and ride in honor of this special
little girl.
For more information on how you can be
a part of St. Louis Children’s Hospital’s Team
Janet and ride in Pedal the Cause, visit
StLouis.PedalTheCause.org.
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Thanks to You!
The following is a list of some recent fundraisers various organizations, businesses
and individuals have held to support Children’s Hospital’s mission.
Jilly’s donated more than $2,000 in proceeds
from Kenedy’s cupcake sold in the month of
April to benefit the St. Louis Children’s
Hospital lung transplant program.
■ Brent Bergheger’s 7th annual golf
tournament was once again a great success.
The sold-out event on June 27 was broadcast
live on ESPN 101 Radio and raised more than
$17,000 for cancer research at Children’s
Hospital. Bergheger’s tournament has raised
more than $93,000 since its inception.
■ In honor of Kenedy Hope Maze, a 15-yearold Children's Hospital patient who recently
celebrated the one-year anniversary of her
double lung transplant, Jilly’s Cupcake Bar &
Café created “Kenedy’s Key Lime Cupcake.”
■ Inspired by Children’s Hospital brain tumor
patient Jackson Steinkuehler, 36 men came
together on the Blackburn College soccer field
from April 10 to 13 attempting to break the
Guinness World Record for the longest soccer
game ever played—and to bring awareness and
raise money for pediatric cancer research. The
World Record Soccer Game was created by
Jackson’s dad, Rob Steinkuehler, who is head
coach for Blackburn’s men’s soccer team.
Although the game did not break the record, the
event received extensive media coverage,
including a story on NBC’s Today Show and raised
$43,000 for brain cancer research at St. Louis
Children’s Hospital.
■ “Loping and Leading for a Cure,” the Mark
Harrell Horse Shows hosted a night of
entertainment during its March to the Arch
event to benefit St. Louis Children's Hospital
for the fifth year. The $75,000 raised will
support the March to the Arch Endowment
Fund for cancer research through the
Children’s Discovery Institute at Children’s
Hospital.
Donate Your Car for Kids
Turn your car into care! Donating a car is an excellent way to get rid of an old,
unwanted vehicle and help the kids at St. Louis Children’s Hospital.
We’ve partnered with Charitable Auto Resources, Inc. (CARS) because they have
years of experience, and have helped thousands of people donate cars, trucks, boats,
RVs, and other vehicles nationwide. We trust them to make your car donation convenient
and hassle-free.
When you pledge your vehicle, a customer
service representative from Charitable Auto
Resources, Inc. will take your information and
handle everything from processing documents,
vehicle pick-up, charity auction sale, and
distribution of proceeds to St. Louis Children’s
Hospital. Donating your car frees you from the
hassles of selling, and proceeds from the sale of
your vehicle will allow us to continue our mission
of doing what’s right for kids!
For more information on how to donate your
car, visit StLouisChildrens-cardonations.org.
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Attention Fundraisers!
St. Louis Children’s Hospital is always
grateful for fundraising efforts and in-kind
donations by area organizations and
individuals. Still, it is important to remember
that Children’s Hospital must approve all
events that use the St. Louis Children’s Hospital
name and logo. If your group would like to
organize a fundraising effort or in-kind drive to
benefit Children’s Hospital, please contact
Kathryn Lodes at kathryn.lodes@bjc.org or
314.286.0976. Thanks for helping do what’s
right for kids!
DID YOU KNOW? St. Louis Children’s Hospital is one of the world’s leading treatment and
clinical research centers for diabetes, providing comprehensive care for pediatric patients
throughout the entire diagnostic and treatment process.
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Hospital Leader Turns Tragedy to Hope
Through Endowment
“There are two things that help me put one
foot in front of the other every day.
This hospital and that endowment fund.”
—Peggy Gordin
Peggy Gordin
When Peggy Gordin came to St. Louis
to become vice president of patient care
services at St. Louis Children’s Hospital, she
felt drawn here from Children’s Hospital of
Philadelphia as if by a magnet. Part of that
pull came from the opportunity she saw to
build the hospital’s influence on child and
adolescent mental health in the region.
Peggy came by that passion the most
difficult way imaginable. She and her
husband Richard lost the battle they waged
for years against the drug addiction that took
hold of their son Michael in his teens and
wouldn’t let go. When Michael died in 2011,
Peggy and Richard wanted to do something
to honor his memory and make whatever
difference they could to prevent other
families from going through what they
endured.
“I am on a mission to de-stigmatize
childhood mental and behavioral health
issues so that children who suffer can receive
Free Estate Planning Service
Does your estate plan need a checkup? Are you interested in
how you can save money on taxes and protect a larger share of
your assets for your family and charitable goals?
St. Louis Children’s Hospital provides for its employees,
friends and donors a free, confidential service to help structure
your estate plans according to your wishes. If you already have a
plan, this service will provide an unbiased second opinion about
your options. There is no obligation to purchase anything, and
no expectations regarding gifts to St. Louis Children’s Hospital or
any other charity.
For more information, please contact Jan Rogers, Manager of Gift Planning at
St. Louis Children’s Hospital Foundation, at 314.286.0981 or jbrogers@bjc.org.
Bright Minds Take Center Stage at
Upcoming CDI Investor Symposium
Interested in learning about the research projects underway at the Children’s
Discovery Institute (CDI) that are leading to transformative and life-saving discoveries?
Join St. Louis Children’s Hospital and Washington University School of Medicine for the
7th Annual CDI Investor Symposium. Enjoy an evening of illuminating hands-on
presentations and robust panel discussions with CDI researchers, and find out how these
bright minds are pushing the boundaries of discovery. The CDI was established to provide
seed funding for up-and-coming scientific investigators who are seeking the answers that
will advance pediatric care.
the care they need,“ she says, explaining why she
so enthusiastically welcomed the assistance of
estate planning consultant Michael Geis.
The St. Louis Children’s Hospital Foundation
offers Geis’ values-based estate planning
consultations as a no-cost, no-obligation service
to the hospital‘s employees, friends and donors.
A senior vice president with Thompson and
Associates, Geis led the Gordins through a
thorough and thoughtful process to help
structure their estate plans according to their
exact wishes.
“He provided us with the structure and
support we needed to explore our values and
develop a plan that reflects those values,”
Peggy says.
What came out of their series of planning
sessions was an endowment fund in Michael
Gordin’s memory to provide mental health and
psycho-social support services for patients at
Children’s Hospital.
“There are two things that help me put one
foot in front of the other every day,” Peggy says,
“this hospital and that endowment fund.
Caregivers who encounter behavioral and
mental health issues in patients being
hospitalized for other reasons should feel they
have the resources necessary to address those
secondary issues. This endowment helps ease
my mind that we are doing what we can to make
sure that’s the case.”
Event Details
WHEN: November 18, 2014
from 6:30 - 8:30 p.m.
WHERE: Charles F. Knight Executive Education
& Conference Center at the Washington
University Danforth Campus, 2nd Floor
Cocktails and hors d’oeuvres will be served.
RSVP to Erin Carnes at erin.taake@bjc.org or
314.286.1573.
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Go Green With Us!
Because the price of printed materials can be costly and because we
want to stay in touch with you regularly, we encourage you to sign up for
e-gifts, our monthly e-mail newsletter as a fun, easy way to stay connected!
Each month, you’ll meet a patient who has been helped because of your
support. You’ll learn the latest on recent events and we’ll offer you fun
opportunities to support the hospital.
To receive the e-gifts newsletter, simply send your name and e-mail
address to Stephanie Perry at sperry@bjc.org. And, if you would rather
receive this Gifts magazine via e-mail rather than in your mailbox, we can
update our records once you let us know. Thank you!
St. Louis Children’s Hospital Foundation
One Children’s Place
St. Louis, MO 63110
Fall 2014
Non-Profit
Organization
U.S. Postage
PAID
St. Louis, MO
Permit No. 858
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Meet CiCi
continued from page 1
Indeed, CiCi is bound for greatness if this summer’s
experience is any indication. She tried out and earned a
place at the ballet barre of the Dance Theatre of Harlem
Summer Intensive program. Its website calls the
program “a challenging exploration of ballet and
allied arts.” CiCi just calls it fun.
“Dancing makes me feel so free,” CiCi says.”I love
the music. I love to move and be athletic. It’s just fun.”
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DID YOU KNOW? In 2013, an all-time high of 135 nurses participated in
the Children’s Hospital Professional Nurse Development Program, which
provides opportunities for nurses to build their clinical and leadership skills.