“I don’t hear or see so well these days…” Can older people with sight and hearing loss still enjoy life? n No 3 Yes – with the right support n A growing population As we get older, so many of us have sight and hearing problems that it is often accepted as a normal part of ageing. But if we all deny the issue in this way it means that too many older people miss out on the support they need. n W e expect a big rise in the numbers of people with sight and hearing problems over the next 20 years because of the ageing population. n R esearch shows that there are currently 222,000 people aged over 70 with dualsensory loss in the UK. By 2015 this will rise to 254,0001. n By 2030, nearly half a million people in the UK will have sufficient sight and hearing loss to be considered ‘deafblind. Of these, 418,000 will be over the age of 702. n More than 50 per cent of people over 60 will be affected by some type of hearing loss (Age UK)3. n Of the two million people with sight loss in the UK, over 80 per cent are over 60 and 45 per cent are over 80 (RNIB)4. Enjoy life! “Not being able to see or hear well in later life can be a real challenge. Getting out of the house, taking part in favourite leisure activities, keeping in touch with friends and family are all made more difficult by sensory loss. Yet, as we get older, keeping active is increasingly important for staying well. Being active mentally can certainly keep us active physically, and keep us young in mind and body. Sense aims to… make sure older people with hearing and sight loss are able to live full and active lives.” Nicholas Parsons Lost from view Sense research5 confirms what we have long suspected – that the needs of older people with sight and hearing problems are often overlooked. Older people are telling us that this makes them lonely, depressed and unable to cope. Without help, people may be forced to give up their homes and move into residential care where – our research shows – few staff have the training to understand their needs. And yet, with the right support, older people with dual sensory impairments can continue to enjoy a reasonable quality of life. This may be in their own home, or in residential care. Either way, it is quite possible to support older people with sight and hearing problems to get the best out of life. What do you expect? As we get older, we expect our sight and hearing to get worse, don’t we? It goes along with going grey, forgetting where we left the keys and not being able to get out the chair quite so easily. The older generation is often stoical about these changes. So stoical in fact, that they may be reluctant to acknowledge that they aren’t seeing or hearing too well – or to ask for help. The people they know – their family or care workers for example – may also not realise that the older person is having difficulties, or know how to support them with this. The combined effect of sight and hearing loss is very disabling – the two impairments impact on each other and multiply the total effect. All too easily, older people can become increasingly cut off and lonely, struggling to connect with friends and families, and unable to cope with everyday life. If you can no longer easily see or hear the television, listen to the radio, read your letters, use the phone or have a conversation you become isolated from people, events and society. This sensory deprivation can lead to extreme levels of boredom, stress, depression and sometimes confusion. n If you can’t see well it is hard to cross the road safely, so you may need to ask for help. But how can you do that if you can’t hear what people are saying to you in a noisy street? n If you find it hard to hear what someone is saying, you may watch their lips and facial expression for clues. But if you become partially sighted as well, how will you understand what is being said? “All too easily, older people can become increasingly cut off and lonely” 3 Recognising the tipping point “Despite the many challenges, older people with poor sight and hearing can still enjoy life” Once someone is 80 or more there is a much higher chance that they will increasingly struggle to see and hear what is going on around them. It can feel like life is fading away. Because this happens gradually, the older person and their family often don’t notice the moment when it starts to have a serious impact. It can all get mixed with other changes caused by aging – such as health problems or memory loss. Older people with sensory loss may find it harder to take exercise, eat a healthy diet, maintain social contacts or get to the doctor – among many other things. Unsurprisingly, loneliness and depression can creep into the picture. This is why Sense is a managing partner of the Campaign to End Loneliness. It is understandable that older people with sight and hearing problems may not find it easy to face combined sight and hearing loss. However, if they, or their family, can recognise the impact it is having on their life, it can be a passport to getting help via local authorities. Four out of five older people do not live in care homes6 so support at home can be critical to them. Not supporting older people with dual sensory loss can lead to higher costs later on – for older people themselves and their families, for local authorities and the NHS. So what can be done? Despite the many challenges that poor sight and hearing bring, older people can continue to live independently and enjoy life – provided people understand their needs and they get the right help. Local authorities have a legal duty to offer a specialist assessment, which can help identify support and equipment which would make a difference to peoples’ lives. For example, a communicator guide might: n guide the older person to the shops or accompany them to the doctors n help them with their post and bills n help them to keep up friendships and meet others in a similar position. To find out how to get a local authority assessment contact Sense Advice & Information – see details on back cover. 4 Family and friends Families and friends can also contribute. Helping a family member adapt and arrange the furniture and interior space of their home to suit them can help them avoid falls and injuries. Here are some more tips: n Use clear speech (a little slower and louder than usual with clear lip patterns, but not too exaggerated) n Face the light so that your full face can be seen. n Avoid background noise. Turn off the TV or radio or move somewhere quieter n Check that hearing aids are turned on and working. n Don’t hurry – take your time and check that the older person understands. n Be aware that if a person is smiling and nodding it doesn’t necessarily mean they have understood you. n For older people whose sight and hearing loss is severe, learning Braille or deafblind manual (a form of sign language using touch) is challenging but can reap rich rewards. And here are some common sense things NOT to do when you visit: n Don’t move furniture or objects in someone’s home without discussing it first. The tea caddy you moved is as good as lost! n Don’t leave someone without explaining that you are going, or they could end up talking to an empty space. n Helping a family member adapt and arrange the furniture and interior space of their home to suit them can help them avoid falls and injuries. Older people in care homes Sense research carried out with the University of Birmingham has shown that many care home staff are unaware that the people they look after are likely to have sight and hearing problems. And very few have received training in this area. None of the staff interviewed in the research were aware that local authorities have a duty to assess older people with dual sensory loss. Most said they didn’t have time to stop and spend time talking to residents, and were unaware of accessible materials – like large print books or playing cards. The research also showed that none of the 88 care home residents we spoke to – who all had with both sight and hearing loss – reported that they had a dual sensory loss. Instead, they spoke about sight and hearing loss separately. This means that the substantial sensory needs of older people living in care homes are just not being met. 5 However, there are some simple solutions in care homes that are quick and inexpensive to introduce. For example: “Use Sense’s simple screening tool to identify which residents are really struggling with both sight and hearing” n Loop systems, good hearing aids and personal amplifiers can all help older people to hear better. Excellent hearing aids are available on the NHS. n Colour contrast – if you serve cauliflower cheese on a white plate on a white table, people won’t be able to find their meal! So use a blue plate and that will help. n Paint door frames and skirting boards a colour that contrasts with the doors, walls and carpets; or add floor textures to help people navigate the building. n Use Sense’s simple screening tool to identify which residents are really struggling with both sight and hearing For more information about Sense and the University of Birmingham’s research in care homes for older people see: http://www.sense.org.uk/publications/identification-and-assessment-needsolder-people-combined-hearing-and-sight-loss-0 Sense’s free checklist to identify older people living in care homes for sight and hearing loss is available at: http://www.sense.org.uk/sites/default/files/Fill_in_the_Gaps_Checklist_2011.pdf Sense is also currently working with the University of Staffordshire to investigate how dual sensory impairment in older people affects their ability to deal with everyday life in their own homes, and whether that influences their decision to move to a care home. What could you do to support an older person with their dual sensory loss? See Sense booklet Enjoy Life! for more tips about communicating, getting out, adapting the home to make everyday life easier and getting specialist support. Available from Sense Information and Advice service, contact on back cover. Just because someone has sight and hearing difficulties, doesn’t mean they can’t live well Enjoy life! sight Guidance on helping older people with 6 and hearing problems 1 A personal story It might seem unlikely that an older person with sight and hearing loss could enjoy art. Yet, with the help of a kind gesture from her brother, Pat rediscovered her love of creativity. Pat Cree, 70, from Leicester has always enjoyed creating art. When she started not being able to see and hear very well – about five years ago – she found her confidence draining away and became very low. Pat, who has a hearing problem, also has macular degeneration which causes a gradual loss of central vision. “As a child I always had a pencil in my hand and later on I took up needlework and painting. When I started losing my sight, it took me time to adjust with my changed life, but it was essential I did not give up,” Pat said. Her condition meant she could now only look at pictures out of the corner of her eye and with the help of a magnifying glass or a camera gadget. But when her brother gave her some acrylic paints, she decided to give painting another go. Pat developed new ways of working and techniques to get around her sight loss – like sprinkling shavings from her oil pastels onto a prepared board which she puts into a microwave. When the picture comes out of the microwave the pastels have melted a bit and the painting is intriguing to touch. “Painting again has given me a sense of achievement, a sense of worth” “My first attempt at this got a bit burnt in the oven!” she said, “but you learn from your mistakes. Being able to paint again was very important to regain my confidence. I realised I just needed to make small adjustments and I could enjoy life like I used to.” Pat has joined a Sense forum in Leicester where she meets up with other people who have lost their sight and hearing later in life. They’re a friendly crowd, who share their troubles and help each other out. Pat even gave a talk to the group about her artwork and her pictures were recently exhibited in a local church. “Painting again has given me a sense of achievement, a sense of worth,” she said. “I can do something creative. And while I can still do it, I will do it!” References 1 Robertson and Emerson; CEDR Research Report 2010: 1 April 2010 2 Sense/CeDR, 2010 3 Age UK:http://www.ageuk.org.uk/healthwellbeing/conditions-illnesses/hearing/ 4 RNIB: http://www.rnib.org.uk/ livingwithsightloss/copingwithsightloss/ older-people/Pages/older-people.aspx 5 The Identification and Assessment of the Needs of Older People with Combined Hearing and Sight Loss in Residential Homes, Sense/University of Birmingham 2010 http://www.sense.org.uk/sites/default/ files/BUPA_%20final_%20report_%20 March_%202012_0.pdf 6 http://archive.audit-commission. gov.uk/auditcommission/ sitecollectiondocuments/AuditCommission Reports/NationalStudies/financialimpact sofanageingpoplitreview.pdf 7 About Sense Sense is a national charity that supports and campaigns for children and adults of all ages who have a combination of sight and hearing impairments – often called deafblindness. We provide tailored support, advice and information – as well as specialist services to all deafblind people, their families, carers and the professionals who work with them. We also support people who have a single-sensory impairment with additional needs Sense also carries out research into key issues that impact on deafblind people and their families. Research that we commissioned from the University of Birmingham for example, revealed that older deafblind people are often overlooked in residential care. As a result, we trialled a questionnaire which is being used to help staff to identify older deafblind people who need support. Our thanks to Bupa who funded our research with the University of Birmingham into the needs of older dual sensory impaired older people in care homes. For more information Sense Advice & Information Line Tel: 0845 127 0066 or 020 7520 0972 Textphone: 0845 127 0066 or 020 7520 0972 Fax: 0845 127 0061 Email: info@sense.org.uk www.sense.org.uk Enjoy Life! Guidance on helping older people with sight and hearing problems http://www.sense.org.uk/enjoylife 8