VOICES FROM AG BELL Conversations With Alex Graham I n case you haven’t noticed, leadership is the theme of this edition of Volta Voices. As the executive director, I feel very fortunate to work with so many talented volunteer leaders from all aspects of the AG Bell community. For this column, I would like to introduce you to Corrine Altman – a long-time AG Bell member and co-president of the AG Bell Nevada Chapter, and now a new AG Bell national board member. member and I’m glad I did. When you become a parent of child who is deaf, there are emotional and educational needs to be met. The personal testimonies and stories in the association’s newsletter and Volta Voices gave me hope and a “stick with it, you can do it attitude.” So here I am, 26 years later! Alex Graham: How did you first get involved in AG Bell? C.A.: After so many years involved with hearing loss and families it is hard to pick just one. Cochlear implants and hearing aides are incredible tools. However, there is a lot more to making them work for you than just having them. My wisdom would come in the form of a mandatory action list for parents: do your best to accept your child’s hearing loss; make sure that you have regularly scheduled audiology appointments to monitor progress and the effectiveness Corrine Altman: Two professionals, Cathy Cottle, teacher of the deaf in the Clark County School District in Las Vegas, Nev., and Pam Hansen, a speech therapist, recommended that I get involved. My two oldest children were diagnosed with severe to profound hearing loss. As a family, we chose spoken language as our desired outcome. I took their suggestion and became an AG Bell A.G.: If you could share one piece of wisdom for a parent who has just received their child’s diagnosis, what would it be? 0HOTO#REDIT2AINBOW-EDIA0RODUCTIONS)NC Meet Corrine Altman Patricia “Corrine” Altman is co-president of the AG Bell Nevada Chapter. She and her husband, Arnie, own Rainbow Media Productions, Inc., a video production, photography and event coordination company in Las Vegas, Nev. She is the mother of five children; her eldest two, now adults, were born profoundly deaf and learned to listen and talk. Altman was instrumental Corrine Altman in front of the Volta Bureau, AG Bell’s historic national headquarters, in Washington, D.C. in the passage of newborn hearing screening legislation in Nevada, which took effect in 2002. Since 2006, along with a team of volunteers, she has helped revive the AG Bell Nevada Chapter, which received the Chapter Education Award at the AG Bell 2008 Biennial Convention. With the guidance of the John Tracy Clinic she started and runs a monthly support group for parents of children with hearing loss. 36 of your child’s device, such as updates to mapping for a cochlear implant; take guidance and direction from qualified educators; continue on-going speech therapy; and get involved in a support group that connects you to others on the same journey. Support groups help both the child and the family. Also, if listening and spoken language is your outcome, it is time sensitive, so get busy! While the first few years will feel non-stop, the pace won’t last forever and the rewards are worth it. For me, AG Bell and the John Tracy Clinic were the best resources for these early years. A.G.: What’s it like to be a leader at the grassroots level? C.A.: Two words come to mind when I think of volunteer grassroots leadership: disheartened and awakened. First, disheartened. We live in a “quick fix” society and everyone from parents to hearing specialists to educators need to be reminded that listening and language will not have instant results. Everyone involved in the journey needs to be dedicated to the work ethics that produce the proven results for a child with hearing loss. For example, in the 1990s when a family went through the candidacy evaluation for receiving the cochlear implant, follow-up therapy was mandatory, almost as important as the surgery itself. This type of counseling is not consistently happening today. We need to paint the whole picture for families and professionals. Hearing technologies are not a quick fix. They offer ongoing solutions that allow individuals to reach their potential, but along the way there will be many hills to climb. But it is so worth the climb! As a leader, I feel awakened. 2010 is a different age for families, individuals and professionals who deal with hearing loss. The sky is really the limit for opportunities and options as early detection and intervention are 6 /,4! 6 /)# % 3s - !9 *5 . % producing amazing results. At times it is exhausting, but when you see lives being changed and potential being reached, it’s rewarding! A.G.: To what do you attribute the success of the Nevada Chapter? C.A.: Passion, relationships and hard work – in that order! Passion drives the relationships and hard work. The Nevada Chapter was originally founded in 1997 and in 2006, Cathy Cottle and Kim Sorenson (a mother of a daughter with hearing loss and professional in our local school district) approached my husband, Arnie, and me about rekindling the Chapter. It was the combined passion, talents and gifts of the above individuals that turned this spark into a flame. It’s not a one-man show and it’s not about a title or position. It’s about embracing a worthy cause and working together to make something happen. We let the mission statement of AG Bell, “Advocating Independence through Listening and Talking,” be our guide. Everything we do, from educa- tion to purpose-driven events and support meetings, reflects the mission statement. Tap into your community for support by forming relationships and educating others about AG Bell’s mission. You will be amazed how many caring people and companies will partner along side of you. And don’t forget those seasoned families, the ones that have been on the journey for a while. Their lives might be a little more flexible to help here or there. Lastly, our Chapter looks different than it did four years ago. We just keep adjusting to meet the needs of our local Chapter members. A.G.: Are there any issues on the horizon for families living in the presence of hearing loss that AG Bell should address? C.A.: During this journey of raising and educating our children with hearing loss, there will always be issues. For the past 100+ years AG Bell has reached out to the professionals, individuals and families affected by hearing loss. What can AG Bell the organization do and continue to do to help in this area? Just recently, being appointed to the board of directors, I attended my first board meeting at the Volta Bureau building, AG Bell’s historic national headquarters in Washington, D.C. There was something very magical about sitting in the building that Alexander Graham Bell built. For me, it was a reminder to never forget where we came from and to look with great anticipation on where we are going. So, back to the question…I say keep doing what you are doing! AG Bell has been providing resources and quality information that brings about education, hope and change. The AG Bell Academy is vital because it equips and certifies educators and therapists to work with our children in this everchanging area. Please, don’t lose the passion this organization was built on and continues to thrive on. Editor’s Note: To learn more about the AG Bell Nevada Chapter, read “AG Bell Chapters: Community Building” on page 26 or visit www.agbellnv.com. "SFZPVUJSFEPGTBZJOH¥8IBU ¦ XIJMFPOUIFQIPOF 'SFF$BQUJPOFE5FMFQIPOF4FSWJDFTCZ4QSJOU$BQ5FMFOBCMFT JOEJWJEVBMTXJUIIFBSJOHMPTTUPSFBEXIBUUIFJSDBMMFSTBZTXIJMF UIFZTQFBLBOEMJTUFOPOUIFQIPOF $PNFUP#PPUI 5SZPVS4QSJOU$BQ5FMJ BOE4QSJOU8FC$BQ5FM :PVXJMMCFBNB[FE 'PSNPSFJOGPSNBUJPOBCPVU 4QSJOU$BQUJPOFE5FMFQIPOF QSPEVDUTBOETFSWJDFTWJTJU TQSJOUSFMBZDPNDBQUJPOFE@UFMFQIPOF Although CapTel can be used for emergency calling, such emergency calling may not function the same as traditional 911/E911 services. By using CapTel for emergency calling, you agree that Sprint is not responsible for any damages resulting from errors, defects, malfunctions, interruptions or failures in accessing or attempting to access emergency services through CapTel; whether caused by the negligence of Sprint or otherwise. Other restrictions apply. ©2010 Sprint. Sprint and logos are trademarks of Sprint. CapTel is a registered trademark of Ultratec, Inc. Other registration marks are the property of their respective owners. 6 / ,4! 6 / )#%3 s-!9 *5 .% 37