Compassion 2 0 1 2 A n n u a l R e p o r t in Action National Foundation for Ectodermal Dysplasias G R EET I N G S 2 0 1 2 A n n u a l R e p o r t Dear friends, W Empowered. Confident. Tenacious. hen families have a loved one diagnosed with a rare disorder like ectodermal dysplasia, they often feel powerless and uncertain about the future. For more than three decades, the National Foundation for Ectodermal Dysplasias (NFED) has worked to give them the support, information and resources they need to feel empowered, confident and tenacious! Empowered families are their own best advocates. Confident individuals will pursue their dreams. Tenacious parents will do whatever it takes to provide for a bright future for their children and for future generations. These are the values on which we base all of our programs at the NFED. We take our compassion for ectodermal dysplasias families and turn it into action. You see it when a staff member allays a new mom’s fear and gives her extensive information. Liaisons connect with families to share their experiences and turn their fears into hope. Children’s self-esteem soars as they bond with others like them at Family Conference. Watching a child with his first dentures or a teenager’s personality transform as he beams with happiness over his new smile is life-changing. We help families overcome the obstacles they face to find a dentist willing to treat them through our expanded network of Dental Treatment Centers, insurance mentoring and educating them on how to work with their dentist. Our tenacious efforts for the past 20 years for x-linked hypohidrotic ectodermal dysplasia (XLHED) research are yielding unprecedented results with Edimer Pharmaceuticals drawing closer to testing the safety of a potential treatment in affected newborns. Their work gives promise that future generations of parents will have treatment options that were only dreamed of 30 short years ago. Active family participation and funding projects for more rare ectodermal dysplasias like focal dermal hypoplasia syndrome and ankyloblepharon-ectodermal defects-clefting syndrome moves us closer to understanding what causes those rare syndromes. To help us continue meeting our mission successfully, we will implement the Helping Hands program in 2013. This effort will engage families and friends to participate, volunteer and give of their time and talents to the foundation. We invite you to read these pages and learn how, together, we help families around the world become empowered, confident and tenacious. Thank you, as ever, for your support in helping us turn compassion into action. Sincerely, Judy M. Woodruff, C.F.R.E. Executive Director Anil S. Vora Board President On the cover: Eighteen-month-old Erin Brown is slowly healing from skin erosions caused by her type of ectodermal dysplasia. P A G E 1 Empow S UPPO R T Empowering someone means to promote their self-actualization, to give them what they The NFED believes everyone affected by ectodermal dysplasias and their families should be empowered to be their own best advocate. Educated parents can better serve their family. P A G E 2 wer need to live their best life. How a Long Distance Connection Helped New Parents F irst time parents, Warren and Shannon Brown, were in complete shock when their daughter Erin was born. Her skin was sloughing off as the nurses tried to move her. It took six weeks and several wrong diagnoses before doctors confirmed that Erin was affected by ankyloblepharon-ectodermal defects-clefting (AEC) syndrome. Life was hard for Erin’s first eight to ten months. Dressing changes every three hours for her fragile skin were painful. Overwhelmed, Warren and Shannon were miserable to see their daughter in such pain. They felt so alone. Shannon struggled to come to terms with the reality that her daughter had so many challenges, none of which she envisioned. “I know I can post any question and people will answer my questions and share their experiences.” The lead for the team of doctors treating Erin connected the Browns with the NFED. They talked to the staff and then to other families with AEC. They felt more reassured that Erin was going to be ok and it wasn’t going to be the end of the world. Erin connected with Ruth Geismar, whose 14-year-old son Ryan was affected by AEC and had experienced skin erosion like Erin’s. 2 0 1 2 A n n u a l R e p o r t 2012 Support Spotlight T he NFED is the only agency in the United States and the leading agency in the world supporting the ectodermal dysplasias community. We identified and helped 314 new patients in 2012. We continue to support them and the other 6,700 families through: • The National Family Conference: Eighty-seven families affected by six different syndromes from six countries learned the latest treatment and research information for their condition and networked with a caring group of families who daily share their challenges. • Webinars: Two hundred people participated or accessed six, free, online educational webinars on ectodermal dysplasias treatment topics. • Education Scholarships: The NFED awarded 10 students affected by ectodermal dysplasias $9,500 in scholarships to enable their college education. • Family Liaison Program: The NFED connected families with 20 Family Liaisons located throughout the United States who are affected by ectodermal dysplasias or are the parent of a child with the condition. Liaisons provided moral support, information, practical advice, and resource information to help others know they are not alone. “She helped me the most,” Erin recalls. “I had a million questions and she answered all of them. Our stories were the same. I feel a very strong connection with Ruth, even though we have never met. “Everyone with NFED is so willing to help. I know I can post any question and people will answer my questions and share their experiences. That’s amazing for us!” Little Erin continues to heal every day. This sweet baby is crawling and can point to her head and tummy when asked. “Erin’s personality is really starting to develop. We understand now that she really is going to be ok.” P A G E 3 T R E A T M ENT Confide Confidence is having a feeling or consciousness of It relates to self-assuredness in one’s The NFED believes that every person deserves a smile. Teens shouldn’t have to worry if their dentures will slip. Children should never be called names because their teeth are shaped differently. Adults shouldn’t need to remortgage their homes to pay for dental treatment. P A G E 4 2 Smiles make the child in all of us feel confident. Barriers are everywhere for people affected by ectodermal dysplasias. There are insurance denials, $100,000 treatment plans, finding a dentist. That’s why the NFED has worked hard for 30 years ence to find innovative solutions that remove those barriers and help bring smiles to life. 0 1 2 A n n u a l R e p o r t Bringing Trae’s Smile to Life T rae Gulgin was 14 and had been wearing the same pair of dentures for five years. His parents talked to dentists from NFED’s Patient Care Council at a Family Conference who saw cracks in his dentures. The teeth were also too small now that Trae’s mouth had grown. They suggested they talk to their dentist about new dentures. Their dentist outlined several possible treatment plans. The only challenge was paying for it. Trae’s dad, Troy, had just returned to work after being laid off for 2½ years. The family also had dental expenses in caring for younger brother, Ty, also affected by XLHED. “I didn’t know how we were going to afford it.” They turned to the NFED for help. A grant from the Treatment Assistance Program enabled the high school student to get his new smile. Trae, the competitive swimmer, loves it. “Trae has a great outlook,” Trae’s mom Katie said. “He’s done well. The assistance means a tremendous amount. I didn’t know how we were going to afford it. We’re truly grateful.” one’s powers. personal judgment and ability. 2012 Mary K. Richter Treatment Program Spotlight T wo NFED programs are specifically designed to help families receive and afford the dental care they need with the third program focusing on educating doctors and dentists. • Dental Treatment Centers: We added five new centers to our growing network. Families can now choose from 20 locations where dental teams experienced in treating the rare disorders provide great care at more affordable costs. • Treatment Assistance Program: Children, teens and adults with ectodermal dysplasias face significant dental expense to restore their smiles. We awarded $80,000 to help 17 people get dental implants, dentures, cooling vests or a wig. • Professional Education: The Foundation continued to educate dentists on how to diagnose and treat the ectodermal dysplasias through a dental symposium in Houston, educational workshops at two dental schools, and updated treatment publications. P A G E 5 R E S E A R C H Tenaciou Tenacious people are persistent in seeking something that they value or desire. For more than three decades, the NFED has continued to seek resourceful, innovative solutions to the challenges of ectodermal dysplasias. P A G E 6 T 2 0 1 2 A n n u a l R e p o he first research project funded was in 1989 to Jonathan Zonana, M.D. for Gene Identification of X-Linked Hypohidrotic Ectodermal Dysplasia (XLHED). That small investment of $10,000 started an amazing journey. The gene was identified, a potential treatment (EDI200) for eradicating the symptoms was developed, and in 2012 EDI200 was administered to adults affected by XLHED. to face the philosophical question of ‘Do people not want ectodermal dysplasia to exist?’ I became engaged in 2012 and thought about being a parent someday and how all of my daughters would be carriers. Parents want to make their children’s lives easier. I realized that EDI200 was a way to do that. Ultimately, I knew this potential treatment was a good thing and had the chance to affect the largest pool of people.” Willing patients and their families stepped up to volunteer for every research project along this journey to find a cure. They gave blood, donated hair samples, underwent skin biopsies, and completed surveys. Their tenacity brings us to one of the most exciting times in the NFED’s history: Edimer Pharmaceuticals will initiate testing of EDI200 in male infants affected by XLHED during the summer of 2013 in clinical trials. Based upon findings in animal studies, infants who receive EDI200 may experience improvements in their ability to sweat, increased number of teeth and potentially other effects. “As an affected individual, I had to question EDI200 and what does that mean for me?” One Man’s Choice to Help Research Twenty-nine-year-old Sean Vora has participated in nearly every XLHED research project that the NFED has sponsored. He was one of 30 boys in the early 1990s who received dental implants in a project that demonstrated their safety. Sean says his life seems to have run on the same timeline of when important research was taking place. Yet, he was conflicted when he first learned of Edimer’s clinical trials to test EDI200 in affected adults. us “I have always felt that participating in research was worthwhile; worth doing. As an affected individual, I had to question EDI200 and what does that mean for me? I had r t Sean took action. After much research and consultation with family and Edimer, he volunteered to become the first adult affected by XLHED to receive EDI200 in Edimer’s Adult Clinical Trial. In December, he underwent a series of IV injections of EDI200. “It felt great to be the first one. I understood that it was just a trial and that it wouldn’t have effects for me. I hope this research will serve as a gateway to help more ectodermal dysplasia syndromes and impact people’s quality of life.” 2012 Research Spotlight T he NFED serves as a gateway between willing patients and researchers looking to find cutting edge treatments. • Financial Grants: The Foundation awarded $75,000 to three researchers studying focal dermal hypoplasia syndrome and ankyloblepharonectodermal defects-clefting syndrome. • Support for EDI200: The NFED supported Edimer Pharmaceuticals’ research efforts related to XLHED by marketing and recruiting participants. • Ectodermal Dysplasias International Registry: We recruited 489 affected patients to complete a profile in the Registry bringing the total to 1,828. • Ectodermal Dysplasias Classification Conference: Thirty experts from around the world participated in this landmark conference to develop a robust classification system for the ectodermal dysplasias. The American Journal of Medical Genetics will publish all conference proceedings providing extraordinary awareness for the NFED. P A G E 7 D ONO R s Altruisti Unselfish concern for the welfare of others. Being altruistic means having unselfish regard for or devotion to the welfare of others. It means taking action to make a difference in the lives of others. The NFED is grateful to all of our altruistic donors and volunteers for believing in our important work and creating lasting change. P A G E 8 2 Volunteer Spotlight: Angela and Dante Puorro T he Puorros were completely unprepared on a Friday of a holiday weekend in 2010 when a dentist told them their young daughter, Ava, with missing teeth had ectodermal dysplasia. She couldn’t offer any more information without further research. Google searches produced scary things. The new parents felt they had no one to turn to. Then they connected with the NFED online. The liaison for their area, Dee Dee Olsen, quickly called them, put their mind at ease and made them feel hopeful and confident about their daughter and her future. From that point on, the new parents turn to the NFED whenever they have questions. In 2012, Angela and Dante decided it was time they gave back. Because of four-year-old Ava’s love for animals, they created a fundraiser called “Animals for Ava” at Turtleback Zoo and raised more than $26,155 for the NFED and $5,400 in in-kind gifts. “Words couldn’t describe the emotional feelings we had hosting the event,” Angela says. “It was amazing to feel our friends’ and family’s support. It made us feel our daughter is loved! We had pure gratitude and amazement.” ic 0 1 2 A n n u a l R e p o r t Donor Spotlight: Joe Barone A t 93, Joe still vividly remembers the first time he looked in the mirror as a teenager, smiled, and saw teeth in his mouth. He wasn’t used to that. He decided he didn’t care how long it took him to adjust to his new dentures or learn to talk with them because he liked his new smile. It gave him confidence. Today, Joe gives to the NFED because he believes in the importance of children getting their teeth before they start kindergarten. It eliminates the chance of kids hurting their feelings because they look different from having just a few teeth of their own. “I love the conferences where you can interact with the doctors and learn so much. I was so happy that someone could help me!” While growing up, Joe thought his family was the only one affected by ectodermal dysplasia. Now, with NFED, he says it’s a big relief to know you are not alone. “The NFED has just been great,” Joe says. “I love the conferences where you can interact with the doctors and learn so much. I was so happy that someone could help me!” 2012 Fundraising Spotlight • Halloween Bash: The 12th annual event was another magical night for the NFED raising $165,770 and incredible awareness thanks to the Geismar family and the Bash committee. • Don’t Sweat it Walk: We launched our national walks as an innovative way to raise funds. Families hosted seven walks across the United States and raised $26,983. • Other Fundraisers: We worked with numerous other families around the country on hosting golf tournaments, runs, Rally for Ally, and other exciting events. P A G E 9 With Gratitude... D ONO R S An emotion expressing appreciation for what one has. T he National Foundation for Ectodermal Dysplasias extends our heartfelt thanks to every person, corporation, foundation and organization who gave a gift in 2012 to support our mission. During these challenging economic times, your financial support is crucial to our success. In this report, we recognize all members of the F.G. Danz Society, corporations, foundations and organizations who gave gifts of $1,000 or more to the NFED. In 2012, we created the F.G. Danz Society to formally recognize individuals who invest in our mission with gifts of $1,000 or more within the fiscal year. This major donor society is named for a German, F.G. Danz, who wrote in 1729 a treatise titled Concerning Men Without Teeth. “In our neighborhood lives a Jewish family of which two adult sons, neither have, or ever have had, hair or teeth.” This is the first instance of the ectodermal dysplasias being described in literature. A complete listing of all 2012 donors can be found online at www.nfed.org. We have made every effort to ensure the accuracy of the list. If there are errors or omissions in this report, we truly apologize. The Danz Society Gold Benefactors ($25,000 and up) Anonymous Gregory E. Hickman The Hubbard Family Louis J. & June E. Kay P A G E 1 0 Silver Benefactors ($10,000 - $24,999) Joseph Barone Dan Feinberg, M.D. & Amelia Jones Feinberg The Vora Family Benefactors ($5,000 - $9,999) Anonymous George & Leah Barbar Patrick Fahey Lee & Pam Kennedy Jack & Paula Kriz Charles & Jody Kronvall Maureen McPhilmy-O’Reilly Richard & Tina Moss Brian & Evelyn Randall Sean Vora Jerold & Elizabeth Wallis Gary & Jeanne Wang Grantors ($1,000 - $4,999) Edward & Linda Almeida John L. Bailey Geoffrey & Marci Barbey Joy Billhardt Glenn & Teresa Bone John & Deborah Bowman Dianne & Bill Brown Jr. Hope Catalano Therese & Pasquale Cestaro III Peter & Peggy Cherasia Craig & Julie Claeys Dr. George Hyman & Sandy Cooper-Hyman 2 Virginia & John Dickie, III Jack Eitling Frank Farrington, D.D.S., M.S. Tim & Mary Fete Charles & Melonee Fleming Sarah Fleming David Freestone, M.D. & Gwen Zimmer Robert & Margaret Gartland John Garzone Richard & Robin Gasloli Keith & Ruth Geismar Richard & Joanne Gentile Jessica Golian Joel Greenblatt Robert & Janet Heberer Sr. G. Thomas & Janet Hough Suzanne Kaufman Daniel Keating Dr. Eugene Keller William & Joy Kelly Mark & Kristin Kelso Don Kikta Jr. John & Janet Kornreich Anne Marie Kruszka Kenneth Librot Brent & Lesley Longval Elliott and Nancy Merberg Christina Mercurio, D.D.S. Gene & Laura Mildren Peter & Debra Murphy Thomas Olander Derwin Perkins Sally Pruett Garrett C. Reuter Anthony & Valeria Simone Michael & Rose Stallmeyer Clark Stanford, D.D.S., Ph.D. Michael & Denisse Stein Joseph & Marci Valenti Judson & Dwana Waltman William & Patti Walton Peter Wilby Michael E. & Judith M. Woodruff Stephen & Susan Woodzell Adele Yellin Corporations, Foundations and Organizations Gold Benefactors ($25,000 and Above) The Hubbard Broadcasting Foundation Louis J. and June E. Kay Foundation Medical University of South Carolina Straumann Corporation: Institut Straumann AG 0 1 2 A n n u a l R e p o r t Silver Benefactors ($10,000 - $24,999) Edimer Pharmaceuticals Benefactors ($5,000 - $9,999) Blanche March Foundation Broadridge Securities Processing Solutions, Inc. Delta Theta Tau Sorority, Inc. Ferrara Pan Foundation Simplicity Title Straumann USA, LLC University of California, San Diego Special Account Grantors ($1,000 - $4,999) American Detail Cleaning Corp. Art Gautreau, Inc. – Agi General Contracting Astra Tech (Dentsply Implants) Bank of America Foundation Carbone Smolan Associates Colgate – Palmolive Comcast Delta Theta Tau Sorority, Inc. – Gamma Chi Chapter Delta Theta Tau Sorority, Inc. – Lambda Eta Chapter Eiting Foundation Electronic Arts FABENCO Founding Father’s Foundation GeneDx Iris and Saul Katz Family Foundation Ironwood Capital Management Jewish Communal Fund John T. Simpson, Jr., P.C. Lot Prep, LLC Mollie Zweig Foundation National Philanthropic Trust Oracle America, Inc. Oracle Charity Account Perkins Drilling Tools, Inc. Pioneer Valley Federal Credit Union Plandome Heights Women’s Club Pzena Charitable Foundation Raymond James Financial, Inc. Siemens Caring Hands Foundation SSM Cardinal Glennon Children’s Medical Center Sumner Group, Inc. Weldbend Corporation Estate Estate of Floyd G. McComas Jr. Matching Gift Companies Art Gautreau, Inc. – Agi General Contracting Electronic Arts General Electric Grainger JP Morgan Chase MasterCard The Boeing Company P A G E 1 1 Individuals, Corporations, Foundations and Organizations Patrons ($500 - $999) William & Darlene Aimetti JoAnne & Francis P. 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Andrea Reister Russell “Rusty” & Kathy Renth Sharlin Reynolds Norman & Mary Richter Tammi Rickard Kenneth & Judy Robins Beth Rodriguez 2 Steven & Julie Rosbash Nancy Roskind Corrine Roxby Rick & Karen Roy David & Jodi Rubenstein Richard & Regina Rule Eugene & Sharon Russell James & Deena Russell Jon & Laura Russell Alan & Helene Rutchik Jenna Rutchik Ed & Dana Sanborn Richard Sanborn Stan Sandberg Dr. Cristina Sardinha Christopher Sarrcino Robert Schachter Danielle Schaefer Klyap George & Ellen Schieren Jonathan & Lauren Schiff Jack Schmitt Mark & Teresa Schofield Brett Schott, CFRE Lori S. Schulman Richard & Madeline Schuster Alan & Felice Schwartz Robert Schwartz & Ellen Brown Rev. Jason & Christina Scobbie Lt. Col. Mark & Kimberly Scott Daniel Seaman & Nichole Cipriani J. Sears David & Gina Seidel Robert & Holly Sepa Gillian Shafranek Skandha Shanthakumar Ian & Patricia Sharkey Richard & Tammy Shatz Ryan Sheckels Donald & Evelyn Sherbert Kelly & Roshni Sherbondy Leslie & Nancy Short Jay Shtulman Robert Shtulman Joy Sibley Marjorie Siefke Michelle Signa Harold Silver Kenneth & Hillary Silverstein Steve Sirof Raymond & Lori Sirois Kevin Sizemore Douglas & Denise Skillman Stuart & Diane Sklar Georgia Slagle Keith. Sluka 0 1 2 A n n u a l R e p o r t Elyssa Slutzky Mark & Kristin Smaldon John & Mary Lou Smart Bradley Smith Dennis & Diane Smith James & Jo Smith James & Ruth Smith III Aaron Charles & Kimberly Smith Dr. Lottie Smith Edward & Charlene Snow Sr. Anna So Robert & Anne Soldano Stella Spanakos Jeffrey & Jacqueline Spechler Stephen & Patricia Spencer Paul Spiess & Shana Robinson-Spiess Larry & Pam Spilbeler Ronald Stearns Valdi & Diana Stefan Douglas & Gail Stein Dr. Leonard & Hermina Stein Harry Watson & Margot Stein Ph.D. Marc & Mary Steingesser Deborah Stern Brooke Sterne Robert Stolarz Cheryl Stucky Donna Stucky Kirk & Carla Stucky Jonathan & Jaimee Stulberg Bettyann Sullivan Mike & Sharla Sullivan Stephanie Surles Chris & Laurie Swaine Michael & Deborah Sweeney Virginia Sybert M.D. Benedykt Szwalbenest & Shelley Leibel Szwalbenest Bryan Poteet & Sarah Tevis Poteet D.D.S. Jennifer Thompson Pamela Thompson Charles & Delores Tiedemann D. Stephen & Roberta Toback Stephano & Lisa Troia Alexandra Troiano Grace & Sue Tsao R.J. Tucker Bruce Turton Richard Tyler III Mary Jane Tyler Todd Urowsky Charles & Susan Vadalabene Christina Vassil Philip & Lauree Vasta Joseph & Erica Verdicchio Serena Verfurth P A G E 1 7 Attila Vigilante Maria Villodas Vincent Vinciguerra M.D. & Nina Vinciguerra Jenny Viteritti Zak Volnyansky Vincent Volpe Shai & Kate Waisman Marlene Weinland John Weinmann Sr. James & Antje Wesseling Jerry & Carole Wilburn Steven & Stephanie Wilburn James Wilde David & Florence Wilk Kevin S. Wilkerson Marshall & Hope Wilkerson James & Kimberly Wilkins Roma & William J. Wilkinson Jim & Mary Williams Gary & Karen Williams Richard & Shirley Withers David & Cindy Wittels Allen & Denise Wolfbiss Edward & Maryellen Wrede George & Patricia Wynne Andrew Yacht M.D. & Laurie Yacht Steven & Stacey Yockel Rafael Zaklad Irwin Zeplowitz Jonathan Zonana M.D. Edith Zorn Stanley & Gloria Zwirn The following honoraria and memorial gifts were made to the NFED in 2012. Honoraria Bill - One Fantastic Kid Christopher Davenport Carol Agne Sante Elliott Helen Gagen Danyelle Heinz Christy Lienemann Brandon & Nichole Miller Mary Pritchett George & Sharon Smith John & Nancy Suedmeyer Kimberly Trame Jerold & Cynthia Winfield Judy Wylie P A G E 1 8 Dylan Allen Mary Conlon Paul Conlon Geraldine Allen Karen Allen,National President Delta Theta Tau Sorority, Inc. - Alpha Chapter Delta Theta Tau Sorority, Inc. - Alpha Rho Chapter Delta Theta Tau Sorority, Inc. - Iota Mu Chapter Delta Theta Tau Sorority, Inc. - Omicron Alpha Delta Theta Tau Sorority, Inc. - Omicron PSI Delta Theta Tau Sorority, Inc. - Zeta Chi Chapter Kyle Anderson Jeffrey & Da’Nella Anderson Max Anderson Carl D’Angio Preston Anderson Jane Curbelo Christopher Barbey Geoffrey & Marci Barbey Carbone Smolan Associates Joe Barone Anna Barone Hannah Bell Ezio & Genevieve Briasco Nick Bennett Chris & Janet Ford Graydon & Lauren Bernady Steven & Suzanne Bernardy Gilberto Bizzo Antonio Bizzo Karly Black Stephen & Kitt Hamersky Spencer Bolton Margie Bolton Christopher Bone Glenn & Teresa Bone Callie Booth A Touch of New York, LLC Joy Booth Alfred & June Booth J. Paul & Luci Davis James & Debbie Faulk Robert & Barbara Gaston Jr. Robert & Lessie Gray George & Shaunda Gubko Col. Frederic & Sara Harris Ann Howard Mike & Debby Keehn Law Office of Kelly Lee Mae Luckie James & Terri Mathis Sean & Stephanie McNamara William & Helen Pace Caroline Ristad Johnanne Robinson 2 Donald & Evelyn Sherbert John & Elizabeth Telford Juanita Welker Rahanne Young Henry & Charlotte Bourgin Brenda Olson Marjorie Siefke Angelina Brown Sheryl Hobbs-Brown Bill & Dianne Brown C.B. & Paulette Hagar Bill Brown & Zach Hamm Lawrence Abbott Jonathan Ambos F. Edwin & Jennifer Antar Barbara Bairrington George & Leah Barbar Robin Barrow Mary Batdorf Lindsey Bauer Jordan Beck Terrie Bell Janine Benoit Anthony & Suzanne Boase Stacey Bond Glenn & Teresa Bone Elaine Bote Philip & Julie Boudreaux III Dee Bowman Billy & Beverly Boyd Brazos Bookstore Pamela Broccolo Mac Brockman Raymond Brown Cora Byers Jeremiah & Karen Callaghan Doric & Ariadne Capsis Elizabeth Castle Julie Cernigliaro Keith Christman Craig & Julie Claeys Roland Clark Dennis Clayton Shane Condon Cowley Distributing Inc. DBA Sedalia Book & Toy Reid Crookston Chris & Bridget Day Karin Day Derek Delapena Daniel Denson Alvin DeRoche Virginia & John Dickie III Larry Dierker Leanne Donelson Michael & Tracy Donnelly 0 1 2 A n n u a l R e p o r t Robert & Margaret Dorrill Robert E. & Cynthia Duerer Eugene Duffey Robert Dunbar Patricia Echevarria Brad Reinhardt & Jodi Edgar Reinhardt Michael Edwards Abigail Ernst Craig Etserpp Frank Farrington D.D.S., M.S. Glenda Finley Charles & Sondra Fischer Kim Fulton Fernando Galvez Chris Garbe Darrell Garcia Reynaldo Garcia Keith & Ruth Geismar Steven Gietschier William Gilbert Eugenia Gil David Gillmore James Godlove Bill Gossett Jill Ann Grant David Green William & Sandra Green Robert Griffin Norman & Zerlene Gruenzner Jonathon Guer Wesley Gunter Lidia Hammond Joel Hannemann Lindsay Harris Gayle Hersch Gregory & Ruth Hill Scott Hill Daniel & MaryCarol Hoesel Roy Howell Donnie & Linda Humphries Sumner Hunnewell Brian & Paula Hunterman Christopher & DeAnn Huxman Carol Jackson Jim Johnson LaVerne Johnson Andrew Jones Kaye Jones James Keller Amy Kelley Jimmie Kelly Lee & Pam Kennedy Robert Kennedy Robert & Patricia Kilpatrick Katherine Kornhaus P A G E 1 9 P A Lakewood Church Donald & Sandra Lamb Brenda LeChien Charlene Lee Virgil & Marilyn Lee James Leonard Richard Lewis M.D., M.S. Sally Lockett Monica Magill Charles Maguire Telisa Marsh Oscar & Olympia Martinez Joseph Massa Anthony & Elizabeth Mastriani Michael & Cynthia McCroskey Dr. William McCurdy Damon McGavock Matthew McGee Heather McKelvie Judy Mills Gary Minzenmeyer Lynda Mitchell Felipe & Irma Morales David & Susan Morgan Noelle Mosher Donald Mueller Jerry Mueller Ed Mulholland Donna Newton Joanna Nix Henry & Jackie Oncken Robert Owen Thomas O’Toole Brenda Parish Larry Parsons Martha Penaloza James & Patricia Peterson Stacey Piefer Carol Pitts Rick Pryor Brian & Evelyn Randall Robert Ray Robert & Deborah Reed Ronald & JoAnn Reese Norman Richards Jennifer Richardson Tom & Lea Richardson Norman & Mary Kaye Richter Eddie Riley Jean Roberson Richard Rodriguez Barry & Debbie Rutherford Jennifer Sanders Carrie Scheman Kathryn Schroeder G E 2 0 Pat & Margie Schwartz Barry & Susan Seiden Stephen & Paula Sherman Lena Simpson Smethers Properties, LLC F. Grant & Christina Sovereign Stella Spanakos David Stadelman Barbara Stafford Joel Stanford Superior Grating, Inc. Stephen & Daphne Tompkins Michael Thompson Rubye Triplett Tommie Urbanczyk Donald & Nancy Vell David Vice The Vora Family Don Walker Barry & Sherry Wallace Chet Wallace Lea Ann Wallace Mary Walsh Steve Ward Weirwolf, Inc Gordon White Michael E. & Judith M. Woodruff Walter Wright Tyler Yoesting Paul & Shirlene Young Jr. Edith Zwernemann Nathaniel Brown Jonathan Brown Jackie Buck Art Gautreau, Inc. - Agi General Contracting Mitchell Butzner Donald & Paulette Butzner Matthew Casey Howard & Christine Cohen Dee Dee Catalano Olsen Anmarie Gaalaas Andrew Catherman Tim & Dr. Penny Catherman Joshua Chamberlin Jackie Crigger Melissa & Ellie Channing Tom & Betsy Holloway Anjai Chary Ram & Shanta Chary Carver Claeys Derrick & Patricia Ashman Cheryl Claeys Cimarron Oil and Gas Ronald & Sylvia Goldie Gary & Cheryl Lear 2 Luther Logistic Transportation LLC Michigan Prosthodontics John Taylor Doug Coiner Dr. Glenn Wenger Alec Coito Grant & Sheila Coito The Corwin Family Lee Innocenti David Cory Beth Rodriguez Rachel Dahler A. Louise Nemec Olivia Daniels Mike & Kathy Daniels The Davies Family Ross & Alison Davies Sam Day Wilkes Community College Endowment Corporation The Day Family Chris & Bridget Day Zemery Dennis Teresa Dennis Elizabeth Drost Charles & Melonee Fleming Edgar & Eleanor Fleming Anna Hill Donna Kachmarchi Lucy Pannell Drs. Polack and Olano, P.C. Mary DeSisto Thomas & Kathleen Vacca Virginia and John Dickie, III Robert & Elizabeth Yuill Helen Donaghy Mrs. Clair Carmichael Johnstone Brandon Doyle Rosemarie Brenner Justin Dzierzawski Randy & Kim Dzierzawski Frederick & Elizabeth Knapp Jodi Edgar Reinhardt Roberta Ecker Todd & Kristen Groesch Justin & Ashley Reinhardt Stephen Emery Steve Emery & Corinne Miller Nancy Esterly Mark Jacobson & Dr. Ilona Frieden David Farley Thomas & Denise Farley Nichole Fasulo Matthew Cissne Seth & Shari Apirian John & Margaret Ciulla 0 1 2 A n n u a l R e p o r t Kerri Fasulo P. James Fasulo Kim Garmire Charles & Eileen Gosling Kevin Gump Ms. Harrison Patricia Harrison Sarah Karlavage Rocchio Michelle Lanier Jim Lurie Vivian Morabito David & Barbara Muellers Sara Nelson Tanya Scovill Betty White Chrishan Wright Mac Ferris CRM Management Seth Ferris Michael Fortier Jesse Green James Muller Donna Newton Lenny & Digna Rodriguez Ethan Flassig Robert Flassig Drake Floyd Rachel Meldrem Caleb Freestone Dr. James & Joan Freestone Adam Freund Stephen Freund Megan Gaffney James & Kathleen Gaffney Alexander & Douglas Gaillard Wells Fargo Community Support Campaign Keegan Gamble American Detail Cleaning Corp. Kayla Garza Ann Auer Gloria Barley Carol Bateman Stephanie Benner Theresa Booker Stephanie Burnett Barbara Crowe Dalia’s Tax Service Lorinda Dupuy Susan Erickson R Fuller Lavonna Gardner Bobby & Sharon Garza Alton & Judy Gaskin Marlene Gonzalez Jill Gordon P A G E 2 1 Toni Gordon Naomi Gray Janet Griffith Sally Guthrie Lazea Hall-Powell Toni Haynes Thomas & Sylvia Herrin Norma Higgins Artie Hill Marvia Jefferson Patricia Jenney Suzanne Jost Susan Kauffman Kandz Kelly-Daigle Hazel Kratzer Kirsten LaBarbera Sheila Lapaglia Robin Logan Melissa Lunkwitz Rachel Muniz Newcomers Home Decor Amy Nuttall Mary Pickens Melissa Rodriguez Jacqueline Sharp Debbie Smith Myra Smith Silvia Soria Deborah Stern Donna Tatum Ginny Taylor Jimmy & Linda Walker Jemi Ward Steve & Sharon White Felicia Williams Michael & Betty Zeamer Christopher Gasloli Richard & Robin Gasloli Ryan Geismar AB Media William & Darlene Aimetti Al and Peggy Dematteis Family Foundation Michael & Elizabeth Alexander Peter & Eileen Aliani All State Promotions Edward & Linda Almeida Peter & Filomena Aloi Stuart & Marcy Alper JoAnne & Francis Alter Robert & Terese Alter Stefanie & Jim Amanatides - Gianakis Jonathan Ambos Clay & Joanne Anderson Ross & Alicia Andrus At Ease Beauty & Wellness P A G E 2 2 James & Maria Avallone Fredric & Ann Axelrod Bag One Arts, Inc Helene Baim Jonathan Lewis & Elizabeth Beil Lewis Ben’s Foundation Joseph & Carolynn Benedetti Tony Bennett Peter Bergang Wendy Berlin Steve Berry Barbara Bishop Gary Bleetstein BLT Prime Terry & Claudia Borg Jay Bosworth M.D. & Judi Bosworth Steven & Susan Boughner Kevin & Pam Boyle Diane Brady Vincent & Patricia Breitenbach Adam Bremner Broadridge Securities Processing Solutions, Inc. William & Lois Brooks Robert Burrell Daniel & Susan Caldwell Jeremiah & Karen Callaghan John & Marianne Callanan Richard & Cheryl Caplin Doric & Ariadne Capsis Anthony Cardinuto Ira & Lisa Carlin Genevieve Carpente Frank Caruso Frank & Rita Castagna Roland Clark & Nicole Cestari Clark Betsy Chairman Dr. Edward & Nancy Chairman Peter & Peggy Cherasia City Cellar Wine Bar And Grill Clarin’s Oliver Clark Jerome & Starr Cline Peter Cohen Shari Cohen Colgate - Palmolive Paul & Anne Corwin Patrick & Elizabeth Creaven Paul & Gail Cunningham Damselle John & Anja D’Angelo D’Exterior Bruno & Donna Debueriis Fred & Terry Del Guadio Kim Delaney Bruce & Susan Dilloian 2 Thomas Peter Dinapoli Penny Domow Stephen Donald Anne Dorogoff William & Margery Doscher Dr. Phil Show Karl & Nelly Dunkel Daniel & Amy Dziemian James & Carole Eckert Eco-Me Ira & Susan Edelblum Edimer Pharmaceuticals Martin Ehrlich M.D. & Carla Ehrlich Herman & Elizabeth Elgarten Emmett Ellis IV & Patricia Truscelli Monique El-Masry Robert & Roberta Elson Roger & Sheryl Elson John Endrizzi Howard & Didi Engle Equinox Fitness Club Henry & Sonia Erlich Mark & Suzanne Erlich Ernesto’s East Ristorante Exhale Eugene Falkovich James & Elene Farrell Frank Farrington D.D.S., M.S. Barbara Feigelman Dan Feinberg M.D. & Amelia Jones Feinberg Debra Ferman Antonio & Sandra Ferri Marc Feuer Fidelity Charitable Gift Fund Michael & Dori Fishbin Sandler & Michele Flaum Richard & Ellen Fox Frankel Green Theatrical Management Herbert & Judith Freedman Sally Freedman Michael & Sara Freiberg Paul Friedman Eric & Lisa Frost Amanda Fugazy Karen Gaffney Barry & Diane Ganz Robert & Margaret Gartland John Garzone Geduld Cougar Foundation, Inc. Bruce & Alice Geismar Peter Hyman & Jennifer Geismar Keith & Ruth Geismar Brooke Gelb Mitchell & Merri Gelbard Richard & Joanne Gentile 0 1 2 A n n u a l R e p o r t Jordan & Nelsa Gidney Denise Giovanniello Franklin & Anita Glasgall Jeffrey & Kathleen Glass Richard Rosenberg M.D. & Judith Goldberg-Rosenberg Bruce & Marjorie Goldner David & Ruth Goldstein Ric Calderon & Allison Goldstein-Calderon Jessica Golian Alan & Jeri Golus Gotham Bar & Gril Eric & Carolyn Gould Todd & Kathryn Gray Kirsten Greene Greenvale Electric Supply Corp Liz Greilsheimer Donald & Maryann Grieco Robert S. & Ellen Grimes Jeffrey & Vivian Grossman Scott & Valerie Hamroff Hampton Hills Golf & Country Club Stephen & Jana Harasek Robert Harwood Jeremy Heckerling Ralph & Michele Heiman Sean & Brandy Hendelman Darren & Joy Hepburn Ken & Mimi Heyman H F International Realty, LTD Christopher Hilly Estelle Hochman Charles & Daria Hoffman Rowena Hoffman Michael & Tara Holbert H on the Harbor Dr. George Hyman & Sandy Cooper- Hyman Steffanie Hyman Indian Head Camp ING Lee Innocenti International Carpet Showcase, Inc. Iris and Saul Katz Family Foundation, Inc. Ironwood Capital Management Maralyn Janovsky Jewish Communal Fund JRM Jewelers Sean & Diana Justice Michael & Sophia Kaczmarski Taso & Jennifer Kalapoutis Gus Kaloudis, D.D.S. & Eileen Kaloudis Junko Kaloudis Robert & Linda Kane Angie Karna Anastasiya Karpova Harold & Linda Kay P A G E 2 3 P A Daniel Keating Lawrence & June Keller Lee & Pam Kennedy William & Michele Klatch Mary Ann Klein Richard Kling M.D. & Ruth Kaminer- King M.D. John & Laurie Knapic Seth Konheim Naveen & Sheena Koshy Steven & Jennifer Kreichman Anne Marie Kruszka La Genestra Restaurant Steve & Evelyn Labriola Stephen Lacoff Marten Ladman D.M.D. Landmark Restoration & Construction Corp. David Langner Larry’s Design Center Ltd. Richard & Abbie Laskey Samuel & Stephanie Lebowitz Fay Leder Bonnie Leff John Lentinello C.P.A. Ronald & Shirley Levene Herb & Ellen Levitt Judith Levy - Maiman M.D. Alfred Lewis LFUSA Kenneth Librot Drs. Michael & Sheri Lindner Damon & Lisa Liss Ellen Lockman Jaimee Loewy LOLA Restaurant Louis J. & June E. Kay Foundation Gerard & Gina Love Christopher Christie & Elizabeth Lucas Marshall Lux Ferdinand & Esmeralda Lyn Lynn Stoller Collection LLC Dmitriy Lyukhter Evan & Jennifer Mallah Billy & Gena Mann Harvey & Gail Marchbein Margaret McElhone Gerard & Heide McNamara Richard Menker Elliott & Nancy Merberg Evan Merberg Christina Mercurio D.D.S. Marina Mesion Andrew & Jill Mesologites Peter & Kathy Mesologites Joel & Lynne Mesznik Evan & Ilysa Michelson G E 2 4 Rosellen Michelson Jennifer Mihajlov Milestones In Home Care, Inc. Sean Miller Mineola Bicycle Jamie & Elana Minkove Mollie Zweig Foundation Roy & Leslie Moffitt Jr. Michael & Annette Morrissey Tim & Joann Murray William & Joanne Napolitano National Philanthropic Trust Lynne Negron Neils Corner Sandy & Rona Nelson Meg Newhouse-Sealove New York Kids Club Norma Reynolds Realty, Inc. North Shore Cosmetic and Implant Dentistry PC August & Madeline Nunziata NY City Center NY Jets David Okulicz Om Sweet Om Yoga Terri Orlando Menachem & Sharon Ovadia George & Susan Papaioannou Parlor Restaurant Plandome Heights Womens Club Christopher Cornell & Christine Pentland Nicholas & Ruth Petras George & Sherry Plevretes Dr. Charlotte Podolsky Denise Polis Adam & Jackie Popper Port Country Cleaners Corp. Portmeirion USA, Inc. Producer, The Chew Protective Lining Corporation Isak & Milla Pulatov Pure Yoga Pzena Charitable Foundation, Inc. Matt & Brenda Redshaw Freemont Reif Richard & Karen Reif Steven Reif John Reilly Mary Jane Reilly Andrea Reister Robert Reynolds Jonathan Richter D.D.S. Robbie Wagner’s Tournament Training Kenneth & Judy Robins Rockefeller Foundation Ted & Shelley Roff 2 Ronald Krowne Photography Steven & Julie Rosbash Laura Rosenbaum Jayme Cecchini & Randi Rosenberg Nancy Roskind Round About Theatre Company David & Jodi Rubenstein Richard & Regina Rule Allison Rushforth William & Barbara Russo Dr. Mark & Deborah Russo Alan & Helene Rutchik Michele Sabatino Sam Ash Music Corporation Stan Sandberg Pasquale & Sandra Santaniello Dr. Cristina Sardinha Shubh Saumya Robert Schachter Michael & Gannon Schaefer Danielle Schaefer Klyap Karen Scheier Terri Ann Schiano George & Ellen Schieren Robert Schifellite Jonathan & Lauren Schiff Schooler Weinstein Minsky & Lester PC Lori Schulman Richard & Madeline Schuster Alan & Felice Schwartz Robert and Heidi Schwartz Robert Schwartz & Ellen Brown Morton & Beverly Sealove Barry & Susan Seiden Gillian Shafranek Edward & Penny Shatz Richard & Tammy Shatz Samuel Shatz Penny Sherman Alan Tanzer & Susan Sherman - Tanzer Jay Shtulman Robert Shtulman Shukat Arrow Hafer Weber & Herbsman, LLP Peter & Yvette Shukat Kenneth and Hillary Silverstein Anthony & Valeria Simone Susan Simons Dr. Todd & Wendy Sinett Steve Sirof Raymond & Lori Sirois Stuart & Diane Sklar Richard & Merry Stone Elyssa Slutzky Mark & Kristin Smaldon Bradley Smith 0 1 2 A n n u a l R e p o r t Igor & Julia Smolyanskiy Robert & Anne Soldano Stella Spanakos Jeffrey & Jacqueline Spechler Howard Spilko & Marlo Golub Spilko Michael & Rose Stallmeyer Matthew & Alison Stamm Jacques & Ellen Steffan Douglas & Gail Stein Dr. Leonard & Hermina Stein Steven & Susan Stern Jonathan & Jaimee Stulberg Bettyann Sullivan Chris & Laurie Swaine Michael & Deborah Sweeney Benedykt Szwalbenest & Shelley Leibel Szwalbenest T-Bar Steak House Maura Tepper The Capital Markets Company The Gould-Shenfeld Family Foundation The Jones Group The Nines The Petras Family Limited Partnership The Public Theatre The Raice Family Fund The Stomp Company Stephano & Lisa Troia Timex Performance Center Trattoria Di Meo Travel Connections Tryax Realty Mgmt, Inc. U.S. Open Uncle Bacala’s Joseph & Marci Valenti Vanguard Charitable Endowment Program Philip & Lauree Vasta Melchor & Rowena Villaruel Vincent Vinciguerra M.D. & Nina Vinciguerra Jenny Viteritti Zak Volnyansky The Vora Family Jerome Grossman & Robin Wagner Shai & Kate Waisman Peter Wilby James Wilde William & Roma Wilkinson Matthew & Debra Wilkoff David & Cindy Wittels Allen & Denise Wolfbiss Michael E. & Judith M. Woodruff Victor & Susan Wortman Edward & Maryellen Wrede Andrew Yacht M.D. & Laurie Yacht Howard & Beverly Yasbin Steven & Stacey Yockel P A G E 2 5 Thomas & Lisa Young William & Nancy Youngfert Irwin Zeplowitz Leonard Zucker David Geismar’s Birthday Joanna Carlson Tara Elbaum Michelle Giordano-Valentine Jonathan & Jaimee Stulberg Brendan & Carroll Thorpe Ryan Geismar’s Bar Mitzvah Ronnie & Carol Agne Wendi Diamond Sulimani Brad Reinhardt & Jodi Edgar Reinhardt Nancy Fender Sally Freedman Ric Calderon & Allison Goldstein-Calderon Liz Greilsheimer Judith Levy - Maiman M.D. Charlie & Barbara McGlone Jamie & Elana Minkove Tom & Lea Richardson Alan & Felice Schwartz Lisa Scolaro Mark & Kristin Smaldon Sandra Stulberg Nina Tesi Theresa Zeitchek Dr. John Gilster Kurt Studt D.D.S. Larry Jewell D.D.S. Brooks & Ryan Ginnan Mark & Robin Bulkley Cherie Devall Dr. Randall & Donna Ginnan Nate Glodeck Admiral Ken Wolfe Granddaughter John & Mary Lou Smart Dennis Graul& Julie Heberer Mike & Connie Kuhn Robert D. Heberer II Carter Jacob Grime Paul Boyers Dr. JB Grimes& Sharon Grimes Robert D. Heberer II Ryan Gruber Dr. Paul & Judith Friedman Christopher & Janet Gruber Susan Gruber Trae Gulgin Troy & Catherine Gulgin Simon Gutierrez Dion & Denise Novak P A G E 2 6 Kayla Hafliger Lance & Nicole Abel Air Xpress Inc Robert & Francesco Augugliaro Michael Jurek & Jessica Ballow Ananyo & Michele Basu Patricia Bazsuly Robert & Carmen Beyer Sara Brawner Richard & Darlene Brown William & JoAnn Bunting Deborah Cabral Jeffery & Tara Caruana Preston Copeland John & Jacqueline Corbin James & Rae Daley Richard & Kim Derouin Rosemary Dean Galeano Richard & Kim Derouin Frederick & Rebecca Dobbins Chad & Kelly Dudeck Stephen & Deborah Durrett Cassidy Facemire Geri Galowitsch - OBrien Kenneth & Michelle George David & Sally Gonzalez David Griffin & Holly Esker F.I. Grey & Son, Inc. Realtor Nikolas & Nicole Gunn Michael & Melissa Hafliger Chance & Jennie Hatcher Carol Heidbrink John & Donna Herbert Charles & Barbara Hill Ronald & Suzanne Hills Heather Hoehn Kristen Hofer Christopher & Elizabeth Holloway Steven & Kathryn Horten Stephen & Sara Houghton Victoria Jasztal Ann Joslin Dr. Idele Kelly Harvey & Judith Kleyman Knights of Columbus- FL State Council Charities Fund Kayla Kuni William & Kathryn Largent Ann-Marie Leach Stephanie Lobalbo Haravu Lokesh M.D. Eric & Shana Mabie James & Marygrace Madonia Hal & Laurie Marcus Enrica McCann Donald & Sharon Mestanza 2 Stephanie Morganti New Port Richey Rotary Club Erin Newton Jessica Pedersen Pediatric Dentistry of New Tampa Inc. Danielle Pellegrino Donna Perry Carol Petrashek Jessica Phelps Lori A. Powell River Ridge High School Sheila & James Roberts Anthony & Margaret Russo Richard & Judith Scarola Stephanie Schatzman Mark & Nina Serio Celinda Smith Donald & Judith Smith A. E. & R. A. Svendsen George & Donna Tomlinson Jennifer Tran Colleen Vernola Jennifer Zaccaro Joshua Hagerty Justin & Jennifer Hagerty Jessica Hagerty Marjorie Leary Dorothy Scialabba The Vora Family Zach Hamm Claudia Alexander Amerisource Funding, Inc. James & Connie Anderson Andrew Balko Joseph & Janna Bennett Janine Benoit Bruce & Dana Berlin Craig & Jamie Berlin Robert & Tami Birner Anthony Boase Vernon & Jennifer Broussard Bill & Dianne Brown Jr. Kem Buice D. Callaway John Cope Cypress Creek EMS Tom Damico Wallace & Norma Davenport Cassidy Davis Derek & Merida De La Pena Roy Dealy Jeffrey Diaz DigiTec Office Solutions, Inc. Todd Dupre John & Sabrina Elzner 0 1 2 A n n u a l R e p o r t Dorothy Everitt Fidelity National Title Insurance Company William & Sandra Green Regan & Laura Haines Eric Harper Christopher Harris Benjamin & Dawn Harvey Scott & Ruth Ann Hill G. David & Wendy Huff J Catz Pizza Andre & Lori Jaundoo Cindy Jones Joy Lutheran Church DBA It’s The Pits Cookers Chris & Ronni Kamradt Joan Kennedy Robert & Patricia Kilpatrick Mark & Sandra Lackey Ryan & Dorette Ladisic Lanier Law Firm, P.C. Jason LeFave Michael Martin Ronnie & Cathy Matthews, LTD John McLaughlin Nick Mirgeaux Roy & Leslie Moffitt Jr. Morgan Stanley Smith Barney Global Impact Funding Trust, Inc Ann Nance National Dairy Milk Products, LLC - Conroe Patrick ONeill Dan Pastorini Perkins Drilling Tools, Inc James & Patricia Peterson Gary & Sherrie Peyton Theodore PfisterJr. Point to Point Directional Drilling Inc. Poppell Enterprises Pro Delivery Proceanic Ltd Ryan Pyle Mark & Lisa Rothfeld Edison & Cecilia Saccomanno James & Lynne Sanders Alan & Felice Schwartz Michelle Signa John Thomas Simpson Tony Soerries John & Angela Spring Joel & Kay Stanford Stargel Office Systems, Inc. Studebaker Orthodontics Mike & Sharla Sullivan Superior Grating Inc. Jeffrey Taylor The Hill Dental Group, P.C. Michael Thompson P A G E 2 7 Marshall & Randi Walker Sean Walsh O’Neill John Walthour Judson & Dwana Waltman Scott & Wendy Weir Weirwolf, Inc Isabella Wooldridge David Wooten Laura Hatfield Steven & Christina Hatfield Sr. Elijah Haupt Capt. Eric & Diane Haupt USN Ret. William & Martha Hawn Robert D. Heberer II Davin Haydt William Giering Jr. Steven & Sandra Nagy James & Mary Heberer Robert D. Heberer II The Heberer Sr. Family Robert & Janet Heberer The Heberer II Family Robert D. Heberer II Rolf Hendriks Heinz & Eva Hendriks Vivian Hernandez John & Priscilla Hernandez The Higgins Family Brian & Virginia Higgins Tamara Koch Gregory Kopp Michael J. & Sandra L. Mohrmann Kevin J. & Cynthia S. O’Brien Jennifer Thompson Wayne & Mary Traube The Boeing Company Charley & Janice Walter Joshua Hill Jason & Claudine Hill Christian Hins Allan Hins Brooke Hoefler Robert & Lenette Hoefler Madison Hoffman Automotive Dealers Finance, Inc Ronnie & Jennifer Chester Donna Dietterick GIADA Auxiliary Hwy 515 Auto Auction, Inc. One Stop Car Care of Jackson Jessica Stephens Jill Horn Tom & Beth Hammer P A G E 2 8 Ashley & Lauren Huber Matt & Jenna Emrich Sarah Emrich Karen Guthrie Edward & Kathleen Hayman Tara Huber Curtis Jewell Kimberly Lardin Andrew & Darla Lutz Mark & Marilyn Miller Rachel Ortega Barry Rosenthal H. James & Christine Scheiderer Emma Shipkowski Paul & Patsy Writesel The Huxman Family Amber Allen James & Joyce Anschutz Amanda Bartel J. & Joann Bergkamp Thomas & Carrie Bridges Melissa Colwell Jason & Summer Creed Roger & Beth Darrow Gregg Dick Kent Dick Jesse Dixon Tony & Cheryl Dooley Curtis & Ann Dorn Dreier’s Lawn Sprinkling Service LLC Drs. Grant, McKinney, & Simmonds Optometrists, Inc Ryan & Michelle Durst Sharon Durst Brad Reinhardt & Jodi Edgar Reinhardt Lorie Eichelberger Cory & Lindsey Elsen Megan Elsen Chris & Sheri Esau Excel Industries, Inc. Brian & Kendra Fast Joseph & Gail Ann Fein Kevin & Heather Finley Kirk & Tammera Fish Brian & Dawn Franz Marc & Sarah Friesen Robert Funcheon & Karen Servis-Funcheon Julaine Goering Myron Goering Randall & Annette Goering Monte & Hope Graber Sidney & Gayle J. Graber Scott & Lori Green Paul & Crescent Haury Duane & Melissa Helms Tim & Lauri Hertzler 2 Hesston Dentistry, L.L.C. Hesston Prestige Printing Steven Hunter Christopher & DeAnn Huxman Dale & Bessie Huxman Douglas & Vickie Huxman Frances Huxman James Huxman Richard & Margie Huxman Jonathan & Sue Ann Jantz Jordan Sports Mike & Connie Kaufman Peter & Anna Kaufman Steven & Stephanie Kaufman William & Ellen Kaufman Keith Schrag Insurance, Inc. Adam Knapp Brent & Carina Knight Perry & Cyndi Koehn Rick & Kelly Kohl Alan & Kristen Koller Rick & Patricia Krehbiel William & Angelina Lintecum Larry & Karen Loganbill Philip & Lorene Lohrenz LOL Consulting LLC Norma MacDonald Mark & Kristin Kelso John McLaughlin McPherson Dental Care LLC Mid-Kansas Credit Union Midway Motors Supercenter Terry Lee & Dianna Mills Moridge Manfacturing, Inc. Moundridge Funeral Home, Inc. Alan & Marilyn Mueller Stoney & Jessica Olsen Ortman Auto Partners in Family Care, LLC Pathfinders Physical Therpay Consulting William & Lynette Peterman Pine Village Prairieland Partners, Inc. Preheim/Perry Financial Group, Inc. Doyle & Mary Jo Preheim Ron & Debbie Ratzlaff Ray Roofing, Inc. Regier Construction, Inc. Evelyn Regier Dean & Carrie Reida Tom & Lea Richardson Vernon & Tammy Richert Patricia Rupp Bob & Jenny Schrag Kyle & Robin Schrag 0 1 2 A n n u a l R e p o r t Robert & Marcella Schrag Wayne & Laurel Schrag Crystal Schwartz Michael & Melissa Seiber Gregory Shelly Layle Sidwell Sean Smith & Tasha Cain Troy & Monica Spreier Stacey L. Wince D.D.S. Inc. DBA Sunbird Dental Jarrod & Jennifer Strausz Stucky Becker Insurance Group Cheryl Stucky David & Penny Stucky Donna Stucky Jason & Leigh Stucky Kirk & Carla Stucky Krystal Stucky Studio 400 LLC The Citizens State Bank The Hair Happening The Halstead Bank Vance & Candace Unrau Allen Unruh Jeremy & Elissa Unruh James & Anita Vanschaick Alan & Jennifer Vogts Wallace Chevrolet, Inc. David & Marlene Wiens John & Karla Winslow Jeremy & Deanna Wisdom Tyler & Grant Huxman Julaine Goering Andrew James Bob & Amy James Ariane Jean Capt. Jonathan Clark Alex Johnson Colene Clouse John & Virginia Frederick J. Sears David Johnson Steffon Ferguson Adam Johnson Patrick & Natalie Johnson Erik Neeley Barbara Stanford Don & Phyllis Jung’s Anniversary Marion Kneschke Aiden Kaufman Lee Anne Butler Lyle & Christeene Butler III Suzanne Kaufman Grant Keene Raymond & Katy Allen P A G E 2 9 Allyson Kelso Ronnie & Carol Agne E.R. & Margaret Allen Debra Allred Bjorn Anderson Rebecca Anzelone Ashburn Ruritan Club Jeff & Kelley Atchison Frederick & Belinda Beaudry Isobel Beebe Aaron & C. Bree Bell Bell Real Estate, Inc. Benjamin Moore & Co. Rebecca Berntsen Richard & Barbara Board Shannon Boysworth Elena Brazal Howard & Carol Brosseau John Donald Bruch Patrick & Jacqueline Brzezniak James & Marilyn Buck Christopher & Nicole Buckley Brian & Terri Burns Kathleen Canedo Stephen & Jennifer Carroll Joseph & Casey Cassara Frank & Carol Chapman Michael Coppock Dr. Bruce & Jane Corrie Mary Cover Carol Ann Cunningham Arlette Del Toro Tina-Marie D’Ercole Darren & Amy Devereaux Betty Devins David Doe Joseph Dunkelberger Richard & Nancy Eckhardt Brad Reinhardt & Jodi Edgar Reinhardt Barbara Edwards William & Adrienne Free Jr. Jeffrey & Beth Gamble Kristen Gauger Eldon & Shirley Genschorck David Givens Marc & Sharon Goldman Rupen & Karuna Gurung Carroll & Elaine Harris Joseph Fay & Ann Harrison William & Kimberly Hasegawa Josh & Kimberly Helms Jason & Summer Hemeon Mark & Malinda Heuring Lisa Hill Eric Hix P A G E 3 0 Scott & Lori Hollenbeck Steve Holmlund Jill Horgan Stephen & Jacqueline Horras Mike Horvith Christopher & DeAnn Huxman Jeffrey & Shirley Johnston Katherine Johnston Oliver & Tricia Jordan David & Mary Jo Kantor Paula Kara Brandon & Aynsley Kealiher John & Lydia Kelso Mark & Kristin Kelso Glenn & Meridith Kelso Sam & Nancy Keziah Betsy Knapp Kathryn Knepley Kenneth & Elaine Kontos Frank & Mary Kotula Edward & Diane Kleine Kuebert John & Kathy Landon John & Sandra Latta Wayne & Gaye Lauderback Alan & Katherine Leis Stephen & Constance Lepore John & Elizabeth Lewis Bruce & Alice Lull David & Elizabeth Lutz Jane Martin Kate Mattice Jerry & Terri Matus Thomas George & Ashli Matus-George S. H. & Judith McCain Julie McGregor Kathleen Menaker Brian & Lauren Miller James & Aimee Moore Kenneth & Carolee Morris Ethan & Erin Lauer Michelle Nelson Joseph & Margaret O’Brien Jr. Jon & Karen Peterson Robert & Peggy Pethtal Dale & Loren Pugh William & Lisa Rankin Jason & Cindy Rasinski Kenneth & Ann Ray John & Joan Reuter Paul Spiess & Shana Robinson-Spiess Eugene & Sharon Russell Jon & Laura Russell J. Taylor Ryan David & Kathleen Saleeba Michael & Angela Sandridge 2 Mark & Teresa Schofield Col. Richard & Barbara Schwalber USAF Ret. Scitor Corporation Lt. Col. Mark & Kimberly Scott Edward & Susan Seidel Kelly & Roshni Sherbondy Joy Sibley Marilynn Siemon James & Ruth Smith III Aaron Charles & Kimberly Smith Terry & Ellen Smith Stephen & Patricia Spencer Michael & Denisse Stein Marc & Mary Steingesser Brooke Sterne John & Meghan Szkutak Pamela Thompson G. 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Heberer II Jennifer Kornfeld Gordon & Jo-Ann Kornfeld The Krachman Family Wright Phillips & Co. Lily Krachman’s Birthday Cara Kuehn Cathy Lawrence Barbara Melich Ray & Alyssa Rothman D. Stephen & Roberta Toback Cullen & Colbie West Jack Kriz & Family Joseph & Althea Rose Kriz Gene & Laura Mildren Valerie Kuzemchak Anthony & Deborah Kuzemchak Mason Langefeld Kathleen Huber Christopher Langley Michael & Christy Langley Jason Larocca John & Sylvia Larocca Alex LaValley Martha Lewis Evan Lavino Gregory & Sylvia Crouch Matthew Lemieux Daniel Lemieux Landon Livingston Theadore & Donna Schmidlapp Nic Longo Robert & Susan Lewis Anna Longval Richard & Judith Jorgenson Brent & Lesley Longval Matthew Louis Xenia Community School District Angelina Maestranzi Peter & Anna De Francisco Frederico Mariotti Marco Mariotti Terri Matus Rebecca Anzelone Beachbum MJ, LLC Alan & Katherine Leis P A G E 3 1 Daniel McKinney Gregory & Georgia McKinney Beverly Meier’s Retirement Gordon & Ruth Bylsma Maverick Moffitt Joann (G.g.) Moffitt Margaret Moore Kim Smith Sawyer & Grayson Mortensen Staric Investment LLC Jacob Moss Dr. Bee Epstein-Shepherd Richard & Tina Moss The Moss Family Adele Yellin Maureen Muldoon & Scott Lothes Dr. Linda Corder Kevin Mulryan Patricia Manetti Sharlin Reynolds NFED Staff Joe & Lynn Van Cavage Nolan Noer Dr. Norman & Jessie Busse Richard & Nancy Noer Alex Novak Joan Amend Matt Oberst Robert Oberst Jade Olsen Susan Anderson Michael & Helen Bapis Joy Billhardt Martin & Robin Bischoff John & Deborah Bowman Hope Catalano Anthony and Patricia Colucci Marisa & Kevin Donoghue Claudia & John Donovan Eric & Judith Feldmann Christopher & Noreen Feldmann Robert Feuer Anmarie Gaalaas Dawn & Scott Hale Klayre La Rosa Gloria Lipschitz Mark & Helena Lotruglio Daniel & Claudine McKinney Maureen McPhilmy - O’Reilly Richard Melsky & Jane Smyth Alan & Dee Dee Olsen J. Beauregard Parker P.A. John & Diane Quinn Timothy & Patricia Reilly John & Barbara Saunders Stella Spanakos P A G E 3 2 Tyler Paisley George & Barbara Benz Blanche March Foundation Hannah Palmer Nathan & Kristin Palmer Constantinos Pandehis Apostolos Adamopoulos Taj & Ameera Pearsall Oscar & Jimmie Johnson Rodney & Bethany Sanchez Dr. Lottie Smith Jessica Tobin Michael Perossier Ricardo & Lisa Perossier Matthew Peters Michael & Emilie Peters Tristan Pinon Danielle Adler Sidarth Arora Manny & Katrina Barreda Pamela Brenner Rosa Diaz Donna Fernandez Juan & Patricia Fernandez Karla Fernandez Magdalena Fernandez Jonathan Fuentes Darin & Marisela Jones Lindsey Jones Sara Keith Jennifer Morrison Heidi Munoz Christina Pacheco Susan Pelmulder Erika Perez Alejandro Pinon Carolos & Briana Pinon Jeis Pinon Wendy Renderos Victor Hugo Savedra Yury Serrano The Vora Family Philip & Nolan Pond Stephen Emery & Lillian Brown Steve Emery & Corinne Miller The Pond Family Brian & Susan Goss Ava Puorro Veronica Adamo Thomas & Dana Aldrich Joseph & Isabel Almeida Jeffrey Amico & Ashley Ryan AmeriGold Antonios Coiffures LTD Anthony & Vincenia Annuzzi 2 Gerald & Tina Annuzzi Frank Auletta Bank of America, N.A. Barnish Construction Donna Barnish William & Audrey Barnish Claire Battistus Edward & Charlotte Bayley Beverly Beckler Patricia Bell Scott & Dolores Blauth Lucille Bono George & Carol Boyden Melissa Brattole Jim & Marie Brown Eric & Erin Buraszeski Century 21 Emma Realtors - The Emma Team John Christopher Community Foundation of New Jersey Charles Conzentino Stephen & Donna Costanzo D & J Cleaners, Inc.DBA Linder’s French Cleaners D. Monica Design David Turbon Photography Patrice & Dolores De Mare Melissa Dellisanti Lisa Deo Laura DiBenedetto Adrienne DiGeorgio Dominic & Lorraine Dillon Tom DiNorscio Christopher Dirocco Mark & Jacqueline DiStefano Brian Drelick Marie Drobny Elite Real Estate Brokerage Elite Wrestling Everybody’s General Store Family Chiropractic Care Fedway Associates Franklin Sunset Automall Anthony Frederico & Patricia Schnoor Denise Furiato Aaron Galileo Dr. Ellen Ganek Mercedes Garcia Molly Gentine Andrew Giordano Eric Godoy Linda Goss Grandma’s Angel Josh Gross Glen Guzzi Scott & Margaret Hagen Thomas & Jeanne Hantson 0 1 2 A n n u a l R e p o r t Carol Hart Melissa Hartzell Bill Hearon Drs. Michael & Taylor Hoge Antoinette Iannaccone Investors Bank Lois Jackson D.D.S. Brian Kelly William & Joy Kelly William & Denise Kibler Greg Knox James & Jodi Lacapra Jamie Laudati Biagio & Laura Lembo John Libro Douglas & Dawn Livecchi Michael & Kathleen Long Stephanie Lovero Sandra Mariani Jean Marx Scott & Ellen Maynard John Patrick McCaffrey William & Domenica Meisner Steven & Beth Ann Metro Edward & Lynda Sue Miller Jr. Bryan Mintz Sara Moghadam Jennifer Munier Howard & Francine Muser Michael & Beverly Nissel Luis & Nancy Nogueira Robert & Andrea Northfield Scott & Kathy Noyes One Source Landscape & Mason Supply, LLC John & Nancy O’Reilly Richard & Laura Palumbo Elmire Pecora Marie Della Pelle Mark Perkins Perrello, Inc Frank & Cindy Polito Dante & Angela Puorro Michael Puorro Sonia Puorro Barbara Reed Re/Max Achievers Re/Max American Dream Stephen & Melissa Rivera Suzann Rizzo Michael & Nichole Rocca Pam Ross Len Rossine Rick & Karen Roy Rubio Brothers Contractors James & Deena Russell P A G E 3 3 Salt Creek Grill Ed & Dana Sanborn Richard Sanborn Ray & Joanne Sargent Christopher Sarrcino Daniel Seaman & Nichole Cipriani Ian & Patricia Sharkey Harold Silver Simplicity Title Thomas & Laura Simpson Keith Sluka Bruce & Susan Smith Peter & Abigail Sorge Maria Southworth Victor Steiner Robert Stolarz Richard & Vicki Strong Studnick & Associates, LLC Michael & Maria Studnick Sunshine Daydream David Taormina The Coal House The Hickory Hog Alexandra Troiano R.J. Tucker Bruce Turton Mary Jane Tyler Richard Tyler III Union Holding Group Arlene Urgola Erica Verdicchio Joseph Verdicchio Attila Vigilante Vincent Volpe Sean Weinerman Ivy Weinstein David Wickham Lyle & Sima Wolf Caleb Radley James & Susan Radley Jr. Corey & Ann Rowe Tyler Raisbeck Ann Gurtner Billy Reall Deer Park United Methodist Church Cecil Hurley Pevey Mechanical Services Pevey Transport LLC William Wotring & Mary Weeks Erin & Grayson Reimers Leslie Adams Gerald & Carol Boyd Dawn Burns Ches Cawthon Debra Cole P A G E 3 4 Ellen Cole Smith Allen Goodson David & Sheila Gose Jaime Kaplan Rhonda Kelley Annie Moore Buddy Moore Michael & Amy Moore Jill Olf Palmetoo Infusion Services David Pope Kimberly Powell Ashley Quebedeaux Don & Erin Reimers Georgia Slagle Kim Smith Stephanie Surles Walton Smith Agency, Inc. Angelique Richardson Tom & Lea Richardson Lea Richardson Charles & Linda Goessling Mary Kaye Richter Caryn Burstein Carol Clark Martha Liggett Penelope Neale Janelle Neff Clark Stanford D.D.S., Ph.D. Mary Kaye & Norman Richter Robert D. Heberer II Michael & Jennifer Richter Robert D. Heberer II The Richter Family Robert & Janet Heberer Amy Roberts Arthur Liebschutz & Patricia Kabool Gwendolyn Roman-Cabrera Charles & Jane Bissell Sarah Romig Corrine Roxby Mr. & Mrs. Jeffrey Sands Stanley & Gloria Zwirn Mr. & Mrs. Stephen Schneps Stanley & Gloria Zwirn Jon Schuermann Joseph & Susan Sansone Matthew Schwartz’s Bar Mitzvah Keith & Ruth Geismar Christina Scobbie Woody & Lacey Waldhour Barry Seiden’s Birthday Jerry & Paulette Donner Alan & Barbara Forst Keith & Ruth Geismar 2 Gary & Ann Hochman John & Janet Kornreich Neal & Eileen Koslow David & Florence Wilk Heinz & Cherna Wyttenbach Maria Showalter Robert D. Heberer II Katelyn Sizemore Kevin Sizemore Courtney & Chris Skillman Douglas & Denise Skillman Marie Skorz Dolores Coleman Patricia Fletcher Floyd Gabriel Kelly & Marie Gabriel Charles & Sharon Hagaman Donald & Julie Hurt Steve & Karen Knuffel Jessica Leri Jim Majewski Norma McDaniel Walter Pelker Kevin & Lydia Pestka Leo & Rose Pestka Martha Rulevish Thomas & Michelle Schaefer Brian Stephens Nelson Kirk Wong & Christa Pestka Kyle Spilbeler Larry & Pam Spilbeler Reagan Staley Beverly Staley Kathy Stanford,President Delta Theta Tau Sorority, Inc. - Alpha Rho Chapter Marc Steingesser Rosalie Auster Wyatt Tackett Mary Wiswell Lydia Temple Margaret Temple Mallory & Spencer Thomas FABENCO Founding Father’s Foundation Roberta Toback’s 70th Birthday Dr. Brian & Monica Krachman Rebecca Vaught William & Lynda Allen Tara, Jordan & Carmi Villaruel Marc Villaruel Nancy Von Bokel& June Wittlich Robert D. Heberer II Elizabeth Waggoner, RN Delta Theta Tau Sorority, Inc. - Zeta Nu Chapter Kimberly Wallis Jerold & Elizabeth Wallis 0 1 2 A n n u a l R e p o r t Nolan Wang John & Kelly Astaunda Andrew & Meredith Barbour Arnold & Sandra Chazen Charles Mrdjenovich & Jamie Curtis R. Gary & Doris Dungca Cynthia Fuller Michael & Valentina Jones Darlene Larson Paul & Tricia Miller Gregory Hasson & Lynn Nakagawa Arthur Nisperos & Mary Cava Nisperos Poway Unified School District - Westview ASB David & Gina Seidel Robert & Holly Sepa Anna So Kimiko Taira Serena Verfurth Gary & Jeanne Wang Nollan Wang’s Birthday Aubrey Ankele Laurie Clark Sofia Lloyd Suellen Savukas Danielle Waters Brenda Dorsey Weight Watchers Jacquelyn Groover Ed & Kathi Weilbacher Robert D. Heberer II Elizabeth Rose Weilbacher& Rob Betz Robert D. Heberer II John Miles Weilbacher Robert D. Heberer II Jordan & Ian Whittington Margie Bolton Grace Wilhelm Carrie Griesser Jennifer & Jeffrey Yolles Robert & Jodie Zwirn Stanley & Gloria Zwirn Alexander Zelkas Konstantinos & Jeanine Zelkas Gloria Zwirn Stanley & Gloria Zwirn Jack Zwirn Stanley & Gloria Zwirn Mr. & Mrs. Robert Zwirn Stanley & Gloria Zwirn In Memoriam Deceased Barone Family Anna Barone Ignazio Barone Joseph Barone P A G E 3 5 Marie Barone Joseph Barone Charles Blakey Lucille Migliaccio Nicole Bondanzia Lucille Migliaccio Vita Bove Jerry & Terri Matus James Brookshire Jane Brookshire Edna Brown Carl & Gail Noble Anna Burns Jerry & Terri Matus Louie Cefalu Sal & Harriet Cefalu Mary Chmil Thomas & Maja O’Neill Helen Connelly Howard Berkun Winifred Chuckrow Ruth Supovitz Eloise DeLap R.N. Delta Theta Tau Sorority, Inc. - Gamma Upsilon Chapter Winnie Dell Stanley & Gloria Zwirn Jane Denny Stephen & Paula Sherman Ron Dube Stanley & Gloria Zwirn Bob Eisenberg Ruth Boorstein Stephen Elder Richard & Edwina Elder Larry Elovich Keith & Ruth Geismar Margaret Essenberg Adrian & Julie Kiel Joy Geismar Steven & Susan Boughner Elliott & Nancy Merberg Alan & Helene Rutchik Fred Gilliland Doris Daugherty Edith Goldschmidt Stanley & Gloria Zwirn Gertrude Gruber Susan Gruber Don H. Miller Robert & Carole Miller Jim & Mary Williams Lillian Heberer Carol J. Holbert P A G E 3 6 Alfred Hersh Stanley & Gloria Zwirn Patrick Humphrey John Muir Middle School Faculty Lela Hutchison Joseph Hutchison Lola Hutchison Joseph Hutchison Josephine Innocenzi Lucille Migliaccio Wyatt James Beall David & Karen Beall Francis Jordan Stanley & Gloria Zwirn Eugene Kalinowski Lucille Migliaccio Ray Klacik Lucille Migliaccio Joanne Klump Keith & Ruth Geismar Diane Liberatore Lucille Migliaccio Carl Lind Sandra Lind John Lind Two Harbors Lion’s Club Grover Mackenroth Jr. Diana Mackenroth Susan Malo Vadalabene Charles & Susan Vadalabene Jim McCarthy Lucille Migliaccio Walter Morio Kathleen Morio Virginiee Nasharr Yvonne Bonahoom Richard & Lynne Bourjaily Val & Janet M. Brugioni John & Patricia Casey Joseph & Helen Cernok James & Kathleen Fleming Ted & Stella Georgitsis Robert & Patricia Leahy John & Mary Lou Loomis Frederic & Susan Mackler Michael & Yvette Mulryan Muriel Reynolds Mulryan and York, P.C. Attorneys at Law Penny Neale Richter Farms Ellen Noe Brian & Evelyn Randall Bernard Noik Keith & Ruth Geismar Rose Nowak Stanley & Gloria Zwirn 2 0 1 2 A n n u a l R e p o r t Renie Perrillo Elmire Pecora Robert Pontani Thomas & Sandra Kelly Lucille Migliaccio Guladaulpe Portillo Seyed Sashar & Paloma Portillo-Sarshar Michael Romano Peter & Anna De Francisco Alexa L. & Bart M. Maestranzi Everett Rustad Sandra Lind Lucy Santarsiero Lucille Migliaccio Hannah Schneps Stanley & Gloria Zwirn John Sciancalepore Pasquale & Barbara Sciancalepore Aleksander Smolyandkiy Keith & Ruth Geismar Carol Streppel Christopher & Janet Gruber Arthur Truglio Keith & Ruth Geismar James Ventura Lucille Migliaccio R. W. Matthew Ehrhardt Raven Waldkirch Shane Fisher D.D.S. Eric Whitamore Jane Curbelo Jason Willer Jerry & Terri Matus Vincey Zenkovich Robert & Rosemary Sedlachek LaVerne Zorn Edith Zorn P A G E 3 7 LE A D E R S H I P Outstanding care providers, business professionals, and NFED families volunteer their time to help our dedicated staff lead the organization. They serve on our Board of Directors, Family Support Council, Patient Care Council and Scientific Advisory Council. We thank them and all of our volunteers for their dedication and donation of their time and expertise. Board of Directors Anil Vora, President Fremont, California George Barbar, Vice President Boca Raton, Florida Pamela Kennedy, Secretary Canton, Georgia Brian F. Randall, Treasurer Belleville, Illinois Elizabeth Arro, C.P.A., Financial Advisor Caseyville, Illinois Jack Kriz, Office Liaison Newberg, Oregon Samuel El-Ebrashi, B.D.S., M.S., F.A.C.P. Portland, Oregon Rick Emery Belleville, Illinois Frank H. Farrington, D.M.D., M.S. Midlothian, Virginia P A G E 3 8 David Freestone, M.D. Ithaca, Michigan James L. Gehrs, D.D.S. Belleville, Illinois Ruth Geismar Manhasset, New York Paul Hamm Spring, Texas Garry C. Reuter Belleville, Illinois Brett T. Schott, C.F.R.E. St. Louis, Missouri John A. Stith, M.D. St. Louis, Missouri Sarah Tevis Poteet, D.D.S. Dallas, Texas John E. Gilster, D.D.S., Emeritus Board Member Albuquerque, New Mexico Mary K. Richter, Honorary Board Member Summerfield, Illinois Staff Judith M. Woodruff, C.F.R.E. Executive Director Kelley Atchison Director of Support Jodi Edgar Reinhardt Director of Marketing and Communications Mary Fete, M.S.N., R.N., C.C.M. Sr. Director of Programs Gale Hoedebeck Director of Administration Lea Richardson Administrative Assistant for Development Amy Rush Administrative Assistant for Programs 2 Family Support Council Da’Nella Anderson Mother of Child Affected by Ectodermal Dysplasia Julie Claeys Mother of Child Affected by Ectodermal Dysplasia Pamela Kennedy Mother of Child Affected by Ectodermal Dysplasia Jack Kriz Individual Affected by Ectodermal Dysplasia Terri Matus Grandmother of Child Affected by Ectodermal Dysplasia Patient Care Council Julie Claeys Mother of Child Affected by Ectodermal Dysplasia 0 1 2 A n n u a l R e p o r t Frank H. Farrington, D.D.S., M.S. Liaison from the Board of Directors Retired - Virginia Commonwealth University School of Dentistry Timothy J. Fete, Sr., M.D., M.P.H. University of Missouri-Columbia School of Medicine Dorothy Katherine Grange, M.D. Saint Louis Children’s Hospital Brody J. Hildebrand, D.D.S. Baylor University Maranke I. Koster, Ph.D. University of Colorado Denver Richard A. Lewis, M.D., M.S. Baylor College of Medicine Kathleen Motil, M.D., Ph.D. Baylor College of Medicine Lina M. Moreno Uribe, D.D.S., Ph.D. University of Iowa Frank H. Farrington, D.D.S., M.S. Retired from Virginia Commonwealth University School of Dentistry Jill Powell, M.D. St. Mary’s Health Center Timothy J. Fete, M.D., M.P.H. University of Missouri Health Care Elaine C. Siegfried, M.D. Saint Louis University School of Medicine Albert D. Guckes, DDS, M.S.D. University of North Carolina Chapel Hill Raj Sindwani, M.D., F.A.C.S., F.R.C.S. Cleveland Clinic, Head and Neck Institute Jonathan Korostoff, D.M.D., Ph.D. University of Pennsylvania School of Dental Medicine Margo B. Stein, Ph.D. University of North Carolina Chapel Hill Leonard Lausten, D.D.S. University of Missouri at Kansas City School of Dentistry J. Timothy Wright, D.D.S., M.S. University of North Carolina Chapel Hill Sarah Tevis Poteet, D.D.S., P.A. Private Practice Dentist in Dallas, Texas John Stith, M.D. Saint Louis University School of Medicine Thomas Vergo, Jr., D.D.S. Tufts University School of Dental Medicine Scientific Advisory Council Clark Stanford, D.D.S., Ph.D., Chair University of Iowa Alanna F. Bree, M.D., Secretary Dermatology Specialists of Houston P A G E 3 9 Our Mission To empower and connect people touched by ectodermal dysplasias through education, support, and research. Our Vision The National Foundation for Ectodermal Dysplasias will be a recognized leader among health-related nonprofit organizations and will be known for providing comprehensive services with loving care to individuals affected by ectodermal dysplasias and their families; for helping individuals and families benefit from early diagnosis and care, and for spearheading research that ultimately develops a cure. Ectodermal Dysplasias The ectodermal dysplasias involve defects in the hair, teeth, nails and sweat glands. Other body parts may be affected such as the skin, eye, parts of the ear, and limbs. The 150+ types are identified by the combination of physical features an affected person has and the way they are inherited. Symptoms among syndromes and even within families can range from mild to severe. Only in rare cases do ectodermal dysplasias affect lifespan and very few types involve learning difficulties. The ectodermal dysplasias affect men, women and children of all races and ethnic groups. As few as one or as many as 7 in 10,000 babies are born affected by ectodermal dysplasias. P A G E 4 0 Le 2 Leaving a 0 1 2 A n n u a l R e p o r t Legacy A legacy is something that is shared or transmitted by an ancestor. Greg Hickman’s family legacy included HED. But, he changed that to a legacy of hope for future generations. G reg Hickman was a gifted digital artist, graphic designer and filmmaker with a passion for golf, basketball and inspired pranks. He was also a good friend to the NFED. experience. A few years before his death, Greg even wrote a screenplay featuring a version of his father, an HED-affected man, as the main character.” Greg understood the challenges of ectodermal dysplasia. Multiple family members were affected including his father, sister, nephews, nieces, great-nephews and great-nieces. In the 1990s, Greg began supporting the NFED by participating in our Seattle Golf Tournament and giving to the Annual Fund. In 2012, Greg was stricken with metastatic melanoma and lost his dignified battle. His family shared with us Greg’s wish to help future generations by including the NFED in his will. He was inspired by the progress being made by Edimer Pharmaceuticals’ possible treatment of XLHED and NFED’s role. His niece, Bonnie Rough shares, “Even though his HEDaffected father had died in 1979 at the age of 49, Greg always felt close to the mystery and sadness of that We are grateful to this kind man for believing in NFED’s mission and providing a financial legacy. His efforts truly personify compassion in action. P A G E 4 1 F i n a n cia l s National Foundation for Ectodermal Dysplasias Statement of Activities Years Ended December 31, 2012 and 2011 2012 Total Public Support and Revenue Contributions Fundraising Special Events Less Costs of Direct Benefits to Donors Conference Registration Fees Sales of Publications/Promotional Items In-Kind Donations – Board of Directors In-Kind Donations – Rent In-Kind Donations – Other In-Kind Donations – Special Events Less: In-Kind Donations – Direct Costs For Fundraising Special Events Investment Income (Loss) Miscellaneous Income Total Public Support and Revenue Expenses Program Services Support Treatment Research Supporting Services Management and General Fundraising Total Expenses Net Change in Assets Net Assets, Beginning of Year Net Assets, End of Year $ 932,838 213,001 (98,950) 27,017 12,982 13,167 21,940 2,927 15,735 2011 Total $ 669,277 323,291 (203,596) 32,055 5,166 7,523 18,601 (15,086) 128,496 6,983 (2,485) (6,175) - $1,261,050 $ 843,657 337,673 127,714 279,671 353,930 169,956 189,523 104,147 139,806 165,785 71,613 $ 989,011 $ 950,807 272,039 (107,150) 1,017,393 1,124,543 $1,289,432 $1,017,393 A copy of the complete audit report, including notes, is available for public review at www.nfed.org or upon request from NFED, 6 Executive Dr., Ste. 2, Fairview Heights, IL 62208-1360. The NFED is a private, tax-exempt, nonprofit organization pursuant to Section 501(c)(3) of the Internal Revenue Code. All gifts to the NFED are tax deductible to the full extent of the law. Tax ID number 37-1112496. P A G E 4 2 INSIDE BACK COVER — BLANK NONPROFIT U.S. POSTAGE PAID PERMIT NO. 13 BELLEVILLE, IL 6 Executive Dr., Ste. 2 Fairview Heights, IL 62208-1360 NFED is a member of Thanks for caring about us! Contact us online at www.nfed.org or at 618-566-2020.