Cross CFAR CAB Collaborative
Meeting
Philadelphia, PA
April 11-12, 2011
CFARs
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Baylor/ UT
Case Western Reserve University
Duke University
DC CFAR*
Emory University
Harvard University
New York University
University of Alabama at
Birmingham
University of North Carolina
University of Miami*
University of Rochester*
University of Pennsylvania/ CHOP/
Wistar
University of Washington/FHCRC
Non-CFAR
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Family Health International (FHI)
* Indicates Developmental CFAR
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40 attendees from 14 institutions
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What participants liked most …
“ All of the presentations allowed for questions and answer. Also really
appreciate the diversity of the group.”
“The CFAR Survey Discussion and the Breakout group reporting/
discussion”
“The opportunity to hear about and share the stories of the different
CFAR experiences and strategies. Very informative especially for
a new CFAR! And lunch was great!  ”
“The sessions were structured but loose enough to allow discussion.”
Some of the
Expectations….
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Learn about CFAR
structure and function
Develop newcomers to
be leaders
Meet, learn from,
network with other
CABs for best
practices
Engage in dialogue
about important issues
Learn more about
research review of
protocols, etc
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40 Attendees (44 registered) from 13 institutions
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100 % rated meeting as meeting their expectations
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91% would like to continue on-going dialogue with the
other CFAR CABs.
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8 out of 13 CFAR CABs would like to host a future
face-to-face Cross CFAR CAB
training/meeting/workshop
Presentations- Monday Sessions
- Welcome and Introductions
James Hoxie, MD (Penn CFAR Director)
Waheedah Shabazz-El (Penn CFAR, CAB Chair)
Kevin T. Jones, MPH, Med (HIV/AIDS Prevention Research Division
- Getting to Know You: History and Infrastructure of CABs
Carol Rogers (Penn CFAR CAB, Vice Chair)
- Keeping CFAR CABs Afloat: CAB Coordinators Speak
Kate Murray, MPH (University of Washington CFAR CAB Coordinator)
- How to Get a Conference Scholarship: Batting 1000
Waheedah Shabazz-El (Penn CFAR CAB Chair)
- For Community Representatives and Other Non-academics: How Do I Develop An
Abstract?
Michael Blank, PhD ( Penn CFAR Behavioral and Social Sciences Co-Director)
- Building Effective and Meaningful CFAR Community Advisory/ Action Boards
- What’s Next?
Presentations, Friday Sessions
Jonathan Paul Lucas, MPH (FHI)
Cheryl Cokley MPH (FHI)
- Review of Training Agenda
- Training Introduction
- CAB Responsibilities
- Clinical Trials Terminology
- Protocol Content
- Protocol Review Questions
- Providing Feedback About the Protocol
- Training Summary
James Hoxie, MD Welcome (right)
Kevin T. Jones,
MEd, MPH
Facilitator (left)
Group learning
(left), Karen
FishbaughCummings, CWRU
(bottom left);
Breakout group
report back NYU
Rep, Lorenzo Penn
(bottom Right)
I couldn’t wait to follow-up with you re:
my experience at the CROSS CFAR CAB. It
was absolutely worthwhile and wonderful
from beginning to end. This collective
forum gave us an opportunity to establish
a network of support with existing and
developing CABs across the county. We
quickly realized that we shared many
commonalities re: strengths and
challenges and our respective differences
created stimulating and supportive
dialogue among us. We quickly embraced
while there are some fundamental similar
tenets embodied by all of the CABs, there
isn’t a “one size fits all” model.
I’m looking forward to being an active
participant in this dynamic exchange as
we continue to move forward individually
and corporately in advancing the HIV
research agenda with a vital emphasis on
community support, as evident by our
many discussions and activities.
Again, thank you, thank you, thank you for
extending the honor and privilege to
represent the UNC CFAR CAB. It was truly
an amazing experience and I’m grateful.
There was much that was outstanding
about our two days together – the people we
met, the discussions we had, etc. What
stood out for me, however, was how every
logistical detail was planned and executed
perfectly.
Thank each of you for your input, your
great ideas, your conversation and your
friendly involvement during our time
together this week. I enjoyed meeting
each of you.
As I depart this 'City of Brotherly
Love', I reflect that I have met many
wonderful new brothers and sisters
during my time here. We are creating a
family ~ a family of CABs bonded
together by shared initiative and
motivated by the common dream of
changing the landscape of HIV.
Thank you again for your many
contributions and your continued
commitment.
Jonathan Paul Lucas, MPH, FHI
trainer (top left); Some sunning &
movement planning (top right);
Penn CFAR CAB members
getting their certificates of
completion (bottom right)
Info sharing at its finest, some
creative juices were flowing as
well. All Attendees before we
departed
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COMMUNICATION PLAN
- listserv [cross-cfarcab@googlegroups.com]
- blog
- newsletter
-conference calls [CROSS CAB CALL
NUMBER: (712) 338-7506]
SKILL BUILDING
- webinars
[AnyMeeting.com/CrossCFARCAB1]
- face-to face meetings
- CAB retreat
INFRASTRUCTURE
- create a standardize criteria for CFAR
CABs
- create a centralized evaluation process
for how CABs can evaluate their own
effectiveness ( in reaching goals; fulfilling
its missions, etc), evaluate their
relationship with investigators and
University/ CFAR staff
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RESOURCES
- Nurture new groups who want to
establish CFAR CABs
- Create a clearinghouse for materials
by-laws, committee structures, training
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NEXT POSSIBLE HOSTS
-
Duke at (CFAR Director’s meeting)
-
Univ. of Washington, Harvard, UPenn,
UAB, Baylor/UT, NYU, Rochester
Penn CFAR CAB Education &
Training Committee
 Carol Rogers
 Cynthia Green
 Roy Hayes
 Jeffrey Jenne
 Alison Lin
 Brenda Hughes
 Bob Schoenberg
 Waheedah Shabazz-El
Penn CFAR Staff
 James Hoxie
 David Metzger
 Michael Blank
 Tiffany B. Dominique
 David Nadgeman
 Evelyn Olivieri
Volunteer
 Michelle Jones
Facilitators and Trainers
Kevin T. Jones, Penn HIV Prevention Research Division
Jonathan Paul Lucas , FHI
Cheryl Cokely , FHI